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                            DRAFT MINUTES
                     Berlin, 23 February 2007


Thérèse Kempeneers, Chair
Luisa Fazzi Bosisio
Pekka Tuominen
Rodolfo Cattani
Yannis Vardakastanis

Jacqui Christy James

In attendance
Carlotta Besozzi, EDF Director
Valérie Asselberghs, EDF information and membership officer

   1.     Introduction and welcome

   Thérèse Kempeneers welcomed the members of the Membership and
   Credentials Committee in Berlin. Apologies were received from Jacki
   Christy James.

   2.     Adoption of the agenda

The agenda was adopted with no further comments. The minutes of the last
meeting had been adopted through e-mail consultation.

   3.     Update on the situation with the Italian National Councils, CND
          and CI-DUE (presentation by Luisa Bosisio Fazzi)

Luisa Bosisio Fazzi updated the members of the committee on the progress of
the situation between both Italian National Councils, CND and CI-DUE. She
first of all expressed her embarrassment in making this presentation due to her
direct involvement (as CND President) in the situation and to find herself in a
situation of conflict of interest. She would have preferred for a third party to
make the presentation.
She reminded about the end of presentation during the meeting of October
2006 when she said that “CND was asked to write a proposal to be submitted to


CI.DUE. The proposal was written and a copy is in your hands. At the moment
the two Boards are evaluating the proposal and in the following days we will
have their answers”.
The last sentence, pronounced by CND, was not entirely correct because the
proposal sent to CIDUE had been just approved by the CND Board and the
members of the Commission appointed to follow the unification process on
behalf of CND. The situation was that CND was awaiting the answer of CIDUE.
She summarized the actions that took place after 22 June 2006, date of the
meeting held in Rome between CND and CIDUE.

   1. 22.06.2006 : meeting between CND and CI.DUE
   2. 07.07.2006: CIDUE sent to CND the report of the 22 June meeting
      approved by the two National Councils during the meeting
   3. 17.07.2006 : CND sent the signed report and the unification proposal to
      CI.DUE after the CND Board approved the document.
   4. 01.08.2006 : CIDUE answered saying that on 13.09.06 CIDUE's Board
      would discuss the CND proposal and suggested two dates after 13.09 for
      a second meeting between CIDUE and CND
   5. 02.08.2006 : CND answered saying that the two dates were impossible
      because all board members were engaged in other meetings. An
      alternative date was proposed. No answer of any kind was received
      from CIDUE.
   6. 06.02.2007 : CND sent a reminder message to CIDUE asking for their
      feedback on the acceptance or non-acceptance of the CND proposal.

CND was aware that their reminder should have been sent earlier.
Nevertheless, this delay was not due to their unwillingness to foster the
unification process proposed to CIDUE, but due to other CND priority
commitments, in particular for the EDF campaigns, the last UN Ad Hoc
Committee meeting in New York, as well as to the CND activities for the end
2006 and beginning 2007.

EDF Director, Carlotta Besozzi, added that EDF tried to contact both CND and
CIDUE in writing and by telephone with regard to feedback on the progress of
the situation, but no feedback was received.

The Chair of the Membership and Credentials Committee, Thérèse
Kempeneers, informed that it was now the end of the two years transitional
period and that a decision needed to be taken and a recommendation made to
the Board.

Rodolfo Cattani informed that two weeks ago CIDUE elected a new president
by which Ida Collu was replaced by Tommaso Daniele.

EDF President, Yannis Vardakastanis, suggested to take the opportunity of the
meetings in Berlin to organize a meeting between both the CIDUE and CND


Presidents with the Membership and Credentials Committee in order to review
the situation.

EDF Treasurer, Pekka Tuominen, refered to Article 30 of EDF Statutes and
interpreted that the Membership and Credentials Committee had to revise the
situation and take a decision whether or not to prolong the provisional period.
Yannis Vardakatanis agreed with this interpretation.

EDF Director, Carlotta Besozzi, stressed the importance to comply with
provisions in the constitution and referred to the ongoing legal action. As,
according to the statutory provisions, the provisional period could not be
extended as such, she proposed to the Membership and Credentials Committee
to review the situation and to make a recommendation to the Board.

Luisa Bosisio Fazzi, in her capacity of member of the Membership and
Credentials Committee, agreed with EDF President and reminded about the
positive meetings which took place between CND and CIDUE. She said it was
the end of a process in which progress had been made.

Thérèse Kempeneers, Chair of the Membership and Credentials Committee,
proposed not to take any final decision until the results of the meeting between
the Committee and the respective CND and CIDUE Presidents. A meeting
would take place at 18.30 on the same day (23 February 2007).

   4.     Update on the situation with the Hungarian Disability Forum

EDF Director, Carlotta Besozzi, summarized the situation explaining that when
the organization was adopted as associate member they were recommended to
change their name “Hungarian Disability Forum” in view to avoid confusion with
the Hungarian National Council, EDF full member. This change of name had
remained unanswered so far. She continued explaining that in Summer 2006
EDF received an e-mail from an individual person participating in the European
Voluntary Programme in Hungary in which he set out criticism with regard to
some mismanagement within the Hungary Disability Forum mainly to the profit
of the President rather than to the benefit of the improvement of the lives of
persons with disabilities.

Erzebet Szöllösi, representative of the Hungarian National Council, was invited
to present the views of the national council on the situation. She informed that
the National Council had not been able to gather any relevant information from
the Hungarian blind organization. The city where the organization was located
had also been contacted and it seemed that the organization was not very well
known in the city. Moreover, the national body of the European voluntary
programme visited the organization and also knew about the complaint. They
explained that the complaining volunteer only met 6 disabled persons in one


year which did not seem to be much for an organization of disabled persons. In
addition, he informed that training courses were organized for disabled persons
but the public did not have any disability. Consequently, the centre responsible
for volunteer programmes suspended the programme.

EDF President, Yannis Vardakastanis, thanked Erzebet Szöllösi for enquiring
about the situation and stressed two important issues to be considered. First,
the EDF sensitivity and objective assessment when receiving such individual
complaints. Secondly, he called for a careful EDF procedure when accepting
associate members. In case a national council has a politically related problem
with the associate member, then the associate member could be excluded.
However, if the problems are about organizational management, EDF should be
careful not interfere in internal affairs of organisations.

Erzebet Szöllösi further informed that the Hungarian Disability Forum had been
proposed to become a member of the National Council but did not show up to
the National Council meeting. She explained that the National Council did not
know more about their activities and was therefore not in a position to judge
them. She agreed that the danger was that they presented themselves as an
EDF member in view to benefit from project funding.

EDF President stressed that it was the role of the Hungarian National Council to
avoid that an organization within their country used EDF credibility for their
private benefit as this could jeopardize the work and the role of the National
Council in Hungary.

Rodolfo Cattani stressed that it was a very political issue and agreed it was the
responsibility of the National Council.

The membership and credentials committee agreed that it was the responsibility
of the Hungarian National Council to follow up on the situation and to make a
recommendation to the Membership and Credentials Committee about further
steps to be taken, including the exclusion of the organization from EDF.

   5.     Full membership status : Bulgarian and Romanian national
          disability councils

Thérèse Kempeneers, Chair of the Membership and Credentials Committee,
informed that since the joining of the Bulgaria and Romania to the EU in
January 2007, the national councils of these countries, so far observer
members, were in a position to become full EDF members

On the basis of information received such as an updated membership list and
statutes, the membership and credentials committee agreed to make a
recommendation to the Board for both national councils to become full


members with the request to extent their membership in view to cover more
disability groups.

   6.     New membership applications (DOC-B-07-02-11A) and proposal
          for exclusion and resignation of EDF members (DOC-B-07-02-

6.1. Resignation of EDF members
Thérèse Kempeneers informed about the request for resignation of two EDF
members : OIFE, full member, and Delta Centre, Associate member.

Carlotta Besozzi, EDF Director, explained that after the categorization process
in early 2005, OIFE did not meet the criteria for representation in half of the
Member States. A transitionional period had therefore been allocated after
which they informed EDF that could not extent their membership due to the rare
condition they represented. Their reasons for resignation was not only a
financial issue but also a divergence between OIFE and EDF priorities.

Luisa Bosisio Fazzi proposed the creation of an EDF rare disease group.
Rodolfo Cattani agreed with this proposal and reminded that this had already
been proposed.

EDF President, Yannis Vardakastanis, stressed that EDF constitution should
indeed be revised in order to adapt to special situations of organisations
representing rare diseases. As soon as this revision was in place, rare diseases
organisations should be proposed to rejoin EDF. At the same time, he
highlighted that in terms of priorities, EDF was not established to align its
priorities to all organisations. He mentioned that the Chronic Illness committee
also addressed rare diseases.

The Membership and Credentials Committee accepted the resignation of OIFE
and the Delta Centre.

6.2. Exclusion of EDF members

EDF Director, Carlotta Besozzi, apologized for some mistakes in the list
proposing the exclusion of EDF members.

She informed that the national commission of disabled people in Malta had paid
their membership fees and there was thus no reason for exclusion.

After a contact with EDF secretariat, the Association of students with disabilities
and Euro-Ataxia promised to pay the fees. She proposed to wait for the
promised payment and review the situation at the next Board meeting.

Whereas the Forum of people with disabilities in Ireland and Wroclaw Council
had to be confirmed for exclusion.


6.3. New membership applications

Application for associate membership
Thérèse Kempeneers informed about new membership applications for two
associate members :
    FfdN, Swedish Thalidomide Society – application supported by HSO
    Leonard Cheshire Foundation UK – Service provider foundation
      representing services for 21 000 disabled people in the UK. Thérèse
      Kempeneers informed that two opposite advices were given. One from
      the UK Coalition which did recommend EDF not to accept the
      association mainly as they would be against the community living
      approach and deinstitutionalization, whereas RNIB (Colin Low) was in
      favour of the application as the Foundation was a very large and
      respected organization for disabled persons in the UK and would have
      much to contribute and to gain from EDF associate membership.

Carlotta Besozzi informed that she had met at various occasions the Leonard
Cheshire Foundation and that they are a member of IDDC.

EDF President, Yannis Vardakastanis, stressed some problematic issues in the
UK with regard to the development of the national council and this should be
addressed in a broader scope. He therefore proposed to organise a visit to the
UK national council in view to clarify the situation..

Decision :
The membership and credentials Committee agreed to recommend to accept
the application of the Swedish Thalidomide Society.
Whereas the application of the Leonard Cheshire Council would be revisited by
the Membership and Credentials Committee at the next Board meeting.

Applications of individual members
Two applications for individual members : Helen Barnes and André Lumbunda.

The membership and credentials Committee agreed to recommend to accept
the application of Helen Barnes (occupational therapist). However, it was
decided to postpone the recommendation for Mr André Lumbunda in view to
clarify the situation as it was not clear whether he was applying as an individual
or for his organization.

Discussion about the revision of EDF Constitution
Further to the discussion of the Membership and Credentials Committee with
regard to the acceptance of associate and individual members, the Membership
and Credentials Committee proposed to start the revision process of the


EDF President, Yannis Vardakastanis, suggested that EDF secretariat should
make a collection of outstanding issues needing to be corrected/changed for the
internal rules and the constitution. He stressed that it was not for the
Membership and Credentials Committee to decide but it was the responsibility
of the Executive Committee. He suggested to address the issue in the next
meeting of the Executive Committee in view to examine when and how to start
the revision process.

Luisa Bosisio Fazzi agreed that it was the right moment to decide on a protocol
to the use of the name of EDF. She stressed that rights and obligations had to
be respected by EDF members.

Rodolfo Cattani stressed that the constitution was used and consulted to solve
problems and to help EDF to remain objective in any decision. In the case of the
individual applications, he raised the issue that the constitution did not have any
provisions preventing individuals to become EDF members.

EDF Director, Carlotta Besozzi, stressed that in her capacity of Director, she
was responsible to consider whether the statutes needed a revision process.
She highlighted that it was a revision process important time , human and
financial resources investment. She explained that many issues could still be
solved with the current statutes and internal rules. As there was no hierarchy
between both tools, she recommended to make list of amendments to the
internal rules only in order to avoid a total revision process. She stressed that
since its establishment, EDF had already fully revised its statutes twice.

EDF Treasurer, Pekka Tuominen, also stressed the responsibility of the finance
committee to decide about the future of individual members according to the
financial resources and the burden of work created by individual members to
EDF secretariat.

EDF President concluded that the issue would be discussed in the next
executive committee meeting in view to decide carefully on the process and the

   7.     Any other business

   8.     Date for next meeting

Lisbon, 6 July 2007


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