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    www.icare-ia.org



                 care News
                                                                                                                    Autumn, 2001
                                                                                                                         Issue 26




         I
ICARE’s mission
                                                                                    MasquerAIDS Ball Debuts Nov 30
                                                                                     The global theme for 2001 World AIDS
                                                                                     Day this year is “I care... Do you?” and to
                                                                                     show that we care, the staff at ICARE has
                                                                                     been working tirelessly to plan the first
                                                                                     annual MasquerAIDS Ball to benefit
                                                                                     those affected by HIV disease.

is to enrich the                                                                     The event will be held in the Ritchie Ball
quality of life for                                                                  Room at the Iowa Memorial Union on
                                                                                     Friday, November 30. The evening will
persons
                                                                                     begin at 6:30 p.m. with a cash bar. Hors
living with and                                                                      d’ oeuvres will also be served from 7:00
affected by HIV /                                                                    p.m.
AIDS. Through                                                                                                          continued on page 5
the distribution
of information
and services, we
                        Government Study Concerns HIV Educators and Activists
                       In a report issued July 20 at a                               Nothing new to report, except that the
aim to foster the
                       conference in Virginia, a joint study                         interpretations of this report by some
self-empower-
                       undertaken by the National Institutes                         health professionals and politicians
ment necessary         of Health (“NIH”) and Department of                           have some AIDS activists concerned.
to live produc-        Health and Human Services (“HHS”),
tively and posi-       we learned that condoms are effective                         What could be the problem?
tively in the face     barriers against STDs, including HIV.                                                          continued on page 6
of HIV / AIDS.
                      Also In This Issue...
                        How AIDS Is Killing Latinas...................................................................................... 2
                        HIV Prevention for the HIV infected ........................................................................ 3
                        A New Angle to HIV Care and Prevention Services .............................................. 4
                        How to Contact the Paid Staff ................................................................................... 7
                        A Memo From David Packard ................................................................................... 7
                        Autumn Wish List ....................................................................................................... 8
HIV And My Raza: Why AIDS Is Killing Young Latinas                                      Do We Know
For the last two years that I have        sex, and self-awareness and pride.            where You Live?
been a volunteer at ICARE, I have         These things are usually seen as the
worked to find ways to actively           province of married life, not youth.
agitate for education, social change,     Other issues such as religion and
and all those things that I hope will     gender roles also significantly impact
make the world a better place. In         the lives of young Latinas, either
that time, I have seen many               overtly or subtly. In fact, perhaps it is
outstanding ideas, programs,              the unspoken, generalized, traditional
projects, and people come in and out      idea of la mujer as it still exists (what a
of ICARE, all making a change for         woman is, does, and how she acts,
the better.                               primarily focused on the home and
                                          children) that most affects how a
Yet, every time I pick up a paper that    Latina sees herself.
mentions the HIV/AIDS epidemic,                                                         We’d like to thank all
every time I see another article          Though Latinas are gradually rising           of our readers who
praising the development of a new         up the economic ladder, far too many          have already contacted
drug for PWAs, I am reminded —            are still struggling as states go through     ICARE to make
there are still too many new cases,       recessions, as jobs shift and move with       corrections to their
and there are still proportionately far   trade treaties, and as labor loses force      mailing address.
more Latinas with AIDS than almost        in negotiations. Those who are
any other group (second-largest           dependent on seasonal labor often             If you’d like to receive
group with AIDS in the US). I am          find themselves subject to market             the ICARE News by
reminded that my “Raza” [Race] is         whim and work in unstable positions           email, please write to
affected by this in ways that directly    with no insurance, little job security,       newsletter@icare-ia.org
affect the social and cultural survival   and certainly no free time to educate         or log on to www.icare-
of a people. How did this happen,         themselves on the dangers of                  ia.org and click on
and how can we possibly prevent a         unprotected sex. In addition, some            “Newsletter” where
cultural disaster?                        Latino males do not always consider           you will be given the
                                          the importance of a condom during             opportunity to change
Latinas are affected by HIV/AIDS          sex, or see them as an affront. These         how you receive the
out of proportion to their numbers        are ideas Latinas and Latinos must            ICARE News. You can
for many reasons. For many Latinas.       confront together, for they are cultural      also download current
the price of something as simple as a     issues of a deep nature.                      and past issues of the
condom may be out of range or, even                                                     ICARE News from our
more likely, the purchase may be an       Even HIV prevention programming               website.
embarrassment. I can remember in          for Latinas is flawed. A movement has
high school the desperate search for      arisen to provide Spanish-language
some place that gave out condoms          materials, which is important, (even
without also giving out the guilt         though data shows that most Latinas
trips that always seemed to come          speak English in addition to Spanish),
along. Though times are changing          but little research has yet been done
and education with it, Latinas who        on how to reach Latinas. The cultural
are raised by fairly traditional          differences between a non-Latina/o
parents are often taught little about
condom use, sexuality, negotiating                                continued on page 3


                                                     2
  A Correction                                                            population, cultural issues,
                           Latinas                                        socioeconomic problems, and the
                                                 continued from page 2
                                                                          realities of everyday life. Effective
                           group and Latinas are significant in           programs incorporate the input of the
                           ways that easily impede education              community members and strive to
                           efforts if they are not attended to. Like      figure out a way to make the program
                           African-Americans, Latina/os have a            work for la Raza, in la Raza, and
                           heritage of being outsiders in their           through la Raza. In terms of
                           own land, of seeing gross distortions          education, you cannot ask for much
                           of character and stereotype, of being          else and in terms of a culture’s
                           the subject of unconcerned dismissal.          survival, you must ask for no less
In the last issue of the   The most successful HIV/AIDS                   than this.
ICARE News, we listed      education efforts for Latinas are those                                       Sam López
the volunteers who         which carefully consider the target
were recognized at
ICARE’s volunteer          HIV Prevention for People Living With HIV
recognition picnic on
Saturday, May 12.          In the last two decades, HIV preven-            Health has started just such a program
Unfortunately, the         tion has been concentrated on keeping this summer. The group meets every
chairman of our Board      the HIV negative population HIV                 other Wednesday from 12:00 P.M. until
of Directors, Dr. Todd     negative. Prevention providers didn’t           1 P.M. at the University of Iowa Hospi-
Simpson, was omitted.      target those already living with HIV            tals and Clinics. Participants may drop
Todd was given the         for fear of                                                                into our meeting
Fundraiser of the Year     increasing                                                                 room for snacks,
award for all of his       discrimi-       Risky behavior by positive people is not the               drinks, and great
hard work during our       nation          norm. Most of us take extraordinary steps to               discussion.
World AIDS Day             and             make sure that we are not infecting our                    Anyone living
fundraising drive last     stigma          partners, and we’re doing so without a whole               with HIV is
year and for the count-    against         lot of support. There aren’t massive public                welcome, and we
less hours that he put     the HIV         health interventions out there. There aren’t big           also welcome
in on the 14th Annual      positive        campaigns supporting us staying safe in our                friends, family
New Pioneer Coop /         popula-         relationships. We’re doing it of our own accord.           members, and
ICARE Pancake Break-       tion.                                                                      partners. If you
fast.                      People                      Terje Anderson, Deputy Executive Director      have any ques-
                           who were                     National Association of People with AIDS      tions regarding
Thank you for all of       diagnosed                                                                  this program or
your hard work Todd.       HIV                                                                        upcoming topics,
                           positive were referred to health care,          please contact Kristen Kidd at the
                           leaving prevention education for the            Johnson County Department of Public
                           HIV negative. Given the fact that an            Health by email at
                           HIV positive person is involved in              kkidd@co.johnson.ia.us or call (319)
                           every instance of HIV transmission, it          356-6038.
                           only makes sense to target the HIV
                                                                                                            Kristen Kidd
                           positive population for prevention
                           education and support.                                       Kristen is an HIV Outreach worker
                                                                                                 at the Johnson County
                           Johnson County Department of Public                             Department of Public Health


                                                           3
                                             A New Angle To HIV Care and Prevention Services
                                                                                                                                                 Those who have been
                                                                                                                                                 actively involved in
                                                                                                                                                 ICARE during the past
                                                                                                                                                 year will note that there
                                                                                                                                                 have been numerous
                                                                                                                                                 changes in how we do




                                                                                                                        Fundraising
                                                                                                                        Volunteers
                                                                                                                                                 things at ICARE. In his
                                                                                                                                                 first year at ICARE,
                                                                                                                                                 David Packard has
                                                                                                                                                 taken huge steps to
                                                                                                                                                 improve the services
                                                                                       Prevention & Education Program                            that we provide.
Iowa Center for AIDS Resources & Education




                                                                                            Program Coordinator




                                                                                                                        Prevention & Education
                                                                                               Joseph Dobbert

                                                                                                                                                 Beginning July 1, 2001,
                                                                                                                                                 the basic organizational

                                                                                                                             Volunteers
                                                                                                                                                 structure of the agency
                                                                                                                                                 was changed to address
          organizational chart




                                                                                                                                                 a need that most non-
                                                                  Executive Director




                                                                                                                                                 profit organizations
                                             Board of Directors
                                             Dr. Todd Simpson




                                                                   David Packard
                                                Board Chair




                                                                                                                                                 struggle with: how to
                                                                                                                                                 utilize unpaid staff.
                                                                                                                                                 There are five types of
                                                                                                                                                 volunteers at ICARE.
                                                                                       Direct Services Program




                                                                                                                                                 There are the volunteers
                                                                                                                        Direct Services
                                                                                           Ruth Beyerhelm




                                                                                                                          Volunteers




                                                                                                                                                 who oversee the opera-
                                                                                             Case Worker




                                                                                                                                                 tion of the agency and
                                                                                                                                                 set policy for the entire
                                                                                                                                                 organization. These
                                                                                                                                                 volunteers serve on the
                                                                                                                                                 Board of Directors.

                                                                                                                                                 By giving their time as
                                                                                                                        General Office Support




                                                                                                                                                 General Office Support
                                                                                                                                                 Volunteers, these staff
                                                                                                                             Volunteers




                                                                                                                                                 members help answer
                                                                                                                                                 telephones, provide
                                                                                                                                                 clerical support and
                                                                                                                                                 assist other staff in the
                                                                                                                                                 behind the scenes work
                                                                                                                                                 that must be done to
                                                                                                                                                 provide the outstanding
                                                                                                                                                 HIV care and preven-
                                                                                                                                                 tion services for which
                                                                                                                                                 ICARE has beecome
                                                                                                                                                 known.

                                                                                                                        4
Another important group                                                  MasquerAIDS
of behind the scenes                                                                       continued from page 1




                             I
volunteers are those who
serve as Fundraising
Volunteers. Our
                                 am     somebody’s         brother.
fundraising volunteers           am     somebody’s         aunt.          In addition to refreshments,
are responsible for rais-                                                 entertainment will be provided.
ing money to fund
                                 am     somebody’s         son.           There will also be live music and a
ICARE’s programs,                am     somebody’s         mother.        dance floor. Two bands will provide
including Emergency                                                       two distinct flavors of music
Financial Assistance
                                 am     somebody’s         sister.        throughout the evening. We have not
programs that help               am     somebodys’         daughter.      released the names of our performers
provide financial support                                                 yet but you can expect a very special
to those living with HIV
                                 am     somebody’s         uncle.         announcement in the coming weeks.
disease throughout               am     somebody’s         father.
Southeastern Iowa.                                                        A silent auction will also be held to
                                 am     somebody’s         friend.        raise money for those most affected
Under the supervision of
the Case Worker, our             care.                                    by HIV disease. World AIDS Day is
                                                                          also observed as “A Day Without
Direct Services Volun-                                                    Art” as a reminder that HIV has
teers provide the emo-                                                    devastated the artistic community.
tional and practical                                                      We intend for the silent auction to
support to our HIV                                                        offer a diverse selection but art will
positive clients and their   term interventions for high risk             be a special focus in honor of “A Day
loved ones. In addition, a   adolescents, a teen peer education           Without Art.” Donations are now
Direct Services Advisory     program and workshops for commu-             being accepted for items that can be
Committee is being           nity groups on topics ranging from           sold in the auction. Please contact
formed to address the        HIV 101 to effective communication           ICARE if you’d like to donate.
needs of those living with   strategies. We are also working with
HIV. The committee will      the Johnson County Department of             There will be a costume contest with
advise the Board as to the   Public Health to provide street out-         a prize awarded to the individual
needs of the HIV positive    reach and prevention programs for            with the most creative costume.
community. The commit-       men who have sex with men and                Costumes are optional however.
tee is open to all ICARE     injecting drug users. ICARE volun-           Those who choose not to create a
clients and any volun-       teers are hard at work on our website        costume will be given the option to
teers who are involved in    to provide prevention tools to rural         purchase a mask created by ICARE’s
the Direct Services Pro-     Southeastern Iowa with HIV infor-            peer education group the day of the
gram.                        mation set to be released in both            event.
                             English and Spanish before winter.
ICARE’s Prevention and                                                    Seating is limited. Reserved tables,
Education volunteers are     If you’d like to get involved and            which seat up to ten people, are on
working day and night        become part of the solution, down-           sale for $150. Individual tickets are
on programs targeting        load an application at www.icare-            available for $15 each. For
the most vulnerable          ia.org or call the office at (319) 338-      information or to order tickets, call
groups in society. Pre-      2135 and ask to have an application          ICARE at (319) 338-2135 or (888)338-
vention programs in-         mailed to you.                               2135.
clude structured long                                   Joseph Dobbert                             Joseph Dobbert

                                                       5
Condoms                                   the resignation of the CDC’s direc-
               continued from page 1      tor, Dr. Jeff Koplan. These groups
                                          claim that the CDC and other health
As Bay Area Reporter writer David         agencies have been misleading
Fraser pointed out, the fact that the     Americans and wasting money by
study did not have definitive             claiming condoms were effective
conclusions about how effective           barriers against STD transmission.
condom use was in preventing HPV,         However, Department of Health and
genital herpes, or syphilis has led       Human Services Director Tommy
some to read the report as indicating     Thompson declined to ask for Dr.
condoms are not effective barriers        Koplan’s resignation, and the CDC
against these STDs. However, as the       replied to these requests by reiterat-
study itself points out, “The Panel       ing its stance on the effectiveness of
                                          condom use.
                                                                                   You gain strength,
[stresses] that the absence of                                                     courage and
definitive conclusions reflected
inadequacies of the evidence              Activists are also alarmed that the      confidence by every
available and should not be               study excluded some of the highest-      experience in which
interpreted as proof of the adequacy      risk groups for HIV, including men       you really stop to look
or inadequacy of the condom” to           who have sex with men, and people        fear in the face. You
reduce STDs. In other words,              of color. The studies examined all
                                          involved penis-to-vagina
                                                                                   are able to say to
condoms are not the problem. The                                                   yourself, “I lived
study is the problem.                     intercourse, with nothing noting the
                                          effectiveness of condoms in anal or      through that horror. I
The CDC, which participated in the        oral sex. The study did note in a        can take the next
study, has reiterated its stance on the   relative risk model that a condom        thing that comes
effectiveness of condoms as a barrier     used with no breaks or leaks was one     along.”
against the spread of STDs. The NIH       hundred-percent effective in
study itself notes that most              preventing the spread of STDs.
                                                                                   ... You must do the
epidemiological studies weren’t
designed to check condom                  Even more confusing is Dr. Coburn’s      thing you think you
effectiveness or infection rates and      reading of a report which does not       cannot do.
condom use. In fact, the NIH study        even question whether or not
did not actually look at how effective    condoms are effective and his                Eleanor Roosevelt
condoms are in preventing the             subsequent declaration that, “the
                                          federal government has spent
                                                                                            (1884-1962)
spread of STDs; rather, it focused on
the flaws in past research on condom      hundreds of millions of dollars to
efficacy. The study even concluded        promote an unsubstantiated claim
that a condom used with no breaks         that promiscuity can be safe. We all
or leaks was one hundred percent          now know for a fact that is a lie.”
effective in preventing the               The fact, as we know it, is that those
transmission of HIV.                      who use condoms correctly every
                                          time they have sex almost never
Despite these conclusions, some           contract a sexually transmitted
groups and politicians, including         disease as a result of that activity.
Oklahoma Republican Tom Coburn,
who requested the study, called for                                  Sam López

                                                   6
Have Questions?
                                care
 Do you have a
 question about
 HIV disease?
                            I           Iowa Center for AIDS Res
                                        321 East First Street • Iow
                                        Phone
                                                                    ources and Education
                                                                    a City, Iowa • 52240-470
                                              (319)338-2135 • Fax (319
                                                                       )341-9828 • www.icare-ia

                                                                 MEMORANDUM
                                             from the desk of David G. Packard
                                                                                             3
                                                                                                .org



                                                                              , Executive Director

 Are you HIV positive        Our focus in this issue
                                                       of the ICARE News, as in
 and want to receive         issues, is education, adv                           all our
                                                        ocacy, and information
 services from ICARE?        concerning HIV/ AIDS for
                                                        people living with and
                             by HIV/AIDS. We strive                             affected
                                                     to provide news and inf
                             our newsletter of intere                        ormation in
 Does your group or          but we just can’t reach
                                                      st to our thousands of
                                                                              readers,
 organization want to                                 everyone through the ICA
                                                                               RE News.
 participate in an HIV      One way we spread the wor
 prevention group?                                     d is through our volunt
                            Volunteers are trained                             eers.
                                                    in HIV/AIDS information,
                            intervention, and educat
                                                      ion, and are the front
 Do you or your             combating misinformation                          line in
                                                       about the AIDS epidemic.
 organization want to       addition, volunteers pro                             In
                                                     vide educational servic
 host an information        groups small and large,                          es to
                                                     and the demand for these
 workshop about             educators is rising.
 HIV disease?
                             You can help. I invite
                                                     you to become a part of
                             dedicated group of people                        a
 Do you want to be           provide services and edu
                                                         who are actively workin
                                                                                  g to
 part of these or any                                 cation to our community
                             ICARE volunteer programs.                          through
 other ICARE                                             It is my hope that throug
                             education, the community                               h
 programs?                                             will come to a greater
                            tion of the impact of HIV                           recogni-
                                                         disease, and a better und
                            standing of daily issues                                er-
                                                       faced by those living wit
 If the answer to any                                                              h it.
 of these questions is      By becoming an advocate,
                                                       you can be an important
 YES please call or         ICARE’s work, helping to                             part of
                                                       provide education and
 email an ICARE staff       information to the genera
                                                       l public, policymakers,
                            care providers, and soc                              health
 member today.                                      ial scientists about the
                           circumstances and challe                            daily
                                                     nges faced by people liv
                           HIV/ AIDS. Much of our                             ing with
                                                    work is geared toward pro
                           much accurate informati                            viding as
        ICARE                                      on as we can, and we nee
                           people to provide it. The                         d more
  321 East First Street                                 importance of education
                           tool in stopping the spr                               as a
                                                     ead of AIDS cannot be ove
  Iowa City IA 52240       Please consider becoming                             rstated.
                                                      an ICARE volunteer. You
     (319)338-2135         a difference.                                        can make

 or reach us online at:
   www.icare-ia.org
   for a staff directory
                                               A United Way of Johnson County
   info@icare-ia.org                                                             Agency

    to email a general
   question to the staff
                                                       7
Icare News
321 East First Street • Iowa City Iowa • 52240-4703
    www.icare-ia.org • newsletter@icare-ia.org
                                                                               Électronic
                                                                                Edition
                                                                        www.icare-ia.org
                                                                               Issue 26
                                                                             Autumn, 2001




Wish List
Can’t donate               •   laundry detergent
cash right now?            •   Apple (or compatible) Laser Printers (2)
                           •   toilet paper and paper towels
Here is a list of items    •   trash bags
that we’re looking         •   facial tissue
for to use in the
office and give to
                           •   colored copy paper
clients. In many           •   candles
cases, your in-kind        •   dish towels
contributions may          •   envelopes
be treated like cash       •   greeting, birthday, holiday, thank you cards
donations for tax          •   light bulbs
purposes. Check            •   gift certificates (movies, gas, groceries, massages)
with your tax advisor      •   cleaning supplies
for details.
                           •   hand soap
                           •   pens, pencils and other office supplies

				
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