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					                                      July 30, 2008                                      CONGRESSIONAL RECORD — HOUSE                                                                 H7533
                                      parent has to experience the heartache                   by progressive muscle spasticity and weak-             may have 5 legislative days to revise
                                      of a very preventable death. They es-                    ness in the voluntary muscles;                         and extend their remarks and include
                                      tablished the Kendrick Fincher Memo-                       Whereas PLS belongs to a group of dis-               extraneous material on the resolution
                                                                                               orders known as motor neuron diseases.
                                      rial Foundation to make certain chil-                    Motor neuron diseases develop when the
                                                                                                                                                      under consideration.
                                      dren have proper hydration during ath-                   nerve cells that control voluntary muscle
                                                                                                                                                        The SPEAKER pro tempore. Is there
                                      letic activities and that they have                      movement degenerate and die, causing spas-             objection to the request of the gen-
                                      squeeze bottles with them at all                         ticity and weakness in the muscles they con-           tleman from New Jersey?
                                      events. Because of their dedicated                       trol;                                                    There was no objection.
                                      work, procedures have been changed in                      Whereas Hardy Brown has worked tire-                   Mr. PALLONE. Mr. Speaker, I yield
                                      sports programs at the local schools to                  lessly to raise funds for research for ALS             myself such time as I may consume.
                                      help prevent a similar accident.
                                                                                               ‘‘Lou Gehrig’s disease’’ which is a fatal                I rise in strong support of H. Res. 896,
                                                                                               motor neuron disease, and is now diagnosed             a resolution expressing support for Pri-
                                        In addition, Gatorade and the Na-                      with primary lateral sclerosis;
                                      tional Football League have worked                                                                              mary Lateral Sclerosis Awareness
                                                                                                 Whereas the onset of PLS usually occurs              Month, and for the need to pursue re-
                                      with the foundation to lead a nation-                    after age 50. Symptoms may include dif-
                                      wide Beat the Heat campaign aimed at                     ficulty with balance, weakness and stiffness
                                                                                                                                                      search on this debilitating disease.
                                                                                               in the legs, and clumsiness. Other symptoms              Primary lateral sclerosis, or PLS, is
                                      educating parents and football coaches
                                                                                               may include spasticity (sudden, involuntary            a rare neuromuscular disorder charac-
                                      about the importance of hydration in
                                                                                               muscle spasms) in the hands, feet, or legs;            terized by progressive muscle spasms
                                      order to keep athletes safe in the hot
                                                                                               foot dragging, and speech problems due to in-          and weakness. As many as 2,000 Ameri-
                                      summer months.                                           volvement of the facial muscles;                       cans suffer from PLS, which usually af-
                                        This resolution also recognizes the                      Whereas primary lateral sclerosis affects            fects adults during midlife. The causes
                                      Kendrick Fincher Memorial Founda-                        individual people in different ways, and as a          of PLS are unknown and the disease
                                      tion for all of its efforts in promoting                 result, treatment programs will vary;
                                                                                                                                                      currently has no cure. However, some
                                      awareness about heat stroke, and it en-                    Whereas there currently is no cure for pri-
                                                                                               mary lateral sclerosis, nor a way to slow or           individuals with PLS can increase
                                      courages other national and commu-                                                                              their comfort level and ability to func-
                                      nity organizations to get involved in                    reverse the progressive disability of this dis-
                                                                                               order;                                                 tion through therapy and treatment.
                                      this important fight.                                      Whereas the Spastic Paraplegia Founda-               ALS, also known as Lou Gehrig’s dis-
                                        I would also like to thank Chairman                    tion is a volunteer-managed and operated               ease, is a fatal motor neuron disease
                                      DINGELL, Ranking Member BARTON,                          non-profit organization devoted to finding             within the same family of disorders.
                                      Mr. PALLONE, and Mr. TERRY for their                     the causes and cures for two groups of                   H. Res. 896 encourages Congress to
                                      help in bringing this forward now as we                  neurodegenerative disorders called Spastic             continue support for further work on
                                      go into August during the season when,                   Paraplegia (Hereditary and Apparently Spo-
                                                                                               radic) and Primary Lateral Sclerosis (PLS);
                                                                                                                                                      PLS. It would promote further re-
                                      as we are experiencing today, these                                                                             search into the causes, treatment, and
                                      things are very, very possible. I appre-                   Whereas the National Institute of Neuro-
                                                                                               logical Disorders and Stroke at the National           eventual cure for PLS, and seek to in-
                                      ciate them bringing it in a timely fash-                 Institutes of Health conducts a broad range            crease awareness about the disease.
                                      ion, and I encourage my colleagues to                    of research on neuromuscular disorders such              Earlier in the session of the 110th
                                      support H. Con. Res. 296.                                as PLS. This research is aimed at developing           Congress, the House passed H.R. 2295,
                                        Mr. TERRY. Mr. Speaker, I would                        techniques to diagnose, treat, prevent, and            the ALS Registry Act, and this bill
                                      just conclude by suggesting that if                      ultimately cure these devastating diseases;            would help to establish a central reg-
                                      there are any coaches of youth teams                     and
                                                                                                 Whereas the month of February of 2009
                                                                                                                                                      istry for ALS and other motor neuron
                                      that play outside, they should check                                                                            disorders like PLS, so that research ef-
                                                                                               would be an appropriate time to recognize
                                      out the Kendrick Fincher Memorial                        Primary Lateral Sclerosis Awareness Month              forts are timely and targeted.
                                      Foundation’s Web site for advice on                      in order to educate communities across the               Finally, this resolution, Mr. Speaker,
                                      how to protect the kids on their team.                   Nation about primary lateral sclerosis and             recognizes those who have already
                                        I yield back the balance of my time.                   the need for research funding, accurate diag-          made efforts to support individuals
                                        The SPEAKER pro tempore. The                           nosis, and effective treatments: Now, there-           who suffer from PLS. One such indi-
                                      question is on the motion offered by                     fore, be it                                            vidual is Hardy L. Brown, co-publisher
                                      the gentleman from New Jersey (Mr.                         Resolved, That the House of Representa-
                                                                                               tives—                                                 of the Black Voice News, who has per-
                                      PALLONE) that the House suspend the                        (1) recognizes the need to continue re-              sonally dedicated himself to raising
                                      rules and agree to the concurrent reso-                  search into the causes, treatment, and an              funds for ALS research and has now
                                      lution, H. Con. Res. 296, as amended.                    eventual cure for primary lateral sclerosis;           been diagnosed with PLS himself.
                                        The question was taken; and (two-                        (2) commends those hospitals, community                I would like to thank my colleague,
                                      thirds being in the affirmative) the                     clinics, educational institutes, and other or-         Representative BACA, for his hard work
                                      rules were suspended and the concur-                     ganizations that are—                                  in bringing this resolution before us
                                      rent resolution, as amended, was                           (A) working to increase awareness of pri-
                                                                                               mary lateral sclerosis; and
                                                                                                                                                      today, and I urge my colleagues to join
                                      agreed to.                                                                                                      me in support of H. Res. 896.
                                                                                                 (B) conducting research for methods to
                                        A motion to reconsider was laid on                     help patients suffering from primary lateral             Mr. Speaker, I reserve the balance of
                                      the table.                                               sclerosis;                                             my time.
                                                       f                                         (3) congratulates the work of the Spastic              Mr. TERRY. Mr. Speaker, I too rise
                                                                                               Paraplegia Foundation for its great efforts            in support of House Resolution 896, rec-
                                        PRIMARY LATERAL SCLEROSIS                              to educate, support, and provide hope for in-          ognizing February of 2009 as Primary
                                               AWARENESS MONTH                                 dividuals who suffer from primary lateral              Lateral Sclerosis Awareness Month. I
                                        Mr. PALLONE. Mr. Speaker, I move                       sclerosis, while funding research to help find         also wish to thank Mr. BACA for au-
                                      to suspend the rules and agree to the                    a cure for this disorder;
                                                                                                 (4) supports the designation of an appro-
                                                                                                                                                      thoring this resolution.
                                      resolution (H. Res. 896) recognizing the                                                                          While primary lateral sclerosis is not
                                                                                               priate time to recognize ‘‘Primary Lateral
                                      need to pursue research into the                         Sclerosis Awareness Month’’; and                       fatal, there is no cure, and the progres-
                                      causes, a treatment, and an eventual                       (5) calls upon the people of the United              sion of symptoms varies. Some Ameri-
                                      cure for primary lateral sclerosis, sup-                 States to observe the month with appro-                cans affected by this disease may re-
                                      porting the goals and ideals of the                      priate programs and activities.                        tain the ability to walk without assist-
                                      Hardy Brown Primary Lateral Scle-                          The SPEAKER pro tempore. Pursu-                      ance, but others eventually require
                                      rosis Awareness Month, and for other                     ant to the rule, the gentleman from                    wheelchairs, canes, or other assistive
                                      purposes, as amended.                                    New Jersey (Mr. PALLONE) and the gen-                  devices that limit their mobility.
                                        The Clerk read the title of the resolu-                tleman from Nebraska (Mr. TERRY)                         Because primary lateral sclerosis is
                                      tion.                                                    each will control 20 minutes.                          such a rare neuromuscular disease, its
                                        The text of the resolution is as fol-                    The Chair recognizes the gentleman                   diagnosis is often delayed because of
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                                      lows:                                                    from New Jersey.                                       its resemblance to ALS, or better
                                                     H. RES. 896                                                 GENERAL LEAVE                        known as Lou Gehrig’s disease. In PLS,
                                        Whereas primary lateral sclerosis (PLS) is              Mr. PALLONE. Mr. Speaker, I ask                       there is no evidence of the degenera-
                                      a rare neuromuscular disorder characterized              unanimous consent that all Members                     tion of spinal motor neurons or muscle



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                                      H7534                                              CONGRESSIONAL RECORD — HOUSE                                                            July 30, 2008
                                      wasting that occurs in ALS, and it is                    nosed. That is why it is important that                often diagnosed with ALS, and I have
                                      characterized by progressive muscle                      we do the research.                                    already stated the effects it has on
                                      weakness in the voluntary muscles.                         This illness is, of course, named after              families when they are told that.
                                      PLS belongs to a group of disorders                      the famous Yankee baseball player who                    Most of us have heard of Lou
                                      known as motor neuron diseases that                      suffered and died of ALS before we                     Gehrig’s disease, but this legislation
                                      develop when the nerve cells that con-                   knew much about it. As with many                       today will help raise the awareness and
                                      trol voluntary muscle movement de-                       other neurological disorders, once the                 stress the importance of a very famil-
                                      generate and die. This usually occurs                    nerve cells that control the voluntary                 iar disorder. The medical community
                                      after the age of 50, and causes a grad-                  muscles are affected, a person’s phys-                 must be able to properly diagnose
                                      ual weakness in the muscles.                             ical ability to function becomes very                  those individuals who suffer from PLS
                                         Symptoms for the individuals af-                      difficult.                                             and other neuromuscular disease to en-
                                      flicted by the disease may include dif-                    Symptoms of PLS include difficulties                 sure proper care and treatment.
                                      ficulty with balance, weakness and                       with balance, sudden involuntary mus-                    I urge my colleagues to vote for H.
                                      stiffness in the legs, and clumsiness.                   cle spasms in the hands, feet, legs, and               Res. 896, and join me and all individ-
                                      Other symptoms may include sudden                        speech problems when the facial mus-                   uals and organizations in this effort to
                                      and involuntary muscle spasms in the                     cles are affected. But these symptoms                  fight this devastating illness. And I
                                      hands, feet, or legs, and maybe speech                   are not unique to PLS alone. PLS is                    want to thank again Mr. PALLONE, Mr.
                                                                                               often very difficult to diagnose because               TERRY for helping us with this legisla-
                                      problems due to the involvement of the
                                                                                               the symptoms vary, and may progress                    tion and many of the others that will
                                      facial muscles. The disease, which sci-
                                                                                               slowly over a period of time of many                   support this to make sure that not
                                      entists believe is not hereditary, pro-
                                                                                               years. I would rather have someone be                  many other individuals suffer from this
                                      gresses gradually over a number of
                                                                                               diagnosed with the right PLS versus                    type of disease that will affect others
                                      years or even decades.                                   ALS to know that they are going to
                                         The efforts of the Spastic Paraplegia                                                                        as well.
                                                                                               live a lot longer.                                       Mr. TERRY. We have no further
                                      Foundation have been paramount in                          Because of this, many Americans are
                                      raising funds dedicated to finding cures                                                                        speakers, so I will just once again
                                                                                               still unaware of the severe nature of                  thank Mr. BACA for writing this resolu-
                                      and providing information about PLS.                     PLS, even though the disorder was
                                      Thanks to the dedication and hard                                                                               tion and bringing it, Mr. PALLONE, Mr.
                                                                                               first discovered in 1850 in France. That               DINGELL, Mr. BARTON for making sure
                                      work of many individuals at the Spas-                    is why we need to continue with great-
                                      tic Paraplegic Foundation, in just 5                                                                            that it, in such a speedy manner, got to
                                                                                               er and more expansive research.                        the House floor.
                                      years, more than $1 million has been                       My resolution serves to raise aware-                   I yield back.
                                      targeted to research on SPF conditions                   ness across the Nation by urging all                     Mr. PALLONE. Mr. Speaker, I have
                                      and thousands of people have been                        Americans to recognize February of                     no further requests for time as well,
                                      helped.                                                  2009 as PLS Awareness Month. This                      and I yield back the balance of my
                                         I would like to thank the National                    resolution emphasizes the need of                      time and urge support for the bill.
                                      Institute of Neurological Disorders and                  greater funding and more research to                     The SPEAKER pro tempore. The
                                      Stroke at the National Institute of                      combat neuromuscular disease. With                     question is on the motion offered by
                                      Health for conducting a broad range of                   this bill, Congress is helping educate                 the gentleman from New Jersey (Mr.
                                      research on neuromuscular disorders                      our doctors and nurses and the rest of                 PALLONE) that the House suspend the
                                      such as PLS. Their research has been                     the medical community about PLS.                       rules and agree to the resolution, H.
                                      aimed at developing techniques to di-                      However, there are many courageous                   Res. 896, as amended.
                                      agnose, treat, prevent, and ultimately                   and dedicated individuals who are                        The question was taken; and (two-
                                      cure these devastating diseases.                         doing this already.                                    thirds being in the affirmative) the
                                         In closing, I would like to thank                       One is my good friend, Hardy Brown,                  rules were suspended and the resolu-
                                      again the author of this resolution, Mr.                 who is from my district and, of course,                tion, as amended, was agreed to.
                                      JOE BACA, my friend from California,                     owner of the Black Voice Newspaper in                    The title was amended so as to read:
                                      for raising public awareness about                       California. He has dedicated his life to                 ‘‘A resolution recognizing the need to
                                      PLS. I encourage all of my colleagues                    serve as a voice for underrepresented                  pursue research into the causes, a
                                      to vote in favor of this resolution.                     communities in the Inland Empire.                      treatment, and an eventual cure for
                                         I reserve the balance of my time.                     Throughout his life, Hardy Brown has                   primary lateral sclerosis, supporting
                                         Mr. PALLONE. Mr. Speaker, I am                        done a tremendous job in the commu-                    the goals and ideals of Primary Lateral
                                      pleased to yield 5 minutes to the gen-                   nity raising awareness of Lou Gehrig’s                 Sclerosis Awareness Month, and for
                                      tleman from California (Mr. BACA),                       disease. Now he is diagnosed with PLS.                 other purposes.’’.
                                      who is the author of this resolution.                    Hardy Brown, once a vibrant, active                      A motion to reconsider was laid on
                                         Mr. BACA. Mr. Speaker, I rise in sup-                 leader, is now in a wheelchair doing                   the table.
                                      port of H. Res. 896, the Primary Lateral                 what he can despite difficulties mov-                                   f
                                      Sclerosis Awareness Month Act. I                         ing, speaking, and typing.
                                                                                                 Another individual, Tyonja Bathgate                        ANIMAL DRUG USER FEE
                                      would like to thank Chairman DIN-
                                                                                               from Maryland, whose husband was di-                           AMENDMENTS OF 2008
                                      GELL, Chairman PALLONE, Ranking
                                      Member NATHAN DEAL, along with Mr.                       agnosed with PLS, has torn herself                       Mr. PALLONE. Mr. Speaker, I move
                                      TERRY, for helping guide this legisla-                   from her husband’s bedside to advocate                 to suspend the rules and pass the bill
                                      tion through the committee.                              on behalf of this issue.                               (H.R. 6432) to amend the Federal Food,
                                         Primary lateral sclerosis, commonly                     We want to thank these individuals                   Drug, and Cosmetic Act to revise and
                                      referred to as PLS, is a neurological                    and all others who have worked to                      extend the animal drug user fee pro-
                                                                                               raise the awareness of these conditions.               gram, and for other purposes, as
                                      disorder that affects the cells that con-
                                                                                               But we must do more, and urging the                    amended.
                                      trol the voluntary muscles. PLS is
                                                                                               establishment of a PLS Awareness                         The Clerk read the title of the bill.
                                      similar to ALS, often called Lou
                                                                                               Month is a step in the right direction.                  The text of the bill is as follows:
                                      Gehrig’s disease.
                                                                                               There is currently no cure for PLS, and                                    H.R. 6432
                                         Can you imagine someone who is di-
                                                                                               hopefully one day we will find a cure.                   Be it enacted by the Senate and House of Rep-
                                      agnosed with PLS, but yet they are
                                                                                               God willing, we will do that.                          resentatives of the United States of America in
                                      told that it is ALS and in fact it was                     Treatment and symptoms vary from                     Congress assembled,
                                      PLS that they were diagnosed, and                        person to person, and the age of onset                 SECTION 1. TABLE OF CONTENTS.
                                      thinking that they only had X amount                     is generally between the ages of 35 to                   The table of contents of this Act is as fol-
                                      of time to live, its impact it has on the                66, and, as it was stated, over 2,000 have             lows:
                                      family members and others as they
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                                                                                               been diagnosed with this.                              Sec. 1. Table of contents.
                                      begin to look at that disease because                                                                           Sec. 2. References in Act.
                                      not enough research has been done?                                        b 1530                                    TITLE I—ANIMAL DRUG USER FEE
                                      That is devastating to the individuals                     Because of the similar symptoms, re-                                AMENDMENTS
                                      and the family members who are diag-                     searchers believe that PLS patients are                Sec. 101. Short title; finding.




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