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RAY KAMKA CHAPTER LEADER SUN CITY WEST_ ARIZONA TIPS ABOUT

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RAY KAMKA CHAPTER LEADER SUN CITY WEST_ ARIZONA TIPS ABOUT Powered By Docstoc
					RAY KAMKA

CHAPTER LEADER

SUN CITY WEST, ARIZONA
TIPS ABOUT ORGANIZING USTOO CHAPTERS & MEETINGS

    1. THINGS THAT HELP MAKE MY SCW CHAPTER A SUCCESS


       A. MEETING AGENDA

       B. FLYERS

       C. NEWLY DIAGNOSED KIT

       D. CANCER RESOURCE LIST

       E. LIBRARY OF BOOKS ON PROSTATE CANCER - Maintained by Bob Russell

       F. MEMBER DATABASE WITH A LIST OF NAMES & THEIR TREATMENTS

       G. EMAIL DISTRIBUTION OF MEETING NOTICE AND PROSTATE CANCER
       INFO – Bill Charvat


       H. DONATION BASKET

       I.

    2. CREATE A MEETING AGENDA


       A. OPEN MEETING WITH A LITTLE HUMOR

       B. HAVE ATTENDEES SIGN IN

       C. HAVE NAME TAGS AVAILABLE

       D. EVERYONE PUT ON NAME TAGS

            1] OFFICE MAX HAS HOLDER FOR ABOUT $6 FOR 24

       E. ASK NEWLY DIAGNOSED TO

            1] INTRODUCE THEMSELVES

            2] WHERE ARE THEY ORIGINALLY FROM
       3] TELL USE THEIR PSA #

       4] WHAT WAS THEIR GLEASON SCORE

       5] HAVE YOU BEEN TREATED

  F. OPEN DISCUSSION STARTING WITH NEWLY DIAGNOSED

  G. RELAY SOME OF THE NEW INFO

       1] JOHNS HOPKINS NEWS LETTERS

       2] USTOO HOT SHEETS

       3] NEWSPAPER ARTICLES

       4] TELEVISION NEWS

       5] MAKE COPIES OF INFO FOR MEMBERS

  H. HAVE GOODIES EVERY SO OFTEN (FROM DONATIONS)

  I.

3. DEVELOP A FLYER USING USTOO INFO AND FLYERS AS A MODEL -
MAKE IT AVAILABLE TO MEMBERS TO POST


  A. DOCTORS OFFICE

  B. CHURCHES

  C. BARBERS

  D. I PERSONALLY GO TO THE CHURCHES IN THE MY AREA AND GIVE
  THEM ONE TO POST ON THEIR BULLETIN BOARDS , PUT ON THEIR
  PARISH NEWSLETTERS & EMAIL

4. DEVELOP A NEWLY DIAGNOSED KIT TO LOAN TO NEWLY DIAGNOSED
MEN

  A. IT CAN CONTAIN THE PAMPHLETS WHICH USTOO PROVIDES

  B. OBTAIN BOOKS AND PAMPHLETS FROM THE AMERICAN CANCER
  SOCIETY

  C. OTHER IMPORTANT PROSTATE CANCER INFO
5. IF I GET A CALL FROM A NEWLY DIAGNOSED

  A. HAVE THEM COME TO THE HOUSE TO TALK & ASK QUESTIONS

     1] THIS WILL HELP RELIVE THE STRESS, PANIC AND ANXIETY CAUSED
     BY THE CANCER NEWS

  B. GIVE THEM A NEWLY DIAGNOSED KIT AND EXPLAIN IT’S CONTENTS

  C. INFORM THEM ABOUT

     1] GETTING A 2ND OPINION ON BIOPSY’S

     2] PSA MAY BE HIGH BECAUSE OF PROSTATE STIMULATION WITHIN
     72 HOURS OF BLOOD TEST

6. CREATE A CANCER RESOURCE LIST- web site info & telephone numbers

  A. PROSTATE CANCER INFORMATION SITES SUCH AS

     1] USTOO

     2] AMERICAN CANCER SOCIETY

     3] LOMA LINDA UNIVERSITY MEDICAL CENTER

     4] CANCER TREATMENT CENTERS OF AMERICA

     5] CENTER FOR PROSTATE CANCER RESEARCH

     6] JOHNS HOPKINS MEDICAL ALERTS

  B. TREATMENT WEB SITES SUCH AS

     1] LOMA LINDA MEDICAL UNIVERSITY – PROTON BEAM

     2] CALYPSO

     3] CYBERKNIFE

     4] CRYOCARE

     5] DA VINCI PROSTATECTOMY – ROBOTIC SURGERY

     6] NOVALIS SHAPED BEAM SURGERY

     7] TOMOTHERAPY

     8] IMRT
    9] IGMRT

    10] BRACHYTHERAPY


7. MAINTAIN A PROSTATE CANCER LIBRARY


  A. HAVE A CURRENT MEMBER RESPONSIBLE FOR IT – BOB RUSSELL


  B. BRING IT TO THE MEETINGS


  C. IT CONTAINS BOOKS AND PAMPHLETS


  D. MEMBERS HAVE ACCESS TO IT -- BOOKS ARE ON A LOAN BASES


8. CREATE A MEMBERS DATABASE USING MICROSOFT WORKS

  A. MY CONTAINS

    1] NAME

    2] TELEPHONE #

    3] E-MAIL ADDRESS

    4] LOAN KIT # & DATE PICKED UP & RETURNED

    5] TREATMENT

       a] DATE & TYPE

       b] OR STILL IN RESEARCH

  B. CREATE A CHAPTER MEMBER TREATMENT LIST - SO A NEWLY
  DIAGNOSED MEMBER CAN SEE WHO AND HOW MANY HAVE HAD WHAT
  TREATMENT

    1] HE MAY WANT TO TALK TO A MEMBER ABOUT A SPECIFIC
    TREATMENT


  C. WHICH YOU CAN ARRANGE


  D. CREATE AN EMAIL DISTRIBUTION LIST FOR SENDING PROSTATE
  CANCER INFO TO MEMBERS –
     1] THIS IS DONE BY A SCW MEMBER - BILL CHARVAT


  E. MAKE INACTIVE MEMBERS WHO DON’T COME TO THE MEETING
  (USING ATTENDANCE SIGN IN SHEET)

     1] REMOVE FROM EMAIL LIST

9. HAVE A PERSON VOLUNTEER TO ACQUIRE SPEAKERS


  A. BANNER DEL WEBB HAS A SPEAKER COORDINATOR

     1] CANDACE HOFFMAN

10. MOST IMPORTANT – ASK MEMBERS –


  A. ONCE THEY HAVE BEEN TREATED TO COME BACK TO THE MEETING
  AND SHARE THEIR EXPERIENCES WITH OTHER MEMBERS


  B. AND MOST OF ALL PASS THIS INFO ON TO THE NEWLY DIAGNOSED
  MEMBERS.


  C. INFORM THEM -- REMEMBER YOU WERE IN THAT POSITION ONCE AND
  WERE LOOKING FOR HELP