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Pediatric Sub-Group _PSG_ of the CWG

VIEWS: 3 PAGES: 23

									                    Pediatric Sub-Group (PSG) of the CWG
                              November 20, 2008
                                   Minutes

Attendees: Larry Rosen (New Jersey)
           Kathi Kemper (Wake Forest)
           Sunita Vohra (U of A)
           Hsing Jou (U of A)
           Sandy Newmark (Arizona)
           Tim Culbert (Minneapolis)
           Amy Moen (U of A)

Time of Call: 12:00-1:00 MT

Topic: Creating sustainable/green work places: facilitated by Dr Larry rosen
    Item #      Discussion                              Action Items
       1        -Billing practices: Canada vs USA
     Open       -Increasing visibility                       Amy to ask
  discussion    -Post-Pangea                                    Consortium about
                                                                increase visibility
                                                                and increasing
                                                                access to taped
                                                                part of call to other
                                                                networks across
                                                                N.America –
                                                                facilitated call etc
                                                                only to be shared
                                                                within consortium
       2                                                Please access the
  Facilitated                                           facilitated part of our
 Discussion:                                            discussion by dialing:
 Larry Rosen                                             1-866-854-2507
                                                         Passcode:
                                                         200849
       3                                                     -Please send your
   Member                                                    preferred outcome
REMINDERS                                                       measures to
                                                          amoen@ualberta.ca to
                                                           share with members

                                                              Please send your
                                                           preferred websites and
                                                           resources that you give
                                                                to parents to
                                                           amoen@ualberta.ca to


                                         1
                                                     share with members

                                                   - Amy to continue
                                                   sending out Clinical table
                                                   once a month separately
                                                   from minutes

                                                       -Amy to send out
                                                    outcome measures and
                                                      suggested websites/
                                                     resources for parents
                                                       and professionals
2009 Tele-    The 2009 conference calls are as
conference    follows (all calls take place from
meeting       12:00-1:00 MST),
dates/times        January 22: Open call-future
                     topics
                   February 26: TBA
                   March 20: TBA
                   April 23: TBA
                   May 21: TBA
                   June 25: TBA
                   July - No meeting
                   August - No meeting
                   September 24: TBA
                   October 22: TBA
                   November 19: TBA
                   December – No meeting




                  Pediatric Sub-Group (PSG) of the CWG
                             October 23, 2008
                                 Minutes

Attendees: Michelle Bailey (Duke)
           Kathi Kemper (Wake Forest)
           Sandy Newmark (Arizona)
           Rachel Workman (Denver)
           Sunita Vohra (U of A)
           Amy Moen (U of A)

Time of Call: 12:00-1:00 MT



                                    2
Topic: Education in Pediatric Residency-Facilitator: Michelle Bailey
   Item #      Discussion                              Action Items
      1        Review of Clinical table questions:
    Open       What can we do to make the table         - Amy to send out Clinical
 discussion    more usable? Currently no                table once a month
               systematic way to keep track             separately from minutes

                -Kathi’s new book :Mental Health         -Amy to send out
                Naturally” :                             outcome measures and
                http://www1.wfubmc.edu/phim/MHN.         suggested websites/
                htm                                      resources for parents
                                                         and professionals
      2                                                 -Michelle to send
 Facilitated                                            spreadsheet set-up after
Discussion:                                             permission and Amy will
  Michelle                                              distribute
   Bailey:                                              Please access the
Education in                                            facilitated part of our
  Pediatric                                             discussion by dialing:
 Residency                                               1-866-854-2507
                                                         Passcode:
                                                         865418
    3                                                        -Please send your
  Member                                                     preferred outcome
REMINDERS                                                       measures to
                                                          amoen@ualberta.ca to
                                                            share with members

                                                            Please send your
                                                         preferred websites and
                                                         resources that you give
                                                              to parents to
                                                         amoen@ualberta.ca to
                                                           share with members
2008 Tele-      The next meeting dates for the
conference      remainder of 2008 are as follows (all
meeting         calls take place from 12:00-1:00
dates/times     MST), Last call for 2008:
                     November 20, 2008: Dr Larry
                        Rosen topic: Creating
                        sustainable/green workplaces




                                        3
                  Pediatric Sub-Group (PSG) of the CWG
                              June 26, 2008
                                 Minutes

Attendees: Lonnie Zeltzer (UCLA)
           Kathi Kemper (Wake Forest)
           Hilary McClafferty (North Carolina)
           Hsing Jou (U of A)
           Sunita Vohra (U of A)
           Amy Moen (U of A)

Time of Call: 12:00-1:00 MT



                                      4
Topic: (Facilitator: Dr Lonnie Zeltzer) Research Topics and Research
Collaboration

   Item #       Discussion                              Action Items
     1.0
    Open        Topics: Discussion of new resident      -Discuss research ideas
 discussion     interest in PIM (would like to have     for Pediatric residents
                hands on experience) and how to         who is taking PIM
                turn into a research project?           electives potential
                Suggestion brought up of what           journal: BMJ and
                would work for new resident to do       Pediatric Medical
                (barriers and opportunities)            Education
                -idea for new resident: take notes,
                reflect and then describe plus
                document for others to follow in foot
                steps




     2.0                                              Please access the
 Facilitated    Please visit the CAHCIM website for facilitated part of our
 Discussion:    more information www.imconsortium.org discussion by dialing:
    Topic-                                            1-866-854-2507
  Research                                            Passcode:
 topics and                                           451183
  research
collaboration
 (Dr Lonnie
   Zeltzer)
Clinic table    Sunita’s PIM clinic in Edmonton has     Please let us know if
   update       added in a few extra columns            you have added in any
                including: MYMOP Symptoms #1,           extra columns to your
                score, MYMOP Symptoms #2,               PIM clinic Clinical table
                score, MYMOP Activity, score,           (amoen@ualberta.ca)
                MYMOP Wellbeing and score.
Reminder of                                             - Please let us know if
  member                                                you are using the
action items                                            Clinical table
                                                        (attached), if not, why?

                                                        - please send your
                                                        preferred outcome
                                                        measures to share with


                                        5
                                                          colleagues

2008 Tele-                                                - Members please send
conference     The next meeting dates for the             your preferred websites
meeting        remainder of 2008 are as follows (all      that you give to parents
dates/times    calls take place from 12:00-1:00           + preferred
               MST):                                      professional resources
                    July –no meeting                     (ie resources they like
                    August –no meeting                   to use)
                    September 25, 2008: OPEN
                       CALL NO FACILITATOR
                       (MOVING TO A DIFFERENT
                       DATE: Creating sustainable
                       green workplaces, facilitated
                       by Dr Larry Rosen)
                    October 23, 2008: Education
                       in Pediatric Residency,
                       facilitated by Dr Michelle
                       Bailey
                    November 27, 2008:
                       Currently awaiting a facilitator

               Please send any questions for the
               facilitator in advance of the call to
               amoen@ualberta.ca




                   Pediatric Sub-Group (PSG) of the CWG
                                May 22, 2008
                                  Minutes

Attendees: Hilary McClafferty (Chapel Hill)
           Kathi Kemper (Wake Forest)
           Michelle Bailey (Duke)
           Sunita Vohra (Facilitator, U of A)
           Amy Moen (U of A)



                                         6
Time of Call: 12:00-1:00 MT

Topic: Mentorship (Facilitator: Kathi Kemper)

   Item #        Discussion                              Action Items
     1.0
    Open         Topics:                                 -Amy to ask
 discussion      Enhancing trainee roles with            Jeannie/Jolene to please
                 consortium and other PIM initiatives    highlight new access
                 eg AAP SCHIM                            number
                                                         -Kathi to share
                                                         information regarding
                                                         Integrative Medicine
                                                         nursing carts, contact
                                                         info



      2.0                                              Please access the
 Facilitated     Please visit the CAHCIM website for facilitated part of our
 Discussion:     more information www.imconsortium.org discussion by dialing
   Topic-                                              1-866-854-2507
 Mentorship,     -Michelle Bailey described teaching Passcode: 870686
facilitated by   activities at Duke
Kathi Kemper




Reminder of                                              - Members please use
  member                                                 the clinical table for
action items                                             next 6 months

                                                         - please send your
                                                         preferred outcome
                                                         measures to share with
                                                         colleagues

2008 Tele-                                               - Members please send
conference       The next meeting dates for the          your preferred websites
meeting          remainder of 2008 are as follows (all   that you give to parents
dates/times      calls take place from 12:00-1:00        + preferred
                 MST):                                   professional resources
                      June 26, 2008                     (ie resources they like
                      July 24, 2008                     to use)
                      August 28, 2008


                                         7
                      September 25, 2008
                      October 23, 2008
                      November 27, 2008




                   Pediatric Sub-Group (PSG) of the CWG
                               April 17, 2008
                                  Minutes

Attendees: Hilary McClafferty (Chapel Hill)
           Larry Rosen (NJ)
           David Becker (UCSF)
           Michelle Bailey (Duke)
           Sunita Vohra (Facilitator, U of A)
           Amy Moen (U of A)

Time of Call: 10:00 MT (12:00 ET)


                                       8
Topic: Multi-center trials (logistics, who is interested, relevant skills/expertise)

   Item #        Discussion                                Action Items
     1.0         SV-CPSP study and AAP Pros-have
    Open         begun a joint study to access
 discussion      frequency (expect small) of adverse
                 events                                     -Pod cast idea-
                    -PIM Interviews, have re-emailed        Unfortunately, unable to
                 HM-Completing Post grad directors          pod cast only tape and
                 survey-academic directors                  listen in for 30 days
                                                            afterwards (Amy)
     1A          SV-Very collaborative, interlinking        AAP: topics to contribute:
   Sydney        with different groups around the           Synopsis: a couple of
   Update        world                                      paragraphs about
                    -Commitment for Minneapolis             Sydney (Connie at
                 2009, May12 will be PedCAM day             CARE)
                 as well Norway 2010
                 (Spring)(organization will occur from
                 EU for PedCAM day)
                 LR-PANGEA November 14/15, 2008
                 in New York (Promotion of wellness)
      1B         -APP billing workshop                      Future Topic idea:
 Insurance/      Coding, certain areas hard to code.        Insurance
    billing                                                 Reimbursement
      2.0        -Research ideas brought up at
 Facilitated     CAHCIM
 Discussion:        1) Mystudy.com-allowing for
   re: Multi           consumers to put money into
    Centre             what they personally support         DESCRIPTION BELOW
  Research             (cap of $100)
                    2) Model based on Vermont
                       Oxford-research and quality
                       assurance (submit data to
                       VON, compare and send
                       back): financially self
                       sustainable
                       -PI for each, and each
                       pitches own idea-discussed
                       at general meeting
                       SV’s study-40 sites but 90
                       signed up, so reason for
                       funding
                       -went there to pitch multi-
                       centre idea and ended up
                       forming Steering committee


                                           9
                       from right there                  -Ideas to add to PedCAM
                                                         day in Minneapolis in
                                                         2009:
                                                         Symposium/workshop:
                                                         models of multi-centre
                                                         Research, ex: 1)Patient
                                                         Registries 2)Clinical Trials
                                                         3)AAP Pros office based
                                                         approach
                                                          SV: Perhaps add to
                                                          PedCAM day in
                                                          Minneapolis 2009 as
                                                          content?

                                                         -Idea to put together as
                                                         workshop?
      3.0        DB-agreement to add columns to          -Take out all acronyms
Clinical Table   personalize table                       and abbreviations
                                                         -use for next 6 months
                                                         (members please email if
                                                         started use, would like to
                                                         hear about it)
Reminder of                                              - Members please use
  member                                                 the clinical table for
action items                                             next 6 months

                                                         - please send your
                                                         preferred outcome
                                                         measures to share with
                                                         colleagues

2008 Tele-                                               - Members please send
conference       The next meeting dates for the          your preferred websites
meeting          remainder of 2008 are as follows (all   that you give to parents
dates/times      calls take place from 12:00-1:00        + preferred
                 MST):                                   professional resources
                      May 22, 2008                      (ie resources they like
                      June 26, 2008                     to use)
                      July 24, 2008
                      August 28, 2008
                      September 25, 2008
                      October 23, 2008
                      November 27, 2008


Mystudynow – APRIL 2008 UPDATE


                                          10
Financial

The Website serves as the portal to collect information and donations from interested individuals
and to disseminate research progress and findings. At the initial meeting, it was agreed that the
website would be designed, hosted and managed by Planetree. Planetree is currently going
through a number of personnel changes and is presently hiring additional staff. The web
deliverable is currently on hold until this new person is on board and their skill set and priorities
are determined.

It was originally proposed that Planetree would manage finances and as the website grew, a
separate 501 c(3) organization would be developed to keep Planetree and “mystudynow” finances
separate. After discussing the plan with the internal legal counsel at Griffin Hospital, it was
decided that additional legal expertise was needed.

The goal is for the financial component of the plan to be a transparent process, beginning with the
declaration that initially, 5% of the funds collected would go to administrative fees. While the
actual amount might change over time depending on needs, those changes would be openly
presented. As presently conceived the flow of monies would be from Donor  website  escrow
account administered by Planetree  Trialist teams.

It is also hoped that “Mystudynow” would be able to keep the indirect costs at a reasonable level.
To accomplish this, there will be a review of the indirect rates charged at the institutions currently
involved in the CAHCIM, and the policies of major funding organizations followed by a
discussion of the flexibility of institutions around these rates, with the hopes that a maximum
indirect cost percentage e.g.. 26% can be arrived at. Indirect costs will be built into all budgets.

Individual donations will be limited (proposed limit = $100) to preclude an individual donor from
setting the “mystudynow” agenda.

A number of issues have yet to be discussed and policies will need to be created around the
following:
                   a. Means to work with large donors.
                   b. Whether the basic costs can be estimated for categories of trials (Placebo
                       controlled pilot study/sham procedure controlled study. Definitive study
                       (R01 budget) to be followed by a full detailed budget once a threshold of
                       funds was reached.
                   c. How the revenues that are generated will be distributed. Will the trials be
                       separated and funds divided into separate buckets?
                   d. How an advisory group will advise action under special circumstances.
                   e. What the relationship will be between Planetree and CAHCIM

FAQs

What happens if there isn’t enough money for a particular study?

Donors will be given these options:
   1) After a set amount of time (i.e. 1 year), funds will go to the mystudynow general fund.




                                                 11
          a. Donors can specify specific research domains that they are interested in. This can
               be a write-in option. For example, donors can choose to give to „acupuncture‟
               studies or „headache‟ studies which would allow some fluidity to funds.
   2) After a set amount of time (i.e. 1 year), funds will be refunded.
   3) A „wish list‟ of studies will be created by the research working group of the CAHCIM.
      These are high-priority studies, based on the assessment of the RWG, but funding is not
      readily available. It is possible that funds can be diverted to a particular high-priority
      study.

Who decides what is studied?

   1) The advisory board will propose a list of 10-20 high priority ideas that need funding .
           a. Once these ideas are formulated, either preexisting budgets can be modified for
                mystudynow. PRC staff can also create sample budgets and sample-size
                calculations for proposed studies.
           b. Based on the state of the science, a clinical trial isn‟t always necessitated. We
                need to decide whether other types of research will be funded besides clinical
                trials.
   2) Donors will be able to propose ideas based on a mix-and-match condition-treatment
      matrix.
   3) The advisory board (CAHCIM members) will serve as peer-reviewers and assess whether
      a trial is feasible or not.

   What will the decision process for deciding which site runs a study?
          a. Expertise
          b. Past record
          c. Facilities

TASKS

   1.   Populate list of clinical trialists.
   2.   Define the universe of acceptable study topics.
   3.   Coordinate funding for initial startup costs and website development.
   4.   Create advisory board.
   5.   Discuss initial governance issues.

The mystudynow team is comprised of:

David L. Katz, MD, MPH
Ather Ali, ND, MPH
Sheryl Horowitz Kiefer, PhD




                                               12
BACKGROUND: PRESENTED NOVEMBER, 2007

Mystudynow – Project Proposal
The mystudynow project is a web-based method of allowing the general public to direct and fund
CAM-related research studies that they are personally committed to. There will be a list of
conditions and treatments, and people will be able to select what they feel is most pressing. They
will commit a small amount of money ($10-$50) to fund the trial. When a critical mass is reached
(250-500K/study) in a particular area, a group of qualified preselected researchers will be able to
begin the trial in a relatively short period of time (1-2 months). It is expected that the CAHCIM
will play a key role in the implementation of this project by providing research capacity,
publicity, and an advisory board.

The innovative aspects of this process are many:

1. Clinical research can now be focused in areas that actual patients are interested in rather than
dictated by the priorities of conventional funding agencies and foundations.
2. The timeframe from conception to implementation is drastically shortened.
3. Patients feel responsible and part of the research process.
4. It is an extension of the 'patient-centered care' movement to 'patient-centered research.'
5. Provides an outlet for necessary CAM research without budgetary and bureaucratic constraints
of NCCAM.

The project is expected to be self-sustaining after startup costs need for website development and
promotion/PR.

Items (1) and (2), below, are first priority. Item (3) requires discussion among the advisory
board.

1. Clinical Trialist Team
The clinical trial team will be comprised of CAHCIM-affiliated academic health centers with
demonstrable research capacity in integrative medicine. These study teams will be on „standby‟ to
perform clinical trials as needed. At minimum, the team should include a Principal Investigator
with clinical trial experience, preferably in CAM domains, a study assistant, relevant clinical
facilities and experts, and an institutional review board.

The following criteria are being considered to evaluate potential sites:

    Experience with and demonstrated ability to recruit subjects in CAM clinical trials
    Federal funding
    IRB capacity
    Multicenter trial experience
    Data management capability
    Relative autonomy within institution
2. Website
The domains www.mystudynow.com, www.mystudynow.org, www.mystudynow.net, and
www.mystudynow.info have been registered. The site will be interactive and allow potential


                                                 13
donors to choose condition/treatment pairs of their interest. The website team needs to search for
possible models and discuss possibilities with web designers.
3. Governance
The governance structure needs to be determined. This may involve incorporation, nonprofit
status, or for-profit.




RFP: Model to Facilitate Collaborative Research within the Consortium
                              (DRAFT)

Request for Proposals:
The Research Working Group is launching an exciting new initiative to help PIs
disseminate information about their planned research projects that would benefit from
collaborators at other Consortium schools. This initiative is to help you identify which
other Consortium schools or individual members may be interested in participating in
your multi-site study or collaborative research.


TIMELINE -          MAJOR ACTIVITIES
2008
April 30            RFP sent out to Consortium members

May 30              Abstract of proposal due back to Consortium office

June 1-30           Peer Review

July 15             Review committee decisions will be communicated to all applicants.

August 1            Revised abstracts (where appropriate) due back to Consortium office.

September 1         Abstracts disseminated to Consortium

September 15        Power point and text presentations of selected proposals due to
                    Consortium office

October 15          Review committee comments/suggestions on pp and text presentation
                    back to PIs

November 1          Revised pp and text (where appropriate) due back to Consortium
                    office

November            Presentations at Annual Meeting and meetings with interested parties
11/12
                       NOTE: Annual Meeting will be at The Crossings in Austin, Texas


More detailed description:



                                                14
   1) Each study must have a PI who will prepare a synopsis of 750 words or less of
      the study’s goals and methods. Study population and intervention must be in
      sufficient detail so that attendees can determine if the study/collaboration is
      appropriate for their site and/or their interests. If this is not a clinical trial,
      description should indicate what sort of collaboration is desired. Please include
      information on approximately how many sites/individuals you are looking for and
      what is your projected/preferred timeline and target (e.g. specific private
      organizations or government institutes) for submission. This 750 word or less
      abstract is due May 30, 2008.

   2) All proposals will be reviewed by an RWG-convened peer review group. You
      may request specific reviewers within the Consortium that you feel have
      appropriate expertise. These individuals will be invited to review your proposal in
      addition to the basic group. Identification of a maximum of 5 proposals for
      presentation at the Consortium Annual Meeting will be made by June 30, 2008.

   3) Review with constructive feedback and suggestions will be provided for all
      proposals. There may be an opportunity to revise and resubmit your proposal if it
      is not initially accepted, if less than 5 proposals are selected in the first review
      round.

   4) The intent is to facilitate and foster collaboration within the Consortium and
      provide peer review and feedback, while supporting a high standard of quality to
      the proposals being presented.

   5) If your proposal is accepted, you will have the opportunity to give a power point
      presentation and brief Q and A (probably 10 minutes), as well as time slots to
      meet with interested sites/individuals at the Annual Meeting in November 2008
      (timing and structure to be determined).

   6) In addition, abstracts of the selected proposals will be sent to the Consortium
      prior to the meeting to facilitate dissemination to interested parties and best use
      of Annual Meeting time.

Criteria for peer review of 750 word study summaries:

  1)    Is the study question clearly stated? (score out of 5)

  2)    Is the study population clearly stated? (score out of 5)

  3)   Is the study intervention clearly stated? (score out of 5)

  4)   Is the study outcome clearly stated? (score out of 5)

  5) Does this study require multi-site collaboration in order to be feasible? (score out
  of 5)

  6)   Are the requirements for participating sites clearly stated? (score out of 5)




                                            15
  7) If you have concerns that this summary is not appropriate for presentation at the
  Annual Meeting,
      please outline them clearly here (this feedback will be shared with the applicant,
  so please focus
      on constructive criticisms) (open text box)

FAQs

  1. Q: I’m a PI within the Consortium. Do I have to use this new mechanism to
      identify
          collaborators?
      A: No, this is entirely voluntary. Some PIs may prefer to identify colleagues
  through other
         channels. This new initiative is being developed facilitate the process of finding
  collaborators
         or other sites to participate in their research studies or multi-center trials.

  2. Q: I’m a PI with a published study I’d like to present to the Consortium. Is this
     initiative a new
          way for me to disseminate this information?
     A: No, this initiative is for those who are planning studies, not for completed
  research. The
          Consortium would be pleased to help you share your published work with
  Consortium
          colleagues through other means.

  3. Q: If my proposal is not accepted this year, does that mean that the Consortium
      will not help me
          find collaborators?
      A: Unfortunately, due to time and space constraints at the Annual Meeting, only
  five proposals
          can be accepted. The RWG is delighted to help all PIs through disseminating
  their request for
          collaboration through Consortium listserv(s) and by posting such invitations on
  the
          Consortium website.

  4. Q: As the PI, can I invite non-Consortium schools to participate in my research as
      well as
         Consortium schools?
      A: As the PI, you hold ultimate authority for the study. The Consortium is pleased
  to help you
          but does not require that you limit your study to only Consortium schools.

  5. Q: If my 750 word abstract is accepted for presentation, does that mean that the
  Consortium will
           help fund my research idea?
       A: Unfortunately, the Consortium cannot fund your research project. Our primary
  goal for this
           initiative is to help you be successful with funding agencies by helping you
  find the


                                           16
            collaborators you may need to have a feasible study (e.g. due to sample size
   requirements,
            many clinical studies need to bring together multiple sites to be successful;
   identifying these
            sites can be challenging and this is where we’d like to help).

   6. Q: It seems that this initiative may be most helpful for clinical researchers. What
   is the
           Consortium doing to help other classifications of research, such as basic
   science or
           education?
        A: We have tried to structure this to be broadly helpful. We do appreciate that
   different kinds
            of research demand different kinds of approaches to be successful. We are
   happy to help
            support Consortium scientists. If this model is not a good fit for your kind of
   research, we
            welcome your suggestions re what approach would help you more. We hope
   that
           Consortium members will also make full use of the member database soon to
   be on the
           website for finding collaborators.

This initiative was initially proposed and is being championed by Sunita Vohra, MD
FRCPC MSc, Associate Professor, Dept of Pediatrics, Faculty of Medicine, University of
Alberta. It is sponsored and being implemented through the Consortium’s Research
Working Group.




                                           17
                    Pediatric Sub-Group (PSG) of the CWG
                                March 13, 2008
                                   Minutes

Attendees:
              Sunita Vohra (Facilitator, U of A)
              Michelle Bailey (Duke)
              Hsing Jou (U of A)
              Amy Moen (U of A)

Time of Call: 1:00 MT (3:00 ET)

Topic: Plans for 2008 (survey results and new members)

   Item #       Discussion                               Action Plan
     1.0           Experiential:
  Open call        Duke educational events:
                   -touchstone integrative medicine
                   health fair for fourth year medical
                   students
                   -Chair MT
                   -hypnosis trance
                USA Schools-18 out of 18 top             -SV to email Kathi and
                schools in the USA have CAM              Larry re: particular email
                services                                 that contains this
                                                         information (done)
     2.0            -attachments seen as helpful
Attachments         -new day and time are fine           -Agreement to tape
and taping of                                            facilitated part of call
    calls                                                only, open part will not be


                                         18
                                                          taped

                                                          -Amy to check with
                                                          Jolene with regards to
                                                          taping call (1/2 of call to
                                                          be taped beginning April
                                                          17, 2008)
    3.0          -Volunteer facilitators and preferred       -Amy will distribute
   Topics        dates of future CAHCIM calls                schedule with topic
                                                             choices based on
                                                             member feedback
                                                             (sent out Mar 26)
                                                             -SV will request
                                                             facilitators if no
                                                             volunteers
      4.0        -intended for computerized data          -Amy to re-create table
Clinical Table   collection at each institution without   as an excel file with tabs
                 patient ID                               –send out prior to April
                 -allows for sharing between              call
                 institutions once tracking column
                 removed
                 Table is used for quality assistance
                 NOT research, a comparison

Reminder of                                               - Members please use
  member                                                  the clinical table for
action items                                              next 6 months
                                                          - please send your
                                                          preferred outcome
                                                          measures to share with
                                                          colleagues

2008 Tele-                                                - Members please send
conference       The next meeting dates for the           your preferred websites
meeting          remainder of 2008 are as follows:        that you give to parents
dates/times

                       April 17, 2008
                       May 22, 2008
                       June 26, 2008
                       July 24, 2008
                       August 28, 2008
                       September 25, 2008
                       October 23, 2008
                       November 27, 2008



                                         19
                   Pediatric Sub-Group (PSG) of the CWG
                              January 24, 2008
                                  Minutes

Attendees:
             Sunita Vohra (Facilitator)
             David Becker (USF)
             Kathi Kemper (WF)
             Hsing Jou (U of A)
             Deepika Mittra (U of A)
             Subhadra (UCLA)

Time of Call: 9:00 MT (11:00 ET)

Topic: Catch-up on previous action items from 2007; plan for 2008 calls

    Item #        Discussion                Action Plan
      1.0            -Minutes were helpful, - we will continue to minute and
 Minutes from        good resources, useful distribute to all members of
  November           for communication      subgroup so as to facilitate
                                            communication
                     - minutes accepted
                     without change

                  - no objections were           - permission to tape calls will be
Taping of calls   voiced                         sought in upcoming electronic
                                                 survey of PSG members
        2.0       - suggested to add             - suggestion will be adopted into
Table to assess   identifier to keep track of    table
clinical          pts, e.g. date, MD initials,   - everyone agreed NOT to
conditions and    and University                 capture pt identifying info (e.g.
outcomes of                                      name)
pediatric



                                          20
integrative        - may be challenging to          -   agreement that table
interventions      identify single diagnosis            should reflect single major
                   as each pt is usually                problem/diagnosis and
                   complex (multiple                    related goal FOR THAT
                   diagnoses, multiple active           VISIT, also document
                   problems/goals)                      intervention, outcome
                                                    - will mean that one pt may
                                                        have several rows within
                                                        the table (limitation of this
                                                        approach)
                                                 - Action item: will amend table
                                                 and send out to PSG for review

      3.0             -    MYMOP is well-        SV to f/u with C. Patterson
Potential use of           liked/easy to use     (originator of MYMOP) to see if
other outcome              because you can       we can make this modification
  measures                 personalize
                      - Suggestion: prefer
                           0-10 scale
                           (MYMOP is 0-6)
                           since this is more
                           common in clinical
                           settings (e.g. pain
                           scale)
      4.0             e.g. newsletters,             -   encouraged and supported
 circulation of       websites, or other                to promote communication/
  documents           patient relevant                  collaboration (we’re all
    between           documents                         happy to help each other)
    schools           e.g. Grand Rounds             -   if people have documents
                      initiative that was               they want to share within
                      successful in Canada              PSG, please send to
                      (slides attached)                 care@med.ualberta.ca and
                                                        use subject heading “for
                   - KK: all programs are               PSG” – we will include it in
                   invited to submit materials          future emails
                   to post on AAP SCHIM             -   we will send Grand Rounds
                   website (send to                     slides to AAP SCHIM
                   jspeller@aap.org and cc              website
                   Kathi)
      5.0          KK: List serves can be        - unfortunately this is not within
 Ideas for 2008    overwhelming too many         PSG mandate, but should be
     calls         ideas, brands – how to        offered as advice to those who
                   help organize for ease of     manage listservs
                   recall?                        - member ideas for 2008 calls will
                   KK: Idea: group                be solicited in upcoming
                   collaboration and PSG          electronic PSG member survey



                                         21
                  helping

                      -  timing: current time     -   timing will be assessed in
       6.0               slot seems to be             upcoming electronic PSG
Timing/structure         challenging as our           member survey (noticed
of monthly calls         numbers have                 many members cannot
                         grown yet very few           attend – hope that better
                         can join calls               time slot may help)
                     - structure: ½ the           -   structure will not change
                         call is to a
                         predefined
                         dedicated topic
                         (ideally with expert
                         facilitator) – PSG
                         members
                         determine these
                         topics
                     - other ½ of call is
                     unstructured, open
                     opportunity for
                     members to talk to
                     each other, share new
                     ideas, ask each other
                     questions, etc.
                 - general support for the
                 call structure was voiced
Member action (follow up from previous          - pls review the clinical table
     items       calls)                         and advise if you would be
                                                comfortable using it to
                                                document pts you see for the
                                                next 6 months
                                                - pls send your preferred
                                                outcome measures to share
                                                with colleagues
                                                - pls send your preferred
                                                websites that you give to
                                                parents
2008                                            - NB this is subject to change
Teleconference The next meeting dates           based on member feedback (ie
meeting        for the remainder of 2008        after we get the results of the
dates/times    are as follows:                  electronic survey with preferred
                    February 28, 2008          days of the week/time of day)
                    March 27. 2008
                    April 24, 2008
                    May 22, 2008
                    June 26, 2008


                                       22
   July 24, 2008
   August 28, 2008
   September 25,
    2008
   October 23, 2008
   November 27,
    2008
   December 18,
    2008




                23

								
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