A guide to help you run a diabetes awareness event in your community A guide to help you run a diabetes awareness event in your community 1 Contents 1. Summary ‗A guide to help you run a diabetes awareness event in your community‘ 2 About Diabetes UK 2.1 Diabetes UK – Mission, Vision and Values 2.2 Introduction (What is diabetes, Diabetes UK) 2.3 Working with diverse communities in the UK 2.4 How Diabetes UK can help you 2.5 Culturally linguistic information 2.6 Diabetes UK Careline 2.7 Diabetes UK membership 2.8 Diabetes UK local groups 2.9 Volunteering at Diabetes UK 3.0 National and Regional Offices Tool 4.0 Why Diabetes UK is initiating this project? 4.1 How to organise your very own diabetes awareness day 5.0 Agenda 5.1 How to organise registration 5.2 The Exhibition 5.3 Living with Diabetes 5.4 Demonstrations and activities 6.0 Venues 6.1 Venue types 6.2 Catering 6.3 Funding and Sponsorship opportunities Your diabetes awareness day (presentations) Appendix 1 – Available as separate PowerPoint presentations 7.0 Understanding Diabetes 8.0 Diet and Diabetes 9.0 Evaluation Form Appendix 2 – Case Studies Appendix 3 – Tips on reaching your target audience A guide to help you run a diabetes awareness event in your community 2 Summary ‘A guide to help you run a diabetes awareness event in your community’. Diabetes UK is embarking on a new project in its aim to meet the needs of people from diverse communities. (January 2005-December 2007) Through working with people with diabetes, community organisations and religious institutions, we have developed a substantial database of contacts with key members, community facilitators and religious leaders from diverse communities who have expressed a desire to hold health awareness days for their groups. To meet the needs Diabetes UK is launching a tool to show community leaders and Religious leaders how they can raise awareness of diabetes within their community groups. The launch of the tool will be tailor made into an event to empower the delegates about diabetes. Our Healthcare Promotion team will hold presentations about ‘What is diabetes’, Type 1 and Type 2, signs and symptoms and managing diabetes’. This will allow the delegates to learn and take away the information and spiral the messages into their communities in a language, tone and culture that is culturally appropriate (with the aid of the tool). There is a need for this project simply because people from diverse and black and minority ethnic people are at increased risk, relative to the white population, of diabetes, related conditions, and other diseases. What is most alarming however is that awareness of diabetes and its long-term complications are low. Numerous studies have highlighted the problems that many people from black and minority ethnic communities have experienced in accessing, using, and shaping services. The problem areas that receive most attention in the literature concern information - regarding the nature of need, lifestyle issues, and services available - and communication with professionals and other service personnel. These problems are particularly acute for people whose first language is not English and who do not have English as a second language. A symptomatic problem concerns the common practice of children acting as interpreters for their parents or other relatives. Additional problems are associated with the cultural insensitivity of services in terms of specific needs around religious and cultural observance. A guide to help you run a diabetes awareness event in your community 3 1.1 Introduction What is diabetes? Diabetes mellitus is a condition in which the amount of glucose (sugar) in the blood is too high because the body cannot use it properly. Glucose comes from the digestion of starchy foods such as bread, rice, potatoes, chapattis, yams and plantain, from sugar and other sweet foods, and from the liver, which makes glucose. Insulin is vital for life. It is a hormone produced by the pancreas, that helps the glucose to enter the cells, where it is used as fuel by the body. The main symptoms of untreated diabetes are increased thirst, going to the loo all the time – especially at night, extreme tiredness, weight loss, genital itching or regular episodes of thrush, and blurred vision. Type 1 develops if the body is unable to produce any insulin. This type of diabetes usually appears before the age of 40. It is treated by insulin injections and diet. Type 2 diabetes develops when the body can still make some insulin, but not enough, or when the insulin that is produced does not work properly (known as insulin resistance). This type of diabetes usually appears in people over the age of 40, though it often appears before the age of 25 in South Asian and Black African Caribbean people. It is treated by diet and exercise alone or by diet and tablets or sometimes, by diet and insulin injections. The main aim of treatment of both types of diabetes is to achieve near normal blood glucose and blood pressure levels. This, together with a healthy lifestyle, will help to improve the wellbeing and protect against long-term damage to the eyes, kidneys, nerves, heart and major arteries. A guide to help you run a diabetes awareness event in your community 4 2. Diabetes UK Mission, Vision and Values Our Mission is: To improve the lives of people with diabetes and to work towards a future without diabetes. Our Vision is: To set people free from the restriction of diabetes The highest quality care and information for all An end to discrimination and ignorance Universal understanding of diabetes and of Diabetes UK A world without diabetes Our Values are: To put interests of people with diabetes first To be the best source of information on diabetes To work in partnership with all those affected by diabetes To help people help themselves To be open, ethical, honest and accountable To recognise and respect the value and diversity of all To appreciate the skills, expertise and commitment of our staff and volunteers A guide to help you run a diabetes awareness event in your community 5 Diabetes UK Diabetes UK, formerly known as the British Diabetic Association is one of Europe‘s largest patient organisations. Our mission is to improve the lives of people with diabetes and to work towards a future without diabetes through care, research and campaigning. Diabetes is a serious and dangerous condition and is one of the leading causes of chronic ill health, disability, and shortens life. Around 1.8 million people in the UK today are diagnosed with diabetes, with at least a million more – ‗the missing million‘ – thought to have diabetes but do not know it yet. The number of people with diabetes is escalating both in the UK and worldwide. Diabetes is more prevalent among South Asian, Chinese and Black African-Caribbean origin living in the UK than amongst the white population, with rates up to six times higher in South Asian communities and three-five times higher in Black African-Caribbean communities. Working with diverse communities in the UK One of our key goals is to meet the needs of diverse communities where diabetes is increasing at an alarming rate. We recognise that those who experience particular difficulties or face real inequalities in accessing services, require appropriate information, which may require different communication and dissemination routes. Diabetes UK is committed to increasing the awareness of diabetes and Diabetes UK amongst black and minority ethnic communities (BME). We are doing this through providing and promoting greater culturally and linguistically appropriate information and through co-operation and partnership with local and national organisations. Our objectives to meeting the needs of diverse communities are as follows; Increase awareness of diabetes and Diabetes UK through greater community based activities across diverse communities. Improve cultural competence within the organisation through training and employment policies. Increase involvement of BME through all our work. Provide and promote more culturally specific information for these groups at increased risk of having diabetes. Bring about greater partnerships with relevant community organisations. One of the projects Diabetes UK is initiating in 2005-2007 is to launch a toolkit which aims to help community and religious leaders to organise their own diabetes awareness days. The tool ‗A guide to how to run a diabetes awareness event in your community‘ will aim to provide enough information and resources to allow you to set up a ‗diabetes day‘ helping to inform and educate your community in a language, format and environment that is most appropriate. A guide to help you run a diabetes awareness event in your community 6 How Diabetes UK can help you Diabetes UK is the largest organisation in the UK that is dedicated to helping people with diabetes, their carers, families and friends. We also raise money for research in to diabetes and work with the media and the government to help ensure the best care and the best quality of life for people with diabetes. One of the main purposes of Diabetes UK is to help you get to grips with your diabetes. We provide quality, reliable information to support your need to help you lead a fuller, healthier life. The information is available in easy-to-understand fact sheets in English, five main South Asian languages and Chinese to help you manage your diabetes, and plays an active role in diabetes care. Culturally linguistic information Diabetes UK has general information publications in five main South Asian languages and Chinese that are free. Product Title Notes Codes 8024c Chinese 8024g Gujarati 8024u Urdu Are you at Available in all risk? languages and 8024b Bengali 8024h Hindi 8040p Punjabi on (www) 8040 English 9407 English 9409 Gujarati 9411 Hindi Do you have Available in all diabetes languages and 9408 Bengali 9410 Urdu 9412 Punjabi on (www) 9413 Chinese 7084 Bengali 7087 Hindi What diabetes Available in all care to expect? languages on 7085 Gujarati 7088 Punjabi tape 7086 Urdu Understanding Available in all and Managing South Asian Contact Jenne diabetes within languages and Dixit at Diabetes the South English. Video UK Asian and DVD community 9500 English 9503 Urdu 9505 Punjabi What is Fact sheet diabetes? information in A guide to help you run a diabetes awareness event in your community 7 9501 Bengali 9504 Hindi 9506 Chinese all languages. (www) 9502 Gujarati 9507 English 9510 Urdu 9512 Punjabi How can Fact sheet Diabetes UK information in 9508 Bengali 9511 Hindi 9513 Chinese help you? all languages. (www) 9509 Gujarati 9514 English 9517 Urdu 9519 Punjabi Hypoglycaemia Fact sheet information in 9515 Bengali 9518 Hindi 9520 Chinese What is a all languages. hypo? (www) 9516 Gujarati 9521 English 9524 Urdu 9526 Punjabi Managing Fact sheet diabetes information in 9522 Bengali 9525 Hindi 9527 Chinese all languages. (www) 9523 Gujarati 9528 English 9531 Urdu 9533 Punjabi Healthy Fact sheet Lifestyle, information in 9529 Bengali 9532 Hindi 9534 Chinese fasting and all languages. diabetes (www) 9530 Gujarati 9535 English 9538 Urdu 9540 Punjabi Diabetic Fact sheet Complications information in 9536 Bengali 9539 Hindi 9541 Chinese all languages. (www) 9537 Gujarati 9561 English 9564 Urdu 9566 Punjabi Nerve damages Fact sheet and diabetes information in 9562 Bengali 9565 Hindi 9567 Chinese all languages. (www) 9563 Gujarati 9542 English 9545 Urdu 9547 Punjabi CVD and Fact sheet Kidney disease information in 9543 Bengali 9546 Hindi 9548 Chinese all languages. (www) 9544 Gujarati Tablets and Fact sheet Insulin information in all languages. (www) 9556 English 9559 Urdu Ramadan and Fact sheet Diabetes information in 9557 Bengali 9560 Punjabi all languages. (www) 9558 Gujarati Pregnancy and Fact sheet A guide to help you run a diabetes awareness event in your community 8 Diabetes information in all languages. Please call the Diabetes UK Careline on the number below and use the product codes to order the free information sheets. We also have audiotapes ‘What diabetes care to expect’ in the South Asian and Chinese language. Diabetes UK Careline Diabetes UK has a dedicated diabetes help line with trained counsellors who can talk to you about any aspect of diabetes. Diabetes UK Careline can also provide translators for people who want to communicate in languages other than English. Diabetes UK Careline 10 Parkway London NW1 7AA Telephone 0845 120 2960 (charged at local rate) (translation service is available) Text phone 020 7424 1031 (for people with a hearing impairment) Email email@example.com Open Monday to Friday 9am to 5pm Diabetes UK’s website Our comprehensive and easy to use website offers the latest news and information. Some of the information can be downloaded in relevant languages. Visit: www.diabetes.org.uk Diabetes UK membership Membership brings you a bi-monthly magazine Balance, in English, packed with news, views on how to make living with diabetes easier for you. If you would like to find out more about supporting Diabetes UK or how being a member of Diabetes UK can help you, please call our Customer Services on 020 7424 1010 Monday-Friday 9am-5pm or email firstname.lastname@example.org. Diabetes UK local groups Diabetes UK has over 400 voluntary groups throughout the UK where people with diabetes can find support and friendship. Most groups are open to anyone who has diabetes. Some groups are for young people, parents of children with diabetes, South Asian people, and people with a visual impairment. Volunteering at Diabetes UK Volunteers are at the heart of Diabetes UK. There are lots of opportunities for volunteers to get involved from fundraising to campaigning as part of Diabetes Campaigning Networks, helping to support events fro children and adults or taking part in Diabetes UK network of voluntary groups. There are around 400 groups around the country, all run by volunteers, providing support to people living with diabetes. There are some specific groups for BME communities. A guide to help you run a diabetes awareness event in your community 9 If you would like to have details about how you can become a Diabetes UK volunteer please contact Martin Harris or Angela Style Head of Voluntary Groups on 020 7424 1000 or email email@example.com or firstname.lastname@example.org National and Regional offices Diabetes UK has a network of national and regional offices. The offices are all active in many ways, including fundraising, running diabetes training programmes, developing relationships with local decision makers, influencing diabetes care provision and raising awareness of diabetes. They also organise conferences for healthcare professionals and people with diabetes in the locality. The offices in Scotland, Wales and Northern Ireland also have the task of addressing devolution and influencing diabetes care provision within the differing health service structures. A guide to help you run a diabetes awareness event in your community 10 Why Diabetes UK is initiating this project? This guide has been produced to help you run a diabetes awareness event in your communities. It will give you step-by-step guidance on everything you need to know about organising a diabetes event. The awareness day can be organised to cater for groups; High at risk of developing diabetes – (this group includes those over the age of 25 from South Asian or Black African Caribbean background or people that have a family history of diabetes) People with diabetes, carers, friends and family. Anyone showing a keen interest in diabetes. How to organise your very own diabetes awareness day Forward planning Forward planning is best when organising events for your community. You will need to have a plan of who the invitees are; (see above) and ensure that you promote the event appropriately. Some of the communication channels can be by; Mail – writing to community members Informing about the event in community Newsletters or mailing Posters or leaflets on notice boards. Word-of-mouth You could also try and contact local radio stations or newspapers to help you promote your event. Local groceries and shops are key in helping you to promote the event. Ask local traders whether they would pin up posters promoting your event? It is even better if you can use your community or religious organisation as a marketing and communication channel to get the message out to the people that you will be holding a diabetes awareness day. Remember it is always best to send out invitations, flyers about the event well in advance to your community members to give them plenty notice. Involving people from the community in the planning serves as an effective and accepted way of relaying the information to the community. Potential delegates will feel a lot more comfortable with this approach. As you may find religious festivals and community functions are a great way to include diabetes awareness as a part of the agenda. You may find that there is only room for you to hold a diabetes information stand. This is sufficient enough to disseminate diabetes leaflets to community members to raise awareness of diabetes. A guide to help you run a diabetes awareness event in your community 11 Contact Diabetes UK to provide you with the resources you will need for the awareness day. This will consist of raising awareness tools such as leaflets and posters. The diabetes presentation (Understanding and managing diabetes) is included in the guide, which you may want to make copies and hand out to delegates. Should you have the equipment where you may require to have the presentation on acetates (for an overhead projector) or wish to deliver the presentation on power point; contact Diabetes UK and we can email the presentation to you. The presentation(s) itself has a step-by-step guide of how to deliver diabetes awareness to your community members. You do not need to have a clinical or nursing background to deliver the diabetes awareness day. Should your audiences ask for medical advice you must advise them to contact their GP or alternatively to contact Diabetes UK language line where they will be able to speak to a counsellor in a preferred language. It is important to involve local diabetes care teams and healthcare professionals providing diabetes care in your day. Diabetes care will be provided by a number of different organisations within your local area. Each Primary Care Trust has a diabetes lead and diabetes champion (Healthcare Professional) responsible for planning diabetes services. Many general practices will run diabetes clinics involving GPs and practice nurses and your local hospital (or in some case hospitals) will have a diabetes consultant(s), diabetes specialist nurses and support staff to provide specialist diabetes expertise and support. This may be provided in the hospital or in the community. This will allow great weight to your awareness day and members of the community will be able have some questions answered that they may have put off asking their GP for culturally or language barrier reasons. Please ensure that you give the Diabetes Specialist Nurse (DSN) or Practice Nurse (PN) enough notice so they can book it into their diaries. If you cannot locate someone to attend your diabetes workshop you can call Diabetes UK and we may be able to find contact details for you. This guide has a sample copy of the agenda, which you may want to follow to help prioritise your event. This is a guideline but you may find that your community would prefer to have something informal. You can be as creative as you like. The sample copy of the agenda shows that the event will span throughout the whole day. But this may not be the case for your community. You may find that you may want to have the awareness raising exercise for half the day or possibly for over the weekend (Saturday and Sunday). If holding an event is not possible, there are other ways to empower community members about diabetes. Some of the ideas are; Manning an exhibition stand to hand out diabetes information during a busy religious occasion. If your religious institution or Community organisation sends out information to your members via post, you could slot in diabetes information for people to read in the privacy of their own home. If your organisation publishes a newsletter for your community, you could lift some diabetes information from the fact sheets to educate community members about understanding and managing diabetes. A guide to help you run a diabetes awareness event in your community 12 Organising for a key person to talk about diabetes during congregation. To ensure that meeting rooms or staff rooms have plenty of leaflets to distribute to community members Organising an ‗awareness day‘ can be an ideal platform to encourage discussions, get people to ask questions etc in a learning environment, it is important to disseminate diabetes leaflets, audiotapes and videos as these tools will compliment your awareness day and will allow people to read about the condition in the privacy of their own homes with friends and family. What do people want to learn about in ‘awareness days’? In August 2003, Research Plus produced a report looking at ‗Living with diabetes days‘. Working with focus groups comprised of people with diabetes, carers, parents, they came up with the key points outlined below: Diet – Topics to consider covering: What is a healthy diet? Contemporary issues such as convenience foods, food labelling, eating out, snacking/dieting – how to maintain and loose weight? Exercise – The report concludes that this was mainly for older patients who need guidance and suggestions for exercise. However it does mention that it is relevant for young people too. Complications and specifics – ―A clear and honest presentation of the complications‖. Those in the focus group would like this information to be presented by experts and to cover symptoms, treatments and consequences. This was particularly a concern for older Type 2s and adult Type 1s. Motivation – Awareness days were seen as important events in terms of empowering people with diabetes/carers/those at risk. As the research stated; People ‗also wanted to feel they were being motivated Inspired Told about what they can do Informed about the latest Kept up to date A guide to help you run a diabetes awareness event in your community 13 Agenda (Programme content) This guide has a guideline of the agenda for the day. Please bear in mind that this is just a skeleton and you can be advised by your local Primary Care Trust or community members on how you would like the day to be received. How you use this programme will depend on your target audience, the venue, local needs and the availability of speakers. The template should serve as a helpful outline for your day and times can be changed to include longer sessions, longer breaks or additional topics. Remember sessions can be tailored to meet specific needs to make them appear more relevant to everyday life. You may want to do some research and find out what it is that your community members want to know and learn about. The aim of the guide is to give you an idea of how to use diabetes information to empower community members. Use the presentation in the Toolkit to help guide your awareness day. You may also wish to include activities and demonstrations, whether it is within the main sessions of workshops as an effective way of increasing interaction. Ask your local healthcare professional or Nurse for some ideas. Long lectures may not be a good idea – it is important to keep people engaged and enthused. Do not finish the day too late or start too early. Diabetes Awareness Day 11.00-11.25 Registration and Exhibition You could utilise this time to layout Diabetes UK information, audio tapes and Videos 11.30-11.40 Welcome Community leader or Imam can deliver the welcome 11.40-12.00 Introduction – What the day is about? 12.00-12.10 Living with diabetes Do you have a person in the community who has diabetes and is willing to share his/her experience of the condition? 12.10-12.30 Introduction to Diabetes Can invite a DSN or GP Understanding diabetes to come in to deliver the introduction 12.30-13.30 Workshop Food and Diabetes Contact Local PCT to A guide to help you run a diabetes awareness event in your community 14 invite dietician 13.30-14.30 Healthy Lunch Lunch could consist of traditional foods cooked 14.30 -15.30 Workshop the healthy option Living with Diabetes GP or Nurse Control and Monitoring/importance of physical activity 15.30-15.40 Completing Evaluation Forms To help monitor your 16.00 Close event, please send completed evaluation forms to Diabetes UK, 10 Parkway, NW1 7AA FAO Jenne Dixit 6. How to organise Registration Registration is really important for the organisation of your day and yet it is one thing that is actively overlooked. Registration is simply a checklist or making a note of those attending the event. You could set up a registration table near the entrance so as delegates start to arrive you can either cross them off or add them to the list. The list can look like (see below) Name Address Contact Email address Number Jenne Dixit 10 Parkway, 020 7424 email@example.com London NW1 1110 7AA Mrs Patel Asian Women‘s 01162 300 firstname.lastname@example.org Advisory 6000 Council Narayan Swaminaryan 01922 654 email@example.com Kumar Temple, 456 West Midlands It is useful to have these contacts registered for building your database or to use for future correspondence or to invite to other events you may organise. Registration is also key for the evaluation of the event to observe how many people attended the event. If you want to go a step further you could have a comments diary at the registration desk and ask people to fill in their analysis and opinions of the event on their way out. This is also seen as a kind gesture showing that we are interested in hearing other people‘s views. A guide to help you run a diabetes awareness event in your community 15 The Exhibition The exhibition is an area where diabetes leaflets; fact sheets, tapes and audiotapes can be displayed to raise awareness of diabetes information available. The exhibition area can either be set up at the entrance so delegates can stop and pick up information on their way into the main hall where the event is being held. Or, within the hall itself there can be a cut of area where diabetes information can be displayed. You will need a table; a chair and a volunteer to man the exhibition stand to greet delegates who approach the stall. It is important to have a person to man the stand at all times to ensure that people are greeted and given the right information that is asked for. What types of information to be included on the exhibition stand can be selected from the list of diabetes information Diabetes UK produce found on page 7. If you would like to see what other type of information Diabetes UK produces please see www.diabetes.org.uk/catalogue/ or call 020 7424 1000. You can check stock availability and order immediately by calling on 0800 585 088. We will endeavour to deliver your order within seven working days, but please allow up to 28 days for delivery. If you need your order urgently, please write on your order from and we will try to meet your deadline. Welcome Speech A community/religious leader or a well known respected member of the community can make the welcome speech. The speech should be no longer than 10-15 minutes encompassing the following points; A big thank you for attending and the importance of having an event such as today What to expect from the day This is where you can briefly outline the topics of sessions. If you have a speaker (Healthcare Professional) you could introduce and their input to the day. It would be a good opportunity to talk about why it is so important to raise awareness about diabetes and highlight the prevalence of diabetes amongst black and minority ethnic communities living in the UK. A guide to help you run a diabetes awareness event in your community 16 An example of this is; Diabetes affects an estimated 1.8 million people in the UK with possibly another one million people still undiagnosed – called the ‘missing million’ – the figure is rising. People from black and minority ethnic communities are particularly at risk. Type 2 Diabetes is up to six times more common in people of South Asian decent, compared with the white population. Research has shown that awareness of diabetes and its long-term complications are alarmingly low. Whether you have diabetes or whether you are high at risk, today’s event will help to raise your awareness and understanding. Anyone can get diabetes, however the risk increases with age. Type 2 diabetes is most commonly diagnosed in adults over the age of 40, although increasingly it is appearing in young people and adults. Symptoms include; tiredness, increased thirst, going to the loo a lot especially at night, weight loss, blurred vision and genital itching. People who are obese, physically inactive or have a family history of diabetes are at increased risk of developing diabetes. You may find that the above is a lot more detail for your comfort. If you feel uncomfortable talking about the above, ask a Healthcare Professional to talk about diabetes and the prevalence of diabetes amongst black and minority ethnic communities. It is also important to discuss the below briefly: House safety, house rules & regulations, fire exits etc Allocation times for breaks and lunch A quick emphasis to fill out the evaluation forms upon exit Living with diabetes This session could be made interesting if you have someone in the community who has diabetes and is willing to share his/her experience of living with the condition with the rest of the community. This would certainly provoke interest and give others confidence to share their own experiences. You could ask your speaker to talk about the following? How long they have had diabetes? What it felt like when they were first diagnosed? How they manage their diabetes? What services are available for them to access? Whether they have joined a support group to have more help understanding their condition or how they keep up to date with what help is available for them? A guide to help you run a diabetes awareness event in your community 17 Demonstrations and activities One way to make these events less formal and create a relaxed atmosphere is to introduce activities and demonstrations. Food and Exercise is very important in the management of diabetes so it would be useful to provide some interactive sessions on either of the two. You could organise for a chef or a local supermarket to get involved in cooking demonstrations using healthy recipes and foods. Alternatively exercise demonstrations could be held in the main meeting room, as part of a workshop or as a demonstration in the exhibition area. This could create an opportunity to bring in local companies fitness organisations – local gyms could use the day to promote their services and offer-discounted membership. Physical activity is extremely important as part of a healthy lifestyle. It: helps you feel good about yourself (afterwards, if not during) improves your sensitivity to insulin and helps improve blood glucose levels improves the fitness of your heart and circulation and so reduces the risk of heart disease and stroke helps you to control weight can improve the proportions of the good and bad types of cholesterol helps you to lose fat and gain muscle — this helps to improve strength, mobility and flexibility can help reduce blood pressure can reduce stress. You may want to investigate using traditional music and dance to encourage the older people to get involved. These could be tailored to reflect the diversity in the cultures for example having Garba (for the Gujarati community) or Bhangra (for Punjabi community). There are other ways of keeping fit that you may want to highlight to your community members - these are: Gardening Easy arm chair exercises Housework Walking Getting of the bus one stop early and walking the rest of the way home A guide to help you run a diabetes awareness event in your community 18 Walking to pick grandchildren up from school By providing demonstrations and activities, not only do they add a practical element to the day but it also creates a fun filled interactive environment. Evaluation Form There is an attached Evaluation form in Appendix (1) It is important to monitor and evaluate the event to see whether the day has been successful, to see whether the messages have met the needs of your community, what other information we could have provided and to also find out how the day could have been performed better. We encourage for your community members to fill in the evaluation forms, for those that find difficultly in reading and writing English – help of an interpreter must be offered. The completed forms should be sent to Jenne Dixit Equality and Diversity Advisor Diabetes UK 10 Parkway London NW1 7AA. Venues Your choice of venue will be affected by a number of factors. Should you have access to use your community organisation or place of worship, you may need to think about the Gender sensitivities. For example, should you hold the awareness day in an orthodox Mosque, you may need to book two rooms so to have men in one room and the women in the other. Other things to think about are ensuring the venue has full disabled access and health and safety. Points to looks out for when booking a venue: Disabled access Cheaper venues tend to be schools, local hospitals and community centres. If your event is held over the weekend, you may be able to negotiate a reduced rate. You could also contact your local Primary Care Trust (PCT‘s) and look at the feasibility of hiring one of their rooms. Is there disabled access to all the meeting rooms? How far is the distance between the meeting room and the disabled toilets? Does the venue have reserved disable Venue types parking? As well as these logistical considerations, the choice of venue can be extremely important to the feel and outcome of your event. Both the Living with Days Report 2004 and the focus groups commented on the importance of the venue as a way of creating a relaxed, casual atmosphere with participants favouring, ―easily accessible mainstream‖ and ―local and accessible‖ venues. Consider venues in more familiar settings such as community centres and town centre venues. Those who do not usually attend conferences will find these more attractive and navigating the venue easier on the day. In addition, if your exhibition is to be free A guide to help you run a diabetes awareness event in your community 19 all day for people to wander around it‘s best to have a venue where people feel they could drop in. For help with finding a venue contact venue finding agencies, and also contact the local tourist office that are likely to high a convention bureau that will have information on all local venues. Catering These guidelines offer general information for when you are holding your event and what types of food to provide: All foods are suitable for people with diabetes – it is about providing a choice that is important. Always make sure there are different options available. Menus should be low in fat and salt with no added sugar. Cutting down on fat is really important, particularly saturated fat as it is linked with heart disease. Try to have less of fried and fatty foods such as butter, margarine, fatty meats and cheese. Avoid fried finger foods like gatya, chevdo, samosa‘s or onion bhajia and sandwiches full of mayonnaise. Choose low fat dairy products. Ensure sufficient carbohydrates are available: chappatis, rotis, potatoes, bread, rice, pasta. Whenever possible high fibre varieties such as wholemeal roti, chapatti, bread, wholegrain cereals and lentils and beans should be eaten. Ensure snacks are available at breaks times – people with diabetes are encouraged to spread their food intake evenly throughout the day so snacking mid morning and mind afternoon is likely to be part of their eating plan. Suitable snacks are fruit (fresh or dried) or plain biscuits (garibaldi, rich tea, ginger nuts, digestives, hob knobs.) Do not request ‗diabetic‘ foods, they offer no benefit to people with diabetes. Drinks: it is important to always have water available at all times. Make sure you have some emergency foods on hand such as sugary sweets or biscuits. Ensure there are plenty of fruit and vegetables – at least five portions a day. Eating more fruit and vegetables protects against cancer and heart disease and also helps to balance the overall diet. A guide to help you run a diabetes awareness event in your community 20 Adapting recipes Modifying menus for people with diabetes does not necessarily mean starting from scratch. Instead you can adapt your existing menus and offer lower fat, lower sugar choices alongside menu options that you normally include. Breakfast Include the following in the choices available: High fibre cereals such as Bran flakes, Fruit and Fibre, no added sugar muesli, Shredded Wheat, Weetabix, porridge. Low fat spread or polyunsaturated/monounsaturated margarine as well as butter. Semi-skimmed/skimmed milk as well as full cream milk. Unsweetened fruit juice. Fruit, e.g. grapefruit in natural juice and not syrup. Reduced sugar jam/marmalade or pure fruit spreads as well as ordinary versions (not ‗diabetic‘ jams). Artificial sweeteners, e.g. Canderel or Sweetex as well as sugar for tea and coffee. Granulated artificial sweeteners can be used for cereals and for use in recipes, e.g. Canderel Spoonful. A selection of wholemeal and granary breads or rolls as well as white. If cooked breakfasts are planned, food should be grilled not fried where possible. Main meals Have plenty of starchy carbohydrate foods available. If possible let the person with diabetes help themselves as they will know how much they can have (buffets are often a good idea to allow this). Have a variety of dishes from which people can choose. People with diabetes need meals based on carbohydrates, such as potatoes, pasta or rice. Try to provide low fat/low calorie options, e.g. new potatoes as well as fried. Provide extra vegetables and salad. Serve butter, mayonnaise or dressings separately so that people can choose whether to have it or not. Provide vegetarian options. Serve cream and rich sauces separately so that people can choose whether to add it or not. Provide low sugar desserts, ice cream, fresh fruit or low fat yogurts as an alternative choice to ordinary. Water should be available on the table. Snacks People with diabetes are encouraged to spread their food intake evenly throughout the day for good blood glucose control and snacks mid morning, mid afternoon and bedtime may be part of their eating plan. A guide to help you run a diabetes awareness event in your community 21 Suitable snacks are; Fruit – fresh or dried. Plain biscuits, e.g. garibaldi, rich tea, ginger nuts, digestives, hob nobs. Bread or toast, fatless sponges, muffins, crumpets, tea breads, plain or fruit cakes and cereals. Low fat yogurt. Drinks It is important that a selection of sugar-free drinks and mixers, such as diet cola and slim line tonic, are available. You will use more of these sugar-free drinks than you would usually. A guide to help you run a diabetes awareness event in your community 22 Sponsorship The possibilities for sponsorship are wide ranging. You may be able to find a corporate company to sponsor the event, local health organisations such as Primary Care Trusts (PCTs) or alternative sources such as supermarkets, fitness clubs, or other retailers. For example the involvement of a supermarket could result in free marketing through the distribution of leaflets in stores and notices on mailed circulars, while the supermarket could display healthy eating products through cooking demonstrations on the day. Funding Diabetes UK Diabetes Support Project For those that want to organise diabetes awareness days but do not have the funds for; for example; marketing, sourcing venues or catering requirements, you can apply for funding through the Diabetes UK Diabetes Support Project 2005 Gareth‘s Fund. Please note, that there is an application process to go through and you will need to be eligible to apply. What is the Diabetes Support Project? In order to meet local education and support needs, some Diabetes UK Voluntary Groups and healthcare professionals in diabetes clinics and primary care trusts, run educational/support events. These range from weekly sessions, day-long events, to weekends and in some cases, week long events. Evaluations show that adults, children and families welcome the opportunity to learn more about diabetes management through sharing experience at residential events with a group of peers supported by appropriately qualified health care staff. The Diabetes UK Diabetes Support Project is available to groups and healthcare professionals, who are planning educational events for adults or children aged 18 years or under and/or to families of young people with diabetes (such as at family events.) This year the funding is kindly supported by Lilly and renamed Gareth‘s fund. Gareth is a boy with diabetes who lives in the North East of England and applications are particularly welcome from this area. Education Support is only available to healthcare professionals and groups who can demonstrate, in their application, that the primary objective is to improve diabetes education. Project This is a national project. Applications are welcome from all Diabetes UK regional and national offices, Voluntary Groups and healthcare professionals, working with children or adults. The objective of the project is to increase the number of quality education events available to all people with diabetes in the UK, particularly the recently diagnosed. The project runs alongside and complements Diabetes UK‘s centrally administered support holidays and adult and family support weekends. Diabetes UK Diabetes Support Project – What DSP can provide Funding: DSP applicants can apply for financial support for events. This funding will meet 75% (to an upper limit of £3000) of total gross costs of each separate DSP event. Guidance: DSP written guidance covers relevant areas of current good practice with regard to safety and protection of children and staff away from home. In addition to these vital issues, the guidance also provides information on matters such as staff ratios and recruitment, venue selection and insurance. Advice: Our guidance cannot cover all issues. However, DSP applicants can access advice through the Care Support Team at Diabetes UK. We can usually supply an answer to any questions you may have. If not, we can usually identify somebody who can. Diabetes UK Diabetes Support Project – What we Require From DSP applicants Application Details – The DSP application form, requires the event organiser to provide information on the planned event, such as venue, dates, numbers of people to be involved and the ratios of staff to children, where appropriate. Criminal Records Bureau – It is the responsibility of the organizer to ensure all staff that will work with children have been cleared (in the year of the event) by the CRB. The original disclosure must be seen and a copy retained by the event organizer. Agreement to work to Guidance – In order to ensure that there are consistent standards of care across DSP supported events, we will require each DSP organiser to undertake to work in line with guidance provided by Diabetes UK. Details of people with diabetes – In order to monitor uptake on DSP events, we will require a limited number of details about each adult or child attending your event (name and date of birth). This information will be treated in accordance with Data Protection legislation. Feedback and Evaluation of Events – In order to evaluate across all Diabetes UK events and supported events, we will require feedback from the organiser on the event in a report format. We do not require individual evaluation forms, which are yours to keep and use for future event planning. If you would like to discuss the Diabetes UK Diabetes Support Project or would like more information and an application form - please contact Diabetes UK Care Support Team By Phone : - 020 7424 1000 By email: - firstname.lastname@example.org By Post : - Care Support Team Diabetes UK 10 Parkway London NW1 7AA Appendix 1 SAMPLE EVALUATION FORM Diabetes Awareness Event Please help us to evaluate your diabetes awareness day by filling out this questionnaire. This information will be used internally by the Diabetes UK Equality and Diversity Advisor in order to meet your needs more effectively. 1.How did you hear about the diabetes awareness event? Diabetes clinic Community Organisation General practice Local press (please specify) Other PLEASE CIRCLE THE ANSWER OF YOUR CHOICE 2.How well do you think the diabetes awareness event was organised? 1 Excellent 2 Very Good 3 Good 4 Satisfactory 5 Poor 6 Unsatisfactory 3.Did the awareness day cover everything you needed to know about diabetes and Diabetes UK? 1 Excellent 2 Very Good 3 Good 4 Satisfactory 5 Poor 6 Unsatisfactory 4.Do you feel you understand the condition diabetes a bit better? Yes No 5.Do you feel you understand what services Diabetes UK offer? Yes No Was there anything about the day that was not Covered? Please give reasons for your answer?----------------------------------------------------------- ----------------------------------------------------------------------------------------------------------------- ----------------------------------------------------------------------------------------------------------------- ----------------------------------------------------------------------------------------------------------------- ----------------------------------------------------------------------------------------------------------------- Resources for your diabetes event Did you find the information leaflets 1 2 3 4 5 6 useful? Did you find the language materials useful? Yes No Information delivered on the day? How well did you understand 1 2 3 4 5 6 Introduction to Diabetes: Type 1 & Type 2 Please comment: Food & Diabetes 1 2 3 4 5 6 Control and Monitoring 1 2 3 4 5 6 Please comment on clarity of information: GENERAL QUESTIONS What were your aims for attending the launch of the day? Did we meet your needs? Would you attend another day focused on diabetes and Diabetes UK? The event 1 2 3 4 5 6 Please state which 2 aspects of the day you found the most interesting and useful? 1. 2. ABOUT YOU Do you have diabetes? YES NO Are you Type 1 or Type 2? ______________________ How long have you had diabetes? ______________________ How old are you? 25yrs/under [ ] 26 – 35yrs [ ] 36 – 45yrs [ ] 46 – 55yrs [ ] 56 – 65yrs [ ] 66yrs/over [ ] Have you worked with Diabetes UK in the past and if so how? THANK YOU FOR TAKING THE TIME TO COMPLETE THIS EVALUATION FORM PLEASE RETURN YOUR COMPLETED EVALUATION FORM Jenne Dixit Equality and Diversity Advisor Macleod House, 10 Parkway, London NW1 7AA Email: email@example.com The goal of the Foundation's health programme is to achieve sustainable improvements in health status among vulnerable groups, especially the geographically remote, women of childbearing age and children under five. The Foundation promotes improvements in health policies, financing mechanisms and basic services while enabling communities to adopt effective health practices. In the past, deficiencies in health policy, financing and service availability undermined attempts to achieve lasting improvements in health status among poor communities. Free-standing, community-based health programmes supported by the Foundation and other donors succeeded in achieving health improvements for a limited time at a relatively low cost. However, communities often did not have the financial resources to sustain improvements, the quality of care and patient referral were not assured, and basic services were often inaccessible and rarely equitable or lasting. The Foundation now supports interventions that build the institutional capacity of health systems by: Strengthening and developing partnerships between all stakeholders from the state to the community; We worked in partnership with Diabetes UK to hold a Diabetes Awareness day in our bid to raise awareness of diabetes to the community. Promoting policy dialogue and mechanisms to develop and sustain health systems and services; Documenting and disseminating Diabetes UK best practices and diabetes information. Health is more than health care. While the Foundation works to strengthen health systems and services, it also promotes initiatives that offer people the knowledge and skills to avoid illness. These measures include educating women and girls and enabling families to adopt appropriate hygiene practices. In addition, the Foundation supports testing and implementation of income-generating strategies that allow households and communities to acquire better nutrition and health status. Increased income enables communities to improve nutritional status, particularly that of women and children, and to build and maintain water and sanitation systems. Appendix 2 Case Study: The Ethnic Diabetes Awareness Day Confederation of Indian Organisation and Diabetes UK Delegates at The Ethnic Diabetes Awareness Day ―I want to thank you (Jenne Dixit) personally on behalf of Confederation of Indian Organisations (UK) for your support. All the speakers from Diabetes UK made an impassioned and most informed presentations on different medical aspects of diabetes at the Ethnic diabetes awareness conference‖ said Health Officer, Dr Harshad Mistri from the CIO (UK). One of the CIO‘s major health projects for South Asian communities is to tackle the underlying causes of diabetes and Coronary Heart Disease. In connection with this, in March this year the CIO organised an Ethnic diabetes awareness day held Camden, London. Jenne Dixit, Roopinder Brar, Cathy Moulton and Phil Casey, all from Diabetes UK, spoke at the event, together with various other speakers A total of 120 delegates attended mainly from the South Asian community, including representatives from Primary Care Trusts, Health agencies, Community Groups, Voluntary Groups and people with diabetes. Jenne Dixit said ―Diabetes UK is always looking to raise awareness about diabetes, particularly within the South Asian communities so we were pleased to work together with the CIO at this event.‖ Appendix 3 – Tips on reaching your target audience 1. Designing materials Make sure that you know what languages your target group speak and read. N.B These may not be the same as some languages have a verbal rather than a written tradition. It may not be enough to provide translated written material – videos or audio tapes may be more appropriate in some cases, for example if your target group has low levels of literacy. When translating materials use everyday rather than overly formal language. Bear in mind that some ideas or phrases may not translate well e.g. hypoglycaemia. You may want to include the community in translating the materials. Or, get translations proof read and checked by someone who speaks the language and understands the culture of your target group, ideally someone with a health promotion background. Make sure materials are culturally appropriate, for example if providing materials on healthy eating, make sure that these are relevant to the diet of your target community. 2. Organising events Involve your target audience to ensure that the event will meet their expectations and that they will enjoy it. Work in partnership with individuals and organisations working with your target groups e.g. community workers, health promoters, community groups. Choose a venue that is acceptable and accessible to your target audience. This may be a community centre, place of worship or even at work. Make sure that people can get to the venue easily. Choose a suitable date and time. Avoid clashing with events that are relevant to your target group and consider timing your event to fit in with these e.g. fasting during Ramadan. Find out what help and resources are available nationally e.g. what other means of support do other organisations/charities provide? Adapt events and materials for your target group for example ‗how to manage your diabetes during religious fasting?‘ Give thought to how you publicise your event. You may want to get leaflets and posters printed in appropriate languages, use local radio or visit community groups to spread the news by word of mouth. Ensure that there are interpreters present if necessary. If food is provided, make sure that this meets the needs of your target group. Can the food be used to support the theme of your event e.g. a healthy lunch? Take into account any cultural sensitivity e.g. will the event be mixed, or would it be more appropriate to run separate event for men and women. 3. Creating effective and accessible services Identify gaps in service provision and consider how your service could meet those gaps. Consult and involve your target group when designing or modifying services to make sure that these services will meet their needs. Understand what the barriers are for people in accessing services and try to find ways round these. Are their practical barriers e.g. transport difficulties or psychological barriers e.g. someone is worried about visiting a leisure centre for the first time? Is there appropriate language support in the form of information, interpreters, link workers etc. for communities where English is not the first language. Be clear on the objectives of your service and how best to achieve these. For example if you are trying to promote healthy eating, you may need to target the whole family, especially the shopper and cook, as well as the individual. Is there a need for services to be offered outside the traditional environment, for example in places of work or within the community e.g. in a places of worship or community pharmacies? Consider teaming up with other service providers (whether health services, voluntary or local authority groups) where appropriate. This could be to offer an integrated ‗one-stop‘ check up to address a number of related health issues at the same time, or to share or access resources for big projects. Consider ways to involve the community in meeting its own health needs e.g. peer education, scheme, or recruit bilingual health workers from your target group. Work with the community to overcome any initial hurdles and build trust. Consider what providing an equitable service actually means. Services for BME groups should be provided as part of mainstream health provision where possible. Can improvements be made to mainstream services to make them more inclusive rather than designing a specialist service? 4. Publicising the service Consider how best to publicise the service. What media do your target audience read and consume? Options could be posters or leaflets in the right languages in the right places, local radio or specialist TV. Word of mouth can often be the best form of publicity. You may want to contact local community, voluntary and statutory organisations to recruit participants. Work with health professionals e.g. local doctors to raise awareness of your service, and refer to people through to it where appropriate. Consider ways to work with the wider community e.g. retailers, leisure centres and other businesses etc to get your message across. Find out who is influential in the community and whether you can involve them e.g. religious leaders, interesting speakers. This may differ for different sections of the community. 5. Evaluation Evaluate your service to ensure it is effectively meeting the needs of its users and to get ideas on how to develop it further. Consider how best to gather feedback. If using questionnaires, will people need help filling these out? If gathering feed back face to face, will people tell you honestly what they think or are they afraid of offending you? When designing services consider what methods of evaluation you will use up front. What measures or indicators might be appropriate and how you will gather data to track these? 6. Sustainability and mainstreaming One of the issues many projects face is ensuring a steady stream of funding and service users can feel very let down if a project needs to close because the funds run out. Make sure that you are aware of all different funding streams are available and how to access these. Successful projects may want to look at ways of becoming part of mainstream service provision. Are there opportunities to offer training to interested participants so that the service can continue or expand? 7. Share learnings Capture any learnings from your own project, share these with the team and be open to sharing them with other service providers. Find out what projects are doing. Talk or visit them to understand how they developed their services, what worked well and what has worked less well.
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