Fall /Winter Issue • 2008
US POSTAGE Quarterly Newsletter
976 Delaware Ave., Lower Level
Buffalo, NY 14209
976 Delaware Ave., Lower Level • Buffalo, NY 14209
Phone: (716) 629-3636 • Fax: (716) 629-3639
In this issue
501C3 Non-Profit Organization
HEADWAY IS GROWING! • Headway is Growing pg. 1
Headway is proud that this year we will be able to help increasing numbers of WNY
residents thanks to a new program we will be administering through the NYS De- • Community Presentations pg. 2
partment of Health.
Many of you are familiar with a Department of Health we already administer for • Continuing Speaker Series pg. 3
WNY, the Traumatic Brain Injury Medicaid Waiver Program. Through this program,
participants are able to avoid the necessity of being placed in a nursing home or
• Putting the “Fun”
other institution by having a plan in place that includes some added services beyond
those that are usually covered by Medicaid. Headway was one of the original agen- in Fundraising pg. 4
visit our website: www.headwayofwny.org
cies that lobbied the Department of Health to create this program, as we feel that
THE BEST CURE IS PREVENTION, THE BEST PREVENTION IS AWARENESS. everyone deserves a chance to return to their own home whenever feasible. We have • Walk, Run & Wheel Event pg. 5
helped to administer this program in the WNY area, and are proud to have helped
over 200 individuals through this effort.
• Headway at the Harbour pg. 6
HEADWAY’S The NYS Department of Health felt that this TBI Medicaid Waiver program was a
SUPPORT GROUPS FOR SURVIVORS OF BRAIN INJURY AND THEIR FAMILIES great model, and that this concept could be expanded to help keep people with other • Making a Difference pg. 7
All meetings will take place at Headway • 976 Delaware Ave., Buffalo, NY 14209 / 716-629-3636 types of disabilities out of nursing homes also. In support of this idea, they created a
new program called the Nursing Home Transition and Diversion Waiver, or NHTD.
PEER SUPPORT CARE GIVERS SUPPORT LIFE SUPPORT YOUTH SUPPORT • Veterans Support pg. 8
1st & 3rd Tuesday 1st Tuesday 2nd Monday 2nd Thursday The program will help people who need just a little more help and services in order
6:30 PM to 8 PM 6:30 PM to 8 PM 1 PM to 2:30 PM 6:30 PM to 8 PM to be able to leave the nursing home, or be able to avoid being placed in a nursing
home. Obviously, as this covers people with a wide variety of disabilities, it is antici- • New Youth
Tuesday, Sept 2 Tuesday, Sept 2 Monday, Sept 8 Thursday, Sept 11 pated that this program will be a much bigger and more complex program than the Support Group pg. 9
Tuesday, Sept 16 TBI Medicaid Waiver.
Having had experience in administering a similar program, Headway was chosen by • Financial Report pg. 10
Tuesday, Oct 7 Tuesday, Oct 7 Columbus Day Thursday, Oct 9
Tuesday, Oct 21 No Meeting the NYS Department of Health as the agency to administer this new waiver program
for WNY. Headway has hired several new staff members to help with the adminis- • NFTA Fare Program pg. 11
Tuesday, Nov 4 Tuesday, Nov 4 Veterans Day Thursday, Nov 13 tration of this program, and we are gearing up to have the first participants registered
Tuesday, Nov 18 No Meeting this fall. (The actual services are run by various contract agencies for both programs.)
Tuesday, Dec 2 Tuesday, Dec 2 Monday, Dec 8 Thursday, Dec 11 We are pleased to be able to help return more people to their own home base, and
Tuesday, Dec 16 look forward to helping this program serve an increasing number of WNY’s citizen’s!
Visit our website
Tuesday, Jan 6 Tuesday, Jan 6 Monday, Jan 12 Thursday, Jan 8 If you have any questions about this program or other Headway services, please call
Tuesday, Jan 20 our office at 629-3636. We look forward to talking with you.
WELCOME COMMUNITY NFTA REDUCED
& FAREWELL PRESENTATIONS FARE PROGRAM
Headway would like to welcome our FACTS Headway has a volunteer in-services Are you aware that the NFTA Metro
new board members this year: staff, willing and able to do a variety of Bus system has a reduced fare policy
Chuck Barber is Director of Western A concussion is a mild traumatic educational presentations to communi- for senior citizens, the disabled and
New York Operations for Heritage brain injury that occurs when a ty groups. Those that we have present- any Medicare recipient? The current
Christian Services, a human services blow or jolt to the head disrupts the ed to in the past year have been quite reduced fare for these individuals is:
agency. His brother and stepfather normal functioning of the brain. varied, and include: Gentiva Home • .65 for zone one
both have had serious brain injuries. Health Care staff, DDSO employees, • .75 for zone two
• Twenty percent of all concussions substance abuse counseling staff at • .85 for zone three
Bill and Mari Warmus are long time are sports-related ECMC, the Women’s Federation of • .95 for zone four
members and supporters of Headway. Buffalo, Calspan employees, Heritage Their policy includes disability cover-
Bill is currently president of the TBI • A concussion doesn’t always Center employees, the Retired Public age for those with “…organic mental
Clubhouse Program. knock you out Employees Association, Occupational capacity impairment”, which in most
We send a fond farewell to Jerry Therapy Students at D’Youville Col- cases would cover brain injury. Applica-
Piskor, who recently retired as a board • Having one concussion increases lege, and at UB, and staff at various area tions for reduced fare can be obtained
member. Jerry was among the original your chance of having another group homes, in addition to others. at the Metropolitan Transportation
members of the Headway board, and Center, located at 181 Ellicott St.,
• Symptoms of concussion can We have also been to Health Fairs, such
he has done more things for the orga- Buffalo between the hours of 8:30
last hours, days, weeks, months, or as with the Parent to Parent group, and
nization than we are able to list for you A.M.-4:30 P.M. Applications can also
indefinitely attended the Orchard Park Communi-
in this short space. Jerry, we sincerely be requested by contacting the Eligibil-
ty Marketplace. We gave a presentation
hope you will keep your hand in for ity Coordinator at 716 855-7360 or
• Concussion can cause disability at the WNY Developmental Disabili-
the occasional volunteer assignment! visiting the NFTA web site at www.
affecting school, work, and social ties Day.
Your smile and your steady support nfta.com. Note: a Medicare Card
will be missed at meetings. life Our intention is to further educate the can be used instead of a reduced fare
community on brain injury to promote identification card, but additional photo
The Headway Board has said goodbye • Returning to contact or collision better understanding and support, and identification may be requested. Re-
to Dawn Radice-Neumann. Dawn sports before you have completely also to make them aware of Headway duced fare is not valid for trips with the
has recently been awarded her Ph.D. in recovered from a concussion may as a resource, support and advocacy Paratransit system.
Rehabilitation Science at the Univer- lead to more serious injury and organization. Our presentations have
sity of Buffalo, and she has done some can increase your chances of long- a variety of emphasis, depending on
fascinating research on brain injury term problems. whether we are speaking to health care
and emotions. Dawn has moved professionals, service groups, or the
on to a position with the Carolinas • Just because you weren’t knocked community at large.
Healthcare System, in the Department out doesn’t mean you didn’t have
of Medical Rehabilitation as a post- a concussion We are always looking to increase our
doctoral fellow in Charlotte, NC. We outreach. Do you know of or be-
wish her good luck with this move. • A concussion can have serious long to a group which could ben-
We know that they will appreciate long-term effects efit from a presentation? Please
your energy, knowledge and enthusi- call the office and let us know!
asm as much as we have. • It can take up to a year or longer We are also interested in develop-
to recover from a concussion ing a list of brain injury survivors,
We were saddened by the death of family members and professionals
some members of our Headway family • A properly worn helmet can who may be interested in par-
recently, including: We want to take a moment and give a
reduce the frequency and severity ticipating in these presentations. special THANK YOU to the DENIO
Joanne Muscarella, ECMC Rehab of brain injury by as much as 75% Ask to speak to Diana Landwehr, FAMILY.
Nurse and supporter of Headway Director of Support and Advocacy
Services. Year after year, event after event
Pamela Matter, who volunteered for
A CONCUSSION IS MORE they are there, Mr. and Mrs. Denio
many years at our events and fundraisers
THAN JUST A BUMP and their wonderful daughter Sarah.
Mary Pat Fitzpatrick, dedicated Thank you Sarah and your wonderful
ON THE HEAD.
advocate for her brother, Jim. Mom and Dad. Headway is grateful
Fall 2008 at the tBI CluBhouse K ate’s
2008 has been a very busy year for Head-
and has helped numerous others that
have come from around the country to
Headway has, to date, been able to
way. Along with having a new waiver, PLANNING keep our presentations free for Head-
Thursday, September 4th – Get Reacquainted Night we added to our staff to help us serve the INFORMATION way members, and at a low cost for the
Come in and talk about summer highlights. Enjoy friends and snacks. participants in both the TBI and NHTD rest of the interested community, due
waivers. Headway’s Speaker Series’ most recent in part to the generosity of our pre-
Thursday, September 18th – The Rhythm Maker presentation was a talk by Laurie senters. Do you have a topic related to
Miranda Ward is the new Assistant Menzies, Esq., Jamie M. Smith, Esq,
Come enjoy a drum circle. It’s creative, fun, and helps relieve stress. A special guest will perform for us! brain injury that you think may be of
RRDS for the TBI waiver. She has a B.S. of Pfalzgraf Beinhauer & Menzies law
in Therapeutic Recreation and is assisting firm, along with Tim Winterhalter, interest? Do you know of someone in
Thursday, October 2nd – Bowling Night David Giordano our lead RRDS for TBI. financial consultant of AG Edwards the area who might provide informa-
Come bowl with your friends from the TBI Clubhouse. More info to come. tion to the community in an important
Florika Miranda, RN is a Registered & Sons, Inc., a division of Wachovia area? Call the Headway office, drop us
Thursday, October 16th – Spooky Movie Night Nurse and Certified in Home Care and Securities, titled Legal Planning for a line or an email! We would like to
Scary movies, popcorn, soda and treats! Wear your PJ’s! Community Health and Wellness. She is Living with Disability. schedule talks that our members feel
working on the NHTD waiver. This talk was packed with information, are relevant and that impact their lives.
Thursday, November 6th – Thanksgiving Preparation including facts on Health Care Prox-
Taheerh Hulett is the Assistant RRDS for
We will be making centerpieces for our dinner. Put your skills and a special touch to our decorations. ies, Power of Attorney, and Long Term
the NHTD waiver. She has a B.A. in Psy-
Care insurance. Members had the “RECOGNIZING THE FACE
chology and will be assisting Ronald Fer-
Thursday, November 20th – Thanksgiving Dinner chance to ask questions about income IN THE MIRROR”
nandez, our Director of Waiver Services.
We will be having a Thanksgiving Feast. A time to share our most thankful thoughts. More info to come. limits for Medicaid and how to estab- Presented by Dr. Lisa Keenan
We welcome them and feel very fortu- lish different types of trust funds which October 23, 2008
Thursday, December 4th – Help for the Holidays nate to have three talented additions to would affect a person’s eligibility. There Check the slinger in this
Bring a canned good item for the food pantry. We will also be making Xmas cards for Children’s Hospital, Roswell, etc. our staff. was discussion on how a person with newsletter for details.
a disability being on Medicaid would
Thursday, December 18th – Make a Pine Cone Ornament affect the income of a spouse, and
Decorate with glitter, fake snow or paint. Take it home or use it for a gift. CALSPAN SUPPORTS how money might be left to someone
HEADWAY without impacting their Medicaid. The
presenters were very helpful and stayed
A big thank you goes out to Calspan
late responding to the many questions
Corporation who “adopted” Headway
and concerns that were posed. Many THE CLUBHOUSE
as a charity project this year. Employees,
thanks to Laurie, Jamie and Tim for HOSTED A SUMMER
In 2008, the Brain Injury Association FINANCIAL REPORT led in part by Nancy Ward, a long time
Headway volunteer, sponsored a series
sharing their knowledge with us! MONTE CARLO
of America is maintaining its posi-
tion as a leading voice advocating for
of fund raising events within the orga- Other events in our Speaker Series this PICNIC
nization, and collected money for items past year included: Who Is This Per-
improved public policies related to The Annual summer picnic took
and supplies for Headway’s “Wish List”. son? Emotional and Behavioral
brain injury on Capitol Hill. Advocates Headway Annual Report Headway Annual Report
At the time of this printing, Headway Changes after Brain Injury, presented place on August 16th at Cheek-
achieved a major legislative “win” in July 1, 2006 to June 30, 2007 July 1, 2007 to June 30, 2008
has received a beautiful and needed by Lisa A. Keenan, Ph.D., Psychologist towaga Town Park.
Congressional passage of TBI Act re-
table top folder which will come in very with the Department of Rehabilitation
authorization legislation (H.R. 1418/S. Persons Served Persons Served Over 50 people attended and
handy for our mailings. Could you do Medicine, ECMC. This talk was particu-
793). Ensuring reauthorization of the 195 Waiver Participants 214 Waiver Participants enjoyed picnic food and games of
this with your organization? Call larly well attended, and we plan to ask
TBI Act was one of BIAA’s key legisla- 7,841 Calls Logged 8,067 Calls Logged chance. The beautiful day brought
the Headway office for ideas and Dr. Keenan for a follow up presentation.
tive priorities this year. BIAA has also 19,162 Correspondence 12,962 Correspondence out some new folks we hadn’t seen
8 Media Exposure 21 Media Exposure information!
made progress on its other key policy Put Me In, Coach! A presentation in a long time. This annual event
priorities for the year: 1) Preserving 99 Memberships 136 Memberships on when and how to get back into continues to grow with participa-
and increasing funding for federal TBI 264 Support Meetings 256 Support Meetings the game after concussion for parents, tion each year which makes the
programs and research; 2) Monitor- 120 Special Events 151 Special Events coaches, trainers, players and the com- sponsors work worth the effort.
ing the implementation of Wounded 165 In Services 437 In Services munity by Dr. Barry Willer from the Thanks to all who helped make it a
Warrior legislation to improve TBI care 1,248 Health Fairs 181 Health Fairs Concussion Clinic at the University success.
for returning service members; and 367 Fundraisers 804 Fundraisers of Buffalo. Dr. Willer was part of the
3) Achieving TRICARE coverage of 29,469 Total 23,256 Total team that helped design a new type of
cognitive rehabilitation. treatment that helped return Tim Con-
nelly to the ice after his concussion,
PUTTING THE HEADWAY est in working specifically with survivors OUR OTHER ONGOING
of brain injury. Although she started SUPPORT GROUPS INCLUDE:
“FUN” IN OFFERS NEW college as a speech therapy major, she de-
FUNDRAISING! SUPPORT GROUP cided on a change to rehabilitation coun- Peer Support: 1st and 3rd Tuesday of
seling, partly as a result of her experience each month 6:30-8 P.M.
If you missed attending a Headway YOUTH SUPPORT, with a significant brain injury at the age Caregivers Support: 1st Tuesday of
fundraiser this year, you missed a good of 16. Her studies and her enthusiasm
time! Fundraisers produce not only FoR aGes 16-26 each month, 6:30-8 P.M.
have led her to jobs with Aspire’s Tech-
important operating money for the Among the opportunities offered through nology Today program; as a counselor for Life Support: (for those dually diag-
organization, but outreach to the com- Headway of WNY is our support group New Frontiers in TBI, and to be a mem- nosed with a brain injury and a mental
munity, support and FUN! program, which has been at the core of ber of the Board of Directors of Headway health issue) 2nd Monday of each
our mission since Headway’s beginnings of WNY! Molly realizes that the interests month, 1-2:30 P.M.
September 2007 found us down at the
22 years ago. This year we are pleased and concerns of younger people may
waterfront for our first annual Walk, There is no charge to attend any sup-
to have a new offering of support, the be best met in a support group of their
Run and Wheel. We were honored to port meeting. All meet at the Headway
Youth Support Group. The Youth Sup- peers, something that was brought home
have Mark Reed, a Buffalo Firefighter, office. For further information on any
port Group will meet on the second to her when she was injured at a young
recently released from the hospital and support group meeting, please call the
Thursday of each month from 6:30- age and there was no support group like
his wife Nancy as honorary chairs of Headway office at 629-3636.
8 P.M. at the Headway office. This this available for her. She volunteered to
this event. Mark’s parents, friends, and
group is facilitated by Molly Hayden- facilitate this group which is specifically See back page for more information.
co-workers (complete with fire engine!)
Saper. Molly has a Master’s degree in for survivors of brain injury from the ages
were there to lend their support. We
Rehabilitation Counseling, and an inter- of approximately 16-26.
thank all Headway supporters who par- Walk, Run and Wheel
ticipated, and particularly Mark Shaw,
who won the prize for most sponsor-
ships, and Shana Davis, who was
runner up and was also featured in The
Downtowner magazine for her partici-
pation in this event. This year’s event is
tentatively planned for October 5, 2008 Monte Carlo Night
and we hope you will be able to join us!
Our second annual Monte Carlo Night
was held on March 29, 2008. We again
cosponsored this event with the Ameri-
can Legion Post 567, a great bunch of
individuals. The food, games, and auction
were all fantastic. A particularly touch-
ing moment came as we paused with
the parents of Spc. Michael D. Hauser in
a moment of silence with prayers for his
recovery. The volunteer support from
both organizations was fantastic, and
we send a sincere thank you to all who
parked cars, cooked the food, stocked
the tables, ran the games, and did all
those things too numerous to mention.
This event was even bigger and better
than the year before, with numerous “Along The Way”
mentions on television news. We hope,
with your help, to continue to grow!
The above drawing was done by one Art school in Pittsburgh five years later.
We hope to further partner with the of our survivors who has been helped While in school, he suffered a brain
American Legion Post in this upcoming by Diana and Headway. Chris was hit bleed on his left side which has left
year to start a support group for return- by a car when he was 15 years old. He him with difficulties, but his creative
ing veterans with brain injuries and was in a coma for three weeks. He talent shines through.
their families. recovered sufficiently enough to attend
BRAIN INJURY SUPPORT IN CHAT ROOMS
Want to talk with others with brain injuries, or other caregivers/family members FOR OUR ANNUAL
but have difficulty attending one of our support groups? Try these on line sites!
http://www.tbihome.org/index.html (no registration required)
http://health.groups.yahoo.com/group/survivoracquiredbraininjury/ (must register)
http://health.groups.yahoo.com/group/TBI-Survivor/ (must register)
http://health.groups.yahoo.com/group/SoTBI/ (must register)
http://health.groups.yahoo.com/group/ABINews2U/ (must register)
http://health.groups.yahoo.com/group/BIA4KIDS/ (must register)
http://health.groups.yahoo.com/group/Stroke_Helps/ (public/ membership to post)
http://health.groups.yahoo.com/group/encephgroup/ (survivors of encephalitis and families) (must register)
http://health.groups.yahoo.com/group/TheOrangeGrove/ (must register)
http://health.groups.yahoo.com/group/magicgunshot/ (must register)
http://health.groups.yahoo.com/group/TBI-Together/ (must register)
http://www.tbinet.org/support1.htm provides list of Listservs for (must register):
Caregivers of Children with Brain Injury
High functioning and caregivers of those
Caregivers of Spouses october 5, 2008
Caregivers of those in a Coma
Join us for this family friendly event of
http://www.mdjunction.com/brain-injury (must register)
walking, running and wheeling through
http://brain.hastypastry.net/forums/ (must register) Buffalo’s dynamic waterfront. Celebrate
http://www.crowsnestsupport.org/community/index.php?act=idx (must register) life with survivors of traumatic brain
The above information was compiled by Headway Board Member Dawn Radice-Neumann, Ph.D. injuries, their families and friends. Walk
Headway would like to congratulate Dr. Neumann for recently being awarded her doctorate with us as we honor our veterans and
in Rehabilitation Science at the University of Buffalo. fire fighters and enjoy a picnic lunch
with them. So grease up the hubs on
the wheelchairs and be a part of our
annual “Walk, Run & Wheel.”
NEW SUPPORT what can help and just knowing ished or altered state of consciousness
GROUP FOR SERVICE you’re not alone, meeting others resulting in impairment of cognitive Look for the application in this news-
who are faced with the same emo- abilities and/or physical functioning. letter and if you need more, check our
MEMBERS, VETERANS tional needs can be the first step Veterans with TBI can’t always evaluate web-site www.headwayofwny.org
AND THEIR FAMILIES to moving ahead and healing. what’s going on because some of the or phone 629-3636.
symptoms of TBI and PTSD parallel
The Legion Post 567 in Orchard Park, THE FIRST MEETING WILL BE each other. Someone diagnosed with
4226 North Buffalo Rd. along with OCTOBER 22, 2008 TBI can be at risk for losing their job,
Headway of WNY, Inc. has opened its FROM 6:30 to 8:00 income, and family support. Families
doors to our Service members,Veterans AT THE LEGION POST 567. that advocate for treatment need to ob-
and their families to meet with each serve the individual as their input is a
other monthly and address the issues Post Traumatic Stress Disorder (PTSD) critical part of the treatment. Families
they are having regarding their Post- occurs when a person experiences an are also at risk to develop anxiety and
Traumatic Stress Disorders, Traumatic event that is so outside the normal that depression.
Brain Injuries, adjustment to civilian it overwhelms the brain’s natural ability
and other disabilities. to cope. For more information, please
phone our Headway office at
Bringing an awareness to individ- Traumatic Brain Injury (TBI) is an 629-3636.
uals and their families of who and injury to the brain producing a dimin-
AT THE HARBOUR
After many wonderful years at Pettibo-
nes, we decided to change our venue
for our Annual Spring Fundraiser. We
chose Harry’s Harbour Place and took
advantage of Buffalo’s beautiful water-
And what an evening it was. The over
300 people who attended had a great
time dancing to live music from Davey-
O and Tom Foster, the All American DJ.
As usual, Chris and Beth outdid them-
selves with preparing over 100 auction
baskets and a long table of silent auc-
tion items from around the world. They
MAKING A DIFFERENCE IN THE LIVES OF OTHERS
also created a most unusual ‘lottery As a friend of Headway, are you inter- that all appropriate needs of survivors need a hand with recreational opportu-
ticket sail boat’ that was a very popular ested in doing more to help survivors of brain injuries and other disabilities nities for our members and families.
item. We took time to honor two retir- of brain injury and their families make and their families in Western New York
ing Board Members, Jerry Piskor and a better life? While we all have the are met. Come on down and meet some more
Dawn Radice-Neumann, Phd. ability to positively impact lives, the members and hear about us on Wednes-
key is taking the time to open our Please consider joining us at an infor- day, September 24, from 6-8p.m. at the
The food was ‘aplenty’ and the attend- mal reception where we can share with Headway office, 976 Delaware Avenue.
ees danced until well into the evening. eyes and notice those around us, to be
concerned about the quality of life for you more of what Headway does, and Please phone ahead is possible, ask any
The event was a great success through how your volunteer efforts could be a questions and let us know you will at-
the support of everyone and a highlight all citizens of Western New York. The
survivors of brain injury that we serve part of it. As you find out more about tend. Our phone number is 629-3636.
of the evening was the announcement Headway you may choose to apply to Refreshments will be served. Free
of a check of over $15,000.00 given to may have had a car accident, a skiing
injury, or an aneurysm, but whatever be a member of the Board of Direc- parking in rear of building, enter by
Headway by the employees of Redline tors, help with fundraising, member- ramp door. Meeting room is in lower
Recovery Services. the cause, it is a life altering experience.
ship, grant writing, mentoring, or work level and an elevator is available. We
Headway of Western New York is a on the newsletter. We need help with look forward to speaking with you.
non-profit support agency, founded routine office work, assistance with Again, please phone 629-3636 by
in 1985. It was started as a grassroots support groups, and with in-service September 23 and let us know if
agency. We are devoted to ensuring opportunities in the community. We you will be attending.
everyone can make
a dif ference
Headway’s Spring Fundraiser, ‘Head-
way at the Harbour’ brought a won-
survivor, wrote a very heart-warming
letter about the affect a TBI has on a
tinued service to our community in
assisting those we love and care for.
in the lives of someone
derful surprise. The employees of family. She gave the letter to her son- and your someone
Redline Recovery Services chose
Headway as their charity of choice
in-law who works for Redline and he
submitted it for consideration. You can
is counting on you.
during the months of February, March, imagine our joy when we were in-
and April 2008. This came about formed of the gift. We are grateful to
when one of our volunteers, Karen the employees of Redline for their
Tripp, whose brother Bill Warmis is a generosity and recognizing our con-