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					   A PUBLICATION            BRITISH COLUMBIA TRANSPLANT SOCIETY   S P R I N G 20 0 4


TRANSPLANT T IMES
                   OF THE




overcoming obstacles…
                                    page 2
                                    New corneas allow youngster
                                       to see into the galaxy
                                                              by Kari Karlsberg




I NSIDE D
      On the                                  eacon Jones is often asked “how far can you see?” by people
                                              who are curious about his cornea transplant. “Oh, about 93
                                              million miles into the distance”, Deacon jokingly replies [the
                                    distance from the Earth to the Sun]. Thanks to corneal transplants,
                                    Deacon can now see light and shapes, instead of complete blindness.
       Eye Bank Q&A
               •                    Deacon Jones is a bright, articulate, and remarkable 11-year old boy,
 Living Anonymous Donation          but due to a congenital birth defect, he required 24 corneal transplants
               •                    on alternating eyes to restore his vision before he was two years old .
      Volunteer Awards
               •
New guidelines for HIV patients     Twenty-four transplants is an unusually large number, especially for a
               •                    very young child, but it was crucial for the specialists to repeat the
           KUDOS                    surgery until it was successful due to the rapid development of an infant’s
               •
                                    brain. Deacon’s sight had to be restored as soon as possible so that the
 www.transplant.bc.ca               visual communication pathways between his eyes and brain would be
                                    stimulated and developed. If the part of the brain that controls sight is
    The Transplant Times            not used, it will atrophy and close down to all future messages—even if
 is published twice a year by the   perfect vision was one day restored.
 Communications Department
 of the BC Transplant Society.      During a cornea transplant, a disc-shaped segment of the impaired
                                    cornea is replaced with a similarly shaped piece of a healthy donor
             Editor                 cornea. The cornea is the clear front of the eye that covers the coloured
          Ken Donohue               iris and the round pupil. Light is focussed while passing through the
                                    cornea, making sight possible. The cornea must stay clear for good
       Assistant Editor             vision. Due to the repeated transplants, Deacon’s cornea was a little
       Sally Greenwood              swollen and scarred, and thus lost some smoothness and clarity. The
                                    scars and irregular shape caused the cornea to distort light, resulting in
The Transplant Times welcomes       glare or blurred vision. Therefore, Deacon is officially considered legally
    submissions and letters.        blind. Two years ago, he received his 25th cornea transplant due to
                                    rejection problems in his left eye.
           c/o Editor
     West Tower, 3rd Floor          Deacon does not let his visual impairment interfere with living a full,
     555 West 12th Avenue           active life with his parents, Randi and Cecil, on their boat moored in
         Vancouver, BC              False Creek. Deacon attends False Creek Elementary School, and
            V5Z 3X7                 swims competitively with the Dolphin Swim Club. Deacon explained
         (604) 877-2240             “My favourite swim strokes are freestyle and breast stroke, and I am
        1-800-663-6189              going to start running with my Mom soon to get into even better shape,
                                    so I can swim even faster”. In addition to swimming, Deacon plays the
            e-mail:                 guitar and is an avid skier. Asked why he wants to be an Anaesthetist
 ken_donohue@bcts.hnet.bc.ca
                                    continued…page 3


                                             —2—
                                                    fa qs
Deacon…from page 2


when he grows up, Deacon matter-
of-factly says, “because I want to be
able to help children through their
operations, like I have been so kindly
helped by all the staff at BC
Children’s Hospital.”

In between all of his school and sports
activities, Deacon has made a few         Q   What transplants are performed from donated eyes?
appearances on local media to talk        A   Cornea and sclera. The cornea is the clear portion of the eye, and
about his experiences. Two highlights         once preserved, can be used up to eight days after death. The sclera
were appearing on the CBC program             is the white portion of the eye and can either be preserved whole or
“Spilled Milk” and being live on –air
with Zack Spencer, the weatherman
                                              cut into thirds. Once preserved, the sclera can be used up to one
from Global Television.                       year after death.

Deacon is articulate and passionate       Q   Can all blind people benefit from a corneal transplant?
about organ donation and wants to do      A   No, only those whose eyes have a defective cornea.
all he can to help with educating the
public about cornea transplants and
the Organ Donor Registry. For the         Q   Can patients who wear glasses, and/or who suffer from
460 people currently waiting for              cataracts/glaucoma donate?
cornea transplants in BC, they            A   Yes, even totally blind people with healthy corneas can donate their
couldn’t have a more inspiring
                                              eyes, because there is no relationship between poor eyesight and
spokesperson than Deacon. T T
                                              donor eligibility.

   Kari Karlsberg is the Administrative   Q   Can cancer patients donate their eyes?
 Assistant for BCTS’ Organ Donation and   A   Yes, most cancer patients can donate. Only those who have leukemia,
    Hospital Development Department
                                              lymphoma, or ocular cancers are ruled out.

                                                    For more information about eye donation, please
    About the                                         contact the Eye Bank of British Columbia at
  Eye Bank of BC                                    604.875.4567 or 1.800.667.2060 [toll-free in BC]

  The Eye Bank of BC is a
  provincial agency with a
  mandate      to   procure,
  process, and distribute
  ocular tissue within the                          Y EAR                                         CORNEA
                                                                      DONORS
  province. The Eye Bank is                                                                   TRANSPLANTS
  located in Vancouver in the                      2001
  Eye Care Centre Building                                              535
  within the Vancouver                                                                              485
                                                   2002
  General Hospital site.                                               498
                                                                                                   483
  604.875.4567                                    2003
                                                                       418
  1.800.667.2060                                                                                  434


                                                       —3—
                                                               but long term graft [organ] survival is compelling. Below
      LADs…                                                    are the three-year graft survival rates of patients
                                                               transplanted in BC:

    special people                                                           Deceased donor: 85.9%
                                                                             Living Related: 91.4%
   with a special gift                                                       Living Unrelated: 96.4%

                                                                             source: BC Transplant Society
                    by Michelle Ford
                                                               These statistics demonstrate that living donation is a
                                                               successful, feasible, and strategic means to address the
In 1999, the BC Transplant Society began a                     long, and ever-growing, kidney transplant waiting list.
comprehensive, multi-year study examining the issue            Living anonymous donation may offer one potential
of living anonymous donation. This has led to the              alternative to supplement the growing need for kidneys in
initiation of a clinical pilot study that will see up to       Canada today.
ten living anonymous donors over the next year.
                                                               The three-year LAD study has been funded by Fujisawa
                                                               Healthcare Inc., and received ethical approval from the
                                                               UBC Behavioural Research Ethics Board. Researchers


W
            e donate blood to people we’ll never meet. We      are not only interested in identifying suitable LAD
            supplement the food bank for families that we      candidates but also in understanding their motivations for
            don’t know. We even donate clothes when            donating. In situations of living donation, where the donor
we’re done with them in order to help strangers more in        and recipient have a pre-existing relationship, the
need than ourselves. But what about a kidney? Would            motivating driver is more easily identified. If a family
we give a kidney to a person that we don’t know if they        member or friend is sick and in need, it’s often easier to
had more use for that kidney? The BC Transplant Society        make the decision to donate an organ, because the donor
is asking that very question in a ground-breaking program      will readily see the benefits, and may have been intimately
currently underway: The Living Anonymous Donor (LAD)           involved as a caregiver during the illness. But what about
Clinical Pilot Study. The study will identify, and perform     the living anonymous donor who will never know the
surgery on ten candidates that are suitable, ready and         recipient of their gift? Who are they? Why would they be
willing to anonymously donate a kidney to a person they        willing to give a kidney to someone they don’t know?
will never meet.                                               And how do they benefit?
Traditionally, organs for transplant have come from            Throughout the LAD study’s year of data collection (a
deceased donors and live donors who have a pre-existing        survey, psychological questionnaires and an in-depth
relationship with the recipient. While viable, the supply of   psycho-social interview) with a sample drawn randomly
kidneys from deceased donors is not able to meet the           from the community, 93 additional individuals came
demand. The number of Canadians waiting for kidney             forward on their own initiative wanting to donate a kidney
transplants has increased by 88 percent since 1991.            to anyone who needed it. This group (60% female/ 40%
According to the Canadian Organ Replacement Register,          male, with a mean age of 47.5 years) became known as
a national statistics-gathering agency, this rate of growth    the “unsolicited sample” and provided much insight in the
means that more people than ever need access to a              motivations of the LAD. Candidates were assessed for
relatively fixed number of organs, and clinicians believe      their medical and psycho-social suitability as well as their
that, at the current rate of growth, waiting times for a       overall commitment to anonymous donation. The
kidney from a deceased donor will reach a decade or            researchers identified a number of key motivations. For
more by 2010.                                                  example, 37 percent wanted to improve the quality of
                                                               another’s life, while the same percentage believed that
Live donor transplants have increased significantly over       donating was consistent with their spiritual beliefs. A little
the past five or six years, creating a new source of kidneys   over a third had prior experience with transplantation or
and livers. Last year, 130 kidney transplants were             medicine. Just under half of the original participant pool
performed in BC; more than half≡72≡of those kidneys            passed the psychological criteria to be considered potential
came from live donors. Not only is the wait time lower
for those who are fortunate enough to have a live donor,       continued on page 5


                                                          — 4—
                                            W
                                                          hen my family and I returned from Toronto’s Hospital
  The Children’s Organ Transplant                         for Sick Children, following our daughter’s heart
   Society of BC is dedicated to                          transplant, we craved information from a community
  improving the quality of life for                               that understood what we had been through.
       children waiting for a                                      Still reeling from our experience, the
  transplant, those transplanted,                                  transplant nurse at B.C. Children’s Hospital
         and their families.                                       put us in touch with Debbie Bielech, who
                                                                  was interested in forming a support group
           UPCOMING EVENTS                                      for children who had received a transplant.

                MAY, 2004                                 Parents of children who have received a transplant
        “pub night” fundraiser                       often find it difficult to balance unique health issues,
                                            family, and work. Friends, although supportive, don’t always
             JULY 10, 2004                  understand the challenges involved in parenting a transplanted
      4th annual summer picnic              child. Likewise, our transplanted children find themselves in
      Prospect Point Picnic site            situations where their siblings and peers may not fully appreciate
           12:00 to 4:00                    their unique health issues.

             SEPTEMBER 2004                 Hence, the huge importance of the Children’s Organ Transplant
            Educational Night               Society of BC. Through the organization’s social events and
                                            support networks, transplanted children, and their parents can
                                            relate to the experiences of immunosuppression, bloodwork and
    For more information on the             hospital visits.
     Children’s Organ Transplant
       Society, please contact
                                            Twice a year, families gather to celebrate the joys of childhood,
            Debbie Bielech
                                            and to appreciate the gift of life we see in all of the little miracle
                                            children around us. While our children enjoy the summer picnic
           604-271-7719
      debbie-bielech@telus.net              or anxiously await the visit from Santa Claus, parents too enjoy
                                            the company of other parents who lend a supportive ear or share
                                            stories of similar challenges we all face in the transplant
LADs…from page 4                            community. My family has been greatly encouraged to see so many
                                            healthy and strong children who have received transplants.
candidates for living anonymous
                                            — Carmen Carriere’s three-year old daughter, Brynn, received a heart
donation, should a program be               transplant when she was six months old.
implemented in the future.

On the strength of these findings,
BCTS is moving ahead with living
anonymous donation in the context of
this clinical pilot study. Their research
to date has demonstrated that living
anonymous donors do exist, and are
ready for the program now. We are
fortunate to come from a society
where others care as much about
those in need as they care about
themselves. T T

 Michelle Ford is a Project Manager
    with Telus. Her brother was a
                                            Kidney transplant recipient, Alex, and his brother Erik, enjoy a game of
            cornea donor.                      golf at the Children’s Organ Transplant Society’s summer picnic


                                                 —5—
                                              2003 Volunteer A
                                                                    “You must be the change that you wish to


Pia Henriksson                                          Jas Dosanjh and Prea Dosanjh
Rookie of the Year Award                                Junior Achiever Award
As the mother of an organ donor, Pia has graciously     Like many young people, Jas and Prea have led
spoken to the media and several community               busy lives, which included: helping out at home
organizations about organ donation from the             while their mother recovered from a liver
perspective of a donor family. She was an integral      transplant, and volunteering for a number of
part of the committee that organized events during      organizations. Both have willingly promoted
the 2003 Organ Donor Awareness Week. Pia is             organ donation. Almost immediately, they
courageous, full of wisdom, and an inspiration to       focused their energies within their community
all who meet her.                                       and were instrumental in helping promote organ
                                                        donation within the Indo-Canadian community.
David Eusebio, Jack Palmer, and                         They played an instrumental role in the launch of
Robbie Thompson                                         the Sikh Health Centre as well as the Visaki Day
Tots that Walk the Talk Award                           Parade, both of which generated a significant
You might think that being faced with a life saving     number of donor registration forms.
heart transplant before you are a year old would
be enough to make you give up—or at least tire          Rick Acton




                      cities
out. Or that knowing you faced a heart transplant       Corporate Citizen Award
immediately after you were born would be too            A few days after receiving a transplant, and still
overwhelming. What about facing a heart                 in hospital, Rick was thinking of ways to promote
transplant as a young babe, waiting close to a          organ donation. His ideas were limitless, but soon
year, receiving a transplant, and then being told       after getting out of the hospitals he put those
you’d have to do it all over again before your fifth    ideas to work. He has set his sights on developing
birthday? They have overcome adversity, they            partnerships with several professional
have fought through pain and discomfort, they           organizations. He has developed an Organ Donation
have been forced away from their homes and              Committee with his Rotary club, which is developing
extended families, and they have missed their pets      ways to increase the reach and influence that
and favourite friends—all for a second chance at        Rotary has in the community to assist with the
life. These three boys have persevered and              ongoing promotion of this worthwhile cause.
overcome. And they have done it publicly. Always
willing to share their stories, smile for the cameras   Chris and Gillian Stringer
(well almost always smile), and wake up early to        911 Rescue Award
accompany their parents to presentations and            On many occasions over the past year, Chris and
organ donor awareness events—all in the hopes           Gillian have answered the call, and often for last
of improving donor rates and increasing the public’s    minute events. They freely volunteer each time
knowledge of the issues. They are in a word—            they are asked, without exception. Well, almost.
heroes. Tots that walk the talk—led and supported       There was a time when they told us they
by parents who never say no when BCTS calls             couldn’t help, because they had out-of-town
asking for another interview or another photo for       guests. I suppose they are allowed one day off.
another campaign. They are our ambassadors—             They even volunteered to help with a display at
our tots who walk the talk. To Robbie, Jack, and        Richmond Centre, and after agreeing asked
David and your parents—Ron, Sue, Brent, Jessica,        where Richmond Centre was because they had
Paulo and Sonja—our heartfelt thanks for your           never been to that mall. That’s what Chris and
tireless efforts on behalf of all organ recipients      Gillian are like. Say yes, and then ask questions
and our best wishes for a long and healthy life.        later. They traveled to Whistler for a BCTS
                                                        event, they participated on committees, and
                                                        were always available when needed.

                                                   —6—
Award Recipients
o see in the world.” ~ Mahatma Ghandi


          John Chalk                                          The Dosanjh family
          Initiative Award                                    [Prea, Jas, Daljit, Ramesh]
          Soon after receiving a liver transplant, John       Mosaic Award
          called the BC Transplant Society asking how he      Over the past year or so, BC Transplant has been
          could give back to an organization that had         impressed by the energy and commitment this
          given him so much. After attending a volunteer      family has shown. They have made significant
          orientation workshop, he arranged to have           contributions within the Indo-Canadian community
          Organ Donor Registration forms available for        toward increasing the awareness of organ donation
          golfers at an annual tournament in Whistler. From   and transplantation. They attended our volunteer
          that event, 33% of forms were returned. During      orientation workshop, and had great success at
          the BC Day long weekend, he organized a             an event at one of Vancouver’s Sikh temples. They
          registration drive in Whistler Village. His idea    have expressed a commitment to be more involved
          grew into a two-day event, which was well           reaching members of their community. This year’s
          received by the public and the volunteers that      winner of the Mosaic Award is the Dosanjh family.
          helped make this event a success. With little
          guidance from the BCTS, he arranged for special     Organ Donor Awareness Week
          signage, liaised with city staff on the placement   Planning Committee
          of banners in key areas throughout the village,     Community Group Award
          and got local media involved. Following up on       This group didn’t know it, but there was a lot of
          the success of this event, John has set his         pressure on them to produce results and to show
          sights on organizing another registration event     some success. This group was given the challenge
          during the BC Day long weekend in 2004.             of developing a new signature event during National
                                                              Organ and Tissue Donor Awareness Week, and was
                                                              forced to consider an event that was different
          Warren Cunningham
                                                              than had been done in the past. At their first
          Initiative Award
                                                              meeting, the group came up with the idea of a
          A retired physician and Kelowna Rotarian,
                                                              breakfast Drive-Thru for Life event that would take
          Warren has no personal connection to organ
                                                              place at The Sutton Place Hotel. Within a few
          donation and transplantation, but wanted to
                                                              months they pulled together and put on a
          put his efforts into promoting this worthwhile
                                                              successful event, despite the cool, rainy weather.
          cause. He became a quick study and learned
                                                              The group worked diligently on this project, meeting
          as much as he could about the BC Transplant
                                                              several times during the first few months of the
          Society and its many programs. He started with
                                                              year. The idea of a breakfast drive-thru event
          his own Rotary club, and then set about
                                                              resonated with someone in Victoria, who
          speaking to other clubs, and various community
                                                              successfully organized a similar event in Victoria.
          groups throughout the Okanagan. He did more
                                                              Not content with just one event, the group also
          than talk about organ donation; he began
                                                              organized smaller ones throughout the Lower
          mobilizing these groups to organize promotional
                                                              Mainland, and arranged to have organ donation
          events in their own communities. He is
                                                              messaging on reader boards at Skytrain stations.
          committed to increasing Rotary’s role in helping
          promote organ donation, not just in the                    Sabrina Pokomandy
          Okanagan, but throughout the province. He                  Chris Stringer
          traveled to Tennessee, where he learned more               David Yochlowitz
          about the organ donation initiatives of American           Verna Lock
          Rotary clubs. With minimal direction from the              Pia Henriksson
          BCTS, Warren has become a catalyst for the                 Joanne O’Connor
          promotion of organ donation in the Okanagan.



                                                         —7—
    The student
       becomes teacher
                                  by Ken Donohue



W
           ith a sense of youthful enthusiasm, Keri Williams,
           a grade 11 student in Merritt, has recently begun
           playing the role of teacher as she educates her
community about organ donation and transplantation. “I was
reading my biology textbook, and it talked about organ
transplants, but the way the information was presented
made it seem like it only affected older people,” says
Williams, in a telephone interview during her school’s lunch
break. “I thought that young people must need organ
transplants, too, so I started doing some research, and soon
learned that organ failure can affect anyone at any age.”

Putting her newfound knowledge to use, Williams contacted
the BC Transplant Society to get more information on its
High School Program. She then approached the school                 Keri Wil
district Superintendent, and Principal to garner their support.             liams…
                                                                                  making
                                                                                           a differe
That led to presentations to the local Rotary and School                                            nce in h
                                                                                                            er comm
Trustees. “They were all very supportive,” she says, “lots                                                         unity
of people started asking me to speak to various groups.”
Williams has even taken her message to a high school in
Princeton, a 90-minute drive from her home. “I would like            Student testimonials in response to
to do more in Princeton, but I have to wait until I have              presentations by members of the
some more time,” she says. For the time being, Williams                    BCTS School Program
will keep herself busy in Merritt, as she organizes organ
donor registration challenges between classes at Merritt
Secondary School. She has also been working with a local            “I was always going to donate, but this
gym and sports teams to influence young people to consider
                                                                    presentation gave an even more positive
organ donation.
                                                                   outlook on transplantation and donation.”
The community has really been supportive,” acknowledges
Williams. “As young people, we often think that we are                                        ~
invisible, but by learning more about this important issue,
we can start to help ourselves.”                                      “It was probably the most interesting
                                                                  presentation we have had. I was pretty mad
The BC Transplant Society’s High School Program reaches
                                                                  that our spare block had been cancelled for
out to thousands of students throughout the province each
year. But the program’s popularity often stretches the             this presentation, so I came into class with
available volunteer resources. As such, we are looking for          an ‘I’m just going to draw and not listen’
volunteers interested in speaking to students. An orientation       attitude, but I listened for the first five
and resource materials are available for all speakers. If              minutes and found that I really was
you would like more information about this program, or            interested in what would happen [I suggest
would like to volunteer, please contact:                             making a movie about this story, but of
Lisa Despins                                                       course, since it’s my idea I get 50% profit
Lisa_Despins@ bcts.hnet.bc.ca                                             and a couple of free organs].”
604.877.2240 or 1.800.663.6189

                                                           —8—
      KUDOS                                                                    New transplant
                                                                              guidelines for HIV
                                                                               positive patients
BCTS’ Liver Transplant Team wins 2003                                    HIV positivity used to be a routine
J.F. McCreary Prize.                                                     preclusion for transplantation across
                                                                         Canada. HIV positive patients have not
In honour of the late Dr. John F. McCreary, first Coordinator of         been considered suitable candidates for solid
Health Sciences at UBC, a prize is awarded each year for the best        organ transplant due to issues related to viral
example of a health care initiative in BC. The intent of this award is   count and suppression of the immune
to recognize creative interprofessional teamwork leading to improved     system. However, since the introduction and
patient care. The Sheway Project, a pregnancy outreach program           use of HAART [Highly Active Retroviral
in Vancouver’s Downtown Eastside, was also a winner of the prize.        Therapy] for HIV in 1996, the situation has
                                                                         changed substantially for HIV positive
In accepting the award, Dr. Eric Yoshida, Director of the Liver          patients requiring organ transplants.
Transplant program, acnowledged that the team is multi-disciplinary
and non-heirarchical. He noted that the every disipline, including,      In 2002, the McGill protocol was developed
spiritual care, social work, clinical pharmacy, and nursing are key to   with input from transplant and HIV experts
transplantation.                                                         from that university. This protocol outlines
                                                                         the acceptable criteria, based upon medical
                                                                         evidence as well as what was thought would
                                                                         be acceptable to both medical and surgical
                                                                         transplant specialists, for listing co-infected
                                                                         (HIV/Hep B/ Hep C) patients for liver
                                                                         transplant in Canada.

                                                                         BC standards are considerably more
                                                                         inclusive than the McGill Protocol and must
                                                                         be agreed upon and adhered to in order to
                                                                         ensure equity and equal access to transplant
                                                                         assessment for all patients who fall into this
                                              Liver Transplant Team      new medical category.

                                                                         As of the fall of 2003, BC is currently the
                                                                         only Canadian Centre that will assess and,
                                                                         if suitable, list HIV/Hep C positive patients
                    supports organ donation                              for liver transplantation. At this time no other
                                                                         liver transplant programs are willing to
   RE/MAX, and its agents, have a long tradition of supporting the       assess these patients.
   Children’s Miracle Network, but RE/MAX of Western Canada
   wanted to lend its support to a charitable cause that didn’t simply   BCTS has assessed seven co-infected liver
   mean donating money; hence a partnership with the BC                  patients using its own criteria; however, to
   Transplant Society was formed. RE/MAX wanted to align itself          date no co-infected patients have been
   with givelife.ca, a national website that serves as a portal to       transplanted although one was wait-listed
   transplant programs across Canada. The partnership was recently       for transplant with high priority before
   launched at a RE/MAX conference in Victoria. Since then,              passing away from liver failure while still
   representatives of the BCTS have spoken to several groups of          on the list. We continue to monitor four such
   realtors, who have been supportive of the partnership.                patients, who currently do not yet meet the
   RE/MAX agents in the Lower Mainland expressed interest in             eligibility criteria, but may in the near future.
                                                                         Once a patient meets all criteria they can
   inviting BC Transplant to be a part of their many public functions.
                                                                         be listed and activated for transplant. T T
                                                          —9—
 Health Minister launches
   provincial campaign                                                       did u know                             ?
I
    n January, surrounded by media and legislature staff, Minister
    Colin Hansen, kicked-off a provincial organ donor registration
    campaign, initiated by the BC Transplant Society. The                 Surrey
campaign is designed to raise awareness and ensure the public             Residents waiting for a transplant            33
are better informed about the process for registering as a potential      People transplanted in past 10 years          190
organ donor.                                                              Residents registered on ODR                   29,409
                                                                          Percentage of population registered           8.5%
The event with the Minister also included an opportunity for
Saanich South MLA, Susan Brice to publicly present more than              New Westminster
200 organ donor registration forms that were collected in her             Residents waiting for a transplant            7
riding at a number of public “meet and greet” events in December.         People transplanted in past 10 years          36
Local BCTS volunteers helped with the initiative.                         Residents registered on ODR                   6,482
                                                                          Percentage of population registered           12%
Over the coming year, the BCTS will be running awareness
campaigns in selected communities in each of the five regional            North Vancouver
health authorities—Surrey, New Westminster, North and West                Residents waiting for a transplant            13
Vancouver, Kelown, Prince George, and Victoria.                           People transplanted in past 10 years          72
                                                                          Residents registered on ODR                   20,252
The BCTS is asking civic leaders, local businesses and institutions       Percentage of population registered           16%
to support the campaign by encouraging employee registration
drives. Local media is also being asked to play a role in creating        West Vancouver
increased editorial awareness.                                            Residents waiting for a transplant            3
                                                                          People transplanted in past 10 years          19
The aim of these campaigns is to bring the issue of organ donation        Residents registered on ODR                   6,375
and transplantation closer to the community level. Did you know           Percentage of population registered           15.4%
that 35 people are currently waiting for a transplant in Burnaby?
Did you know that 10 people in Quesnel have had a transplant              Victoria
in the last 10 years? And did you know that more than 30 per              Residents waiting for a transplant            24
cent of Comox Valley residents are registered on the Organ                People transplanted in past 10 years          113
Donor Registry? The provincial average is just 12 per cent.               Residents registered on ODR                   41,842
                                                                          Percentage of population registered           15%
Successful campaigns have been concluded in Surrey and New
Westminster. Other communities will follow throughout the year.           Prince George
                                                                          Residents waiting for a transplant            9
                                                                          People transplanted in past 10 years          41
                                                                          Residents registered on ODR                   10,024
                                                                          Percentage of population registered           14%

                                                                          Kelowna
                                                                          Residents waiting for a transplant            8
                                                                          People transplanted in past 10 years          57
                                                                          Residents registered on ODR                   17,115
                                                                          Percentage of population registered           18%




                                                                   Saanich South MLA, Susan Brice; Minister of Health Services,
                                                                         Colin Hansen; liver recipient, Michael MacNeil;
                                                                        BCTS Provincial Executive Director, Bill Barrable


                                                          — 10 —
  Victoria’s 2nd annual                                                                    Silk Systems Inc.
                                                                                           Muffet & Louisa
     Drive-Thru for Life                                                             BC Centre for Disease Control
                                                                                        Squamish Forest Dist.
                                                                                               Purolator
Picking up where they left off last year, a group of                                     Grimm’s Fine Foods
Victoria volunteers, led by Teresa Koroll, organized the
2nd annual Drive-Thru for Life. The event took place on                                    Douglas College
April 13th, at Thrifty Foods, Hillside Centre.                                       Worker’s Compensation Board

The BC Transplant Society wuold like to acknowledge
the OK Radio Group [100.3 the Q] and Thrifty Foods for         The BC Transplant Society would like to thank
their continued support of this successful event.             the above organizations for running a Give Life
                                                                            at Work campaign

                                                                  If you would like more information on the
                                                                  program, or would like to run a campaign
                                                                   within your organization, please contact:

                                                                               Ken Donohue
                                                                        Ken_Donohue@bcts.hnet.bc.ca




                     XV World Transplant Games
                                            July 16 ~ 24, 2005
                                             London, Ontario


              “To say I was overwhelmed would be an understatement. The enormity of the games was
            unbelievable. The venue, people, spirit, colours, laughs, tears, competition, roar of the crowd,
              music and friendships were all incredible. Fifteen hundred [transplanted] athletes from 55
             countries, 500 support people, and 400 volunteers were all devoted to raising the awareness
            that organ donation works. There were 25,000 spectators at the Opening Ceremonies. I could
                         barely see them through the tears. It was truly a world class event.”


                                       Margaret Benson, double-lung transplant recipient
                           represented Canada at the 2003 World Transplant Games, in Nancy, France



           The Games are open to transplant recipients of varying athletic abilities

                                  for more information, please contact:
                                            Maria MacKenzie
                                       maria_mackenzie@telus.net


                                                        — 11 —
                       Just the Facts                                                     VOLUNTEER
                                                                                           DEBRIEF
   Number registered on the Organ Donor Registry                    481,163
   (as of April 22nd)                                                                  Robin Tomlin, of Castlegar, has
                                                                                     been busy promoting organ donation
   Number of people on the waiting list                                 400          in the Kootenays. He has garnered
   (as of April 22nd )                                                                 support from local radio and tv,
                                                                                         and organized a promotional
   Number of transplants in 2004                                          66              display at Selkirk College
   (as of April 22nd)                                                                                  •

   Kidney (cadaveric)                                                     22          Joanne O’Connor, Chris Stringer,
   Kidney (living donor)                                                  21              Barbara Murray, Denice
                                                                                        Thompson, Dorothea Gensch,
   Pancreas-Kidney                                                         3         and Bonnie Mellor, are part of the
   Pancreas Islet                                                          2           Organ Donor Awareness Week
   Liver (cadaveric)                                                      12            Planning Conmittee, and have
                                                                                     organized a number of promotional
   Heart                                                                   4
                                                                                        events during April, and have
   Single-Lung                                                             2               plans for more events in
   Double-Lung                                                             0                 the coming months.

                                                                                                        •

                                                                                       Teresa Koroll, and a group of
                                                                                       Victoria volunteers organized
                Don’t keep us in the dark                                             Victoria’s second annual Drive-
                                                                                      Thru for Life event on April 13th
  Have you moved?
                                                                                       If you’re interested in volunteering
  Name ________________________________________________________
                                                                                         with the BC Transplant Society
                                                                                                   please contact
  New Address _________________________________________________
                                                                                               Ken Donohue
   ____________________________________________________________
                                                                                              (604) 877-2240
                                                                                             1-800 663-6189
       No, I don’t want to receive future copies of the Transplant Times                Ken_Donohue@bcts.hnet.bc.ca
  Name ________________________________________________________

  Address _____________________________________________________                      Volunteers of the Quarter

        555 W. 12th Ave • Vancouver, BC • V5Z 3X7 • 1-800 663-6189                              Robin Tomlin
                                                                                                  Castlegar
If you would like to receive future copies of the Transplant Times electronically,
         via e-mail, please respond to Ken_Donohue@bcts.hnet.bc.ca                              Keri Williams
                                                                                                   Merritt

                                                                                            Victoria Volunteers

				
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