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UN HIGH LEVEL SUMMIT ON NON-COMM

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					                                                              International
                                                                   Diabetes
                                                                 Federation


                                                           DIABETES
                                                          ROADMAP




                                                                       for the
                           UN HIGH LEVEL SUMMIT
                          ON NON-COMMUNICABLE
                                 DISEASES (NCDs)
                                                          September 2011




DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
EXECUTIVE SUMMARY

In 2009 the International Diabetes Federation (IDF) formed the NCD Alliance with
our sister federations the World Heart Federation (WHF), the Union for International
Cancer Control (UICC) and more recently, the International Union for Tuberculosis
and Lung Disease (The Union). The NCD Alliance represents the four priority non-
communicable diseases (diabetes, cancer, chronic respiratory and cardiovascular
diseases) identified by the World Health Organization (WHO), and with its 880
constituent member associations, has created a powerful voice for change and
mobilized civil society to successfully campaign for a United Nations Summit on
NCDs.

On 13th May 2010, the UN General Assembly voted unanimously for UN Resolution
64/265 to hold a UN Summit on NCDs in September 2011. The UN Summit on
NCDs is a major opportunity to put diabetes and the other NCDs on the global
health and development agenda. It has the potential to secure commitments from
Heads of Government for a coordinated global response to NCDs, substantially
increase resources for NCDs and save millions from premature death and
debilitating health complications. A similar Summit on HIV/AIDS in 2001 proved a
turning point for that disease.

In the lead up to the Summit on NCDs in September 2011 IDF will play a
prominent role at two levels. First, by playing a leadership role in the NCD
Alliance to drive a programme of work which will include:

•    a global consultation process to finalize a package of NCD key asks and
     priority interventions
•    a global price tag to implement these interventions
•    an advocacy strategy that will ensure these key asks and interventions are
     followed up through a strong outcomes statement by UN Heads of State at the
     NCD Summit

Second, IDF will mobilise the global diabetes community to scope a programme
of diabetes specific advocacy and technical work to feed into and complement the
umbrella NCD platform.

This document outlines IDF’s key objectives and deliverables for the UN Summit
on NCDs. The global diabetes community needs to mount a visible and coherent
campaign to ensure diabetes needs and priorities get onto the global agenda of the
UN Summit. IDF has the legitimacy and the capacity to lead such a movement for
the Summit and drive strong outcomes for diabetes.



DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
DIAbETES & NCDs:
A SERIOUS GlObAl EMERGENCY
The epidemic of NCDs has been largely ignored by the
international community, despite representing 60% of all
deaths globally, 80% of which are in low- and middle-income
countries (LMICs). The World Health Organization (WHO)
estimates that 8 million people die prematurely in LMICs
from NCDs every year. The World Economic Forum (WEF) has
identified NCDs as the second most severe threat to the global economy in terms of
likelihood and potential economic loss. NCDs are a major cause of poverty, a barrier
to economic development, and a neglected global emergency.

UN member states have called unanimously for a Summit on NCDs, recognizing
that there is an urgent global need to address this debilitating and costly epidemic.
Diabetes, one the four priority NCDs identified by WHO, remains a misunderstood
and neglected epidemic with numbers increasing alarmingly in every region of
the world. The global diabetes epidemic is now imposing a heavy dual burden of
infectious and non communicable diseases on already under resourced health
systems in low and middle income countries. To date, no country has succeeded in
turning around the figures.



 HEADlINE DIAbETES FACTS:

   •   According to the IDF, there are over 300 million people with diabetes
       worldwide and this number is expected to grow to around 500
       million in a generation.

   •   low- and middle-income countries account for 4 out of 5 cases of
       diabetes. Most deaths and complications related to diabetes in low-
       and middle-income countries are in the economically productive age
       group (30 to 50 years).

   •   There are 50.8 million people with diabetes in India and 92.4
       million in China.

   •   Africa will have the highest percentage increase in the number
       of people with diabetes over the next 20 years. 80% of people with
       diabetes in Africa are undiagnosed.




               DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
THE ROlE OF IDF
IN THE UN SUMMIT ON NCDS
IDF will contribute to the UN Summit on NCDs at three levels by:

1. TAKING A lEADERSHIp ROlE wITHIN THE NCD AllIANCE
By representing diabetes within the NCD Alliance. IDF’s Chief Executive Officer chairs
the NCD Alliance Steering group and will hold this position until December 2011.

2. MObIlISING THE GlObAl DIAbETES COMMUNITY
As the voice of the global diabetes community, representing over 200 member
associations in 160+ countries and territories. IDF will develop the diabetes specific
plans, models, data and advocacy materials to feed into the UN Summit on NCDs
and guide action after it.

3. DRIVING CHANGE IN THE AFTERMATH OF THE UN SUMMIT
As the owner of the World Diabetes Congress and World Diabetes Day
communication platforms, IDF is in a unique position to drive change and follow up
on the progress of actions initiated as an outcome of the Summit.




IDF KEY ObJECTIVES
FROM THE UN SUMMIT ON NCDs
IDF is mobilising the global diabetes community to scope a programme of diabetes
specific work that will aim to:

•    strengthen and unify the global diabetes movement for the short and long
     term

•    further raise awareness of diabetes amongst the general public and policy
     makers, building on the foundation of UN Resolution 61/225 on diabetes

•    strengthen the diabetes evidence base, including knowledge of cost effective
     solutions, as a basis for strong policy making

•    create the diabetes plans and models to form the essential foundation for the
     follow up work that will be required after the September 2011 Summit

•    ensure diabetes is prominent within NCDs and broader global health policy


DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
IDF’S
UNIQUE pOSITION
1.   IDF is the legitimate voice of the global diabetes
     community, representing the people on the ground
     worldwide through more than 200 member associations
     in over 160 countries – IDF incorporates into its work
     solid input from the ground and has local support for
     the implementation of its projects.

2.   IDF has an outstanding record as the leader of global advocacy on behalf of
     people with diabetes since 1950: having achieved UN Resolution 61/225
     in 2006 and been a major driving force behind UN Resolution 64/265 in 2010,
     IDF is uniquely positioned to ensure the best results of the UN Summit in 2011
     and coordinate global action in its follow up.

3.   IDF combines leading scientific and public health expertise in diabetes,
     its links to other diseases and conditions and its implications on a national,
     regional and global level – IDF has the right blend of expertise in all areas
     needed to design the optimal diabetes plan and diabetes model which will
     work in synergy with communicable diseases.

4.   IDF owns the unique communication platforms of world Diabetes Day and
     the world Diabetes Congress which enable it to drive the implementation
     of action plans arising out of the Summit. The next World Diabetes Congress
     takes place shortly after the Summit in December 2011 and will represent a
     major opportunity to energize the global diabetes community especially due
     to the addition of a global advocacy dimension at ministerial level. The IDF
     World Diabetes Congress has also moved to a 2-year cycle which enables close
     monitoring of any Summit outcomes.

5.   IDF has a solid record and broad experience in partnerships: from the
     NCD Alliance to WHO, PAHO, the World Economic Forum and leading industry
     representatives. IDF is able to work on achieving and implementing Summit
     outcomes through a unique network of partnerships contributing expertise
     and support in various areas which are key to tackling the diabetes and
     NCD epidemic.




               DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
IDF DElIVERAblES
FOR THE UN SUMMIT
In order to achieve these key objectives for the UN Summit and feed into and
complement activity at NCD level, IDF will work with its network and partners to
produce diabetes specific deliverables by:

1.   lEADING GlObAl ADVOCACY FOR DIAbETES

     •     Being the voice of diabetes within the NCD Alliance
     •     Contributing diabetes perspectives to the NCD Alliance’s desired
           Outcomes Statement from the Summit
     •     Representing diabetes in official UN online and physical pre Summit NGO
           consultations
     •     Holding high visibility side events on diabetes at major political events
     •     Continuing to make diabetes visible and understood through print media
           and on line communications
     •     Leading the annual World Diabetes Day global campaign


2.    pRODUCING DIAbETES EVIDENCE AND ANAlYSIS

     •     Contributing evidence on diabetes prevalence and costs to NCD Alliance
           joint work with World Economic Forum on ‘the business case for NCDs’ and
           costing of the NCD Global Plan
     •     Producing and disseminating factsheets and policy briefs on key aspects
           of diabetes eg diabetes and the Millennium Development Goals (MDGs)
     •     Giving evidence on diabetes at roundtables and panels at the Summit and
           other high level meetings
     •     Identifying critical gaps in diabetes data and research


3.   pROMOTING bEST pRACTICE AND wORKAblE SOlUTIONS

     •     Convening an IDF group of international experts to deliver a Global
           Diabetes Plan
     •     Convening an IDF group of international experts to deliver an IDF Diabetes
           Care Model
     •     Costing diabetes solutions
     •     Promoting and supporting national diabetes plans
     •     Contributing as requested to key global publications particularly WHO
           Global NCD Status Report (December 2010), World Economic Forum
           Global Risks Report (2011)

DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
4.   MObIlISING OUR MEMbERS AT NATIONAl AND
     REGIONAl lEVElS

     •   Consulting IDF members on their priorities for
         Summit outcomes and feeding these into NCD
         Alliance positions and official consultations
     •   Supporting our members to participate in national and regional
         consultations for the Summit
     •   Working with IDF members to coordinate clear global messages on
         diabetes
     •   Contributing perspectives from the diabetes community on the rights of
         people with NCDs and non discrimination
     •   Convening the global diabetes community at the World Diabetes
         Congress in Dubai December 2011 to focus on implementation of Summit
         agreements in diabetes


5.   bUIlDING STRATEGIC AllIANCES FOR DIAbETES

     •   Supporting and giving strategic direction to WHO’s NCDNet. IDF’s
         President sits on the NCDNet International Advisory Council (meeting
         September 2010). IDF will participate in the second NCDNet meeting
         (Russia, April 2011). IDF provides staff support to the NCDNet working
         groups on advocacy and innovative financing
     •   Working in partnership on diabetes/NCDs with the World Economic
         Forum. IDF has signed a partnership agreement with WEF, will attend key
         regional meetings in the lead up to the Summit to promote NCDs with
         business leaders, will work with WEF on analysis of the cost of NCDs and
         support a high profile event at Davos 2011 on NCDs
     •   Using the Summit process to engage a wider group of organizations
         (research organisations, health professional’s associations, foundations etc)
         to work on diabetes
     •   Engaging the corporate sector through the World Economic Forum, IDF
         corporate partners and other channels
     •   Identifying high profile global champions for diabetes




              DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
AFTER
THE UN SUMMIT

     IDF envisages activity after the UN Summit on NCDs since the Summit
     is part of a longer term process of advocacy for diabetes and the
     other NCDs. In particular, IDF plans to link the Summit to two events
     happening immediately after it.


IDF will use the November 2011 World Diabetes Day (WDD) campaign to further
engage the general public on diabetes and continue the momentum, putting
pressure on political leaders to deliver what has been promised. Summit outcomes
will also be discussed at the one day political event, the Global Diabetes Forum,
planned for the World Diabetes Congress in Dubai, December 2011. A new
programme theme, Global Challenges in Health, has also been added to the
congress to allow for discussions on topics including NCDs, economics of diabetes,
diabetes and sustainability.

IDF’s plans do not contain detailed plans for activity after the Summit beyond WDD
and the congress in Dubai. Immediately after the Summit, however, the NCD Alliance
plans to hold a stocktaking meeting to discuss immediate next steps for follow up.
We expect the Summit to generate requests for further information and research
on specific topics and for pilot programmes in some areas. IDF will be ready to take
these forward with our members and partners in diabetes to ensure opportunities
are not lost.




DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
CONClUSION




The UN Summit on NCDs is a once in a generation opportunity to put diabetes and
the other NCDs on the global agenda and leverage commitments that will stem an
epidemic which is destroying millions of lives. IDF was one of the original voices
calling for a UN Summit on NCDs. We saw such a Summit building on the global
recognition of diabetes expressed in 2006 by UN Resolution 61/225 on diabetes. A
strong platform of agreements from this Summit will enable the world to measure
progress at global and national levels on action to turn around the NCD epidemic.

The countdown to the UN Summit has begun, we have just one year to prepare
for the Summit putting us under pressure to produce and package the arguments,
evidence and solutions. IDF and its members have raised awareness of the diabetes
problem, now we have an opportunity to market our solutions. The global diabetes
community needs to mount a visible and coherent campaign to ensure diabetes
needs and priorities get onto the global agenda. IDF has legitimacy and the capacity
to lead such a movement for the Summit and drive strong outcomes for diabetes.

We need your support.




              DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
ANNEX 1:
THE NCD AllIANCE - bUIlDING
GlObAl COMMITMENT TO NCDs
The NCD Alliance, constituted of the International Diabetes
Federation (IDF), World Heart Federation (WHF), Union for
International Cancer Control (UICC) and the International
Union for Tuberculosis and Lung Disease (The Union) is
a credible, strong and unique alliance with an 18 month
history of successful collaboration. The NCD Alliance represents the four priority
NCDs (cancer, diabetes, chronic respiratory and cardiovascular diseases) identified
by WHO, and represents more than 880 member organisations in over 170 countries
and territories. No other NGO or grouping of NGOs can claim to be the legitimate
voice of the global NCD community.

OUR VISION

The NCD Alliance has broad long term global objectives, which provide the context
for the specific requirements from the UN Summit on NCDs in September 2011. This
long term vision includes:


 1                        NCD / disease national plans for all

 2                                  Improved lifestyles

 3                            Strengthened health systems

 4                  Global access to affordable and good quality
                            medicines and technologies

 5                                 A tobacco free world

 6                        Human rights for people with NCDs




                                   ANNEX HIGH NCD SUMMIT BUILDING GLOBAL COMMITMENT TO NCDs
              DIABETES ROADMAP for the UN 1: THELEVEL ALLIANCE:ON NON-COMMUNICABLE DISEASES (NCDs)
NCD AllIANCE KEY ‘ASKS’ FROM THE
SUMMIT
Since the UN Summit was announced in May, the four partners of the NCD Alliance
have been hard at work putting together civil society plans and strategies for the
Summit and the partnership structures to deliver strong outcomes.

The NCD Alliance’s specific ‘asks’ from the UN Summit is an Outcome Statement
which leads to the following outcomes:


                               Governments to be accountable
 1
                                and measured on NCD plans

                    Framework Convention on Tobacco Control (FCTC)
 2
                               to be fully implemented

 3                   A global commitment to prevent the preventable

 4               Globally agreed approaches to NCD treatment and care

 5                         Resources to deliver NCD interventions

 6                             NCDs in the MDG successor goals

The NCD Alliance wants full implementation of the WHO Framework Convention
on Tobacco Control (a major risk factor for all NCDs) and for the Summit to deliver
action from global to local levels on NCD prevention. Allocating sufficient resources
to NCD treatment, prevention, management, research and health systems is
essential to implementing Summit recommendations. A key Summit deliverable
will include globally agreed approaches to NCD treatment and care. Finally, NCDs
need to be built into global targets for the future, particularly the successor goals
to the Millennium Development Goals (MDGs) after the MDG expiry date of 2015.
Their omission from the current MDGs has distorted patterns of health expenditure
in LMICs and left the growing epidemic of NCDs in those counties seriously under
resourced.



DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
ANNEX 1: THE NCD ALLIANCE: BUILDING GLOBAL COMMITMENT TO NCDs
NCD AllIANCE ACTION TO
SUppORT A SUCCESSFUl
SUMMIT
In order to achieve these outcomes, the NCD Alliance is driving forward five areas of
work for the Summit and its immediate aftermath:


 1                    leading a civil society movement for NCDs

                  producing evidence based arguments to support
 2
                                  the NCD cause

                      Acting as the global voice for our members
 3
                                 and people with NCDs

       Creating a Global plan for NCDs and sharing innovative solutions and
 4
                               best practice on NCDs

       working with likeminded NGOs, governments and businesses to take
 5
            forward NCD Alliance key ‘asks’ for and from the Summit




                                    the UN HIGH NCD SUMMIT BUILDING GLOBAL COMMITMENT TO NCDs
               DIABETES ROADMAP for ANNEX 1: THELEVELALLIANCE:ON NON-COMMUNICABLE DISEASES (NCDs)
SUMMARY OF                                                         long-term
UN SUMMIT                                                          objectives

STRUCTURES




                                                                      work
                                                                      areas




                                                                    Summit
                                                                      key
                                                                   objectives




DIABETES THE NCD ALLIANCE: BUILDING GLOBAL COMMITMENT TO NCDs
ANNEX 1: ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)
                            NCD Alliance Steering Group


                      Leading a civil society movement for NCDs


       Acting as the global voice of our members and people with NCDs


       Producing evidence based arguments to support the NCD cause


            Creating a Global Plan for NCDs and sharing innovative
                     solutions and best practice on NCDs

     Working with likeminded NGOs, governments and businesses to take
           forward NCD Alliance key ‘asks’ for and from the Summit


                                 NCD Summit Staff Team


                                         NCD Alliance            Alliance
                     UN Summit
                                           Common                Partners
                   Partners Group
                                        Interest Group            Group


                                      working groups


                       Defining a                            Health Systems
 High Level                               The Business                             NCD Data
                      Global Plan                             and Solutions
Advocacy and                                 Case for                               Systems,
                     for NCDs and                               for NCD
Reaching the                               Investing in                           Research and
                       Innovative                            Prevention and
General Public                                NCDs                                Development
                        Solutions                              Treatment



                                      the UN HIGH NCD SUMMIT BUILDING GLOBAL COMMITMENT TO NCDs
                 DIABETES ROADMAP for ANNEX 1: THELEVEL ALLIANCE:ON NON-COMMUNICABLE DISEASES (NCDs)
                     Changing the world for diabetes




                                166 Chaussée de La Hulpe
                                 B-1170 Brussels, Belgium
                          tel +32-2-5385511 | fax +32-2-5385114
                                info@idf.org | www.idf.org

DIABETES ROADMAP for the UN HIGH LEVEL SUMMIT ON NON-COMMUNICABLE DISEASES (NCDs)