NEWSLETTER FALL 2003 FLORIDA Vol. 1 No. 2 Someone to Stand by You GULF COAST CHAPTER A Tribute to Caregivers For National Caregivers’ Appreciation Month Most of you spend hours upon hours caring for your loved that many times friends and other family members don’t grasp or one with dementia. In fact, 70% of you care for your loved one acknowledge all that you do for your loved one with dementia. As with dementia in the home. You deal with the angry outbursts, the well as a month for giving thanks, November is National wandering, the repetition, and the confusion. You bathe, dress, Caregiver’s Appreciation Month and National Alzheimer’s and clean up after your loved one 24 hours a day, 7 days a week Awareness Month. We would like to take this opportunity to and do you ever get a thank you for all of your hard work? Not thank each one of you for your hard work and dedication to your usually. If they could thank you they would, but as Alzheimer’s loved ones living with Alzheimer’s disease. Please know that the disease progresses your loved one may no longer be able to com- staff of the Alzheimer’s Association wishes to be there for you municate their emotions or express their gratitude. along your care giving journey. Please contact us for any assis- Through our staff members’ contact with you–and the fact tance you may need in accessing support services, learning about that many of our staff members have been caregivers them- care giving techniques, or as an empathetic ear and shoulder. selves–the Alzheimer’s Association-Florida Gulf Coast Chapter From all of us here at the Florida Gulf Coast Chapter-Thank You! understands what you have to face on a daily basis. We understand Tampa Bay Devil Rays A Grand Slam POLK CAREGIVER OUTING With Caregivers Polk County Caregivers enjoyed a delightful day at Historic Bok On August 13th, Second Baseman Marlon Anderson and the Sanctuary in Lake Wales. Caregivers strolled the grounds, listened Tampa Bay Devil Rays invited caregivers to Tropicana Field to to the Carrillon Bells, learned Tai Chi from Charisse Jones and enjoy a baseball game. The Rays played the Baltimore Orioles and had a wonderful lunch. Support group facilitator Pam Flanders of won the game in extra innings, the score was 6 to 5. Following the Park Place was a wonderful tour guide. The outing was made pos- game, Marlon Anderson, Damian Rolls, outfielder, and Toby Hall, sible through the generous sponsorship of Stephen M. Martin, catcher joined the caregivers for finger foods and soda at the P.A., CenterState Bank, and Connie Durrence of Clark, Campbell Batter’s Eye Restaurant inside of Tropicana Field. The players and Mawhinney, P.A. signed autographs and helped raffle prizes such as gift certificates to Wal-Mart and a baseball bat signed by Marlon Anderson. The Alzheimer’s Association-Florida Gulf Coast Chapter would like to thank the Tampa Bay Devil Rays and the event spon- Newsletter: Our Hispanic Outreach sors who made the day with the Rays a memorable event includ- Due to the richness of the Spanish language and the vast num- ing: Mobile Medical Industries, Bon Secours Place, Bon Secours ber of unique dialects, our communications may differ from that Maria Manor, Eunoe, Inc., The Inn at Freedom Square, and Park which you are accustomed. Our mission is to educate and share Place Retirement Communities. Caregiver Outings are hosted all information. We are here to serve and help you and your family. year by the We are making a sincere effort to reach out to you. For informa- Alzheimer’s tion in Spanish please call 1-800-772-8672. Ext.126. Association. Call your local office to Debido a la riqueza del idioma español y el número vasto de los find out when the dialectos, nuestras comunicaciónes quizás deferencian de los que next outing will be estan acostumbrados. Nuestra misión es educar and compatir held. información. Estamos aquí para servirles y sus familias. Estamos tratando de extender el mano a ustedes. Para información en español: 1-800-772-8672. Ext. 126. Chapter Staff Candlelight Vigils THE President & CEO – In memory of those we have lost to SCHWAN Alzheimer’s disease and in recognition of Gloria J.T. Smith the prevalence of Alzheimer’s disease, the FOOD Vice President – Chuck Albrecht, MBA Alzheimer’s Association – Florida Gulf COMPANY Coast Chapter will host Candlelight Program Director – Schwan’s Home Service has been in the business Vigils on Thursday, November 6th at 7:00 of delivering high quality frozen foods to its cus- Cheri Rudgers, LCSW p.m. at Lake Mirror Promenade in tomers’ front doors for over 50 years. During that Director of Community Relations – Lakeland and on Wednesday, November time, they have expanded their product offering Bob Doyle 12th at 5:30 PM at the Shelby Gardens in from ice cream to over 400 items including Sarasota. These Candlelight Vigils are an entrees, vegetables, side dishes, snacks and spe- Director of Finance opportunity to honor and remember all cialty desserts. Most of Schwan’s products can be Paul Anderson, CPA those involved with any kind of memory prepared from the freezer to the table in less than Assistant Program Director – loss disease, including patients, care- 30 minutes. Ed Bergman givers, family members and professionals Schwan’s believes in giving back to the commu- Program Specialists – in the community. We appreciate the gen- nity. They have a wonderful program that erous sponsorship provided for the donates dollars back to local charities. Steve Doug Berger; Henry Cancel; Lakeland Candlelight Vigil by Park Place Collman, Schwan’s Home Delivery general man- Barbara Herrington; Kim Johnson; Assisted Living Facility. To RSVP or for ager in Pinellas County, believes that The Florida Patty Kelly; Geri Lenigan; more information, contact the Gulf Coast Alzheimer’s Association and Schwan’s Alzheimer’s Association-Florida Gulf Home Service will be a good partnership. The Lisa Milne; Janet Nelson; program will allow busy caregivers to provide Coast Chapter at (863) 292-9210 Helen Nider; Nancy Parente; their families with nutritious, easy to prepare (Lakeland) or (941) 365-3888. Dee Peters; Lisa Rodriguez; food delivered straight to their homes and give the Alzheimer’s Association 10% of every dollar Operations Manager – Jane Johnson MAINTAINING spent with Schwan’s to fund our programs and services. Development Associate – CONNECTIONS WITH Pinellas County will serve as the pilot for the Peggy Macaluso FAITH COMMUNITIES new partnership. By the first of the year, all 17 counties in our service area will be able to partic- Office Assistants – To many, faith is an important part ipate in the program. Be sure to read the next Fran Faux; Tay Spencer of their existence. Many people with newsletter for updates on the expanded delivery Memory Mobile Driver – Alzheimer’s disease still enjoy singing area. Robert Coy hymns, listening to Bible passages, pray- If you live in the Pinellas County area you will be ing and practicing religious rituals that able to schedule your deliveries in advance, choos- Executive Asst./Volunteer Coordinator – are important to them. These things keep ing a time that is convenient for you between 7:00 Gail Eberle them connected to their faith and give AM and 9:00 PM Monday thru Friday and 7:00 them a sense of comfort, meaning and AM to 3:45 PM on Saturday. Here’s how you get Board of Directors peace. your home delivery started. William “Bill” Kelly, Chairperson Staying connected to one’s faith First:: Call the Pinellas office at 727-571-1377 community may become difficult as the and they will send you a catalog. Charlotte Howard, Vice Chairperson Second: Once you have your catalog you will disease progresses, but several things can Tom Wellner, Treasurer be done to maintain relationships with need to activate the Florida Gulf Coast Dianne Silliman, Secretary the faith community. Talking openly to Alzheimer’s Association Fund Raiser for your Thomas Conklin, Esq. one’s priest, rabbi or parish nurse about orders. You will place your first order by calling the situation can open the door for home 1-886-289-9467. (This will be the only time you Roberta Hamilton use this number.) Tell the Schwan’s representa- visits. When made aware of a caregiver’s Emma Hemness, P.A. tive that your order will be for the Florida Gulf situation, many faith communities go the Coast Alzheimer’s Association. This will ensure Mary Kaplan, L.C.S.W. extra mile to assist caregivers and people that Schwan’s will give 10% of the amount of Pamela Keller, Esq. living with Alzheimer’s disease to main- your order to the Alzheimer’s Association. This Carol Lucas, R.N. tain their spiritual traditions in their step is critical to the Association receiving the Margarita Nunez, M.D. homes. Perhaps someone can come over funds from your order. for prayer or communion. Perhaps some- Third: After your first order that designates the Bruce Robinson, M.D. one can help by bringing a hot meal or Florida Gulf Coast Alzheimer’s Association as Sean Scott, Esq. helping with housework. Caregivers who your charity, use the order number on the front Kim Spencer have expressed their concerns and needs of your catalog to make all future orders. Marge Weppler to their faith communities frequently find Jim Rush, official sales representative for the this Commissioner Mary “Betty” their faith-based institution has pro- project, says, “Schwan’s feel privileged and proud grams setup that can meet their needs or to be partners with the Florida Gulf Chapter of Whitehouse are willing to design programs that will. the Alzheimer’s Association. PAGE 2 HELPLINE 1-800-772-8672 How Can I Help the Alzheimer’s Association Help Others? The Alzheimer’s Association provides a broad range of services to thou- Committee Work – A number of volunteer opportunities are available sands of individuals throughout our 17 County service region. Of the for individuals who have special interests in specific activities of the estimated 418,937 people living with Alzheimer’s disease in Florida, Alzheimer’s Association. Examples of committee opportunities include: 155,397 – or 37% - reside within the Florida Gulf Coast Chapter’s ser- • Development Committee – Assists the agency in developing financial vice region. We are very proud of the way our staff utilizes the scarce resources through campaigns, fundraising activities and special events resources available to them in providing the highest quality services to planning throughout the year. people living with Alzheimer’s disease or a memory related disorder and • Public Policy – Advocates for people living with Alzheimer’s disease or their caregivers. When people learn of the important work conducted by a memory related disorder and their caregivers through educating elect- the Alzheimer’s Association, they often ask how we manage to do all we ed officials and providers. To learn more about this committee, please see do and how they can help. the article on the inside back cover of this newsletter. The many ways individuals support our mission are as varied as the peo- • Marketing & Public Relations – This committee works closely with the ple providing the support. Most people find that there is indeed a mech- media and in developing mechanisms to ensure that caregivers in need anism to assist regardless of their time availability or financial resources. of our support services are aware that these services are available. To help you understand the opportunities our Chapter has for you to Planned Giving – There are a variety of methods of engaging in help we have listed a few options below: planned giving including gifts of life insurance, gifts of securities, Helpline Volunteers: bequests, charitable remainder trusts and many, many more. These The Alzheimer’s Association receives hundreds of calls everyday from planned gifts provide a variety of benefits, including some truly amaz- caregivers and community members. Volunteers with daytime availabil- ing tax breaks! The process and guidelines are probably as confusing to ity are always needed to assist with answering our phones, directing calls you are they are to many; however; if you are interested in learning more and providing basic responses to caregivers seeking information in our about planned giving the Florida Gulf Coast Chapter can provide you ten office locations. Training is available for Helpline Volunteers. additional information and connect you with professionals who have agreed to provide free initial assessments to referrals from our Chapter. Support Group Facilitators – The Alzheimer’s Association provides During this initial assessment you will be provided with information training for volunteer support group facilitators who are interested in about the options available to you and what would be involved if you leading a support group for caregivers. Currently we have a need for decide to move ahead. minority support group facilitators and Spanish speaking facilitators throughout our service region. Additionally, we are looking for volun- Third Party Fundraisers – Of great benefit to the Chapter, Third Party teers interested in developing and facilitating support groups in rural Fundraisers are fundraising events almost entirely managed by commu- areas; especially in Hendry, DeSoto, Lee, Hardee, Highlands, Collier and nity organizations or individual volunteers. Past examples of these have Charlotte Counties. included golf tournaments, garage sales, organizational dinners, tennis tournaments and wine tasting. The Chapter’s fundraising staff, whose Membership – Membership is an important and inexpensive mecha- time is primarily absorbed managing the Memory Walks and other nism to support the Alzheimer’s Association. Membership in the Florida internal activities, truly appreciate the civic minded coordinators of Gulf Coast Chapter are available for at little as $25 per year and provides Third Party Events and will provide support to assist you in coordinat- both financial support for service and important evidence of communi- ing your event. ty support when we discuss vital issues with elected officials. Work Place Giving – The Alzheimer’s Association is a member of the Annual Appeal – Our year end Annual Appeal is the Chapter’s direct Combined Health Charities and participates in their numerous work mail campaign for financial support. While we have made great headway place giving campaigns. Some examples of work place giving where you in the arena of grant funding, grant funds typically do not cover all costs may designate the Florida Golf Coast Chapter for your payroll deduct- associated with providing services and the Annual Appeal fills this gap ed gift include The Florida State Employees Giving Campaign, The to ensure that we are able to meet all requests for services we receive Pinellas County School System and the Combined Federal Campaign. throughout the year. Examples of what Annual Appeal funds help Check with your employer to see if they participate in the Combined underwrite include Respite Care, Caregiver Trainings, Safe Return Health Charities work place giving campaign. If not, we would be glad Scholarships and Informational Brochures. to assist them in becoming involved. While we are not currently a mem- ber of the United Way, you can still designate your gift to the Florida The Ambassadors Club – A new volunteer opportunity being piloted in Golf Coast Chapter of the Alzheimer’s Association and it will be for- Sarasota, the program consists of past caregivers who assist in enhanc- warded to us. ing awareness and access to the service provided to caregivers by the Florida Gulf Coast Chapter. There is an article in this newsletter on page Graphic Design – The Florida Gulf Coast Chapter is seeking a market- 11 that can provide you more information about this exciting new pro- ing/graphics firm to provide in-kind assistance in developing outreach gram. and awareness materials such as posters, brochures, billboards, special event materials and newsletter design. Memory Walk – The Chapter’s largest and most important fundraiser. Held annually in ten locations throughout the Chapter’s service region, These are just few of the ways you can make a difference in the lives of Memory Walk provides a broad range of volunteer opportunities and people living with Alzheimer’s disease or a memory related disorder and avenues for you to assist the Chapter raise funds through collecting their caregivers. If you would like to learn more about any of these donations as a walker or by forming or joining a Memory Walk Team. opportunities please call us at 800-772-8672. VOLUME 1, ISSUE 2, FALL 2003 PAGE 3 The month of October played host to five of our Chapter’s ten Memory Walks. On October 11th there were walks in Bradenton and Venice; October 18th was Sarasota and Englewood; and October 25th was Port Charlotte / Punta Gorda. The weather was beautiful for each of the Walks. A very special thank you to each of the five Memory Walk Committees who donated their time and energy to make each walk a tremendous success! Bradenton Walk Port Charlotte/Punta Gorda Walk Most Money Raised by an Individual – Most Money Raised by an Individual – Kevin Poage $1,027 Palmetto Guest Home Pam Keller $1,000 Most Money Raised by a Team – Most Money Raised by a Team – Life Care Center of Sarasota $3,981. Englewood Walk South Port Square $860 Team with the Most Members – Team with the Most Members – Tie Most Money Raised by an Individual – Braden River Care Center (47) Life Care Center of Punta Gorda (15) and Mary Ellen Jablonski $618 St. Francis of Assisi Total Money Raised - $11,041 Bon Secours – St. Joseph’s Health Care System Most Money Raised by a Team – St. Francis of Assisi $981 Total Money Raised - $16,000 Venice Walk Sarasota Walk Team with the Most Members – Most Money Raised by an Individual – St. Francis of Assisi Church (36) Most Money Raised by an Individual – Terry McNeil $1,250 Jacaranda Trace Genie Sunquist $3,694 Total Money Raised - $6,561 Most Money Raised by a Team – Most Money Raised by a Team – Jacaranda Trace $3,283 Sarasota Bay Parrot Head Club $7,010 Team with the Most Members – Bay Indies (91) Team with the Most Members - Sarasota Bay Parrot Head Club (83) Total Money Raised - $26,331 Total Money Raised - $33,000 The Alzheimer’s Association – Florida Gulf Coast Chapter would like to thank our walk sponsors for their support! National Sponsors Emerald Gold Silver Alterra Assisted Living, Boyer & Jackson, P.A., Charlotte Harbor Healthcare, First Financial Employee Leasing, Inc., HCR ManorCare, The Inn at Freedom Village, Manatee Memorial Hospital & Health System, Pinebrook Rehabilitation & Nursing Center, Re/Max Properties, Sarasota County Aging Network (SCAN), Sarasota Memorial Health Care System. Rest Stop Alterra Assisted Living, Aramark, Aston Gardens at Venice, Bradenton Neurology, Inc., Charlotte Regional Medical Center, Community Bank, Englewood Community Hospital, Pinebrook Rehabilitation & Nursing Center, Rotary Club of Englewood, Rotary Club of Placida, Sterling House of Venice, Village on the Isle. Media Supporters WENG News – Talk 1530 u The Information Station PAGE 4 HELPLINE 1-800-772-8672 MAKING HOLIDAYS MEMORABLE Growing up in Michigan, the smell of autumn in the air and the cold enjoy singing old holiday songs or watching videos. Religious services may turbulent November skies were heralds announcing the holidays were just be very meaningful but consider attending for a shorter time and sit where around the corner! For most families, wherever they live, holidays are you can take your loved one out if necessary. Be sure to read the article on filled with opportunities for sharing time, laughter and memories. For page 2 of this newsletter, most faith communities will be glad to accom- those caring for a loved one with dementia, they can also be times of modate you with in-home services. stress, disappointment and sadness, causing some caregivers to feel angry, Managing your loved one’s special needs. If your loved one is in a depressed, frustrated or even trapped. Here are a few suggestions to help facility, consider participating in planned holiday activities there, rather ease the burden of care and make this holiday especially memorable. that taking him or her out of familiar surroundings. Encourage friends Adjust your expectations. If you like to entertain but can’t imagine and relatives to stay for short periods of time, and limit to one or two at a hosting a large group this year, try having a few close friends and relatives visit. If you do decide to take your loved one home, try a dry run first to over for a potluck. Educate family and friends about your loved one’s con- see how it goes. dition before they arrive. You may want to write a letter telling them about Don’t neglect yourself. People want to help. When friends or family the disease and what to expect. Try to be flexible; it may be that celebra- ask what they can do, give them a specific idea. Make a list of possible jobs tions should be held earlier in the day avoiding late afternoon hours when or needed items in advance and keep it handy. Take a respite from care- sundowning is most likely to occur. Don’t be afraid to cut an event short giving. Plan ahead by arranging for in-home care so you can attend a spe- if you need to. cial function and not have to worry about your loved one. Take a break; Involve the person with the disease. Wherever possible involve your take a nap, the dishes will wait. loved one in safe manageable activities such as wrapping gifts, setting the Remember that holidays are for sharing with the people you love. table, decorating cookies, or hanging decorations. Remember, perfection Take pictures, make scrapbooks, tell stories, smile, breathe, give and get has no place in the life of a person with dementia. Your loved one may hugs. Happy Holidays!! 10 Easy Ways You Can Help Alzheimer’s Caregivers Some of our newsletter readers who understand ing or take a short trip. Even if the caregiver does when the caregiver is free to talk without interrup- and support the needs of caregivers often ask, not leave the house, this will provide some person- tions. You don't need to provide all the answers - “What can I do to help someone caring for a per- al time. Chances are the person with Alzheimer's just be a compassionate listener. Try not to ques- son with Alzheimer’s disease?” Throughout the will also enjoy a break. tion or judge, but rather support and accept. year and throughout our lives, most of us make Be specific when offering assistance Care for the caregiver Wish Lists, both for ourselves and for others. But Most friends are good about saying they're avail- Encourage caregivers to take care of themselves. often we don't know how to express or request able to "do anything," but many caregivers find it Pass along useful information and offer to attend a what we want and need the most: Caring. hard to ask for something specific. Have the family support group meeting with them. Local chapters Compassion. And practical help. prepare a "to do" list of hard-to-get-to projects of the Alzheimer's Association have information A friend is an important source of support for the (e.g., laundry, dusting, yard work, medical bills). Alzheimer family. Even if they live far away, there's available, and sponsor telephone "Helplines" and Figure out what you can do, then dedicate some still plenty you can do. Here are ten easy ways to support groups in your area. time - on a weekly or monthly basis - to helping the help: family tackle some of these tasks. Remember all family members Keep in touch Be alert The person with Alzheimer's will appreciate your Maintain contact with family members. A card, a Learn about Alzheimer's and how it impacts the visits, even if unable to show it. Talk with the per- call, or visit all mean a great deal. Family members, family. Most people with Alzheimer's "wander" at son the way you'd want to be talked to. Spouse, including the person with Alzheimer's, will benefit some point, and could become lost in their own adult children and even young grandchildren are from your visits or calls. Continue to send cards, neighborhoods. Know how to recognize a problem all affected in different ways by a relative's even if you don't get a response. It's a simple, yet and respond. Take time to learn about other com- Alzheimer's disease. Be attentive to their needs, important way to show you care. mon behaviors and helpful care techniques. too. Do little things - they mean a lot Provide a change of scenery Get involved When cooking, make extra portions and drop off a Plan an activity that gets the whole family out of Unless a prevention is found, 14 million Americans meal (in a freezable and disposable container). If the house. Make a reservation at a restaurant and will have Alzheimer's disease in coming years. you're on your way out to do an errand, check with ask for a table with some privacy. Be sure to include There are many things you can do to help families a caregiver to see if there's anything they need. the person with Alzheimer's, if the caregiver feels today, and prevent further devastation tomorrow. Surprise the caregiver with a special treat such as a it's appropriate. If not, make arrangements for Make a contribution to the Alzheimer's rented movie, an audiotape of last week's church someone to stay at home while you're out. Or, Association or volunteer at your local chapter. Join service or a gift certificate for a massage or dinner invite the family to your house or to a nearby park in the Association's annual Memory Walk to raise out. for a picnic. awareness and funds for chapter programs and ser- Give them a break Learn to listen vices. Ask you legislator to support funding for Everyone needs a little time for themselves. Offer Sometimes, those affected by Alzheimer's just need research and programs to help Alzheimer's fami- to stay with the Alzheimer's person so family mem- to talk with someone. Ask caregivers how they're lies. You can make a difference. bers can run errands, attend a support group meet- doing and encourage them to share. Be available VOLUME 1, ISSUE 2, FALL 2003 PAGE 5 PAGE 6 HELPLINE 1-800-772-8672 Memory Walk 2004 Mark your calendars in March 2004 for the following Memory Walks: March 6, 2004 – Sebring/Highlands & Hardee Counties March 20, 2004 – Largo/Pinellas County March 13, 2004 – Tampa/Hillsborough County March 20, 2003 – Spring Hill/Pasco, Hernando, Citrus, March 13, 2004 – Lakeland/Polk County Sumter Counties. Contact the Chapter Offices at 1-800-772-8672 for more information. VOLUME 1, ISSUE 2, FALL 2003 PAGE 7 Corporate Membership The Alzheimer’s Association – Florida Gulf Coast Chapter would like to acknowledge and thank our Corporate Members. Their compassion and generosity is reflected daily through the activities and services of our Chapter. While Corporate Membership does not imply endorsement by the Alzheimer’s Association, we are grateful to our Corporate Members for their support of our mission and those we serve. For information on becoming a Corporate Member, contact Peg Macaluso at 727-578-2558. The Law Offices of Freedom Square Web Link Charles F. Robinson Independent, Assisted & Skilled Care Corporate Members Board Certified Elder Law Attorney 727-398-0166 727-441-4516 www.charlie-robinson.com Home Instead Home Companion & All Stat Home Homemaker Services The Law Offices of Health, Inc. 813-930-9366 Home Health, Companion Sean W. Scott & Respite Services Elder Law 727-539-0181 Room To Go 941-923-0880 www.virtuallawoffice.com Fine Furniture www.allstathomehelath.com William Rambaum & Samaritans Alzheimer’s Arden Courts Alzheimer’s Assisted Living Associates, PA Auxiliary 888-427-8678 Respite Group Board Certified Elder Law Attorney www.hcr-manorcare.com 813-634-9283 727-781-5357 www.rambaumlaw.com Aston Gardens Sarasota Memorial The Inn At The Courtyards Hospital Geriatrics, Inc. Assisted Living Offering Corporate Members Memory Disorder Clinic Memory Impaired Services 941-917-7197 813-634-4497 www.astoncaresystems.com AEGON Law Office of Life Insurance, Annuities & Walter B. Shurden Bon Secours – Mutual Funds Medicaid Qualification 727-299-2800 & Estate Planning St. Petersburg Assisted Living & Skilled Nursing Care 727-443-2708 727-563-9733 Aging Wisely www.Bonsecours.org/stpete Comprehensive Care Management Sun City Retirement Residence & Consultation Assisted Living Facility 727-586-2774 / 888-807-2551 813-633-3333 Encore Senior Village of Clearwater Continumm of Care for Alzheimer’s Barrington Terrace Suncoast Neuroscience Assisted & Alzheimer’s Care and other Dementias Associates, Inc. 727-588-0020 727-467-9464 Clincial Studies www.encoresl.com 727-824-7135 Bon Secours at Healthpark A Bon Secours Assisted Living Residence Hearthstone The Inn and Nursing 941-497-1177 Assisted Living Center at University Village Independent, Assisted, Alzheimer’s and Assisted Living, Skilled Nursing Secure Memory Care Bon Secours at Port Charlotte & Alzheimer’s Care A Bon Secours Assisted Living Residence 813-960-5346 813-975-5001 www.hearthstoneassisted.com 941-740-0452 Westchester Gardens Mobile Medical Industries Cross Terrace Rehabilitation Rehabilitation & Care Center Mobile Physician, Diagnostic & Center Skilled Nursing Facility & Home Health Care Skilled Nursing Facility Alzheimer’s Care 877-977-7651 727-736-1421 727-785-8335 PAGE 8 HELPLINE 1-800-772-8672 Honorariums & Memorials The following individuals were honored by their friends and loved ones through Honorarium or Memorial Gifts to the Florida Gulf Coast Chapter as of September 30th. The Florida Gulf Coast Chapter appreciates these gifts and is proud to acknowledge those individuals honored. IN HONOR OF: Flora Black Mary Fuco Samuel J. Krupa John W. O'Donnell Evelyn Thiessen Charles Anagnos Mathilda Black Clara Fulsome Anita La Fleur James E. O'Hara Mary Ella Thomas Bill Andrews Maurice Blei Mary Fuoco Beverly Lafferty Priscilla A. Osmun Betty Trauvetter Seena Baker Donald Bock, Sr. Vera Gallman Brice LaLonde Hazel Osterle Jack Travis Stephen Bentley Olivia Booher Lorraine Gard Earl Dean Landess Frank Ostrenga Frank Treutlien Velma Brunson Ruth Boucher Lorna Gardner John D. Langhans Viola Palmer Audrey Tromotola Sylvia Carra & Bill Hahn Bessie Bra Garnet Gautier Esther Mildred Laning Rose G. Paquin Mae Tuggle Nancy Deter Belinda Brady Sue Baum Gelb Merrill Laplant Leonard Partridge Naomi Tuggle Gail Eberle and Bill Hoffman Cecile Bragg Daniel Geltner Jean Larson Warren Pearce Robert Ulrich Mim Ferkes Norma Briggs Arline Lund Gerbrandts Florence Laub Robert Penner Mary Claire Vasil Betty Foster William Brown Jean Giasone Anna-Karin Laurell Thomas Peterson Irene D. Vercellino Reed Franz Gertrude Bryan Ralph Giese John Lavin Bernice E. Pfanenschwarz Nellie Vitalle Murray Friedman Francis Calhoun Donald Gillam Louise Leach Harold Pfeifer Ruth Evelyn Vorherr Sally Gart Jessie Cammisa Ruth Ginley Hazel Leak Eleanor Polhemus Franklin J. Wagner Dorothy Haacke Archie Canham Elizabeth Golasky Gene Levy Earl Powers William Walker Mary Holmes Marguerite Carr Edna Joan Gosse Thomas F. Leyden Mr. Pulda Theresa Warren Mrs. B.J. Jackson Dorothy Carter Harold Grabb Arlie Lincks Jay Purdy Ed Watson Paul Kaatz James Cecere Robert Greeley Diane Lipman Everett “Miki” H. Quinn Joan Watts May Mr & Mrs Katchen David L. Cecil Charles Green, Jr. Kenneth Lippmann Donald S. Ramseyer Annette Weintraub William Kells Raymond Challoner Charles Green Richard A. Lorentz Opal Redd Jette Frances Weisberger Eve Kommel Opal Chaney Claire Green Katherine Lundquist Joseph B. Reiley Charles Westerdale Nancy McLean Zeke Charles J. Irvin Griner Evelyn Lynaugh Robert L. Richard Helen Bellingham Mrs. McMahon Angelo Chieppa Bernell Grote Robert Lyttle Bill Richey Wetterauer Dr. and Mrs. M. Reizen Elizabeth Conner Bernelle Grote MacTuggle Gladys M. Richmond James Whidden Nellie Lucille Rhew Alfred Cook Nel Grote Ruth Macy Irene Rifkin Esther White Betty Rosenhaus Valerie Cooper Mary Guastella Mary Louise Mangold Thomas Robertson Dr. John R. White Martha Corum Newman “Newt” Hamblet Rudolph "Rudy" Marasco Jane Robinson Mary Catherine White Melvin Rosenhaus Dorothy Cox Mrs. Hannan Grace Marmino Dr. Earl H. Rogers Barry Whitehair Arnie Ross Otto J. Cox, Jr. Mary Jane Hannon Howard Maser Sylvia Rolsky Robert C. Wilde Constance Rudolph Helen Craig Kent E. Harden Bruce Massey Bernard Rosenman George Williams Abbott Schlain Eleanor Crilly Ben Hardin Clifford May Candida Ross Grady Williams St. Thomas' Episcopal Mary Crough Magdalena Haubrich Nicholas A Mayzun Mary Rossi Lillian Pauline Williams Church J.B. Cunningham Loretta Haug Margaret Mc Hale Elin Rowan Gladys A. Willis Mr. and Mrs. Anton Sterker Donald Currier Robert Hawkinson L. Cameron McArthur Carolyn Rowe Helen Willocks Charles Strickler Alton Curtis Dorothy Hedgecock Sally McCann Raymond Ruff Helen Wilson Bea and Bernard Vroom Margaret Daigneau Ruth Heffron Charlotte McClure Pauline “Peggy” Ruska Lu Winters John E. Walker William C. Damiano Herman Eschol Hilliard Bernard McDaniel Elizabeth Russell Marvin Woodall Connie Wilson Frank Danielson Virginia “Jean” Hlas Leroy McLeod Elizabeth Glendora Russell Homer Wooldridge Mr. and Mrs. Seymour Mary K. Davis Mrs. Beatrice Bea Hodge Louise McMurray Janet Ryan Dorothy E. Wortman Wohlman Dorothy DeVos Stanley Holda Clair McNair Marie Ryan Robert Vincent Youkey Phyllis Di Blase Raymond Hopwood Murray McRae Edna Kesel Ryman Marian Zah MEMORIALS IN Dorothy Dill Carrie Tant Hudson Selma Melnick Frank Sage Clara Zajac HONOR OF: Bill Dillard David Thomas Innis Rev. Harold Melzer Virginia Sandin Arthur Zeman Eugene Altland John W. Dinsmore Jo Love Jackson Gray Barbara Meo Carol Sapienza Ramsey Zia Gene Altman Dorothy Drew Pearl Lee Jacobi Barbara P. Meo Rudolf Schiederer William Zunke Charles Alvarez Harold DuBois Carol G. Jacobs Akroyd Mildred Meriwether Beverly Schirf Mrs. Essie Anderson Robert Dumm Anna Jacobs Pat Meyers David Schlipf J. Douglas Andrews Evelyn Duncan Marie Jandrew Mary Miccio Arthur Schonbrunn Pete Arculeo Fay M. Duncan Arthur Jarvis Mary Frances Miller Arthur F. Schwartz Robert “Bob” Bickel Faye Duncan June Jennings Harold Mills David Schwartz Armstrong Rosie Eaton William Joachim Girolama Minore Vivian Shepherd We apologize for Imogene Arnt Vera Ebinger Bob Johnson Mildred Moline Roger Simon any errors, Marguerite Baez Ayala Edna Edwards Maria Rayan Johnson Leonard F. Molitor Col. Valentine Sky misspellings or Robert Baden Margie Ellis Marian Johnson Marjorie Molitor Beryl Smith Robert Enright Nell Johnson Mary Molitor Carolyn Smith omissions in the Sylvia Baer Annette Bambach Adelina Estades Roger Johnson Clarissa Moore Paul Smith Honorariums & Dorothy Barker John Fanata David Johnson's father John Moriarty Mary Snitzer Tributes. Every Myrtle Louise Barker John F. Favata, Sr. Ruth Jurick Mary Morkin Dorothy Speckter effort has been Virgie Barmblett Phyllis Fay George Kaczewicz Martha Mugridge Kenneth J. Stafford made to ensure the Erna Barnes Mario Ferrara Katherine “Katie” Mary E. Murkin Marie Stanley accuracy of the Viola Barnett Edna Ferraro Karmenzind Arlene Mutchler Elmore Starke information. Martha L. Barr Rose Finer William Karmenzind Katherine Muzik Wayne Starnes Please call Frank Barron Minnie Finkle Florence Kasprzyk John G. Myers Paul Steinglass Mary and Robert Batten Joseph Henry Fleiss Marjorie Kasprzyk Lt. Col. William G. Mylan Rose Stelmack 800-772-8672 George Beasley Frank Flowers Herbert Kaufman's daughter Mary Nales Phyllis Stevens if you have any Helen Beharrell Marvin Ford Virginia Kimble Albert Nastasi Calista “Kit” Stitt corrections or Frances Bell John Frabata, Sr. Robert Kinsella Russell Ness Al Straley additions. We will Ann Bellamy Herman Frank Helen Knapp Ralph Newman Dorothy Straley be happy to run Robert A. Bender Dorothy Franke Grace Knight Ken Newsom Wilma Stults the correct Marion Benito Hilda Franz Peter Kochis Barbara Nichols Louise Stypulkowski information in our Thelma Bennett E. Drosnin’s sister Freida Ernest Kreher Irene Noriega Josephine Sunseri Stephanie “Stevie” Biedron Mary Ann Frese Belle Kresnak Louise I. Norville Rosemary Sweeney next newsletter VOLUME 1, ISSUE 2, FALL 2003 PAGE 9 Calendar of Events November 2 Memory Mobile at Avon Park Episcopal Church November 18 Caregiver Training: The Basics Riverview Public Library, 1:00 PM November 5 Help for Caregivers Workshop Most Holy Name of Jesus Catholic Church, November 18 Caregiver Puzzle: Putting the Pieces Together: St. Petersburg, 10 Am - Noon The Experience of Care Giving Senior Service Center, 1350 East Main St, 2nd Floor November 5 Caregiver Training on Alzheimer’s: A Progress Report Building C, Bartow, 9:30 – 11:30 AM Arden Courts, Tampa, 1:00 PM November 20 Support Group Facilitator Training November 6 Holiday Tips for Caregivers Pinellas Park Office, 9:30 AM – 3:30 PM Encore Senior Village, Clearwater, 2-3 PM (Call Lisa @ 727-578-2558 to RSVP) November 7 Basic Caregiver Training November 21 Memory Mobile in Okeechobee Sarasota Office, 2-4PM November 22 Caregiver Luncheon with the Memory Mobile November 7 Memory Mobile at Elder Fair Senior Connection of LaBelle, Noon – 3PM Agri Civic Center, Highlands County November 25 The Caregiver Puzzle: Completion and Closure November 8 Memory Mobile at the Senior Friendship Center, Sarasota for Caregiver and Care Receiver. Senior Service Center, 1350 East Main St, 2nd Floor November 11 Caregiver Training on Making the Holidays Memorable Building C, Bartow, 9:30 – 11:30 AM Hillsborough County Main Public Library, Tampa, 9:30 AM December 2 Holiday Talk for Caregivers Grace Healthcare, Lakeland November 11 Help for Caregivers Workshop (RSVP Polk Office 863-292-9210), 10 – 11:30 AM Morton Plant Self-Health Center Westfield Shoppingtown-Countryside Mall, 2nd Floor, December 2 The Caregiver Puzzle: Relationships with Community; Clearwater, 2-3 PM Personal Relationships Senior Service Center, 1350 East Main St, 2nd Floor November 12 11th annual Candlelight Vigil Building C, Bartow, 9:30 – 11:30 AM Shelby Gardens, Sarasota, 5:30 PM December 5 Basic Caregiver Training November 12 Memory Mobile at Bartow Civic Center Sarasota Office, RSVP 941-365-8883, 2-4 PM November 13 Polk County Family Caregiver’s Luncheon December 5 Holiday Talk for Caregivers Cleveland Heights Country Club, Lakeland Spring Haven Retirement Community, Winter Haven, (Call 863-292-9210) 10 – 11:30 AM November 13 Holiday Tips for Caregivers December 9 The Caregiver Puzzle: Experience of Love of Self Emerald Gardens, Clearwater, 2-3 PM and Others Senior Service Center, 1350 East Main St, 2nd Floor November 14 Alzheimer’s Beginning to Cope Building C, Bartow, 9:30 – 11:30 AM Watson Clinic LLP, Lakeland, 10-11:30 AM December 10 Alzheimer’s: Beginning to Cope November 14 Candlelight Vigil Davenport (tentative contact 863-292-9210 for location), Crown Pointe ALF, Sebring, 7:00 PM 9:30 – 11 AM November 14 Memory Mobile at Career Central in Spring Hill December 10 Caregiver Training: Holiday Tips Crown Pointe ALF, Sebring 5:00 PM November 14 Caregiver Holiday Pampering Day Contact the Brooksville Office 352-754-6000 December 11 Memory Mobile at the Port Charlotte Cultural Center for location & times. December 16 The Caregiver Puzzle: Meaning of Life; Bereavement November 16 Memory Mobile at Lutheran Church of the Redeemer Senior Service Center, 1350 East Main St, 2nd Floor in Highlands County Building C, Bartow, 9:30 – 11:30 AM November 17 Caregiver Training: Caregiver Stress and the Holidays January 22 Caregiver Conference Southside Baptist Church, Brandon, 7:00 PM Freedom Square, Seminole, 9:00 AM November 17 Memory Mobile at the Port Charlotte Cultural Center For more information about activities on this calendar contact your local office (numbers can be found on the last page of the newsletter) or November 18 Caregiver Training: The Basics call 1-800-772-8672. Palm River Public Library, 9:30 AM PAGE 10 HELPLINE 1-800-772-8672 “AMBASSADORS” AIM AT POSITIVE REINFORCEMENT Current Clinical Drug “The Volunteer Ambassador’s Club” is a new group in the Sarasota/Manatee area formed by the Alzheimer’s Association- Studies at the University Florida Gulf Coast Chapter. These former caregivers will be in the community creating a more positive image of Alzheimer’s disease of South Florida Suncoast by informing caregivers that they are not alone and by promoting services available to them. Gerontology Center Watch for these ambassadors to: The University of South Florida Suncoast 1) Promote caregiver support groups and encourage Gerontology Center is currently enrolling attendance at monthly Alzheimer’s informational meetings and training sessions. patients in a number of clinical drug 2) Attempt to reach the isolated caregiver with needed service information. studies. There are studies for mild cogni- 3) Seek out and make personal one-on-one contacts with new caregivers. tive impairment, mild Alzheimer’s, and 4) Increase visibility and help reduce the stigma often associated with the disease. moderate to severe Alzheimer’s disease. A 5) Personally deliver brochures and caregiver information. study is also being conducted for agita- 6) Coordinate the scheduling of speakers who address Alzheimer's disease and services tion and behavior problems in AD. For for caregivers. more information call the Suncoast For service requests and information on joining “The Ambassador Club”, call the Alzheimer’s Association-Florida Gerontology Center at (813) 974-4355 or Gulf Coast Chapter at (941) 365-8883. Once this program is up and running we plan to duplicate it throughout the 1-800-633-4563. Chapter service region. Florida Public Policy Council Priority Alzheimer’s Issues in 2004 The Florida Public Policy Council was established by all of the Chapters of the 4. Issues on our watch list: Alzheimer’s Association in Florida to provide state wide leadership in develop- a. Suicide prevention ing and implementing a Florida Public Policy Strategic Plan. This Council is b. Protection against Abuse and Neglect composed of volunteer leaders from around the state and the CEO of each c. Driving and Dementia Chapter. Each Chapter also has a Board appointed Public Policy Committee that d. Guardianship oversees all Chapter Public Policy efforts. The priority issues for the coming year e. Expand Dementia Training are: f. Increase funds for Alzheimer respite services through the 1. Safety of the Alzheimer’s patient with emphasis on their wandering Family Caregiver Support Act behavior and our Safe Return program. Improve the Baker act as it is g. Improve the availability of Prescription Medications applied to Alzheimer’s patients and work with law enforcement agen- h. Availability of Care Management and Consultation i. Monitoring of Home and Community Based Care cies to implement improvements. j. Provide Quality Care at every disease stage 2. Expand our outreach efforts to isolated families and communities. k. Treatment of Behaviors Unique to Alzheimer’s Sufferers 3. Continue to work for a cure but in the meantime continue the focus Anyone who has an interest in joining our Alzheimer’s Advocate Team call 1- on finding effective treatments and techniques of care for Alzheimer’s 800-772-8672 and request the Public Policy Advocate packet and/or fill out and patients. submit the form below. BECOME A PUBLIC POLICY ADVOCATE FOR ALZHEIMER’S Public Policy Advocates can help in many ways. Please check the advocacy actions you are willing to take: ❍ I will keep up to date on major issues impacting Alzheimer’s disease. ❍ I will scan my local community information sources for articles and information on Alzheimer’s disease and how my local officials stand on issues affecting Alzheimer’s disease. ❍ I am willing to be included in the Alzheimer’s Association Legislative Alert System and will contact my elected officials about issues that affect persons with Alzheimer’s disease and their caregivers. ❍ I have E-Mail capability and am willing to E-Mail messages to government officials. ❍ I am willing to travel to Tallahassee and/or Washington DC to lobby for our official positions. ❍ I am interested in serving on the Public Policy Committee. Please send me an application. Name: Address: City: State: Zip: Phone: Fax: E-mail address: Please print clearly VOLUME 1, ISSUE 2, FALL 2003 PAGE 11 OFFICE LOCATIONS Bradenton 4148 20th Street West Bradenton, FL 34205 941-795-1900 Brooksville Brooksville Enrichment Center 670 Broad Street Brooksville, FL 34601 352-754-6000 Pinellas Park 9365 U.S. Hwy. 19 North Ste B Pinellas Park, FL 33782 727-578-2558 Port Charlotte 22107 Elmira Boulevard Port Charlotte, FL 33952 941-235-7470 Mailing to: P.O. Box 494708 Port Charlotte, FL 33949 Sarasota 1230 South Tuttle Avenue Sarasota, FL 34239 941-365-8883 Sebring 228 North Ridgewood Drive 2nd Floor Sebring, FL 33871 863-385-3444 Mailing to: P.O. Box 1901 Sebring, FL 33871 Sun City Center 2419 Emerald Lake Drive #116 Sun City Center, FL 33573 813-633-8715 Tampa 2901 West Busch Blvd #201 Tampa, FL 33618 813-933-7871 Non Profit Org Venice South County Resource Center U.S. Postage 7810 South Tamiami Trail – Suite A-10-1 PAID Venice, FL 34293 Permit No. 4041 941-492-4332 Someone to Stand by You Tampa, FL Winter Haven 1131 First Street South Florida Gulf Coast Chapter Winter Haven, FL 33880-3902 9365 U. S. Highway 19 N. 863-292-9210 Suite B Toll Free Helpline: 800-772-8672 Pinellas Park, Fl 33782 Website: www.alz-tbc.org Alzheimer’s Disease and Related Disorders Association, Inc.