ccanetwork newsletter of the children’s craniofacial association Cher — honorary chairperson winter 2007 inside cca teen nick lincavage . . . . . . . . . 2 cca teen elizabeth erickson . . . . . . 3 cca supersib nathan lincavage . . . . . . 4 new board member . . . . 5 good news . . . . . . . . . . . 5 holiday parties. . . . . . . 6-7 message calendar of events . . . . . . 7 from the Burzio family: (back row) Ashton, Bret, Catherine; (front row) chairman revamping the dream . 8-9 Pauline, J.B., August fundraising . . . . . . . . . 11 golf tournament. . . . . . 13 life with pauline By Catherine Burzio a s we start a new year, we always look back to see what we did right— e fundraising and what we can improve veryone has momentous days. Important days that upon. Our CCA families did news . . . . . . . . . . . 14-15 etch into your memory. Marriage. The birth of a child. a lot of things right in cca programs . . . . . . . . 15 The first full night of sleep after the child’s birth. 2006, and we want to There is one unsung day that holds great significance to dedicate this article to donors . . . . . . . . . . 16-19 me each year—January 19. This was the day, after two them. 3 cheers . . . . . . . . . . . . 20 months of “being watched” that solidified our journey on Family & Friends the road less traveled with our only daughter, Pauline. That Fundraising events have day brought the confirmation of significant heart grown beyond all our anomalies and a cleft lip in our unborn child. expectations, and we are Two days later, the first of four amniocenteses confirmed amazed at how talented we were having a girl! And two weeks later, further and resourceful you all are. confirmation showed our daughter had a genetic There were numerous We wish to thank Bally’s, condition, Monosomy 18p. Right before she was born, we family fundraisers held in a corporate sponsor, for helping to fund the CCANetwork. were prepped with the understanding that she would be 2006, allowing CCA to three or four pounds and more than likely a “blue baby” support the programs and Please consider a corporate services that are so sponsorship. Contact Jill because of her heart issues. important to our families. Gorecki, JGorecki@CCAKids.com see pauline, page 10 see chairman, page 9 empowering and giving hope to facially disfigured individuals and their families At left: Friend, Andrew Perry (left) with Nick Lincavage. Below left: Nick at birth. Below right: Nick with Bianca Moon. meet nick lincavage n ick Lincavage is 14 years old and lives in Lutz, a town in central Nick also has a lot of hobbies. He likes to listen to 1990s metal rock bands like Florida. He’s in eighth Slipknot and Godsmack, grade, and his favorite and he’s into computer Nick and his family have Nick was born with a cleft school subjects are math games. He likes action been involved with CCA for lip and palate. He has had and gym. games, like Mortal Combat, the past three years. He 12 surgeries so far, with the He has plenty of after- and strategy games, such as even went to a Cher first one when he was 10 school activities, too. Nick Legacy of Kain. He’s also concert, where he sat on weeks old. When asked to enjoys playing ice hockey plays Grand Theft Auto, the front row. He and his give advice for other kids and soccer. In fact, he has which he considers a big brother, Nathan, got to visit going through similar tryouts this month for his stress reliever. with Cher backstage circumstances, he said, school’s soccer team. And Nick likes a good scary afterward for about half an “Just be yourself. Don’t try he is a first-degree black movie, such as “Puppet hour. Nick can’t wait to go to act cool.” He added, belt in karate. He also helps Master” and “Child’s Play” to his third retreat this “Be happy with who you his younger brother and any type of zombie summer in Salt Lake City, are and enjoy life.” Nathan play sled hockey. movie. And likes funny where he’s looking forward Nick enjoys swimming, movies, especially anything to meeting up with friends, and since he lives in Florida, with Adam Sandler. Nick is especially his good friend he’s able to swim in the also a great cook. He grills a Andrew. ocean often. One time last good steak, and he’s been summer, when he went known to make some crabbing, a school of huge delicious brownies and ccateen fish came nearby. He said it cookies. His pets include: was so cool to be so close Sophie, his eight-year-old to them—there were about dog, and a few 40 fish total. greensingers, a type of finch. 2 ccateen meet elizabeth erickson Elizabeth with her dog, Leo. m y name is Elizabeth Erickson, I was born with this year’s retreat in Salt Lake City because I love John Beargrease Sled Schimmelpenning traveling out west, Dog Marathon in syndrome. I enjoy reading, and I can't wait to Duluth, Minnesota quilting, and watching TV. see everybody My family and I go on again. several vacations every year to places all over America including the annual CCA retreats. I love going to Camp Sunrise every year and hanging out with all of the other teens. I am going through leadership training right now and want to become a camp counselor. I love horses and going camping, and I spent a summer on my aunt's ranch in Colorado taking Elizabeth and her brothers: Brent, James and Mike, holding their poodle, Nikki. care of her horses. I'm really looking forward to Elizabeth backstage with Cher at a 2004 concert. 3 meet nathan lincavage cca supersib h ello, my name is Nathan Lincavage. I am nine years old and the Twice a month I go to the St. Pete Forum, which is sponsored by the Older brother, Nick, pushing Nathan in a game of sled hockey. little brother to Nicholas Lightning Rays, and Lincavage, who has a practice on my sled. My unilateral cleft lip and brother comes and assists palate. I have Cerebral me and all the other sled Palsy and am so lucky to team members as an able- have Nick as my big bodied skater. brother. Nick and I also enjoy Because of my CP, I walk playing video games, using a walker or forearm fishing and cuddling up crutches. I often watch my and watching a good brother play ice hockey spooky movie. I love going and I wanted to play, too. to the yearly CCA retreats, My mom found out about where I have met a lot of the Tampa Bay Lightning good friends. We have Sled Hockey Clinic for made the last two retreats: people who have Nashville and Hershey. I disabilities can’t wait to see everyone this year in Salt Lake City! 4 cca welcomes new board member c CA is privileged to have talented individuals on the board of directors who are willing to offer their particular expertise to further our mission. Recently, Kurt Allen was elected to the board. Kurt brings several much-needed talents with him. He is a CPA and attorney and has worked in financial consulting and as a financial advisor. Currently, Kurt is a financial good news a advisor and partner with the Jones Group at Merrill Lynch. dam Anderson, son of Terry and dedicated CCA Kurt lives with his wife and four daughters in Youngstown, Ohio. Join us in welcoming Kurt Allen to the volunteer Lou Anderson, of New London, CCA family! Wisconsin, recently received the NCO sword. This sword is given to a Marine who has shown the ability to be the best in the Company. After having served three tours of donors in the spotlight duty in Iraq, Adam’s superiors selected him for this dinstinguished honor. Congratulations Adam! e ach issue this year we’d like to highlight special donors who’ve made a difference for CCA with their generous contributions and kind hearts. This issue we want to express special thanks to all of our “Anonymous” donors. You know who you are! Thank you! 5 holiday party DALLAS, TEXAS c CA, together with Dr. Jeffrey Fearon, hosted its 17th annual was given a goodie bag by the firefighters! Families went home with JoAnn Turano and Rae Jene Mungioli, as well as all of the wonderful holiday party in Dallas, TX, numerous door prizes companies that donated on Saturday, December 9, supplied by many Dallas the prizes. 2006. Around 500 kids, and surrounding parents, doctors and staff businesses. Prizes included gathered for a morning full passes to Six Flags; of fun activities! team poster, stickers, limited edition collector’s ticket, hat, T-shirt, magnets and baseball cards from the Frisco Roughriders; grandstand seats to the Mesquite Rodeo; a gift certificate from the Magic Time Radio Disney Machine; passes to the entertained everyone while Fort Worth Zoo and the they munched on cake, Dallas Zoo; autographed drank punch, decorated items from the Texas cookies and made holiday Rangers and the Dallas crafts. The Dallas Mavericks; and a gift card Cowboys Cheerleaders from Pizza Hut. as well as the Dallas As expected, the Desperado Dancers were highlight of the party was there, giving autographs. Santa Claus. Children had The children had the their pictures taken with opportunity to go and see Santa and went home with a real fire a toy and a truck keepsake provided by photo. the CCA would firefighters like to thank of Plano, our Texas. Each volunteers kid who Jana Peace, visited the Beverly fire truck Butera, 6 holiday party MIDWEST o nce again in 2006, a group of CCA families from the Midwest planning a vacation? (East North Central Region) gathered in Kenosha, Wisconsin at the Parkway Chateau/Brat Stop to celebrate the t here’s a new way to support your charity! Book all of your travel needs at www.ytbtravel.com/ccakids including flights, cruises, hotels, rental cars, even your holidays. passport. A percentage comes back in funds for CCA. They were visited by And, you may rest easily, knowing the site is powered by Santa and his elf, who reliable Travelocity. passed out little Christmas trees for everyone to decorate. The kids posed with Santa for photos. calendar of events This year the noontime party date event contact May 19 Fifth Annual Dede@perceptiondesigns.com served up a Pete's Scramble for CCA pizza lunch and Beacon Hill Golf Club yummy desserts. Commerce Twp., MI Families June 28-July 1 17th Annual Cher’s Family AReeves@CCAkids.com introduced Retreat 214.570.9099 themselves to Salt Lake City, UT 800.535.3643 one another and July 22-24 2007 North American firstname.lastname@example.org tickets were Craniofacial Family Conference 888.486.1209 drawn for door Alexis Park Resort prizes. Mom, Las Vegas, NV Marla Verdone August 25 Second Annual Wendelyn’s email@example.com of Janesville has “Course of Dreams” Golf Challenge graciously Country Club of Arkansas accepted the task of Maumelle, AR planning next year’s October 13 Third Annual Friends firstname.lastname@example.org festivities. See you there! of Jeremy Golf Event www.friendsofjeremy.com Willowcreek Golf Club Big Flats, NY 7 revamping the dream By Aretha M. Miller, M.S.W., M.B.A./HCM A Parent’s Journey to Acceptance What in the world do we Just as if there was an At this time, the most I do now?” The visions of actual death, parents can do for them is provide a n article in the American Association of Plastic Surgeons their children did not include receiving the news that their child has a cleft experience the five stages of grief. This process is not experienced in a specific emotional support and comfort by acknowledging their pain and heartache, newsletter stated that in lip and/or palate or stage order. From my assisting them with clarity of the United States a child is craniosynotosis. experience as a social the physician’s disclosure born with a cleft lip or All parents hope for a worker, I have observed and begin providing palate every 75 minutes. non-complicated that the stages of shock resources that will assist The article also stated that pregnancy and a healthy and denial often go hand them as they move forword. nearly two out of every birth. Even when genetic in hand. Also, some may What concerns me most 1,000 infants born will testing and ultrasounds re-experience some of is the parent who receives have some type of indicate with enormous these stages. For example, the unexpected physician’s craniofacial birth defect. certainty that a child will even when acceptance report and skips from the Every day, new parents are be born with some occurs, the feelings of guilt shock stage directly to the introduced to the reality deformities, many parents and grief may reoccur. acceptance stage. These that their child may not still hold fast to a little seed parents are in the social It’s Okay to Cry just look different but may of hope for the possibility worker’s office the next Crying is truly a healing have physical, emotional that the medical team was morning, taking notes and and cleansing reaction. and intellectual incorrect in their diagnosis. making detailed lists. They When given traumatic or developmental delays. start calling at once for Stages of Grief un-expected news, crying is appointments and The Dream vs. the For many parents, one of the most natural information. When it Reality learning that their child has reactions. It does not becomes difficult to speak As the social worker for a “syndrome or disorder or matter if it is good news or to someone immediately, the Miami Children’s craniofacial anomaly” is as bad. they become intensely Hospital Craniofacial Team, traumatic as being told As a pediatric social frustrated and emotionally as well as the Dan Marino that their child is terminally worker in a hospital distressed. I have seen this Center for children with ill. They often grieve for setting, I cannot count the happen often. autism, I am referred to the child they thought they number of times I am These are usually the parents whose children were going to have. frantically paged in the people who need the most have been newly diagnosed hospital because a parent Five Significant Stages emotional/clinical support. with a craniofacial anomaly. is crying. Whether the of Grief They are still in shock, Often at the initial meeting parent cries soft, silent 1. Shock denial or any combination with parents, I can sense tears or wails aloud, it is an 2. Denial/Anger of the grief emotions. uncertainty and despair. emotionally healthy 3. Guilt/Bargaining Often, it is not until they I look into eyes that ask reaction. 4. Sadness/Depression have this breakdown or “How did this happen? 5. Acceptance 8 continued next page breakthrough that they are achievable goals for their chairman, from page 1 able to truly grieve. children. Sometimes this process begins simply by This is a wonderful to educate and comfort Coming to Terms with achievement, and you are many more new parents. encouraging the parents to the Reality to be applauded. With the help of our get to know their children. Parents who are able to You held golf regional coordinators and Often parents get so tournaments, bingo, yoga local volunteers, we want accept, experience, adjust caught up in the child’s sessions, denim days, to reach out to help and reinvest, are ready to diagnosis, treatments and raffles, shopping and dining thousands of families who deal with what God or life incentives, email campaigns are unaware CCA exists for therapies that they forget has dealt them. The initial and gift-wrapping—all for them. You are our biggest about the child as an grief will be losing their CCA’s benefit. These are and most important individual. Parents have to “dream child,” but they just a few of the many resource for both spreading learn their child’s strengths events held around the the word and raising funds. reinvest in the child they and areas of concern. This country, and all were great With families and friends all have. For some parents, will assist with finding and successes. across the country pitching the grieving process may building the appropriate As important as money is in, we can reach our goals. start again when they find to operating an organization So, if you think you can medical and educational that their child’s outlook is like CCA, belief in you is get out in your community teams needed. poor, if not terminal. what makes us worthy. and spread the word, or if As a social worker, my This is why psychological And without the dedication you think you can help by responsibility in the of our families, staff, holding a fundraiser (big or intervention is important acceptance process is to regional coordinators and small), just let us know. We for families who have an educate parents and arm volunteering friends we will give you the tools to “atypical” family member. would never be able to accomplish the job. them with resources that Support groups, as well as reach our goals. We thank you for your empower. With the right family and individual This is YOUR charity, and dedication and information and/or counseling provide an I am thrilled to see how determination to see that psychological help, parents you have taken ownership those with craniofacial outlet and comfort which can move through the of CCA. It brings a new differences are seen just as lets them know they are acceptance stage and, dimension and clarity to everyone else—capable, not alone. As a helping ultimately, be the child’s our mission: to empower talented, smart and professional, there must be and give hope to individuals beautiful. greatest source of support. value placed in with craniofacial conditions religious/spiritual types of Arletha M. Miller, M.S.W, and their families. It inspires support. Spiritual M.B.A./HCM is a clinical social us all to be more, be better, worker currently working in and think bigger. And, it counseling is often sought both pediatric and adult gives strength and hope to as an alternative or in medicine. those who need it most. conjunction with clinical CCA is reaching a new therapy. level, which brings with it As parents move forward new responsibilities. In in the acceptance stage, 2007, our goal is to they are able to reconstruct enhance our website and make it more interactive to their expectations for their adults, teens and our Tony Davis, DMD child. With guidance, younger children. We want Chairman of the Board parents learn how to set to add to our list of syndrome booklets in order 9 pauline, from page 1 spent countless hours on would be out of commission the road seeing specialists for many months. She was and surgeons those first back to school in roughly few years. I wish I had a four weeks and riding a bike penny for every mile we again in just under one year. have logged on the road to I am learning there are and from doctor and many waves in this life, but hospital visits over the past one thing remains 12-plus years. It might just constant: our faith. It is a get us out of medical debt! choice of faith to find joy This life is a perpetual in each day. learning curve. Once I think Pauline’s name means I have a grasp on where “short in stature, but great we are, the rules change. in heart”—a perfect name! This was the case Her brothers prefer to call November 8, 2005. her “Miss Sassy Pants” or A loud “tink” and the “Pest.” I guess some things cries of a man on our ARE normal. street prompted us to run Ashton is 17 now and an out of our home to see our amazing big brother to beautiful girl who had Pauline. There are times After weeks of prayer, describe, even in the beaten so many odds and when she asks for him preparation and grieving, simplest of terms, what a defied so many doctors, after surgeries and not us! our nine-pound, genetic condition was or lying in the middle of the screaming—and pink— how it would potentially road, unconscious and baby girl made a grand affect the bearer. bleeding. Pauline was hit entrance into this world. After a few days in the by an SUV as she rode her Yes, they were wrong. The NICU, it was confirmed, bike, a blindsiding event first of many times Pauline Pauline not only had 18p, that left us all hurdling would prove the doctors she also had Hemi-facial through a maze of wrong. Microsomia, or HFM. After emotions—again. A brief kiss of her cheek two life-altering surgeries There was a time when I showed us there was more and two months in the thought I could handle in store. Her sweet face NICU, Pauline was allowed whatever came next. But, was misshapen, low set ear to come home and begin “whatever” came and I nub on the left, smaller/ her “normal” life. Normal was not so ready. After our closed left eye, and a cleft for Pauline included alarms, first medivac helicopter lip and palate. It was a feeding tubes, oxygen and ride, we landed in the startling addition to the ‘round-the-clock care— beginning of a yearlong long list of life-threatening more than a typical infant. road to recovery and issues that began our With the love and restoration. unknown journey. support of family and Pauline did an amazing All of this was new. My friends, we slowly moved job of healing and husband and I come from into a routine that included astounded everyone an arts background. time with our then four- around her. With multiple Neither of us could year-old son, Ashton. We injuries, we thought she 10 continued next page J.B. is almost 11 and is a great helper, someone who how to raise funds for cca readily jumps in to pick up the slack. August is 8 and a smiley boy, who promised me that he will c CCA depends on funds donated by individuals, proceeds from family and regarding your wishes for distribution of your assets in your will, consider a • Friends / Family Letter Appeal Draft letter to family, friends friends’ fundraising efforts, provision for CCA. Your and acquaintances— always give me hugs and planned gift in the form anyone who has met or corporate giving and kisses—no matter how old of an endowment will live encountered your child. foundation grants. The he gets. on after you. Contact CCA for a need is great as we grow When I look at my kids, I • CCA Web Store sample letter. to provide programs and know God doesn’t make You can now shop at • Kitchen Shut Down services to many more CCAKids.org for your Raise funds by raffling off mistakes. He has a great affected individuals and T-shirts, mugs, caps and chances to win meals for sense of humor, but He their families. Any help our more. So shop now and every day of the week, so doesn’t make mistakes. readers contribute is most shop often! the winner can “shut After the news was given appreciated. Here are some • Clubs / Hobbies down” their kitchen. of our baby girl’s ways to help. Have your club organize a Local restaurants can benefit for CCA. Use your donate meals or coupons. impending medical issues, • www.goodsearch.com hobby or something you This idea could be used our OB/GYN pulled Bret Enter Children’s love to do to raise funds. for a week of and I aside and said firmly, Craniofacial Association • Denim Days entertainment, such as “Today you have two as your beneficiary Raise funds at work for movie rentals or theater things to do. First, go charity. (You only have to CCA. Establish a special tickets. Call CCA for do this the first time. You day or days for more information. downstairs and make sure may add others if you employees to make a • Collection Cans Ask your insurance is in order. wish.) CCA will receive designated donation local businesses to place This is your ‘million dollar up to a penny each time (cash or check) to CCA in a can or box (provided by baby.’ And second, decide someone uses the return for wearing blue CCA) to collect donations today whether or not you GoodSearch search jeans. The donation is or take a can around to engine. usually $1 to $5, collect donations. will stay married.” • Cash for Trash! depending on how often • Get On Board! Read our That day, we confirmed Save your discarded cell the event takes place (for newsletter and learn our insurance and drove phones and empty laser / example $1 for a weekly about and participate in home in silence. We made ink cartridges and CCA donation, $5 for a the events, raffles and a silent vow to each other can turn them in for monthly donation). Any funding efforts of CCA and our growing family. rebate funds. Call us higher amount would be and our supporters. Pass at 214-570-9099 or at the discretion of the the donor envelope to With the divorce rate at 800-535-3643 for donor. someone you know roughly 50 percent more information. • Civic Organizations looking to support a nationwide and upwards • Matching Gifts Public awareness leads to charity. And when you of 80 percent when there Many companies offer a contributions. Contact are finished with your is a child with special matching gift program and solicit opportunities copy of our newsletter, that could double or even to speak to your local spread the news! Pass it needs included, we chose triple your gift to CCA! civic organizations such along or leave it in a the road less traveled, and Contact your human as Rotary Clubs, Kiwanis waiting room. that has made all the resources office to find Clubs, even HOG (Remember to remove difference. out if your company has organizations (CCA has your address label.) such a program. many ‘biker’ supporters). • Planned Giving Distribute brochures Tax preparation time is and/or newsletters or Looking for ideas? also a good time to other CCA-sanctioned Contact Jill Gorecki at consider long-term tax materials for awareness J.Gorecki@ccakids.com savings. When you and information. Ask for consult an attorney or contributions. investment professional 11 tie one on for cca v ineyard Vines, well- known producer of 100% fine silk ties and observe the month of September, other products sporting proclaimed whimsical motifs, has by CCA as created a tie especially for “National CCA donors and friends, Craniofacial using the happy faces on Acceptance our charity logo. Month” and attention cca friends These high-end quality ties come in a choice of some are still available. Please, wear one in and families: two popular background colors, light blue or royal, support of your charity and to raise awareness that w and may be purchased for fosters acceptance of e’d like your “Mugshots”! When you purchase a $100 each, gift-boxed and individuals with facial CCA Logo Mug, send us a snapshot of you with delivered. difference. Call our office The first 100 CCA logo or go online to order your your mug for a “Mugshots” section…each newsletter ties were produced to ties! we’ll post new mugshots! win a jamaican trip! regional volunteers o n january 1st we kicked off the 2007 New Year with a raffle to Tickets sell for $5 each or $20 for 5 tickets (includes 1 free), or $100 for 30 p ublic awareness about craniofacial conditions is important on several country who have banded together in an effort to educate and inform the win a trip for two to tickets (includes 10 free). levels. public. The regional Jamaica! There is still time before It’s important that families volunteers and CCA will Thanks to the legwork of the March 15th sale find quality medical care, now turn to local areas to CCA dad, Paul Shepherd, deadline to buy a chance that healthcare recruit volunteers who will our friends at Liberty to win. THE DRAWING professionals are aware of distribute educational Travel and Air Jamaica WILL BE HELD ON THE the special medical and materials throughout their have donated a trip for FIRST DAY OF SPRING, emotional needs of children communities. two to Jamaica and as a and adults with facial If you would like to help MARCH 21ST. differences, that the public educate your community bonus, Levinthal’s in Tickets may be purchased understands and accepts and take part in this Philadelphia donated online at www.ccakids.org. facial differences and that national awareness effort, His/Hers luggage! individuals with facial call or email CCA Program difference are accepted. Director, Annie Reeves at CCA has formed a 800-535-3643 or network of regional AReeves@CCAKids.com. volunteers across the 12 friends of jeremy golf tournament t he second annual Friends of Jeremy Golf Tournament was held on organizations donated prizes and silent auction items, and various friends everyone realize that Jeremy is not alone and that CCA and the kids supported by Willow Creek Golf Club on October 13, 2007. For more information October 14, 2006, at and family members the organization are and to see photos from Willow Creek Golf Club volunteered their time to extremely special. the tournament, visit in Big Flats, NY. It was a help with the tournament. In addition to the money www.friendsofjeremy.com. cold, windy and rainy day. The tournament included raised directly from the There was even a short a raffle, silent auction, tournament, two of the period of time when it closest to the pin 50/50, golfers shared information actually started to sleet! closest to the line prize and about CCA to family But the weather did not a skins game. The members. Those families stop our dedicated golfers tournament was a huge chose to organize a and volunteers. success and we raised charitable donation fund in We are so grateful to $16,100 for CCA! lieu of Christmas gifts this everyone who supported The Friends of Jeremy holiday season. The total this event. We had an Golf tournament was extra amount donated to CCA incredible turnout and so special this year because was $2,250! Special thanks much support from the we welcomed a couple of go out to Beth and Sean community, our co- guests. CCA kids Andrew O’Neil and Mike Bernd workers, friends and family. Perry and Staci Kuppe for their support and Eighty-nine golfers, six joined Jeremy at the generosity! tournament sponsors and tournament. Having The third annual Friends 28 hole sponsors Andrew and Staci there of Jeremy Golf Tournament participated. Fifty local was very heartwarming to will be held again at businesses and national the golfers. It made 13 fundraising news The Dalton family: John, Elizabeth Ivy and Margaret f or the second holiday in a row, Margaret Jenna- Dalton of Austin, TX, whose daughter, Elizabeth Ivy was born with Apert syndrome, stood for approximately 35 back-aching hours wrapping gifts at Border’s Books in Austin to benefit CCA. Still, she reports it was an easy and fun way to raise funds for our cause and says anyone with Jennifer Guerra pictured here with daughters Olivia and Natalie a Border’s nearby should try it. She’d like to thank her Wardlaw. “posse” who helped and so would we. Many thanks to Marie Bevins, Holly Hillis, Robin Perry and Meredith k atz’s Deli in Houston, Texas, posted CCA another two times as beneficiary of their fundraising table, giving 10% of the meals served at that special table and Perry! Altogether they raised more than $750 from hundreds of customers donating for the gift-wrapping. And kudos to Border’s for this wonderful way to help charities. raising $400 for CCA kids, and then an additional $200! Thank you! Brenna Johnston Carrie Kinlen and son, Gryffin b renna Johnston’s mom, Robyn, of Eugene, OR, c held a raffle fundraiser in her daughter’s name. arrie Kinlen of Woodbury, New York, raised funds by (Brenna was born with Crouzon’s syndrome.) Robyn raised garnering a percentage of meal sales through her more than $500 for CCA! Additionally, Robyn has started workplace, Applebees. She raised more than $100 in a business with her jewelry-making hobby and will be one afternoon through the “Dining to Donate” program. passing along a percentage of her profits to benefit other She also held a 50/50 Raffle to raise additional funds for CCA kids. Visit her website at www.rrenee.com. Thank CCA. Her efforts are inspired by her son, Gryffin, who you, Robyn! was born with craniosynostosis. 14 r ose Seitz of Poland, Ohio, along with her family and friends, ccaprograms and services in the spotlight participated in the Simon Properties’ “Evening of Families of craniofacial patients often call CCA to seek Giving” fundraising emotional support, discuss problems and identify opportunity. Held the resources. Through our database, we are able to network weekend before families with support groups and/or others who have Thanksgiving throughout the country, charities are similar conditions and experiences. We also keep a list provided tickets they sell to of helpful resources and are always willing to listen and family and friends for a special night of holiday shopping offer emotional support to family members who need a and refreshments. Rose reported that Tara Angelilli sold shoulder upon which to lean. For further assistance or the most tickets for CCA. Thanks, Tara! information call Annie Reeves at 800-535-3643 or email Another friend of Rose’s, Michelle White, is a AReeves@ccakids.com BeautiControl director and suggested doing a “Spa Escape” as a fund raiser. About six girlfriends got together programs we offer one night for margaritas and a relaxing evening of • Toll-free hotline • www.ccakids.com shopping for some great products they could use every • List of qualified website day. Rose joined the BeautiControl team as a consultant in physicians • Annual Cher’s Family order to give her commission for that night, $200, to • Information and support Retreats CCA. Thanks, Rose! • Educational booklets • Public awareness • Financial assistance • Family networking • CCA Network, a • Advocacy quarterly newsletter financial assistance Buy Gifts from BeautiControl at d o you travel to receive quality medical care? If you do, and need financial help, CCA has a financial assistance program that will help with food, www.BeautiPage.com/ccafriends travel and/or lodging. Call CCA for an application at 800-535-3643. All we ask is that you apply at least and CCA gets the agent profit! four to six weeks prior to your next appointment. Questions? Email Rose Seitz at download the newsletter email@example.com These gifts cause no clutter, because i f you are currently receiving the newsletter by mail, but would rather download it from CCAKids.org, let us know by sending your email to AReeves@ccakids.com. they get used up! As an added bonus, the online version is in full color! 15 donors, january 1 – december 31, 2006* Gifts from Ron Birks & Kathi Douglas Sheree Bishop Suzanne Dunbar Carol Duston Ann Hagler Alfred Harf Susan Krebs Charles & Sean Krippes Individuals Norman Blevins Harry & Freda Eaton F. M. & L.B. Harker Mavis Kyle William & Arlene Blumenthal James Egan, DDS Carol Harman John & Kari Lackstrom Mrs. S. Oliver Bobsine Denise Elber Marilyn & Keith Harrison John & Barbara Lalonde CCA Supporters Mildred Bonneau James Ernst Pam Hartland Michael & Mary Lambert (up to $100) Mike Bosko Marlene & Eric Espinosa Linda Hartley Gregory Laney Sandra Browning Antonio & Hope Estrada Amanda Hartman Mary Langner Roscoe & Jean Abbott Jimmy & Beverly Butera Susan Evans Annabelle Hartman Claudette & Robert Langston Roy Abrams James & Brenda Burnett, Jr. Jerry & Dianne Erwin for students at Nora Haverty Pedro Lara Julie Adams Ann Byrd Bebensee Elementary Kelly Hernandez Diane & Bruce LaRue Howard Ader Lawrence & Lynda Byrne Amy Escher & Donna Poyner Andy Herszkowicz Nancy & Charles Lathrop Clara Alberts Tim Campbell Jesus Falcon Mary Heston Richard Laude Humberto Alfonso Cecile & Daniel Callahan Robert Jr. & Janice Fallon Harry Hieva Rosaro Lazo Robert Ahonen Dorothy Cameron Robin Farinholt Lora Higginbotham Stephanie & Daniel Leahy Nancy Alexander Dorothy Cantrell Frances Farlow Robin Higham Catherine Leake Carlos Alexandro Richard Carbajal Mary Farr Annie Hill Karen & Charles Lee Sharon Allbright James & Shirley Cardwell T.M. Farrell Robert Hines Howard Leeds Kenneth & Dianna Allen Della Carlin Lenard Feldham Juanita Hirschi Nevline Leitzel Otis Allen, Sr. Antonina & Giana Carpenter Matthew & Nikole Feret Gary & Edna Hjerrild Diana Lesko Carolyn Alloway Wanda Carpenter Richard Ferle Dieu Ho Jess Levya Andrew Altshule Patricia Carrasco Toni Fitzwater Jerry Hoffman Lasca Lewis Paul & Katherine Anderson James Carter, Jr. Hernando & Rita Florentino Robert Hoffman Alice Li Anonymous Henry & Margaret Cartwright JoAnn Flores Stormie Holguin Christina & Mario Linarez Thomas & Donna Antonelli Angela Cason Shelley & R. Thomas Flores, Jr. James & Carol Hopkins Damian Lively Catherine Arnold Emil Castagna Mark & Nilgun Foley Jeff Hopkins Elaine & Emmett Liveoak F. & B. Arnold Sue Catanzaro Michelle Foreman Barbara Hopwood Wayne & Margaret Loebscak Julio & Lillian Arroyo Jeffrey & Nannette Cator Elizabeth & Lawrence Forte Richard & Judy Horn William & Mary Long Lynne Arthur Jim Cayo Howard & Pamela Forthofer Lorraine Horneber Council Logan Ruth Aryee Jhenny Cepeda Gerald & Cheryl Frederick Lori Hoppe Ronald & Rosemary Logue Lillian Arzivian C. & J. Chapline Lynwood Freeland Melissa & Donald House Robin Longoria Laura Atkinson Helen Chartier Jackie & Brian Friedrichsen Richard Howe Phyllis Lopez Jan Attaway Annette Chen Samuel Fitzpatrick Lawrence & Coletta Huber Rodney Louden Bret & Molly Atwood Barbara Chernetz Harold Flynn, Jr. Clayton & Kathy Huck Kenneth & Dolores Louder Edwina & Emil Bachschmid Cyril Chrabot Janice Foster Blanche Hunter Gloria Louie Max & Jo Baer Louise Chung Gerald & Cheryl Frederick Dorothy & Matthew Hunyadi Mary Lovell Paul & Joyce Baer Furman Clark Apollonia & Lawrence Frein Joseph & Barbara Iannaccone Christian & Paula Lowell Ighal & Dalia Bahar Irene Clarici Stephen & Marion Frost Angie Ihejirika Merrill & Melinda Lower Gary Baker Carroll & Margie Climer Edward Frymer April & Jacob Iverson Lujan, Ascencion Raymond & Helen Baker Harold & Gail Cohen William & Gail Fuller, M.D. Jimmy Jay Doris & Norbert Lustine Donnie & Bobby Balentine Elvera Colon Jennifer G Dale & Joan Jennerjohn James Macaulay Barry & Marie Balch Mary Cook Tyler Gaines Paul & Patricia John Irene & Louis Macedo Peggy Banks Donald & Shirley Coon Angel Galvan Carol Johnson Joan Maddock Robert Barber Beatrice Cooper Normalita Gamboa Frances Johnson Jennifer Madden Kathy Barnett Arlene Coudare Alba Garcia Robert Johnson Duane & Janine Maddux Jose Baroma William Core Roxy & Joseph Gaskill Judy Johnston Lenia Magne Mary Barrill Anne Corley Robert & Patricia Gaug Ulah Jones Marion Mahlmeister Mary Barton K.A. Cormney Ernie & Maria Gemperle A.E. Karpin Selena Mahon Brian & Karla Baus Dorothy & Peter Cornell Mayu & Caleb George Carol & David Kalina Joseph Malangone Mary & Robert Beck Demetra Courtois Gerald Gerg Theodore Kalivas Marcella Malm Linda Bedrosian Carolyn Craig Illona Gerlock Sylvia Katowitz Thomas Malone Malcolm & Laura Beeler Lisa Crawford John Ghicondes Brian Katz Bob & Kathleen Mannis Virginia Bellinger Donald & Geraldine Critchlaw Armondo Giordani Nancy & James Kearney Jessica Manzie Eleanor & Charles Bergland Michael Csaszar Tammy Gipple Celene Keenen Carrie Maples Tammy & Andrew Berry James & Nancy Cutler Ken & Susan Godwin Valentine Keiper Marianna Marcello Patricia & Barry Berryman Marion Daly Arthur Goldberg J. Kelly Anthony & Patricia Marino David Bernstein & Andrea Zintz Eugene Dalton Sidney Goldman Jean Kelly Joseph & Frances Marino Kathleen Best J.L. Dalton Frank & Mary Goldner Eileen Kelley Eric Marx Rebecca Beverly Leo Dalton Moises & Elvira Gonzalez Kathryn Kemp Marty Mashe Marilyn F. Bickle Marion Daly Erma Gorecki Earl & Roslyn Kemberling Mark & Anita Matthews Melvin L. Bickle Davis, M.R. & A.R. Gary & Nellie Gozdowski Eileen Kemmier Angela Maubach Steven & Sue Bigham Florence Dawson J.L. Grant Nancy King Helen May Sarah Bilger Carol Debow Rosemarie Gramelspacher Anne Kirkpatrick John McCool Carlo G. Binda Grace & Gary Deily Ed & Donna Granados J. & K.R. Klass Joseph McGregor Mrs.Oliver Bobsine Henry & Marlene Deily Yuvonne Grant Kendall & Susan Klinge Roger & Barbara McNeil William & Melissa Boleman Aida Rose Delavega Robert Grathoff Bruce & Sandra Klinger Kevin McNulty Gayton & Joann Bongiorno Jane & Gary Dellorusso Ralph Green Diane & Daniel Knockeart Ellen McPadden Karen & Phil Bova Sarah Delvento Lecerrell Greene Lee & Jenny Knutson Thomas & Carol Meade Phyllis & Jerame Breeden Conrad DePinto Sharon Greene Annette Kolodny Barbara Mellendorf Jay & Deborah Breslow Louis Desanto Jeffrey Greeson Phil Konstantin Ann E. Melendy Jane Briggs Blanca DeValero Selena Griffin-Mahon Sophia Kosta Mary Mersman Suzanne Browning J. Dickson Harry Grout Edwin Kraemer Janet Metzger Angelic Bruns Florence Dockery Margaret Grupp Elizabeth Krane & Marilyn Sutherland Charles & Susan Michlik Deborah & Victor Buttner Richard & Loraine Dolecki Steve & Constance Gulley Brian & Janine Krebs Edith Mignatti Marian Burkhart Catherine Donahue Ora Lee Burnett Jeff & Kim Donner Samuel & Michelle Bustillos Doug Downs Lawrence & Lynda Byrne Nicole Dretar * Listed are monetary donations through 2006. We are extremely grateful for these and all prior donations. Randy Drew In-kind donations are not recorded here. 16 Bonita Drummond We do our best to accurately recognize donors. If you notice an error, please let us know. Guy Miller Annie & Tommy Reeves Steven & Ruby Sonntag Sylvester Weiss Mary Griffin Harper Miller Ruthie Reilly L.E. & Linda Soult, Jr. Betty Wen Maurice Gutzler Nellie Miller Jim & Sara Reinke L. James M. Spizzirri George & Marjorie West Kathy Guy Newton & Elaine Miller, Sr. Elizabeth Rhoads Grace Stanley Rodney West Robert Haley Barbara Milton Andrea Richard & Aaron Brenner Sue Steman Dorothy Whaley Denyse Halperin Joseph & Inez Mims Richard Rice & Lisa McCullough Herbert Stentzel Robert & Anjolene Whaley Kevin & Ellen Haugh Thomas & Estelle Mims Donna Richardson Nancy Stephens Byron White John J. & Arleen Heirty Mohammad Mirza Chris Riener Robert Stevenson Douglas & Dee White David & Ginger Henshall Michelle Mitchell J. & B.L. Riese Karen Stewart Barbara Wiedenman Dana & Olivia Heter Edward & Margarita Moir Calvin & Eva Riley Jane Stickney Joanie Wiinblad Michael & Tiffani Howell Jane Monell J. Reed Riley Christopher Stokes John & Remy Wilcox Kathy & Stephen Hubbard Juan Moran Consuelo Ripstra Joe & Olga Storm Francis & Heather Wills Darlene & William Hunter Theodore & Jessie Morgan Oscar Rivera Karen Stott Gay Winter Margaret & John Ingram Jack & Kim Morris Elva Robbins Doris Sturdivant Kenneth Wilson Russell & Carol Jenna Joseph & Alison Morrisey Michael Rodell Debora & Mark Sugarman Thomas Wolfe Jessetta & David Joswick Leland Moses Andrew & Diana Rodriguez Frederick & Helen Susi Jeff & Linelle Wolpa J.A. & Michael Kearney Daniel Moulton Ileana Rodriguez Alleine Swain Alfred & Mary Wood Saeed Kermani Elizabeth Moulton Gloria & James Rodriguez Olive Swanson Brian Wood Thomas & Barbara Kochendorfer Mina Mulvey Vincent & Marion Romano Elizabeth Sweeney Michael Wood Martin Koop Patricia Murphy Frederick & Kim Romeo, Jr. James Swick Winston Wood Daniel & JoAnn Kopshinsky Anthony & Marie Musumeci Aya Romero Beth Szela Willie Worthen Esther Krieger Rosetta Nazarian Joyce & Amy Ronczka Richard Szulczewski Telisa Woulard Georganne Kupau Jack Neal Cynthia Rosario Mary Taug Lynn Yetra & Ambrose Donovan Mark Lafever Cynthia Nelson T. P. & Heather Rose Bridget & Toby Todd Dr. Yezdi Lexie Lermont Janell Nelson Teddy Rose Anthony & Suzanna Tatom Chen & Amy Yu Heather Lermont-Pape David & Elaine Nelson Allan & Lisa Ross Stanley & Betty Taylor Joseph & Beatrice Zabloudil Laura Lessly Stan Nelson Harold & Ramona Roth Wayne & Patricia Taylor Joseph Zaengle John & Mary Livingston Pamela Newcomb Richard & Leigh Rouse Irina Temkin Jawed & Jacqueline Zafar S.F. Luhrs Bruce & Barbara Newman Joe Rowland Etheline Tennant Mark & Renee Zainer Steve & Chris Luhrs Joyce Nichols Jim & Diane Rumbo Truman & Mary Terrell III John Zaronios Molly & Bob Lytle Paul Niebruegge Thelma Sabim Anthony & Rae Teta Stephanie Zemon & Lee Schneider Dr. & Mrs. Macut Eldora & Howard Niedermiller Socorro Sade Thomas Thatcher Allen P. & Jacqueline Zoellick Janis & Doug Macut Ron & Jackie Nierman Leroy Saine Mr. & Mrs. Howard M. Thomas Madeline Zuckerbrow Bill Mann Sophia & Anthony Noblitt Irene Saldana Leo Thomas Stephen & Diane Manning Janet Novick Elie Saliba Page & Caryetta Thomas Richard & Beth Marsden Angel Nunez Cindy & Curt Samhammer Richard & Yvonne Thompson CCA Friends John & Cecilia Mazzocca Michael & Marti O’Brien Jaci Samhammer Louis Till III ($100 +) Alan & Jessie McCollough Michael O’Hopp Graham & Fran Sanders Patricia & Harold Timmer Virginia McFarland Geraldine O’Reilly Fayean Sandstrum Cheryl Tokuoka Amye M. Adkins Chip & Kathy Michaelson Christina O’Sullivan Joseph & Doris Sargent Chris Tosches Thomas & Betty Aguirre Zane Mizell Charles & MaryEllen Oberhauser Paul Savage Liz Tracy David & Judith Albers Laurie Monnier Trent & Julie Oden Carol Schatt Mary & Dennis Tulimieri, Sr. Carol Anthony Bobbi Morris Steven & Julia Ohrwaschel George Schedler Virginia Tutje Marie & Joseph Baniecki Alison & Joe Morrissey A. Oliveira Richard Schini Stephanie Uribe Christine Barrett John Moulton Rose Olson Hildegard & Milton Schlesinger Gary Uttke William & Madaline Barry Stan Nelson P & M Ortega William & Lori Schmidheiser Louis Valenzano Jeffrey & Elizabeth Belongia Joe Neuhof Philip & Melinda Ortega Stephen & Brooke Schnini Lucia & Scott Van Cleef Mildred Bonneau Alland & Mary Karen Newstadt Kevin D. Ortman Barry & Ellen Schultes Edwina Van Dalsem Joyce Borsellino & Bill Masloski Joseph Niebler G.D. & D.M. Otto Donald & Beverly Schultz James Van Dorn Greg Briedenbach Steven L. Page Louis Page Eric & Susan Schneider Jean Vanore Ann & William Burgin Ann Patterson & Howard Langner Stanley Palczewski Walter Schur, M.D. Maria Vasquez Nancy Burson Greg Patterson Mary & Anthony Pallante Jane Schwerd Dora Vaughn Gary & Anita Burt Fred Paul Rob & Erin Palmer Linda & David Scott James & Carrie Veach Lily Burton Hugh & Jana Peace Walter & Cecil Palmer James Sebastian Carmen & Luis Velazquez Hans Camenzind Mary, Conrad, Rebekah Perkins Charles Parrish Raymond & Donna Seehusen Kenny & Eugenia Verbeckmoes Helen Capelianis Karin Perry Nancy Patterson Cindy Seelye Marla & Bruce Verdone Larry Carpenter Rosalinda Pouya Deeanne & Steven Paulson Rose & Fred Seitz Ted Verdone, Jr. Shyam Chatlani Elizabeth Prince Bennie & Patricia Pawley Z Shah William Vestal Joe Cherry Susanne Prince Dennis & Carlotta Pawley John Shea Craig Vinson James Chiebowski Karen & Mark Proctor Joan Pedersen Kimberly Shell Brenda & Richard Viola Roger S. Chin, DDS, PS Marie Quaranta Caroline Peterssen Hassan & Shams Shirvani Elizabeth Vitez-Bainbridge David & Kris Ciccolo Ronald & Dianne Remillard Barbara Petruck Mae Shoats Leona & Margaret Vitolo Ann Connolly Angela & Brian Rhodes Sandra Pfeifer Thomas & Nell Shock Steve Vivo III Gwenith M. Corzine Tanya Rhodes Van Pham Lillian Showalter Eva Vizsolyi Diana Critchlaw Alec & Kim Roark Michael & Candace Phillips Mary Sierra Susie Vizvary Roger Dalton David & Lynn Robinson Larry & Joan Pinkerton Ann & Anthony Silano Toan Voung Margaret Davis Eric Ronczka Dorothy Poindexter Tom & Jean Silva Lucia Vulaj Milton & Yvonne Davis Jeff & Polly Rosignol Harry H. Porter, Jr. Mary Ann Silvestro Alicia A Wadas Anthony & Sandra Deakins Margaret Salvioli Candace Powell Jerry & Susan Sims David & Tammy Wagner William & Karla Dean Robert & Roberta Schini Mary Powell Rand Sinanian Clark Wallace Mark & Lania Deer Paul Schmidt Joyce M. Prather Eugene & Alethea Single Jean Wallace Lynette & Gary Doga Martin & Patricia Schweinhart Don Proper Solange Skyer Lee & Bernice Wallace Eddie Edwards Stephen & Julie Shields Joan Pupillo Mildred Slater April Walters Jerry Lynn & Dianne Erwin Brenda Siebert John & Rebecca Pupillo Daniel Smercina Eugene & Helen Walsh Maria & Mike Estrada Blythe & Sean Skarshaug Walter Pytlowany Arla Smith Linda Watson Paul & Michelle Fahey III Rubin Solis for Tower Softball Team, Debra Quattrini Claudia Smith Rita Watton Robert Feinstein Austin, TX Vincent & Suzanne Quick Donnie Smith William & Nancy Way Stephanie Floyd Karen Stott Todd Rademacher James Smith Jennifer & Paul Wayne John & Carrie Follett Franklin Tew Deborah Rader Jeanne Smith Waneta Weatherhead & Marlene Jeff & Jeanette Frazier Susan & James Thompson Marjorie Radford Jeffrey Smith Daugherty Roland & Dottie Freeman Kay Van Cleave, PH.D Vicente & Ma Judee Ramos, Jr. Margaret Smith Dennis Webster John & Marta Gadsby Robert & Rosa Maria Vargas Bette Ransbarger Marjorie Smith Debra Wedlock Roger & Audrey Gilbertson Dwight & Carrie Vaughn Martha Rasey Stephen Smith Harvey Weiner & Susan Kava Ed & Donna Granados Chelsea Recicar Temmie Smith Leslie Weisman Reynold Gravina 17 David & Adrienne Weil The Baldwin Family, in honor of Sadie Conrad DePinto, in memory of Kevin Mandie Hiznay, in honor of Freddie Javier & Lenia Lopez, in honor of Michael Weinman Vivo Dalton Seitz Gabriela Lopez John & April Wharton William & Madaline Barry, in memory Dodd Middle School, in honor of Justin James & Carol Hopkins, in honor of Mary Lovell, in honor of Peggy Leila Wiley of Kevin Dalton Prince Kathryn Hopkins McDannel Leonard & Ann Wolf Mary Beck, in honor of Freddie Seitz Loraine Dolecki, in honor of Jeff Hopkins, in honor of Kathryn Paula Lowell, in honor of Robert Dennis Wooden Robert & Mary Ann Beck, in honor of Christopher Dolecki Hopkins Walston Gabrielle Yuro Freddie Seitz Nicole Dretar, in honor of Jeremy Dale Lori Hoppe, in honor of Guerin Bell Don & Ann Lucas, in honor of Brody Myrna & Ronald Zaccagnino Laura & Malcolm Beeler, in honor of Duncan Aviation, in memory of Kevin Richard & Judy Horn, in honor of the Lucas by Nana & Papa Donna Zavahir Ava Beeler Dalton marriage of Marybeth Ayres & Jim Greg Luetkemeyer, in honor of mother, Jeffrey G. Belongia, in honor of Robbie Amy Escher & Donna Poyner, in honor King Betty Luetkemeyer Gorecki of Heather Lermont-Pape’s birthday Michael & Tiffani Howell, in honor of Doris & Norbert Lustine, in memory of CCA Extended Family Marilyn Bickle, in honor of Lara Hope & Antonio Estrada, in honor of Ruby Howell Ruth Cohen ($500 +) Verdone Antonio Estrada Kathy Hubbard, in honor of Lizzy Janis & Doug Macut, in honor of Dr. Melvin Bickle, in honor of Lara Mary & Mike Estrada, in honor of Hubbard Savi Anonymous Verdone Antonio Estrada Kathy & Steven Hubbard, in honor of Janis & Doug Macut, in honor of Michael Bernd & Karen Keenan Sue A. Bigham, in honor of Samantha Paul & Michelle Fahey, in honor of Elizabeth Hubbard from Mom & Dotti Macut James & Martha Brown Klinger Jeremy Dale Dad Joan Maddock, in honor of Cindy Conrad DePinto Sarah Perry Bilger, in honor of Andrew Mr. & Mrs. Robert Fallon, Jr., in honor Dorothy & Matthew Hunyadi, in mem- DeLaRosa Craig Dufresne, MD Perry of the marriage of Marybeth Ayres ory of Kevin Dalton Marion Mahlmeister, in memory of Albert & Bunsiri Frazier Sheree Bishop, in the name of Taylor & Jim King Barbara & Joe Iannaccone, in honor of Marie Ackerman Jill Gorecki Bishop Robin Farinholt, in honor of Parker Christopher Dolecki Joseph Malangone, in memory of S. Gaylann Hicks Ron Birks & Kathi Douglas, in honor of Liles John & Margaret Ingram, in memory Kevin Dalton Jonathan & Deborah Kantor the marriage of Marybeth Ayres & T.M. Farrell, in honor of the marriage of Clarence Altis Diane Manning, in honor of Jonathan Roger & Carolyn Lamb Jim King of Marybeth Ayres & Jim King April & Jacob Iverson, in honor of Siebert Paul & Fran Leatherwood Mrs. Oliver Bobsine, in memory of Niki & Matt Feret, in honor of Isobel Austin Iverson Bob & Kathleen Mannis, in memory of Mary Lytle Gerri & Larry Reinherdt Fine Design, LLC, in honor of Jonathan Russell & Carol Jenna, in memory of Marie Ackerman Mr. & Mrs. Thomas T. Soviero Joyce Borsellino & Bill Masloski, in Siebert Kevin Dalton Greg & Patti Mathers, in honor of Vincent & Jana Vivo memory of Kevin Dalton First Grade Team at Bebensee Ulah O. Jones, in honor of Kathryn Katelyn Mathers Boston JetSearch, Inc, in memory of Elementary, Arlington, TX, Hopkins John & Cecilia Mazzocca, in honor of CCA Sponsor Kevin Dalton in honor of music teachers, Ms Scott Jessetta & David Jowick, in Janelle Jaclynn Samhammer ($1,000 +) Debbie Breslow, in honor of Kenny & Mrs. Atchley Joswick Lisa McCullough & Rick Rice, in honor Breslow Toni E. Fitzwater, in honor of Natalie A.E. Karpen, in memory of Milton of Elizabeth Hubbard Anonymous Angelic Bruns, in honor of Cher Wardlaw Lewin Ellen McPadden, in honor of Jeremy Jeffrey & Beth Abel Ann Burgin, in honor of Rick Dornier Cheryl Frederick, in honor of Mary & Sylvia Katowitz, in memory of Marie Dale from Aunt Ellen Amy & David Cottrell Gary Burt, in honor of “Annie’s bud- Parker Crawford Ackerman Ellen McPadden, in the name of George & Kristine Dale dies”, Justin Prince & Zach Muller Stephen & Marion Frost, in memory of Nancy Kearney, in honor of Jon Jeremy Dale Jeffrey Fearon, MD Michelle & Samuel Bustillos, in honor Kevin Dalton Simmons Bill & Christine Mecklenburg, in honor Fred & Judi Freeman of Fabian Bustillos Mr. & Mrs. Bert Fuller, in honor of Celene Keenen, in honor of Carleen of Morgan Keahn Mecklenburg Jane L. Goodman Jimmy & Beverly Butera, in memory of Olivia Sanborn Nelson Ann E. Melendy, in honor of Dianna H. Bill & Christine Mecklenburg Bernice Peace J. William Gadsby, in honor of Earl Kemberling, in honor of Kurt Allen Dan & Denise Paulson Jimmy & Beverly Butera, in honor of Benjamin Kettelle McMurray Ann E. Melendy, in honor of Emily Charlene & John Smith Janet Carter’s birthday Mark & Tammy Gipple, in honor of Eileen Kemmier, in memory of Marie Mendez Courtney Vincent Deb Buttner, in honor of Isobel Pupillo Dominic Rossi Ackerman Susan & Chuck Michlik, in honor of Shirley Cardwell, in honor of Mary & Ken & Susan Godwin, in honor of Kathryn Kemp, in memory of Patrick Ashley Bock Parker Crawford Natalie Wardlaw Kemp Midway Materials, Inc., in honor of CCA Benefactor Della Carlin, in honor of Carleen Arthur Goldberg, in honor of the mar- Sandy & Bruce Klinger, in honor of Brittany Balentine ($5,000 +) Nelson riage of Marybeth Ayres & Jim King Samantha Klinger Nellie R. Miller, in honor of Samantha Jeffrey Castor, in honor of Jeremy Dale Erma J. Gorecki, in honor of Robbie Diane & Daniel Knockeart, in honor of Klinger Estate of Charles & Wilmetta Allen, Michael Csaszar, in memory of wife, Gorecki Kieran Roehl, grandson Laurie Monnier, in honor of Jeremy Bainbridge Island, WA Debbie Jill Gorecki, in honor of Robbie Lee & Jenny Knutson, in honor of Dale Estate of Jacqueline M. Conybear. Mr. & Mrs. Craig Chapline, in honor of Gorecki daughter, Nalani from the Knutson Jane Monell, in memory of Tom Law Oaklawn, IL Carleen Nelson Mr. & Mrs. Curtis Graf, in honor of Jake Family Juan R. Moran, in honor of Gabriela Robert & Maryellen Fettig Cher.com participants, in honor of Wharton Martin P. Koop, in honor of Brendan Lopez Greg Luetkemeyer Cher’s birthday Linda Haines, in honor of Lindsey Walsh Kim Morris, in honor of Robbie Cher fans, in honor of Cher’s birthday Baker Daniel & JoAnn Kopshinsky, in honor Gorecki Carroll & Marie Climer, in honor of Alfred Harf, in honor of Chase Ingram of Robbie Gorecki Alison & Joe Morrissey, in honor of Memorials / Rylan Vance. Amanda Hartman, in honor of Ryan Janine & Brian Krebs, in honor of Emily Rachael Morrissey In-Honor Gifts Mary Cook, in honor of Heather Lermont-Pape’s birthday Lambert Annabelle Hartmann, in honor of Krebs Georganne Kupau, in honor of Justin Patricia Lewis Murphy, in honor of Andrew Perry Roscoe & Jean Abbott, in honor of Don & Shirley Coon, in honor of Lara Brendan Walsh Prince Pam Newcomb, in honor of Jeremy Samantha Klinger Verdone Jim & Arleen Heirty, in memory of Mavis Kyle, in honor of Bailey Allwhite Dale Mr. & Mrs. Tom Aguinne, in honor of Dorothy Cornell, in honor of Peter Cornell Cotosman Bruce & Diane LaRue, in honor of Barbara & Bruce Newman, in honor of Benjamin Kettelle Dankelson Jim & Arleen Heirty, in memory of Joe Scott Guzzo from the LaRue Family Nathaniel Newman David & Judith Albers, in memory of Cosgrove Aircraft Service, Inc., in Creed Nancy & Charles Lathrop, in honor of Alland & Mary Karen Newstadt, in Kevin Dalton memory of Kevin Dalton Jim & Arleen Heirty, in memory of Natalie Wardlaw honor of the marriage of Jessica & Nancy Alexander, in honor of Heather Lisa Crawford, in honor of Mary & Hugh Farmer Rosaura Lazo, in honor of Jose Lazo Jeff Lermont-Pape’s birthday Parker Crawford John J. & Arleen Heirty, in memory of Stephanie & Daniel Leahy, in honor of Michael & Marti O’Brien, in honor of Carolyn E. Alloway, in honor of Diana Critchlaw, in honor of Amanda Bill Genthner Katherine Leahy son, Brendon O’Brien Kathryn Hopkins Critchlaw John J. & Arleen Heirty, in memory of Paul & Fran Leatherwood, in honor of Julie Oden, in honor of Kathryn Anonymous, in honor of Lidia Mr. & Mrs. D. Critchlaw, in honor of Tammi Kleis from Jim & Arleen Charlene Smith Hopkins Difrancesco Amanda Critchlaw Jim & Arleen Heirty, in memory of Karen & Charles Lee, in honor of the Rose Olson, in honor of Robbie Tom & Donna Antonelli, in honor of James & Nancy Cutler, in honor of Wanda Marosz marriage of Marybeth Ayres & Jim Gorecki Anthony Silvestro Samantha Wayne Jim & Arleen Heirty, in memory Kathy King MaryAnn Pallante, in honor of Freddy Catherine Arnold, in honor of Kathryn Leo Dalton, in memory of Kevin M. Stoker’s Dad, Fred Lexie Lermont, in honor of Heather Seitz Hopkins Dalton Jim & Arleen Heirty, in memory of Lermont-Pape’s birthday Nancy Patterson, in honor of Jaci Baca Pediatrics, in honor of Greg Roger Dalton, in memory of Kevin M. Warren Stoker Elaine Liveoak, in honor of Mary & Samhammer Burkholder Dalton John J. & Arleen Heirty, in memory of Parker Crawford Fred Paul, in memory of Kevin Dalton Joyce Baer, in honor of Samantha Sarah Delvento, in memory of Kevin Gene Zuk from Jim & Arleen Wayne Loebsack, in honor of Jaci Mr. & Mrs. Ben Pawley, in honor of Klinger Dalton David & Ginger Henshall, in honor of Samhammer Peter Dankelson Donnie Balentine, in honor of Brittany Department of Social Services Social Jeremy Dale Ronald & Rosemary Logue, in honor of Dennis & Carlotta Pawley, in honor of Balentine Club, in honor of Jacob Palmer Kelly Hernandez, in honor of Cher’s Christopher Dolecki Peter Dankelson birthday Robin Longoria, in honor of Matthew Jana Peace, in honor of Macey Atkins Highland Elementary School Staff, in & Mitchell Herring Joan Pedersen, in honor of Heather 18 honor of Justin Prince Lermont-Pape’s birthday Mary Perkins, acknowledged to Szaferman, Lakind, Blumstein, Blader Michael Perkins & Lehmann, in honor of Avery Lytle Corporate / Safeway, Inc. (Purchases Percentage Incentives) A grant from The Lightner Sams Foundation, Inc. Karin Perry, in memory of Mom, Elaine Tag Aviation (USA) Inc., in memory of Foundation Gifts Sarah Hall Productions A grant from W.P.& Bulah Luse Perry Kevin Dalton Schoolpop (Purchases Percentage Foundation Barbara Petruck, in honor of Lidia Mary Tauge, in memory of Marie Incentives) A grant from Edmond & Alice Opler DiFrancesco Ackerman CCA Corporate / Social Service Office Fund Foundation Larry Pinkerton, in honor of Kathryn Wayne & Patty Taylor, in honor of Jon Foundation Friends Square D Foundation (John Eschmann, A grant from Harold Simmons Hopkins Simmons (up to $1,000) Matching Gift) Foundation Harry H. Porter, Jr., in honor of the Truman & Mary Terrell, in honor of Stacy Enterprises marriage of Marybeth Ayres & Jim Justin Prince Superior Bonding, by Victor Montoya King James & Susan Thompson, in honor of AMT Internet Companies AT&T (Employee Giving) Synthes Maxillofacial by Roger S. Chin, Fundraising Joyce M. Prather, in honor of Frankie Prather from Mom Natalie Wardlaw Harold & Pat Timmer, in honor of Alessi, S.C. DDS, PS Events America’s Charities (Employee Giving Szaferman, Lakind, Blumstein, Blader Liz Prince, in honor of Justin Prince granddaughter, Kara Butterly Funds Management) & Lehmann Suzanne Prince, in honor of Justin Tower Softball Team, Austin, TX, in American Express (Employee Giving) Tag Aviation (USA) Inc Up to $1,000 Prince memory of Kevin Dalton by John’s Applied Concepts Contractor, Inc. by Teamsters Local Union No. 623 Karen & Mark Proctor, in honor of the Teammates Linda Haines Trinity Marketing & Distributing Co. by Applebee’s “Dining To Donate” / marriage of Marybeth & Jim King Mary Alice Tulimieri, in honor of Association Works, by Sheryl & John Curtis & Faye Graf Carrie Kinlen, CCA Volunteer Joan Pupillo, in honor of Isobel Pupillo Brianna Alfeiri Paul Turken Industrial Properties, Inc. Borders Books Fundraiser for CCA / Rebecca & John Pupillo, in honor of Turken Industrial Properties, in honor Baca Pediatrics Tweezerman Corp Margaret Jenna-Dalton, Organizer, Isobel Pupillo of Fabian Bustillos A grant from Bally Gaming UPS Foundation, Inc. CCA Volunteer Tommy & Annie Reeves, in memory of Jean Vancore, in honor of Lidia Bank of America United Way United Telecom, Inc. “Cheers for Kids” Car Wash / Jerry Anderson DiFrancesco Campaign (Directed Donations) United Way of Central Maryland Waukesha (WI) West High School Angie Rhodes, in honor of Kathryn Lucia & Scott Van Cleef, in honor of The Barbara Fund (Directed Donations/Employee Cheerleaders / JoAnn Kopshinsky, Hopkins Avery Lytle from Emma Van Cleef The Biella Foundation by Mart Bert Giving) Organizer Tanya Rhodes, in honor of Max Abel Dwight & Carrie Vaughn, in honor of Boston JetSearch Inc. United Way of Fresno County (Directed Cher’s Birthday / Cher.com Fans Rib-X Pharmaceuticals, Inc., in memory Hannah Vaughn Capital Blue Cross through Janis & Donations/Employee Giving) Cronin Fund Appeal for CCA / Cronin of Kevin Dalton Carrie & James Veach, in honor of Doug Macut United Way of Long Island (Directed Family Alec & Kim Roark, in honor of Jylian Joseph Grant Cheshire Board of Education Donations) Evening of Giving, Rose Seitz, Bilbow Marla & Bruce Verdone, in honor of Community Health Systems United Way of Metropolitan Dallas, Organizer, CCA Volunteer Lynn Robinson, in honor of Jonathan Lara Verdone Foundation, matching gift of Martin Inc.(Directed Donations) Fifty-Fifty Raffle / Carrie Kinlen, CCA Siebert Ted Verdone, in honor of Lara Verdone Schweinhart United Way of Metropolitan Tarrant Volunteer Mr. & Mrs. Andrew Rodriguez, in Brenda Viola, in honor of Lara Verdone Cosgrove Aircraft Service, Inc County (Humanity Fund/Employee Evan Goldman Honor Fundraiser / honor of Christopher Dolecki Elizabeth Vitez-Bainbridge in honor of Dean Painting / William Dean d/b/a. Giving) Aaron Goldman, Organizer/CCA Kim & Frederick Romeo, Jr., in honor son, Thomas Vitez from Elizabeth J. The Delft Group, Inc. United Way of The Southern Tier Volunteer Freddie Seitz Vitez Dell USA (Employee Giving) (Directed Donations) Highland Elementary School Denim Aya Romero, in honor of Eric James Steve Vivo III, in honor of Sadie Vivo Department of Social Services Social United Way of Tucson & Southern AZ Days Fundraiser / in honor of Justin Romero Eve Vizsolyi, in honor of Jaclynn Club (Directed Donations) Prince Joyce Ronczka & Family, in honor of Samhammer Direct Strategies, by Dana Heter VFW Post 2859 Home Interiors party for CCA / Darnell Joseph P. Ronczka Alicia A Wadas, in honor of the mar- Directed Technologies, Inc. by Rose & The Weatherstrip Company, by Greg & Menard, CCA Volunteer Cynthia Rosario, in honor of Emily riage of Marybeth Ayres & Jim King Fred Seitz Patti Mathers FiServ Omaha Denim Days for CCA / Mendez Wagner Family, in honor of Freddie Dream Kitchens, Inc. by Keven & Terri Wellpoint Foundation (Employee Glen Peterson, Organizer/Trevino Jim & Diane Rumbo, in honor of the Seitz Schmidt Giving/Matching Funds Family marriage of Marybeth Ayres & Jim Tammy & David Wagner, in honor of Duncan Aviation Management) Katz’s Deli Fundraising Table / Jennifer King Freddie Seitz The Elena Melius Foundation by Gary Wells Fargo (Employee Giving) Guerra, CCA Volunteer Fran & Gray Sanders, in honor of Richard S. Ward Lumber Co., in honor Melius Westchester Aircraft Maintenance Smiley Face email campaign / Peggy Wesley Sanders of Lizzy & Kathy Hubbard Fidelity Charitable Gift Fund (Matched Assn. McDannel, CCA Volunteer Carol Schatt, in honor of the marriage David & Adrienne Weil, in memory of Gifts) Spa Day / Michelle White, Organizer of Marybeth Ayres & Jim King Kevin Dalton Fine Design LLC Tamales Fundraiser in honor of Natalie Richard Schini, in honor of Samantha Waneta Weatherhead & Marlene The Frugal Flower, Inc.(Purchases CCA Corporate / Wardlaw Wayne Daugherty, in honor of the mar- Percentage Incentives) Foundation Sponsors Yoga For Charity / Suzanne Chiasson, Roberta & Robert Schini, in honor of riage of Tori Stephens & Rob GE Foundation, matching gift of Beth ($1,000-$5,000) Organizer / CCA Volunteer Samantha Wayne Shauger Abel Steve & Brooke Schini, in honor of Jennifer & Paul Wayne, in honor of GlaxoSmithKline Foundation A grant from The Brotman Foundation Samantha Wayne Samantha Wayne GoodSearch A grant from Henry W. Bull Foundation $1,000-$5,000 Hildegard & Milton Schlesinger, in Westchester Aircraft Maintenance A grant from Greater Milwaukee A grant from the Dallas Jewish memory of Marie Ackerman Assn., in memory of Kevin Dalton Community Foundation, recom- American Medical Association Denim Foundation recommended by family Paul Schmidt, in honor of Peter Dorothy Whaley, in memory of Marie mended by Mr.& Mrs.Gerald Days Fundraiser / Carolyn Hall, of Thomas R. Schmidt Memorial Dankelson Ackerman Frankel Organizer/CCA Volunteer Fund Eric & Susie Schneider, in honor of John & April Wharton, in honor of Jake Dean Bingo Social Fundraiser / Karla & Hiznay & Associates by Mandie Hiznay A grant from 84 Lumber Company, Jeremy Dale Wharton Margaret Hardy Trust Olivia Dean, CCA Volunteers Jefferson Lumber & Millwork Fred & Rose Seitz, in honor of Freddie Barbara Wiedenman, in memory of Just Give Funding Factory (Rebates/Recycling Seitz Jennifer Walker Program) Brenda Siebert, in honor of Jonathan Mary Wood, in honor of Anna Manzie Larry’s Sport Center Guyuron Family Foundation, Inc. $5,000 or more The Law Office of Brigid Duffield Siebert Michael Wood, in memory of Kevin Lockheed Martin (Employee Giving) A grant from the David & Shirley Fourth Bi-Annual Cher Convention / Tom & Jean Silva, in memory of Kevin Dalton Mahoning Valley Umpires Association Hubers Family Fund of The Cher Convention CCA Volunteers Dalton Jay Zafar, in honor of Gabriela Lopez Micetic Insurance Services by Ron Minneapolis Foundation, recom- Eagleville Elementary Walk-A-Thon / Mary Ann Silvestro, in honor of Donna Zavahir, in memory of Mary Micetic mended by Travis & Christa Rymal Family of Andrew Hartley Anthony Silvestro “Ann” Davidson Mid-Way Materials Inc. A grant from the Staubach Family Second Annual “Friend’s of Jeremy” Rand Sinanian, in memory of Kevin Pete & Jackie Zoellick, in honor of The Old Point Inn Foundation Golf Event / George & Kristine Dalton Robbie Gorecki The Ochsman Foundation Wal-Mart Dale, CCA Volunteers Solange Skyer, in honor of Richard Penn, Schoen & Berland Associates, Fourth Annual Pete’s Scramble for Skyer, Jr. Inc. CCA Corporate / CCA / Darin & Dede Dankelson, Mildred Slater, in memory of Marie Prudential Foundation (Employee CCA Volunteers Ackerman Giving/Matching Gifts) Foundation Partners Wendelyn’s Course of Dreams Golf Charlene Smith, in honor of Robbie Rainer & Anding & McLindon by ($5,000 or more) Challenge for CCA / Wendelyn Gorecki George Anding, Jr. Osborne, CCA Volunteer Sue Stemen, in honor of Heather Rib-X Pharmaceuticals, Inc. The Cher Charitable Foundation, Inc. Lermont-Pape Richard S. Ward Lumber Co. A grant from Dreyfus Foundation Jane Stickney, in honor of Caroline SBC (Employee Giving) A grant from the Jorge Posada Dale Foundation 19 3cheers for volunteers! Volunteers: (left to right) Kitty Kemp, David Noblet, Charles Lee, Lois Park, Honorary Chairperson: Cher Board of Directors: Ina Lee Chaffin and Judy McCallum Tony Davis, DMD, CHAIR, Tuscaloosa, AL Kurt Allen, JD, CPA, CFP, WMA, Canfield, OH George Dale, Corning, NY Donna Gossett, Cullman, AL Dan Paulson, Fargo, ND Rose Seitz, Youngstown, OH Robert Vargas, Abilene, TX Robin Williamson, Carrollton, TX Stephen Wright, San Francisco, CA Medical Advisory Board: Jeffrey Fearon, MD, CHIEF ADVISOR CCA Network Editor: Kelly Liszt CCA Network Design and Production: Robin Williamson, Williamson Creative Services, Inc. Executive Director: c Charlene Smith CA would like to thank Kitty Kemp, program was established to give comfort to Program Director: the AT&T Pioneers, the Richardson youngsters who are in traumatic or Annie Reeves Senior Center and all of the volunteers unfamiliar situations. These bears are a Development Director: for their generous Hug-A-Bear donation. perfect fit for CCA, and we feel truly Jill Gorecki These bears are handmade by the honored to be chosen as a recipient. Administrative Assistant: members of the senior center and a Thank you! TBD group of volunteers. The Hug-A-Bear Accountant: Don Smith The views and opinions expressed children’s craniofacial association NONPROFIT ORG U.S. POSTAGE in this newsletter are not necessarily those of CCA. 13140 Coit Road, Suite 307 • Dallas, TX 75240 PAID DALLAS, TX PERMIT NO. 555 VOICE 214-570-9099 FAX 214-570-8811 RETURN SERVICE REQUESTED TOLL-FREE 800-535-3643 URL CCAkids.com or CCAkids.org If you no longer wish to receive this newsletter, please email your wishes to KSilverman@CCAKids.com or mail the label to the CCA office and ask that it be removed from the mailing list. If you know of someone who would like to be placed on the mailing list please forward to us their name and address.