; Dale Dirks DDNC Washington Representative Digestive Disease
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Dale Dirks DDNC Washington Representative Digestive Disease


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									Key Legislative
Priorities - 2009
     Emerging Opportunities for
         Research Funding
 A new congress, a new administration.
 The economic stimulus package.
 FY 2009 appropriations.
 FY 2010 appropriations.
 “Congress must view the economic stimulus funding as
 a new commitment to research, and continue to
 provide agencies like NIH with systematic, meaningful
 funding increases on an annual basis moving forward.”
  The National Commission on
   Digestive Diseases (NCDD)
 The NCDD recently released a comprehensive, long-
  range research plan entitled, “Opportunities and
  Challenges in Digestive Disease Research:
  Recommendations of the NCDD.”
 Many members of the DDNC’s diverse coalition served
  on the Commission and assisted in drafting the
  research plan.
 This plan contains recommendations regarding nearly
  every digestive ailment and is important to the
  DDNC’s entire membership.
    The National Commission on
     Digestive Diseases (cont.)
 To advance the NCDD report and ensure that its
  recommendations are enacted, the DDNC is asking Congress to:
 Use all opportunities to raise awareness of this important
 Urge NIH to identify NCDD initiatives that are well suited to
  effectively use stimulus funds.
 Direct NIDDK to create an advisory body to guide
  implementation of the plan from start to finish.
 Require NIDDK to provide annual updates on the progress of the
  plan’s implementation.
      Funding Opportunities to
        Improve Patient Care
 The chronic underfunding of the FDA has created
  numerous impediments to drug development and
 FDA has been receiving meaningful funding increases in
  recent years.
 Significant funding increases must be continued moving
 With additional resources, FDA must begin making efforts
  to better serve patient communities through expedited
  treatment development and improved oversight.
The Colorectal Cancer Prevention, Early
Detection, and Coverage Act (H.R.1189)
 H.R. 1189 was recently introduced by Congresswoman
  Kay Granger (R-TX-12th) and 11 bipartisan cosponsors.
 The bill would establish a national colorectal cancer
  screening program at the CDC and improve treatment
  options for patients found to have colorectal cancer.
 Ask your House Representative to “Please cosponsor
  the Colorectal Cancer Prevention, Early Detection, and
  Coverage Act (H.R. 1189).
   Compassionate Allowances
 Last year the Social Security Administration (SSA)
  launched an initiative called the compassionate
  allowances process to expedite the processing of
  disability claims for applicants whose medical
  conditions are so severe that they obviously meet the
  appropriate standards.
 Many digestive conditions, such as esophageal cancer
  and pancreatic cancer are part of the initial program.
 SSA has stated this initiative will be expanded moving
  forward, and the DDNC strongly supports expansion.
and Public
         Appropriate Labeling
 Many digestive disease patients have allergic,
  autoimmune reactions when they contact certain
 The FDA and the USDA must improve their labeling of
  food and drug products so that these patients have
  adequate information to make healthful decisions
  regarding what they contact or ingest.
The Pancreatic Cancer Research
 and Education Act (H.R. 745)
 H.R. 745 was introduced by Congresswomen Anna
  Eshoo (D-CA-14th) and Ginny Brown Waite (R-FL-5th).
 This bill would coordinate federal research and
  treatment resources to improve the 5 year survival rate
  for pancreatic cancer.
 Ask your House Representative to “Please cosponsor
  the Pancreatic Cancer Research and Education Act
  (H.R. 745).”
Liver Disease
            Hepatitis Funding
 The CDC’s Division of Viral Hepatitis desperately
  needs additional resources.
 Experts estimate that the Division requires $100
  million to adequately confront viral hepatitis.
 However, the agency currently receives approximately
  $18 million annually.
 As Congress works to craft FY 2010 spending
  legislation, urge your legislators to support an
  allocation of $50 million for the Division.
     The Liver Research
 Enhancement Act (H.R. 1128)
 H.R. 1128 was recently introduced by Congressmen
  Stephen Lynch (D-MA-9th) and Peter King (R-NY-3rd).
 This bill would establish the National Center on Liver
  Disease Research within NIDDK to further coordinate
  liver disease research efforts.
 Ask your House Representative to, “Please cosponsor
  the Liver Research Enhancement Act (H.R. 1128).
      The DDNC’s 3 principles for
          Healthcare Reform
 The social security disability waiting period must be
  systematically phased out to ensure that those patients who
  are most ill receive quality care and continuous treatment.
 Primary prevention and clinical preventative services must
  receive increased federal support and emphasis to ensure
  that the incidence of costly, preventable conditions is
 Coverage must be expanded and the physician workforce
  must be bolstered, particularly in underserved areas, to
  ensure that every American has access to quality care.
Messages to
1) “Please commit to providing NIH
and other federal research entities
with meaningful funding increases
on an annual basis.”
2) “Please raise awareness of the
NCDD’s crucial digestive disease
research plan, and urge NIH to
implement the Commission’s
research recommendations.”
3) “Please be mindful of the
DDNC’s 3 principles for healthcare
reform, and please support
legislative efforts which advance
these principles.
Question and Answer Session

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