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Document Sample
Talking To
Your Center:
Building A
Project Team
February 2008
Training Overview:
Topic and Audience
• This presentation is for Cancer Center teams that are deciding
how best to Connect with caBIG™. We recommend that Leads
use it as a reference for identifying the different stakeholders to
engage in the process and establish what their roles may be.
Excerpts of this presentation, supplemented by other documents,
will then help in communicating with each of those groups.
• Topics:
• The Vision of caBIG™
• Requirements for Getting Connected with caBIG™
• Center caBIG™ Team Roles and Responsibilities
• Summary and Next Steps
Topic 1: The
Vision of caBIG™
Personalized Molecular Medicine
A Complex Continuum
Molecular Medicine
Clinical Research Imaging
Molecular Biology Pathology
caBIG™ Overview
caBIG™ is an information network enabling all constituencies in the
cancer community – researchers, clinicians, patients – to share data
and knowledge to accelerate the discovery of new diagnostics and
therapeutics, and improve patient outcomes.
caBIG™ Vision
• Adapt or Build tools for collecting, analyzing, integrating and
disseminating information associated with cancer research and
care.
• Connect the cancer research community through a shareable,
interoperable infrastructure.
• Deploy and Extend standard rules and a common language to
more easily share information.
caBIG™: From Pilot to Enterprise
• An unprecedented effort to
connect people, organizations,
and data throughout the cancer
research community
• Pilot Phase (2003-2007)
• 190 participating organizations
• 300 software components
• 40+ end-user applications
• caGrid network that “connects” everyone
• 45+ peer-reviewed publications
• Initial Deployment (2007-2008)
• 43 of 63 NCI Designated Cancer Centers
16 of 16 NCI Community Cancer Centers
caBIG™ Benefits
• Facilitate collaborative research.
Basic
• Increase the research potential from Researcher
data sets and accelerate the extension
Patients
to diagnosis and treatment.
• Get access to and share biomedical Cancer
Center
research data, within our Center and Director
with collaborators.
• Learn about the tools and resources to Bio-Pharma
share, and promote our research with Clinical
Researcher
others.
The increased data sharing made possible by Getting Connected with caBIG™
increases the effectiveness and efficiency of cancer research, helping individual
scientists, the cancer research community, and – ultimately – the patients.
Topic 2: Getting
Connected with
caBIG™
caBIG™ Deployment Expectations
1. Deploy a functional caGrid node that will connect to the national
infrastructure to enable data sharing
2. Meaningfully deploy caBIG™ tools and infrastructure through
adopting and/or adapting applications
3. Participate in developing caBIG™ Data Sharing and Security
Framework
Final Goal: Use caBIG™ infrastructure and tools to promote
collaborative research within and between Centers
These Steps Will Get Us Connected
We are here
Self-Assessment Center caBIG™ Implementation Implementation
Goals Plan
We have assessed Where does our Center How will our Center get Getting There!
where we are now want to be? there?
• We completed and • Define Center caBIG™ • Develop our Center’s • Acquire resources
submitted our Center’s Goals and obtain sign-off caBIG™ Implementation required for caBIG™
Self-Assessment from Cancer Center Plan with sign-off from implementation
• The Center caBIG™ Director Cancer Center Director • Implement caBIG™ at our
Capabilities Report • Submit Center caBIG™ • Submit caBIG™ Center
provided by NCI based on Goals Implementation Plan • Deploy functional caGrid
our Self-Assessment will • Explore data and analytic • Work with the caBIG™ node
help us define our goals resources to share via team to validate our • Adopt or adapt
and evaluate gaps caGrid caBIG™ Implementation applications
• Explore potential resource Plan • Participate in developing
sharing agreements and Data Sharing and Security
policies Framework
Defining the Center’s caBIG™ Goals
What data will we share? With whom do we need to share data?
caBIG™ Goals
(What software tools can help?)
How do we want to improve How do we want to streamline
our data collection and management? our data analysis?
Creating an Implementation Plan
Having evaluated observations from
Having defined data to share
the Capability Report
What tools will we implement?
How will we do it?
What resources will we need?
Who will be involved?
What are our desired outcomes?
Having identified improvements Having targeted how to
to data collection and management streamline data analysis
Implementation
Develop data policies and security Build/modify data models
• Deploy a caGrid Node
• Install caBIG™ compatible software
• Meaningfully share data
Develop processes and procedures Provide technical development for
to support new software technologists and train end users
Topic 3: Center
caBIG™ Team
Roles and
Responsibilities
caBIG™ Scope of Impact
• caBIG™ is an Enterprise project – not
just an IT or research initiative.
• Connecting involves:
Complex decisions impacting groups and
users across the organization.
Integration of new workflows, data
requirements, and perhaps new systems.
New data sharing complexities and
opportunities.
The project team will involve people from all areas of our
organization.
Senior Leadership
Role
• Provide vision and direction for the Center caBIG™ deployment.
• Ensure that the Center caBIG™ goals are aligned with overall Center goals.
• Approve Center caBIG™ Goals and Implementation Plan.
Responsibilities
• Define mission and key goals, and communicate benefits to key stakeholders.
• Provide guidance to the Deployment Lead.
• Approve Center caBIG™ Goals.
• Approve Implementation Plan and identify high priority activities.
• Support resource allocations needed to implement plans.
• Ensure that the deployment lead has the contacts and resources needed
for success.
End Users
Role
• Help evaluate caBIG™ tools and determine points of possible integration
with – or in placement of – existing tools in research domains.
• Provide subject matter expertise, support future workflow changes,
and aid in the training of other end users.
Responsibilities
• Work with Deployment Lead and technologists to identify options for adopting
or adapting tools.
• Establish evaluation and success criteria for specific deployment activities
within a domain.
• Identify data sharing opportunities both in the domain of interest, and with
respect to specific tools.
• Support implementation by leading workflow adjustments, training users, and
acting as a subject matter expert.
Policy and Regulatory
Role
• Support the establishment of data sharing and security policies that support
caBIG™ goals.
• Inform caBIG™ Program Management about new regulatory, legal, and ethical
requirements that may impact others connecting with caBIG™.
Responsibilities
• Identify key individuals involved in regulatory, privacy and proprietary issues
to serve on the deployment team.
• Outline plans and success factors for participating in the caBIG™ Data
Sharing and Security Framework.
• Prepare local policies and processes that implement the caBIG™ Data
Sharing and Security Framework.
• Facilitate data sharing agreements, and ensure adherence to related
rules and guidelines.
• Share local practices with the broader caBIG™ community (e.g., template
documents that have worked for the organization and may work for others).
Technologists
Role
• Deploy caBIG™ infrastructure and tools.
• Harmonize local vocabularies, standards, and data models with the
caBIG™ program.
• Connect caBIG™ support resources with local support needs.
Responsibilities
• Evaluate caBIG™ infrastructure and tool options against end-user
and policy needs.
• Develop evaluation criteria for tool selection process with end users.
• Implement caBIG™ plans to meet evaluation criteria set by the team.
• Help identify resource requirements for connecting with caBIG™, including
staffing, contract support, software, and infrastructure needs.
• Determine when a caGrid node is expected to be functional at the Center
and identify required success factors.
• Support implementation and use of caBIG™ compatible tools.
Topic 4:
Summary and
Next Steps
caBIG™ Deployment Expectations
1. Deploy a functional caGrid node that will connect to the national
infrastructure to enable data sharing
2. Meaningfully deploy caBIG™ tools and infrastructure through
adopting and/or adapting applications
3. Participate in developing caBIG™ Data Sharing and Security
Framework
Final Goal: Use caBIG™ infrastructure and tools to promote
collaborative research within and between Centers.
These Steps Will Get Us Connected
We are here
Self-Assessment Center caBIG™ Implementation Implementation
Goals Plan
We have assessed Where does our Center How will our Center get Getting There!
where we are now want to be? there?
• We completed and • Define Center caBIG™ • Develop our Center’s • Acquire resources
submitted our Center’s Goals and obtain sign-off caBIG™ Implementation required for caBIG™
Self-Assessment from Cancer Center Plan with sign-off from implementation
• The Center caBIG™ Director Cancer Center Director • Implement caBIG™ at our
Capabilities Report • Submit Center caBIG™ • Submit caBIG™ Center
provided by NCI based on Goals Implementation Plan • Deploy functional caGrid
our Self-Assessment will • Explore data and analytic • Work with the caBIG™ node
help us define our goals resources to share via team to validate our • Adopt or adapt
and evaluate gaps caGrid caBIG™ Implementation applications
• Explore potential resource Plan • Participate in developing
sharing agreements and Data Sharing and Security
policies Framework
Next Steps
• Learn about caBIG™
• Create timetable for Center caBIG™
Goals and Implementation planning
activities
• Review Center caBIG™ Capability
Reports
• Identify subject matter experts to
serve on the deployment team
• Identify adopt/adapt strategies
• Develop Center caBIG™ Goals and
Implementation Plans
The project team will break into task or workspace groups to
work on next steps.
Lesson 1: Introduction to caBIG™
Determining the Forward Path
Determining our specific path to connect with caBIG™ will
require collaboration and involvement by domain decision-
makers, end users, technical experts, and policy team
members.
• Next Steps:
• Determine target research domains across the institutions for
connecting with caBIG™ – driven in part by the kinds of data we
are willing to and want to share with others who are connecting
• Identify the team that can drive the decisions required in those
domains
• Establish our goals and a path to implementation
Next Steps – Resources
• To send in a specific question about caBIG™, write to:
caBIGconnect@cancer.gov
• caBIG™ Essentials Training provides more information for all
audience groups:
https://cabig.nci.nih.gov/training/cabigessentials/player.html
• Tools pages on caBIG™ website provide a full listing of caBIG™
tools – with information to support their use:
https://cabig.nci.nih.gov/tools/
Learning about caBIG™
Resource End Technology Regulatory
Users Audiences Audiences
caBIG™ Essentials Training: X X X
Lesson 1: Introduction to caBIG
caBIG™ Essentials Training: X X X
Lesson 2: caBIG™ Self-Assessment & Tools Overview
caBIG™ Essentials Training: X X
Lesson 3: Focus on Clinical Trials Compatibility Framework
caBIG™ Essentials Training: X X
Lesson 4: Focus on Life Sciences Distribution
caBIG™ Essentials Training: X
Lesson 5: Making A Tool caBIG™ Compatible – Overview
caBIG™ Essentials Training: X
Lesson 6: Focus on the Grid
caBIG™ Essentials Training: X X
Lesson 7: Focus on caBIG™ Data Sharing and Security Framework
Center caBIG™ Capability Reports X X X
Tool Landing Pages X X X
Tool Documentation and Training X X
caBIG™ Links Newsletter
To stay updated on
caBIG™ in Action,
subscribe to the LINKS
newsletter at:
http://cabig.cancer.gov/
email_signup.asp
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