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									                                                                                                             Spring 2005




                                    A Publication of the Southeastern Minnesota Center for Independent Living
                                                and SEMCIL United Home Healthcare Choices, Inc.


                                                    PCA CHOICE
                                                  Is it right for you?
              EMCIL is now registered with the Minnesota Health Care Programs as a PCA Choice provider in addition
              to its existing enrollment as a traditional Personal Care Provider Organization (PCPO).

      PCA Choice differs from a traditional Personal Care Assistance Program in that the consumer is responsible
      for the human resources and scheduling functions usually done by traditional PCA programs. In other
      words, the consumer or responsible party will be responsible for all functions related to staffing:
                    • Recruitment, hiring and dismissal
                    • Training, supervision and monitoring
                    • Scheduling and evaluation

      The consumer or responsible party also must obtain doctor’s orders for PCA services and develop the care
      plan.

      SEMCIL, as the PCA Choice provider, acts as the fiscal intermediary and will bill for PCA services, apply for
      criminal background checks, pay and withhold taxes for PCA staff, maintain the required liability insurance
      and the written agreements.

      SEMCIL has been providing PCA services in southeastern Minnesota since 1988 and is pleased to be able to
      offer both the traditional PCA and consumer-directed options. Our mission is to assist persons with disabili-
      ties to live independently and become productive community members.

                                         For more information on PCA Services call Priscilla Dudley RN, SEMCIL PCA Program
Inside this issue:
                                         Manager at 507-285-3923.
Disability Linkage Line             2
                                               SEMCIL will be offering informational meetings regarding PCA Choice at the
Pre-Employment                      4                                    following locations:
People First Legislation &          5               Rochester                     Red Wing                     Winona
Art & Ability Call for Artists               Tuesday, June 14, 2005       Wednesday, June 22, 2005     Thursday, June 16, 2005
                                             Session A 1:00 - 2:00 p.m.   7:00 - 8:00 p.m.             1:00 - 2:00 p.m.
Annual Meeting and                  6
                                             Session B 7:00 - 8:00 p.m.   Thursday, June 23, 2005
Employee Recognition
                                                                          1:00 - 2:00 p.m.
Peer Mentor/Senior Comp.            8

Message from Medicaid &             9        Rochester office             Red Wing office              Winona office
                                             2720 N Broadway              217 Plum Street, Suite 120   1790 W Broadway
Arthritis Advocacy Summit
                                             Conference Room 1            Armory Center                Wapasa Apartments
Staff Spotlight: Priscilla Dudley   10                                    Main Conference Room         Main Conference Room

ASI—Bostrom Terrace                 11
         CENTERLINE


Disability Linkage Line:
Creating Easier Access to Disability Related Services
Looking for help for yourself or a family member?
                                                         There is no wrong call to Disability Linkage Line.
Not sure where to call? Those needing disability re-
                                                         Common requests include information on and refer-
lated information and referrals can get connected to
                                                         rals to disability benefits programs, home accessibility
community services and supports by calling one,
                                                         and modifications, assistive technology, personal as-
statewide, toll free number: 1-866-333-2466.
                                                         sistance services, transition services, finding accessi-
Callers will be provided in-depth information about      ble housing, employment, disability rights, legal assis-
disability resources, community options and, if neces- tance and social/recreation needs.
sary, assistance in accessing community services. Af- The DLL is also an excellent resource for service pro-
ter initial referrals are given, callers will be offered viders with high caseloads who may not have the
follow-up to make sure their needs were met and          time needed to search out possible services and con-
that they successfully connected to the service of       tacts for their consumers.
their choice. Those who prefer to look for resources
on-line can also go to www.MinnesotaHelp.info.           Consumers have shared that they are looking for help
                                                         or information to make good decisions, but are often
The Southeastern Minnesota Center for Inde-              bounced around to many different sources.
pendent Living (SEMCIL) was awarded a grant
from Minnesota Department of Human Services              As a result, they receive conflicting information or
(DHS) to provide DLL services to the Southern and        arrive at a dead end with their questions unan-
Central Regions of Minnesota (51 counties). The          swered. It is sometimes difficult for consumers and
Metropolitan Center for Independent Living (MCIL)        their families to know what questions to ask. The
provides coverage for the Metro and Northern Re-         Disability Linkage Line helps eliminate these frustra-
gions. The Disability Linkage Line staff in Rochester    tions. The goal of the Disability Linkage Line is to in-
(Southern Region) includes Margie Wherritt, CIRS,        sure callers are getting connected to the services that
Lead DLL Coordinator, and Larry More, DLL Specialist. are right and appropriate for their needs. Informa-
Heather Weinhandl, Central Region DLL Coordinator, tion is power and an informed person has the power
and Dan Wain, Central Region DLL Specialist are          to make change in his/her life.
based in the DLL Alexandria office.
The Disability Linkage Line is part of a larger, inter-
connected information, referral, and assistance sys-        Disability Linkage Line – 1-866-333-2466
tem. DLL, in concert with the Senior Linkage Line, the      Service available Monday through Friday
on-line database MinnesotaHelp.info and other com-
                                                                       8:00 a.m. – 4:30 p.m.
munity information services, works to assure people
receive up-to-date, consistent, reliable information.      Call this valuable service and let DLL help
                                                                               you!
How does the Disability Linkage Line work?
Minnesotans needing help and information call the
DLL. Resource specialists answer the call and spend
time helping the consumer identify the full array of
their resource needs. In response to this “needs dis-
covery”, the caller is provided with in-depth informa-
tion about area community options and assistance in
accessing community services.

Page 2
         CENTERLINE
                  From The Executive Director
               February 2005 marked my third year with SEMCIL and SEMCIL United
               Home Healthcare Choices. As I look back over the past 3 years, I am
               delighted with all we have accomplished. We are healthy and diversified
               organizations. We are responsive to the people we serve. We have dedi-
               cated employees.                                                         2005 Board of Directors
               In this past year, the single most important achievement is the sense of
               “community” we have developed internally, connecting staff of both agen- Grant Kirgis, President
               cies to each other. This sense of community has expanded the possibili-
                                                                                            Certified Public
               ties of care and services for our consumers and the communities we
               serve. Staff routinely go beyond their job descriptions. Department and        Accountant
program teams routinely work together to provide the services consumers or family mem-   Brian Koch, Treasurer
bers may need.                                                                           Investment Manager
                                                                                                        Wells Fargo
We meet needs in a way that is unique for Centers for Independent Living or Home Health
Care agencies. For example, clients receiving skilled nursing services may have a ramp              Julie Assef, Secretary
built through the Independent Living Program or consumers attending educational work-                 Seasons Hospice
shops may also have their medication monitored in their homes. I believe we will reach
our long-range goal of becoming a “one-stop shop” for everyone who seeks our services.
                                                                                                      Tracy Schramm,
Reaching organizational goals requires the commitment of all staff. It also takes effective            Past President
leadership. I extend my thanks and gratitude                                                                 IBM
to the Board of Directors and to the team of
managers I have the honor of working with                                                          Jim Anderson, Member
every day. Both organizations are very fortu-                                                     Retired Business Owner
nate to have their expertise, their commit-
ment and their leadership.
                                                                                                   James Anderl, Member
SEMCIL and SEMCIL UHHC managers are                                                                          IBM
shown in the picture accompanying this arti-
                                                                                                   Mark Walter, Member
cle: (back row, left to right) Sharlyn Asfahl,
Andy Arends, Mei Liu, (front row, left to right)                                                         Mayo Clinic
Pixie Dudley and Laurie Brownell.
                                                                                                   Mary Gorfine, Member
Maynard Bostrom honored by Accessible Space, Inc (ASI)                                               Olmsted Co. Youth
                                                                                                        Commission
ASI has opened Bostrom Terrace, a 15 unit wheelchair accessible apartment building in Roch-
                                                                                                     Brad Haugen, Member
ester, MN. Bostrom Terrace is named after Maynard Bostrom, a long time consumer of SEMCIL
and supporter of ASI.                                                                                  Director of Nursing

Born in Moorhead, MN Maynard relocated with his family to Rochester in 1946. After school he
worked various jobs in Rochester until moving to Dallas, TX in 1956. On a trip from Texas to
                                                                                                     Becky Noble, Member
Mexico, on Thanksgiving Day in 1958, Maynard was involved in a motor vehicle accident and
suffered a spinal cord injury. After many months of hospitalization Maynard was transferred to                Sales
St. Mary’s hospital in Rochester where he continued therapy and rehabilitation.
Maynard was the first resident of an accessible house on Chicago Ave, in Minneapolis, that was funded in part by ASI
and began serving on their Board of Directors in 1980. He accredits ASI’s success on it’s promotion of independence.
He states that ASI encourages independence, regardless how each individual interprets it.
Maynard is very thankful and proud of this honor that has been bestowed upon him. He extends his thanks to all of those
who helped make Bostrom Terrace possible, including staff at SEMCIL.

For more on Bostrom Terrace, see our article on page 11.
 Centerline                                                                                         Page 3
         CENTERLINE




        he pre-employment program helps individuals with a disability develop work readiness skills that may
      allow for competitive employment opportunities. The program consists of a two (2) hour session per
      week for a seven (7) week period. Most of the program is spent in group activities, although partici-
      pants may also work one on one with the class instructor.
  Session topics include:
  •      The effect of work on disability benefits: Participants learn how to analyze how work related in-
         come could possibly impact the benefits they receive such as Social Security.
  •      Information on work incentives programs: Programs such as the Medical Assistance for Em-
         ployed Persons with Disabilities (MAEPD) and Plan for Achieving Self-Support (PASS), Ticket to
         Work and other potential resources are presented to the class.
  •      The benefits of work: This class discusses the value of having more income, utilizing skills and tal-
         ents, increased self-esteem and socialization opportunities.
  •      Enhancement of work readiness skills: Participants learn how to design a resume and
  •      cover letter, develop effective interview techniques, improve work etiquette skills and how to appropri-
         ately dress for a variety of positions.
  •      Value of resources and volunteer opportunities: Classes emphasize resources such as job
         search tools on the computer, resume templates and the value that volunteer experience brings to a
         resume. Program facilitator will help place program participants in the volunteer opportunity of their
         choice.

  Program participants are expected to attend all seven (7) sessions, complete all take home assignments,
  and respect other members of the group. Following the successful completion of course work, partici-
  pants will advance to a volunteer readiness evaluation with the expectation of volunteer placement in the
  community.

  Since January 2004, six consumers have completed the pre-employment program; two of the six have
  gone on to competitive employment in the community.
                      In Olmsted County, interested persons should contact Jeff Vert at
                                              507-285-3932.

                    In Goodhue or Dodge County, interested persons should
                         contact Lisa Harrison-Hadler at 651-388-0466




                          •   In 2004, SEMCIL averaged 872 hours of PCA Service a day!
      Did You             •   The first issue of CENTERLINE was released in March 1982.
      know?
                          •   SEMCIL was originally known as the Rochester Center for Independent Living.


Page 4
              CENTERLINE


“People First” Legislation Passed                            Art & Ability: Celebrating Artists with
in Minnesota House and Senate                                              Disabilities
Sen. Sheila Kiscaden (IP-Rochester) and Rep. Joe           Call for Artists
Opatz (DFL-St. Cloud) have introduced legislation to            In celebration of National Rehabilitation Awareness Week,
modernize language regarding persons with disabili-        the Mayo Clinic Department of Physical Medicine and Rehabili-
ties in state statutes. Parents of children with dis-      tation with The Mayo Clinic Center for Humanities in Medicine
abilities, self-advocates, and professionals in the dis-   is sponsoring an art exhibit to be held September 17-23, 2005 at
abilities field support this bill.                         Mayo Clinic, Rochester, Minnesota. A call is being issued to
                                                           invite both professional and amateur visual artists with disabili-
Rep. Opatz said the motivation behind the bill is to       ties of any kind to submit photographs of artwork to be consid-
recognize the person before their disability.              ered for this week long exhibit.
“One out of five Americans experience disability at            Paintings, drawings, photography and three dimensional
some point in their life,” said Rep. Opatz. “That may      works will be considered for the exhibit to be held in two Mayo
be due to injury or illness or the aging process. Re-      Clinic locations: Charlton Building and St Mary’s Hospital.
gardless, it is important to recognize that a person’s     The exhibit will be open to all patients, employees, and visitors
disability is not who they are, but simply a character-    to Mayo Clinic for viewing.
istic that describes them. That is why we are focused
on putting the person before their disability.”            Submission Guidelines
                                                           Visual artist must include the following information by the sub-
The bill removes outdated terminology such as
                                                           mission deadline date of June 1, 2005:
“handicaps” and “mentally retarded” and replaces it
with more appropriate references to developmental          • Completed Art & Ability entry form.
and other disabilities and refers to people first where    • An artist’s statement about the work(s).
appropriate—such as children with disabilities or          • A short biographical narrative regarding art background and
people with developmental disabilities.                        experience.
                                                           • One photograph (no larger than 8½ X 11) for each artwork
“Outdated language really can have negative conno-
                                                               to be considered. With each photograph please include
tations and be a source of stigma for people with dis-
                                                               name, contact information, title of work, medium, and
abilities and their families,” Sen. Kiscaden said. “The
                                                               frame size if applicable. Entries are limited to three. Digital
bill is about treating people with respect and dignity.
                                                               photographs can be emailed to Loretta Verbout at radars-
Changing language in statute can help take a step to
                                                               ports@aol.com
empower people by focusing on their abilities and
improving their sense of independence. It’s impor-         • A self addressed stamped envelope for the return of the
tant to focus on a person’s capabilities, not to label         photo.
the whole individual.”                                     Awards
                                                           Artwork will be judged by a jury in the following categories:
Rep. Opatz thanked Cara Ruff, President of the Min-
nesota Association of Centers for Independent Living       • Graphic (includes printmaking, charcoal, ink, computer de-
and Disability Awareness Task Force Chairperson,              sign, pastels, colored pencils), • Watercolor, • Oils and
for bringing the issue to his attention.                      Acrylics, • Photography (includes black & white and color),
                                                              • Sculpture (includes relief, ceramics, woodcarving, metal,
“I heard Cara say that using appropriate language             clay and stone), • Mixed Media
and terminology is the first step in changing attitudes       For additional information and Art & Ability entry form, Contact—
to respect and value people,” said Rep. Opatz. “This                            Loretta M. Verbout
is a simple step the state can make in the right direc-
                                                              RADAR Executive Director Art & Ability Community Liaison
tion. I hope that everyone can get behind this legis-
                                                                   539 N Broadway, #117 • Rochester, MN 55906
lation and recognize that people with disabilities are
                                                                   Phone: (507) 280-6995 • Radarsports@aol.com
unique individuals, first and foremost.”

 Centerline
                                                                                                             Page 5
         CENTERLINE




SEMCIL and SEMCIL United Home Healthcare Choices Annual Meeting and Employee Recognition Dinner
was held on Wednesday, March 23, 2005 at the Rochester Golf and Country Club. This event honors em-
ployees who have worked 5, 10, 15, and 20 years and also recognizes agency accomplishments and suc-
cesses for the previous year.

The overview of 2004 focused on the unity and health of an organization. Vicki Dalle Molle, Executive Direc-
tor, spoke about “community” and its importance in an effective organization. In healthy communities people
interact and collaborate and support each other. SEMCIL and SEMCIL UHHC are examples of healthy work
communities that produce positive outcomes for consumers, clients and staff. Vicki recognized each depart-
ment’s contribution and role in the making SEMCIL and SEMCIL UHHC a vital, financially sound and suppor-
tive work environment.

Andy Welti applauded the efforts of agency staff and caregivers for their role in helping persons with disabili-
ties live independently. He spoke about critical health and human service issues facing legislators this ses-
sion such as the need for higher wages for direct caregiver staff and consumer directed supports initiatives.
He provided an overview of how bills are written and the steps that are necessary for a bill to become law.
He encouraged all present to become part of the legislative process, by contacting legislators, visiting the
Capitol, etc. Andy ended his presentation with his experiences as a freshman legislator.

The agency staff and Board of Directors thank Andy for his insight on the issues facing persons with disabili-
ties and for supporting legislation that advocates for higher quality of life for our consumers and a higher stan-
dard of living for our direct caregiver staff.

SEMCIL and SEMCIL United Home Healthcare Choices staff welcomed new Board president Grant Kirgis
and thanked outgoing president Tracy Schramm. Joe Peplinski was honored for his years of service on the
Board of Directors as 2004 ended his term. His input and dedication will be missed.

Employees who attended the event and were honored for their years of service were as follows:

5 Years of Service:      Terry Panek, RN, Jodi Burmester, Marilyn Hanson and Gerald Tjepkes




  Representative Andy Welti               Left to Right: Vicki Dalle Molle, Tracy        Vicki Dalle Molle and Tracy
                                          Schramm, Pat Holderbecker (award re-         Schramm congratulate Priscilla
                                           cipient), Erv Finley (award recipient)       Dudley for 15 years of service.

Page 6
          CENTERLINE


                         SEMCIL WORKSHOP REGISTRATION FORM (please print)

Your Name __________________________________________Phone Number __________________________________

Will you be bringing a PCA? _______________ If yes, PCA Name ________________________________________

Will your PCA be participating in the workshop?________Letter of workshop(s) attending (A-D) _______________

Enclosed Fee: ___________________________

Credit will be given toward another SEMCIL workshop if you cannot complete the series after two classes. There will be
no credit given for workshops where more than two sessions are attended. Please register prior to the date of the work-
shop. Make checks payable to SEMCIL and mail to 2720 North Broadway, Rochester, MN 55906 Attn: Jeff

   A. **SEMCIL & RADAR Cooking and Nutrition                              C. SEMCIL & RADAR Fitness Class at the YMCA
Cooking and nutrition classes are designed to offer individuals the
opportunity to learn how to prepare, store and cleanup a diverse    Individuals with disabilities are invited to join SEMCIL &
variety of meals and desserts.                                      R.A.D.A.R. at the YMCA for and hour of stretching, light

Bring your appetite! $2.00 fee per class for each series.             aerobics and exercise. There is no fee for this class.
          Class Time: Wednesdays 4:00—6:00 p.m.                                                    Class Dates:
Session 1 March 23rd ~ May 25th
                                                                          •    January thru April    2nd & 4th Thursdays 2:45-3:45
Session 2 June 8th ~ June 29th “Grilling”
Session 3 August 3rd ~ August 24th “Using the Garden”
Session 4 September 14th ~ November 9th                                                       D. Creativity Class
                                                                   Explore your creative side with Sue Jansen and SEMCIL. Work-
Dietary restrictions are the responsibility of the participants.   shops have included painting, clay work, sculpy, paper machete
Please contact Jeff Vert with concerns regarding meal ingredients. and many other fun projects. Please bring comfortable clothes
                                                                   and your imagination. There is a $2.00 fee per class.

                     B. Computer Basics                               •       Thursday, April 7th 3:30-6:00 p.m.   Spring Craft
Larry More will be conducting a training involving Microsoft
explorer and Internet explorer. The workshops will teach basics       •                       nd
                                                                              Thursday, June 2 , 3:30-6:00 p.m.    Summer Craft
such as copying and moving files, switching between windows
and introduction to the Internet.                                                             E. Garden Group
Class Dates:
Tues., June 7, 14, & 21 2:00-3:30 p.m. “Intro to computers”           *** Anyone interested in participating with the plan-
Tues., August 2, 9, & 16 2:00 - 3:30 p.m. “Photo scanning & touchup   ning, planting, and weeding of this years garden should
Tues., October 4, 11, & 16 2:00-3:30 p.m. “Intro to computers”        contact Jeff Vert at 507-285-3932. ***
                 There is no fee for this training

All workshops will be held at the SEMCIL building unless otherwise specified in the workshop descrip-
tion.
2720 North Broadway, Rochester 285-1815. Contact Jeff with questions at 507-285-3932.

PCA services will not be provided for any of the workshops. You must invite your own PCA or friend if
his/her services are necessary. There is a charge for PCAs who attend workshops with fees. This is nec-
essary to cover the cost of supplies. If this prevents anyone from participating please speak to Jeff
about alternative options.
 Centerline                                                                                                           Page 7
          CENTERLINE

         SEMCIL’s Peer Mentor and Senior Companion Programs
SEMCIL’s Peer Mentor program matches trained Peer                                                       President George W. Bush
Mentors with individuals who desire peer support on                                                     shares a laugh with USA
                                                                                                        Freedom Corps Volunteer
disability related and personal adjustment issues.
                                                                                                        Sister Chabanel Hayunga in
Peers have adjusted to their own disability and/or                                                      front of Air Force One at
situation and feel comfortable sharing their experi-                                                    Rochester, Minnesota Inter-
ences, providing support, and acting as a role model.                                                   national Airport Wednes-
SEMCIL currently has                                                                                    day, October 20, 2004. Sis-
                            “One of my heartfelt desires is                                             ter Chabanel has been a
nineteen peer mentors       for more persons to share this                                              volunteer with the Senior
working in Rochester        realization and serve our senior                                            Compani on       program
and the surrounding         citizens in whatever ways they     through Catholic Charities and the Southeastern Minnesota Center for
area.                       are gifted.”                       Independent Living.
                             Sister Chabanel Hayunga
Since 2002, SEMCIL has
served as a site for the
Senior Companion pro-                                              Exciting News from our Red Wing office
gram, which is administered through Lutheran Social
                                                                 In December the Red Wing SEM-
Services. The Senior Companion program recently
                                                                 CIL and SEMCIL United Home
celebrated 30 years of service. Volunteers provide sup-
port and help individuals maintain independence. Our             Healthcare Choices office moved to
collaboration is a great example of how agencies work            a new location. Our new address
together to meet the needs of local communities.                 is 217 Plum Street, Suite 120 in the
                                                                 Armory Center.
SEMCIL is honored to have Sister Chabanel Hayunga
on staff as a Senior Companion. Sister Chabanel cur-             The move has given our office much needed addi-
rently meets with eleven senior consumers and is avail-          tional space.
able to provide extra support when needed. She has
an amazing gift of giving and is an outstanding source
of inspiration.                                                             SEMCIL was presented with a $1500.00
Sister Chabanel Hayunga was recently honored as the                         grant made possible by the generosity of
recipient of the Outstanding Volunteer award with the                       Norman Gillette, Jr. and Family.
USA Freedom Corps. As the recipient of this award,
she met President Bush during his visit to Rochester in          The grant money was used to purchase a large
October. She accepted this honor on behalf of all the            screen tv, dvd player and educational videos to en-
volunteers in Minnesota.
                                                                 hance the training and knowledge of Personal Care
I have learned that the richness of their wisdom,                Assistants, Homemakers and Home Health Aides.
gained from lives lived long and well, is truly one of
America’s greatest treasures. One of my heartfelt de-
sires is for more persons to share this realization and
                                                                                      • Holly Glunz, RN
serve our senior citizens in whatever ways they are
                                                                        Home Care Nurse Case Manager, SEMCIL UHHC
gifted. The need is great and there is no end to the
good that could spread throughout our communities                                         •Sonya Smith
and our entire nation.”                                                Transition/Independent Living Coordinator, SEMCIL
                                                                                         • Dan Wain
If you are interested in receiving peer mentor or senior
                                                                             Central Region DLL Specialist, SEMCIL
companion services or becoming a Peer Mentor or Sen-
ior Companion please contact Ann Petersen by phone                                   • Ubah Hassan, RN
at 285-3920 or by e-mail at annp@semcil.org.                                        Staff RN, SEMCIL UHHC
                                                                                    • Nancy Randazoo
                                                                               Scheduler, Winona Office, SEMCIL

Page 8
          CENTERLINE


A Message from Medicaid                                 Arthritis Advocacy Summit Held in
Reference Desk                                          Washington D.C.
                                                        By Dulcie Berkman
The Medicaid Reference Desk is an online resource
at www.theDesk.info that explains Medicaid in ba-       I attended the Arthritis Advocacy Summit in Washington
sic terms, state by state. It gives people with cog-    DC Feb. 28— March 1. I joined 6 other Minnesotans
nitive disabilities, family members and advocates       representing the state, and we were among more than
information about what is available through their       200 people in attendance. The Summit’s purpose was
State Medicaid Plans and waivers. The site also         to garner co-sponsorship of the Arthritis Prevention,
                                                        Control and Cure Act of 2005 (S384/HR583). Included
gives information on where to apply for services.
                                                        in the request was increased funding for NIH research
                                                        and CDC programs.
We are looking for stories from people with cogni-
tive disabilities and family members about how          The first day was spent in sessions designed to help us
they have used Medicaid to increase their inde-         know what to expect and how to properly present our
pendence. We will collect written and recorded          stories and requests. The second and third days were
stories for use on www.theDesk.info, the only web       spent visiting every legislative office. The Minnesota
site that explains Medicaid for people with cogni-      delegation split into two groups, and visited every Min-
tive disabilities. If we use your story, you will re-   nesota office to tell our stories, and also dropped off
ceive a free T-Shirt and $50. If you have a story       information packets in the legislative offices of North
send an email message to stories@thedesk.info or        and South Dakota, as there were no volunteers in at-
call toll-free at 1-877-431-8532. If you know           tendance from those states.
someone else who has a story, forward this mes-
sage to them or tell them about it. We are espe-        It was an interesting and worthwhile three days. I
cially interested in stories from Hispanic families,    learned the basics of grassroots lobbying, and enjoyed
for presentation in Spanish.                            visiting the Senate and House buildings, including our
                                                        criss-cross trekking through the tunnels that connect
We explain each Medicaid service in ordinary lan-       them.
guage. People can see and hear the information
rather than read it. So far, there are about 3,000      The Arthritis Foundation offered astounding statistics;
recordings on the site.                                 among them:
A brochure for people with cognitive disabilities       • 43 million Americans have doctor-diagnosed arthri-
and families is now available and can be ordered in     tis
quantities by sending an email to bro-                  • 300,000 children have some form of arthritis, mostly
chures@thedesk.info.                                    Juvenile Rheumatoid Arthritis and Lupus
                                                        • 30,000 of those children live right here in Minnesota
                                                        • 50% of adults with RA are forced to stop working
The Medicaid Reference Desk is funded by the
                                                        within 10 years of diagnosis; in many cases putting
Centers for Medicare and Medicaid Services (CMS),
                                                        them on the Medicare rolls
the Administration on Developmental Disabilities        • Arthritis costs our country $86 billion annually; $51
(ADD) as a Project of National Significance and the     billion of this is in direct medical costs
NEC Foundation of America.
                                                        The                                               $23
                                                        bill




 Centerline                                                                                     Page 9
        CENTERLINE
      Staff Spotlight
      Priscilla Dudley, RN, PCA Program Manager, SEMCIL
By Ken Hanson

Priscilla Dudley, who lives in Lake City, has been with SEMCIL since 1989, start-
ing as a PCA (Personal Care Assistant) supervisory nurse. She was promoted to PCA program manager in
1996.

Priscilla supervises the PCAs and PCA supervisory nurses in the Rochester, Winona and Red Wing offices.
KH: What do you like most about this job, besides          What we receive for reimbursement of services from
the money? (Laughter)                                      the state of Minnesota is not very much, so we have
PD: You know, I could be working other places and          to do a large volume of care for this agency to make a
make more money, but I feel what I am doing is valu-       go of it..
able, giving service, helping people live independ-        It’s hard finding people to be PCAs over the long
ently.                                                     term. I mean, it’s not the easiest work, although it can
                                                           be very rewarding work. Also, like mail carriers,
KH: So why do you do this instead of going to              PCAs have to travel to the consumer’s home in rain,
work for bigger money?                                     sleet and snow. They have to get to consumer’s
PD: I do this because I’ve always believed that what I     homes, and sometimes those homes are in a rural
am doing makes a difference in people’s lives. What        area. The consumers count on the PCA to be there.
we do is assist people with disabilities in their homes;
we help them with their personal cares and home-           As a culture or society, I don’t think we recognize how
making so they may remain in their homes and in            important it is for people to live independently in their
their community. I think that¹s a powerful mission,        home and community, and how home care services
helping persons with physical disabilities and mental      allow that to continue.
illness stay in their own homes.                           Consumers depend on PCAs to assist with their
Home is really important to people. I mean, I can’t        needs. Not all consumers have family members or
imagine how hard it must be to move from your home         friends they can ask for support and/or care.
when you don’t want to. If someone has always lived        And SEMCIL provides these services, and that’s what
in their own home, that’s where they feel safe and se-     I manage. And that’s definitely satisfying
cure, and they have everything around them, and
they have their memories there.                            KH: Are you in charge of having to terminate em-
And I think their mental health is better to be where      ployees? If so, is it true that the stress is worse
they want to be, where they choose to be. I mean,          on the person who does the terminating than on
there is a place for nursing homes, but with the help      the person who is terminated?
of the PCA and supervisory nurse, people can remain        PD: I’ve never been asked to leave a job, so I don’t
in their homes.                                            know what that feels like. From my experience, I have
I also work here because I truly enjoy my colleagues       never enjoyed terminating employees -- and I don’t
– we all work really well together and support one an-     think Donald Trump enjoys it either.
other. I think our direct caregiver staff (PCAs, HHAs      KH: What’s the most stressful part of your job?
and Home                                                   PD: As a program manager, I hear complaints. I hear
makers), overall, are committed and loyal to their con-    them because if something is going wrong or hasn’t
sumers.                                                    been resolved, they call me. It’s the old thing about
KH: What about the role of PCAs?                           what do you do when you¹ve got a problem?
PD: We work with people who have physical disabili-
ties and mental illnesses. The biggest challenge is
                                                               Ken Hanson—Biography
recruiting and retaining the direct caregivers. We‘re
always trying to recruit people who will be good, re-          Ken has been a sports reporter and copy editor at the Rochester
                                                               Post-Bulletin for seven years. He has 14 years experience on
sponsible personal care assistants and homemakers.
                                                               daily newspapers and does some desktop publishing on the side.
                                                               Ken volunteers as a public speaker for NAMIL Olmsted County,
 Page 10                                                       educating community members about mental illness. He has
                                                               dealt with bipolar disorder for 24 yrs.
          CENTERLINE
        Accessible Space, Inc. (ASI) Opens Wheelchair Accessible, Affordable
               Apartment Building in Rochester.

Re-printed with permission from Accessible Space, Inc. (ASI).

     Rochester, Minnesota: Accessible Space, Inc. (ASI), a Minnesota nonprofit organi-
zation, is pleased to announce the opening of Bostrom Terrace, a new, 15-unit wheelchair
accessible, affordable apartment building for very low-income adults with physical dis-
abilities. In addition, Bostrom Terrace will offer 24-hour access to shared Personal Care
Attendant (PCA) staff to qualifying residents who choose ASI’s supportive living services.             Maynard Bostrom
ASI services are offered as an alternative model of supportive living, but residents are not
required to choose ASI services in order to live at Bostrom Terrace.
    Bostrom Terrace is named in honor of Mr. Maynard Bostrom, an original resident of ASI’s first accessible, afford-
able housing property that opened in the Twin Cities in 1980. A dedicated advocate for persons with disabilities, May-
nard Bostrom has spent a majority of his life supporting their continued quest for independence. Maynard has worked
as a Resident Manager for ASI and currently serves as an active, volunteer member on the ASI Board of Directors.
     The wheelchair accessible, one-bedroom apartments at Bostrom Terrace provide approximately 540 square feet of
living space, and present a number of features that support independent living and comply with guidelines set by the
Americans with Disabilities Act (ADA): an open floor plan without hallways or tight corners; lever-action handles on
doors; raised electrical outlets and lowered light switches; roll-under counters and sinks in the kitchen and bath; and
oversized roll-in showers with adjustable shower heads. In addition, the apartments are made affordable through subsi-
dies provided by the U.S. Department of Housing and Urban Development, and qualifying households will only pay
30% of their adjusted gross monthly income for rent. Bostrom Terrace also provides on-site laundry facilities with
front-loading washers and dryers, an outdoor patio with gas grill, a controlled access main entry system, a large lobby
area and a community room for resident use.
    ASI and Bostrom Terrace sincerely appreciate the warm and gracious welcome they have received from numerous
people, agencies and organizations within the Rochester community. In addition, ASI and Bostrom Terrace gratefully
acknowledge the generous funding and support they have received from the U.S. Department of Housing and Urban De-
velopment (HUD); Minnesota Housing Finance Agency (MHFA) Greater Minnesota Housing Fund; Federal Home
Loan Bank of Des Moines Affordable Housing Program/U.S. Bank; City of Rochester Community Development Block
Grant Program; United Way of Olmsted County; Olmsted County Community Services; and the Minnesota Department
of Human Services Medical Assistance Program.

               Bostrom Terrace is ASI’s 23rd property to open in Minnesota and the 65th site to open nationwide.
For more information regarding Bostrom Terrace, please call ASI at (651) 645-7271 or (800) 466-7722 or visit ASI’s website at
www.accessiblespace.org. Bostrom Terrace is located at 1680 Eastwood Drive in Rochester, Minnesota, directly east of Ca-
sey’s General Store.



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