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									               Employed Family Caregiver Survey: Report and Executive Summary

                                            Worksheet
NOTE: Save this file to your computer before you begin to work with it or the formulas may
not work properly. Also, remember to save your work often as you complete the worksheet.
         Shortly following the end date of your employee survey, you will receive an e-mail containing a
compilation of raw data from your survey responses. This data will assist you in creating survey reports.
         The report and executive summary are useful tools when sharing results with employers,
employees, human resource staff, and community partners. The report provides national
research and statistics, a complete description of the results, and implications. The executive
summary is a brief highlight of local findings in a format easy to reproduce and share.
         Both reports will be generated for you when you enter your local data into this worksheet.
Follow the directions below.
         If changes are needed, simply use your mouse to click on the data and re-enter. Once you
have pressed enter for any field, it will save the information unless you go back to the field and change
it manually.
         Now you are ready to enter your data in the chart below which provides a step-by-step
explanation of which data to enter. You will be reporting numbers only. Percentages will be computed
for you.

                                          General Information
   1    Name of the employer.

   2    Month and year survey was completed. Example: April, 2010

   3    Number of employees in the organization who received the survey.                       0

  4     Number of employees who completed the survey.                                         0
  4a    Response rate. Calculated automatically.                                          #####

   5    Number of reminders sent to employees to complete the survey.                          0

The data has been divided into two parts. The first category is questions answered by all employees
who completed the survey. The second section contains the responses of ONLY employees identified
as family caregivers.

                   Responses from ALL employees who responded to the survey.
   6    Number of females responding.                                                          0

   7    Number of males responding.                                                            0

   8    Number for each age category of employees.
                 a    25 and under                                                             0
                 b 26-35                                                                       0
                 c    36-45                                                                    0
                 d 46-55                                                                       0
               Employed Family Caregiver Survey: Report and Executive Summary Worksheet
               e     56-65                                                                0
               f     66-75                                                                0
               g     76 and older                                                         0

9    Race/Ethnicity.
               a     American Indian                                                      0
               b Asian                                                                    0
               c     Black or African-American                                            0
               d Hispanic or Latino                                                       0
               e     White                                                                0

10   Number of years employed by organization.
               a   Less than one year                                                     0
              b 1-5 years                                                                 0
               c   6-10 years                                                             0
              d 11-15 years                                                               0
               e   16-20 years                                                            0
               f   21-25 years                                                            0
              g 26-30 years                                                               0
              h 31 years or more                                                          0

11   Enter the number of employees who are interested in learning about the various topics
     listed.
                 a   Family Communication                                                  0
                 b Communicating with Health Professionals                                 0
                 c   Work Communication                                                    0
                 d Employer Benefits                                                       0
                 e   Community Resources                                                   0
                 f   Legal, Finance and Health Planning                                    0
                 g Finding and Hiring Paid Help                                            0
                 h Residential/Housing Options                                             0
                 i   Juggling Work and Caregiving                                          0
                 j   Coping with Caregiving                                                0
                 k   Personal Care Skills                                                  0
                 l   Problem Behaviors                                                     0
                 m Making Difficult Decisions                                              0
                 n Loss and Grief                                                          0
                 o Relationship Changes                                                    0
                 p Long-term Care Insurance                                                0
12   Enter the number of employees who want to receive information about family caregiving
     in the following ways.
                 a   Lunchtime Seminars                                                    0
                 b Before or After Work Seminars                                           0
                 c   Employee Newsletters                                                  0
                 d Fact Sheets                                                             0
                 e   Individual Meetings with Someone to Help Problem Solve                0
                 f   On-site Support Group                                                 0
                                                  2
               Employed Family Caregiver Survey: Report and Executive Summary Worksheet
                g    Printed Directory of Caregiver Services                                  0
                h    E-mail                                                                   0
                i    Online                                                                   0

                         Responses from employed caregivers ONLY.
13   Number of adults for whom employed caregivers provide care.
               a   One                                                                        0
              b Two                                                                           0
               c   Three                                                                      0
              d Four                                                                          0
               e   Five or More                                                               0

14   Total number of employed caregivers. Calculated automatically.                           0

15   Number for individual who is receiving most care.
              a     Parent or Parent-in-Law                                                   0
              b Brother or Sister                                                             0
              c     Spouse                                                                    0
              d Adult Child                                                                   0
              e     Grandparent                                                               0
               f    Other Relative                                                            0
              g Friend                                                                        0
              h Neighbor                                                                      0

16   Number of caregivers who responded YES to being the primary caregiver.                   0

17   Number of caregivers who responded YES to caring for someone with memory
     impairment.                                                                              0

18   Numbers for where care receivers live (Note: some of the categories have been
     combined in the detailed report).
               a    With the caregiver (you)                                                  0
               b In their own residence                                                       0
               c    In a care facility (nursing home, assisted living, etc.)                  0
               d With another family member                                                   0
               e    With an unrelated person, such as a friend                                0

19   Number of caregivers providing care for someone MORE than one hour away.                 0

20   Numbers for how long caregivers have been providing care.
               a    Less than one year                                                        0
               b 1-5 years                                                                    0
               c    6-10 years                                                                0
               d 11-15 years                                                                  0
               e    16 years or more                                                          0
21   The lowest range in #20 that has responses. Calculated automatically.            FALSE

                                                  3
               Employed Family Caregiver Survey: Report and Executive Summary Worksheet
22   The range in #20 that has the most responses. Calculated automatically. less than one

23   The highest range in #20 that has responses. Calculated automatically.           FALSE

24   Number for each category of hours of care provided in a typical week.
              a    0-7                                                                          0
              b 8-14                                                                            0
              c    15-21                                                                        0
              d 22 or more                                                                      0

25   Range with most responses in #24. Calculated automatically.                          0-7

26   Number of responses on how caregivers reponded when asked if they could continue
     providing care as long as necessary.
                a    Yes, with the same help I currently receive                                0
                b Yes, with additional help                                                     0
                c    No                                                                         0
                d Not sure                                                                      0

27   Numbers for when was the last time the employed caregiver was able to take a vacation
     from caregiving responsibilities.
                a   Less than six months ago                                             0
               b Between 6-12 months ago                                                 0
                c   Between 13 months-2 years ago                                        0
               d More than 2 years ago                                                   0

28   Number for whom caregiving responsibilities have caused to. . .
              a    Arrive at work late                                                          0
              b Leave work early                                                                0
              c    Miss days of work                                                            0
              d Take leave of absence                                                           0
              e    Unable to focus at work                                                      0
               f   Use breaks to arrange for caregiving                                         0
              g Respond to calls during work                                                    0
              h Rearrange work schedule                                                         0
               i   Cut hours of work                                                            0
               j   Turn down work travel                                                        0
              k Turn down a promotion                                                           0
               l   Turn down work relocation                                                    0
              m Consider changing employer                                                      0
              n Consider leaving work entirely                                                  0

29   Number who have used one of the following to fulfill caregiving responsibilities.
             a    Sick leave                                                                    0
             b Flexible hours                                                                   0
             c    Vacation                                                                      0
             d Personal time                                                                    0
                                                  4
                  Employed Family Caregiver Survey: Report and Executive Summary Worksheet
                   e    Work from home                                                       0
                   f    Time off without pay                                                 0

  30   Number of caregivers with YES responses to "providing or arranging care has made current
       employment more difficult."                                                        0

  31   Number for each type of assistance provided by employed caregivers.
                a    Driving                                                                 0
                b Meals                                                                      0
                c    Grocery shopping                                                        0
                d Home maintenance                                                           0
                e    Personal care                                                           0
                 f   Completing documents                                                    0
                g Assisting with bill payment                                                0
                h Arranging services                                                         0
                 i   Housekeeping                                                            0
                 j   Medications                                                             0
                k Providing cash                                                             0

  32   Insert quote from an employed caregiver. (Note: quote should not exceed the
       boundaries of the blue box. Only that which is in the blue box will display on the

       QUOTE # 1 FROM SURVEY




  33   Insert quote from an employed caregiver. (Note: quote should not exceed the
       boundaries of the blue box. Only that which is in the blue box will display on the

       QUOTE # 2 FROM SURVEY


  34   Enter your name, title and organization.
                      Name, Title &                      Name, Title, Organization
                  a
                      Organization

  35   Enter the name, organization, phone number and e-mail to contact for more information.
                       Name &                          Name, Organization
                  a
                       Organization
                  b Phone Number
                  c    E-mail

Congratulations! You now have two reports ready for printing and distribution. Save the entire Excel
file for future use. Click on the tab that says "Executive Summary" to view and print the executive
summary. Click on the tab that says "Report" to view and print the report. You may also want to save
the files in a PDF format.

                                                     5
                  Employed Family Caregiver Survey: Report and Executive Summary Worksheet




If you experience trouble printing the Executive Summary or Report, try 1.) CLICK the Executive
Summary tab; 2.) Along your top menu bar CLICK "View"; 3.) CLICK "Page Break View"; 4.) You
should see a blue border around the page. Grab the right hand margin border and drag it RIGHT one
column; 5.) Save your work and try printing again; 6.) Will probably need to be repeated for the Report.




                                                     6
                                  0
         Employed Family Caregiver Survey - Executive Summary
                            January, 1900
What?                                                                                              Survey Highlights
        This is the Executive Summary of the
results from the employed family caregiver      ##### of employees completed the survey.
survey taken by the employees of                                               0       of      0
                        0
The purpose of the survey is to assess the      ##### of employees who responded are caregivers.
impact of family caregiving responsibilities on                                0       of      0
employees.
Why?                                                                        Among Responders Who Are Caregivers
        Family caregiving costs American
employers up to $34 billion per year in lost                                ##### provide most care for a parent or parent-in-law
productivity. The number of U.S. residents
aged 65 and older is expected to increase from                              ##### provide most care for a spouse or other relative
35 million in the year 2000 to 71 million in
2030. This dramatic rise will result in an                                  ##### said caregiving has made their employment
increase in caregiving responsibilities among                                     more difficult
our workforce nationwide. Employers are
realizing the importance of taking a proactive                              ##### have had to miss days of work due to
approach to address family caregiving                                             caregiving responsibilities
responsibilities among their employees.

                                                           QUOTE # 1 FROM SURVEY

                                                                                                                         ~ Employed Caregiver
Types of Assistance Provided by Employed Caregivers

                             Providing cash            0
                                Medications            0
                             Housekeeping              0
                       Arranging services              0
            Assisting with bill payment                0
                 Completing documents                  0
                               Personal care           0
                       Home maintenance                0
                        Grocery shopping               0
                                        Meals          0
                                      Driving          0

                                                   0                 0.2                 0.4                0.6                 0.8                  1


    An EEO/AA employer, University of Wisconsin-Extension provides equal opportunities in employment and programming, including Title IX and ADA requirements.
                                                                  QUOTE # 2 FROM SURVEY
                                                                                                                                                ~ Employed Caregiver
       Time Spent in a Caregiving Role                                                 Employees Want More Caregiving Information
        The graph below provides a picture                                                  All of the employees who responded to the
of the hours of care employees provide in a                                          survey identified topics they are interested in learning
typical week for the one person for whom                                             more about. The topics are shown in the graph below.
they provide the most care.
        Of employed caregivers at                                                         Long-term Care Insurance              0
                    0
 ##### provide care for one adult;                                                              Relationship Changes            0
 ##### provide care for two or more adults.
                                                                                                        Loss and Grief          0
              1
             0.9                                                                        Making Difficult Decisions              0

             0.8
                                                                                                  Problem Behaviors             0
             0.7
             0.6                                                                                 Personal Care Skills           0
Caregivers




             0.5                                                                              Coping with Caregiving            0
             0.4
                                                                                                  Juggling Work and
                                                                                                     Caregiving
                                                                                                                                0
             0.3
             0.2                                                                       Residential/Housing Options              0
             0.1                                                                            Finding and Hiring Paid
                         0               0               0               0                                                      0
                                                                                                     Help
              0
                        0-7            8-14           15-21       22 or more              Legal, Finance and Health
                                                                                                   Planning
                                                                                                                                0
                                      Hours Per Week
                                                                                               Community Resources              0

                   How Employees Prefer to Receive
                                                                                                   Employer Benefits            0
                      Caregiving Information
                      Lunchtime Seminars                                ######                 Work Communication               0

                                                                                       Communicating with Health
                                  #N/A                                   #N/A               Professionals
                                                                                                                                0

                                                                                              Family Communication              0
                                  #N/A                                   #N/A

                                                                                                                            0                0.5                1
                                  #N/A                                   #N/A
                                                                           Prepared By
                                                                      Name, Title, Organization
For more information, contact                                                                         Name, Organization
                                             0                                           or                                            0
    Survey & Report developed by University of Wisconsin-Extension Faculty: Mary Brintnall-Peterson, PhD, Dianne Weber, Molly
 Spaulding, Teri Zuege-Halvorsen, Peggy Nordgren, Faye Malek, Kathryn Miller, Jane Jensen, Heidi Ungrodt & Clifton E. Barber, PhD.
                Also by Texas AgriLife Extension Service, Texas A&M System, Faculty: Andrew B. Crocker. May 2010.

              An EEO/AA employer, University of Wisconsin-Extension provides equal opportunities in employment and programming, including Title IX and ADA requirements.
                                                0
                              Employed Family Caregiver Survey Report
                                          January, 1900
        With the number of older adults steadily increasing and 20% of Americans reaching or
exceeding the age of 65 by 2030 (He, Sengupta, Velkoff, & DeBarros, 2005), family caregiving has
surfaced as a national priority. A family caregiver is typically defined as one who provides care to an
adult family member or friend, 18 years or older, who is chronically ill, disabled, aged or frail. There
are over 44 million Americans who provide unpaid care to an adult age 18 or over (National Alliance
for Caregiving and AARP, 2005).
        Fifty-nine percent (59%) of family caregivers either work full or part-time or have worked while
providing care (National Alliance for Caregiving and AARP, 2005). Employed adult caregivers face
unique challenges in balancing family and work responsibilities, making their needs of particular
interest.

The Cost to Employers

       Family caregiving costs American businesses up to $34 billion annually in lost productivity--an
average of $2,110 for each of the estimated 15.9 million caregivers who work full-time (MetLife
Mature Market Institute and National Alliance for Caregiving, 2006). The costs can be attributed to
replacement and training, absenteeism, workday interruptions, crisis in care, supervision costs, unpaid
leave and reductions from full to part-time work (MetLife Mature Market Institute and National
Alliance for Caregiving, 2006). For employees who are long distance caregivers, managing family
responsibilities from one hour or more away, the costs to employers are greater because long distance
caregivers are often required to miss whole days of work rather than coming in late or leaving early
(Agency for Healthcare Research and Quality, 2001).
       Family caregivers comprise 13% of the workforce (Neal & Wagner, 2002). Of those employed
caregivers, 62% have made adjustments to their employment, ranging from reporting late to work to
giving up work entirely (National Alliance for Caregiving and AARP, 2005). In fact one study found
that 37% of caregivers to persons age 50 or older quit their job or reduced their work hours in 2007
(Evercare & National Alliance for Caregiving, 2007).

  GRAPH A: Increasing U.S. Population Over Age 65, From the Year 2000-2050 (He, et al., 2003).

                            100
                                                                                       86.7
                                                                            80
                             80                               71.5
   Population in Millions




                             60                   54.6

                                         40.2
                             40    35


                             20


                              0
                                  2000   2010     2020        2030         2040        2050
                                                   9
        Another study found that employed women who are middle age are more likely to leave work
entirely than to reduce their hours of work when they begin caregiving (Pavalko & Henderson, 2006).
This is of special interest since national data report that 61% of caregivers are female (National
Alliance for Caregiving and AARP, 2005). Daughters are twice as likely as sons to be the primary
caregiver (Zogby International and National Alliance for Caregiving, 2004), and 44% of caregivers are
providing care for a parent or in-law (National Academy on an Aging Society, 2000).

The Cost to Caregivers

       In the United States, 83% of long-term care is provided by a relative (National Alliance for
Caregiving and AARP, 2005). The economic value of their unpaid contributions was approximately
$375 billion in 2007, (Houser & Gibson, 2008) more than twice the amount spent on homecare and
nursing home services combined (Arno, 2006).
      Caregiving is almost universally time-consuming, physically demanding, and highly stressful.
Caregivers face emotional challenges in watching a loved one experience declining health or in
engaging the support of others to assist in caregiving tasks. They may face a maze of programs and
services or the absence of services to meet their needs.
       Caregivers under stress report being less productive at work (Scharlach, Sobel, & Roberts,
1991), worry about the toll on their own health associated with caregiving (Gwyther & Lowry, 2004),
and report that the health effects of caregiving negatively affect their work performance (Met Life &
National Alliance for Caregiving, 1997). One study of the health and productivity of financial services
workers found that caregiving accounted for a significant increase in the number of health risks for the
employee (Burton, Chen, Conti, Pransky, & Edington, 2004). This study also found that caregiving was
associated with increased absenteeism and significant work limitations while on the job.
       Studies also show the impacts of caregiving on financial well-being. Family caregivers surveyed
had an annual out-of pocket expense of $5,531, which is more than 10% of the median income of the
group, and 37% had quit their job or reduced work hours as a result of caregiving responsibilities
(Evercare & National Alliance for Caregiving, 2007).

Survey Implementation and Results

                             0                    implemented a survey to assess the caregiving
needs of their employees. They selected the Employed Family Caregiver Survey developed by
University of Wisconsin-Extension Family Living faculty. The survey results give employers an
understanding of how caregiving affects their employees and help employers identify educational
strategies and workplace policies that will best meet the needs of their workforce.
         A link and instructions for completing the survey were sent to              0    employees of
                    0                    . During the time that the online survey was availble
    0 reminders to complete the survey were sent.
         Of the approximately        0 employees who received the survey in
     January, 1900           0 completed the employed family caregiver survey for a #####
response rate. Of those responding to the survey,         ##### were female,       ##### were
male. Characteristics of the survey respondents included:




                                                   10
              Age                                            GRAPH B: The Person for Whom Employed
                    •   #####   35 and under                    Caregivers Provide the Most Care
                    •   #####   36-45                                       0%   0%
                    •   #####   46-55
                    •   #####   56-65
                    •   #####   66 and older

              Race/Ethnicity
                   • #####      American Indian
                   • #####      Asian
                   • #####      Black or African-American
                   • #####      Hispanic or Latino
                   • #####      White

              Years Employed by the Organization
                   • ##### 0-5                                        Parent or parent-in-law
                   • ##### 6-15                                       Spouse
                   • ##### 16-25                                      Adult child
                                                                      Other relative
                   • ##### 26 years or more                           Friend or neighbor

         Of employees completing the survey, ##### indicated they were currently a caregiver
to one or more adult family members or friends. Graph B illustrates the individuals for whom
employees provided the most care. Providing care to someone with memory impairment, such as
Alzheimer's Disease or other form of dementia can be even more difficult;            ##### of
employed caregivers face this additional challenge.
         The time needed to provide care per week varies according to the care receiver's needs and
abilities and whether others are involved in helping to provide care. Most employed caregivers at
                   0                      provide        0-7        hours of care per week. See
Graph C for a detailed look at the time employees spend in their caregiving role each week. The
greatest number of employees have been providing care for            less than one year(s);
however, it ranged from                FALSE          to       FALSE        year(s).
                                                                    Of the employed caregivers,
 GRAPH C: Hours Spent Weekly in Caregiving Role ##### reported that they are the
      1                                                    primary caregiver.
                                                                    The employed caregivers at
    0.8
                                                                               0
 Caregivers




    0.6                                                    reported their involvement in a variety
                                                           of caregiving tasks, including
    0.4                                                    transportation, home maintenance,
    0.2
                                                           grocery shopping, meal preparation,
              0          0           0          0          assisting with forms and documents
      0                                                    and providing personal care. See
             0-7       8-14        15-21   22 or more      Graph D on the following page for
                        Hours Per Week                     detailed survey responses.


                                                        11
GRAPH D: Types of Assistance Provided by Employed Caregivers

                    Providing cash        0
                      Medications         0
                     Housekeeping         0
                Arranging services        0
        Assisting with bill payment       0
            Completing documents          0
                     Personal care        0
                Home maintenance          0
                 Grocery shopping         0
                             Meals        0
                           Driving        0

                                      0       0.2              0.4         0.6         0.8         1


At                         0                     ##### of employed caregivers provided care for only
one adult; however, others cared for multiple individuals, as shown in Graph E. Providing care for
multiple individuals may add additional physical, emotional, and financial stress on employees. When
asked if they thought they would be able to provide care as long as necessary, employed caregivers said:

                                                           •   #####   Yes, with the same help I now have
  GRAPH E: Number of Adults for Whom                       •   #####   Yes, but with additional help
     Employees are Providing Care                          •   #####   No
                     0%    0%                              •   #####   Not sure

                                                    Caregiving's Impact on Employees

                                                            At                           0
                                                     ##### of employed caregivers indicated that their
                                                    caregiving responsibilities have made employment
                                                    more difficult. In fact, ##### of employed
                                                    caregivers reported they had missed work during the
                                                    past year because of caregiving responsibilities. When
                                                    they had to miss work, the employees used one or
                                                    more of the following to fulfill their caregiving
                                                    responsibilities:
                                                                   • ##### Sick leave
                                                                   • ##### Flexible hours
          One                Two                                   • ##### Vacation
          Three              Four                                  • ##### Personal time
                                                                   • ##### Work from home
          Five or More
                                                                   • ##### Time off without pay


                                                      12
       Graph F illustrates additional ways employed caregivers have responded to their caregiving
responsibilities.

GRAPH F: Caregiving Responsibilities Caused Employees To

             Consider leaving work entirely        0
               Consider changing employer          0
                Turn down work relocation          0
                    Turn down a promotion          0
                     Turn down work travel         0
                          Cut hours of work        0
                  Rearrange work schedule          0
              Respond to calls during work         0
        Use breaks to arrange for caregiving       0
                    Unable to focus at work        0
                      Take leave of absence        0
                         Miss days of work         0
                          Leave work early         0
                         Arrive at work late       0

                                               0       0.2     0.4         0.6        0.8         1


        Factors affecting an employee's frequency of absenteeism and difficulty focusing at work
include the number of hours spent caregiving, length of time in a caregiver role, and where the
caregiver lives in relation to the care recipient. Living arrangements of care recipients included:
      • ##### living with the employee                    • ##### living in a care facility
      • ##### living in their own residence               • ##### living with another family member
                                 • ##### living with an unrelated person, such as a friend
Caregivers who live closer to the care recipient are more likely to report that they have to come in late
or leave work early, while those who live farther away are more likely to report that they have missed
entire workdays due to caregiving (Zogby International and National Alliance for Caregiving, 2004).
Approximately ##### of the employed caregivers at                               0
are long-distance caregivers, meaning they live one hour or more away from the care recipient.
        Frequently caregivers are unable to take a vacation. The last time employed caregivers at
                     0                     were able to take a vacation that allowed time away from
caregiving responsibilities was:
      • ##### Less than six months ago                    • ##### Between 13 months and 2 years ago
      • ##### Between six and 12 months ago               • ##### More than two years ago

Resources for Employees

       Balancing work, family, and family caregiving responsibilities can be a challenging task. Some
experienced caregivers are well-connected with local resources and understand how to access needed


                                                       13
assistance. However, this is not true for all caregivers. Information from this survey guides
                    0                     in knowing what resources and assistance their employees
would like to learn more about and how they prefer to receive that information. Employee preferences
are shown in Graph F.
        All employees were asked, "How               GRAPH F: Family Caregiving Topics Employees
would you prefer to receive caregiving                        Would Like To Learn More About
information if it were made available at your
                                                        Long-term Care Insurance 0
workplace?" Responses are listed below.
                                                         Relationship Changes    0
     •   #####   Lunchtime seminars
     •   #####   Before or after work seminars                  Loss and Grief   0
     •   #####   Employee newsletters
     •   #####   Fact sheets                        Making Difficult Decisions   0
     •   #####   Individual meetings
     •   #####   On-site support groups                    Problem Behaviors     0
     •   #####   Printed directory of services
     •   #####   E-mail                                   Personal Care Skills   0
     •   #####   Online
                                                       Coping with Caregiving    0
Implications
                                                 Juggling Work and Caregiving    0
         This survey provides insights into how
                                                     Residential/Housing Options   0
many employees are family caregivers at
                    0
                                                    Finding and Hiring Paid Help   0
and how they are managing their caregiving
responsibilities. Many family caregivers do not        Legal, Finance and Health
                                                                                   0
identify themselves as “caregivers.” This may                   Planning
be because their caregiving responsibilities               Community Resources     0
have slowly progressed over time or perhaps
they view caregiving as part of their duty as a                Employer Benefits   0
spouse or family member. Additionally, they
may be reluctant to reach out for assistance or            Work Communication      0
resources for fear that their supervisor or co-
                                                     Communicating with Health
workers will not understand. Research                                              0
                                                            Professionals
indicates that once people identify themselves
as caregivers, 90% become more proactive                  Family Communication     0
about seeking resources and skills to assist
them in their caregiving role (National Family                                   0   0.2 0.4 0.6 0.8 1
Caregivers Association, 2001).
        Encouraging employees to plan ahead for future caregiving responsibilities will help them to
improve their work-life balance and increase their workplace productivity. Providing educational
materials to employees of this company will assist them in the efforts of balancing work and family
caregiving. Employers should work with their survey coordinator to create a detailed action plan for
addressing the needs of employed caregivers. This plan should outline an overall strategy, identify
necessary resources, assign responsibilities, and create an implementation plan.

                                                  14
References

Agency for Healthcare Research and Quality. (2001). The characteristics of long-term care users.
Rockville, MD.

Arno, P. (2006). Economic Value of Informal Caregiving. Dept. of Veterans Affairs, NIH, Care
Coordination and the Caregiving Forum, Bethesda, MD.

Burton, W. N., Chen, C. Y., Conti, D. J., Pransky, G., & Edington, D. W. (2004). Caregiving for ill
dependents and its association with employee health risks and productivity. Journal of Occupational
Medicine and Environmental Medicine.

Evercare & National Alliance for Caregiving. (2007). The Evercare Study of Family Caregivers - What
They Spend, What They Sacrifice. Minnetonka, MN & Bethesda, MD.

Gwyther, L. P., & Lowry, K. (2004). Absent on the job? Work and family elder care. Duke Family
Support Program, Durham, NC.

He, W., Sengupta, M., Velkoff, V., & DeBarros, K. (2005). Current Population Reports in the United
States: 2005. U.S. Government Printing Office, Washington, DC.

Houser, A., & Gibson, M. J. (2008). Valuing the Invaluable: The Economic Value of Family
Caregiving, 2008 Update. AARP Public Policy Institute, Washington, DC.

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caregivers. Westport, CT: Metropolitan Life Insurance Company.

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Cost Study: Productivity Losses to U.S. Businesses. New York.

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limitations. Challenges for the 21st century: chronic and disabling conditions. Washington, D.C.:
National Academy on an Aging Society.

National Alliance for Caregiving and AARP. (2005). Caregiving in the U.S.

National Family Caregivers Association. (2001). Survey of Self-Identified Family Caregivers.

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network. Program Development Issue Briefs, Administration on Aging, Department of Health and
Human Services, National Family Caregivers Support Program.

Pavalko, E. K., & Henderson, K. A. (2006). Combining Care Work and Paid Work: Do Workplace
Policies Make a Difference? Research in Aging.

Scharlach, A. E., Sobel, E. L., & Roberts, R. E. (1991). Employment and caregiver strain: An
integrative model. The Gerontologist.

Zogby International and National Alliance for Caregiving. (2004). Miles Away: the MetLife Study of
Long-Distance Caregiving. MetLife Mature Market Institute, New York.

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Help for Caregivers

        Whether your employees are in the middle of their caregiving journey right now or may become
a caregiver in the future, or are, the eXtension Family Caregiving website has information to help. The
site provides valuable information to assist with a variety of needs, including health, housing,
employment, and relationships.
          With eXtension, you get research-based answers from family life specialists and educators in
 America’s largest and oldest universities, the land-grant system. When you use eXtension you receive:
               • Credible expertise and reliable answers based upon sound research and field-tested data.
               • Up-to-date, 24-hour availability from any Internet connection.
               • Customized answers to your specific needs.
               • Searchable knowledge base and "Ask an Expert" options.
               • Contact to over 3,000 local Cooperative Extension offices with professionals who can
                 help you in your own neighborhood.

Visit us today! http://www.extension.org/family_caregiving




      An EEO/Affirmative Action employer, University of Wisconsin-Extension provides equal
      opportunities in employment and programming, including Title IX and ADA requirements.


Survey and Report developed by University of Wisconsin-Extension Faculty: Mary Brintnall-Peterson,
PhD, Dianne Weber, Molly Spaulding, Teri Zuege-Halvorsen, Peggy Nordgren, Faye Malek, Kathryn
  Miller, Jane Jensen, Heidi Ungrodt and Clifton E. Barber, PhD. Also by Texas AgriLife Extension
                Service, Texas A&M System, Faculty: Andrew B. Crocker. May 2010.

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