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									                              Yorkshire and the Humber
                       Children and Young People with Diabetes              Date:
                             Project Board Meeting Notes
                                                                            26/09/08


 Meeting: Children and Young People with Diabetes Project Board
    Date: 26th September 2008
 Purpose:      To update the group on progress to date with the Children and
                   Young People with Diabetes project
Attendees: Fiona Campbell (Chair)           Carole Geldar
           Shaun Gorman                     Julie Cropper
           Karen Shimon                     Liz Webster
           Philip Holland                   Brian Ladd
           Peter Trigwell                   Anna Morton
           Shirley Ellwood


Apologies: John Chadwick                     Amy Towler
           Paula Dearing                     Mark Hannigan
           Dominic Smith                     Alistair Duff
           Steve Jones                       Trish McKinney
           Carolyn Stephenson
  Agenda:     1. Introductions and minutes of last meeting
              2. Update progress on care planning model
              3. Update progress on the CYPD System Templates
              4. Reflections on the CYP Framework
              5. Next steps and implementation
              6. AOB
  Actions:     Brian Ladd to draft a one page summary on how to influence and
                  change the service.
               Peter Trigwell and Karen Shimmon to expand on emotional and
                  psychological wellbeing for the document.
               Anna Morton and Fiona Campbell to add empowerment to
                  document.
               Fiona/Anna to draft a letter for distribution with the service model to
                  Commissioners.
               Brian to forward service specifications to Shirley prior to 7th
                  November.

    Notes:      1. Introductions and minutes of last meeting

                   Introductions were made.
                   There were no minutes of the previous meeting available.

                2. Update progress on Care Planning Model

                   The Diabetes Services for Children and Young people care planning
                   model was tabled. The model is currently in its first draft. Fiona
                   Campbell and Anna Morton had recently attended a meeting with Sheila
                   Shribman, National Clinical Director for Children’s and Maternity
                   Services, with a view to sharing the proposed model. Although in its draft
                   format the proposal was favourably received. The model has influenced
                   a change in the wording to the Darzi next steps document under the
                   paediatric section. This will be a key driver as we move forward with this
                   work across Yorkshire and the Humber.
          Yorkshire and the Humber
   Children and Young People with Diabetes               Date:
         Project Board Meeting Notes
                                                         26/09/08


The question was asked; Is the model right? Will it work across Yorkshire
and the Humber? How can we encourage people to engage with this
programme?

A discussion took place around the above question with the following
outcomes:

       A key messages document to be developed to enable further
        engagement with the project.
       Key measurable outcomes to be obtained from getting sorted pilot
        sites.
       Engagement with clinicians and people with diabetes should be
        sought.
       A meeting with commissioners and children’s commissioners
        should be arranged, it was felt that this would be wider than just
        the pilot sites.
       The creation of a network to help facilitate this piece of work
        should be established. This network would help create the
        service specification and protocols required to drive the project
        forward.
       A first meeting of commissioners set up possibly via Jean
        Hawkins, SHA Lead for Children’s Services to be set up as an
        interim measure. This group would look at the needs of the
        service changes required and create the vision for the service.

Liz Webster informed the group that a number of meetings for the
Getting Sorted work had been arranged which included commissioners
from the pilot areas (Leeds, Bradford, Kirklees, Wakefield and Hull).
Work is already underway in County Durham to create a toolkit that will
enable the young people with diabetes to run workshops. Service
specifications are being drawn up by Sarah Landells.

It was felt that a one page summary on how to influence and change the
service should be developed. Brian Ladd agreed to undertake this piece
of work.

ACTION: Brian Ladd to draft a one page summary on how to
influence and change the service.

Clarification was sought to the age of the Young People covered by this
model. It was agreed that the age range was up to a persons 25th
birthday or beyond in certain circumstances.

Peter Trigwell suggested that Mental Health should be involved with this
piece of work due to the age range.

Fiona Campbell stated that from her point of view two things were
missing from the document in its current format:

       Inpatient Diabetes Module
       Psychological interfaces with the programme
              Yorkshire and the Humber
       Children and Young People with Diabetes               Date:
             Project Board Meeting Notes
                                                             26/09/08


   It was agreed that Peter Trigwell and Karen Shimmon would undertake
   to write this section of the document.

   ACTION: Peter Trigwell and Karen Shimmon to expand on
   emotional and psychological wellbeing for the document.

   It was also noted that “empowerment” was omitted from the document.
   Anna and Fiona to ensure that this is included in the next draft.

   ACTION: Anna Morton and Fiona Campbell to add empowerment to
   document.

   Anna suggested that there was an opportunity to raise the profile of this
   work through the NDST and Mark Hannigan in particular when he takes
   up his new post.

3. Update on Progress of SystmOne Diabetes Paediatric Templates

   Philip Holland had created the paediatric templates to be used by
   SystmOne. These had been passed onto Sheila Shribman for her
   information and to encourage the adoption of the templates nationally.

4. Reflections on the CYP Framework

   It was generally agreed that a timeline would be helpful. The timeline
   should state what was going to happen, when it was going to happen and
   who would be charged with making it happen.

   A session to set a timeline in place was held. Please see attached
   timeline for further information.

5. Next steps and impelementation

   Fiona informed the group that an education meeting was being held for
   clinicians on the 8th October at the Thackray Medical Museum in Leeds.
   It was hoped that during the morning session an update on the proposed
   network could be given.

   A letter would be drafted to go out with the service model to
   commissioners.

   ACTION: Fiona/Anna to draft a letter for distribution with the service
   model to Commissioners.

   Brian Ladd to forward service specifications to Shirley Ellwood prior to
   the next meeting of this group.

   ACTION: Brian to forward service specifications to Shirley prior to
   7th November.

   Brian to assist with the links to Darzi and World Class Commissioning in
   the Care Planning Model.
            Yorkshire and the Humber
     Children and Young People with Diabetes            Date:
           Project Board Meeting Notes
                                                        26/09/08



  Fiona informed the group that the current NICE guidelines on children
  and young people with diabetes was due for review and wondered if we
  had a chance to influence the future content of the document.

6. AOB

  The meeting scheduled for 24th October has been cancelled. The next
  meeting will take place on 7th November from 10am – 12noon in the
  Conference Room at Blenheim House, Leeds.

								
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