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BANYAN HOUSE THE LITTLE HOUSE IN THE TROPICS

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					                                                                                             promotion
BANYAN HOUSE:
THE LITTLE HOUSE
IN THE TROPICS
T
     he Therapeutic Community (TC) model of
     treatment for alcohol and drug rehabilitation
     is renowned around the world. Supported by
professional associations in Europe, Asia and
Oceania, the TC movement has been evolving for
more than half a century.

Services adhering to this particular
treatment modality have been
established in every State and
Territory in Australia since the
early 1970s. These TC treatment
facilities are well supported by
individuals seeking
assistance for substance-
related harm.

While Therapeutic
Communities are generally
clustered in and around
Australian major cities and
regional centres, above the
Tropic of Capricorn, the only
exponent of the TC movement
is Banyan House.

Banyan House was established
in Darwin in the mid-1970s by
a group of citizens concerned
about the raise of heroin-related
harm in the Northern Territory. Located in a
quaint urban suburb, Banyan House operated as a
residential treatment facility for sixteen years from a
small cottage in a quiet cul-de-sac, until it moved to a
semi-rural property on the outskirts of Darwin in 1992.

The new location, a dilapidated detention centre from the
mid-1970s, although less than ideal, presented the
opportunity for the establishment of a multi-faceted
facility providing a wide range of services to adults and
their children seeking assistance for substance
dependence and related harm.

Today, after several much needed facelifts, in addition to
residential rehabilitation, Banyan House provides
residential and outpatient pre-court and court diversion
programs, residential withdrawal, parenting programs
and programs specifically aimed at women
and their children.

We welcome enquiries from any
potential clients no matter what state or
territory you are currently living. Please
contact us on 08 8947 0832.

       Banyan House

                                                                                        Image courtesy of www.google.com/images




                                                             The Hep C Review   Edition 51    December 2005                31
feature




Thousands of prisoners are exposing themselves to hepatitis C infection by
using dirty, resharpened needles, prisoner advocates report.

In its latest prison newspaper, Just Us,   Justice Action argues an official
Justice Action is calling for a            needle syringe program is the best
regulated needle syringe program           and most cost-effective way of
across all Australian prisons to stem      combating the problem.
the “rampant” tide of hepatitis C
infections.                                According to the Australian National
                                           Council on Drugs, there are 19
More than one third of the country’s       official prison needle and syringe
23,000 prisoners are infected with         programs operating overseas and not
the disease that affects the liver and     one has reported needles being used
causes nausea, fatigue and lethargy,       as a weapon.
abdominal and back pain, and flu-
like symptoms, Justice Action              Around 18,000 copies of Just Us are
researcher Michael Strutt says in this     being distributed to prisoners across
month’s Just Us.                           Australia and New Zealand over the
                                           next week.
In NSW adult gaols, it is estimated 68
per cent of women and 40 per cent          Despite various hurdles to
of men would test positive for             distributing the paper, including
hepatitis C, while it is thought half of   initial reluctance from various state
all prisoners in that state have a         corrective services departments to
history of injecting drug use.             allow the paper into prisons, Justice
                                           Action estimates around half of the
In comparison, just one per cent of        prison population in the two
the general Australian population          countries will read it.
carries the disease.
                                           The paper carries a mix of articles,
“Almost all of those prisoners will        letters, poetry by prisoners and a
eventually be released to carry the        lonely hearts column requesting
virus back to their communities,” Mr       letters from readers.
Strutt said.
                                           For information about Just Us, please
“Around a quarter of prisoners             contact Justice Action on
continue in their furtive injecting and    02 9281 5100.
hasty cleaning of the hundreds of
reused, resharpened, dirty, pitted                 AAP, 29 August 2005
needles that circulate around the
prisons.”




HEALTH PROMOTION IN NSW GAOLS
Over the last decade, several health promotion initiatives have been implemented within NSW g
disinfectant (bleach) - - condoms - - bloodborne virus education programs - - peer support p


32       The Hep C Review        Edition 51    December 2005                 Image courtesy of www.google.com/images
                                                                                             feature
                                                   HEPATITIS C OUT
                                                   OF CONTROL IN
                                                   AUSTRALIAN
                                                   GAOLS
                                                   In response to the recent calls for a needle and syringe
                                                   trial in gaols, Helen Tyrrell, the Executive Officer of the
                                                   Australian Hepatitis Council says, “It is imperative that
                                                   Australia develops a consistent, whole of government
                                                   approach to managing the health of prisoners with or at
                                                   risk from hepatitis C”

                                                   The response to hepatitis C in gaols needs to accept the
                                                   reality of the gaol experience where blood borne viruses
                                                   like hepatitis C are transmitted through sharing drug
                                                   injecting equipment, tattooing and body piercing, all of
                                                   which are banned but continue to occur. With up to 1 in
                                                   every 2 inmates in some States having documented
                                                   evidence of hepatitis C infection, transmission of the virus
                                                   between prisoners engaging in these activities is a major
                                                   public health concern.

                                                   Ms Tyrrell says that we are not going to reduce the
                                                   transmission of hepatitis C between prisoners unless gaols
                                                   are able to provide:
                                                   •      Access to sterile injecting equipment
                                                   •      Access to sterile tattooing equipment
                                                   •      Access to sterile body piercing equipment
                                                   •      Access to sterile hair clippers
                                                   •      Access to education around the potential means of
                                                          transmission in gaol
                                                   •      Access to support including treatment for those
                                                          inmates with hepatitis C

                                                   Helen Tyrrell pointed out that “Australia has largely led
                                                   the world in its response to hepatitis C in the general
                                                   community but it falls well behind the best practice
                                                   models developed in Europe to combat the spread of
                                                   hepatitis C within gaols.”

                                                   Hepatitis C is a major public health challenge with
                                                   significant costs to the government and tax-payer. Ms
                                                   Tyrrell says the Australian Hepatitis Council “will
                                                   continue to work with the government and encourage
                                                   them to take some bold steps to support the extension of
                                                   proven evidence-based harm minimisation strategies to
                                                   the corrections environment.”

                                                          AHC




gaols:
programs - - the Health Promotion Diary - - methadone - - buprenorphine


                                                 The Hep C Review      Edition 51    December 2005             33
opinion

Prison health:
a threat or an opportunity?
The World Health Organisation recently distributed to all European ministries of
health one of the most important documents on prison health ever published.



T
      he report, Status Paper on Prisons, Drugs and Harm      The fact that infection rates are still climbing confirms
      Reduction, brings together the wealth of evidence       that this approach does not work, but governments have
      that shows that infectious disease transmission in      been reluctant to endorse alternative strategies.
prisons can be prevented and even reversed by simple,
safe, and cheap harm-reduction strategies.                    Rather than a lack of evidence that key interventions
                                                              work, the prevention of infectious disease transmission in
Perhaps most importantly, the paper affirms WHO’s             prison is hampered by a bizarre denial of governments of
commitment to harm reduction, despite opposition from         the existence of injecting drug use and sexual
particular governments who view such approaches as a          intercourse. Sadly, prison health is not high on the list of
tacit endorsement of illegal behaviour. The public-health     the public’s concerns, so there is also little domestic
case for action is strong, but political commitment to this   pressure to address the problem.
method of combating health problems in prisons remains
elusive.                                                      Some UN agencies, such as the United Nations Office on
                                                              Drugs and Crime, still question the efficacy of harm-
Indeed, health problems in prisons are numerous.              reduction measures, despite much scientific evidence to
Prisoners are often from the poorest sectors of society and   the contrary. The influential role played by the UN’s four
consequently already suffer from health inequalities.         major donors—the USA, Sweden, Italy, and Japan—
Being in prison commonly exacerbates existing health          which all favour prohibitionist approaches to drug use in
problems - incarcerating anyone, especially vulnerable        prisons, means that harm-reduction measures have not
groups such as drug users and those with mental illness,      been given the credit and status they deserve.
has serious health and social consequences.
                                                              The failure of governments around the world to
High rates of injecting drug use, risky sexual practices,     implement measures that have repeatedly been shown to
and overcrowding have made prisons a perfect habitat for      reduce harm wastes a vital opportunity to improve the
the spread of infectious diseases. In parts of Europe and     health of a population that is often beyond the reach of
the USA, up to 20% of inmates are HIV-positive; and in        public-health efforts. This failure is utterly shameful.
some prisons tuberculosis infection rates are 100 times       Prisoners, a “captive group”, present a crucial
that of the civilian population. A study by Anna              opportunity to address behaviours that pose a high risk of
Shakarishvili and colleagues in a recent Lancet medical       disease transmission in society in general as well as in
journal highlights the need for interventions targeting       prisons, with proven, easy, and cheap harm-reduction
vulnerable groups in detention centres to curtail the         measures.
rapidly growing HIV epidemic in Russia.
                                                              It is important to remember that these health issues do
Harm-reduction efforts in prisons aim to prevent or           not remain confined to prisons: the high level of mobility
reduce the negative health effects associated with certain    between prison and the community means that the health
behaviour patterns, imprisonment, overcrowding, and           of prisoners should be a fundamental issue of public-
adverse effects on mental health. Initiatives such as         health concern. Infectious diseases transmitted or
needle-exchange programmes are effective and viable for       exacerbated in prison inevitably become public-health
controlling the spread of HIV, and do not obstruct the        issues when prisoners return to their communities.
safety or effectiveness of drug-use prevention policies.
However, the prison systems that have achieved the most       It is time for a global approach: to acknowledge the
success in preventing the spread of HIV have promoted         contribution of prison health to health inequalities; and to
harm reduction and treatment strategies together—             make prison health a priority by convincing governments
making bleach, condoms, methadone maintenance,                that health policy must be based on evidence and not
needle exchange, and other drug treatment available.          political prejudice.

Despite these positive outcomes, the response to the HIV/            Abridged from The Lancet 2005; 366:1 (2/07/05)
AIDS epidemic in prisons has been slow and piecemeal,                via www.dailydose.net/
and most governments continue to ignore the strategic
importance of prison health care to public health. Most
strategies for dealing with HIV in prisons focus on a zero-
tolerance approach to drug users.




34       The Hep C Review       Edition 51   December 2005
                                                                                                          feature




The Probation and Community Corrections Officers’ Association (PACCOA),
believes that proposed changes to the structure and operations of the
Department of Corrective Services in NSW, which have been developed in
secrecy, may diminish the quality and nature of justice administration and lead to
significantly higher crime rates in the State.



P
     ACCOA represents the professional interests of               These announcements have been eagerly awaited for
     probation and parole and community corrections               many years, as has a promised re-grading of base-grade
     personnel across the Commonwealth of Australia.              probation and parole officer positions. Welcome as they
                                                                  are, the improvements should not distract the
The NSW Department of Corrective Services has                     fundamental changes which are planned.
announced a planned restructure, in which the
organisational leadership of the Probation and Parole             To our knowledge, no other jurisdiction in the world has
Service is to be abolished and fundamental changes to             successfully brought together its prison and probation
ways of working with offenders in the community are to            operations in the way planned for NSW and we fear an
be introduced. PACCOA is concerned that the proposed              exodus of dedicated and skilled practitioners, who will
changes will lessen offenders’ capacity to reintegrate into       be uncomfortable with the more surveillance-based
society and that this will lead to significant long-term          approach to offender management that is proposed.
costs in social and dollar terms.
                                                                  The planned restructure is, arguably, one of the most
Probation and parole officers work quietly at the front           significant changes to criminal justice practice in this
line with people in trouble in the community. They                country in over half a century. Yet no open inquiry was
maintain a skilled balance between activities to ensure           conducted and no documents have been released,
that people under supervision comply with the terms of            explaining why the restructure or operational changes
supervision, whilst working alongside them to enhance             are considered necessary or what they are intended to
their lives, reduce risks of relapse and restore them,            achieve.
wherever possible to full participation as citizens. Our
members do not shirk from their public responsibility and         We understand that neither the Commissioner of
return people to courts and releasing bodies, in                  Corrective Services nor the Minister for Justice have been
circumstances where they fail to comply with the                  prepared to meet with our affiliate Association, the
requirements made of them. For many offenders in the              Probation and Parole Officers’ Association of NSW to
community, however, Probation and Parole is the only              discuss any of their concerns.
agency which will work with them to negotiate issues of
                                                                  The noted Conservative politician, Winston Churchill, in
housing, employment, treatment for mental health and
                                                                  the House of Commons, in July 1910, said, “The mood
dependency issues, to assist them to understand the
                                                                  and temper of the public, in regards to the treatment of
effects of their behaviours on others and to develop
                                                                  crime and criminals, is one of the most unfailing tests of
strategies to reduce their risk of getting back into trouble.
                                                                  the civilisation of any country.” By the standards set by
NSW urgently needs to reduce, not increase, its reliance          Churchill, work done by probation and parole officers
upon imprisonment because incarceration is                        with offenders encompasses “supervision more
demonstrated to predispose people to re-offending. There          individualised, more intimate, more carefully considered
are estimated to be at least 2000 people in prison in             and more philanthropically inspired.”
NSW, who could have been diverted into community-
                                                                  PACCOA is concerned that NSW not fail Churchill’s test
based programs with minimal risk. Imprisonment comes
                                                                  of civilisation by undergoing a fundamental restructure of
at the cost of services foregone to the community such as
                                                                  its justice system, without public disclosure or
education (poor education is demonstrated to be one of
                                                                  explanation. We urge that an open and independent
the most significant factors in the lives of many
                                                                  inquiry be held, prior to the implementation of any
offenders).
                                                                  changes to the Probation and Parole Service.
PACCOA is pleased that the Department has recently
announced staffing improvements to address shortages, to                 This Media Release has been authorised by the
provide some relief for staff who are on leave and even                  Probation and Community Corrections Officers’
the appointment of a small number of psychologists to                    Association Inc. Graeme Pearce, President. Please
work in district offices.                                                direct all inquiries to Marion Lofthouse,
                                                                         Spokesperson, on 08 9317 3731.




                                                                The Hep C Review     Edition 51    December 2005          35
writing competition



I
   ’m writing this story from where I see it, grass roots       Education programs should be designed around drugs
   view. I myself have hep C for some time as you               with a module in it about discrimination and blood borne
   probably already know (I’ve written a couple of other        diseases. This program should be offered to all
stories). I reckon whatever you would think that will help      government and non government organisations that come
the “cause” out, don’t wait, write in and let everyone          into contact with possible drug users or people that have
know what you think.                                            caught hep C through other means.

Hep C Council is doing a pretty good job but more               Education is a powerful tool. The program will give
funding from government is a must. Hep C Council needs          people a better understanding of the drug culture and
to grow with the spread of hep C and relevant issues            maybe show a bit of compassion.
surrounding this area. Hep C and the stigma that comes
with it is usually associated with drug use. Not everyone       So what is a drug user in people’s minds? Junkie = square
that has hep C caught it through drug use but the general       heads = heroin addict running wild = robberies. But these
consensus of Australians is drug use = problem to be            stereotypes, heroin is not the only drug that goes into a
fixed by the “square heads” (police and courts).                fit.

Illicit drug use is a DISEASE just like alcohol and             An occasional user, regular user or the full on user have
tobacco, the first is illegal, the other two are legal. They    different life styles but the common theme is the needle!
can all kill you if you over indulge.                           If you have lived the path you will know what I’m on
                                                                about.
As soon as government and everyone across the board
realises what we are fighting here plus join forces, the        Programs should be designed with culture content in
better chance we all have with this problem. Drug use is        place to train different cultures on hep C issues and facts.
on the rise, these blood borne diseases are crippling our       These people can go to their communities and educate
people. Things will only get worse, if you don’t put in         others (Train the Trainer). These plain and simple
preventative measures. Our youth today are chopping             programs should also explore the social disadvantage
into the speed, heroin, plus shooting up whatever comes         which is a big issue for many using drugs across the
along (pills, done, etc).                                       board.

Youth programs should be designed for the youth. These          Alcohol and tobacco are legal drugs but there are more
programs should be run in Juvenile Centres, primary and         deaths from these than illicit drugs. Even with money
high schools etc. People would say primary schools are a        spent on education, it seems that more is spent on
bit young but teaching them about the dangers of needle         alcohol and tobacco. Drugs affect you physically and
pricks, blood-to-blood contact would be a plus.                 mentally and depending on your drug of choice there is a
                                                                big chance of catching hep C or something else like HIV/
If you are dealing with people from the lower end of the        AIDS, vein damage, abscess, etc.
social scale, chances are their children have been in
contact with the drug culture. We need a more direct            Some people just like the thrill of the steel in their arm
approach in teaching our children today, the government         and shoot anything!
and the square heads are behind the times.
                                                                Dual diagnosis is also a problem in this area - drug
Hep C and discrimination seem to go hand in hand, you           problems combined with psych issues. I believe more
wouldn’t think so in this day and age, that you would run       people should be trained in this area, instead of treating
into any form of discrimination. But here’s one for you:        people like footballs kicking them to one department,
what if you’re black (Aboriginal), a junkie and a crim to       back and forth, no one wants to stand up. You can’t just
boot? Chances are you will run into some form of                treat one piece of the person’s problem, it is all
discrimination.                                                 interwoven, drug use, lifestyle, social issues, etc. All
                                                                government and non government departments should be
Even today, I myself still run into some form of                inter-linked so referrals aren’t a problem.
discrimination. Gee, some people are backwards. Every
drug user should know their rights and the law in regards       Politicians and social commentators MUST change their
to where they stand on discrimination issues.                   strategies and attitudes towards drugs as the war on drugs
                                                                has “failed”. Any fool can see this surely.




  In these articles (pgs36-40), winners of our writing          These views are not necessarily those of the Hepatitis C
  competition (see p12) provide their personal views on         Council of NSW not of our funding body.
  matters related to hepatitis C.




36       The Hep C Review        Edition 51     December 2005
                                                                                                    writing competition




Youth is a big problem area and programs should be                                    Gaols and institutions across the board are a must for our
designed for schools, juvenile centres where ever                                     programs. These places are breeding grounds and the
possible to get the message across. I reckon we need                                  people that run them are fools with tunnel vision if they
more forums with guest speakers like people with hep C,                               can’t see this.
people that fight it, people that live with hep C but don’t
have hep C, carers, parents, school teachers, partners.                               Sincerely
                                                                                      Snake, NSW




Above image, detail taken with thanks from ‘Terra Nullius’. The artist is Lachlan Amore-Lloyd from Mowbray College, Melton, VIC.
Lachlan received the Chief Justice’s award. For full image see http://www.fedcourt.gov.au/students/studentsartprize.html#5




                                                                                  The Hep C Review               Edition 51        December 2005   37
writing competition




        Detail from White Lines: Barcelona. Dowloaded with thanks from http://www.ixion.demon.co.uk/images.htm via www.google.com/images




38   The Hep C Review           Edition 51        December 2005
                                                                                   writing competition




H
         epatitis C is a disease. It is caused by a virus. The          and deserving of its protection not its punishment. Two of the
         reactions of people who come into contact with the             major sources of discrimination for people with hep C are
         virus will differ, but it will have an impact on the life      the infectious nature of the disease and its association with
of most people who cannot rid their bodies of the virus. The            injecting drug use. I believe that the worry about infection is
most common way that people in Australia contract hepatitis             easier to deal with and therefore shall deal with it first in this
C is by injecting drugs, and injecting drug users are                   brief discourse.
perceived by many in our society in a way that people who
suffer from a disease are not. People with a disease are seen           Because of my background in market research I can see that
as unfortunate victims of their disease worthy of being helped          viral hepatitis has a problem with it’s ‘branding’. The public
by medical professionals, but injecting drug users are usually          is confused about the hepatitis “brands”. The average person
seen as being dangers to society who should be penalised for            has heard that you can get hepatitis from eating food that has
their own and society’s sake. People with hepatitis C                   been contaminated by the person handling the food, or that
therefore become the subjects of discrimination because of              you can get it from kissing. Although neither of these applies
their association with injecting illegal drugs. One way, and            to hepatitis C the fact that they are both called hepatitis is
probably not a quick way, of changing people’s perceptions              enough to make people worried about catching the disease
of hep C positive people is to change perceptions of injecting          and fearful that they might get it quite easily from an infected
drug users.                                                             person. This, amongst the general public, is enough to fuel
                                                                        fear, which fuels discrimination. My solution, with a couple
The main differences in perceptions between having a                    of million dollars, would be to ‘re-brand’ the hepatitis viruses
disease and being an injecting drug user is that injecting drug         for the general public. Names, or sub-names, that indicate
use is seen as being voluntary and a crime. There is,                   their transmission routes would both educate the public
however, a problem with both of those perceptions. If, as               about dangers and separate the different viruses that can
some do, we view problematic injecting drug use as a                    cause hepatitis in the public mind, and would help alleviate
disease process, then it may not be voluntary, and it is hard           one source of fear and discrimination against those with hep
to see how young person in a terrible situation being offered           C. The medical community could be drafted to assist in
a quick way to feel good could be seen as having much of a              disseminating the new names so as to lower the cost of ‘re-
choice. But even if it is an entirely voluntary activity, isn’t the     branding’.
protection of our young the main purpose of a society, and if
this is the case, are penalty and incarceration the best way to         The second source of discrimination, the association with
protect young people from themselves? Surely branding                   injecting drug use, is a much more politically charged, and
someone as a criminal and using the legal system to control             therefore much more difficult, issue. Injecting drug users are
their behaviour almost guarantees that they will take refuge            committing a crime, and the consequences of problem use
in the company of people who accept them, and these                     are often shown in the popular media and in professional
people will usually be their fellow injecting drug users and            publications. The association with injecting drug use is a
the dealers. Whether problem injecting drug use is a disease            source of discrimination amongst both the general public and
process or a voluntary decision, penalty and incarceration              health professionals. Drug users are perceived to be people
are not appropriate remedies.                                           who steal our possessions, commit acts of violence and have
                                                                        no self-respect or respect for those around them. As injecting
So the use of injecting drugs could simply be a crime and               drug use is the most common transmission route for hepatitis
this would make penalty and incarceration acceptable                    C those with hepatitis C are tarred with the same brush.
treatment. However, the law is designed to protect people,              However, I would argue that, by and large, injecting drug
and by extension their property, from harm. Not to protect              users are young people who may have made some bad
the individual committing the action from harm. If a person             decisions, and who deserve the protection of society, not
commits robbery, arson, murder, rape, fraud or theft, they              punishment, and that prosecution and punishment serve
have impacted on someone else’s life. But no-one else is                mainly to further alienate young people who probably
immediately affected by another’s use of drugs. Drug use is             already feel alienated from mainstream society. I would
therefore often called a ‘victimless crime’. So, is drug use a          argue that treating problem drug use as a medical problem
crime? Individual actions that may have a negative impact on            rather than a legal problem would lead to a better outcome
an individual’s life and health are usually dealt with by               for society at large and for many of the individuals
medical and allied health professionals, but there is no                concerned. It would also, as a side effect, reduce public and
impact on another’s life unless they are robbed or care about           professional discrimination against people with hep C.
the drug user. Robbery is a crime itself and when committed
by a drug user it is usually done to buy drugs, the amount of           In closing, if anyone can work out how to achieve this rosy
robberies would be reduced by treating problem drug use as              outcome with 2 million dollars or so please contact your
a disease rather than a crime. If someone cares about a drug            local health professional, policeman or politician
user wouldn’t they want the user to be cared for by the                 immediately.
medical community rather than the police and courts?
                                                                                Grenville, NSW
Treating problem injecting drug use as a disease rather than a
crime would make society at large more productive and
happy, would help family and friends of users, and would
help the users themselves, most of whom are society’s young


                                                                      The Hep C Review       Edition 51      December 2005             39
writing competition




I
    never used much. I received prize money from an             I am not on a crusade and gossip is a dangerous tool. So
   exam, and gave it to someone as a present, to later          when your family and closest friends - sometimes with
   wake to a needle stab in the foot. The other time I tried    their new born - still come and visit after you confide, I
to help my boyfriend get out of a gang by being part of it.     am extremely grateful. Why? Because they probably feel
I used a dirty needle because I didn’t think ahead, but I       threatened by it but are rising above their fears.
got my boyfriend off drugs in the end.
                                                                It isn’t that easy to catch, but it is a really bad disease.
A needle stick injury and a stupid mistake can cost such a      People’s instinct would say avoid people with the virus.
lot. I feel like a leper, but I got my own health into shape,   Education would allay some fears, but I couldn’t expect
my LFT’s are always normal.                                     people to have no reservations.

I have a conscience towards other people. So when I was         When I was in hospital I felt a level of prejudice, for all
going in for a gall bladder operation last year, I was asked    my attempts at honesty. But I felt I did the right thing. I
did I have hep C, I said yes. This I said in the interests of   cannot stand spiritual denigration when it is really severe
the staff but I knew it could alter the way I was treated. I    and narrow minded, and it can be hard to get justice. I
felt it did a bit, but I still think I did the right thing.     felt some of the staff appreciated me, so honesty really
                                                                won.
I told my dentist when she asked as well. She may follow
the same procedure with everyone but that information           Anna, NSW
gave her the chance to be as vigilant as possible. She
didn’t turn me away. I think she probably respected my
honesty and my concern for her and her staff. The
positive outweighs the negative for me. I’d much rather
prevent the spread of this disease than worry about
people’s opinions. But I am aware how bad people can
be towards treating you well and with dignity.

The other aspect of my life that has been affected is my
marriage. I married that boyfriend, and have been for 18
years, and thinking I had got hep C from him. The
genotype test was never offered, so when we finally got
the results, it was disturbing to discover I had the one that
was harder to treat.

Considering he had been a junkie, I got stabbed by
someone’s dirty needle, and used only once. It now made
our sex life difficult.

I don’t think anyone’s mad, depends on the circumstance.
I put down life’s ‘trips’ to experience. My husband is
reformed and doing art and I am steering away from
troublemakers, expecting a bit more from life.

To generalise about people with hep C is counter
productive and short-sighted. The drug scene can be a
horrible scene, as I knew from my husband’s experience,
hygiene too often gets forgotten. So I suppose hep C
carries those stigmas because most people with it were in
a scene, and people associate hep C with drug culture.

I, personally, do not like to tell anybody about my hep C
status. My GP says that you should tell someone if you
are going to sleep with them, and I agree with that, and I
would let medical personnel know. But I don’t want to
make it everybody’s business.



                                                                This image, detail from http://files.bitchx.ru/files/fotki/sett/drugs.jpg




40       The Hep C Review       Edition 51     December 2005
                                                                                                               promotions
DO YOU WANT
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CONNECTED                                                                   Announcing a clinical trial to find out whether
                                                                            acupuncture treatment has any effect on the health
                                                                            outcomes of people with hepatitis C. The trial is
WITH OTHER                                                                  being undertaken at the University of Technology,
                                                                            Sydney, as part of a Master’s Degree research
                                                                            project.
HEP C                                                                       Participants need to:

WORKERS?                                                                    •      have a documented positive PCR viral
                                                                                   detection test

HepLink is a NSW-wide network for health care and                           •      be aged between 18 to 70 years
other workers who address issues relating to hepatitis C in                 •      be not currently undertaking combination
their work. HepLink provides a forum for workers to
                                                                                   therapy (or have been on it within the last
share information, resources and support.
                                                                                   three months)
Members include dedicated hepatitis C workers, as well
as those for whom hepatitis C is just one area of their                     Treatment will include two acupuncture treatments
work. Our membership base includes specialists, nurses,                     per week over a twelve week period (24 treatments)
needle syringe program workers, drug & alcohol workers,                     at a Guilford acupuncture clinic. Five blood samples
youth workers, aboriginal health workers, researchers,                      will also be taken over a six-month period.
mental health workers, etc.                                                 Participants will also be expected to complete
                                                                            questionnaires during the trial.
In addition to ongoing support and information through
email e-list contact, HepLink members can also
                                                                                   If you want to know more about this project,
participate in quarterly forums held in Sydney. Travel
grants and Telehealth videoconferencing are available for                          please contact Christine Berle on 9632 8989
our rural/regional HepLink members to take enable them                             or Christine.A.Berle@student.uts.edu.au
to take part.

HepLink forums for 2006 will be held on the following
dates from 10am - 1pm at the Kerry Packer Education
Centre, RPA Hospital, Camperdown:
21 March, 21 June, September (tbc) & 15 December.

         If you would like more information about
         HepLink, please contact Holly Beasley at the
         Hepatitis C Council of NSW
         email: hbeasley@hepatitisc.org.au
         ph: 9332 1853




This image, detail from http://history.grand-forks.k12.nd.us/ndhistory/         This image, detail from
LessonImages/Sources/Special%20Collections/switchboard%20operator.jpg           http://www.nashuaacupuncture.com/images/sarah34needle.jpg




                                                                          The Hep C Review        Edition 51        December 2005           41
feature
THE NORMALISATION OF
RECREATIONAL DRUG
USE: PART 1
In the first of two briefing papers,
Professor David Clark looks at research
which provided essential insight into
British youth culture and the role of                          In their book Illegal Leisure, Parker and colleagues
                                                               emphasised that this political discourse has an ‘energy’ of
drugs and alcohol among adolescents                            its own. It promotes public fear and anxiety about crime,
during the 1990s.                                              drugs and youth, which in turn it then uses to interfere
                                                               simplistically, and with apparent public consent, in drugs


O
        nly a small minority of people who try an illicit      and criminal justice policy and practice. This process,
        drug develop a problem. Many people who try            because it can barely be challenged, thus spins along
        an illicit drug do so on one or a few occasions        reinforcing itself.
and decide the experience is not for them. Some may use
one or more illicit drugs on a periodic basis, while others    But this simplistic rhetoric ignored the question as to why
may use more regularly; but still their use is recreational    the majority of young people try illicit drugs and a
and controlled.                                                significant minority continue to use them regularly.

The use of illicit drugs has increased greatly over the past   In trying to understand this situation, Parker and
20 years, in particular during the 1990s. As an example        colleagues emphasised that the very nature of
of this change, a large-scale annual survey by the             adolescence was changing – the context and the
University of Exeter’s Health Education Unit (involving        conditions in which young people were growing up were
30,000 children from 150 schools in England and                very different to generations before.
Scotland) revealed that the proportion of 15- and 16-year-
olds that reported ever having tried an illicit drug rose      The research study involved a sample of over 700 14-
from 10 per cent in 1989 to 40 per cent in 1996.               year-olds being tracked annually for up to five years.

In 1991, Professor Howard Parker and his colleagues            Each year, they were asked about their personal and
initiated a unique piece of research, which tracked a          family circumstances, their disposable income, use of
large sample of young people (14 to 18 years old) from         leisure, and perspectives on personal and social
the North West of England over a five-year period. The         relationships. They were asked in detail about their use of
study confirmed the widespread recreational use of illicit     tobacco, alcohol and illicit drug use.
drugs, and provided essential insight into British youth
culture and the role of drugs and alcohol among                As they matured, more complex issues were pursued,
adolescents.                                                   including their attitudes towards drug use and drug users,
                                                               their assessment of health education they received, and
This study took place against the backdrop of a ‘youth         their experiences at parties and nightclubs.
drugs crime danger’ message both from media and
politicians. When John Major, the then Prime Minister,         Five annual self-report surveys were undertaken, and 86
announced his new drug strategy (Tackling Drugs                interviews were conducted when respondents were 17
Together) in a speech to the Social Market Foundation in       years old. Eight co-educational state secondary schools in
1994, he chose ‘yob-culture’ as the sound bite he wanted       the North West metropolitan area of the UK were used.
the media to highlight.                                        The questionnaires were distributed in the classrooms
                                                               with teachers absent.
Tackling Drugs Together was about offenders and crime,
indeed ‘no single crime prevention measure would be            The overall aim of the study was to assess how ‘ordinary’
more significant than success on the front against drugs’.     young people growing up in England in the 1990s
                                                               developed attitudes and behaviours in relation to the
One premise of the strategy was that young people were         unprecedented ready-availability of drugs, alongside
‘at risk of drug abuse’ and succumb because of peer            other consumption options such as alcohol and tobacco.
pressure. The second premise was that drugs are
dangerous and a menace. The third was that because             The findings suggested that recreational drug use had
drug use leads to crime, local communities are at risk         become widespread amongst British youth.
from drug users.                                               More than 36 per cent of the sample had tried an illicit
The war-on-drugs rhetoric of the then conservative             drug by age 14, and this increased to 51 per cent by age
Government, and the desire to link drugs and crime, was        16, and 64 per cent by age 18. More than 60 per cent
later hijacked by the Labour Party in opposition. It was       and 90 per cent of the sample had received drug offers at
continued once Labour came into power.                         age 14 and 18 years, respectively.




42       The Hep C Review       Edition 51    December 2005
                                                                                                        feature
                                                               BILLIONS SPENT
                                                               ON ILLEGAL
                                                               DRUGS TO FEED
                                                               WORLD’S HABITS
                                                               Some interesting facts and figures on
The most commonly tried drugs by age 18 were cannabis
(59 per cent tried), amyl nitrites or ‘poppers’ (35 per        drugs and drug trafficking:
cent), amphetamines (33 per cent), LSD (28 per cent) and
                                                               200 million, or 5 percent of the world’s population aged
ecstasy (20 per cent).
                                                               15-64 have used illicit drugs at least once in the last 12
Only 6 per cent had tried cocaine and 0.6 per cent had         months
tried heroin.                                                  $13 billion - estimated value of global illicit drug market
                                                               in 2003 at production level
Females were almost as likely as males to have tried an
illicit drug by age 18, and there were no differences          $94 billion - estimated value at the wholesale level
between youth from working and middle class
                                                               $322 billion - estimated value at retail level
backgrounds. At age 18, nearly one-quarter of the sample
had tried an illicit drug in the past week.                    $70.5 billion - estimated value of cocaine alone at retail
                                                               level
The study also revealed that young people reported many
more positive experiences of drug use than negative            $17 billion - value of exports worldwide of wine in 2003
outcomes.                                                      $6 billion - value of exports worldwide of coffee
By age 14 years, 90 per cent of the sample had tried           $65.2 million - 1972 US Drug Enforcement
alcohol, with 30 per cent claiming to drink on a weekly        Administration (DEA) budget
basis. This latter percentage rose to 80 per cent in 18
year-olds, with a mean consumption of ten units on the         $2.1 billion - 2005 DEA budget
last drinking occasion. At age 18 years, just over a third     2,775 - number of DEA employees in 1972
of the sample were current smokers.
                                                               10,894 - number of DEA employees in 2005
       Professor David Clark is from the Psychology            44 per cent - North America’s share of worldwide drug
       department, University of Wales, Swansea UK.            purchases

       In the follow-up briefing paper, we look at the         33 per cent - Europe’s share of worldwide drug purchases
       drug journeys that young people in this study           76 per cent - share of total drug profits generated in
       took, and explore why adolescent recreational           industrialised countries.
       drug use became normalised.
                                                               1 per cent - share of profits earned by producers of
       The reader is strongly recommended to read the          cocaine and heroin in developing nations.
       book, ‘Illegal Leisure: The normalisation of
                                                               Sources: UN Office on Drugs and Crime, Drug Abuse
       adolescent recreational drug use’ by Howard
                                                               Warning Network (DAWN); DEA
       Parker, Judith Aldridge and Fiona Measham;
       Routledge, 1998.
                                                                      Abridged from The Victoria Advocate, 06/11/05.
       Abridged from www.dailydose.net/                               http://victoriaadvocate-proxy.nandomedia.com/
                                                                      front/story/3145517p-3646008c.html via
       [In Ed52, we will attempt to carry an overview of              www.dailydose.net/
       recreational drug use among young people here in
       Australia. Ed]




                                                             The Hep C Review      Edition 51    December 2005          43
opinion



Low seizure rates give traffickers vast profits from an AUD$9.5bn a year business,
says report ministers refuse to publish
By Alan Travis



T
     he profit margins for major traffickers of heroin into   Danny Kushlik of the Transform drugs policy foundation,
     Britain are so high they outstrip luxury goods           which campaigns for legalisation, said the government
     companies such as Louis Vuitton and Gucci,               was hiding the parts of the report which demonstrated
according to a study that Downing Street is refusing to       that, far from reducing production, trafficking and supply,
publish under freedom of information legislation.             prohibition spawned the business.

Only the first half of the strategy unit study led by the     The suppressed pages say that the drugs supply market
former director general of the BBC, Lord Birt, was            into Britain is sophisticated and attempts to intervene
released last Friday. The other half was withheld but has     have not resulted in sustainable disruption to the market
been leaked to the Guardian.                                  at any level. “Government interventions against the drug
                                                              business are a cost of business, rather than a substantive
It says that the traffickers enjoy such high profits that     threat to the industry’s viability,” it concludes.
seizure rates of 60-80% are needed to have any serious
impact on the flow of drugs into Britain but nothing          Emphasising the inadequacy of seizure rates, the study
greater than 20% has been achieved.                           says the result over the past 10 to 15 years has been that,
                                                              “despite interventions at every point in the supply chain,
The study concludes that the estimated UK annual supply       cocaine and heroin consumption has been rising, prices
of heroin and cocaine could be transported into the           falling and drugs have continued to reach users”.
country in five standard-sized shipping containers but has
a value which at a conservative estimate tops UK£4bn          It concludes that even if the government succeeded in
(AUD$9.5bn).                                                  reducing the availability of drugs, that could backfire
                                                              because the most addicted, “high harm” users might
The report was presented in its full form to Tony Blair in    commit more crimes to fund the purchase of ever more
June 2003. Only 52 of its 105 pages were published, with      expensive drugs.
a note saying the rest was being withheld under the
Freedom of Information Act.                                   The report says the annual cost of crimes committed by
                                                              an estimated 280,000 high harm drug users to support
The government yesterday defended its decision not to         their cocaine and heroin habits has reached £16bn
publish the half of the report that delivers a scathing       (AUD$38bn) a year - a figure which rises to £24bn
verdict on efforts to disrupt the drugs supply chain. The     (AUD$57.5bn) if the costs to the nation’s health and
first 50 pages deal with drug consumption patterns and        “social functioning harms” are included.
drug-related crime.
                                                              The report says the drug supply business is large, highly
A Downing Street spokeswoman said the second half             flexible and very adaptable, and even if supply-side
contained information supplied by law enforcement             interventions were more effective it is not clear that the
agencies dealing with security matters, it concerned the      impact of the harm caused by serious drug users would
formulation of government policy and its publication          be reduced.
would be prejudicial to the conduct of public affairs. But
critics last night said much of the unpublished material      The outlook for stopping drug production in developing
was already in the public domain.                             countries is equally gloomy and embarrassing to the
                                                              British government, which is leading attempts to curb
Opposition politicians last night criticised the partial      heroin production in Afghanistan.
suppression of the report, saying it was a stark example of
the misuse of the Freedom of Information Act.                 The Birt report says a policy of compensated, forced
                                                              eradication is very expensive and actually encourages
The Liberal Democrats’ home affairs spokesman, Mark           further planting by farmers, while the alternative of a
Oaten, called on the information commissioner to order        comprehensive set of development interventions is also
full disclosure. “What this report shows and what the         expensive, takes time and might only displace cultivation
government is too paranoid to admit is that the ‘war on       to other countries.
drugs’ is a disaster. We need an evidence-led debate
about the way forward but if they withhold the evidence              Alan Travis is home affairs editor at The Guardian
we can’t have the debate.”                                           newspaper, UK.

                                                                     Abridged from The Guardian, 05/07/05 via
                                                                     www.dailydose.net/


44       The Hep C Review       Edition 51    December 2005
                                                                                                       feature

UK DOCTORS WARN OF AUD
$19BN HEPATITIS C CRISIS
Up to 200,000 people will die from hepatitis C infection in Britain over the next 20
to 30 years unless diagnosis and treatment of the disease improves dramatically,
doctors predicted recently, writes James Meikle.


A
       working group of UK health experts has warned           People who come to Britain from abroad may have been
      that the government was underestimating the              infected through transfusions or medical equipment, and
      looming hepatitis C public health disaster.              other less common infection routes include poor hygiene
                                                               at tattoo parlours, shared toothbrushes and razors, mother
The group, led by William Rosenberg, a consultant at           to baby transmission and, rarely, sex.
Southampton general hospital, for a study commissioned
by the Hepatitis C Trust, suggest that at least 500,000        Only about one in 20 people who know of their hepatitis
people carry the virus, and that conservative estimate is      C status receive drugs that might cure them, say
double the government figures. They warned that over the       campaigners, and that figure represents only 1-2% of
next 30 years, the cost to the UK National Health Service      those who might be infected.
(NHS) could rise to £8bn (AUD$19bn).
                                                               Researchers say many people fall out of the system
Nine in 10 people are unaware of their infection and the       between first warnings through blood tests and the
numbers will rise steadily unless public awareness             eventual treatment. Some hospitals never receive GP
campaigns encourage people who might be infected to            referrals, patients are often highly mobile and do not
offer themselves for screening via a blood test.               receive the results of tests, and some either do not believe
Professor Rosenberg accused the NHS of regarding               how serious the virus can be, or worry that there is a
hepatitis C as “a low-life disease” because many               stigma linked to the disease.
diagnosed are drug injectors. Yet others included those        Critics compare the £2.5m (AUD$6m) being spent on an
who only “dabbled” in drugs and decades ago.                   awareness campaign in England with the £50m
“My clinic is packed full of lawyers and bankers. They are     (AUD$119m) being spent in the battle against sexually
what we would call respectable, middle-class, people           transmitted diseases.
who dabbled when at university or in their teens. It might
be a person who injected a bit of speed in the 60s. You               James Meikle is health correspondent with The
could have been a very infrequent injector in the past”.              Guardian newspaper, UK.

Other people developed disease from infected blood                    Abridged from The Guardian, 30/09/05, via
products and transfusions. Heat treatment for products for            www.dailydose.net/
people with haemophilia was only introduced in 1986
and a blood test to protect traditional blood transfusions
came five years later.




                                                             The Hep C Review     Edition 51    December 2005           45
     membership page
     YOU are vital to US - WE are here for YOU
     Here we highlight items of particular interest for
     members and the benefits of financial membership.                     MEMBER NEWS . . . .
     In Member News, our bulletin which debuted with                       In the December edition of Member News, please
     Edition 50 and will continue to be mailed to all                      watch for:
     financial members with individual copies of The Hep C
     Review, members hear the “good oil” first and learn of                →        More on the opportunity for 2 individual
     special benefits unavailable to our general readership.                        financial members to attend the 5TH
                                                                                    AUSTRALASIAN CONFERENCE ON VIRAL
                                                                                    HEPATITIS in Sydney in February 2006

             CONGRATULATIONS go to the three                               →
Membership


                                                                                    Feedback on our 2005 ANNUAL GENERAL
             financial members who are now enjoying the                             MEETING AND COMMUNITY
             benefits of entering the computer age cour-                            INFORMATION SESSION held on 10
             tesy of our ex-staff computers.                                        November



             CONGRATULATIONS also to the five
             financial members whose names were picked
             from the draw to join management committee
             members, staff and volunteers in a very
             special THANK-YOU event on board the tall
             ship, Svanen.



             Our 2006 membership year begins on 1 March 2006
             We will remind you of the renewal date again in Edition 52. However, to enable you to take advantage of our “early
             bird” offer if you wish, we’ve enclosed a membership form with this issue. Professional and organisational members
             will receive invoices seperately with Member News.

             Don’t forget – All memberships require renewal each year, including zero fee category. PLEASE complete all
             relevant sections of the membership form, sign and return the entire form to us.

             If you are uncertain about the status of your membership, please give us a call on 02 9332 1853, or send an email to
             hccnsw@hepatitisc.org.au

             When forwarding your membership application or renewal, please remember that cheques or money orders must be
             made out to HEPATITIS C COUNCIL OF NSW MEMBERSHIP.


              WHY NOT BE AN EARLY BIRD AND RENEW YOUR
              2006 MEMBERSHIP BEFORE MARCH?
              You’ll be covered till March 2007 and you could receive a pleasant
              surprise! If we receive your 2006 renewal by 1 March, you will go
              in a draw to win one of 5 copies of PROFESSOR GEOFF FARRELL’S
              informative book “HEPATITIS C OTHER LIVER DISORDERS AND LIVER
              HEALTH - A PRACTICAL GUIDE”. Normally retailing at $71.50, this 324
              page guide is an excellent resource for workers in the field as well
              as for people personally affected by HCV.



     46      The Hep C Review      Edition 51   December 2005
a Council profile                                                    research update
INTRODUCING                                             Ribavirin plus interferon
                                                        OK for children with
KATY ROY:                                               hepatitis C
PROJECT OFFICER,                                        USA - The drug combo interferon alfa-2b plus ribavirin
                                                        appears to be effective and relatively safe for children
HEP C HELPLINE                                          with chronic hepatitis C infection (HCV). Most serious
                                                        adverse events can be managed by lowering the dose of
                                                        ribavirin, the investigators report in the November issue
I have been in the role of project worker for six       of Hepatology.
months now and have found the Hepatitis C Council
to be a supportive and dynamic working                  This drug combination improves virological responses in
environment.                                            adults, lead author Dr Regino Gonzalez-Peralta and
                                                        colleagues note, but information is limited regarding its
Prior to working here, I have been employed in a        use in children.
variety of client focused roles at ACON and most
                                                        In a phase I study, Dr Gonzalez-Peralta, from the
recently I worked with homeless young GLBT              University of Florida in Gainesville, and his team tested
people at the Twenty10 Association where I am           three doses of ribavirin (3, 12, or 15 mg/kg/day) in
currently a volunteer on their committee of             combination with interferon alfa-2b (3 million IU/m2
management.                                             three times weekly) in 56 children ages 5 to 16 years with
                                                        hepatitis C. The highest dose of ribavirin tested was the
At the moment I am working on a fact sheet looking      most effective in reducing levels of serum HCV RNA and
at the issues around pregnancy and children, for        had a comparable safety profile to the lower dose
people with hepatitis C.                                regimens.

I enjoy riding my bike to work, reading the weekend     They then tested the efficacy of the higher dose regimen
paper and hanging out with my small dog.                in 118 children ages 3 to 16. At the end of the 48-week
                                                        treatment period, 59% had undetectable HCV RNA
                                                        levels, which declined to 46% who achieved a sustained
                                                        viral response during a 24-week follow-up period.

                                                        Response rates were higher in children with baseline
                                                        levels of 2 million copies/mL or lower and those with
                                                        HCV genotype 2/3 compared with genotype 1. None of
                                                        the five African-American patients had a sustained viral
                                                        response.

                                                        Severe adverse events were reported by 19% of subjects,
                                                        neutropenia being the most common. Depression was
                                                        reported by 13%, including three with suicidal ideation
                                                        and one attempted suicide. Dose modification occurred
                                                        in 31% of cases, and 7% discontinued treatment.

                                                        Although growth slowed during treatment, it rebounded
                                                        during the follow-up period.

                                                        “The paediatric safety data, pharmacokinetic profiles, and
                                                        efficacy for the combination are similar to that reported
                                                        in adults for the treatment of HCV infection,” Dr.
                                                        Gonzalez-Peralta’s group concludes.



                                                        Hepatology, 2005;42:1010-1018.

                                                               Abridged from www.medscape.com




                                                      The Hep C Review     Edition 51    December 2005          47
                                                               December 2005     Edition 51    The Hep C Review           48
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          phone the NSW Hep C Helpline on 9332 1599 (Sydney callers) 1800 803 990 (other NSW callers).
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          To clarify any medical terminology, or for further information, please speak to your doctor or specialist, or
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        particular research topic.
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        overall scientific debate. They help broaden our overall knowledge and help develop consensus opinion on
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        Individual articles may sometimes appear to contradict current knowledge but such studies are part of
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           These ‘research update’ pages in the magazine attempt to meet this need.
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           In our previous readership surveys many people say they want to see detailed information on hepatitis C.
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7                                                                                                                           1
                                                                                                                            1
                                                                                Abridged from www.gastrohep.com
                                                                                 Journal of Hepatology 2005: 43(4): 590-8
                                                                  this cohort within 25 years.”
                                                                  “We confirmed the low risk of progression to cirrhosis in
                                                                 cases, or develop mild chronic hepatitis C.”
                                                                 morbidity may clear 1b infection in more than half of the
                                                                 Dr Wiesea’s team concluded, “Young women without co-
            www.hcvadvocate.org
                                                                   low increase of fibrotic scores in the last 5 years.
            Abridged from www.gastrohep.com via                    In addition, the researchers observed a continuous, but
                           Hepatology 2005: 42(4): 962-73         co-morbidity.
                                                                  related complications, half of these related to additional
                                                                  The team found that 10 women had died of hepatitis C
assignment of new genotypes and subtypes in the future.”
“The framework will internationally coordinate the                 with hepatocellular carcinoma.
                                                                   developed pre-cirrhotic stages and one was diagnosed
 store and provide access to data on the virus.”
                                                                   Only nine had overt liver cirrhosis, whereas 30 women
 the framework by which hepatitis C research databases
 Dr Simmonds’ team concludes, “These proposals provide             for Hepatitis C RNA.
                                                                   tested positive for hepatitis C virus antibodies and 46%
 new variants into genotypes and subtypes.
                                                                   after 25 years, 86% of the 1,833 affected women still
 The researchers also propose a particular classification of
                                                                   70% of the total cohort of 15 centres. They found that
  the six genetic groups.                                          The researchers examined 1,980 women, representing
  Hep C will be classified into six genotypes, representing
                                                                    HCV 1b contaminated.
 the future.                                                        reported that 14 anti-D immunoglobulin batches were
 assignment of new genotypes as they are discovered in              Dr Manfred Wiesea and colleagues from Germany
 The team also planned to draw up revised criteria for the
                                                                  isoimmunisation.
 subtype names among described variants of hepatitis C.           to 2,867 women for prophylaxis of rhesus
 The researchers aimed to resolve conflicting genotype or         though, anti-D immunoglobulin had been administered
                                                                  known dates of infection. Between 1978 and 1979,
status of HCV genotype nomenclature.                              There are few unbiased long-term follow-up studies with
hepatitis C genetic variability, met to re-examine the
Dr Peter Simmonds and a colleagues expert in the field of        have a low risk of progression to cirrhosis.
                                                                 morbidity may clear infection in most of the cases, and
 needed.                                                         contaminated immunisations, young women without co-
 variants of hepatitis C virus are termed is increasingly        people who received hepatitis C genotype 1b
 International standardisation and coordination of the way       The latest Journal of Hepatology reports that in a group of
    hep C virus genotypes                                                    source HCV outbreak
    Unified system of naming                                                 Outcome of a single
                                                                                research update
                                                                                   research update
New injecting practice                                            Drug crime re-offending
increases HIV risk among                                          drops in North Queensland
drug users in Tanzania                                            This report on the North Queensland Drug Court presents
                                                                  the findings of an evaluation of the implementation,
Female sex workers who inject heroin in Dar es Salaam,            operation and outcomes of the North Queensland Drug
Tanzania, have created a new needle sharing practice              Court pilot program for 26 months from its inception in
they call “flashblood.” After one woman injects, she              2002. The program operates within the Cairns and
draws blood back in her syringe until the barrel is full          Townsville magistrates’ courts, and aims to target and
and then passes the needle and syringe to a female                divert into treatment, rather than prison, high-volume
companion to inject. Women believe that such blood                property or drug offenders whose offending is attributable
contains enough heroin to help them escape the pains of           to their drug dependency.
withdrawal. They developed this practice in mid-2005 in
an altruistic attempt to help one another. These data are         The evaluation discusses referrals to the program;
based on ongoing interviews with 63 injecting drug users.         procedural issues; the operation of the program,
                                                                  including absconding rates; implementation issues;
Research on the relation between drug injection and HIV           differences in program operation and participant profile
transmission has long focused on the serial use of                between the two courts involved, and between the North
syringes or needles, practices such as “backloading,” and         Queensland and South East Queensland Drug Court pilot
reuse of paraphernalia before injecting. Flashblood is a          programs; and the outcomes of the pilot program, in
new phenomenon that is, in a sense, a dangerous                   terms of re-offending, drug use and health and social
exaggeration of needle sharing that magnifies HIV                 functioning of participants.
transmission risk. If the first injector is infected with HIV
or hepatitis C virus the amount of virus directly                 With respect to re-offending, the evaluation finds, among
transmitted into the bloodstream by the second injector           other things, that post-entry re-offending is significantly
could be quite large.                                             reduced for those who successfully complete the drug
                                                                  court program; and of those successful participants who
The rationale for the practice may be the price and               do re-offend, the time taken to re-offend is significantly
quality of heroin. Since 2003 the price of heroin has             longer.
doubled. Once pure, it is now reportedly adulterated.
Now a kete costs $1, and injectors reportedly need two to         In terms of drug use and health outcomes, the evaluation
get high. Most female injectors are sex workers, and the          finds evidence of reduced level of drug use for the
more successful are helping the more desperate with               duration of participation, as indicated by the declining
flashblood. The women who accept flashblood are also              number of positive drug tests; graduates of the drug court
the most likely to agree to clients’ frequent requests to         program reported significant improvements across a
forgo condoms.                                                    range of physical and mental health measures; and at the
                                                                  time of graduation, participant health status was
Injection drug use emerged in East Africa during the past         equivalent to Queensland population norms.
five to six years, and it is spreading rapidly throughout
the region. If flashblood spreads to other cities in East         The evaluation was also supplemented with qualitative
Africa, its impact on the rate of transmission of HIV and         interviews with a variety of participants of the North
hepatitis C virus could be substantial.                           Queensland Drug Court program. These interviews
                                                                  highlighted the importance of additional psychological
                                                                  assessment and relationship counselling services for
BMJ 2005;331:778 (1 Oct 2005), doi:10.1136/                       participants on the program.
bmj.331.7519.778-a

       Abridged from www.dailydose.net/                           Technical and background paper series, No 17: Final
                                                                  report on the North Queensland Drug Court, Jason Payne,
                                                                  Australian Institute of Criminology, 2005.

                                                                         Abridged from www.aic.gov.au/publications/tbp/
                                                                         tbp017/ via NSP Forum.




                                                                The Hep C Review     Edition 51    December 2005           49
interferon-based therapy
Peg interferon alpha and ribavirin                                         People with genotype 1, 4, 5 or 6 who are PCR positive at
                                                                           week 12 but have attained at least a 2 log drop in viral load
Subsidised ‘peg combo’ treatment for people with chronic                   may only continue treatment after 24 weeks if HCV is not
hepatitis C is available to those who satisfy all of the                   detectable by a PCR qualitative test at week 24. Similarly,
following criteria:                                                        genotype 2 or 3 people with cirrhosis or bridging fibrosis
                                                                           may only continue treatment after 24 weeks if HCV is not
1a     Biopsy: people must have evidence of Metavir stage 2,               detectable by a PCR qualitative test at week 24. PCR
       3 or 4 fibrosis (or equivalent index), or stage 1 fibrosis          qualitative tests at week 24 are unnecessary for people with
       with grade A2 or A3 inflammation.                                   genotype 1, 4, 5 or 6 who test PCR negative at week 12.

1b     Biopsy: people with coagulation disorders severe
       enough to prevent liver biopsy are exempt from 1a but
       must have evidence of abnormal ALT levels.                          PegInterferon Alpha-2a or 2b
2      Blood tests: people must have documented chronic                    Australian Government-funded PegInterferon Alpha-2a or 2b
       hepatitis C infection (repeatedly antibody positive or              involves a course of weekly pegylated interferon injections
       PCR positive).                                                      for up to 52 weeks. People are asked to visit their GP or
                                                                           specialist for follow-up visits during and after treatment.
3      Contraception: women of childbearing age undergoing                 Aside from modest Pharmaceutical Benefits Scheme charges,
       treatment must not already be pregnant nor breast-                  there should be no additional costs levied by treatment
       feeding, and both a woman and her male partner must                 centres.
       use effective forms of contraception (one for each
       person). Men undergoing treatment and their female                  When interferon molecules are pegylated, the drug lasts
       partners must use effective forms of contraception (one             longer in the body. It is injected once a week and ensures a
       for each person). Female partners of men undergoing                 more consistent therapeutic dose rather than the peaks and
       treatment must not already be pregnant.                             troughs of thrice-weekly injections.
4      Age: people must be 18 years or older.                              PegInterferon Alpha-2a or 2b monotherapy leads to a
                                                                           sustained response in around 25% of those who try it,
5      Treatment history: people must not have had prior                   basically doubling the sustained response rate of basic
       interferon or peg interferon treatment.                             interferon monotherapy.

                                                                           Government-funded treatment is offered to people 18 years
                                                                           or older who have chronic hepatitis C and compensated liver
Duration & genotypes                                                       disease, and who have received no prior interferon therapy,
                                                                           and who have a contraindication to ribavirin (can’t tolerate it)
For people with genotype 2 or 3 without cirrhosis or bridging              and who satisfy all of the following criteria:
fibrosis, treatment is limited to 24 weeks. For people with
genotype 1, 4, 5 or 6 and those genotype 2 or 3 people with                1     Biopsy: people must have evidence of chronic hepatitis
cirrhosis or bridging fibrosis, treatment lasts 48 weeks.                        on liver biopsy (except in patients with coagulation
                                                                                 disorders considered severe enough to prevent liver
                                                                                 biopsy).

Monitoring points                                                          2     Liver function tests: people must have abnormal ALT
                                                                                 levels in conjunction with documented chronic
People with genotype 1, 4, 5 or 6 who are eligible for 48                        hepatitis C infection, i.e. repeatedly antibody positive
weeks of treatment may only continue treatment after the first                   and/or HCV RNA (PCR) positive.
12 weeks if the result of a PCR quantitative test shows that
HCV has become undetectable or the viral load has                          3     Other liver damage: people mustn’t have other forms of
decreased by at least a 2 log drop. The baseline and 12-week                     chronic liver disease.
tests must be performed at the same laboratory using the
same type of test kit. PCR quantitative tests at week 12 are               4     Contraception: women of childbearing age must not be
unnecessary for people with genotype 2 and 3 because of                          pregnant, not breast-feeding, and must be using an
their higher likelihood of early viral response.                                 effective form of contraception.




    CAUTION
    Treatment with interferon alpha has been associated with depression and suicide in some people. Those people with a history of suicide
    ideation or depressive illness should be warned of the risks. Psychiatric status during therapy should be monitored.
    A potentially serious side effect of ribavirin is anaemia caused by haemolysis (destruction of red blood cells and resultant release of
    haemoglobin). People’s blood counts are monitored closely, especially in the first few weeks, and doctors may lower the ribavirin dose if
    necessary. Adults who can’t tolerate ribavirin and have had no prior interferon treatment may be offered subsidised PegInterferon Alpha-2b if
    they meet certain criteria.
    Ribavirin is a category X drug and must not be taken by pregnant women. Pregnancy in women undergoing treatment or in the female partners
    of men undergoing treatment must be avoided during therapy and for 6 months after cessation of treatment.




50         The Hep C Review        Edition 51     December 2005
                                                      complementary therapies
5a    Duration: with Alpha 2a, the         Complementary therapies
      treatment course is limited to 48
      weeks. People may only continue      Good results have been reported by some people using complementary therapies
      treatment after the first 12 weeks   while others have found no observable benefits. As with any treatment, it’s
      if PCR viral load testing shows      important to remember that wrongly-prescribed medicines can be harmful.
      that the plasma HCV RNA has
      become undetectable or the viral     A previous Australian trial of one particular Chinese herbal preparation has shown
      load has decreased by at least a 2   some positive benefits and few side-effects (see Ed 15, p 6). A similar trial but on a
      log drop.                            larger scale was carried out in the NSW Northern Rivers region (see Ed 24, p 8).
                                           Currently, a trial of particular herbs and vitamins is being carried out by
5b    Duration: with Alpha 2b, the         researchers at John Hunter Hospital, Newcastle, and Royal Prince Alfred and
      treatment course is limited to 48    Westmead hospitals, Sydney (see Ed 45, p 9).
      weeks at 0.5 to 1 microgram per
      kilogram weekly. People may          Some people choose complementary therapies as a first or a last resort. Others
      only continue treatment after the    may not use them at all. Some may use them in conjunction with pharmaceutical
      first 12 weeks if PCR viral load     drug treatments. Whichever way you choose, you should be fully informed. Ask
      testing shows that the plasma        searching questions of whichever practitioner you go to:
      HCV RNA has become
      undetectable or the viral load has   •     Is the treatment dangerous if you get the prescription wrong?
      decreased by at least a 2 log
      drop.                                •     How has their complementary therapy helped people with hep C?

                                           •     What are the side-effects?

                                           •     Is the practitioner a member of a recognised natural therapy organisation?
Alternative access
                                           •     How much experience do they have working with people with hepatitis C?
People wanting to access interferon-
based therapy outside of the               •     How have they measured the health outcomes of their therapy?
government subsidised S100 scheme
can purchase treatment drugs at full       •     How do they aim to help you?
price or seek access through industry-
sponsored special access programs.         Remember, you have the right to ask any reasonable question of any health
                                           practitioner and expect a satisfactory answer. If you are not satisfied, shop around
For more information, people should        until you feel comfortable with your practitioner.
contact their nearest treatment centre.
For telephone numbers, please call the     You cannot claim a rebate from Medicare when you attend a natural therapist.
Hep C Helpline (see p52).                  Some private health insurance schemes cover some complementary therapies. It
                                           may help to ask your natural therapist about money before you visit them. Many
                                           will come to arrangements about payment; perhaps a discounted fee?

NSW treatment centres                      It is also important to continue seeing your regular doctor and/or specialist. Talk to
                                           them and your natural therapist about the treatment options that you are
Treatment centres exist in most parts of   considering and continue to have your liver function tests done.
NSW. Phone the Hep C Helpline for the
contact details of your nearest centre.    It is best if your doctor, specialist and natural therapist are able to consult directly
                                           with one another. If a natural therapist suggests that you stop seeing your medical
NSW Justice Health has nine treatment      specialist or doctor, or stop a course of pharmaceutical medicine, you may want to
assessment centres (two within gaols       consider changing your natural therapist.
for women) and various clinics for
monitoring ongoing treatment.              If you decide to use complementary therapies, it is vital that you see a practitioner
                                           who is properly qualified, knowledgeable and well experienced in working with
                                           people who have hepatitis C. Additionally, they should be members of a relevant
                                           professional association.

                                           Phone the NSW Hep C Helpline (see p52) for more information and the contact
                                           details of relevant professional associations.




                                                              The Hep C Review         Edition 51     December 2005             51
support / info services
NSW Hep C Helpline                                                 Sexual health clinics
For free, confidential and non-judgmental information and          Although hepatitis C is not classified as a sexually
emotional support you can phone the NSW Hep C Helpline.            transmissible disease, staff at these clinics can offer a range
The service gives you the opportunity to talk with trained         of services including pre- and post-test discussion and HCV
phone workers and discuss those issues important to you. It        blood tests. They are listed in your local phone book under
also provides referral to local health care and support            ‘sexual health clinics’.
services:
                                                                   If you are concerned about confidentiality, these clinics do
•       9332 1599 (Sydney callers)
                                                                   not need your surname or Medicare card and keep all
•       1800 803 990 (NSW regional callers)                        medical records private.

Prisons Hep C Helpline                                             Other support & counselling
A special phone service provided through the NSW Hep C             Traids is a statewide counselling, support and advocacy
Helpline that can be accessed by NSW inmates and prison            service for people with medically acquired hepatitis C and
staff. Call this free and confidential service by using the gaol   HIV. They offer short and long-term counselling, information,
phone, or by calling the numbers above.                            support and advocacy to affected people and their families
                                                                   and/or carers. Traids services are free and confidential, and
Community health centres                                           on either a face-to-face or telephone basis. They also run
                                                                   support groups and have a regular newsletter. Current
Community Health and Neighbourhood Centres exist in most           hepatitis C information is available. For more information,
towns and suburbs. They provide services, including                phone 02 9843 3143 (Traids have a call-back policy for NSW
counselling, crisis support and information on local health        regional callers).
and welfare agencies. Some Neighbourhood Centres run a
range of support and discussion groups and activities that         Family & relationship counselling
may range from archery to yoga. Look in your White Pages
under Community Health Centres. Neighbourhood Centres              If hepatitis C is impacting on your family relationships, it
can be found by phoning your local town Council.                   may be wise to seek family or relationship counselling. To
                                                                   find out more, contact Relationships Australia on 9418 8800
General Practitioners                                              or 1800 801 578.

It is important that people find a well-informed GP who can        Advice on food & nutrition
support all long-term health care needs. Ideally, a doctor
should be able to review and monitor a person’s health on a        Accredited Practicing Dietitians (APD) are qualified dietitians
regular basis and provide psychological and social support if      engaged in a formalised system of ongoing professional
needed. GPs should also be able to act as advocates to help        updating. Dietitians work in hospitals and community health
with difficulties in other parts of the health care system. GPs    centres, where there is usually no charge for their services.
should be able to advise when it is necessary to seek              Alternatively, private practitioners are listed in the Yellow
specialist advice or further investigations or about research      Pages. For information on healthy eating and referral to local
trial options. The NSW Hep C Helpline may be able to refer         dietitians, call the Dietitians Association of Australia: 6282
people to doctors and other health care workers in their area      9798 or 1300 658 196 or www.daa.asn.au
who have been involved in hepatitis C training.
                                                                   Cultural and linguistically diverse
Alcohol & other drug services
                                                                   communities
People who inject drugs and want to access peer-based
information and support should phone NUAA (the NSW                 The Multicultural HIV/AIDS and Hepatitis C Service
Users and AIDS Association) on 8354 7300 (Sydney callers)          (MHAHS) works with culturally and linguistically diverse
or 1800 644 413 (NSW regional callers).                            individuals and communities to achieve better health and
                                                                   wellbeing in relation to HIV/AIDS and hepatitis C, and to
NSW health services have a number of Drug and Alcohol              encourage and support health services working in these areas
clinics set up around the state. These centres offer               to respond appropriately and equitably. MHAHS targets 20
confidential advice, assessment, treatment and referral for        different language groups, but is also available to other
people who have a drug/alcohol problem or who have                 individuals and communities from culturally diverse
concerns about the use of these substances. The services are       backgrounds seeking assistance. For more details, phone
free and the staff are experienced in all aspects of drug and      9515 3098 or 1800 108 098 or just visit http://
alcohol use and associated conditions. If you are worried          www.multiculturalhivhepc.net/ to access hepatitis C
about your own or someone else’s drug and alcohol problem,         information in languages other than English.
phone the Alcohol & Drug Information Service (ADIS) on
9361 2111 or 1800 422 599, or contact your local hospital          NSW Health hepatitis C regional
or community health centre who will also be able to advise         coordinators
you on your nearest clinic.
                                                                   Phone the NSW Hep C Helpline (above) for information
Family Drug Support                                                about possible local services in your area and/or contact
                                                                   details for your hepatitis C regional coordinator.
An organisation that provides assistance to families to deal
with drug issues in a way that strengthens relationships and
achieves positive outcomes. Phone FDS on 1300 368 186.




52        The Hep C Review        Edition 51      December 2005
                                                                    support / info services
Hep C Australasia                                                  Port Macquarie Hepatitis C Support
This Australasia-wide online internet community has over
                                                                   Group
two hundred members. You can start your own conversation           Peer support available for people living with or affected by
thread or take part in existing threads, offer your point of       hep C. For information, please contact Lynelle Wood on
view or share your experiences. Just visit http://                 6588 2750 or Alison Mears on 0418 207 939.
hepatitisc.communityzero.com/



                                                                   St Vincent’s Support Group
Central Coast HOTS group
                                                                   Darlinghurst
HOTS: HCV and Offering Togetherness and Support. We are
a Central Coast hep C support group who meet twice a               This treatment-related support group kicked off the new year
month on the 1st Wednesday evening of the month from 7.30          on 20 Jan and meets on the first Tuesday of each month. St
to 9.00 pm, and the 3rd Tuesday morning of the month from          Vincent’s Hospital, Darlinghurst
10.30 am to 12 midday.
                                                                   For information, please contact Zoe Potgieter 8382 2887.
These different times allow people who work or study to
attend as well. We meet at the PSN House at North Gosford.
We also have guest speakers, general discussion and outings.
You will always get a cuppa.                                       St George Support Group
For information, please contact Leslie on 4323 2905.               Group meets intermittently at the Waratah Clinic. For
                                                                   information, please contact Philip on 9350 2961.


Coonabarabran Hepatitis C Support
Group                                                              Westmead Support Group
                                                                   A support group for people living with hepatitis C, including
Meets in the Health Counsellor room, Coonabarabran
                                                                   those on treatment. People from any area are welcome.
Community Health building. For information, please contact
Gary McKernan on 6842 2507.                                        From 7pm to 8.30pm, every 1st Thursday of each month
                                                                   (except Dec & Jan) at Room 2, Level 2, Parramatta Health
                                                                   Service, 158 Marsden St, Parramatta. There is free parking,
                                                                   with entry via George Street. Otherwise, it is a 10 min walk
Hunter Hepatitis C Support Services                                from Parramatta station.
A service that is open to all people of the Hunter living with     For information, please contact Sen Kee on 9845 7706, Maria
HCV and is linked to a team of health care professionals           on 9843 3143, or Frances or Susan on 9840 4110.
specialising in hepatitis C treatment & care. Based at John
Hunter Hospital, Lookout Rd, New Lambton.

For information, please contact Gabrielle Murphy on 4921           Westmead Hepatitis C Information
4762 or Tracey Jones on 4921 4789.
                                                                   Nights
                                                                   Our Information Nights are aimed for people with hep C,
Nepean Hepatitis C Support Group                                   families, friends and interested others. Our speakers talk
                                                                   about various aspects of hepatitis C such as: research about
Guest speakers keeping you informed about hep C. Family            the virus, transmission, treatment and symptom relief. People
and friends are more than welcome. Light refreshments and          who have hepatitis C or who have successfully undergone
supper are provided.                                               treatment often speak of their experiences and we also allow
                                                                   time for questions and answers.
Held in the Nurse Education Dept. Lecture Room (Somerset
Street entrance), Nepean Hospital.                                 Supper is generally provided as we know this can be an
                                                                   awkward time for some people. Parking is available at the
For further information, please contact Jo or Vince on 4734        hospital but you will need five dollars in coins. Alternatively,
3466.                                                              it is about a ten-minute walk from Westmead station. Go to
                                                                   the main entrance of the hospital and ask for directions at
                                                                   Reception, or look for our signs. There is no charge for the
                                                                   Information Night and people from any area are most
Northern Rivers Support Group                                      welcome.

Support groups often come and go. For information, please          For information, please contact Sen Kee on 9845 7706, Maria
contact Wendi Evans on 6620 7539 or Marilyn Lebeter on 07          on 9843 3143, or Frances or Susan on 9840 4110.
5506 6858.




                                                                 The Hep C Review       Edition 51     December 2005              53
noticeboard
Our loan library                                                   New HCV info booklet
Library loans are available for up to 4 weeks. Please call the     available in 15 languages
Hep C Helpline on (02) 9332 1599 (Sydney callers) or 1800
803 990 (other NSW callers) to request the item you require.       A new hepatitis C resource, developed by the
Items are loaned free of charge but borrowers are required to      Multicultural HIV/AIDS and Hepatitis C Service (MHAHS)
pay return postage. Please enquire about postage rates when        to raise awareness of hepatitis C among people from
you call the Helpline.                                             CALD backgrounds in Australia, is now available.

Videos                                                             “Hepatitis C is Everybody’s Business” was funded by the
                                                                   Australian Government Department of Health and
The Big Combo (HCCNSW, 2002): Approx 20 mins; two                  Ageing, the 12-page booklet is available in 15 languages:
people consider pharmaceutical treatment for hepatitis C in        Arabic, Bosnian, Chinese, Croatian, English, Greek,
very different ways; information on current treatment and          Indonesian, Italian, Khmer (Cambodian), Korean,
interviews with treatment specialists. Available with subtitles
                                                                   Macedonian, Portuguese, Spanish, Thai and Vietnamese.
for people with hearing difficulties. English.
                                                                   It is for anyone who wants to know about hepatitis C,
Everybody’s Business (MHAHS/ANCAHRD, 2004): Covering
                                                                   including people who may have had a risk factor, their
hepatitis C and HIV; suitable for health workers working with
groups. Comes with a facilitator’s workbook. Available in          families and friends.
English, Khmer, Somali, Indonesian and Thai.
                                                                   As well as raising awareness of this important public
Look Back Look Forward (Kathy Sport/Ronin Films, 1998):            health issue, the booklet also aims to reduce
Approx 30 mins; real-life stories of people’s experiences with     misinformation and stigma associated with hepatitis C.
hepatitis C and interviews with health specialists. Suitable for   The booklet contains information on transmission, testing,
individuals and health workers. English. (Council members          prevention and support. It will be distributed across
only)                                                              Australia to multicultural organisations and hepatitis C
                                                                   agencies.
Books
                                                                   An order form for the booklet is available from MHAHS
Hepatitis C: An Australian Perspective (Crofts, Dore,              on (02) 9515 5030.
Locarnini, 2001): Covers all aspects of hepatitis C clinical
management, treatment and prognosis. Suitable for health           The booklet will soon be downloadable from
workers. (Council financial members only)                          www.multiculturalhivhepc.net.au

Hepatitis C, other liver disorders and liver health: A Practical
Guide (Farrell, 2002): Covers all aspects of hepatitis C
management, treatment and lifestyle issues, as well as other
liver disorders. Suitable for individuals and health workers.
(Council financial members only)                                   Sharing a chuckle
Cassette Tapes                                                     There once was a man with hep C
                                                                   Who felt as sickly as sickly could be
Hepatitis C: A Brief Introduction (HCCNSW, 2000): The
Council’s comprehensive brochure on audiotape for people           So he went on the treatment
with reading difficulties. NB: treatment information has           Virus gone in complete-ment
changed slightly since 2000. English.                              Now he’s happy and fit as a flea

        HCCNSW                                                     There was a little flaviviridae virus
                                                                   Who sobbed, interferon wants to fire us
                                                                   We’re not wanted here
                                                                   We’re to be thrown out on our ear
                                                                   And no-one else wants to acquire us

                                                                   Helen, Gosford
Conference update
5th Australasian Viral Hepatitis Conference
Monday-Wed, 20-22 February 2006
The Sydney Masonic Centre, Sydney NSW
www.hepatitis.org.au
conferenceinfo@hepatitis.org.au                                    Complaints
14th National Symposium on Hepatitis B and C                       If you wish to make a complaint concerning our products or
Saturday, 18 November 2006                                         services, please visit our website for more information:
St Vincent’s Hospital Melbourne Vic
Email eleanor.belot@svhm.org.au                                    www.hepatitisc.org.au




54        The Hep C Review        Edition 51     December 2005
                        membership form / renewal / tax invoice
An invitation to                                         1. Please complete A or B or C, then complete other side


join / rejoin the                                        A. For people affected by HCV, or other interested people

Council                                                  Name

                                                         Postal address
Hepatitis C Council of NSW
PO Box 432
DARLINGHURST NSW 1300                                    Suburb/town
Or fax: 02 9332 1730                                     State                              Postcode
About the Council                                        Home phone                         Email:
We are a community-based, non-government,
membership organisation and a health promotion
charity. Our role is to represent and provide services
to people affected by hepatitis C throughout NSW.        B. For individual healthcare or related professionals
The Council is overseen by a voluntary Management
Committee, primarily made up of people elected by        Name
the membership. Although primarily funded by NSW
Health, we rely heavily on the involvement and           Occupation
support of our members.
                                                         Postal address
Privacy policy
The Hepatitis C Council of NSW respects and upholds
your rights to privacy protection. In accordance with    Suburb/town
National Privacy Principles, we have a detailed policy
and set of procedures regulating how we collect, use,    State                              Postcode
disclose and hold your personal information.
For a copy of the policy, please contact the Council     Work phone                         Work fax
office on 02 9332 1853 (Sydney and non-NSW
callers), or 1800 803 990 (NSW regional callers),        Mobile                             Email:
or visit our website: www.hepatitisc.org.au
                                                         May we list you on our referral database?
Membership
Our membership year begins on 1 March and runs to        Copies of The Hep C Review required                1     2  5  10
the end of February the following year. All members                                                             20 50 100
(including Zero Fee members) must renew their
memberships on an annual basis.
Membership income assists the Council greatly            C. For agencies, organisations and companies
in its work throughout the year.
                                                         Name of
For NSW health care workers                              agency
One of our services is the NSW Hep C Helpline,
an information and support phone line that is able to
refer callers to a range of services and health care     Contact person
workers in their local area (within NSW only).
                                                         Position
If you want to be listed on our database as a referral
option, please indicate on this form and return to us    Postal address
by fax or post. We will provide posted regular HCV
update information. Please note that we encourage
services on our referral database to become members
of the Council.                                          Suburb/town
As the most widely-read hepatitis C publication
in NSW, targeting both people affected by hepatitis C    State                              Postcode
and health care workers, The Hep C Review is
provided free to all members of the Council.             Work phone                         Work fax

If your service has clients/patients who may be          Mobile                             Email:
interested in The Hep C Review, please indicate the
number of extra copies you would like to receive         May we list you on our referral database?
on this form.
                                                         Copies of The Hep C Review required                1     2  5   10
                                                                                                                20 50 100

                                                              The Hep C Review     Edition 51    December 2005      55
 membership form / renewal / tax invoice
  2. Are you a new or existing member?                          5. Separate donations are gratefully accepted by the Council.
                                                                            Donations of $2 and over are tax deductible.
  This is the first time I've applied to
  become a financial member                                     If you would like to make a separate donation,
                                                                please record the amount here:                             $.....................................
  I'm already a financial member and
  this is a membership renewal

  I currently receive your magazine and                         6. If paying by credit card, please provide all information in this
  I want to become a financial member                           section.
  I'm not sure - please check your                              Card number:
  database



  3. Our membership year begins on 1 March
                                                                Card type            MasterCard              Visa               Bankcard
  and finishes on the last day of February.
  To become a financial member, please tick one
  membership fee box, below:
                                                                Expiry date:            month:                                year:
  Waged: for people in paid                     $25
  employment                                                    Cardholder signature:

  Concession: for people on                     $10
  government benefits
                                                                Please print cardholder name:
  Zero Fee membership: for people               $0
  in NSW experiencing severe financial
  hardship (NSW prison inmates)

  Individual health or allied                   $40             7. Payment, GST and postage instructions
  professionals

  Community-based agency                        $50             All Council membership fees are GST exempt but for most people, our
  (Management Committee run)                                    membership fees are not tax deductible.
                                                                If paying by cheque or money order, please make payments out to:
  Public/private sector agency                  $70
                                                                               Hepatitis C Council of NSW - Membership
  NB: Above are Australian rates only. Overseas                 Please post payments to
  applicants please contact the office or consult our                        Hepatitis C Council of NSW
  website for additional surcharge information.                              PO Box 432 DARLINGHURST NSW 1300
                                                                Our ABN is 96 964 460 285


  4. Contact with the Council office.
                                                                8. Would you like us to post you a receipt?
  We post our magazine out every three months in
  plain unmarked envelopes. Occasionally, we                    If you would like a receipt for your payment,
  contact members (especially those living in                   please tick the box (right)
  Sydney) by phone or mail, seeking volunteer
  assistance here in the office.

  I'd like to assist. Please contact me                         9. Declaration - I accept the objects and rules of the Hepatitis C
  regarding volunteer work                                      Council of NSW and apply for membership of the Council.
                                                                I agree to my personal contact details being held by the Council
  Please do not contact me regarding                            and used in accordance with the Council's privacy policy.
  volunteer work for the Council
                                                                Signed:                                                          Dated:




                                                                If you would like to obtain a copy of our constitution or privacy policy, please
                                                                contact the office (02 9332 1853) or visit our website: www.hepatitisc.org.au




         This section                                       amount           receipt                                membership                 info pack
                                     date received                                             date entered
        office use only                                    received          number                                  number                      sent?

staff initials
 56          The Hep C Review      Edition 51        December 2005

				
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