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ASBC Express Boulder & Broomfield Counties’ Premiere Autism Source Promoting Education & Awareness ASBC Express Volume 5, Issue 12 December 2006 Special points of interest: LEGISLATION TO FIGHT AUTISM PASSES • Autism Community Mourns loss of Leader—pg 1. After weeks of work by several from this devastating disorder. affected population. Funding autism advocacy groups apply- The landmark legislation en- for the measure will be deter- • CAA Legislation Passes—pg 1 ing pressure to Congressman sures that three main concerns mined by the Appropriations • Year in Review - pg 2 Joe Barton to pass the Combat- will be addressed: Committee. • Ask the Advocate - pg 3 ing Autism Act out of committee • Research provisions for Notably lost through the most • Link between Low-IQ and Autism and onto the House floor, which Challenged—pg 4 investigating the link be- recent negotiations were funds quickly passed in the House, tween environmental fac- earmarked for the National • Community Support — pg 7 the Senate passed the bill and tors and the development Institute of Environmental • Safe and Strong Lecture Com- it is now headed to President Health Sciences (NIEHS) ing—pg 8 of autism. Bush. President Bush’s signa- passed in the Senate version of ture will enact landmark disor- • Greater research oversight from the autism commu- the bill. As a result, many advo- ASBC Publication Notice: Copy- der specific legislation as law. cacy groups will continue in righted material used in accordance Not since the passage of the nity with "Fair use" under copyright law. their efforts to make sure that Copyrighted items are protected Ryan White bill has disorder • Treatment of those diag- environmental provisions of the and are for our readers' personal specific legislation been nosed with autism spec- measure become a reality by education or research purposes. passed. Many advocacy groups trum disorders. adequately funding NIEHS as Articles may not be further re- feel that this bill will in effect The bill also expands the Inter- recommended in the legislative printed or used commercially with- declare war on Autism Spec- out consent from the copyright agency Autism Coordinating reports issued by the House holders. To find the copyright hold- trum Disorders, which continue Committee (IACC) to include and Senate. ers, follow the referenced website to rise and is currently affecting members of the autism commu- link provided. ASBC articles are 1:166 individuals. It is esti- Additionally, Congressman Joe nity to strengthen research Barton stated in the accompa- copyrighted and protected and may mated that 1.5 million individu- oversight and will address treat- not be used without permission. als in the U.S. currently suffer (Continued on page 9) Information contained within the ment options for the existing publication is for informational AUTISM WORLD LOSES A GIANT purposes only and are not neces- sarily the views of ASBC nor are advertisements preferential (as provided by ASA Options Policy). Past newsletters are available on- EL CAJON, California, matic improvement and often to create a line at www.autismboulder.org www.AutismResearchInstitute.c even recovery. worldwide om Autistic children and their Dr. Rimland’s forty years of research parents said goodbye to their work on behalf of autistic chil- center and best friend and greatest cham- dren began with a single child: clearing- pion on Tuesday, November his own son, Mark Rimland, house for 21st when Dr. Bernard Rim- born in 1956. biomedical Inside this issue: land, founder and director of treat- the Autism Research Institute, Dr. Rimland discovered power- ments. In Year in Review 2 passed away at the age of 78. ful evidence that autism was a 1985, he biological disorder—outlined in retired from his career as a Ask The Advocate 3 Dr. Stephen M. Edelson, who is his seminal book Infantile Au- assuming the position of Direc- Navy psychologist to devote the tism: The Syndrome and Its remainder of his life to autism Autism/Low-IQ Link Restudied 4 tor of ARI, says, “Dr. Rimland Implications for a Neural Theory will go down in history as the research. of Behavior, published in 1964. Glutathione Study Announced 4 person who ended the ‘dark The book changed the autism “One of the most remarkable ages’ of autism and spear- world forever. things about Dr. Rimland,” says Putting Mom & Dad First 5 headed the fight to bring hope Dr. Edelson, “is that he realized and help to autistic children. He formed the National Society in the early days that parents ASA-Net Excerpts 6 for Autistic Children (NSAC), held many of the keys to solving When he began his work in the now known as the Autism Soci- field of autism in the 1960s, the mystery of autism. From day Community Support Groups 7 ety of America, in large part to one, he listened to them and psychiatrists blamed parents promote “behavior modifica- for their children’s autism. To- respected them—and he fol- Coming Events 8 tion” (Applied Behavioral Analy- lowed their lead […] a key rea- day, autistic children receive sis, or ABA) — the educational effective educational interven- son why ARI has always led the BACK PAGE - SUPPORTING ASBC 10 treatment of choice. way in identifying new treat- tions and biomedical treat- ments that bring about dra- In 1967, he started the non- (Continued on page 9) profit Autism Research Institute Page 2 ASBC Express THE YEAR IN REVIEW Theresa Wrangham, President & Co-Founder It’s hard to believe that another year has al- We were nominated by Boulder Community Hospital and it is and ready flown by and that we are fast approach- honor for our organization to be recognized so early in our endeavors ing a new year with new goals. As we ap- to improve awareness and education in our community regarding proach the coming year, we wanted to share autism. Our thanks to Boulder Community Hospital for their contin- with our readers some of the year’s highlights. ued support. Why is this important? Because our organiza- tion is accountable to our membership and the goals we put forth This year all respite requests will be met (6) in giving direct aid to our each year. In addition, they are a good measure of our effective- families. Our annual respite picnic, as always, is great fun for our ness in the community. Here are some of the highlights! families and a place where we can gather without judgment. There were GFCF accommodations, cookie decorating and carnival games. Our year started out at a fast pace with the introduction of our first The weather was beautiful and we are already planning our 2007 legislative measure to be offered in the Colorado Legislature. The picnic. Many thanks to Wild Oats and SketchUp! for their continued measure was to ban mercury in vaccines in favor the existing vac- sponsorship of this event. cines meeting EPA standards on exposure to mercury via vaccines. While the measure failed to make it out of committee, awareness Boulder Community Hospital hosted a Continuing Medical Education on the dangers of mercury exposure was raised and working with lecture for ASBC with Dr. John Kirk to spread awareness of the need Colorado Department of Health, medical professionals are encour- for early screening for autism during well checks with pediatricians aged to respect an individual’s choice for mercury free vaccines. and family doctors. We are pursuing grant funding to continue this We thank our supporters and our sponsors, Representative Mad- important awareness program. This program will assist in early iden- den and former Senator Evans. tification and thus enable families early access to state funded early intervention programs. In addition to getting our feet wet legislatively, we also worked with the ASA Denver chapter (Autism Society of Colorado) for sponsor- These are only a few of the highlights and they were achieved by our ship and passage of a resolution by the Colorado General Assembly volunteer board and community members, to whom we are all very requesting Colorado’s Congressional Delegation’s support of the thankful. We continue to provide awareness through published mate- Combating Autism Act (CAA), which now awaits the President’s rials, phone support and our website. We now offer IEP specific sup- signature (see pg 9). ASBC thanks our sister chapter, Representa- port to our community in assuring the most appropriate educational tive Romanoff and Senator Gordon for their support of our commu- services are delivered to our children. Our newsletter is now mailed nity and reaching out to our delegation for action. free of charge to the community, as well as being archived on our website. In addition to efforts to pass a state resolution, ASBC spearheaded a consensus on CAA amongst the four local ASA chapters, profes- In 2007 our website will transformed for ease of navigation. ASBC sionals and advocacy organizations in Colorado and submitted the will be in Denver frequently during the legislative session to report document to Colorado’s Delegation and overseeing committees in and testify on proposed legislation affecting our community. We will Congress considering the bill. Many parents and professionals continue our efforts to keep our community informed of events at a wrote personal letters and made phone calls when the bill was local and national level that are of interest or concern to the welfare held hostage late in the session and through these grassroots ef- of ASD individuals. Our mission will continue to be to raise autism forts it appears that success is around the corner! awareness in Boulder and Broomfield Counties by supporting all Au- tism Spectrum Disorder (ASD) individuals and their families and pro- This year also brought changes to our local support in that we alter- fessionals. We provide information on all topics related to au- nate monthly in offering free lectures on timely subjects to our tism, educational support, autism research and legislation. community and an informal support group that allows parents to gather and exchange successes and information gathered on the Our success is your success as we create a world that accepts our journey with autism. These changes have been met with higher children with compassion, understanding and respect. Those are our turn out and satisfaction with support in our community. guiding principles as we form our goals. We know that we can count on the continued support of our community in achieving a place in Our two fundraisers, the annual conference and wine tasting and the world for ASD individuals that is inclusive. silent auction, were also met with favorable response. The com- munity voiced new desires in the feedback forms received during May the peace and joy of this holiday season be abundant in your the conference that are being used as we evaluate conducting homes and hearts. Blessed be! another conference. The wine tasting and silent auction that is - TKW given during Autism Awareness Month (April) had a new and highly successful feature added – and ASD Art Show displaying the works of our young ASD artists. This event normally draws community members not affected by autism and created new curiosity in learning more. We anticipate that we will continue the art show and will also have the art displayed separately from the event to allow more community appreciation our children’s abilities. Both of these events are manned by many volunteers, sponsors, exhibitors and speakers too numerous to name and our thanks go out none the less! ASBC and its founders, Sue Thomas and I, were honored by the Boulder County Business Report as Healthcare Heroes in the cate- gory of Community Service for leadership on a healthcare issue. ASBC Express Volume 5, Issue 12 Page 3 Ask the Advocate… by Desiree Vandelac It’s that time of the year once “Happy Holidays. With warm regards, The Difficultparent Family.” again when many of us are contemplating gifts and A Few More IEP Tips: cards for our children’s ser- When you sign the sign-in sheet for an IEP meeting, under your vice providers. It would be name write, “Parent’s signature is for the sole purpose of acknowl- nice if we could share all of edging attendance at the IEP meeting. It does not constitute agree- the accolades we hold in our ment with any issues/topics discussed or decisions made during hearts for the numerous service providers who are the IEP meeting.” doing their very best to help On the consent page of the IEP (typically the last page of the IEP), it our children. However, be- will often say at the top, “Parental Agreement for Initial Placement” fore writing that gushing and then it will say something such as, “I have been informed of holiday card praising your and understand my special education rights and procedural safe- child’s service providers, take a moment and make sure you pick guards” and “I give consent for my student to receive special edu- your words very carefully. Why? Well, you know the part of the cation and related services.” Those two statements are followed by Miranda rights that states, “Anything you say can and will be used boxes to check for either “yes” or “no.” against you.” Same goes for gifts and holiday cards to service pro- viders or for that fact anything you say or do at anytime during the First, I recommend that you draw a line through the phrase “and school year. Anything and everything you say or write in praise of understand” in the prewritten statement regarding educational your child’s teachers, aides, and other services providers can and rights and procedural safeguards so that the statement reads only, will be used against you when you find yourself at odds with your “I have been informed of my special education rights and proce- school, district, or service providers, even if it is on an unrelated dural safeguards.” Be sure to initial the area that you lined out. matter. This will eliminate any potential future argument that by your signa- ture on this page you acknowledged that you understood all of your Imagine you write a note to your child’s teacher that says, “Mrs. rights under IDEA and that you knew what actions to take in the Wonderfulteacher, we feel so fortunate that Johnny is in your class event of a dispute with the IEP team and as such you willingly and this year. We appreciate your hard work and dedication in making knowingly failed to follow appropriate procedures when a dispute sure Johnny is included in classroom activities and how hard you arose. have worked to ensure the other children accept Johnny as a class- mate.” Then imagine a month later Johnny is hurt on the play- Second, I recommend that under your signature you write, ground during recess when another child punches Johnny in the “Parent’s signature provides consent for implementation of the IEP face, splitting his lip, pushes Johnny to the ground and calls him and related services. It does not constitute agreement with every numerous insulting names. Of course, you immediately write a aspect of the IEP nor does it constitute agreement with the appro- letter to the IEP team to express your concern, and perhaps you priateness of the IEP or adequacy of services provided within the also call for an emergency IEP meeting to address the fact that IEP.” Johnny wasn’t provided appropriate supervision during recess A note of warning: these actions will frustrate and possibly anger when the incident happened (even though Johnny’s IEP specifically the other members of the IEP team. They may even tell you that calls for direct supervision during that time). Then during the IEP you are not allowed to write on the IEP. This is not true. There is meeting the school principal confronts you with your earlier nothing in IDEA that prohibits you from writing on the IEP. After “happy” letter and says to you, “Mrs. Difficultparent, only last writing these statements on the IEP make sure you get a copy be- month you stated how happy you were with Johnny’s placement fore you leave the IEP meeting and make sure that the document here. Nothing has changed during that time except for Johnny’s you wrote on is what is placed in your child’s file. behavior. Mrs. Crappara had to leave the playground for just a moment to take little Sally to the nurse. It is not our fault Johnny Send questions via email to email@example.com While I got hurt. You can’t possibly expect us to watch Johnny every sec- cannot respond directly to you, I will try to answer all of your ques- ond of the day. This is a public school with limited resources. We tions in this column. do the best we can. You must remember that we have 400 other students that also need our time and attention. Johnny must have instigated the incident, as we have never had any problems in the Desiree Vandelac is a Special Education Advocate and Legal Assis- past and Steve has never gotten in trouble before. You, yourself, tant for the Law Offices of Louise Bouzari, and mother of an Asper- told Mrs. Wonderful Teacher how happy you were with how every- ger’s child. thing was going this year. You are simply overacting and blowing THIS COLUMN IS GRACIOUSLY SPONSORED BY this incident out of proportion.” -- Unfortunately, this is not a fic- tional incident nor was it exaggerated for dramatic purposes. Law Offices of Louise Bouzari, LLC With this information in mind, what can we say to our service pro- 7887 E. Belleview Ave, Suite 1100 viders to thank them for their hard work and dedication? Well, it’s Englewood, CO 80111 great to say, “We really appreciate the hard work and dedication required to be a teacher” or some such similar thought. But, what- (303) 228-1616 ever you do, avoid statements such as, “Johnny loves your class so much, we are so happy to have you as his teacher this year and A law firm specializing in the representation of families in can’t imagine what we would do without you,” or “Suzie has made both special education and discipline matters. The firm also has a tremendous gains in your class so far this year. We are thrilled special education advocate for families needing advocacy services with her progress.” The “safest” statement you can make is simply, in lieu of, or in addition to, legal representation. Page 4 ASBC Express Autism and Low-IQ Link Challenged LOOKING FOR STEVEN CARTER, The Oregonian - http://www.oregonlive.com/printer/printer.ssf?/base/ SUPPORT OR HAVE A news/1164421506110210.xml QUESTION? SALEM -- The conventional wisdom that children with autism are often mentally retarded may be wrong, according to research by a Willamette University professor. Meredyth Goldberg Edelson, trained as a clinical child psychologist, has discovered that dec- ades of literature linking autism with retardation were based on flawed assertions or con- VISIT ASBC’S ONLINE tained no empirical research at all. RESOURCE DIRECTORY & Goldberg Edelson reviewed 215 studies on autism, dating to 1937, which made 223 claims about the rates of mental retardation in autism. Only 58 of those claims were supported by EVENT CALENDAR data, she found, and most researchers stated their results without reporting how they meas- ured intelligence. Our website keeps a list of Most of the studies that measured intelligence used tests that were inappropriate, Goldberg local professionals experi- Edelson found. Goldberg Edelson, a psychology professor, came to autism research through enced with autism spectrum her husband, Stephen M. Edelson, a researcher and author who was studying effective treat- disorders and information ments for children with autism. He asked her to check the intelligence of the children in his tests. and events of interest to our community. "Many times, if the researchers had a child they couldn't test, they just assumed he or she was retarded and assigned a low IQ score," Goldberg Edelson said. Visit our Website, Email or Goldberg Edelson found that often the children had been given timed tests or tests that re- Call Us! quired them to follow verbal instructions or give verbal answers, conditions that are frequently hard for autistic children to deal with. Goldberg Edelson used untimed tests that measured nonverbal intelligence. On average, the children scored a 90 -- near average – on the IQ scale. www.autismboulder.org Only 19 percent were within the range of mental retardation. firstname.lastname@example.org "It's important for parents of autistic children to understand that there in a huge range of intel- 720-272-8231 lectual capacity and behavior," says Bertram Malle, an associate professor of psychology at the University of Oregon. "Some of the behavior is amenable to improvement." LOOKING FOR YOUR LOCAL Goldberg Edelson, 45, said she hopes that her research helps prevent therapists and educa- AUTISM SOCIETY OF AMERICA tors from setting artificially low expectations for children with autism. "In the 1950s, children CHAPTER? COLORADO HAS with autism were institutionalized," she said. "If most children with autism aren't mentally re- FOUR LOCAL CHAPTERS TO tarded, we need to find ways for them to interact with society and help them become all they can." SERVE YOU! AUTISM SOCIETY OF BOULDER COUNTY— SERVING BOULDER & BROOMFIELD COUNTIES, 720-272- Autism study tests glutathione levels 8231, WWW.AUTISMBOULDER.ORG, DALLAS, (UPI) http://www.upi.com/ConsumerHealthDaily/view.php?StoryID=20061126- 115241-6785r -- U.S. researchers are testing a formulated whey protein isolate -- Immunocal AUTISM SOCIETY OF COLORADO — -- to raise glutathione levels in an attempt to lessen symptoms of autism. SERVING DENVER AREA COUNTIES, 720- Although the causes of autism have not been clearly identified, research has suggested that 214-0794 OR chronic biochemical imbalance plays a role. WWW.AUTISMCOLORADO.ORG Studies have shown that levels of the major intracellular antioxidant glutathione are typically AUTISM SOCIETY OF LARIMER about 50 percent lower in children with autism. Glutathione, which is produced by every cell in COUNTY- SERVING LARIMER COUNTY, the body, is responsible for a number of functions including removing or neutralizing danger- (970) 377-9640, ous substances that people are exposed to on a daily basis, including toxic metals, according WWW.AUTISMLARIMER.ORG to scientists at the University of Southwestern Medical Center in Dallas. "Some children with autism are poor detoxifiers relative to normally developing children, and in AUTISM SOCIETY OF AMERICA - particular, have trouble excreting toxic metals," said Dr. Janet Kern, a professor of psychiatry. PIKE’S PEAK - SERVING SOUTHERN "Toxic metals that are not eliminated may build up in the brain. Plasma glutathione has been COLORADO, (719) 630-7072, found to be lower in children with autism, particularly, in children with autism who have re- WWW.ASAPPR.ORG gressed. We want to clearly establish that raising glutathione levels in these children will im- prove their ability to detoxify these substances and in that way improve some of their symp- toms." ASBC Express Volume 5, Issue 12 Page 5 To Parents…Take Care of Yourself It’s probably the last thing that you think about, to learn to play with others and can also yourself. Do you even remember what it was like help the parents by giving an opportunity 10 years ago before the marriage, the children to share their experiences with other and all of the responsibility you face now? With a parents in similar situations. child with Autism those memories seem like an- Helping Children with Autism other lifetime ago. You now are in a place full of Medium Cost Ideas Reach Their Full Potential conflicting schedules, boundary setting, crisis in- tervention and money troubles. Keeping calm and • Involve you and your child in summer patient is tested regularly. The last thing you, your camps (Adams Camp, Rec Center day family, and your child need is for you to finally camps, sport camps, etc.) crack. It’s already difficult to find time to eat and • Hire a sitter – same as above, go out or sleep, let alone take a long bath or get away with stay home, just use the time to benefit friends for any amount of time, but I will pose yourself. Try to have a regular time, like some ideas for you to try on for yourself for your once per week, when they come and sanity watch your children/home for you. Low Cost/Flexible Ideas Higher Cost Ideas • Journal, meditate, call a friend or family Bring in a professional to help you to re- member – These three can be used to vent organize your priorities or to give ideas on or to find calm. They can also be used to more difficult problems you are facing. If have a cognitive way for you to put aside you are going to hire a professional, here is Consultants for Children, Inc. problems until you have time to think about some clarification about the different types 265 South Harlan Street them, freeing your self to think about other of counselors who are recognized by the Lakewood, CO 80226 things and not spend as much time worry- licensing board: Phone (720) 272-1289 ing about something you cannot do any- • Psychologists have a doctorate Fax (303) 237-0137 thing about right now. (Ph.D., Psy.D., or Ed.D.) in psychology. • Take advantage of the little things – don’t • Psychiatrists are medical doctors. For more information, contact forget to get some fresh air, exercise, smell the roses, and listen to good music. • Social workers have a Master’s de- our web-site at: gree in social work (MSW or CSW). www.consultantsforchildren.com • Don’t “should” upon yourself – you are Social workers may be licensed as a doing the best you can do right now. If you Licensed Clinical Social Worker think you “should” be doing something (LCSW). different, then either do it or don’t do it, but above all, whatever you choose to do or not • Counselors have specialized training do, don’t be mad at yourself, think less of in particular areas, like Certified Alco- yourself because you aren’t doing some- hol counselors (CAC), or they may have advanced degrees (e.g. Mas- thing else. It will only bring you down. ter’s degrees) in counseling, nursing, AUTISM SOCIETY OF psychology, or guidance. Their li- Low Cost/Less Flexible Ideas censes are Licensed Professional BOULDER COUNTY • Join a support group – there are many Counselor (LPC), Licensed Marriage types (informative, venting, distraction, and Family Therapist (LMFT), and goal focused, and others) and there are some counselors are unlicensed but MERCURY IN VACCINES many already out there (see local ASA registered with the state. chapters—pg 4) you may join. There are Hg also online support groups if it works better Take a long vacation and hire someone to for you. Know that you are not alone. go with you to be with your child. There are Meeting others and having people you can special organizations and highly trained contact for ideas and thoughts when you people who can go with you on your trip come to something new for you that they and give assistance in many ways. may have gone through is helpful. • Ask family and friends to help – maybe just Overall to watch the children while you take a bath • Don’t forget about yourself or spend time with your spouse. Maybe • Don’t forget about your spouse they could take on some chores you have- • Don’t forget about your other children ASK YOUR PHYSICIAN n’t been able to get to. FOR VACCINES THAT • Apply for respite care – agencies offer res- Germaine Seufert, MA, NCC, LPC with Consult- MEET FEDERAL SAFETY pite care for families with a child with dis- ants for Children, Inc. has over nine years of GUIDELINES abilities. You can contact ASBC, ASC and experience with children with autism and their Imagine! for possible respite care. families. For more information see ad box on Download your free this page. • Start a local play-group for children who brochure at live near you who also have disabilities. www.autismboulder.org This can be great for children with Autism Page 6 ASBC Express ASA Resources News & Updates — excerpted from ASA-Net ASA Conferences Update and adult children with autism, respite can help provide the relief 2007 National Conference Call for Papers Remains Open necessary to maintain their own health, bolster family stability, keep ASA's 2007 National Conference theme, "Together a Brighter Tomor- marriages intact, and avoid out-of-home placements. row," reflects our belief that success will be achieved with all af- fected by autism -- individuals, families, professionals and friends -- "Families of children with autism consistently rank respite as one of working together. During this conference, to be held in Phoenix, AZ, their greatest family support needs, yet in many states and regions July 11-14, 2007, ASA will bring together experts from various disci- respite is in short supply or unavailable due to inadequate and un- plines with the creative ideas and energy to address the diverse even funding, lack of provider capacity, and resulting waiting lists for challenges individuals with autism and their families face. Our goal such services," said ASA President and CEO Lee Grossman. "Families is to provide conference attendees with the opportunity to learn take great joy in supporting their child with autism; however they from innovators and access critical information to improve their lives need regular breaks from their care giving responsibilities." and those of the people they love, treat and inspire. With collabora- tion and armed with knowledge, ASA is sure that there will be a Research indicates that families of children with autism have greater "brighter tomorrow" for the autism community. parental stress due to challenges in caring for their children. Because of the additional care required by a child with autism, families identify Submit your abstract/paper for consideration to speak at ASA's 38th respite care as a basic need, with the need increasing as the child National Conference: http://asa.confex.com/asa/2007/cfp.cgi gets older. Families who report less stress usually are the recipients of formal family support services, such as respite care. Autism Resources For our Spanish speaking members: Los Trastornos del Espectro de "We know from experience that a small investment in respite and Autismo de la A a la Z, by Emily Doyle Iland and Barbara T. Doyle. other family support services makes an enormous difference in the For the first time in the United States, an autism specialist author lives of children and families," said Dr. Cathy Pratt, Chair of the ASA who speaks fluent Spanish has published a book, Los Trastornos del Board of Directors. "Passage of the Lifespan Respite Care Act is a Espectro de Autismo de la A a la Z (Autism Spectrum Disorders good step towards the development of a comprehensive system of From A to Z) in Spanish. Although some books about autism have services and supports for individuals with autism and their families." been translated into Spanish, their authors cannot speak directly to the Hispanic/Latino community as can Emily Doyle Iland. Mrs. Iland The Lifespan Respite Care Act is based on model Lifespan Respite is the mother of three children, one of whom has an autism disor- Systems in Oregon, Nebraska, Wisconsin and Oklahoma. These sys- der. She co-authored her book with her sister Barbara T. Doyle who tems provide easy access to an array of affordable, quality respite has been a professional educator in the field of autism for more services; ensure flexibility to meet diverse needs; and assist with than thirty years. The book was named Outstanding Literary Work of locating, training, and paying respite providers. ASA will complement the Year, Educational Division, at the ASA National Conference in Autism Speaks' research efforts with focus on lifespan services Providence. Autism Society of America Welcomes Autism Speaks/CAN Merger Understanding Autism for Dummies , by Stephen Shore and Linda The Autism Society of America (ASA) welcomed news of the pending Rastelli, with a foreword by Temple Grandin. merger between Autism Speaks and Cure Autism Now (CAN). As a Autism affects more than 1 million children and adults in the United longtime supporter of autism research, ASA shares the commitment States, and parents may be confused by the behavior of autistic of the new organization, Autism Speaks, Inc., to accelerate and fund children. This book provides help-and hope-by explaining the differ- biomedical research into the causes, prevention and treatments for ences between various types of autism and delivering the lowdown autism spectrum disorders and to increase awareness of the disor- on behavioral, educational, medical, other interventions. Featuring der. inspiring autism success stories as well as a list of organizations where people who support those with autism can go for additional "ASA has always enjoyed our strong relationship with CAN and Autism help, it offers practical advice on how to educate children as well as Speaks," said ASA President and CEO, Lee Grossman. "We look for- insights on helping people with autism use their strengths to maxi- ward to continuing this strong relationship, complementing their criti- mize their potential in life. cal research efforts with ASA's focus on lifespan services, self- determination, and rights for individuals living with autism. Together, Bethesda, MD (12/06/06) - The Autism Society of America today I am sure we will change the landscape of how autism is diagnosed, applauded the passage of H.R. 3248, the Lifespan Respite Care Act, treated and served." by the U.S. House of Representatives. The bill, introduced by Energy and Commerce Health Subcommittee Vice-Chair Michael Ferguson ASA Board Chair Cathy Pratt, Ph.D., agreed, noting that “Developing (R-NJ), Rep. Langevin (D-RI) and several members of the Energy and partnerships strengthens the autism community and ensures that the Commerce Committee, authorizes competitive grants to states to goals we share will really be achieved. The ASA board and organiza- make quality respite available and accessible to family caregivers, tion wishes continued success to those involved in this new venture.” regardless of age, disability, or family situation. For families of minor To become a member of Autism Society of America and receive their quarterly magazine, or to join their e-newsletter, visit www.autism-society.org. ASBC Express Volume 5, Issue 12 Page 7 Community Support Boulder & Broomfield County For more info contact 303-759-1192. each month. Contact Sabrina at sabri- 2nd Monday email@example.com or Darla Beuerman • ASBC Support Group held at the Asso- at 970-420-8939. Meets 3rd Tuesday of ciation for Community Living in Long- • WOW (Watch our Words) Facilitated Communication groups, 6-7:30pm 6th the month except for summer and De- mont January 13, March 10, April 14, cember. floor conference room, Developmental and June 9 from 10am to noon. Disabilities Planning Council • Family Support & Sharing Group 6pm on RSVP to Bob Sargent no later than the www.wowcolorado.org, call 720-941- 2nd Thurs at Harmony Presbyterian Wednesday before at 303-666-5369. 0176. 3rd Thursday Church 400 E Boardwalk – Ft Collins, • Parents of Students with Emotional Brenda 970-267-8705 Issues @ BVSD Admin Bldg - Contact • Grupo Vida & Spanish support group Kathy McBride @ 303-447-5176 for 3rd Thursday every other month (Jan, • Open Meeting for People w/Disabilities March, May July Sept & Nov. Call Ellie 11am on 1st Saturday at Smiling Moose more info. 2nd Tuesday @ 303 904-6073 or Restaurant, Greeley – Michelle 970-330- • NAMI - Mental Health caregivers fam- www.elgrupovida.org ily education and support group 5326 meets @ 9am in Boulder. Contact • BIOMEDICAL SUPPORT - DENVER Par- Colorado Springs Area Judy Goldstien @ 303-938-1360 for ents interested in biomedical support and information. Switching the Decem- • KOFFEE KLATCH - COLORADO SPRINGS more info 2nd & 4th Tuesdays ber meeting to December 13th @The Meets monthly @ Pikes Perk. Contact • NAMI FAMILY SUPPORT GROUP - Aspen Center for Autism. For more info Renee @ 719-598-7827 9:30am - LONGMONT meets @ 9am at Spirit of contact Claudia Barzen @ claudiabar- 11:00am – last Tuesday Peace Church. Call Kathleen or Steve firstname.lastname@example.org 6:30pm - 8:30pm • AUTISM SOCIETY OF PIKE'S PEAK meets at 303-443-4591. 2nd & 4th Saturday • ASD SUPPORT GROUP - AURORA meets quarterly. Call 719-473-5421 3rd Mon- • OCD SUPPORT GROUP - BOULDER @ 7-9pm at Polton Elementary 2985 S day 7pm at the World Prayer Center meets @ 7pm at Boulder County Men- Oakland St 80014. Melissa 720-474- • Family to Family Support Group – 7pm on tal Health Center. Contact Judy Gold- 2948 for more information. 2ndTues 1st and 3rd Tues @ 616 N Royer St Colo- stien @ 303-938-1360 for more info. rado Springs. Gayle 719.599.0692 • Adolescents-Young Adults Toilet Train- 3rd Sunday ing Strategies meets 5pm on 1st, 2nd, • Family Support Group 3rd Wed 10-12PM • SPANISH SUPPORT GROUP— 3rd Tues at Developmental Pathways, 601 Greenwood Ave Canon City LONGMONT Contact Donna Wilson al 11111 E Mississippi Ave Aurora – 303- 719.275.1616 x 212 – Nancy Harris 303-457-5641 360-6600 • Toddler Playgroup Fremont County Family • GLUTEN/CASEIN Free Support • Epilepsy Support Group – Adults/Family Center every Mon Wed and Fri 10-11am Group— Contact Emmy Conroy 303- Members 7pm on 3rd Wed at 234 Col- 1401 Oak Creek Grade Road Canon City 664-1295 or emmy@conroy- umbine St #333 Denver – Amy 303- 719.269.1523 family.net 377-9774 x26 • Independent Living Skill every Fri Inde- Denver Area • Epilepsy Support Group – Parents 7pm pendence Center Colorado Springs on 2nd Wed at 234 Columbine St #333 719.471-8181 • DENVER/AURORA METRO AREA - Denver – Amy 303-377-9774 x 26 Adult ASD Group @ Aurora Mental • Asperger Support Group 3rd Thurs 7pm Health Center in afternoons. Call Bob • Health Promotion Class, JFK Partners 5 5550 N Union Blvd, Colorado Springs – Froug @ 303-617-2300. Thurs after- pm every Wed 303 724 0652 Kim at 719-265-6141 noons • Depression-Bipolar Recovery Group- • Epilepsy-Seizure Disorder Support Group • SOCIAL SKILLS/FRIENDSHIP GROUP - 7pm on 4th Thurs at Messiah Lutheran 3rd Wed 5:30 pm Easter Seals of South- DENVER, JFK Partners/UCHSC with Church 1750 Colorado Blvd, Denver ern CO, 225 S Academy Blvd Colorado Dr. Green @ 303-315-0837 for more Mental Health Association of CO Springs, LeeAnn 719.636.0009 information. 1st, 2nd, 3rd, 4th Thurs- 303.377.3040. • Sensory Processing Disorder Support days • SOUTHWEST METRO meets @ the Group 2nd Monday 7pm Margo • NORTHEAST DENVER - PARK HILL Marrs house @ 6pm. Contact Laura @ 719.522.1837 – 5550 N Union Blvd, SUPPORT GROUP - Coffee morning 303-986-8634. 2nd Thursday Colorado Springs and support for parents of special Northern CO Southern Colorado needs kids. Northeast Women's Cen- • ASD/PDD SUPPORT GROUP - GREELEY • Autism/PDD & AS support group of ter. Contact Karen Roberts @ 303- Meets monthly @ Greeley Recreation Pueblo. Nancy 719.547.9542 329-8950, or email Center. Call Susan @ 970-356-7314 email@example.com Fridays • Parent’s Garden - Every Thurs 10-11am from 7:00pm - 9:00pm 2nd Monday Community Connections for Families, • CHERRY CREEK SUPPORT GROUP - • Eaton Support Group 1101 Berkley Ave, Pueblo 719.583.2459 DENVER, Downing Group - Adult As- 4th Monday of every month. Call Di- pergers Social Group 5:30-7pm for anne for details (time, place, topic): • Four Corners ASD Support Group – Leigh Aspergers individuals and their neuro- 970.259.5732 (Durango) 970-454-3023(h) 970-330-3608(w) typical friends. Contact Kathy @ 303- 6:00 pm - 8:00 pm 861-2422. Tuesdays • FORT COLLINS SUPPORT GROUP- • SOUTHEAST DENVER - MASK Group Meets at Bacon Elementary @ 6:30 meets @ Aspen Center from 7-8pm. Page 8 ASBC Express Coming Events ASBC Free Lecture Series: Safe & Strong: Personal Safety Strategies for People with Devel- opmental Disabilities, January 13th—Irene Lucas, journalist and mother of an autistic adult will present her multi media educational program Safe and Strong. The focus of her discussion will be on personal safety strategies for people with developmental disabilities. Two mini workshops on Safe and Strong: Home Alone & Safe and Strong: Safety in the Community will be presented. Ms. Lucas’ VOLUNTEERS NEEDED! workshops equip people with developmental disabilities with safety strategies at very young ages into adulthood which can reduce their risk and vulnerability. Target audience – Parents, caregivers, edu- Events Coordinator cators and professionals. Saturday, January 13, 2007 10:00 a.m. to 12:00 p.m. Location: Imagine! 1400 Dixon Ave, Lafayette. RSVP by Wednesday, January 10th to (720) 272-8231 or asbcMeet- BOARD POSITIONS OPEN firstname.lastname@example.org ST. VRAIN LIASION (DISTRICT PERSONNEL) ASBC Free Lecture Series: Relationship Development Intervention, February 21st, Join Dr. Stacy Goresko, an RDI® Program Certified Consultant, for an introduction to Relationship De- CORPORATE GIVING velopment Intervention, a relatively new cutting edge treatment program for ASD. 7:00 – 8:30 PM at (FUNDRAISING) Imagine!, 1400 Dixon Avenue in Lafayette. Learn more and join our team! ASA Pikes Peak Region Conference — April 12, 2007 We continue to grow in our Dennis Debbault will host a seminar on “Autism Recognition & Response for Law Enforcement & First support of our community and Responders Evening Session for Families, Educators, & Others. Location 918 Crown Ridge Drive, need our members contribu- Colorado Springs, CO 80904 (719) 630-7072. For more information please visit www.asappr.org or tions and talents! email: email@example.com CONTACT GENA @ 720-272-8231 OR ASBC Free Lecture Series: The ABC’s of Applied Behavioral Analysis, May 16th – Join Diane EMAIL Osaki, Founder of The Aspen Center for Autism for a discussion regarding the basics of Applied Be- VOLUNTEER@AUTISMBOULDER.ORG havioral Analysis. 7:00 – 8:30 PM at Imagine!, 1400 Dixon Avenue in Lafayette. Creative Perspectives, Inc. Autism Center of Boulder V alley Early Childhood Interventions Seasonal Interventions 1:1 Interdisciplinary Intervention Camp Le’ale’a Summer Camp Small Group SLP/OT Therapy Camp Ko’eko’e Winter Camp Small Group Music Therapy Camp Mohala Spring Camp Small Group Play Therapy Clinical Services Childhood Interventions Multi-Disciplinary Diagnostic Services 1:1 Interdisciplinary Intervention Functional Behavior Analysis Educational Support Programming Licensed Clinical Psychologist Recreation-based after-school Programming Specialty Interventions Adolescent Interventions Speech Therapy Center-Based Social Groups Occupational Therapy Recreation-based after-school Programming Music Therapy Sibling Interventions Art Therapy Sibling Play Therapy Massage Therapy Adolescent Support Groups Therapeutic Yoga Autism Center of Colorado Lakewood, Colorado 303.935.5200 Autism Center of Boulder Valley Lafayette, Colorado 303.665.6800 ASBC Express Volume 5, Issue 12 Page 9 Combating Autism Act Passes Congress & Awaits President’s Signature AUTISTIC ASSISTANCE K9S (Continued from page 1) their toxic components can no longer be ignored by our govern- nying report language, “..the legis- ment as causative factors in lation rightfully calls for renewed efforts to study all possible autism.” causes of autism—including vac- ASA President, Lee Grossman, cines and other environmental stated “ASA thanks Chairmen causes.” Barton also states, Enzi and Barton for their leader- “..these provisions will insure ship,” and added “This is only continuation and intensification the beginning of our commit- of crucial research at NIEHS so ment to ensure federal funding that it is able to conduct all nec- to support and serve all affected essary research to determine the by autism.” environmental factors in autism.” Autism Society of Boulder All K9s Custom Trained County (ASBC) thanks all the “For the first time, we now have Colorado organizations and indi- acknowledgement from the fed- viduals who advocated over the HANDLER FOCUSED – To remain focused and eral government that factors such past year and were a part of the as mercury from vaccines may consensus document ASBC sub- handler aware; play a role in the development of mitted on behalf of Colorado to SEIZURE ALERT - Brainwave and body function- autism,” commented Laura Bono, the committees and legislators National Autism Association (NAA) for the passage of this legisla- ing alert; board member and mother of a tion. Theresa Wrangham, ASBC HANDLER SEARCH & RESCUE - To stay with, son diagnosed with autism and President, stated “This has been mercury toxicity. “This is the most a long hard battle and it is grati- search out and reconnect with family; promising area of research for fying that in the end our voices ASSISTANCE TRAINED - According to individual our children, and we now have a were heard. Our children stand clear directive that this will be to make great strides as a result needs of recipient. investigated by the National Insti- of these efforts.” tutes of Health. Vaccines and For More Information, Call 866-875-9364 Community Mourns Loss (Continued from page 1) - ments and uncovering the roots of autism.” Dr. Rimland was one of the first to explore the connection behind skyrocketing rates of autism and thimerosal. AD SPACE AVAILABLE! He created the Defeat Autism Now! (DAN!) project, to bring together dozens of the world’s leading researchers o create a state-of-the-art treatment plan and prioritize research goals. Dr. Rimland didn’t know the meaning of “ivory tower.” In his few free moments each day, he responded to letters, phone calls, faxes, and DISCOUNTS AVAILABLE TO NON-PROFITS emails from thousands of distraught parents around the world. AND FOR REPEAT CONSECUTIVE His vast network of friends knew him as an extraordinarily generous RUNNING ADS soul and an irrepressible “yenta,” whose greatest joy lay in bringing strangers together for the benefit of all. He was also a soft touch, incapable of saying “no” to any worthwhile cause—no matter how CONTACT large or small. Dr. Rimland’s remarkable wife, Gloria, gracefully handled his nearly- AUTISM SOCIETY OF BOULDER COUNTY impossible schedule while keeping a home with three children run- ning smoothly. 720-272-8231 The autism world sends its deep condolences to Gloria and to their children, Mark, Paul, and Helen. OR “Our community is greatly diminished by the loss of Dr. Rimland,” NEWSLETTER@ says Dr. Edelson. “His legacy, however, will live on in the work of ARI AUTISMBOULDER.ORG and the DAN! project – and in the joy of families whose children, dis- missed as ‘hopeless’ and ‘incurable’ by the medical establishment, are now leading happy, healthy, productive lives. It’s exactly the leg- acy that Dr. Rimland would want. NON-PROFIT ORG U.S. POSTAGE PREPAID Autism Society of Boulder County LOUISVILLE, CO 194 Mesa Ct PERMIT #34 Louisville, CO 80027 Phone: 720-272-8231 Fax: 303-604-6656 firstname.lastname@example.org www.autismboulder.org Promoting Education & Awareness ASBC Depends on Support from the Community This year 700 families in Colorado will be dues. You can donate critically needed funds • $50 sponsors books into the Boulder Pub- told their child has an Autism Spectrum online at www.autismboulder.org lic Library’s collection of Autism reference Disorder. Each year, we appeal to our guides and publications. Whatever you can give, your support will community requesting donations to allow make a difference: Alternatively, you may choose to make Autism us to continue our important work for over 2,000 families currently coping with Au- Society of Boulder County the beneficiary of tism in our area. • $1,000 puts our local monthly newsletter your company's next event. in 40 families hands for a year. Distrib- Please help Autism Society of Boulder County We provide free awareness programs, uted FREE of charge to current subscrib- continue its mission: To raise Autism aware- lecture and support groups to our commu- ers and agencies in the region. ness in Boulder and Broomfield Counties by nity, as well as publications and timely • $700 sponsors our Annual Picnic that supporting all Autism Spectrum Disorder (ASD) information. ASBC continues to be the draws our community together for a day of individuals and their families and profession- voice in our community in shaping good sharing, support and carnival games. als by providing information on all topics re- policies for individuals affected by ASD lated to autism, educational support, autism and actively communicates the ASD com- • $500 provides much needed respite for 4 research and legislation. munity’s concerns with our professionals local families caring for an autistic child, Together we raise awareness and change our and legislators. or ASD adult. community for the better. Thank you for your • $250 provides 166 autism resource direc- support! Donations provide a critical source of tories for distribution to families and pro- income for ASBC, which is comprised fessionals in the Boulder and Broomfield solely of volunteers that are working to area for one year; make Boulder & Broomfield County the premier location to raise a family with or • $100 provides 100 our informational without special needs. ASBC’s services brochures displayed and distributed at are free to the public and we charge no support groups and in professional of- fices.
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