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Sharing Invaluable Friendships with Families

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Sharing Invaluable Friendships with Families Powered By Docstoc
					C Y S T I C F I B R O S I S Q U E E N S L A N D • O CTO B E R 2 0 1 0                                                                                                             Celebrating 50 years of love


Sharing Invaluable                                                                                                    For the Love of
Friendships with Families                                                                                             Adventure…
                                                                         “We just knew he had CF...”
                                                                                                                      Pedal for Life!
Sheridan knew that she had a one-in-four chance of having a child with                                                Looking for a holiday with a difference?
cystic fibrosis (CF), but nothing could take away the thrill of learning that                                         The Pedal for Life seven day guided cycling
she was pregnant.                                                                                                     adventure	 through	 the	 stunning	 New	 Zealand	
                                                                                                                      countryside of Otago is steeped in history and is
It had, after all, been a long hard road. With            Aidan was late and Sheridan was induced. During             an experience not soon forgotten.
unsuccessful IVF attempts behind her, she and her         delivery, Aidan’s heart rate dropped dramatically
                                                                                                                      “So often when you have a child (now an adult)
                                                                                                                                                                                               From the
husband, Christian, had resigned themselves to            low and Sheridan was rushed into surgery for an
being a family of three with their then seven year        emergency caesarean.                                        with CF you feel absolutely helpless to do
                                                                                                                                                                                               CEO’s Desk
old son, Jordan: an adorable little fellow who also
has CF.                                                   Aidan spent the first night of his life in a special        anything. This bike ride is one way we can try to
                                                          care nursery.                                               make a difference in the lives of families living
Christian, who serves in the Australian Army, had
just begun a new tour of duty in Timor when                 “When he came back the next day, the                      with CF, including ours.”                                   You may recall that we included a brief survey with the
Sheridan got the wonderful news that she was              poor little thing was exhausted, and when                   Rhyl Venning – April 2010 Pedal for Life                    last	edition	of	CFQ	News.	I	thank	all	who	responded	

                                                          we kissed him and tasted the familiar salty
pregnant. The thrilled parents-to-be knew that                                                                        Participant                                                 and encourage those who have not yet done so to
genetically, they had a 25% chance of having                                                                                                                                      take a few minutes to fill in this survey. (Additional
another child with CF, but it didn’t faze them.           skin, we knew. We just knew he had CF. The                  “It was up there with one of the most amazing               copies are available by phoning 07-3359 8000.)
                                                          heelprick result simply confirmed what we                   experiences I have ever had...and I have done               One of the questions we asked was how you thought
“I just wanted to enjoy my pregnancy and we took
                                                          already knew.”                                              some pretty amazing things. The incredible
                                                                                                                                                                                  our finances were going? Most responded that they
the attitude that whatever-happens-happens,”                                                                                                                                      did not know or they thought we were OK. The truth
Sheridan said.                                            Aidan now three, and Jordan aged ten, have both             scenery and our awesome guide made this a                   is…we are not OK!
                                                          endured significant health issues in their young            week I will always remember. Knowing I was                  Charities have been one of the hardest hit in the
                                                          lives, as a result of their CF. But they are both in
                                                          reasonable health today and Sheridan says she               helping families living with CF, while having so            wake of the Global Financial Crisis (GFC). One report
                                                                                                                                                                                  estimated that Australian charities missed out on
                                                          and her husband just hope that the treatment and            much fun, was the icing on the cake.”                       $500 million in cash donations in 2009 alone, due to
                                                          management of CF continues to improve as their              Mary Lindsay - April 2010 Pedal for Life                    the GFC and the Black Saturday bushfire appeal. In
                                                          boys grow older.                                                                                                        the wake of this crisis, we have been told that there
                                                                                                                      Participant
                                                                                                                                                                                  has been an 80% spike in grant applications and,
                                                          Sheridan is also appreciative of the social
                                                          networking support her family can tap into
                                                                                                                      “I am participating in the Pedal for Life as I              clearly, competition for the charitable dollar has never
                                                          through CFQ events. Earlier this year, Sheridan             would like to raise more awareness about CF.                been more fierce.
                                                          attended a CFQ Mother’s Retreat and together, she           I, myself, having this disease, would like to show          The recent economic challenges have dealt a real
                                                          and Christian attended a CFQ Parent’s Dinner.                                                                           blow to CFQ and our fundraising has been down
                                                                                                                      people that you can do anything that you strive             30%-40% since the end of 2008.
                                               “It’s at forums like these that we get                                 to achieve. Nothing should stop you from doing              As you will have read in this newsletter, we have

Sheridan and Chris’s favourite little men to socialise with other CF families, and                                    the things you want, even an illness like this.             recently appealed to the State Government for
                                               knowing that these families understand                                 I think that this ride will be a good challenge
                                                                                                                                                                                  desperately needed additional funding. You can

Sheridan, a special education teacher, and exactly what we’re going through - and
                                                                                                                                                                                  help support our call for more government funding
                                                                                                                      in helping to raise awareness and funds for                 by appealing to your local Member. (While we
Christian, had been through hard times before. being able to share information - is
                                                                                                                      sufferers of CF while also having a bit of fun.”            encourage you to make representations to your local
“We were highschool sweethearts and while I
                                               really valuable.”                                                      Teagan Cossor – Pedal for Life participant.
                                                                                                                                                                                  Member, please phone me first so I can share the
could have done it on my own, we knew we would                                                                                                                                    latest facts with you.)
be able to cope with anything together.”                  Learn more about Sheridan and her family’s                  November	2010
                                                                                                                                                                                  Warm regards, and thank you for your support.
                                                          incredible story at www.cfqld.org.au, together
And there was much to cope with when little Aidan                                                                     To find out more, visit www.pedalforlife.org.au
                                                          with how you can help other CFQ clients and their
was born in 2007. Like his big brother Jordan,            loved ones this coming Christmas.                           or read more in our 2011 flyer.




The Funding Crisis: CFQ’s Challenge to the Queensland Government
CFQ is helping to save the Queensland health system          CF’s quality of life and their longevity. CFQ works        costs, and the total conservative annual savings
around $6 million every year. Yet CFQ’s government           with adults and children with CF and their support         to Queensland Health by CFQ services is $6 million.       Currently CFQ CEO, Jane Andersen, with the assistance
support is almost 25% lower than the national average        network to ensure they have the education,                 (Based on the average hospital stay - $4232 for 6 days)   of our dedicated Board members, valued Business
of funding to other states – despite catering to almost      medical and support services essential to maintain                                                                   Ambassadors, Client Advocates and the Community
1/3 of the Australian CF Community’s needs.                  a good quality of life.                                 3: The cost to Queensland Health is set to rise. The         Support team are lobbying to Government bodies
                                                                                                                        number of Queenslanders with CF is increasing at          (both State and Local) to draw greater attention
That’s the key message of a recent CFQ submission         2: Best practice treatment translates to fewer                9.9% per annum.                                           to this imbalance in the hopes of establishing
to the Queensland Government. The submission,                hospital visits. (Or, the healthier a person with CF                                                                 further Government Funding to meet the needs of
tabled in 2010, presents a compelling argument for           remains, the less they need to be hospitalised.)        4: CFQ fundraising revenue has been slashed due              Queensland’s CF Community.
a significant increase in government funding to CFQ’s        Anecdotal evidence from direct client contact              to the economic downturn. Because CFQ receives
Community Support Programs for the benefit of                suggests that people with CF who are in optimal            such minimal government funding, it is reliant on         CFQ is calling on its supporters to help get the message
Queenslanders with CF.                                       health, spend an average of 2.5 weeks in hospital          fundraising revenue for 94% of total income.              out there too. For more details, see our CEO’s column
                                                             each year – at a cost of $12,696 to Queensland             During the past 12 months, our fundraising income         and we will update you in future editions of CFQ
The facts outlined in the submission reinforce that                                                                     has dropped around 40% given the current
                                                             Health. Those who are in poor health spend                                                                           News	about	the	Queensland	Government’s	response	
CFQ is not receiving anywhere near a fair share of                                                                      economic climate. While CFQ receives just 6%
                                                             an average of 2.5 months in hospital each                                                                            to our submission.
government funding. THE FACTS:                                                                                          government funding, other states with significant
                                                             year at a cost of $49,373 per year. Add to these
1: The best practice treatment and management                generic hospital stay costs, the value of medication,      populations of people with CF receive vastly more:
   of CF on a daily basis is crucial to the person with      ambulance services and other associated health          	 •	WA:	50%	•	NSW:	17%	•	VIC:20%.	




                                                                                 CO R P O R AT E S P O N S O R S :
        Bundaberg Thrift Shop on the Move                                                                                                                                                        Out-of-hospital
        Bundaberg residents now have a great new
        shopping outlet, with the recent opening of the
                                                                                                                                                                                                 Physiotherapy Trial
        Cystic Fibrosis Queensland Books and Bargains.
        The newly-branded thrift shop has opened in
                                                                                                                                                                                                 a Great Success
        spacious new premises just up the road from their                                                                                                                                        A recent pilot program that trialled out- of- hospital
        previous	 store.	 	 Now	 located	 at	 43	 Woongarra	                                                                                                                                     physiotherapy for CF children revealed positive
        Street Bundaberg, Cystic Fibrosis Queensland                                                                                                                                             outcomes that could have a long term influence on
        Books and Bargains stocks an extensive range of                                                                                                                                          the way Queensland Health views the management
        second hand books as well as pre-loved clothing,
        shoes, jewellery and bric-a-brac.                                                                                                 Great results from                                     of CF in the community.

                                                                                                                                                                                                 CFQ and the Royal Children’s Hospital Brisbane were
        CFQ sincerely thanks the many donors who                                                                                          Great Strides                                          program partners in the landmark pilot program -

                                                                                The Team at CFQ’s Books and Bargains,
        provided materials to fit out the new shop and the                                                                                                                                       known as LOOHPS (The Local Out-Of-Hospital
                                                                                                                                          A series of Great Strides walks were held in 12        Physiotherapy Services for Cystic Fibrosis). The
        many dedicated volunteers who worked so hard to
        get it ready for the big opening.                                       Bundaberg                                                 locations across Queensland this October.              program trialled a new method of service delivery
                                                                                                                                          Individual events were hosted at:                      designed to address significant service gaps in the
                                                                                                                                                                                                 area of community based physiotherapy treatment,
        CF…Through                                                              Tameah’s                              Eyes
                                                                                                                                          •	 3	Brisbane	sites:	
                                                                                                                                                                                                 education and support for children with CF and
                                                                                                                                          	    (Forest	Lake,	North	Lakes	and	St	Lucia)		
                                                                                                                                                                                                 their families in South East Queensland.
                                                                                                                                          •	 Cairns
        Earlier this year, CFQ was approached by the                            ambitions were given a great boost when she                                                                      Three objectives of the pilot were to:
                                                                                                                                          •	 Gladstone
        Uniting Way Charity to nominate a young person                          was presented with a Red Balloon voucher for a
                                                                                photography course as part of her prize.                  •	 Gold	Coast                                          •	 Enhance	the	health	and	wellbeing	of	children		
        with an interest in photography to participate in
        the “Eyes of Brisbane” photographic competition.                                                                                  •	 Hervey	Bay                                             and young people with CF
        All entrants would have access to mentoring by                                                                                    •	 Ipswich
                                                                                                                                                                                                 •	 Enhance	the	wellbeing	of	families	of	children		
        photography students from Griffith University,                                                                                    •	 Mackay                                                 and young people with CF, and
        as well as the loan of a high quality camera                                                                                      •	 Sunshine	Coast
        to capture their photo for the exhibition. The                                                                                                                                           •	 Increase	the	knowledge	and	skill	base	within		
                                                                                                                                          •	 Toowoomba	and
        competition provided a wonderful opportunity for                                                                                                                                            the community regarding CF, its treatment, and
                                                                                                                                          •	 Townsville.	
        our nominated entrant, Tameah Woodford, who                                                                                                                                                 the impact of CF.
        has long had an interest in photography.                                                                                          The Great Strides Walkathon continues to capture
                                                                                                                                          the imagination of our Queensland supporters.          Nineteen	 children	 and	 their	 families	 took	 part	 in	
        Seventeen year old Tameah wowed the judges                                                                                                                                               the LOOHPS program which ran from March to
                                                                                                                                          The inaugural Great Strides walk on the Sunshine
        with her creativity and at the opening night of                                                                                   Coast in 2006, attracted around 200 entrants. This     August 2010. The program services consisted of
        the exhibition at the Brisbane Powerhouse, in                                                                                     year, more than 1,000 people participated across       short term, focused treatment and support. The
        September, Tameah was named the winner of the                           Tameah’s winning photo                                    Queensland. Fundraising does not close until 19        majority of participants received community based
        Judges Award for “A day in the life of” category.                                                                                 November	and	it’s	hoped	that	over	$50,000	will	be	     physiotherapy in their home from private providers,
        During the award presentation, one Brisbane                             The “Eyes of Brisbane” award capped an exciting           raised for CFQ.                                        who received mentoring and support from hospital
        City Councillor commented that Tameah had                               few weeks for this CF client. Only weeks before,          We are truly grateful for the support and dedication   based CF physiotherapists. (Prior to commencement
        visual literacy and a great future ahead of her in                      Tameah was crowned Miss Ipswich Junior Rugby              of our event organisers, our generous and              of the program, a training workshop had also been
        photography.                                                            League.                                                   enthusiastic sponsors, LJ Hooker and Prime Radio,      conducted for 14 community based physiotherapists
        A	thrilled	Tameah	told	CFQ	News	that	she	is	keen	                       Congratulations Tameah, and best wishes as you            and everyone who supported their local event.          interested in being part of the LOOHPS program.)
        to pursue photography as a career. Her career                           pursue your dreams.                                       Sincere thanks to you all.
                                                                                                                                                                                                 Michallee Walker, whose son Damian took part




        In ThE SPOTLIGhT: Our ADMIn TEAM
                                                                                                                                                                                                 in the program, was thrilled with the outcome
                                                                                                                                                                                                 and says she hopes out-of-home-physiotherapy
                                                                                                                                                                                                 becomes more widely available.

                                                                                                                                                                                                 “It was a positive experience for Damian on so
        They’re not often in the spotlight…but they should                      effort they make delivers better service to the CF                                                               many levels,” Michallee said. “One of the greatest
        be! Carolyn, Stella, Cherie and Sam are the CFQ                         community.                                                                                                       benefits was that my son got to interact with a
        Admin team – and this small team makes a very big                                                                                                                                        health worker outside the hospital setting and he
        difference to the lives of the CF community.                            The team are working hard to streamline and                                                                      built up a rapport with his physiotherapist.
                                                                                improve the efficiency of CFQ’s business systems
                                                                                                                                                                                                 “In a sense, this ‘normalised’ his care and he has
        Between them, the Admin team is responsible for                         to ensure that we can continue to make a direct
                                                                                                                                                                                                 become much more compliant since participating in
        manning our busy phone lines, overseeing all our                        difference to the CF Community by injecting dollars
                                                                                                                                                                                                 this program.”
        day-to-day operations, and keeping track of our                         saved to the provision of our support programs.
        finances. (And in the current economic climate,                                                                                                                                          Michallee said she also benefited in many ways.
        that’s one very big challenge.)                                         We would also like to wish a fond farewell to
                                                                                Helen Hunter, who after five dedicated years of                                                                  “During the program, Damian attended a



                                                     Breathe.
        Carolyn, Stella, Cherie and Sam are deeply                              service leaves us this month to pursue her next big                                                              physiotherapist one block away from our house for
        committed to their work and to helping improve                          adventure.                                                                                                       a half hour session once a week across eight weeks.
                                                                                                                                          The Admin team at Cystic Fibrosis

                                                     Breathe.
        the lives of people with CF and their families.                                                                                                                                          This gave me a little free time as I didn’t need to
        All of the staff have a keen sense that every extra                     A big warm thankyou to our team of quiet achievers!       Queensland                                             do Damian’s morning physio on that day, but I also
                                                                Easier said than done                                                                                                            really appreciated having a trained health worker to
                                                            for young Queenslanders                                                                                                              use as a sounding board. Although I am a registered


                                    Breathe.
                                                                   with cystic fibrosis
                                                                Easier said than done                                                                                                            nurse, it was great to know that someone else was
                                                                                MArk yOur DIAry:                                              Get ‘ReD’y to
                                   Breathe.
                                                            for young Queenslanders                                                                                                              keeping an eye on Damian and alert to any changes
                                                                   with cystic fibrosis                                                                                                          in his health.”
                                                   Easier said than done
                                               for young Queenslanders
                                                                                Casino royale                                                 Show youR                                          In their evaluation report, independent study
                                             Easier said than done
                                                   with cystic fibrosis
                                         for young Queenslanders                The 2011 Cystic Fibrosis                                      Love                                               directors Penny Gordon and Sue Whitehead noted
                                                with cystic fibrosis                                                                                                                             that: “The findings of LOOHPS suggest that the
                                                                                Queensland Brisbane Ball                                      Get involved in CFQ’s hearts & Roses Day
                                                                                                                                                                                                 benefits of this short term, focused intervention
                                                                                                                                              2011 and share your love of life with
                                                                                This night-of-nights is the highlight of the CFQ                                                                 can be most readily demonstrated with high need
                                                                                                                                              everyone close to you – held, of course,
                                                                                social calendar and is one of our major fundraisers                                                              children and families who have particularly complex
                                                                                                                                              on 14 February and proudly supported
                                                                                each year. Keep Saturday, 26 March free so you can                                                               and difficult circumstances.”
                                                                                                                                              by Flower & hart, westpac, Prime Radio,
                                                                                join us to experience ‘the art of gaming’ at Casino           Friendlies Chemists and the Coffee Club.           Feedback from community based physiotherapists
                                                                                Royale: The Cystic Fibrosis Queensland 2011 Ball de
                                                                                                                                              Next year, we’ve got a range of exciting           also indicated that their skills and clinical confidence
                                                                                Magnifique.
                                                                                                                                              new merchandise including a silver rose            in CF management had increased. Caregiver
                                                                                On again at the Brisbane Convention and Exhibition            lapel pin and a red ‘bling’ pen.                   feedback supported the quality of the service as
                                                                                Centre, it will be a right ‘royale’ night of glittering       you can embrace the spirit of hearts &             they were uniformly satisfied with the LOOHPS
                                                                                entertainment and sensational dining! The Annual              Roses Day 2011 by hosting your own Go              physiotherapy provided to their children.
           Thatisis why your support to Cystic Fibrosis Queensland
           That why your support to Cystic Fibrosis Queensland
                                                                                CFQ Ball, traditionally held in May, will be held next        Red fundraising event anytime throughout
            is so important. Your donation will provide
           is so important. Your donation will provide education, education,
            support and services to empower people in the                       year in March due to popular demand!                                                                             Given the small sample size involved, it has been
           support andyour support to Cystic people the
           That is whycommunity to realise their full potential. inQueensland
                            services to empower Fibrosis                                                                                      February and/or selling our merchandise to
            cystic fibrosis                                                                                                                                                                      recommended that the pilot program should be
           cystic fibrosis community to realise their full potential.
           is so important. Your donation will provide education,               For more information, visit www.cfqld.org.au                  raise vital funds for Queenslanders living with
           Visit cfqld.org.au or                                                                                                                                                                 seen as a preliminary study of the LOOHPS program.
 hat is why support and to Cystic Fibrosis Queensland in the
            your support services to empower people                                                                                           this dreadful disease. (Merchandise boxes
           Visit cfqld.org.au
           free call 1800 670 990           or
          cystic fibrosis community to realise their full potential.
  so important. Your donation will provide education,
                                                                                Our Annual Ball is proudly presented by , Devine              can be ordered online from January 2011.)
                                                                                Limited. (Other sponsorship opportunities are still                                                              The landmark pilot program was only made possible
            free call 1800 670 the
 upport and services to empower people in990
            Visit cfqld.org.au or                                                                                                             Learn more at www.heartsandroses.com.au            thanks to funding received from nib Foundation.
 ystic fibrosis community to realise their full potential.                      available, to discuss contact Katharine Di Pompo by
                                                                                                                                              or contact us on 07-3359 8000 or by email          CFQ is looking for further funding to roll out a
Visit cfqld.org.au1800 670 990
            free call or                                                        email, events@cfqld.org.au)
                                                                                                                                              admin@cfqld.org.au                                 similar, larger scale trial in the near future.
 ree call 1800 670 990
WITh hEArTFELT ThAnkS
WITH HEARTFELT THANKS                                                                                                 Stay Up-to-date,
                                                                                                                                                                            For the Love of a
                                                                                                                      ONLINE
           visit www.cfqld.org.au check out our Supporter Page
Please visit www.cfqld.org.au toto check out our Supporter Page which acknowledges the
                                                                                                                                                                              Good Book
to acknowledge the many Trusts, Foundations and wonderful that make our work possible.
many Trusts, Foundations and wonderful community members
Without their generosity, we could not continue to provide practical and emotional support to
community members that make our work possible. Without
Queenslanders living with CF.
their generosity, we could not continue to provide practical                                                                                                             Bury your nose in one of the thousands of
                                                                                                                                                                         ex-library books that line the shelves of
Special recognition support to QueenslandersFacelift! with CF.
and emotional for:                 We’ve had a living                                                                                                                    Cystic Fibrosis Queensland’s two Bookshops.
                                                                                                                                                                         The shops contain books from Brisbane
•	 Gambling	Benefit	Community	Fund	for		       	       Our humble (formerly dull blue/grey) office at
                                                                                                                                                                         City Council’s 33 libraries – so whether
Hearts & Roses Day
  providing funding toward office equipment            Kedron, Brisbane, has received a much welcome                                                                     you like Shakespeare or gardening,
    and valuable staff training;                       makeover. Ross Metcalfe, father of Carly, kindly        In an exciting new development, you can now               books for children or books on Marxism,
The 2010 Heart & Roses Day, celebrated across                                                                                                                            you’ll find it at a bargain price.
                                                       arranged a new lick of paint for CFQ, with materials    check out all the latest CFQ developments
•	 Perpetual	 Trustees	 -	 The	 E	 a huge success.
Queensland on 14 February, wasRobert	 Hayles	 &	       and qualified painter’s time donated by his company,    (including general news and research updates)             Proceeds from CFQ Bookshops benefit
      special Hayles Charitable Trust, by Flower
ThisAlison L day is proudly supportedEstate Late       Corporate Painting & Maintenace, and, as you            by visiting the Latest News section on our home           Cystic Fibrosis Queensland and
    Hart Angus Sutherland, Grace and Herbert
and HenryLawyers and celebrates CFQ’s philosophy       can see from this picture, it now looks very smart.     page at www.cfqld.org.au                                  The Lord Mayor’s Community Trust.
‘ForFoulkes Charitable Trust, Estate of the Late
     the Love of Life’.                                Thanks so much to the Metcalfe family.
    MargaretHearts &Farrell formerchandisesalary
A range of Augusta Roses funding the was                                                                                                                                 CFQ BOOKSHOPS:
	 of	our	North	Queensland	Support	Worker;
available through Westpac branches and The
Coffee Club outlets statewide, with many
•	 Lord	Mayor’s	Charitable	Foundation	-	The	Eldon	
                                                       Tasteful Trends                                         Christmas Appeal                                          NUNDAH • 160 Ryans Rd,



                                                                                                               Thank you
                                                       Popular magazine, Style, has selected CFQ as                                                                      intersection of Henchmen St
individuals, community groupspart funding our
    and Anne Foote Trust for and businesses            their Charity of Choice and continue to donate          CFQ Headquarters Brisbane                                 (next to the Nundah train station)
                                                                                                                                                                         Nundah 4012. Open 7 days
    Mother’s Respite merchandise Days Out.
choosing to sell the weekends and to raise funds       the profits from their Fashion Lunches. The latest                                                                8.30am – 4pm. Closed public
for CFQ also.

WITH HEARTFELT THANKS
                                                       luncheon was held at Oskars on Burleigh and                                                                       holidays. Phone: (07) 3256 9622.
A number of ‘Go Red’ fundraising events, such          showcased Spring fashion selections from Australia
                                                                                                                                                                         SALISBURY • 38A Ainsworth St
as those featured below, were hosted across            Fair on the Gold Coast and helped to raise an
                                                                                                                       Stay Up-to-date,                                  Salisbury 4107.
February and March. Queenslanders proved once          amazing $3,000 to support our CF Community!                                                                           For the Love of a
                                                                                                                                                                         Open Mon-Sat 8.30am – 4pm.



                                                                                                                       ONLINE
 Please visit www.cfqld.org.au Lynndon’s Ladies Bowls Club
again that the only limit was their imagination, asto check out our Supporter Page                                                                                       Phone: (07) 3277 7972.
‘Go Red’ events included card nights, afternoon                                                                                                                                Good Book
teas,acknowledge the many Trusts, wonderful ladies at the Lynndon Ladies Bowls

                                                                                                                                                                        Introducing
 to BBQs, rock concerts, cocktail parties and The Foundations and wonderful
much more. Thank you sincerely to everyone who Club nominated CFQ as the beneficiary of the
 community members that make our work possible. Without                                                                                                                   STOP PrESS
                                                                                                                                                                        Kamyra
contributed to this campaign and made it such an funds raised at their annual Charity Bowls Day.
                                                      continue to provide and much
 their generosity, we could not Their effortsdonation of $1,500! practical
outstanding success.
                                                     appreciated
                                                                 resulted in a wonderful                                                                                  Bury your nose in one of the thousands of
                                                                                                                                                                                 – MASSIVE BOOk the shelves of
                                                                                                                                                                          ex-library books that line SALE! –
and emotional support
2010 CFQ Charity Concert                to Queenslanders living with CF.
                                               Felicity’s Wish Foundation                                                                                                 Cystic Fibrosis Queensland’s two Bookshops.
                                                                                                                                                                                        5 DAY BOOK SALE
                                                                                                                                                                          The shops contain books from Brisbane
                                                                                                                                                                               Saturday, 4th to Wednesday, 8th
                                                                                                                                                                          City Council’s 33 libraries – so whether
 Hearts & event, held
This annualRoses Day in early March, was               We are grateful for the support over the past two       Check out all the latest CFQ developments                           December 2010 (inclusive)
                                                                                                                                                                          you like Shakespeare or gardening,
Christine Aylett, Assistantraffles and      Casino
once again a wonderful success! More than 350
 The 2010 Heart & music of HiWay1,
guests enjoyed the Roses Day, celebrated across
                                                       years from Felicity’s Wish Foundation.                  (including general news and research updates) by
                                                                                                                 In an exciting new development, you can now              books for children or books on Marxism,
                                                                                                                                                                           50%	off	everything!!		New	Stock	Daily!
                                                                                                                                                                          you’ll find it at a bargain price.
                                                                                                               visiting	the	Latest	News	section	on	our	home	page	
                                                                                                                 check out all the latest CFQ developments
competitive biddingCasino Cairns collectively
Manager Reef February,auctions:with Jane
 Queensland on 14 on the was a huge success.
                                                       The second annual Felicity’s Wish Cocktail Party
                                                       was held in February at Brisbane’s Cloudland.           at www.cfqld.org.au
                                                                                                                 (including general news and research updates)            Proceeds from CFQ Bookshops benefit
 This special than $24,000 to support CFQ.
raising more day is proudly supported by Flower        The sell-out event hosted more than 350 guests,           by visiting the Latest News section on our home
reef Casino Cairns – Community Chest
 and Hart Lawyers and celebrates CFQ’s philosophy                                                                                                                         Cystic Fibrosis Queensland and
Congratulations to the organising committee,
CFQ were the of Life’. of the proceeds from the
 ‘For the Love recipients
                                                       who enjoyed a fun-filled and memorable night on            We’re Calling On You!
                                                                                                                 page at www.cfqld.org.au                                 The Lord Mayor’s Community Trust.
Kylie and Matt Bocking and Julie and Mike              what would have been Felicity’s 35th Birthday.           Recycle your old mobile phones with us, and you will make a big difference to our CF
                           Reef Casino Cairns –
Community Chest of theRoses merchandise one
Greer, for of Hearts &                                                                                          Community. Your phones will help CFQ raise vitalCFQ BOOKSHOPS: programs - and
 A range their hard work. Your support over was
                      Westpac by the Reef Casino
of only three selected charities branches and The
 available throughhas been exceptional, raising
past three years
 Coffee Club outlets CFQ since $2,301.65
to benefit this year. Their donation ofwith many
                                                 the   The culmination of many months of hard work
                                                       from a very dedicated committee of friends and          Christmas Appeal                                     money for our support
                                                                                                                                                                   NUNDAH • 160 will be refurbished and
                                                                                                                ensures you’re being part of the green revolution. Your phone Ryans Rd,
more than $56,000 for statewide, the event’s


                                                                                                               Thank you
                                                       family resulted in a staggering $75,000 being                                                               intersection money4mobiles, and all
                                                                                                                resold to disadvantage communities or the parts recycled byof Henchmen St
is the largest since 2000. A fantastic effort! Thank
 individuals, community groups and
conception. A truly magnificent result! businesses                                                                                                                 (next to the Nundah train station)
you to Reef Casino Cairns and their patrons. funds
 choosing to sell the merchandise to raise             Stephanie Grosert (Lynndon Ladies
                                                       raised: $20,000 of which was donated to CFQ.
                                                                                                                                                                   Nundah 4012. Open 7 in the
                                                                                                                proceeds will be dedicated to CFQ. It is all too easy to get involved days CFQ ‘We’re
                                                                                                               The Christmas Appeal raised almost $10,000 to
                                                                                                                Calling On to vital services that have a direct    us.
                                                                                                               be dedicated You’ Program. To Learn more contact 8.30am – 4pm. Closed public
for CFQ also.                                                         & Foundation was Hornby
                                                       Bowls Club)WishCFQ’s Coralieestablished in
                                                       The Felicity’s
                                                       October 2008 by friends and family as a memorial        impact on CF families. These services include              holidays. Phone: (07) 3256 9622.




OuT & ABOuT
A number of ‘Go Red’ fundraising events, such          to Felicity Purcell after she lost her battle with      providing gym balls, physical activity subsidies,       Amy Walton & Michael Ainsworth St
                                                                                                                                                                         SALISBURY • 38A O’Neill
as those featured below, were hosted across            breast cancer at the age of 33. This event supports     physio sessions, accommodation for loved ones              Salisbury 4107.
February and March. Queenslanders proved once          a number of charities including CFQ.                    during hospital stays and much more!                       Open Mon-Sat 8.30am – 4pm.
again that the only limit was their imagination, as                                                                                                                       Phone: (07) 3277 7972.
                                                       Thank you to the committee for all of your hard
‘Go Red’ events included card nights, afternoon
                                                                                                               Volunteers needed!
                                                                                                                                                                        Introducing
                                                       work and to all who supported this special event.
teas, BBQs, rock concerts, cocktail parties and
 Brisbane Thank you sincerely to everyone who
much more. Luncheon                                    happy Birthday Amy
                                                                                                                TDK Lunch -



                                                                                                                                                                        Kamyra
 Over 250 to this campaign and made $57,000
contributedguests raised a phenomenal it such an   Amy Walton recently celebrated her 21st birthday               Dee Johnson of and Radio
                                                                                                               CFQ has many Prime varied opportunities for
 at this year’s Brisbane
outstanding success. Luncheon.                     and asked guests to wear a splash of red and                volunteers:Edwards of ANZ at events such as the
                                                                                                                  & Darrell from working                               With more than a decade’s experience in
 We were thrilled that so many of our sponsors     donate to CFQ in lieu of buying her a gift. Amy’s           Annual Ball, Great Strides and Tour de Kawana,                     TDK2010 and marketing across a
                                                                                                                                                                       communications Ride - Australia Zoo
                                                   Felicity’s Wish Foundation
2010 CFQ Charity Concert spectacular new generous loved ones donated $1,500 in total to
 and supporters joined us at the                                                                               to trade vacancies, Thriftshop andchBookshops,          variety of sectors – predominantly not-for-profit
                                                   support her selfless request. One of Amy’s close                                       TDK Lun
                                                                                                               general admin and opportunities within our              - CFQ’s new Business Development Manager,
 venue, The Strand at Rugby Quay. The Luncheon
  Host your Own Fundraising Event
This annual event, held in early March, was friends has CF and was thrilled that she chose two
 was also a tribute to 50 years of service to
                                                   We are grateful for the support over the past to
once again a wonderful success! More than 350 support CFQ in this way. Foundation.
 Queenslanders living with CF.
                                                   years from Felicity’s Wish
guests enjoyed the music of HiWay1, raffles and The second annual Felicity’s Wish Cocktail Party
                                                                                                               marketing and fundraising department.
                                                                                                               Everyone is good at something and we could
                                                                                                                                                                       Kamyra Laurenson, brings with her a wealth
                                                                                                                                                                       of knowledge, passion and professionalism to
 InYou fitting help Queenslanders with Bridge to Brisbane 2010                                                 really use your skills! So, if you have a couple        the role.
     a can tribute, long-time activist and
competitive bidding on the auctions: collectively CF and their families by hosting a
                                                   was held in February at Brisbane’s Cloudland.               of hours a week to spare, or even a couple of           As the new Business Development Manager,
 supporter, Colin Campbell,to support CFQ.
raising more than $24,000 was made a Lifetime      CFQ received incredible support this year from
                   event Luncheon.                 The and event hosted the “How guests,
                                                    tips
   fundraisingduring thein aid of CFQ. For B2B sell-out hints, visitmore than our behalf
 Member of CFQ                                           participants who fundraised on
                                                                                           350 You             days a year, we’d love to hear from you. We             Kamyra will oversee the fundraising and
Congratulations to the organising committee, who enjoyed a fun-filled and memorable night on
   Can Help”                on                     – collectively raising or than $4,000!! These
 Thank you to section and our website www.cfqld.org.aumorecontact Coralie
                                                                                                               have immediate vacancies in most roles in our           marketing aims across the state. While she
Kylie and Matteveryone who donated auction
                  Bocking        Julie and Mike what would have been Felicity’s 35th Birthday.
                                                                                                               Brisbane, Cairns and Sunshine Coast offices.            is tasked with ensuring the ongoing success
   Hornby by email admin@cfqld.org.audedicated supporters also helped CFQ receive
                                                    or freecall 1800 670 990 of hard work
Greer, for their who attended the event.over the The culmination of many months (07 3359
 items and all hard work. Your support     Your
                                                                                                               For more details, please phone Ann Heritage on          of many of CFQ’s most significant fundraising
                                                   some much-welcomed media exposure at
 support reallyBrisbanearesidents) for further information. committee of friendsthe
   8000 for    does make difference!
past three years has been exceptional, raising from a very dedicated                               and                                                                                                           at
                                                   end	 of	 the	 Channel	 Nine	 News,	 featuring	 CFQ	                                   3359 8000 (in Starting Line
                                                                                                               freecall 1800 670 990 or TDK 2010 Ride - Brisbane)      initiatives, her experience in brand ade
                                                                                                                                                                                                Red Shirt Brig management
more than $56,000 for Dan Sweeney the bmag.
 Photographs courtesy of CFQ since and event’s family resulted in a staggering $75,000 being
                                                   T-shirts and balloons on show for all to see.               or email volcoord@cfqld.org.au                                                    Bridge to Brisbane
                                                                                                                                                                       and new venture development has prepared her
conception. A truly magnificent result!
 Tour de kawana Luncheon and                       raised: $20,000 of which was donated to CFQ.                 The Christmas Appeal raised almost $10,000 to          well to effectively manage and build new funding
 Charity ride                                           The Felicity’s Wish Foundation was established in       be dedicated to vital services that have a direct      opportunities for CFQ - including corporate

Spotlight on
                                                       the voice of people with CF: liaising awith other
                                                        October 2008 by friends and family as memorial          impact on CF families. These services include
 The increasingly popular Tour de Kawana                                                                                                                               partnerships, online fundraising and donor
                                                        to Felicity Purcell after she lost of battle with
                                                       agencies and lobbying on behalf herclients on a          providing gym balls, physical activity subsidies,
 weekend kicked off in fine form at the pre-event                                                                                                                      acquisition.
                                                       range of issues. the age of 33. This event supports      physio sessions, accommodation for loved ones

Support
 Luncheon held at the Maroochy Events Centre on         breast cancer at
                                                                                                                                                                   In working for some of Queensland’s more
 Friday, 20 August 2010. Sponsors, competitors,        a Alma describes it, including Support Services
                                                       Asnumber of charitiesthe role of CFQ.                    during hospital stays and much more!
                                                                                                                                                                   prominent charities, including the Queensland
 local Sunshine Coast identities and supporters        Thank you to the committee for clients’.
                                                       Officer is about ‘...going to batfor all of your hard
                                                                                                                                                                   Institute of Medical Research, Kamyra is well

Service Staff
 joined together to welcome in the weekend’s
 cycling activities.
                                                    work and to all focus is the welfare of clients,
                                                   “Our complete who supported this special event.
                                                                                             C job isban
                                                   and their families,” Alma said. “OurFQ’s Bris to
                                                                  in s Bris
                                                                           bane   Lunch -
                                                   do everythingCFQ’our power to ensuremi Harthey Lunch -
                                                                                             Ta that riott
                                                                                                           e
                                                                                                               Volunteers needed!              TDK 201 0 Ride -
                                                                                                                                                                   placed to meet the challenges of this next career
                                                                                                                                                                   opportunity. “One of the things that attracted me
 Clear blue skies greeted nearly 600 cyclists as                       Cha  rlotte Wilson,                 & CFQ has many and varied opportunities ton Schultz
                                                                                                                                               Travis and Ash for to CFQ is that, for a small not-profit-organisation,
 they made their way around Lake Kawana quiet have all the support they need, whethera that’s n volunteers: from working at events such as the there is a tremendous decade’sofexperience all
Our Support Service team are the for the
                                                                  Nikita Burns, Kate Jury
                                                                                            Andre Gord
                                                                                                         o                                                          With more than a amount              heart and in
achievers behind much of CFQ’s outreach within through CFQ services, or by linking them with
 5th	ANZ	Tour	de	Kawana	Cystic	Fibrosis	Charity	                                                                                                                   the team are obviously committed and passionate
                                                                                                              Annual Ball, Great Strides and Tour de Kawana, communications and marketing across a
the community. 22 August.                          government or other agencies that can CFQ    help.”
 Cycle on Sunday,                                                                  Brisbane Lunch -                                                                 variety of they do,” predominantly
                                                                                                              to trade vacancies, Thriftshop and Bookshops, about whatsectors – Kamyra said. not-for-profit
Under the watchful eye of Support Services Alma said that, behind-the-scenes, the Support general admin and opportunities within our “Because new BusinessaDevelopment Manager,
 The ride was extremely popular with individuals,                                   Steve Hadden  &                                                                 - CFQ’s this is such       lean organisation, we

   Host your Own Fundraising Event
Manager, and corporate teams Support Service Services team work closely to improve the overall marketing and fundraising department.
 families Alma Brown, our all taking part.
Officers are often the first, and on-going, point level of service for clients.
 Participants pedaled hard to raise funds for CFQ
                                                                                    Tracey McGown                                                                   Kamyra Laurenson, about with her a wealth
                                                                                                                                                                   are incredibly mindfulbrings ensuring funds are
                                                                                                              Social Workers who have had specialised training spent where they can beand greatest benefit for
                                                                                                              Everyone is good at something and we could of knowledge, passion of professionalism to
of contact for people with CF and their families.                                                                         both practical     emotional
                                                   “We’re continually coming up with new ways in providingyour skills! So,andyou have asupport our clients and their families. It is very rewarding
 and afterwards enjoyed a variety of activities                                                               really use                  if               couple the role.
                helpBrisbane, Debbie and BBQ. to and additional services and support for for people living with CF, and their families. If that there is such transparency about what we
                       Queenslanders with
   You can painting, a jumping castle in Cairns CF secure their families by hosting a
Liz and Sondra in
 including face                                                                                               of hours a week to spare, or even a couple of As the new Business Development Manager,
   fundraising Sunshine aid of CFQ. For tips with CF, from securing discounts for you would like we’d love to hear from you.your are doing with ourDK 2 the dollars.”
and Wendy on theevent in Coast: this small people and hints, visit the “How You
 Almost $50,000 was raised from both events – a                                                               days a year,
                                                                                                                             to know more, please contact                            T supporter’s fundraising and
                                                                                                                                                                We Kamyra will oversee    010
                                                   family activities to liaising with government local Support Services Officer: most roles in our marketing aims across Rithe state. While she
 truly outstanding section on hospital visits,
team juggle a hectic schedule ofour website www.cfqld.org.au or contact Coralie
   Can Help” result. This money will be used                                                                  have immediate vacancies in                          If your organisation would -like to discuss a
                                                                                                                                                                                                de
in-home visits100families, liaising with CF Clinic departments to secure additional home help or • Alma, Liz Cairns and Sunshine (07) 3359 8000 potential partnership or the Asher sponsorship
 to assist the to families living with CF on the                                                              Brisbane, & Sondra (Brisbane) – Coast offices. is tasked with ensuring project Li     ongoing success
   Hornby by email admin@cfqld.org.au or HACC-funded services.”
Teams, hosting family the Wide Baycoordinating other freecall 1800 670 990 (07 3359
 Sunshine Coast and in events, and area.                                                                      • Debbie (Cairns) – (07) 4041 5219 Heritage on with CFQ, CFQ’s most significant fundraising
                                                                                                              For more details, please phone Ann                    of many of please contact Kamyra in the
                                                                                                                                                                                                           st
    Support Groups. They residents) for further information.
CF 8000 for Brisbane are also, quite often, All our Support Services Officers are qualified TDK • Wendy1800 670 990 or 3359 8000
                                                                                                                        Chapman Coast) Hedley (in Brisbane)
                                                                                                            Lunch - Deb(Sunshine& Allison– (07) 5493 2477
                                                                                                              freecall                                              initiatives, her
                                                                                                                                                                   Brisbane office.experience in brand management
                                                                                                              or email volcoord@cfqld.org.au                        and new venture development has prepared her
       Mark your calendar!
                                                                                                                                                ChrISTMAS GIFT IDEAS!
                                                                                                                                                CFQ Christmas Cards
                                                                                                                                                Purchase your Christmas Cards from CFQ and you
                                                                                                                                                can even have a personalised message included
                                                                                                                                                for a small additional charge. We have a great
    November                                                                                                                                    selection of cards and prices range between 95c
                                                                                                                                                and $1.25 for pre-printed cards.
    12th                              CF Fundraiser, Keperra - Brisbane                                                                         Give a Gift of Love!
    17–30th                           Water Colour Art Exhibition - Gold Coast                                                                  Celebrate our 50 Years of Love by purchasing our
                                                                                                                                                limited release sterling silver CFQ Charm Bead for
    17th                              Volunteer Thankyou Function – Sunshine Coast                                                              your Mum, sister or lovely lady this Christmas. It is
                                                                                                                                                the perfect gift idea and a great way to help with
    24th                              Volunteer Thankyou Function – Brisbane                                                                    our fundraising at just $35 each (inclusive of GST
                                                                                                                                                and postage).
                                                                                                                                                Two Great Reads
    December                                                                                                                                    We have available two great books for kids to help
                                                                                                                                                explain living with CF.
    4–8th                             CFQ Bookshop Sale - Brisbane
                                                                                                                                                ‘Monty’ and ‘Megaman’ tell the story of life with
    8th                               Volunteer Thankyou Function - Bundaberg                                                                   CF in an easy to understand and well illustrated
                                                                                                                                                way. Both are available from our online store for
                                                                                                                                                under $15 (inclusive of GST and postage).
    2011                                                                                                                                        Find any of these wonderful gift ideas online
                                                                                                                                                at www.cfqld.org.au or phone 07 3359 8000

    February - GO RED MONTH
    14th                              Hearts & Roses Day - Statewide

    March
    26th                              Casino Royale - CFQ Ball - Brisbane                                                                                   Follow us on                                                        If you
    May
                                                                                                                                                                   FACEBOOK
                                                                                                                                                                       +
                                                                                                                                                                                                                             have loved
    1–6th                             Pedal for Life - New Zealand                                                                                                  TWITTER                                                   your life,
    June                                                                                                                                                                                                                     share that
    18th                              Balle De Classique Grandeur - CFQ Ball - Cairns
                                                                                                                                                                                                                              love with
    August                                                                                                                                      Are you following us on Facebook and Twitter?                                  others.
                                                                                                                                                www.facebook.com/people/Cystic-
    20–23rd                           9th Australasian CF Conference - Melbourne
                                                                                                                                                Fibrosis/701953896
                                                                                                                                                or                                                                      Every four days in Australia a child is
    November                                                                                                                                    Check us out now.                                                       born with cystic fibrosis. There is no cure
                                                                                                                                                http://twitter.com/CysticFibrosis_                                      but there is support from Cystic Fibrosis
    30 Oct–5th Nov Pedal for Life – New Zealand                                                                                                                                                                         Queensland, helping over 850 Queensland
                                                                                                                                                                                                                        families living with cystic fibrosis to live
    Keep an eye out for our comprehensive 2011 calendar – available soon.
                                                                                                                                                 VOLunTEEr ThAnk yOu                                                    life to the fullest.
                                                                                                                                                 FunCTIOnS
                                                                                                                                                                                                                        Any Bequest amount will make a world of
                                                                                                                                                 Sunshine	Coast	–	17	November                                           difference.


    Host Your Own Fundraising Event
                                                                                                                                                 Brisbane	–	24	November                                                 For an information pack please contact:
                                                                                                                                                 Bundaberg – 08 December                                                Cystic Fibrosis Queensland,
                                                                                                                                                                                                                        PO Box 2245 Chermside Centre
                                                                                                                                                 All our dedicated volunteers will be receiving
    you can help Queenslanders with CF and their families by hosting a                                                                           invitations in the mail soon.
                                                                                                                                                                                                                        Queensland 4032,
    fundraising event in aid of CFQ. For tips and hints, visit the “how you                                                                                                                                             freecall 1800 670 990
                                                                                                                                                 If you would like to know more about the many                          (07 3359 8000 for
    Can help” section on our website www.cfqld.org.au or contact Coralie                                                                         rewarding volunteer opportunities available                            Brisbane residents),
                                                                                                                                                 through CFQ, please contact our Volunteer
    Hornby by email admin@cfqld.org.au or Freecall 1800 670 990 (07-3359                                                                         Coordinator, Ann Heritage, on 07-3359 8000
                                                                                                                                                                                                                        fax 3359 3380,
                                                                                                                                                                                                                        email: admin@cfqld.org.au
    8000 for Brisbane residents) for further information.                                                                                        or email volcoord@cfqld.org.au.                                        www.cfqld.org.au

We respect your privacy. This is the official newsletter of Cystic Fibrosis Queensland. You have received it because you subscribed to our supporter database. If you would like to update your details or to take your name off our mailing list please email us at admin@cfqld.org.au.
Do you have an email address and if so, do we have it? Or, have you registered your email with us and you now have a new email address? If so, please drop us a line at admin@cfqld.org.au so we can ensure that you are on the priority list for all CFQ updates. CFQ News is
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                          YES! I WOULD LIKE TO HELP QUEENSLANDERS WITH CYSTIC FIBROSIS.
HERE IS MY TAX-DEDUCTIBLE GIFT OF…                                                                                                                 I WOULD LIKE TO MAKE A BEQUEST IN MY WILL
                                                                                                                                                   TO CYSTIC FIBROSIS QUEENSLAND.
    $50                 $100               $250                $500                other $
Name:	                                                                                                                                                  Please send me information on leaving a Bequest to CFQ
Address:
                                                                                                                                                        Please contact me directly to discuss this matter
Phone:                                                                         Email:
Payment details
                                                                                                                                                        I have already provided for CFQ in my Will
I enclose my:                              Cheque                                  Money Order
OR please debit my:                        Visa                Mastercard                   AMEX
                                                                                                                                                   Name:
Card	No:	           	                  	                   	                   Exp	date:
                                                                                                                                                   Address:
Name	on	Card:	
Card owner’s signature:
Please send me information on                                                                                                                      Phone:
    monthly giving                         volunteering                            events                                                          Email:
                           PLEASE RETURN THIS SLIP TO CYSTIC FIBROSIS QUEENSLAND,                                                                                           PLEASE RETURN THIS SLIP TO CYSTIC FIBROSIS QUEENSLAND,
HDNL10                  PO BOX 2245, CHERMSIDE CENTRE, QLD 4032 OR FAX : 07 3359 3380                                                                                    PO BOX 2245, CHERMSIDE CENTRE, QLD 4032 OR FAX : 07 3359 3380

				
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