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Sickle Cell Center

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					Sickle Cell Center

TRUMAN MEDICAL CENTERS
                         Sickle Cell Center




                              AHA Disparities Audio Conference
                                                October 7, 2009
                                              Dawn Sutton, RN
                             Director, Medicine Specialty Clinics
About Truman Medical Centers

•   Two-hospital system (560 licensed beds) in Kansas City, MO

•   Level one trauma center.

•   Top Five AMC and teaching partner
    of UMKC Schools of Health Sciences


•   Stand-alone behavioral health unit.

•   300,000 outpatient visits annually.

•   4,000 FTEs and $400 million in annual patient revenues
TMC Sickle Cell Patient Profile


•   121 patients with Sickle Cell or related diagnosis




•   1,344 Sickle Cell-related patient visits
     over last 12 months




•   Patients ages from 18-75.
Origins of TMC’s Sickle Cell Center

• Disparities in Care

•   Clinical staff not knowledgeable of Sickle Cell


•   Leadership Commitment


•   Responsiveness to Community


•   Need for Better Coordination of Care

    Sickle Cell Center
•   Appropriate Use of Health Resources
Philosophy of Program

•   First and foremost …pain is believed

•   Comprehensive disease management education

•   Empowerment strategies-overcome feelings of powerlessness
     - Individualized patient centered interventions
     - Identify and utilize patients strengths
     - Set and achieve patient goals
     - Identify and provided needed resources

•   Foster an environment of:
     - Safety
    Sickle Cell Center
     - Acceptance
     - Reassurance
Sickle Cell Resource Center Reception Area




 •   Soothing color scheme, lights, music and décor.
 •   Computer kiosk for patient education.
Sickle Cell Resource Center Same-Day Treatment Room




 •   Quiet, restful environment
 •   Homelike bedding and warmed blankets
Sickle Cell Center Team Members



 •    Physician

 •    Family Nurse
      Practitioner

 •   Psychologist

 •   Social Worker

 •   Pharm D
 Sickle Cell Center
Sickle Cell Center Services

•    Patient visits and exams

•    Pain control protocols

•    Counseling for patients and families
     - Disease management
     - Medication
     - Behavioral

•    Case management across care areas

•    Individual treatment plans

•   Sickle Cell Center
     Same-day crisis     treatment

•    Support group
Sickle Cell Center Outcomes

•   Decreased ED visits 20%.


•   90% Patient Satisfaction.


•   Increased same-day treatment usage by 25%.


•   Case management across care areas


•    Sickle Cell Center
    Patient reported improved life style outcomes
Sickle Cell Center Challenges


•   Complex and sometimes difficult patient population


•   Maintaining patient trust


•   Hours of operation


•   Community education and awareness

    Sickle Cell Center
•   Pediatric to adult care
Community Partners and Stakeholders

•   Regional Chapter: Sickle Cell Disease Association of America


•   Community Groups (Black Health Care Coalition)


•   Kappa Alpha Psi Fraternity


•   Scandia Down


•   Children’s Mercy Hospital


•   Local Black Church Coalition (Church Health Ministries)
      Sickle Cell Center


•   State of Missouri-Hemoglobinopathy Resource Center
Advice for Success


•   Build patient-centered programs


•   Listen to consumer


•   Involve internal and external
    stakeholders.


•   Ongoing disease process education across organization
    Sickle Cell Center


•   Consider needs of the patient, family and community
    For More Information on TMC’s Sickle Cell Center:

•    Dr. Angela Garner, Sickle Cell Medical Director
     Phone: (816) 404-0000
     Email: angela.garner@tmcmed.org


•    Dawn Sutton, RN, Director of Medicine Specialty Clinics
     Phone: (816) 404-0519
     Email: dawn.sutton@tmcmed.org


•    Donna McCurry, RN, Family Practice Nurse
     Phone: (816) 404-4294
     Email: donna.mccurry@tmcmed.org