Barnsley Health Networking Event by pengtt


									            Barnsley Health
            Networking Event


- The Health Needs of Carers

- The Choose and Book System

- The Effects of Substance Misuse in Barnsley

- The Health Needs of Asylum Seekers in Barnsley

- How can Voluntary Groups and Patient Forums
Work Together?

               The Health Needs of Carers

Graham Elliott, Chief Executive of Barnsley Arena

Carers believe that the Carer’s Strategy is undervalued by all statutory
providers, the voluntary sector and the private sector providers.

   1) Carers feel that their emotional health needs are not understood
      or considered by health professionals who do not always listen or
      consider people’s view when setting up services. In Mental Health
      this would be recognising the warning signs that are usually
      special to the individual.
   2) Focus is often on the patient to the exclusion of the carer. The
      support is there for the service user but not for the carer. It is
      also important to consider the psychological well being of the
      carer. Personal care for cared for person because of carers’
      illness is often not considered or put in place.
   3) Carers have two people to care for, the carer and the service
      user. – most important person must be the carer.
   4) Carers do not care because they have been identified as such.
      Carer support should come first. Also, need to identify carers, as
      most people just care but do not see themselves as being a
   5) Carers’ assessment does not address the emotional side, and is
      written without carers’ involvement.
   6) Carers, especially mums becomes extended carer as child grows
      up and has a family of their own, so they become extended
   7) Carers’ registration should be at the assessment stage, and
      should be the first contact. There should be an official register. It
      is vital to have a registered list, as a lack of this means people
      get left out.
   8) Children as carers: These groups have different needs
   9) Complex forms for D.L.A carers allowance etc should be
      simplified. There should also be a register for people claiming
      carers’ allowance.

10)        Training and information for carers, and help in filling forms
   in. Education is also needed for staff so that people can identify
   a carer. This should happen as the time of diagnosis, for
   example at GP’s surgeries.
11)        A point of contact, support and advice is needed. This
   could come through the citizens’ advice bureau.
12)        Continuity of GP contact as a person who already
   understands the personal circumstances.
13)        Training of professionals as well as carers. Listening, as
   there is the duty of care to help patients home. Carers needs are
   all different and individual should be recognised. Gaps may exist,
   do we think about patients?
14)        Do we need a list of carer’s rights?
15)        The definition of carers and caring needs to be agreed.
16)        Respite is essential for the health of carers.
17)        There is an emotional pressure to do more because
   services cannot respond, and there have been breakdowns in
18)        Most of this discussion and points made would be ignored
   because they are emotive problems and therefore are not
   recognised. W hat we have recorded here would not be
   recognised or acted on by professionals
19)        Carers need a living wage.
20)        Ambulances – need to book for carers. Also the use of bus
   lanes for ambulances would speed up the service.

            The Choose and Book system

Rhona Collins, Barnsley Primary Care Trust

Choose and Book allows you, with your GP and the practice team, to
choose your hospital and book an appointment using the electronic
booking service. Since summer 2004 the Choose and Book service has
been introduced across England, and in time it will be available to all
patients. In Barnsley currently 9 GPs use the electronic booking system
with systems set in place to include a further 12.

Rhona explained what choice is available to patients when they use the
new system of ‘Choose and Book’.

Patients will be able to book their appointment..
  - With their GP,
  - With another member of staff at their GP practice, such as a
      Choose and Book advisor or a receptionist
  - Over the phone using a unique booking reference number
  - Over the internet using a unique booking reference number

There are also plans to allow booking using digital TV

Rhona went through each scenario of booking an appointment and
asked for comments and questions from the group. A number of
comments were made and Rhona will pass these back so that they can
be taken into account as the Choose and Book service is developed
and implemented in Barnsley.

 The Effects of Substance Misuse in Barnsley

- Jeni Upperdine, Drug, Alcohol and Tobacco Support
- June Marshall from Beacon
- Magi Fenton and Jane Needham from GLAD

Jeni summarised the history of Barnsley’s drug problems. Pre 1992,
most of the recognised drug use was amphetamines and cannabis. In
1993, there was little information about heroin, and much of the
increase of usage was blamed on the pit closures: many of the users
became hooked very quickly. Grimethorpe was hit particularly hard,
with 100 people registered as users in 1993. There is still little trouble
with crack: it has been suggested that this is because the people of
Barnsley like value for their money! Also, Barnsley has no recognised
sex trade, which contributes to crack usage. However, use of crack is
increasing and crack usage usually goes hand in hand with long-term
heroin usage. There is a strong cannabis usage, which has probably
increased since declassification: but Barnsley has a culture of long
term heavy drinking.
There is a report, which suggests that there are now 1500 problematic
drug users, but the reality may be higher. A survey carried out by
Hallam University suggests that Barnsley spends £10 to £15 million
pound on drugs: but how is this funded? Most people would say that it
is funded by crime. It is not just the individual service users health:
everyone is affected by drug usage because everyone has been
affected by crime and violence.

June Marshall from Beacon told the group that substance misuse is
devastating for the service user, but for their family as well. When Jeni
said that everyone is affected by crime and violence, June said that she
understood people’s concerns because the service user has already
done to their friends and family what they are doing to everyone else.
Substance misuse changes people: if they are your children, you may
still love them but you dislike the person they have become.

Greater Life After Detox (GLAD) is a support group for service users
who have been through alcohol detox treatment. Magi and Jane told
the group that they have met some service users who have been
through detox 3 or 4 times, and they felt that they needed a group to
support each other. It is open to both men and women, because they
found that there were groups for women, but not for men. They meet
once a week and are now looking at funding to open an evening group.
Also, they are looking to work with carers of alcohol misusers. Magi
and Jane told the group of their own personal experiences and the
affects alcohol misuse had on their health. Magi would have been
sober for 3 years, but 2 years ago thought that she could have one
drink which turned into a great deal of drink. Jane has been sober for 2
years and they have been a great support for each other. Magi told the
group that when she was drinking, her health suffered in many ways.
Her hair was thin and dull, her skin was dry and flaky, she had constant
backaches and she drank more to take the pain away. It wasn’t until
she stopped drinking that she realised that it was the alcohol, which
was causing her backaches because her kidneys were being damaged.
Her liver was damaged. Luckily, if less than two thirds of the liver is
damaged, then it can regenerate, but if more than two thirds is
damaged, then the damage is irreparable and a liver transplant is
needed. Jane told the group that when she was drinking she saw the
drink as her food, had to force herself to eat and everything tasted like
cardboard. Consequently, she lost a lot of weight and became skin and
bones. Her liver was damaged, fortunately not irreparably, but she has
started with osteoporosis because of her drinking. Both Magi and Jane
have come a long way in the past two years.

      The Health Needs of Asylum Seekers in
 Helen Taber, Nurse Practitioner, Belmont Reception Centre

Helen explained that many people arrive in this country with Health
problems such as;
              • Dental problems
              • Mental health issues
              • Nutritional deficits
              • Untreated injuries
              • Diabetes
              Some people travel in cramped conditions with little or no
food available, this can cause joint problems along with nutritional
deficits. Lots of these people have suffered atrocities, watching their
families suffer and often they are left bereaved. Bereavement happens
to all age groups, often children are withdrawn and have not seen their
parents for a long time, most not knowing where they are. The Belmont
Reception Centre receives people and retains them for seven to ten days
before they are allocated a place to live.
              Some people flee their country leaving injuries untreated,
when they arrive in Britain some of these injuries are worse than what
they would have been if they had been treated.
              Helen explained that some people are reluctant to talk
about their health issues; this could be due to not understanding how our
health system works or because of religious reasons.

      How can Voluntary Groups and Patient

               Forums Work Together?

Michael Elliott, Communications Lead, Commission for
Patient and Public Involvement in Health

  • How do community and voluntary groups share information and
    work together in Barnsley?

       o What works well

          Events like these
          Opportunities to meet other community groups and the

       o What doesn’t

          No list of all groups in Barnsley
          No one shares information about projects in case they steal
          ideas and in turn funding
          People like to keep control of their own groups

  • What are the advantages of working together?
     o Share ideas
     o Empower the community
     o Partnership working with each other
     o Having a louder voice, make sure NHS listens to us

  • What prevents you from engaging/ talking/ working with more
       o Fear of losing control of groups
       o Not knowing where to go
       o Not enough money to spend on publicity
       o Unwillingness to work together
       o Disempowerment of the population

• How would you like to work together in the future?
    o Register with Barnsley Volunteer Bureau
    o Get full list of groups in Barnsley from Barnsley Volunteer
    o Organise more regular events in Barnsley where we can
      engage with each other and the public
    o Try to get articles in Barnsley newsletters such as the
      Voluntary Action Barnsley Newsletter
    o Share workplans and information between groups so that
      common interests can be identified


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