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The Dawn Phenomenon


									    Volume 3, Issue 2                                                                                Friday, July 25, 2008

The Dawn Phenomenon
                        F R I E N D S              F O R            L I F E          2 0 0 8
Can’t Decide? Suggested Sessions:

•   Dr. Alessio Fasano to speak on
    Celiac-Day to Day at 8:45 in Crystal
    Ballroom A
•   Dr. Lynda Fisher to speak on
    Transitioning to Adult Care at 1:15
    in Walu
•   Dr. Henry Anhalt to discuss Diabetes, Drugs & Alcohol at 1:15
    in Crystal Ballroom A
•   Dr. Anthony Cheung of Engene to speak on Genetic
    Engineering at 3:15 in Crystal Ballroom D
                                                                                        Tween Social
                                                                     Tweens will enjoy music by DJ Miles, dancing,
                                                                     karaoke, limbo and many other fun activities. The
                                                                     REALLY cool part is the lights and party favors.
                                                                     Flashing lights of all colors set the mood, and the
                                                                     kids have a great time collecting lighted party favors,
                                                                     trading and wearing them, and there will be many
                                                                     flashing colors from all the participants and tables
                                                                     throughout the room. There will be ice cream toward
                                                                     the end of the Social, which is always a popular
                                                                     treat. The Social is a strictly ‘no parents’ event!
                                                                     There will be a number of pre-selected chaperones,
                                                                     and a certified diabetes educator in the room at all
                                                                     times. Tweens with diabetes must bring their own
                                                                     diabetes care supplies.

                                                                     All tweens must be picked up by an adult at the end
                       It’s Salsa Time!                              of the event. Parents must remain at the hotel and
Uno, dos, tres...bailemos! Not to be outdone by the teens and        be reachable by phone. Due to the level of physical
tweens, our young adult group, which is growing by leaps and         activity at the social, we’ll be checking blood sugars
bounds, will enjoy a delicious dinner in Crystal Ballroom A-C        during the night.
followed by salsa dancing. An instructor will be there to teach
them all the right moves!

                        Teen Dance Tonight!

If you thought your teen would be exhausted from the day at
Islands of Adventure, you’d change your mind if you saw them
at the teen dance. But, NO PARENTS ALLOWED, unless you
are a chaperone. This is THE highlight of FFL for many of the
teens. They must dress nicely—no jeans, no cut-offs. Post-
dinner entertainment will start off with a few songs by CWD
teen Nikki Lang followed by a DJ.
2    Friday, July 25, 2008                                                                                         The Dawn Phenomenon

          P a r e n t i n g                a     T e e n           .     .      .   W i t h        D i a b e t e s
                                                                                                   By Natalie Bellini, CWD Teen Leader

Many of the parents and staff look at me like I am crazy                  to grasp the concept. Stop trying. It makes you look
for running the teen program. Don’t get me wrong; I am                    bad to them.
crazy, but I love teens. I never want to be one again, but             h. Stop saying you would take it away if you could. You
they are an amazing group of people. My advice to                         can’t and it makes them feel more isolated. Stick with ‘I
parents is pretty simple: before you raise your voice at                  know this is not fair.’
your teen with anger or frustration, stop, wait and think
                                                                       i. Do not say this is better than cancer, lupus, leprosy,
about what a teen’s real goals are:
                                                                          etc. It’s a lot worse than a lot of things, too. Again, it is
                                                                          distancing you from their true feelings of “this stinks.”
1. Stop the endless nagging from the parent (s)
                                                                          Even if the teen says it’s not as bad as cancer, lupus,
2. Get to be with friends.
                                                                          or leprosy one day, the next day it can feel pretty bad
                                                                          again. You deciding on what kind of day they are
Many will do anything to achieve that. What will they do?
                                                                          having within earshot does not create a winning
Tell you they will do it in a minute, for example. If I had a
nickel for every task that was supposed to be done in a
minute and then was not, I would be on an island (with                 j. The more a person watches TV, the higher the A1C.
Laura) in the sand and I would own it. So, what is a                      Turn it off and get out of the house.
parent to do? The kids have their list, you should have                k. If you want your teen to take exemplary care of him/her
yours.                                                                    self, then get up and do the same. Teens who have
                                                                          parents that exercise do so themselves.
a. Diabetes is not an option. Neither is diabetes
   management.                                                         Keep in mind, that a teen wants two things. Help them get
b. Your teen is not ready to do diabetes management                    them as often as possible.
   alone. Do not give them the disease management
   and then complain about the A1C. Remember, they                     My own teen spent last year as an exchange student in
   are trying to accomplish goals # 1 and #2 above.                    Colombia. I can only tell you that I missed her so much it
c. Truth is expected, but do not give your child too                   caused pain in my chest. I only wish that she was not
   much space. The truth of diabetes is that it is never               ready to do it, that she came home part way through, that
   right all the time, so it’s easy to try to stop the                 she needed me. I had to learn that this was the young adult
   nagging and try to ‘get by’ with less.                              I had raised. She is one who has no understanding of walls
                                                                       or impossibilities. Give your teen that same opportunity. S/
d. Decide on the rules and stick with them. No matter
                                                                       he should have the opportunities the world has to offer. In
   what. This is hard. Find other teen parents to help
                                                                       missing my daughter Erin, I cannot stress enough that I
   you make you stick to your guns. Look around. There
                                                                       only wish we had more time together. Not more time
   are hundreds of parents here all with email access.
                                                                       arguing, debating or the like, but more time talking about
e. Voice your frustration at the diabetes, not your teen.              whatever matters to her that day, be it at 11 p.m. when she
   ‘I’m so frustrated with these numbers!’ or ‘I don’t                 comes in from being out with friends or 2 a.m. when she
   know either, let’s fax them to the diabetes team’ is                wakes me up by crawling into bed with us because she
   better than ‘What did you eat?’ or ‘Why are you so                  can’t sleep or on the three block drive to school.
   high?’ because the direct translation is ‘This is all
   your fault.’                                                        Your job as a parent is to get your teen ready and able to
f. Tell your teen you know they are trying. Regularly.                 be a fully functioning adult. Think of all the bosses,
g. Do not threaten your teen with diabetes                             teachers and classmates you have had that berated you or
   complications. They don’t care about when they are                  your friends or family. Think of how you felt. Think of your
   old. That is your job. Did you worry about being an                 teen. Think. Now talk.
   adult when you were a teen? It is impossible for them
                                                                       Natalie was diagnosed with Type 1 as a child and just a few short
                                                                       years ago, was a teen with diabetes.

                                                             CWD Trivia
Neal Billetdeaux once tried to check the blood sugar of his golden retriever.
Pam Loebner’s daughter forgot her ID bracelet when going on a trip. Pam used a red Sharpie to write Diabetes on her wrist.
Catherine Schulz (known to many as the Bolus Queen or Her Royal Highness for her ability to figure out how to cover pizza) once,
while not at home, had to use a staple to prick her daughter’s finger because she couldn’t find a lancet..
Stacey Nagel has given her son the nickname “The Pump Slayer” because he keeps needing replacement pumps.
The Dawn Phenomenon                                                                                               Friday, July 25, 2008      3

Living with Diabetes — A Sense from CWD Polls
CWD’s weekly polls offer an insight into what living with diabetes means for our families. Two frequently discussed topics
are nighttime monitoring and checks per day. The graphs below are from the most recent polls on those topics.

From March 23-30, 2008. 532 responses.

                      From November 18-25, 2007. 569 responses.

            D E S S E R T W I T H
             T H E F A C U L T Y

Didn’t think of that question you wanted to ask before you left
your session? Now’s the time to find that faculty member and
ask. This is also the opportunity to chat with the faculty member
whose talk you had to miss because there were too many
In addition to one-on-one time with the faculty members, you will
have the opportunity to review their research on posters put up
throughout the room (Crystal D/E). Posters often feature late-
breaking science and help you learn about the latest in diabetes
research.                                                           Bruce Buckingham, Fran Kaufman, Stu Weinzimer, and Henry Anhalt at the
                                                                    Dessert with the Faculty at Friends for Life 2007.
Answers to “Test Your Knowledge:”
1.   Frederick Banting, Charles Best, J.J.R. MacCleod, and J.B. Collip
2.   Dean Kamen
3.   The Ames Reflectance Meter
4.   Actress Mary Tyler Moore, pitcher Jason Johnson, actor Victor Garber, singer Nick Jonas, singer Elliott Yamin, basketball
     player Adam Morrison, and many more
5.   C. We have registrants from 14 countries this year.

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