Culture of Disability

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Culture of Disability Powered By Docstoc
					Perceptions of Disability




Understanding Occupation and
 Ability in Antigua and Rural
    Highland Guatemala
The Culture of Disability
Building upon pilot research conducted during the
  2010 NAPA-OT Field School, this presentation
       will address a relative understanding of
   “disability” and how it affects the occupational
       justice of those labeled as people with
                      disabilities.

• What roles do family and other close members assume
  when caring for a person with a disability
• How does one perceive the disability they have and what
  kind of narrative do they portray in their community
• What stigmas revolve around disability
• Western vs. Traditional healthcare
• Occupation and Independence
Methods
• Who?
  – Ladinos
  – Indigenous
  – Foreign Contacts
• Instruments
  – In Depth Interviews
  – Focus Group Discussion
  – Informal interviews
Ethical Considerations
• As an Anthropology Student
  – My Introduction and Background
  – Sense of Curiosity
  – Relative Respectfulness
• Stigmatization of Disability
• Explanatory Models of Health and Disability
• Perceptiveness to Personal Identity
  – Spanish as a Language Barrier
  – Cultural Norms of Narratives
Theoretical Framework
• Disability and Infant Mortality Rate
  – Jill Replogle and The Lancet Journal
     • In 2000, World Rate of IM dropped 13%; 35% in
       Latin America – WHO
     • While Perinatal disorders claim ownership to the
       highest percentage of IMR, it too is on the decline
       – PAHO
     • However, as these rates fall, more children survive
       with disabilities – a cause for concern with lack of
       education and resources
        – Hermano Pedro
               Source: Jill Replogle. “Guatemalan’s Disabled Children Face a Lifetime of Challenges”
Hermano Pedro




                                          Photo courtesy of Erica Skogebo Edwards




 Photo courtesy of Rachel Hall-Clifford
Transitions




              Photos courtesy of Erica Skogebo Edwards
The Colonial, Ladino and
   Indigenous World View




             Photos courtesy of Rachel Hall-Clifford
Results
•    My Results are Divided into Four
     Categories
    1.   Guatemalan Persons
    2.   Guatemalans with Disabilities
    3.   Foreign Persons
    4.   Foreigners with Disabilities*
•    Results Consist of Narratives, Interview
     Responses and Observations of Physical
     Behavior
Guatemalan Persons
• Care, Resources and Education
  – Tecun Uman
  – Aguas Calientes
  – Street Map and Conversation
• Stigma via Labeling
  – Insults
  – Jokes
• Linguistic
  – Empedidos
…With Disabilities
• Narratives
   – Transitions
      • Passive and Active
• Linguistic
   – Minusvalidos vs Discapacidad
• Observation of Occupations
   – Transitions
   – Hermano Pedro
• Resources
   – Municipal
   – Law
Foreign Persons
• Stigma Through Communication
  – The Case of Hermano Pedro’s Volunteers
• Stigma Through Classification
  – La Limonada and Sister Kate
• Result from Volunteering
  – OT’s and Hermano Pedro
…With Disabilities*
• Why the Asterisk?
• Conversations with Kara
  – Narrative on both Self and Cultural Perception
    of Physical State
• Conversations with Devva
  – Strategy of Communication
               Conclusion


•   Ability through disability
•   Social Networks
•   Voice in Government
•   Future Research Considerations