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Affiliates: Lyme disease medical education: Lyme Disease Lyme Disease Association of Iowa www.ilads.org Minnesota Lymefighter’s Advocacy www.jemsekspecialty.com United Coalition Nebraska LDUC www.drerniemurakami.com Ohio LDUC www.personalconsult.com NOVEMBER 2009 NEWSLETTER South Dakota LDUC www.thehealingartspartnership.com Nevada LDUC www.igenex.com PO Box 86 Indiana LDUC Story City, IA 50248 Kansas Lymefigthers, Inc. Psychiatric medical education: (515)432‐3628 Oklahoma LDUC www.thehumansideoflyme.net email@example.com Washington –WALDUC www.mentalhealthandillness.com www.lymeiniowa.org North Dakota LDUC www.lymefighters.org In the Lyme Light, MN LDUC Please, note, the newsletter will be issued everyothermonth. However, the meeting notices will be sent to you monthly. Note, please see the first three flyers on major events. We added to this notice schedule, WALDUC, our Washington State Meetings. Attend a meeting in your locality! Get Well – Judith Weeg, President Tracie Schissel V.P. LDUC Leslie Wermers, former Director of Research Meet the founders of the Lyme Disease United Coalition: • The photo on the left was taken of Judith Weeg in the same month she developed Lyme disease from a tick bite in Philadelphia, PA. Her life, today, is in a wheelchair. In the fifteen years of illness, she has survived serious brain damage due to Ld, and cancer due to Ld. Judith’s goal is to save every possible life from advanced Ld, worldwide, and to educate the public, as well as physicians (via ILADS) in the knowledge of Ld. • Tracie Schissel and Leslie Wermers (Ld patients) are sisters from Minnesota. Our dear Leslie died from the complications of Ld on November 2, 2008. She is now with the angels, and watches over her sister, and the LDUC. • Tracie Schissel advocates for Ld patients, worldwide, as well as directs the ship of Minnesota Lymefighters advocacy, and works tirelessly on the leadership of the LDUC. We are a support group focusing on guidance, advocacy and education for those whose lives are affected by Lyme disease and other Tick-Borne Infections. Patients, those who suspect Lyme, caregivers, family, and friends are welcome! Professionals are also welcome to come and learn from patients themselves! Where: Key Center Library 8905 Key Peninsula Hwy. N Lakebay, WA 98349 Heading West: take Hwy 16 to the Purdy/302 Exit; follow the Key Peninsula Hwy to the above address Heading East: take Hwy 3 to Hwy 301, then to the Elgin-Clifton Rd. Exit. Head south (make a right at the light) on Key Pen Hwy to the above address Meetings are held every month on the 1st Saturday From 3p-5p in the Meeting Room - The library offers tables and some chairs - Bring your own portable chairs, pillows or blankets for comfort - This is a scent-free meeting (e.g. no perfumes please) Note: December’s meeting will be held on the 2nd Saturday (December 12th) because of the Holidays. If you have any questions, please contact Anna “Willo” Hart at firstname.lastname@example.org or (253) 307-4637 Lyme Disease United Coalition P.O. Box 86, Story City, IA 50248 (515) 432‐3628 email@example.com www.lymeiniowa.org www.iowalyme.org www.lymefighters.org ****************************************************************************** We welcome you to a Lecture about the International Lyme and Associated Diseases Society (ILADS) 2009 Scientific Session. • Learn about the latest treatment paths for Lyme disease • For more information: (515) 432-3628 • Presenter: Dr. P. – ILADS and Iowa Physician • Date: Thursday, November 5, 2009 • Time: 6:00 pm – 8:45 pm • Location: Marion Public Library 1095 6th Avenue Marion, Iowa (Suburb of Cedar Rapids, Iowa) • Directions: Marion Library, 1095 6th Ave. The Marion Library is just one block from the 7th Avenue and 10th Street stop light. (Marion’s 7th Avenue is the same as Cedar Rapids’ 1st Avenue). Lyme Disease United Coalition P.O. Box 86, Story City, IA 50248 (515) 432‐3628 firstname.lastname@example.org www.lymeiniowa.org www.iowalyme.org www.lymefighters.org ****************************************************************************** See Iowans featured in: “UNDER OUR SKIN” Rated PG13 A new film about the secret Lyme disease epidemic Lyme disease is in every state! Friday Evening November 13, 2009 7 p.m. St. Luke’s Hospital Auditorium LL 2720 Stone Park Blvd. Sioux City, IA For further information – call (515) 432-3628 A dramatic tale of medicine and money, this film investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS. Each year thousands go undiagnosed or misdiagnosed, told that their symptoms are "all in their head." Following the stories of patients and physicians as they battle for their lives and livelihoods, the film brings into focus a haunting picture of our health care system. To watch a 4-minute trailer of this film, see www.openeyepictures.com A finalist for the Tribeca Film Festival Audience Choice Award *** Free Entry --- No charge! *** ***Donations Welcome – and needed to educate Iowans about Lyme Disease** ***Directions to Sioux City Chapter Meetings at St. Luke’s Hospital. From I-29 North, go to 147 B Exit (which is Nebraska Street) – follows Nebraska Street straight to 27th Street and then turn left onto 27th Street. Go one block and you will come to St. Luke’s Regional Medical Center (2720 Stone Park Blvd). There is free parking across the street from the hospital. Enter the first building on the left’s canopy (as it is the main hospital building) and go to the right to the public elevators. Go to the lower level and go to the atrium. Follow the signs to Lower Level auditorium. Grinnell Chapter Nebraska LDUC Location: United Methodist Church –Grinnell, IA Location: Lifelong Learning Center at North East Community Dates: Meets every month on the last Thursday. College • November 19 (not last Thursday due to Thanksgiving) 801 E. Benjamin Avenue, Norfolk, NE Time: 7‐9 pm Streets (go towards Mississippi River) – when get to downtown Topic: Open discussion *** check the computer kiosk in the hall for the proper room A free will offering will be taken Date: 4th Tuesday of each month ‐ November 24 Time: 7 p.m. Sioux City Chapter Topic: see above Location: St. Luke’s Hospital in Sioux City—Auditorium Dates: Friday ‐ November 13 Nevada LDUC Las Vegas Time: 7 pm‐9 pm Location: Mountainview Hospital Topic: “Under Our Skin” documentary to be shown in LL Dates: auditorium • November 6 • December 4 Des Moines Chapter Time: 6:00 pm – 7:30 pm Location: Lutheran Church of Hope (925 Jordan Creek Pkwy, Topic: Conference report on Reno, NV Annual Room 201) Contact: Susan Ward for more info: email@example.com Dates: Friday, November 20th or call: (702) 515‐1488 Time: 7:00 pm – 9:00 pm Topic: Showing “Under Our Skin” Kansas LDUC—Lawrence A free will offering will be taken For on‐line support groups go to firstname.lastname@example.org or contact Peggy Blumhagen at (785) 840‐9387 Cedar Rapids Chapter Location: Marion Public Library, Marion, IA — Meeting Room A Washington State Support Group (WALDUC) Dates: Thursday ‐ November 5 Location: Andrea’s Cabana – NE 140th Street – Seattle, WA Time: 6:00 pm – 8:45 pm Date: Every 1st Saturday of the Month Topic: Dr. P., ILADS physician speaks about ILADS scientific Time: 3‐5 p.m. session conference Topic: Open Note: All meetings are scent‐free (no perfumes) Council Bluffs/Omaha Chapter Use of sauna and hot tub often meetings Location: Fire Station #4, 2111 Greenview Dr. Dates: Tuesday ‐ November 17 Kitsap Lyme, Lakebay, WA Time: 7:00 pm – 9:00 pm Location: Key Center Library, 8905 Key Peninsula Hwy. N, Topic: To be announced Lakebay, WA 98349 in the meeting room A free will offering will be taken Date: Every 1st Saturday of the Month Time: 3‐5 p.m. Davenport Chapter Topic: Open Location: Davenport Public Library Note: All meetings are scent‐free (no perfumes) 321 Main Street Davenport, IA December meeting will be on the 2nd Saturday ‐ Dec. 12th due to Dates: Third Saturday of the month ‐ November 21 the holidays Time: 2:00 p.m. – 4:00 p.m. Topic: To be announced *** Directions to Grinnell Chapter Meetings at United Methodist A free will offering will be taken Church at 5th and Park. When coming on 6th Avenue, turn south onto Park Street. Go one block to the church. When coming on Bremer County, Iowa 146, turn east on 5th Street, go 3 blocks and the church will be on Lyme and Hormone Difficulties Special Interest Group the right side. Location: Waverly Public Library 1500 West Bremer Ave., Waverly, IA ***Directions to Sioux City Chapter Meetings at St. Lukes Date: Thursday— November 19 Hospital. From I‐29 north, go to 147 B Exit (which is Nebraska Time: 6:30 p.m. Street) – follows Nebraska Street straight to 27th Street and then Topic: Open Discussion turn left onto 27th Street. Go one block and you will come to St. Directions: Hwy 218 West to Hwy 3/or, Bremer Avenue ‐‐ Luke’s Regional Medical Center (2720 Stone Park Blvd). There is library at 1500 Bremer Avenue free parking across the street from the hospital. Enter the first building on the left’s canopy (as it is the main hospital building) Minnesota Lymefighters Advocacy and go to the right to the public elevators. Go to the lower level Location: The Brainerd Public Library and go to the atrium. Follow the signs. 416 South 5th Street Brainerd, MN Date: Tuesday ‐November 20 *** Directions to Des Moines Chapter and Children’s Group Time: 6:00 p.m. – 10: p.m. Meetings— Lutheran Church of Hope, 925 Jordan Creek Pkwy, Topic: Open Forum West Des Moines, IA. Take I80 to Jordan Creek Exit and follow to Ashworth Rd. The church is on the corner of Ashworth and In the Lymelight, MN LDUC Jordan Creek Pkwy – go to the main entrance to room 201. Location: Contact: Jackie Penke (320) 234‐3666 for location (Handicapped accessible and parking at church.) For any further Date: Third Sunday of Every Month directions, please go to www.hopewdm.org. • November 15 Time: 6:30 p.m. *** Directions to (Cedar Rapids) Marion Library, 1095 6th Ave. Topic: Varied Forum The Marion Library is just one block from the 7th Avenue and 10th Street stop light. (Marion’s 7th Avenue is the same as Cedar the street, walk through the gate and follow the signs to the Rapids’ 1st Avenue). cabana located near the pool. ***Directions to Council Bluffs/Omaha Chapter Meeting ***Directions to Kitsap Meeting, Lakebay, WA From the West: Take I‐80 East. At the I‐80 I‐29 split, stay to the Meeting Room: Key Center Library, 8905 Key Peninsula Hwy N left on I‐80. I‐80 East to Exit 5 in Council Bluffs (Madison Heading West: take Hwy 16 to the Purdy/302 Exit; follow the Ave/Council Bluffs exit) Turn Right onto Madison Ave. Turn Key Peninsula Hwy to the above address Right onto Valley View. Turn Left onto Greenview Dr. The Heading East: take Hwy 3 to Hwy 301, then to the Elgin‐Clifton address is 2111 Greenview Dr. Fire Station #4, On the corner. Rd. Exit. Head south (make a right at the light) on Key Pen Hwy From the East: Take I‐80 West. I‐80 West to Exit 5 (Madison to the above address Ave/Council Bluffs exit). Turn Left onto Madison Ave. Turn Right Frequently Requested Phone Numbers & Websites onto Valley View. Turn Left onto Greenview Dr. The address is 2111 Greenview Dr. Fire Station #4, On the corner. • For natural (no chemicals) tick‐prevention bug spray *** Directions to Davenport Chapter (good for children, adults, and animals) BEAT IT 1‐ I‐80 to Brady Street Exit which becomes Welcomway and 800‐219‐9765 Harrison area—go to one‐way and go East and then turn right onto Main Street. Library is at 321 North Main Street. *** Directions to SisterGroup —Minnesota Lymefighter’s Advocacy — Brainerd Library’s address: 416 S 5th Street, Brainerd, MN 56401 (218) 829‐5574 (library phone number). Directions: intersection of Hwy 210 (Washington Street) to 4th Street. Turn south on 4th Street. Go two blocks to the stop sign. Turn left on Laurel Street. Go one block. Turn right on 5th Street. Go two blocks. The Brainerd Library will be on your right side. Park in the library’s main parking lot and use the main entrance for the meeting room. *** Directions to In the Lyme Light, MN LDUC Call Jackie Penke for details (320) 234‐3666 ***Directions to Nebraska LDUC – 1. Coming from Council Bluffs, IA – I 680 West to North Omaha, NE to 275 North – go 71 miles to Norfolk – turn Right onto NE 35 West and go 1.1 miles – (at Norfolk) – stay straight onto North Victory Rd in Norfolk‐ go left onto Benjamin Ave. on right side of road is NE Community College‐ Lifelong Learning Center is at center of college (it is the 1st bldg to be seen from highway) – free • Lawn spray to prevent ticks in your yard parking / handicap accessible TRIAZICIDE 1‐800‐917‐5438 2. If coming from Northern NE to Norfolk – Hwy 81 South into • Best tick‐prevention for pets – “Frontline” – (at Norfolk – go left onto Benjamin Ave‐ go to 2 stoplights and NE Veterinarian’s office) Community College is on the left side – past the railroad tracks— it is the 1st bldg viewed from the highway‐ go left—free parking on the right • Best tick non‐aerosol for clothing (tick prevention) ‐‐‐ “Clothing and Gear Spray” with Permethrin – check with *** Directions to Nevada LDUC – Mountainview Hospital, 3100 your local “outdoor” shop ‐ $15 for 32 oz bottle. North Tenaya Way, Las Vegas, NV 89128 Free Valet parking is available for the members’ convenience. Prescription Hope (IV and oral antibiotics for low‐income Ld Signs are posted and a greeter is assigned. patients) 1‐877‐296‐4673 ***Directions to Seattle Lyme Group – Andrea (206) 6693146 Needy Meds (medicines for low‐income patients) – 1. From I‐5 north take 130th exit; just before the light at 130th, www.needymeds.org ‐ You may also call 1‐978‐865‐4115 turn right onto Roosevelt Way, turn left onto 15th Ave NE (major intersection with a chevron, 7‐11, Brown Bear Car Wash and Newspaper publication about Lyme Disease‐ Sylvan Learning Center on the corners); turn right onto NE 135th www.publichealthalert.com (free to read online) Street; turn left onto 17th Ave NE. At NE 140th Street you will see the back gate/entrance of our condo complex on the left. Find parking on the street, walk through the gate and follow the signs Military Group Support —– to the cabana located near the pool. http://health.groups.yahoo.com/group/militarylyme 2. From I‐5 South take N 145th Street exit; turn left onto N 145th • Need a wheelchair, or a handicapped‐equipped car, or Street; pas through traffic light at 15th Ave NE; take next right other services for those on Disability? onto 17th Ave NE. At NE 140th Street you will see the back Iowa Compass 1‐800‐779‐2001 gate/entrance of our condo complex on the left. Find parking on Department of Human Services (DHS) ‐ waivers for chronically ill Best Western Medicine websites for Ld: patients: call 211 in your state. www.drerniemurakami.com • ILL & HANDICAP waiver www.jemsekspeciality.com • Brain Injury waiver • Elderly waiver] Free Air flights to Doctor’s Appointments – • Physically Disabled waiver http://aircareall.org/listings.htm • Monavie—healing juice—enhances immune system • To Order “Under Our Skin” DVD DRCHCGO@aol.com Betty: (641) 990‐7806 www.openeyepictures.com • Oreganax (natural antibiotic) • To order Films & Documentaries regarding Lyme North American Herb & Spice Co. disease 1‐800‐243‐5242 • “Nuts and Bolts of Ld” – Treatment Guidelines www.ilads.org or www.lymelife.com • Epicor – vitamin to enhance the immune system • Magazine about Lyme Disease 1‐866‐994‐9155 or 1‐888‐401‐1105 www.lymetimes.org Chemical Free • Newspaper publication about Lyme Disease— www.publichealthalert,.com (free to read online) • Vitamins & environmentally safe soaps, Call Lyme disease patient – Reading List Judy Dwire at 1‐218‐251‐1959 Go to www.lymebook.com to order some of the books listed: Coping with Lyme Disease by Denise Lang • Longevity Plus‐ Immuni T3 (based on transfer factor) ‐‐ Beating Lyme by Constance Bean (for HHV‐6) Immune booster 1‐800‐580‐7587 Treating Lyme Disease by Bryan Rosner (or several others by www.longevityplus.com Bryan Rosner) Babesia by Dr. James Schaller • Alternative medicines – Dr. Scott Taylor, DVM The Use of the Herb Artimesia for Babesia, Malaria, and Cancer by www.myremedi.com Dr. James Schaller Lyme in Rhyme (for children) by Gerri Rodda, RN • Rife machine – call Dan Tracy to order at Cure Unknown by Pamela Weintraub 1‐518‐548‐8495 (about $500) Cell Wall Deficient Forms by Dr. Lida Mattman Bulls Eye – Unraveling the Medical Mystery of Lyme Disease by • Rockford Hyperbaric Chamber, Rockford, IL (1‐ 815‐ Dr. Jonathan Edlow 395‐1450) Everything You Need to Know About Lyme Disease by Karen Vanderhoff‐Forschner Widening Circle by Polly Murray • To order Western Blot test kits to test for Lyme disease Lyme Disease Update: Science, Policy, and Law by Marcus Cohen (IGENEX Labs) 1‐800‐832‐3200 Lyme Times Magazine ‐‐ www.lymetimes.org Public Health Alert newspaper – www.publichealthaler.com • Fry Labs (for Co‐infection testing): 1‐480‐292‐8560 The Lyme Disease Solution by Dr. Kenneth Singleton www.frylaboratories.com The Lyme Disease Survival Guide by Bryan Rosner Baker’s Dozen by P.J. Langhoff • Clongen Labs (to test tick for Ld): 1‐301‐916‐0173 Insights into Lyme Disease Treatment: 13 Lyme– literate health care practitioners share their healing strategies by Connie IV Care Companies Strasheim Healing Lyme: Natural Healing and Prevention of Lyme All of the companies below are in every state in the U.S.: Borreliosis and its Coinfections by Stephen Harrod Buhner Coram Health Care —– coramHC.com For books written by Sarah Endorf (a Lyme disease teen‐age Phone numbers listed of the branches in US or call: patient) go to: www.unsungneighbors.com Nationwide: 1‐800‐423‐1411 Additional reading suggestions~ Iowa: 1‐800‐999‐2298 The Makers Diet by Jordan Rubin (healing diet for illness) The Mediterranean Diet by Melissa Cloutier (healing diet for Ld Option Care ‐ Call general information to get phone numbers in patients) your state. The Mediterranean Cookbook by Nancy Jenkins Iowa: 1‐800‐755‐699 Free catalogues to order, to enhance Lyme disease care: Iowa: 1‐319‐363‐1284 Support Plus: 1‐800‐229‐2910 www.supportplus.com Infuserv America: 1‐800‐866‐9222 Gold Violin: 1‐877‐648‐8400 www.goldviolin.com Apria Nursing Care — IV Care ‐ Nationwide Foot Smart: 1‐800‐870‐7149 Iowa: (515) 270‐0536 Dr. Leonard’s Health Care catalogue: 1‐800‐785‐0880 Iowa: Wesley Home Health Care (515) 288‐3334 Swanson’s Catalogue (very inexpensive vitamins, yet good source for vitamins): 1‐800‐437‐4148 Best Eastern Medicine website for Ld Sleep Solutions Catalogue: (800) 810‐2340 www.myremedi.com www.shopsleepsolutions.com www.thehealingartspartnership.com To order Lyme disease literature for your community (there is a cost for postage, but brochures are free) – To order any of the following from LDA – Patient Advocate Foundation • “The ABC’s of Lyme Disease” Suite 200 • “The Lyme R Primer” 700 Thimble Shoas Blvd • “Tick Cards” —– To order‐ call 1‐888‐366‐6611 or Newport News, VA 23606 e‐mail email@example.com 1‐866‐512‐3861 To order any of the following from ILADS – • “What Every Primary Care Physician Should Know Please see the following internet connections About Lyme Disease” that may be of aid to you —– • “Lyme Disease Physician Training Program” www.lymepa.org/Basics2007v1.2Rev.pdf —– free downloadable • Psychiatric Lyme disease” brochure “Lyme Disease and associated tick-borne diseases: The To order‐ call 1‐301‐263‐1080 or e‐mail: firstname.lastname@example.org Basics” 5th Edition 2007 by Douglas W. Fearn, of the Lyme Disease Association of Southeastern Pennsylvania. Written in a nontechnical Disability Aid – question-and-answer format and was reviewed for accuracy “Iowa Compass‐ Your Guide to Disability”“ by several prominent Lyme-literate physicians. Call 1‐800‐779‐2001 to order or e‐mail Iowa‐ www.ilads.org — website of the International Lyme and Associated email@example.com Diseases Society. Download Dr. Burruscano’s Lyme treatment guidelines and a variety of useful brochures. Department of Human Services (DHS) waivers for chronically ill www.lymenet.de/literatur/vtsherr_gut.htm —–gastrointestinal patients: (call 211 in your state) manifestations of Lyme. Attorneys www.mentalhealthandillness.com/lymeArticles.htm --psychiatric To locate a Disability Attorney in your state – manifestations of Lyme. E‐mail: NOSSCR@ATT.net or call 1‐800‐431‐2804 www.lymeinfo.net/multiplesclerosis.html —– Lyme and multiple sclerosis Social Security Disability Attorneys— www.publichealthalert.com --monthly newspaper on Lyme and related issues. Read it free on-line. • Max Schott & Associates PregLyme —– yahoo group for Lyme and pregnancy. Windsor Heights IA www.lymeinducedautism.com —– Lyme and autism (515) 277‐4727 www.lymedoctor.com —– website for the book The Lyme Disease • Neil Good Solution, by Dr. Kenneth Singleton. Highly recommended as a primer Chicago IL for people needing to learn about Lyme disease, fast (847) 577‐4476 www.cureunknown.com —– website for book Cure Unknown: Workman’s Compensation Lawyer—Iowa Insidethe Lyme Epidemic, by Pamela Weintraub. Excellent • Hamilton Law Firm explanation of the scientific, medical and political turmoil Jim Hamilton, Attorney surrounding Lyme disease. Clive, IA www.underourskin.com —– website for Under Our Skin, (515) 309‐3536 awardwinning documentary film about Lyme disease. Bill L’Esperance Will sue Veteran’s Affairs Will sue Insurance Companies in Federal Court ***Reprinted from: Prime Time Lyme Newsletter: September 2009 18664630143 or (505) 2668482 Under Our Skin Available for Purchase The long-awaited final version of the DVD “Under Our Skin” is Suicide Prevention finally available for purchase. The preview version became available 24‐hour phone lines open a year ago. This new version is the exact same basic film, with Suicide Prevention: 1‐800‐273‐TALK additional features: new data; an hour of bonus footage, including National Suicide Prevention Lifeline 1‐800‐273‐8255 interviews with the filmmakers and subjects; theater trailer; character updates; and deleted scenes. It also includes director’s commentary, Foundations That May Help Spanish and French subtitles, closed-captioning, and a 32-page Patients with Medicine Costs informational booklet. It has extended interviews with author Amy Tan and Lyme discoverer, Dr. Willy Burgdorfer, plus a cameo by U2’s, The Edge. This DVD has just become available. Orders will Patient Access Network start shipping on Sept. 29. For private home use, the cost of the DVD Foundation is $34.95 plus$6 shipping. The cost with the legal right to show it to PO Box 221858 support groups or the public is $95. This does not include the right to Charlotte, NC 28222‐1858 charge admission. To charge admission or to show the film as a 1‐866‐316‐PANF (7263) fundraiser, contact firstname.lastname@example.org. To order the film, www.patientaccessnetwork.org visit www.underourskin.com and click on “Store” at the top of the screen. The Health Well Foundation PO Box 4133 Inexpensive Herbs and Vitamins Gaithersburg, MD 20878 Lyme patients are saving money in vitamin and herb needs by 1‐800‐675‐8416 ordering from a Fargo, ND company: www.healthwellfoundation.org • Swanson Health Products Catalogue 1-800-437-4148 www.swansonvitamins.com Chronic Disease Fund For example, the herb, marshmallow is $3.99 per bottle at Swanson’s, Suite 400 Vs. a traditional health food store cost of $10.99 per bottle. 10880 John W. Elliott Drive Frisco, TX 75034 …continued next page Marshmallow is an herb that combats nausea and aids in healing *LIFE IN THE LYMEBLIGHT lesions in the stomach, and intestines of Lyme patients. Milk Thistle Written by Steve Ward, edited by Susan Ward is another herb that is only $1.99 per bottle. Milk Thistle is an herb Nevada Lyme Disease United Coalition which protects the liver, as Lyme patients take large dosages of required antibiotics. Swanson’s Health was established in 1969, and Days are long, the pains are strong is a family run business. Nights don’t provide relief VOLUNTEERS NEEDED This disease hides very deeply inside People don’t believe your grief Volunteers needed in each state to aide state leaders. What is needed: • On-line researchers Even though, not long ago • Volunteers to help with lectures and major events You felt much younger than your years • LD brochure distributors in various communities Lyme disease, this damned disease Now your future is clouded with tears • Fundraisers for the LDUC • Help to set up support group meetings You now feel ten times your age • “Suggestion” volunteers —– suggestions for speakers for LD The Book of Life has missed this page support groups What’s in store no one can tell To volunteer e-mail: You just suffer in your private hell Ticktalk2@mchsi.com Phone: (515) 432-3628 Insurance companies dismiss your health Their soulless goal, their enormous wealth Their hired guns deny our desperate claims FOR SUPPORT INFORMATION While our bodies get sicker, our joints in flames Their refusals reflect their woeful shame If you are in Illinois and need support group information —– contact: You want to scream, but no one hears Lauren Egler . E-mail: Laurenegler@comcast.net Your pain‐filled cries only meet deaf ears You’re too exhausted to reclaim your life • If you are in Kansas —– (LDUC Affiliate) —— contact: Shredded forever by Lyme’s jagged knife Peggy Blumhagen E-mail: Kansasemail@example.com Try making a living, it’s always the same New LDUC Tulsa, OK- St. Louis, Mo- Omaha, NE support groups Boss calls you lazy, abuse your good name Forming-details… Ticktalk2@mchsi.com Though once you were their shining star You cannot be that anymore They ask the impossible, and then show you the door They don’t understand and they don’t care to learn The LDA of IA & LDUC promotes safe, alternative health care, You’re not the same person and your body just burns but advises checking with your LLMD physician to OK all You sweat, you shake, and you nearly pass out products mentioned Your future employment is in serious doubt ***DISCLAIMER*** You want to fight, but have no strength Judith Weeg is not a physician, and ideas on products You are tired, pained and kept at arm’s length promoted are suggested only, in conjunction with, your Wherever you turn there’s a wall in your face physicianprescribed health care plan. At work you no longer can keep up the pace Although, this is not what you planned to do Life as you knew it is decidedly through This battle to save both body and mind Is so hard in a world that feels so unkind Never again to play like the rest of you Work then collapse, it’s the best you can do In pain, in sickness in each endless day This damned Lyme disease stole my life away *Copyright pending. This is dedicated to: Ms. Judith Weeg (for her unrelenting effort to help those of us suffering – thank you Judy – I would not be on my hopeful road to surviving without you) and; Every one of us struggling through this battle to survive with hope, health and dignity in our futures. God Bless.
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