Docstoc

WEBINAR

Document Sample
WEBINAR Powered By Docstoc
					                          WEBINAR
                  THURSDAY, JUNE 16, 2011




    DOUG CHANDLER: GOOD MORNING EVERYONE. I WILL NOW
BEGIN THE WEBINAR. GOOD MORNING. MY NAME IS DOUG
CHANDLER, IF YOU ARE ON BY PHONE ONLY, I HAVE ASKED YOU TO
SAY YOUR NAME AND THE NAME OF YOUR ORGANIZATION. NOW
THAT I HAVE IDENTIFIED WHO YOU ARE, PLEASE PRESS *6 TO MUTE
THE TELEPHONE. DURING QUESTION AND ANSWER PERIODS PRESS
*6 TO UNMUTE.
     WELCOME TO THE LAST IN A SERIES OF REGIONAL WEBINARS
AS PART OF THE TBI EXPANSION PROJECT. OUR FIRST WEBINARS
FOCUSED ON EXPLAINING WHAT TBI IS, HOW PEOPLE GET A TBI AND
HOW TO WORK WITH PEOPLE WITH TBI. WHICH IS SHORT FOR
TRAUMATIC BRAIN INJURY. IT WAS ALSO AN OPPORTUNITY TO
INTRODUCE THE TBI SERVICE SITES.
     OUR SECOND REGIONAL WEBINAR FOCUSED ON VETERANS,
VETERAN CULTURE, WHAT IS UNIQUE ABOUT VETERANS WITH TBI
AND THE VETERAN SERVICE COORDINATION SYSTEM. BOTH
PROVIDED A CONSUMER PERSPECTIVE. TODAY WE FOCUS ON HOW
TO FURTHER BUILD COLLABORATION BETWEEN THE DEPARTMENT
OF REHABILITATION, INDEPENDENT LIVING CENTERS AND THE TBI
SERVICE SITES TO CREATE SEAMLESS SERVICES FOR THE
CONSUMERS. THIS IS PART OF A PROJECT FOR CALIFORNIA TO
SERVE PERSONS WITH TRAUMATIC BRAIN INJURIES. THIS WEBINAR
HAS BEEN FUNDED BY THE AMERICAN RECOVERY AND
REINVESTMENT ACT AND ENDS SEPTEMBER 2011.


    CRYSTAL LOUTZENHISER: GOOD MORNING. I WANTED TO GO
OVER SOME OF THE WEBINAR FEATURES ON THE ELLUMINATE
PLATFORM. THE CHAT FEATURE ON THE LEFT SIDE OF THE SCREEN
IS WHERE YOU CAN ASK US QUESTIONS THAT WILL BE ANSWERED
DURING THE PRESENTATION AND AT THE END OF THE
PRESENTATION. THE STEP OUT FEATURE WITH THE DOOR
INDICATES THAT PERSON IS NOT PRESENT IN CASE SOMEONE
WOULD LIKE TO ASK THEM A QUESTION.
     THE CLOSED CAPTIONING WILL BE USED DURING THE ACTUAL
WEBINAR AND CAN BE ACCESSED BY PRESSING THE CC BUTTON OR
GOING TO THE WINDOWS TAB AND PRESSING CC. AFTER THE
WEBINAR THE CAPTIONING TRANSCRIPT AND AUDIO RECORDING
WILL BE ARCHIVED ON THE WEBSITE. THE CHANGE LAYOUT
FEATURE CAN BE USED BY PARTICIPANTS TO HELP WITH
ACCESSIBILITY. SO IT HAS THE CAPABILITY FOR POLL OF THE
AUDIENCE. AND AT THE END THE AUDIO BUTTON ALLOWS
ADJUSTING OF THE AUDIO SETTINGS. JUST A REMINDER, WE
WOULD LIKE FOR ALL AUDIENCE MEMBERS TO REDUCE THE
BACKGROUND NOISE. TO DO SO, PRESS *6 ON YOUR PHONE.
DURING QUESTION AND ANSWER PERIOD YOU CAN PRESS STAR *6
AGAIN TO UNMUTE YOUR PHONE.
     PLEASE DO NOT PLACE US ON HOLD AS WE OFTEN GET
BEAUTIFUL ELEVATOR MUSIC UNTIL YOU RETURN. ALSO FOR THOSE
THAT ARE HAVING AN ECHO ON THE COMPUTER, IF YOU MUTE YOUR
COMPUTERS, THAT WILL TAKE CARE OF THAT PROBLEM FOR YOU.
THANK YOU.
    DOUG CHANDLER: THANK YOU CRYSTAL. WELCOME. IF
THERE IS ANYONE WHO HAS LOGGED ON IN THE LAST COUPLE OF
MINUTES THAT HAS NOT YET INTRODUCED YOURSELF, PLEASE SAY
WHO YOU ARE AND WHAT ORGANIZATION YOU ARE FROM. OKAY.
NOW PLEASE REMEMBER TO PRESS *6 TO MUTE YOUR PHONE. WE
APPRECIATE YOUR PARTICIPATING IN THE WEBINAR. FOR SOME OF
YOU IT IS THE FIRST AND OTHERS HAVE BEEN HERE FOR ALL THREE
WEBINARS. TODAY ON THE WEBINAR, WE HAVE ANA ACTON AND
DAN CLARK FROM THE DEPARTMENT OF REHABILITATION WHO WILL
BE GIVING A JOINT PRESENTATION. THEY WILL TALK ABOUT DOR
VISION, COLLABORATION, AND INITIATIVE FOR TBI SERVICE
EXPANSION COLLABORATION.
     CRYSTAL LOUTZENHISER AND MYSELF, DOUG CHANDLER,
WILL PRESENT ON TOOLS FOR SERVING CONSUMERS WITH BRAIN
INJURY. I WOULD LIKE TO THANK OUR TECHNICAL SUPPORT, NEAL
ALBRITTON, OUR I.T. CONSULTANT AND RHETT SIMMONS OUR
CAPTIONER AND JOANNE LAVOIE WHO IS THE CONTRACT MANAGER
AND HAS DONE A LOT OF WORK TO GET THE PRESENTATIONS
TOGETHER.
     I GUESS THE BIG QUESTION OUT THERE IS WHY IS BRAIN
INJURY IMPORTANT AND TECHNICALLY WHAT CAN WE DO ABOUT IT?
HERE ARE SOME BARRIERS FOR CONSUMERS THAT MAKE IT
DIFFICULT TO RECEIVE SERVICES. FOR INSTANCE, IT MAY TAKE
LONGER TO FILL OUT INTAKE FORMS DUE TO PROCESSING
DIFFICULTIES, VISUAL IMPAIRMENTS OR LIMITED MOTOR SKILLS.
OTHERS MAY HAVE REACTIONS DURING AN APPOINTMENT, SUCH AS
SUDDEN CRYING, ANGER OR WITHDRAWAL OFTEN DUE TO BEING
COGNITIVELY OVERWHELMED. OTHERS MAY EXPERIENCE
DIFFICULTY FOLLOWING THROUGH WITH PAPERWORK OR MAY
FORGET TO ATTEND FOLLOW UP APPOINTMENTS. THIS IS THE
POINT WHERE MANY EXPERIENCE WITH DIFFERENT AGENCIES,
THEIR SERVICES BEING STOPPED OR DELAYED DUE TO MEMORY
ISSUES BECAUSE OF THE TBI ASK NOT INTENDED AS
NONCOMPLIANT. THIS COULD BE HELPED BY ENCOURAGING NOTE
TAKING OR A QUICK REMINDER CALL, BY BETTER UNDERSTANDING
PEOPLE WITH TBIS WE CAN BETTER SERVE THEM. THAT IS WHY IT IS
IMPORTANT ON AN INDIVIDUAL LEVEL. LOOKING MORE GLOBALLY,
TRAUMATIC BRAIN INJURY OCCURS MORE FREQUENTLY THAN
PEOPLE REALIZE. IN THE U.S. EVERY YEAR THERE ARE OVER 1.7
MILLION PEOPLE WITH REPORTED HOSPITALIZATIONS, EMERGENCY
DEPARTMENT VISITS OR DEATHS DUE TO FALLS, VEHICLE
ACCIDENTS, SUPPORTS INJURIES RESULTING IN BRAIN INJURIES. IN
CALIFORNIA THERE ARE 350,000 PEOPLE WHO HAVE SUSTAINED A
DOCUMENTED TBI WITH MANY MORE WHO ARE UNDIAGNOSED OR
MISDIAGNOSED. AS IT STANDS NOW, THE RATE OF HOMELESSNESS,
UNEMPLOYMENT, UNDER EMPLOYMENT AND DIVORCE ARE HIGH
AMONG THOSE WITH BRAIN INJURY. THOSE THAT LIVE WITH TBI
EXPERIENCE INJURIES THAT REQUIRE SERVICES. ACCORDING TO
THE CALIFORNIA STATE INDEPENDENT LIVING COUNCIL OR SILC, TBI
IS ONE OF THE TARGETED UNDERSERVED POPULATIONS IN
CALIFORNIA.
     HERE TO TALK ABOUT BUILDING COLLABORATION BETWEEN
DOR, ILCS, AND TBI SERVICE SITES ARE ANA ACTON AND DAN
CLARK. ANA ACTON IS CHIEF OF THE INDEPENDENT LIVING AND
ASSISTIVE TECHNOLOGY SECTION WITH THE DEPARTMENT OF
REHABILITATION. SHE HAS WORKED IN THE INDEPENDENT LIVING
FIELD FOR SEVEN YEARS AND WAS THE EXECUTIVE DIRECTOR FOR
THE FREED INDEPENDENT LIVING CENTER IN NEVADA CITY AND
NOW IS CHIEF OF ILATS AS OF JULY 2010. SHE PROVIDES
LEADERSHIP, POLICY, DEVELOPMENT AND IMPLEMENTATION AND
GENERAL SUPPORT TO 29 INDEPENDENT LIVING CENTERS, THE
ASSISTIVE TECHNOLOGY NETWORK, TBI PROGRAM SITES
THROUGHOUT CALIFORNIA. SHE IS THE DEPARTMENT LIAISON
THAT WORKS TO PROMOTE EDUCATION AND UNDERSTANDING OF
TBI AND TO INCREASE RELEVANT SERVICES CONSUMERS WITH TBI.
    CRYSTAL LOUTZENHISER: DAN CLARK IS A COMMUNITY
RESOURCE DEVELOPMENT SPECIALIST. DAN HAS 33 YEARS OF
EXPERIENCE WITH THE DEPARTMENT OF REHABILITATION
INCLUDING 15 YEARS AS A VOCATIONAL REHABILITATION
COUNSELOR WORKING PRIMARILY WITH INDIVIDUALS WHO ARE
SEVERELY DISABLED INCLUDING CONSUMERS WITH TBI.
     DAN HAS WORKED 18 YEARS AS A SPECIALIST WORKING WITH
ILCS STATEWIDE. IN 2010 DAN BECAME A DOR TBI SPECIALIST.
DAN'S WORK BRINGS TOGETHER IDEAS, INDIVIDUALS, PROGRAMS,
STATE AGENCIES, COMMUNITY ORGANIZATIONS WITH THE GOAL OF
INCREASING APPROPRIATE TBI EDUCATION AND SERVICE
STATEWIDE. THANK YOU AND WELCOME ANA AND DAN.
    ANA ACTON: THANK YOU VERY MUCH FOR YOUR GREAT
INTRODUCTION. SO WE ARE REALLY HAPPY TO BE A PART OF THIS
WEBINAR. AND WE ARE EXCITED WHEN WE WERE ABLE TO PROVIDE
FUNDING TO PROJECTS SUCH AS THIS ONE UNDER THE AMERICAN
RECOVERY AND REINVESTMENT ACT FUNDING. OR ARRA MONIES.
AND CCCIL IS USING THAT MONEY TO PUT ON THE WEBINARS.
THANK YOU FOR YOUR WORK AROUND TBI.
    TO START WITH I WANTED TO TALK ABOUT THE PURPOSE OF
THE WEBINAR. TO DEVELOP AND PROMOTE COLLABORATION AND
PARTNERSHIPS BETWEEN ILCS, GOVERNMENT AND COMMUNITY
ORGANIZATIONS SERVING INDIVIDUALS WITH TBI. WE WANT TO
PROVIDE ILCS AND OTHER COMMUNITY ORGANIZATIONS STAFF
INFORMATION ABOUT DEPARTMENT OF REHABILITATION'S
ACTIVITIES, INITIATIVES AND RESOURCES DIRECTED TOWARDS
COORDINATING, IMPROVING AND INCREASING TBI SERVICES
STATEWIDE. WE WILL GO MORE INTO THE PROGRAM HERE AT
DEPARTMENT OF REHABILITATION. WE ARE EXCITED AS THE TBI
PROGRAM IS A NEW PROGRAM TO THE DEPARTMENT OF
REHABILITATION AND IT GIVES US AN OPPORTUNITY TO
COORDINATE AND INCREASE SERVICES FOR INDIVIDUALS WITH TBI.
    SO THE DEPARTMENT OF REHABILITATION'S MISSION IN
GENERAL IS THE CALIFORNIA DEPARTMENT OF REHABILITATION
WORKS WITH CONSUMERS AND OTHER STAKEHOLDERS TO
PROVIDE SERVICES AND ADVOCACY RESULTING IN EMPLOYMENT,
INDEPENDENT LIVING AND QUALITY FOR INDIVIDUALS WITH
DISABILITIES. WE HAVE THE INDEPENDENT LIVING SECTION THAT
DAN AND I BOTH WORK UNDER. AND THIS PROVIDES FUNDING AND
OVERSIGHT TO 29 INDEPENDENT LIVING CENTERS AND OTHER
DISABILITY ORGANIZATIONS TO STRENGTHEN THE INDEPENDENT
LIVING NETWORK. WE PROVIDE SUPPORT TO THE INDEPENDENT
LIVING NETWORK AND IT INCLUDES THE INDEPENDENT LIVING
CENTERS AND OTHER ORGANIZATIONS THAT SERVE INDIVIDUALS
WITH DISABILITIES. WE ALSO HAVE THE ASSISTIVE TECHNOLOGY
PROGRAM HERE. WE SUPPORT THE ASSISTIVE TECHNOLOGY
NETWORK, 13 DEVICE LENDING LIBRARIES AND A LOAN GUARANTEE
PROGRAM THAT HELPS PEOPLE GET LOANS TO PURCHASE
ASSISTIVE TECHNOLOGY. AND NEW TO THE DEPARTMENT OF
REHABILITATION WE HAVE THE TRAUMATIC BRAIN INJURY PROGRAM
WHERE WE PROVIDE FUNDING AND OVERSIGHT TO SEVEN
TRAUMATIC BRAIN INJURY PROGRAM SITES.
    THE STATE PLAN FOR INDEPENDENT LIVING IS A PLAN THAT IS
PUT TOGETHER JOINTLY BY THE DEPARTMENT OF REHABILITATION,
THE STATE INDEPENDENT LIVING COUNCIL AND OTHER COMMUNITY
PARTNERS AND STAKEHOLDERS. AND THE REAL GOAL IS TO -- WE
HAVE MONEY THROUGH THE REHABILITATION ACT THAT PROVIDES
FUNDING TO HELP US STRENGTHEN THE INDEPENDENT LIVING
NETWORK. THE PRIORITIES ARE FUNDING THE SYSTEMS CHANGE
NETWORK, COMMUNITY ORGANIZING INITIATIVE. WE ALSO PROVIDE
FUNDING FOR TRANSITIONING INDIVIDUALS OUT OF INSTITUTIONS
INTO THE COMMUNITY AS WELL AS INITIATIVES AROUND NATIONAL
COLLABORATION AND REPRESENTATION TO BUILD THE CAPACITY
TO ADVOCATE AND WORK WITH OTHER STAKEHOLDERS WHO HAVE
NATIONAL ISSUES. WE ALSO PROVIDE TECHNICAL ASSISTANCE TO
THE TBI SITES AND INDEPENDENT LIVING CENTERS. AND WE HAVE
HOUSING INITIATIVES AND PERSONAL ASSISTANT SERVICES
INITIATIVES AND INITIATIVES AROUND DIVERSITY AND LEADERSHIP
WITHIN THE INDEPENDENT LIVING CENTERS.
     SO TO BEGIN WITH, I WANTED TO TALK ABOUT THE
INDEPENDENT LIVING PHILOSOPHY. AND LATER WE WILL GO INTO
HOW WE APPLY IT WITH THE SERVICES WE DO. SO THE WHOLE
MODEL OF INDEPENDENT LIVING IS NOTHING ABOUT US WITHOUT
US. CONSUMER CONTROL IS VERY IMPORTANT. THAT MEANS THAT
CONSUMERS HAVE THE RIGHT TO FULLY PARTICIPATE IN DECISIONS
THAT AFFECT THEIR DAILY LIVES. WE BELIEVE THAT EACH PERSON
IS UNIQUE AND HAS THE SAME CIVIL RIGHTS AS OTHERS AND
SHOULD HAVE THE SAME OPPORTUNITIES AS THE REST OF THE
COMMUNITY TO ACCESS COMMUNITY SERVICES AND LIVE IN THE
COMMUNITY AND PARTICIPATE IN THE COMMUNITY.
     PEOPLE WITH DISABILITIES SHOULD BE ABLE TO LIVE, WORK,
SHOP AND PLAY WHERE THEY CHOOSE. AND DISABILITY IS A
NATURAL PART OF THE HUMAN EXPERIENCE. WE BELIEVE IF YOU
LIVE LONG ENOUGH, YOU ARE GOING TO EXPERIENCE DISABILITY
EITHER PERSONALLY OR A CLOSE FAMILY MEMBER OR FRIEND WILL.
AND IT IS A NATURAL PART OF THE HUMAN EXPERIENCE. AND IT IS
SOMETHING THAT WE SEE AND SHOULD HONOR AS FAR AS
DIVERSITY WITHIN OUR COMMUNITY. AND AS PART OF THIS, IT IS
NOT THERE IS SOMETHING WRONG WITH THE INDIVIDUAL OR THE
PERSON, BUT IT IS OFTENTIMES THE ENVIRONMENT THERE IS AN
ISSUE WITH. IF WE CAN FIX THE ENVIRONMENT, AND OUR
PHILOSOPHY IS AROUND FIXING THE ENVIRONMENT AND NOT THE
PERSON. IF SOMEONE USES A WHEELCHAIR, THE ISSUE MAY BE
THERE IS NOT A RAMP TO GET INTO THE BUILDING. IT IS NOT A
PROBLEM WITH THE PERSON, BUT AN ISSUE WITH THE
ENVIRONMENT. SO REALLY PEOPLE WITH DISABILITIES ARE
EXPERTS ABOUT THEIR OWN NEEDS. AND NEED TO BE A PART OF
WHATEVER PROCESS OR WHATEVER SERVICE THEY ARE
ACCESSING.
     SO, HERE AT THE DEPARTMENT OF REHABILITATION WE
REALIZED WE NEEDED TO DEVELOP A VISION FOR THE STATE OF
CALIFORNIA TO HELP DIRECT US IN THE WORK WE WERE DOING. TO
MAKE SURE WHATEVER INITIATIVES WE ARE WORKING ON, WE ARE
WORKING TOWARDS A COMMON VISION AND OUTCOME. AND THE
VISION FOR TBI FOR THE DOR THAT CALIFORNIANS WITH A BRAIN
INJURY LIVE IN THEIR COMMUNITY OF CHOICE. THE INCLUSION OF
INDIVIDUALS WITH BRAIN INJURIES IS ESSENTIAL IN OUR SOCIAL
AND ECONOMIC SUCCESS. SO THAT IS A VISION BEHIND THE WORK
THAT WE DO HERE AT THE DEPARTMENT OF REHABILITATION.
     SO I WILL HAND IT OVER TO DAN CLARK FOR THE NEXT
SECTION.


    DAN CLARK: HELLO. AND AGAIN, THANK YOU DOUG FOR
INVITING US TO BE A PART OF THIS WEBINAR. AND I WILL SHARE
ABOUT WHAT OUR PROGRAM IS ABOUT HERE AT THE DEPARTMENT
AND WHAT WE ARE TRYING TO DO TO FURTHER ADVANCE
PROGRAMS AND SERVICES FOR PEOPLE WITH TRAUMATIC BRAIN
INJURIES.
     I WANT TO START OFF WITH THE HISTORY ABOUT HOW THE
PROGRAM CAME TO US. AB 398 IS A LEGISLATIVE PIECE OF LAW
THAT BROUGHT THE PROGRAM FROM DEPARTMENT OF MENTAL
HEALTH TO THE DEPARTMENT OF REHABILITATION. BACKGROUND
IS IN 1988 THERE WAS A BILL PUT TOGETHER THAT SAID LET'S TRY
TO CREATE, DO SOME PROJECTS. WE ARE GOING TO PUT SOME
MONEY OUT TO THE COMMUNITY TO SEE WHAT TYPE OF PROGRAMS
AND SERVICES WORK WELL TO HELP PEOPLE WITH TRAUMATIC
BRAIN INJURIES BECOME INDEPENDENT AND BACK TO WORK. SO A
BILL WAS PASSED. AND IT HAD THESE REQUIRED SERVICES THAT
YOU SEE HERE. REQUIRED SERVICES AS COMMUNITY INTEGRATED,
SUPPORTED LIVING, VOCATIONAL SERVICES, INFORMATION
REFERRAL AND PUBLIC AND PROFESSIONAL EDUCATION. AND
ACTUALLY THE MONEY WAS PUT UP TO SELECT FOUR DIFFERENT
TYPES OF COMMUNITY-BASED MODELS AND SEE WHICH MODEL
PROVIDES THE BEST PRACTICES AND TAKE FROM THAT, THAT
INFORMATION AND EXPERIENCE AND THEN TAKE THAT AND
HOPEFULLY GO BACK TO THE POLICY MAKERS AND TRY TO
DEVELOP A STATEWIDE APPROACH AND PROGRAMS TO SERVE
PEOPLE WITH TRAUMATIC BRAIN INJURIES IN THE COMMUNITY. SO,
IT WAS THERE FOR 20 YEARS. AND IT WAS RENEWED AND
RENEWED. AND THE FACT THAT IT WAS RENEWED SHOWED THERE
WAS REAL VALUE THERE. BUT GETTING THE INFORMATION AND
DEVELOPING A STATEWIDE APPROACH HAS TAKEN A LOT LONGER
THAN ANTICIPATED. SO PART OF IT HAD TO DO WITH WHERE IT WAS
HOUSED. SO IN 2010, OR PRIOR TO THAT, WE LOOKED AT THIS AND
SAID IS THIS WORKING WITH THE DEPARTMENT OF MENTAL HEALTH.
IS THERE A BETTER PLACE TO GO. AND WHEN THEY LOOKED
AROUND THEY FOUND WITHIN THE DEPARTMENT OF
REHABILITATION THIS PROGRAM MAY BE A BETTER FIT HERE
BECAUSE THE MISSION AND THE GOALS ARE VERY MUCH IN LINE
WITH WHERE THE MISSION AND GOALS OF THE PROGRAM WANTED
TO GO. AND WE HAD THE RESOURCES TO IMPLEMENT THAT. SO
THE PROGRAM CAME TO THE DEPARTMENT OF REHABILITATION
WITH THE SAME REQUIRED SERVICES, BUT MOVING IT FROM A
PROJECT TO A PROGRAM AND GEARED MORE FOR US TO CONTINUE
COLLECTING DATA, UNFORMED DATA AND TRYING TO MOLD IT INTO
A FULL STATEWIDE PROGRAM. AND WE HAVE A LONG WAY TO GO
HERE. AND WHAT WE ARE DOING NOW IS THE BEGINNING OF ALL OF
THIS. WE WANT TO SHARE WITH YOU WHAT WE ARE DOING HERE,
WHAT IS GOING ON AND HOPEFULLY WHERE WE ARE GOING TO GO.
    WE ARE GOING TO CONTINUE WITH THE REQUIRED SERVICES
AND EVALUATE THE DIFFERENT MODELS AND LOOK AT BEST
PRACTICES AND THEN DEVELOP A STATEWIDE APPROACH HERE.
    WITH AB 398 A COUPLE OF NEW THINGS CAME INTO THE LAW
AND THAT IS TO DEVELOP AND IMPLEMENT THE PROGRAM AS I SAID
EARLIER, BUT ALSO WE ARE GOING TO BE REQUIRED TO DEVELOP A
WAIVER WHERE WE CAN DEVELOP THROUGH CMS TO HELP PEOPLE
IN NURSING HOMES TRANSITION BACK INTO THE COMMUNITY, INTO
INDEPENDENT LIVING AND ON TO WORK AND MEET WHATEVER
LEVEL OF INDEPENDENCE THEY WANT TO ACHIEVE. AND AGAIN WE
WILL STILL CONTINUE TO DEVELOP BEST PRACTICES. AND HERE AS
THE DEPARTMENT WE ARE GOING TO BE DEVELOPING A LONG
RANGE TBI STRATEGIC PLAN FOR CALIFORNIA. AND WHAT WE HAVE
TO DO, WE HAVE TO GET THE PROGRAMS GOING AND GET
INFORMATION TO THE LEGISLATURES TO DEVELOP IT BROADLY
ACROSS THE STATE OF CALIFORNIA AND SEE HOW IT IS WORKING.
AND IF IT IS WORKING WELL WE HOPE TO CHANGE THE SUNSET
DATE. OTHERWISE WE HAVE A SUNSET DATE OF THE PROGRAM
GOING AWAY IN JULY OF 2019. WE HAVE A LOT OF WORK AHEAD OF
US RIGHT NOW.
     ONE OF THE REASONS I WANT TO TALK ABOUT HERE AT THE
DEPARTMENT WE WANT TO TALK ABOUT THE PARTNERS. WE HAVE
THE TRAUMATIC BRAIN INJURY SITES. AND WE HAVE INDEPENDENT
LIVING CENTERS, 29, THEY ARE OUR PARTNERS. WE HAVE THE
ASSISTIVE TECHNOLOGY NETWORK AND THEN THE VOCATIONAL
PART OF THE DEPARTMENT OF REHABILITATION ARE ALSO OUR
PARTNERS BECAUSE IT IS IN WITH THE SERVICES. IF YOU LOOK AT
ALL OF OUR SERVICES YOU CAN SEE THERE IS AN OVERLAP AND A
COMMON GOALS BETWEEN -- AND WE WILL GO INTO THEM IN A FEW
MINUTES, IF YOU LOOK AT INDEPENDENT LIVING AND THE CORE
SERVICES AND THE CORE SERVICES OF TBI AND THE VOCATIONAL
SERVICES AND WHAT THEY PROVIDE AND THE DIFFERENT OTHER
PARTNERS PROVIDE VOCATIONAL SERVICES AND WHAT THE
DEPARTMENT PROVIDES. THAT IS WHAT WE ARE HOPING TO WORK
ON AS WE MOVE FORWARD.
     ONE OF THE THINGS, AND ALSO AB 398 CALLS FOR AND
ENCOURAGES AS WE DEVELOPED THE TBI SITES TO BE PARTNERS
AND COLLABORATE WITH THE OTHER COMMUNITY PARTNERS. AND
THAT IS WHAT WE ARE HOPING, THE THEME IS TO LAY THE GROUND
WORK FOR ALL OF THAT. SO WE CAN WORK TOGETHER. THERE
ARE SOME CHALLENGES AND SOME MIND SETS AND PHILOSOPHIES
WE HAVE TO ADDRESS AS WE GO FORWARD. ALL RIGHT.
     IN A TRAUMATIC BRAIN INJURY SERVICE SIGHT, I WANT TO
KIND OF SHARE WITH YOU, FOR THOSE OF YOU NOT HERE FROM
THE TBI SITE, FROM THE DEPARTMENT OF REHABILITATION, ONE OF
THE UNIQUE THINGS ABOUT THE LAW AND IT IS SOMETHING THAT
MAY NEED TO BE CHALLENGED AS WE GO FORWARD. THE LAW
SAYS ACQUIRED BRAIN INJURY AND DEFINES A BRAIN INJURY WITH
A BLOW TO THE HEAD. AND BASICALLY THERE IS A LOT OF STANDS
RIGHT NOW ARE INDIVIDUALS THAT HAVE A BRAIN INJURY AS A AS A
RESULT TO AN IMPACT ON THE BRAIN, A BLOW TO THE HEAD AND 18
YEARS AND OLDER. GOING FORWARD WE HOPE TO SEE THAT
CHANGE. BUT AS I STATED EARLIER, EACH TRAUMATIC BRAIN
INJURY PROVIDES THE FIVE CORE SERVICES. WHICH AS YOU GO
THROUGH AND LOOK BACK AT WHAT I STATED ABOUT THE
COMMUNITY INTEGRATION, SUPPORTED LIVING, VOCATIONAL
SERVICES, I. AND R. AND PUBLIC EDUCATION SERVICES YOU SEE
THE OVERLAP WITH INDEPENDENT LIVING ALSO. AND NOTED HERE,
WE HAVE THE TBI SITES AND THE RESOURCES. THEY RANGE FROM
MONTEREY COUNTY, SANTA CRUZ, MENDOCINO, HUMBOLDT, SAN
LUIS OBISPO, SACRAMENTO, YOLO AND SAN FRANCISCO COUNTIES.
CURRENTLY THESE ARE SOME OF THE REGIONAL AREAS COVERED
BY THIS PROGRAM. EXCUSE ME, I DON'T HAVE THAT. AS YOU CAN
SEE ON THE BOARD, THERE IS A LIST OF THE PROGRAMS THAT
COVER THOSE AREAS.
    ANA ACTON: I WILL TALK ABOUT THE INDEPENDENT LIVING
CENTERS. SO THE INDEPENDENT LIVING CENTERS, YOU KNOW,
THEY WERE BORN OUT OF THE DISABILITY RIGHTS MOVEMENT. AND
IT STARTED IN THE 70'S. AND I WOULD SAY TRADITIONALLY
INDEPENDENT LIVING CENTERS STARTED WITH SERVING PEOPLE
WITH PHYSICAL DISABILITIES AND STARTED TO BUILD AND EXPAND
THEIR SERVICES BECAUSE THEY ARE REALLY CROSS DISABILITY
ORGANIZATIONS. AND WE WILL GO MORE INTO SOME OF THE
CHALLENGES OF HOW DO WE FIT INDEPENDENT LIVING
PHILOSOPHY INTO SERVING INDIVIDUALS WITH TRAUMATIC BRAIN
INJURY OR OTHER COGNITIVE DISABILITIES WHERE THEY MAY HAVE
OTHER PEOPLE INVOLVED IN THE DAILY LIVES. SO THE
INDEPENDENT LIVING CENTERS PROVIDE CORE SERVICES,
INCLUDING ADVOCACY, AND PEER COUNSELING, AND IT IS
IMPORTANT TO NOTE THAT INDEPENDENT LIVING CENTERS
PROVIDE PEER SUPPORT IN EVERYTHING THEY DO AS THEY ARE
STRUCTURED IN A WAY WHERE OVER 50% OF THE STAFF AS WELL
AS THE BOARD MEMBERS ARE INDIVIDUALS WITH DISABILITIES.
INDIVIDUALS WITH CROSS DISABILITIES AND THERE ARE
OFTENTIMES MANY DIFFERENT TYPES OF DISABILITIES
REPRESENTED IN THE STAFF AS WELL AS THE BOARD OF
DIRECTORS. THEY PROVIDE HOUSING REFERRAL AND ASSISTANCE.
THEY PROVIDE INFORMATION AND REFERRAL, PERSONAL
ASSISTANT SERVICES AND INDEPENDENT LIVING SKILLS TRAINING.
     SO, INDEPENDENT LIVING CENTERS, WHILE THEY ALL PROVIDE
THE CORE SERVICES, THEY ALSO HAVE DEVELOPED A VARIETY OF
OTHER SERVICES TO MEET THE NEEDS OF THEIR PARTICULAR
COMMUNITY. FOR EXAMPLE, SOME OF THE INDEPENDENT LIVING
CENTERS ARE PROVIDING VOCATIONAL SERVICES. THEY MAY
CONTRACT WITH THE DEPARTMENT OF REHABILITATION TO DO
DIFFERENT VOCATIONAL SERVICES THROUGH CONTRACT OR FEE
FOR SERVICE. SOME CENTERS WORK LOCALLY AROUND THE
MENTAL HEALTH SERVICES ACT IN PROVIDING SERVICES TO
INDIVIDUALS WITH MENTAL HEALTH DISABILITIES. WE ALSO HAVE
CENTERS THAT ARE WORKING. A MAJORITY OF THE INDEPENDENT
LIVING CENTERS ARE WORKING ON TRANSITION SERVICES AND IN
PARTICULAR TRANSITIONING INDIVIDUALS OUT OF NURSING HOMES
BACK INTO THE COMMUNITY. AND THEY ARE WORKING ON
DIVERSION EFFORTS TO KEEP INDIVIDUALS FROM GOING INTO AN
INSTITUTIONAL SETTINGS. THERE ARE EIGHT INDEPENDENT LIVING
CENTERS THAT ARE CALIFORNIA COMMUNITY TRANSITION
ORGANIZATIONS. THEY ACTUALLY WORK WITH INDIVIDUALS THAT
ARE IN NURSING HOMES FOR THREE MONTHS OR LONGER WHO ARE
ON MEDI-CAL TO TRANSITION THEM BACK TO THE COMMUNITY. AND
THE CPT PROVIDES FUNDING TO THE INDEPENDENT LIVING CENTER
AND THE INDIVIDUAL TO ASSIST THEM WITH THE TRANSITION
NEEDS. THERE IS ALSO AN INITIATIVE THAT ALL NURSING HOMES
ARE REQUIRED TO ASK THE RESIDENTS IF THEY WANT TO
TRANSITION INTO THE COMMUNITY. AND THE NEW PIECE IS IF THE
RESIDENT HAVE A NURSING HOME IS INTERESTED IN
TRANSITIONING, THEY ARE REQUIRED TO PROVIDE A REFERRAL TO
A COMMUNITY ORGANIZATION TO ASSIST THEM WITH
TRANSITIONING. AND MANY OF THE INDEPENDENT LIVING CENTERS
ARE THE LEAD CONTACT FOR THAT PROCESS. WE ALSO HAVE
INDEPENDENT LIVING CENTERS THAT ARE INVOLVED IN THE AGING
AND DISABILITY RESOURCE CONNECTIONS. AND THESE ARE
INITIATIVES WHO WORK TOGETHER TO SERVE BOTH THE AGING AND
DISABILITY POPULATION AROUND LONG TERM CARE NEEDS AND
SERVICES. AND MANY OF THE INDEPENDENT LIVING CENTERS ARE
INVOLVED WITH THAT.
    SO YOU CAN CONTACT THE INDEPENDENT LIVING CENTERS TO
SEE WHAT OTHER SERVICES THEY PROVIDE. EVERY INDEPENDENT
LIVING CENTER ALSO PROVIDE ASSISTIVE TECHNOLOGY SERVICES.
SO EACH INDEPENDENT LIVING CENTER HAS AN ASSISTIVE
TECHNOLOGY ADVOCATE OR SPECIALIST THAT PROVIDES
ASSISTIVE TECHNOLOGY SERVICE COORDINATION, OUTREACH,
PUBLIC EDUCATION, AND INFORMATION AND REFERRAL. AS WELL,
THERE ARE SOME INDEPENDENT LIVING CENTERS THAT HAVE
ADDITIONAL ASSISTIVE TECHNOLOGY PROGRAMS INCLUDING
ASSISTIVE TECHNOLOGY RECYCLE PROGRAMS AND SOME
INDEPENDENT LIVING CENTERS HAVE DEVELOPED RESOURCES FOR
HAVE CONNECTIONS OF HOW TO GET SOME LIMITED FUNDING TO
HELP PURCHASE ASSISTIVE TECHNOLOGY THAT MAY NOT BE
COVERED BY OTHER FUNDING SOURCES.
    SO IN THE INDEPENDENT LIVING SECTION AT THE
DEPARTMENT OF REHABILITATION WE PROVIDE FUNDING FOR THE
ASSISTIVE TECHNOLOGY NETWORK, WHICH IS CURRENTLY HOUSED
AT THE CALIFORNIA FOUNDATION FOR INDEPENDENT LIVING
CENTERS. AND THE WEBSITE IS UP ON THE SLIDE.
WWW.ATNET.ORG. SO THAT IS ANOTHER RESOURCE FOR
INDIVIDUALS, FOR BUSINESSES, FOR EDUCATORS, FOR OTHER
COMMUNITY PROVIDERS TO ACCESS IN ORDER TO GET MORE
INFORMATION AROUND ASSISTIVE TECHNOLOGY.
    THE OTHER PIECE THAT WE DO HERE AND IT IS THROUGH THE
CALIFORNIA FOUNDATION FOR INDEPENDENT LIVING CENTERS, IS
WE GIVE FUNDING TO 13 DEVICE LENDING LIBRARIES. AND THESE
ARE A TRY BEFORE YOU BUY PROGRAM WHERE PEOPLE HAVE AN
OPPORTUNITY TO TRY DIFFERENT ASSISTIVE TECHNOLOGY ITEMS
TO SEE WHAT IS GOING TO BEST MEET THEIR NEEDS BEFORE THEY
MAKE A FINAL PURCHASE AND USE THEIR LIMITED RESOURCES.
WHETHER THAT IS INSURANCE OR OUT OF POCKET TO PAY FOR THE
ASSISTIVE TECHNOLOGY.
     AND I THINK THINGS TO THINK ABOUT AROUND SERVING THE
TBI COMMUNITY AND ASSISTIVE TECHNOLOGY, THERE ARE A LOT OF
DIFFERENT PIECES OF ASSISTIVE TECHNOLOGY THAT CAN ASSIST
INDIVIDUALS WITH THEIR DAILY LIVING NEEDS. INCLUDING, FOR
EXAMPLE, THERE ARE ALL OF THESE GREAT SMART PHONES OUT
THERE. AND THERE ARE FEATURES TO ASSIST SOMEONE WITH A
TRAUMATIC BRAIN INJURY INCLUDING CALENDARS TO ALERT THEM
OF UPCOMING EVENTS. AND THERE ARE THINGS LIKE TAPE
RECORDERS THAT MAY BE USED FOR SOMEONE TO SPEAK INTO
THAT THEY CAN PLAY BACK. AND PILL BOTTLE ALARM REMINDERS
THAT HAVE VOICE OUT PUTS TO REMIND INDIVIDUALS TO TAKE
THEIR MEDICATIONS IN A TIMELY MANNER, AS WELL AS A LOT OF
INDIVIDUALS WITH TBI MAY HAVE PHYSICAL OR SENSORY
DISABILITIES THAT ASSISTIVE TECHNOLOGY MAY BE USEFUL FOR.
AND REMEMBER ALSO, IF A CONSUMER THAT YOU ARE WORKING
WITH HAS A VOCATIONAL GOAL AND IS A DEPARTMENT OF
REHABILITATION CONSUMER, THAT THERE IS SOME MONEY TO
PURCHASE ASSISTIVE TECHNOLOGY TO HELP INDIVIDUALS MEET
THEIR VOCATIONAL GOALS.
    DAN CLARK: ALL RIGHT. I AM GOING TO TOUCH BASE FOR
THOSE THAT ARE NOT FAMILIAR WITH THE DEPARTMENT OF
REHABILITATION, ABOUT THE SERVICES WE PROVIDE. DOR ASSISTS
CALIFORNIANS TO OBTAIN AND RETAIN EMPLOYMENT TO LIVE IN
THE COMMUNITY. AND THE DEPARTMENT DEVELOPS, PURCHASES,
PROVIDES AND ADVOCATES FOR PROGRAMS AND SERVICES IN
VOCATIONAL REHABILITATION, HABILITATION AND IL FOR PERSONS
WITH DISABILITIES. THIS IS A LIST OF THE VARIOUS SERVICES WE
PROVIDE, COUNSELING, AND GUIDANCE, JOB SEARCH, PLACEMENT
AND OTHER TRAINING SERVICES, TRANSITION, ON THE JOB,
PERSONAL ASSISTANT SERVICES, REHAB A.T. WHEN THE A.T. IS
TIED TO A VOCATIONAL PLAN, WE ARE IN A POSITION TO ASSIST IN
GETTING THE ITEMS TO HELP THEM BECOME EMPLOYED AND
SUPPORTED EMPLOYMENT SERVICES. NOW TO THIS GOAL HERE, I
WANT TO SHARE WHAT WE HAVE DONE SO FAR. WHEN THE
PROGRAM CAME TO US, WE HAD TWO CENTERS PROVIDING
VOCATIONAL SERVICES. THE CENTERS RIGHT NOW, THE TBI FUNDS
COME FROM THE STATE GENERAL FUND. AND SEVERAL CENTERS
HAD USED THEIR FUNDS TO MATCH WITH DOR TO PROVIDE VR
SERVICES. AND THESE ARE MOSTLY PRE-VOCATIONAL SERVICES,
PLACEMENT, JOB COACHING. AND WE ONLY HAD TWO PROGRAMS
DOING IT. NOW WE WILL HAVE FIVE PROGRAMS. WE WERE ABLE TO
USE ARRA MONEY TO HELP THE OTHER THREE PROGRAMS START
TO WORK WITH THE LOCAL DISTRICTS, THE DISTRICTS THEY SERVE
AND TRY TO IDENTIFY THE PRE-VOCATIONAL SERVICES THAT D.R.
NEEDED AS A PART OF WORKING WITH PEOPLE WITH TRAUMATIC
BRAIN INJURIES. THAT WAS THE BEGINNING. AND THAT PROCESS
HAS BEEN VERY SUCCESSFUL USING THE ARRA MONEY TO DO
THAT. IT REESTABLISHED AND CONNECTED SOME OF OUR
PROGRAMS, SOME OF OUR TBI PROGRAMS WITH THE DEPARTMENT
OF REHABILITATION. AND SOME OF THEM WERE SKEPTICAL ABOUT
WHAT WOULD WORK. AND EVEN THE PROGRAMS THAT WERE
SKEPTICAL ARE TURNING OUT TO BE GREAT BEST PRACTICES
PROGRAMS. SO IT IS VERY SUCCESSFUL. AND AS A RESULT OF IT,
AS WE MOVE FORWARD INTO THE NEXT TWO YEAR CONTRACTS
WITH THE TBI SITES, FIVE OF THEM HAVE BEEN USING THEIR FUNDS
TO MATCH TO GET V.R. DOLLARS TO CONTINUE THE PROGRAM THEY
ARE PROVIDING TO THE LOCAL DISTRICTS. AND THIS PROGRAM IS
DEALING WITH THE CENTRAL VALLEY OR CENTRAL CALIFORNIA.
AND EXCEPT FOR CCCIL WHICH SERVES THE MONTEREY, SANTA
CRUZ AREA, WE ARE WEAK IN THE MIDDLE GROUND. FOR THOSE
NOT CONNECTED, LIKE IN FRESNO AND HAVE A TBI SIGHT THERE. I
WOULD LIKE THOSE COUNSELORS DEALING WITH TBI, FEEL FREE TO
CONTACT US AND CONTACT ME PARTICULARLY TO TELL ME ABOUT
WHAT YOUR EXPERIENCES ARE AND WHAT YOU ARE CONFRONTED
WITH IN TRYING TO WORK WITH PEOPLE WITH TRAUMATIC BRAIN
INJURIES AND THE TYPE OF SERVICES YOU WANT. THIS PROGRAM
AND COMING HERE IS THE BEGINNING AND THE START OF
DEVELOPING A FULL STATEWIDE PROGRAM. SO I WANT TO HEAR
FROM YOU. AND I WILL WORK WITH YOU TO HELP IDENTIFY
RESOURCES THAT YOU MAY BE ABLE TO USE IN RETURN.
     THE NEXT SIDE HAS TO DO WITH CAPACITY BUILDING. I WANT
TO TALK ABOUT WITHIN THE DEPARTMENT OF REHABILITATION, OUR
SECTION IS WORKING WITH OUR ADMINISTRATORS AND MANAGERS
TO EXPAND AND INCREASE TBI SERVICES. AND I SHARED WITH YOU
WHAT WE DID WITH THE ARRA FUNDS. AND WHAT WE ARE DOING
WITH THE MATCHING CONTINUED TBI FUNDS WITH THE PROGRAMS
USING THE TBI FUNDS TO GET ADDITIONAL DOLLARS IN THE AREAS.
BUT MORE IMPORTANTLY, WE ARE HAVING INTERVIEWS WITH
SUPERVISORS AND FRONT LINE STAFF WHO WORK WITH THE TBI TO
FIND OUT THOSE -- YOU KNOW WE HAVE RULES AND REGULATIONS
THAT ARE PRETTY MUCH SET, BUT THE SUBTLE THINGS, HOW IT IS
APPROACHES, THE MIND SETS AND THE UNDERSTANDINGS THAT
MIGHT GO ALONG WITH WORKING WITH THE POPULATION THAT WE
ARE TRYING TO LEARN FROM OUR COUNSELORS OUT IN THE FIELD
WHAT IS GOING ON. SO WE CAN ADDRESS THOSE ISSUES TO
MINIMIZE THE BARRIERS. SO WITHIN THE CONTEXT OF THE
DEPARTMENT OUR SECTION IS ENGAGING AND TRYING TO WORK
WITH THE VR SIDE. SO FOR THOSE COUNSELORS THAT ARE OUT
THERE ON THE CONFERENCE CALL, AGAIN, IF YOU HAVE ANY
QUESTIONS OR HAVE ANY SUGGESTIONS, PLEASE LET ME KNOW.
    WE ALSO ARE TRYING TO CREATE OPPORTUNITIES AND
TOOLS AND ONE OF THOSE THINGS WE ARE DOING IS WORKING
WITH OUR STAFF DEVELOPMENT TO WORK ON MODULES FOR
UNDERSTANDING TBI. EVERYTHING FROM THE TYPE OF TBI, THE
FUNCTIONAL LIMITATIONS TO BEST PRACTICES FOR WORK AND JOB
PLACEMENT.
    WE ARE ALSO GOING TO BE ENGAGING THE ADVISORY BOARD
AND MEMBERS ON THE ADVISORY BOARD AT DMH FOR THE
PROGRAM WE ARE EMBRACING THEM AND FINDING OTHER
PARTNERS IN THE COMMUNITY THAT WILL PROVIDE EXPERTISE AS
WE DEVELOP OUR STRATEGIC PLAN. AND ALL OF THE SYSTEMIC
CHANGES THAT NEED TO BE BUTT IN PLACE TO WORK WITH THE
POPULATION.
     I HAVE STATED WHAT WE ARE TRYING TO DO WITHIN THE
INITIATIVES. WE WANT COMMUNITY PARTICIPATION IN DEVELOPING
THE STRATEGIC PLAN AND WE ARE REACHING OUT TO THE
COMMUNITY PARTNERS. IN THE DEPARTMENT HERE, COMING OUT
BY SEPTEMBER, WE ARE GOING TO HAVE, YOU MAY KNOW ABOUT
BENEFITS 101 WHERE CONSUMERS FIND OUT BENEFITS AND HOW
THEY CAN TRANSITION ON BEING IN SOCIAL SECURITY AND GOING
TO WORK SO THE TRANSITION IS SEAMLESS. WE ARE DEVELOPING
A VETERANS 101 ALONG THE SAME LINE. SO A VETERAN WILL COME
TO YOU AND DEPENDING ON THE THEATER OF WAR AND WHAT TIME
THEY ARE IN, YOU CAN FIND OUT WHAT THEY ARE ENTITLED TO.
THERE IS A MYRIAD OF DIFFERENT LEVELS OF SERVICES
DEPENDING ON WHEN YOU WERE IN THE SERVICE. AND ALSO LIKE I
STATED BEFORE, PART OF AB 398 IS TO DEVELOP A TBI WAIVER.
THIS IS WHERE WE ARE TRYING TO IDENTIFY AND WORKING WITH
THE COMMUNITY PARTNERS TO IDENTIFY THE GAPS IN SERVICES
OUT THERE. THERE ARE GAPS. AS A COUNSELOR 15-20 YEARS
AGO, IN SOME CASES I AM NOT SEEING ANYTHING DIFFERENT NOW
THAN I SAW THEN, THERE IS A BIG GAP. WE WANT TO HELP FILL IN
THE GAPS AND WE ARE HOPING THE WAIVER WILL HELP US DO IT.
     AND THEN WITHIN THE TBI SITES, AND I JUMPED AHEAD OF
MYSELF ON THE SLIDES, BUT I TALKED ABOUT WE HAVE USED ARRA
FUNDS TO HELP DEVELOP THE VOCATIONAL SERVICES. AND NOW
THEY ARE SUCCESSFUL, THEY ARE USING THEIR OWN FUNDS TO
MATCH AND MOVE FORWARD.
     SERVICES, THIS IS THE AREA THAT WE WANT TO GET INTO,
HOW DO WE BETTER COORDINATE AND PARTNER WITH THE
COMMUNITY MEMBERS AND SO FORTH.
    ANA ACTON: OKAY. SO WHY PARTNER? OBVIOUSLY WE KNOW
THERE ARE CHALLENGES WITH SERVING THIS PARTICULAR
COMMUNITY. IT IS REALLY A MATTER OF BETTER SERVING THE
INDIVIDUAL. IF WE CAN COORDINATE THE SERVICES THAT WE HAVE
TO BETTER MEET THEIR NEEDS. AND WE ARE IN A DIFFICULT
ECONOMIC TIME. AND THIS REALLY, AN OPPORTUNITY THAT WE
ARE SEEING IN A LOT OF DIFFERENT VENUES WHERE
ORGANIZATIONS ARE REALLY LOOKING TO HOW CAN WE BE MORE
EFFICIENT AND EFFECTIVE IN PROVIDING SERVICES FOR THE
COMMUNITY. AND PARTNERING AND COORDINATING SERVICES IS
OBVIOUSLY ONE WAY TO DO THAT.
     ALSO, INDEPENDENT LIVING CENTER MAY NOT HAVE THE
DEPTH OF EXPERIENCE THAT TBI SITES HAVE IN SERVING THIS
PARTICULAR COMMUNITY. AND ALSO ILCS HAVE RESOURCES THAT
CAN HELP ENHANCE THE TBI SITE'S EFFORTS IN SERVING THE
COMMUNITY. WHILE THERE ARE SOME OVERLAPS IN TYPES OF
SERVICES THAT WE PROVIDE BETWEEN AN INDEPENDENT LIVING
CENTER OR A TRAUMATIC BRAIN INJURY SITE OR DEPARTMENT OF
REHABILITATION, THERE ARE UNIQUE SERVICES AND STRENGTHS
WE WANT TO LEVERAGE AND SERVE IN THE COMMUNITY. WHAT IS
THE ROLE IN STATE AND LOCAL GOVERNMENT AND COMMUNITY
ORGANIZATIONS IN IMPLEMENTING APPROPRIATE TBI SERVICES
AND PROGRAMS. FOR EXAMPLE, WE PROVIDE FUNDING AND WE
PROVIDE COMPLIANCY AND OVERSIGHT TO THE FUNDING, BUT IT IS
YOUR COMMUNITY ORGANIZATIONS THAT UNDERSTAND THE
COMMUNITY AND HOW TO BEST TAKE THE FUNDING AND MAKE IT
WORK FOR THE COMMUNITY THAT YOU ARE SERVING. SO WE CAN'T
DO IT WITHOUT YOU. YOU HAVE THE EXPERTISE AND THE
EXPERIENCE AND YOU UNDERSTAND NOT ONLY THE TBI
COMMUNITY, BUT YOUR PARTICULAR LOCAL COMMUNITY AS WELL.
    DAN CLARK: RIGHT.
    ANA ACTON: SO WE ALSO, HOW DO COMMUNITY SERVICE
AGENCIES EMBRACE I.L. PHILOSOPHY AND PROVIDE THEIR UNIQUE
VISION OF SERVICES? SO WE DO HAVE DIFFERENT PHILOSOPHIES.
INDEPENDENT LIVING CENTERS COMING FROM THE I.L.
BACKGROUND IS ALL ABOUT CONSUMER CHOICE AND THEY ARE
THE EXPERTS IN THEIR OWN LIVES AND THEY CAN MAKE THEIR OWN
DECISIONS. WE ALSO HAVE A TBI COMMUNITY WHO OFTEN, NOT
ALWAYS, CAN RELY ON OTHERS, CAREGIVERS, FAMILY MEMBERS,
FRIENDS, TO HELP THEM IN THEIR DAILY LIVES. SO HOW DO WE
WORK WITH THE STAKEHOLDERS AND SUPPORTS IN PROVIDING
SERVICES TO THE INDIVIDUAL? AND I WANT TO GIVE AN EXAMPLE
OF A DEPARTMENT OF REHABILITATION EMPLOYEE WHOSE FAMILY
MEMBER HAS A TBI. WHEN WE ARE GOING THROUGH THE PROCESS
AT THE DEPARTMENT OF REHABILITATION, WE WOULD CHECK IN
AND SAY WHAT DO YOU WANT? I WANT TO GO TO MC DONALDS.
AND WE STARTED THINKING ABOUT IT. THAT IS A PERFECT PLACE.
AND THE WHOLE IDEA IS WORK WITH THE CONSUMER WHERE THEY
ARE AT AND WHAT THEY WANT TO DO. IF THERE IS BUY IN AND
THEIR INTEREST AND DESIRES ARE PART OF THE DECISION MAKING
AND WHAT THE OUTCOME IS GOING TO BE, THEN YOU WILL HAVE
MORE BUY IN. THEN YOU ASK QUESTIONS, WE WANT TO GO TO MC
DONALDS FOR LUNCH, WE NEED TO GET UP. WE ARE GOING TO
HAVE TO GET DRESSED. WE HAVE TO FIGURE OUT
TRANSPORTATION TO GET THERE AND WE WILL HAVE TO FIGURE
OUT HOW WE WILL PAY FOR IT. HERE ARE THE DIFFERENT PIECES
THAT ARE INTERSECTIONS WHETHER YOU ARE THE INDEPENDENT
LIVING CENTER OR THE TRAUMATIC BRAIN INJURY PROGRAM OR
THE DEPARTMENT OF REHABILITATION, OF HOW WE WORK WITH
INDIVIDUALS WHERE THEY ARE AT TO HELP THEM GET WHERE THEY
WANT TO GO. IF THEY ARE GOING TO MC DONALDS, YOU NEED
YOUR TRANSPORTATION, AND INDEPENDENT LIVING SKILLS, AND A
JOB TO BE ABLE TO PAY FOR IT. THERE ARE WAYS TO WORK WITH
INDIVIDUALS AND HAVE THEM BE A PART OF THE PROCESS. AND
FOR THE INDEPENDENT LIVING CENTERS IT IS ABOUT GETTING THAT
CONSUMER THERE AND PART OF ALL OF THE DECISION MAKING AND
IT MAY MEAN WORKING WITH A CAREGIVER AND THE FAMILY
MEMBER AND THEIR SUPPORT SYSTEM.
    DAN CLARK: IF YOU LOOK AT THE GOALS OF BOTH PROGRAMS,
IS TO HELP THE PERSON BE AS INDEPENDENT AS POSSIBLE. I HAVE
NOT MET A CAREGIVER OR TBI SITE THAT DOESN'T TRY TO WORK
WITH THE INDIVIDUAL THAT ISN'T GOING TOWARD A DIRECTION
THAT IS TRYING TO HELP THAT PERSON BE AS INDEPENDENT AS
POSSIBLE. BUT AT THE SAME TOKEN, YOU HAVE TO RECOGNIZE
THE I.L. THEY ASK THE CONSUMER EVERYTHING THEY WANT TO DO,
HERE YOU MAY HAVE TO WORK IN CONJUNCTION WITH THE
CAREGIVER. WHERE THE CONSUMER IS SITTING MAY NOT BE A
PLACE WHERE THEY CAN DO IT ALL. YOU HAVE TO START WITH THE
ISSUES AND ADDRESS THE THINGS THAT THE CONSUMER WANTS
TO DO AND GET THEM TO DO WHATEVER THEY CAN AS A STARTING
POINT. AND IN SOME CASES THIS IS PRETTY SLOW. WHAT WE ARE
TRYING TO SET UP IS TO IDENTIFY SOME OF THE EARLY SKILL
DEVELOPMENT. COGNITIVE RETRAINING. PREVOCATIONAL TYPE OF
TRAININGS WE WANT TO WORK USING THE WAIVER TO HELP A
PERSON BUILD ON THE IDEA I JUST WANT TO GO TO MC DONALDS.
THAT IS A STARTING POINT. BUT LATER ON HOPEFULLY THEY WILL
SAY I WANT TO GO BACK TO SCHOOL. OKAY. WHAT DOES THAT
TAKE. YOU BUILD ON IT AND EVENTUALLY WHEN YOU COME TO THE
DEPARTMENT, THERE ARE OTHER SKILLS YOU HAVE TO BUILD ON
THAT YOU NEED FOR WORK. WE NEED TO GET THEM READY SO
WHEN THEY COME TO THE DEPARTMENT THEY HAVE SOME OF THE
SKILLS BUILT DOWN. BUT THE DEPARTMENT WILL HAVE TO WORK
WITH THEM IN A MANNER THAT MOVES A LITTLE SLOWLY. AS WE GO
FORWARD, WE ARE LOOKING AT DIFFERENT MODELS THAT THE
DEPARTMENT CAN EMBRACE. WE KNOW THERE ARE SOME
INTERNAL ISSUES AND PRESSURES THAT GO ON IN THE
DEPARTMENT. THE FACT IS THAT THE CONSUMER IN BOTH CASES,
WHETHER IT IS A MEDICAL MODEL OR SOCIAL MODEL, THE END
GOAL IS TO HELP THAT PERSON BE AS INDEPENDENT AS POSSIBLE.
    ANA ACTON: SO SERVICE COORDINATION AND PARTNERSHIP.
SO, WE REALLY ARE ENCOURAGING AND ESPECIALLY BECAUSE
NOW HERE IN THE DEPARTMENT OF REHABILITATION AT THE
INDEPENDENT LIVING SECTION, WE ARE WORKING WITH THE ILCS
AND THE TRAUMATIC BRAIN INJURY SITES AND THE ASSISTIVE
TECHNOLOGY PROGRAMS AND THE DEPARTMENT OF
REHABILITATION VOCATIONAL SERVICES. SO WE REALLY WANT,
AND SOME OF YOU ARE DOING THIS REALLY WELL, BUT WE ARE
REALLY ENCOURAGING DEVELOPING RELATIONSHIPS WITH YOUR
PARTNERS AND CALLING THEM UP, CONNECTING WITH THEM,
UNDERSTANDING WHAT SERVICES ARE PROVIDED, HOW THE
INDEPENDENT LIVING CENTERS ARE IMPLEMENTING THEIR CORE
SERVICES AND REALLY DEVELOP THOSE RELATIONSHIPS WITH
THEM. IF YOU DON'T HAVE A TBI SITE THAT SERVES YOUR
CATCHMENT OTHER OR WHERE YOU PROVIDE SERVICES, CALL UP
YOUR LOCAL, THE CLOSEST ONE TO YOU AND HAVE A
CONVERSATION WITH THEM. MAYBE YOU HAVE A TBI CONSUMER
YOU ARE WORKING WITH AND YOU WANT TO TALK IN GENERAL
ABOUT HOW TO SERVE THAT COMMUNITY OR WHAT SOME OF THE
BARRIERS ARE AND HOW TO OVERCOME SOME OF THE BARRIERS,
CALL THEM UP AND HAVE A DISCUSSION WITH THEM.
    DAN CLARK: EVEN THOUGH A LOT OF THE FOCUS ON THE
SEVEN SITES, WE RECOGNIZE THERE ARE MANY OTHER PROGRAMS
THAT SERVE TRAUMATIC BRAIN INJURY. IN FACT ON HERE TODAY IS
CAROL FROM SERVICES FOR BRAIN INJURY, THEY ARE OUT OF SAN
JOSE AND THEY ARE A LOCAL COMMUNITY SITE THAT SERVES
PEOPLE WITH TRAUMATIC BRAIN INJURY SPECIFICALLY. AND ONE
OF THE THINGS WITH THE PROGRAM THAT WE ARE TRYING TO DO IS
WE ARE DEVELOPING A RESOURCE GUIDE TO HELP IDENTIFY BY
COUNTY WHERE YOU MAY GO. WE KNOW WE HAVE COUNSELORS,
LIKE IN FRESNO, WHAT RESOURCES CAN YOU USE AND COMMUNITY
PARTNERS CAN YOU WORK WITH THAT WOULD HELP YOU. SO WE
ARE GOING TO HELP TRY TO FIND ADDITIONAL RESOURCES. SO BE
LOOKING FOR THAT. OKAY?
    ANA ACTON: ONCE AGAIN, UNDERSTAND THE
ORGANIZATIONAL STRENGTHS OF EACH OF OUR DIFFERENT
PARTNERS. FOR EXAMPLE, THE TRAUMATIC BRAIN INJURY SITE AND
OTHER SERVICES SITES THAT FOCUS ON SERVING INDIVIDUALS
WITH TBI. ILCS ARE STRONG IN OTHER AREAS LIKE ADVOCACY,
BENEFITS, COUNSELING, HOUSING AND PEER SUPPORT. AND THEN,
OF COURSE, THE DEPARTMENT OF REHABILITATION IS STRONG ON
VOCATIONAL SERVICES. SO DEVELOP THE UNDERSTANDING OF THE
ORGANIZATIONAL STRENGTHS. AND LOOK TO DEVELOP
MEMORANDUM OF UNDERSTANDING WITH THE ORGANIZATION.
HOW YOU ARE GOING TO WORK TOGETHER AND WHERE YOU ARE
GOING TO REFER TO EACH OTHER FOR SERVICES OR WORK IN
COORDINATION WITH THE CONSUMER. AND THIS IS SOMETHING
THAT ALSO YOU SEE A TURN OVER IN STAFF, THERE IS SOMETHING
THERE THAT NEW STAFF CAN GO TO UNDERSTAND WHAT THE
RELATIONSHIP AND PARTNERSHIP LOOKS LIKE WITH THE OTHER
ORGANIZATIONS. YOU HAVE A GREAT OPPORTUNITY TO DO IN
SERVICE AND STAFF TRAINING BETWEEN THE DIFFERENT SITES.
CROSS TRAINING WITH EACH OTHER AROUND THE PARTICULAR
DISABILITY AND THE SERVICES YOU PROVIDE SO YOU HAVE A
BETTER UNDERSTANDING. AND THERE IS A NEW PROCESS COMING
OUT WITH AGING AND DISABILITY RESOURCE CONNECTION WHO
ARE WORKING ON COLLABORATING WITH OTHERS IN THE
COMMUNITY TO PROVIDE SERVICES. AND THINK OF HOW YOU CAN
HAVE A NO WRONG DOOR STRUCTURE. SO IF AN INDIVIDUAL
COMES TO A TBI SITE, HOW CAN YOU CONNECT THEM WITH THE
LOCAL INDEPENDENT LIVING CENTER AND VICE-VERSA. SO THERE
ARE THINGS LIKE YOU CAN DO WARM HAND OFFS WITH THE
TELEPHONE SYSTEM. YOU CAN USE TECHNOLOGY LIKE SKYPE TO
HAVE A CONSUMER COME INTO A TBI SITE AND CONNECT TO THE
INDEPENDENT LIVING CENTER OR OTHER COMMUNITY
ORGANIZATIONS SO THE INDIVIDUAL WHO MAY HAVE ISSUES WITH
TRANSPORTATION CAN EASILY CONNECT WITH THE OTHER
ORGANIZATION AND DO IT IN ONE LOCATION. YOU CAN
COORDINATE USING SKYPE.
     SO, NOW I WILL HAND IT OVER TO DAN TO TALK MORE ABOUT
SOME OF THE PARTICULAR COORDINATION AROUND THE CORE
SERVICES THE TRAUMATIC BRAIN INJURY SITES HAVE.
    DAN CLARK: FIRST OF ALL, I WOULD LIKE TO ENCOURAGE
ANYBODY AS THEY ARE WORKING WITH THEIR ILC OR TBI, IF YOU
HAVE ANY QUESTIONS AROUND THIS AREA, FEEL FREE TO CONTACT
ME. I WANT TO GO BACK TO THE TRAUMATIC BRAIN INJURY
SERVICES AND CORE SERVICES. I. AND R. WE DON'T HAVE ON
THERE. BUT COMMUNITY INTEGRATION. AND THAT IS LOOKING AT
THE BIG PICTURE, THE HOUSING, THE TRANSITION AND EDUCATION.
SOME CASES THE TBI SITES HAVE GREAT RESOURCES. THAT IS
WHAT ILCS CAN DO WELL. WE CAN ADD TO AND BE VALUE ADDED
TO A TBI SITE. IF AN ILC CAN HELP WITH THE IDENTIFICATION OF
HOUSING. ONE OF THE THINGS WE MENTIONED EARLIER, THEY DO
ADVOCACY WORK. THEY CAN WORK WITH THE TBI SITE IN
ADVOCACY WORK FOR GETTING SOME OF THE MAJOR COMMUNITY
INTEGRATED TYPE SERVICES. IT TAKES WORK ON BOTH SIDES.
THERE IS ROOM FOR COLLABORATION THERE. AND SUPPORTED
LIVING, WHEN IT COMES TO SUPPORTED LIVING WHICH IS ABOUT
HOW WE WORK FROM DAY TO DAY. I SEE THAT AS A PLUS TO TBI
SITES. BUT THE ILCS CAN COME TO THEM AND LEARN MORE ABOUT
THAT AND THEY CAN BE HELPFUL IN IDENTIFYING PERSONAL
ASSISTANTS FOR THEM. AND HELP WITH SOME OF THE TRAINING,
AND WORKING IN ADVOCACY WORK WITH THE IHSS GETTING THEM
THE SERVICES. IT MAY BE HELPFUL FOR THE TBI SITES TO SEE IF
THEY CAN HELP THEM WITH THAT AND GET THEM TO FOCUS ON THE
SUPPORTED LIVING ISSUES DIRECTLY WITH THE CONSUMER. WHEN
IT COMES TO VOCATIONAL, THERE IS A PLAY THERE AND ONE OF
THE THINGS WITH VR, BENEFITS COUNSELING IN VERY IMPORTANT
IN THIS AREA FOR INDIVIDUALS WITH TRAUMATIC BRAIN INJURY.
AND I CAN SEE HOW AN ILC CAN BE HELPFUL IN PROVIDING THE
BENEFITS COUNSELING TO CONSUMERS SO THEY HAVE A BETTER
UNDERSTANDING WORKING WITH VR IN THE LOCAL VR OFFICE. AND
IN IDENTIFYING JOBS. I CAN SEE HOW A TBI SITE WORKING WITH VR
SERVICES AND ILCS, I KNOW THAT ONCE WE PLACE INDIVIDUALS,
THEY SEEM TO WORK WELL FOR A WHILE AND THEN SOMETHING
CHANGES AND ALL OF THE SUDDEN THEY ARE NOT WORKING. A
LOT OF TIMES THE CONSUMER DOESN'T THINK OF GOING BACK TO
VR, BUT WE KNOW OF SEVERAL ORGANIZATIONS WHERE THEY
PROVIDE PEER COUNSELING. EVENING PROGRAMS, AND PEOPLE
COME BACK AND TALK ABOUT IT. AND IN SOME CASES THEY HEAR
ABOUT ISSUES GOING ON AT WORK. THAT IS WHERE A TBI SITE, IF
THEY HAVE A PROGRAM LOCALLY, THEY CAN GET BACK WITH THE
DEPARTMENT OF REHABILITATION AND SAY WE MAY HAVE AN ISSUE
FOR POST EMPLOYMENT SERVICES. THERE IS SO MUCH ROOM FOR
COLLABORATION FOR EACH PERSON WORKING WITH THEIR
STRENGTHS. IF AN ILC HAS A STRENGTH IN DOING HOUSING AND
SO FORTH AND SOME OF THE ILCS HAVE PLACEMENT CONTRACTS
WITH THE DEPARTMENT OF REHABILITATION. AND THEY CAN HELP
WITH THE PLACEMENT. AND I CAN SEE THE TBI SITES HELPING WITH
THE VOCATIONAL PROGRAM. THERE ARE LOTS OF POSSIBILITIES
OUT HERE TO WORK TOGETHER WITH THE OTHER STRENGTHS.
    ANA ACTON: WITH THAT, WE WANT TO ENCOURAGE YOU TO
CONNECT WITH YOUR LOCAL ORGANIZATIONS THAT SERVE
INDIVIDUALS WITH TBI. FEEL FREE TO CONTACT US ANY TIME. WE
NEED YOUR INPUT ON HOW WE WILL BETTER STRUCTURE OUR
SERVICES AND PROVIDE SUPPORT TO INDIVIDUALS WITH TBI. SO
WHETHER OR NOT YOU ARE AN ILC, TBI SITE OR ANOTHER
ORGANIZATION OR A DEPARTMENT OF REHABILITATION
COUNSELOR, WE WOULD LOVE TO HAVE DISCUSSIONS WITH YOU
AROUND THESE ISSUES. WITH THAT I WILL TURN IT OVER TO DOUG
AND CRYSTAL AND I BELIEVE OUR CONTACT INFORMATION IS IN THE
BACK OF THE PRESENTATION. IF NOT, WE WILL GIVE IT TO YOU
AFTER DOUG AND CRYSTAL'S PRESENTATION.
    DOUG CHANDLER: THANK YOU FOR THE PRESENTATION YOU
DID. I THINK IT MAY HAVE OPENED THE DOOR TO A NUMBER OF
QUESTIONS. AND I WOULD LIKE TO GIVE THE AUDIENCE AN
OPPORTUNITY TO ASK QUESTIONS OF DAN AND ANA. THERE WILL
BE TIME FOR QUESTIONS AND ANSWERS AT THE END. BUT
SOMETIMES THERE IS A QUESTION YOU WANT TO ASK RIGHT AWAY.
IF YOU DO HAVE A QUESTION, PLEASE PRESS *6 ON YOUR PHONE
AND IDENTIFY YOURSELF AND YOUR QUESTION. WE HAVE TIME SET
ASIDE AT THE END FOR QUESTIONS ALSO. DURING THE NEXT PART
OF THE PRESENTATION YOU CAN FORMULATE ANY QUESTIONS
THAT YOU MAY HAVE. OKAY.


    CRYSTAL LOUTZENHISER: NEXT WE WILL BE TALKING ABOUT
SERVING CONSUMERS WITH BRAIN INJURIES. AND FOR A MORE
FORMAL INTRODUCTION, THIS IS DOUG CHANDLER, WHO HAS A
BACKGROUND IN REHABILITATION COUNSELING AND EDUCATION.
HE CURRENTLY WORKS AT CCCIL TBI EXPANSION PROJECT
MANAGER WHICH HAS RESULTED IN AN OPPORTUNITY TO WORK
COLLABORATIVELY LOCALLY AND STATEWIDE TO INCREASE
AWARENESS ON TRAUMATIC BRAIN INJURY INCLUDING VETERANS
WITH TRAUMATIC BRAIN INJURIES.
    DOUG CHANDLER: THANK YOU CRYSTAL. CRYSTAL
LOUTZENHISER IS THE TBI PROGRAM ASSISTANT FOR THE TBI
EXPANSION CONTRACT. SHE HAS WORKED WITH FACILITATING THE
TBI ADVISORY COMMITTEES. CRYSTAL IS A NATURAL COMMUNITY
ORGANIZER.
    CRYSTAL LOUTZENHISER: SO ONE OF THE FIRST STEPS -- ONE
MOMENT PLEASE -- SO ONE OF THE FIRST STEPS IN OUR PROJECT
WAS CONDUCTING AN ASSET MAPPING SURVEY.
    DOUG CHANDLER: I AM SORRY, WE NEED TO GO BACK TO A
DIFFERENT SLIDE. I BELIEVE THE TOOLS THAT WE CREATED ARE
DIRECTED AND DIRECTIONS IN WHICH WE TEND TO CONTINUE WILL
CREATE A BASIS FOR BEING ABLE TO FOSTER AND GROW THE
RELATIONSHIP BETWEEN TBI SITES, ILCS WHILE USING DOR
RESOURCES TO HELP CONSUMERS WITH BRAIN INJURY TO BE
BETTER ABLE TO FIND RESOURCES AND HELP USE THEIR FULL
POTENTIAL. CRYSTAL AND I WILL BE TALKING ABOUT TOOLS WE
HAVE DEVELOPED WITH THE TBI EXPANSION PROJECT FOR
MAXIMIZING SERVICES FOR CONSUMERS WITH BRAIN INJURIES.
THESE TOOLS ARE ASSET MAPPING, TBI ADVISORY COMMITTEES,
OUTREACH AND VETERANS COMMUNITY PARTNERS, LEGISLATIVE
AND GRASS ROOTS ADVOCACY, EXPANDING BRAIN INJURY
SERVICES MANUAL, WHICH INCLUDES A MEDIA OUTREACH
HANDBOOK, OUR WEBSITE, CATBI.ORG AND THIS IS FOLLOWED BY
NEXT STEPS.
    CRYSTAL LOUTZENHISER: ONE OF OUR FIRST STEPS IN OUR
PROJECT WAS CONDUCTING AN ASSET MAPPING SURVEY OF CCCIL
AND THREE ILCS, WHO ALSO PARTICIPATED AT THEIR SERVICE
AREA, INCLUDING THE MARIN CENTER FOR INDEPENDENT LIVING,
SVILC, AND CID SAN MATEO.
    WHAT IS ASSET MAPPING? IT IS USED TO ESTABLISH A BASE
LINE OF WHAT SERVICES AND RESOURCES CURRENTLY EXIST IN
THE GEOGRAPHIC AREA, THE QUALITY OF THEIR SERVICES,
PROGRAMMATIC ACCESS OF BEING KNOWLEDGEABLE AND BEING
ABLE TO MEET THE SPECIFIC NEEDS OF CONSUMERS WITH TBI,
ARCHITECTURAL ACCESS AND FUNDING OF THE SERVICES,
WHETHER THE SERVICES WERE PAID OUT OF POCKET OR MEDI-CAL
OR MEDICARE BY THE CONSUMERS AND THEIR INSURANCES. THE
SERVICES MEASURED IN THE ASSET MAPPING SURVEY INCLUDED
DISABILITY, EMPLOYMENT, HOUSING, MEDICAL AND OTHER
SERVICES USED BY PEOPLE WITH TRAUMATIC BRAIN INJURY. AS A
TOOL FOR WORKING WITH TBI CONSUMERS, THIS SURVEY CAN HELP
YOU IDENTIFY RESOURCES AND PARTNERS IN YOUR COMMUNITY
THAT WILL MEET THE WIDE RANGE OF CONSUMER NEEDS.
     THE RESULTS OF THE ASSET MAPPING IS KNOWLEDGE OF
THOSE AVAILABLE IN DEVELOPING A LIST OF SERVICE PROVIDERS
AND POTENTIAL PARTNERS IN THEIR AREA. SOME OF THE
INTERESTING AND TRENDS THAT AROSE WERE IN REGARDS TO
HOUSING SERVICES. THROUGHOUT THIS CATEGORY THERE WERE
TRENDS TOWARD LOW PROGRAMMATIC AND ARCHITECTURAL
ACCESS FOR TBI. IN REGARDS TO THE MEDICAL COMMUNITY, WE
FOUND THEY WERE IN NEED OF IMPROVEMENT FOR
PROGRAMMATIC ACCESS IN PROVIDING APPROPRIATE DISCHARGE
PLANNING AND REHABILITATION SERVICES NEEDED FOR CARE.
FUNDING FOR THE SERVICES WERE GENERALLY THROUGH
INSURANCE OR OUT OF POCKET WHICH ALSO IS A SIGNIFICANT
ISSUE FOR BOTH PEOPLE WITH TBI AND THE DISABILITY
COMMUNITY. THIS PROCESS OPENED THE DOOR TO NEW
PARTNERSHIPS, SUCH AS WITH SANTA CLARA COUNTY MEDICAL
CENTER OR SERVICES FOR BRAIN INJURY WITH THE TBI RESOURCE
DIRECTLY ALSO KNOWN AS T-BIRD. ONE OF OUR PARTNERS THAT
PARTICIPATED IN THE ASSET MAPPING STATED THAT WHEN
COMPLETING THE ASSET MAPPING TOOL FOR TBI I FOUND THAT
THESE QUESTIONS ABOUT ACCESS ARE ALSO RELEVANT FOR ALL
OF OUR CONSUMERS ACROSS DISABILITIES.
     ANOTHER KEY COMPONENT OF THE PROJECT WAS THE TBI
ADVISORY COMMITTEE. AND I HAVE ENJOYED BEING A PART OF
THAT. AS PART OF THE I.L. PHILOSOPHY THAT ANA WENT OVER,
NOTHING ABOUT US WITHOUT US, OUR COMMITTEE PLAYED AN
ESSENTIAL ROLE IN PROVIDING A CONSUMER PERSPECTIVE THAT
DROVE THE DIRECTION THAT WE AND OUR CONSULTANTS WENT IN
FOR THE PROJECT TO INCLUDE THE CORE ISSUES AND PRIORITIES.
WE HAVE TWO ADVISORY COMMITTEES MADE UP OF EIGHT
MEMBERS EACH AND ONE OF THE GROUPS CONSISTED OF JUST
VETERANS WITH TRAUMATIC BRAIN INJURY. THEY PROVIDED INPUT
ON ALL OF OUR TBI WEBINAR SERIES, MEDIA INTERVIEWS,
PARTICIPATED IN LEGISLATIVE VISITS AND GAVE US INPUT ON
HANDOUTS AND THE BROCHURES THAT WE HAVE BEEN
DEVELOPING.
     THE PRIORITIES FOR OUR CIVILIAN ADVISORY COMMITTEE HAS
BEEN ABOUT DISCHARGE PLANNING, OUTREACH, MANY STATING
THEY FELL THROUGH THE CRACKS LEAVING THE HOSPITAL DOORS
AND ADVOCATING TO STREAMLINE THE TBI REFERRAL PROCESS
FROM THEIR INJURY THROUGH THE DOCTOR'S OFFICE OR
HOSPITAL, OUT THE DOOR AND INTO THEIR COMMUNITIES.
     THE CALIFORNIA ACADEMY FOR FAMILY PHYSICIANS
ATTENDED ONE OF OUR MEETINGS TO LEARN FROM A CONSUMER
EXPERIENCE OF DEALING WITH THE MEDICAL COMMUNITY. AND
THEY ENCOURAGED THEIR STAFF TO INCLUDE A CONSUMER
PERSPECTIVE, WHICH WAS A REWARDING EXPERIENCE. THE
VETERAN ADVISORY COMMITTEE FOCUSED ON RAISING
AWARENESS OF VETERANS WITH TRAUMATIC BRAIN INJURY
THROUGH INTERVIEWS FOR VETERANS DAY PROVIDING A
VETERAN'S PERSPECTIVE FOR THE LAST WEBINAR. THROUGH THIS,
ONE OF OUR COMMITTEE MEMBERS WAS ABLE TO WORK WITH THE
DISABLED AMERICAN VETERANS, ALSO KNOWN AS DAV, AND ALSO A
PRESENCE AT THE DISABILITY CAPITOL ACTION DAY LAST MONTH.
MANY HAVE SPOKEN ON HOW IMPORTANT BEING ON THESE
COMMITTEES HAS BEEN FOR THEM BEING ABLE TO IMPACT
CHANGES FOR THE TBI COMMUNITY STATEWIDE. IT HAS BEEN AN
EMPOWERING EXPERIENCE. ONE OF OUR COMMITTEE MEMBERS
SAID THANK YOU FOR PUTTING US ON THE MAP. WE ARE NOT
HEARD BUT WITH THIS WE WILL BE HEARD AND MORE ATTENTION
WILL COME TO US AND OUR FAMILIES. THANK YOU. AND THAT HAS
BEEN VERY REWARDING.
    DOUG CHANDLER: NEXT I WANT TO TALK ABOUT
ESTABLISHING COMMUNITY PARTNERSHIPS. ANA AND DON HAVE
OUTLINED WHERE TBI SITES AND ILCS AND DEPARTMENT OF
REHABILITATION WORKING TOGETHER CAN HELP CONSUMERS
THROUGH THE NO WRONG DOOR APPROACH. ONCE THE
RELATIONSHIP IS ESTABLISHED, AN MOU CAN BE ANOTHER WAY TO
CLEARLY DEFINE THE ROLE OF THE COLLABORATING PARTNERS.
HOWEVER THE RELATIONSHIP AND SHARING OF SERVICES WORKS
BEST FOR AN ORGANIZATION. AN MOU CAN HELP YOU TO
ESTABLISH CLEAR ROLES. THIS CAN BE HELPFUL IN GETTING
CONSISTENT SERVICES WHEN THERE IS A CHANGE IN STAFFING.
COMMUNITY COLLEGES HAVE BEEN A GREAT NEW SOURCE FOR
CONSUMERS WITH TRAUMATIC BRAIN INJURY. THEIR FUNDING HAS
BEEN HEAVILY IMPACTED AND DISABLED STUDENT SERVICES ARE
OFTEN TAKING A LARGE PART OF THE HIT. VETERANS ARE COMING
IN MASS TO COMMUNITY COLLEGES AND THERE IS THE COMMUNITY
TO COLLABORATE WITH THE COUNSELORS ON ENCOMPASS. CAL
CARE NET IS A GUIDE TO LONG TERM SERVICES AND SUPPORT IN
CALIFORNIA. IN INCLUDES IN HOME OPTIONS FOR ASSISTED LIVING
AND NURSING FACILITY CARE. ANOTHER SOURCE OF INFORMATION
FOR LONG TERM CARE IS AGING DISABILITY RESOURCE
CONNECTION. THERE ARE A NUMBER OF OPPORTUNITIES FOR
COLLABORATING WITH VETERANS INCLUDING ATTENDING
VETERANS EVENTS SUCH AS VETERAN'S DAY, MEMORIAL DAY
HOLIDAY EVENT, OR THE YELLOW RIBBON EVENT. AN EVENT THAT I
PARTICULARLY FIND RELEVANT IS THE STAND DOWN. THESE ARE
FOR HOMELESS VETS SEEKING A MYRIAD OF SERVICES. THESE ARE
AROUND THE CLOCK EVENTS THAT ARE USUALLY ABOUT THREE
DAYS LONG. WE TALKED ABOUT THEM DURING THE LAST WEBINAR.
    AND QUICKLY, I HAVE POSTED THE SCHEDULE FOR THE STAND
DOWNS FOR THIS YEAR. I HIGHLY RECOMMEND THAT YOU ATTEND
THE ONE IN YOUR AREA. THE MOST ESTABLISHED STAND DOWN IS
IN SAN DIEGO, BUT THERE ARE OTHER ONES TAKING PLACE
INCLUDING UPCOMING ONES IN SANTA CRUZ, LONG BEACH AND
FRESNO.
    I WOULD LIKE TO ACKNOWLEDGE CHARLOTTE NEWHART AND
THE WORK SHE HAS DONE WITH THE TBI ADVISORY COMMITTEE.
ONE OF THE TOOLS SHE HAS PUT TOGETHER IS A POLICY
DEVELOPMENT PLAN. SOME OF THE ELEMENTS OF THE TOOL
INCLUDE THE HELPFUL GLIMPSE INTO THE PROCESS OF HOW A BILL
BECOMES LAW. IT HIGHLIGHTED HOW TO FORM RELATIONSHIPS
WITH PUBLIC LEADERS. A MEET AND GREET. AND IT OUTLINES HOW
TO RAISE AWARENESS AND PROVIDE EDUCATION TO THE LEADERS
SO THEY CAN MAKE INFORMED DECISIONS WHEN DEVELOPING
POLICY AND DISCUSSING THE TOPIC OF BRAIN INJURY. BUILDING
THE RELATIONSHIPS HELPS TO ESTABLISH YOU AS A POSSIBLE
RESOURCE FOR INFORMATION ON DISABILITIES AND BRAIN INJURY
IN THE FUTURE.
     THE EXPANDING BRAIN INJURY SERVICE MANUAL IS A
RESOURCE WE HAVE CREATED THROUGH THE PROJECT. IT
COVERS BEST PRACTICES AND COMPONENTS OF PROVIDING
SERVICES AND OUTREACH TO PEOPLE WITH TBI. AREAS BEING
COVERED INCLUDE ASSET MAPPING, ADVISORY COMMITTEE TOOLS,
WEBINAR PLANNING TOOLS, WHICH SHOWS THE STEP BY STEP
PROCESS FROM CONCEPT TO WEBINAR. WE ARE COLLABORATING
WITH CFILC TO ADDRESS THE ACCESSIBILITY ISSUES AS WELL FOR
PLANNING A WEBINAR. THE TBI OUTREACH SURVEY FOR TBI
SERVICE SITES, AMPLE OUTREACH PRESENTATIONS, HANDOUT AND
BROCHURES. BROCHURES THAT CAN BE MODIFIED FOR YOUR
ORGANIZATION, AND STOP FLIER ON IDENTIFYING A CONSUMER
WITH A POTENTIAL TBI. AN MOU PROVIDES INFORMATION ON
DEVELOPING RELATIONSHIPS THAT MAY RESULT IN A FORMAL
AGREEMENT SUCH AS MEMORANDUM OF UNDERSTANDING AND
THIS WILL BE INCLUDED. THERE ARE LESSONS LEARNED
DISCUSSING WHAT WORKED WELL AND WHAT COULD BE LEARNED
FROM THE PROCESS OF CREATING THIS MODEL.


    CRYSTAL LOUTZENHISER: THE MEDIA OUTREACH HANDOUT
WAS PUT TOGETHER IN PARTNERSHIP WITH OUR MEDIA
CONSULTING FIRM. THE MANUAL COVERS MANY ASPECTS OF TBI
OUTREACH INCLUDING MEDIA OUTREACH TO RAISE AWARENESS OF
TBI AND TBI RESOURCES THAT YOU CAN USE YOURSELF. THE
MANUAL GOES INTO DETAIL ON HOW YOU CAN GET MEDIA, WHICH
REFERS TO PUBLICITY OUTSIDE THE REALM OF PAID ADVERTISING
TO GET YOUR MESSAGE OUT ON THE RADIO, TV, NEWSPAPER,
SOCIAL MEDIA AND EDITORIAL. THE KEY TO REACHING OUT TO THIS
TYPE OF MEDIA IS IN DEVELOPING A GOOD NEWS STORY AND
THERE ARE EXAMPLES IN THE HANDBOOK INCLUDING NEWS
ARTICLES, PRESS RELEASES, LETTERS TO THE EDITOR THAT YOU
CAN ALSO REFERENCE.
     WE ALSO HAVE OUR CATBI.ORG WEBSITE, WHICH IS A
STATEWIDE TBI RESOURCE WHERE YOU CAN LEARN MORE ABOUT
BRAIN INJURY, OUR PROJECT, READ OUR BLOG AND PROVIDE
STATEWIDE RESOURCES. IT IS CURRENTLY BEING TRANSLATED
INTO SPANISH AND IT WILL HAVE MANY TOOLS WE HAVE MENTIONED
AVAILABLE ON THE WEBSITE.
     SOME OF THE RESOURCES WE ENCOURAGE YOU TO
REFERENCE IN ADDITION TO OUR WEBSITE WOULD BE TRAUMATIC
BRAIN INJURY SERVICES OF CALIFORNIA, DEFENSE AND VETERANS
BRAIN INJURY CENTER, BRAIN LINE, BRAIN INJURY ASSOCIATION OF
CALIFORNIA, AND CENTER FOR NEURO SKILLS, AS WELL AS OUR
LOCAL TBI SITE INCLUDING ST. JUDE BRAIN INJURY NETWORK, SAN
FRANCISCO TBI NETWORK. AND THE CENTRAL COAST CENTER FOR
INDEPENDENT LIVING WHICH COVERS THE CENTRAL COAST AND
BAY AREA. ALSO, IN ADDITION, WE HAVE THE TRAUMATIC BRAIN
INJURY SERVICE SITE, WHERE YOU CAN SUBMIT QUESTIONS AND
ONE OF THE SEVEN SITES WILL RESPOND TO THE QUESTIONS AS
WELL.
    DOUG CHANDLER: WE ARE STILL IN THE PROCESS OF
COMPLETING THE WEBSITE. THE TOOLS THAT ARE BEING
DEVELOPED AND RESOURCES THAT ARE BEING MADE AVAILABLE. I
HOPE YOU WILL VISIT OUR WEBSITE TO SEE WHAT HAS BEEN
CREATED TO DATE. DISTRIBUTION OF TOOLS INCLUDING THE BRAIN
INJURY SERVICES MANUAL, MEDIA OUTREACH HANDBOOK AND
WEBSITE WILL BE DONE THROUGH PERSONALIZING DISTRIBUTION
AND EDUCATIONAL MATERIALS FOR YOUR ORGANIZATION. OUR
NEXT STEPS INCLUDE MOVING FROM BUILDING A MODEL AS A PILOT
PROJECT TO IMPLEMENTATION THROUGH INDIVIDUALIZING
MATERIALS FOR YOUR ORGANIZATION. WE WANT TO CREATE A
SUSTAINABLE RESOURCE THAT WILL BE AVAILABLE FOR ALL OF YOU
IN YOUR WORK TO SERVE CONSUMERS WITH A BRAIN INJURY.
PLEASE REMEMBER TO COMPLETE THE POST WEBINAR SURVEY
AFTER THIS WEBINAR IS OVER. THANK YOU.
     NEXT, I WOULD LIKE TO OPEN THIS UP TO ANA AND DAN AS
WELL AS OURSELVES. WE HAVE CREATED THIS TIME TO HAVE AN
INTERACTIVE DIALOGUE. PLEASE ASK ANY QUESTIONS AND LET US
KNOW WHAT WILL HELP YOUR ORGANIZATION IN ITS WORK WITH
PEOPLE WITH TRAUMATIC BRAIN INJURIES.
    >> THIS IS SHERRY PHOENIX. I DON'T HAVE A QUESTION. I
HAVE A COMMENT. I WANT TO SAY HOW GREAT EVERYTHING YOU
HAVE DONE IS AND THE WEBSITE IS GREAT AND THE MANUAL IS
WONDERFUL AND I APPRECIATE ALL OF THE HARD WORK THAT
WENT INTO IT.
    DOUG CHANDLER: THANK YOU SHERRY, I APPRECIATE THAT.
DO WE HAVE ANY QUESTIONS OR DAN OR ANA? WHAT WOULD HELP
YOUR ORGANIZATION IN ITS WORK? ANYBODY WANT TO TALK
ABOUT HOW WE INTERACT, IF YOU ARE AN ILC, HOW YOU INTERACT
WITH A TBI SITE, OR IF YOU ARE A TBI SITE, AN EXAMPLE OF HOW
YOU MAY INTERACT WITH AN ILC?
    >> SHERRY AGAIN. ARE YOU TIRED FROM HEARING FROM ME?
    DOUG CHANDLER: NO, I WAS WAITING TO HEAR FROM
SOMEBODY.
    >> MY ORGANIZATION IS NOT A TBI SITE, IT IS A GRASS ROOTS
ORGANIZATION. BUT I SERVE ON THE BOARD OF DIRECTORS OF
OUR LOCAL ILC. AND I HAVE A CLOSE WORKING RELATIONSHIP
WITH THE SATELLITE OFFICE THAT IS IN THE SAME COUNTY THAT MY
ORGANIZATION OPERATES OUT OF. AND WE REFER PEOPLE BACK
AND FORTH AND SHARE CONSUMERS. AND THEY ALLOW ME TO USE
THEIR OFFICE. WE HAVE A CLOSE WORKING RELATIONSHIP.
    DOUG CHANDLER: THAT IS GREAT TO HEAR. THANK YOU. CAN
YOU TELL US AGAIN WHERE YOU ARE LOCATED?
    >> WE ARE IN VENTURA COUNTY, WHICH IS BETWEEN SANTA
BARBARA AND LOS ANGELES COUNTY.
    DAN CLARK: I GUESS I REMEMBERED SOMETHING. SHERRY,
REMEMBER WHEN YOU WERE WITH THE PROGRAM THERE IN
VENTURA FOR A WHILE AND WE WERE WORKING WITH A GROUP.
ANOTHER AREA IS WORKING WITH THE CAREGIVERS AND THE
PARENTS. PARENTS WANT TO REALLY PROTECT THEIR
CONSUMERS. WHEN WE TRY TO INTRODUCE INDEPENDENT LIVING
WITH CAREGIVERS, WHAT I AM SAYING WHEN IT COMES TO THE ILCS
THERE HAS TO ABE DISCUSSION OF WHAT WE ARE TRYING TO DO
AND OUR APPROACH AND HOW IT CAN FIT. BECAUSE I THINK THE
PEOPLE'S FIRST REACTION IS THEY ARE CONCERNED ABOUT THEIR
SPOUSES, THEIR LOVED ONES MAKING THE WRONG DECISION. AND
THERE IS A LOT OF PROTECTION THAT GOES ON THERE. I THINK WE
HAVE A LOT OF -- WORKING TO A SOCIAL MODEL WITH THE
CONSUMERS AS WE PROGRESS TO A LOCAL MODEL AND LIVING IN
THE COMMUNITY AS ITS CHALLENGES. I WANTED TO THROW IT OUT
THERE.
    >> WELL THAT OTHER ORGANIZATION, THE OTHER PLACE THEY
ARE STILL GOING AND THEY ARE STILL PRETTY MUCH MEDICAL
MODEL PARENTAL MODEL. WHICH THEY DO VERY WELL. THEY NOW
HAVE A PROFESSIONAL ADVISORY BOARD AND EVERYTHING. BUT,
YOU KNOW, ONE OF THE HALL MARKS OF OUR ORGANIZATION WE
ARE INDEPENDENT LIVING BASED. I CAME UP WITH A TWO PAGE
DOCUMENT. AND I WANTED TO SEND IT LATER TO YOU GUYS IN
CASE YOU WANT TO GIVE IT OUT TO PEOPLE. WE GO TO THE
HEALTH AND WELLNESS FAIRS, AND IT IS A DIFFICULT CONCEPT FOR
PEOPLE TO UNDERSTAND THAT THE CONSUMER CAN HAVE CHOICE
AND SELF DETERMINATION. THEY CAN ALSO USE IT AS TOOLS.
    DAN CLARK: I WOULD LOVE TO SEE WHAT YOU HAVE. I WANT
TO ALSO SAY THAT A NUMBER OF YEARS AGO IN KANSAS, THE ILC
THERE GOT A GRANT THROUGH MEDICAID TO WORK WITH PEOPLE
WITH DISABILITIES. AND IN PARTICULAR PEOPLE WITH TBI AND
FROM THEIR EXPERIENCE THERE, THEY DID PUT TOGETHER A
BOOKLET. IT IS ABOUT A 50 PAGE BOOKLET ON THE CHALLENGES
THAT I THINK EVERYBODY HAS TO RESPECT AND UNDERSTAND.
AND I THINK EVERYBODY HAS TO RESPECT BOTH SIDES OF THE
AISLE AND IF WE RESPECT IT AND UNDERSTAND IT WE CAN START
WORKING WITH IT. IF ANYBODY WANTS A COPY OF THE RESOURCE
THAT SHERRY HAS, IF YOU SHARE IT WITH ME, I WILL SHARE IT WITH
OTHERS. AND THE OTHER BOOKLET PUT TOGETHER THAT TALKS
ABOUT THE CHALLENGES AND THE POSITIVE APPROACHES YOU
CAN TAKE TO WORK BETWEEN OUR DIFFERENT PROGRAMS AND
WORKING WITH A MORE MEDICAL MODEL TO A SOCIAL MODEL.
    DOUG CHANDLER: THANK YOU DAN.
    >> I WOULD LOVE TO SEE THE DOCUMENT FROM IOWA. AND
EVEN IF YOU HAVE SOMEBODY WITH A MEDICAL MODEL OR
PARENTAL MODEL, THE FIRST THING TO DO IS GET THEM TO THE
TABLE. AND START EDUCATING THEM HOW IT CAN WORK WITH
THEIR SUPPORT. AND GRADUALLY AS THEY ARE EDUCATED MY
HOPE IS YOU WILL GET THEIR BUY IN AND THEY WILL BE MORE
LIKELY TO UNDERSTAND IT AND WANT TO DO IT.
    DOUG CHANDLER: I WANTED TO MENTION SOMETHING PUT ON
THE CHAT IN THE WEBINAR. NOT EVERYBODY DOES HAVE ACCESS
TO THE WEBINAR ELLUMINATE PLATFORM, THEY ARE ONLY ON BY
PHONE. AND SHERRY MENTIONED THERE IS A NEW TBI GUIDE FOR
ANDROID PHONES RELEASED ON JUNE 7. AND THERE ARE A LOT OF
EXCITING THINGS HAPPENING WITH ADAPTIVE TECHNOLOGY
AROUND TRAUMATIC BRAIN INJURY. AND IT IS BUILDING THE
CAPACITY OF THE CONSUMERS ABILITY TO BE ABLE TO DO A WIDER
VARIETY OF THINGS. RIGHT NOW WE ARE AT THE END OF THE TIME
FOR THE WEBINAR. I WANT TO THANK DAN AND ANA AND CRYSTAL
FOR PARTICIPATING IN PRESENTING THIS WEBINAR. AND TO
THANKS ALL OF YOU, THE AUDIENCE FOR COMING AND LISTENING
TO US TODAY AND STARTING A DIALOGUE. THANK YOU SO MUCH.
THIS CONCLUDES OUR WEBINAR TODAY.

				
DOCUMENT INFO