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									                                                PROMISE
                                                     Newsletter
                                       Connecting and Supporting the Autism Community                                  Summer 2006

 A Message from the
  Executive Director
                                                 A Life (So Far) With Aspergers
Strength  (and  hope)  Exists  in  Num-
bers.

In  light  of  the  recent  tragedies  sur-
rounding  several  people  choosing  to 
take the life of a loved one with a de-
velopmental disability, the leadership 
of ASI  feels  compelled  to  let  every-
one know that there is hope.

We understand first hand how daunt-
ing  the  task  of  caring  for  a  disabled 
individual can be. The message how-
ever, is clear- you do not have to go 
it alone.
                                            By Ira Geoffrey Kriston                        I have come along way. Not long ago 
ASI  has  a  litany  of  resources  avail-
                                                                                           I felt insecure and inferior, especially 
able to families searching for answers 
                                              I can hardly believe that in less than       when I was unemployed. Little did I 
or coping skills. Our professional 
                               cont’d. pg.2
                                            two months I will be moving into my            know. I am now very happy with my 
                                            own apartment and living by myself.            job  at  Whole  Foods  Market  where  I 
                                            I  never  thought  this  day  would  ever      work in the deli doing food prepara-
     In this Issue:                         come.  I  am  presently  living  in  an        tion and dishwashing. The benefits
                                            apartment with a roommate, but look-           are excellent and I feel accepted there. 
     Message from the President             ing forward to living in my own place.         I never thought I could have a job like 
                                            I  never  thought  I  could  live  without     I do now. 
     Legislative News                       my parents--ever. I can get anywhere             Things have sure improved over the 
                                            I desire completely independently by           years. I am getting lots of help from 
     Calendar of Events                     Metra,  CTA,  Pace  or  Taxi.  This  has       many different people. I feel accepted 
                                            been  my  best  year  yet  and  I  have  to    not only where I work, but just about 
     Take the Survey                        say that I finally know what it’s like to      everywhere I go. It wasn’t always this
                                            be satisfied, which is so great. At one        way.  Back  in  middle  school  I  really 
                                            time I could not even cross  my own            didn’t have any friends.
                                            street  unsupervised  or  go  anywhere           I have sure made up for that now. I 
                                            locally without an adult. I have to say        can hardly believe all (cont’d pg. 3) 

       Autism Society of Illinois • 2200 S. Main Street, Suite 317, Lombard, Illinois 60148 • fax: 630.932.5620
                                      toll free: 888.691.1270 local: 630.691.1270 
                                            we  have  recently  hired  new  staff  to     fulfill our mission. Members have a
  A Message from                            focus  exclusively  on  I&R.  Whether         unique opportunity to help shape the 
   the President                            you are a parent of a newly diagnosed         future  of  ASI.    Our  special  projects 
                                            child, an individual on the spectrum,         need volunteers, committees need as-
                                            a professional, or an old pro, this pro-
2006  is  off  to  a  great  start  at  ASI!                                              sistance,  and  most  importantly,  new 
While  our  mission  and  the  goal  of     gram  is  here  for  you  whenever  you       members must be added to encourage 
serving  our  members  remain  con-         need  help  with  anything  related  to       Springfield to provide an appropriate
stant, there have been many changes         Autism.                                       level  of  service  to  families  affected 
already  this  year  with  many  more                                                     by Autism.
to come. I am confident that these Our  Legislative  program  has  made 
changes are making ASI a better and  Springfield acutely aware of Autism                  The ASI  Board  and  Staff  appreciate 
stronger organization.                        and our member’s needs. The Board           all  the  effort  and  support  our  mem-
                                              and Legislative Committee plan to in-       bers  have  given  over  the  years  and 
The Board of Directors while institut- crease its pressure so that every spent            we  look  forward  to  providing  more 
ing these changes is not immune from  on  Autism  is  dollar  well  spent  and            programs, services and benefits to the
change itself! Several members have  that  real  change  takes  place.  How-              Autism community for the remainder 
left the Board and we have welcomed  ever,  many  more  dollars  are  needed              of 2006 and beyond!
new directors as well. New blood on  to  directly  serve  more  families  with 
the Board means new ideas and meth- Autism.  Our  legislators  should  be 
ods to achieve our stated mission. No  embarrassed  that  Illinois  ranks  47th           Eric L. Smith
Board  should  ever  be  unanimous  in  in services considering we are the 7th            President-Autism Society of Illinois 
its thinking but we all have common  richest state.                                       Board of Directors
goals in mind for ASI.
                                              Our  web  site  is  newly  redesigned!      Executive Director (cont’d)
As  President,  I  have  been  charged  Most  important  among  the  changes 
                                                                                          advisory board consists of numerous 
with leading this organization. While  is the addition of a calendar that will 
                                                                                          experts  in  psychiatry,  medicine,  so-
the position has been very demanding,  post Autism related events throughout 
                                                                                          cial work, education, family law and 
frustrating and sometimes angering, it  the state. We look forward to assisting 
                                                                                          other areas of specialty.  Your access 
is always rewarding.  I feel that ASI is  any  and  all Autism  organizations  by 
                                                                                          to these seasoned minds, that can lend 
on its way to continue on toward big- publicizing their events as it is inher-
                                                                                          a  hand  or  steer  you  to  the  right  pro-
ger  and  better  things.  I  hope  that  by  ent in our  mission to make sure that 
                                                                                          fessionals based on your situation, are 
the end of my time as President, the  every  family  is  as  well-informed  as 
                                                                                          a  toll-free  call  away  at  the ASI  hot-
question of “what does ASI do for me”  they  can  be  about  all  aspects  of  au-
                                                                                          line  (888)  691-1270.    We  have  also 
will no longer be asked. To that end,  tism, its interventions and the servic-
                                                                                          featured an article in this issue of the 
just look inside this issue of PROM- es available. 
                                                                                          Promise,  written  by  a  mother  with  a 
ISE or on our newly redesigned web 
                                                                                          teenage daughter diagnosed with au-
site and you will see many of ASI’s As a parent, member, and Board Pres-
                                              ident, I am excited to see the changes      tism featuring six very practical mes-
recent accomplishments. 
                                              and  growth  happening  at  ASI.  The       sages of how coping begins at home.
There is much work to be done how-            Board of Directors will soon be sched-
                                              uling  a  weekend  retreat  to  examine     We realize that many families are fac-
ever. 
                                              every  aspect  of  the  organization. As    ing  desperate  levels  of  need  for  ser-
                                                                                          vices  and  supports,  including  respite 
The Board and Staff of ASI are highly  always,  member  and  non-member 
                                                                                          care and long term solutions to their 
committed  to  the  organization.    We  input is strongly encouraged and it is 
                                                                                          immediate family needs. We can pro-
believe  we  do  an  amazing  job  with  imperative that your voices are heard.        
                                                                                          vide contacts or support to help par-
our limited budget. But our foremost  Please let us know your vision, sug-
                                                                                          ents,  guardians  and  family  members 
goal is to bring more services to more  gestions and/or concerns. 
                                                                                          not  only  understand  the  process,  but 
people across the state. Our Informa-  
                                                                                          break through maze and get the help 
tion and Referral program is the cor- We are proud to serve our members, 
                                                                                          they require that can ulti-
nerstone of ASI and recognizing that,  but your help is also needed to help us                                            cont’d. pg.3

      2
Executive Director (cont’d)                  A Life so Far...                                  then. When I was younger I didn’t
                                             (cont’d from p.1)                                 even know anything about Asperger’s
mately make the difference.                                                                    and just thought that I was a spoiled 
                                             of  the  things  I  have  lived  through.  I      child with lots of problems. I didn’t
Illinois is in a crisis when it comes to     never  knew  that  things  would  really          always know myself like I do now. I 
per  capita  spending  on  developmen-       improve.                                          never  thought  I  would  have  made  it 
tal disabilities.  In fact, many families      I  felt  like  the  odd  child  in  every       as far as I have today. So many prob-
with  young  adults  in  our  midst  are     school  I  previously  attended.  Teas-           lems are in the past and I never want 
joining in ASI’s lobbying efforts in         ing,  provoking  and  harassing  others,          to go back there ever again. Just a few 
Springfield or their own local com-          and bullying took place in school all             years  ago  I  relied  on  my  parents  for 
munities.  Beyond  autism  research,         the  time. When  I  was  younger,  even           too many things. I couldn’t even do
there are real needs families are fac-       I thought it was cool to make fun of              simple  things  on  my  own  like  shav-
ing today. We must work together and         others.  I  felt  bad  because  the  reason       ing and fixing meals, etc. Back then I
clearly let our legislators see and hear     I didn’t do it was that I would get               never thought I could do any of those 
the breaking point levels so many Il-        in  trouble  with  the  staff.  I  always         things  but  now  I  have  gone  farther 
linois families are reaching. We need        thought  I  would  get  the  blame  since         than  ever.  I  am  currently  enrolled  in 
their support and immediate action to        everybody  was  so  used  to  seeing              the P.A.C.E. Transition Program. The 
avert future tragedies like we’ve wit-       them act that way and would find                  people at P.A.C.E. help me live inde-
nessed in the past few months.               it  unusual  for  me  to  act  that  way.    I    pendently and I have been told that I 
                                             always  wondered  what  they  would               doing well. 
Beyond the daily work we perform at          think of me if I tried to get them back.            I  love  my  independence  and  can-
ASI, it is critical that everyone under-     In every school I attended there were             not  believe  how  happy  I  feel.  I  was 
stand that the ASI offers an extended        many different incidents that I didn’t            very  freaked  out  and  reluctant  about 
“family” and the strength of one orga-       think much of at the time but see dif-            moving out of my parent’s house and
nized voice. We have much to do, let’s       ferently  now. At  least  one  classmate          I thought it was the end of my good 
continue  the  good  work  and  support      or  another  had  made  comments  that            life.  I  was  very  unhappy  and  de-
one  another  along  this  journey.  Get     nobody  liked  me  or  something  else            pressed and felt hopeless. Little did I 
involved where you can. For more in-         that would hurt my feelings or insult             know things would change so much. 
formation on how to get involved you         my  intelligence.  I  did  not  know  that        My life is full of positive events and 
can reach us toll free (888) 691-1270        they  were  insecure  themselves  and             it keeps getting better all of the time. 
or  via  email  at  info@autismillinois.     just wanted to make me feel that way.             I feel I have many good things to look 
org.                                         The best school I attended when I was             forward  to  and  cannot  believe  that  I 
                                             younger was Acacia Academy. I start-              am the same person who I was back 
Blessings, Kimberly                          ed in eighth grade and went there till            in those awful adolescent days when 
                                             I  graduated  from  high  school.  Some           I  thought  that  I  could  not  live.  That 
                                             students were problems but everyone               was hard for not only me but for my 
                                             else, especially the teachers, had been           entire family whom I had a big effect 
                                             nice,  friendly  and  understanding  to-          on.  I  went  through  a  big  depression 
       Are YOU an ASI                        wards me. I often still get big insults           period as an adolescent and was very 
                                             to  my  intelligence  and  that  can  re-         worried  and  paranoid  about  every 
          Member?                                                                              little thing, but not any more. I hope 
                                             ally bother me considering all of the 
                                             things that I’ve tried to learn. I love           things stay the way they are. I see my-
                                             to  pursue  my  interests  and  share  the        self now as the luckiest man around, 
    JOIN TODAY!                              things  that  are  important  to  me  with        and I was once the absolute opposite 
                                             other  people.  I  want  other  people  to        of how I am now. 
                                             know what I am thinking about. My                     Nobody’s life is perfect in every
                                             interests,  (some  people  say  obses-            way. Everybody’s life is perfect in
      www.autismillinois.org
                                             sions) can change day to day. I some-             some way. I want to enjoy life while I 
                                             times have rituals or fixations and can           can and always focus on the good and 
                                             still  get  a  little  rigid  every  now  and     the progress.

                                                                                                                                   3
                                                                                                 Mr. Jim Sinclair, an adult with autism 
    Coping Begins with You!                                                                      states:
                                                                                                              
Jennifer L. Bollero, Parent                      son.  Knowing the general character-            Autism  is  a  way  of  being.  It  is  not 
                                                 istics  of  ASD  will  give  parents  and       possible  to  separate  the  person  from 
  Have you ever taken a trip by air-             caretakers the framework in which to            the autism.  Therefore, when parents 
plane? At the beginning of each flight           learn about their specific child/adult          say, “I wish my child did not have au-
the attendants give a rehearsed speech           with autism.  Remember these basics:            tism” what they’re really saying is, “I
regarding seat belts, emergency exits,           ASD  is  a  neurological  disorder  that        wish the autistic child I have did not 
floatation cushions and other on-board           permanently  alters  brain  function.           exist, and I had a different (non-autis-
emergencies.   They tell passengers to           While certain therapies and interven-           tic) child instead.”
expect an oxygen mask to drop from               tions  may  help  increase  skills,  ASD 
the  ceiling  if  the  air  pressure  in  the    is a non-curable, life-long condition.          Read that again. This is what we hear 
cabin  falls  too  low.    Moreover,  they       Persons with ASD act, think and per-            when you mourn over our existence. 
specifically train adults who need to            ceive  the  world  in  a  fundamentally         This is what we hear when you pray 
help a child to put on their mask first,         different way than those of us without          for a cure. This is what we know, when 
and  then  help  the  child  put  on  the        ASD, due to this neurological impair-           you tell us of your fondest hopes and 
mask.                                            ment.  You may visit the following cite         dreams for us: that your greatest wish 
                                                 to learn more about the symptoms of             is  that  one  day  we  will  cease  to  be, 
   Although it may seem selfish to               ASD.    www.nimh.nih.gov/publicat/              and strangers you can love will move 
worry about yourself when there is a             autism.cfm.                                     in behind our faces.
helpless child next to you, the airlines 
know  something  that  most  parents             2. Learn about your loved one with              It takes time to get to know and love 
find counter-intuitive. You are of no            autism.  Remember that people with              a person with ASD.  But the effort is 
use  to  a  child  when  you  are  passed        ASD are people first. Persons with              well  worth  the  result.    Persons  with 
out! Putting your mask on first en-              ASD are just as (if not more) human             ASD  enrich  the  lives  of  their  family 
sures that you are awake and able to             than  the  rest  of  us.   They  have  indi-    and friends whether the symptoms are 
help your child.                                 vidual  personality  traits  with  unique       mild or profound.  You may read Mr. 
                                                 skill sets and dispositions.  They can          Sinclair’s article “Don’t Mourn For
  Loving and caring for someone on               be  shy  or  outgoing,  curious  or  unin-      Us”  in  its  entirety  at  http://ani.autis-
the autism spectrum is a journey that,           terested, charming or obstinate.  Not           tics.org/dont_mourn.html.
like an airline flight, presents unfore-         every characteristic of the person with 
seen circumstances and hazards.  Par-            ASD can be attributed to the disorder.          4. Don’t go it alone.    Every  job  is 
ents, grandparents, teachers and care-           Know the difference.                            easier  when  shared.    Enlist  the  help 
takers need to familiarize themselves                                                            of  family  members,  neighbors  and 
with  the  resources  available  to  them        3. Love unconditionally.   A precur-            friends.    Encourage  others  to  know 
so they can have a safe journey.  Most           sor  to  love  is  acceptance.    Under-        and  love  your  family  member  with 
importantly, they have to remember to            standing  that  ASD  is  a  permanent           ASD so that they can give respite to 
take  care  of  their  own  mental  health       feature of our loved one means that,            parents or other full-time care givers.    
needs before assuming care of a child            to  some  degree,  we  will  have  to  ac-      It  is  tempting  for  parents/caretakers 
with autism.                                     cept the disorder as an integral part of        to ‘gate-keep’ around the person with
                                                 that person.   While it is natural for all      ASD, assuming all of the day-to-day 
So put your mask on!                             caring people to want to help a person          care. Sometimes it is difficult to train
                                                 with ASD improve themselves (as we              others  to  take  care  of  a  child  with 
Here are some coping tips:                       all want to improve ourselves!), there          ASD as persons with ASD do not like 
                                                 is a difference between skill building          changes  in  their  routine.    But  with 
1. Learn about autism.      Autism               and “fixing” someone. Many adult                practice, even persons with ASD can 
spectrum  disorders  (ASD)  have                 persons  with  ASD  have  eloquently            learn to interact with others.
global symptoms that manifest them-              stated  that  they  do  not  want  to  be 
selves uniquely in each affected per-            “fixed “but accepted for who they are. 5. Get professional help.  ASD is a 
      4
complex  neurological  condition  that 
requires  constant  attention.    Persons 
with ASD need to have medical care 
givers who are familiar with the dis-
order  and  who  have  experience  in 
serving  this  population.    Psycholo-
gists trained in ASD can be of benefit
to  persons  with  ASD,  their  parents 
and care givers, as these professionals 
are especially well qualified to inter-
pret and decode the unique behavior 
patterns  associated  with  the  disor-
der.    Social  workers,  educators  and 
other professionals trained in serving 
persons  with ASD  are  an  invaluable 
resource  to  families.    They  can  help 
a family make decisions with regard 
to  healthcare  or  education,  and  they 
can help the family develop a safety 
plan for the person with ASD in case 
of emergencies.

6. In an emergency, call for help.  If 
you are facing a crisis with a person 
with ASD, get help immediately!  If 
the person with ASD is in danger of 
hurting themselves or others, call the 
doctor, or if necessary, call 911.  Tell 
all first-responders about the ASD                     Siblings... a Critical Component of the Family
and  what  the  person  with  ASD  can                             …do not leave them out!
or cannot do.  If the parents/ caretak-
ers are themselves overwhelmed and              Support Autism  now  by  purchas-          answers.  Story  and  Illustrations  by 
unable  to  cope  with  the  person  with     ing the newly released “What’s au-           Gene  Mandarino,  grandfather  of 
ASD,  the  parent  or  caretaker  should      tism?”  This  is  a  question  more  and     two  individuals  with  autism.  Prof-
call  family  and  friends  to  come  and     more children will be asking in fami-        its from the sale of this book benefit
offer respite.  If that option is unavail-    lies,  neighborhoods,  and  in  school       Autism Society of Illinois and go to-
able, the parent/caretaker should call        yards. This story, from a sibling’s          wards  families  receiving  treatment 
911. Emergency first-responders can           point  of  view,  may  provide  some         services.
stabilize the situation to maintain the 
safety of the person with ASD and the                 Sale price $25.00 - available at: http://www.autismillinois.org
parents/caretakers.
                             Checkout ASI’s All New Website!
                                              ASI  is  happy  to  announce  our  web-      info on Local Chapters are just some 
                                              site  has  been  totally  redesigned  and    of the categories you find there. You
                                              now features an easy to use interface        can  also  register  for  Conferences, 
                                              and  SECURE  shopping  capabilities.         make Donations and purchase Aware-
                                              You’ll find a wealth of information and      ness items to help support the Autism 
                                              up-to-date breaking news on develop-         Society of Illinois. Check it out today 
                                              ments in the world of Autism. Parents         and be sure to make it a “bookmark“
                                              Resources,  Calendar  of  Events  and        http://www.autismillinois.org
                                                                                                                            5
  Illinois continues to lag far behind          http://www.elections.il.gov/DistrictLoca-       Finally,  we  have  requested  ad-
its  sister  states  in  providing  services    tor/AddressSearch.aspx                        ditional  funding  to  the  State  Board 
for individuals with autism.  Last year,                                                      of Education’s only autism teacher
we  held  a  series  of  legislative  hear-      2. Health insurance                          training program, the Illinois Autism 
ings, which many of you participated                                                          Training  and  Technical  Assistance 
in, to show the need for the state to im-         We have also had success expand-            Project.    This  program  currently  re-
prove how it treats our families.  We           ing  health  insurance,  through  House       ceives  no  state  funding  whatsoever, 
also set out an agenda that continues           Bill  4125,  which  adds  20  hours  of       relying  entirely  on  a  federal  discre-
to call for more services for our fami-         speech  therapy  to  large  group  and        tionary grant.  Through hearings and 
lies to use so our children and adults          HMO  insurance  policies  for  chil-          advocacy with the Board, they finally
with autism can have a decent chance            dren with autism.  This should result         requested  in  their  budget  an  addi-
at  life.    Families  affected  by  autism     in additional services of up to $2500         tional  $100,000  for  the  program,  a 
need  three  main  forms  of  support:          per  year  for  families  on  these  types    small step, but a line item that can be 
1)  direct  state  services;  2)  increased     of  policies.  The bill was  introduced       expanded  in  future  years.    However, 
access to insurance coverage, and 3)            and  led  through  the  House  by  Rep.       there is no guarantee that this funding 
improved school programs.  We intro-            Mary Flowers (D-Chicago) and led in           will be reflected in the final budget.
duced several bills this year and have          the Senate by Sen. Susan Garrett (D-          Please  ask  your  state  rep  and  state 
had a lot of success, but more work is                                                        senator to support this funding.
needed .
                                                  Nothing will Change                             Our success depends on you.
1. Funding for families                          unless YOU Change it.
                                                                                                Please  meet  with  your  legislators.  
  Our  top  priority  for  2006  was  set 
                                                    ...Get Involved.                          Get  to  know  them  and  get  them  to 
up  a  Medicaid  waiver  program  to                                                          know  your  loved  one  with  autism.     
provide  direct  supports  to  individu-                                                      Remind  them  that  our  families  need 
als with autism so they can remain in           Highwood).    It  will  take  effect  next    financial support, or our children will
their homes and in our communities.             year  upon  renewal  of  your  policy.        suffer terrible consequences.  Autism 
We are pleased to report that the Gov-          Note that not every insurance policy          is treatable, and the lives of these in-
ernor has agreed to write a Children’s          qualifies for this mandate.                   dividuals  can  improve  tremendously 
Medicaid  Waiver  for  Children  with                                                         with the right help.  Every person is 
Developmental Disabilities, including           3. Schools                                    different,  and  no  single  program  or 
autism, by the end of this year.  How-                                                        provider can do it, but the person’s
ever, the budget at this time contains            The  General  Assembly  has  also           family CAN. It’s time for Illinois to
no  new  funding  for  this  purpose,  so       passed House Bill 4987, which allows          support our families.
no new families will be served by the           public schools to hire Board Certified
waiver, at least not for several years.         Behavior Analysts, who often oversee    Not  only  is  this  the  right  thing  to 
                                                programs for students with autism.       do for families in need, but it’s the
  We need to fund families now, and                                                      smart  thing  to  do,  too.    Illinois  will 
the way to do it is by expanding DHS’             This will not require schools to do  reap the economic benefits from re-
72D in-home supports program by $5              this, but for many it will allow vastly  lieving at least some of the enormous 
million. You can look up your legisla-          improved expertise in autism and im- burden on families, and from helping 
tors  by  typing  your  address  in  here: 
                                                proved programs.                         keep  individuals  with  autism  in  the 

      6
community.  Institutionalization costs 
over $120,000 per year—why not pay 
a fraction of that sum to prevent it and 
keep families together?

  Nothing  will  change  unless  YOU 
change it.  Please get involved.

Christopher Kennedy, Esq.
                                                        One of every 166
Autism Society of Illinois
Legislative Director
                                                        children born today
                                                        will have some form of autism.
   Are YOU on the
   E-Mail Updates
        List?
 ASI  sends  out  weekly  up-
 dates of calendar events and 
 other  agency  happenings. 
 Stay  Current  and  get  on  the 
 updates list.                                                  If you are concerned, talk to your:
                                                                       Child’s pediatrician
     Just send an email with                                             Family physician
    “ADD ME TO THE UP-                                                    Child’s Teacher
          DATE LIST“                                                    School psychologist
          in the title to:                                              Day care provider

  info@autismillinois.org



   POSTER
  CAMPAIGN                                                        www.autismillinois.org
                                                                           1-888-691-1270
During Autism Awareness Month 
in April, through the support of             A special note of appreciation goes    on autism letting staff, students and 
Kadisak Tile and Carpet, ASI and            out to the entire school of Lincoln     parents know how they can help dur-
many volunteers took on a massive           Prairie School in Hoffman Estates       ing lunch the week of April 10th by 
effort of sending out 10,000 posters        including Principal Jake Chung.         coming together at lunch every day 
to Pediatricians, Hospitals, School         To kick off autism awareness three      to prep the envelopes and posters for 
Districts, and Organizations through-       students with autism, Tyler Krupa,      the mailing.
out Illinois to increase awareness of       Zachary Schultz and Stephen Walb-
autism.                                     run, did a school wide presentation 

                                                                                                                   7
                                      ASI’s Calendar of Events
08/22-23/06                                                        Contact: Myki Romano or Mindy Bolin 630-889-7398 www.
Unfolding the Map: Finding Routes to the Autism                    illinoisautismproject.org
Resources, Milwaukee, WI.
                                                                   09/06/06
Day One: Includes presentations on adolescence, community          Autism: Characteristics & Latest Treatment Strategies
resources, differential diagnosis, transition and social skills.   (Part 2 of 2)by Patti Boheme
Day Two: Includes presentations on autism risk awareness,          LITTLE FRIENDS CENTER FOR AUTISM - AUTISM
Relationship Development Intervention (RDI), regional              TRAINING FOR PARENTS & PROFESSIONALS!!!
resources, intervention and advocacy. For more information,        All trainings are scheduled from: 2:15 - 4:15 p.m. (unless
please contact CJ Kim at (414) 227-3158 or email cjkim@            specified) Payment and registration forms must be received
uwm.edu or visit the website at www.sce-autism.uwm.edu.            one week prior to training date in order to attend. COST: $25
                                                                   per person - 2 CPDU’s Provided!!!!!
08/24/06
Sibshops for Children Ages 6-12, Northbrook. Sponsored             Contact: Kelly
by the Jewish Child & Family Services. Offers brother and          140 N. Wright St., Naperville, IL. 60540
sisters of children with disabilities and/or special needs an      phone: 630-305-6039 FAX: 630-355-3176
opportunity to meet other siblings in a relaxed supportive
setting. This will be held from 2:30-5:30 p.m. at 225 Revere       09/06-07/06 9pm
Dr., Ste 200. For more information please contact Tamara           The North Shore Welcomes Dr. Harch
Besser, LCSW at (847) 412-4357 or visit their website at www.      Northbrook Public Library-Pollack Room, Northbrook, IL.
jcfs.org.                                                          Dr. Harch has gained national recognition as an expert an
                                                                   pioneer in the field of hyperbaric medicine. Learn about
09/01/06                                                           and get your questions answered by a pioneer in the field.
Far West Suburban Support Group, Guest Speaker                     Contact: Sandi Jiongco - phone: 847-274-5634
- Dr. Willard Hooks, Certified Audiologist and Speech-
Language Pathologist. This group meets on the 1st Friday of        09/10/06
every month at the Downers Grove Public Library, 1050 Curtis       Sibshops for Children Ages 6-12, Northbrook. Sponsored
Street from 7 8:30pm. For more information contact ASI at          by the Jewish Child & Family Services. Offers brother and
888-691-1270, info@autismillinois.org or visit our website at      sisters of children with disabilities and/or special needs an
www.autismillinois.org                                             opportunity to meet other siblings in a relaxed supportive
                                                                   setting. This will be held from 2:30-5:30 p.m. at 225 Revere
09/05/06                                                           Dr., Ste 200. For more information please contact Tamara
Autism: Characteristics & Latest Treatment Strategies              Besser, LCSW at (847) 412-4357 or visit their website at www.
(Part 1 of 2) by Patti Boheme                                      jcfs.org.
LITTLE FRIENDS CENTER FOR AUTISM - AUTISM
TRAINING FOR PARENTS & PROFESSIONALS!!!                            09/10/06
All trainings are scheduled from: 2:15 - 4:15 p.m. (unless         Walk For Autism Research, Chicago Walk
specified) Payment and registration forms must be received         Connie’s Pizza - Chicago
one week prior to training date in order to attend. COST: $25      2006 Walk For Autism Research Kick-Off Party! phone: 312-
per person - 2 CPDU:s Provided!!!!!                                832-9900 www.autismwalk.org/chicago

Contact: Kelly                                                     09/12/06
140 N. Wright St., Naperville, IL. 60540                           Public Hearings on Proposed Illinois Regulations
phone: 630-305-6039 FAX: 630-355-3176                              Chicago. IL Location: Michael Bilandic Building, Room C-500,
                                                                   160 North LaSalle from 6-8 p.m
09/05/06
Online Training at ISU (Non-Credit)                                09/09/06
Illinois State University, Normal-Bloomington                      Toilet Training Children with Special Needs-Parent
Beginning level training for individuals who work and live         Support Group, Elmhurst, ILGlen Penkava presents a toilet
with children and adolescents with autism/PDD. Parents and         training program that has been very successful with special
other family members, special and general educators, teacher       needs children. His presentation will include procedures for
assistants, speech/language pathologists, social workers           bladder and bowel training that can be used both at home and
psychologists, behavior specialists, occupational and physical     in the school setting. You will also learn the signs of readiness
therapists and administrators will all benefit. 54 CPDUs           and readiness training techniques. For more information
or CEUs available and also Graduate Credits. Number of             contact Center for Speech and Language Disorders 630-
participants is limited. Three Sessions available. Fall: Begins,   530-8551 or email at info@csld.org. You can also visit their
September 5, 2006.                                                 website at www.csld.org

      8
                                      ASI’s Calendar of Events
09/15/06                                                          TRAINING FOR PARENTS & PROFESSIONALS!!!
3rd Annual Best Practices Conference                              All trainings are scheduled from: 2:15 - 4:15 p.m. (unless
Hickory Ridge Marriott Conference Hotel, Lisle, IL                specified) Payment and registration forms must be received
3rd Annual Conference sponsored by Institute on Public            one week prior to training date in order to attend. COST: $25
Policy for People with Disabilities and IL DHS. Featuring         per person - 2 CPDU:s Provided!!!!!
presentation by Tom Kohler, author of “Waddie Welcome
and the Beloved Community”. Workshops on organizational           Contact: Kelly
transformation, preventing rather than responding to crisis,      140 N. Wright St., Naperville, IL. 60540
developing friendships for people with disabilities, increasing   phone: 630-305-6039 FAX: 630-355-3176
income and self-employment opportunities for people with
disabilities; proactive behavior management, etc. Contact:        09/21-22/06
Carol Dufresne - phone: 217-492-9999                              Autism in the Home, School & Community: Transitioning
                                                                  to Adulthood
09/16/06                                                          presented by Peter Gerhardt. Asperger Syndrome, (Sept 22)
4th Annual “Evening at the Zoo”                                   presented by Dr. Luke Tsai, MD, Milwaukee WI.
Henson Robinson Zoo, Springfield, IL
Autism Society of America - Central Illinois Chapter presents     Sponsored by Spectrum Trainings Systems, Inc. Early Bird
the 4th Annual “Evening at the Zoo”, on Sept. 16, 2006,           Rates available until Aug 21st Professionals 1 day: $130,
from 6:30 PM - 8:00 PM, at the Henson Robinson Zoo in             2 days: $195. -Parents 1 day: $95, 2 days: $160, groups
Springfield, IL. For more information contact Teresa Paul at      of 4 or more receive 10%off. For more information call
217-287-1117 or 217-824-8546. Contact: Jerry Selsor - phone:      920-749-0332 or email spectrumtrainingsystems@yahoo.
217-438-5802 http://www.asacic.org                                com and to register, see the Milwaukee page at www.
                                                                  spectrumtraingsytemsinc.com/milwaukee.html.
09/20-21/06
Discreet Trial Format Training for Teaching the Child with        09/26/06
Autism - 8:30 AM.                                                 Teen Talk for Teen with Disabilities, Northbrook. Sponsored
For more information contact Myki Romano (630) 889-7398           by the Jewish Child & Family Services. For teens who fell
Follow-up Sessions in DuPage County and Springfield               socially isolated, alone and find it difficult to fit in with their
Springfield, September 20 Skill Building Session                  peers. This will be from 6 p.m. to 7:15 p.m. at 255 Revere
DuPage, September 21 Skill Building Session                       Drive, Suite 200. For more information contact Tamara
                                                                  Besser, LCSW at (847) 412-4357 or visit the website at www.
9/20/06                                                           jcfs.org.
Discreet Trial Format Training for Teaching the Child with
Autism - 8:30 AM Come join us to learn about using Discrete       09/28-29/06
Trial Format effectively in the classroom. Presented by: Nan      Autism and the SCERTS Model: A Comprehensive
Nan Negri Negri, Ph.D., Jenny Potanos, M.A., SLP/CCC, Vic         Educational Approach, St. Louis, MO. Two Day Introductory
Morris, M.S.W., L.C.S , Ph.D., Jenny Potanos, M.A., SLP/          Seminar Co-hosted by United Services. Presented by Barry
CCC, Vic Morris, M.S.W., L.C.S.W. .W. Training includes:          Prizant, Ph.D., CCC-SLP. Prizant has more than 30 years
Components of Discrete Trial Format (DTF) Prompts, Prompt         experience as a clinical scholar, researcher and consultant to
Fading, Shaping, Chaining Curriculum and Data Integrating         young children with social communication disabilities including
Sensory Issues with DTF Using DTF in Inclusive Settings Skill     autism spectrum disorders (ASD). For more information and
building sessions                                                 to register call 401-467-7008 or check out the website at www.
                                                                  ccseminars.com.
Locations:
                                                                  09/21/06
September 20 Skill Building Session
                                                                  Support ASI by Advertising or Golfing in our 7th Annual
September 21 Skill Building Session
                                                                  Golf Outing at Ruffled Feathers, Lemont, Illinois
Cost is $350.00 for professionals and $150.00 for parents.
Registration includes all four sessions, training materials,      ASI Annual Golf Event, Ruffled Feathers in Lemont. To
continental breakfast and lunch. Limited seating-please           advertise in the program book call ASI at 888-691-1270
reserve your space as soon as possible. ISBE CPDUs and            or email info@autismillinois.org. To register or for more
IDPR CEs for SLP/audiologists are available. Springfield and      information visit www.autismillinois.org or call 888-691-1270,
Dupage (630) 889-7398 - Myki Romano –                             email info@autismillinois.org

09/21/06                                                          09/21-22/06
Communicative Functions of Behavior by Mary Crissman              Autism in the Home, School & Community: Transitioning
LITTLE FRIENDS CENTER FOR AUTISM - AUTISM                         to Adulthood, presented by Peter Gerhardt.

                                                                                                                             9
                                     ASI’s Calendar of Events
Asperger Syndrome, (Sept 22) presented by Dr. Luke                Library, 1050 Curtis Street from 7 8:30pm. This month’s topic
Tsai, MD, Milwaukee WI. Sponsored by Spectrum Trainings           is: Music Therapy. For more information contact ASI at 888-
Systems, Inc. Early Bird Rates available until Aug 21st           691-1270, info@autismillinois.org or visit our website at www.
Professionals 1 day: $130, 2 days: $195. -Parents 1 day: $95,     autismillinois.org
2 days: $160, groups of 4 or more receive 10%off. For more
information and to register, see the Milwaukee page at www.       10/07/06
spectrumtraingssytemsinc.com/milwaukee.html.                      Advocating for the Futures of People with Disabilities
                                                                  in Illinois Family Support Network - University of Illinois
09/28-29/06                                                       at Chicago, Chicago, IL The Family Support Network is
Autism and the SCERTS Model: A Comprehensive                      especially interested in empowering inexperienced advocates
Educational Approach, St.Louis, MO. Two Day Introductory          wishing to grow their skills. Topics include: History of the
Seminar Co-hosted by United Services. Presented by Barry          Disability Movement; employment; assistive technology;
Prizant, Ph.D., CCC-SLP. Prizant has more than 30 years           communication; services outside of school; moving and
experience as a clinical scholar, researcher and consultant to    grooving at the Capitol; councils, committees and boards;
young children with social communication disabilities including   organizing for change; negotiation; and networking.
autism spectrum disorders (ASD). For more information and         To register you must sign up for the entire series. This training
to register call 401-467-7008 or check out the website at www.    is intended to build capacity and includes 8 sessions (10/07,
ccseminars.com.                                                   11/04, 12/09, 01/06/07, 02/03, 3/9-7, 4/10-11 and 5/5). For
                                                                  more information and to register: Phone: 309-693-8981 www.
10/02-10/06                                                       familysupportnetwork.org
Two Day PECS Training Workshop
Crowne Plaza Hotel, Indianapolis, Indiana The Picture             10/11/06
Exchange Communication System (PECS) is a language                Social Skills & Frustration Management
training package that is used to teach communication skills       Holiday Inn Chicago, Crystal Lake Specific, user-friendly
rapidly to those with limited functional speech Contact:          strategies and techniques for proving relevent social skills
Amanda Hunter - phone: 302-368-2515 www.pecs.com                  instruction to children and teens with ASD will be shared at
                                                                  this workshop. Featured speaker is Dr. Jed Baker, lecture
10/04/06                                                          to be held Oct. 11, 2006. Spectrum Training Systems, Inc.
PECS Review, Practice and Problem Solving                         Phone: 920-749-0332 For more information, visit their
Crowne Plaza Hotel, Indianapolis, Indiana The Picture             website.
Exchange Communication System (PECS) is a language
training package that is used to teach communication skills       10/12/06
rapidly to those with limited functional speech. Contact:         Adolescent Issues on the Autism Spectrum
Amanda Hunter - 302-368-2515 www.pecs.com                         Holiday Inn Chicago, Crystal Lake, IL. Adolescence is a time
                                                                  of positive growth as well as challenges. This session will
10/5-6/06                                                         provide practical strategies for teaching teenagers of all ability
Functional Analysis and Treatment of Severe Behavior              levels the necessary life skills of self-care, self-regulation, self-
Disorders: Methods for Clinicians & Educators                     advocacy, and self-esteem. Featured lecture is Chantal Sicile-
Madison Marriott West, Middleton, WI. The most significant        Kira on the date of Oct. 12, 2006 Spectrum Training Systems,
advancement in the assessment of severe behavior disorders        Inc. Phone: 920-882-0736 For more information, visit their
over the past 20 years has been the development of functional     website.
analysis methodlogy. Brian Iwata, Ph.D. will be lecturing at
the Madison Marriott October 5-6, 2006. Contact: Dr. Walt         10/13/06
Antonow - phone: 662-234-1640 www.bisoxford.com                   Autism in the Visually Impaired Child presented by Terese
                                                                  Pawletko, Ph.D Illinois School for the Visually Impaired is
10/05-08/06                                                       sponsoring a workshop on October 13, 2006, 8:30 4pm.
Social Success & Autism Spectrum Disorders                        This workshop will provide an overview of autism spectrum
Donald E Stevens Convention Center, Rosemont, IL                  disorders as they present in a child with visual impairments.
Two day conference which merges the steadfast social              Registration fee: $75.00 per person, Continental Breakfast
understanding tools (Social Stories & Comic Strip                 and Lunch rovided. Registration deadline: October 6, 2006.
Conversations) with new thinking and developments to bridge       For registration information, please see the ISVI website
the gap that often occurs between students with ASD and           at www.isvi.net or contact Jane Breen, Director Support
those working on their behalf. Contact Mark Hammond for           Services, ISVI, 217-479-4455 or email: jane.breen@illinois.
more information - phone: 207-797-8255                            gov

10/06/06                                                          10/15/06
Far West Suburban Support Group This group meets on               Walk for Autism Research, Autism Speaks, Chicago
the 1st Friday of every month at the Downers Grove Public         Area Sunday, October 15th Lincoln Park, Chicago 10 am
     10
                                      ASI’s Calendar of Events
Registration, 11 am Walk Starts For more information             10/28/06
visit www.autismwalk.org/chicago or contact via email            Special Education Law and Advocacy Conference with
chicagowalk@autismspeaks.org or telephone at 312-832-            Wayne Steedman, Esq., and Pat Howey, Paralegal and
9900                                                             Advocate Champaign, Illinois Wrightslaw Special Education
                                                                 and Advocacy Conference, a Wrightslaw training program with
10/17/06                                                         Wayne Steedman and Pat Howey, is being brought to you
CSLD Speech & Language Therapy & Social Language                 by C-U Autism Network, PROUDD and The Down Syndrome
Group Therapy Program Elmhurst, IL Come and hear                 Network of Champaign/Urbana. The program will be held
about the exciting therapeutic programs at CSLD. Our             at: Hawthorn Suites Champaign, 101 Trade Centre Drive,
staff of speech and language pathologists will share ideas       Champaign, IL 61820 Tickets / Registration are available on-
and strategies which have been effective in our family           line at www.autismillinois.org. For more information call 630-
oriented speech and language and social language group           691-1271
therapies. Bring your questions and problems to discuss
with professionals and parents. For more information contact     10/28/06
Center for Speech and Language Disorders 630-530-8551            Special Education Law and Advocacy, Wrightslaw
or email at info@csld.org. You can also visit their website at   Champaign, Illinois Presented by Wayne Steedman, Esq.
www.csld.org                                                     & Pat Howey, paralegal and advocate. Sponsored by ASI
                                                                 C-U Autism Network, The Down Syndrome Network of
10/13/06                                                         Champaign/ Urbana & PROUDD. Location: Hawthorne Suites
Autism in the Visually Impaired Child presented by Terese        Ltd, 101 Trade Centre Drive. For more information and to
Pawletko, Ph.D. Illinois School for the Visually Impaired        register please call the Autism Society of Illinois at 888-691-
is sponsoring a workshop on October 13, 2006 8:30Am -            1270 or email at info@autismillinois.org
4:00PM. This workshop will provide an overview of autism
spectrum disorders as they present in a child with visual        11/1-11/2
impairments. Registration fee: $75.00 per person, Continental    Autism in the Home, School & Community: Transitioning
Breakfast and Lunch provided. Registration deadline: October     to Adulthood, presented by Peter Gerhardt. Asperger
6, 2006. For registration information, please see the ISVI       Syndrome, by Dr. Luke Tsai, MD La Crosse, WI. Sponsored
website at www.isvi.net or contact Jane Breen, Director          by Spectrum Trainings Systems, Inc. Early Bird Rates
Support Services, ISVI, 217-479-4455 or                          available until Aug 21st Professionals 1 day: $130, 2 days:
email: jane.breen@illinois.gov                                   $195. -Parents 1 day: $95, 2 days: $160, groups of 4 or more
                                                                 receive 10% off. For more information call 920-749-0332 or
10/15/06                                                         email spectrumtrainingsystems@yahoo.com and to register,
Walk for Autism Research, Autism Speaks, Chicago                 see the Milwaukee page at www.spectrumtraingsytemsinc.
Area Sunday, October 15th Lincoln Park, Chicago 10               com/milwaukee.html.
am Registration, 11 am Walk Starts For more information
visit www.autismwalk.org/chicago or contact via email
chicagowalk@autismspeaks.org or telephone at 312-832-            11/02/06
9900                                                             Parent’s Perspective by Patti Boheme & Carol Paske

10/22/06                                                         LITTLE FRIENDS CENTER FOR AUTISM - AUTISM
Sibshops for Children Ages 6-12, Northbrook. Sponsored           TRAINING FOR PARENTS & PROFESSIONALS!!!
by the Jewish Child & Family Services. Offers brother and        All trainings are scheduled from: 2:15 - 4:15 p.m. (unless
sisters of children with disabilities and/or special needs an    specified) Payment and registration forms must be received
opportunity to meet other siblings in a relaxed supportive       one week prior to training date in order to attend. COST: $25
setting. This will be held from 2:30-5:30 p.m. at 225 Revere     per person - 2 CPDU’s Provided!!!!!
Dr., Ste 200. For more information please contact Tamara
Besser, LCSW at (847) 412-4357 or visit their website at www.    Contact: Kelly
jcfs.org.                                                        140 N. Wright St., Naperville, IL. 60540
                                                                 phone: 630-305-6039 FAX: 630-355-3176
10/27/06
Thinking & Learning in Children with ASD: Successful             11/03/06
Approaches for School & Home Elmhurst American                   Autism Society of Illinois 29th Annual Conference, Lisle.
Legion, Elmhurst, IL. Thinking & Learning in Children with
ASD: Successful Approaches for School & Home. 22nd               Supernanny Experts are coming!
Annual Conference sponsored by the Center for Speech and
Language Disorders. Featured speaker- Timothy Wahlberg,          Lynn and Bob Koegel are experts in Pivotal Response
Ph.D. Clinical Psychologist on Friday, Oct. 27, 2006 Contact:    Treatments (PRT), the result of Koegels’ 20 yrs of research,
Evelyn Miko - phone: 630-530-8551 Ext. 104                       which uses natural learning opportunities to target and modify
                                                                                                                        11
                                      ASI’s Calendar of Events
key behaviors in children with autism, leading to positive        per person - 2 CPDU’s Provided!!!!!
effects on communication, behavior, and social skills. They
are co-founders of the Koegel Autism Center at the Graduate       Contact: Kelly
School of education at the University of California, Santa        140 N. Wright St., Naperville, IL. 60540
Barbara. The center strives to increase understanding of          phone: 630-305-6039 FAX: 630-355-3176
autism spectrum disorders, develop and implement PRT
and improve elementary and secondary education efforts for        11/28/06
children with autism and other developmental disabilities.        Characteristics and Behavorial Issues in Individuals with
Most recently Lynn Koegel was the featured expert to assist       Aspergers Syndrome by Dr. Cynthia Brouillard
Jo Frost, ABC’s the Supernanny and the Facente family, who        LITTLE FRIENDS CENTER FOR AUTISM - AUTISM
have a child with autism. This segment aired earlier this year.   TRAINING FOR PARENTS & PROFESSIONALS!!!
                                                                  All trainings are scheduled from: 2:15 - 4:15 p.m. (unless
11/07/06                                                          specified) Payment and registration forms must be received
Active Parenting Workshop Chicago, IL Sponsored by                one week prior to training date in order to attend.
the Jewish Child & Family Services. This is an interactive        COST: $25 per person - 2 CPDU’s Provided!!!!!
workshop geared to Orthodox Jewish families who have
children ages 5-12 and strategies to create Shalom Bayis in       Contact: Kelly
their home. This is will be four weeks form 7:30p.m-9:30p.m.      140 N. Wright St., Naperville, IL. 60540
Location: 3145 W. Pratt Blvd in Chicago. For more information     phone: 630-305-6039 FAX: 630-355-3176
please contact Breena Fried, LCSW at (847) 568-5114 or visit
the website at www. jcfs.org.                                     12/16/06
                                                                  Teen Talk for Teens with Disabilities Northbrook, IL
11/13-11/06                                                       Sponsored by the Jewish Child & Family Services. For teens
Teaching Language to Children with Autism and Other               who fell socially isolated, alone and find it difficult to fit in
Developmental Disabilities, Moline. Presented by The              with their peers. This will be from 6 p.m. to 7:15 p.m. at 255
Quad Cities Autism Center. Guest Speaker will be Dr. Vincent      Revere Drive, Suite 200. For more information contact Tamara
Carbone, he is a certified Behavior Analyst with over 30          Besser, LCSW at (847) 412-4357 or visit the website at www.
years experience designing learning environments for people       jcfs.org.
with Autism and developmental disabilities. He has a very
extensive list of credentials that include teachings at Penn      12/12/06
State University and include courses in Applied Behavior          Organizational Supports for High-Functioning Autism by
Analysis and Verbal Behavior. For more information on this        Kathy Evangelista
and other events please visit, The Quad Cities Autism Center      LITTLE FRIENDS CENTER FOR AUTISM - AUTISM
website at www.qcautismcenter.org                                 TRAINING FOR PARENTS & PROFESSIONALS!!!
                                                                  All trainings are scheduled from: 2:15 - 4:15 p.m. (unless
11/15/06                                                          specified)
Communication Training by Kathy Evangelista (Phases               Payment and registration forms must be received one week
1-2 of PEC’s will be reviewed)                                    prior to training date in order to attend. COST: $25 per person
LITTLE FRIENDS CENTER FOR AUTISM - AUTISM                         - 2 CPDU’s Provided!!!!!
TRAINING FOR PARENTS & PROFESSIONALS!!!
All trainings are scheduled from: 2:15 - 4:15 p.m. (unless        Contact: Kelly
specified) Payment and registration forms must be received        140 N. Wright St., Naperville, IL. 60540
one week prior to training date in order to attend. COST: $25     phone: 630-305-6039 FAX: 630-355-3176
per person - 2 CPDU’s Provided!!!!!

Contact: Kelly
140 N. Wright St., Naperville, IL. 60540
                                                                            Planning an Event?
phone: 630-305-6039 FAX: 630-355-3176
                                                                  If you are planning on hosting an Autism related event 
11/16/06                                                          contact us here at ASI so we can help get the word out. 
Communication Training by Kathy Evangelista (Phases               We also showcase upcoming events on our website, so 
3-5 of PEC’s will be reviewed)                                    if an event isn’t listed here - its probably there! Also.
LITTLE FRIENDS CENTER FOR AUTISM - AUTISM                         tickets  and  registration  can  be  purchased  on-line  via 
TRAINING FOR PARENTS & PROFESSIONALS!!!
All trainings are scheduled from: 2:15 - 4:15 p.m. (unless
                                                                  our secure storefront.
specified) Payment and registration forms must be received
one week prior to training date in order to attend. COST: $25
                                                                             info@autismillinois.org
     12
                                     ASI’s Calendar of Events

                                                                          UPCOMING EVENTS
     ASI has Opportunities
           to Exhibit                                           • 7th Annual Golf Outing
       YOUR Company                                             	
                                                                	
                                                                       -	9/21/06
                                                                       -	Sponsor-a-Hole
       or Organization’s                                        	      -	Event	Program

            Support                                             • ASI’s 29th Annual Conference
                                                                	      -	11/3/06
    Contact ASI at 888-691-1270 to find out how your
                                                                	      -	Sponsor	Booths
    Company  or  Organization  can  help.  Whether  its         	      -	Event	Program
    an Advertisement  or  a  Booth  at  one  of  our  shows, 
    ASI has opportunities to showcase your support of 
                                                                • PPNC (see	Ad	below)
    our cause. ASI is a non-for-profit organization, and        	      -	1/20/07
    proceeds go towards keeping ASI at the forefront of         	      -	Sponsor	Booths
    serving the Autism Community. Call Today!                   	      -	Event	Program




                                                                            January 20, 2007
                                                                       Parent & Professional
                                                                      Networking Conference
                                                                           York	High	School,	Elmhurst,	IL
                                                                                                    presented by:
                                                                                                    the Autism Society of Illinois

                                                                                                    in conjunction with:
                                                                                                    the Arc of Illinois
                                                                                                    and the Autism Program

                                                                      A workshop for Parents, Educators, and other Professionals
Special  Education  Law  and  Advocacy  Conference  is  a             living and working with individuals who have Autism Spectrum
Wrightslaw training program being brought to you by C-                Disorders. The focus of the day’s events is to bring families and
                                                                      professionals to together to learn about each other through es-
U Autism Network, PROUDD and the Down Syndrome                        tablishing networks and addressing the needs of individuals
Network of Champaign/Urbana. The program will focus                   with Autism Spectrum Disorders. This conference is open to all
on Spec. Education Law, Rights and Responsiblities, Tests                        service providers statewide and families.
and  Measurements  to  measure  progress  &  regression, 
                                                                      For More Information or to Register, please
SMART IEPs and an Intro to Tactics and Strategies for ef-
                                                                    visit ASI’s website at: www.autismillinois.org or
fective advocacy. For more information and Registration; 
                                                                                call (toll-free) 888.691.1270
go to ASI’s website at: autismillinois.org
                                                                                                                                    13
               Asperger’s Syndrome Support
• WEBSITE RESOURCES                                                           • LISTSERV’s
                                        
Ask An Aspie is a service of Odds +    www.udel.edu/bkirby/asperger           This is a discussion group for fami-
Friends, contact Wiley Sherer          www.aspergersyndrome.org/              lies.  www.dietricks@home.com
www.askanaspie.com
                                       Liane Holliday Willey, an adult        ASPEN of America (Asperger Syn-
Brian King is a social worker with     with Asperger’s                        drome Education Network)
Asperger’s Syndrome.                   aspieinformation@yahoo.com             PO Box 2577, Jacksonville, FL  
www.iamanaspie.com                                                            32202  aspen@cybermax.net
                                       Asperger’s Syndrome Info
OASIS(Online Asperger Syndrome         www.orgsites.com/md/asperger_syn-      Autism Society of America
Information and Support)               drome_info/                            www.autism-society.org

• SUPPORT GROUPS                                                              The Asperger Society of Michigan
                                                                              www.aspergersmichigan.com
Asperger’s Syndrome Support Group (SEAPCO) in Peoria
Contact Lisa Bowe, 309-697-0880, ext.265, lbowe63@yahoo.com                
        
Asperger Syndrome Support and Awareness in Central Illinois
Contact Diana, 217-585-7276, diana.novle@insightbb.com
                                                                                 YOUR CHILD CAN
                                                                                 PARTICIPATE IN A
Asperger’s Support Group in Springfield, joychll@aol.com                        RESEARCH STUDY
Asperger’s Support Group in Northern Illinois, rtmugnolo@yahoo.com
                                                                                  ON DESIGNING
708-771-8522                                                                    TECHNOLOGY FOR
                                                                                 CHILDREN WITH
Asperger Group in Naperville, Contact: Jill Hollman, 630-904-4110
jholman@wideopenwest.com          
                                                                                    AUTISM!

Asperger Group in Rolling Meadows
                                                                              The  ArticuLab  at  Northwestern 
Contact:  Chris and Susie Smith, 847-255-5465, chrisandsusie@juno.com   
                                                                              University is looking for 8-13 year   
        
                                                                              old children with High-Functioning 
Chicagoland Asperger Syndrome/High-Functioning Autism Support
                                                                              Autism, Asperger’s, or PDD-NOS
Group
                                                                              to help design computer software in 
Contact: Debbie Mercer, 708-383-1209, dmerce@earthlink.net
                                                                              our lab at the Evanston Campus of 
                                                                              Northwestern University. The study 
• ADULT SUPPORT GROUPS                                                        will take no more than 1 hour. Prin-
                                                                              cipal Investigator: Professor Justine 
Adult Asperger Group in Chicago, Contact: Beverly Mills, 312-993-3634         Cassell, IRB Project no.: 1384-001.
Adult Asperger Group, Contact: Jill Hollman, 630-904-4110                     For  more  information  or  to  sched-
jhollman@wideopenwest.com                                                     ule an appointment, please contact:     
                                                                              Tara at 847-491-7471
Beyond School:  The Autism Social Group in Chicago Area
For high-functioning teens and young adults, 773-651-9722


    14
                                            PLEASE GIVE US YOUR INPUT!

 1. Please tell us what organizations you belong to?     ____ Autism Society of Illinois              ____ Autism Society of America
    Local Chapter of ASI:
 __ 141-Illinois at Large                      __ 701- Kankakee                                     __ 158-Quad Cities
 __ 1000-Central Illinois                      __ 714-Metro. Chicago                                __ 591-Southern Illinois
 __ 727-Chicago/South Side                     __ 528-North Suburban                                __ 728- South West/Cook County
 __ 508-Chicago/South Suburban                 __ 145-North East Suburban                           __ 000-No Affiliation
 __ 598-Far West Suburban                      __ 114- North West Suburban


     Other (please tell us the name of the organization): _________________________________________________

2. How many ASI events (ex: workshops, fundraisers, trainings, etc.) have you attended in the last 12 months?
       ____ 5+ ____ 3-4 ____1-2 ____ 0

3. What topics are of greatest interest to you? (Rank from 1 to 5, 1 being “greatest interest” and 5 being of “no interest”)
     Greatest             No                                                    Greatest           No
     Interest            Interest                                               Interest         Interest
       1 2 3 4 5 Changing difficult behaviors                                       1 2 3 4 5 Improving play/social skills
       1 2 3 4 5 Learning new skills (ex: toilet training,                          1 2 3 4 5 Understanding Sensory Integration
                 dressing, etc.)                                                    1 2 3 4 5 What is autism?
       1 2 3 4 5 Improving communication skills and
                 Visual Supports

4.   What factors would help your ability to attend events? (Rank from 1 to 4, 1 being “most important factor” and 4 being “least
     important factor”)
          Most          Least                                         Most            Least
        Important      Important                                    Important        Important
                1 2 3 4 Childcare/Respite Help                         1 2 3 4 Proximity to Transportation
                1 2 3 4 Location/Proximity to Home                     1 2 3 4 Cost of Events

 5. What is the most you’ve paid for a day-long training?         $_____________
    What is the least you’ve paid for a day-long training?        $_____________
     How likely would you attend an event if it were free of charge?            very likely                                    not likely
                                                                                           1      2         3         4        5

 6. What days and times are most convenient for you to attend an event? (Rank from 1 “most” to 9 “least”)
 ____ Weekday morning                       ____ Saturday morning                       ____ Sunday morning
 ____ Weekday afternoon                     ____ Saturday afternoon                     ____ Sunday afternoon
 ____ Weekday evening                       ____ Saturday evening                       ____ Sunday evening

 7. Would you be interested in attending a “mom’s night out” or “dad’s night out” social gathering or event?              __ Yes __ No

 8. What other information, trainings, or events are you seeking from ASI?
     __________________________________________________________________________________________________
      __________________________________________________________________________________________________

 9. Would you like to be informed of future events? If so, please provide us with your information:

        Name:            __________________________________ Telephone:                            ___________________
        Address:         __________________________________ Email:                               ___________________
        City:            _______________________ State: ____                    Zip: __________

 Please fax or mail this survey back to Autism Society of Illinois, 2200 S Main Street, Suite 317, Lombard Illinois (630) 932-
 5670 fax. Any questions or for more information please call (888) 691-1270, www.autismillinois.org

                                                                                                                                            15
                           Playing With Your Child Turns
                           Mountains In to Opportunities!
                                                        By Michelle Shull, parent


I am the mother of Katharyn Ann, a 4 1/2 year old with                    learn her ABC’s etc. from them, obviously not. In my
autism. I am trying to find ways to raise awareness in the                search, I found Discovery Toys.  I was very excited to see 
community, (although I rarely meet someone who does                       that they addressed all of the different skills that autistic 
not  know  someone  with  autism),  but  more  importantly                children need to learn.  The toys are charted according to 
to raise awareness in parents of children with autism by                  skill in fact, fine motor, gross motor, kinesthetic, visual,
letting them know just what their child is capable of.  My                etc.  I purchased 2 and began playing with my daughter.             
daughter has made some progress in the past 2 years of                    The first time she sat down and her brother joined her she
therapy and schooling but more importantly I have come                    actually let him play with her and TOOK TURNS inter-
to  realize  that  she  is  “in  there”.    This  is  the  thing  that    acting with him and the game.  I was astounded.  The key 
keeps  me  moving  on,  that  sustains  my  faith.    She  may            is  in  the  interaction  with  the  parent  and  the  child  while 
never  speak  completely  or  behave  appropriately-who                   working with the toy. These children especially won’t
knows? I feel it is imperative that parents understand and                just “figure it out” on their own. Playing with her seemed
remember that their children feel just like we do and they                to make all of the difference in the world.  While it is cer-
don’t always know the way to express that to us.                          tainly work  teaching  and  parenting  a  child with  autism, 
                                                                          isn’t it great to know that they will learn so much from
I have spent the past year finding out more about her by                  just playing and you get to play to?  Well, that certainly 
just observing her behavior.  I realized that I was not pay-              made all that hard work much more fun for me too!
ing as much attention to her 
as I did my other child be-                                                                            This  is  the  word  I  want  to 
cause she was happy (seem-                                                                             spread to parents of children 
ingly) to be left alone.  One                                                                          with autism.  Play with your 
weekend last summer when                                                                               child;  share  their  triumphs 
my  husband  and  son  were                                                                            and their joys.  What seems 
out of town, she and I were                                                                            like the smallest, most triv-
alone  together.    I  talked  to                                                                      ial  thing  to  us  is  typically 
her as if she were going to                                                                            a  huge  accomplishment  to 
answer me and for the first                                                                            them and they are proud of 
time she began to show so-                                                                             it!    We  should  encourage 
cial interest, in me anyway.                                                                           them, push them, challenge 
It is difficult for those of us                                                                        them,  play  with  them,  and 
“normal”  folks  to  under-                                                                            treat  them  like  we  do  any-
stand how to interact with those who do not reciprocate                   one else because in their minds they are just like everyone 
our emotions so we tend to set them off to the side and                   else.  The more we try, the closer we will get to seeing 
assume that they don’t want to interact. I have found                     that. 
the  opposite  to  be  true.    They  do  want  to  interact  and 
they truly want to be heard they just don’t know how                      For  more  information  about  purchasing  discovery  toys 
to  show  us.    I  went  in  search  of  toys,  games,  etc.  that       please contact Michelle Shull 847-769-6635 or email her at 
would help her learn.  She spent much of her time stim-                   shullworld@hotmail.com. You can also visit her website at  
ming on musical toys that I had purchased.  I had thought                 www.discoverytoyslink.com/esuite/home/PlayDevelo-
that because she loved music so that she would naturally                  pAchieve


      16
                           ASI’s 7th Annual
                          Golf Outing is Here!
                                  What:
                           7th Annual Golf Outing
                  Benefitting the Autism Society of Illinois


                                 When::
                       Thursday, September 21st, 2006


                                Where::
                    Ruffled Feathers Golf Club - Lemont,
                                   Illinois
Join in on the fun September 21st, when the Autism 
Society of Illinois (ASI) hosts its 7th annual golf outing 
and dinner at the Ruffled Feathers Golf Club of Lemont.
Planned activities include a putting contest, “shotgun 
scramble”, and 18 holes of golf. Later in the evening, a 
cocktail reception and silent auction will be held fol-
lowed by an awards dinner and raffle in the Ruffled
Feathers Ballroom. Everyone is welcome, tickets or                        A great golf course is one whose aesthetic beauty 
                                                                          is matched only by the genius of its layout. It is a 
sponsorship opportunities for this fun event can be pur-                  place that serves to inspire, encompassing every-
chased by calling the ASI toll free at 888-691-1270 or                    thing you’d expect from the only Dye designed
by visiting www.autismillinois.org.                                       course in the Chicago area.

                                  4 Great Golf Packages to choose from:
Hole-In-One Package - $2000                                   Birdie - Individual Golfer Package - $300
• Two Foursome to start at same tee                           • 18 Holes of Golf
• Hole Sponsorship                                            • Box Lunch
• Full Page Program Acknowledgement                           • Cocktail Reception
• Box Lunch                                                   • Buffet Dinner
• Cocktail Reception & Awards Dinner 
                                                              PAR 65 Package - $65
Eagle Package - $1100                                         Great for those Spouses, Family or Friends
• One Foursome                                                that would like to support ASI
• Hole Sponsorship                                            • Cocktail Reception
• Half Page Program Acknowledgement                           • Buffet Dinner
• Box Lunch
• Cocktail Reception & Awards Dinner 
Packages Include: Greens Fees, GPS Equipped Cart, Box Lunch, Gift Bag, Cocktail and hors d’ ouvre Reception,
Buffet Dinner, Silent and Live Auction


       Sponsors Welcome! - Call 1-888-691-1270 for Details
                                                                                                                           17
                   ASI’s Annual Conference

                                                                                                       Non-Profit Org.

                                                                                                    U.S. POSTAGE PAID

                                                                                                       LOMBARD, IL
Connecting and Supporting the Autism Community                                                          PERMIT# 4




       Autism Society of Illinois • 2200 S. Main Street, Suite 317, Lombard, Illinois 60148 • fax: 630.932.5620
                                      toll free: 888.691.1270 local: 630.691.1270 

								
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