Cystic Fibrosis Don’t Miss The CFRI Day Retreat! Annual Day Retreat Driving Directions CFRI encourages all persons with CF to attend the day retreat, even if you can’t attend From San Francisco For Teens and Adults with all six days. You will long remember this Cystic Fibrosis and their Families rewarding experience. You will learn new 101 South (Bayshore Freeway) to Marsh Road. ways to manage cystic fibrosis and share your Right at Marsh Road. Continue one mile to August 3 – August 9, 2010 experiences with peers who truly understand. Middlefield Road (dead end). Left on Retreat 2010 Middlefield. Two traffic lights to Oak Grove TV: Must See TV: You will establish friendships which will last Avenue. Right on Oak Grove Ave. Vallombrosa a lifetime, ones that will guide you is on the right at 250 Oak Grove Ave. Hi- CF in Hi-Def! through the rest of your journey living with cystic fibrosis. 280 South to Woodside Road. Turn left on Woodside Road to El Camino Real South (three miles). Turn right on El Camino Real (south). Continue 2.5 miles to Oak Grove Ave. Left at Tune in to Oak Grove Ave (over RR tracks). Vallombrosa is Retreat 2010! on the left at 250 Oak Grove Ave. For more information, contact: Cystic Fibrosis Research, Inc. Location: 2672 Bayshore Parkway, Suite 520 Vallombrosa Retreat Center, Mountain View, Ca. 94043 Tel: (650) 404-9975 Menlo Park, California. Fax: (650) 404-9981 San From San Jose (650) 325-5614 Email: firstname.lastname@example.org 101 North (Bayshore Freeway) to Willow Road Website: www.cfri.org west- Menlo Park exit. Continue on Willow Who can come? Road to Middlefield Road (large intersection, Teens 15 and older and adults service station on right). Right on Middlefield to with cystic fibrosis. third stop light, Oak Grove Avenue. Left on Oak Grove Ave. Vallombrosa is on the right at 250 Oak Grove Ave. Sponsored by Inc. Cystic Fibrosis Research, Inc. 280 North to Page Mill Road exit. East to El Camino Real. Left on El Camino Real to Oak Grove Ave (3 ½ miles). Right on Oak Grove Ave, over railroad tracks. Vallombrosa is on the left at 250 Oak Grove Ave. Purpose of the Day Retreat: The retreat is designed to provide a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF. Who May Attend? Medical safety is our priority: Any adult who has CF may attend.* A medical advisor is available at all times, and volunteers are available to assist Teens with CF who are 15 –19 may attend with respiratory treatments. Due to provided a parent or guardian accompanies possible cross infection, all participants them.* with CF are required to obtain a sputum culture before the start of the retreat. Activities at the Retreat: The retreat also welcomes health care People who have ever cultured professionals, non-CF siblings of people with Burkholderia cepacia, cultured Daytime recreational activities include sports CF, friends, family members, and anyone else Methicillin-resistant Staphylococcus aureus events, arts and crafts, swimming and hiking, interested in attending this very special (MRSA) within the past 2 years, or are currently inspired by a TV theme. Psychosocial community event. All visitors must have a resistant to all antibiotics will not be activities will take place daily including rap retreat attendee sponsor. allowed to attend the retreat. sessions that specifically target teen and adult issues. The retreat will also sponsor * Provided that their recent sputum cultures have educational workshops on self-care, CF been approved by their own CF physician. *CFRI has developed strict infection medical interventions and other related control guidelines so that the retreat topics. The retreat provides three high calorie Cost can be as safe as possible for all meals a day. Snacks are provided as well. CFRI is offering the retreat for a cost of $85 participants. These guidelines include per person for the entire week. Fees are $15 observing proper hygiene while at the per day for visitors or $10 per meal for those retreat as well as the pre-retreat Accomodations: who drop in for a meal only. Costs for sputum culture screening of CF patients. Overnight accommodations are available at overnight accommodations are the All retreat participants must be willing to the Vallombrosa Center, but must be booked responsibility of participants. Scholarships follow these cross infection guidelines. individually. A list of local hotels is also are available for those unable to pay fees. available. We require that people with CF stay Deposits and applications are due July 23, in individual rooms with private baths, which 2010. Balance of fees will be due August 3, only a non-CF person may share. 2010. Space is limited. Vallombrosa Center is located in a secluded area of Menlo Park, California, just minutes Applications/reservations will be on a first away from Stanford Hospital. come first served basis.