VCTL Newsletter article 20110408

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VCTL Newsletter article 20110408 Powered By Docstoc
					Victorian Cancer Trials Link and finding suitable clinical trials for adolescents and
young adults

In 2007 and 2008, the Victorian Cancer Agency funded the Cancer Council Victoria to
develop a clinical trial matching database to make it easier for cancer patients and
clinicians to find suitable clinical trials. The Victorian Cancer Trials Link (VCTL)
website was initiated by Professor Raymond Snyder and the Victorian Cooperative
Oncology Group Breast Cancer Committee for breast cancer trials and was then
further expanded to include all tumour streams including Paediatric and Adolescent
and Young Adult (AYA) cancers.

Improvements in cancer survival rates for AYA lag behind those in children and older
patients over the last 3 decades. Clinical trials provide research traction that can
improve survival outcomes. AYA oncology patients suffer from a diverse range of
tumours and are treated across paediatric and adult health care sectors, with poor
clinical trials recruitment. Improving access to clinical trials for AYA patients is one of
the key challenges in optimizing the management of AYA. The Victorian Cancer Trials
Link (VCTL) website is a clinical trial matching database to make it easier for cancer
patients and clinicians to find suitable clinical trials for AYA cancer patients. It
includes all tumour streams including Paediatric and Adolescent and Young Adult
cancers. AYA patients can input their age to find a clinical trial suitable for them if
one is available. VCTL searches can also be performed by keyword or hospital.

It is important to note that the VCTL is not a clinical trial registry; it is a trial matching
database that links patients or clinicians to the relevant clinical trial registry for more
comprehensive information via a hyperlink. Hospital contact details, including a
name and phone number, are displayed for all Victorian sites participating in each
trial and this is a distinguishing feature.

A Victorian AYA clinical trial recruitment rate is currently being estimated by the
Victorian & Tasmanian Youth Cancer Network (VTYCN). Once known, this will provide
a baseline on which to measure change over time. Anne Mitchell et al reported an
AYA recruitment rate of approximately 5% (21/409) for the years 1992 to 1996 for
sarcoma, brain, haematological and germ cell cancers investigated. A VTYCN aim is
to improve the baseline AYA rate in line with the VCAP target. The average clinical
trial recruitment rate for all cancers in Victoria is approximately 7% based on
Victorian Cancer Registry incidence data.

The VCTL is a unique resource for Victoria that has the potential to build real capacity
in the area of clinical trials recruitment, for all patient age groups. For further VCTL
information, visit the website at www.cancervic.org.au/trials or contact Cancer
Council Victoria by email at trialslink@cancervic.org.au For further Victorian &
Tasmanian Youth Cancer Network or AYA clinical trial information, contact –
YouthCancerProject@petermac.org or 03 9656 5241.

References:

    1. Victorian Cancer Trials Link – www.cancervic.org.au/trials
2. Clinical Trials Office, Cancer Council Victoria. Report on 2009 Clinical Trial
   Activity in Victoria. Melbourne: Cancer Council Victoria, September 2010.
   http://www.cancervic.org.au/downloads/VCTL/CTMS_2009_-
   _Review_report_Final_.pdf
3. Mitchell AE, Scarcella DL, Rigutto GL, Thursfield VJ, Giles GG, Sexton M et al.
   Cancer in adolescents and young adults: treatment and outcome in Victoria.
   Med J Aust 2004; 180:59-62.

				
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posted:5/21/2011
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