California Wine Classic by xumiaomaio

VIEWS: 61 PAGES: 12

									     A Publication of the Northern California Chapter



     Vol. 41 | No. 1| SUMMER 2008




California Wine Classic
Back in September for Another Successful and Elegant Evening
Join us on September 25th at The Ritz-Carlton, San Francisco and help us raise over $150,000 to fund our
researchers and education and support programs.

                                                        The Crohn’s and Colitis Foundation of America’s 12th annual California Wine
                                                        Classic fundraiser will be held on Thursday, September 25, 2008 at The Ritz-
                                                        Carlton, San Francisco. Featuring California’s finest wineries, lavish delicacies and
                                                        an array of silent and live auction items, this event is once again not to be missed.
                                                        This year, we will also have reserved seating and an improved check-in process. The
                                                        event funds twelve researchers searching for better treatments and ultimately a cure
                                                        for inflammatory bowel disease and our education and support programs such as
                                                        our symposia, support groups, the Camp Oasis summer camp and Kids Club.

                                                        Please support the important work of CCFA and celebrate with us this September!
                                                        Help us raise critical funds by bidding on our exciting live and silent auction. Sample
                                                        auction items include: airline tickets, hotel stays at The Ritz-Carlton, Palace Hotel,
                                                        Terra Valentine in Napa, Resort at Squaw Creek, Marriott Puerto Vallarta, Pan
                                                        Pacific Whistler and restaurant gift certificates to Masa’s, Postrio, Manresa, Yank
                                                        Sing, Rubicon and much, much more!

You will also have the opportunity to purchase a table of six for reserved seating and VIP check-in ($1,500) or receive the
purchaser’s name in the event program with a Sponsor ticket ($150). There are a limited number of tickets at the minimum
ticket price ($85).

This event has sold out in the past, so purchase your tickets now at www.californiawineclassic.org or contact Dana Hall,
Development Coordinator, at 415-356-2232 or dhall@ccfa.org. We look forward to seeing you there!
              Words from Tamara Block, Executive Director
                               Dear Supporters,

                              As a patient or a caregiver of a loved one with Crohn’s or colitis, the cure for these debilitating
                              diseases truly cannot come fast enough. We are constantly reminded of the urgent need for better
                              treatments, when during a week’s time, a faithful volunteer who is healthy and vibrant one day, calls
                              us the next day to share that she is frightened by how sick she has become with colitis - bleeding
                              and going to the bathroom nonstop; or, when we receive a call for resources and support from
         Tamara Block         a panicked mother whose 25 year-old son has spent nearly 30 days in ICU and undergone four
                              surgeries for his Crohn’s disease; or, when a Take Steps walker spends several days in the hospital the
   same week as the walk, puts forth all her energy to be at the walk so our community recognizes her previously private struggle
   with Crohn’s. These individuals’ stories are all poignant reminders that there is important work to be done.

   One of the ways we are working to improve quality of life is by furthering our commitment to investing your financial support
   into critical research, which ensures improved therapies will be available soon. This year alone, we will invest $16 million
   towards research (with a goal of $30 million by 2010). Our research investments are selected by leading IBD experts who are
   confident that over the next several years our investments will lead to major medical advances. The Foundation’s investments in
   IBD research have already provided the basic science knowledge for nearly every recent treatment breakthrough. In fact, four
   new medications have been approved by the FDA for the treatment of Crohn’s and colitis in just the last three years – a record
   number. This is fantastic news of important progress toward improved care, but unfortunately, there still is not one treatment
   that works for everyone.

   In addition to funding research, the year has been filled with many new programs and resources that we hope will provide you
   with a stronger sense of community and allow for a better quality of life. One example is our recently launched interactive
   Crohn’s and Colitis Community (www.ccfacommunity.org), a web forum to share your thoughts about living with these
                   diseases (Read about this on page 8). The site is a critical link to community and information when you are too
                   sick to leave the house, or as an easy way to connect and gain insight from thousands of people who are living
                   with Crohn’s and colitis.
Leadership




                   We have also taken our role seriously in providing other direct support and education programs for patients,
                   families and professionals. This year we have directly served a record 2,000 local patients, families, and
                   professionals through four regional physician-led patient Symposia and Workshops, Webcasts, a Buddy
                   Connection program, Continuing Medical Education, a Kids Club, Camp Oasis, Support Groups, and an
                   Information Resource Center (1-888-MY-GUT-PAIN).

                   Our research, education and support programs are made possible through the generosity of people like you.
                   We sincerely thank you for your time, participation in our programs and financial support. We know that the
                   economy has created uncertainty. We are, however, still steadfast in our commitment to ensuring that there is
                   a future free from the pains of living with Crohn’s disease or ulcerative colitis.

                   We continue our hard work because over 1.4 million Americans and over 50,000 Northern Californians can’t
                   wait. We urge you to continue supporting our mission of ensuring that everyone has the chance of having a life
                   the way it should be – Healthy! Please consider making a generous financial contribution to funding research,
                   education and support programs by sending a gift to the Foundation in the enclosed envelope or by calling us
                   directly at 415-356-2230, to learn about other ways you can make a difference.

                   We again thank you for your continued support and commitment to end the suffering.

                   Looking forward to being in touch,

                   Tamara Block
                   Executive Director

                                                                                 2
                                                                                                                        Team Challenge
                                                       Crohn’s and Colitis
                                                       Napa to Sonoma:
                                                       Success of Epic Proportions
                                     The Northern California Team Challenge – Crohn’s and Colitis Napa to
                                     Sonoma Team is nearly 80 strong - the largest team in the nation. When
                                     participants line up for the race, they will be among 500 Team Challenge
                                     athletes from across the nation all proudly wearing the same orange
                                     jersey. These brave participants started their journey to find a cure for
                                     Crohn’s disease and ulcerative colitis and will end up at the finish line at
                                     the Napa to Sonoma Wine Country Half Marathon on July 20, 2008.

        Training for race day!        Participants committed to raising $2,500 for our mission and training
                                    for the 13.1 mile adventure. They divided up into four teams and have
been faithfully training at least three days a week since April. Teammates meet with their coaches and fellow
participants Saturday mornings to do their long walks and runs throughout the Bay Area. Each participant
has made giant leaps in their fitness and is closer than ever to the goal of crossing the finish line on July 20th.

They have persevered through rain and wind, twisted ankles,
felt aches and pains and many have endured the daily challenges
of living with Crohn’s or colitis. We would like to give special
recognition to two participants who unfortunately will be unable
to join us in Napa due to illness: Francine Yellin and Cristina Leone.

Thank you to all of our participants for helping CCFA get closer to
finding a cure for Crohn’s and colitis. To find out how our amazing
Northern California participants did on race-day, check our newsletter            Coach Claire McGowan Leads the
                                                                                   San Francisco Team in stretches.
later on this year!



Team Challenge - Crohn’s and Colitis is going to San Antonio!
Join us as we walk and run the San Antonio Rock ‘N’ Roll Half Marathon on
November 16th!

• Never run or walked even half that distance, but want to help find a cure for
  Crohn’s disease and ulcerative colitis?
• Looking for a great group of people to run or walk with?
• Want to make new friends and create life-long memories?
• Want to provide hope to those battling Crohn’s disease or ulcerative colitis?

Then Team Challenge – Crohn’s and Colitis is the program for you! We coach all levels to prepare you to complete a half
marathon (13.1 miles). We provide you with everything you need to reach your goals and even take care of your race entry, travel
and accommodations. All you need to do is sign up! Attend an information meeting or contact Breanne Long at 415-356-2234
or blong@ccfa.org or check out our website at www.ccteamchallenge.org!

                                      LASt CHANCe INfoRMAtIoN MeetINgS:
    Thursday, July 24th at 6:00pm                                         Wednesday, July 30th at 6:00pm
    Sports Basement - Walnut Creek                                        Sports Basement – San Francisco (Presidio)
    1881 Ygnacio Valley Road                                              610 Mason St. (at Crissy Field)
    (at Heather Park Farms), Walnut Creek, CA 94598                       San Francisco, CA 94129

                                                                 3
                                                           We Took Steps
Take Steps                                                 and Were
                                                           Heard!
                                                                                                                      to
                                                                                                                   ks r:
                                                                                                                 an o
                                                                                                               th ons
                                                                                                           ial    p
             This spring, we took steps as a Crohn’s and colitis community                              ec dia s dio
                                                                                                       p e
                                                                                                     s              a
                                                                                                        r m IT R
             and broke our Northern California records! Over 850                                   A
                                                                                                    ou
             walkers joined the Take Steps for Crohn’s and Colitis walks at
             De Anza College in Cupertino on May 10th and Justin Herman
             Plaza in San Francisco on June 7th. Due to the dedication of our
                                                                                                           KO
             walkers and generosity of donors, we raised a record $217,000 to go
             to CCFA’s research, education and support efforts!

             With an abundance of food, drinks, and music, we enjoyed our first CCFA night walk. Our wonderful Honored Hero,
             Megan Nardini, and amazing Corporate Chair, Sherry Brown from KOIT Radio, started the walks at 6pm by sharing
             their experiences and began the official countdown for the inaugural Take Steps. Teams decorated their team banners and
             walkers carried maracas to be heard and raise awareness about Crohn’s and colitis. Participants posted photos and notes
             showing their support of their own “hero” and proved how many people are suffering from these diseases. The BCO
             Band in San Francisco and The Fast Lane Band in Cupertino provided a night full of entertainment and fun.

             Overall, it was an inspiring event and proved that when we come together, we can create change and will work toward
             a brighter future free from Crohn’s and colitis. CCFA extends a heartfelt thanks to all participants, teams, sponsors,
             volunteers and supporters. We hope that you will continue to spread the word and participate in next year’s Take Steps
             for Crohn’s and Colitis walks!


                          ThANk you To our TAkE STEpS FINANCIAl SpoNSorS:




                                                                                             Photos Courtesy of:
                                                                                       Justin Korn & Ross Stovall
                                                                                        BubbleWrap Photography
             ThANk you To                                                           http://www.bubblewrapphoto.com
             FIrESIgN ENTErTAINmENT
             for providing The Fast Lane Band!                                                 Dave Couch
             www.firesignentertainmentgroup.com                                    Email: dcphotography93@yahoo.com



             ThANk you To our TAkE STEpS IN-kINd SpoNSorS:
             Attune Foods, Capay Organics, Clif Bar, Cole Hardware, E&O Trading Co., FRS, Fleet
             Laboratories, Hobee’s, Kashi, Naked Juice, Nature’s Path, Pasta Pomodoro, Road ID,
             Roadrunner Sports, Scharffen Berger, Semifreddi’s Bakery, SFMTA, Smart Water, Sports
             Basement, Trader Joe’s, Whole Foods

                                                               4
  2008S Take PSTepS ATeam & parTicipanT awardS!
  2008 T  T
         T F
             &
             AKE TEPS

                :
                       !
                        OP
                          EAM       ARTICIPANT

                             UNDRAISER
                                                  WARDS


                   Rick Corcoran $21,900                      2008 TAKE STEPS TEAM & PARTICIPANT AWARDS!
     LARGEST TEAM & TOP FUNDRAISING TEAM:                                        TOP FUNDRAISER:
               Amber’s Crohn-ies                                               Rick Corcoran $21,900
          Team Captain: Amber Swickard
        86 Team Members raising $12,000+
                                                                 LARGEST TEAM & TOP FUNDRAISING TEAM:
                          TOP TEAMS
                                                                           Amber’s Crohn-ies
                    Larry Wear’s Spirit Team                          Team Captain: Amber Swickard
                           $10,000+
                    Team Captain: Pam Wear                          86 Team Members raising $12,000+
                  Team Megan Poopsalot                                                 TOP TEAMS
                         $9,000+
   Team Captain: Megan Nardini, Take Steps Honored Hero                           Larry Wear’s Spirit Team
                                                                                         $10,000+
                          Team UCSF
                            $7,000+
                                                                                  Team Captain: Pam Wear
                  Team Captain: Elena Rodriguez                               Team Megan Poopsalot
            Participant Awards - $300 & Above                                        $9,000+
Jamie Alvey          Robbie Arellano   Richard Auld            Team Captain: Megan Nardini, Take Steps Honored Hero
Lisa Brockett        Cathy Carvalho    Christopher Carvalho
Kelsey Curry         Steve DeBenedetti Norma Hammes                               Team UCSF
Heather Heddlesten Nancie Kalivoda     Janet Lee                                    $7,000+
Patrick Meeker       Peter Mengell     Golnaz Nejad
Joseph Nardini       Sheila Ring       Madison See
                                                                          Team Captain: Elena Rodriguez
Merced See           Dayna Sherwood Donna Sherwood                   Participant Awards - $300 & Above
Ron Sotka            Raylene Swickard Linda Tennyson      Jamie Alvey         Robbie Arellano     Richard Auld
Christina Tinsley    Alexander Wear    Amanda Wear        Lisa Brockett       Cathy Carvalho      Christopher Carvalho
Deanna Wear          Christiane Wear   Rana Werber
Sean Young           Michelle DeVaughn                    Kelsey Curry        Steve DeBenedetti Norma Hammes
                                                     Heather Heddlesten            Nancie Kalivoda     Janet Lee
                  $600 & Above                       Patrick Meeker                Peter Mengell       Golnaz Nejad
Jennifer Asbury   Nancy Boehm       James Brockett   Joseph Nardini                Sheila Ring         Madison See
Linda Christenson Marie DeBenedetti David Drevno     Merced See                    Dayna Sherwood      Donna Sherwood
Daniel Estrada    Katrina Garrett   Lucinda Gold
                                                     Ron Sotka                     Raylene Swickard    Linda Tennyson
Lupe Greenbaum Maryann Harrison Carrie Holler
David Hornik      Annie Hsu         Lois Anne Indorf Christina Tinsley             Alexander Wear      Amanda Wear
Nora Luna-Estrada David Maugeri     Joshua Mengell   Deanna Wear                   Christiane Wear     Rana Werber
Marilyn Mueller   Amy Nardini       Ronee Nassi      Sean Young                    Michelle DeVaughn
Donald Pantle         Sarah Redman        Sarah Rivera
Denise Roby           Elena Rodriguez     Noha Soliman
                                                                                   $600 & Above
Lonae Swickard        Rick Swickard       Sam Todd
Mika Varma            Lorraine Walston    Jill Wear
                                                              Jennifer Asbury      Nancy Boehm         James Brockett
                                                              Linda Christenson    Marie DeBenedetti   David Drevno
                     $1,500 & Above                           Daniel Estrada       Katrina Garrett     Lucinda Gold
Carmelita Botelho    Ben Bovarnick        Sherry Brown        Lupe Greenbaum       Maryann Harrison    Carrie Holler
Eli Castillo         Leba Hertz           Alexander Marcoccia David Hornik         Annie Hsu           Lois Anne Indorf
Michael McCauslin    Ingrid Niederer      Samantha Pellitteri Nora Luna-Estrada
                                                                                   David Maugeri       Joshua Mengell
Jacklynn Sprague     Zhanna Tam           Jonathan Terdiman
Larry Wear           Pamela Wear                              Marilyn Mueller      Amy Nardini         Ronee Nassi
                                                              Donald Pantle        Sarah Redman        Sarah Rivera
                     $3,000 & Above
                                                              Denise Roby          Elena Rodriguez     Noha Soliman
Darleen Fleming       Gustavo Litvin      Megan Nardini       Lonae Swickard       Rick Swickard       Sam Todd
Jason Nassi           Lauren Swanson                          Mika Varma           Lorraine Walston    Jill Wear
                      $5,000 & Above
                                                                                   $1,500 & Above
Indu Johal            Amber Swickard
                                                           Carmelita Botelho       Ben Bovarnick       Sherry Brown
                                                                5
                                                           Eli Castillo                                Alexander Marcoccia
                                                                                   Leba Hertz
               In this issue, we are pleased to feature articles from two of our
CMAC Updates   Community Medical Advisory Committee (CMAC) Members

                  What a Crohn’s or Colitis patient Should know When
                            Visiting the gastroenterologist
                                    By Aaron Levy, MD, Gastroenterologist, Kaiser Permanent, Vallejo and CMAC Member
                                    The relationship between a patient with inflammatory bowel disease and his/her gastroenter-
                                    ologist is usually one that extends over years and through the ups and downs of disease exacerba-
                                    tion and remission. In order to establish and maintain an effective relationship, it is imperative
                                    to make the best use of both the patient’s and the physician’s time. On the initial visit, a patient
                                    should be able to provide a summary of their health, including when the symptoms of their dis-
                                    ease first developed, when and how the diagnosis was made, what medications/treatments have
                                    been used and the response to each. Particularly important is whether hospitalization has been re-
                                    quired and if steroids were needed. A brief summary of a typical flare is also necessary. Having an
               extra copy of all procedure, pathology and X-ray reports to give to the physician can save time and avoid repeat tests.
               Questions that the patient should ask of the physician to determine if the fit is a good one include: What percent of the
               practice is inflammatory bowel disease and how many IBD patients are currently in the practice? Is the physician ex-
               perienced with immunosuppressive drugs and biologics? How many patients does the physician have on the various
               medications now available? Where are infusions of medication performed and with what kind of supervision? What is
               the best way to communicate with the physician and office staff? Is the physician comfortable making medication ad-
               justments without an office visit? To which surgeons does the physician usually refer and which hospitals does s/he use?
               The physician-patient relationship is always a collaborative one. This is all the more true with inflammatory bowel disease.
               The best care results from open and prompt communication between both parties and can be a successful and rewarding
               experience for all involved.

                   research update from digestive diseases Week 2008
                                    By Fernando Velayos, MD, MPH, Assistant Professor of Medicine, University of California, San Francisco
                                    and CMAC Member

                                    Every May, over 15,000 gastroenterologists, researchers, and academics from the United States
                                    and around the world congregate at a major U.S. city to share ideas and discoveries in the field
                                    of gastroenterology. This five-day meeting, called Digestive Diseases Week, was held this year
                                    in San Diego, California. Several interesting trials and studies were presented this year in the
                                    field of inflammatory bowel disease. Two notable studies examining the relationship between
                                    the environment (bacteria and smoking) and inflammatory bowel disease are highlighted here.
               Probiotics are dietary supplements containing potentially beneficial bacteria or yeast. Makharia and colleagues present-
               ed a clinical trial where they randomized adults with mild to moderate ulcerative colitis (only taking mesalamine) to ei-
               ther probiotic treatment or placebo (sugar pill) for 12 weeks. At the end of the 12 weeks, more subjects in the probiotic
               group had improvement in their symptoms (41% vs. 18%); however there was no significant difference in the number
               of subjects who were symptom-free. Bottom Line: Probiotics have shown efficacy in adults with pouchitis. Although
               intriguing, more studies are needed to demonstrate that probiotics can treat flares in adults with ulcerative colitis.
               Smoking negatively impacts health in many ways, increasing the risk of lung cancer and heart disease. Smoking negatively
               impacts Crohn’s disease as well. Sekski and colleagues presented an important study that followed the smoking habits of
               3,100 adults with Crohn’s disease and then determined the severity of their disease over time. The scientists found that more
               cigarette use was associated with more years of active Crohn’s disease and smokers required more medications to treat Crohn’s
               than non-smokers. However even light smokers were at risk. Bottom Line: This study, along with several others, clearly
               shows that it is critical to quit smoking (even light smoking), as smoking is associated with more severe Crohn’s disease,
               greater hospitalization, and surgery.


                                                 lookINg For A ClINICAl TrIAl?
                                                    To participate in a clinical trial in your area,
                                                please visit www.ccfa.org/trials or call 888-694-8872.


                                                                   6
CCFA Northern California Chapter Expands Education Programming




                                                                                                                                                 Education Update
Since the Fall when we hosted our San Francisco Flagship Patient & Family Education Symposium, our
Chapter has provided three education programs to our patients, family members and healthcare providers: the
Santa Rosa Patient Education Workshop, the Sacramento Patient & Family Education Symposium and the
first San Jose Patient Education Workshop. All three programs welcomed community experts who provided
an interactive and informative platform for attendees to learn and ask questions.

We would like to thank our speakers for their participation in our programs and for
providing a service to our CCFA community:
                                         Santa Rosa Patient & Family Education Workshop: February 7, 2008
                                         Steele Lane Community Center                                                   Please save
                                         Robert E.H. Khoo, MD, Colorectal Surgeon, Center for Colon & Rectal Surgery      the date
                                         Paul Kefalides, MD, Gastroenterologist, North Bay Medical Group                   for the
                                         Peter Madill, MD, Integrative Physician, Private Practice                     San Francisco
                                                                                                                         Bay Area
                                                                                                                          Flagship
It was a full house in Santa Rosa at
  our evening education program!
                                                                                                                           Patient
                                                                                                                        and Family
                                         Sacramento Patient & Family Education Symposium: April 5, 2008                  Education
                                         UC Davis Auditorium at the Courtyard Marriott                                 Symposium!
                                         Event Chair: Antonio Quiros, MD, Pediatric Gastroenterologist, UC Davis and
                                         California Pacific Medical Center                                                    Saturday,
                                         Keynote Speaker: Thomas Prindiville, MD, Gastroenterologist, UC Davis
                                                                                                                        October 25, 2008
                                         General Session: Ronald Hsu, MD, Gastroenterologist, Capitol GI
                                         Deborah Cohen, MFT, MPH, Psychotherapist, Private Practice                    9:00 am – 3:30 pm
                                         Phyllis Cullen, MD, Anesthesiologist, Chico Pain Clinic                            NEW VENUE:
  After his keynote address at our       Michael Lawson, MD, Gastroenterologist, Kaiser Permanente                       South San Francisco
 Sacramento program, Dr. Thomas
Prindiville answered questions from
                                         Frances Rodriguez, CWOCN, RN, Wound Ostomy Nurse, Sutter Health                  Conference Center
             the audience.               Linda Tennyson, CPNP, Pediatric Nurse Practitioner, UC Davis                        FEATURING:
                                         Marlene von Friederichs-Fitzwater, PhD, Professor, UC Davis
                                                                                                                        Keynote address from
                                                                                                                          Uma Mahadevan-
                                         San Jose Patient & Family Education Workshop: May 14, 2008
                                         Kirsch Conference Center, Silicon Valley Community Foundation                 Velayos, MD, breakout
                                         Oren Abramson, MD, Pediatric Gastroenterologist, Kaiser Permanente             sessions on a variety
                                         Peter Simpson, MD, MPH, Gastroenterologist, Camino Medical Group                of topics related to
                                         Barbara Dodson, RD, Panelist                                                     managing Crohn’s
                                         Rachel Schneyer, MS, LAc, Panelist                                             and Colitis, “Buddy”
                                                                                                                        connection program,
   At our first San Jose education                                                                                     “Ask a Nutritionist and
program, panelists answered ques-
 tions. (from left to right: Dr. Peter
                                                                                                                         Gastroenterologist”
Simpson, Rachel Schneyer, Barbara                                                                                             and more!
   Dodson, Dr. Oren Abramson).


We would also like to thank the following sponsors for their generosity, making our
education programs possible!




                                                                                     7
          Share your Thoughts                                                          CCFA SUPPORT GROUPS

Support   about Crohn’s and Colitis
          Visit Our New Online Community
                                                                                       All support group listings are subject to change. Please call
                                                                                       the CCFA office at 800-241-0758 to confirm the group is
                                                                                       meeting.

                                                                                       FREMONT
                                                                                       Facilitator: Marilyn Mueller
                                                                                       Location: Washington Hospital, West Building, 2500 Mowry
                                                                                       Ave, Conrad Anderson, MD Auditorium
          In March 2008, to meet the dynamic needs of patient groups, the              Meets: 4th Tuesday of the month, 6:30-8:30 pm
          Foundation successfully launched an interactive web site, the Crohn’s        PALO ALTO
          and Colitis Community (www.ccfacommunity.org). In the first two              Facilitator: Ted Wallace
          months of operation, nearly 900 users joined and an impressive 23,700        Location: Stanford Medical Center, 3rd floor, H3210
                                                                                       Meets: 1st Wednesday, 7-8:30 p.m.
          have visited the site since then. This online peer support community
          serves as a free resource to provide patients and families with the vital    PALO ALTO CPT - Children, Parents, Teens
                                                                                       Facilitator: Denise Lehman, RN
          support they need in managing Crohn’s disease and ulcerative colitis.        Location: 750 Welch Road, Suite 116, Stanford
                                                                                       Meets: 4th Wednesday at 7 p.m. – September through May
          “Through ccfacommunity.org, patients, family members, and health             PLEASANTON
          care professionals from around the country, who share the common             Facilitators: Cindi Bontempo and Carolyn Paredes
                                                                                       Location: 5725 West Las Positas Blvd. Number 270
          thread of Crohn’s disease and ulcerative colitis, are able to instantly      Meets: 3rd Thursday at 7 p.m.
          connect—enabling them to offer and receive critical support and
                                                                                       ROSEVILLE/ROCKLIN/AUBURN
          share their powerful stories on an unprecedented level,” says Kimberly       Facilitator: Guy Randazzo
          Frederick, Vice President of Patient and Professional Services for the       Location: Sutter Roseville Hospital, on North Sunrise, Lobby
                                                                                       Meets: Last Wednesday of the month at 7 pm
          Foundation. “These interactions are inspirational to all site visitors who
          are all coping                                                               SACRAMENTO
                                                                                       Facilitator: Charles Schaefer
          with the ups                                                                 Location: Sutter General Hospital, 2nd Floor, Conf Room C
          and downs                                                                    Meets: 3rd Sunday, 5:00-6:30 p.m.
          of living with                                                               SAN FRANCISCO
          these diseases.”                                                             Facilitator: Susan Shwartz
                                                                                       Location: California Pacific Medical Center,
                                                                                       2333 Buchanan St., Anne Thornton Board Room, Lobby Lvl
          Since the                                                                    Meets: 2nd Tuesday at 7:30 p.m
          initial
                                                                                       SANTA ROSA
          launch date,                                                                 Facilitators: Meg McNees, Teresa Clarey, and
          nearly 100                                                                   Debbie Rogers
                                                                                       Location: Kaiser Medical Offices Bldg., 3rd Floor,
          people have                                                                  Dermatology Waiting room
          posted their                                                                 Meets: 1st Monday at 6:30 p.m
          exceptional                                                                  STOCKTON
          stories about                                                                Facilitators: Susanne Roup and Cathy Burrows
                                                                                       Location: Kaiser Permanente Medical Offices,
          living with                                                                  Conference Center Room
          Crohn’s disease and ulcerative colitis. The site’s search function makes     7373 West Lane, Stockton
                                                                                       Meets: 3rd Wednesday of the month from 6:30-8:30 p.m.
          it easy to quickly find stories by specific topic, disease, gender, and
          age. Users can also participate in the site’s online discussion board,       TRACY TEEN/YOUNG ADULT GROUP
                                                                                       Facilitator: Penny Aldrich, RN
          consisting of eight forums (newly diagnosed, travel, treatments,             Location: Sutter Tracy Community Hospital,
          managing symptoms, everyday living, emotional wellness, surgery, and         Conference Rooms A & B.
                                                                                       1420 North Tracy Blvd., Tracy
          comparta en español).                                                        Meets the following Thursdays in 2008: August 28th,
                                                                                       September 25th, October 16th, November 20th and
          This valuable resource was made possible through an unrestricted             December 18th from 7 to 8 pm
          grant from Abbott Laboratories, to better help users navigate the            WALNUT CREEK
          Community. The Foundation advises users to always check with their           Facilitators: Teddy Palmer and Pat Doughty
                                                                                       Location: John Muir Medical Center, Sterns Room,
          personal physician before taking any action regarding their health.          1601 Ygnacio Valley Rd., Walnut Creek
                                                                                       Meets: 4th Wednesday at 7 p.m.

                         GET ThE InfORmaTIOn anD                                       PULL-THRU GROUP
                                                                                       (ILEOANAL ANASTOMOSIS)
                            SuppORT yOu nEED!                                          Facilitator: Ernie Moor
                                                                                       Location: Conference Room Lilac 2
               To post a message or read our online message boards,                    Kaiser Permanente Medical Center
                           visit the CCFA community at                                 (Lilac and South Main Street), Walnut Creek
                             www.ccfacommunity.org.                                    Meets: Bi-Monthly. First Tuesday of the month, 7 pm
                                                                                       Next meeting: August 5th
                  For questions about managing Crohn’s disease or
                     ulcerative colitis, please contact one of our
                   specialists at the Information Resource Center:
                           888-MY-GUT-PAIN (888-694-8872)                                 If you are interested in starting a
                           Monday-Friday, 9 am – 5 pm EST                               support group in Oakland, San Jose or
                                                                                              Santa Cruz, please contact
                             info@ccfa.org • www.ccfa.org                                Miriam Boxerman at 415-356-2233.

                                                               8
CCfa hosts CmE/CE Education program for Local




                                                                                                                                                   Involvement
physicians and nurses
On June 4, 2008, our Chapter hosted its first locally-driven free certified CME/CE dinner
program for Bay Area physicians and nurses who treat patients with inflammatory bowel
disease. We had a record 90 attendees at the dinner program at One Market Restaurant
in San Francisco. The program was entitled Optimizing the Management of Inflammatory
Bowel Disease: Therapy Overview and Biologics Update with Case Discussion.
We were pleased to welcome Dr. David Rubin from the University of Chicago Medical
Center and Dr. Fernando Velayos from the University of California, San Francisco
as our faculty speakers. Dr. Rubin provided an overview of current therapies for
inflammatory bowel disease, including an emphasis on the new biologic drugs, and            Dr. David Rubin presenting at the
Dr. Velayos provided cases for questions and discussion. We would like to thank Dr.                  CME/CE dinner
Rubin and Dr. Velayos for their participation and our event chair, Dr. Madhulika Varma, from the University of California,
San Francisco.
We plan to feature another accredited program next August for local healthcare professionals, so stay tuned!
This program was jointly sponsored by the Postgraduate Institute for Medicine and CCFA, Northern California Chapter
and was supported by educational grants from Centocor, Elan, Procter & Gamble, Shire and UCB.



physician and healthcare professional membership roster
We are grateful to the many physicians, nurses, and healthcare professionals throughout Northern California who support
CCFA through our Professional Membership program. Inclusion on this list does not mean that the healthcare professional is
recommended by CCFA.
PREMIER PHYSICIAN                   PARTICIPATING PHYSICIAN                Susan Jeiven, M.D.                     Marc Silverstein, M.D.
Jeffrey M. Aron, M.D.               Michael Abel, M.D.                     John A. Kerner, M.D.                   Marna M. Skaar, M.D.
John R. Carlson, M.D.               James Allison, M.D.                    Stephen M. Lee, M.D.                   James W. Stricker, M.D.
Yanek S. Chiu, M.D.                 Pirow Bekker, M.D.                     Aaron M. Levy, M.D.                    Michael S. Verhille, M.D.
Marjorie McCracken, M.D., Ph.D.     Michael Bender, M.D.                   Zen Majuk, M.D.                        Laurence F. Yee, M.D.
Antonio Quiros, M.D.                Abby Caplin, M.D.                      Harry B. Matossian, M.D.               HEALTHCARE PROFESSIONAL
David Siegel, M.D.                  Alvaro D. Davila, M.D.                 Kenneth R. McQuaid, M.D.               Robert F. Bronstone, M.D.
Peter Simpson, M.D.                 Robert Logan Faust, M.D.               Subhendu Narayan, M.D.                 Howard Kornfeld, M.D.
Tim Sowerby, M.D.                   Brian L. Hanson, M.D.                  Mary P. Pauly, M.D.                    Martin S. Liberman, M.D.
Jeffrey A. Sternberg, M.D.          Mel Heyman, M.D.                       Mark E. Rosenberg, M.D.                Uma Mahadevan-Velayos, M.D.
Jonathan P. Terdiman, M.D.          Steven A. Jacobsohn, M.D.              Paul C. Rubinstein, M.D.               Kendall Yoshisato, R.N.



Making donations in honor or in memory of others is a meaningful way to recognize your commitment to an important cause. Your
memorial or honor gift to CCFA is a compassionate gift that will make a difference in the lives of others with IBD. Each contribution
is acknowledged with a card to the designated recipient, indicating the occasion and the donor’s name. To make a gift, please
contact the chapter office at 415-356-2232 or online at www.ccfa.org.

IN HONOR OF:                  Micheline F. Reeder            Gail E. Daugherty Collins      Michael Saltzman                 Robert Thomson
Craig Cook                        Natalie Reeder                  Sunny Kaplan                  Elaine F. Wells                  Lisa K. Malone
     Nicole Cook              Rachel Robbins                 Louise Elia                    David Schaum                     Donna Yaroch
Judith Epstein                    Melissa Volkman                 Sharon Marlatt                Jon & Ushi Schick                Roseann Schafer
     Bob & Ellen Jasper                                                                         Evelyn Spiegel
                              Lynn Sedway                    Bonnie Fisher
Terence J. Fleischer              Bob & Ellen Jasper             Bob & Ellen Jasper         Janet Schultz
     Julie A. Fleischer                                                                         Bob & Ellen Jasper
                              Mike Wallace                   Cecilia George
Mark Franken                      Bob & Ellen Jasper              Anonymous                 George S. Smith
    James Daugherty                                                                             Adele L. Smith
                              IN MEMORY OF:                  Betty Glidewell
Robert Kearn                  Jeanne G. Baer                      Lois M. Perry             Jannett Stam
    Andrea & Steve Cohn           Nancy Cherney                                                 Mary Raymond
                                                             Carolyn Kahn
                                                                                                E.E.N Property Management
Barbara Klein & Dorothy       Marshall Collins                   Stephen Abel
Neuman                            Joann Walsh                    Mark Horne                 John P. Stolarik
    Anonymous                     Ted and Jean Lusk              Deanna Freedman                Stephen & Joellen Stolarik
                                                                 Marlin Feldman
Carly Levick                  Genevieve Czyzyk                                              Phyllis Suchman
     Bob & Ellen Jasper           Juanita Cisek                                                  Edie F. Wilson



                                                                                   9
Involvement           Team Challenge Mentors
                      outstanding volunteers who keep on giving!
                                                                                   The 79 Team Challenge Crohn’s and Colitis Napa to Sonoma
                                                                                   half marathon participants are fortunate for many reasons. They
                                                                                   have three amazing coaches, CCFA staff support, and this season
                                                                                   they have the support of one of our 10 fabulous Team Challenge
                                                                                   mentors. Mentors provide ongoing support to all Team Challenge
                                                                                   participants so that they are able to successfully meet and exceed
                                                                                   their fundraising and training goals, and finish the program with
                                                                                   a high level of satisfaction and success. Mentors are each assigned
                                                                                   a group of 8 to 10 mentees with whom they share past experiences
                                                                                   with the program. Mentors go out of their way to ensure that
                                                                                   each participant feels welcome and enjoys the Team Challenge
                                                                                   experience. Mentors also represent a new aspect of the program
                             Superstar Peninsula Mentors Denise Jo Crangle         which we know will continue to enhance Team Challenge.
                                          and Babette McKay
                                                                                   This season, our Team Challenge mentors are Jeniffer Alcaide,
                      Kathy Beach, Avantika Chitre, Denise Jo Crangle, Barbara Hetland, Cathy Lewis, Kelly McGregor, Babette McKay, Chandara
                      Phanachone, and Sean Roth who all completed the Team Challenge Rock ‘N Roll Half Marathon in October 2007. They have
                      helped our local program more than double the number of participants and triple the revenue generated over last year’s program.
                      We would like to thank the mentors for their dedication to Team Challenge – Crohn’s and Colitis, and for making the Northern
                      California Team the largest Team Challenge team in the country and in the history of the program. Thank you for making this
                      program a huge success and setting the bar for future programs.




     Got Guts at Thunderhill III Most Successful Yet!
                                                      Ron Petrich and the Sacramento Area Miata Owners Assocation (SAMOA) concluded their third
                                                      successful Got Guts at Thunderhill event on April 21, 2008, which raised exactly $14,025.31
                                                      for our local CCFA Chapter – the most ever raised from Got Guts at Thunderhill! Since the
                                                      event started in 2006, it has brought in a cumulative $33,000 to support CCFA’s research,
                                                      education and support programs. Each year, sports car aficionados come to Willows, California
                                                      to drive their own high-performance sports cars and participate in a raffle to win amazing prizes.
                                                      Congratulations to Ron and SAMOA for hosting another amazing fundraiser on behalf of CCFA!

                                                      Ron has not only been running this event for the past three years - he is a volunteer for
                                                      many of our Chapter’s other programs, including being an honored hero for the
                                                      Team Challenge half marathon training program. Here is a little bit about Ron:
          Ron Petrich, Volunteer Extraordinaire


     Why are you so dedicated to helping CCFA?
     I enjoy the idea of supporting something I believe in and I believe in CCFA and its mission. I
     was diagnosed with Crohn’s disease in 1994 and the improvements in treatment since then have
     increased dramatically. I am convinced that we will find a cure for inflammatory bowel disease.

     How do you manage being so involved when you are living with Crohn’s disease?
     My life philosophy that keeps me going is that I concentrate on the ‘non-sick things’ and I try to
     lead as normal a life as possible. If I can demonstrate that positive energy to other people, I can
     inspire them see the positive nature of their situation, even if it’s hard. When I’m feeling well, I
     do as much as I can. Because of the improvements in treatment options, I am feeling much better
     than I ever thought possible 14 years ago.                                                                            On the racetrack

     Anything else you want people to know?
     I have been married for nearly 34 years to my wife, Mary Pat, and we have two grown sons. I am a lifelong ‘rabid’ Cubs fan and I am
     passionate about golf and open tracking.

     If you would like to learn more about next year’s Got Guts at Thunderhill IV which will be hosted in April 2009, please visit their website:
     www.gotgutsatthunderhill.com or call our Chapter office.
                                                                       10
Tee Time for Kids Club Members and Families!




                                                                                                                        Youth Activities
                                                 On March 9, 2008, our Chapter hosted a second successful Kids
                                                 Club event at Malibu Castle Mini Golf in Redwood City, which
                                                 included a presentation on the Camp Oasis summer experience
                                                 from our fabulous Camp Oasis medical volunteer, Denise Lehman,
                                                 RN, from Lucile Packard Children’s Hospital. Kids Club mem-
                                                 bers, along with their parents and siblings, enjoyed an afternoon of
                                                 mini golf on the fun course. The Kids Club is a new program from
                                                 our chapter which provides educational and social opportunities
                                                 for kids and teens (7 to 16 years old) living with Crohn’s disease
Denise Lehman, RN, talking about Camp Oasis to   or ulcerative colitis. We would like to thank Denise Lehman and
        Kids Club members and families.
                                                 Carrie Holler for volunteering their time! Stay tuned for more Kids
                                                 Club events coming up later on this year.




                                   Enjoying the sunny day on the Malibu mini golf course!




Camp Oasis at the Painted Turtle
Back for a Fourth Summer!
                                                        This July, thirty local campers will attend CCFA’s Camp
                                                        Oasis at the acclaimed Painted Turtle Camp in Lake Hughes,
                                                        California. They will spend five glorious days singing, danc-
                                                        ing, fishing, swimming, woodworking and so much more,
                                                        all in a medically safe and supportive environment.

                                                        Due to the generosity of our sponsors, the Yahoo! Employee
                                                        Foundation and Mr. and Mrs. Van Van Auken, we can make
                                                        this incredible opportunity a reality for local children and
                                                        teens living with Crohn’s disease or ulcerative colitis.

    For more information about Camp Oasis or our youth activities, please contact Miriam Boxerman at
                                415-356-2233 or mboxerman@ccfa.org.


    If you would like to help send a local child to camp, please mail in your donation to our
           office at 111 New Montgomery Street, Suite 208, San Francisco, CA 94105.


                                                                        11
President
Jonathan P terdiman, Md
           .                                                                                                                       Non-Profit Org.
Associate Professor of Clinical Medicine                                                                                            U.S. Postage
                                                                                                                                       PAID
Director of Clinical Programs, IBD Center Director,
                                                                                                                                   Santa Ana, CA
Colorectal Cancer Prevention Program, University of               NorThErN CAlIForNIA ChApTEr                                       Permit # 310
California, San Francisco                                         111 New Montgomery St., Ste. 208
Vice President                                                    San Francisco, CA 94105
sherry Brown
News Director, KOIT Radio
Madhulika G. Varma, Md
Community Medical Advisory Committee Chair
Co-Director, Inflammatory Bowel Disease Center,
University of California, San Francisco Medical Center,
Assistant Professor, Department of Surgery, University of
California, San Francisco
trustees
Marty Felsenthal
Partner
HLM Venture Partners
Mark Horne
Pharmacist
Owner of Pharmpak
robert Jasper
President (retired), Enterprise Rent-A-Car of San
Francisco
saurin Pandya, MBA
Executive Director (retired), America Online, Inc.
President, MarketGuru, Inc.
Jeanette Pavini
ConsumerWatch Reporter and host of “The Real Deal”
CBS 5
terry Pennebaker
Owner of Orinda Motors
Jeffrey A. sternberg, Md
Surgical Director, Inflammatory Bowel Disease Center
California Pacific Medical Center                           mISSIoN STATEmENT
                                                            To cure Crohn’s disease and ulcerative colitis, and to improve the quality of
                                                            life of children and adults affected by these diseases.

                                                                                                              STAFF
2008-2009 Calendar                                          FEBruAry 4Th
                                                            Santa rosa patient & Family Education Workshop    Executive director
Please join us for the following events!                                                                      Tamara Block
                                                            mArCh 8Th
July 24Th AT 6:00pm                                         kids Club Event – peninsula                       Education and Support manager
Team Challenge Info meeting                                                                                   Miriam Boxerman. MPH
Sports Basement - Walnut Creek                              AprIl 4Th
                                                            Sacramento patient & Family Education Symposium   Endurance manager - Team Challenge
July 30Th AT 6:00pm                                                                                           Breanne Long, MBA, MS
Team Challenge Info meeting                                 mAy 6Th
Sports Basement – presidio (SF)                             San Jose patient & Family Education Workshop      Walk manager - Take Steps
                                                                                                              Trish Wynne
SEpTEmBEr 25Th                                              mAy 2009
California Wine Classic                                     Take Steps Silicon Valley and                     development Coordinator
The ritz-Carlton, San Francisco                             Take Steps Sacramento                             Dana Hall

oCToBEr 12Th                                                JuNE 28Th
kids Club Event – Sacramento                                Team Challenge kona half marathon

oCToBEr 25Th                                                JuNE 2009                                         CCfa      Northern California Chapter
San Francisco Bay Area Flagship patient & Family            Take Steps San Francisco                                    111 New Montgomery St.
Education Symposium                                                                                                     Suite 208
                                                            July 19Th
South San Francisco Conference Center
                                                            Team Challenge Napa to Sonoma Wine Country
                                                                                                                        San Francisco, CA 94105
                                                            half marathon                                     phone:    415-356-2232 or
NoVEmBEr 16Th
                                                                                                                        1-800-241-0758
Team Challenge rock ‘N roll half marathon                   July 2009
San Antonio, Texas                                          CCFA’s Camp oasis                                 fax:      415-356-0880

JANuAry 25Th                                                AuguST 26Th                                       Email:    ncal@ccfa.org
kids Club Event – East Bay                                  CmE program for physicians and Nurses             Website: http://california.ccfa.org
                                                                                  12

								
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