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Partnering with the Faith-Based African American Community

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					 PARTNERING WITH THE
 FAITH-BASED AFRICAN
AMERICAN COMMUNITY TO
 COLLECT HEALTH DATA
Elaine Belansky, PhD, Grant Jones, Jini Puma, PhD,
 Ralph Kennedy, MSW, CCRP, Mark Hocker, CHW,
      Deborah Main, PhD, Lucille Johnson, MA
             and Julie Marshall, PhD
  A Community‐Based Participatory Research
      Approach to Collecting Health and
           Built Environment Data
           The “Data Blast”


THIS STUDY IS FUNDED BY NIH AWARD # 3UL1RR025780-02S1
AND CDC AWARD # 1-U48-DP-001938
The Partnership
        COMMUNITY
  ENGAGEMENT MISSION
To transform the way
communities and researchers
work together to design and
conduct research by building
bridges between health
research, clinical practice and
community health initiatives to
improve the health of the
people of Colorado and the
Rocky Mountain Region.
      Center for African
       American Health




A collaboration of over 80 churches
working with the Center for African
 American Health to alleviate health
   disparities by promoting active
  and healthy lifestyles behavior in
            Metro Denver.
                          Rocky Mountain
             Rocky
            Mountain
           Prevention
            Research


                        Prevention Research
             Center




                              Center
                           Advancing healthy lifestyles
                           and preventing chronic
                           disease among residents and
                           communities in the Rocky
                           Mountain region using
                           community-based
                           participatory research
                           approaches



Funded by the Centers for Disease Control and Prevention
Data Blast Team (need
ralph and mark!)
    Data Blast Goal

Produce comprehensive and accurate
community health assessments for setting
research and intervention priorities and
gauging health status change over time
        What we each bring to
        the table
             Infrastructure, vision of community
             engaged research, (young)
             partnership with CAAH

             Experience conducting health
             surveys through churches, CBPR
  Rocky
 Mountain
Prevention
 Research
             Experience with CBPR,
  Center
             community health assessment
Why do we need this study?
Certain populations are consistently underrepresented
   in the BRFSS:
   – Males
   – Ethnic groups
   – 18-34 year olds
   – Not to mention the migration from land lines to cell
     phones.
Link to Social
Justice

It’s hard to address health
problems facing African
Americans when we don’t
have accurate information
about health status and
determinants.

                              From CAAH Website
Values of Community-Based
Participatory Research
(CBPR)
Collaborative & equitable partnership
Values multiple forms of knowledge
Power sharing

Premise: a CBPR approach will result in
more comprehensive, accurate health
information
Step 1: Develop trusting and
respectful partnership
Notes from our 1st meeting (10/13/09)
• Need to take the time to get to know and understand each person
  contributing to the partnership. This can be fostered by
  interacting/socializing outside of the project.
• Jini said that she would like to attend some of the Center for
  African American Health programs/events.
• “The quality of the relationship matters.”
• Each person brings unique expertise to the table; everyone needs
  to understand and value each person’s unique contribution to the
  partnership
• There is a need to have transparency with the partnership
Step 2: Be willing to listen
and learn from each other
What is random selection and why is it
a good thing?

What is CME?

Lucille said: “No one person’s
expertise trumps another’s.”
Step 3: Understand the pressures
and priorities of each partner
               This is an NIH grant. We need health status
               information from a random sample of all
               African Americans!

               We want to strengthen relationships with
               churches. We want health attitude &
               knowledge information to inform outreach.

    Rocky
   Mountain
               We want to use a CBPR approach to collect
  Prevention
   Research    health status and built environment data.
    Center
Step 4: Decide on Study Design
Option                        Pros                            Cons

1. Randomly select            •CAAH Partnerships              •CAAH Partnerships
churches and then             •Study Design (n, research      •Study Design (n, research
randomly select               Qs)                                Qs)
respondents within            •Cost/Logistics                 •Cost/Logistics
churches                      •Generalizability and Utility   •Generalizability and Utility
                              of Results                      of Results

2. Randomly select            Ditto                           Ditto
churches + also collect
surveys at cultural events,
barber shops, hair salons

3. Convenience sample of     Ditto                            Ditto
churches + cultural events +
random sample of
neighborhood census tracks
and of African American
adults in those tracks
The Decision
Option 1ish.
Phase 1: Randomly select churches and
 then randomly select respondents
 within churches
  Churches get $$$
  Pastors get to ask 3-5 of their own questions
  Churches get professional pictures taken of
   church/pastor for survey cover page
Phase 2: FILL IN AND TALK ABOUT
 ANSWERING GRANT’s Question
 Phase One Methods
1. Conduct focus groups with pastors
2. Randomly select churches stratified by size
3. Send letter to pastors notifying them that their
   church was selected
4. Take photo of church
5. Ask pastor to submit 3-5 questions to include in
   survey
6. Randomly select church members
7. Train church liaisons to send out surveys
8. Send $10 gift card with Paper and pen survey on
   3000+
Timeline
Oct 2009-October 2010
  – Partnership development
  – Decide on sampling frame/methods
  – Survey design
November 2010-February 2010
  – Data collection
March 2010-September 2011
  – Data analysis
  – Create and disseminate Community Health
      Reports
  – Manuscript writing
     Lessons Learned
• These steps take a lot of time
• There are lots of details and decisions to be made
  and when you use a group process, it takes even
  more time
• This project is a priority for university and Center for
  African American Health but not necessarily for the
  churches so that causes further time delays
• CAAH’s relationship with churches was essential in
  making this work
• You feel you can work through challenges when you
  start with and actively maintain a level of trust and
  respect

				
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posted:10/18/2011
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