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					                                    Monday Morning Memo
                                        May 8, 2006
                                          (916) 552-6619

                                     Week in Review

Monday May 1, 2006
Travel Day and meeting preparation for a discussion on affiliation fees – special thank you to
Jim Stream, The Arc of Riverside and Pat Napoliello, The Arc of San Francisco for their
thoughtful input and assistance and everyone else who gave me useful information and made
me look like I knew what I was talking about with my colleagues in other states.

Tuesday May 2, 2006
The State Executives Directors of The Arc met in Denver, Colorado and worked on the
following issues: (1) A proposal for a new structure for affiliation fees to the national
association. Current fees are based on a combination of the population of service region and
chapter budget. The new proposal endorsed by the directors is based solely on chapter
budgets. (2) We worked on a proposal to bring to the board of directors about chapters
crossing state boundaries. The directors agreed that state chapters decide whether or not to
allow an out of state chapter to provide services as a chapter of The Arc. (3) While The Arc of
United States has trademarked its name we have also secured the use of the names “ARC”,
“Association for Retarded Citizens”, and the “Association for Retarded Children” for the
purpose of preventing any entity from trying to use these names. The association will not
authorize the use of any of these last three names (ARC is only protected from use by entities
serving people with intellectual and other developmental disabilities). (4) The directors
discussed the need to begin a targeted approach to stopping nonaffiliated agencies from using
the name “The Arc” – several law suits have already been won and damages received. (5)
The Arc of the United States sibling support project. “Sibshops” is now an independent
program no longer part of The Arc.

Wednesday May 3, 2006
The Arc of the United States and the local host committee had a convention planning meeting
and reviewed the “save the date” announcement, the convention program, and the local host
event. The announcements will be sent out next month so for now make sure you mark your
calendars for October 12-14, 2006 in San Diego. Of course all members are expected to be in
attendance but nonmembers are also welcome and will enjoy this year’s convention.

Thursday May 4, 2006
The Senate Budget Subcommittee #3 on Health, Human Services, Labor & Veteran’s Affairs
chaired by Senator Denise Ducheny (D – San Diego) held a hearing on CalWorks. The
Department of Social Services reported that the federal Budget Reduction Act will not make

                                                                             Monday Morning Memo
                                                                                The Arc of California
                                                                            May 8, 2006, page 1 of 15
                                                                    Tony Anderson, Executive Director
any structural changes to the CalWorks program but instead will strengthen the original intent
of the reform that created the program. To learn more about this hearing visit the California
Channel archive at: 050406 Senate Committee Budget & Fiscal Review SubCmte #3 WATCH

Friday May 5, 2005
We worked with Representative Bill Morrow’s (R – Carlsbad) office on the Starvation and
Dehydration of Persons with Disabilities Prevention Act to be next Tuesday. SB 1280 would
“provide that a legally incapable person, as defined, is presumed to have directed health care
providers to provide him or her with nutrition and hydration to a degree that is sufficient to
sustain life.”

                                     The Week Ahead
Monday May 8, 2006
The Senate Budget Subcommittee #3 on Health, Human Services, Labor & Veteran’s Affairs
chaired by Senator Denise Ducheny (D – San Diego) will hold a hearing at 10 AM or upon
adjournment of session in the John L. Burton hearing room 4203 (please note room and time
change). Items of interest includes: 0530 Health and Human Services Agency, 4120
Emergency Medical Services Authority, 4260 Department of Health Services, 4270 California
Medical Assistance Commission, 4280 Managed Risk Medical Insurance Board, 4300
Department of Developmental Services, 4440 Department of Mental Health.

The Arc of California Executive Committee will be meeting by conference call during lunch to
approve the agenda for our next meeting from June 2nd and 3rd and other business items.

The Senate Budget and Fiscal Review Subcommittee #1 on Education chaired by Jack Scott
(D – Pasadena) will be meeting at 1:30 PM in room 113 of the Capitol building. The committee
will hear issues regarding the Special Education Due Process and Contract Deficiency.

The Senate Appropriations committee chaired by Senator Kevin Murray (D – Los Angeles)
will meet at 2 PM in the John L. Burton Hearing Room (4203) and will hearing the following
from our bill file:
    1. A - 04/18/2006 SB 1128 (Alquist) Sex Offender Punishment, Control, and Containment
       Act of 2006. Criminal Justice
    2. A - 04/17/2006 SB 1283 (Chesbro) Area Boards on Developmental Disabilities.
       General Systemic
    3. A - 04/17/2006 SB 1288 (Cedillo) Medi-Cal: minors: drug and alcohol treatment. FASD
    4. I - 02/17/2006 SB 1337 (Alquist) Developmental services: rental assistance. Housing
    5. I - 02/24/2006 SB 1660 (Romero) In-Home Supportive Services: provider wage and
       benefit increases. IHSS.

The Assembly Budget Subcommittee #1 on Health and Human Services chaired by Hector De
La Torre (D – Southgate) will be meeting at 4:00 PM in room 127 in the Capitol building. The
agenda, which was originally set aside for unfinished business, will cover Department of
Managed Health Care, Emergency Medical Services Authority, Department of Health Services,
Managed Risk Medical Insurance Board, Department of Developmental Services, and the
Department of Mental Health.
                                                                             Monday Morning Memo
                                                                                The Arc of California
                                                                            May 8, 2006, page 2 of 15
                                                                    Tony Anderson, Executive Director
Tuesday May 9, 2006
The CA FASD Task Force public policy workgroup will be meeting by conference call to further
discuss taking a position and or making recommendations for amendments to AB 2818 by Bill
Maze (R – Barstow). AB 2818 would “require the State Department of Health Services by
January 15, 2008, to develop a legal and illegal drug use surveillance program.” Alcohol is the
number one known environmental cause of mental retardation and FASD is 100% preventable.

The Senate Judiciary Committee chaired by Senator Joseph Dunn (D – Garden Grove) will
meet at 1:30 PM in the John L. Burton Hearing Room (4203) and will cover the following from
our bill file:
   1. A - 04/06/2006 SB 1280 (Morrow) Legally incapable persons. Health & Medical

Wednesday May 10, 2006
The Assembly Appropriations committee chaired by Assemblymember Judy Chu (D –
Alhambra) will meet at 9 AM in room 4202 and will cover the following from our bill file:
   1. I - 01/11/2006 AB 1844 (Chavez) Minimum wage increase. Work
   2. A - 04/24/2006 AB 2486 (Ridley-Thomas) In-home supportive services: criminal
      background checks. IHSS
   3. I - 02/23/2006 AB 2494 (Ridley-Thomas) In-home supportive services: provider training.
      Support IHSS
   4. A - 04/06/2006 AB 3048 (Dymally) Public social services: assistance during health-
      related and alternative site appointments. IHSS

I will be meeting with Margaret Anderson and staff at the Department of Developmental
Services to discuss the California College of Direct Support, give a project progress report, and
discuss other workforce development issues.

The Assembly Budget Subcommittee #1 on Health and Human Services chaired by Hector De
La Torre (D – Southgate) will be meeting at 1:30 PM in room 444 in the Capitol building.
Issues to be discussed include: the Department of Alcohol and Drug Programs, Department of
Community Services and Development, Department of Child Support Services, Department of
Social Services.

Thursday May 11, 2006
The Partners in Policymaking CA Collaboration (The Arc of California, Family Resource Center
Network, CA, Family Voices, and Family Empowerment Centers) will be having a follow-up to
discuss our next steps in collaboration whether or not our application to the state council
receives funding.

Sunday 14, 2006 – Mother’s Day

                                     State Office Stats
General Information: 10
Conservatorship: 3
Special Needs Trust: 3
Membership/Subscription: 05
                                                                              Monday Morning Memo
                                                                                 The Arc of California
                                                                             May 8, 2006, page 3 of 15
                                                                     Tony Anderson, Executive Director
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                                                 Action Alerts1
The Arc of California
The Third Annual Disability Capitol Action Day will take place on Thursday June 1st, 2006
starting with an education forum from 10:00 to 11:30 AM at the Grand on 1215 J Street
(between 12th & 13th streets) Sacramento followed by a March to the Capitol at 11:30 AM
(starting at the Sacramento convention center) and a rally on Capitol West Steps from Noon to
1:00 pm. Advocates are then encouraged to go inside and speak with your elected official in
their offices, for more information call: 1-800-390-2699 (voicemail) or 1-800-900-0706 (tty)
or email CFILC and visit their website at

The Arc of the U.S.
                                          Take Action

We need your help! A bill S. 1955, introduced by Senator Mike Enzi (R-WY) and supported by
the small business community, would override more than 1,000 longstanding, vital state
consumer protection laws that benefit people with disabilities. S.1955 will be debated and
potentially voted on within the next two weeks. The Health Insurance Marketplace
Modernization and Affordability Act (S.1955) would help small businesses buy health
insurance but at the expense of people with disabilities, their families and countless others with
the greatest health needs. I hope we can count on you to ask your Senators to oppose S.

                                               Upcoming Events
Thursday, May 11, 2006 - Saturday, May 13, 2006

 To access the Action Alert system from The Arc of California website ( enter your zip code in the
“Contact Congress” federal box.
                                                                                                  Monday Morning Memo
                                                                                                     The Arc of California
                                                                                                May 8, 2006, page 4 of 15
                                                                                       Tony Anderson, Executive Director
The Department of Developmental Services and UC San Diego School of Medicine are
cosponsoring a course on the diagnosis and intervention of developmental disabilities because
of their prevalence in children and the importance of early diagnosis and initiation of treatment.
In addition, common disorders in children which are increasing in frequency, such as ADHD,
autism, and pediatric obesity will be explored in more depth. The training will be held at the
Catamaran Resort Hotel, 3999 Mission Blvd. San Diego, CA 92109. The course is designed
for Pediatricians, Family Practitioners, Nurse Practitioners, Pediatric Nurses and School
Nurses (17.25 CEUs). Contact: UCSD School of Medicine, 1-888-229-6263 or 858-534-3940,
or e-mail at:, registration web address

May 23, 2006
Interagency Committee on Disability Research--Notice of Public Meeting and Request for
Comments. Steven J. Tingus, Director of the National Institute on Disability and
Rehabilitation Research (NIDRR) in the Office of Special Education and Rehabilitative
Services (OSERS) at the U.S. Department of Education, and Chair of the Interagency
Committee on Disability Research (ICDR) is pleased to provide notice of an ICDR public
meeting and request for written comments with respect to the federal disability and
rehabilitation research agenda. The ICDR, authorized by the Rehabilitation Act of 1973, as
amended, is holding a meeting to seek comments from the public with respect to the federal
disability and rehabilitation research agenda. This public meeting is for individuals with
disabilities, persons who represent service providers, service provider organizations, disability
and rehabilitation research and policy groups and representatives of advocacy organizations
with specialized knowledge and experience, to suggest specific ways to improve future
research for individuals with disabilities. The meeting will take place, from 10 a.m. to 3 p.m. at
the Capital Hilton Hotel, 1001 16th Street N.W., Washington DC, 20036. Telephone: (202)
393-1000. A copy of the Federal Register notice can be viewed at

May 25th – 28th 2006
Self-Advocates Becoming Empowered 8th National Self Advocacy Conference will be in
Atlanta, Georgia this year. Sponsorship opportunities are still available, and the early
registration period has been extended. Leaders with developmental disabilities, families,
friends and community members are all welcome. “Show your power come to Atlanta and join
other self advocates from across the country in showing the power of self advocacy.
Conference Organizers: Southern Collaborative (Region 6 & Region 9 of SABE) Host
Organization: People First of Georgia. Early Bird Registration Fees of $365 have been
extended until the conference. No Late Fees!” Visit SABE's website for details and program.

June 2nd – 3rd 2006
The California Conference of Executives of The Arc of California will be meeting from 10:00
AM to 4:00 PM on Friday at the Embassy Suites in Sacramento. The Board of Directors of
The Arc of California will meet later that evening and all day on Saturday. A few of the agenda
items to be discussed include an update on the California College of Direct Support, the CA
Task Force on FASD, the national convention, status on the state budget, review of the bill file,
disaster preparedness, the Capitol People First vs. DDS case, the Sibling Support Project,
grassroots development, etc.

                                                                                Monday Morning Memo
                                                                                   The Arc of California
                                                                               May 8, 2006, page 5 of 15
                                                                       Tony Anderson, Executive Director
June 9th – 11th 2006
"Marching for Our Rights!", People First of California Statewide Convention at the Sacramento
Double Tree Hotel & Pre-convention Rally at the Capitol. This year the self advocacy state
convention will include a special pre-convention Rally at the State Capitol to March for the
rights of people with developmental disabilities. The Rally will be on Friday, June 9th from 2-3
p.m. For updates and more information visit:

July 11 - l3, 2006
Plan now to attend Workforce Innovations 2006, , at the Anaheim Convention Center, in
Anaheim, California co-sponsored by the U.S. Department of Labor's Employment and
Training Administration and the American Society for Training and Development. Workforce
Innovations is the premier annual conference where local, state and national workforce
leaders, and partners from industry, education, and economic development, gather to share
their common experiences and challenges in building a highly skilled and adaptable workforce.
Please use the following link for information concerning this year's DOL WORKFORCE
INNOVATIONS 2006 conference.

Thursday July 27, 2006 – Sunday July 30, 2006
The Summer Leadership Institute Training for the National Conference of Executives of The
Arc which will be held in Pittsburgh, PA.

October 5th – 6th 2006
20th Annual Supported Life Conference in Sacramento.

October 12th – 14th 2006
The Arc invites you to "Ride the Wave" during our 2006 National Convention being held in San
Diego, October 12-14. This year's convention format will allow volunteers, professionals, self-
advocates, and families to select a specific content track most suited to their needs and
interests. And as always, we've built plenty of time into the schedule to take part in planned
outings and to enjoy the gorgeous marina surroundings of our convention hotel. We've posted
some hotel information and a tentative schedule in the What's New section of our home page
( or you can click on the links below to take you directly to those pages.
More convention information will be coming soon.
760AD Tentative Schedule:

                            Recently Released Reports, Studies, etc.
Mental Health in the United States: Parental Report of Diagnosed Autism in Children
Aged 4--17 Years --- United States, 2003—2004 by the Center for Disease Control Morbidity
and Mortality Weekly Report. “Autism is a lifelong neurodevelopmental disorder characterized by early onset of
impairments in social interaction and communication and unusual, stereotyped behaviors. Autism (i.e., autistic disorder)
often is classified with two related, although less severe, developmental disorders: Asperger disorder and pervasive
developmental disorder--not otherwise specified. These three constitute the autism spectrum disorders (ASDs). Diagnosis of
ASDs is based exclusively on developmental pattern and behavioral observation (Box). Two population-based studies
conducted by CDC in selected U.S. locations reported ASD prevalence of 3.4 and 6.7 per 1,000 children, respectively (1,2).
CDC also conducts two nationally representative surveys, the National Health Interview Survey (NHIS) and the National
Survey of Children's Health (NSCH), in which parents are asked whether their child ever received a diagnosis of autism.
Because of similarities in methodology used by the two surveys, CDC analyzed 2003--2004 data from NHIS and data from
the first-ever NSCH (collected during January 2003--July 2004) to 1) estimate the population-based prevalence of parental
                                                                                                  Monday Morning Memo
                                                                                                     The Arc of California
                                                                                                 May 8, 2006, page 6 of 15
                                                                                         Tony Anderson, Executive Director
report of diagnosed autism in the United States and 2) assess parental reporting of child social, emotional, and behavioral
strengths and difficulties and special-health care needs among children with and without reported autism. This report
describes the results of that analysis, which indicated that the prevalence of parent-reported diagnosis of autism was 5.7 per
1,000 children in NHIS and 5.5 per 1,000 children in NSCH. Prevalence estimates in the two studies were similar across age,
sex, and racial/ethnic populations. The consistency in estimates between the two surveys suggests high reliability for parental
report of autism. These estimates suggest that, as of 2003--2004, autism had been diagnosed in at least 300,000 U.S. children
aged 4--17 years. In addition, parental reports of autism were associated with reported social, emotional, and behavioral
symptoms and specialized needs. Thus, these surveys might be useful to assess health, education, and social service needs of
children with autism.”

                                                    News Articles

Report: Patients Harmed at Mental Hospitals
Justice Department investigators cite misdiagnosis, misuse of drugs and violence.
Los Angeles Times May 5, 2006
By Lee Romney
The state mental hospitals in San Bernardino and Atascadero are plagued by widespread problems,
including inadequate diagnoses and treatment, improper and excessive medication, and a boilerplate
approach to care that leads to unnecessarily prolonged hospitalization, according to scathing
investigative findings released Thursday by the U.S. Department of Justice. Investigators also found
that San Bernardino's Patton State Hospital suffered from high rates of patient-on-patient violence,
repeated suicide attempts by hanging and care so inadequate that visible signs of irreversible side effects
from psychotropic medications had escaped notice. The findings were made public two days after
federal officials sued California's mental hospital system and filed a detailed consent decree designed as
a court-monitored road map for reform over the next five years. Although only Metropolitan State
Hospital in Norwalk and Napa State Hospital in Napa were named in the lawsuit and consent decree,
federal and state officials say both documents will be amended to include Patton and Atascadero State
Hospital in the corrective plan. The litany of systemic breakdowns did not surprise hospital
administrators or state Department of Mental Health officials. Rather, they are many of the same
problems detected by federal investigators when they visited Metropolitan in 2002 to launch the first of
four civil rights probes.

Rather than wait for the federal probe's findings, state officials promptly hired a former U.S. Justice
Department consultant to help them convert California's outdated system to a new model of care that
involves patients more actively in their recovery. "For the last two years, we were basically doing what
we thought would meet their needs," Patton Executive Director Octavio Carlos Luna said of federal
justice officials who are charged with safeguarding the constitutional rights of mental patients.
"Basically now they are fine-tuning the direction they think we should be going. … It's all constructive
criticism." In a statement, Atascadero's clinical administrator, David Bourne, called the findings
"painful when balanced against what we believe to be our good reputation," but "an important
milestone" that would help improve the hospital. Patient's rights advocates were cautiously optimistic
that the federal attention would lead to reform. "The consent degree, at least on its face, is a positive step
and these investigations are a positive step," said Matt Fishler, a staff attorney with Protection &
Advocacy Inc., a state contractor that advocates for mental patients' rights. "The key is going to be how
it's implemented and what kind of oversight there's going to be." …,0,4267934.story?track=tothtml

Guest Column: What's special about special education?
Gaylord Herald Times (Michigan) May 2, 2006
By Kurt Soltman, Gaylord Community Schools director of Special education:
                                                                                                    Monday Morning Memo
                                                                                                       The Arc of California
                                                                                                   May 8, 2006, page 7 of 15
                                                                                           Tony Anderson, Executive Director
615 S. Elm Ave., Gaylord, MI 49735.
On Tuesday, as registered voters in the community of Gaylord and greater Otsego County, we will have
the opportunity to reaffirm our commitment to the education of our youth. By now, you are probably
aware that the proposed Cheboygan-Otsego-Presque Isle Educational Service District (COP-ESD)
special education millage is up for renewal. However, the really important information is how our
special education students benefit from this millage, so vital to 10 school districts here in northern
Michigan. Special education was created in 1975 with the Education for All Handicapped Children Act.
Since that time, special education has been changed and re-authorized many times, most recently in
2004. This act is now known as IDEIA - Individuals with Disabilities Education Improvement Act.
Special education exists to provide all youth with an equal access to curriculum, and an equal
opportunity to learn. The majority of children with disabilities are now being educated in their
neighborhood schools in regular classrooms with their non-disabled peers. High school graduation rates
for individuals with disabilities have risen more than 14 percent. Employment for individuals with
disabilities after school age is nearly twice what it was just 20 years ago. And a truly rewarding statistic
- post-secondary education is also up, with the number of college freshman reporting disabilities tripling
between 1978 and 2005.

The term “child with a disability” means a child with one of the following challenges: mental
retardation, hearing impairments (including deafness), speech or language impairments, visual
impairments (including blindness), emotional disturbance, orthopedic impairments, autism, traumatic
brain injury, other health impairments, or specific learning disabilities. In addition, because of the
disability, the student often needs special education and/or related services. These students have extra
challenges both in education and in life. The special education system exists to assist in overcoming
these challenges and to provide students with equal access to the general curriculum to the maximum
extent possible. Each student is looked at individually in an effort to identify what services he or she is
most in need of. A student with a physical impairment may need occupational or physical therapy in
order to correctly use writing instruments, or even get around the school. Students who have difficulty
talking may be provided with special exercises regarding speech or language. Students with learning
disabilities are provided with assistive curriculum and services. It is the job of the student's educational
team to determine what the student's specific challenges are and what can be done to assist him/her in
the educational setting. It is interesting to note that nationwide, 1 in 8 students receive special education
services.…The election on May 2nd is our opportunity as a community to continue to provide support
for all students in the Gaylord Community Schools - not only support for the general education of our
special needs students, but also by supporting individuals with disabilities in the community as a whole.

Controversial Golden Gate Park
Car-Free Saturday ordinance stalled
Supervisor Alioto-Pier amends legislation for ADA-compliance May 3, 2006
By Aldridge M. Tan
Discussions over the Healthy Saturdays ordinance, which would close a 1.5 mile stretch of John F.
Kennedy Drive in Golden Gate Park on Saturdays for a six month trial, will continue to next week.
Supervisor Michela Alioto-Pier introduced three amendments to the legislation at the Board of
Supervisors meeting during the ordinance's second reading which brought the legislation back to its
first-reading state. The amended ordinance passed on first reading this Tuesday at the Board of
Supervisors meeting. Alioto-Pier amended the ordinance to create a deaf-friendly information line for
individuals to call, to make the three major requirements addressing accessibility for the disabled
community mandatory, and to continue ongoing application of those programs on Sundays when the
                                                                                       Monday Morning Memo
                                                                                          The Arc of California
                                                                                      May 8, 2006, page 8 of 15
                                                                              Tony Anderson, Executive Director
Saturday trial ordinance expires. Alioto-Pier said she disagrees with the Saturday closure. However, the
legislation must completely addresses issues regarding disability access to make sure that it does not
violate the Americans with Disabilities Act. Such violations could have legal repercussions since The
Arc of San Francisco is seeking legal advice.

…Mayor Gavin Newsom still has not made a decision if he will veto the legislation, said Wade
Crowfoot, Mayor's Liaison to the Board of Supervisors. Newsom is concerned over access to the
Conservatory of Flowers and is interested in leaving Arguello Boulevard and West Conservatory Drive
open to provide approximately 30 to 45 vehicle parking spots and a courtesy drop-off point for the
Conservatory. "It would open up an excellent drop-off point for people with disabilities," said Rebecca
Green, San Francisco Parks Trust board member. Newsom also has a copy of The Arc of San
Francisco's legal consultation with Protection & Advocacy, Inc., Hornbecker said. The Arc of San
Francisco sought the legal counsel of the Oakland-based private nonprofit organization that protects the
legal, civil and service rights of persons with disabilities on April 28. An analysis of the situation, based
on phone conversations between The Arc of San Francisco and Protection & Advocacy, Inc., suggests
that the ordinance may be in violation of the Americans with Disabilities Act, said Diana Honig, staff
attorney for Protection & Advocacy, Inc, in the consultation "I need to see what else happens to this
legislation," Hornbecker said. "If our requests aren't met, we will take legal action."
McGoldrick said he would consult with the city attorney if The Arc of San Francisco does take legal
action against the city. "We'll deal with the situation accordingly if it gets to that point," McGoldrick

Pinching pennies and clutching dollars
Rising gas and electricity costs force residents to get creative
The Baltimore Sun May 2, 2006
By Sumathi Reddy
And so it has come to this. Bessina Williams, 49, ponders replacing her passion for baking with
assembling scrapbooks. William Mills, 73, goes on walks to the grocery store instead of driving. And a
red van sits idly on the driveway of Donna Brust, who has put her diesel 1986 Mercedes to use instead.
"I'm going to choose to fork over the comfort to get better gas mileage," said Brust, 42, of Perry Hall.
From the mundane to the creative, residents across Maryland are fine-tuning their daily habits in ways
large and small, adjusting to the shock of skyrocketing gas prices and bracing for a spike in residential
electricity costs. At home, the frugal are finding ways to be more tight-fisted than ever. Fans replace
air-conditioners. Dirty clothes pile up until half-loads of laundry become full. Children are scolded for
leaving lights and televisions on in empty rooms. "I'll penny-pinch every penny we can," said Debbie
Haber, 54, of Hampden. "I'm just going to have to my foot down and not spend, just spend on what we
need to spend." Haber says she's refinancing her house to pay off debts, lecturing her 10-year-old twins
to turn off the lights and television when they're not using them and cutting out her weekly bingo. "I
really can't afford an extra $20 a week," Haber said of the bingo. "There's a lot of things I like to do with
my kids, but if we don't have the money, what do we do?

…But for others, the prices are affecting the most vulnerable people in a harmful way. Nancy Rhead, 69,
of Columbia says high gas prices already have The Arc of Howard County, which assists people with
developmental disabilities, in the red on transportation costs. Then there's the impact of the utility
increase. "These folks are fixed-income people," said Rhead, who chairs the governmental affairs
committee. "Many people have retired." Rhead, who retired seven years ago, is also on a fixed income.
Now she's ready to head to the library for air-conditioning relief on those unbearable summer days and
use the bus for the first time. "I'm going to hate it probably, but I'm happy that I live near the mall where
                                                                                       Monday Morning Memo
                                                                                          The Arc of California
                                                                                      May 8, 2006, page 9 of 15
                                                                              Tony Anderson, Executive Director
it comes," she said. For Bessina Williams, the looming electricity rate increase means she will likely
give up her love for baking and switch to something less energy-dependent, like scrapbooking. "My gas
and electricity bill is ridiculous, particularly around the holidays, because I bake a lot of cakes for gifts,"
said Williams, 49, an assistant principal at Southside Academy in Cherry Hill.…,0,3937015.story?coll=bal-

What it’s like to have a sibling with a disability
Lincoln Journal Star (Nebraska) April 28, 2006
Joel Gehringer
When asked about life with their siblings, those with a brother or a sister with a disability are usually
more than willing to talk. But they're not always sure why they or their brothers and sisters are such a
big deal. So what's your sister like at home? they are asked. "I don't know. We play games." Is there
anything that makes life with your brother particularly interesting? "I suppose, but nothing off the top of
my head, really." Don't you ever get tired of chasing your baby sister around? "No, why would I? She's
our sister." They're not particularly notable or quotable answers, but they are the most telling. It's not
often that "I don't know" or "not really" is so profound, but what these words say is clear: To have a
brother or sister with a disability is, simply put, to have a brother or sister. "Sometimes my mom says
Baylee is my younger sister, but she's really the older one," Colton Whetstone says. Colton is 8.
Baylee's 10, and she has Cornelia de Lange syndrome, a rare congenital syndrome that causes mild to
moderate mental retardation and prominent physical features, including small stature, thin, often joined
eyebrows and downturned lips. But Colton doesn't really mention any of that. Instead, he talks about
seeing his sister at school, playing with her at home on the trampoline and chasing her around when she
sporadically runs off.

"She can be pretty strong, so sometimes we really have to grab her," older brother Lukas, 13, says.
Baylee doesn't answer any questions. "She doesn't talk much," Lukas explains. "Well, she can say some
words. "Baylee, say 'baby'" — the name of the doll Baylee's clutching. "Say „baby.'" "Baby," she
replies. The three have sat still long enough. Baylee starts running, and her brothers follow in pursuit.
"They chase after her a lot, because they're a lot faster than I am," mother Christy Whetstone says. "I
can't be around all the time; they have to be my set of ears and eyes." More than 6 million Americans
live with siblings who have disabilities, according to the disability advocacy group ARC of the United
States. And though they might not believe their situation is anything special, the evidence proves
otherwise. When it comes to the psychology and emotional effects of living with disabilities, Don
Meyer is often cited as the expert by those in the disability community. He's the author of numerous
books for and about siblings, and he is the creator of the Sibling Support Project and Sibshops,
workshops in which siblings can discuss issues with other siblings. "No one will spend more time with
that family member with a disability than brothers and sisters," he said in a phone interview from
Seattle. "They're going to be in each other's lives longer than anybody will, including parents."

                                            Funding Opportunities
HHS - Department of Health and Human Services Research on Autism and Autism
Spectrum Disorders (R03)Grant
-This funding opportunity announcement (FOA) solicits the Small Research (R03) grant mechanism for the support of
research designed to elucidate the diagnosis, epidemiology, etiology, genetics, treatment, and optimal means of service
delivery in relation to Autistic Disorder ("autism") and autism spectrum disorders (Rett's Disorder, Childhood Disintegrative
Disorder, Asperger's Disorder, Pervasive Developmental Disorder-Not Otherwise Specified, or "Atypical Autism"). Basic,
                                                                                                       Monday Morning Memo
                                                                                                          The Arc of California
                                                                                                    May 8, 2006, page 10 of 15
                                                                                            Tony Anderson, Executive Director
clinical, and applied studies are encouraged. -This FOA is meant to support the broad research goals of the Autism Research
Matrix ( -This FOA will utilize the Small Research (R03) grant
mechanism and runs in parallel with FOAs of identical scientific scope that solicit applications under the
Exploratory/Developmental Research (R21) mechanism as stated in PA-06-392and the traditional research project grant
(R01) as stated in PA-06-390. Applicants for the R21 and R01 awards must follow the guidelines for submission in their
respective announcements. -Awards issued under this FOA are contingent upon the availability of funds and the submission
of a sufficient number of meritorious applications. -R03 grant mechanism supports different types of projects including pilot
and feasibility studies; secondary analysis of existing data; small, self-contained research projects; development of research
methodology; and development of new research technology. -The R03 is intended to support small research projects that can
be carried out in a short period of time with limited resources. The R03 is not renewable. -Awards issued under this FOA are
contingent upon the availability of funds and the submission of a sufficient number of meritorious applications. -Budgets for
direct costs of up to $50,000 per year and a project duration of up to two years may be requested for a maximum of $100,000
direct costs over a two-year project period. -Eligible organizations: For-profit organizations; non-profit organizations; public
or private institutions, such as universities, colleges, hospitals, and laboratories; units of State government; units of local
government; eligible institutions of the Federal government; domestic institutions; foreign institutions; faith-based or
community-based organizations; Indian/Native American Tribal Government (Federally Recognized); Indian/Native
American Tribal Government (Other than Federally Recognized); and Indian/Native American Tribally Designated
Organization. -Eligible Project Director/Principal Investigators (PD/PIs): Individuals with the skills, knowledge, and
resources necessary to carry out the proposed research are invited to work with their institution to develop an application for
support. Individuals from underrepresented racial and ethnic groups as well as individuals with disabilities are always
encouraged to apply for NIH support. -Applicants may submit more than one application, provided each application is
scientifically distinct.

HHS - Department of Health and Human Services Research on Autism and Autism
Spectrum Disorders (R21) Grant
-This funding opportunity announcement (FOA) solicits Exploratory/Developmental (R21) grant applications for the support
of research designed to elucidate the diagnosis, epidemiology, etiology, genetics, treatment, and optimal means of service
delivery in relation to Autistic Disorder ("autism") and autism spectrum disorders (Rett's Disorder, Childhood Disintegrative
Disorder, Asperger's Disorder, Pervasive Developmental Disorder-Not Otherwise Specified, or "Atypical Autism"). Basic,
clinical, and applied studies are encouraged. -This FOA is meant to support the broad research goals of the Autism Research
Matrix ( -This FOA will utilize the Exploratory/Developmental
(R21) grant mechanism and runs in parallel with FOAs of identical scientific scope that solicit applications under the small
research grant (R03) mechanism as stated in PA-06-391 and the NIH Research Project Grant (R01) as stated in PA-06-390.
Applicants for the R03 and R01 awards must follow the guidelines for submission in their respective announcements.

HHS - Department of Health and Human Services Research On Autism And Autism
Spectrum Disorders (R01) Grant
-The purpose of this Funding Opportunity Announcement (FOA) is to encourage grant applications for the support of
research designed to elucidate the diagnosis, epidemiology, etiology, genetics, treatment, and optimal means of service
delivery in relation to Autistic Disorder ("autism") and autism spectrum disorders (Rett's Disorder, Childhood Disintegrative
Disorder, Asperger's Disorder, Pervasive Developmental Disorder-Not Otherwise Specified, or "Atypical Autism"). Basic,
clinical and applied studied are encouraged. -This FOA is intended to support the broad research goals of the Autism
Research Matrix ( -This funding opportunity will use the NIH
Research Project Grant (R01).

HHS - Department of Health and Human Services Coordination of Tribal TANF and Child
Welfare Services to Tribal Families at Risk of Child Abuse or Neglect Grant
The Department of Health and Human Services (HHS), Administration for Children and Families (ACF), Office of Family
Assistance (OFA), announces the availability of funds for competitive demonstration grants to Indian tribal governments and
tribal consortia that administer Tribal Temporary Assistance for Needy Families (Tribal TANF) programs. The purposes of
this funding announcement are: (1) to demonstrate models of effective coordination by tribal governments or tribal consortia
of Tribal TANF and child welfare services provided to tribal families at risk of child abuse or neglect and (2) to evaluate and
document the processes and outcomes of this coordination. These grants must be used for one or more of the following
statutorily-prescribed uses: (1) to improve case management for families eligible for assistance from a Tribal TANF program;
(2) for supportive services and assistance to tribal children in out-of-home placements and the tribal families caring for such

                                                                                                     Monday Morning Memo
                                                                                                        The Arc of California
                                                                                                   May 8, 2006, page 11 of 15
                                                                                            Tony Anderson, Executive Director
children, including families who adopt such children; (3) for prevention services and assistance to tribal families at risk of
child abuse and neglect.

HHS Department of Health and Human Services Mental Health of Humanitarian Aid
Workers Program Grant
CDC‟s Procurement and Grants Office has published a new funding opportunity entitled, “Mental Health of Humanitarian
Aid Workers.” $50,000 - $250,000 will be available in FY2006 to fund approximately 1 award to design a program to
mitigate the impact of stress and trauma on humanitarian aid workers. For complete program details, please see the full
announcement on the CDC website at The estimated funding date is August
31, 2006
HUD - US Department of Housing and Urban Development Section 202 Demonstration Pre-
Development Grant Program Grant
The purpose of the Section 202 Demonstration Pre-Development Grant Program is to provide predevelopment grant funding
for architectural and engineering work, site control, and other planning-related expenses that are eligible for funding under
the Section 202 Supportive Housing for the Elderly Program. Eligibility for predevelopment grant funding is limited to
projects that have received Fund Reservation awards pursuant to the FY 2005 Section 202 SuperNOFA for the Section 202
Supportive Housing for the Elderly Program. Subsequent to providing predevelopment grant funding to the selected eligible
applicants, HUD will assess the impact of the availability of such funding on the ability of project Sponsors to expedite the
development processing of projects from Section 202 Fund Reservation to Initial Closing within 18 months. HUD is aware of
the complexities of developing Section 202 projects and understands that a lack of predevelopment funding may be a
contributing factor in many instances where project Sponsors are not able to move their approved projects from the Fund
Reservation award to Initial Closing within the required 18-month time frame. Funding under this program is not intended to
duplicate Section 202 Capital Advance funding, but rather to provide a source of funding for predevelopment costs that
would otherwise not be reimbursable until Initial Closing or would be payable from eligible funding resources secured
outside of Section 202 Capital Advance funding.

ED - U.S. Department of Education Technology and Media Services for Individuals
with Disabilities Program Grant
The purpose of this program is to: (1) Improve results for children with disabilities by promoting the development,
demonstration, and use of technology, (2) support educational media services activities designed to be of educational value in
the classroom setting to children with disabilities, and (3) provide support for captioning and video description that is
appropriate for use in the classroom setting. Catalog of Federal Domestic Assistance (CFDA) Number: 84.327N. If you
choose to submit your application electronically, you must use the Apply site at Through
this site, you will be able to download a copy of the application package, complete it offline, and then upload and submit
your application. You may not e-mail an electronic copy of a grant application to us. You may access the electronic grant
application for the Captioned and Described Educational Media: Selection, Closed Captioning, Video Description, and
Distribution-CFDA Number 84.327N competition at: You must search for the downloadable
application package for this program by the CFDA number. Do not include the CFDA number's alpha suffix in your search.
The telephone number for the Helpdesk is 1-800-518-4726.

To view additional funding opportunities on an ongoing basis visit the Funding News Section of the Quality Mall. The
Quality Mall is maintained by the Research and Training Center on Community Living at the University of Minnesota with
support from the National Association of State Directors of Developmental Disabilities Services, the Human Services
Research Institute and the Administration on Developmental Disabilities - U.S. Department of Health and Human Services.

                                                    Career Ladder
Position: Director of Advancement and Corporate Relations, The Arc of the United States
Description: The Arc of the United States, the nation’s oldest and largest nonprofit organization advocating for
service and supports for people with intellectual and developmental disabilities, is seeking exceptional candidates
for the position of Director of Advancement. We are seeking a skilled development professional to join the
national staff in Silver Spring, MD to plan and implement corporate relations activities including corporate giving,
                                                                                                      Monday Morning Memo
                                                                                                         The Arc of California
                                                                                                    May 8, 2006, page 12 of 15
                                                                                             Tony Anderson, Executive Director
affinity programs, cause marketing and sponsorship programs. The position will also collaborate on major gift and
foundation relations activities. A track record in corporate giving and sponsorship marketing along with high
degree of creativity, outstanding writing skills, and five or more years of senior development or marketing
experience is essential. Location: Silver Spring, MD
Salary: Competitive compensation and benefits provided.
How to Apply: Please email cover letter and resumes to No phone calls please. Closing
Date: 5/1/2006.

Position: Director of Chapter Services, The Arc of the United States
Description: The Arc of the United States, the nation’s oldest and largest nonprofit organization advocating for
service and supports for people with intellectual and developmental disabilities, is seeking exceptional candidates
for the position of Director of Chapter Services and Support. This key position leads and manages a highly
effective service delivery program to support The Arc’s network of more than 900 chapters. The service delivery
team will provide chapters with the tools they need to provide the highest quality advocacy, information, supports
and services to people with intellectual and developmental disabilities. The Director will coordinate and
collaborate with other functional departments to develop programs, manuals, materials and training in areas of
chapter operations. The position will help increase the visibility and value of affiliation with The Arc and foster
collaborative relationships between The Arc and chapters and among chapters of The Arc throughout the country.
Bachelor’s degree or equivalent is required. Experience of no less than three years a state or local chapter
executive or executive of a community-based organization is highly desired. Prior experience with a national office
in chapter or field operations is a plus. Understanding of grassroots organizations along with experience in
membership marketing and chapter development required. Location: Silver Spring, MD
Salary: BOE
How to Apply: How to Apply: Please send a cover letter, salary history and resume in confidence to Mike
Coburn, Chief Operating Officer, The Arc of the United States, 1010 Wayne Avenue, Suite 650, Silver Spring, MD
20910 or email, closing Date: 5/1/2006

Position: Deputy Director, The Arc of San Francisco
Description: Reporting directly to the Executive Director, the Deputy Director will provide a pivotal leadership role
within the organization. This executive level person will be responsible for the overall management of all agency
services and supports; intake, information and referral; self-advocacy, personal safety, and individual advocacy;
and quality assurance of services provided. He/She will represent the Agency as an advocate for person with
developmental disabilities and their families. In addition, in the absence of the Executive Director, he/she will
represent and direct the Agency at all levels. This position requires a BA/BS in a relevant field. Masters Degree
in a relevant field preferred. A minimum of 7 years experience working in the field of developmental disabilities
and at least 2 years involvement promoting self-advocacy and individual advocacy, and 5 years of staff
supervision and program administration is also required. Because of the high level of this position a very strong
base of knowledge and abilities is expected including knowledge of all aspects of services for persons with
developmental disabilities, knowledge of the San Francisco community and California service and funding
patterns (preferred), ability to maintain cohesive working relationships with co-workers and other agencies, ability
to work as an effective leader as well as collaborative team member, knowledge of current trends in the field and
commitment to integrated activities for persons with developmental disabilities, a commitment to the full
integration of clients into the community and self-determination.
Salary: $70 - $90 depending on experience. The Arc of San Francisco offers a competitive salary with benefits.
How to Apply: Submit resumes with a cover letter to The Arc of San Francisco c/o Executive Director
Recruitment, 1500 Howard Street San Francisco, CA 94103 Phone: (415) 255-7200 Fax: (415) 255-9488 or

Position: Executive Director, United Advocates for Children of California
Description: The Chief Executive Officer oversees the program activities of the organization. This includes
development, implementation, and training and managing professional and support staff, proficient in budget
planning and monitoring, implementing the strategic plan established by the board, seeking funding from
government grants and foundation grants, implementing multicultural values and principles within the agency, and
providing direction and leadership for UACC’s growth. Experience: A minimum of five years experience in
administration and program management in nonprofit or association management. Must have working knowledge
of the California public mental health system as it relates to children and youth. Demonstrated skills in leadership,
management, organization, planning, evaluation, oral and written communication skills, problem solving and team
building. Education: A minimum of a Bachelors degree. Masters degree preferred. Requirement: Must be a parent
                                                                                             Monday Morning Memo
                                                                                                The Arc of California
                                                                                           May 8, 2006, page 13 of 15
                                                                                    Tony Anderson, Executive Director
or caregiver of a child who is currently, or who has in the past, received services from a public agency for mental
health related issues. Preference: Preference given to those who can demonstrate experience working with
racially and ethnically diverse communities, low socioeconomic status communities, and other culturally diverse
communities. The Chief Executive Officer will exhibit proficiency in the following three (3) roles: 1. Technical skill
in the area
Salary: $7,900.00 - $10,400.00 per month Medical, dental and vision plans, Retirement benefits, Vacation & sick
accrual, holidays, voluntary supplemental insurance and cafeteria plan.
How to Apply:

Position: Project Manager, California Work Incentives Initiative WID Berkeley
Description: The Project Manager serves as a team leader, coordinating activities and partner relationships for:
1) development, testing and maintenance of web based calculator features; 2) Spanish translation products; 3)
web site content updates and maintenance: 4) preparation of a written manual describing the processes and
partnerships required to establish state-focused information services on disability and work; 5) as well as training,
outreach, public policy and technical assistance activities provided to end users of DB101 Information Services.
The successful candidate works closely with the CWII Program Manager, project staff, project partners, interns
and volunteers, and recommends regular improvements to program design and production efficiencies, including
product maintenance and integration activities.
Salary: $44,000 annual base range at 100% FTE combined with an excellent health care and benefits package
How to Apply: Please send 1) Resume, 2) writing samples, 3) cover letter and 4) references to:
Mail: World Institute on Disability, Attn: Project Manager Search Committee, 510-16th Street, Suite 100, Oakland,
CA 94612 FAX: (510) 763-4109 NO CALLS PLEASE (WID acknowledges receipt of applications by mail.)
Testing Process: Submit sample(s) of authored written products showing evidence of qualifications. On site
written testing may be conducted. Application Deadline: Position open until filled

Position: Program Manager, FREED Center for Independent Living
Description: Under the guidelines set by the Executive Director, the Program Manager will administer the service
delivery program of FREED Center for Independent Living. ESSENTIAL DUTIES AND RESPONSIBILITIES:
Report to the Executive Director and execute FREED’s service policy. Supervise service staff activities the “core”
service delivery program and review and monitor case files. Establish service management systems, policies and
procedures. Supervising staff in carrying out these programs and systems. Assist in the development of goals
and objectives for all of FREED’s service programs. Conduct staff evaluations. Plan and implement staff
orientation and trainings. Assist in developing service programs, including preparation of grant applications.
Participate in the refining of the annual budget and its revisions. Assist in planning and carrying out outreach
activities to underrepresented groups. Assist in designing the agency’s planning process as it relates to service
provision. Oversee community awareness, education and advocacy projects in Nevada County. Assist in
carrying out public relations activities and presentations. Prepare reports utilizing FREED’s data collection
systems. Work cooperatively with FREED’s Branch Manager to insure continuity in service policies, procedures,
outreach and education activities. The program manager position is in Grass Valley:
Salary: Range starts at $17.66/hr
How to Apply: Please submit your resume, application (download from website:, and cover letter to: Ann Guerra c/o Program Manager Position, 900
East Main Street, Suite 201, Grass Valley, CA 95945 - Position open until filled.

Position: Executive Director, Alta California Regional Center
Description: ACRC is seeking an Executive Director who is accountable to the 25 member Board of Directors
and is expected to maintain a strong relationship with the Board and its’ various committees. The Executive
Director provides overall leadership for the regional center to ensure appropriate services are provided for the
developmentally disabled and those at risk in accordance with the Lanterman Act and existing legislation and
regulations, the center’s contract with the State Department of Developmental Services, and the policies and
goals established by the Board of Directors. The Executive Director selects and supervises key management staff
and is expected to lead and develop a strong management team with a results-oriented and accountability driven
expectation. The Executive Director monitors and manages an operating budget of approximately $200 Million.
Alta California Regional Center is currently searching for a new Executive Director. If you would like to view the
job announcement for this position, please click on the link below. Additionally, if you, or someone you know,
would like to apply for this position, please click on the link below to download a copy of the ACRC application.
Salary: Competitive

                                                                                              Monday Morning Memo
                                                                                                 The Arc of California
                                                                                            May 8, 2006, page 14 of 15
                                                                                     Tony Anderson, Executive Director
How to Apply: All resumes and applications for this position should be submitted to InfoSYS, Attention: Evelyn
Milani, Post Office Box 728, Elk Grove, California 95759. E-mail Position open until

                                                                                          Monday Morning Memo
                                                                                             The Arc of California
                                                                                        May 8, 2006, page 15 of 15
                                                                                 Tony Anderson, Executive Director