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Cleft Lip and Cleft Palate The Global Transformation Network Inc

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Cleft Lip and Cleft Palate The Global Transformation Network Inc Powered By Docstoc
					                                                    Created by LifeWind International for the Global CHE Network




                                         CLEFT LIP AND CLEFT PALATE

Date: 06/10                                                                                                 (1 HOUR)


OBJECTIVES:                 After working through this lesson, participants will be able to:
                            1. Use pictures to explain what cleft lip and cleft palate is.
                            2. Describe some problems caused by cleft lip and cleft palate.
                            3. Teach their neighbors that cleft lip and cleft palate can be treated with surgery.

OVERVIEW FOR TRAINERS: This is another lesson in the series on disabilities.

METHOD                                                TIME        KNOWLEDGE

Picture: Give out the handout, Cleft                    5”
Lip and Cleft Palate.

----SHO questions----
S = What do you See?
H = What is Happening?
O = Does that happen in Our place?



I.       Cleft lip and cleft palate                     10”        I.   Cleft lip and cleft palate
         Discuss in large group.
         A. What is a cleft?                                            A.    What is a cleft?
                                                                              1. A cleft is an opening.
                                                                              2. A cleft is a gap or fissure.
         B.      What is a cleft lip?                                   B.    What is a cleft lip?
                                                                              1. A cleft lip is an opening in the
                                                                                  upper lip.
                                                                              2. The cleft may be on one or
                                                                                  both sides.
                                                                              3. The opening may extend all
                                                                                  the way to the nostril.
         C.      What is a cleft palate?                                C.    What is a cleft palate?
                                                                              1. The palate is the roof of the
                                                                                  mouth.
                                                                              2. A cleft palate is an opening in
                                                                                  the roof of the mouth.
                                                                              3. Sometimes children have both
                                                                                  a cleft lip and a cleft palate.
         D.      When do cleft lips and cleft                           D.    When do cleft lips and cleft palates
                 palates occur?                                               occur?
                                                                              1. Cleft lips and cleft palates are
                                                                                  visible at birth.
                                                                              2. They occur when the child is
                                                                                  being formed within the
                                                                                  mother’s womb.
         E.      Suppose that you are a                                 E.    How would you feel?
                 mother whose child has just                                  1. Surprised
                 been born with a cleft lip or                                2. Shocked
                 cleft palate. How would you                                  3. Sad
                 feel?                                                        4. You might feel guilty, thinking
                                                                                  that it is your fault.

This lesson is part of an extensive series for use in Community Health Evangelism (CHE) ministries. CHE facilitators
skilled in participatory learning methods enable communities to escape cycles of poverty and live as followers of
Jesus.
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                                    CLEFT LIP AND CLEFT PALATE

METHOD                                       TIME   KNOWLEDGE


II.    Living with a cleft lip or cleft      20”    II.    Living with a cleft lip or cleft palate
       palate
       A. What causes cleft lip and                        A.   Cause
            cleft palate?                                       1. Usually we do not know.
                                                                2. Sometimes cleft lip or cleft
                                                                      palate may be genetic (run in
                                                                      families.)
       B.   How common is cleft lip                        B.   How common is it?
            and cleft palate?                                   1. About one of every 700
                                                                      children has a cleft lip and/or a
                                                                      cleft palate.
       C.   Do you know a child with a                     C.   Do you know a child with a cleft lip
            cleft lip or cleft palate?                          or cleft palate?
                                                                1. Yes. (Tell the story.)
                                                                2. No.
                                                                3. I’m not sure.
       D.   Look again at the photos or                    D.   Other problems
            drawings of the children                            1. A cleft lip changes the
            with cleft lip and cleft                                  appearance of the child.
            palate. What other                                  2. Babies with cleft lip or cleft
            problems could this cause?                                palate may have difficulty
            Discuss in small groups.                                  sucking.
                                                                3. They may choke or gag when
                                                                      sucking.
                                                                4. This causes feeding problems.
                                                                5. Babies with cleft palate may
                                                                      have frequent ear infections.
                                                                6. This can cause a hearing loss.
                                                                7. Babies with cleft lip or cleft
                                                                      palate may have difficulty with
                                                                      speech.
                                                                8. Other children may reject or
                                                                      tease a child with a cleft lip or
                                                                      cleft palate.
                                                                9. Parents may have a hard time
                                                                      accepting or adjusting to a
                                                                      child with a cleft lip or cleft
                                                                      palate.

III.   Treating cleft lip and cleft palate   20”    III.   Treating cleft lip and cleft palate
       Discuss in large group.
       A. Look at the drawings of                          A.   What is being done?
            Feeding a child with cleft lip                      1. Place the breast deep in the
            or cleft palate. What can be                            baby’s mouth.
            done?                                               2. Sometimes breast milk is
                                                                    expressed and fed by spoon.
                                                                3. Feed the baby when he is
                                                                    sitting ups.
                                                                4. Sometimes a special bottle or
                                                                    nipple is used.
       B.   Are there any other                            B.   Other treatments
            treatments for cleft lip and                        1. Sometimes a mold is made of
            cleft palate?                                           the palate (the roof of the
                                                                    mouth). This makes feeding
                                                                    easier.
                                                                2. But the best treatment is
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                                       CLEFT LIP AND CLEFT PALATE

METHOD                                             TIME         KNOWLEDGE

                                                                                  surgery.
       C.    When is surgery to repair a                               C.    When is surgery usually done?
             cleft lip or cleft palate                                       1. Surgery to repair a cleft lip is
             usually done?                                                        usually done at 2 to 3 months
                                                                                  of age.
                                                                             2. Surgery to repair a cleft palate
                                                                                  is often done at 6 to 12 months
                                                                                  of age.
                                                                             3. Sometimes two or more
                                                                                  surgeries are needed.
       D.    How well does the surgery                                 D.    Before and after surgery
             work? Hand out the                                              1. Before surgery, both children
             pictures, Before and after                                           had a cleft lip.
             surgery. What do you                                            2. The surgery repaired the cleft
             notice?                                                              lip.
                                                                             3. The scar becomes less
                                                                                  obvious over time.
                                                                             4. Later on, the scar is not very
                                                                                  noticeable.
       E.    What other treatment may                                  E.    Other treatment
             these children need after                                       1. They may still have speech
             their surgery?                                                       problems.
                                                                             2. They may still have ear
                                                                                  problems and difficulty
                                                                                  hearing.
                                                                             3. So they may need speech
                                                                                  therapy.
                                                                             4. They may need hearing tests.

IV.    Conclusion                                    5”         IV.    Conclusion
       Discuss in large group.
       A. How can you work with a                                      A.    Working with the parents
            family that has a child with                                     1. Support and encourage the
            a cleft lip or cleft palate?                                         parents.
                                                                             2. Share with them about God’s
                                                                                 view of children with
                                                                                 disabilities.
                                                                             3. Reassure that the cleft lip or
                                                                                 cleft palate can be treated.
                                                                             4. Give advice on feeding the
                                                                                 child.
                                                                             5. Help the parents to find
                                                                                 medical care.
                                                                             6. Encourage them to get hearing
                                                                                 tests and speech therapy.
                                                                             7. Be available to help when
                                                                                 needed.
References:

Hesperian Foundation. 2009. Disabled Village Children. Available from
http://www.hesperian.info/assets/DVC/DVC_Ch12.pdf

Merck Manuals. 2010. Birth defects. Available from http://www.merck.com/mmhe/sec23/ch265/ch265a.html

Wikipedia. 2010. Cleft lip and palate. Available from http://en.wikipedia.org/wiki/Cleft_lip_and_palate.

                      .
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                                      CLEFT LIP AND CLEFT PALATE

METHOD                                             TIME        KNOWLEDGE


      ATTITUDE:       Children with a cleft lip or cleft palate can be treated with surgery.


           SKILL:     Participants will be able to use pictures to describe a cleft lip and cleft palate, and
                      can use pictures to show how effective surgery is.

    EVALUATION:       Are the participants able to teach their neighbors about cleft lip and cleft palate?


     MATERIALS:       -Newsprint, markers, masking tape
                      -Cleft lip and cleft palate handout, with Feeding a baby with cleft lip or cleft palate
                      -Before and after surgery handout
This lesson is used in: Disabilities, and in Health Promotion/ Children’s Health
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             CLEFT LIP AND CLEFT PALATE




           Child with a Cleft Lip and Cleft Palate
                                                            Source: Wikipedia, 2010.




                 Cleft Lip and Cleft Palate


    FEEDING A BABY WITH CLEFT LIP OR CLEFT PALATE




                        Source: Hesperian Foundation. 2009. Disabled Village Children
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                          BEFORE AND AFTER SURGERY

                             Pictures of two children




                             One month after surgery    At 18 months of age
      Before surgery




      Before surgery         One month after surgery     At 5 years of age



                                                           Source: Wikipedia, 2010.


What do you see here?

What happens over time?

				
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