Document Sample
Monday_Morning_Memo_July_09_2007 Powered By Docstoc
					                                              Monday Morning Memo
                                                  July 09, 2007
                                                      (916) 552-6619
             Gov Schwarzenegger declared May 2007 Drowning Prevention Month
                      please remember to be water safe all Summer
“Approximately 661 survivors of these accidents (near drowning) now receive lifetime services through the state Department
                           of Developmental Services’ regional and developmental centers.”

                                                Week in Review
The Monday Morning Memo is provided free to all advocates but we have a $25 voluntary subscription fee which includes an
  annual membership to The Arc of California and The Arc of the United States. Call or visit our MMM webpage to learn

Monday July 2, 2007
The first welcome message from our newly elected president Pat Heineke,
       “Hello! My name is Pat Heineke. I am the new President of The Arc of California. I'd like to tell you a
        little about myself.

        I first became aware of the Arc in my local area when a friend asked me about fourteen years ago to
        stand in for her on the Human Resources Committee of the Arc for a few months. Since human
        resources is what I do in my career as the human resources director for the local school district, it seemed
        like a natural fit.

        Those few months extended into several months, and a short time later, into a seat on the Board of Arc of
        Southeast Los Angeles County. My involvement with this local Arc continues to this day, and has
        included serving in various Board offices, including President.

        Approximately ten years ago I became the representative from Arc of Southeast Los Angeles County to
        the Governing Board of The Arc of California. I have seen the Arc of California experience and overcome
        challenges over the years, and am delighted to see the changes that have been made which I
        believe enhance the services provided by The Arc of California. I see a bright future for this organization,
        thanks to the hard work of so many dedicated volunteers and staff.

        With the superb leadership of Past President Shirley Dove, and Executive Director, Tony Anderson,
        The Arc of California is meeting needs of the people we serve in new and exciting ways.

        Two examples are the Partners in Policymaking and the College of Direct Support.

        The Partners in Policymaking program, has experienced outstanding participation by its first group of 40
        participants. These individuals are enthusiastically mastering advocacy concepts and are already putting
        their learning to work by advocating on a local level.

        The College of Direct Support (CDS) is a training program for direct support professionals which is being
        implemented at locations throughout the state of California. An educational program that already exists in
        other states, the CDS in California is fulfilling a need to have a workforce of individuals providing direct
        support which is well-trained and able to provide the best possible care for people included in their

                                                                                                Monday Morning Memo
                                                                                                   The Arc of California
                                                                                               July 9, 2007, page 1 of 16
                                                                                       Tony Anderson, Executive Director
      Of tremendous importance, of course, is the work of our Executive Director, Tony Anderson, in educating
      the Legislators on the wants and needs of the persons we serve. Along side Tony are many active
      members of Arcs throughout the State, volunteers and local Executive Directors, who are working to
      educate the Legislators in their area as to the interests of our constituents on importance pieces of
      legislation, with protection of the provisions of the Lanterman Act always a primary goal.

      Vital to the success of The Arc of California are the local chapter Executive Directors. But also important
      are the members of each local Arc and the representatives to The Arc of California Governing Board. I
      look forward to meeting you and discussing how The Arc of California can be of service to you.

      I encourage all Board members and Chapter representatives to join me at our Board meeting July 13/14
      (Friday, July 13 from 7 pm to 9 pm; Saturday, July 14 from 9 am - 3 pm) in Irvine at the Hilton at John
      Wayne Airport [18800 MacArthur Blvd., Irvine 92612 - (949) 833-9999].

      Each local chapter deserves to have representation at these meetings. Be sure your chapter has a voice
      in the future of The Arc of California.

      Pat Heineke, President, The Arc of California”

Tuesday July 3, 2007
MEETING CANCELLED: The Elections Advisory Committee will be meeting at 11:30 a.m.
(EDT) by webcast at: The EAC assists in the administration of federal
elections. The agenda calls for the Committee to review, discuss, and approve a final draft of
recommendations for voluntary voting system guidelines. For more information, contact Allan
Eustis at 301-975-5099 or at For more information about EAC and the
guidelines, go to:

The Assembly Health Committee, chaired by Merv Dymally, will meet at 1:30 PM in room
4202. The committee passed SB 32 (Darrell Steinberg) Health care coverage of children
from our bill file and re-referred to Appropriations.

The Assembly Public Safety Committee, chaired by Jose Solorio, will meet at 9 AM in room
126. The committee passed SB 153 (Carole Migden) Victim services from our bill file and re-
referred to Appropriations.

Wednesday July 4, 2007 – Holiday; Independence Day!

Thursday July 5, 2007
I worked with our new Treasurer, Peter Bowers, throughout the day to complete the projected
budget for the association for the new budget year starting July 1, 2007. We’ll see if we can
get our budget done before the state gets its budget done (not really a fair comparison given
our budget is less than a million dollars).

Friday July 6, 2007
We completed budget work and reports for the upcoming board of directors meeting next

                                           The Week Ahead
Monday July 9, 2007

                                                                                          Monday Morning Memo
                                                                                             The Arc of California
                                                                                         July 9, 2007, page 2 of 16
                                                                                 Tony Anderson, Executive Director
The Senate Appropriations committee, chaired by Tom Torlakson, will meet at 10 AM in room
4203. The committee will hear the following from our bill file: AB 182 (Ma) In-home supportive
services: provision of training for providers and recipients. AB 238 (Beall) In-home supportive
services: reading services for blind and visually impaired recipients. AB 423 (Beall) Health
care coverage: mental health services. AB 1410 (Feuer) Traumatic brain injury.

The Supported Life Planning Team will be meeting from 2 PM to 4 PM in Sacramento to
discuss keynote speakers for 2008, review our evaluation process, and engage in a discussion
on session selection criteria in the context of best practices and the principles of Supported

The Clean Air Scientific Advisory Committee (CASAC) Lead Review Panel will be meeting
from 7/9 and 7/10/07 at 1:00 PM at the Marriott at Research Triangle Park, 4700 Guardian
Drive, Durham, NC. CASAC advises EPA on the development of its Lead Renovation, Repair,
and Painting (LRRP) activities including producing guidance documents and proposed rules.
During this meeting, CASAC is scheduled to review EPA’s documents entitled, Draft Approach
for Estimating Changes in Children’s IQ from Lead Dust Generated During Renovation,
Repair, and Painting in Residences and Child-Occupied Facilities (June 2007) and the Draft
Final Report on Characterization of Dust Lead Levels After Renovation, Repair, and Painting
Activities (January 2007). These documents are available
at: Oral and written statements will be accepted from
the public. For more information about the meeting or to arrange to submit a statement,
contact Fred Butterfield at 202-343-9994 or at

Tuesday July 10, 2007
The Assembly Judiciary committee, chaired by Assemblymember Dave Jones, will be meeting
at 9 AM in room 4202. The committee will hear SB 164 (Migden) Prenatal screening from our
bill file.

The American Association on Intellectual and Developmental Disabilities Environmental Health
Initiative will be conducting a teleconference, “Detecting the Impact of Ethanol on the Fetus
and Understanding its Underlying Mechanism” with Cynthia F. Bearer, MD, PhD. This lecture
will present new evidence that ethanol impairs brain development by interfering with how
proteins move in the cell, and offers a technique for identifying infants who’ve been exposed to
ethanol in utero. The teleconference will start at 11 AM (PST) and last about an hour. It is a
free event by AAIDD, sponsored by Merck, and participants are encouraged to dial in early:
Moderator: Laura Abulafia, MHS, Dial-in Number: 1.800.868.1837 Pass Code: 886-63-873 #,
MATERIAL: Go to the Initiative website at and click on the button that
says next teleconference. There you will find the announcement with logistical information and
the presentation under “materials” to down load or follow along on your computer.

The Senate Human Services committee, chaired by Senator Elaine Alquist, will be meeting at
1:30 PM in room 3191. The committee will hear the following from our bill file: AB 1184
(Lieber) Closure of Agnews Developmental Center: advisory task force. AB 1526 (Lieber)
Housing for elderly or disabled persons.

The Senate Judiciary Committee, chaired by Senator Ellen Corbett, will be meeting at 1:30
PM in room 4203. The committee will hear the following from our bill file: AB 18 (Blakeslee)
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                             July 9, 2007, page 3 of 16
                                                                     Tony Anderson, Executive Director
Disabled persons: signature stamps. AB 34 (Portantino) Umbilical Cord Blood Collection
Program. AB 1192 (Evans) Developmental services: consumer abuse registry. AB 1687
(Brownley) Confidential information.

The Senate Judiciary Committee (Short Cause), chaired by Ellen Corbett, will be meeting
from 8 AM a.m. to 8:50 AM in room 4203. The committee will hear the following from our bill
file: AB 910 (Karnette) Disabled persons: support and health care coverage. AB 1402
(Evans) Individual program plan meetings: recordation: appeals procedure information.

Wednesday July 11, 2007
The 2007 ASA National Conference: “Together A Brighter Tomorrow,” in Phoenix, AZ. We are
looking forward to yet another great ASA National Conference. Don't forget to register for this
conference TODAY! Visit for more information. The
conference hotel, the Westin Kierland Resort & Spa has sold out. Currently, there is a waiting
list. If you are looking for hotel accommodations please consider calling the overflow hotel,
North Scottsdale Courtyard by Marriott. Let them know you are attending the 2007 ASA
National Conference at the Westin Kierland to secure the conference rate.

The Assembly Appropriations Committee, chair by Assemblymember Mark Leno, will be
meeting at 9 AM in room 4202. The committee will hear SB 119 (Cedillo) Medi-Cal: minors:
drug and alcohol treatment.

The Partners in Policymaking Collaboration will be meeting in preparation of the next session
and to review proposals for implementing year two.

The Assembly Education Committee, chaired by Assemblymember Gene Mullin, will be
meeting at 1:30 PM in room 126. The committee will hear the following from our bil file: SB
155 (Maldonado) Instructional programs: Online Classroom Program. (SUSPENSE) SB 21
(Torlakson) Education: The Regional Education and Economic Integration Initiative.

The Assembly Governmental Organization Committee, chaired by Assemblymember Alberto
Torrico, will be meeting at 1:30 PM in room 437. The committee will hear SB 7 (Oropeza)
Smoking in vehicles with minor passengers from our bill file.

Thursday July 12, 2007
The Mental Health Developmental Disabilities Collaborative of the Association of Regional
Centers and the Mental Health Directors Association will be meeting in Sacramento from 10
AM to 2 PM. The meeting is co-chaired by Joan Hoss, MHDA & Carlos Flores, ARCA
Executive Director of San Diego Regional Center. The collaborative will hear reports by
consultants, Beth Robey and Dave Riester, and review activities since last meeting, Jail
Surveys, Materials on Different Types of Licensed Facilities, and a follow-up on Letter From
San Francisco Jail Medical Staff. The collaborative will also discuss the latest progress on the
discussion regarding MHSA, State DMH Designation of Dually Diagnosed as a Special
Population, and we’ll have a possible presentation on the Oversight and Accountability
Commission and a closing review of the topic “Automatic Eligibility Denial by Regional Centers
of Persons Receiving MH Services: Does it Happen? by David Riester.

Friday July 13, 2007 – Saturday July 14, 2007
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                             July 9, 2007, page 4 of 16
                                                                     Tony Anderson, Executive Director
The California Conference of Executives of The Arc will be meeting from 10 AM to 4 PM at the
Hilton in Irvine, Orange County. The CCE will discuss a variety of bills from our bill file and of
particular interest will be AB 1427 a bill CCE recommended for strong opposition (though the
board did not follow this recommendation). CCE will discuss budget update, strategic
planning, social marketing, college of direct support, and other topics impacting the
implementation of services for people with intellectual and developmental disabilities.

The Arc of California Board of Directors will be holding their quarterly meeting, the first meeting
with the new officers, from 7 PM Friday July 13th – 4 PM Saturday July 14th at the Hilton
Irvine/Orange County (John Wayne Airport) 18800 MacArthur Blvd Irvine, CA 92612 (949)
833-9999. On Friday the board will discuss public policy issues from the bill file, budget
outcomes, and national resources – the staff report will include Jordan Lindsey for the first
time since coming on board at The Arc of CA. On Saturday the meeting will feature special
guest presentations by Leslie Morrison, MS, RN, Esq., PAI Director of Investigations on the
recently released report, “Restraint & Seclusion in California Schools.” Elbert Johns of The
ArcLink will provide the board and executives an overview by webinar of the new resource
called, “Roommates” which can be used to help people with developmental disabilities locate
roommates to maintain their community living arrangements. The roommates tool was first
developed to help Hurricane Katrina and Rita victims locate housing options throughout the
nation. The board meeting will also include a review of our upcoming conferences and
convention and various project and committee reports.

                                                  Action Alerts1
The Arc of California
I can not figure out why a parent organization would agree to endorse any procedure that
would delay justice for people with intellectual and developmental disabilities for one second.
When we finally get authorities to take an allegation of crime, abuse, and/or injustice,
especially on a systemic level against our constituents seriously, nothing should get in the way
of an investigation and legal action regardless of where the victim lives. The “Broken
Homes” articles in the East Bay newspapers and the article listed below in this week’s MMM
News Section “Neglect Found In Eight DMR Deaths” speak to the need for a systemic rapid
response. Please oppose H.R. 2839, legislation introduced by Representative Barney Frank
(D-MA), that would amend the Developmental Disabilities Assistance and Bill of Rights Act (DD
Act) by requiring Protection and Advocacy systems (P & As) to give notice to, and obtain the
authorization of, an individual or the individual’s legal representative, before pursuing any legal
remedy on the individual’s behalf. A legal representative might be a guardian, conservator or
other legal representative. The bill was introduced at the request of VOR (Voice of the
Retarded), an organization known for supporting institutional over community living for adults
with developmental disabilities. VOR contends that state P & A agencies “repeatedly bring
class action lawsuits” against state institutions leading to the downsizing and closure of
intermediate care facilities for persons with mental retardation (ICFs/MR), and “displacing
thousands of severely disabled, medically-fragile people from their long-term homes, often at
great peril.” Find the bill at and find out more about VOR’s position at The Arc and UCP, along with other developmental disabilities groups, will

 To access the Action Alert system from The Arc of California website ( enter your zip code in the
“Contact Congress” federal box.
                                                                                                  Monday Morning Memo
                                                                                                     The Arc of California
                                                                                                 July 9, 2007, page 5 of 16
                                                                                       Tony Anderson, Executive Director
oppose this bill as it places further hurdles to P & As in their effort to protect the rights of
individuals living in institutions. Remember, justice delayed is justice denied.

The Arc of the U.S.
Urge your Senators to Bring the Genetic Information Nondiscrimination Act (GINA) to a Vote
There are currently over 1,200 genetic tests that can be used to diagnose thousands of health
conditions and disabilities and the number is growing rapidly. Genetic information is
invaluable. It provides a key to the makeup of the human body that can be used to manage
health. However, genetic information can also be misused. Its misuse can put people at risk
for discrimination by insurance companies who might use genetic information to determine
eligibility or set premiums, or by employers who might use the information to make hiring or
promotion decisions or to determine a person’s eligibility for training programs. Cases of
genetic discrimination have already been documented in the United States. Many cases are
documented in a report located at:

                          From the Self-Advocacy Movement…
The theme of the next Star Magazine is, “What I Learned at the 2007 PFCA Statewide
Convention.” We want to know what you learned about microenterprising, self-advocacy,
relationships, disaster preparedness, or other issues that you learned about at the convention.
Or tell us what you liked aout the convention. Was this your first time? Or what was new for
you if you’ve been before? Write a story and send us a picture too. Send your story to: PFCA,
1225 8th Street, Suite 210, Sacramento, CA 95814 or email at: . - Still
Current -

                                     Project Status Report
Partners in Policymaking
By Jordan Lindsey (funded by the State Council on Developmental Disabilities (SCDD))
The Partners participants have been following up on last session's topic by beginning to
formulate a common vision of what a desirable future looks like for the community of
developmental disabilities. The Partners ListServe has been the main forum for these
stimulating conversations, hear what a few of the Partners are saying:

"Our leaders always say that they represent the people. It is of the utmost urgency that when
our country and state crying broke, that our leaders come up with a way to allow people with
disabilities to have assets and have a real chance in becoming a part of the middle and upper
class of American Society." --Nick Feldman

"My vision for the year for our PIPCA group is to be able to have ALL OF OUR VOICES BE
HEARD as a physically challenged population, and be known to GOVERNMENT AND STATE
OFFICIALS that we are NOT going to be pushed aside any longer." --Karen Ketterling

"I wish for people to be real nice, real nice to everybody, black, yellow, green, different kind of

                                                                                   Monday Morning Memo
                                                                                      The Arc of California
                                                                                  July 9, 2007, page 6 of 16
                                                                          Tony Anderson, Executive Director
people. [I want] in 2020 that on the bus they'll let people with disabilities and old people sit
down. And they won't call people names anymore. Now in Sacramento at Partners in
Policymaking I want to do that for somebody else. That's all me say for now." --Bill Johnson

As the vision takes shape we will continue to train the participants on the issues involved in the
disability community and then get heavier into providing training specifically for advocacy
tools. This upcoming session will focus on supported living and employment and we will end
with information on how to speak and find access to public officials

California College of Direct Support
By Sack Keophimane (funded by SCDD)
We gave presentations on the College of Direct Support to the Managers of the Golden Gate
Regional Center and Harbor Regional Center. We highlighted the project and discussed how
we can work together and get the pilot started. The leadership team of GGRC and HRC were
supportive of the workforce initiative and will be looking forward to participating in the CDS
pilot. We also gave a presentation to the Executive Director, Claudia Bolton, of the North Star
Services. Claudia was interested in the CDS as a training tool to enhance her staff
development. We also continued to reach out to the regional centers that have indicated an
interest in the pilot project and working together with their representatives to set up a time and
date to meet and discuss the project.

The following centers are still working with us to design their local implementation:
Redwood Coast Regional Center, Golden Gate Regional Center, Valley Mountain Regional
Center, Kern County Regional Center, Tri-Counties Regional Center, Far Northern Regional
Center, Regional Center of East Bay, San Andreas Regional Center, and North Los Angeles
Regional Center, East Los Angeles Regional Center, and San Gabriel/Pomona Regional

Regional Centers in current live implementation: (1) North Bay Regional Center, (2)
Central Valley Regional Center, (3) Westside Regional Center, (4) Alta CA Regional Center,
(5) Lanterman Regional Center (6) San Andreas Regional Center.

Upcoming Meetings:
1. Inalliance 7/11/07

                                      Upcoming Events
July 24, 2007
Deadline for the request for comments on proposed revisions to the Medicare Program’s
Medicare Advantage and Part D Prescription Drug contract provisions. Based on provisions in
the Medicare Prescription Drug, Improvement, and Modernization Act of 2003, the former
Medicare + Choice program became the Medicare Advantage Program and the Part D drug
program came into being. CMS is trying now to clarify provisions related to contract
determinations for Medicare Advantage organizations (those organizations that provide health
plan options under Medicare, including drug coverage) and Part D prescription drug plan
sponsors (stand-alone plans). Some of the clarifications would eliminate the reconsideration
process for review of contract determinations, revise the provisions regarding the appeals
                                                                               Monday Morning Memo
                                                                                  The Arc of California
                                                                              July 9, 2007, page 7 of 16
                                                                      Tony Anderson, Executive Director
process, make clear the civil money penalties, and enhance beneficiary protections when a
plan is terminated. See the document at:

July 24, 2007
Deadline for the request for comments on proposed technical changes and clarifications to the
Medicare Prescription Drug Benefit. The prescription drug benefit is authorized in the Medicare
Prescription Drug, Improvement, and Modernization Act of 2003. Some of the clarifications
address Part D sponsors providing access to home infusion pharmacies and timely delivery,
providing access to network long-term care pharmacies, and a refined definition of what may
be included in calculations of beneficiary cost sharing by Part D sponsors. See the document

August 2nd – 5th 2007
The National Conference of Executives of The Arc Summer Leadership training will be in
Alaska this year and will feature workshops by Carrot Culture on the ideas outlined in the book,
The Carrot Principle, How the best managers use recognition to engage their people, retain
talent, and accelerate performance. To view more information on the Carrot Principle visit their
site at:

October 3rd – 5th 2007
The 21st Annual Supported Life Conference in Sacramento, CA. This year’s conference will
feature keynote speakers: Al Condeluci, UCP of Pittsburgh, Pennsylvania - Nationally-known
advocate and catalyst for building community: Sue Rubin, Self-Advocate, Whittier, California -
Wrote the 2004 Academy Award Nominated documentary “Autism is a World”: Joanne Knapp-
Philo, CIHS, Sonoma State Univ., California - Director of National Head Start Family Literacy
Center; new 2006 book “Language to Read the World.” For more information on this
upcoming conference visit the website at:

October 7th – 9th 2007
The 2007 National Association of Councils on Developmental Disabilities National Conference
will be in San Diego this year, at the Marriott in Mission Valley. The Conference is hosted by
the California State Council on Developmental Disabilities and the Title of the Conference is
“Sailing Together into the Future.” For more information on Registration and the Conference,
please contact the SCDD at 322-8481, or email

October 11th - 13th, 2007 (October 10th topical conference for NCE)
The Arc's 56th Annual National Convention at the Hyatt Regency Dallas, 300 Reunion
Boulevard, Dallas, Texas, USA 75207 (214) 651-1234 Click here for Exhibitor Information.
Click here for information on The Arc's 2007 Awards. (All nominations are due by June 15,
2007). The 2007 Convention will include: The Arc’s National Board of Directors Meeting, NCE
President’s Reception & Awards Dinner, Exhibit Hall, Workshop sessions for Family,
Leadership, and Advocacy tracks, What’s Happening in Washington?, Research & Prevention
Luncheon, the President’s Horizon Club Reception, and even a scheduled trip to the Texas
State Fair!
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                             July 9, 2007, page 8 of 16
                                                                     Tony Anderson, Executive Director
October 29, 2007
Save the Date: The Association of Regional Center Agencies will be hosting a conference on
End of Life Compassionate Care for people with developmental disabilities in Sacramento.
The conference planning committee consists of members of the Coalition for Compassionate
Care Developmental Disabilities Task Force, ARCA, The Arc of CA, and the Dept of
Developmental Services.

                             Recently Released Reports, Studies, etc.
Nonprofit Governance in the United States: Findings on Performance and
Accountability by Francie Ostrower, Urban Institute June 25, 2007. “Nonprofit boards are
increasingly a focus of those interested in greater accountability and transparency, including policymakers, media, and the
public. To help inform current policy debates and initiatives to strengthen nonprofit governance, in 2005 the Urban Institute
conducted the first ever national representative survey of nonprofit governance, with over 5,100 participants. This report
presents survey findings, discussing: relationships between public policy and governance, factors that promote or impede
boards' performance of basic stewardship responsibilities, board composition and factors associated with board diversity,
and recruitment processes, including the difficulty experienced by many nonprofits in finding members.”

Recommended Books About the Disability Experience by Nancy Weiss, Co-director, The
National Leadership Consortium on Developmental Disabilities, and Lisa Fong, Graduate
Assistant, Center for Disabilities Studies Center for Disabilities Studies, College of Human
Services, Education & Public Policy, University of Delaware. “The original intention of the following list
of recommended books was to provide students in a disability studies class with a list of resources that could give an
“insider’s view” of a disability experience from various approaches, perspectives, and types of disability. Many people
graciously contributed books that have illuminated the disability experience for them, books that have informed them of the
injustices that have occurred – and continue to occur – toward people with disabilities, or books that have reflected their
own experiences. This list, however, is not – and may never be – fully complete. If you have favorite memoir-style books that
you think should be included, please forward us information about the book. This list includes months of good reads...we
hope you will enjoy exploring these books and getting a more personal understandings of people's many different disability
experiences. These books are divided into the following sections: The first section presents books written by people with
disabilities or by family members. Most are memoir-style accounts. They convey the experience of disability through first
person accounts. Some are collections of essays and other writings by people with disabilities. Following this list are some
additional recommendations which include fiction, non-fiction, books for children, and films. Several of the following
suggested books are from the Disability Studies: Information and Resources List edited and compiled by Taylor, Shoultz, and
Walker (2003), with contributions from Jagdish Chander, Beth Ferri, Perri Harris, Lori Lewin, Michael Schwartz, Zach
Rosetti, Julia White, and Rachael Zubal-Ruggieri, for the National Resource Center on Supported Living and Choice, Center
on Human Policy, School of Education, Syracuse University. Unless otherwise noted, the list of films and their synopses are
from the Disabilities Studies list (Taylor, Shoultz, and Walker, 2003), as well. For more information on the Syracuse
University Disability Studies list, please visit: For larger lists of
documentaries, including major motion pictures, two sources are the UC Berkeley Media Resources Center lists about the
disability experience ( or Films Involving Disabilities

                                                    News Articles
Neglect Found In Eight DMR Deaths
By Colin Poitras
Courant (Connecticut) July 6, 2007
Problems with supervision and a lack of proper nursing care in nursing homes and group homes
contributed to the deaths of eight Department of Mental Retardation clients in 2005 and 2006, according
to a report released Thursday. The annual report by the Fatality Review Board for Persons with
                                                                                                     Monday Morning Memo
                                                                                                        The Arc of California
                                                                                                    July 9, 2007, page 9 of 16
                                                                                            Tony Anderson, Executive Director
Disabilities showed that three individuals who were supposed to be closely monitored died from either
choking on food or eating inedible items; four received delayed medical care for serious medical
problems and a fifth received inadequate care in a nursing home for her general disabilities. The report
looked at 202 deaths of DMR clients between July 1, 2005, and June 30, 2006. Most of the deaths were
due to natural causes such as heart disease, respiratory problems, cancer or pneumonia. But 12 of the
cases had questionable circumstances that warranted further review. Of the 10 investigations that were
completed, neglect was found in eight of the cases, the report said. Two cases remain under

"People with mental retardation continue to receive poor care in nursing homes, and the absence of clear
expectations regarding nursing support services in residential and other support programs continues to
contribute to confusion and delays," the report said. The fatality review board is composed of staff from
the state Office of Protection and Advocacy for Persons with Disabilities, a forensic science specialist
from law enforcement, a representative of the chief state's attorney's office, a professional from the
mental retardation field, two doctors and an official from DMR. The report recommended that DMR
clarify nurses' roles and improve communications and coordination between health care agents and
group homes…Supervision, communication and training are critical in caring for developmentally
disabled individuals, said Lynn Warner, executive director of The Arc of Connecticut, the state's largest
advocacy organization for developmentally disabled persons. "Some of these individuals are non-verbal
or non-communicative," Warner said. "The way they present their concerns are very different from you
and I." "It's always a tragedy when people die under circumstances that are preventable," Warner said.
"Nursing and proper training of staff has been an ongoing problem. I hope that DMR looks at this report
and sees this as a top priority.",0,3275836.story

Walgreens' welcoming workplace
Charlotte, NC Fri, Jun. 15, 2007
By Jim Duplessis
Walgreens opened a mammoth warehouse off Interstate 85 in Anderson County packed with advanced
packing machinery that allows the company to employ more than 100 workers with mental disabilities.
This is thought to be the largest concentration of such workers at an S.C. business. Walgreens' pay and
work structure for the disabled is considered rare among businesses, experts said. The workers with
autism and other mental disabilities will work side by side with those without such disabilities.
Typically, disabled employees are isolated from other workers. And Walgreens will pay all employees
doing the same task the same wages -- at least $12 per hour plus benefits. Typically, disabled workers
earn just above minimum wage. The warehouse, about 30 miles southwest of Greenville, S.C., took
more than three years and $175 million to build. It employs 275 workers and expects to have 800 by
2010. The 670,000-square-foot distribution center was the brainchild of Randy Lewis, the Deerfield,
Ill., company's senior vice president in charge of building and running warehouses to keep up with the
drugstore chain's rapid expansion. He's also the father of an autistic child.

The plant's workers use computers with symbols on touch-screens to fill orders. Special machinery
follows their instructions, picking merchandise from shelves up to 10 stories high and sending it along
11 miles of conveyor belts to be shipped to Walgreens stores in the Southeast. Walgreens stunned
Anderson County officials in 2003 when it said its goal was to have at least 30 percent of the warehouse
work force be people with physical or mental disabilities. The S.C. Department of Vocational
Rehabilitation set up a center at its Anderson office to train disabled candidates to work at the
Walgreens warehouse, said Robert Oppermann, the agency's director of field operations in Columbia.
                                                                                     Monday Morning Memo
                                                                                        The Arc of California
                                                                                  July 9, 2007, page 10 of 16
                                                                           Tony Anderson, Executive Director
About 40 percent of the warehouse's employees have disabilities. "They have been better than their
word," Oppermann said. Most of the workers are drawn from Anderson and neighboring counties. A
few families have moved to the area from as far away as Tennessee so a disabled adult could work for
Walgreens. To help get employees to the job from outlying counties, the S.C. General Assembly
provided $168,000 to the Anderson County Disabilities and Special Needs Board to buy four 15-
passenger buses. It is also providing $40,000 a year to pay for two drivers, and the Anderson agency is
providing funding for two other drivers, said Dale Thompson, the board's executive director. Click here
to view the “YouTube” video: and for more information about Walgreen’s outreach to the disability
community click here:

Possible state cuts won't hurt county care program
Amador Ledger Dispatch June 29, 2007
By Jenifer Gee
…Early in the year, Gov. Arnold Schwarzenegger proposed to limit the state's participation in caregiver
wages at $11.10 per hour. County Social Services Director Jacqulene Steele said she does not anticipate
the governor instituting the limit this year, but that will not be final until the budget is signed, which is
anticipated but not confirmed to happen July 1. The $11.10 figure includes the hourly wage provided to
the caregiver plus the cost of health benefits and the administrative overhead, according to Susan
Schaller, director of In-Home Supportive Services public authority of Amador County. The county
currently offers $8.25 per hour to its caregivers, which will increase to $8.50 an hour Aug. 1 per an
agreement between the county and the caregivers' union, Service Employees International Union United
Healthcare Workers West. In addition, the public authority is responsible for paying 60 cents per hour
to help cover health benefits for caregivers who work more than 70 hours a month for two consecutive
months, according to Steele. The proposed state participation cap still allows Amador County to remain
unaffected and, according to a spokesperson for the state Department of Social Services Shirley
Washington, shouldn't affect programs statewide. "It doesn't reduce any wages or benefits to any IHSS
workers and it will not significantly impact program recipients," Washington said. Regardless of a cap
or limit, the county provides the service to everyone who applies and is eligible, Steele said.

…When the union entered the picture about two years ago, Flint said, caregiver's wages raised from
$6.95 per hour to $8 per hour with a 25 cent increase each year for the length of the contract. The next
increase will be the $8.50 to take effect in August. The deal also came with the health benefits, which
for Flint, who is single and lives with roommates in her Jackson home, was a "wonderful thing." The
raise and the health benefits are a big help, but Flint said she still struggles with gas prices, which are not
covered by the IHSS program. She works four days a week, about 32 to 35 hours each week handling
about four clients. "I'm in and out of my car 15 times a day," Flint said. "Unfortunately, the burden does
fall on the caregiver," Schaller said. "Nobody has figured out how to get around it yet. I don't know ever
in the future whether or not IHSS will cover such an expense or not. It would be difficult to
administrate." To keep gas costs down, Flint limits the areas she drives to for clients. She doesn't drive
past Pine Grove or Sutter Creek and Ione is off limits. Her six-cylinder Dodge Shadow convertible
requires a $25 to $30 fill up every two weeks, which is something she can manage for now. Flint was
part of the negotiating team that garnered the raise for caregivers two years ago and said the union is
tentatively set to renegotiate a new contract next June. But with tighter monetary options for the public
authority, she wonders what, if any, increase caregivers will be able to receive. As for the job itself,
Flint said she returned to caregiving because "this job makes me feel self-satisfied. I'm helping
somebody that needs my help."…

                                                                                         Monday Morning Memo
                                                                                            The Arc of California
                                                                                      July 9, 2007, page 11 of 16
                                                                               Tony Anderson, Executive Director
Easter Seals Arc launches new Web site
Business Weekly (Indiana) July 5, 2007
Easter Seals Arc of Northeast Indiana recently launched its new interactive employment-services Web
site. Use of the site is free and available to people with disabilities who are looking for employment, and
area employers who are looking for qualified men and women. The new site,, allows job-seeking candidates to obtain a username and password, post a
resume, view open positions and apply online. Employers also can obtain a username and password to
view posted resumes or post an available job opening. Security measures only allow site access to job-
seekers enrolled through Easter Seals Arc's employment services department, but the site is open to all

To celebrate the launch of the Web site, Easter Seals Arc will host two special events at its 4919
Coldwater Road, Fort Wayne, location. Candidates who have a disability are invited to attend a "Hire
Potential" event between 8 a.m. and 5 p.m. July 18 to become more familiar with the employment
services department and to register to post their resumes on the Web site. Employers will have a similar
opportunity from 11 a.m. to 1 p.m. July 25. During the "Employer Extravaganza," employers will
become more familiar with the employment services department's offerings and be able to browse
resumes and post jobs. A business card will serve as admission for any employer.

Missing Child Found Thanks To Tracking Device
CBS News July 3, 2007
By Kris Pickel
(CBS13) ROSEVILLE, Calif. A local autistic child went missing recently but was finally found. It was
all thanks to a new tracking device used by cops. We hear these stories all the time, whether it's autism
or Alzheimer’s, there are certain groups of people prone to wandering away - sometimes with disastrous
results. Now, something no bigger than a piece of jewelry, can help bring them back home. Donald is
safe at home now, enjoying a movie with his five brothers and sisters. All are adopted and all are special
needs. Last Friday for no apparent reason, Donald decided to take off. When he disappears there's
reason to panic.

This wasn't Donald’s first foray out on his own. That's why Roseville police fitted him with a special
anklet that holds a tiny transmitter. This mobile tracking system is called project lifesaver. Roseville
police punched in Donald's personal frequency and followed the beeps. “If we hadn't had the tracker to
actually pin point his location we wound never found him,” says Ned Rosenbrook with the Roseville
Police Department. For a little boy, clever enough to make it past an alarm system and out into a big
world, the tiny piece of technology will hopefully always bring him back home. The Roseville police
department has had project life saver for about a year. They have 30 people in the program. Donald was
the first person they've ever actually tracked. The time he disappeared to the time he was back home was
less than 2 hours.

                                           Funding Opportunities
Administration for Children and Families:
Head Start Hispanic/Latino Service Partnerships and Head Start Tribally Controlled Land Grant College and University
These programs seek to increase the number of Head Start teaching staff with associate and baccalaureate degrees in early
childhood education in order to improve the quality and long-term effectiveness of education program services to children and
families of targeted populations.
                                                                                                   Monday Morning Memo
                                                                                                      The Arc of California
                                                                                                July 9, 2007, page 12 of 16
                                                                                         Tony Anderson, Executive Director
Environmental Protection Agency, Regions 9 and 10: Clean School Bus USA
This program seeks to minimize children's exposure to diesel exhaust by reducing pollution from school buses.

Environmental Protection Agency: Hazardous Waste Management Grant Program for Tribes
This program supports the development and implementation of hazardous waste programs and capacity building to address
hazardous waste mismanagement in Indian Country.

National Institutes of Health: Mentoring Programs to Diversify the Mental Health and Substance Abuse HIV/AIDS
Research Workforce through Innovative Educational Initiatives
This program supports the development of research mentoring programs for graduate students, postdoctoral fellows, and early
career faculty from under-represented groups to improve the capacity for high quality HIV research and to facilitate the
research career development of investigators in HIV/AIDS fields, particularly as they relate to mental health and substance

National Science Foundation: Engineering Education Programs
This program supports research that contributes to the basic understanding of how students learn engineering.

                          The Arc of the United States, in partnership with GrantStation, brings you the
                          GrantStation Insider each week. The GrantStation Insider provides you with the
                          latest information on new funding programs, upcoming grant deadlines,
                          conferences, trainings, and relevant information for grantseekers. The Arc of
                          California Monday Morning Memo includes a small clipping of resources from the
                          GrantStation Insider, visit their website to learn more:
Grants Target Tobacco Control Issues
Robert Wood Johnson Foundation: Tobacco Policy Change: A Collaborative for Healthier Communities and States
Tobacco Policy Change: A Collaborative for Healthier Communities and States, a national initiative of the Robert Wood
Johnson Foundation, provides resources for local, regional, and state-based organizations and tribal groups to advocate for
effective policies that decrease tobacco use and exposure. This initiative is issuing a special solicitation that will build on
previous success in attracting new partners whose constituencies are most directly affected by tobacco use and exposure.
Grantees are expected to apply their advocacy skills and experience to advance tobacco and other public health policies in
their communities. Organizations from Indian Country and the following states are eligible to apply: Alabama, Arizona, Florida,
Georgia, Indiana, Kentucky, Louisiana, Michigan, Mississippi, Missouri, North Carolina, Ohio, Oklahoma, South Carolina,
Tennessee, Texas, West Virginia, or Virginia. The application deadline for planning grants is September 14, 2007.
Implementation grant applications will be due March 14, 2008. Visit the website listed above for program details and online
application information.

Assistance Programs for Disabled Vets Supported
Disabled American Veterans Charitable Service Trust
The Disabled American Veterans Charitable Service Trust is dedicated to building better lives for our nation's disabled
veterans and their families. The Trust provides grants to nonprofit organizations located in the United States that offer physical
and psychological rehabilitation programs, meet the special needs of veterans with specific disabilities such as amputation and
blindness, or aid and shelter homeless veterans. The focus is on long-term service projects providing direct assistance to
disabled veterans and their families. Requests are reviewed quarterly; the next application deadline is August 1, 2007. Visit the
website listed above for more information.

Funds for Prison Reform
Open Society Institute U.S. Justice Fund: Sentencing & Incarceration Alternatives Project
The mission of the Sentencing & Incarceration Alternatives Project, a program of the Open Society Institutes U.S. Justice
Fund, is to reduce the scale of incarceration in the United States. The Alternatives Project encourages proposals that seek to
eliminate race and class disparities in sentencing and incarceration, reduce the length of criminal sentences and promote
judicial discretion in sentencing, promote alternatives to incarceration that emphasize rehabilitation and treatment, limit prison
growth and prison privatization, and empower communities most affected by mass incarceration to develop alternative policies
that address underlying social, racial, and economic inequality. Letters of inquiry are accepted on a rolling basis. Visit the
website listed above for program details and application guidelines.

Technology Awards for K-12 Schools
Best Buy Teach Awards
The Best Buy Teach Awards program supports schools and educators using technology to make learning fun. Awards are
provided to K-12 schools that have been using an interactive technology program in their classrooms for at least one full
school year. Up to 1,500 K-12 schools will be selected to receive $2,000 Best Buy gift cards. An additional 50 schools will be
                                                                                                        Monday Morning Memo
                                                                                                           The Arc of California
                                                                                                     July 9, 2007, page 13 of 16
                                                                                              Tony Anderson, Executive Director
awarded $10,000 Best Buy gift cards. From these winning schools, finalists will be identified and the school districts of these
finalists will have the opportunity to apply for one of eight $100,000 awards. All accredited public, private, parochial, and
nonprofit charter schools that are within 50 miles of a U.S. Best Buy store are eligible apply. Educators must apply between
July 1 and September 30, annually. Visit the website listed above for more information.

Grants for National Economic Literacy Programs
Calvin K. Kazanjian Economics Foundation
The Calvin K. Kazanjian Economics Foundation provides grants for projects with national impact that seek to increase
economic literacy throughout the United States. Support is provided for programs that raise the public's participation in
economic education and/or create a demand for greater economic literacy. In addition, the application of new strategies for
teaching economics, including online and web-based instruction, is of interest to the Foundation. Programs that help
disenfranchised youth and adults learn to participate in the economic system are also a priority. The next application deadline
is September 15, 2007. Visit the website listed above for application guidelines.

Innovative Visual Arts Programs Supported
The Andy Warhol Foundation for the Visual Arts
The Andy Warhol Foundation for the Visual Arts' objective is to foster innovative artistic expression by supporting cultural
organizations that, in turn, support artists and their work. The Foundation is focused primarily on supporting work of a
challenging and often experimental nature. Grants are made on a project basis to curatorial programs at museums, artists'
organizations, and other cultural institutions to originate innovative and scholarly presentations of contemporary visual arts.
Projects may include exhibitions, catalogues, and other organizational activities directly related to these programs. The
Foundation also supports efforts to strengthen areas that directly affect the context in which artists work -- such as freedom of
artistic expression and equitable access to resources. The next application deadline is September 1, 2007. Visit the website
listed above for more information.

To view additional funding opportunities on an ongoing basis visit the Funding News Section of the Quality Mall. The
Quality Mall is maintained by the Research and Training Center on Community Living at the University of Minnesota with
support from the National Association of State Directors of Developmental Disabilities Services, the Human Services
Research Institute and the Administration on Developmental Disabilities - U.S. Department of Health and Human Services.

                                                    Career Ladder
Position: Chief     Executive Officer, National Association of Councils on Developmental
Description: The Chief Executive Officer manages the programmatic and financial operations of the National
Association of Councils on Developmental Disabilities (NACDD) to accomplish the goals and objectives of the
Association as determined by the Member Councils. The Chief Executive Officer will demonstrate national
leadership and public policy experience in advocating with and on behalf of individuals with developmental
disabilities and their families using the values of inclusion and self-determination.
Salary: The NACDD offers an excellent salary and benefit package, which is comparable to other Associations
within its size and budget. NACDD encourages people with disabilities and people representing other minority
groups to apply. NACDD is an equal opportunity employer.
How To Apply: Submit a cover letter describing the reasons for interest in the position, a resume of relevant
experience, and contact information for 3 references via mail or e-mail to: CEO Search, National Association of
Councils on Developmental Disabilities, 225 Reinekers Lane, Suite 650B, Alexandria, VA 22314. Or: NACDD will not pay for travel expenses to the interview. Out of state interviews will be
conducted via telephone. NACDD will not pay for moving expenses for individuals needing to relocate.

Position: Community          Health Program Manager, University of California Davis MIND
Description:. Provide professional level program management to the Principal Investigator (Director) of the
University Center in Excellence for Developmental Disabilities (UCEDD), a statewide system that has been
established to provide training, technical assistance, service, research and information dissemination to people
with disabilities, family members, state and local government agencies and community resource programs.
Requirements: Master's Degree and extensive work experience in special education, developmental disabilities,
or related field. Demonstrated work experience in program administration and management. Experience
developing programs, writing grants, and developing/tracking budgets. Strong skills in leading teams and team
                                                                                                       Monday Morning Memo
                                                                                                          The Arc of California
                                                                                                    July 9, 2007, page 14 of 16
                                                                                             Tony Anderson, Executive Director
development experience. Demonstrated knowledge and experience working with individuals with disabilities,
family members, parent groups, state and community agencies, advocacy groups and service providers in the
area of developmental disabilities.
Salary: $51,516.00 - $87,576.00
How To Apply: Click on jobs on left column. Follow links to job to "View
Job Postings". Search for job using Reference #019613. For Information, Dr. Robin Hansen, Director 916-703-
0248, Ruth LeBlanc, Administrative Assistant 916-703-0235.

Position: Project Director - Tarjan Center at UCLA
Description:. Project Director: Open the Doors to College, Tarjan Center at UCLA (UCLA Job Classification:
Senior Administrative Analyst). This position serves as the primary Tarjan Center at UCLA staff for the
development, coordination and implementation of a newly funded initiative, Open the Doors to College. This
initiative will create opportunities for students with developmental disabilities in California to transition into post
secondary education (PSE). The Director will provide technical assistance; create a clearinghouse about PSE
opportunities in California; a tool kit for planning and implementing new PSE pilot programs; conduct informational
meetings, perform evaluation and administrative activities, and grant writing. The work includes performing
research and analysis of best and promising practices in PSE that can be integrated into project activities, and
reporting project outcomes; The Director will also develop content for the PSE Web site. This position requires
some travel. The Project Director will supervise and oversee all activities of the Program Representative. The
Project Director reports to the Director of the Tarjan Center.
Salary: $48,312.00 -$86,988.00 - 18 month grant funded position, renewable pending additional funding
How To Apply: Send Resume and Cover Letter Attention To: Olivia Raynor, Ph.D., Director ; or fax 310-794-1143 For more information about the Tarjan Center see

Position: Deputy     Director - Maryland Department of Health and Mental Hygiene,
Baltimore, MD
Description:. Reporting to the Director, Developmental Disabilities Administration this is executive management
and supervisory work within the Maryland Department of Health and Mental Hygiene (DHMH). With a budget of
over $740,000,000 annually, DDA provides a coordinated service delivery system, so that individuals with
developmental disabilities receive appropriate services. This is done through a combination of four state
residential centers and a wide array of community based services delivered primarily through a network of non-
profit providers. Services provided by DDA include; respite care, family support, residential support, individual
support, individual family care, children services, transitioning youth, day services, resource coordination,
behavioral support, community support living arrangements, supported employment, transportation, vocational
day programs, and workshops. Under the supervision of the Director, this position assists in and executes the
overall management, planning, and policy development of the Administration. This includes managing or assisting
in the management of day-to-day operations including fiscal and other administrative operations at headquarters
and the regional offices; developing & recommending policies for community services; evaluating and developing
legislation; representing the Administration at legislative hearings, high-level meetings, public presentations;
sanctions & penalties & conducting related hearings & case-resolution conferences; establishing standard
payment levels for services; planning & developing payment & procurement systems for community services; and
planning, developing & overseeing data systems for managing services, processing provider payments, and
submitting Medicaid claims.
Salary: $71,902 - $104,907yr (Negotiable); growth to $115,442yr. (Grade 25)
How To Apply: HOW TO APPLY: Please submit resume or state application form MS-100 to:
Mark Townend, Chief of Recruitment Department of Health and Mental Hygiene Office of Human Resources,
Room 114B 201 West Preston St. Baltimore, Maryland 21201.

Position: Director, Human Resources, The Arc of San Francisco
Description:. Manage The Arc’s personnel management system. Develop, enforce, and administer The Arc’s
human resources policies, practices, and procedures. Ensure compliance with all applicable statutes, regulations,
and legal requirements related to personnel, human resources, labor, and working conditions. Partner with senior
managers and service directors to develop and implement staff recruiting, retention, and recognition activates,
promote career development, and deliver training.
Salary: $65,000-$75,000

                                                                                               Monday Morning Memo
                                                                                                  The Arc of California
                                                                                            July 9, 2007, page 15 of 16
                                                                                     Tony Anderson, Executive Director
How To Apply: Submit resume, cover letter and salary requirements to: Lindsey Smallsreed, Executive
Assistant, The Arc of San Francisco, or fax: 415.255.9488.

Position: Self Advocacy Training Director Position, Texas Advocates
Description:. Texas Advocates seeks a person with intellectual and developmental disabilities for the Self
Advocacy Training Director Position to promote self advocacy and self determination to people with intellectual
and developmental disabilities across Texas. They must be committed to and be able to show how they have
implemented the ideas and concepts of self advocacy and self determination in their own life. They will have
experience providing interactive self advocacy training, assisting advocates to develop and implement person
directed plans, and supporting local self advocacy organizations. They will have skills in networking and
collaborating with a wide variety of community organizations, state leaders and decision-makers. They will have
good written and verbal communication and organizational skills. They will also have state level advocacy
experience. The Self Advocacy Training Director will be responsible for training and public comment. They will
assist in developing and conducting interactive self advocacy and self determination training for people with
intellectual and developmental disabilities and supporting the local coordinators in the San Antonio, Corpus
Christi, and the Rio Grande Valley areas. The Self Advocacy Training Director will represent the Texas
Advocates at public events, the legislature and state agency advisory boards and committees to present
information on the needs and goals of self advocates. They will be required to travel regularly to conduct training
at the local project sites as well as to other local, state and national workshops, conferences and meetings.
Salary: Salary not to exceed $30,000, excellent benefits
How To Apply: Email your resume to or fax to 512-454-4956.

                                                                                              Monday Morning Memo
                                                                                                 The Arc of California
                                                                                           July 9, 2007, page 16 of 16
                                                                                    Tony Anderson, Executive Director