Volume 3, Issue 2 Friday, July 25, 2008 The Dawn Phenomenon F R I E N D S F O R L I F E 2 0 0 8 Can’t Decide? Suggested Sessions: • Dr. Alessio Fasano to speak on Celiac-Day to Day at 8:45 in Crystal Ballroom A • Dr. Lynda Fisher to speak on Transitioning to Adult Care at 1:15 in Walu • Dr. Henry Anhalt to discuss Diabetes, Drugs & Alcohol at 1:15 in Crystal Ballroom A • Dr. Anthony Cheung of Engene to speak on Genetic Engineering at 3:15 in Crystal Ballroom D Tween Social Tweens will enjoy music by DJ Miles, dancing, karaoke, limbo and many other fun activities. The REALLY cool part is the lights and party favors. Flashing lights of all colors set the mood, and the kids have a great time collecting lighted party favors, trading and wearing them, and there will be many flashing colors from all the participants and tables throughout the room. There will be ice cream toward the end of the Social, which is always a popular treat. The Social is a strictly ‘no parents’ event! There will be a number of pre-selected chaperones, and a certified diabetes educator in the room at all times. Tweens with diabetes must bring their own diabetes care supplies. All tweens must be picked up by an adult at the end It’s Salsa Time! of the event. Parents must remain at the hotel and Uno, dos, tres...bailemos! Not to be outdone by the teens and be reachable by phone. Due to the level of physical tweens, our young adult group, which is growing by leaps and activity at the social, we’ll be checking blood sugars bounds, will enjoy a delicious dinner in Crystal Ballroom A-C during the night. followed by salsa dancing. An instructor will be there to teach them all the right moves! Teen Dance Tonight! If you thought your teen would be exhausted from the day at Islands of Adventure, you’d change your mind if you saw them at the teen dance. But, NO PARENTS ALLOWED, unless you are a chaperone. This is THE highlight of FFL for many of the teens. They must dress nicely—no jeans, no cut-offs. Post- dinner entertainment will start off with a few songs by CWD teen Nikki Lang followed by a DJ. 2 Friday, July 25, 2008 The Dawn Phenomenon P a r e n t i n g a T e e n . . . W i t h D i a b e t e s By Natalie Bellini, CWD Teen Leader Many of the parents and staff look at me like I am crazy to grasp the concept. Stop trying. It makes you look for running the teen program. Don’t get me wrong; I am bad to them. crazy, but I love teens. I never want to be one again, but h. Stop saying you would take it away if you could. You they are an amazing group of people. My advice to can’t and it makes them feel more isolated. Stick with ‘I parents is pretty simple: before you raise your voice at know this is not fair.’ your teen with anger or frustration, stop, wait and think i. Do not say this is better than cancer, lupus, leprosy, about what a teen’s real goals are: etc. It’s a lot worse than a lot of things, too. Again, it is distancing you from their true feelings of “this stinks.” 1. Stop the endless nagging from the parent (s) Even if the teen says it’s not as bad as cancer, lupus, 2. Get to be with friends. or leprosy one day, the next day it can feel pretty bad again. You deciding on what kind of day they are Many will do anything to achieve that. What will they do? having within earshot does not create a winning Tell you they will do it in a minute, for example. If I had a situation. nickel for every task that was supposed to be done in a minute and then was not, I would be on an island (with j. The more a person watches TV, the higher the A1C. Laura) in the sand and I would own it. So, what is a Turn it off and get out of the house. parent to do? The kids have their list, you should have k. If you want your teen to take exemplary care of him/her yours. self, then get up and do the same. Teens who have parents that exercise do so themselves. a. Diabetes is not an option. Neither is diabetes management. Keep in mind, that a teen wants two things. Help them get b. Your teen is not ready to do diabetes management them as often as possible. alone. Do not give them the disease management and then complain about the A1C. Remember, they My own teen spent last year as an exchange student in are trying to accomplish goals # 1 and #2 above. Colombia. I can only tell you that I missed her so much it c. Truth is expected, but do not give your child too caused pain in my chest. I only wish that she was not much space. The truth of diabetes is that it is never ready to do it, that she came home part way through, that right all the time, so it’s easy to try to stop the she needed me. I had to learn that this was the young adult nagging and try to ‘get by’ with less. I had raised. She is one who has no understanding of walls or impossibilities. Give your teen that same opportunity. S/ d. Decide on the rules and stick with them. No matter he should have the opportunities the world has to offer. In what. This is hard. Find other teen parents to help missing my daughter Erin, I cannot stress enough that I you make you stick to your guns. Look around. There only wish we had more time together. Not more time are hundreds of parents here all with email access. arguing, debating or the like, but more time talking about e. Voice your frustration at the diabetes, not your teen. whatever matters to her that day, be it at 11 p.m. when she ‘I’m so frustrated with these numbers!’ or ‘I don’t comes in from being out with friends or 2 a.m. when she know either, let’s fax them to the diabetes team’ is wakes me up by crawling into bed with us because she better than ‘What did you eat?’ or ‘Why are you so can’t sleep or on the three block drive to school. high?’ because the direct translation is ‘This is all your fault.’ Your job as a parent is to get your teen ready and able to f. Tell your teen you know they are trying. Regularly. be a fully functioning adult. Think of all the bosses, g. Do not threaten your teen with diabetes teachers and classmates you have had that berated you or complications. They don’t care about when they are your friends or family. Think of how you felt. Think of your old. That is your job. Did you worry about being an teen. Think. Now talk. adult when you were a teen? It is impossible for them Natalie was diagnosed with Type 1 as a child and just a few short years ago, was a teen with diabetes. CWD Trivia Neal Billetdeaux once tried to check the blood sugar of his golden retriever. Pam Loebner’s daughter forgot her ID bracelet when going on a trip. Pam used a red Sharpie to write Diabetes on her wrist. Catherine Schulz (known to many as the Bolus Queen or Her Royal Highness for her ability to figure out how to cover pizza) once, while not at home, had to use a staple to prick her daughter’s finger because she couldn’t find a lancet.. Stacey Nagel has given her son the nickname “The Pump Slayer” because he keeps needing replacement pumps. The Dawn Phenomenon Friday, July 25, 2008 3 Living with Diabetes — A Sense from CWD Polls CWD’s weekly polls offer an insight into what living with diabetes means for our families. Two frequently discussed topics are nighttime monitoring and checks per day. The graphs below are from the most recent polls on those topics. From March 23-30, 2008. 532 responses. From November 18-25, 2007. 569 responses. D E S S E R T W I T H T H E F A C U L T Y Didn’t think of that question you wanted to ask before you left your session? Now’s the time to find that faculty member and ask. This is also the opportunity to chat with the faculty member whose talk you had to miss because there were too many choices! In addition to one-on-one time with the faculty members, you will have the opportunity to review their research on posters put up throughout the room (Crystal D/E). Posters often feature late- breaking science and help you learn about the latest in diabetes research. Bruce Buckingham, Fran Kaufman, Stu Weinzimer, and Henry Anhalt at the Dessert with the Faculty at Friends for Life 2007. Answers to “Test Your Knowledge:” 1. Frederick Banting, Charles Best, J.J.R. MacCleod, and J.B. Collip 2. Dean Kamen 3. The Ames Reflectance Meter 4. Actress Mary Tyler Moore, pitcher Jason Johnson, actor Victor Garber, singer Nick Jonas, singer Elliott Yamin, basketball player Adam Morrison, and many more 5. C. We have registrants from 14 countries this year.