Volume 5, Issue 3 April—June 2011
Sisterhood of Survivors
V O L U M E 5 , I S S U E 3 A P R I L — J U N E 2 0 1 1
Girl’s night out
Mission: Sisterhood of Survi-
vors is committed to assisting
newly diagnosed breast can-
cer patients and
Vision: SOS offers encourage- tuesday, april 19, 2011
ment, support, monthly lunch-
eons, volunteer opportunities, 4 pm — 8 pm
friendship, a resource library, and
a quarterly newsletter filled with
odd fellows hall
inspiration, resources, and event
information. SOS delivers educa-
2823 helm, clovis
(southeast corner of gettysburg & helm)
tional “totes” to the recently diag-
nosed, enabling survivors the raffles! •
opportunity to reach out to others
just beginning their treatment. • prizes!’
Each “tote” is delivered by a • tons of fun!
survivor, giving the new patient
an opportunity to talk to another • lots of pampering!
who has made the journey her- The second annual Girl’s Night
self. Contents are donated by
members of SOS, the commu- Out is around the corner! Last year was a great event with 35+ vendors com-
nity, and professionals. SOS plete with refreshments served by breast cancer survivors. Although we had stormy
pays for the making of the totes
as well as some of the contents.
weather, there was a fantastic turnout & we look forward to an even larger
SOS totes are delivered at no crowd this year. Girl’s Night Out is a FUN & UNIQUE opportunity for women to
cost. pamper themselves with great shopping, delicious food, & much more from many
local businesses. ADMISSION is FREE!
Quarterly SOS Events 2
MEET OUR BOARD MEMBERS
Margaret Hadcock is a board certified general surgeon who
Letter from the Editor has been practicing in Fresno since 1984. Since 1993 she
2 has limited her practice to the care of patients with breast
disease She has developed and expanded services and sup-
Breast Cancer port for breast cancer patients in the San Joaquin Valley.
Frequent community lectures to patients, families, other
SOS Member health care providers and fellow physicians have helped her
Highlight reach out to the Fresno community with her message.
Dr. Hadcock is a founding member of the multidisciplinary
3 conference that is held weekly to review patient care and
foster progressive discussion of care. She has promoted
Volunteer Training 3 development of lymphedema services provided by certified
lymphedema therapists and has extended knowledge of
Young Survivors News 4 practical prevention of lymphedema to medical colleagues.
She is a member for the American Society of Breast Surgeons and maintains her practice
with continual education. Thank you Dr. Hadcock for serving on the SOS Board.
P a g e 2 S i s t e r h o o d o f S ur v i v o r s
LETTER FROM THE EDITOR
M e e t i n g s
Inspiration for each other
By Diana Dhuyvetter
Planning Meetings @ 5:30 “April Fools’”
St. Agnes Cancer Center Some of you may have heard bits of my “story”
7130 N. Millbrook, Fresno when I was diagnosed with Stage 2 invasive
April 11 May 9 June 13 ductal carcinoma (IDC) in my left breast on April Fools Day
Luncheons @ Noon 2003. After the numbing fear went away, I jumped into over-
Carrow’s drive. A lumpectomy was performed and thankfully, the can-
1484 E. Shaw, Fresno cer did not spread to any sentinel nodes; however, my post-
surgery treatment included both chemo & radiation therapy
April 16 May 21 June 18 because the cancer was aggressive & my doctor wanted to treat
My support system included two women from work who had
Guest Speaker survived breast cancer. I emailed & phoned them constantly
May 21, 2011 asking all sorts of questions I was too embarrassed to ask the
Dr. M.A. Nezami doctor. These women were wonderful & spent as much time as
We apologize, this guest I needed explaining & sharing their own experiences. I refused
speaking engagement has to believe that I would have to go through chemo treatments,
been canceled. although Dr. Hadcock gently continued to prepare me & dis-
cuss what the treatment would involve.
My first visit to the oncologist was terrifying. I couldn’t stay in
the waiting room for my appointment & I immediately burst
into tears shortly after I signed in. I rushed outside to the fresh
air & warm spring sunshine trying to get a grip while I waited
for my appointment. My kids were a great support & helped
me get through that initial shock that I was really going to go
through chemotherapy. My biggest fear was losing my hair, not
the cancer, not the treatments, only that I would lose my hair.
No one can understand what we go through except us. It's a
club I didn't necessary want to join, but one, which I'm now
proud to be a part of. I've become much stronger because of
The Ninth Annual Cancer having had cancer. Once you have a potentially life-
Survivorship Series: threatening disease & come out of it, you realize there really is
Living With, Through and nothing more important than health. I've said to many people
Beyond Cancer that I'm not at all sorry that I had cancer…I HATE cancer, but
it’s changed me in ways that I like.
10:30 AM—12:30 PM
April 12—Part 1: Chemobrain For some of us, our recovery involves being helped by others,
May 10—Part II: Weight Changes & for some it will involve helping others. Some won't want
June 14– Part III: Stress Management anybody to know, while others will show & describe all that
July 12– Part IV: Fear of Recurrence we have been through. No matter what, it is all okay. It's okay
to be afraid, to cry, to yell, to laugh; it's all okay. It has taught
A free Connect Workshop Series for cancer survivors,
me that things could be worse & that there is always a blessing
their families, friends, and health care professionals
You can listen to this workshop over the telephone or to be counted. I have found that there is a sisterhood out there
online. & I am part of it. I am a part of this strong and wonderful group
Call 1-800-813-HOPE (4673) of women that I can count on & they can count on me too. I
Visit online at: www.cancercare.org am so honored to be a part of this.
Email to email@example.com I share my story with my breast cancer "sisters" and I pray that
you will persevere on this journey and recognize God's grace.
S i s t e r h o o d o f S ur v i v o r s P a g e 3
Volunteer Training Sessions Scheduled Volunteers Needed!
Our second & third SOS training sessions have st
been scheduled. Mary Ann Rogozinski is conducting
It’s the 1 Annual SOS Huge Parking Lot Sale!!
the training sessions for all SOS volunteers. Train- When: Saturday, June 11
ing sessions are for anyone interested in volunteer- Time: 7:00 a.m. – noonish
ing in any capacity, including delivering totes to the Where Odd Fellows Hall Parking Lot
newly diagnosed. Due to liability issues, training is 2823 Helm, Clovis, CA 93612
mandatory for those who want to continue to sup-
port the Sisterhood by volunteering. Ask your friends and family to save new
The next training sessions are April 25, & May 10 or gently used items to be donated for
at 5:30 p.m. at the Fresno County Federal Credit
this event. Want to make some extra cash for yourself? You
Union Administration Office, 2580 W. Shaw Lane
(not to be confused with Shaw Avenue). can rent a space for this event, as well. Please contact
Training covers reasons for volunteering, volunteer Susan Geis at 875-4868 for a drop off location nearest
opportunities, the history of SOS, mission & ser- you or for more information.
vices, safety, commitment level (hours per/month or
year you wish to volunteer), brief overviews of cur-
rent SOS by-laws, & SOS Volunteer Handbook. At
the end of each session, each volunteer will also be Volunteers Needed!
asked to complete a personal skills assessment. The SOS Fundraising Committee is seeking
This is a great opportunity for to meet other volun- the help of volunteers for an “Evening of
teers & to get others involved. We look forward to the Finest Things” which includes Wine
seeing you there. Please RSVP no later than April Tasting, Decadent Desserts, & Original Art
21, & May 5, respectively, so we have enough sup- Work. You will enjoy a fun filled evening in
plies for you. RSVP to Mary Ann Rogozinski at the country with a live band, delicious hors
433-9703 or preferably at d’oeuvres, chances to win bottles of special wine, decadent
firstname.lastname@example.org. desserts, & even original art work! Save the date for October
Thanks to the thirteen volunteers who attended the 8, 2011 from 7:00- 11:00p.m. For more information, please
first training session February 7, 2011. contact Susan Geis at 875-4868
See you at the training!!
SOS Member Highlight
Bilingual breast cancer survivor Lydia Zambrano was invited to speak for an ESL class in Biola at West Hills
Community College regarding her journey with breast cancer. It was the instructors’ hope that the subject of
Breast Cancer would have more significance to the women hearing the struggle from someone who overcame
the battle...and, who continues to have a positive outlook. The class consisted of women between the ages of 18-
50 and one male. All were farmworkers or involved in agriculture in some labor-intensive way. Three had lumpec-
tomies and one is constantly monitored because she's at risk of recurrence. Most were married with children.
Lydia appreciated the opportunity to share her experience with these ladies. She told them that she was very
proud of them for continuing their education while caring for their family and for the interest in their health. Their
stories and concerns are so important to all of us. Lydia informed them there are many resources, but asked for
their input as to what their needs are. The nearest health clinic is in Mendota but all of the other services are in Fresno.
Lydia sent a copy of the last SOS newsletter to share with the ladies; they are interested in attending one of the monthly luncheon meetings
and may even join us as early as March 19th! Lydia also wants to thank her daughter, Patsy Ochoa, for the beautiful "pink lapel pins" she
provided for the class. They will be wearing them in honor of all the breast cancer survivors and those in Heaven.
When she asked the ladies what would be a reason that would keep them from going to their primary care physician for a complete physical
and follow through on all the procedures, most of them shared that they were shy about anyone seeing their bodies. They also feared the
unknown and some shared they don’t have insurance. Lydia encouraged them to attend support groups, learn as much as they can regard-
ing their health conditions, asked them to remember their doctors are professionals, and to look at them as professionals when they need to
seek medical advice or treatment.
Lydia was very grateful to have had the opportunity to share her experience and said that sharing helps her through her healing process too.
Their instructor Carol Scroggins relayed, “Thank you for coming and sharing with my ladies. They were very chatty after you left, so I know
you made an impact!”
For volunteer opportunities, please attend the next Volunteer Training.
P a g e 4 S i s t e r h o o d o f S ur v i v o r s
Q u a r t e r l y N e w s l e t t e r
Young Survivors News
For Women Ages 45 or Younger
SOS has several breast cancer survivors age 45 and younger. In addition to coping with breast cancer, younger
women have unique issues such as pregnancy, fertility, and affects on young children.
The group has just started forming and looking for members to join their luncheons. If you are a woman age 45 or
younger, diagnosed with breast cancer, we would like to extend an invitation for you to join the luncheon (location to
be determined) at noon the second Saturday of each month (this quarter: April 9, May 14, and June 11).
Bring your friends, supporters, or family members for a time of sharing and learning from one another.
If you have questions, you may contact:
Charyce Haynes at 304-2146
Lynette McBride at 324-0208
S T A Y I N G W E L L : T A K E S T E P S T O R E D U C E Y O U R
R I S K O R F I N D B R E A S T C A N C E R E A R L Y
Does Mammography Really Save Lives?
Since 1990, more and more women have been surviving breast cancer, in part because of early detection. Mammograms –
x-rays of the breast – are the most common tool for finding breast cancer early in women who have no symptoms.
However, during the last year, there have been many conflicting messages about the role of mammograms in saving lives
from breast cancer. Because doctors can't always tell from a mammogram whether an abnormal area is cancerous, some
worry the screening test leads to too many false positives and unnecessary biopsies that can cause women a lot of anxiety.
The flip side is that mammograms aren’t perfect; they can miss some cancers, too. There is also new concern about "over
diagnosis" – the idea that some breast cancers might not need to be treated because they would never become life threat-
Despite these limitations, there’s plenty of evidence that mammograms offer substantial benefit for women starting in their
The American Cancer Society recommends yearly mammograms for women age 40 and older, along with a breast exam by
a health care professional. Women at high risk for the disease should get an MRI annually, as well. A strong family his-
tory of breast and/or ovarian cancer, prior chest radiation therapy, and carrying BRCA1 or BRCA2 gene mutations put
women at increased risk for the disease. In addition, all women should be aware of how their breasts normally look and
feel and report any changes to a doctor right away.
To learn more about what the current research says about mammography and to find out what else you can do to help
lower your risk of breast cancer, go to http://img.delivery.net/cm50content/19439/33824/msabcMar2011/stayingWell.htm
featuring Otis Brawley, MD, the American Cancer Society’s Chief Medical Officer, and Len Lichtenfeld, MD, the Society’s
Deputy Chief Medical Officer. You can also learn more at cancer.org/breastcancer
SOS PARTICIPATES IN NET @ NIGHT
Fresno Women’s offered our organization the perfect opportunity to share information about our history, mission, community out-
reach programs, volunteer opportunities, and upcoming fundraisers to women from throughout the greater Fresno area. At the re-
cent Net @ Night event held on Thursday, March 24th, literally hundreds of attendees stopped by our SOS booth, which was con-
veniently located near the main entrance. The booth was manned by SOS members who also passed out invitations to our upcom-
ing Girl’s Night Out event and stressed the importance of regular breast screenings and early detection programs. Copies of our
new SOS flyers were available to those requesting more information on our organization.
V o l u m e 5 , I s s u e 3 P a g e 5
AMERICAN CANCER SOCIETY COMMUNITY OUTPATIENT REHAB CENTER
LOOK GOOD, FEEL BETTER Lymphedema Clinic offers services & Helps to offset the cost of uninsured or
T: 800‐227‐2345 for information treatment for under‐served patients under‐insured terminally ill breast cancer
WIG BANK T: 451‐0722 option 2 afflicted with lymphedema. Patient edu‐ patients. Hinds Hospice operates a full‐
NEED A RIDE T: 866‐444‐7672 cation following breast cancer surgery service in‐home hospice & serves patients
and/or radiation therapy in their homes or in appropriately licensed
T: 459‐1603 facilities. T: 226‐5683
BCCTP DEAF & HARD OF HEARING SERVICE CENTER ISLAMIC CULTURAL CENTER OF FRESNO
If you are diagnosed with breast cancer, Provides up‐to‐date breast cancer Provides culturally appropriate breast
free treatment is available to all Califor‐ awareness, current treatments, and how health education & referral to Arabic,
nians who qualify through the Breast & to support, advocate, and assist others Farsi, & Urdu speaking Muslim adolescent
Cervical Cancer Treatment Program. who are current breast cancer survivors & adult females T: 297‐9535
Information about this program is avail‐ T: 225‐3323
able on Medi‐Cal’s website or call 800‐
824‐0088 to speak with an eligibility
NEED FINANCIAL ASSISTANCE? FOURWINDS LODGE KHMER SOCIETY OF FRESNO, INC.
RECOVERY TREATMENT Provides breast health education, advo‐
CALIFORNIA HEALTH COLLABORATIVE
Provides breast health cacy, & guidance for breast cancer screen‐
1625 E. Shaw, Suite 155, Fresno education, physical fitness, ing to Southeast Asian community
T: 244‐4554 nutrition, & guidance for T: 353‐0474
email: email@example.com breast cancer screening to Native Ameri‐
can women T: 237‐2961 ext. 28
CANCER DETECTION PROGRAM FRESNO HEALTH CONSUMER CENTER MESOTHELIOMA CENTER
EVERY WOMAN COUNTS PROJECT OF CENTRAL CA LEGAL SERVICES Features information on asbestos, meso‐
Pays for eligible woman’s cervical exam Conducts breast health education out‐ thelioma, & other cancers that are caused
and breast screening. reach to all under‐served residents. Re‐ f r o m a s b e s t o s e x p o s u r e
T: 800‐511‐2300 ferral, intervention, & guidance for wwww.asbestos.com T: 407‐965‐5755
breast cancer screening. Focuses on the
needs of the under‐represented, mar‐
ginalized, & hard‐to‐reach populations
CENTRO LA FAMILIA ADVOCACY SERVICES, INC. HEALTHWELL FOUNDATION NCI conducts & supports
Provides Spanish language breast health For single women/moms research, training, health
education, advocacy, health literacy, and T: 800‐675‐8416 information dissemination &
guidance for breast cancer screening to or other programs for cancer
urban & rural communities. T: 237‐2961 PATIENT ACCESS NETWORK T: 1‐800‐FOR‐CANCER or www.cancer.gov
FOUNDATION T: 866‐313‐7263
CLEANING FOR A REASON HELPING ONE WOMAN...AT A TIME WEST FRESNO HEALTH CARE COALITION
Any woman currently undergo For those in financial need Offers breast health education, advocacy,
‐ing chemo, FREE houseclean‐ www.helpingonewoman.org and guidance to African‐American com‐
ing, one time, per month, for four munity T: 264‐7185
months while in treatment.T:877‐337‐
WE’RE ON THE WEB!
We ask you and your loved ones to please consider Sisterhood of Survivors when planning to donate. Dona-
tions are tax deductible. Sisterhood of Survivors (SOS) is a non-profit 501(c)(3) corporation.
My donation of $ I would like to volunteer contact #:
Please make your check payable to: Sisterhood of Survivors, Inc.
PO Box 3841
Pinedale, CA 93650
BOARD OF DIRECTORS Margaret Mims, Survivor & Fresno Co. Sheriff Newsletter Editor—Diana Dhuyvetter
Janet Ames, Survivor Mikell Parson, D.C., C.C.N., D.A.C.B.N., firstname.lastname@example.org
Terry Elrod, Survivor D.A.C.N.B Marketing/Media Rep—Crystal Sherian
Debbie Garrett, California Health Collaborative Bonna Rogers-Neufeld, M.D., F.A.C.R email@example.com
Susan Gonsalves, Survivor & LCSW Fundraising—Sue Geis @ 875-4868
M. Margaret Hadcock, M.D. firstname.lastname@example.org
Chair—Terry Elrod @ 289-4168
Jamie Ledezma, Survivor & Komen Public
Membership—Patti Frediani @ 431-3752
Policy Chair, Central Valley
Outreach—Mary Ann Bellissima @ 433-1763
Mary Ann Rogozinski, Survivor
Ways & Means—Judy Pearson @ 674-7443
ADVISORY COUNCIL Special Projects—Julie Skiba @ 227-1192
Rodney Hernandes, H&O Medical Group SOS Connections—Terry Elrod @ 289-4168
Sharon Johnson, Survivor & Executive Secretary/Treasurer—Gail Green @ 298-5503
Director, Komen Central Valley
Sisterhood of Survivors NONPROFIT ORG
US POSTAGE PAID
PO Box 3841 CLOVIS CA
Pinedale, CA 93650 PERMIT NO 553
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