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Quebec 2010


									The Living Proof
Canadian Transplant Association

 On Top of the World
 Dale Shippam

 Events from across Canada

 I Love You All...
 Celebrating the life
 of Eva Markvoort

                                         Quebec 2010
                                    Counting down to the 5th
                                  Canadian Transplant Games!

                                             Issue #30 Spring 2010
                                                                                       Inside This Issue...
                                                                                       President’s Corner ...................................................................................... 3

                                                                                       Heart Recipient on Top of the World ................................................ 4

                                                                                       Benson Honoured for her Volunteer Work .......................................4

                                                                                       5th Canadian Transplant Games - Québec 2010 ........................... 5
                                                                                                                                                                                                     President’s Corner
                                                                                       Les 5e Jeux canadiens des greffés Québec 2010 ......................... 5                                     David Smith, Kidney Recipient, Edmonton, AB
                                                                                       Less than 100 days until the 5th
                                                                                       Canadian Transplant Games .................................................................. 6

                                                                                       Moins de 100 jours avant la tenue                                                                             Hello everyone,
                                                      President - David Smith          des 5e Jeux canadiens des greffés! .................................................... 6
                                                                                                                                                                      In less than three months, on Aug 9 – 14, transplant athletes from across Canada, along with our dedicated transplant
                                                                                       5th Canadian Transplant Games:                                                                                friends from the USA, will be meeting in Quebec City to participate in the 5th Canadian Transplant Games. As the
                                                    Past President - Janet Brady       Quebec City, August 9–14, 2010 .......................................................... 7                   excitement builds for the games, the organizers are busy working on the finishing touches to ensure that transplant
                                                                                                                                                                                                     recipients, families, support people, donor families and the many volunteers and spectators will share an amazing experience
                                                                                       Quebec Sports and Events Schedule ................................................ 7
                                               Vice-President West - Margaret Benson                                                                                                                 at Laval University and other venues within the beautiful city of Quebec. If you are not sure the games are for you, please
                                                      Olympic Relay Honours Organ Recipients ...................................... 8                               call at our toll free number (1-877-779-5991) for answers to all your questions about your participation, the events,
                                                Vice-President East - Amy Holdorf                                                                                                                    or the overall games’ experiences.
                                                                                       1200 kilometres of determination and hope:
                                                                                                                                                                      We are all aware of the importance of organ and tissue donation and the need to reduce wait times for transplant across
                                                                                       Breathing Life into the Future .............................................................. 9
                                                    Treasurer - Debbie Lanktree                                                                                                                      Canada. Well, some good news is just around the corner. The Canadian Blood Services have taken on the role of creating
                                                       B.C. Man Celebrates 10th Re-Birthday ............................................... 9                        a national system to coordinate organ and tissue donation across the country for all provinces. They have been busy
                                                                                                                                                                                                     gathering information and input from organizations and individuals from coast to coast, including those directly involved
                                                    Secretary - Kathy Tachynski        NOTDAW Events from across Canada ............................................ 10
                                                                                                                                                                                                     in areas of organ donation awareness, pre- and post-transplant programs, related groups, and anyone from the general public
                                                                                       Sealed With a Kiss .................................................................................... 11    with an interest in the positive effects this project will have. Still in its initial stages, we look for more exciting news in
                                                Membership Director - Neil Folkins                                                                                                                   the upcoming weeks and months.
                                                       “I Love You All... Love... Love... Love” ................................................ 11
                                                                                                                                                                                                     By reducing our national wait times, we may soon be able to share more of our experiences and laughter at the games
                                                  Team Manager - Heather Fisher                                                                                                                      with those who have been waiting at home or in the hospital for a lifesaving or life changing organ transplant. To all
                                                           Do you have any articles or pictures to submit to the Living Proof newsletter?
                                                                                                                                                                                                     the groups actively involved in promoting organ and tissue donation awareness, and to the long list of those who make
                                                                                       If so, please forward to: Jennifer at or Amy at                                     transplants happen, “Keep up the great work!”
                                                WTGF Councillor - Heather Fisher
                                                                              The deadline for the next edition is August 31, 2010.
                                                                                       Articles should be in Word doc or docx format (300 words or less) and pictures                                See you in Quebec!
                                                    REGioNAL DiRECToRS                 as high resolution jpg files.
                                                      BC - Margaret Benson
                                                      For regional reports and other interesting articles check out “The Members
                                                                                       Corner” on our website (under About CTA).
                                                       AB - Jennifer Holman
Publications Mail Agreement Number: 40033698

                                                         SK - orest Saskiw                 MEMBERSHIP FEES
                                                                                           One Year Individual Membership                           $30.00
                                                       oN - Rob Kolatschek
                                                           Two Year Individual Membership                           $50.00                                                                                                                           ON THE COvER
                                                       QC - Gaston Martin                  Lifetime Individual Membership                         $300.00
                                                                                                                                                                                                                                                                                     2010 Canadian Transplant Games
                                                        One Year Family Membership                               $75.00                                                                                                                           at Université Laval in Quebec
                                                        NB - Mark Black
                                                                                           A family membership will include all related adults and children who live at the same address.
                                                                                           Neil Folkins, Membership Director, c/o 11649 St Albert Trail NW, Edmonton, AB T5M 3L6

                                          2                                                                                                                                                                                                                                                                                            3
    Heart Recipient on Top of the World                                                                                                          5th Canadian Transplant Games - Québec 2010
                                                                                                                                                 The 5th Canadian Transplant Games               Jumpstart Foundation of Québec also
    Congratulations to heart recipient, Dale      Pole trek. On April 5 the team was               15, at 9:21 a.m. they stood on the North      — Québec 2010 are fast approaching.             offers valuable financial support to athletes
    Shippam, from Thunder Bay, Ontario,           airlifted to Barneo, a Russian drifting          Pole. Shippam is believed to be the first     In fact, by the end of April, more than         in need. Thank you very much! Several
    for his successful expedition to the North    ice base approximately 100 kilometers            transplant recipient to literally stand at    one hundred registrations were received         fundraising and awareness-raising activities
    Pole. Shippam and his team, which             from the North Pole. From there a                the top of the world.                         by the local organizing committee (LOC)         are being organized including:
    included Dr. Heather Ross, a cardiologist     helicopter took them to their starting                                                         which confirms the interest for this friendly
                                                                                                   Shippam received a heart                                                                      • Ciel! Un cocktail d’enfer: June 4, 2010,
    from Toronto General Hospital, Dr. Michel     point, exactly 89 degrees north latitude.                                                      and competitive sports event. Everyone is
                                                                                                   transplant in 1999 after a viral                                                                hosted by the Québec Lions at the
    White, Director of the Montreal Heart                                                                                                        busy preparing for the Games and working
                                                  Each team member traversed the ice               infection damaged his own heart.                                                                Officers’ Mess at the Québec Citadel.
    Institute, and two guides, journeyed to                                                                                                      with our many business partners to ensure
                                                  and snow on cross country skis while             He undertook this adventure as                                                                  All profits will support the Canadian
    the North Pole to raise awareness for organ                                                                                                  a prestigious event.                                                                            • Signez pour la vie! — July 22, 2010, an
                                                  pulling 35 to 40 kilograms of gear (mostly       a way to honour the family who                                                                  Transplant Games.
    donation and transplantation, and to                                                                                                                                                                                                           important awareness-raising event hosted
                                                  food, clothing, and shelter). The team was                                                     The LOC has put considerable effort
    raise money for heart disease research.                                                        bravely donated their loved one’s                                                             • A benefit cocktail party: June 15,              by Laurier Québec, a very prestigious
                                                  challenged by extreme weather, obstacles                                                       into recruiting a record number of athletes
                                                                                                   organs. “To have adventures like                                                                2010, at Montreal Cinémathèque                  shopping center in the Québec Region.
    The team departed from Toronto on March       on the ice and even open water. Each day                                                       and volunteers in Montréal, Québec,
                                                                                                   this after a transplant just proves                                                             with distinguished guests Costa Gavras
    30, and after making a brief stop in Oslo,    they covered between six and nine nautical                                                     and across the country. MC2 Expérience                                                          MC2 Expérience stratégique and its
                                                                                                   that organ donation does work,”                                                                 and his wife Michèle for the North
    Norway, they headed to Longyearbyen,          miles, and often found that they would                                                         stratégique, along with its local partners                                                      valued partners invite all national,
                                                                                                   said Shippam, “It doesn’t seem                                                                  American premiere of the movie À              provincial, regional and local
    Norway, to assemble their gear and            lose mileage due to the ice drifting while                                                     Québec-Transplant, Canadian Transplant
                                                                                                   real to experience an adventure                                                                 l’Ouest, un souffle nouveau (In the           organizations to appeal to their
    make final preparations for their North       they slept. Finally, 11 days later, on April                                                   Association, the Université Laval,
                                                                                                   like this after a new heart. Really,                                                            west, a new breath) — the story of            members to register themselves
                                                                                                                                                 Héma-Québec, the City of Québec, the
                                                                                                   I thought that if I was even lucky                                                              6 young lung transplant recipients            right away to take advantage of all
                                                                                                                                                 Mouvement Desjardins, the Chambre des
                                                                                                                                                                                                   on a physically and psychologically           benefits announced previously.
                                                                                                   enough to survive and get a                   notaires du Québec, the Canadian Blood
                                                                                                                                                                                                   challenging trek in Ireland. The film
                                                                                                   transplant that my life would                 Service and the Kidney Foundation of                                                            We are looking forward to seeing you
                                                                                                                                                                                                   is dedicated to all organ and tissue          all and wish you great games!
                                                                                                   be more sedentary. Getting here,              Canada, continues activities to raise funds
                                                                                                                                                                                                   donors and their families.
                                                                                                   it is a miracle.”                             and recruit participants. The Canadian Tire
                                                                                                                                                                                                                                                 The LOC and MC2 Expérience stratégique
                                                                                                   Additionally, the team raised over
                                                                                                   $300,000 for cardiovascular disease           Les 5e Jeux canadiens des greffés Québec 2010
                                                                                                   research. Shippam concluded, “In the
                                                                                                   end, we have to thank all the families        Les 5e Jeux canadiens des greffés Québec        Desjardins, la Chambre des notaires du          Costa Gavras et de son épouse Michèle
                                                                                                   who say ‘yes’ to organ donation when          2010 avancent à grands pas. En effet, à la      Québec, la Société canadienne du sang           pour le lancement en première nord-
                                                                                                   asked that tough question at the hospital.”   fin avril, plus d’une centaine d’inscriptions   et la Fondation canadienne du rein. Tous        américaine du film À l’Ouest, un souffle
                                                                                                   For a detailed account of their adventure,    sont parvenues au comité organisateur           s’unissent pour offrir un soutien primordial,   nouveau relatant le récit de 6 jeunes greffés
                                                                                                   see Dr. Ross’s “Test Your Limits” blog:       confirmant ainsi l’engouement pour              tant au niveau financier qu’au niveau du        du poumon lors d’un voyage initiatique en
                                                                                                ces compétitions amicales et sportives.         recrutement de bénévoles et d’athlètes. Il      Irlande. Finalement à Laurier Québec, un
                                                                                                                                                 La grande majorité des disciplines sont         est à noter que la Fondation Bon départ         centre commercial très prisé dans la région
                                                                                                                                                 largement avancées dans leurs préparatifs.      de Canadian Tire du Québec apporte une          de Québec sera l’hôte d’un événement de
                                                                                                                                                 Plusieurs partenaires offrent d’ailleurs        aide financière précieuse en supportant         sensibilisation majeur; Signez pour la vie!
                                                                                                                                                 aux jeux, support et logistique afin de         nos jeunes athlètes moins nantis. Un gros       qui se tiendra le 22 juillet 2010.
    Benson Honoured for her volunteer Work                                                                                                       livrer des jeux de qualité.                     merci! D’autres partenaires financiers
                                                                                                                                                                                                                                                 MC2 Expérience stratégique et ses
                                                                                                                                                                                                 viendront se joindre aux Jeux bientôt.
    This year the Canadian Cystic Fibrosis        family who has made an exceptional                                                             En plus des efforts remarquables pour                                                           précieux partenaires invitent donc toutes
    Foundation (CCFF) celebrates their            contribution of national significance,                                                         recruter des athlètes dans la région            Plusieurs activités de financement ou de        les organisations nationales, provinciales,
    50th anniversary supporting advances          to the CCFF. Margaret was honoured                                                             métropolitaine de Montréal, c’est le            sensibilisation sont en cours de réalisation    régionales et locales à solliciter leurs
                                                                                                                                                                                                                                                 membres à s’inscrire sans plus tarder
    in medical research, clinical treatment       for her 30+ years as an active volunteer,                                                      branle-bas de combat à Québec afin de           dont l’événement Ciel! Un cocktail d’enfer
    and education. At their Annual Meeting        fund-raiser and advocate for the                                                                                                                                                               afin de profiter de tous les bénéfices
                                                                                                                                                 recruter un nombre record d’athlètes et         préparé par les Lions de Québec qui aura
    and Conference in Ottawa last month,          Foundation. Congratulations, Margaret!                                                                                                                                                         annoncés précédemment.
                                                                                                                                                 de bénévoles. MC2 Expérience stratégique        lieu le 4 juin au Mess des officiers à la
    they honoured one of our own. Margaret                                                                                                       aimeraient vous présenter les partenaires       Citadelle de Québec. Les profits seront         Nous vous attentons en grand nombre
                                                  Photo: (left to right) Double Lung Recipient
    Benson, Canadian Transplant Association
                                                  Margaret Benson, Karen Kellett, Chairman                                                       qui s’unissent pour la réussite des Jeux :      dédiés aux Jeux canadiens des greffés.          et bons jeux!
    Vice-President, West was awarded the
                                                  of the National Awards Committee, Debra Berlet                                                 Québec-Transplant, Canadian Transplant          De plus, il y aura à la Cinémathèque de
    Volunteer Service Award. The Award                                                                                                                                                                                                           Le comité organisateur
                                                  National President of the CCFF                                                                 Association, l’Université Laval, Héma-          Montréal le 15 juin prochain, un cocktail
    is the highest award granted by the                                                                                                                                                                                                          MC2 Expérience stratégique
    Foundation to an individual, couple or
                                                                                                                                                 Québec, la ville de Québec, le Mouvement        bénéfice de prestige avec la présence de
4                                                                                                                                                                                                                                                                                                5
                                                    Less than 100 days until the                                                                  5th Canadian Transplant Games:                                                                      Quebec Sports and
                                                                                                                                                                                                                                                      Events Schedule
                                                    5th Canadian Transplant Games                                                                 Quebec City, August 9–14, 2010
                                                                                                                                                                                                                                                      August 9 – 15, 2010
                                                    The city of Quebec is preparing to receive      • the possibility to raise public awareness   Québec City is pleased to host the 2010           organ donors and donor families for their         (subject to change)
                                                    athletes from across Canada excited to            of the significance of organ donation       Canadian Transplant Games, August 9-14.           precious gift of life. This year the event will
                                                    celebrate life and health by taking part in       as well as the importance of signing        The Games, which are expected to attract          be held in conjunction with the Opening           MONDAY, 9TH
                                                    varied sports competitions where pleasure         their donor card                            more than 400 participants, are a unique          Ceremonies at either Eglise Sanit-Roch or         • All Day: Arrival and Registration
                                                    and team spirit will be honoured. From                                                        opportunity for transplant recipients from        Chapelle du Musee de L’Amerique francaise.        • 17:00 – 19:00: BBQ
                                                                                                    Athletes of all levels and abilities are
                                                    August 9th to 14th, 2010 we invite all                                                        all over Canada to gather in a friendly, warm     More details to follow on the website.            • 19:30 – 20:30: Opening Ceremonies
                                                                                                    expected in Québec City. Whether you
                                                    organ transplant recipients to live this                                                      and competitive spirit, in beautiful, historic
                                                                                                    are a semi-professional or an amateur,                                                          Seminars, Education — The Games also              TuESDAY, 10TH
                                                    unique experience:                                                                            Québec City. Since the first Games in
                                                                                                    you are welcome into the competitions                                                           offer a chance for transplant professionals       • 8:00 – 16:00: Bowling
                                                                                                                                                  Sherbrooke in 2000, the participation
                                                    • the possibility to stand apart and            that will be divided in categories by age.                                                      to gather to enhance education, research          • 8:00 – 11:00: 5K Cycling
                                                                                                                                                  rate continues to climb. The goals of
                                                      have fun in more than ten disciplines         Even if you never practise one of these                                                         and awareness. A seminar for organ and            • 13:00 – 15:30: 20K Cycling
                                                                                                                                                  the Games remain to:
                                                      like golf, athletics, swimming, biking,       sports, if you are healthy and want to                                                          tissue donation specialists is planned            • 10:00 – 15:30: Golf Practice
                                                      tennis and badminton                          participate in this friendly national         • Increase public awareness of organ              during the Games and information kiosks           • 17:00 – 19:00: Badminton
                                                                                                    event, the Games are for you!                   and tissue donation;                            will be set up throughout the Games venues.         and Swimming Practice
                                                    • the opportunity to visit charming
                                                                                                                                                                                                                                                      • 20:00 – 21:00: Soccer
                                                      Québec City, one of UNESCO’s World            For more information or to subscribe,         • Demonstrate that transplantation                Children Events — Entertainment for
                                                      Heritage cities                               visit            does save lives and recipients can              the kids is always a highlight of the Games       WEDNESDAY, 11TH
                                                                                                    before June 4th, 2010. And for more             return to a full and active life;               for many families. And this year is no            • All Day: Donor’s Celebration Day
                                                    • the pleasure to meet and share with other
                                                                                                    information about beautiful Québec City,                                                        exception... clowns, balloon sculptures,          • All Day: Kid’s Day
                                                      transplant recipients and their families                                                    • Give transplant recipients and their
                                                                                                    visit                                                                     mascots, and make-up artists will add a           • 8:00 – 14:30: Badminton
                                                                                                                                                    families the opportunity to meet organ
                                                    • the honour to be recognised for your                                                                                                          touch of colour to the festivities. Student       • 8:00 – 15:00: Golf
                                                                                                    We hope we will have the pleasure to            donor families and to share moments
                                                      courage and determination — memorable                                                                                                         volunteers and others with day-care or            • 15:00 – 16:00: Tennis Practice
                                                                                                    welcome you in Québec City in August!           with them and express their gratitude;
                                                      Opening and Closing Ceremonies where                                                                                                          playground supervision experience will            • 16:00 – 19:00: Senior, Senior+
                                                      life and achievement are in the foreground                                                  • Encourage recipients to improve                 be recruited to work with the children.             Swimming
                                                                                                                                                    their fitness and to lead an active,            Caricaturists will be present at the sites        • 20:00 – 21:00: Donor’s Evening
                                                                                                                                                    healthy lifestyle.                              for young and old alike to preserve

                                                    Moins de 100 jours avant la tenue des                                                         All organ transplant recipients — young
                                                                                                                                                                                                    the moments.                                      THuRSDAY, 12TH
                                                                                                                                                                                                                                                      • 8:00 – 15:30: Activities Day
                                                    5e Jeux canadiens des greffés!                                                                or old, competitive or recreational — can
                                                                                                                                                  be part of the Games. Sporting events
                                                                                                                                                                                                    Cultural Activities — Games participants
                                                                                                                                                                                                    will easily find entertainment in the Old
                                                                                                                                                                                                                                                      • 8:00 – 16:00: Tennis
                                                                                                                                                                                                                                                      • 8:00 – 16:00: Petanque
                                                                                                                                                  include tennis, swimming, track and field,        City of Quebec, the only fortified town in
    La ville de Québec se prépare à recevoir        • l’honneur d’être reçu à la hauteur de         Informez-vous et inscrivez-vous au www.                                                                                                           • 16:00 – 18:30: Kids, Juniors
                                                                                                                                                  bowling, golf, table tennis and lawn bowling      North America. Fine restaurants, open-air
    de nombreux athlètes canadiens, heureux           votre courage et de votre détermination avant le 4 juin                                                                                                          Swimming
                                                                                                                                                  to name just a few. Athletes compete in           terraces, street festivals and historic sites
    de célébrer la vie et la santé en participant     : des cérémonies d’ouverture et gala de       2010. Et pour plus d’information à propos                                                                                                         • 16:00 – 18:30: Athletics Practice
                                                                                                                                                  their own age category, and each can find         offer the “tourist” an endless variety of
    à des compétitions sportives où plaisir et        fermeture dont vous vous souviendrez          de la charmante ville de Québec, visitez                                                                                                          • 19:30 – 21:00: Softball
                                                                                                                                                  his/her own favourite events. The most            summer activities.
    esprit d’équipe seront à l’honneur. En effet,     longtemps, où la vie et les réussites         le
                                                                                                                                                  important thing is to be there and to have fun!                                                     FRIDAY, 13TH
    du 9 au 14 août, nous invitons tous les           de tous seront mis à l’avant-scène;                                                                                                           Evenings on the Town — Check out the
                                                                                                    Au plaisir de vous rencontrer à Québec                                                                                                            • 8:30 – 15:30: Ping Pong
    membres de Québec Transplant ainsi                                                                                                            The Canadian Transplant Association               exciting Quebec night life beginning with:
                                                    • la possibilité de sensibiliser les citoyens   du 9 au 14 août prochain!                                                                                                                         • 8:30 – 11:30: 1K, 3K, 5K Running
    que tous les bénéficiaires d’une greffe                                                                                                       (CTA) has partnered with MC2 Expérience
                                                      de la Vieille Capitale à l’importance                                                                                                         • An evening cruise on the St. Lawrence;            and Race Walking
    à vivre une expérience unique :                                                                                                               stratégique, a not-for-profit organization
                                                      du don d’organes et à l’impérativité                                                                                                                                                            • 15:30 – 19:30: Adults Swimming
                                                                                                                                                  specializing in event planning, to bring          • A walk along the beautiful river valley
    • la possibilité de vous démarquer                de signer leur carte.                                                                                                                                                                           • 19:30 – 20:30: Volleyball
                                                                                                                                                  you the Games. Lodging and most of                  in Levis. Stop at the Terrace for the
      et de vous amuser dans une dizaine
                                                    Des athlètes de tous les niveaux sont                                                         the competitive events will take place on           panoramic view of the ramparts and              SATuRDAY, 14TH
      de disciplines telles que le golf,
                                                    attendus à Québec : que vous soyez                                                            the University of Laval campus. All organ           Chateau Frontenac — fabulously                  • 8:30 – 15:00: Athletics
      l’athlétisme, la pétanque, la natation,
                                                    semi-professionnels ou amateurs de                                                            transplant recipients who are CTA members           illuminated at night;                           • 15:00 – 16:00: Closing Ceremony
      le vélo, la marche, les quilles, le tennis
                                                    sports, vous êtes les bienvenus dans                                                          are eligible to attend these Games. For more                                                        • 18:30 – 21:00: Closing Gala
      et le badminton;                                                                                                                                                                              • A champagne Hot Air Balloon ride with
                                                    les compétitions qui seront réparties                                                         information or to register for the Games, visit
                                                                                                                                                                                                      Montgolfieres St-Jean-Chrysostome.              SuNDAY, 15TH
    • l’opportunité de visiter la charmante         par catégorie d’âges. Même si vous                                                            the website
      ville de Québec, listée dans les villes       n’avez jamais pratiqué l’un des sports                                                                                                                                                            • Departure
                                                                                                                                                                                                    • A tour of Chateau Frontenac (in English/
                                                                                                                                                  GAMES EvENTS
      du patrimoine mondial de l’Unesco ;           listés; si vous êtes en bonne santé et                                                                                                            French). Champlain - St. Lawrence
                                                    désirez participer à cet événement                                                            Donor Appreciation Night — The Games                College students have also volunteered
    • le plaisir de rencontrer et d’échanger
                                                    fraternel d’envergure nationale,                                                              offer a unique opportunity for organ                for the Games to act as tour guides.
      avec des personnes greffées ainsi
                                                    les Jeux sont pour vous!                                                                      recipients to acknowledge and thank
      que leurs famille;
6                                                                                                                                                                                                                                                                                           7
                                                                                                                                      1200 kilometres of determination and hope:
    Olympic Relay Honours Organ Recipients                                                                                            Breathing Life into the Future
    This year Canada had the privilege         • Eddie McDonald, a lung recipient        an advocate for a very active lifestyle
    of hosting the XXI Winter Olympics           from Cape Breton, Nova Scotia           after transplantation. Since this            For a person with Cystic Fibrosis (CF)          the gruelling 1200 kilometre “GearUp4CF”               raising” Burger and Beer night on Friday,
    in beautiful British Columbia. As part                                               transplant he has climbed mountains          life includes a regular routine of therapy,     ride from Vancouver to the Rockies. They               June 4, 2010 at Mosquito Creek Bar
                                               • Gordon Denison, a kidney recipient
    of the traditional Olympic preparation,                                              in Antarctica and recently completed a       medication and clinic/hospital visits.          will join others on June 19, 2010 for 2 days           and Grill in North Vancouver.
                                                 from Ormstown, Quebec (see Issue
    12,000 individuals won the privilege                                                 trek to the North Pole. The 58 year-old      There is no known cure for CF, but there        of the 9-day trek from White Rock, British
                                                 #29 of The Living Proof )                                                                                                                                                                   For more information on the ride or to
    of being a torchbearer — to carry                                                    father of four said, “To be able to go       is real hope. 40 years ago, a child born        Columbia to Banff, Alberta.
                                                                                                                                                                                                                                             sponsor Margaret and Brian in their quest
    the ancient flame for part of its          • Nadine Ogonowski, a kidney              out into the cold and run with the           with CF rarely lived beyond four years.                                                                for a cure for CF go to
                                                                                                                                                                                      Margaret and Brian invite all their friends
    record-setting journey through the           recipient from Val-d’Or, Quebec         torch and feel good is just... a miracle.”   Now, thanks to advanced research and                                                                   or link to it from
                                                                                                                                                                                      and supporters to join them for a “FUN-
    northern-most reaches of Canada              (see Issue #29 of The Living Proof )                                                 comprehensive treatment programs,
                                                                                         67 year-old Eddie MacDonald could
    to the Maritimes and across the                                                                                                   the median age of survival in Canada has
                                               • John Byrne, a double lung recipient     barely walk the length of a hallway
    country back to Vancouver to light                                                                                                reached its highest point ever of 37 years.
                                                 from Calgary, Alberta                   until a life-saving lung transplant
    the Olympic cauldron in the Opening                                                                                               Still, that means that 50% of Canadians
                                                                                         two years ago. Eddie, who says he
    Ceremonies. Among those chosen             • Larry Worfolk (double lung), Sally                                                   with CF won’t reach the age of 37.
                                                                                         still gets goosebumps when he hears
    were a number of transplant recipients       McKinstry (kidney/pancreas), Len
                                                                                         the national anthem, considered it           These statistics are all too familiar to
    who understand more than most the            Gallant (kidney/pancreas), Amanda
                                                                                         a tremendous honour to carry the             Margaret Benson, Canadian Transplant
    meaning of giving and sharing. They          Poch (liver), and Carol Daechsel
                                                                                         Olympic flame. He says he “hopes             Association Vice-President, and her
    have been fortunate enough to receive        (donor family), all of British
                                                                                         his time with the torch gives hope to        husband Brian. On December 1, 1999
    a precious gift from a stranger and his/     Columbia, were among the paddlers
                                                                                         those waiting for organ transplants and      Margaret underwent life-saving double
    her family; the passing or sharing of        on the ‘Gift of Life’ Dragon Boat
                                                                                         inspires others to sign donor cards”.        lung transplant surgery. 40 years of battling
    another kind of light — a second             team February 12 when the six-boat
                                                                                                                                      Cystic Fibrosis and recurrent pneumonias
    chance at life. Among those recipients       flotilla accompanied the torch for      Before John Byrne underwent double
                                                                                                                                      had ravaged Margaret’s lungs and left her
    honoured to carry the torch were:            the final leg of its journey crossing   lung transplant in 2002, he could
                                                                                                                                      fighting for every breath. Now Margaret
                                                 the waters of False Creek from          barely walk from his home to his car
    • Kurt Penner, a double lung recipient                                                                                            is taking her new lungs “on the road”. She
                                                 Granville Island on its way to B.C.     and spent most of his time watching
      from Dorchester, Ontario                                                                                                        and Brian are cycling tandem as part of         Brian and Margaret Benson train for the GearUp4CF bicycle ride which starts on June 19.
                                                 Place for the Opening Ceremonies.       the seasons pass by his living room
    • Dale Shippam, a heart recipient                                                    window. But eight years later (almost
                                               Kurt Penner received his double lung
      from Thunder Bay, Ontario                                                          to the day), John could watch his
                                               transplant at Toronto General Hospital
                                                                                         breath on a cool January afternoon
                                               in 2002 and has been an advocate for
                                                                                         as he ran the Olympic torch down
                                               organ and tissue donation ever since.
                                               “The symbolism of passing something
                                                                                         the highway towards Banff, Alberta.          B.C. Man Celebrates                             That was the moment when Hanson first
                                                                                                                                                                                      realized he had a breathing problem, an
                                                                                                                                                                                                                                             Freestyle Judges Licences and was
                                                                                                                                                                                                                                             on the Judge’s Stand during National
                                                                                         His dream had come true to “represent
                                               as life-giving as the light of a torch
                                                                                         the greatest country in the world and
                                                                                                                                      10th Re-Birthday                                issue that would bring him to hospital                 competitions until he retired in 2005.
                                                                                                                                                                                      for testing and monitoring several times
                                               from one person to another isn’t lost                                                                                                                                                         Now, 10 years post-transplant,
                                                                                         to celebrate and bring awareness to the                                                      over the next 10 years until he was finally
                                               on me...” Penner says. “It’s a gift I                                                  In the spring of 1989, Dale Hanson, of
                                                                                         cause of organ donation”. I’m sure John’s                                                    referred to the Lung Transplant Program                Hanson celebrates his re-birthday
                                               unwrap every day of the year.” He                                                      Castlegar, British Columbia, was working
                                                                                         words aptly express the emotions of all      in an underground mine — the oldest one         at the University of Alberta Hospital.                 with family and friends. With
                                               has won several medals in Canadian
                                                                                         the transplant recipient torchbearers.       in the country. He was part of a 5-man          On February 5, 2000, Hanson underwent                  their support and encouragement,
                                               and World Transplant Games and says                                                                                                    surgery to replace one of his defective
                                                                                         “When I think about being a part of          team specially trained to rescue trapped                                                               he has written a book about his
                                               he applied to carry the torch through                                                                                                  lungs — a gift from a grieving family who
                                                                                         all the positive energy of the Olympics,     miners. During a mock-up practise rescue,                                                              experiences entitled “Aim High,”
                                               Woodstock “to continue to promote                                                                                                      found the strength to honour their loved
                                                                                         it seems like a miracle”.                    Hanson and another man had to crawl
                                                                                                                                                                                                                                             a story that focuses on the
                                               organ donation and improve lives                                                       through 30 meters of smoke-filled culvert       one’s wishes to be an organ donor. Six
                                               within his community and also to          The Canadian Transplant Association                                                          others received life-saving transplant                 value of goal-setting and the
                                                                                                                                      over rocky obstructions with full gear and
                                               honour his donor.”                        congratulates all the Olympic relay
                                                                                                                                      equipment to provide first aid and recovery     surgery thanks to that precious gift.                  importance of eternal optimism.
                                                                                         participants and especially those                                                                                                                   Hanson is grateful for the courage
                                                                                                                                      for a ‘missing’ miner. Struggling back          Hanson’s recovery was not without
                                               Thunder Bay resident and firefighter      individuals who shared not only the
                                                                                                                                      with the injured miner on a stretcher, they     complications, but he never looked back.               and compassion of the donor
                                               Dale Shippam received a heart             Olympic spirit but helped demonstrate
                                                                                                                                      became entangled in the rocks. The effort       By the end of that year Hanson had                     family and for the expertise of the
                                               transplant in 1999, and has since been    to the world that organ donation works.
                                                                                                                                      to clear the obstruction left Dale breathless   resumed his hobbies, dominated by golf                 hospital staff that returned him to
                                                                                                                                      and near panic but to stop would endanger       and downhill skiing. He would go on to                 his family, his friends, and his life.
                                                                                                                                      his partner and the victim.                     receive both Canadian and International

8                                                                                                                                                                                                                                                                                        9
     NOTDAW Events from across Canada                                                                                                                        Sealed With a Kiss
                                                                                                                                                             In February 2008, Larry Eldstrom, of           Kyla’s Mom, Joan, admits the kisses
                                                                                                                                                             Assiniboia, Saskatchewan, underwent a          got a little “amorous” by the end of the
                                                     A Special Flag and a Young Miracle Boy Highlight                                                        bilateral lung transplant for pulmonary        evening, but what a great way to “give
                                                                                                                                                             fibrosis. Eighteen months later Larry          something back!” Kyla and Matthijs
                                                     NOTDAW in New Brunswick
                                                                                                                                                             was well and fit, and proudly walking his      raised the awareness of organ donation
                                                     Written by Mark Black, Regional Director Atlantic Provinces                                             daughter Kyla down the aisle. Little did       with their guests, honoured her father for
                                                                                                                                                             he know the impact his transplant was          his courageous and successful battle with
                                                     April 20 – 26, 2010, was a special week            and playing with his friends, Braden
                                                                                                                                                             about to have on the celebrations. Kyla and    lung disease, and supported an organization
                                                     in Moncton, New Brunswick. On Monday               was on a transplant waiting list in Toronto
                                                                                                                                                             her new husband, Matthijs, had plans to        that had come to be so important to
                                                     a flag-raising ceremony was held at City           hundreds of kilometres from home.
                                                                                                                                                             help raise awareness for the thousands         Larry and his family. And, of course, the
                                                     Hall. The flag, bearing a giant green ribbon       Thankfully, in September he received his
                                                     and the message “Organ Donation Works,”            life-saving gift of a double lung transplant
                                                                                                                                                             of Canadians not as lucky as her Dad; those    awareness spread beyond the guests as they
                                                     was unfurled in front of city hall and proudly     and, on Sunday, April 25, crossed the finish         still waiting for an organ donation to save    shared the unique and entertaining idea
                                                     flew there all week as a symbol of hope            line of the 5K. That alone was an amazing            their lives. Kyla and Matthijs had only one    with family and friends after the wedding.
                                                     to everyone still waiting on transplant lists      feat, but even better was how he looked              rule at their reception. “No glass-clinking    I guess it’s true... one person CAN make
     Bigger and Better                               and a celebration for those whose lives            just like his younger brother running                allowed. If you want to see us kiss, it will   a difference... well, two people anyway.
                                                     have been saved by organ donation.                 beside him. Braden looked healthy                    cost you a minimum $5.00 donation to           A little creativity and some good lip balm
     CTA - Alberta Region was proud to host
                                                                                                        and happy, finally just a normal kid.                the Canadian Transplant Association.”          can go a long way. Congratulations, Kyla
     its best-ever Faculty Club Dinner and           With the flag flying overhead, the 6th
     Silent Auction on April 15, 2010, to kick-off
                                                                                                                                                             Apparently, the larger the donation was,       and Matthijs!! And... THANK YOU!
                                                     Annual Transplant Trot, a 5K walk/10K              Every NOTDAW is a reminder to us all
     local activities for National Organ and         run, was held — our most successful yet            of the work still to be done to help the             the longer the kiss would be.
     Tissue Donation Awareness Week                  with more than 150 participants joining            more than 4,000 Canadians still waiting
     (NOTDAW). The dinner was attended by            in. Perhaps the highlight of the event             for transplants. But this year, the week
     more than 150 transplant physicians, staff,     was watching one young man cross the               was also a reminder to all of us here in
     recipients, sponsors and their families and     finish line with his brother and parents.          New Brunswick that organ donation
     friends. Dr. John Mullen, Director of the                                                          really does work.
     Heart Transplant Program at the University
                                                     Last year Braden Gendron, age 11, couldn’t                                                                                                               Internet to others struggling with          Banff World Television “Rockie”
     of Alberta Hospital, provided the keynote
                                                     have run this race. A young boy, who               Keep running Braden. We’ll see you                                                                    CF. Her on-line site was an immediate       Awards in June 2010.
                                                     should have been at school having fun              at the Games in August!                                                                               hit and would soon attract hundreds
     address and entertained and inspired
                                                                                                                                                                                                                                                          As the documentary chronicles,
     guests with his personal and professional                                                                                                                                                                of thousands of readers. The challenges
                                                                                                                                                                                                                                                          Eva did receive the precious gift of a
     stories of “Dreams, Courage, Heroes and                                                                                                                                                                  of living with CF made it impossible
                                                                                                                                                                                                                                                          double lung transplant in 2007 but her
     Hope.” Representatives from the Human
                                                                                                        Celebrating NOTDAW                                                                                    for Eva to realize her dream of
                                                                                                                                                                                                                                                          celebration would be short-lived. Less
     Organ Procurement and Exchange (HOPE)                                                                                                                                                                    becoming an actor but friends and
     program and the Kidney Foundation                                                                  in Toronto                                                                                            family convinced her that she had
                                                                                                                                                                                                                                                          than two years later, Eva would find
     relaxed and enjoyed the evening before                                                                                                                                                                                                               herself once again on the waiting list
                                                                                                        Members of the Toronto transplant                                                                     an important story to tell. Created
     embarking on their own busy NOTDAW                                                                                                                                                                                                                   as her new lungs succumbed to chronic
                                                                                                        community rallied at Yonge and Dundas                                                                 in partnership with Force Four
     events. HOPE launched their brand new                                                              square on April 21, 2010, to mark National
                                                                                                                                                                   Eva Dien Brine Markvoort (1984-2010)                                                   rejection. Undaunted, she continued
                                                                                                                                                                                                              Entertainment and CBC, the
     marketing campaign this year and both                                                              Organ and Tissue Donation Awareness                                                                                                               to raise awareness for transplantation
                                                                                                                                                                                                              documentary named for her online
     groups had interactive awareness-raising                                                           Week. The crowd was entertained by                                                                                                                through her art, poetry, music and the
                                                                                                                                                                                                              moniker “65 Red Roses,” would
     displays throughout the Edmonton area
     and surrounding rural communities.
                                                                                                        Alex and her Alleycats, a jazz combo
                                                                                                        led by double lung recipient Alex
                                                                                                                                                                   “I Love You All...                         follow Eva’s struggle and her long
                                                                                                                                                                                                                                                          internet. Eva lived passionately, with
                                                                                                                                                                                                                                                          force, colour, and purpose, enriching
     HOPE’s advertising program for 2010
     targets a ‘younger’ audience and rides
                                                                                                        Pangman. Toronto Mayor David Miller                        Love... Love... Love”                      wait for a double lung transplant.
                                                                                                                                                                                                                                                          the lives of thousands of people in both
                                                                                                        demonstrated his support for organ                                                                    The touching and uplifting documentary      her personal and online communities.
     the dual-purpose “green wave” of organ          Members of the Toronto transplant community form   donation by joining the crowd in donning                   On Saturday, March 27, 2010,               would go on to win the ‘Audience            Our thoughts are with Eva’s parents,
     donation and environmental awareness.           a Living Green Ribbon to celebrate NOTDAW.         a green poncho and forming a Living                        the Cystic Fibrosis and Transplant         Award for Best Documentary’ at the          Janet and Bill, siblings Annie and
     Printed materials feature youthful faces                                                           Green Ribbon. Several other Living                         communities lost a dedicated and           Omaha Film Festival and top honours         Hunter, and all her family and friends.
     asking the question, “Recycle.. What?” and                                                         Green Ribbons were assembled by                            passionate advocate when 25-year           at the Vancouver Film Festival, Hot         She will be desperately missed but
     go on to explain how we can all ‘recycle’                                                          volunteers throughout Ontario.                             old Eva Markvoort finally lost her         Docs in Toronto, and the Arizona            her legacy will continue through
     ourselves by becoming organ donors and
     giving life to others. CTA – Alberta wishes                                                        Sandra Holdsworth, liver recipient of Gravenhurst,         battle with cystic fibrosis (CF).          International Film Festival. It’s           all her “extended” family and their
     all other regions every success with their                                                         and Amy Holdorf, kidney recipient of Toronto,                                                         now competing for ‘Best Social and          ongoing commitment to organ
                                                                                                                                                                   Several years ago Eva decided to share
     own awareness activities and asks you                                                              pose with Cardiac Carla, the mascot for the                                                           Humanitarian Documentary’ at the            donation awareness.
                                                                                                                                                                   her story and reach out through the
     to ‘Save the Date’ September 11, 2010, for                                                awareness campaign sponsored
     our next Family Fun Day and Barbeque.                                                              by the Trillium Gift of Life Network.

10                                                                                                                                                                                                                                                                                                   11
                             Thank you
      for supporting the Canadian Transplant Association

Canadian Transplant Association
c/o N. Folkins
11649 St. Albert Trail NW
Edmonton, AB T5M 3L6

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