Yorkshire and the Humber Children and Young People with Diabetes Date: Project Board Meeting Notes 26/09/08 Meeting: Children and Young People with Diabetes Project Board Date: 26th September 2008 Purpose: To update the group on progress to date with the Children and Young People with Diabetes project Attendees: Fiona Campbell (Chair) Carole Geldar Shaun Gorman Julie Cropper Karen Shimon Liz Webster Philip Holland Brian Ladd Peter Trigwell Anna Morton Shirley Ellwood Apologies: John Chadwick Amy Towler Paula Dearing Mark Hannigan Dominic Smith Alistair Duff Steve Jones Trish McKinney Carolyn Stephenson Agenda: 1. Introductions and minutes of last meeting 2. Update progress on care planning model 3. Update progress on the CYPD System Templates 4. Reflections on the CYP Framework 5. Next steps and implementation 6. AOB Actions: Brian Ladd to draft a one page summary on how to influence and change the service. Peter Trigwell and Karen Shimmon to expand on emotional and psychological wellbeing for the document. Anna Morton and Fiona Campbell to add empowerment to document. Fiona/Anna to draft a letter for distribution with the service model to Commissioners. Brian to forward service specifications to Shirley prior to 7th November. Notes: 1. Introductions and minutes of last meeting Introductions were made. There were no minutes of the previous meeting available. 2. Update progress on Care Planning Model The Diabetes Services for Children and Young people care planning model was tabled. The model is currently in its first draft. Fiona Campbell and Anna Morton had recently attended a meeting with Sheila Shribman, National Clinical Director for Children’s and Maternity Services, with a view to sharing the proposed model. Although in its draft format the proposal was favourably received. The model has influenced a change in the wording to the Darzi next steps document under the paediatric section. This will be a key driver as we move forward with this work across Yorkshire and the Humber. Yorkshire and the Humber Children and Young People with Diabetes Date: Project Board Meeting Notes 26/09/08 The question was asked; Is the model right? Will it work across Yorkshire and the Humber? How can we encourage people to engage with this programme? A discussion took place around the above question with the following outcomes: A key messages document to be developed to enable further engagement with the project. Key measurable outcomes to be obtained from getting sorted pilot sites. Engagement with clinicians and people with diabetes should be sought. A meeting with commissioners and children’s commissioners should be arranged, it was felt that this would be wider than just the pilot sites. The creation of a network to help facilitate this piece of work should be established. This network would help create the service specification and protocols required to drive the project forward. A first meeting of commissioners set up possibly via Jean Hawkins, SHA Lead for Children’s Services to be set up as an interim measure. This group would look at the needs of the service changes required and create the vision for the service. Liz Webster informed the group that a number of meetings for the Getting Sorted work had been arranged which included commissioners from the pilot areas (Leeds, Bradford, Kirklees, Wakefield and Hull). Work is already underway in County Durham to create a toolkit that will enable the young people with diabetes to run workshops. Service specifications are being drawn up by Sarah Landells. It was felt that a one page summary on how to influence and change the service should be developed. Brian Ladd agreed to undertake this piece of work. ACTION: Brian Ladd to draft a one page summary on how to influence and change the service. Clarification was sought to the age of the Young People covered by this model. It was agreed that the age range was up to a persons 25th birthday or beyond in certain circumstances. Peter Trigwell suggested that Mental Health should be involved with this piece of work due to the age range. Fiona Campbell stated that from her point of view two things were missing from the document in its current format: Inpatient Diabetes Module Psychological interfaces with the programme Yorkshire and the Humber Children and Young People with Diabetes Date: Project Board Meeting Notes 26/09/08 It was agreed that Peter Trigwell and Karen Shimmon would undertake to write this section of the document. ACTION: Peter Trigwell and Karen Shimmon to expand on emotional and psychological wellbeing for the document. It was also noted that “empowerment” was omitted from the document. Anna and Fiona to ensure that this is included in the next draft. ACTION: Anna Morton and Fiona Campbell to add empowerment to document. Anna suggested that there was an opportunity to raise the profile of this work through the NDST and Mark Hannigan in particular when he takes up his new post. 3. Update on Progress of SystmOne Diabetes Paediatric Templates Philip Holland had created the paediatric templates to be used by SystmOne. These had been passed onto Sheila Shribman for her information and to encourage the adoption of the templates nationally. 4. Reflections on the CYP Framework It was generally agreed that a timeline would be helpful. The timeline should state what was going to happen, when it was going to happen and who would be charged with making it happen. A session to set a timeline in place was held. Please see attached timeline for further information. 5. Next steps and impelementation Fiona informed the group that an education meeting was being held for clinicians on the 8th October at the Thackray Medical Museum in Leeds. It was hoped that during the morning session an update on the proposed network could be given. A letter would be drafted to go out with the service model to commissioners. ACTION: Fiona/Anna to draft a letter for distribution with the service model to Commissioners. Brian Ladd to forward service specifications to Shirley Ellwood prior to the next meeting of this group. ACTION: Brian to forward service specifications to Shirley prior to 7th November. Brian to assist with the links to Darzi and World Class Commissioning in the Care Planning Model. Yorkshire and the Humber Children and Young People with Diabetes Date: Project Board Meeting Notes 26/09/08 Fiona informed the group that the current NICE guidelines on children and young people with diabetes was due for review and wondered if we had a chance to influence the future content of the document. 6. AOB The meeting scheduled for 24th October has been cancelled. The next meeting will take place on 7th November from 10am – 12noon in the Conference Room at Blenheim House, Leeds.
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