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Resource Facilitation expands Walk for Thought sees growth


									                           A state affliate of the Brain Injury Association of America

                           HEADLINES                                                                                                  WINTER 2003/04

                          Resource Facilitation expands
Violence in Infants,
Children and Youth:      By Tom Gode, Executive •              Offer information about
An Epidemiologic         Director                              TBI and referral to
perspective                                                    appropriate resources
    inside on page 5       Many of you have               •    Offer           ongoing
                         participated or observed the          individual assistance via
                         development of Resource               telephone by facilitating
Una     pareja    se     Facilitation over the past            informed decision-
juntaron después de      five years. From a concept            making and self-
LCT                      to reality, this project was          advocacy
     va a la página 7    developed through grants         •    Collect demographic
                         from the federal Health               information to ensure
                         Resources and Services                relevant/appropriate
People In Progress:      Administration,           the         referrals
The Faces of Brain       Minnesota Department of          •    Identify barriers to
Injury - three stories   Human Services, the                   services, duplication of
     inside on page 6    Minnesota Department of               services, and unmet
                         Health, the Brain Injury              needs
Family rocks and         Association of Minnesota         •    Determine outcomes.
walks their way to the   (BIA-MN) and a number of
Walk for Thought         local foundations.               Preliminary outcomes
    inside on page 8       Thanks to the efforts of           include:
                         hundreds       of    citizen     • Increased rate of return
                         advocates and legislators            to work.
Legislative Corner:      who became advocates, the        • Increased likelihood
                         2003 funding for Resource            children         receive         2003 Walk for Thought participants begin their walk
Are you a victim of                                                                            around Lake Phalen in St. Paul
the Bystander Effect     Facilitation was established.        appropriate educational
   inside on page 11       Today I’m pleased to say           supports.
                         that the Brain Injury            • Increased family ability
                         Association of Minnesota, in         to understand/support
                         partnership with the                 the individual.
                                                                                              Walk for Thought sees growth
Messages from the
board: read columns      Minnesota Department of          • Reduced family crisis.
from Board Chair         Health, is gearing up to         • Reduced long-term                Staff Report - The Brain          and participants, this a
nancy Carlson and        greatly expand Resource              dependence on public           Injury Association of             tremendous success!
board member Mike        Facilitation services.               assistance.                    Minnesota held its second           For the second year in a
Strand                     The foundation of              • Reduced          risk    of      annual Walk for Thought on        row, Team Nichole was the
    inside on page 3     Resource Facilitation is             institutionalization.          Saturday September 27,            top fundraiser, bringing in
                         longitudinal telephone             As part of the Resource          2003 Phalen Park in St.           over $5,000. Members from
                         follow-up. Service, support,     Facilitation expansion, the        Paul. This year’s Walk for        Team Nichole organized a
                         and educational needs for        Association is moving office       Thought raised over               separate,     independent
UPCOMING EVENTS          persons with TBI and their       locations to accommodate           $57,000 and brought               fundraiser in Black Duck,
                         families often exist well        our growing staff. The new         together over 600 walkers         Minn.       The primary
 Brain Injury Basics     beyond the time of hospital      address is 34 13th Ave NE,         for a celebration of life, hope   organizer of the event was
       Course            discharge. In an effort to       Minneapolis, Minn., 55413,         and healing.                      Shirley Deno, a teacher who
    February 17          better bridge the gap            with a target move-in date of        The walk saw a 12 percent       worked together with her
                         between hospital, home, and      mid January 2004.                  increase in revenue and a 50      Family,     Career      and
  Day at the Capitol     return to work or school,          Please       watch      the      percent       increase       in   Community Leaders of
      March 3            discharge planners in            Association’s web site,            participants over last year’s
                         targeted hospitals, with,             walk. In a year where                      WALK
    19th Annual          proper consent, provide the      and future newsletters for         nonprofit events are seeing             go to page 8
     Statewide           Association with patient         updates on our progress.           decreases in both donations
   Conference on         contact information.
                           The BIA-MN Resource                                                                                    Non-profit Organization
    Brain Injury                                                                                                                      U.S. Postage
     April 2 & 3         Facilitation program was
   see page 4 for        designed to begin weaving                                                                                  Minneapolis, MN
      details            a network of support for                                                                                      Permit #163
                         persons with brain injury by         43 Main Street SE, Suite 135
                         mailing tailored educational         Minneapolis, MN 55414
                         materials at time of referral.       Time Dated Material
                         At 6 weeks and 6, 12, 18,            Address Service Requested
    Brain Injury         and 24 months Resource
  Association of         Facilitators        conduct
Minnesota helpline:      telephone follow-up to:
  1-800-669-6442         • Offer           meetings/
                             assistance at the acute        care setting
                         • Offer assistance to Non-
                             English        speaking
HEADLINES                                                                                                                                      WINTER 2003/04
                                                                                                                                                            page 2

                     Get on the List!                                                               CALENDAR of EVENTS
                                                                                                   Brain Injury Basics:              Day at the Capitol:
     Staff Report - The Minnesota State            screening process because they are              February 17                       March 3
     Legislature limited the amount of             aware that there is an extremely
     Traumatic Brain Injury Waivers                limited number of people they can                 Confusion. Frustration.           The       Brain      Injury
     available in Minnesota through                enroll. The Association encourages              Sorrow. Anger. Fear. Isola-       Association of Minnesota is
     Medical Assistance to 150 new people          you to get on the waiting list. The             tion. These are some emo-         co-sponsoring a the Day at
     accepted per year.                            Minnesota State Legislature needs to            tions a person with brain in-     the Capitol on March 3,
       Each Year in Minnesota we                   see that there is still a high demand           jury may feel after injury.       2004, at the Best Western
     hospitalize 3,500 children and adults         for the Waiver.                                 Families, friends & loved         Kelly Inn State Capitol, on
     with traumatic brain injury, and see            Through the waiting lists, the                ones may feel this way, too.      I-94 & Marion Street in St.
     an estimated 15,467 more in                   Association and Citizen Advocates                 To learn about the impact       Paul.
     emergency rooms.                              across Minnesota will have better and           of brain injuries caused by         The event will focus on
       The Traumatic Brain Injury Waiver           more powerful tools to work with the            concussion, traumas such as       Citizen Advocacy and
     (TBIW) is an essential and highly             legislature to remove the limits on the         crashes or falls, stroke, an-     legislative priorities for the
     effective program for those who               waiver program to ensure that the               eurysm & coma, please join        session. Please watch ENews
     qualify. The TBI Waiver helps keep            critical help and supports are there            us at a Brain Injury Basics       for additional information on
     people out of institutions and living         when you need them.                             class.                            this event or contact Shannon
     in the least restrictive environment            Application for the TBI Waiver can              You’ll learn about what         Robins at 612-378-2742 for
     possible.                                     be made at your local county social             brain injury is; the common       more information.
       Because of the limitation put on the        service agency. The administration of           side effects of brain injury;
                                                                                                   compensation techniques;          Annual Conference
     number allocated to each county,              the TBI Waiver is through the
     many persons who would benefit                Disability Services Division of the             and tips about how to relate      on Brain Injury:
     from the TBI Waiver will no longer            Minnesota Department of Human                   to people who have sus-           April 2nd & 3rd
     have access to the program.                   Services.                                       tained brain injury.
       In order for the Brain Injury                 For more information about TBI                  Class begins at 6:00 p.m.         Turn to page 4 for com-
     Association of Minnesota to advocate          waivers, eligibility guidelines and a           and runs until 8:30 p.m.          plete details.
     for the “cap” to be lifted to ensure that     listing of services covered by the              The class will be held in the
     people who need the services will             waiver, visit the Minnesota                     conference room at the                      Member of
     have access to the TBI Waiver, the            Department of Human Services page               Association’s new office at
     Association needs your help.                  on TBI Waivers at: http://                      34 13th Ave NE, in Minne-
       Many counties are discouraging                       apolis. To register, call
     people from going through the initial         disability/tbiwaiver.htm                        1.800.669.6442             or

Mike Strand book released in January
Staff Report - HEADLINES
columnist Mike Strand is
                                                                                                         34 13th Ave NE, Suite B001, Minneapolis, MN 55413
publishing his first book, a                                                                               612.378.2742 or 800.669.6442 fax: 612.378.2789
collection of essays entitled                                                                                
Meditations, published by                                                                                           Email:
Zottola Publishing Inc.                                                                             Mission
Many of the essays included                                                                         The mission of the Brain Injury Association of Minnesota is to
                                                                                                    create a better future through brain injury prevention, research,
in the book have appeared in                                                                        education and advocacy.
past issues of HEADLINES.
   In 1989, Mike suffered a                                                                         Board of Directors
                                                                                                    Nancy Carlson, Chair
Traumatic Brain Injury                                                                              Otto Bang                           Richard Bloom
(TBI) that changed him, his                                                                         Barb Fulton                              Tom Gode
life and his family’s lives                                                                         Robin Landy                             Sue Lepore
                                                                                                    Craig Martinson                      Sue Meserow
forever. His ongoing journey                                                                        Sarah Moeller                       Russ Philstrom
back has been long, filled                                                                          Jon Roessler                           Chuck Ryan
with confusion, frustration                                                                         Elizabeth Skinner                    Sandra Smith
and hope. This series of                                                                            Mike Strand                            Terri Traudt
                                                                                                    Pat Winick                          Meredith Zallar
essays, written for people
with TBI as well as their                                                                           Association Staff
families, friends, co-workers                                                                       Brad Donaldson, Business Director
                                                                                                    Tom Gode, Executive Director
and health care providers,                                                                          Mark Hahn, Administrative Assistant
gives insight in to the                                                                             Jennifer Houston, Program Specialist/Community Organizer
growth, learning and self-                                                                             for Chicano/Latino communities
                                                                                                    Willis Johnson, Database Specialist
discovery of the journey.                                                                           Katy O’Brien, Program Specialist for Adults
   Post TBI rediscovery is an                                                                       Shannon Robins, Community Organizer
intricate puzzle that can be                                                                        Sharon Rolenc, Public Awareness Director
                                 essays are a valuable tool for                                     Christina Saby, Program Specialist/CommunityOrganizer for
difficult to understand for                                       Dreamhaven at 612-823-               Children
those on the outside. Mike’s     understanding your own           6161. The retail price is         Ardis Sandstrom, Associate Director
clear and concise writing        journey.                         $9.95, plus shipping and
style is open and easy to          Meditations is due out                                           Editorial Policy
                                                                  handling. For wholesale,          Headlines is published quarterly by the Brain Injury Association
understand, helping the          January 2004, and will be        institutional pricing for bulk    of Minnesota. The Editor reserves the right to edit submitted ma-
reader to comprehend how         available           through      orders, contact Zottola           terials for style and space. The Association does not endorse,
the brain functions post TBI.    Dreamhaven Books in              Publishing, Inc. at 763-533-      support, or recommend any specific method, facility, treatment,
                                                                                                    program, or support group for persons with brain injury and their
If you or someone you know       Minneapolis, Minn. To            3744 or email a request to        families. Please call for advertising rates.
has suffered a TBI, these        preorder the book, call
WINTER 2003/04                                                                                                           HEADLINES
  page 3

                               PERSPECTIVE                                                                       Message from the Board of Directors

     Stress-free holidays                                         First think attitudes, then goals
   Ho, ho, ho. Hum, hum, hold your breath still for a               Brain injury has a way of      the easiest one and try that     deer in the head lights of an
hum. The holidays are count of 6, and exhale                     fixing us in the moment. We       first. Adopt the attitude that   oncoming car). To overcome
supposed to be a time of joy through your mouth for a            often cannot remember the         who you are is the person        all that I take a deep breath
and peace. So, why are they count of 7. Do this 3 to 4           past and we often cannot          who handles that item in a       before I speak and I picture
so stressful? Why do many times in a row.                        anticipate the future. So here    successful manner. At every      myself as the consummate
of us become                                                     we are stuck in the middle,       moment imagine yourself as       public speaker. This allows
more grouchy
a      n      d
                  From the Chair Eat Well the   During
                                                                 frozen in an everlasting now.
                                                                 Does this mean we are
                                                                                                                                    me to remain in control and
                                                                                                                                    I find that I really enjoy it,
depressed?           Nancy                    holidays you       doomed to repeat the past?            Here & Now                   its fun to do what you are
   Many of us                                 will need the      Does this mean we will for-                                        good at.
try to do too        Carlson                  right nutrition    ever stagger down a dark                                             Start small and easy, let
much around                                   more than ever.    hallway that is the future? It
                                                                                                        Mike                        changing your attitude work
the holidays and pay too You deserve premium “gas”               certainly could mean that,          Strand                         for you. Success breeds suc-
little attention to our own in your tank, so try to stay         but it doesn’t have to, and I                                      cess. Eventually you will
needs. Sound familiar? If away from the junk food and            for one choose not to accept                                       find self-improvement that
so, please read on for some fast food.                           it that way.                      that person. When that be- even others can notice. This
helpful hints to keep stress                                        We cannot change the           comes an automatic part of constant improvement is the
under control.                Watch What You Are                 past, it has already hap-         who you are, you are ready essence of a life well lived.
                              Thinking                           pened. We cannot change           to choose the next easiest To summarize and focus
Change Traditions               Attitude is 90%. Wake up         the future, it hasn’t hap-        item on your list.               think: Attitudes not goals,
   Don’t overdo it. Now is each morning saying                   pened yet. As we narrow             Maybe making a list isn’t select the attitudes you wish
the time to cut back and positive things about                   down to the “now” we real-        the way you operate. I just to cultivate and ask yourself,
change a tradition or two yourself and to yourself. Try          ize that it doesn’t really ex-    pick out the thing I most “am I being that way?”
that are the most stressful. to stay focused on today and        ist per se. Things have either    want to improve or change
Instead of cooking dinner notice the positive in each
for everyone, have others moment. Being optimistic is
                                                                 yet to occur or they have al-
                                                                 ready occurred. Yet, here we
                                                                                                   about myself and take it
                                                                                                   from there. If I want to go to
                                                                                                                                      Letters to the
bring something. Instead of a great way to combat stress.        are, trapped in that razor thin   my Bikram’s yoga five                  Editor
buying every a present, how                                      margin called the present,        nights a week then I’ll just           Readers are encour-
about drawing names? Separate What You Can                       moving through time at the        picture myself as the kind of       aged to submit elec-
Changing traditions can also Control From What You Can           speed of light (Einstein’s        guy who does that. If I find        tronic letters to the edi-
be fun!                       Not Control                        theory of relativity).            my enthusiasm flagging on           tor for consideration of
                                If you can’t control it, why        But wait, we can navigate      any particular night I just tell    publication in the next
Learn to Relax                try? It is much better to          this. When you change your        myself, “other folks would          edition of Headlines.
   This is your body’s focus our energy on what we               heading on a voyage it is re-     just stay home and watch               Letters to the Editor
opposite of stress and can control as each of us has             ferred to as changing your        TV, but I go to yoga.” I think      should be limited to
relaxation can create a sense a limited supply of energy.        attitude. We can change our       that every chance I get. All        300 words. Letters may
of calm and well being. Asking, “Can I control                   attitude. We can take some        day long I know I’m going           be edited for spelling,
Take time out each day to this?” is a great start in             quality we would like to pos-     to yoga, when the time              grammar and length. In
unwind. Spend time with a separating these things out.           sess and call it ours. At the     comes I just go, I don’t farm       order for letters to be
pet, go for a walk, or take a                                    speed of light we can head        it out, I don’t think of ex-        considered, please in-
relaxing bath.          Find Get a Good Night’s Sleep            off in a new direction.           cuses, I just go.                   clude your name, ad-
something that is calming       You body needs sleep to          Rather than think “I was bet-       This is how I got through         dress and phone num-
and pleasurable.              restore itself for the next day.   ter” or “I will be better,”                                           ber of the author.
                                                                                                   my yoga teacher’s training.
                              Try to get a good night’s          switch to “I am being bet-        After that, it is how I got            The Association re-
Breathe                       sleep each and every night         ter.”                             over my anger management            serves the right to
   When under stress, we and this can help protect you              We want to be a calm           issues. I said to myself, “I’m      refuse letters for publi-
tend take shallow breaths. from the negative effects of          even-tempered person. Fine,       a yoga instructor now, what         cation. Submission of
Try this exercise multiple stress.                               at every moment we practice       would my students think if          material does not guar-
times each day. Sit in a        May you enjoy the                that attitude. At every mo-       they saw me losing my tem-          antee publication.
comfortable        position. holidays. Peace to you and          ment we see ourselves as the      per?” Sometimes you have               Opinions expressed
Breathe in gently through your family.                           cool headed relaxed person        got to move on. I didn’t want       in Letters to the Editor
your nose for a count of 4,                                      we are. The more we prac-         to see myself as they guy           are solely those of the
                                                                 tice the easier it becomes        who always loses his tem-           author and do not rep-
              Suppor t Groups
              Support                                            until we are that way. When       per; I wanted to see myself         resent the opinions or
     Brain injury support        mined peer groups and           something happens that            as the Yogi who always had          positions of the Asso-
  groups can help you find       are independent of the          would normally set us off or      that inner calm.                    ciation.
  others with similar expe-      Association.                    stress us out we just remind        I’m terrified of public              Headlines is a quar-
  riences, useful informa-         For meeting times, lo-        ourselves that is not who we                                          terly publication of the
                                                                                                   speaking. I’m always wor-
  tion about brain injury,       cation, and a contact per-                                                                            Brain Injury Associa-
                                                                 are. We are calm, cool, and       ried that I’ll forget what I am
  and solutions to prob-         son for a specific support                                                                            tion of Minnesota.
                                                                 collected.                        talking about and then I’ll
  lems.                          group, or for information
                                                                    Start out small and build      lose my composure and start            Please send letters
     The Brain Injury As-        about how to start your
                                                                 your confidence. Make a list      slurring my words. I’m wor-         to: Headlines, c/o
  sociation of Minnesota         own group, call the Brain
                                 Injury Association of           of qualities you would like       ried that it will all snowball      Brain Injury Associa-
  makes referrals to sup-
                                 Minnesota               at      to have, habits you would         and I’ll start flooding (that’s     tion of Minnesota, 43
  port groups throughout
                                 612.378.2742           or       like to break, or tasks you       where a million thoughts are        Main Street SE, Suite
  the state.
                                 800.669.6442.                   would like to be more suc-        racing around your head and         135, Minneapolis,
     These groups are au-
  tonomous, self-deter-                                          cessful at completing. Pick       you just stand there like a         Minn. 55414.
HEADLINES                                                                                                                                WINTER 2003/04
                                                                                                                                                     page 4

                          Recipe for Life: Get Cooking!
       The Brain Injury Association of Minnesota’s 19th Annual Statewide Conference scheduled for April
Staff Report -The Brain          talk will address how to         providers in outpatient          He is also co-owner of         Test Accommodation Panel
Injury Association’s 19 th       reconceptualize acceptance,      settings. This breakout          N e u r o s c i e n c e        and he is an Adjunct
Annual           Statewide       balancing realism and            session will explain             Multispecialty Advisors, a     Professor at Argosy
Conference on Brain Injury       optimism. It will encourage      important factors to consider    group including neurology,     University. He has served on
will be held April 2 & 3,        people to take action to         when seeking help and how        physiatry,      psychiatry,    the Minnesota Department
2004 at the St. Cloud Civic      achieve their goals and will     to maximize the likelihood       gerontology,            and    of    Human        Services
Center in St. Cloud, Minn.       put in context inter-reliance.   of receiving better care.        neuropsychology providing      Traumatic Brain Injury
The featured keynote             Finally, it will provide           Dr. Karol is the Program       case consultation to lawyers   Advisory       Committee,
speakers this year are Dr.       insight into how to handle       Director of Brain Injury         and insurance companies.       Neuropsychological
Robert Karol and Rev. Nick       disagreements about what is      Services and Director of           Karol co-founded the         Services            Ad-Hoc
Mezacapa                         possible.                        Neuropsychology/                 Brain Injury Association of    Committee, and Needs of
  Dr. Karol will deliver           “Getting Better Health         Psychology at Bethesda           Minnesota, serving on its      Adults      with      Brain
Friday’s keynote geared          Care from Professionals,” is     Rehabilitation Hospital, in      Board of Directors for 14      Impairment Committee.
towards professionals,           Karol’s Saturday breakout        St. Paul. He heads a group       years and he is a past           Rev. Nick Mezacapa
                                 session geared towards           private practice, Karol          Chairman of the Board. He      closes the weekend’s events
                                 persons with brain injury        Neuropsychological               served for 6 years on the      with his keynote address,
                                 and their family members.        Services & Consulting, in        Board of Directors of
                                 Too often persons with brain     Minneapolis, specializing in     Accessible Space, Inc. He is
                                 injury are frustrated in their   neuropsychological               a member of the Supreme             CONFERENCE
                                 attempts to interact with        evaluations and counseling       Court of Minnesota’s Board           go to page 9
                                 professional health care         for persons with brain injury.   of Law Examiners’ Special

Dr. Robert Karol

Intervention: The Advanced
Treatment of Severe
Behavioral Dyscontrol After
Acquired Brain Injury.”
Behavioral dyscontrol can
be a troubling result of
acquired brain injury, one
that requires attention since
it interferes with any other
help professionals may
provide for other symptoms
such       as      cognitive
difficulties. Yet, most
professionals are ill prepared
to address behavioral
problems. This keynote talk
will highlight approaches to
address this issue and
provide a sense of hope that
successful treatment is
   He will also offer a Friday
breakout session on
“Handling Aggressive
Episodes after Acquired
Brain Injury.” This breakout
session will cover how to
prepare for episodes of
aggression. It will review
how to resolve them
successfully when they do
occur and how to keep safe
during them.
   Karol opens Saturday’s
consumer day at the
conference with “Optimism
in the Face of Injury:
Personal and Professional
Roles.” Many persons with
brain injury struggle with
issues of self-esteem and
acceptance. This keynote
WINTER 2003/04                                                                                                       HEADLINES
  page 5

 Violence in Infants, Children, and Youth                                                          Youth Violence - What Can I Do?

By Jon Roesler                    syndrome), is a serious, but crashes) are the leading          EVOLVE!
                                  preventable, problem for     cause of death in
  During the late 90’s            many infants. As of January  Minnesota’s youth ages 15-        Educate yourself and others. Get the
several of us at the              1st of this year, SIS became 24, suicide and homicide are      facts about youth violence.
Minnesota Department of           reportable to the Minnesota  the second and third leading
Health (MDH), Children’s          Traumatic Brain and Spinal   causes, respectively. After
                                                                                                 Volunteer your time, talents, and efforts to
Hospital, and Hennepin            Cord Injury Registry.        the unintentional injuries,
County Medical Center
                                                                                                 preventing youth violence.
                                  Working with the Midwest     there are more deaths in this
engaged in an epidemiologic       Children’s Resource Center   age group from suicide and
investigation             into    (MCRC) in St. Paul, we       homicide than all of the          Offer your advice and voice your
hospitalized and fatal            have initiated another       remaining causes of death         concerns.
pediatric TBI (0-19 years of      epidemiologic investigation  combined, including AIDS
age) that occurred in 1993,       to better count all the casesand cancer!                       Learn new prosocial behaviors.
using the first group of          of SIS and make sure that      Most of the suicides and
almost 1,000 children and         follow-up services are       most of the homicides are         Value parenthood and community.
youth to be entered into the      available.                   committed with firearms.
Minnesota Traumatic Brain           The good news is that SIS  However, school-associated
and Spinal Cord Injury
                                                                                                 Enlist the help of others in confronting
                                  is preventable! MCRC has     violent deaths represent less
Registry. Our purpose was         been       working      with than one percent of all           this very important issue.
to       describe          the    Minnesota hospitals to       homicides and suicides that
                                                                                               Info from Centers for Disease Control and Prevention,
epidemiology of pediatric         educate       parents      ofoccur among school-aged         National Center for Injury Prevention and Control.
traumatic brain injury.           newborns, while they’re stillchildren.                       For more information on youth violence prevention, visit:
  As had been found in            in the hospital, about what    Preventing violence in this
previous studies by others,       happens if you shake an      age group is more difficult.
we found that unintentional       infant.                      There are few, if any, each of us can be involved                J on Roesler is a senior
falls and motor vehicle             As our infants progress to scientifically       proven with in preventing youth epidemiologist with the Injury
crashes (MVC) accounted           childhood, for the most part strategies to prevent violence [see info above]. and Violence Prevention Unit
for most injuries. However,                                                                     My favorite is “Volunteer at the Minnesota Department
we found that for two age                   School-associated violent deaths                 Your Time and Mentor a of Health in St. Paul,
groups, infants (less than                                                                   youth”. I have been a “big Minnesota. He is the principal
one year of age) and youth               represent less than one percent of all              brother” now to 3 boys who
                                                                                                                              investigator for three current
                                                                                                                              CDC-funded investigations:
(15-19), violence was the              homicides and suicides that occur among               have grown to men. In Surveillance of TBI Treated in
second and third leading                           school-aged children.                     January of this year I started the Emergency Department,
causes,       respectively.                                                                  as a “big brother” again, to Surveillance of Intimate
Battering caused 19% of the                                                                  a 13-year-old inner-city boy. Partner Violence, and
TBI cases in infants. For the     they are safe from violence violence in youth. But that       The joy of mentoring for Surveillance of Child
youth, 6% were caused by          (child maltreatment being doesn’t mean that we stop me is that, while I may be Maltreatment. He is team
unarmed fights/brawls and/        the exception). However, as trying! Our youth are too providing a role model for leader for the Surveillance,
or by intentionally being         our children progress to valuable to let them “just an at-risk youth, I am having Epidemiology, and Analysis
struck by an object.              “youthhood”, the specter of grow up”.                      a great and rewarding time Subunit of the Injury and
  So what does this mean?         violence begins to appear,     The Centers for Disease doing things that are fun! Violence Prevention Unit.
                                                                                                                              Roesler      is    also    the
Child battering, in particular,   often resulting in TBIs. Control and Prevention It’s not work, it’s play! We epidemiologist for the
shake infant syndrome (SIS,       While unintentional injuries (CDC) has a web page go to movies, football Minnesota Trauma Data Bank,
also known as shaken baby         (mostly motor vehicle describing six steps that games, museums, play the Minnesota Traumatic Brain
                                                                                             paintball, and even rake the and Spinal Cord Registry
                                                                                             yard. And I know that I’m Program, and the Crash
           “Epidemics” and gun violence.                                                     doing my part to help Outcome Data Evaluation
                                                                                             prevent youth violence.          System (CODES).
    An “epidemic” usually refers to an          the peak occurred in 1995 (when
  excess of illness or injuries, beyond         Minneapolis was dubbed “Murder-
                                                                                                Brain Injury in Your Practice Tool Kit
  what would have been normally                 apolis”).                                         At least 1.5 million people    tool kit to improve clinical
  expected. Beginning in the mid 80’s,            Governor Arne Carlson recognized              sustain traumatic brain          diagnosis and management
  the United States begin to experience         that violence was more than a law-              injuries in this country every   of MTBI. Physicians can
  a marked and steady increase in the           and-order or criminal justice issue             year.         Of       those,    play a key role in helping to
  number of deaths from firearms, as            and convened the “Task Force on                 approximately 1.1 million,       reduce the occurrence of
  well as permanent traumatic brain             Violence as a Public Health Issue”.             or 75 percent, sustain a mild    MTBI by educating patients
  and spinal cord injuries from                 Many significant actions grew out of            traumatic brain injury           and the community about
  firearms.                                     the Task Force.                                 (MTBI). Yet, many are not        risks and injury prevention.
    While firearms deaths in the                  Since then, gun violence, in                  hospitalized or receive no         Heads Up: Brain Injury in
  United States are caused primarily            particular, the deaths from firearm             medical care at all. An          Your Practice, is now
  by homicides and suicides (about              homicides, has been decreasing.                 unknown proportion of            available free of charge. The
  half and half), almost all of the             However, the last couple of years this          those who are not                kit contains practical, easy-
  increase was coming in the area of            trend has begun to level off.                   hospitalized may experience      to-use clinical information,
  gun homicides. In particular,                 Unfortunately, we have not returned             long-term problems such as       patient information in
  African-American youth suffered               to the lower levels of gun violence             persistent headache, pain,       English and Spanish,
  significantly as a result of this             seen in the early 80s. In Minnesota,            fatigue, vision or hearing       scientific literature, and a
  increase.                                     about 70% to 80% of the firearm                 problems,            memory      CD-ROM. To order a free
    Deaths from gun violence peaked             deaths are due to suicide.                      problems, confusion, sleep       copy,      complete       the
  nationally in 1993, when the number
                                                                                                disturbances, or mood            publications order form at:
  of firearm deaths threatened to               Information compiled by Jon Roesler             changes.               
  exceed the number of deaths from              and the Minnesota Department of                   The CDC, working with a        IXPRESS/PUBSPROD/
  motor vehicle crashes! In Minnesota           Health                                          number of partners, has          N C I P C + B O O K /
                                                                                                developed a new physician        NCIPC.DML
HEADLINES                                                                                                                                  WINTER 2003/04
                                                                                                                                                       page 6

                                  Stories from the perspective of persons with brain injury, their family members and professsionals

                                   The Faces of Brain Injury
Stories and photographs         injury is always unexpected,
by Sharon Rolenc                it is always unwanted and it
                                                                           Keeping Perspective with Evelyn Anderson
  Every     21      seconds     is always life-changing.              A stolen car and ensuing supervisor’s solution was to           The full-time job she was
someone       sustains     a       Here are three stories of       police chase ended in a life give her an entirely new job eventually hired for was
traumatic brain injury. 1.5     how people are navigating          changing event for Evelyn position that involved new split in a time share between
million people in this          life after brain injury. They      Anderson. It was mid-day learning.                Anderson’s Anderson and another
country sustain a brain         are the faces behind the           as Anderson was crossing                                         applicant. “Even though I
injury each year.               numbers, and their stories         the street at corner of 7th and                                  thought I wanted full-time
  Brain injury does not         are presented here to bring        Marquette when the driver                                        work, it’s a good thing I was
discriminate – young or old,    hope, help and a voice to the      of the stolen car struck her,                                    hired at 50 percent time
black or white, rich or poor,   94,000 Minnesotans who             sending her to the hospital.                                     because it was more
male or female – it can         live with a disability due to         After several days of acute                                   challenging and tiring than
happen to anyone. Brain         brain injury.                      care, and several months of                                      I would have guessed,” she
                                                                   in-patient and out-patient                                       said.
                                                                   rehabilitation, Anderson                                           Anderson            moved
    Bud’s Move Towards Mobility                                    regained mobility and her                                        positions a couple more
                                                                   physical abilities, but                                          times before landing in the
  Treacherous      road         and wilderness activity,”          sustained a moderate brain                                       job she has today with the
conditions during a             said Lord.                         injury.                                                          Minnesota             Health
December 1999 snowstorm           While he jokes that he is a         Five months after her             Evelyn Anderson             Department’s Injury and
resulted in a severe            granola-loving tree hugger,        injury, Anderson was                                             Violence Prevention Unit.
automobile accident that        there’s seriousness to his         anxious to get back to work. performance in the new job            During her interview, she
sent Richard “Bud” Lord         environmental passion.             Most of her doctors gave her was not any better.                 was told that part of the
into a coma.                    “There’s so much energy in         the go ahead, but her                “In retrospect, had I Unit’s responsibilities
                                nature. For me it’s like           neuropsychologist was known enough [about brain involved managing the
                                direct contact with God,”          hesitant. “He said ‘I don’t injury], I could have said to Traumatic Brain Injury
                                said Lord.                         thing you are really angry them that I don’t think that Registry, a database that
                                  With an undergraduate            enough. I don’t think you’ve learning a whole new job is included Anderson’s TBI
                                degree in soil science, Lord       really come to terms with what I should be doing. I information. “So now I get
                                was a scientist by trade           this or see how this is going think instead we should be to write about the database
                                before his injury. When he         to affect you.’ Although he working                         on that I’m in,” said Anderson.
                                wasn’t       climbing         or   didn’t use these words, he accommodations to help me “And they like having
                                backpacking, he spent much         thought I was in denial,” do the old job,” said someone on staff that had
                                of his free time gardening.        said Anderson.                     Anderson.                     the personal experience of
                                  “I feel like the greatest loss      However, Anderson did             She applied for long-term having a TBI.”
                                since the accident has been        go back to work, to a disability and was accepted.                 There are clear advantages
                                my ability to walk, not my         demanding, detail intensive “I was on disability for about to having Anderson in a
 Richard “Bud” Lord             memory deficits, although          work environment. “I was three years, and really work position where she
                                that can sometimes prove to        planning a                                                                      writes about
  “My       family      from    be bothersome,” said Lord.         l a r g e                                                                       brain injury.
California came out and said      Regaining his ability to         education             “When you have a brain injury, you don’t always           The Health
their goodbyes to me            walk without the use of a          program and          see your limitations. You think, oh, these are just Department
because the doctor said I       cane or walker is Lord’s           arranging                     little problems, I can handle this.”              periodically
wasn’t going to live 48 hours   main goal. He looks for            classroom                                                                       sends letters
after the accident,” said       assistive devices that can         space. I was                                                                    to people in
Lord. He defied the odds        help him do the outdoor            figuring out times and dates missed working. I think this the TBI registry. Anderson
and later came out of a coma    activities he loves so much.       for about seventy different is why I have focused my revised the letters so that
that lasted for several         “I did snow ski last year with     classes a quarter, and I was interests in traumatic brain they are easier to
months.                         Courage Center, with the use       making a lot of mistakes,” injury with how it relates to comprehend for persons
  “I suffered a traumatic       of proper supports. That’s         said Anderson.                     returning to work and work with brain injury.
brain injury and my life has    something I’m going to try            She spent a lot of time on place accommodations,                Anderson, in collaboration
never been the same since,”     again this year – I’ll             the job rationalizing her because work is so with staff from the Brain
said Lord, who in addition      probably be better at it this      mistakes. “When you have important to me.”                       Injury Association of
to a brain injury, has lost     time.”                             a brain injury, you don’t            Anderson              was Minnesota, developed the
much of his mobility and          Lord uses a daily print          always see your limitations. discouraged from working handbook, “Getting Better
requires a cane or walker to    planner and voice recorder         You think, oh, these are just while on disability. “And after TBI.” Anderson’s
get around.                     to help with memory.               little problems, I can handle financially, there were a lot perspective as a person with
  This is particularly          “People’s names are always         this,” she said.                   of disincentives to work,” brain injury helped shape the
difficult challenge for Lord    a challenge,” said Lord. He           A few months after her she said. Regardless, material that went into the
to face, whose life prior to    looks for distinguishing           return to work she received Anderson’s will to return to handbook.
his injury was immersed in      physical attributes to help        the worst performance work led to two years of
outdoor activity. “I was an                                        review of her career.              temporary jobs until she             ANDERSON
avid mountain climber in the               BUD                        Not understanding the role decided to try permanent,                go to page 11
Sierras, and a snow skier. I          go to page 12                of brain injury in Anderson’s full-time work again.
was really into backpacking                                        work performance, her
WINTER 2003/04                                                                                                        HEADLINES
  page 7

                                  Stories from the perspective of persons with brain injury, their family members and professsionals

           Couple teams up after TBI                                                                 Una pareja se juntaron
By Sharon Rolenc                                                                                        después de LCT
Translated by Jennifer
Houston Quintanilla                                                                               Por Sharon Rolenc                “Puedo hacer todo
                                                                                                  Traducido por Jennifer [físicamente], pero no tengo
   They came from different                                                                       Houston Quintanilla            ninguna memoria. Por
parts of the world to find a                                                                                                     ejemplo, si hago un trabajo
better future for themselves.                                                                       Ellos vinieron desde y lo termino, no recuerdo
They came to Minnesota                                                                            diferentes partes del mundo qué lo hice. [Y] si no llego
because it offered a better                                                                       para encontrar un futuro a los trabajos ahora mismo,
job market and quality of                                                                         mejor para sí mismos. se me olvida”, dijo Nur.
life than other places in the                                                                     Vinieron a Minnesota Mientras quería continuar
United States. As political                                                                       porque brindaba un mejor trabajar, era imposible
refugees from Somalia, Nur                                                                        mercado de trabajo y una asegurar que hacía sus citas,
Yusuf and his family fled to                                                                      calidad superior de vida que o seguía los clientes.
Utah for asylum, and he                                                                           otros lugares en los Estados     Al final la Carolina dejó
                                                                        photo by Sharon Rolenc
later moved on to                Dorya Carolina and Nur Yusuf                                     Unidos. Como refugiados sus dos trabajos y ahora la
Minnesota.           Doryan                                                                       políticos de Somalia, la pareja trabaja en conjunto en
Carolina Yusuf left Mexico      continue working, it was         know if it’s good to tell        familia de Nur Yusuf huyó a su propio negocio de limpiar
to attend school in Canada      impossible to ensure that he     them,” said Carolina.            Utah para el asilo, y se mudó alfrombras.             Ellos
and ended up in Minnesota       made his appointments, or          Nur thinks its best to be      a Minnesota después. complementan                       sus
on advice from a family         followed up with clients.        upfront, but Carolina has        Doryan Carolina Yusuf dejó ganancias al cuidar una
friend.                           Eventually Carolina quit       already seen clients take        a México al asistir la escuela propiedad y trabajando
   The two met at work and      both her jobs and the couple     advantage of his disability.     en Canadá y terminaba en tiempo parcial en empresas
were married two years          now works together in their      “Sometimes we tell people,       Minnesota sobre el consejo más grandes limpando
later. They looked forward      own carpet cleaning              but not all people are good,”    de un amigo de la familia.     alfombras.
to building their new family    business. They supplement        said Carolina. There have          Los dos se conocieron en       “No teníamos otra opción
in the country they now         their income by caretaking       been a few clients that know     el lugar de trabajo y casaron porque no tengo familia
called home. Just two           property and working part        of his memory deficit and        dos       años       después. aquí, y la familia que Nur
weeks into the marriage         time for larger cleaning         did not stop Nur from            Esperaban con animo a tiene aquí son sus primos.
their lives changed forever.    businesses.                      cleaning areas that he was       desarrollar su nueva familia Todos están ocupados con
   Nur was building his           “We didn’t have any            not paid to clean, which         en el país que ahora sus               propias       vidas.
business as a professional      choice because I don’t have      resulted in loss of income for   llamaron su hogar. Sólo dos Decidimos trabajar en
carpet cleaner. While Nur       family here, and the family      the Yusufs.                      semanas en el matrimonio conjunto, porque no era fácil
was on the job, his client      he has here are cousins.           Nur doesn’t want to stop       sus vidas cambiaron para que él quedará solo todos los
unwittingly closed the          They are all busy with their     trusting people because of       siempre.                       días y me esperaba a mí, y
garage doors, not realizing     own lives. We decide to          the few people who take            Nur estaba construyendo no supe si estaba seguro en
that the chemicals he used      work together, because it        advantage. “I know that I        su negocio como un la casa solo”, dijo la
for cleaning required           was not easy for him to stay     have a memory problem, but       limpiador de alfombra Carolina
ventilation. Nur suffered       home everyday and wait for       I can’t always blame             profesional. Mientras Nur        “Antes del accidente me
carbon monoxide poisoning       me, and I didn’t even know       others.”                         estaba sobre el trabajo, su confiaba 100 por ciento y
and was found several hours     if he was safe at home by          The couple is coming up        cliente cerró las puertas de ahora ella me confia 50 %,
later unconscious. After        himself,” said Carolina          with business strategies to      garaje, no se dando cuenta porque no cree que estoy
three weeks in the hospital,      “Before the accident she       avoid potential problems in      de que los químicos que usó bien”,dijo Nur.
and three more weeks of         used to trust me 100 percent     the future, like writing out     para la limpieza requerían la    “Es un poco difícil. Ahora
outpatient rehabilitation,      and now she trust me 50          specific guidelines and          ventilación. Nur sufrió el tenemos que estar juntos 24
Nur went home to face an        percent, because she doesn’t     contract agreements to           envenenamiento              de horas al día”, la Carolina
entirely new life.              believe that I am okay,” said    ensure that Nur gets paid for    monóxido de carbono y lo dijo. “Antes, tenía mis
   “This accident changed       Nur.                             all the work he completes.       encontraron inconsciente propios trabajos, teníamos
our lives one hundred             “It’s a little hard. Now we    They are also considering        varias horas después. nuestro propio tiempo
percent,” said Carolina.        have to be together 24 hours     memory triggers like putting     Después de las tres semanas [solos].”
   While he had no ongoing      a day,” said Carolina.           carpenter’s tape down to         en el hospital, y tres semanas   La pareja está tratando de
physical problems, Nur was      “Before, I had my own jobs,      mark the areas Nur is paid       más como paciente externo saber cómo la lesión
left with a severe short term   we had our own time              to clean.                        de rehabilitación, Nur se fue cerebral de Nur podría
memory loss, and his            [apart].”                          Outside of work, the           a casa para enfrentar una afectar                   futuros
physician said it was             The couple is now trying       Yusufs are still getting used    vida completamente nueva. oportunidades del empleo, y
unlikely that he will be able   to figure how Nur’s brain        to each other as newlyweds,        “Este accidente cambió cuales            derechos       y
to learn anything new.          injury might effect future       and are learning how to live     nuestras vidas cien por responsabilidades tiene
   “I can do everything         employment opportunities,        with a brain injury.             ciento”, la Carolina dijo.     hacia los empleadores
[physically], but I do not      and what rights and              “Without her, I can’t do           Mientras no tenía ningún potenciales ahora. “No
have any memory. For            responsibilities he has to       anything,” said Nur, and a       problema físico en curso, sabemos cuánto duro puede
example, if I do a job and      potential employers. “We         broad smile breaks across        Nur se quedó con una ser conseguir un trabajo para
finish it, I don’t remember     don’t know how hard it can                                        pérdida de memoria a corto personas con una lesión
what I just did. [And] if I     be for persons with disability                                    plazo grave, y su médico
don’t get to the jobs right     to get a job. We are worried             YUSUFS                                                           YUSUFS
                                                                                                  dijo que era improbable que
away, I forget,” said Nur.      about whether to tell a new            go to page 10                                                 va a la página 12
                                                                                                  podrá aprender algo nuevo.
While he wanted to              company or not. We don’t
HEADLINES                                                                                                                                      WINTER 2003/04
                                                                                                                                                           page 8

 Family rocks and walks to Walk for Thought                                                                     WALK                   Minnesota’s         multiple
                                                                                                             from page 1               services and programs that
By Sharon Rolenc                                                                                                                       serve persons with brain
                                                                                                      America (FCCLA) students         injury.
  Tracy Winkel-Johnson,                                                                               to put the event together.         Thanks to our participants,
team leader of the Dragonfly                                                                          They were supported by the       sponsors, volunteers, staff,
Clan became involved with                                                                             Blackduck Tri Sigma Study        Walk Committee and board
the Brain Injury Association                                                                          Club. Maxine Beck, was the       of directors for their support
to honor her brother Steve                                                                            group’s liaison to the Brain     and commitment to bring
Winkel. Caught in the                                                                                 Injury Association of            hope, help and a voice to the
wrong place at the wrong                                                                              Minnesota. Their event           94,000 Minnesotans who
time, the truck that Steve                                                                            raised an additional $6000       live with a disability due to
drove was struck by a police                                                                          for the Association.             brain injury.
car that was in pursuit of                                                                              Three teams raised over          The Walk would not have
another vehicle.         His                                                                          $2,500: The Dragonfly            been as successful without
passenger and best friend                                                                             Clan, TBI Residential and        everyone’s involvement.
died instantly died. Steve        The Dragon Fly Clan (from left to right) Sue and Jim Winkel,        Region’s Hospital. Three         The steps we took during the
died a week later in the          Tracy Winkel-Johnson, Kelly Ryan and Chad Johnson
                                                                                                      individuals raised over          Walk for Thought will help
hospital.                         of their friends either died      over $3,000 for the Walk for      $1,500: Tammy Johnson of         thousands of Minnesotans
  Winkel-Johnson shared           from or sustained brain           Thought, and they are a           TBI Residential, Tracy           affected by brain injury
her memories of the days          injuries. “I thought, well        perfect testimony to how a        Winkel-Johnson of the            achieve even greater strides
leading up to her brother’s       here’s three people in this       lot of little donations can add   Dragonfly Clan, and              of their own.
death, and of the comfort her     relatively small community        up. While they were able to       Brandon Skelton of                 Watch the Brain Injury
family received in the visits     of rock musicians. How can        get a few donations over          Brandon’s Team.                  Association’s web site,
they had from Association         we turn this into a benefit so    $100 through family                 All proceeds from the, in
staff.                            we can get some more              business contacts, most of        walk will directly benefit the   the coming months for
                                  attention to [the issue of]       their donations were around       Brain Injury Association of      details on next year’s walk.
                                  brain injury,” she said.          $5 to $10.
                                     Winkel-Johnson                   “I sent out emails to
                                  approached Triple Rock            everybody. Then I kept
                                  nightclub and was offered a       badgering people until I got
                                  Monday night slot for the         a response,” said Winkel-
                                  event. She and her husband        Johnson. She kept her
                                  Chad asked local musicians        donation list from last year’s
                                  for their participation in the    walk, and asked the same
                                  benefit. “We got a great          people that gave before.
 Steve Winkel                     response from the rock            Many who had given before
                                  community. Most said ‘sure        gave more this year. “I think
   “On the second day we          we’ll do it’ and then [the        the reason that most people
were at the hospital, a staff     benefit] was born. This will      we know are generous with
member          from       the    hopefully be an annual            us is because of my brother.”
Association came to talk to       event.”                             Winkel-Johnson also went
us and she gave us a bunch           The event brought in about     to all the small businesses in
of information about what         60 people and raised              her South Minneapolis              For the second year in a row, Team Nichole was the top
we could anticipate when          approximately $300, which         neighborhood. Her efforts          fundraiser with over $5,000. With almost 50 walkers, the
my brother came out of his        is relatively good for a          with            neighborhood       team was one of the largest at the Walk for Thought.
coma. We didn’t know at the       Monday evening music              businesses were more
time that he wouldn’t make        event. Winkel-Johnson             successful this year because
                                                                                                            Walk for Thought 2003 Top Fundraisers
it. You guys were at the right    hopes to get a weekend time       she started several weeks
place when we needed              slot next year to ensure a        before the date of the walk.
support, despite the fact that    greater turnout. She would        She gave business owners an        Teams over $5,000 are:          Stampeding Turtles
we never ended up using the       like to see increased             information sheet about the        Team Nichole                    Jesse Jones
services,” said Winkel-           awareness of brain injury in      Association and gave them
Johnson.                          the community in general,         ample time to make a               Teams over $2,500 are:          Teams over $500:
   The family has continued       and more specifically, in the     decision.                          Dragonfly Clan                  Walk-n-Rollers
to give annually in Steve’s       younger rock crowd.                 “Basically, nobody is safe       TBI Residential                 Department of Health
name, and has participated           “It’s too bad that people      from me,” she said. Winkel-        Regions Hospital                Barb Fulton
in the Walk for Thought for       don’t mention [brain injury]      Johnson also claims to have                                        HCMC Trauma Trekkers
the last two years.               more. It’s kind of scary.         the donation from the              Teams over $1,000 are:          Lar’s Leader’s
   This Fall, Winkel-Johnson      One of my favorite DJs just       greatest distance. “One of         Brain Storm                     Sue Lepore
took the initiative to hold her   died recently. He collapsed       my buddies from London             Craig’s Cracked Crania          Giga Bumps
own fundraiser, and added         and they took him to HCMC         was in town and I told him         TBI Metro Services              Amy McVary
the proceeds to her Walk for      and he died from a brain          ‘I want the donation from          Sparky’s Spitfires              Mary T
Thought donations. She            hemorrhage,” said Winkel-         the farthest away, so give me      Restart                         Hope is Positive
organized a punk rock             Johnson. She watched a            some money.’ He only had           Brain Injury Strike Force       Howry Honeydews
benefit aptly named “Rock         close friend struggle with        $5 on him, so he gave me his       New Challenges Inc.             Team Nickells 2003
for Thought” to honor the         life after a brain injury, and    last $5. Even people on tour       Keeping Ahead                   Life is Therapy
memory of her brother and         she got him connected with        from out of town are not safe      Brandon’s Team
local musicians from the          the Association. “It really       from me.”
punk rock community who           surprises me that not more          While Winkel-Johnson
                                  people know about you
                                                                                                                 Special Thanks to our Sponsors:
have been effected by brain                                         looks          forward       to
injury.                           guys. You’d think doctors         participating in next year’s        Sun Newspapers                 Expedite! Direct Mail &
   She and her husband Chad       would tell you about this         walk, she said “the bad thing       Tanaka Advertising             Fulfillment
Johnson came up with the          service,” she said.               is that I’ve set the bar really     Resolution Graphics            Priority Envelope
idea when they noticed that          Winkel-Johnson’s team,         high for next year!”                Scoville Press                 Medtronic
in a span of 18 months, three     the Dragonfly Clan raised
WINTER 2003/04                                                                                                         HEADLINES
  page 9

              Winter Safety: Helmet Use and Snow Sports
                                       Reprinted from the Brain Injury Association of America website:

  Growing up near a skier’s way to prevent such injuries          Yet, helmet use among           age of fifteen have shown to     •    Always stay in control
haven, Steamboat Springs, from occurring.                       snow sport participants           be prevented or reduced by            and be able to stop or
Colorado, Mike had spent            Over 17,000 skiers and remains                 relatively     over 50%.                             avoid other people or
countless winter hours on snowboarders suffered head uncommon and despite the                       Although research is new            objects.
the slopes. An avid skier for injuries in 1997. In a study increasing evidence, some              in the area of snow sport        •    People ahead of you
over 20 years, Mike was released in January 1999, are still questioning the                       helmets and therefore, fairly         have the right of way.
well aware of the risks The U.S. Consumer Product value of a helmet used for                      limited, statistics to date      •    Stop in safe places for
involved last March 7th Safety Commission (CPSC) snow sports.                                     have clearly shown a                  you and others.
when he ventured out for estimates that 7,700 of those            Fear that helmets will          helmet’s protective value.       •    Whenever        starting
one more run before heading skiers and snowboarders provide skiers with a false                                                         downhill or merging,
home. He knew the could have prevented their sense                           of      security,    Conclusion                            look uphill and yield.
evening’s cool air would injury or reduced the encouraging more risky and                           Skiing and snowboarding        •    Use devices to help
have caused slippery ice severity had they been hazardous behaviors on the                        can be very fun with quick            prevent        runaway
patches to begin to cover the wearing a helmet at the time slopes, has led to many                turns and high speeds, yet,           equipment
morning                                                                          leaders in the   there is always an element       •    Observe all signs and
snow. He                                                                         ski industry     of danger involved. Snow              warnings, and keep off
also knew          Although not as common as other snow sport injuries to discourage              sports require participants to        closed trails.
t     h      e        such as knee and ankle sprains and fractures,              mandatory        be constantly alert and          •    Know how to use the
increasing         traumatic brain injuries remain the leading cause of          snow helmet      aware of their own talent and         lifts safely.
fog would                                                                        laws. Other      ability. Many injuries occur
                           fatal snowboarding and skiing injuries.
greatly                                                                          ski       and    to beginners unaware of the      References:
reduce his                                                                       snowboard        varying terrains of the slopes   Mike (last name withheld upon
visibility.                       of the incident. In addition, enthusiast believe at the         and the level of skill           request),           personal
  Yet, the slopes were the study showed that speeds skiers can reach                              necessary       to     safely    communication, Dec. 2001.
tempting and Mike couldn’t helmet use could prevent (advanced skiers can reach                    maneuver about them.
resist one last run. Rounding about 11 skiing and speeds greater than 60mph),                                                      National Ski Areas Association
                                                                                                    While no protective
                                                                                                                                   (NSAA). National Safety
a familiar bend, Mike’s right snowboarding             deaths helmets are futile in               measure can substitute for       Initiative, Ski and Snowboard
ski slipped on a patch of ice. annually.                        protecting against severe         good judgment, helmets can       Safety. Available at: http://
The devastating blow to his         The CPSC statistics injury. Unfortunately, anti-              reduce the injury risk 
head caused a severe brain support previous reports snow helmet advocates are                     involved.              CPSC
injury.                           from a Swedish study right in their claims that                 recommends skiers and            US Consumer Product Safety
  If he had been wearing a conducted during the 1985- helmets and other safety                    snowboarders wear helmets        Skiing Helmets: An Evaluation
ski helmet, could Mike’s 1986 ski season. In Sweden, equipment cannot provide                     specifically designed for        of the Potential to Reduce
injuries have been prevented skiers wearing helmets were one with a total means of                these types of activities.       Head Injury. Available at:
or the severity of his injuries 50% less likely to suffer protection.                               There are currently a          h t t p : / / w w w. c p s c . g o v /
reduced?                          head injuries compared with     The use of helmets should       number of helmets available      L I B R A RY / s k i h e l m . p d f .
                                  skiers who did not wear never encourage a false                                                  Accessed November, 2000.
                                                                                                  that meet the European
The 1999 Consumer helmets.                                      sense of security among           Standards        Committee       Resources:
Product                Safety                                   those who wear them while         (comité European de              Bicycle Helmet Safety
Commission Study                  The Other Side                participating in any sport.       normalisation or CE),            Institute. Helmets for Many
  Almost all major high-            On the whole, brain Yet, the fact that helmets                American Society of Testing      Activities. Available at:
energy sports participants injuries represent 14% of all have been shown to prevent               Materials (ASTM), or Snell
wear protective helmets skiing and snowboarding or reduce many brain                              standard for snow sports.        Center for Disease Control and
today, as it has become injuries. Although not as injuries suffered by skiers                       In addition to wearing         Prevention. Winter Sports
increasingly well known common as other snow sport and snowboarders is a fact                     helmets         specifically     Injury Prevention. Available
among sports enthusiasts injuries such as knee and that cannot be ignored.                        designed for skiing or           at:
that any activity involving ankle sprains and fractures,          Over 40% of adult head          snowboarding, it is wise to      slopes.htm
fast speeds imposes risk of traumatic brain injuries injuries can be prevented or                 follow the National Ski
                                                                                                                                   National Ski Patrol. Safety
death and permanent remain the leading cause of reduced in severity simply                        Areas        Association’s       Information. Available at:
disability. Helmets are fatal snowboarding and by wearing a helmet. Head                          “Responsibility Code.” 
currently the most effective skiing injuries.                   injuries to children under the

      from page 4               coach and worked in the Rochester/Bexley Hall/                    to a wide variety of groups      information at 612-378-
                                field for seven years. It was Crozer Divinity School in           across the country, focusing     2742, or 1-800-669-6442 in
“Keeping It in Perspective.”                                   Rochester, New York to             on     the     subject     of    greater Minnesota.
This talk focuses on the                                       receive his Master ’s in           “Survivorship             and      Friday admission to the
shortness and uncertainty of                                   Divinity Degree and                Spirituality.” You will find     conference is $80 for
human life and our                                             subsequent ordination to the       his perspective refreshing       members of the Brain Injury
responsibility to live our                                     priesthood.                        and inspiring!                   Association of Minnesota,
lives with that in mind.                                         Mezacapa brings his                Special thanks to St. Paul     and $95 for nonmembers.
  Mezacapa has served as                                       experience as teacher,             Rehabilitation Physicians,       Saturday admission is $40
the rector of Calvary                                          coach, priest, husband and         our exclusive Diamond            for members age 12-18, and
Episcopal Church, right                                        father to his presentations        Keynote Sponsor. Several         $55 for members age 19 and
across the street from The                                     with      passion        and       conference sponsorship           over; $50 for nonmembers
Mayo Clinic for the past 16                                    authenticity.            His       packages are still available.    age 12-18, and $65 for
years. Before coming to                                        experiences as a prostate          The sponsorship sign-up          nonmembers age 19 and
Minnesota he served                                            cancer survivor, radio             deadline is January 15 if you    over. Watch your mail and
churches in Iowa, Michigan,                                    personality and an active          want recognition in the          the Brain Injury Association
and New York. A graduate        Rev. Nick A. Mezacapa          thespian combine to                conference registration          of Minnesota web site at
of Heidelberg College in                                       generate a style and urgency       brochure and the program for
Tiffan, Ohio, he was trained    after his teaching career that that is unique. He has             booklet. Call Katy at the        registration materials in late
as a teacher and athletics      he attended Colgate/ delivered his presentations                  Association for more             February.
HEADLINES                                                                                                                                WINTER 2003/04
                                                                                                                                                    page 10

                                  SPONSORS                                        Acknowledgement of Donations: August 14-October 31, 2003

DONORS                            Mr. Vincent Boyer               FOUNDATIONS                    MEMORIALS                       In memory of Marion
                                  Mr. James Hansen                                                                               Schuller, continued
Dr. Nancy Carlson                                                 Mr. & Mrs. Edson Spencer       In memory of Marion             Lea Byboth
                                  Ms. Tracy Hinkemeyer
Mrs. Dolores Hammel                                               Minneapolis Foundation         Schuller                        Maria Gillespie
                                  Ms. Judy Kleven
Mr. David Lyman
                                  Ms. Maryellen Leppink                                          Patricia Schwarz
Mr. Jason Mans
                                  Mr. John Mack
                                                                  TRIBUTES                       Ivie Senum
Mrs. Leander Simon                                                                                                               In Memory of Butch
                                  Ms. Karen Middleton             In honor of Sue Larsen         Elizabeth & Cara Healy
Ms. Sandra Smith                                                                                                                 LeClaire
                                  Ms. Elizabeth Skinner           Ms. Sandra Hughes              Maria & Robert Gadbois          Mary Walter
Mr. Lawrence Walker
                                  Definity Health                                                Karen & John Gillespie
                                  Mr. Glenn Tridgell              In Honor of Dr. David
                                                                                                 Doris Gritti
MEMBERS                           Ms. Carole Watkins              Hirschman/staff HCMC
                                                                                                 Lucia Karki                     In Memory of Helen
Ms. Stacey Antes                  Mr. Thomas West                 Pediatric Intensive Care                                       Charewicz
                                                                                                 Aurelia Shellenbarger
Ms. H.Terry Berg                  Ms. Meredith Zallar             Ms. Jan Finnegan               Jill Vanderhyde                 Suzanne Winkel

                                                                                       Donate Your Car!
                                                                               And TurnYour Used Car Into Cash!
                                                                      The car donation program for The Brain Injury Association of Minnesota has
                                                                      been a successful fundraiser for the organization for over two years. If you are
                                                                      interested in donating a vehicle to The Brain Injury Association please remember
                                                                      a few things:

                                                                      ♦ The Brain Injury Association of Minnesota is contracted with a company out
                                                                      of California, The Car Donation Program Inc., which handles vehicle donations
                                                                      for nonprofit organizations nationwide. The Car Donation Program, Inc. makes
                                                                      the final decision whether the car can be donated or not. Their decision is based
                                                                      on things like; age of the vehicle, condition and if that type of vehicle is needed at
                                                                      the present time. The Brain Injury Association is not involved in the final decision.

                                                                      ♦ The Brain Injury Association does not have the capability to physically take
                                                                      possession of the vehicle. The Car Donation Program, Inc. arranges for towing.
                                                                      If the vehicle is accepted for donation, a tow truck will be sent to your location to
                                                                      pick the vehicle up, you will then be given a certificate for your taxes.
                                                                      ♦ If you would like to donate your vehicle there are several ways to do it:
  City:                                                                   You can go to and click on the cartoon car on the left
  State, Zip Code:                                                        side of the screen. This will take you to a site where you can put in all the
  Telephone:                                                              information about the vehicle. This process is the quickest.
                                                                          You can email the information to Please be sure
  ❑ Individual: $35             ❑ Corporation: $500                       to include you license number and vehicle ID number. No donation can be
  ❑ Limited income: $5-15       ❑ Non-profit organization: $250           processed without either.
  ❑ Household: $100             ❑ Individual Lifetime: $1,000
                                                                          You can call Mark at 612-378-2742 or 800-669-6442. He will take all the
  ❑ Benefactor: $250            ❑ Other: $                                information and fax it to the Car Donation Program.
   I am (please check one):
                                                                      ♦ The donation process can take up to 2 weeks. If that is not quick enough,
        ❑ A person with brain injury                                  please contact the Courage Center: 763-520-0520 or 888-8INTAKE and inquire
        ❑ Family member/friend                                        about their car donation program.
        ❑ Professional
                                                                        Thank you for your support of The Brain Injury Association of
                     Payment Method                                      Minnesota. Your continued support of the organization will
  ❑ Check payable to Brain Injury Association of Minnesota                 insure that the over 94,000 Minnesotans who live with a
  ❑ Credit Card:       ❑ Visa             ❑ Mastercard                   disability due to brain injury will receive the help they need.
     Card Number:
                                                                          YUSUFS               a workforce center,” said           Nur’s advice to someone
     Expiration Date:
                                                                        from page 7            Carolina. “I try to be            who is facing a new brain
     Signature of Cardholder:                                                                  positive and always have          injury is to deal with life one
                                                                  his face as he talks about hope that the future will be        day at a time.
                                                                  Carolina.                    better. Even though doctors         “Don’t think about what
                 Complete form and send to:                         “We try our best. Also, we say they don’t know what to       you don’t have, think about
             Brain Injury Association of Minnesota                have Jennifer [Houston from expect for him for                 what you do [have]. Do
     34 13th Ave NE, Suite BOO1, Minneapolis, MN 55413            the      Brain       Injury improvement, I expect a            what you can, relax and
                                                                  Association] who sent us to lot.”                              think of good things.”
WINTER 2003/04                                                                                                          HEADLINES
  page 11

                                  Legislative Corner
                                                                                                                       Keeping up to date with public policy

                      Are You a Victim of the Bystander Effect?
By Shannon Robins                                                                                    You have heard time and           Legislative Home Visits
                                           Ask yourself this: “What concrete steps                 again about the importance       are always held in a
  In 1964, 38 people                                                                               of Legislative Home Visits       wheelchair        accessible
witnessed a brutal murder               have I taken to help spread public awareness
                                                                                                   and the empowerment of           location, usually on a main
and not one person called the                and education about brain injury?”                    those who participate and        road/street, are always free,
police or intervened                                                                               the enormous capacity they       if possible they are on public
although there was over 30                                                                         serve to educate the general     bus routes, and include
minutes of opportunity to do        Have you ever wondered        may be a victim of the           public about brain injury        refreshments!
so.                               why one out of three people     Bystander Effect!                prevention,       research,         Legislative Home Visits
  The majority of witnesses       has never heard the term          Brain Injury continues to      information,       problem       are open and welcome to
later reported that they all      brain injury (Harris Poll,      grow and expand as one of        solving, and advocacy.           everyone,          including
thought someone else              2000) when it is the leading    the largest and most               You have witnessed the         children,            friends,
reported the crime so no one      cause of death and disability   challenging            health    difference made by the           professionals, and loved
did. If even one witness had      for children and adults under   epidemics today.                 people       who       have      ones. The challenge is to get
picked up the phone to call       the age of 34? Why is no one      In order to increase the       contributed their time and       as      many        different
the police, the victim would      addressing this need?           likelihood that people with      effort to strengthen and         perspectives together in one
have been saved and the             Ask yourself this: “What      brain injury and our loved       improve our communities          group to show the varying
murderer caught.                  concrete steps have I taken     ones have access to the          with the passage of              levels of impact that brain
  Thus, the research began        to help spread public           services and supports we         Resource Facilitation for        injury has on our
into        this       strange    awareness and education         need, it is imperative that we   persons with brain injury in     communities.
phenomenon called the             about brain injury?”            are dedicated to getting the     Minnesota.                          Even if you do not feel like
Bystander Effect.                   Have you let opportunities    word out.                          Have you been a part of        sharing your story or
  The Bystander Effect is a       slip by to share your             A great place to start         this effort? Or have you         speaking in a group, please
social phenomenon in which        knowledge about brain           communicating knowledge          become a victim of the           show up at the home visit in
a person (or persons) is less     injury because you were not     and information regarding        Bystander Effect?                your area to show your
likely to offer help to another   sure you could make the         brain injury to the public is      Legislative Home Visits        support. By donating 90
person (or persons) when          difference?                     with our Minnesota               are key to building the          minutes of your time, you
there are more people               Did you think someone         lawmakers.                       foundation for brain injury      positively impact the 94,000
around who can also provide       else would step to the plate      The        Brain     Injury    services and supports, and       people who live in
assistance. The more people       in your place? Did it seem      Association of Minnesota is      best of all they are easily      Minnesota with a disability
there are who can help, the       too difficult at the time? If   committed to creating            accessible to constituents       due to brain injury and those
less likely each person is to     you answered yes to the         opportunities for you to be      across Minnesota.                who will sustain brain injury
offer help. (        above questions, then you       involved in this process.                                         in the future.

       ANDERSON                                                                                    puzzles. I never really was      during work meetings
       from page 6                      “I have a better perspective now about what is             before the accident, but they    “Afterwards, if I can write it
  While she can look back                 and isn’t important. I have been through                 have really made a huge          in an email, then I’m fine.
now and see the progress               problems and seen the depths in life, and am                difference in gaining back       But I find that I’m not as
that she made, Anderson                    more sensitive to others because of it.”                my skills.”                      articulate anymore in those
admits that there were                                                                               Personal drive played a        kinds of impromptu settings.
definite low points during                                                                         role in Anderson’s return to     I need more time to really
her recovery. One turning         fit for her. Unfortunately,     enabled her to gain a broader    work. “I really pushed           process what people have
point came on her one year        the group had no leader. The    perspective of brain injury.     myself to get back into          said, and put my thoughts
anniversary after her injury.     night Anderson found the          While she has no lasting       things. I realize that I’m       together before I’m ready to
  “I was in the hospital          group happened to be the        physical impairments, her        certainly a whole lot better     contribute.”
again, but this time because      night that the nurse’s          brain injury has caused          off than people with more          Anderson said the
I had a reaction to a pain        daughter attended the           ongoing cognitive deficits       severe TBI, but I also see       importance of keeping
medication I was taking. All      meeting.                        including memory and             how far I’ve come. I think       perspective has been the
of a sudden I realized what         “She didn’t know that her     organizational challenges.       that pushing the limits really   biggest life lesson for her. “I
day it was, and I was really,     mother had talked to me, and    “A lot of these are things       made a difference.”              have a better perspective
really depressed. The nurse       when she heard me talk          that everyone experiences to       Anderson finds that she        now about what is and isn’t
saw that I was really             about my experience in the      some extent, but with a TBI      still gets immersed in a         important. I’m a better
depressed, and knew that I        hospital, and the really nice   it’s much more intense,”         project, and forgets other       listener, and maybe that
had a TBI. She told me that       nurse, she called me the next   said Anderson.                   things that need to get done.    comes from working with a
her daughter also had a TBI       day and said ‘that was my         “I also have had problems      “I don’t seem to be able to      support group, but I’m much
and had found the Brain           mother.’” As a result of this   with word finding, and as a      back up as easily as I used      more interested in other
Injury Association of             unique connection, the two      writer, that’s very scary,”      to, and really see the whole     people and other people’s
Minnesota very helpful,”          decided to take on              said Anderson. She started       picture.”                        experiences. I have been
said Anderson.                    facilitation of the support     picking up crossword               Verbal projects are also       through problems and seen
  Through the Association,        group together. They took       puzzles and word games to        tough for her.            She    the depths in life, and am
Anderson met with a few           turns facilitating the group,   improve her vocabulary           sometimes struggles to           more sensitive to others
support groups until she          and acting as participants,     retention. “I’m still kind of    collect her thoughts so that     because of it.”
found one that was a good         and Anderson said that          addicted to crossword            she can contribute ideas
HEADLINES                                                                                                                                         WINTER 2003/04
                                                                                                                                                            page 12

                                                                                                                                                 de la página 7
                                                                                                                                           cerebral.          Estamos
                                                                                                                                           preocupados decir a una
                                                                                                                                           nueva compañía o no. No
                                                                                                                                           sabemos si es bueno
                                                                                                                                           decirles”, la Carolina dijo.
                                                                                                                                             Nur piensa que es bueno
                                                                                                                                           ser sincero en el principio,
                                                                                                                                           pero la Carolina ya ha visto
                                                                                                                                           clientes aprovechar de su
                                                                                                                                           discapacidad. “A veces
                                                                                                                                           decimos a las personas, pero
                                                                                                                                           no todas las personas son
                                                                                                                                           buenas”, la Carolina dijo.
                                                                                                                                           Ha habido algunos clientes
                                                                                                                                           que sabían de su déficit de
                                                                                                                                           memoria y no pararon a Nur
                                                                                                                                           de limpiar áreas que no fue
                                                                                                                                           pagados, lo que resultó era
                                                                                                                                           la pérdida de ganancias para
                                                                                                                                           los Yusufs.
                                                                                                                                             Nur no quiere dejar de
                                                                                                                                           confiar en las personas
                                                                                                                                           debido a pocas personas que
                                                                                                                                           toman ventaja de el. “Sé que
                                                                                                                                           tengo un problema de
                                                                                                                                           memoria, pero no siempre
                                                                                                                                           puedo criticar a otros.”
                                                                                                                                             La pareja está trabajando
                                                                                                                                           en las estrategias negocias
                                                                                                                                           para evitar los problemas
                                                               When a stroke robbed Carl of the ability to speak, we gave
                                                                                                                                           potenciales en el futuro,
                                                               him hope. Through diligently listening to what his body and
                                                                                                                                           como escribir las reglas
                                                               soul were saying, we helped rediscover his voice. And no                    específicas o contratos de
                                                               matter how many times it happens, after recoveries like Carl’s,             asegurar que Nur recibirá
                                                               we are the ones left speechless.                                            todo el pago de trabajo que
                                                                                                                                           hiciera. También están
                   Our holistic touch to healing will soon reach Minneapolis. In the fall of 2003, Bethesda will open                      considerando gatillos de
                    a satellite facility in Minneapolis with 27 beds for respiratory and complex medical care programs.                    memoria como poner la
                                             For more information go to                                          cinta de carpintero para
                                                                                                                                           señalar las áreas en que Nur
          BUD                    group with other persons             “But I have a beautiful 12-          progress than ever expected.    tiene que limpiar.
       from page 6               with brain injury has been           year-old daughter, and I             He went from a nursing            Aparte del trabajo, los
                                 key for Lord. “The monthly           could never do that to her. I        facility to independent         Yusufs todavía se estan
him recall names, like the       support group is excellent.          would be a better example            living, from a wheel chair to   acostumbrado a sí mismos
color of someone’s hair or       It’s one of the most                 for her by living.”                  a walker, does occasional       como recién casados, y están
whether they wear glasses.       important parts of my life             He said he looks forward           independent contracting         aprendiendo cómo vivir con
  Family support has been        right now.”                          to returning to a permanent          with his former employer,       una lesión cerebral. “Sin
an important factor in Lord’s      On a suggestion from a             job so that he is able to make       volunteers, and picks up his    ella, no puedo hacer nada”,
continued         recovery,      support group member,                child support payments on            daughter weekly for             Nur dijo, y una sonrisa
particularly from his sister     Lord started volunteering            his own. Lord and his ex-            visitation.                     apareció a su cara cuando
and mother, who live in San      weekly for the Brain Injury          wife divorced years before             “There are many positives     habló de la Carolina.
Bernardino, California.                                                                                    in my life right now,” he         “Hacemos lo mejor
“My sister went through a                                                                                  said. “On a geological time     posible. También, tenemos
bout with cancer – she’s           “On a geological time scale, our lives are extremely                    scale, our lives are            Jennifer [Houston de la
been quite an inspiration.                                                                                 extremely short. I would        Asociación de lesión
                                       short. I would like to make the best of it.”
She’s carried on with her                                                                                  like to make the best of it.”   cerebral] que nos envió a un
career, and the cancer has                                                                                                                 centro de trabajo”, la
not brought her down or          Association of Minnesota.            his crash, and he has                                                Carolina dijo. “Trato de
made her will to live a full     “One of my goals is my               continued to play an active
                                                                                                            The Association                estar positiva y tener
life diminish. She’s a           ability to hold a permanent          role in his daughter’s life. “I       is on the move!                esperanza de que el futuro
survivor,” he said.              job. By volunteering, I can          think I will feel better about                                       será mejor siempre. Aunque
  While Lord was in nursing      network with people and              myself when I can provide                                            los doctores dicen que no
care, his mother became his      better find out what I can be        for my daughter,” he said                                            saben qué esperar para él
temporary guardian, and she      doing with my life as far as           He struggles to look on the                                        para la mejora, yo espero
later brought him to             my career goes. Plus, I              bright side. “I was supposed                                         mucho.”
California for more              really like the social               to die and I lived. I wasn’t                                           El consejo de Nur para
rehabilitation. “My mom’s        interaction and the work             ever expected to walk again             Our new address as           alguien que está enfrentando
been great. She’s a former       relationship with people,”           and I’m getting there now. I                                         una nueva lesión cerebral es
                                                                                                               of mid-January:
schoolteacher, so she tries to   he said.                             overcame those obstacles, so                                         de tomar la vida un día a la
look at things objectively,        Lord has experienced                                                        34 13th Ave NE,
                                                                      there must be a reason I’m                                           vez. “No piense en lo qué
and more on the intellectual     serious bouts of depression          still here.”                                Suite B001               usted no tiene, piense en lo
side.”                           with his recovery, and                 Not only did Lord survive              Minneapolis, MN             qué tiene. Haga lo qué usted
  In addition to family          admits to having thoughts of         his automobile crash, but he                                         pueda, relájese y piense en
support, finding a support       suicide from time to time.           has also made better                                                 buenas cosas.”

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