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					A guide to help you run a diabetes
awareness event in your community




A guide to help you run a diabetes awareness event in your community   1
Contents

    1. Summary ‗A guide to help you run a diabetes awareness event in your
       community‘

2      About Diabetes UK

    2.1 Diabetes UK – Mission, Vision and Values
    2.2 Introduction (What is diabetes, Diabetes UK)
    2.3 Working with diverse communities in the UK
    2.4 How Diabetes UK can help you
    2.5 Culturally linguistic information
    2.6 Diabetes UK Careline
    2.7 Diabetes UK membership
    2.8 Diabetes UK local groups
    2.9 Volunteering at Diabetes UK
    3.0 National and Regional Offices

Tool

    4.0 Why Diabetes UK is initiating this project?
    4.1 How to organise your very own diabetes awareness day
    5.0 Agenda
           5.1 How to organise registration
           5.2 The Exhibition
           5.3 Living with Diabetes
           5.4 Demonstrations and activities
    6.0 Venues
           6.1 Venue types
           6.2 Catering
           6.3 Funding and Sponsorship opportunities

Your diabetes awareness day (presentations)

Appendix 1 – Available as separate PowerPoint presentations
   7.0 Understanding Diabetes
   8.0 Diet and Diabetes
   9.0 Evaluation Form
Appendix 2 – Case Studies
Appendix 3 – Tips on reaching your target audience




A guide to help you run a diabetes awareness event in your community         2
Summary

‘A guide to help you run a diabetes awareness event in your community’.

Diabetes UK is embarking on a new project in its aim to meet the needs of people
from diverse communities. (January 2005-December 2007)

Through working with people with diabetes, community organisations and religious
institutions, we have developed a substantial database of contacts with key members,
community facilitators and religious leaders from diverse communities who have
expressed a desire to hold health awareness days for their groups.

To meet the needs Diabetes UK is launching a tool to show community leaders and
Religious leaders how they can raise awareness of diabetes within their community
groups. The launch of the tool will be tailor made into an event to empower the
delegates about diabetes. Our Healthcare Promotion team will hold
presentations about ‘What is diabetes’, Type 1 and Type 2, signs and symptoms
and managing diabetes’. This will allow the delegates to learn and take away the
information and spiral the messages into their communities in a language, tone
and culture that is culturally appropriate (with the aid of the tool).

There is a need for this project simply because people from diverse and black and
minority ethnic people are at increased risk, relative to the white population, of
diabetes, related conditions, and other diseases. What is most alarming however is
that awareness of diabetes and its long-term complications are low.
Numerous studies have highlighted the problems that many people from black and
minority ethnic communities have experienced in accessing, using, and shaping
services. The problem areas that receive most attention in the literature concern
information - regarding the nature of need, lifestyle issues, and services available -
and communication with professionals and other service personnel. These problems
are particularly acute for people whose first language is not English and who do not
have English as a second language. A symptomatic problem concerns the common
practice of children acting as interpreters for their parents or other relatives.
Additional problems are associated with the cultural insensitivity of services in terms
of specific needs around religious and cultural observance.




A guide to help you run a diabetes awareness event in your community                      3
1.1 Introduction

What is diabetes?

Diabetes mellitus is a condition in which the amount of glucose (sugar) in the blood is
too high because the body cannot use it properly. Glucose comes from the digestion
of starchy foods such as bread, rice, potatoes, chapattis, yams and plantain, from sugar
and other sweet foods, and from the liver, which makes glucose.

Insulin is vital for life. It is a hormone produced by the pancreas, that helps the
glucose to enter the cells, where it is used as fuel by the body.

The main symptoms of untreated diabetes are increased thirst, going to the loo all the
time – especially at night, extreme tiredness, weight loss, genital itching or regular
episodes of thrush, and blurred vision.

Type 1 develops if the body is unable to produce any insulin. This type of diabetes
usually appears before the age of 40. It is treated by insulin injections and diet.

Type 2 diabetes develops when the body can still make some insulin, but not enough,
or when the insulin that is produced does not work properly (known as insulin
resistance). This type of diabetes usually appears in people over the age of 40, though
it often appears before the age of 25 in South Asian and Black African Caribbean
people. It is treated by diet and exercise alone or by diet and tablets or sometimes, by
diet and insulin injections.

The main aim of treatment of both types of diabetes is to achieve near normal blood
glucose and blood pressure levels. This, together with a healthy lifestyle, will help to
improve the wellbeing and protect against long-term damage to the eyes, kidneys,
nerves, heart and major arteries.




A guide to help you run a diabetes awareness event in your community                     4
2. Diabetes UK

Mission, Vision and Values

Our Mission is:

      To improve the lives of people with diabetes and to work towards a future
       without diabetes.

Our Vision is:

      To set people free from the restriction of diabetes
      The highest quality care and information for all
      An end to discrimination and ignorance
      Universal understanding of diabetes and of Diabetes UK
      A world without diabetes

Our Values are:

      To put interests of people with diabetes first
      To be the best source of information on diabetes
      To work in partnership with all those affected by diabetes
      To help people help themselves
      To be open, ethical, honest and accountable
      To recognise and respect the value and diversity of all
      To appreciate the skills, expertise and commitment of our staff and volunteers




A guide to help you run a diabetes awareness event in your community                5
Diabetes UK

Diabetes UK, formerly known as the British Diabetic Association is one of Europe‘s
largest patient organisations. Our mission is to improve the lives of people with
diabetes and to work towards a future without diabetes through care, research and
campaigning.

Diabetes is a serious and dangerous condition and is one of the leading causes of
chronic ill health, disability, and shortens life. Around 1.8 million people in the UK
today are diagnosed with diabetes, with at least a million more – ‗the missing million‘
– thought to have diabetes but do not know it yet. The number of people with
diabetes is escalating both in the UK and worldwide. Diabetes is more prevalent
among South Asian, Chinese and Black African-Caribbean origin living in the UK
than amongst the white population, with rates up to six times higher in South Asian
communities and three-five times higher in Black African-Caribbean communities.

Working with diverse communities in the UK

One of our key goals is to meet the needs of diverse communities where diabetes is
increasing at an alarming rate. We recognise that those who experience particular
difficulties or face real inequalities in accessing services, require appropriate
information, which may require different communication and dissemination routes.

Diabetes UK is committed to increasing the awareness of diabetes and Diabetes UK
amongst black and minority ethnic communities (BME). We are doing this through
providing and promoting greater culturally and linguistically appropriate information
and through co-operation and partnership with local and national organisations.

Our objectives to meeting the needs of diverse communities are as follows;

      Increase awareness of diabetes and Diabetes UK through greater community
       based activities across diverse communities.
      Improve cultural competence within the organisation through training and
       employment policies.
      Increase involvement of BME through all our work.
      Provide and promote more culturally specific information for these groups at
       increased risk of having diabetes.
      Bring about greater partnerships with relevant community organisations.


One of the projects Diabetes UK is initiating in 2005-2007 is to launch a toolkit which
aims to help community and religious leaders to organise their own diabetes
awareness days.
The tool ‗A guide to how to run a diabetes awareness event in your community‘ will
aim to provide enough information and resources to allow you to set up a ‗diabetes
day‘ helping to inform and educate your community in a language, format and
environment that is most appropriate.




A guide to help you run a diabetes awareness event in your community                    6
How Diabetes UK can help you

Diabetes UK is the largest organisation in the UK that is dedicated to helping people
with diabetes, their carers, families and friends.

We also raise money for research in to diabetes and work with the media and the
government to help ensure the best care and the best quality of life for people with
diabetes.

One of the main purposes of Diabetes UK is to help you get to grips with your
diabetes. We provide quality, reliable information to support your need to help you
lead a fuller, healthier life. The information is available in easy-to-understand fact
sheets in English, five main South Asian languages and Chinese to help you manage
your diabetes, and plays an active role in diabetes care.



Culturally linguistic information


Diabetes UK has general information publications in five main South Asian languages
and Chinese that are free.

Product                                               Title             Notes
Codes
8024c Chinese       8024g Gujarati   8024u Urdu       Are you at        Available in all
                                                      risk?             languages and
8024b Bengali       8024h Hindi      8040p Punjabi                      on (www)

8040 English
9407 English        9409 Gujarati    9411 Hindi       Do you have       Available in all
                                                      diabetes          languages and
9408 Bengali        9410 Urdu        9412 Punjabi                       on (www)

9413 Chinese
7084 Bengali        7087 Hindi                        What diabetes     Available in all
                                                      care to expect?   languages on
7085 Gujarati       7088 Punjabi                                        tape

7086 Urdu
                                                      Understanding     Available in all
                                                      and Managing      South Asian
Contact Jenne                                         diabetes within   languages and
Dixit at Diabetes                                     the South         English. Video
UK
                                                      Asian             and DVD
                                                      community
9500 English        9503 Urdu        9505 Punjabi     What is           Fact sheet
                                                      diabetes?         information in


A guide to help you run a diabetes awareness event in your community                     7
9501 Bengali    9504 Hindi       9506 Chinese                      all languages.
                                                                   (www)
9502 Gujarati
9507 English    9510 Urdu        9512 Punjabi     How can          Fact sheet
                                                  Diabetes UK      information in
9508 Bengali    9511 Hindi       9513 Chinese     help you?        all languages.
                                                                   (www)
9509 Gujarati
9514 English    9517 Urdu        9519 Punjabi     Hypoglycaemia Fact sheet
                                                                information in
9515 Bengali    9518 Hindi       9520 Chinese     What is a     all languages.
                                                  hypo?         (www)
9516 Gujarati
9521 English    9524 Urdu        9526 Punjabi     Managing         Fact sheet
                                                  diabetes         information in
9522 Bengali    9525 Hindi       9527 Chinese                      all languages.
                                                                   (www)
9523 Gujarati
9528 English    9531 Urdu        9533 Punjabi     Healthy          Fact sheet
                                                  Lifestyle,       information in
9529 Bengali    9532 Hindi       9534 Chinese     fasting and      all languages.
                                                  diabetes         (www)
9530 Gujarati
9535 English    9538 Urdu        9540 Punjabi     Diabetic         Fact sheet
                                                  Complications    information in
9536 Bengali    9539 Hindi       9541 Chinese                      all languages.
                                                                   (www)
9537 Gujarati

9561 English    9564 Urdu        9566 Punjabi     Nerve damages    Fact sheet
                                                  and diabetes     information in
9562 Bengali    9565 Hindi       9567 Chinese                      all languages.
                                                                   (www)
9563 Gujarati
9542 English    9545 Urdu        9547 Punjabi     CVD and          Fact sheet
                                                  Kidney disease   information in
9543 Bengali    9546 Hindi       9548 Chinese                      all languages.
                                                                   (www)
9544 Gujarati
                                                  Tablets and      Fact sheet
                                                  Insulin          information in
                                                                   all languages.
                                                                   (www)
9556 English    9559 Urdu                         Ramadan and      Fact sheet
                                                  Diabetes         information in
9557 Bengali    9560 Punjabi                                       all languages.
                                                                   (www)
9558 Gujarati
                                                  Pregnancy and    Fact sheet



A guide to help you run a diabetes awareness event in your community                8
                                                    Diabetes          information in
                                                                      all languages.



Please call the Diabetes UK Careline on the number below and use the product codes
to order the free information sheets. We also have audiotapes ‘What diabetes care to
expect’ in the South Asian and Chinese language.

Diabetes UK Careline

Diabetes UK has a dedicated diabetes help line with trained counsellors who can talk
to you about any aspect of diabetes. Diabetes UK Careline can also provide translators
for people who want to communicate in languages other than English.
Diabetes UK Careline 10 Parkway London NW1 7AA
Telephone 0845 120 2960 (charged at local rate) (translation service is available)
Text phone 020 7424 1031 (for people with a hearing impairment)
Email info@diabetes.org.uk
Open Monday to Friday 9am to 5pm

Diabetes UK’s website

Our comprehensive and easy to use website offers the latest news and information.
Some of the information can be downloaded in relevant languages. Visit:
www.diabetes.org.uk

Diabetes UK membership

Membership brings you a bi-monthly magazine Balance, in English, packed with
news, views on how to make living with diabetes easier for you.
If you would like to find out more about supporting Diabetes UK or how being a
member of Diabetes UK can help you, please call our Customer Services on 020 7424
1010 Monday-Friday 9am-5pm or email customerservice@diabetes.org.uk.

Diabetes UK local groups

Diabetes UK has over 400 voluntary groups throughout the UK where people with
diabetes can find support and friendship. Most groups are open to anyone who has
diabetes.
Some groups are for young people, parents of children with diabetes, South Asian
people, and people with a visual impairment.

Volunteering at Diabetes UK


Volunteers are at the heart of Diabetes UK. There are lots of opportunities for
volunteers to get involved from fundraising to campaigning as part of Diabetes
Campaigning Networks, helping to support events fro children and adults or taking
part in Diabetes UK network of voluntary groups. There are around 400 groups
around the country, all run by volunteers, providing support to people living with
diabetes. There are some specific groups for BME communities.


A guide to help you run a diabetes awareness event in your community                   9
If you would like to have details about how you can become a Diabetes UK volunteer
please contact Martin Harris or Angela Style Head of Voluntary Groups on 020 7424
1000 or email martin.harris@diabetes.org.uk or angela.style@diabetes.org.uk
National and Regional offices

Diabetes UK has a network of national and regional offices. The offices are all active
in many ways, including fundraising, running diabetes training programmes,
developing relationships with local decision makers, influencing diabetes care
provision and raising awareness of diabetes. They also organise conferences for
healthcare professionals and people with diabetes in the locality. The offices in
Scotland, Wales and Northern Ireland also have the task of addressing devolution and
influencing diabetes care provision within the differing health service structures.




A guide to help you run a diabetes awareness event in your community                10
Why Diabetes UK is initiating this project?

This guide has been produced to help you run a diabetes awareness event in your
communities. It will give you step-by-step guidance on everything you need to know
about organising a diabetes event.
The awareness day can be organised to cater for groups;

       High at risk of developing diabetes – (this group includes those over the age
        of 25 from South Asian or Black African Caribbean background or people
        that have a family history of diabetes)
       People with diabetes, carers, friends and family.
       Anyone showing a keen interest in diabetes.

How to organise your very own diabetes awareness day

Forward planning

Forward planning is best when organising events for your community. You will need
to have a plan of who the invitees are; (see above) and ensure that you promote the
event appropriately. Some of the communication channels can be by;

       Mail – writing to community members
       Informing about the event in community Newsletters or mailing
       Posters or leaflets on notice boards.
       Word-of-mouth
       You could also try and contact local radio stations or newspapers to help you
        promote your event.
       Local groceries and shops are key in helping you to promote the event. Ask
        local traders whether they would pin up posters promoting your event?

It is even better if you can use your community or religious organisation as a
marketing and communication channel to get the message out to the people that you
will be holding a diabetes awareness day. Remember it is always best to send out
invitations, flyers about the event well in advance to your community members to
give them plenty notice.

Involving people from the community in the planning serves as an effective and
accepted way of relaying the information to the community. Potential delegates will
feel a lot more comfortable with this approach.

As you may find religious festivals and community functions are a great way to
include diabetes awareness as a part of the agenda. You may find that there is only
room for you to hold a diabetes information stand. This is sufficient enough to
disseminate diabetes leaflets to community members to raise awareness of diabetes.




A guide to help you run a diabetes awareness event in your community                  11
Contact Diabetes UK to provide you with the resources you will need for the
awareness day. This will consist of raising awareness tools such as leaflets and
posters.
The diabetes presentation (Understanding and managing diabetes) is included in the
guide, which you may want to make copies and hand out to delegates. Should you
have the equipment where you may require to have the presentation on acetates (for
an overhead projector) or wish to deliver the presentation on power point; contact
Diabetes UK and we can email the presentation to you.

The presentation(s) itself has a step-by-step guide of how to deliver diabetes
awareness to your community members. You do not need to have a clinical or
nursing background to deliver the diabetes awareness day. Should your audiences ask
for medical advice you must advise them to contact their GP or alternatively to
contact Diabetes UK language line where they will be able to speak to a counsellor in
a preferred language.

It is important to involve local diabetes care teams and healthcare professionals
providing diabetes care in your day. Diabetes care will be provided by a number of
different organisations within your local area. Each Primary Care Trust has a diabetes
lead and diabetes champion (Healthcare Professional) responsible for planning
diabetes services. Many general practices will run diabetes clinics involving GPs and
practice nurses and your local hospital (or in some case hospitals) will have a diabetes
consultant(s), diabetes specialist nurses and support staff to provide specialist diabetes
expertise and support. This may be provided in the hospital or in the community.

This will allow great weight to your awareness day and members of the community
will be able have some questions answered that they may have put off asking their GP
for culturally or language barrier reasons.

Please ensure that you give the Diabetes Specialist Nurse (DSN) or Practice Nurse
(PN) enough notice so they can book it into their diaries. If you cannot locate
someone to attend your diabetes workshop you can call Diabetes UK and we may be
able to find contact details for you.

This guide has a sample copy of the agenda, which you may want to follow to help
prioritise your event. This is a guideline but you may find that your community
would prefer to have something informal. You can be as creative as you like.
The sample copy of the agenda shows that the event will span throughout the whole
day. But this may not be the case for your community. You may find that you may
want to have the awareness raising exercise for half the day or possibly for over the
weekend (Saturday and Sunday). If holding an event is not possible, there are other
ways to empower community members about diabetes. Some of the ideas are;
     Manning an exhibition stand to hand out diabetes information during a busy
         religious occasion.
     If your religious institution or Community organisation sends out information
         to your members via post, you could slot in diabetes information for people to
         read in the privacy of their own home.
     If your organisation publishes a newsletter for your community, you could lift
         some diabetes information from the fact sheets to educate community
         members about understanding and managing diabetes.


A guide to help you run a diabetes awareness event in your community                   12
      Organising for a key person to talk about diabetes during congregation.
      To ensure that meeting rooms or staff rooms have plenty of leaflets to
       distribute to community members

Organising an ‗awareness day‘ can be an ideal platform to encourage discussions, get
people to ask questions etc in a learning environment, it is important to disseminate
diabetes leaflets, audiotapes and videos as these tools will compliment your awareness
day and will allow people to read about the condition in the privacy of their own
homes with friends and family.


What do people want to learn about in ‘awareness days’?

In August 2003, Research Plus produced a report looking at ‗Living with diabetes
days‘. Working with focus groups comprised of people with diabetes, carers, parents,
they came up with the key points outlined below:

Diet – Topics to consider covering: What is a healthy diet? Contemporary issues such
as convenience foods, food labelling, eating out, snacking/dieting – how to maintain
and loose weight?

Exercise – The report concludes that this was mainly for older patients who need
guidance and suggestions for exercise. However it does mention that it is relevant for
young people too.

Complications and specifics – ―A clear and honest presentation of the
complications‖. Those in the focus group would like this information to be presented
by experts and to cover symptoms, treatments and consequences. This was
particularly a concern for older Type 2s and adult Type 1s.

Motivation – Awareness days were seen as important events in terms of empowering
people with diabetes/carers/those at risk. As the research stated;
     People ‗also wanted to feel they were being motivated
     Inspired
     Told about what they can do
     Informed about the latest
     Kept up to date




A guide to help you run a diabetes awareness event in your community                13
Agenda (Programme content)

This guide has a guideline of the agenda for the day. Please bear in mind that this is
just a skeleton and you can be advised by your local Primary Care Trust or
community members on how you would like the day to be received.

How you use this programme will depend on your target audience, the venue, local
needs and the availability of speakers. The template should serve as a helpful outline
for your day and times can be changed to include longer sessions, longer breaks or
additional topics.

Remember sessions can be tailored to meet specific needs to make them appear more
relevant to everyday life. You may want to do some research and find out what it is
that your community members want to know and learn about. The aim of the guide is
to give you an idea of how to use diabetes information to empower community
members. Use the presentation in the Toolkit to help guide your awareness day.

You may also wish to include activities and demonstrations, whether it is within the
main sessions of workshops as an effective way of increasing interaction. Ask your
local healthcare professional or Nurse for some ideas.

      Long lectures may not be a good idea – it is important to keep people engaged
       and enthused.
      Do not finish the day too late or start too early.

                                Diabetes Awareness Day

11.00-11.25       Registration and Exhibition                   You could utilise this
                                                                time to layout Diabetes
                                                                UK information, audio
                                                                tapes and Videos

11.30-11.40       Welcome                                       Community leader or
                                                                Imam can deliver the
                                                                welcome

11.40-12.00       Introduction – What the day is about?

12.00-12.10       Living with diabetes                          Do you have a person in
                                                                the community who has
                                                                diabetes and is willing to
                                                                share his/her experience
                                                                of the condition?

12.10-12.30       Introduction to Diabetes                      Can invite a DSN or GP
                  Understanding diabetes                        to come in to deliver the
                                                                introduction

12.30-13.30       Workshop
                         Food and Diabetes                     Contact Local PCT to



A guide to help you run a diabetes awareness event in your community                   14
                                                                 invite dietician

13.30-14.30       Healthy Lunch       Lunch could consist of
                                      traditional foods cooked
14.30 -15.30      Workshop            the healthy option

                      Living with Diabetes                      GP or Nurse
                  Control and Monitoring/importance of
                  physical activity

15.30-15.40       Completing Evaluation Forms
                                                          To help monitor your
16.00             Close                                   event, please send
                                                          completed evaluation
                                                          forms to Diabetes UK,
                                                          10 Parkway, NW1 7AA
                                                          FAO Jenne Dixit

6. How to organise Registration

Registration is really important for the organisation of your day and yet it is one thing
that is actively overlooked.

Registration is simply a checklist or making a note of those attending the event. You
could set up a registration table near the entrance so as delegates start to arrive you
can either cross them off or add them to the list. The list can look like (see below)

Name             Address             Contact          Email address
                                     Number
Jenne Dixit      10 Parkway,         020 7424         jenne.dixit@diabetes.org.uk
                 London NW1          1110
                 7AA
Mrs Patel        Asian Women‘s       01162 300        ashapatel@hotmail.com
                 Advisory            6000
                 Council
Narayan          Swaminaryan         01922 654        swaminaryaninfo@btinternet.com
Kumar            Temple,             456
                 West Midlands


It is useful to have these contacts registered for building your database or to use for
future correspondence or to invite to other events you may organise. Registration is
also key for the evaluation of the event to observe how many people attended the
event. If you want to go a step further you could have a comments diary at the
registration desk and ask people to fill in their analysis and opinions of the event on
their way out. This is also seen as a kind gesture showing that we are interested in
hearing other people‘s views.




A guide to help you run a diabetes awareness event in your community                      15
The Exhibition

The exhibition is an area where diabetes leaflets; fact sheets, tapes and audiotapes can
be displayed to raise awareness of diabetes information available.

The exhibition area can either be set up at the entrance so delegates can stop and pick
up information on their way into the main hall where the event is being held. Or,
within the hall itself there can be a cut of area where diabetes information can be
displayed.
You will need a table; a chair and a volunteer to man the exhibition stand to greet
delegates who approach the stall. It is important to have a person to man the stand at
all times to ensure that people are greeted and given the right information that is asked
for.

What types of information to be included on the exhibition stand can be selected from
the list of diabetes information Diabetes UK produce found on page 7. If you would
like to see what other type of information Diabetes UK produces please see
www.diabetes.org.uk/catalogue/ or call 020 7424 1000.

You can check stock availability and order immediately by calling on 0800 585 088.
We will endeavour to deliver your order within seven working days, but please allow
up to 28 days for delivery. If you need your order urgently, please write on your
order from and we will try to meet your deadline.

Welcome Speech

A community/religious leader or a well known respected member of the community
can make the welcome speech. The speech should be no longer than 10-15 minutes
encompassing the following points;

      A big thank you for attending and the importance of having an event such as
       today

      What to expect from the day

This is where you can briefly outline the topics of sessions. If you have a speaker
(Healthcare Professional) you could introduce and their input to the day.

It would be a good opportunity to talk about why it is so important to raise awareness
about diabetes and highlight the prevalence of diabetes amongst black and minority
ethnic communities living in the UK.




A guide to help you run a diabetes awareness event in your community                  16
An example of this is;
Diabetes affects an estimated 1.8 million people in the UK with possibly another one
million people still undiagnosed – called the ‘missing million’ – the figure is rising.

People from black and minority ethnic communities are particularly at risk. Type 2
Diabetes is up to six times more common in people of South Asian decent, compared
with the white population. Research has shown that awareness of diabetes and its
long-term complications are alarmingly low. Whether you have diabetes or whether
you are high at risk, today’s event will help to raise your awareness and
understanding.

Anyone can get diabetes, however the risk increases with age. Type 2 diabetes is most
commonly diagnosed in adults over the age of 40, although increasingly it is
appearing in young people and adults. Symptoms include; tiredness, increased thirst,
going to the loo a lot especially at night, weight loss, blurred vision and genital
itching. People who are obese, physically inactive or have a family history of
diabetes are at increased risk of developing diabetes.

You may find that the above is a lot more detail for your comfort. If you feel
uncomfortable talking about the above, ask a Healthcare Professional to talk about
diabetes and the prevalence of diabetes amongst black and minority ethnic
communities.

It is also important to discuss the below briefly:

      House safety, house rules & regulations, fire exits etc
      Allocation times for breaks and lunch
      A quick emphasis to fill out the evaluation forms upon exit


Living with diabetes

This session could be made interesting if you have someone in the community who
has diabetes and is willing to share his/her experience of living with the condition
with the rest of the community. This would certainly provoke interest and give others
confidence to share their own experiences.

You could ask your speaker to talk about the following?

      How long they have had diabetes?
      What it felt like when they were first diagnosed?
      How they manage their diabetes?
      What services are available for them to access?
      Whether they have joined a support group to have more help understanding
       their condition or how they keep up to date with what help is available for
       them?



A guide to help you run a diabetes awareness event in your community                 17
Demonstrations and activities

One way to make these events less formal and create a relaxed atmosphere is to
introduce activities and demonstrations.

Food and Exercise is very important in the management of diabetes so it would be
useful to provide some interactive sessions on either of the two. You could organise
for a chef or a local supermarket to get involved in cooking demonstrations using
healthy recipes and foods.

Alternatively exercise demonstrations could be held in the main meeting room, as part
of a workshop or as a demonstration in the exhibition area. This could create an
opportunity to bring in local companies fitness organisations – local gyms could use
the day to promote their services and offer-discounted membership.

Physical activity is extremely important as part of a healthy lifestyle. It:

          helps you feel good about yourself (afterwards, if not during)

         improves your sensitivity to insulin and helps improve blood glucose
       levels

          improves the fitness of your heart and circulation and so reduces the
       risk of heart disease and stroke

          helps you to control weight

          can improve the proportions of the good and bad types of cholesterol

         helps you to lose fat and gain muscle — this helps to improve
       strength, mobility and flexibility

          can help reduce blood pressure

          can reduce stress.

You may want to investigate using traditional music and dance to encourage the older
people to get involved. These could be tailored to reflect the diversity in the cultures
for example having Garba (for the Gujarati community) or Bhangra (for Punjabi
community).

There are other ways of keeping fit that you may want to highlight to your community
members - these are:
     Gardening
     Easy arm chair exercises
     Housework
     Walking
     Getting of the bus one stop early and walking the rest of the way home


A guide to help you run a diabetes awareness event in your community                  18
       Walking to pick grandchildren up from school

By providing demonstrations and activities, not only do they add a practical element
to the day but it also creates a fun filled interactive environment.


Evaluation Form

There is an attached Evaluation form in Appendix (1) It is important to monitor and
evaluate the event to see whether the day has been successful, to see whether the
messages have met the needs of your community, what other information we could
have provided and to also find out how the day could have been performed better.
We encourage for your community members to fill in the evaluation forms, for those
that find difficultly in reading and writing English – help of an interpreter must be
offered.

The completed forms should be sent to Jenne Dixit Equality and Diversity Advisor
Diabetes UK 10 Parkway London NW1 7AA.


Venues

Your choice of venue will be affected by a number of factors. Should you have
access to use your community organisation or place of worship, you may need to
think about the Gender sensitivities. For example, should you hold the awareness day
in an orthodox Mosque, you may need to book two rooms so to have men in one room
and the women in the other.

Other things to think about are ensuring the venue has full disabled access and health
and safety. Points to looks out for when booking a venue:
    Disabled access

       Cheaper venues tend to be schools, local hospitals and community centres. If
        your event is held over the weekend, you may be able to negotiate a reduced
        rate.
       You could also contact your local Primary Care Trust (PCT‘s) and look at the
        feasibility of hiring one of their rooms.             Is there disabled access to all the
                                                                meeting rooms?
                                                                How far is the distance between the
                                                                meeting room and the disabled toilets?
                                                                Does the venue have reserved disable
Venue types                                                     parking?

As well as these logistical considerations, the choice of venue can be extremely
important to the feel and outcome of your event. Both the Living with Days Report
2004 and the focus groups commented on the importance of the venue as a way of
creating a relaxed, casual atmosphere with participants favouring, ―easily accessible
mainstream‖ and ―local and accessible‖ venues.

Consider venues in more familiar settings such as community centres and town centre
venues. Those who do not usually attend conferences will find these more attractive
and navigating the venue easier on the day. In addition, if your exhibition is to be free


A guide to help you run a diabetes awareness event in your community                    19
all day for people to wander around it‘s best to have a venue where people feel they
could drop in.

For help with finding a venue contact venue finding agencies, and also contact the
local tourist office that are likely to high a convention bureau that will have
information on all local venues.

Catering

These guidelines offer general information for when you are holding your event and
what types of food to provide:

      All foods are suitable for people with diabetes – it is about providing a choice
       that is important. Always make sure there are different options available.
      Menus should be low in fat and salt with no added sugar. Cutting down on fat
       is really important, particularly saturated fat as it is linked with heart disease.
       Try to have less of fried and fatty foods such as butter, margarine, fatty meats
       and cheese.
      Avoid fried finger foods like gatya, chevdo, samosa‘s or onion bhajia and
       sandwiches full of mayonnaise. Choose low fat dairy products.
      Ensure sufficient carbohydrates are available: chappatis, rotis, potatoes, bread,
       rice, pasta.
      Whenever possible high fibre varieties such as wholemeal roti, chapatti, bread,
       wholegrain cereals and lentils and beans should be eaten.
      Ensure snacks are available at breaks times – people with diabetes are
       encouraged to spread their food intake evenly throughout the day so snacking
       mid morning and mind afternoon is likely to be part of their eating plan.
       Suitable snacks are fruit (fresh or dried) or plain biscuits (garibaldi, rich tea,
       ginger nuts, digestives, hob knobs.)

      Do not request ‗diabetic‘ foods, they offer no benefit to people with diabetes.
      Drinks: it is important to always have water available at all times.
      Make sure you have some emergency foods on hand such as sugary sweets or
       biscuits.
      Ensure there are plenty of fruit and vegetables – at least five portions a day.
       Eating more fruit and vegetables protects against cancer and heart disease and
       also helps to balance the overall diet.




A guide to help you run a diabetes awareness event in your community                    20
Adapting recipes
Modifying menus for people with diabetes does not necessarily mean starting from
scratch. Instead you can adapt your existing menus and offer lower fat, lower sugar
choices alongside menu options that you normally include.

Breakfast
Include the following in the choices available:

   High fibre cereals such as Bran flakes, Fruit and Fibre, no added sugar muesli,
    Shredded Wheat, Weetabix, porridge.
   Low fat spread or polyunsaturated/monounsaturated margarine as well as butter.
   Semi-skimmed/skimmed milk as well as full cream milk.
   Unsweetened fruit juice.
   Fruit, e.g. grapefruit in natural juice and not syrup.
   Reduced sugar jam/marmalade or pure fruit spreads as well as ordinary versions
    (not ‗diabetic‘ jams).
   Artificial sweeteners, e.g. Canderel or Sweetex as well as sugar for tea and coffee.
    Granulated artificial sweeteners can be used for cereals and for use in recipes, e.g.
    Canderel Spoonful.
   A selection of wholemeal and granary breads or rolls as well as white.
   If cooked breakfasts are planned, food should be grilled not fried where possible.

Main meals
Have plenty of starchy carbohydrate foods available. If possible let the person with
diabetes help themselves as they will know how much they can have (buffets are often
a good idea to allow this).

Have a variety of dishes from which people can choose.

   People with diabetes need meals based on carbohydrates, such as potatoes, pasta
    or rice.
   Try to provide low fat/low calorie options, e.g. new potatoes as well as fried.
   Provide extra vegetables and salad.
   Serve butter, mayonnaise or dressings separately so that people can choose
    whether to have it or not.
   Provide vegetarian options.
   Serve cream and rich sauces separately so that people can choose whether to add it
    or not.
   Provide low sugar desserts, ice cream, fresh fruit or low fat yogurts as an
    alternative choice to ordinary.
   Water should be available on the table.

Snacks

People with diabetes are encouraged to spread their food intake evenly throughout the
day for good blood glucose control and snacks mid morning, mid afternoon and
bedtime may be part of their eating plan.


A guide to help you run a diabetes awareness event in your community                   21
Suitable snacks are;

   Fruit – fresh or dried.
   Plain biscuits, e.g. garibaldi, rich tea, ginger nuts, digestives, hob nobs.
   Bread or toast, fatless sponges, muffins, crumpets, tea breads, plain or fruit cakes
    and cereals.
   Low fat yogurt.

Drinks
It is important that a selection of sugar-free drinks and mixers, such as diet cola and
slim line tonic, are available. You will use more of these sugar-free drinks than you
would usually.




A guide to help you run a diabetes awareness event in your community                      22
Sponsorship

The possibilities for sponsorship are wide ranging. You may be able to find a
corporate company to sponsor the event, local health organisations such as Primary
Care Trusts (PCTs) or alternative sources such as supermarkets, fitness clubs, or other
retailers. For example the involvement of a supermarket could result in free marketing
through the distribution of leaflets in stores and notices on mailed circulars, while the
supermarket could display healthy eating products through cooking demonstrations on
the day.

Funding

Diabetes UK Diabetes Support Project

For those that want to organise diabetes awareness days but do not have the funds for;
for example; marketing, sourcing venues or catering requirements, you can apply for
funding through the Diabetes UK Diabetes Support Project 2005 Gareth‘s Fund.
Please note, that there is an application process to go through and you will need to be
eligible to apply.

What is the Diabetes Support Project?

In order to meet local education and support needs, some Diabetes UK Voluntary
Groups and healthcare professionals in diabetes clinics and primary care trusts, run
educational/support events. These range from weekly sessions, day-long events, to
weekends and in some cases, week long events. Evaluations show that adults,
children and families welcome the opportunity to learn more about diabetes
management through sharing experience at residential events with a group of peers
supported by appropriately qualified health care staff.

The Diabetes UK Diabetes Support Project is available to groups and healthcare
professionals, who are planning educational events for adults or children aged 18
years or under and/or to families of young people with diabetes (such as at family
events.)

This year the funding is kindly supported by Lilly and renamed Gareth‘s fund. Gareth
is a boy with diabetes who lives in the North East of England and applications are
particularly welcome from this area.

Education

Support is only available to healthcare professionals and groups who can demonstrate,
in their application, that the primary objective is to improve diabetes education.
Project

This is a national project. Applications are welcome from all Diabetes UK regional
and national offices, Voluntary Groups and healthcare professionals, working with
children or adults. The objective of the project is to increase the number of quality
education events available to all people with diabetes in the UK, particularly the
recently diagnosed. The project runs alongside and complements Diabetes UK‘s
centrally administered support holidays and adult and family support weekends.

Diabetes UK Diabetes Support Project – What DSP can provide

Funding: DSP applicants can apply for financial support for events. This funding
will meet 75% (to an upper limit of £3000) of total gross costs of each separate DSP
event.

Guidance: DSP written guidance covers relevant areas of current good practice with
regard to safety and protection of children and staff away from home. In addition to
these vital issues, the guidance also provides information on matters such as staff
ratios and recruitment, venue selection and insurance.

Advice: Our guidance cannot cover all issues. However, DSP applicants can access
advice through the Care Support Team at Diabetes UK. We can usually supply an
answer to any questions you may have. If not, we can usually identify somebody who
can.

Diabetes UK Diabetes Support Project – What we Require From DSP applicants

Application Details – The DSP application form, requires the event organiser to
provide information on the planned event, such as venue, dates, numbers of people to
be involved and the ratios of staff to children, where appropriate.

Criminal Records Bureau – It is the responsibility of the organizer to ensure all staff
that will work with children have been cleared (in the year of the event) by the CRB.
The original disclosure must be seen and a copy retained by the event organizer.

Agreement to work to Guidance – In order to ensure that there are consistent
standards of care across DSP supported events, we will require each DSP organiser to
undertake to work in line with guidance provided by Diabetes UK.

Details of people with diabetes – In order to monitor uptake on DSP events, we will
require a limited number of details about each adult or child attending your event
(name and date of birth). This information will be treated in accordance with Data
Protection legislation.

Feedback and Evaluation of Events – In order to evaluate across all Diabetes UK
events and supported events, we will require feedback from the organiser on the event
in a report format. We do not require individual evaluation forms, which are yours to
keep and use for future event planning.
If you would like to discuss the Diabetes UK Diabetes Support Project or would like
more information and an application form - please contact Diabetes UK Care Support
Team

By Phone : - 020 7424 1000

By email: -   info@diabetes.org.uk

By Post : -   Care Support Team
              Diabetes UK
              10 Parkway
              London NW1 7AA
Appendix 1
            SAMPLE EVALUATION FORM
                                  Diabetes Awareness Event
 Please help us to evaluate your diabetes awareness day by filling out this questionnaire.
 This information will be used internally by the Diabetes UK Equality and Diversity Advisor in order to
 meet your needs more effectively.

 1.How did you hear about the diabetes awareness event?
 Diabetes clinic                                                                  Community
                                                                                  Organisation
 General practice
 Local press (please specify)
 Other


                     PLEASE CIRCLE THE ANSWER OF YOUR CHOICE

 2.How well do you think the diabetes awareness event was organised?

 1 Excellent             2 Very Good             3 Good         4 Satisfactory           5 Poor           6 Unsatisfactory

 3.Did the awareness day cover everything you needed to know about diabetes
 and Diabetes UK?

 1 Excellent             2 Very Good             3 Good         4 Satisfactory           5 Poor           6 Unsatisfactory

 4.Do you feel you understand the condition diabetes a bit better?

         Yes
         No

 5.Do you feel you understand what services Diabetes UK offer?

         Yes
         No

  Was there anything about the day that was not                                   Covered?

 Please give reasons for your answer?-----------------------------------------------------------
 -----------------------------------------------------------------------------------------------------------------
 -----------------------------------------------------------------------------------------------------------------
 -----------------------------------------------------------------------------------------------------------------
 -----------------------------------------------------------------------------------------------------------------
                      Resources for your diabetes event
Did you find the information leaflets         1      2      3      4         5   6
useful?
Did you find the language materials useful?

        Yes
        No



Information delivered on the day?

How well did you understand                    1     2      3      4         5   6
Introduction to Diabetes: Type 1 & Type 2
Please comment:



Food & Diabetes                                1     2      3      4         5   6
Control and Monitoring                         1     2      3      4         5   6

Please comment on clarity of information:




                            GENERAL QUESTIONS
What were your aims for attending the launch of the day?


Did we meet your needs?


Would you attend another day focused on diabetes and Diabetes UK?




The event                                      1     2      3      4         5   6
Please state which 2 aspects of the day you found the most interesting and
useful?
1.

2.
                                   ABOUT YOU

Do you have diabetes?                               YES        NO
Are you Type 1 or Type 2?                           ______________________

How long have you had diabetes?                     ______________________
How old are you?
25yrs/under [ ]      26 – 35yrs [ ]         36 – 45yrs [ ]          46 – 55yrs [ ]

56 – 65yrs [ ]       66yrs/over [ ]
Have you worked with Diabetes UK in the past and if so how?



 THANK YOU FOR TAKING THE TIME TO COMPLETE THIS EVALUATION FORM
            PLEASE RETURN YOUR COMPLETED EVALUATION FORM


Jenne Dixit Equality and Diversity Advisor Macleod House, 10 Parkway, London NW1 7AA
                          Email: jenne.dixit@diabetes.org.uk
The goal of the Foundation's health programme is to achieve sustainable
improvements in health status among vulnerable groups, especially the geographically
remote, women of childbearing age and children under five.

The Foundation promotes improvements in health policies, financing mechanisms and
basic services while enabling communities to adopt effective health practices.

In the past, deficiencies in health policy, financing and service availability
undermined attempts to achieve lasting improvements in health status among poor
communities. Free-standing, community-based health programmes supported by the
Foundation and other donors succeeded in achieving health improvements for a
limited time at a relatively low cost. However, communities often did not have the
financial resources to sustain improvements, the quality of care and patient referral
were not assured, and basic services were often inaccessible and rarely equitable or
lasting.

The Foundation now supports interventions that build the institutional capacity of
health systems by:

      Strengthening and developing partnerships between all stakeholders from the
       state to the community; We worked in partnership with Diabetes UK to hold a
       Diabetes Awareness day in our bid to raise awareness of diabetes to the
       community.
      Promoting policy dialogue and mechanisms to develop and sustain health
       systems and services;
      Documenting and disseminating Diabetes UK best practices and diabetes
       information.

Health is more than health care. While the Foundation works to strengthen health
systems and services, it also promotes initiatives that offer people the knowledge and
skills to avoid illness. These measures include educating women and girls and
enabling families to adopt appropriate hygiene practices. In addition, the Foundation
supports testing and implementation of income-generating strategies that allow
households and communities to acquire better nutrition and health status. Increased
income enables communities to improve nutritional status, particularly that of women
and children, and to build and maintain water and sanitation systems.
Appendix 2
Case Study: The Ethnic Diabetes Awareness Day
Confederation of Indian Organisation and Diabetes UK




Delegates at The Ethnic Diabetes Awareness Day


―I want to thank you (Jenne Dixit) personally on behalf of Confederation of Indian
Organisations (UK) for your support. All the speakers from Diabetes UK made an
impassioned and most informed presentations on different medical aspects of diabetes
at the Ethnic diabetes awareness conference‖ said Health Officer, Dr Harshad Mistri
from the CIO (UK).
One of the CIO‘s major health projects for South Asian communities is to tackle the
underlying causes of diabetes and Coronary Heart Disease.
In connection with this, in March this year the CIO organised an Ethnic diabetes
awareness day held Camden, London.
    Jenne Dixit, Roopinder Brar, Cathy Moulton and Phil Casey, all from Diabetes
UK, spoke at the event, together with various other speakers
  A total of 120 delegates attended mainly from the South Asian community,
including representatives from Primary Care Trusts,
Health agencies, Community Groups, Voluntary Groups and people with diabetes.
Jenne Dixit said ―Diabetes UK is always looking to raise awareness about diabetes,
particularly within the South Asian communities so we were pleased to work together
with the CIO at this event.‖
Appendix 3 – Tips on reaching your target audience
  1. Designing materials

      Make sure that you know what languages your target group speak and read.
       N.B These may not be the same as some languages have a verbal rather than a
       written tradition.
      It may not be enough to provide translated written material – videos or audio
       tapes may be more appropriate in some cases, for example if your target group
       has low levels of literacy.
      When translating materials use everyday rather than overly formal language.
      Bear in mind that some ideas or phrases may not translate well e.g.
       hypoglycaemia.
      You may want to include the community in translating the materials. Or, get
       translations proof read and checked by someone who speaks the language and
       understands the culture of your target group, ideally someone with a health
       promotion background.
      Make sure materials are culturally appropriate, for example if providing
       materials on healthy eating, make sure that these are relevant to the diet of
       your target community.

   2. Organising events

             Involve your target audience to ensure that the event will meet their
              expectations and that they will enjoy it.
             Work in partnership with individuals and organisations working with
              your target groups e.g. community workers, health promoters,
              community groups.
             Choose a venue that is acceptable and accessible to your target
              audience. This may be a community centre, place of worship or even
              at work. Make sure that people can get to the venue easily.
             Choose a suitable date and time. Avoid clashing with events that are
              relevant to your target group and consider timing your event to fit in
              with these e.g. fasting during Ramadan.
             Find out what help and resources are available nationally e.g. what
              other means of support do other organisations/charities provide?
             Adapt events and materials for your target group for example ‗how to
              manage your diabetes during religious fasting?‘
             Give thought to how you publicise your event. You may want to get
              leaflets and posters printed in appropriate languages, use local radio or
              visit community groups to spread the news by word of mouth.
             Ensure that there are interpreters present if necessary.
             If food is provided, make sure that this meets the needs of your target
              group. Can the food be used to support the theme of your event e.g. a
              healthy lunch?
             Take into account any cultural sensitivity e.g. will the event be mixed,
              or would it be more appropriate to run separate event for men and
              women.
3. Creating effective and accessible services

          Identify gaps in service provision and consider how your service could
           meet those gaps.
          Consult and involve your target group when designing or modifying
           services to make sure that these services will meet their needs.
          Understand what the barriers are for people in accessing services and
           try to find ways round these. Are their practical barriers e.g. transport
           difficulties or psychological barriers e.g. someone is worried about
           visiting a leisure centre for the first time?
          Is there appropriate language support in the form of information,
           interpreters, link workers etc. for communities where English is not the
           first language.
          Be clear on the objectives of your service and how best to achieve
           these. For example if you are trying to promote healthy eating, you
           may need to target the whole family, especially the shopper and cook,
           as well as the individual.
          Is there a need for services to be offered outside the traditional
           environment, for example in places of work or within the community
           e.g. in a places of worship or community pharmacies?
          Consider teaming up with other service providers (whether health
           services, voluntary or local authority groups) where appropriate. This
           could be to offer an integrated ‗one-stop‘ check up to address a number
           of related health issues at the same time, or to share or access resources
           for big projects.
          Consider ways to involve the community in meeting its own health
           needs e.g. peer education, scheme, or recruit bilingual health workers
           from your target group.
          Work with the community to overcome any initial hurdles and build
           trust.
          Consider what providing an equitable service actually means. Services
           for BME groups should be provided as part of mainstream health
           provision where possible. Can improvements be made to mainstream
           services to make them more inclusive rather than designing a specialist
           service?


4. Publicising the service

          Consider how best to publicise the service. What media do your target
           audience read and consume? Options could be posters or leaflets in the
           right languages in the right places, local radio or specialist TV.
          Word of mouth can often be the best form of publicity.
          You may want to contact local community, voluntary and statutory
           organisations to recruit participants.
          Work with health professionals e.g. local doctors to raise awareness of
           your service, and refer to people through to it where appropriate.
         Consider ways to work with the wider community e.g. retailers, leisure
          centres and other businesses etc to get your message across.
         Find out who is influential in the community and whether you can
          involve them e.g. religious leaders, interesting speakers. This may
          differ for different sections of the community.

5. Evaluation

         Evaluate your service to ensure it is effectively meeting the needs of its
          users and to get ideas on how to develop it further.
         Consider how best to gather feedback. If using questionnaires, will
          people need help filling these out? If gathering feed back face to face,
          will people tell you honestly what they think or are they afraid of
          offending you?
         When designing services consider what methods of evaluation you will
          use up front. What measures or indicators might be appropriate and
          how you will gather data to track these?

6. Sustainability and mainstreaming

         One of the issues many projects face is ensuring a steady stream of
          funding and service users can feel very let down if a project needs to
          close because the funds run out.
         Make sure that you are aware of all different funding streams are
          available and how to access these.
         Successful projects may want to look at ways of becoming part of
          mainstream service provision.
         Are there opportunities to offer training to interested participants so
          that the service can continue or expand?

7. Share learnings

         Capture any learnings from your own project, share these with the
          team and be open to sharing them with other service providers.
         Find out what projects are doing. Talk or visit them to understand how
          they developed their services, what worked well and what has worked
          less well.

				
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