Tired of disability by liaoqinmei


									Encouraging and supporting health services research and development in Dorset
   Dorset RDSU Cornelia House, Poole Hospital NHS Trust, Longfleet Road, Poole BH15 2JB • Volume 9 Issue 2 June 2005
           Tel: 01202 448489 Fax: 01202 448490 e-mail: chris.richards@poole.nhs.uk Website: www.rdsu.org.uk

                Tired of disability
                                                        variable. Some people describe a fatigue that exists

          id you know that fatigue is often a major
          problem for people with multiple              when they wake up and continues throughout the
          sclerosis (MS)? Difficulties with mobility    day; others describe a fatigue that gets worse
are a common visible manifestation of MS, and           during the course of the day; others describe a
these range from having a slight limp to having to      fatigue that comes on if they overdo things but
use a wheel chair. However, fatigue is one of a         which might not come on until some days later;
number of invisible problems often experienced          and yet others describe a fatigue occurring during
by people with MS, and for a majority is their          activity that can be alleviated by a short period of
most troubling symptom. Fatigue can have a              rest. A consequence of this subjectivity is that
significant disabling effect, both physically and       measurement is often done using self-completion
mentally, and so can have a major impact on             scales. However, this is not straightforward since
quality of life.                                        there are many different aspects of fatigue that can
                                                        be measured, including physical fatigue, mental
Of course, anyone can feel fatigued after a long        fatigue, severity of fatigue, the degree of impact of
period of mental or physical exertion. Fatigue in       the fatigue, and factors initiating fatigue. The
MS, however, is more severe, occurs more easily,        RDSU and others were recently invited by the MS
can last for longer, and has a greater impact.          Society to participate in a working party that is
Because it is invisible, family, friends, work          looking at these issues.
colleagues and others often misunderstand it, with
the result that the person may be mislabelled as        Taking a thorough medical history and
lazy or a malingerer. Fatigue in MS is not              conducting a clinical examination may sometimes
thoroughly understood, but causes are frequently        help in identifying a specific cause of the fatigue.                      Peter Thomas
divided into 2 types; those that are part of the        For example, the person may have an underlying
disease process (primary fatigue), such as              infection or some other co-existing medical             fatigue in Chronic Fatigue Syndrome (CFS) than
impairments in nerve conduction, or high auto-          condition, they may have depression (of which           on fatigue in MS, and there may be important
immune activity; and those that are external to         fatigue may be a symptom), or there may be              findings that are relevant to MS. Cognitive
this (secondary fatigue) such as losing fitness,        nutritional deficiencies. If no clear cause is                                           Continued on page 8
problems with psychological health, problems            identified, then there are a number of drug
with getting to sleep and staying asleep, and side-     treatments that are available, and some people
effects of disease modifying drugs such as              find these helpful. Nurses, occupational                  CONTENTS
interferons.                                            therapists, and physiotherapists often undertake
                                                        non-pharmacological management of fatigue.
Before carrying on, it is worth taking a step back
                                                                                                                  Grant Giving Bodies . . . . . . . . . . 2
                                                        Energy conservation strategies are often used to
and asking, what is fatigue, and how can we             help people make the most of the energy they
measure it? A consensus definition of fatigue,          have, by trying to achieve a balance between              Mind & Body Network . . . . . . . . 4
from The Multiple Sclerosis Council for Clinical        activity and rest, by careful planning and pacing of
Practice Guidelines1, stated that it is "A subjective   activities over the course of the day, by helping         MRC Grants . . . . . . . . . . . . . . . . 5
lack of physical and / or mental energy that is         people prioritise the activities that are important
perceived by the individual or caregiver to             to them, and by suggesting ways in which                  Workshop Programme . . . . . . . . . 6
interfere with usual and desired activities". This      activities may be done more efficiently.
highlights the subjective nature of fatigue. The
individual experience of fatigue can be                 MS isn't the only disease in which fatigue has a          Forthcoming Events . . . . . . . . . . . 7
qualitatively (as well as quantitatively) quite         major role. More research has been conducted on
   Grant Giving Bodies
This is a list of grants with closing dates in July, 2005                          AstraZeneca
                                                                                   Phone: - 020 7304 5000
Alzheimer's Society                                                                Young Minds in Psychiatry International Awards
Phone: 020 7306 0606                                                               Aims: To recognise and support future leaders in Psychiatry and foster
Research Fellowships                                                               innovation through career development.
Aims: To improve quality of life for people with dementia and for their            Funding: $45,000 (approx £23,663) each and a one year international
carers.                                                                            membership in the American Psychiatric Association (APA).
Funding: The average size of an award is £80,000 - £200,000.                       Amount: £10K - £50K
Amount: £100K                                                                      Closing Date : 31 October 2005 (Confirmed)
Closing Date: 28 October 2005 (Confirmed)                                          Duration : Unspecified
Duration: 1 year - 3 years
                                                                                   British Academy, The
ARC (Arthritis Research Campaign)                                                  Phone: - 020 7969 5200
Phone: - 01246 558033                                                              Sino-British Fellowship Trust - Small Research Grants
Educational Research Fellowships                                                   Aims: to support individual or co-operative research projects, in the fields of
Aims: To encourage clinicians (including GPs), allied healthcare professionals     the humanities and social sciences.
and non-clinicians to undertake research into educational methodology              Funding: Grants are available up to £7,500. Most awards are around the
and/or medical education with the aim of improving the general standard of         £4,000 to £5,000 level.
education in arthritis and musculoskeletal disease relating either to medical or   Amount: £5K - £10K
patient education.                                                                 Closing Date : 15 October 2005 (Confirmed)
Funding: Will provide a full-time or part-time salary for 2 - 3 years.             Duration : Unspecified
Amount: Unspecified
Closing Date : 03 October 2005 (Confirmed)                                         British Nuclear Medicine Society
Duration : 1 year - 3 years                                                        Phone: - 020 8676 7864
                                                                                   Young Investigators Prize Competition
Association for International Cancer Research                                      Aims: The BNMS are keen to promote research in the field of Nuclear
Phone: - 01334 477910                                                              Medicine and especially to encourage those beginning a career in Nuclear
Project Grant                                                                      Medicine in one of its many aspects.
Aims: To support fundamental research into the basic mechanisms involved           Funding: Up to £1,000.
in the development of cancer.                                                      Amount: £5K
Funding: In general, project grants average between £30,000 and £50,000            Closing Date : 27 October 2005 (Confirmed)
per year but some are more expensive and some cheaper depending on the             Duration: Single Payment
Amount: £10K - £50K                                                                British Psychological Society, The
Closing Date : 28 October 2005 (Confirmed)                                         Phone: 0116 254 9568
Duration : 1 year - 3 years                                                        Book Award
                                                                                   Aims: To award the author of a book which makes a significant contribution
Association of Anaesthetists of GB and N. Ireland (The)                            to the advancement of psychology.
Phone: - 020 7631 1650                                                             Funding: A £500 cheque and commemorative certificate which will normally
Research Fellowship                                                                be presented at the Annual Conference where the winner will be invited to
                                                                                   deliver a lecture.
Aims: To promote the development and study of anaesthesia; to promote and
ensure the maintenance of the highest standards and provision of safe              Amount: £5K
anaesthesia; to foster research into anaesthesia and allied subjects; to           Closing Date : 01 October 2005 (Confirmed)
encourage and support world wide co-operation amongst anaesthetists; to            Duration : Single Payment
represent and protect the interests of its members.
Funding: The salary will be at the appropriate point on the SpR scale. The         British Renal Society
Association will only meet the costs of the fellow's basic salary, including       Phone: - 01483 764114
National Insurance and superannuation.                                             Research Projects
Amount: Unspecified                                                                Aims: The British Renal Society wishes to promote clinical research in the
Closing Date : 14 October 2005 (Confirmed)                                         subject areas of renal disease and renal replacement therapy in the U.K.
Duration : 1 year - 3 years                                                        Funding: A maximum of £75,000 annually is available. Only in exceptional
                                                                                   circumstances would an award of this magnitude be made to one applicant.
Association of Surgeons of Great Britain and Ireland                               Amount: £50K - £100K
Phone: - 020 7973 0300                                                             Closing Date : 14 October 2005 (Confirmed)
Moynihan Travelling Fellowship                                                     Duration : 6 mths - 1 year
Aims: To broaden surgical education by visiting clinics both at home and
abroad.                                                                            British Society for Rheumatology
Funding: The current value of the Fellowship is £5,000.                            Phone: 020 7242 3313
Amount: £5K - £10K                                                                 The Michael Mason Prize 2006
Closing Date : 03 October 2005 (Confirmed)                                         Aims: To encourage excellence in clinical or scientific research in the field of
Duration : Unspecified                                                             rheumatology.
                                                                                   Funding: The winner will be presented with a medal and £1000. The

                            This information is taken from the website www.rdinfo.org.uk

winning manuscript will be published in the BSR journal 'Rheumatology'         European Society for Vascular Surgery
and the winner will be asked to give a plenary presentation at the BSR         Contact: - Professor Michael Horrocks
Annual Meeting, 2nd - 5th May 2006, SECC Glasgow.                              Phone: 01225 323770
Amount: £5K                                                                    Educational Travel Grants
Closing Date : 14 October 2005 (Confirmed)                                     Aims: To allow the applicant, over a short period of time, to look at a
Duration: Single Payment                                                       particular technique or research project in a European institution.
                                                                               Funding: Approximately 10 Travel Grants of up to €4,500 (approx £3000)
Candlelighters Trust                                                           each per year.
Contact: - Mrs Sally Amos                                                      Amount: £5K
Phone: - 0113 247 0372                                                         Closing Date: 01 October 2005 (Confirmed)
Project and Programme Grants                                                   Duration: Single Payment
Aims: To promote high quality research with the potential of producing
benefits in the fields of paediatric oncology and haematology.                 INSPIRE Foundation
Funding: The amount of funding available is unspecified.                       Contact: - Mr Robert Morgan, Executive Director
Amount: Unspecified                                                            Phone: 01722 336262 ex 2465
Closing Date: 31 October 2005 (Confirmed)                                      Project Grant
Duration: 1 year - 3 years                                                     Aims: To promote research into and the development of electronic,
                                                                               mechanical and medical aids to assist the mobility and enablement of people
Chartered Society of Physiotherapy                                             suffering from spinal cord paralysis and its associated effects in the UK and to
Phone: 020 7306 6666                                                           communicate the useful results of such research.
HSA - Physiotherapy Research Degree Scholarships                               Funding: Amount of funding available is unspecified.
Aims: To support physiotherapists registered for a research degree             Amount: Unspecified
(MPhil/PhD).                                                                   Closing Date : 20 October 2005 (Confirmed)
Funding: Funding is available to support course fees and books.                Duration: Unspecified
Amount: £5K
Closing Date: 01 October 2005 (Confirmed)                                      International Society of Nurses in Cancer Care
Duration: Unspecified                                                          Contact: - ISNCC Secretariat
                                                                               Phone: 01625 669 588
Colt Foundation                                                                Small Grants Programme
Contact: - Mrs Jackie Douglas                                                  Aims: To provide a communication network for national and regional cancer
Phone: - 023 9249 1400                                                         nursing societies; Provide nurses working in countries where a national cancer
Project Grants                                                                 nursing group has not been established with regular communication on
                                                                               developments in cancer nursing throughout the world.
Aims: To promote research into social, medical and environmental problems
created by commerce and industry.                                              Funding: $5000 (approx £2750).
Funding: Unspecified, but previous grants have been of the order of £10,000    Amount: £5K - £10K
to £300,000.                                                                   Closing Date: 15 October 2005 (Confirmed)
Amount: £100K                                                                  Duration: 6 mths - 1 year
Closing Date : 01 October 2005 (Confirmed)
Duration : > 3 years                                                           National HIV Nurses Association
                                                                               Contact: - Andy Rogers, NHIVNA Secreteriat
DEBRA - Dystrophic Epidermolysis Bullosa Research                              Phone: 020 8446 8898
Association                                                                    NHIVNA and Boehringer Ingelheim Scholarships
Contact: - Mr John Dart, Director                                              Aims: To enable NHIVNA members to undertake original research, further
Phone: - 01344 771 961                                                         their education, clinical practice and to encourage and support nurses to
Research Grants                                                                present and attend at national and international meetings.
Aims: To help sufferers of all types of Epidermolysis Bullosa (EB), by         Funding: Research Grants - Up to £2,000, Travel Scholarships - Up to
promoting research into the disease, and by helping sufferers in their daily   £5,000, Science Scholarships - Up to £2,000.
lives. To encourage interest into the genetics of EB and to increase public    Amount: £5K
awareness of EB.                                                               Closing Date: 28 October 2005 (Confirmed)
Funding: Amount of funding available is unspecified.                           Duration: Unspecified
Amount: £10K - £50K
Closing Date : 01 October 2005 (Confirmed)                                     Pathological Society of Great Britain and Ireland
Duration: 1 year - 3 years                                                     Phone: 020 7976 1260
                                                                               Pathological Society Open Scheme
Epilepsy Action                                                                Aims: To support the discovery of new knowledge leading to prevention,
Contact: - Mr Philip Lee                                                       diagnosis, treatment and cure of disease by; helping members to participate in
Phone: 0113 210 8800                                                           research; ensuring a supply of researchers in pathology by encouraging young
                                                                               professionals to enter the discipline; playing a leading role in defining
Postgraduate Research Bursaries                                                priorities for research in pathology.
Aims: To allow students and suitably qualified individuals to undertake        Funding: The Society hopes to provide a sum of up to £40,000 to support a
postgraduate research in epilepsy.                                             range of additional activities. The amount requested for support should not
Funding: Each bursary is worth £1,500                                          exceed £10,000
Amount: £5K                                                                    Amount: £5K - £10K
Closing Date: 21 October 2005 (Confirmed)                                      Closing Date : 01 October 2005 (Confirmed)
Duration: Unspecified                                                          Duration: Unspecified

               The Nature and Development of Fibromyalgia
A preliminary, comparative study of emotional         s a more impoverished style of emotional style of     s "I have to cope regardless of how I feel/what I
processing in women with primary                        emotional processing                                  want"
fibromyalgia syndrome, rheumatoid arthritis
and healthy individuals - Ms Jane Raleigh,            s more emphasis on physical orientation towards       s "Some people admire the way I juggle so many
Clinical Specialist in Rheumatology, Dorset             emotion                                               balls at the same time!"
County Hospital                                       s more suppression of emotions and their              s "Life's too chaotic to stop and think about how
                                                        expression                                            to do things differently or deal with my past"

    n this talk Jane Raleigh described a piece of
    research that she undertook in partial            s greater inability to control the expression of      In such individuals, Meherzin noted that needs
    fulfilment for a masters qualification. In her      emotion                                             for care, love and approval/admiration are often
cross sectional questionnaire-based study she                                                               unmet and strong emotions such as happiness and
compared emotional processing in women with           Jane concluded by noting that her study               anger are often disavowed.
fibromyalgia (FM) with emotional processing in        highlights the role of emotional processing factors
healthy female controls and in women with             in an FM population and supports a need for           Meherzin went on to describe a psychological
rheumatoid arthritis (RA).                            psychological input in the assessment and             presentation typical of the patients with FM that
                                                      treatment of the condition.                           she sees:
Jane started off her presentation with some
                                                                                                            s desperate, tearful
general background information about
fibromyalgia. Fibromyalgia syndrome (FM) is a         Fibromyalgia: the clinical picture of a mind-         s uncontained, messy
disorder of widespread myalgia, increased             body conundrum - Mrs Meherzin Das,
sensitivity to mildly noxious stimuli, poor, non      Principal Clinical Psychologist, Dorset               s responsibility for change handed over
restorative sleep and generalised fatigue. She        HealthCare NHS Trust                                  s feeling out of control
noted that there is considerable debate in the

literature regarding the aetiology of fibromyalgia.              eherzin Das's insightful presentation      s feeling like a failure
                                                                 was clinically oriented. She suggested
Jane pointed out that while FM is an increasingly                her ideas lie midway on a continuum        s terrified to improve vs. desperate to change
common diagnosis in rheumatology outpatient           between a generalizable model ('one size fits all')   s perception totally focussed on the body, pains,
clinics, existing management/treatment strategies     and an individualised model (the 'perfect fit').        fatigue levels.
yield poor long term results.                         Her reflections derived from psychological
                                                      assessment, psychological therapy, cognitive          She described the following interpersonal
She noted that individuals with FM have often         behavioural and cognitive analytic models as well     behaviours as typical in patients with FM: stuck,
experienced significant emotional trauma in their     as data from the Psychotherapy File.                  clingy, demanding, overly grateful, apologetic and
lives prior to the onset of their symptoms.                                                                 tearful, fearful of abandonment, referring to
Evidence has indicated that individuals with FM       Meherzin noted that in the FM patients she treats     earlier strengths and handing over responsibility.
may have some deficits in emotional processing        there is often a history of recognisable parental
(EP), tending to misattribute the symptoms of         patterns (such as only offering conditional care,     Conversely, Meherzin reported that the personal
emotional arousal to solely somatic causes.           being over demanding/neglectful/abusive). Such        strengths of patients with FM include
                                                      parental patterns can lead to maladaptive reactions   determination, resilience, a capacity for hard
Jane went on to describe the samples that she         and styles in children.                               work, a commitment to sessions and a willingness
recruited into her study.                                                                                   to participate (if a safe environment is created).
                                                      Meherzin described insights she has obtained
s Group 1: Individuals with FM attending the          from using the Psychotherapy File assessment          Meherzin considered common reactions elicited
  outpatient rheumatology clinics of either           tool:                                                 in clinicians when treating individuals with FM
  Dorset County or Poole Hospital (N=52).                                                                   including feeling stuck, feeling responsible, feeling
                                                      s Traps: fear of hurting others/appeasing/can't       trapped, feeling a sense of inertia, feeling
s Group 2: Individuals with rheumatoid arthritis        say no/perfectionism/difficulty expressing          frustrated, feeling deskilled and helpless.
  attending the out-patient rheumatology clinics        emotions/feeling criticised/feeling
  at Dorset County Hospital (N=34)                      responsible/anxious <give up< over-control.         Meherzin suggested a management plan for
                                                                                                            individuals with FM that incorporated medical,
s Group 3: Healthy individuals recruited from         s Snags: Sabotage by external events                  physical therapy, psychological, social
  staff working at Dorset County Hospital                                                                   rehabilitation, occupational therapy and
  (N=53).                                             s Dilemmas: Submit to demands vs.
                                                        resistance/over-responsible vs.                     alternative remedy approaches.
Baker's emotional processing scale (EPS) was used       unwanted/sufficiency vs. feel deprived of           Meherzin concluded her presentation by
as a measure of emotional processing.                   care/approval vs. independence                      describing the main components of psychological
Jane then went on to describe the results from the    She noted that, for such individuals, adulthood is    treatment for patients with FM. These included
studies. Here, we provide a summary of the main       often characterised by physical health issues, poor   managing pain, sleep, diet, dealing with difficult
findings that she presented:                          self-care, multiple stressors & chaos, major life     emotions and with the onset of trauma, helping
                                                      events and emotional baggage.                         the patient to develop adaptive coping strategies
s The FM group had significantly higher overall                                                             and increase assertiveness and unpacking and
  scores on the Emotional Processing Scale            She then provided some examples of cognitive          reframing historical and long term 'baggage'.
  indicating greater overall difficulties in          distortions typical of such individuals, including:
                                                                                                            A lively series of questions and discussion followed
  emotional processing than either the healthy        s "I'm not entitled to look after myself when         Meherzin's presentation.
  group or the RA group.                                there are things to be done for others"
                                                                                                            Sarah Thomas
s The FM group also had significantly higher          s "I can't say 'no' to anybody...they may stop        Senior Research Fellow, RDSU
  scores on most of the subscales of the EPS than       loving me"
  either of the two other groups.
                                                      s "It's better to be needed (and shattered) than
Overall the FM group demonstrated:                      feel well (and alone)"                              For details of future meetings see page 5

                                                       Chronic Pain &
                                                     Emotional Processing

                                                        (Chapman, 2001).         Researchers have since        between the fields of pain and emotion research

      he emotional processing team have
      published a new article "Chronic Pain and         suggested a large overlap between those structures     has somewhat hindered developments to date
      Emotional Processing" on its website,             identified as being activated by pain and those        (University of Utah, 2002).        By improving
www.emotionalprocessing.org.uk.                         associated with emotional responding (Chapman,         communication both domains could benefit and
                                                        Nakamura, Donaldson, Jacobson, Bradshaw,               treatment, which tackles both the pain and
Chronic pain is a condition characterized by a          Flores and Chapman, 2001; Phan, Wager, Taylor          emotional aspects of chronic pain, could prove to
heightened response to painful stimuli. It is the       & Liberzon, 2002).                                     be most effective.
second most frequent reason why individuals
consult doctors and is a major health, not to           Emotional processing adds an important angle of        This article includes sections on:
mention economical, problem in western                  thinking to more cognitive explanations. Recent
industrialised countries.                               advances in the neurophysiology of pain, involving      s The history of chronic pain
                                                        functional brain imaging of individuals
It has long been thought that pain and disability       experiencing pain, have highlighted an affective        s Cognitive behavioural model of pain
are not only influenced by somatic pathology, if        dimension of pain, aside from its sensory aspect. It
                                                                                                                s Fibromyalgia
found, but also by psychological and psychosocial       is becoming increasingly clear that pain and
factors. However, only recently has the emotional       emotional disturbances are interdependent               s Emotional processing and chronic pain
dimension of pain gained salience in pain research      problems.     However, limited communication

                                                               MRC GRANTS
  Collaboration grants - deadline 5                      Grants for trials (including clinical                 Research grants - deadline 5
  August 2005                                            trials) and intervention studies -                    August 2005
                                                         deadline 1 September and 16
  The Medical Research Council invites letters of        December 2005                                         The Medical Research Council invites letters of
  intent for its collaboration grants in the areas of                                                          intent for its research grants in the following
  infections and immunity, physiological systems         The Medical Research Council invites outline          areas: health services and public health;
  and clinical sciences, neurosciences and mental        applications for grants for trials (including         infections and immunity; molecular and cellular
  health, molecular and cellular medicine and            clinical trials) and intervention studies to          medicine; neurosciences and mental health; and
  health services and public health research. Grants     support trials which would provide high quality       physiological systems and clinical sciences.
  are available to holders of MRC research grants,       evidence on the efficacy and effectiveness of
                                                         interventions in medicine and health services.        Any person who holds an employment contract
  career establishment grants and senior
                                                         The focus is primarily on trials that break new       with a UK higher education institution, NHS
  fellowships who wish to promote and enhance
                                                         ground in terms of research questions or              trust or academic analogue and can demonstrate
  collaboration between themselves and other
                                                         methodologies and that add significantly to           the qualifications or a track record that will allow
  researchers working in complementary research.
                                                         understanding of biological or behavioural            them to carry out the work effectively is eligible
  The grants provides funds of between £50,000
                                                         mechanisms and processes in human health and          to apply. Grants may be awarded for any period
  and £1,000,000 for travel and equipment and is
                                                         healthcare.                                           of up to five years.
  awarded for between two and five years.
                                                         Further details can be found at:-                     Further details can be found at:-
  Further details can be found at:-
                                                         http://www.mrc.ac.uk/index/funding/funding-           http://www.mrc.ac.uk/index/funding/funding-
                                                         specific_schemes/funding-                             specific_schemes/funding-
                                                         specific_grant_schemes/funding-                       current_grant_schemes/funding-
                                                         trial_grants.htm                                      research_grants.htm

             Contact details for more information:- MRC, 20 Park Crescent, London W1B 1AL. United Kingdom • Tel: +44 20 7636 5422

                         Ditch the Fizz                                                  ‘A Day in the Life of the Surgery
                          Dr David Kerr                                                             Dr Charles Campion-Smith
                    Consultant Physician, BDEC,                                           Senior Lecturer of Health Psychology , University of
                    Royal Bournemouth Hospital                                                               Southampton
                  Wednesday, 21 September 2005                                                           Tuesday 29 November 2005
                         6.30 - 8.30pm                                                                          6.30 - 8.30pm,
       Venue: Marsham Court Hotel, East Cliff, Bournemouth                                              Venue: Kemps Hotel, Wareham

     Wo r k s h o p P r o g r a m m e
å                                                                                 Committee Room, Poole Hospital NHS Trust

                     DORSET RDSU                                                  Action Research is a growing area, particularly in health care, and is a style of
                                                                                  research allowing the study of organisations, groups and teams within them
                                                                                  and the development of practice. It has historically been used and developed
                                                                                  by a wide range of disciplines including management and business studies,
SEARCHING THE INTERNET FOR HEALTH INFORMATION                                     education, community development, social work, nursing and psychology
Susan Merner, Librarian, Poole Hospital                                           and its scholars come from all over the world.
10 – 12.00, Wednesday, 7 September 2005                                           This workshop will define action research by tracing its historical
IT Training Room 2, Poole Hospital.                                               development and introduce participants to how it might be used in the study
                                                                                  of developing practice in patient care. Participants will also gain awareness of
The Internet now provides health professions and health consumers twenty-
                                                                                  the wide range of literature available about action research and its process.
four hour access to a vast range of information. Unfortunately some of it is
misleading and inaccurate. This workshop will introduce a variety of
information gateways and search strategies to enable you to quickly and           LITERATURE SEARCHING
effectively locate the high quality health information.                           Susan Merner, Librarian, Poole Hospital
                                                                                  10 – 12.00, Tuesday, 25 October 2005
DESIGNING YOUR QUALITATIVE STUDY                                                  IT Training Room 2, Poole Hospital.
Ms Sabi Redwood, IHCS, Bournemouth University                                     SWICE (South West Information for Clinical Effectiveness) offers a range of
                                                                                  bibliographic databases including Medline, British Nursing Index, Cinahl,
9.30 - 12.30, Monday 26 September 2005
                                                                                  Amed, HMIC, PsychInfo. The session will provide an overview of the
Committee Room, Poole Hospital NHS Trust                                          databases and what information they can offer, tips on preparing your search
This workshop is intended to support practitioners in identifying important       strategy, use of thesauri, free text searching, and other search options. The
practical issues in carrying out their qualitative study. The aim is to help      session includes a chance to use the computers so feel free to bring ideas of
them plan the process from choosing the appropriate approach for answering        topics you want to find information on!
their research question to managing data collection and preparing data for
analysis. Prior knowledge of qualitative approaches to research is essential as
                                                                                  MANAGING YOUR QUALITATIVE STUDY
this workshop is not designed to give an introduction to qualitative research
methods. Participants are invited to bring research ideas, questions or           Ms Sabi Redwood, IHCS, Bournemouth University
projects they are currently working on. A future workshop will explore            9.30 - 12.30, Monday 31 October 2005
practical issues in analysing qualitative data.
                                                                                  Committee Room, Poole Hospital NHS Trust
                                                                                  Researchers who are new to qualitative methods are often overwhelmed by
WHAT IS EVIDENCE?                                                                 the volume of data they have collected through interviews, observational
A 2-part course. Attendance at both parts of the course is essential.             methods or written responses to open questions on questionnaires. This
                                                                                  workshops aims to help them organise and analyse their data in order to make
Part 1
                                                                                  sense of it. Issues of representing findings from qualitative studies will also be
UNDERSTANDING THE NATURE OF EVIDENCE                                              addressed.
Professors Roger Baker and Peter Thomas, RDSU
                                                                                  This workshop is suitable for staff in health and social care who are involved
1.30 - 5pm, Tuesday 4 October 2005                                                in qualitative research and who would like to learn more about the practical
Westover House, Poole PCT                                                         considerations of data analysis. Participants who attended the first workshop
                                                                                  "Designing your Qualitative Study" are particularly welcome.
We are told we are working in an NHS based on research evidence. But what
is evidence, and how can you tell good from bad evidence? What are the
limits of research? In this workshop we explore what research is and build up     ISSUES OF DATA PROTECTION AND APPLYING FOR ETHICS
a foundational understanding of ‘evidence’.                                       APPROVAL
Part 2                                                                            Dr Jenny Baverstock, Academic Manager, WReN and Ms Rachael Hanson,
BEHIND THE HEADLINES: CRITICAL APPRAISAL SKILLS                                   Administrator, Dorset Research Ethics Committee, Poole Hospital NHS Trust
Professors Roger Baker and Peter Thomas, RDSU                                     2 - 5pm, Tuesday 1 November 2005
1.30 - 5pm, Tuesday 11 October 2005                                               Committee Room, Poole Hospital NHS Trust
Westover House, Poole PCT                                                         This workshop will use a mixture of presentations, discussions and practical
This workshop looks at some of the research discoveries that have hit the         exercises covering confidential information and data protection in research,
headlines. It looks behind them to discover what the research was really          patient consent, the ethical approval process and COREC.
about and how to appraise its true value.

                                                                                  SEARCHING THE INTERNET FOR HEALTH INFORMATION
INTRODUCTION TO ACTION RESEARCH                                                   Susan Merner, Librarian, Poole Hospital
Professor Kate Galvin, IHCS, Bournemouth University                               10 – 12.00, Thursday 1 December 2005
10 - 12.30pm, Friday 14 October 2005                                              IT Training Room 2, Poole Hospital.

    To book a place on the Dorset RDSU workshops please complete the form on page 8 of this newsletter, or telephone 01202
    448489, email chris.richards@poole.nhs.uk or complete the application form on our website.

                PAN-BATH & SWINDON                                                                   SOUTHAMPTON RDSU
For further information about these workshops contact the RDSU at the Wolfson        For information contact Sheila Yaldren: 023 80794778
Centre, Bath on 01225 824116 or by email to mpscf@bath.ac.uk                         email sky@soton.ac.uk, website: www.rdsu.soton.ac.uk.

                      GLOUCESTER RDSU                                                                               WReN
IFor information contact the RDSU on 01452 395726
                                                                                     For information about WReN Workshops, please contact WReN at the
email: glos.rdsu@gloucr-tr.swest.nhs.uk
                                                                                     Primary Care Medical Centre, Aldermoor Health Centre,
                                                                                     Southampton SO16 5ST on 02380 241055
                       SALISBURY RDSU
All workshops are held at Salisbury District Hospital. For further details, please
phone Myra Stevens, Salisbury RDSU on 01722 425026

      For thcoming Events
   A Practical Guide to Developing your Skills as an                                 INTERNATIONAL HUMAN SCIENCES RESEARCH
   EFFECTIVE CLINICAL DIRECTOR                                                       CONFERENCE
   7 July 2005                                                                       10 - 13 August 2005
   The Royal Society of Medicine, London                                             Bournemouth University
   Further details:                                                                  Further details:
   Heathcare Events                                                                  Les Todres, Professor of Qualitative Research and Psychotherapy
   Tel: 020 8541 1399                                                                IHCS, Bournemouth University
                                                                                     Tel: 01202 504169 Web: www.ihsrc05.com

        2nd Meeting of the Dorset Medical Research Group
                                 Wednesday 14 September 2005 09.00 - 16.00
                   Allsebrook Theatre, Poole House, Talbot Campus, Bournemouth University
   The Dorset Medical Research Group (DMRG) is an independent association of local, research active health professionals under the
   auspices of Bournemouth University and with the assistance of the Dorset Research and Development Support Unit.
   The DMRG aims to foster high quality research, encourage collaboration within the healthcare sector; explore close relationship with
   Bournemouth University and act as a forum for presentation and discussion of research projects.

                                                               Provisional Agenda:
                                                     Biomedical and Clinical Applications
                                                         Mind and Body Medicine
                                                              Higher Degrees
                                                      For further details, please contact:
                         Audrey Dixon 01202 448658 • email: Audrey.Dixon@poole.nhs.uk or adixon@bournemouth.ac.uk

                                        VISIT OUR WEBSITES AT
     www.rdsu.org.uk AND www.emotionalprocessing.org.uk

Continued from page 1                                 Service, the Dorset CFS Service, and colleagues in    Phase 3 is a pilot evaluation of the program using 3
                                                      Bristol and Southampton, have recently been           centres; Poole, Southampton and Bristol.
behavioural therapy is a psychology-based             awarded 2 research grants from the MS Trust and
intervention that is increasingly accepted as an      the BUPA Foundation to pursue this line of            The main output from the research will be a
effective aid to managing CFS. This type of           enquiry. The aim of the project is to develop and     manual that will allow the intervention to be used
intervention can help people to make the lifestyle    then evaluate a manualised, group-based fatigue       in a replicable, standardised way in other centres.
changes that are necessary in order to make the       management programme for people with MS that          The intended duration of the project is 18 months.
most of their energy, and help them to think          can be run by occupational therapists,                Dr Sarah Thomas, Senior Research Fellow at the
realistically about their fatigue and the impact it   physiotherapists, or nurses. The programme will       RDSU, is responsible for the day-to-day running
has on their life. Researchers in New Zealand are     incorporate energy conservation and cognitive         of the project.
currently conducting such a trial of one-to-one       behavioural approaches to help people manage
cognitive behavioural therapy for fatigue in people   their fatigue.                                        Professor Peter Thomas
with MS.                                                                                                    Dorset RDSU
                                                      The project is in 3 phases:
Whether it is realistic for psychologists to manage
fatigue in the NHS is an important issue, given the   Phase 1 is the initial development of the
staff shortages that exist. Also it may not be        programme and will involve reviewing research,
desirable to further fragment fatigue management.     reviewing existing models of good practice
In Wareham, the Chronic Fatigue Syndrome              (including the Wareham model), and seeking
Service has developed a fatigue management            advice from a focus group of people with MS
programme that is run by Occupational                 fatigue.
Therapists, and that incorporates both
occupational therapy and cognitive behavioural        Phase 2 involves trying out the intervention on a     1 Multiple Sclerosis Council for Clinical Practice
approaches. This would also seem an appropriate       small number of people, and getting detailed          Guidelines. Fatigue and multiple sclerosis. Evidence-
model of delivery to explore in MS.                   feedback to help improve it. We will also try out a   based management strategies for fatigue in multiple
                                                      variety of quantitative outcome measures for the      sclerosis. Washington D.C: Paralysed Veterans of
The RDSU, in collaboration with the Dorset MS         next phase.                                           America; 1998.

                                   WORKSHOPS BOOKING FORM

      Date                                                                                                               Title of Workshop
      7 September                                                                                   Searching the Internet for Health Information

      26 September                                                                                                Designing your Qualitative Study

      4 October                                                                                                               What is Evidence Part 1

      11 October                                                                                                              What is Evidence Part 2

      14 October                                                                                                    Introduction to Action Research

      25 October                                                                                                                  Literature Searching

      31 October                                                                                                  Managing your Qualitative Study

      1 November                                                                      Issues of Data Protection and applying for Ethics Approval

       1 December                                                                                   Searching the Internet for Health Information

      Name                                                                            Title




      Tel. No. or fax no. or e-mail address


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