FA L L
A NEW PEACE OF MIND
INSTITUTE: THE BRAINS
BEHIND THE BRAINS
BETTER CARE WITH
ST. JOSEPH’S AND THE U OF A
COLLEGE OF MEDICINE
DOCTALK WITH DR. JAN PIATT
OF THE BILL HOLT HIV CLINIC
CAMI AND JEFFRY KING HONOR
THEIR DAUGHTER JAYDIE LYNN
S T O R I E S O F I N S P I R AT I O N ,
C O M PA S S I O N &
P H O E N I X C H I L D R E N ’ S H O S P I TA L FO U N D AT I O N
EDITORIAL BOARD MEMBERS
HOPES&DREAMS Phoenix Children’s Hospital Foundation Board Members
Chairman: Richard Kuhle, Vestar Development Company
Hopes and Dreams is published three times each year by the Phoenix
Secretary: Sheila Zuieback, Halle Family Foundation
Children’s Hospital Foundation. To share your comments, call (602)
PCH President and CEO: Robert L. Meyer
546-2668 or email email@example.com. If you would
PCH Senior Vice President, Chief Development Ofﬁcer: Steven S. Schnall
like to receive additional issues of Hopes and Dreams call (602) 546-
David G. Areghini, Salt River Project
Larry Clemmensen, Community Volunteer
SENIOR VICE PRESIDENT AND
Greg Kruzel, Braun Siler Kruzel PC
CHIEF DEVELOPMENT OFFICER:
Mark Love, LKL Partners
Steve S. Schnall
Keith Maio, National Bank of Arizona
EDITOR: Manny Molina, Molina Media Group
Cheriese Chambers Frank Placenti, Squire, Sanders & Dempsey
Ben Quayle, Tynwald Capital, LLC
David A. Ralston, Bank of Arizona
Patient proﬁle photos by Michael Gray Photography.
Brian Swartz, Apollo Group, Inc.
Additional photos by Ben Arnold Photography
Julie Vogel, Community Volunteer
DESIGN: Melani Walton, Community Volunteer
Havice Design: www.havicedesign.com David Watson, Revolution Tea
Director Emeritus: Herbert J. Louis, M.D.
Commercial Communications, Inc.
HOPES & DREAMS P2
A MESSAGE FROM
STEVE SCHNALL When I was 10 years old I he
during their annual Radiothon ard about Phoenix Children’s Hospital
walked around my neighborhood I wanted to help raise money, and
from my neighbors. with a burlap bag collecting loo
Six years later in 2007 I wa
ambulance after having severe s brought to Phoenix Children’s in an
had my ﬁrst of six surgeries, ﬂu-like symptoms. That night in April I
infection in my abdominal cav and was diagnosed with a rare bacterial
found out when I awoke that ity. I was sedated for the ﬁrst week, and
was touch and go. After suffe there were times when my situation
I only had a 50/50 chance of ring from septic shock, doctors knew that
will be forever grateful to our surviving. I did, and my family and I
Children’s who helped me throu ctors, nurses, and everyone at Phoenix
gh that time.
My stay at Phoenix Children’s
the direction of it. I am curre not only saved my life, it forever changed
University of Arizona. And thntly studying to be a nurse at the
working with the nurses on this summer I volunteered at the Hospital,
Department prepare for Camp e second ﬂoor and helping the Nephrology
What motivates someone to give to an organization? It can be for good and work with childrenMaska. After graduation I want to return
a personal reason…to support a cause that has a direct impact give back to the Hospital that and teens at Phoenix Children’s - and
has given so much to me and
on your own life, or the life of a person close to you. Some my family.
are driven by the desire to make their neighborhood and We never thought we would
community a better place. Others are gratiﬁed to help someone ne
thankful it was there for us wh ed Phoenix Children’s, but we are so
all of the people who have giv en we did. I want to personally thank
in crisis, whether they know that person or not.
and to know how important en to Phoenix Children’s over the years,
We are grateful to have the support of generous people for all of that support was in our tim
these reasons. Parents, grandparents, friends, neighbors, and co- e of need.
workers, whose lives were touched by a child who was treated
here. Former patients whose lives were saved by our physicians.
People from other foundations and organizations who see
ﬁrsthand the impact we have the ability to make. Those who
genuinely care about improving the health and lives of sick
children they’ve never even met. And philanthropists who
invest in Phoenix Children’s because they understand the signiﬁcance
of having a world-class pediatric hospital in our community and state.
It goes without saying that regardless of the reason, people want to know that
their gifts are used wisely. Donations to Phoenix Children’s help fund imperative
research, cutting-edge technology and equipment, community outreach programs ms
that prevent children from becoming patients in the ﬁrst place, and services
that help our patients and families heal physically and emotionally. Community y
support allows us to provide world-class medical programs by leading physicians.
It helps us grow so we are not only bigger, but better.
At Phoenix Children’s, careful thought and planning goes into every decision
we make, from how we operate our organization to how we invest in it. And d
at the core of every decision is our resolve to improve the health and lives of g )
children – the thousands we are treating now, and countless more who will her friends at
need our care in the future. You can help make that possible by joining us in iver it
a Univ sity
our mission. Arizona
SENIOR VICE PRESIDENT & CHIEF DEVELOPMENT OFFICER
P1 HOPES & DREAMS
AROUND THE HOSPITAL
e i t
Left to right:
BOMBECK DIALYSIS CENTER CELEBRATES 5 YEARS e D
Mark Joseph, MD,
i o c
In April, Phoenix Children’s Hospital celebrated the ﬁve year n o r e
and Robert Meyer,
anniversary of the Bombeck Dialysis Center, the only dedicated E
pediatric dialysis program in Arizona. From 2007 to 2009, Phoenix
Children’s performed 18,155 peritoneal dialysis treatments. “The patient
volume has grown so rapidly that we recently opened the center from three to six days
each week,” says nephrologist Mark Joseph, MD. The center is part of the Department
of Nephrology, home to the state’s only pediatric kidney transplant program, with 72
transplants performed to date. The Bombeck family donated more than $825,000 to
underwrite the center – a gift that had special signiﬁcance. Bill Bombeck’s ﬁrst wife,
Erma, the famous author and humorist, died in 1996 of complications following a
kidney transplant. Carol, his second wife, lost two sons to kidney disease. “People aren’t
really aware of the need, at least until someone close to them gets on the transplant list.
Then it becomes a real life-and-death matter,” said Bill Bombeck at the event. i ivi lysi
patient ecei ing alysis
A p tient receiving dialy is
CNI PHYSICIANS EARN COVETED GRANTS
P. David Adelson, MD, director of the Hospital’s Children’s Neuroscience
Institute, and Jeffrey Buchhalter, MD, chief of the Division of Neurology, have
earned grants from the Arizona Biomedical Research Commission. Adelson,
in partnership with co-investigator Dr. Stephen Tillery of ASU, received
$457,000 over three years to fund a study that will support further development
of computer technology that will help patients with neurological disorders use
the power of their brain to create movement. Buchhalter’s grant totals $300,000
over three years to fund his study, “Implementation of a Research Patient Data
Repository at PCH,” on which he’s partnered with co-investigators Robert
Greenes, Bob Sarnecki, Douglas Fridsma, and Craig Parker.
DOCTOR HONORED FOR
David Beyda, MD, a critical care doctor at OFFERED IN RADIOLOGY
Phoenix Children’s, was recognized by the The Radiology Department at
Arizona American Academy of Pediatrics Phoenix Children’s was approved
with their inaugural Humanitarian Award for by the Accreditation Council for
his extraordinary efforts to provide medical Graduate Medical Education to
care to children in need around the world. As offer a new pediatric radiology
director of the Mission of Mercy’s medical fellowship program. The fellowship
program, Beyda is responsible for the medical program, the only one of its kind
care of 40,000 children that the agency cares in the state, began in July. The
for in 22 countries. He and his team made department, which recently added
several trips to Haiti following the catastrophic the state’s only Center for Pediatric
earthquake earlier this year, providing more bin, d visi
h d Towbi MD, division chi f
Richard Towbin MD division ch ef hi
Interventional Radiology, performs
f diatric Radiol gy.
of Pediatric Radiology
than 600 pounds of medicine and examining about 90,000 studies each year, up
more than 1,000 children. He has since made from 30,000 just three years ago. That
two humanitarian trips to India and one to number is expected to exceed 100,000 in the next two years when the growing
Kenya. Beyda was the ﬁrst pediatric intensivist department will occupy 45,000 square feet of the ﬁrst ﬂoor of the Hospital’s
at Phoenix Children’s and helped develop the new patient tower.
Hospital’s Pediatric Intensive Care Unit.
HOPES & DREAMS P4
News from the
Center for Cancer and Blood Disorders
The Mayo Clinic Arizona/Phoenix Children’s Hospital
HELPING FAMILIES collaboration is now the largest Blood and Marrow Transplant
(BMT) program in the state according to the National Marrow
AFFECTED BY Donor Program (NMDP). Between June 1, 2008 and May
DOWN SYNDROME 30, 2009, the BMT program performed 122 transplants of all
More than 5,400 babies are born in the U.S. with types. And when it comes to the success of our patients, the
Down syndrome each year – children who are more program is doing better than the national average. Between
at risk for conditions like congenital heart disease, 2003 and 2007, the one-year survival rate for unrelated
epilepsy, thyroid disorders, and even malignancies. transplants facilitated by NMDP at Mayo Clinic Arizona and
Phoenix Children’s hosted a seminar in May for Phoenix Children’s Hospital was 76 percent, compared to a
families of children with Down syndrome to highlight national average of 66 percent for low-risk patients.
recent advances in medical treatment. Physicians and
specialists covered topics like audiology, cardiology,
sleep apnea, oncology, and nutrition. d m
Roberta Adams, MD D
f e d
director of the Blood
and Marrow Transplant
m h t
Program, with a patient.
PATIENTS THANK FIRST RESPONDERS
Governor Jan Brewer marked May 19 as a day to honor
the state’s Emergency Medical Services responders.
That day physicians, specialists, and patients gathered at
Phoenix Children’s to thank the state’s ﬁrst responders MARROWTHON SAVES LIVES
for contributing to child safety and helping save the lives
The BMT Program hosted a
of children throughout Arizona.
Marrowthon Registry Recruitment
campaign in May, where 383
Photo below right: Alex (right) was airlifted to the employees, hospital families, and
Phoe i Child
Ph nix Children’s Level I Pediatric Trauma Centerenter community members all registered
after suffering massive internal j i
after suffering massive internal injuries from an ATV during the event. Each year more than 10,000
accident. His parents believe his on-the-scene care
p s believe his on-the scene car
e are people are diagnosed with life-threatening diseases such as
and immediate access to leukemia and lymphoma, and need the marrow of an unrelated
Ph donor to live. If you would like to be part of the registry visit
saved his life
saved his life. www.marrow.org/join.
CARDON PHYSICIANS JOIN PCH
Drs. Jim Williams, Sanjay Shah, and Meenakshi (Meena)
Goyal-Khemka, the pediatric hematology/oncology practice
formerly with Cardon Children’s Medical Center, recently
joined the Phoenix Children’s Medical Group and the
Hospital’s Center for Cancer and Blood Disorders. Williams
is a solid tumor expert who has served as a lead in the
Children’s Oncology Group sarcoma program; Shah is an
expert in bleeding disorders; and Goyal-Khemka has helped
Photo above left: Sergeant Mic
Photo above left: Sergeant icha
Photo above left: Sergeant Michael Boccino (center))
build several new pediatric hematology/oncology practices.
f the Maricop ff’s
of the Maricopa Sherriff Department received
They will maintain their close ties to the East Valley by also
(l f ) d
an emotional thank you from Angela (left) and her
offering services at the Phoenix Children’s Specialty and
daughter Mia (right) at the event Boccino was ﬁrst on
daught Mia (right) at the event. Boccino was ﬁrst on
Urgent Care – East Valley Center in Mesa.
the scene when Mia s foot y h
the scene when Mia’s foot was nearly severed from her
leg during a boating accident at Lake Saguaro in 2008.
P5 HOPES & DREAMS
AROUND THE HOSPITAL
A pair of pink ballet slippers
CHILDREN’S MARCH ON CHILD ABUSE n m s n
was donated by James and
Sasha Motz, whose daughter
Phoenix Children’s launched Child Abuse n h k
Lily (center) was shaken by a
Prevention Month in March with a display of y m
relative who was babysitting her at the time.
shoes from caregivers, paramedics, ﬁre and police s n g e h
Lily was treated and diagnosed with Shaken
ofﬁcers, families, and friends that symbolized the y e n e s
Baby Syndrome by the Phoenix Children’s
s 0 e r
Forensic Team in 2008. She is now 4-years-
51 deaths from child abuse throughout Arizona
old and attending school. l
last year. Phoenix Children’s physicians and staff
members treated 543 cases of neglect
and abuse in 2009. Of those, six The
Th Forensics Te discusses a case.
n i Team di c s
were fatalities. “Armed with this h m n r e
Drs. Stephanie Zimmerman (far left)
kind of data, it’s no wonder our staff and Je ifer Geyer (third fr right)
an Jennif e d from g
and administrators are passionately of o i d e o g e
of Phoenix Children’s were among the
committed to preventing child abuse,” ﬁrst group of physicians in the country
ﬁr p y
says emergency room physician and this year to become board certiﬁed in
th e o r iﬁ
Forensic Team member, Stephanie ch s
The Inaugural Children’s March was held in
April at the Phoenix Zoo, raising $12,000 for the
Hospital’s Child Abuse Prevention Programs that
include Project S.A.F.E. (Supporting a Family –
Friendly Environment), the Adverse Childhood
Experiences Consortium, the Shaken Baby
Prevention Project, and Stewards for Children.
Verizon also offered a $5,000 sponsorship at the
event that included more than 300 walkers.
HOSPITAL HIGHLIGHTS WATER SAFETY
il t f d n
Silhouettes of children
pe n a s
represented Arizona kids
Fourteen children have drowned in Maricopa County
h r v ae
who were involved in water
alone so far this year. Valley school teacher Druann
l e e 0 9
related incidents in 2009,
Letter, knows how quickly it can happen and how
including 17 who died.d
devastating it can be. Her son, Weston, drowned more
than a decade ago in the family’s backyard pool at
age 4. She has since worked tirelessly to advocate for
water safety, eventually creating the Water Watcher’s
injury prevention program at Phoenix Children’s. This
was the eleventh year Water Safety Day concluded the
six-week curriculum course for ﬁrst-grade students
across the Valley of the Sun. Held at Glendale
Community College, more than 1,100 students learned
about water safety ﬁrsthand. Arizona’s innovative
drowning prevention programs and collaborations have
helped the state’s child drowning rate fall to the lowest
per capita levels in 20 years. Thanks to sponsors
Valley Toyota Dealers, SRP Safety Connection, and
La-Z-Boy Furniture Galleries.
HOPES & DREAMS P6
A WIN FOR COMEBACK
Corona del Sol high school pitcher Brett Butler was ies
pati t tri he o
A p tient tries on the crown
selected as the ﬁrst “Comeback Student Athlete of the of Mrs. Arizona America
f The beauty queens pose on
Year” and received a $2,500 scholarship. The contest, a 2010, Corrie Francis
2010 Corrie Francis. h l layg
the Hospital’s pl round
the Hospital s playground.
partnership between the PCH Sports Medicine for Young
Athletes Program and KPNX Channel 12, rewards BEAUTY QUEENS VISIT PATIENTS
outstanding young athletes who have returned to athletic
competition after receiving treatment for an illness or Patients were treated to a visit by the young women vying for the Miss
injury. Three years ago Butler was diagnosed with a brain Arizona crown. The pageant contestants toured the Hospital this summer
tumor that was causing severe seizures. He had the tumor and spent time playing and talking with patients. Children’s Miracle
removed but the operation left him paralyzed on his right Network, which raises funds and awareness for Phoenix Children’s is
side. After a lengthy rehabilitation, Butler eventually the ofﬁcial national platform for the Miss America organization.
returned to the Aztecs cross country team and even back
to the pitching mound. The 28 weekly winners were
highlighted on Channel 12’s “Friday Night Fever” and
“Sports Tonight!” shows. Butler was chosen by a panel EARTH DAY RALLY
of community judges and announced the winner at a
banquet emceed by 12News sports anchor Bruce Cooper. More than one billion people
Tayler Renshaw was voted by Facebook fans as the “Fan around the world took action for the
Fave.” She returned to play soccer for Xavier College 40th anniversary of Earth Day in
Preparatory after being treated for Crohn’s disease. Both April. At Phoenix Children’s, the
Butler and Renshaw received a $1,000 cash prize for Community Outreach Department hosted two
More than 200
More than 200
their schools’ athletic programs. fun-ﬁlled events for patients, families, and
old car seats
employees. Radio Disney was on hand at the
Hospital’s Out Back Café where kids learned
during the event
during the event.
everything green about bike riding and bike
T C m a ack t d n
The “Comebac Student routes. Across town at Tempe Marketplace,
Athlete of the Year” the Hospital held the second annual “Keep Our Planet Neat, Recycle
t l i n
Brett Butler with Arizona Your Car Seat” demolition event, where several volunteers, Miss
d na a
Cardinals player Chris Arizona, and FOX 10’s Cory McCloskey dismantled car seats, while
a i ” l
“Beanie” Wells. trained technicians checked car seat installations and answered
questions about car seat safety. The event was sponsored by the
Hospital, Western Reﬁning, and Safe Kids Maricopa County.
A BONUS ROUND AT PCH
The popular game show “Wheel of Fortune”
taped several segments live from Phoenix
Children’s in April during “Sonoran Living Live”
on ABC 15. It was part of a national tour by the
game show, giving away $5,000 to a Phoenix area
viewer each day for one week if they could solve
the daily puzzle. The game show’s mascot visited
The n f f i ht: Brooke Alden
The ﬁnalists from left to right Brooke Alden
the Hospital to hand out prizes and gifts to patients.
Sun l D ek
of Sunrise Mountain High School; Derek
h l Nath
Owens of McClintock High School; N han
Riech f Basha Hig School; Zack Hubb
Riech of Basha High School; Zack Hubbard
of Desert Vista High School; Cardinals HEALTH INFORMATION AT YOUR FINGERTIPS
player Chris Beanie” Wells; Car
player Chris “Beanie Wells; Ca ter Bennett
of Scottsdale Christian Academy; and winner
f d l i i Academy; and winner Check out the new Phoenix Children’s website at
Brett Butler. Not pictured i ﬁnalist Jeffrey
i d is li t ff www.phoenixchildrens.com. Click on the “Health Information” tab
Petznick of Chaparral High School. for a comprehensive pediatric health library with recent health news,
diagnostic tests, procedure guides, and more.
P7 HOPES & DREAMS
CEO Robert Meyer
Collaborating for Better Care
Phoenix Children’s Hospital and CHW/St. Joseph’s Does the alliance with St. Joseph’s represent a
Hospital and Medical Center announced a landmark ﬁnancial savings?
alliance to transition pediatric care to the Phoenix While economics wasn’t the reason for pursuing this alliance,ce,
Children’s campus by 2011. Recently, the Hospital the reality is that cuts in state funding have dramatically
announced another agreement – this one with the impacted both organizations. This will help maximize
University of Arizona College of Medicine — Phoenix. efﬁcient use of resources. But the overriding motivation is to
provide children and this community with the absolute best t
Below, Robert Meyer, president and CEO of Phoenix medical care available in the world.
Children’s, explains the importance of both afﬁliations,
and how they will expand the breadth and depth of How will the alliance with St. Joseph’s be implemented? ed?
research conducted in Arizona and elevate the care Top level executives, physicians, and other employees of
offered to children (and even adults) with the most both organizations have been meeting to determine how
complex illnesses. the different departments and divisions will operate once
the formal integration is completed. We have conducted a
What will happen as a result of the alliance series of “town hall” meetings with the pediatric staff of St.
with St. Joseph’s? Joseph’s to answer questions and give them an introduction
They will transfer a substantial portion of their pediatric to our Hospital. This will continue through the transaction,
services to Phoenix Children’s. By 2011 we will unite much of which is expected to happen in mid-2011.
the pediatric medical staff of both organizations on the Phoenix
Children’s campus. This is not a merger, but a strategic alliance Will their pediatric employees now be employed by
where their parent, San Francisco-based Catholic Healthcare Phoenix Children’s?
West, will be a minority member of Phoenix Children’s with Right now employees are continuing to work for their existing
representation on our board of directors. employer. But negotiations will involve the ultimate goal of
transferring most of the St. Joseph’s pediatric staff to Phoenix
And the agreement with University of Arizona Children’s when the new patient tower opens, enabling us to
College of Medicine — Phoenix? immediately staff our new Hospital with high quality and
They have designated Phoenix Children’s as their principal exceptionally-trained professionals from their organization.
pediatric afﬁliate and we have named them our principal
academic afﬁliate. Overall, this will elevate the research and How will our agreement with University of Arizona
education at Phoenix Children’s to a level on par with top College of Medicine — Phoenix improve patient care?
children’s hospitals across the country. In turn, it positions them Research is critical when it comes to treating, preventing,
as one of the nation’s premier medical schools for pediatrics. and curing childhood disease. This agreement really sets the
stage for an aligned research program that will take pediatric
What is the goal for the strategic alliance research in Arizona to the next level. Of course, research is
with St. Joseph’s? also extremely expensive. Now we can collaborate on grants,
Our shared vision is that Phoenix Children’s will be the donations, third-party reimbursement and federal and state
premier pediatric medical center in the Southwest. The graduate medical education funds.
combination of pediatric services takes advantage of our
combined expertise, and will help create one of the largest What are some other ways this beneﬁts the community?
and best children’s hospitals in the nation.…one that is Right now there’s a shortage of pediatricians, and that
supported by innovative research and education. It will situation will only worsen as our community grows. This
also help us with recruitment and development of more agreement will not only allow us to expand fellowship
comprehensive programs. But it’s important to note that programs, and help us train and retain our own physicians,
it won’t just improve pediatric care in our state, but adult but will help both organizations attract top physicians and
care as well. The alliance allows St. Joseph’s to expand scientists from across the country.
services for adult care in areas like neurosurgery, neurology,
cardiology, pulmonology, and more.
e a w
The alliance between Phoenix Children’s and St. Joseph’s was
n h e d e a
n n n w r y m r
announced in New York City’s Times Square.
HOPES & DREAMS P8
P9 HOPES & DREAMS
A New Peace ofMind
Chevelle’s second birthday party this past April was a “coming out” party of
sorts. When the guests arrived they were met with an entirely new toddler, so
different from the Chevelle they knew before that they almost had to see it to
believe it. The once lethargic toddler was alert and active, playing with her
cousins and friends, and excited to see the house decked out in “Yo Gabba
Gabba!” party décor – her favorite television show.
It’s hard to believe that just three months earlier, Chevelle had the entire left
half of her brain removed – a dramatic surgery to cure the endless seizures
she had been plagued with since the day she was born.
This story doesn’t begin in Phoenix, but 1,800 miles away in the
charming town of Henderson, Kentucky. And the people who
brought her to Phoenix Children’s Hospital for the surgery weren’t
her mother and father, but her devoted grandparents, Melissa
and David Onyette, who have lovingly cared for Chevelle since
she was born and obtained legal custody of her when she was 8
From the time the newborn came home from the hospital,
Melissa’s instincts told her that something wasn’t right. There
were moments when Chevelle would jerk from side to side. “It
was like a crunching. She’d just fold herself into a ball like she
was having spasms. It just went on and on,” says Melissa. But
doctors continued to tell the family that everything was normal.
“I ﬁnally stepped in and told her pediatrician that enough was
enough. I wanted tests done to see what was going on.”
An EEG at 6 weeks showed that Chevelle, indeed, was having
constant seizures. But it wasn’t until after the MRI that David
and Melissa realized the gravity of their granddaughter’s
condition. “When the doctors came in after the MRI there
wasn’t just one doctor, but a whole team of them to explain
what was going on,” says Melissa. “That really scared us. Our
hearts just stopped.”
The entire left side of Chevelle’s brain was affected with benign
tumors, a condition called tuberous sclerosis. There was only one
small section of Chevelle’s frontal lobe – about the size of a 50-cent
piece – that wasn’t affected. “It was totally shocking. We hadn’t even
HOPES & DREAMS P10
heard of this before and they The grandparents’ lives
were telling us they hadn’t seen revolved around Chevelle,
a case this bad and that it would making sure she got her daily
probably get worse.” Because doses of drugs and taking her
Chevelle was too young and to the never-ending doctor
weak for surgery, they would and therapy appointments.
need to wait at least another year They faithfully recorded their
“if” they were told, she survived granddaughter’s seizures,
that long. which could occur up to 50
times each day. And those were just the seizures they could see.
Medications can control seizures in about 70 percent of Chevelle was also having silent seizures that weren’t always
patients. But in a case as severe as Chevelle’s, even strong apparent, but doing further damage to her brain.
anti-seizure medications likely wouldn’t control them, not
to mention the disturbing side effects they can have. “The
fact that Chevelle required so many medications makes it
very hard for a child to develop normally,” explains P. David Seeing an improvement by removing
Adelson, MD, chief of neurosurgery and director of the half of the brain almost sounds
Children’s Neuroscience Institute. “It’s like putting them in a paradoxical, but the left half of
fog so they’re not able to interact with their environment and Chevelle’s brain had completely lost its
process sounds, motor input, tastes, touches, and textures. All
of those are necessary for normal development. Their whole
ability to function. The only purpose it
developmental period is blunted by either the medications was serving was to cause the seizures.
or the after-effects of the seizures, preventing the child from
absorbing things like they would in a normal situation.”
The fact that Melissa and David had become parents again to
The way we learn is through repetitive practice and stimuli. a child that required round-the-clock care was a responsibility
The repetition allows us to create and reﬁne the connections the two never balked at. “It was an easy decision to take
until a function becomes ﬂuid and effortless – like when a custody of her. There was no hesitation. We never even
baby learns to speak by making the same sounds over and stopped to think about it,” explains Melissa. “My days revolved
over again. This learning process is more efﬁcient in babies around her. At times it’s been a challenge, but always a loving
and children, whose brains are more “plastic” and developing challenge. She’s our little angel girl and I’m not sure she’d be
at a rapid pace. But in Chevelle’s case, the medications and here today if we hadn’t done what we did.”
recurring seizures were not only causing potential nerve
cell injury in the brain, but interfering with those important When the medications failed to control her seizures, Chevelle
stepping stones. Every day lost to a neurological disorder was placed on a high fat, low carbohydrate ketogenic diet,
represents a delay in normal development. which has been successful in treating seizure disorders for
certain patients. It helped at ﬁrst, reducing the seizures to
To Melissa and David it simply meant that their granddaughter ﬁve or six each day. But by 18 months, the toddler was once
was lethargic and limp, not anything close to the bubbly and again having up to 20 seizures per day. With no other options
babbling babies they had both raised. “She was so drugged available, doctors in Louisville suggested a hemispherectomy,
out and slept a lot. She wouldn’t roll over or sit up. She wasn’t warning Melissa and David that it needed to happen soon.
an active child and didn’t show any personality. She wouldn’t Disconnecting Chevelle’s left side from the right side of her
interact, whine, nothing. When you would move her one way brain – or removing it entirely – was her best chance.
she would just go that way, almost like a rag doll.”
P11 HOPES & DREAMS
“You have to weigh the risk of such a serious surgery in a Because the surgery wasn’t offered at the children’s hospital
small child, knowing there’s the risk of a lot of blood loss,” near Melissa’s home, they knew they would have to travel
explains Adelson. “But in her case, the likelihood of any other to another state for the surgery. But ﬁrst they’d have to
treatments working, or of her having fewer seizures, was convince someone to do it. Melissa and David had lived in
basically zero. Surgery really was her only option.” Phoenix for more than 15 years before moving to Kentucky
and were familiar with Phoenix Children’s Hospital. Melissa
Seeing an improvement by removing half of the brain almost and Chevelle ﬂew to Arizona to spend Thanksgiving with
sounds paradoxical, but the left half of Chevelle’s brain had Chevelle’s great-grandmother and Melissa’s siblings who still
completely lost its ability to function. The only purpose it was lived in Phoenix. While here, they scheduled a consultation
serving was to cause the seizures. Without it, the right side with the Children’s Neuroscience Institute at Phoenix
of her brain would function better and slowly begin to take Children’s and met with Adelson and pediatric epileptologist
over the functions of the left side – something the brain better and Division of Neurology chief, Jeffrey Buchhalter, MD,
adapts to the younger the child is at the time of surgery. hoping they would agree to see Chevelle and perform the
surgery. “The next thing we knew the surgery was scheduled,”
says Melissa. “None of us expected that. None of us.”
I just knew she’d pull through.
She had to because On January 4, Melissa stayed in the Hospital’s Pediatric
I couldn’t imagine losing her. Epilepsy Monitoring Unit for 24-hour observation. Three days
later she would undergo what would be a nine-hour surgery.
“David was deﬁnitely more emotional than I was and wanted
Although few patients recover 100 percent from a to know about the risks,” adds Melissa. “I didn’t want to know
hemispherectomy, and many are already developmentally [about the risks]. I wasn’t strong enough for that. I just knew
delayed, the expectation is that they will progress a lot further; she’d pull through. She had to because I couldn’t imagine
develop language, motor, and processing skills, and get back losing her.”
on track developmentally. In many instances, they will begin
to catch up to their peers. Studies show that the surgery has Even after 20 years, Adelson said it’s still awe-inspiring
little negative effect on memory or personality. While most to be operating on someone’s brain. “I went into the ﬁeld
will have weakness on the opposite side of the surgery (similar of neurosurgery because I knew I’d never be bored. Even
to having a stroke), these children typically regain enough now I marvel at the anatomy and beauty of the brain. It’s a
strength to walk. Most physical issues will be related to ﬁne very unique experience each and every time.” But it’s not an
motor skills of the hand and ﬁngers. “While the child may still experience he takes lightly. “When I know it’s going to be a
have deﬁcits, surgery gives the brain the best chance to difﬁcult surgery, I deﬁnitely need to prepare for it in my mind
develop,” explains Adelson. “Neurologically, the child will be each step of the way. All of it.”
better after the surgery than before.”
Preparing the family for surgery is just as important. Melissa
says Adelson would sit with both of them, listening to their
concerns and giving truthful answers. “He’s honestly one of
the best doctors I’ve ever dealt with. He told us before the
surgery that he would take care of Chevelle like she was his
own daughter, and that really impressed us. We knew she
was in good hands,” says Melissa. But that didn’t make the
morning of the surgery an easy one. David carried Chevelle to
the stretcher that would wheel her to the operating room. “The
nurses pretty much had to pry Chevelle from his arms. He
wouldn’t let her go.”
Once the surgery began, and Adelson got his ﬁrst look at
Chevelle’s brain, he knew just how complicated the surgery was
going to be. He had initially hoped to disconnect portions of
her left hemisphere from the right, but there was a signiﬁcant
Chevelle during her stay at Phoenix Children s.
Chevelle uring Phoenix l s
Chevelle during her stay at Phoenix Children’s
amount of blood vessels throughout the abnormal hemisphere. But the doctors were just as impressed with the family and
And the texture of the damaged part of her brain, which is how well they coped with the situation. “They were wonderful
typically a soft custard-like consistency, was more like a hard despite Chevelle having a very difﬁcult case from both a
rubber ball. “In those instances, it’s more difﬁcult to make the medical and social standpoint,” says Adelson. “They were in
incisions and control bleeding,” explains Adelson. Because of another city, far from home, with an extended stay. I know it
what was found at surgery, he decided to entirely remove the was a trying time for them and they handled it better than I
left side rather than just disconnect it. And because of the added would have.”
blood loss in such a small and sick child, he would remove only
a portion of it that day, staging the surgery to give Chevelle time After ﬁve months, and just two days before Chevelle’s second
to recover and stabilize between surgeries. birthday, the family headed back to Kentucky. And according
to Melissa, with an entirely new child. “After the surgery it was
After another ﬁve-hour surgery to remove the rest of the like having a brand new baby. We’re so impressed with how
hemisphere a few days later, the toddler spent the next nine active she is now. She kicks both of her legs and will laugh, give
weeks at Phoenix Children’s recovering. “Everyone there us kisses and blow raspberries,” exclaims Melissa. Chevelle is
made us feel so welcome. It was very comforting and became now sitting up on her own and rolling. When put in her stander
our second home. It was like the Ritz Carlton, but with less she’ll put pressure on her legs and stand up. “She’s already
comfortable beds,” laughs Melissa. Her mom, Chevelle’s great- showing signs that she wants to try walking. Each day Chevelle
grandmother Brenda, would come to the Hospital to relieve is showing signs of something new. It’s truly a miracle.”
Melissa for several hours each day and on weekends. “We
had so much support here, from Shamrock Foods where my Chevelle no longer has seizures, but because she was so
mom works and David’s employer D&G Inc., to Finley Baptist developmentally delayed to begin with, it will take time to
Church, our church in Kentucky. We had so many people back recover with the help of therapy. Even though she can’t talk
home pulling for us. It was amazing. We couldn’t have done it yet, Chevelle can now communicate by making sounds and
without them.” shaking her head. No longer unaware of the stimuli around her,
Chevelle now loves music, her stuffed animals, nursery rhymes,
and the chocolate ice cream her grandpa sneaks to her every
Melissa also gives kudos to Buchhalter – and even his
now and then.
trademark bowties. “He would wear his Kentucky Derby
bowtie just for us when he knew we would be there,” adds
These doting grandparents look forward to each and every
Melissa. “He was great. He was so knowledgeable and was
milestone their granddaughter reaches, and have high
always telling us that everything was ﬁne. And he was right.”
expectations for her future – a future they were once told
she may not have. “It’s incredible seeing all of the little
After the surgery it was accomplishments she has,” says Melissa. “I want to know that
like having a brand new baby. someday she’ll be independent and able to care for herself.
We know it will take time. But now we have a lot of hope.”
P13 HOPES & DREAMS
THE CHILDR EN’S N EUROSCIENCE IN STITUTE:
The Brains Behind the Brains
The brain is the most complex and crucial organ in the A reputation for excellence and the ability to provide
body. It’s our own central computer that quickly and surgeries and programs not offered at other children’s
automatically controls our thought, movement, senses, and hospitals has brought more out-of-state families to
behavior, not to mention the critical functions of our other Phoenix Children’s. “Our goal is to move in the direction
organs. When it doesn’t, the results can be devastating and that will make us comparable with the very best pediatric
affect the entire body. neuroscience programs in the country,” explains Adelson,
who has expanded training efforts for physicians, nurses,
A growing number of children are diagnosed with and other healthcare workers in the ﬁeld.
neurological issues each year. In the U.S., 600,000 children
and teens will suffer a traumatic brain injury annually. But Adelson is adamant that it is research that will
Epilepsy now affects nearly 3 million people in the U.S. ultimately bring improvements in the care for children
– many of them children. Autism diagnoses are on the with neurological issues. We’ve learned more about the
rise, and 8 to 14 percent of children under the age of 5 are human brain in the last 20 years than in all previous years
identiﬁed as having a developmental delay. combined, and CNI wants to be on the forefront of future
breakthroughs going forward.
“These are all very complex and interrelated disorders that
require the care of multiple medical professionals. Seamless Since coming to Phoenix Children’s, Adelson helped
collaboration among disciplines improves outcomes and organize the CNI Tissue Repository and Data Center,
gives these children the very highest level of care,” explains P. a database of information that allows comparisons
David Adelson, MD, chief of neurosurgery and director of the of outcomes of various disorders, interventions, and
Children’s Neuroscience Institute (CNI) at Phoenix Children’s. procedures among our own patient population, as well
as the top 20 children’s hospitals in the nation. Both will
The goal of CNI, which is home to Arizona’s largest enhance the quality of care, as well as clinical research
group of pediatric neurological specialists, is to not only opportunities, particularly in the areas of trauma, epilepsy,
expand the scope of services but to organize by disease brain cancer, neonatal neurology, and autism. “We want to
and disorder so that patients receive a more individualized work side-by-side with clinical and laboratory scientists and
approach to care. “By taking into account every service a quickly translate that to the bedside care of our patients,”
child may need, we not only improve the quality of their adds Adelson.
clinical care, but also the process of care by looking at the
total child and what we can do as a team to give them the
best of all that we have to offer,” explains Adelson.
HOPES & DREAMS P14
Landon was spending the night at his grandmother’s house in early February when the 3-year-old found her gun
under the couch, and accidentally shot himself in the head. The bullet entered just over his right eye and exited out
the back. Landon received rehabilitation therapy at the Hospital’s Frances H. McClelland Rehabilitation Program,
which works to improve outcomes and functional independence for children whose functions of arms, legs, speech,
vision, hearing, taste, memory, reasoning, and even behavior can be affected by a severe brain trauma.
Traumatic Brain Injury
Each year more than 2,600 children under the age of 15 on, MD,
P. David Adelson MD
will die from a traumatic brain injury. It’s the leading cause eurosurger
chief of neu ery
of death and disability in children…more so than all other d h
and director of the
pediatric diseases combined. Most brain injuries in children
and teens are caused by motor vehicle collisions and falls,
but can also result from poisonings, penetrating injuries like
bullets, and infections like encephalitis and meningitis.
No two brain injuries are alike, and injuries in children
can be very different from those in adults, affecting how Adelson is the lead investigator of a federally-funded
the injury occurs, how the brain responds to the injury, multicenter study looking at the effects of hypothermia
and how doctors should manage it during recovery to (cooling), the ﬁrst new treatment preliminarily shown
prevent secondary injuries like bleeding and increased to be effective for severe brain trauma in children. It’s
pressure and ﬂuid inside the skull, swelling, and brain a treatment that may improve short- and long-term
damage from lack of oxygen. outcomes for patients by reducing swelling and slowing
the cascade of neurochemicals that kill brain cells. Within
Traumatic brain injuries can have lifelong consequences, six hours after the initial injury, the patient is placed in
with the prognosis depending on the severity of the injury a special bed with cooling blankets that are connected
and the chain of events that occur after the injury, from to pumps that circulate icy water, cooling the brain and
the ﬁrst responders and transport team, to the facility body to 32˚ to 33˚ Celsius. After 48 to 72 hours the body
and trauma team for a quick assessment. “Every function is slowly re-warmed. Cooling therapy has also been used
is critical,” says Adelson. “A neurosurgeon may handle in the Hospital’s Neuro-NICU, and has led to near normal
the acute phase, but it’s all of the personnel who treat the outcomes of a number of newborns who had experienced
child from the time of injury that will have an effect on a lack of oxygen at birth – babies who otherwise would
that child’s outcome, including the chronic phase where likely have suffered from conditions like cerebral palsy or
neuropsychology and rehabilitation are also very important.” mental retardation.
Shane was run over by a neighbor’s truck last year while playing outside and was airlifted to Phoenix Children’s. The
brain trauma was extensive and he was placed on cooling therapy and closely monitored in the Hospital’s Pediatric
Intensive Care Unit. After two weeks, Shane opened his eyes and asked for his Dad. He spent almost two months at
Phoenix Children’s, leaving on his second birthday. While it’s too early to tell the extent of some of Shane’s injuries, and
he still undergoing rehabilitation, today he is busy climbing, running, and playing.
P15 HOPES & DREAMS
Epilepsy during surgery. “As good as our neurosurgeons are, once
Epilepsy is a disease characterized by seizures that result you take part of the brain out, you can’t put it back in,”
from abnormal electrical discharges in the brain; like adds Buchhalter.
a power surge on a computer where everything shuts
down momentarily and needs to reset. Each year, 45,000 When surgery isn’t an option, a high fat, low carbohydrate
children under the age of 15 will develop epilepsy. For ketogenic diet can also be used to control seizures in
most children, medications effectively control epilepsy up to 50 percent of patients. It’s a treatment used since
and many children will even outgrow the seizures. the 1920s, but fell out of favor as more drugs became
But for the other 30 percent it’s a constant challenge, available to treat epilepsy. The vagus nerve stimulator is
and according to Jeffrey Buchhalter, MD, a pediatric another option, a device similar to a pacemaker that is
epileptologist who came from Mayo Clinic in Rochester implanted under the chest wall that sends regular small
to establish the Comprehensive Pediatric Epilepsy pulses of electrical energy to the brain.
Program at Phoenix Children’s, can also be socially
disabling. “The seizures can strike fear in parents, not just Today, a better understanding of the brain, improved
because of what is happening at the time, but how normal medications, and better diagnostic tools have all improved
childhood activities like climbing trees and swimming treatment, and ultimately, the health and lives of these
suddenly become very dangerous.” children. The Comprehensive Pediatric Epilepsy Program
also participates in drug development trials that offer new
Nearly 2,000 children were evaluated or treated for drug therapies for children with epilepsy. “We’re able
epilepsy at Phoenix Children’s in 2009. More than 330 to really personalize treatment for these children, more
of them spent two to ﬁve days in the Pediatric Epilepsy so than ever before,” adds Buchhalter. “It’s gratifying to
Monitoring Unit (PEMU), where specially-trained staff know we can do more for these kids whose lives can be so
monitor a child round-the-clock for signs of a seizure. dominated by their seizures.”
Patients have electrodes connected directly to their brain.
When a seizure occurs, their brain waves are recorded
with an EEG and their body movements are videotaped.
Pediatric epileptologist Jeffrey
Buchhalter, MD, came from Mayo
The information captured allows doctors to establish a Clinic in Rochester to establish the
child’s best course of treatment by determining the cause Comprehensive Pediatric Epilepsy
and frequency of the seizures, and exactly where they Program at Phoenix Children’s.
originate in the brain. If they originate from a single
location rather than multiple sites, the patient may be a
candidate for surgery – something that Buchhalter says
is the only “cure” for epilepsy, and should be considered
when medications have failed to work.
This “brain mapping” also lets surgeons know where Neurologist Marcy Yonker,
critical functions like speech, sight, movement, and MD, who oversees the
comprehension functions are located in the brain – sites gra
Headache Program at
that vary from person to person, especially those with Phoenix Children’s Hospital.
seizures and tumors. Knowing where critical functions
are also lets surgeons know what areas they need to avoid
Christina battled epilepsy and severe seizures until she was 4 years old, sometimes having up to 100 seizures each day. Jeffrey
Buchhalter, MD, (right with Christina) chief of the Division of Neurology at Phoenix Children’s, who at the time was practicing
at Mayo Clinic Rochester, placed Christina on a ketogenic diet. She ultimately had surgery to remove her right temporal lobe.
“Christina has had only one seizure in more than eight years,” says her mom Paulette. “Without the care of Dr. Buchhalter,
Christina wouldn’t be where she is today.” Now even 1,200 miles away, Buchhalter is still involved in Christina’s follow up care.
Paulette chronicled their story in the book “Good Morning Beautiful,” which is available at Barnes and Noble and amazon.com.
HOPES & DREAMS P16
Tanner was diagnosed at age 2 with autism. Like many children with autism, the now 4-year-old also suffers from
gastrointestinal and other health issues. His mom, Gina, calls autism “a marathon, not a sprint” — a diagnosis that has
profoundly changed his life, yet has no cure or easy ﬁx. But she says early intervention, intensive therapy, and the doctors
at Phoenix Children’s addressing his other medical issues, has been key to helping Tanner achieve all that he can. “When
Tanner was ﬁrst diagnosed with autism it almost came as a relief because I knew in my heart that something wasn’t
right,” says his mom Gina. “Now we have clear goals we can work towards and can reach him in ways he can understand.”
Headaches are the most common reason children are Arizona has one of the highest rates of autism in the country,
referred to a neurologist. Most are an inherited problem, with one in every 120 kids diagnosed with the disorder.
while viral infections, concussions, trauma, hormones, “This diagnosis is really a blow to parents. It changes the
medications, anxiety, and stress can also trigger headaches. hopes and dreams they had for their child,” explains Robin
Statistics show that an alarming 4 to 10 percent of children Blitz-Wetterland, MD, a developmental pediatrician at
and teens experience migraine headaches. “Unfortunately, Phoenix Children’s who works with patients with autism.
it’s a difﬁcult problem for family practice doctors and “Parents go through a grieving process that’s no different
pediatricians to treat because of other demands in the than if their child were diagnosed with leukemia.”
practice,” explains neurologist Marcy Yonker, MD, who
oversees the clinic. At Phoenix Children’s alone there are more than 200
patients waiting to be evaluated for the disorder. Physicians
The Headache Program at Phoenix Children’s Hospital will ﬁrst screen the toddler for developmental delays like
was created in 2009 and now evaluates about 50 patients lack of babbling, speech, facial expressions or eye contact.
per week. The program is unique, with very few children’s If developmental deﬁcits are found that point to autism
hospitals offering a full-ﬂedged clinic dedicated speciﬁcally rather than other developmental disorders, a second and
to headaches. Yonker is also one of just a handful of more in-depth level of assessment may include a pediatric
pediatric neurologists in the Southwest who specialize developmental evaluation, imaging, and neurological,
in headaches. Since she arrived in 2008 there has been psychological, genetic, and metabolic testing.
a progressive increase in caseload, mostly from word of
mouth. She also presents lectures and visits pediatrician For children diagnosed with autism, early intervention and
ofﬁces to make the community aware of the program. comprehensive care will lead to signiﬁcantly improved
Headache fellows from Mayo Clinic Scottsdale and the outcomes. “We’re the only place in the Valley that provides
Jefferson Headache Center in Philadelphia now do their a full assessment of these kids, including evaluation of
pediatric headache rotations at Phoenix Children’s. other medical conditions that are often associated with
autism,” explains Blitz-Wetterland. A child with autism
Despite its prevalence, there are far fewer studies related will often need a full range of speech, behavioral, and
to headaches (especially in children) compared to other occupational therapies; psychotherapy and/or psychotropic
neurological disorders – something Yonker is working to medication for self-injurious or other behaviors problems;
change. She has about 10 research studies in the works that and treatment of co-morbidities associated with the
include prevention, new treatment protocols, the genetics of condition, particularly gastrointestinal problems.
migraines, and a study with Arizona State University looking
at the level of disability related to headaches in adolescents. Research in the area of autism and its co-morbidities is
also a priority, with the CNI Data Center serving as a
Treatment options have expanded over the years, including database for research. Telemedicine clinics through the
nerve blocks and botulinum toxin (Botox) injections. There Phoenix Indian Medical Center are also available for
are also new medications in development that work on families who sometimes live up to six hours away from the
different chemical systems and pathways in the brain that Hospital. Specialists also work closely with school teachers
traditionally have not been used. One no-no according to and administrators to ensure that children don’t ﬂounder
Yonker: narcotics. “I’ve seen kids who may have already in the classroom. “In all aspects of care it’s important to
developed a physical dependency to these drugs that are treat the whole child. We need to identify their weaknesses
not only addictive but are actually associated with a higher to see how we can help, and identify their strengths to see
risk of developing chronic headache problems based on the how we can build on those,” adds Blitz-Wetterland.
chemical reactions in the brain.”
P17 HOPES & DREAMS
CHILDREN’S ildren’s ch
Phoenix Child chief
NEUROSCIENCE INSTITUTE c min,
psychiatrist Eric Benjamin MD.
Brain Tumors Bipolar Disorder
Approximately 3,000 children are diagnosed with brain or Bipolar disorder, where the person
spinal cord tumors each year. And today, more than half of experiences recurring bouts of
them will survive, with some tumors having a more than mania and depression, was once
90 percent survival rate. For most, Allen Kaplan, MD, co- thought to affect only children
director of the Hospital’s Jaydie Lynn King Neuro-Oncology in late adolescence or young adulthood. “It’s now
Program, says he is optimistic, but also realistic. understood that children can have bipolar from day one,” says
Phoenix Children’s chief psychiatrist Eric Benjamin, MD.
Outcomes are so variable that when it comes to prognosis,
Kaplan refuses to give parents percentages. It will depend Medications help control bipolar disorder, but ﬁnding the right one
on the child’s age, type of tumor, extension of the disease, and the just right dose for each child can be challenging. But that
response to therapy, and the overall health of the child. Most doesn’t mean that treating the disorder is more art than science.
important? Location, location, location. Where the tumor lies And according to Benjamin, Phoenix Children’s has been ahead
in the brain or spinal cord is so signiﬁcant that benign tumors of the game since he arrived in 1986, when he says psychiatry was
are just as serious as malignant ones if they are located in a evolving from Freudian techniques and psychiatrists as people you
critical area of the brain. talk to, to physicians who provide medical treatment for true brain
disorders. “At that time there were well-respected institutions that
In most cases, surgery is performed to remove as much of were still analyzing kids with mental illness rather than treating
the tumor as possible (while still maintaining neurological them with medication. At Phoenix Children’s they were already
function), followed by chemotherapy and radiation to kill any using lithium and making kids well.”
remaining cancer cells. The tumors and ensuing treatment can
affect intellectual and motor function; cause endocrine, hearing More than 25 years later, “making kids well” is still the
and vision problems; and present a host of psycho-social issues ultimate goal of the Psychiatry Department of the Children’s
that require years of ongoing treatment and follow up. “We Neuroscience Institute, even as public funding and community
don’t want to just cure children with brain tumors. We want to resources have dried up over the years. “There’s only a very
give them a real quality of life, normal function, and maximize core group of resources left. To make up for the difference
their abilities. It’s so important,” adds Kaplan. we’ve really had to optimize medical care…act as a liaison
with schools and other groups, and provide the therapeutic
The Hospital’s membership with the Children’s Oncology support and testing these patients need,” adds Benjamin.
Group research consortium gives neuro-oncologists at
Phoenix Children’s the ability to comparably treat brain Phoenix Children’s offers the state’s only inpatient pediatric
tumors with 250 other institutions across the country and psychiatry program for children under age 14 with psychosis or
world. “The treatment of brain tumors in this country is dangerous behavior – those who are acutely psychotic or pose
well organized,” explains Kaplan. “We have many protocols a danger to themselves. Statistics show that 10 percent of those
available for initial and recurrent treatment. If one isn’t with bipolar disorder will eventually commit suicide. Thousands
working we can use something else quickly.” more patients are evaluated and treated in the psychiatry
program’s outpatient clinic, including those with chronic medical
Earlier diagnosis and new and expanded chemotherapy drugs conditions like cancer and type 1 diabetes. “One diagnosis
have improved outcomes. Innovations in radiation oncology doesn’t make you immune from another. We want to improve
now allow doctors to isolate an area of the brain within their quality of life under our care and help ensure that they’ll be
millimeters, causing less damage to the brain. Kaplan says that compliant with their treatment,” says Benjamin.
more research is key to understanding the biology and
molecular genetics of brain tumors. In addition to growing the program with personnel, new
“It would be an amazing thing to services and clinics, community education and mandatory
simply alter biology and genetics to resident training in the ﬁeld are improving the overall care of
kill the tumors in the future.” children and teens who suffer from mental disorders. “There’s
deﬁnitely been a decrease in cynicism and more awareness
Allen Kaplan, MD, co-director of about these conditions,” says Benjamin. “It’s rewarding to
the Hospital’s Jaydie Lynn King know that we’re helping these kids now, but also ensuring
Neuro-Oncology Program. a brighter future for them through resident training and
education with our referring physicians in the community.”
HOPES & DREAMS P18
Marley was diagnosed with a brain tumor at age 2, one the size of a large orange that was located at the base of her
brain stem. The tumor was found to be an aggressive form of cancer. It took a team of doctors led by neurosurgeon
David Shafron, MD, 10 hours to remove the entire tumor. Afterwards Marley spent nearly two months at Phoenix
Children’s and underwent seven weeks of radiation. Today, Marley is back to singing, dancing, and playing with her dolls,
with no sign of the tumor recurring.
Attention Deﬁcit Hyperactivity Disorder (ADHD)
Phoenix Children’s began offering an ADHD Diagnostic Clinic ALSO TREATED
in January using evidence-based methods to evaluate and treat AT THE CHILDREN’S
children with the disorder that can affect between 5 to 7 percent
of children in the U.S. Inattention, hyperactivity, and impulsivity NEUROSCIENCE INSTITUTE
are the key behaviors of ADHD. They may have constant motion,
restlessness, are easily distracted, have difﬁculty completing a
task, and act seemingly without regard for consequences. As any
parent knows, these are all behaviors children exhibit at times. But
Adjustment to chronic illness
for those with ADHD, the behaviors are more severe and occur
more frequently. Cerebral palsy
Cerebral vascular disorders
According to Blitz-Wetterland, other health, developmental, or family
issues must be ruled out before conﬁrming a diagnosis. Rather than Congenital/hereditary
ADHD, some children may instead have hearing loss, language neurological disorders
processing problems, or severe learning disabilities. She says it’s also Congenital malformation
important to determine where and when the problem situations occur. of the brain and spine
For instance, in homes where there is domestic violence or neglect
children often display behaviors associated with ADHD. Craniofacial anomalies
Failure to thrive
The disorder seems to have a genetic link to parents and siblings,
and researchers have now pinpointed the area in the brain that can Feeding dysfunction
determine whether or not a child is at risk. Children are treated with Mental retardation
medication (typically stimulants, which actually have a calming
effect), and psychotherapy to help the child and parents manage Metabolic disorders
behavior, work through emotions, and organize tasks like schoolwork. Movement disorders
The clinic will also evaluate for co-morbidities, such as anxiety and
depression, along with other problems often associated with ADHD
like trouble sleeping and bed-wetting so that these issues can be Neurocutaneous disorders
appropriately treated as well. “Without proper treatment, ADHD
can have so many adverse consequences that affect a child at home,
in the school, and even their friendships,” adds Blitz-Wetterland. Obsessive compulsive disorder
“It’s so important that we offer this clinic.” Other mood/anxiety disorders
Pervasive developmental disorders
Prematurity/neonatal at risk
Robin Blitz-Wetterland, MD,
e Spina biﬁda
is the Children’s Ne Tourette syndrome
Institute director of Developmental
P19 HOPES & DREAMS
Dr. Janice Piatt is an expert in the treatment and prevention
of HIV and AIDS in children, and helped create the Bill Holt
HIV Clinic in 1995. It’s still Arizona’s only comprehensive
program for infected and exposed children and teens. Piatt
initially learned of the disease as a ﬁrst-year medical student
JANICE PIATT, MD in 1981 when a professor gave a lecture about what was then
called GRID, or Gay-Related Immune Deﬁciency. Little did
MEDICAL DIRECTOR OF THE BILL HOLT HIV CLINIC anyone know how it would become an international epidemic
that would affect all populations – even children. And little did
Janice Piatt, MD, attended medical school at the she know how much the disease would alter the direction of her
University of New Mexico School of Medicine in career…and life.
Albuquerque, and completed her residency with the
Phoenix Hospitals Afﬁliated Pediatric Program. She is a THE BILL HOLT CLINIC WAS ESTABLISHED IN 1995.
clinical assistant professor with the University of Arizona HOW HAS IT GROWN?
College of Medicine and serves on several committees We started with eight kids. That number doubled in the ﬁrst
related to HIV issues, research, and advocacy. She has year. Today we treat 67 infected kids, and see another 100-200
been named a “Best Doctor” by the national database children and teens who have been exposed to the virus.
and was recently honored by the Maricopa Integrated
Health System with the Compassion and Care Award. HOW HAVE THEIR OUTCOMES CHANGED?
The kids are healthier. Before they could live in the Hospital
for six to nine months at a time, and now it’s unusual to have
someone in the Hospital at all. I never thought I’d see the day,
but we’re now transitioning kids to adult care. It’s hard for
someone you’ve known since they were 3 years old to leave
your care, but it’s wonderful at the same time.
HOW HAS THE TREATMENT CHANGED?
First there was no treatment. Then we had AZT, which meant
taking multiple pills several times each day. It was difﬁcult to
treat and very regimented. Today most treatments are twice
per day with maybe one to two pills…ﬁve at the most. It’s a lot
easier and obviously much more successful.
WHEN MAGIC JOHNSON ANNOUNCED HE WAS HIV
POSITIVE IT WAS CONSIDERED A DEATH SENTENCE.
Piatt with Walter Holt, father of Bill Holt, at CAN PEOPLE SURVIVE HIV NOW?
the grand opening of the Bill Holt HIV Clinic It’s a chronic disease and it can still kill you. But today most
in March, 1995. Bill Holt passed away in 1993 people with the virus die from non HIV-related causes – not
following his diagnosis of AIDS in 1988. After his AIDS or infections. They can essentially live a near normal life
diagnosis he created Helping Hands in Chicago – span with treatment and a relatively healthy lifestyle. The life
g f p p
an organization that delivers food to people who expectancy for adults is about 30 years after diagnosis. It was
can’t leave their residences. Bill’s childhood friend only 15 a couple of years ago.
Phil Darrow (a former Phoenix Children’s Hospital
Foundation board member), and his wife Robin,
honored Bill by initiating the funding that would
open the doors of the Bill Holt HIV Clinic.
Janice Piatt, MD
DO YOU THINK THERE WILL BE A CURE?
Yes. I believe we’ll get there and I hope to see it in my career.
That would be a fun phone call to make to my patients.
Piatt in 1995 with the ﬁrst patient
THE CLINIC ALSO WORKS TO EDUCATE PREGNANT with HIV who was treated at Phoenix
WOMEN DIAGNOSED WITH HIV. Children’s Hospital.
It’s hard for mothers to have this joyous thing happening
and then realize they are sick and that their baby is at risk.
But if we catch it early enough, with treatment the risk of
transmitting the disease drops to only about two percent. I remember the panic people felt several years ago…parents
Without treatment it’s closer to 25 percent and 40 percent if who lost their jobs, a family was ﬁrebombed. But I still have
the child is breastfed. kids who are suspended when their schools ﬁnd out. It is
getting better, but we still have a long way to go. Yes, you
HAVE NEW CASES DROPPED? need to take precautions. But you don’t have to wear a space
No. There are about 56,000 new cases per year. It’s been suit to do an exam. You can hug and kiss and love these
stable for the last couple of years, but isn’t going down. kids all you want, swim in the same swimming pool. This is
From my perspective we’re seeing fewer babies diagnosed something I’m extremely sensitive and protective about.
because of prevention, but we’re seeing more teens getting
it. Teenagers still tend to have the mentality that it’s not WHAT’S THE MOST DIFFICULT ASPECT FOR
going to happen to them. YOUNGER CHILDREN WHO ARE INFECTED?
Taking the medications. They taste horrible. I really applaud
WHAT IS THE HARDEST PART FOR TEENS WHEN the parents of toddlers for making sure they get every dose.
THEY’RE DIAGNOSED? It’s also difﬁcult for parents when they reach the point when
It impacts their friendships. They’re not sure who they can they need to tell the child about the disease.
trust with the information. Dating is difﬁcult. We spend a
lot of one-on-one time with them to help them make good YOU ALSO WORK WITH A LARGE REFUGEE
decisions. Role playing helps prepare them to tell people and POPULATION.
deal with the aftermath because, quite honestly, sometimes We treat kids from Thailand, Burma, Africa, Guatemala,
it doesn’t go well. and Russia. Some are refugee families and some are
children who were adopted by families in the U.S.
HOW OPEN ARE MOST OF THEM ABOUT THEIR
DIAGNOSIS? YOU LED A STUDY ABOUT TREATMENT WITH
Magic Johnson is inspiring because he’s open about it, but REFUGEE POPULATIONS. WHAT DID YOU FIND?
not everyone can get away with that. Once they hit high They’re more likely to adhere to the treatment, most likely
school they don’t want to be known as “the kid with HIV.” because they’ve lived in areas where so many people die
from AIDS. They’ve seen ﬁrsthand what the disease can
BECAUSE OF THE SOCIAL STIGMA? do. It makes them grateful for the treatment and they
Yes. Even today there’s an incredible amount of fear and understand how important it is.
ignorance that we still see in schools, neighborhoods, and
even with other healthcare providers. Unfortunately, many HOW HAS THIS DISEASE CHANGED YOUR LIFE?
struggle with their own families. I have a young woman who It’s what I think about all the time. But it’s been very
is HIV positive and just had a baby. She hasn’t told her mom challenging and rewarding.
yet because she’s worried she’ll be kicked out of her home.
P21 HOPES & DREAMS
THE FACE OF
Jaydie Lynn King was always looking out for others. The Kings remember their ﬁrst night at Phoenix Children’s
When she went shopping for school supplies Jaydie like it was yesterday. “It was extremely traumatic to say
would have her mom buy extras just in case a the least. But from day one the staff treated us like family,
classmate couldn’t afford them. She was the one who and at that point in our lives we really needed that,” says
would befriend someone who was playing alone at Jeffry. “They made Jaydie feel like she was the most
recess. When one of her siblings was hurt she was important person, and that was consistent throughout our
the ﬁrst to comfort them. And after a visit to Phoenix time there. It was also a comfort knowing we could put
Children’s Hospital, when she had been poked and complete trust in the doctors to make the right decisions
prodded with needles, she’d hand out her beads of about what was best for our daughter.”
courage to other children in the waiting room rather
than keep them for her own necklace. They knew the prognosis was poor. The tumor was
inoperable and would affect too many vital structures to
Jaydie passed away in 2005 at age 8 following an remove it surgically. As painful as that was to hear, the
almost year-long battle with a brain tumor. “She was an fact that doctors were upfront about what may lie ahead
absolute angel throughout her brief life,” says her mom allowed them to make the most of the time they had left
Cami. “She was here for a reason and we’re different with their daughter. “As parents we always held out hope
people because of her; stronger, more giving, more that things would change…that a miracle would happen,”
loving, and we appreciate every day a little more. The explains Cami. “But it was important to know the road
thing she taught us most is to leave people better than we were going to travel because we were able to spend
you found them.” every moment we had with her as if it were our last.”
That lesson is something Cami and Jeffry King have put Just recently Cami and Jeffry were going through Jaydie’s
into action, pledging $1 million to Phoenix Children’s, journals and cards, reading the messages she had made
and naming the Jaydie Lynn King Neuro-Oncology about her family and friends. Among them were notes
Program in their daughter’s honor. “This is what Jaydie she’d written to her dad about how much he inspired her,
would have wanted us to do. It was really her vision,” and how she wanted to make him proud. “I think that’s
says her dad Jeffry. “This isn’t just about Jaydie, but all why Jeffry is so driven,” explains Cami. “There was really
of the other sick kids and how she wanted to help them.” a special bond between the two of them. She looked up to
him so much that he can’t let her down.”
HOPES & DREAMS P22
With the support of their family and friends they formed Cami and Jeffry say they’re honored to partner with
“Team Jaydie.” Jaydie herself presented a $25,000 check to Phoenix Children’s since they both have the same goal
the Center for Cancer and Blood Disorders — money she of making children better and making their time at the
helped raise through a block party and other fundraisers. Hospital a little easier. Seeing Jaydie’s name for the ﬁrst
After she passed away, Cami and Jeffry formed the Jaydie time on the Hospital walls was an emotional moment for
Lynn King Foundation. Because Jaydie used movies to them. “When we saw it for the ﬁrst time we cried.
pass the time while she was hospitalized, they ﬁrst used the But they were happy tears for what we were
funds to purchase DVD players, movies, stuffed animals, accomplishing…what it meant to us and what it would
and blankets for children undergoing treatment. have meant to her,” explains Cami.
They’re gratiﬁed to know that their commitment to There are other ways the family still honors Jaydie and
Phoenix Children’s will now help fund programs, the way she lived her life. On the ﬁrst day of school they
services, and especially research. “Part of our decision still send extra supplies with their other children: Taylor,
was based on the fact that they incorporate research Jaxson, Braydin, and Trey. They sponsor other kids for
into their treatment and are so aggressive at providing ﬁeld trips when they can’t afford to pay on their own.
different drug therapies to kids,” adds Cami. In fact, And mostly, they laugh. The memories her siblings have
Jaydie was the ﬁrst patient at the Hospital to complete of their sister are of them giggling together. “Jaydie was
a Phase 1 research trial. Although they knew the drug so caring towards everyone,” says Cami. “She really
protocol might not work, in true Jaydie fashion she told taught us what life is all about and set a high standard for
her parents she wanted to try it anyway just in case it us to live up to.”
helped another child down the road.
The King famil today lockwi e fro left
mily d wise rom ft:
The King family today, clockwise from left:
Jayd resented 25,0
Jaydie presented a $25,000 check to her neuro-oncologist,
,000 h to her neuro-oncolog st,
uro-onco o Trey, Taylor Jeffry, Jaxson, Braydin d Cami
Trey, Taylor, J ffry, Jax on, Braydin and Cam .
T y ylor Jeff y ff y
Dr. Michael Etzl, co-director the Jaydie Lynn King
Dr Michael Etzl, co-director of the Jaydie Lynn King
Neuro-Oncology Program and division chief for the Center
Neuro-Oncology rogram and division chief for the Center
for Cance lood Disorders.
for Cancer and Blood Disorders.
OFFICE OF PLANNED GIVING AT PHOENIX CHILDREN’S
For more information on how you can leave a legacy for the patients of Phoenix Children’s Hospital contact the
Ofﬁce of Planned Giving at (602) 546-2671 or visit phoenixchildrens.com and click on “Ways of Giving.”
P23 HOPES & DREAMS
SWING FORE KIDS m
with some of
Hosted by 16-year-old Michael Young, this tournament now p
therapy dogs and
in its ﬁfth year, was held in April at the Grayhawk Golf a
Club. It was another swinging success and continues to be
the major fundraiser for the Hospital’s Animal-Assisted Therapy Program. A
special thanks to “Top Dog” title sponsor PetSmart and “Golden Retriever”
tournament sponsor CB Richard Ellis. For the past three years the tournament
has also been endorsed by the Southwest Section of the PGA of America,
which has joined Michael in hosting a golf day each year for hospitalized patients. Y
received various awards this year for his work with Phoenix Children’s, including being selected as the Major League
Baseball and People Magazine’s “All-Stars Among Us” award, the 2010 Prudential Spirit of Community Awards, and was
also named the Hon Kachina award winner.
Fro left to right: Teresa l
eger, director of the Emily c
Cennter, Kathy and Tom e
Anderson, Emily’s parents, and
their daughter Karis Anderson.
ﬂowers to Kathy
GIVING NEVER GOES OUT OF STYLE
Nearly 700 guests raised more than $175,000 at the 21st Annual Emily Center Luncheon and Fashion Show held in
May at the Arizona Biltmore Resort and Spa, beneﬁting the Hospital’s Emily Center family health library. Channel
12News Anchor Tram Mai emceed the program that included a performance by the Phoenix Boy’s Choir and more
than 100 models who worked the catwalk dressed in the latest kid, teen, and adult fashions from Westcor’s Paradise
Valley Mall. Guests bid on fun and unique auction items before lunch and shopped at the Emily Center Market.
Phoenix Children’s is grateful for the event’s sponsors that included Cox Communications (presenting sponsor),
Westcor, Go Daddy, APS/Jessica Pacheco, Blue Cross Blue Shield of Arizona, Dr. and Mrs. Anthony Hedley, Susan
Truax, Wells Fargo Insurance Services, Inc., and Sheila Zuieback.
POOCHES FOR PATIENTS
The third annual Dine With Your Dog event
held in March raised more than $16,000 for
the Animal-Assisted Therapy Program at
Phoenix Children’s. KTAR’s Pat McMahon
hosted the “fur-ﬁlled” fundraiser where 200
guests posed for professional portraits with
their pets and watched man’s best friend take
to the catwalk for the “Oh My Dog” fashion
show. A gourmet dinner was also provided,
yes, even for the dogs.
HOPES & DREAMS P24
12NEWS GIVE FOR KIDS TELETHON
The Phoenix Children’s Hospital Foundation teamed up with 12News for the 2nd annual 12 News Give For Kids event
held in April that raised more than $207,000 for the Hospital. Lin Sue Cooney, Mark Curtis, and other 12 News talent
broadcasted live from the Hospital’s cafeteria. Donations could also be dropped off at Walgreens stores around the Valley,
raising $60,000 for the event. Additional sponsors who presented donations during the Children’s Miracle Network event
included Dunkin Donuts, Baskin Robbins, Sagicor Life Insurance Company, Fry’s Food Stores, Lerner & Rowe, Sleep
America, Arizona Credit Union for Kids, Walmart, MetLife, Carl’s Jr., and A.R. Mays Construction Company.
contestants Sione (left)
and Filipe Fa (right)
show some muscle with
PCH employee Susan
Lin Sue Cooney with
patient Tanner and his
p e h f Comfort
Downy Touch of Comfortf rt
mom Gina. and Quilts for Kids donated
hundreds of handmade quilts
that were delivered to patients
by 12News talent in the
f h b
name of donors who became
Monthly Miracle Makers by
pledging at least $20 per
month to the Hospital.
Carl s Junior leadership and employees.
Carl’s hi d mpl es
leadership and employees
Everyone wears a mustache in honor of Mark
Curtis. From left to right: Former Arizona
Diamondback Luis Gonzalez; Walgreens district
Diamondback Luis Gonzalez; Walgreens district
manager, Jim Kawashima; radio personality
Dave Pratt; Curtis; patients Alex and Buddy.
Arizona Cardinals players
Ai C di l l
Arizona Cardinals players
Former NFL player Kwamie
F with patient Ethan.
Lassiter and a volunteer also
sport Mark Curtis mustaches.
A SWEET FUNDRAISER
Baskin-Robbins and Dunkin’ Donuts teamed up for the
“Cones and Coffee for Kids” promotion that raised more
than $15,000 for the Hospital. Throughout the month
of March, guests who purchased a Baskin-Robbins’
signature ice cream or a cup of Dunkin’ Donuts coffee
were asked to make a donation to Phoenix Children’s by
adding a “Cones and Coffee for Kids” icon to their order.
Guests making donations received coupons for future
visits. On March 10, Baskin-Robbins and Dunkin’ Donuts
also donated a percentage of sales to the Hospital.
P25 HOPES & DREAMS
KOHL’S GIVES KIDS A DAY OF PLAY
More than 100 Kohl’s Department Store A-Team community
volunteers from 20 different stores across the state gave patients
at Phoenix Children’s a “Kohl’s Day of Play” that included
summer craft activities. More than 700 stuffed animals donated
by Kohl’s were adopted by patients along with a medical play
kit so they could practice their skills on their furry new friends.
Kohl’s encourages employees to volunteer their
time to nonproﬁt organizations that focus on
enriching the lives of children. Kohl’s has raised
more than $1.5 million for Phoenix Children’s, and
in 2009, Kohl’s A-Team members raised $44,500
for the Hospital through their volunteer efforts.
A COMMITMENT TO KIDS
The 2nd Annual KMLE Commitment to Kids campaign raised $67,000 for Phoenix Children’s. KMLE Country 108, along with
presenting sponsor Massage Envy (which raised more than $10,000) and additional Children’s Miracle Network sponsors all led
various fundraising campaigns, including: Bedmart, Bell Ford, CVS/Caremark, Hot Locks Dolls, Lerner & Rowe, Mountainside
Fitness, and Professional Bull Riders. The station’s morning show hosts Tim & Willy made appearances at partner locations
throughout the campaign, and interviewed company executives on-air about their fundraising programs. KMLE radio has a
long history of supporting Phoenix Children’s, producing the Hospital’s annual Radiothon for its ﬁrst eight years. KMLE and its
loyal listeners have helped raise more than $6 million for Phoenix Children’s over the last 10 years.
The reviews are in, and two special movie parties beneﬁting Phoenix
Children’s were given two thumbs up. In July, Harkins Theatres, as
part of their “Feel Good Partnership of the Year” with the Hospital,
offered “twihard” fans an event they could really sink their teeth into…a
special screening of “Twilight Eclipse.” All ticket proceeds beneﬁted the
Hospital. The Chandler Fashion Center, Nordstrom, and other generous
sponsors, teamed up to raise funds for Phoenix Children’s with an
advanced screening of “Eat Pray Love.” The girl’s night out also included
n polish changes, hors d’oeuvres, and mocktails.
HOPES & DREAMS P26
BEAUTIFUL INSIDE AND OUT
For the third year running, the Kohler Academy showcased the latest in hair
and makeup trends, and raised $10,000 for the Hospital’s Julie and Tim Louis
Newborn Intensive Care Unit (NICU) during the 3rd Annual Beauty Around the
World event. Models, including the Hospital’s own NICU nurses, represented
Kids also took
the destinations of Norway, Jamaica, China, Paciﬁc Islands, Thailand, and h
part in the show,
Japan. All styling, hair, and makeup was provided by the academy’s students. h
each with a
Their connection to the Hospital is a very personal one. The son of owners Jill special message.
and Burt Kohler was treated in the Hospital’s NICU.
W r LET’S GET READY TO RAISE MONEY
gave patients More than 20 WWE pro-wrestlers, divas, and legends donated artwork
during the third annual art exhibition held at the InterContinental
D Montelucia during March’s WrestleMania event. The WWE superstars
e auctioned off their own paintings and collages. Special guests included
visited Phoenix Scottsdale natives the Bella Twins, Nikki and Brie, Bret “The Hitman”
April. Hart, Diva Alicia Fox, Jerry “The King” Lawler, and Vince McMahon.
More than $27,000 was raised for Phoenix Children’s, including a
matching gift from the Vince and Linda McMahon Family Foundation.
“Happy Flower” ion Heart
“Lion Heart Gabe’ People”
b P l
by Eilene Crawford by Gabriel Chacon Kate’s Fl
“Kate’s Flower by Gabriel Chacon
S by Kate McRae
by Isaiah Garay
CARDS HELP IN CANCER FIGHT
An easy way to help kids diagnosed with cancer is by purchasing cards and artwork
designed by our very own patients receiving treatment at the Center for Cancer and
Blood Disorders. All-occasion cards and notepads are now available online at
www.pchkidsart.com. And look for our holiday cards available this October at
Safeway stores throughout Arizona and through Wist Ofﬁce Product Company at
www.Wist.com. The Art Project provides a positive emotional outlet for children
battling cancer by providing art workshops and enlisting local artists to work with
the patients. All proceeds from the cards and artwork directly beneﬁt the center by
supporting many of the services offered to our patients and families, including Camp
Rainbow. The all-occasion cards (seen above) are blank inside and feature a biography
of the child who designed it. Cards are sold in assorted packs of 15 for $10. Notepads
The notepad was
are $6 each. Visit www.pchkidsart.com to purchase. i d by i
designed b patient
Kyndle Crawford, age 6.
P27 HOPES & DREAMS
SUPPORTS OUR CLASSROOM
Desert Schools Federal Credit Union raised $217,000
for Phoenix Children’s during their 12th Annual CMN
Golf Tournament held at the Blackstone Country Club
at Vistancia. Last year, the Children’s Miracle Network
(CMN) partner raised $324,000 for the Hospital through
a variety of events, including the golf tournament, change
drives, and online donations. In May, the credit union’s
annual employee BBQ, complete with lunch, karaoke, From left right: Keith Earnest Thunderbird; David
From left to right: Keith Earnest, Thunderbird; David
Rauch, Thunderbird Big Chief and chairman of the 2010
and a Guitar Hero contest, raised another $9,000. All Waste Management Phoenix Open Tournament; Anthony
proceeds beneﬁt 1 Darn Cool School, the Hospital’s on-site Wanger, president of i/o Data Centers; and PCH Foundation
classroom. Desert Schools continues to be the top credit employees Kim Behrens, director of Development, Genevieve
Villegas, special events coordinator; and Will Mandeville,
union in the nation for funds raised for CMN raising nearly director of Corporate and Business Giving.
$2 million since 1998.
I’LL RAISE YOU $51,000
Thunderbirds and i/o Data Centers presented
Desert Schools presents a Phoenix Children’s with $51,220 raised through i/o’s
check to Phoenix Children’s
Hospital. From left to right:
t sponsorship of the 2010 Waste Management Phoenix
Patient Nathan Riech; his mom
e Open and the “Poker for PCH” tournament. All entry
Ardin Tucker; Teri Lane, PCH fees for the tournament, which was held in the i/o
CMN director; and Arizona
Data Centers’ corporate village tent during the PGA
Cardinals player Larry
Fitzgerald. golf tournament, were donated to the Hospital. The
Thunderbirds organization raised $4.3 million for
charity last year, and has raised $66 million for charity
since it started the Phoenix Open in 1932.
CMN “CHAMPION” PATIENT
MEETS PRESIDENT OBAMA
m c Peoria resident and Phoenix Children’s patient Josh Gass was named
dol the 2010 Children’s Miracle Network Champion for Arizona, a program
se that honors children in the U.S. and around the world who have
triumphed despite severe medical challenges. A patient is nominated
Arrchuleta. each year to represent their state as a champion. In June, Josh traveled
with his family to Disney World in Orlando, then Washington D.C.
where Gass and 54 other ambassadors met President Obama and
toured the White House. The Champions also visited with members of
Congress during a luncheon at Capitol Hill. Josh was diagnosed with
leukemia at age 6. His treatment included 40 months of chemotherapy
In May, CMN
M at the Hospital’s Center for Cancer and Blood Disorders. Now age 10,
Chhampions s Josh inspires others about his journey with cancer and is an advocate
for childhood cancer research.
an Sam’s Club
onored Josh with
a surprise send-off
party and $500
HOPES & DREAMS P28
RE/MAX MIRACLE HOMES
RE/MAX agents show they have a heart for kids through the Miracle Home program. Agents can make a
donation of $25 to $100 to Phoenix Children’s for each home they sell. Over the past 18 years, RE/MAX has
raised $100 million for Children’s Miracle Network hospitals across the country. Locally, RE/MAX has raised
nearly $1.7 million for Phoenix Children’s. In addition to the Miracle Home program, many local ofﬁces host
community events to raise additional funds for the Hospital.
FLAPJACKS AND PHILANTHROPY
Children’s Miracle Network (CMN) partner IHOP once
again served customers millions of free pancakes in
celebration of National Pancake Day in February. The 27
Valley locations raised more than $40,000 for Phoenix
Children’s during the one-day event, and more than $2.1
million for children’s hospitals nationally. It’s the ﬁfth
year for the event, where patrons enjoy a free short stack
of IHOP’s signature buttermilk pancakes by making a
PCH patient Rosie and
PCH g ke
Since starting its National Pancake
donation to CMN. The restaurant also sold $1 and $5 former Miss Arizona Day celebration in 2006, IHOP has
“miracle balloons” throughout the month of February, Savanna Troupe found raised more than $5 million at more
increasing their total support of Phoenix Children’s by a h
an easy way to show h 400 IHOP
than 1,400 IHOP restaurants around d
their support for the country, and has given away more
delicious $10,000. Phoenix Children’s. than 10 million free pancakes.
C HIL DREN’ S M I R ACL E N ETWO R K
Phoenix Children’s is partnered with Children’s Miracle
Network (CMN), an international non-proﬁt organization
that supports children’s hospitals across the country.
Phoenix Children’s receives all funds raised by CMN in
the northern two-thirds of Arizona. For information about
Children’s Miracle Network call (602) 546-2657.
When you purchase a Children’s Miracle Network balloon
at the following Valley businesses, your donation directly
supports Phoenix Children’s Hospital:
Ace Hardware Great Clips
American Car Care Center IHOP
Carl’s Jr. Love’s
Chevron/Texaco Sam’s Club
Costco Sleep America
Dairy Queen Walgreens
Golden Corral Walmart
P29 HOPES & DREAMS
For more information on sponsoring your own event, or volunteering at one, call (602) 546-4483.
OCTOBER 4 AND 5
Listen to News/Talk 92.3 and Sports 620 to hear your favorite KTAR personalities and compelling stories of our
patients and families during this 18-hour event that will broadcast live from the Phoenix Children’s cafeteria. Listeners
are invited to call in with donations to the live phone bank at (602) 546-5437, which will be manned by local celebrities.
A handful of patients and families sharing their stories during this year’s Radiothon:
Rebecca: Diagnosed at 6 n a
Jayson: At age 2, Jayson nearly
we h ﬁbrosis, this
weeks with cystic ﬁ s n n
drown in his grandma’s backyardy
ow 2 r
now 22-year-old is still treated e e
pool. One of the lucky ones, Jayson n
t e x e h
at Phoenix Children’s. She e c
survived with no lasting effects.
takes 35-40 medications eacha r n a
His grandma talks about the fateful u
ay o c
day along with twice-daily n p l
morning it happened, the guilt she
airway therapies. She’ll talk r d t
felt over the ordeal, her gratitude
bout how the disease has
ab w a h e n
for Phoenix Children’s, and why
ha e w
changed her life, but how it fam w e o
their family now advocates for
hasn’t slowed her down. a
The twins r m
Nathan and Patrick: Their mom Dana
before d n d s s
updates us on the active toddlers – twins who
they were r e e ,
were conjoined from the chest to the hip, and
separated. a t n h ’
separated last year at Phoenix Children’s Hospital
by a team of more than 20 doctors and nurses.
RIGHT NOW… SET A MIRACLE IN MOTION
Get in shape, have some fun, and raise funds for a special patient at Phoenix Children’s
Hospital with the Miracles in Motion program. Participants train together for the P.F.
Chang’s® Rock ‘n’ Roll™ Marathon & 1/2 Marathon while walking or running in honor
of one of our patients. Visit www.pchmiraclesinmotion.org g
for more information.
Spirit Halloween stores “Spirit of
Look for special pumpkin icons that beneﬁt Phoenix
Children’s at all Valley-wide Spirit Halloween stores.
HOPES & DREAMS P30
5th Annual Casino Night
6:30 p.m. at the Scottsdale Resort & Conference Center
Includes dinner and a live and silent auction. Call (602) 432-4600 or
AIDS Walk 2010
7 a.m. at Phoenix City Hall
Beneﬁts several local charities, including the Bill Holt HIV Clinic at Phoenix Children’s.
Call (602) 546-0236 or visit www.aidswalkphoenix.org.
Battle of the Bands
6 p.m. at the Compound Grill
Rock ‘n’ roll with Champagne Tap (left), a band
featuring the Hospital’s Dr. Greg White, as well
as a band of lawyers and one of ﬁreﬁghters. Guests
vote for their favorite, with all proceeds beneﬁting
Phoenix Children’s and the Ear Candy nonproﬁt
music organization. Call (602) 546-5024.
McLane Sunwest CMN Golf Tournament
Raven at South Mountain
Call Brad Granneman at (623) 935-7500.
Miles for Hope “Moving Towards a Cure” 5K and 1-mile Awareness Walk
8 a.m. at Kiwanis Park in Tempe
Davy Luna/Zach Stalls Memorial
7:30 a.m. at the Wigwam Golf
Resort in Litchﬁeld Park
Includes rafﬂe, reception, and silent auction.
Call (602) 546-5024
12th Annual Phoenix Children’s Hospital Golf Tournament
McCormick Ranch Golf Club
Join us on the fairway for this premier charity golf tournament that includes a 19th
Hole Cocktail Party, silent auction, and awards dinner. For information call (602) 546-4483,
email firstname.lastname@example.org, or visit www.pchgolf.com.
P31 HOPES & DREAMS
2929 E. Camelback Road, Suite 122 • Phoenix, AZ 85016
PHOENIX CHILDREN’S HOSPITAL FOUNDATION MAIN LINE: (602) 546-1000
2929 East Camelback Road, Suite 122, Phoenix, AZ 85016
(602) 546-GIVE (4483) TOLL FREE: (888) 908-5437 (KIDS)
www.phoenixchildrens.com/ways-of-giving SPECIALTY & URGENT CARE - EAST VALLEY: (480) 833-KIDS (5437)
PHOENIX CHILDREN’S HOSPITAL SPECIALTY & URGENT CARE – NORTHWEST VALLEY: (623) 972-KIDS (5437)
1919 East Thomas Road, Phoenix, AZ 85016 SCOTTSDALE: (480) 314-1144
(602) 546-1000 | (800) 908-KIDS (5437)
www.phoenixchildrens.com EMERGENCY DEPARTMENT: (602) 546-1900
THE NEW PATIENT TOWER OF PHOENIX CHILDREN’S HOSPITAL OPENING IN 2011