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Plan1 - ALS MND Lithium Treatment and Research

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					              LITHIUM WORLDWIDE SURVEY
        Forum name or
 #         1st name
                             From           Blood
                                      Age Gender type(ABO/Rh)     DX

P.S. We are now in collaboration with Patients Like Me. We   encourage participants in our study to also
 1        Humberto Macedo Brazil, Brasília 42     M   A+           March-07
 2      Veronica Townsend USA, Michigan 38        F   O+       November-05
 3         Chris Perdulovski     Australia     56 M               August-07
 4        Ferdinand Triemer      Germany       67 M                  July-06
 5             Brian Rintoul      Canada       52 M                  April-05
 6                   Steve B. USA, California 61  M   O-         October-05
 7              Ty Asselsine        USA        55 F           September-06
 8              David Attard       Malta       45 M              January-07
 9               William Hirt       USA        64 M              January-07
 10          Hanns Riederer USA, California 38    M                 June-05
 11             David Virden    USA - Mass.    58 M              October-06
 12           Sagit Drishner       Israel      36 F              January-04
 13        Mikko Kehusmaa         Finland      30 M              October-07
 14               Jim Mong USA, Michigan 59       M           September-07
 15      Edward W. Esparza USA, Chicago 49        M           September-05
 16                      EJW USA, Montana 46      F   O+       December-06
 17                 Bill Hern    USA, MN       51 M            November-06
 18                     SRAL      Canada       63 F               August-07
 19                       APF USA - California 63 M             August 2007
 20                     Jill C.     USA        59 F               June 2006
 21              Guenther B.     Germany       55 M   A+       January 2007
 22         David Saunders USA/New Jersey 44      M   A+         March 2007
 23           AlbertSweden        Sweden       58 M               Sept. 2006
 24 William Christophersen       Australia     71 M               April 2007
 25                    Leo G. USA-California 62   M               August-06
 26                 Susan T.     USA-NC        70 F                  May-06
 27                   JohnW       Canada       61 M              October-00
 28                 Cathy R.      Canada       56 F   O-     November 2004
 29                Sharon F. USA-Nebraska 53      F   A+         January-06
 30                       ENV                  39 M              March 2005
 31                    Jeff C. USA/Georgia 48     M          November 2006
 32                   Livio V.      Italy      64 M               June 2007
 33                Patricia J.   USA/Iowa      67 F                  May-07
 34                  Todd K USA - Tennessee 45    M              January-06
 35                 Torres E.      Spain       54 M             February-05
 36                 Carrol P.                  61 F                Fall 2005
 37                      ilgal                 58 F                July 2007
 38          Nobregapaulo7         Brazil      47 M                  July-05
 39                  Mark M.                   60 M                May 2006
 40                    HSedg        USA        39 F                Fall 2005
 41   Charlotte C. Michaud                     54 F            November-05
 42          James Eldridge         USA        47 M              January-03
 43                 fanappel      Sweden       43 M                  May-04
 44                Jim Zelos     Australia     69 M             August 2005
 45             Gary Jensen         USA        62 M              March 2007
 46                   Poniek      Poland       45 M              October-03
 47           Michael Finley USA/Washington 39    M                  May-06
 48                  AHands USA/N. Carolina 44    M          November 2007
 49                 GabrielP                   62 M            January 2007
50           SharonCa                          58   F           December-07
51        GSchoenfeld             USA          53   M            August 2006
52          mgparkcity                         57   M         September 2006
53                 BWiss                       49   F           January 2007
54               Rendad          USA           46   F              October-07
55                Hoody      USA, California   42   M                 April-06
56         Steve Green       USA, California   43   M              January-04
57        FightingMom            USA           32   M                March-07
58                   JCC                       64   M          February 2007
59        Russ Conley        USA, California   63   M           November-06
60               Mark O.     USA, Minnesota    43   M                  July-06
61              ashamp                         73   F           November-06
62                  VCM         CANADA         41   F   O+    December 2007
63              Rick_61                        55   M           January 2008
64                  LeeO                       50   M           September-06
65               ashfieb           UK          62   M          ############
66              mkwong                         37   M                  May-03
67                Eileen                       69   M              October-07
68    Pasquale La Tosa        USA, Florida     48   M               August-06
69               Jeannie          UK           29   F   A+             July-01
70             Dawinger        USA, MN         55   M                 April-07
71         hansdebree           Holland        52   M                 June-05
72     Matthew Fraser         New Zealand      36   M                March-05
73                 sh123                       39   M               April 2007
74            Herdlurky        USA, Iowa       28   M   AB+        October-03
75        Steveh92562        USA, California   44   M                 April-05
76                Guppy                        33   F                March-07
77          Pat Dwyer          USA, Seattle    46   M                 June-05
78              Csaba42         Hungary        42   M                 April-07
79               Moacir           Brasil       47   M                  May-07
80                  Berci       Hungary        51   F                 June-07
81    Treehugger39047             USA          65   M              October-04
82             kaihawaii        Germany        36   M   B+      November-07
83        Sheronemus              USA          48   M                March-06
84              groottde       Netherlands     59   M                 June-07
85               Dave S.      USA, Michigan    35   M                March-07
86                   DTA          USA          58   M              October-92
87           ZenArcher            USA          39   M             February-07
88                gjones          USA          56   M           December-05
89                  Lorie     USA, Alabama     46   F                March-05
90                    Joe         USA          38   M              October-07
91           J. Macnab         Great Britain   51   M           November-07
92                Dana P          USA          52   F   O+           March-06
93            jeremy b.           USA          58   M   A+             May-07
94                  Erika       Hungary        56   F             February-08
95                  CMA           USA          47   F             February-07
96                grob44         USA-FL        63   M           November-05
97             Donna B.       USA, Colorado    51   F   O+             May-05
98                   ctfla        USA          49   M              January-06
99              RENNIE       SOUTH AFRICA      51   M                  May-01
100              ireckon          USA          46   M              January-06
101                 Argia         Spain        30   M                 June-07
102                  BKK         Canada        54   M           November-06
103              Gene S                        59   M           September-06
104               crokay          USA          77   M             February-02
105              SHANO         AUSTRALIA       50   M               August-07
106             Wolfbane         USA         48   M         November 2007
107              RuleBoy         USA         54   M                May-05
108                Pajo13     HUNGARY        61   M              March-06
109             Brian J.       USA, CA       57   M                July-07
110            RWhitlock       NC, USA       58   M           November-78
111              DaddyO USA, Georgia         47   M          September-06
112           Boiler Fan         USA         67   M                July-07
113                  togos USA, California   49   M           December-05
114          Bosque2805          USA         64   F              March-05
115             SmoothS USA, Georgia         39   M   A-        October-06
116                  Trixie  Canada, AB      48   F              July 2006
117            Maureen e         USA         62   F                July-05
118     Penn State Mike                      34   M           November-07
119                     Stu    CANADA        57   M              March-07
 120              Patrick                    66   M            August 2006
121              Gasman       Wales, UK      49   M           December-05
122              Kenny A         USA         36   M            February-03
123       gamboachuck            USA         70   M           November-04
124                   nedv     CANADA        53   M             October-05
125                 Leedx USA/California     61   M   A+         April 2007
126 Removed intentionally
127                 reviva       USA         59   M               June-04
128             Shannon          USA         62   M          December-04
129             cheryilyn        USA         50   F          September-06
130     Roy J. Gromlich          USA         65   M           February-06
131                 Bunky        USA         62   F            January-05
132       SCHEMERA24 USA, Connecticut        34   M          September-06
133    Richard Atkinson       GERMANY        46   M               June-06
134       professorcraig         USA         48   M          December-07
135       OregonWayne            USA         51   M           February-07
136                wfuller       USA         47   M          December-05
137        Fotios Tzimas       GREECE        48   M              March-04
138              Barbara         UK          58   F                May-05
139                 Edwin USA, Colorado      60   M   AB+          May-06
140                    Tag   AUSTRALIA       46   F                May-06
141                     Blu      USA         65   M                July-06
142                   Janie SOUTH AFRICA     57   F               June-05
143     FOX TROTTERS             USA         37   M                May-07
144           Krisncrash     AUSTRALIA       47   M          September-07
145                 RickC        USA         58   M   O-       October-07
146                 Kensil     CANADA        68   M          November-06
147                  lgstot      USA         59   M            October-07
148                aloha1        USA         50   M          September-06
149                Philski   AUSTRALIA       43   M          December-07
150                 quilter      USA         53   F   O+     September-04
151                   Titus    CANADA        56   M          November-07
152                 SAKH      GERMANY        31   F   O+     September-06
153              midwest USA/midwest         64   M   A+        April 2006
154               gramps      USA/Texas      53   M             April 2007
155                Vicki S                   60   F   A+     September-07
156               Nanner        USA/MI       58   F   O+     December-99
157          Mary Ann W.      USA, Mass.     52   F          November-06
158            Sundance USA, Colorado        63   M   O+         May 1998
159         papadun1953                      54   M           August 2005
160                john33    AUSTRALIA       56   M                July-05
161                   joelc    CANADA        55   M             August-05
162              Rusty USA, California 68    F                   January 2007
163             debi c  USA, Florida   42    F          B+        March 2006
164            Li2CO3     CANADA       64    M                         May-07
165          gchatlos       USA        51    M                   November-03
166       Bob Brintz        USA        59    M                         May-07
167    handcrankking        USA        58    M                      May 2007
168         Elizabeth    Oxford, UK    57    F                   October 2007
169          because surrey bc CANADA 47     M                       March-05
170             Shaky       USA        51    M                    February-08
171               LNC     USA, NY      51    M                         July-07
172            DSmith       USA        48    M          A+            April-04
173           Onward        USA        54    M                         May-07
174       MALVINKA       HUNGARY       69    F                        June-07
175           klrkkent   USA, Ohio     40    M           ?       October 2005
176          PDADDY USA, California 55       M           ?          April 2008
177           Mrclean    Netherlands   54    M          O+         October-07
178            Tom M        USA        51    M          A+          August-08
179           Philatm       USA        53    M                   December-07
180          sanscott      Canada      57    F          O           April 2004
181               PBB       USA        49    M         AB+        February-05
182         mitchfirst      USA        58    M         O+         February-08
183         jhallowell      USA        44    M         O+           August-03
184            Tullnut USA, Nevada 56        M         O+       September-06
185     panamokapal         USA        45    F          A+       December-05
186        majestik12       USA        31    M                      August-08
187      luvthechiefs                  42    F          A-            April-08
188           Tamatik                  64    M                   January 2008
189           cbustos       Spain      46    F                      May 2007
190                linb     USA        63    F          A+      February 2008
 191             Marie    Canada       52    F          O+         September

                                    Click on the link below to calculate your ALSFRS and ALSFRS-R - today, after 1st,
                                            ALS Functional Rating Scale [ALSFRS] and ALS Functional Rating Scale-
                                                                   http://www.outcomes-umassmed.org/als/alsscale.cfm
                    ALSFRS-R                         On
                      at DX              ALS        Rilute Rilutek dose Lithium START      Lithium STOP
                [0=worst, 48=best]                    k
We encourage participants in our study to also start a profile at their website http://www.patientslikeme.com/welcome
                        45             sALS/limb     Yes 50 mg 2x/day ############### ###############
                        42               sALS        Yes 50 mg 2x/day ###############
                        45               fALS        Yes 50 mg 2x/day ###############       May 17, 2005
                        44               sALS        Yes 50 mg 2x/day ###############       June 17, 2008
                        40               sALS        Yes 50 mg 2x/day ###############       July 18, 2008
                        38               sALS        Yes     50 mgqd    ###############
                        45            lower MND      No                 ############### March 31, 2008
                        48               sALS        No                 December 9, 2007
                        47           sALS/Bulbar     Yes 50 mg 2x/day ###############
                        40               sALS        No                 ###############
                        46           sALS/Bulbar     Yes 50 mg 2x/day ###############       April 13, 2008
                                      sALS/Limb      No                December 24, 2007
                        45            ALS/Bulbar     No                   January 3, 2008
                        45           sALS/Bulbar     Yes 50 mg 2x/day ###############
                                         sALS        No                 ############### March 19, 2008
                        47            sALS/Limb      No                 February 29, 2008
                        47                           Yes 50 mg 2x/day December 9, 2007
                        43          UMND/bulbar      No                   January 6, 2008   June 28, 2008
                        46             sALS/limb     No                   January 4, 2008   June 20, 2008
                        45           sALS/bulbar     No                 December 5, 2007     April 7, 2008
                        45                           Yes 50 mg 2x/day January 9, 2008
                        48             sALS/limb     No                  January 10, 2008
                        44           sALS/bulbar     Yes 50 mg 2x/day January 10, 2008
                        45           MND/Bulbar      Yes 50 mg 2x/day January 15th 2008 March 25, 2008
                        44           sALS/bulbar     Yes 50 mg 2x/day January 17, 2008 February 9, 2008
                        33             sALS/limb     No
                        42           sALS/bulbar    Yes 50 mg 2x/day January 14, 2008
                        47             sALS/limb     No                  January 16, 2008
                        46             fALS/limb    Yes 50 mg 2x/day January 17, 2008
                                       sALS/limb     Yes 50 mg 2x/day February 4, 2008
                        48             sALS/limb    Yes                 ############### March 2, 2008
                        46             sALS/limb     Yes 50 mg 2x/day ###############
                        47           sALS/bulbar     No                  January 17, 2008  March 22, 2008
                        48             sALS/limb     No                  January 10, 2008   April 16, 2008
                        45             fALS/limb     Yes 50 mg 2x/day
                        46             sALS/limb                         January 12, 2008 February 21, 2008
                        43           sALS/bulbar     No                  January 23, 2008
                        48             sALS/limb     Yes 50 mg 2x/day ###############
                        47           sALS/bulbar     Yes                 January 22, 2008  March 25, 2008
                        48             sALS/limb     No                  January 23, 2008  March 23, 2008
                        40             sALS/limb     Yes                 January 24, 2008   April 27, 2008
                        48         sALS/bulbar/limb Yes 50 mg 2x/day January 27, 2008
                        42             sALS/limb     Yes 50 mg 2x/day January 30, 2008
                        46             sALS/limb     Yes 50 mg 2x/day January 16, 2008
                                       sALS/limb     Yes 50 mg 2x/day January 31, 2008
                        48             sALS/limb     No                  February 1, 2008    April 1, 2008
                                         sALS        No                 ###############
                        42             sALS/limb     Yes                 February 6, 2008   May 21, 2008
                        43             sALS/limb     No                  January 31, 2008    July 6, 2008
                 43    sALS/limb    No                     February 1, 2008 ###############
                 47    sALS/limb    No                     February 2, 2008
September 2006         sALS/limb    Yes                    January 17, 2007
                 41    sALS/limb    No                     January 31, 2008    May 4, 2008
                 48   sALS/bulbar   Yes   50 mg 2x/day     February 2, 2008
                 47   sALS/bulbar   Yes   50 mg 2x/day     February 3, 2008
                 46   sALS/bulbar   Yes   50 mg 2x/day     February 4, 2008
                 48    sALS/limb    Yes   50 mg 2x/day      January 1, 2008
                 47    sALS/limb    Yes                    February 1, 2008
                 42    sALS/limb    Yes   50 mg 2x/day     February 2, 2008   June 15, 2008
                 44      sALS       Yes   50 mg 2x/day     January 30, 2008
                 37    sALS/limb    Yes   50 mg 2x/day     January 31, 2008
                 45    sALS/limb    No                     February 7, 2008
                 47    sALS/limb    Yes   50 mg 2x/day     February 5, 2008
                 47   sALS/bulbar   No                     February 2, 2008   April 12, 2008
                 46    sALS/limb    Yes   50 mg 2x/day    ###############     April 16, 2008
                 45    sALS/limb    No                     January 29, 2008
                 46    sALS/limb    Yes   50 mg 2x/day     January 22, 2008
                 44   sALS/bulbar   Yes   50 mg 2x/day     February 9, 2008
                 46    sALS/limb    No                     February 8, 2008    June 6, 2008
                 47    sALS/limb    No                     February 8, 2008
                 45    sALS/limb    Yes   50 mg 2x/day           soon
                 47    sALS/limb    No                    February 13, 2008
                 37    sALS/limb    Yes   50 mg 2x/day     February 1, 2008
                 48    sALS/limb    No                     February 8, 2008
                 48    sALS/limb    Yes   50 mg 2x/day     February 9, 2008  March 15, 2008
                 45    sALS/limb    Yes   50 mg 2x/day     February 8, 2008
                 48    sALS/limb    Yes   50 mg 2x/day     February 8, 2008   April 24, 2008
                 45    don´t know   Yes   50 mg 2x/day     February 9, 2008
                 46    sALS/limb    Yes    50 mg 1x/day    January 20, 2008
                 46    sALS/limb    Yes   50 mg 2x/day     January 27, 2008
                       sALS/limb    No                          not yet
                 45    sALS/limb    Yes   50 mg 2x/day    February 11, 2008   July 18, 2008
                 43    sALS/limb    Yes    50 mg 2x/day   February 11, 2008
                 48    sALS/limb    Yes   50 mg 2x/day     February 8, 2008
                 48    sALS/limb    Yes    50 mg 2x/day    January 15, 2008  March 26, 2008
                 48    sALS/limb    No                     January 27, 2008    April 1, 2008
                 47    sALS/limb    Yes   50 mg 1x/day     February 7, 2008   April 21, 2008
                 37    sALS/limb    No                    February 13, 2008 March 23, 2008
                       sALS/limb                                 soon
                 47    sALS/limb    No                    February 13, 2008
                 43    sALS/limb    Yes 50 mg 2x/day       February 9, 2008
                 46    sALS/limb    No                    February 14, 2008   April 20, 2008
                 47   ALS/bulbar    No                    February 14, 2008   July 18, 2008
                 39    sALS/limb    Yes                     March 20, 2008    July 31, 2008
                      ALS/bulbar    No                    February 29, 2008   April 19, 2008
                 44    sALS/limb    Yes 50 mg 2x/day      February 16, 2008   May 10, 2008
                 47    sALS/limb    No                    February 15, 2008 April 23, 2008*
                 46    sALS/limb    Yes 50 mg 2x/day      February 15, 2008 August 15, 2008
                 45    sALS/limb    No                     January 14, 2008 August 15, 2008
                 47   sALS/bulbar   Yes 50 mg 2x/day      February 14, 2008
                 47    sALS/limb    Yes                   February 19, 2008
                 45   sALS/bulbar   No                       March 7, 2008   March 29, 2008
                 46    sALS/limb    Yes 50 mg 2x/day      February 15, 2008   July 28, 2008
                 42    sALS/limb    Yes 50 mg 2x/day      February 14, 2008
                 46   ALS/bulbar    Yes 50 mg 2x/day      February 14, 2008   March 3, 2008
47      sALS/limb       Yes     100 mg/day February 21, 2008       April 1, 2008
48      sALS/limb       Yes    50 mg 2x/day February 10, 2008     August 9, 2008
45     sALS/bulbar      Yes   50 mg 2x/day January 30, 2008
43      sALS/limb       No                  February 15, 2008
48      sALS/limb       No                  January 29, 2008       April 29, 2008
44     ALS/bulbar       No                  February 22, 2008
44     ALS/bulbar       Yes   50 mg 2x/day February 18, 2008
47      sALS/limb       Yes    50 mg 2x/day February 22, 2008
41      sALS/limb       Yes   50 mg 2x/day February 15, 2008       April 20, 2008
45      sALS/limb       No                   March 4, 2008
41     sALS/bulbar      No                  February 23, 2008
36      sALS/limb       Yes    50 mg 2x/day February 6, 2008
44     ALS/bulbar       Yes   50 mg 2x/day February 21, 2008
44      sALS/limb       Yes    50 mg 2x/day February 25, 2008      May 25, 2008
47     sALS/bulbar      Yes                 January 23, 2008      ~April 13, 2008
44      sALS/limb       Yes    50 mg 2x/day February 17, 2008
47      sALS/limb       Yes   50 mg 2x/day February 25, 2008
29      sALS/limb       Yes    50 mg 2x/day February 26, 2008
45      sALS/limb       Yes   50 mg 2x/day February 13, 2008
40      sALS/limb       No                  February 27, 2008

46      sALS/limb       Yes    50 mg 2x/day   February 26, 2008
46      sALS/limb       Yes   50 mg 2x/day    February 28, 2008    April 23, 2008
42     sALS/bulbar      Yes    50 mg 2x/day   February 29, 2008    May 15, 2008
40      sALS/limb       Yes   50 mg 2x/day    February 16, 2008
46      sALS/limb       Yes    50 mg 2x/day   February 29, 2008    July 30, 2008
47     sALS/bulbar      No                    February 21, 2008
45      sALS/limb       Yes    50 mg 2x/day   February 15, 2008
47     sALS/bulbar      Yes   50 mg 2x/day    February 21, 2008
43      sALS/limb       No                      March 1, 2008
45      sALS/limb       Yes   50 mg 2x/day    February 28, 2008
47     sALS/bulbar      No                    February 29, 2008   March 22, 2008
46      sALS/limb       Yes   50 mg 2x/day      March 6, 2008
40      sALS/limb       No                    February 27, 2008
48      sALS/limb       No                      March 4, 2008     August 16, 2008
46      sALS/limb       Yes   50 mg 2x/day    February 29, 2008
41     sALS/Unsure      No                      March 4, 2008     March 21, 2008
38      sALS/limb       Yes   50 mg 2x/day    October 29, 2007
43      sALS/limb       No                      March 8, 2008
46      sALS/limb       Yes   50 mg 2x/day      March 6, 2008       July 3, 2008
48   sALS/Respiratory   No                      March 7, 2008     August 17, 2008
        ALS/bulbar      Yes   50 mg 2x/day     March 10, 2008
48     sALS/bulbar      Yes    50 mg 2x/day    March 10, 2008     March 25, 2008
45      ALS/bulbar      Yes   50 mg 2x/day    February 21, 2008
43      sALS/limb       No                      March 3, 2008
46      sALS/limb       No                    January 24, 2008
46      sALS/limb       No                      March 6, 2008      June 3, 2008
45      sALS/limb       No                     March 13, 2008      July 12, 2008
32      sALS/limb       Yes    100 mg/day      January 7, 2008
46      sALS/limb       Yes   50 mg 2x/day     March 13, 2008      April 15, 2008
44      sALS/limb       Yes   50 mg 2x/day     March 13, 2008      July 12, 2008
44      sALS/limb       No                    February 29, 2008   March 29, 2008
44      sALS/limb       No                    February 27, 2008    July 14, 2008
48      sALS/limb       Yes   50 mg 2x/day     March 10, 2008     August 10, 2008
48      sALS/limb       Yes   50 mg 2x/day     March 12, 2008
47      sALS/limb       No                     March 12, 2008     March 26, 2008
                               43                bulbar         No                   March 20, 2008     June 30, 2008
                               45             fALS/bulbar       No                   March 14, 2008
                               48              sALS/limb        Yes   50 mg 2x/day   March 7, 2008
                               47             sALS/bulbar       Yes   50 mg 2x/day   March 10, 2008      June 3, 2008
                               48              sALS/limb        No                   March 24, 2008     July 10, 2008
                               48              sALS/limb        Yes   50 mg 2x/day   March 20, 2008     May 10, 2008
                               46             sALS/bulbar       No                  February 1, 2008
                               35              sALS/limb        No                   March 20, 2008     April 27, 2008
                               43             fALS/bulbar       Yes   50 mg 2x/day   March 26, 2008
                               43              sALS/limb        Yes   50 mg 2x/day   March 13, 2008
                               48              sALS/limb        No                   March 31, 2008
                               45              sALS/limb        No                  February 7, 2008
                               43              sALS/limb        No                    April 4, 2008     May 16, 2008
                               46              sALS/limb        Yes   50 mg 2x/day    April 2, 2005
                               45              sALS/limb        Yes                   April 4, 2008
                               48              sALS/limb        Yes   50 mg 2x/day    April 7, 2008
                               44              sALS/limb        No                   March 31, 2008
                               46              sALS/limb        Yes   50 mg 2x/day    April 10, 2008     June 7, 2008
                               48              sALS/limb        Yes                  March 18, 2008
                               46             sALS/bulbar       Yes   50 mg 2x/day    April 6, 2008
                               47             sALS/bulbar       Yes   50 mg 2x/day   March 27, 2008
                               48             sALS/bulbar       No                   March 17, 2008
                               47              sALS/limb        Yes    20 mg 2x/day February 25, 2008
                               48              sALS/limb        Yes   50 mg 2x/day    April 12, 2008
                               48              sALS/limb        Yes    50 mg 2x/day February 1, 2008   August 3, 2008
                               40              fALS/limb        Yes   50 mg 2x/day    April 14, 2008
                               44             sALS/bulbar       Yes     100 mg/day    April 1, 2008   ###############
                               46             sALS/bulbar       Yes    50 mg 2x/day   April 19, 2008
                               45             sALS/bulbar       No                    April 10, 2008
                               47              sALS/limb        No                    May 16, 2008

to calculate your ALSFRS and ALSFRS-R - today, after 1st, 2nd, 3rd ... month on lithium.
 Rating Scale [ALSFRS] and ALS Functional Rating Scale-Revised [ALSFRS-R]
       http://www.outcomes-umassmed.org/als/alsscale.cfm
                                                                             Lithium dose         Lithium dose
                Lithium RESTART Lithium form Lithium trade name
                                                                                   #1                   #2
p://www.patientslikeme.com/welcome/community/als
                                 Carbonate Carbolitium                       150 mg 2x/day        150 mg 3x/day
                                 Carbonate                                   150 mg 1x/day        150 mg 2x/day
                   June 13, 2008 Carbonate                                   250 mg 3x/day        250 mg 3x/day
                                 Carbonate Quilonum R                        200 mg 2x/day
                                                                             150 mg 2x/day        150 mg 3x/day
                                                                              150 mg bid             450 mg
                                                                             150 mg 2x/day         600 mg/day
                                                                             200 mg 2x/day        300 mg 2x/day
                                     Carbonate                               600 mg 1x/day         750 mg/day
                                     Carbonate                               150 mg 2x/day           450mg
                                      Orotate         Advanced Research      600 mg 1x/day         720 mg/day
                                                                             300 mg 1x/day
                                     Carbonate              Lito             150 mg 2x/day        150 mg 3x/day
                                     Carbonate             Roxane            150 mg 3x/day        150 mg 3x/day
                                     Carbonate                               150 mg 1x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                                                                             300 mg 2x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                  April 25, 2008     Carbonate                               150 mg 2x/day         450 mg/day
                                     Carbonate         Hypnorex retard       200 mg 2x/day        400 mg 2x/day
                                     Carbonate                               150 mg 2x/day        300 mg 2x/day
                                     Sulphate              Lithionit           42 mg/day          42 mg 2x/day
                                     Carbonate                               150 mg 2x/day        250 mg 2x/day
                                                                             150 mg 2x/day        250 mg 2x/day

                                     Carbonate              APO?             150 mg 2x/day        150 mg 3x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                                     Carbonate                               150 mg 2x/day        150 mg 3x/day
                                     Carbonate           Carbolithium        150 mg 2x/day        150 mg 3x/day
                                     Carbonate                                300 mg/day
                                     Carbonate                               150 mg 3x/day        150 mg 2x/day

                  March 4, 2008       Carbonate                               150 mg 2x/day
                                      Carbonate                               150 mg 2x/day       150 mg 3x/day
                                      Carbonate                               150 mg 2x/day       300 mg 2x/day
                                   liquid carbonate                        50 ml (300 mg)/day     75 ml (450 mg)
                                      Carbonate            Roxane             150 mg 2x/day       300 mg 2x/day
                                      Carbonate                               150 mg 2x/day
                                      Carbonate            Roxane             150 mg 1x/day       150 mg 2x/day
                                       Sulphate                               21 mg 4x/day        21 mg 5x/day
                                      Carbonate                           1/2 250 mg tab 2x/day   90 mg 3x/day
                                       Capsules                               150 mg 2x/day       150 mg 3x/day
                                      Carbonicum                              125 mg 2x/day       250 mg 2x/day
                                      Carbonate                               250 mg 1x/day
                                      Carbonate            generic            150 mg 1x/day       150 mg 2x/day
                                      Carbonate                               150 mg 2x/day       150 mg 3x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate                        150 mg 2x/day       450 mg/day
                Carbonate                        300 mg 2x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate       Roxana           150 mg 2x/day       600 mg/day
                Carbonate                        300 mg 2x/day
                Carbonate                         300 mg/day        300 mg 2x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate                         300 mg/day        150 mg 3x/day
                Carbonate                        150 mg 2x/day
                Carbonate     Apo Lithium        150 mg 2x/day      150 mg 3x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate                        150 mg 2x/day      300 mg 2x/day
                Carbonate       Plenur           130 mg 3x/day       300 mg/day
                Carbonate                        150 mg 2x/day      300 mg 2x/day
                Carbonate                        150 mg 2x/day      300 mg 2x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day
                Carbonate                        250 mg 1x/day      250 mg 2x/day
                Carbonate                        150 mg 2x/day      150 mg 3x/day

                Carbonate                         300 mg/day         375 mg/day
                Carbonate                         300 mg/day
                Carbonate                        150 mg 2x/day      300 mg 2x/day
                Carbonate                        150 mg 2x/day
                Carbonate      Lithicarb         250 mg 2x/day      250 mg 3x/day
                Carbonate                        150 mg 2x/day      300 mg 2x/day
                Carbonate                        125 mg 2x/day      250 mg 2x/day
                Carbonate    Carbolithium     300 mg + 150 mg/day   300 mg 2x/day
                Carbonate                        125 mg 2x/day      250 mg 2x/day

                Carbonate   Quilonum Retard     225 mg 1x/day       450 mg 1x/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day
                Carbonate       Priadel         150 mg 2x/day        400 mg/day
                Carbonate                       300 mg 1x/day       450 mg 1x/day
                Carbonate                       375 mg 1x/day        300 mg/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day

                Carbonate                       150 mg 2x/day       300 mg 2x/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day
                Carbonate                       150 mg 2x/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day
                carbonate      Lithicarb              ?             250 mg 2x/day
                                                150 mg 2x/day        600 mg/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day
June 18, 2008   Carbonate                       150 mg 2x/day       150 mg 3x/day
                Carbonate                        300 mg/day          600 mg/day
                CAMCOLIT                         400 mg/day          600 mg/day
                Carbonate                       150 mg 2x/day       150 mg 3x/day
                Carbonate                       150 mg 2x/day       200 mg 2x/day
                Carbonate                        300 mg/day          450 mg/day
                Carbonate                       150 mg 2x/day        150 4x/day
                Carbonate                        300 mg/day
                Carbonate                       250 mg 2x/day
 April 24, 2008    Carbonate                        150 mg 2x/day   150 mg 3x/day
                   Carbonate                        150 mg 2x/day   150 mg 3x/day
                   Carbonate                        150 mg 2x/day    150 3x/day
                   Carbonate                        300 mg 2x/day
                    Orotate                           720 mgs
                   Carbonate                        150 mg 2x/day   300 mg 2x/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        150 mg 2x/day   300 mg 2x/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        150 mg 2x/day   150 mg 3x/day
                   Carbonate          LiCarb         300 mg/day
                   Carbonate                        150 mg 2x/day   300 mg 2x/day
                   Carbonate                        150 mg 2x/day
                   Carbonate         Carbolith      150 mg 2x/day   150 mg 3x/day
                  camoclite tab                     250 mg 2x/day   250 mg 1x/day
                   Carbonate         Lithosun       150 mg 2x/day   150 mg 3x/day
                   Carbonate                        150 mg 2x/day    450 mg/day
                   Carbonate                        150 mg 2x/day    600 mg/day
                   Carbonate                        150 mg 2x/day    450 mg/day
                   Carbonate       Roxane Labs      150 mg 2x/day   150 mg 3x/day

                   Carbonate                        150 mg 2x/day    450 mg/day
                   Carbonate                        150 mg 1x/day   150 mg 2x/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        150 mg 2x/day    450 mg/day
August 15, 2008    Carbonate         Eskalith       150 mg 2x/day    450 mg/day
                   Carbonate                        150 mg 2x/day    450 mg/day
                   Carbonate      Hypnorex retard   200 mg 2x/day   200 mg 3x/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        150 mg 2x/day   150 mg 3x/day
                   Carbonate                        150 mg 2x/day    375 mg/day
                   Sulphate          Lithiofor      330 mg 2x/day
                   Carbonate          Priadel        200 mg/day      400 mg/day
                   Carbonate         Roxane         150 mg 2x/day   150 mg 3x/day
                   Carbonate         lithicarb       250 mg/day      750 mg/day
                   Carbonate                        150 mg 2x/day
                   Carbonate         Quilonum        450 mg/day
                    Orotate                          300 mg/day     300 mg 3x/day
                   Carbonate                        250 mg 2x/day
                   Carbonate                        150 mg 2x/day   150 mg 3x/day
                   Carbonate                        150 mg 2x/day   150 mg 3x/day
                   Carbonate                         150 mg/day      750 mg/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        250 mg 2x/day    250 mg 3x/day
                   Carbonate                        150 mg 2x/day    300 mg 2x/day
                   Carbonate           PMS          150 mg 2x/day   150 mg 3x/day
                   Carbonate      Hypnorex Retard    800 mg/day
                   Carbonate                         150 mg/day       300 mg/day
                   Carbonate                         450 mg/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        150 mg 2x/day
                   Carbonate                        150 mg 2x/day
                   carbonate          lithicarb      300 mg/day     300 mg 2x/day
                   Carbonate                        150 mg 2x/day    450 mg/day
                   Carbonate                         250 mg/day      500 mg/day
                   Carbonate                        150 mg 2x/day
               carbonate                      150 mg/day
               carbonate       Eskalith      150 mg 2x/day
               Carbonate                     150 mg 2x/day    300 mg/day
               Carbonate                     150 mg 2x/day   150 mg 3x/day
               Carbonate   generic capsule   150 mg 2x/day   300 mg 2x/day
               Carbonate                     150 mg 2x/day   300 mg 2x/day
               carbonate       priadel        600 mg/day
June 1, 2008   Carbonate                     150 mg 2x/day
               Carbonate                     150 mg 2x/day
               Carbonate                     150 mg 2x/day   300 mg 2x/day
               Carbonate                     150 mg 2x/day
               Carbonate                     150 mg 2x/day   150 mg 3x/day
               Carbonate                     125 mg 2x/day   250 mg 2x/day
               Carbonate                     150 mg 2x/day    450 mg/day
               Carbonate                     150 mg 2x/day
               Carbonate                      400 mg/day     400 mg 2x/day
               Carbonate                     150 mg 2x/day   150 mg 3x/day
               Carbonate                     150 mg 2x/day   150 mg 3x/day
               Carbonate                     300 mg 2x/day
               Carbonate                     150 mg 2x/day    100 mg/day
               Carbonate                     150 mg 2x/day    450 mg/day
               Carbonate                     300 mg 2x/day   600 mg 2x/day
               Carbonate                     150 mg 2x/day   300 mg 2x/day
               Carbonate                     150 mg 2x/day   150 mg 3x/day
               Carbonate                      150 mg/day      750 mg/day
               Carbonate                      450 mg/day      600 mg/day
               Carbonate                      300 mg/day      450 mg/day
               Carbonate      magistral       300 mg/day      450 mg/day
               Carbonate                      450 mg/day      150 mg/day
               Carbonate                     150 mg 2x/day    450 mg/day
    DATE            Lithium dose        DATE            Lithium dose        DATE
change dose #2            #3        change dose #3            #4        change dose #4

January 17, 2008 300 mg 2x/day February 19, 2008        150 mg 3x/day    March 3, 2008
January 24, 2008 150 mg 3x/day     March 18, 2008        600 mg/day      May 29, 2008
January 10, 2008 3 1/2 250 mg/day January 29, 2008      250 mg 4x/day

February 22, 2008
                     600 mg/day      March 11, 2008
 January 8, 2008
February 9, 2008     400 mg/day      March 15, 2008      600 mg/day
 January 7, 2008     900 mg/day     January 26, 2008     750 mg/day     January 30, 2008
January 15, 2008       600mg        February 1, 2008       450mg         March 15, 2008
January 26, 2008     840 mg/day                          720 mg/day     February 15, 2008

January 17, 2008    300 mg 2x/day   February 7, 2008    150 mg 4x/day   February 28, 2008
January 16, 2008    450 mg 2x/day   January 25, 2008

  April 8, 2008

January 22, 2008 150 mg 4x/day      February 11, 2008    450 mg/day       April 5, 2008
January 18, 2008 150 mg 4x/day      January 30, 2008     750 mg/day     February 5, 2008
     January       300 mg/day       February 16, 2008
 January 30,2008  400 mg 2x/day     February 13,2008     1200 mg/day     March 5, 2008
 January 23,2008  300 mg 2x/day     February 20,2008    300 mg 2x/day    March 17, 2008
January 17, 2008  42 mg 3x/day      January 30, 2008    4 x 42 mg/day   February 8, 2008
February 18,2008
February 19, 2008

 March 26, 2008
January 28, 2008    300 mg 2x/day   February 11, 2004    300 mg/day       April 15, 2008
January 22, 2008    150 mg 4x/day   February 8, 2008    150 mg 3x/day   February 20, 2008
February 14, 2008    900 mg/day       April 2, 2008      1200 mg/day        <May 13
January 17, 2008    150 mg 4x/day   February 13, 2008
January 23, 2008    150 mg 4x/day    March 6, 2008      150 mg 3x/day     April 29, 2008

January 18, 2008    150 mg 3x/day   February 8, 2008    600 mg/day       March 5, 2008


January 31, 2008
February 23, 2008
February 12, 2008
                     750 mg/day     February 19, 2008

February 4, 2008   150 mg 3x/day February 21, 2008      300 mg 2x/day
February 6, 2008 2*42+2*21 mg/day February 20, 2008
February 16, 2008 175 mg 2x/day    March 2, 2008        250 mg 2x/day     April 8, 2008
February 18, 2008   600 mg/day      April 2, 2008
February 25, 2008

February 9, 2008    150 mg 3x/day   February 15, 2008   150 mg 4x/day     April 3, 2008
Februay 7, 2008     150 mg 4x/day   Februay 14, 2008    150 mg 5x/day   February 28, 2008
February 9, 2008     600 mg/day      March 5, 2008       450 mg/day       April 1, 2008
February 19, 2008   300 mg 2x/day    March 5, 2008
Feburary 1, 2008     750 mg/day     February 15, 2008   300 mg 3x/day    March 18, 2008
 March 17, 2008     300 mg 2x/day

February 21, 2008   300 mg 2x/day    March 18, 2008


February 19, 2008    900 mg/day      March 5, 2008       600 mg/day      March 19, 2008
February 8, 2008    150 mg 4x/day   February 15, 2008   150 mg 3x/day   February 21, 2008
February 19, 2008    600 mg/day     February 27, 2008

February 28, 2008    600 mg/day        March             450 mg/day      April 9, 2008
February 14, 2008 300 mg 2x/day February 21, 2008       450 mg 2x/day    March 4, 2008
February 28, 2008
 March 14, 2008      400 mg/day     April 2, 2008
February 14, 2008 150mg+300mg day February 28, 2008
January 29, 2008     900 mg/day   February 7, 2008
February 29, 2008    600 mg/day    March 18, 2008        750 mg/day      March 29, 2008
February 22, 2008    625 mg/day    March 12, 2008        750 mg/day       April 4, 2008
 March 3, 2008     150 mg 4x/day   March 8, 2008        150 mg 5x/day     April 8, 2008

February 25, 2008   250 mg 2x/day           ?

  April 16, 2008

 March 13, 2008     500 mg 2x/day    June 23, 2008
 March 15, 2008
February 16, 2008   250 mg 3x/day     April 5, 2008
February 13, 2008    750 mg/day     February 29, 2008
February 3, 2008     375 mg/day     February 11, 2008   250 mg 2x/day   February 25, 2008

February 18, 2008   675 mg 1x/day   February 27, 2008   900 mg 1x/day    March 8, 2008
 March 15, 2008
February 14, 2008    600 mg/day     February 27, 2008    800 mg/day      March 12, 2008
January 15, 2008    300 mg 2x/day   February 1, 2008     900 mg/day      March 1, 2008
 March 13, 2008
February 13, 2008   150 mg 4x/day    March 14, 2008
February 27, 2008   150 mg 5x/day    March 7, 2008

 March 18, 2008     450 mg 2x/day     April 23, 2008    450 mg 3x/day     July 8, 2008
February 23, 2008    250 mg/day        May 1, 2008

February 20, 2008 300 mg 2x/day     February 27, 2008   300 mg 3x/day     April 9, 2008
  June 30, 2008
 March 17, 2008    900 mg/day               ?            750 mg/day       April 4, 2008
 March 30, 2008   150 mg 2x/day       May 4, 2008
 March 18, 2008 150 mg 4x/day        March 27, 2008      150 mg/day      June 18, 2008
February 15, 2008  750 mg/day        April 23, 2008
  April 19, 2008   750 mg/day               ?           600 mg/day        May 22, 2008
February 26, 2008 150 mg 4x/day      March 7, 2008
 March 4, 2008    150 mg 3x/day      March 18, 2008      600 mg/day       April 11, 2008
 March 27, 2008
  June 23, 2008
 March 19, 2008     150 mg 2x/day     May 1, 2008       150 mg 3x/day   May 22, 2008
February 20, 2008   300 mg 2x/day   February 29, 2008
February 13, 2008    375 mg/day     February 22, 2008   150 mg 2x/day   March 28, 2008


  April 24, 2008      900 mg/day      May 20, 2008      1200 mg/day     June 18, 2008

  April 1, 2008       300 3x/day      May 1, 2008        300 2x/day     May 21, 2008

 March 19, 2008     300 mg 2x/day     April 8, 2008      750 mg/day     April 30, 2008

 March 10, 2008       450 mg/day      April 7, 2008     600 mg/day      April 10, 2008

 March 6, 2008
February 5, 2008    181.5 mg/day    February 25, 2008
 March 6, 2008      300 mg 2x/day    March 20, 2008      750 mg/day      April 7, 2008
February 25, 2008
  May 31, 2008
  May 17, 2008
 March 14, 2008


February 28, 2008   150 mg 3x/day    March 12, 2008

 March 13, 2008
 March 22, 2008      300 mg/day       450 mg/day        May 30, 2008     150 mg/day
 March 31, 2008     300 mg 2x/day    April 13, 2008
February 28, 2008    1000 mg/day     March 7, 2008       800 mg/day     March 27, 2008

 March 28, 2008       600 mg/day      April 8, 2008
 March 10, 2008       450 mg/day     March 24, 2008      525 mg/day      May 7, 2008

       ?             600 mg/day       May 8, 2008
 March 5, 2008      150 mg 4x/day    March 20, 2008     150 mg 5x/day    April 7, 2008
 March 27, 2008      500 mg/day      April 14, 2008      250 mg/day      July 17, 2008


        ?

 March 12, 2008
 March 28, 2008     150 mg 4x/day     May 29, 2008
  April 3, 2008     300 mg 3x/day     April 15, 2008

 March 11, 2008     250 mg 4x/day    March 21, 2008
 March 10, 2008
February 7, 2008    150 mg 4x/day    March 1, 2008

 March 20, 2008       450 mg/day      April 3, 2008      150 4x/day     May 14, 2008




 March 20, 2008
 March 26, 2008       600 mg/day      April 15, 2008
 March 30, 2008
March 8, 2008     450 mg/day     April 7, 2008
April 5, 2008
April 8, 2008
April 10, 2008   450 mg 2x/day   April 26, 2008



April 19, 2008

May 15, 2008
April 10, 2008    375 mg/day      May 5, 2008
April 15, 2008    600 mg/day     April 30, 2008

April 17, 2008   200 mg 3x/day   April 25, 2008    500 mg/day     June 15, 2008
April 9, 2008     600 mg/day     April 19, 2008    750 mg/day      May 8, 2008
April 24, 2008   300 mg 2x/day    May 8, 2008     300 mg 3x/day   May 22, 2008

August 9, 2008
 May 19, 2008
March 31, 2008

April 29, 2008    600 mg/day     May 24, 2008     450 mg 2x/day   June 13, 2008
    <May
May 12, 2008      750 mg/day     May 16, 2008
April 18, 2008
April 30, 2008
   August
June 7, 2008
Lithium dose        DATE                LAST        LAST DATE      Level
                                                                    #1         Date #1
      #5        change dose #5      LITHIUM DOSE   CHANGE DOSE
                                                                   mmoL/

150 mg 2x/day     April 18, 2008     150 mg/day     July 6, 2008    0.2     January 4, 2008
                                                                    0.2     January 9, 2008
1250 mg/day           May            500 mg/day    June 13, 2008    0.2
                                                                    0.46   January 14, 2008
                                                                    0.35   January 10, 2008
                                                                    0.4     January 7, 2008
                                                                    <0.2
                                                                    0.42    January 9, 2008
 900 mg/day     February 12, 2008                                   0.3
                                      450mg                         0,16   January 15, 2008
                                                                    0.3

150 mg 3x/day         April                                         <0.2    January 9, 2008
                                                                    0.2     January 9, 2008

                                                                    0.4      March 12, 2008
                                                                    0.7    ###############
                                                                    0.2     January 12, 2008
 900 mg/day     February 12, 2008    600 mg/day     May 9, 2008     0.19    January 14, 2008
                                                                    0.3      January 8, 2008
1200 mg/day      April 9, 2008       1200 mg/day    1000 mg/day     0.23    January 29,2008
 300 mg/day      May 21, 2008                                       <.01    January 22,2008
5 x 42 mg/day    March 3, 2008                                      0.1     January 17, 2008
                                                                    0.32    January 22, 2008
                                                                    0.4     January 23, 2008

                                                                    <0.1   January 24, 2008
                                                                    0.29   January 23, 2008
                                                                    0.3    January 22, 2008
                                                                    0.27   February 14, 2008
                                                                    0.11   January 11, 2008
                                                                    0.2     January 5, 2008
                                                                    0.3    February 8, 2008
 900 mg/day       April 9, 2008                                     <0.3   February 4, 2008

                                                                    0.35    January 22, 2008
                                                                    0.3     January 28, 2008
                                                                    0.6    ###############
                                                                    0.3    February 11, 2008
                                                                    0.12    February 8, 2008

                                                                    0.3    February 4, 2008
                                                                    0.3    February 6, 2008
                                                                    0,3    February 14, 2008
                                                                    0.25   February 7, 2008
                                                                    <0.2   February 25, 2008

150 mg 6x/day     May 6, 2008                                       0.1    February 14, 2008
 900 mg/day      March 16, 2008      300 mg/day     July 3, 2008    0.14   February 5, 2008
                                                                   0.2     February 7, 2008
                                                                   0.2     February 8, 2008
 600 mg/day      June 2008                                         0.2     January 24, 2008
                                                                   0.2     February 28, 2008
                                                                   0.5      March 10, 2008
                                                                   0.2     February 8, 2008
                                                                   0.3
                                                                   0.2     January 10, 2008
 450 mg/day     April 17, 2008                                     0.21    February 8, 2008
                                                                   0.3     February 8, 2008
                                                                   0.21    February 18, 2008
                                                                   0.45    February 19, 2008
 300 mg/day     April 18, 2008    150 mg/day     September, 2008   0.2     February 25, 2008
                                                                   0.2     February 12, 2008
                                                                   0.2     February 18, 2008
                                                                   0.23      April 2, 2008
                                                                   0.28    February 4, 2008
                                                                    ?      February 6, 2008
900 mg/day      April 15, 2008                                     0.3     February 29, 2008
1000 mg/day     April 18, 2008    875 mg/day       May 2, 2008     <0.1    February 15, 2008
                                                                   0.2     February 28, 2008

                                                                   0.2     February 26, 2008
                                                                   0.4     February 14, 2008
                                                                   0.4     February 22, 2008
                                                                   >0.4    February 18, 2008
                                                                    <0      January 6, 2008
                                                                   0.1       March 3, 2008
                                                                   0.3     February 22, 2008
                                                                   0.12    February 8, 2008
                                                                   0,37    February 8, 2008

                                                                   0.25    February 27, 2008
                                                                   0.2     February 25, 2008
                                                                   0.2     February 14, 2008
                                                                   0,3     January 15, 2008
                                                                   0.3     February 2, 2008
                                                                   <0.2    February 12, 2008
                                                                   0.2     February 18, 2008

                                                                   0.007    March 18, 2008
                                                                   0.19     March 28, 2008
                                                                    0.3    February 21, 2008
300 mg 2x/day   April 19, 2008   150 mg 2x/day    May 31, 2008       0     February 20, 2008
                                                                   0.27      April 20, 2008
                                                                   <0.2     March 12, 2008
                                                                    0.3    February 15, 2008
                                                                    0.3    February 21, 2008
                                                                    0.2    February 8, 2008
 400 mg/day     May 31, 2008                                        0.4    February 19, 2008
                                                                   0.17    February 21, 2008
                                                                   0.23    February 28, 2008
                                                                    0.2     March 25, 2008
                                                                   >0.5    February 25, 2008
                                                                    0.6     March 11, 2008
                                                                    0.6    February 25, 2008
  600 mg/day       June 2, 2008       900 mg/day      August 21, 2008   <0.2    March 19, 2008
                                                                        <0.1   February 18, 2008
                                                                        0.36
                                                                        0.5    February 19, 2008

  600 mg/day       July 25, 2008                                        0.2    February 29, 2008

                                                                        0.2     March 11, 2008

300 mg 2x/day      May 7, 2008                                          0.3     March 10, 2008

  450 mg/day          April ?         600 mg/day       May 15, 2008     0.1    February 20, 2008

                                                                        0.2    February 29, 2008
                                                                        0.8    January 29, 2008
  900 mg/day       April 29, 2008                                       0.11   February 22, 2008
                                                                        0.3     March 7, 2008
                                                                        0.17   February 29, 2008
                                                                        0.2      May 17, 2008
                                                                         0      March 4, 2008

                                                                        0.6     March 26, 2008
                                                                        0.2     March 12, 2008
                                                                        0.4     March 7, 2008
                                                                        0.4    February 28, 2008
August 15, 2008     450 mg/day      August 30, 2008                     0.2     March 6, 2008
                                                                        >0.2    March 25, 2008
                                                                        0.2    February 28, 2008
                                                                        0.1    February 27, 2008
                                                                        0.3     March 20, 2008
  600 mg/day      August 30, 2008                                       0.34    March 6, 2008

                                                                        0.4     March 31, 2008
150 mg 6x/day      April 21, 2008                                       0.1     March 4, 2008
                                                                        0.3     March 24, 2008
                                                                        >0.3    March 21, 2008

                                                                        0.5     March 18, 2008
                                                                        0.4     March 12, 2008
                                                                        0.3     March 12, 2008
                                                                        0.2     March 11, 2008
                                                                        0.5      April 2, 2008

                                                                        0.3    February 26, 2008
                                                                        0.1     March 10, 2008
                                                                        0.2    February 4, 2008
                                                                        0.38    March 19, 2008
  450 mg/day      June 13, 2008                                         0.1     March 20, 2008


                                                                        0.4      April 4, 2008
                                                                        0.2     March 3, 2008
                                                                        0.2     March 9, 2008
                                                                         0      March 10, 2008
                                                                        0.3     April 26, 2008
                                                                         0      March 5, 2008
                               0.24    March 30, 2008
                               0.2     March 31, 2008
                               >0.3    March 31, 2008
                               0.1      April 3, 2008


                                0.6    April 16, 2008
                                0.2    April 26, 2008

                               0.2     April 17, 2008
                               0.69    April 22, 2008
                               0.3     April 9, 2008
                               0.1     April 4, 2008
600 mg/day   ###############   0.3     April 11, 2008
                               0.2     April 7, 2008
                               0.1     April 21, 2008
                               0.4     April 2, 2008

                                0.4    April 10, 2008
                               0.044   March 24, 2008
                                0.1    March 13, 2008
                               0.13    April 29, 2008
                               0.21    March 4, 2008
                                0.2    April 22, 2008
                                0.2     April 7, 2008
                               0.19    April 25, 2008
                                0.3     May 6, 2008
                                0.3     May 28, 2008
                                                                16, 20

Level                       Level                       Level                       Level
 #2         Date #2          #3         Date #3          #4         Date #4          #5
mmoL/                       mmoL/                       mmoL/                       mmoL/

 0.2    January 16, 2008     0.4    January 31, 2008      .3    February 18, 2008    0.5
 0.1    January 16, 2008     0.2     March 10, 2008       .5      June 10, 2008
 0.34   January 29, 2008     0.41   February 12, 2008    .39             ?            .5
 0.46   January 20, 2008     0.48     April 7, 2008      .51      May 27, 2008
 0.24   February 11, 2008    0.33    March 3, 2008       .38      April 14, 2008     .34
 0.3    February 11, 2008    0.5     March 31, 2008

 0.44   February 19, 2008    0.4     March 15, 2008      0.34    March 25, 2008
 0.37   January 18, 2008     0.46   February 1, 2008     .33    February 11, 2008    .61
 0,32   February 1, 2008     0,4    February 7, 2008     0.35     April 1, 2008       .2
 0.3    February 25, 2008

 <0.2   January 16, 2008     <0.2   January 24, 2008     0.2    January 31, 2008     <0.2
 0.2    January 25, 2008     0.4     January 6, 2008

 0.3      April 3, 2008      0.4      April 23, 2008
 0.55   January 22, 2008
 >0.2   January 18, 2008     0.2    February 5, 2008     .38     March 24, 3008
 0.24   January 23, 2008     0.32   February 4, 2008     .38    February 11, 2008    .42
 0.9    February 8, 2008     0.3     March 21, 2008       .4     March 24, 2008
 0.42   February 13,2008     0.38     March 4,2008       0,6     March 27, 2008      0,51
 0.3    January 30, 2008     0.5    February 20, 2008    0.5     March 17, 2008
 0.2    January 30, 2008     0.3    February 8, 2008     0.3    February 27, 2008     .6
 0.22   February 12, 2008    0.3    February 17, 2008     .4    February 26, 2008     .5
 0.3    February 18, 2008

 0.3     March 10, 2008      0.11     April 30, 2008     .48     June 13, 2008
 0.49   February 4, 2008     0.35   February 11, 2008    .47     March 3, 2008       .54
 0.3    February 8, 2008     0.5    February 20, 2008
 0.4      April 2, 2008      0.4             ?
 0.1      April 2, 2008      0.3    February 22, 2008
 0.23   January 22, 2008     0.29   February 16, 2008    .34    February 16, 2008    .32

 <0.3    March 4, 2008       <0.3     April 7, 2008

 0.6      May 20, 2008
 0.6    February 11, 2008    0.6     March 10, 2008       .6      May 15, 2008
 0.5    February 11, 2008    0.3    February 22, 2008     .5     March 20, 2008
 0.7     March 17, 2008
 0.33   February 16, 2008    0.52   February 26, 2008

 0.29   February 18, 2008    0.39    March 4, 2008       .36      April 16, 2008
 0,4    February 13, 2008    0.4    February 20, 2008     .5    February 27, 2008    0.5
 0.3      April 3, 2008      0.4      June 6, 2008
 0.44   February 26, 2008    0.33    March 25, 2008      .33      April 1, 2008       .5


 0.2    February 21, 2008    0.3    February 29, 2008     .2     March 20, 2008       .2
 0.26   February 12, 2008    0.24   February 26, 2008    .27     March 6, 2008       .44
0.4    February 15, 2008   0.3    February 21, 2008    .2     March 5, 2008      0.4
0.3    February 29, 2008   0.4         March
<0.2   January 31, 2008    0.2    February 15, 2008    .3    February 26, 2008    .5
0.2     March 13, 2008

0.2    February 15, 2008   0.3    February 28, 2008   0.2     March 6, 2008       .4

0.23   January 28, 2008    0.1      April 7, 2008
0.35   February 25, 2008   0.53    March 10, 2008     .38     March 25, 2008     .34
0.3    February 13, 2008   0.5    February 19, 2008    .4    February 27, 2008    .4
0.3    February 27, 2008   0.46    March 12, 2008      .5     March 26, 2008


0.3    February 21, 2008   0.3     March 3, 2008      0.7     March 11, 2008


0.56   February 20, 2008   0.49    March 10, 2008     0.31    March 17, 2008     0.6
0.54    March 4, 2008      0.53     May 29, 2008
0.2     March 18, 2008     0.3     March 29, 2008      .4     May 30, 2008
0.26    March 10, 2008     0.25     April 2, 2008     0.29    April 16, 2008     0.6
0.7     March 13, 2008     0.4      April 8, 2008      .5     June 11, 2008

0.3     March 12, 2008     0.3      April 18, 2008     .5      May 15, 2008

0.2      April 14, 2008    0.5      May 2, 2008        .5      May 31, 2008


0.4      April 4, 2008
0.4      April 25, 2008
0.16   February 22, 2008   0.28     April 18, 2008
0.38   February 18, 2008   0.41   February 28, 2008   .42     March 14, 2008

0.37    March 7, 2008      0.48    March 19, 2008     .51      April 3, 2008     0.47
0.3     March 10, 2008     0.4     March 24, 2008      .3      April 7, 2008      .8
0.27   February 27, 2008   0.39    March 12, 2008     .51     March 27, 2008
0,3    February 1, 2008    0.3    February 21, 2008    .4     March 25, 2008
0.4    February 9, 2008    0.4     March 1, 2008
0.4    February 25, 2008   0.3     March 10, 2008      .5     March 24, 2008      .4
0.3    February 25, 2008   0.25    March 4, 2008

0.19     April 23, 2008    0.38     July 8, 2008


0.3    February 27, 2008   0.3     March 5, 2008       .5      April 15, 2008     .3
0.34     June 16, 2008
0.3       April 4, 2008
0.4    February 26, 2008   0.2     March 18, 2008      .3      April 4, 2008      .3
0.3    February 28, 2008   0.3     March 6, 2008       .3     March 13, 2008     .38
0.3      April 13, 2008    0.5                        .56     June 20, 2008
0.3      April 18, 2008    0.5     May 13, 2008        .7      May 20, 2008       .3
0.21   February 28, 2008   0.26    March 6, 2008       .4     March 13, 2008
0.28    March 13, 2008     0.33    April 10, 2008

0.4     March 25, 2008     2.7       May 2, 2008      1.7      May 7, 2008        .4
0.4      April 2, 2008     0.7      April 30, 2008
<0.2     July 14, 2008     0.4     August 25, 2008
0.2    February 28, 2008   0.4     March 11, 2008     0.4   March 27, 2008   0.4
0.33   February 5, 2008    0.67   February 19, 2008   .58   March 21, 2008
0.5    February 27, 2008   0.4      March 5, 2008     0.5   March 12, 2008   .5

0.1     March 10, 2008     0.2     March 17, 2008     0     April 24, 2008   .23

 ?      March 25, 2008     0.2      April 1, 2008     .3     May 1, 2008     .4

0.2     March 18, 2008     0.3      April 8, 2008     .4    April 15, 2008   .6

0.2     March 26, 2008     0.2      April 3, 2008     .2    April 22, 2008   .12

0.4     March 14, 2008     0.5      April 4, 2008     .5     May 6, 2008
0.4    February 5, 2008    0.55   February 25, 2008
0.15   February 29, 2008   0.22    March 11, 2008     .27   March 18, 2008   .39
0.3     March 14, 2008     0.3     March 21, 2008      .6    April 9, 2008
0.19    March 7, 2008      0.2     March 14, 2008     .28    May 19, 2008    .49
0.4    August 20. 2008 ?
 0      March 11, 2008     0.3     March 18, 2008


0.4      April 2, 2008     0.4      July 3, 2008

0.3     March 13, 2008     0.4     March 26, 2008     0.5    April 9, 2008   .5
0.3     March 13, 2008     0.2     March 20, 2008     0.3   March 27, 2008   .4
0.4      May 9, 2008       0.5     June 25, 2008
0.29    March 7, 2008      0.66    March 27, 2008

0.3      April 8, 2008     0.3     April 22, 2008      .5    May 8, 2008
0.39    March 14, 2008     0.41    March 20, 2008     .39   April 30, 2008   .47

0.4     April 21, 2008
0.2     March 19, 2008     0.2      April 4, 2008     .4    April 28, 2008   .4
<0.4     April 1, 2008


0.4     March 25, 2008     0.5      April 18, 2008     .5    May 9, 2008
0.4     March 26, 2008     0.41      May 9, 2008      .39    June 7, 2008    .4
0.5     March 18, 2008     0.4      May 19, 2008
 ?      March 17, 2008     0.4      April 22, 2008    .3    May 27, 2008     .4
0.3      June 4, 2008

0.3     March 11, 2008     0.4     March 20, 2008     .4    March 29, 2008
0.6     March 24, 2008     0.6      April 8, 2008     .7    April 15, 2008   .6
0.3    February 26, 2008   0.3     March 26, 2008     .4    April 25, 2008
0.69     April 17, 2008
0.2     March 27, 2008     0.4      April 10, 2008    .3     May 8, 2008     .4


0.3      April 10, 2008    0.3      July 10, 2008

0.4     March 25, 2008     0.4     April 25, 2008     .3    April 22, 2008   .3
0.3     March 19, 2008     0.3     March 26, 2008     .4    April 3, 2008    .4
0.7     April 17, 2008
0.43    April 29, 2008   0.35    June 3, 2008    .41   ###############
0.2     April 30, 2008
0.4     April 14, 2008
0.2     April 16, 2008   0.4    <May 10, 2008


0.4    August 28, 2008


0.2     May 15, 2008

0.3     April 24, 2008   0.4     May 6, 2008      .4     June 10, 2008
0.1     April 11, 2008   0.2    April 18, 2008    .2     May 28, 2008    .2
0.8     April 18, 2008   0.5    April 25, 2008    .3   ###############
0.3     April 16, 2008   0.4    April 25, 2008    .3     May 20, 2008    .4
0.14     May 5, 2008     0.19   May 19, 2008     .27      June 4, 2008
0.4     May 11, 2008

0.38    July 24, 2008    0.4      May, 2008
0.12   March 31, 2008    0.33    April 8, 2008
0.4     April 4, 2008    0.4     May 15, 2008     .5    August 7, 2008
0.22    May 24, 2008     0.36   June 13, 2008    .47     July 1, 2007    .57
0.27   March 13, 2008    0.39   March 20, 2008   .24     May 28, 2008
0.3    April 30, 2008    0.3     May 14, 2008
<0.2   April 14, 2008    0.35    May 12, 2008    .45     July 10, 2008
0.35    May 6, 2008

0.3     June 4, 2008     0.4    June 18, 2008
0

                        LAST LEVEL                       DATE reached
        Date #5                         LAST DATE
                          mmoL/L                        0.4 - 0.6 mmoL/L

    February 25, 2008        0.2        July 18, 2008   January 31, 2008
                                                          June 10, 2008
       May, 2008                                        February 12, 2008
                                                        January 14, 2008
      May 14, 2008
                                                         January 7, 2008

                                                        January 9, 2008
    February 25, 2008        .41        March 3, 2008   February 1, 2008
      June 20, 2008                                     February 7, 2008


    February 7, 2008         .4         March 6, 2008     March 6, 2008
                                                         January 6, 2008

                                                         March 12, 2008
                                                        ###############

    February 18, 2008        .52     February 26, 2008 February 18, 2008
                                                       February 8, 2008
      April 11,2008     ############   May 24, 2008    February 13, 2008
                                                       February 20, 2008
     March 18, 2008          .6       March 18, 2009    March 18, 2008
     March 7, 2008                                     February 26, 2008
                                                       January 23, 2008

                                                          June 13, 2008
      April 1, 2008          .47        June 26, 2008   February 4, 2008
                                                        February 20, 2008
                                                           April 2, 2008

      April 22, 2008



                                                         May 20, 2008 ?
                                                        February 11, 2008
                             .5        March 20, 2008   ###############
                                                         March 17, 2008
                                                        February 26, 2008


     March 26, 2008          0.5        June 4, 2008    February 13, 2008
                                                          June 6, 2008
      April 24, 2008                                    February 26, 2008


     April 19, 2008           .4        May 21, 2008      May 21, 2008
     March 26, 3008          .53        May 22, 2008     March 26, 2008
May 20, 2008     .5     July 9, 2008      April 1, 2008
                                         ~March 15, 2008
 May 7, 2008     .3    June 18, 2008       May 7, 2008

                                          March 10, 2008
March 25, 2008   .5     June 5, 2008      March 25, 2008


April 7, 2008    .32    July 22, 2008     March 10, 2008
March 6, 2008     .4    May 14, 2008     February 19, 2008
                                          March 12, 2008
                                         February 19, 2008

                                          March 11, 2008


April 21, 2008   .32    July 22, 2008    February 20, 2008
                                          March 4, 2008
                                           May 30, 2008
April 25, 2008   .44    May 9, 2008        April 25, 2008
                                          March 13, 2008

                                           May 15, 2008
                                         February 14, 2008
                                         February 22, 2008


                                           April 4, 2008
                                           April 25, 2008

                                         February 28, 2008

April 18, 2008                            March 19, 2008
 May 1, 2008     .4    August 19, 2008    March 24, 2008
                                          March 27, 2008
                                          March 25, 2008
                                         February 9, 2008
 April 7, 2008   .4     April 18, 2008   February 25, 2008




 May 5, 2008     .2    June 21, 2008       April 15, 2008


April 20, 2008                           February 26, 2008
March 27, 2008   .47    April 3, 2008      April 3, 2008
                                            ~May 2008
August 2, 2008                           February 19, 2008
                                          March 13, 2008


June 12, 2008    .3    June 23, 2008      March 25, 2008?
                                          March 11, 2008
                                         February 25, 2008
                                           August 25, 2008
 April 25, 2008   .5      July 14, 2008    March 11, 2008

 April 8, 2008    .6      June 9, 2008     February 19, 2008

 May 4, 2008      .5     June 16, 2008      June 16, 2008

 May 21, 2008                                May 21, 2008

 May 6, 2008

 April 30, 2008   .4      May 18, 2008       May 18, 2008

                                         March 14, 2008
                                        February 5, 2008
 April 15, 2008   .5      July 18, 2008   May 8, 2008
                                          April 9, 2008
June 10, 2008     .47   ###############  June 10, 2008
                                        August 20, 2008?


                                            March 26, 2008
                                             April 2, 2008
                                            March 7, 2008
 May 14, 2008     .7      June 25, 2008    February 28, 2008
 April 3, 2008    .4     October 2, 2008     April 3, 2008
                                             May 9, 2008
                                            March 27, 2008


 May 14, 2008     .38   August 27, 2008     March 30, 2008

                  .5      May 19, 2008      March 31, 2008
June 17, 2008     .4     August 4, 2008     April 28, 2008



                                            March 18, 2008
August 12, 2008                             March 12, 2008
                                            March 18, 2008
June 26, 2008                               April 22, 2008
                                             April 2, 2008

                                            March 20, 2008
 July 2, 2008     .2    ###############     March 24, 2008
                                            April 25, 2008
                                            April 17, 2008
 May 22, 2008     .4      May 29, 2008      April 10, 2008


                                             April 4, 2008

June 19, 2008                               March 25, 2008
April 15, 2008    .6      May 27, 2008       April 3, 2008
                                                    April 29, 2008

                                                    April 14, 2008
                                                    ~May 1, 2008


                                                    April 16, 2008




                                                     May 6, 2008
August 13, 2008                                      May 6, 2008
                                                    April 18, 2008
June 25, 2008     .4          August 12, 2008       April 25, 2008

                                                    April 4, 2008

                                                    April 10, 2008

                                                    April 4, 2008
August 4, 2008

                  a little dry mouth and maybe bad taste. that's it. i did have one brief experience the first day where i was v
                                                   July 10, 2008


                                                    June 18, 2008
                                                                            Side Effects
                                                                               overall

                   Dry mouth during sleep, slight headache(went away when I started taking lithium just after meals), increased fasciculations
                                                        strong increased urination, increase in fasciculations
                                                                                   none
eased fasciculations - noticed after two weeks - More weakness in knees, increased urination, irregular bowel movements. Could not tolerate 1250 mg/da
                                                                   skin irritation like mosquito bites
                                                                            much weaker legs
                                                                              no side effects
                                           diarrhea, loss of appetite, fatigue at 600 mg/day; dropped back to 400 mg/day
                                                                                   none
                                                       more saliva, more sluring of speech right after taking it
                         at 1200 mg/day had diarrhea, weakness in hands, ill feeling. Better after dropping to 480 mg/day lithium orotate
                                                                     Skin irritation, severe itching
                                           Non. I had more saliva and more fasciculations at beginning but not anymore.
                                                          increased saliva and fasciculation, taste in mouth
                                                                       dry mouth during sleep-?
                                       Dry mouth during the night and muscle cramps -- no more dry mouth or muscle cramps

                                                   increased fatigue on 1st day and continued increased saliva
                                                                       foot pain on first day
                                                                               none
                                                                   slight trempling of the hands
                                                 Itchy Feet, low thyroid - need to see Dr. and increase synthroid
                                                            loose bowel movements at dose increase



                                      increased fatigue, slight appetite loss, nausea, and diarrhea, gone after two months
                                                                                N/A


                                                     Weakness, nausea, urgency of urination, diarrhea
                                     Maybe more fatigue and for sure reappearing fasciculations after 4 months of absence
                                                                          none yet


                                                          losing hair; pre-existing Hashimoto's thyroid
                                                                               none
                                                                               none
                                             hand tremor, some digestion problems, hypothyroidism (being treated)

                                                                                  none
                     Depression and itchy skin are gone. Still thirsty, still extra drool, Slight extra fasciculations (reduced since last report)
                                                                                  none
                                                  urgency to urinate and occasional loose bowel movements
                                                          decreased thyroid -- on thyroid medication
                                            I feel weaker, not sure whether because of lithium or another reason.
                                                                                  none
                                                   temporary (48 hours) depression after increasing dosage
                                                       slight appetite loss and occasional constipation
                                      increased weakness and slurring - swollen feet; occasional slurred speech
                                                                          headache
                                                                           none yet
                possibly increased fasciculation, particularly in neck and nose (never had fasciculations in nose before starting Lithium)
                                                                            none
                                                                            none
                                                                             No
                                                        weight gain aftr two months (~ 10 pounds)
                                                                      increased saliva
                                                                         rash (gone)
                                                    One week with increase fasciculation, none after
                                                                     mild constipation
                                                                      reaction to paxil
                                                some fasciculations, but not as bad as previously, none
                                                                 more fatigue and weakness
                                                                 SLIGHT HAND TREMORS
                                                                            none
                                                                       NON SO FAR
                                                 mild headache, hand tremors, increased fasciculations

                                                                          none

                                                                         none
                                                   strange taste in mouth and esophogus -- very bad
                                                                         none
                                                   occasional headache (not sure if related to lithium)
                                                                         none
                                                                         none
                                                                         none

 they were gone (thirsty and very very bad, metallic taste in my mouth and also some kind of metallic smell in my nose), and dizziness after standin
                                                                         none
                                                                         none
                 Increased fasc., occasional upset stomach at start up, mild headache at start up. Restless sleep, more fasc., weaker?
Upon starting, symptoms (fasciculation's, weakness, etc) accelerated, but, returned to pre-lithium levels after 2 weeks. nausea and increased urinati
                                                               Occasional slurred speech
                           constipation and headaches. Side effects so bad that lithium discontinued as of March 23, 2008

                                                                           none
                                                                           none
                                                    increased fasciculations, fatigue, slight headache
                                                                 upset stomach? Fatigue
                                                                        weakness
                       I've been taking Lithium since a week now and just since yesterday I started feeling weakness, and fatique
                                                                           none
                       headache every day for first week, then stopped. Increased saliva, twitching, & clonus; stiff & hard to walk
                                                                           none
                                                                           none
            saltwater taste in mouth. More energy at 300 and 450 mg but less energy at 600 mg. Initially spasms & fascics but cleared up.
                                                         Increased fasciculation, Urgency to pee
                                                                           none
                                nearly reached lithium toxicity when food, water intake curtailed by swallowing difficulties
                                                                           none
        I HAVE HAD AN UPPER BODY HEAT RASH FOR 6 MONTHS, THAT SUDDENLY GOT WORSE AT ABOUT THE TIME I STARTED
                                                                 No side effects as far as
                                                                            none
                                                                            none
                                                                    mild upset stomach
                                                         occasionally slight headache and nausea
                                                            dry mouth, increased fasciculations
                                                                            none
                                                                            none
                                                                            none
                                                                            none

                                            Soft bowl movements -- starting to feel less tired.. also have diarrea
                                                                             none
headache and nausea for first three days (gone), abdominal cramps, increased urination - legs and trunk a little weaker. Less steady walking and on the
                                     THIRSTY ALL THE TIME, A SMALL RASH THAT LASTED ABOUT TWO WEEKS
                                                      loose but regular stools, increased fasciculations?
                        The only side-effects I had were headaches, nausea and diarhea for the first 2 weeks. No problems since
                                                 not experienced any noticeable effects, positive or negative
                                                                occasional nausea/hot flushes
                                                                   HEADACHE, FATIGUE

                                                                                none
                                                                                none
                                                                                 n/a
          Possibly increase urination - nothing else so far - WEAKNESS, LETHARGY, POOR CONCENTRATION, SWOLLOWING DIFFICULTIES
                                                   Increased urinations, increased muscle weakness, and fatigue
                                                                       eyes burn on occasion
                     very itchy dry skin in the face but this may come from the penacilin after I fell down and they had to stich up my face
                                                                                none
                                                                 increased fasciculations, urination
                                                                                none
                                                                                 No
                                                                                none
                             after moving up to 600MG/day I now have mild headaches, cramps, hand tremors, muscle weakness
                                                                                 No
                                                                                none
                                             felt weaker, couldn't even pick up a spoon, very weak breathing at night
                                               some weakness and can't get to sleep quickly (noted after month 4)
                                                                                none
                                                                                 No
                            maybe going to bathroom more often because of upped consumption of water only been on Li for 1 day
                                                                                none
                             weakness, fatigue, dullness of mind, not alert, stomach upset, increased urination, difficulty breathing
                                           some fasciculations after increase to 250 mg 4x/day, stopped after 4-5 days
                                                                                none
                                                                                none
                                                                             None so far
                                                    increased freuency pf urination, fatigue, swelling of the feet,

                                                                            none
                                                                            none
                                                   First week headaches and nausea, but have subsided
                                                                  fasciculations in week 2
                                                                            none
                                                                            none
                                   Neck pain/fatigue, headaches, increased urination, increased stiffness in hands/fingers
                                                                                 none
                                                         No negative nor positive side-effects are noticeable
                                                                                 none
                                        After second month: slowness, slightly slurred speech, possible muscle weakness
                                                   increased weakness, increased fasciculations, urinary urgency
                                                                               dry skin
                                                                                 none
                                                                      occasional burning of eyes
                                                                                 none
                                                                                 none
                                                                                 none
                                                                                 none
                                                                                none
                                                                                 none
                                                                         nead to urinate more
                                           Vision problem on 2nd day for 1/2 hour then cleared up. Mild metallic taste.
                                                                                 none
                                                                                 none
                                                                                  No
                                                                                 none
                                               tired, loss of appetite & my concentration when writing is challenged.
                                                                                 none
                                                                          bad taste in mouth

bad taste. that's it. i did have one brief experience the first day where i was very *aware* of my tongue. one shouldn't be aware of one's tongue. weird. it
                                                                 drwosiness immediately after taking a tab

                          with increase from 300 to 450 deep fasciculations, feeling of unwellness, mood down. Felt better on 300 mg.
                                                                       feelings of nausea
                                                         Improvements
                                                            overall

                                                                 none
                                                                 none
                                                                 none
                                                                 none
                                                                 none
                                                            more energy?
                                                                 none
                                                                 none
                                                         less fasciculation?
                                                    less cramps & spasticity,
                                                                 slite
                                                          right hand digits?
      Better function/power on my legs (can bicycle 10km), better strength in m left hand, better sleep at night, more energy
                                                       slight imprv. In R foot
                                                         maybe, not sure-?
                                         more flexibility and function in fingers and toes

                                                              none
                                                              none

                                                             none
                                                More energy, overall improvment
                                                             none




                                                               N/A

                                                              none

                                                              none




Cramping disappeared after start of Li. Cramping has gotten a little worse in the last week. No change noticed in condition (score)



                                                              none
                                                              none
                                                    No longer cramping in bed
                                        painful cramping in legs stopped; painful cramping in hands much diminished




efore starting Lithium)

                                         previously severe fasciculations dramatically slowed, speech appears better
                                                                             none




                                                                       swallowing better




                                                              feeling a little stronger in the legs




y nose), and dizziness after standing



eeks. nausea and increased urination.




                                                                     no cramps or spasms
                                        wife thinks handwriting is easier to read. Third month: Emotional lability gone.




s & fascics but cleared up.



                                                                          feel better
BOUT THE TIME I STARTED
h less cramps in neck (yawning) - No lump in throat - Voice clearer - Able to type with left hand - Able to write better - decreased saliva/drooling and increa




                          eye lid fasciculations stopped, tears no longer burn eyes, feet are no longer cold, and legs are slightly stronger
                                                       A LITTLE EASIER TO SWALLOW SIPS OF WATER




            strength of legs, lower back and sides Easier time sitting & standing Easier time eating, chewing & swallowing - less coughing and choking




                                                             feels calmer, and significantly less stiffness




                                              decrease in fasciculation, less cramping, less spastic finger movements
                                                         less fasciculations, less cramping, less saliva




be aware of one's tongue. weird. it passed quickly and has not returned
                               ALSFRS-R
                            scale calculation
                           [0=worst, 48=best]
at at Li   1st   2nd 3rd     4th   5th   6th    additional
DX start   mth   mth mth     mth   mth   mth
                                                                date
                                                  point

45   25    25    25   22     22    20    20      Vit.E 1200mg/day - Vit.B12 subl./day - Ômega3/DHA 1gr/day – start creatine 5gr/da
     38    38    38   38     37    37    36
45   45          45   45     47          41
44   35    37    36   35           34
     10    7     7    7      7     6
38   26    25    25   25     25    25    24
     40    39    40                      35
48   30               25
     34    34    35   35     34          32                   Multivitamin, CoQ10, NAC, grapeseed extract, milk thistle, sphingolin, f
40   25    25    25   25     24    24    24
46   30    33    34   33                 11

45   39    42    44   44     42    40    37
45   39    39    39

47   39    40    39   35     37    37                    CoQ10 800 mg/day, Vitamin E, 1000 mg/day, Vit C, 200 mg/day, Alpha lipoic
47   29    29    29   29     29    29
43   41    40    40   40     40    40    40
46   40    39    37   36     34    28    28
           43    41   40     40    39    40
45   45    45    45   43     43    43    42
48   39    39    39   36     33    33
44   22    22    21   19     15
45   32    30    30                                                    Rilutek 7 months, CoQ10, tamoxifen, E, C (not taking C, E, Ta
44   26

42   31    32    32   32     32    32    32                      Vits C (1500 mg),D (2000 mg),E(1600 IU),CoQ10 (800 mg),grape s
47   28    28    29   29     28    29    27
46   31    28         30                 23
     24    20    20   20     20                     17        9/26/2008
48   39    39    39
46   43    43    43   43     42    42    42
47   41
48         21    21   21
45   28                                                                  Vitamin E, Nucleo CMP Forte - Treated with stem cells in X-
46                                                                  multivitamin, vit C, vit D cream, magnesium, b12 shots, folic acid
43   38    36    35   34     34    32               27        9/19/2008
48   23    23    23   23     22    22    22
47   37    36    37   33     34          31
48   38    38
40   12    15                            4
48   40    40    40   40     40    40    41
42   1     1     1    1      1     1
46   34    34    34   32     32    32    30 zyloprim,betaloc,avapro,baclofen,multivitamin,B12 1000mg/day,folic acid, CoQ10 400m
     35    31    33   31           24    24 ,Levothyroxin,Crestor,Zetia,Naltrextone,Doxazosin,Fluticasone,Astelin,asperin,RenewP
48   33    33
     11
42   41    41    41   40     40                     37        9/19/2008
43   36    36    35   34     32    32               30        9/21/2008
                      43   39 40 40 40          40     40
                      47   25 26                18
                           45 44 45 43          42     42
                      41   26 26 25                         15
                      48   37        32
                      47   17 17 15 15          13     13
                      46   36 36 37                                  32     8/29/2008
                      48   33 33 33 33          30
                      47   41 41 41 41          40     39   39
                      42        38 38 39        38
                           39 AM: Hydrochlorothiazide 25mg, Aciphex 20mg, Synthroid 0.125mg, Lexapro 10mg, Lipitor 10 mg PM: Baclofen 10mg, Ami
                      44   35 35 35
                      37   32 33 32 32          31     27   27
                      45   44 44 43 42          40          31
                      47   47 47 47 47          47     47
                      47   12 12                                     6      9/18/2008
                      46   43 43 43 43          42          42
                      45   21 19 15 21          19     18   18
                      46   41        34 30      26
                      44   32 34 34 32          31     34   29
                      46   27 28 28 28          28          28
                      47   44 44 44 43                      42
                      45
                      47 28 daily 25 25       100 25    23
hinese Herbs daily Garlic 300 mg 26 Magnesium25 mg daily Milk Thistle 300 mg daily New dawn honey 2 tbs. daily Selenium 200 mcg daily Soy Milk
                      37 23 22 22
                      48 18 17 16 15         14
                      48 28 23                          19
                      45 39 41               39
                      48 35 36 32
                      45 39 38               37     37  36
                                        37 rilutek2*50mg/day creatine 5-7 g /day, vitamine complex,B1 1,5g/day, polyoxidonium cure 10*6mg, vitam
                      46 30 30 30 30         30     28            rilutek 1x 50mg/day creatine 8g/day vitamine E 1200 ui/day vitamine C 1mg/day
                      46 44 44 44

                      45 45 45 45 45            45      43   42                  rilutek twice a day, Lyrica 75mg 3 times(Pregabalin - against muscle c
                      43 36 36 36 36            37      37   36
                      48 45 43 44 42                    33
                      48 42 40 38 38
                      48 9       9    8
                      47 45 45 44 41                         42
min D (400 mg), Vitamin C (2000 mg), Blueberry Extract (2000 mg), Silymarin Milk Thistle (1200 mg), Green Tea Extract (630 mg), Vitamin B Complex (15
                      37 18 16                               10

                      47   40    40    40   40    38    38    38
                      43   38    37    33   29    26    22    17
                      46   28    28                           10
                      47   30    28    24   24    21    19
                      39         36         32    30    28    27
                           34    34
                      44   28    26    19
                      47   30    30    30                     28
                      46   19    19    19   18    18    18    18
                      45   21    22    22   21    21    24    21 600MG TEGRETOL, 400MG NEURONTIN, 20MG LORIEN, 10MG FOLATE, 80MG D
                      47   43    43    41   41    41    41    40
                      47   43    43    41                     33
                      45   22
                      46   21    18    13   11   11     11     BACLOFEN, FLOMAX, SERTRALINE, WARFARIN, VITAMIN C, VITAMIN E, VITAMIN
                      42   23    20    22   23   20     22
                      46   32    35              Baclofen 10mg Creatine 20mg Omega 3 4000 Zinc 125 B Complex 1 Garlic 900 Vitamin C 2000 Flaxse
                     47 47 47 47 47            47    47    47
                     48 33 33 33 33            33    31    30
                     45 29 29 24 22
                     43 31 31 30 29            27
                     48 X3                                 22
00mg X3 Green Tea extract 23 Tumeric X3 Lecithin X1 Dolomite X9 Coral Calcium X4 Burdock Root X3 Vit E 400 iu X6 Vit C 500 mgs X1 Vit B Complex
                     44 34 35 35 34            34    35    34
                     44 41
                     47 43               40                40
                     41 36                                 35
                     45 25 22 21
                     41 18
                     36 19 16 18 21                  17
                     44 44                                                             VITAMIN C (3000mg daily), VITAMIN E (400 IU daily), BETAC
                     44 32 31 28 26                        24
                                                        Effexor XR 37.5mg, COQ10- 100mg, Creatine - 5 grams, Selenium - 50mg, Vitamin E - 1200
                     47 9      9
                     44 22 22 22 22            22    22    21                 Ca, Mg, Zn, grape seed extract, ginseng, Vits C and E, CoQ10, ginger,
                     47 10mg daily amitriptyline 100mg daily lexapro 10mg daily baclofen 10mg daily zanaflex 16mg daily nexium 20mg daily marinol
             I take zyrtec 17 18
                     29 20 20 20 23            19    22    21
                     45 24 24 25 23            23    20    22
                     40 27                                          15       9/16/2008

                       46 31 30
                       46 33 33 34
                       baclofen
       zoloft 100mg 1x 42 11 10mg 3x glyburide 5mg 2x metformin 500mg 2x lisinapril 5 mg 1x glycopyrrol 1 mg 2x gemfibrozil 300mg 2x omeprazole 2
                       40 30 31 28 28         28
                       46 40 40 40 40         40    40   40
                       47 40 42 42 41         43    40   38
                       45 33 34 33
                       47 40
                       43 37 37 37 36         36    36   35
                       45 37 37 37 36         35    34   33
                       47 4
                                     Other    43
                       46 43 43 43 43 medications:- attenelol, losartin, cozaar, thyroxine, baclofen, valium (occasionally for muscle spasm), oxyb
                       40 33 32 31 30         28    28   26               . I am on 5 grams of Androgel (1% testosterone gel) daily and my testoster
                       48 19       18 18      17    16   15
                       46 40 Flax 40
al Calcium1500 mg DHEA 25 mg 37 Seed Oil 1000 mg 36       Seed Extrac 100 mg L-Carnitine 1000 mg L-Lysine 500 mg Melatonin 3 mg Paba 100 mg
                                                    Grape37
                       41 27
                       38 35 35               35
                       43 36 37 34 29         29    28   28
                       46 42 41 41 38         32         32          . I began rilutek on March 5, 2008. I also take 12.5mg of hydrochlorothiazide d
                       48 26 28 26 28         25    26   24
                                41      40    38    35
                       48 23                             15
                       45 45 43
                       43 31 31 31 31         34         35
                       46 45 45 45 45         45    45   45
                       46 28 28 28 27                    27
                       45 43 43 42                       40                     Baclofen 20mg/day,COQ10 -300 mg/day,L-taurine-200mg/day,Calciu
                       32 27                  22
                       46 42
                       44 18 18               15         16
                       44 26                             20
                       44 24 24 24 24         24         24
                       48 31 29 25            21    21            18          9/26/2008
                       48 29 29
                       47 22                             15
                 43 24
                 45 22
                 48 41 39 39 38        35           35
                 47 8     10  5    8                                          Hyoscyamine Glycolax Prevacid Dextropromorphan 30mg Quinidin
                 48 43 43 41           39     39    39
                                     Zetia (cholesterol) Finasteride (benign enlarged prostate) Beta Carotene CoQ10 Fish Oil (Omega 3 Fatty
                 48 40 39                                                         Aciphex, vytorin, liprinisol, diclofenac, suppliments - vitamine E
                 46 41 40 41 41
                 35 22
                 43 40 39         36   32     30        CoQ10 1200 mg daily, multi vitamin, B50, vit e, vitamin c, alpha lipoic acid twice daily, v
                 43 37 37
                 48 31
                 45 29 33 33 28        27
                 43 36 36
                 46 19 20 20 18        19     17                                   baclofen 20 mg 4x/day, paxil 20 mg, pantoprazole 40 mg, co
                 45 45 44                     38
                 48 41 41 40 40        37
                 44 45 45 44 44        44     44    43
                 46 43 41                              Baclofin 10mg 3x/day, Valium 2mg 3x/day, Zesttoretic 10/12.5 1x/day, Vitamin C 3000m
                 48 10 10 10 8                             Cq10, Vit C, b, e, Cranberry, stool softeners, Paxil, Acidophilus, Omega 3 Serina lax
                 46 22 21 24 24        24     23
                 47 45 44         44   43     43
                 48 16
                 47 41            41   40     40    39                        CoQ-10 1800mg/day for ALS.. Other meds include citalopram 40m
                 48 38 38 38 38        36     36
                 48 39       35 34     33     30    28
                 40 40 40
                 42 42       43 43
                 46 27
                 45 39                 30
                 (100mg), 39
Mutli B vitamins 47 39 B12 (75mg), C(4000mg) D (1000 IU), E(400 IYU), zinc (10 mg), magnesium citrate (10 mg), magneisum chloride (5 ml),
                                                                     Meds and Supplements


t.E 1200mg/day - Vit.B12 subl./day - Ômega3/DHA 1gr/day – start creatine 5gr/day (apr-28-08) - start Mass Hyper Dyn (super calorie) and Nutren Active (


                                            COQ-10 400MG, VIT-E 400 Mu, Alpha Lipoic Acid 300 MG, VIT-C 100 MG




                                           creatine 1000 mg/cq10 -60 mg/ b12 500mg/ astralagus 1500mg daily
          Multivitamin, CoQ10, NAC, grapeseed extract, milk thistle, sphingolin, flaxseed oil, fish oil, testosterone injections, HGH, glutathione infusions




                             Vit - B cmplx, B12, C1000, D, E, Omega/3 3000mg, CoQ10 1200, Multi Min, DMAE, HGH, Glyconutrient

     CoQ10 800 mg/day, Vitamin E, 1000 mg/day, Vit C, 200 mg/day, Alpha lipoic acid, 300 mg/day, ferrous gluconate 100 mg/day, vitamin B12, vicodin 5

                                              vit E 800mg/day, vit B12 subl/day, vit D 1000mg/day, vit C, milk thistle
                                                                              none

                                                                       vit E 1000mg/day
                                                           CoQ10, Vit E, Multi Vit, Synthroid, Vit C,
                                                                       CoQ10 600mg/day
                    Rilutek 7 months, CoQ10, tamoxifen, E, C (not taking C, E, Tamoxifen or C0Q10 at the moment - awaiting PEG 3 months)
                        namenda,remeron,cymbalta,prednisone,endocort,synthroid,hydrocodone,provigil,creatine,d-ribose,trehalose,gingko

              Vits C (1500 mg),D (2000 mg),E(1600 IU),CoQ10 (800 mg),grape seed extract, allopurinol, Celebrex (200 mg) multivitamin, milk thistle
                                   Effexor, Alpha lipoic, MSM, Milk Thistle, Probiotics, Vitamin E, Calcium, Omega 3 Fish Oil
                                                                       juice plus, CoQ10

                                                                      Baclofen, Norvasc
                                                     Co Q10 - Acetil L Carnitine - Eritromicin - Vitamin E
                                    BNG (Chinese herbs), CoQ10, Shaklee multiple vitamins, glucosamine chondroitin, lecithin

                     Vitamin E, Nucleo CMP Forte - Treated with stem cells in X-Cell Center (17-january) (some improvements in first week)
                multivitamin, vit C, vit D cream, magnesium, b12 shots, folic acid shots, hgh, probiotics, omega 3, b complex, greens (powdered)
e/dextromethorphan, prempro, levothyroxine, toprol, multivitamin, glucosamine, calcium. Vitamin C, Vitamine E, B complex, tylenol PM, ceftriaxone or plac
                                                                vit.E, vit.C, amitriptilina e baclofen


                                            Rilutek, Baclofen, Benicar, Sertaline, Tylenol, Fexofenadine, Omeprazole

                                                                    Rilutek + acetylcystein
m,betaloc,avapro,baclofen,multivitamin,B12 1000mg/day,folic acid, CoQ10 400mg 2x/day,milk thistle 400 mg/day, fish oil 1000mg 3x/day glucosamine su
thyroxin,Crestor,Zetia,Naltrextone,Doxazosin,Fluticasone,Astelin,asperin,RenewPro,N-Acetyl Cysteine,ReadiSorb,Biotin,Cinnamon,DHEA Plus,Fish Oil C
                                                                    Nothing at this moment

                                              Alpha Lipoic, CoQ10, Various Antioxidants, Vitamins and Supplements
                                                   Co-Q10(1300 mg), creatine, resveratrol, Vit C, B complex, D
                                                                             none
                                                                     small doses of Zoloft
                                                               norvasc, qualaquin, clozanapam
                                                               NoAtenenol, Zithromax, Mepron
                                Vitamin E, Selenium, CoQ10, Glyconutirients, Vitamin C, Creatine, Gluthathione, Multi-vitamin
                                Baclofen, Rilutek, Welbutrin, Nutropin, Diazepam, Ambien CR, Docusate Sodium, Multivitamin

                        Increlex, Enalapril, Milk Thstle, DHA, multi, NAC, creatine, alpha lipoic, resveratrol, trocetrenol, omegas, etc...
                                                           Vitamin D and Alpha-lipoic acid, 200 mg/day
20mg, Synthroid 0.125mg, Lexapro 10mg, Lipitor 10 mg PM: Baclofen 10mg, Amitriptyline 50mg, Zolpidem 10mg, Clonazepam 0.5mg, CoQ10 300mg 2x
                                                                          Multi-vitamin
                     creatinine, vitamin b1 and b12, turmeric, COQ10, mycardis hcl, time-release magnesium, multi-vitamin, and fish oil
                                         -Baclofen 20mg a day -vit B12 1000mcg/day, E 400 iu /day -Zinc 20mg/week

                                                     naproxen, gabapenton, ibuphrophen, paxil, prilosec.
                                                    Riluteck Pyridostigmine Vit C COQ10 Low dose Aspirin

                     CoQ 10 300mg daily Creatine 4800mg daily Acetyl L Carnitine 450mg with Arginine 387mg daily Zoloft 200mg daily
                                                                            None
                                                                     QUININE, BACLOFEN
                         .--milk thistle-b5-b12-b/complex-vit.d3-grape seed ext.-evening primrose oil-CoQ10 AIS MAX whey protein
                                                            Vit. E, CoQ10, Vit. C, Vit. B, Sulfarlem
stle 300 mg daily New dawn honey 2 tbs. daily Selenium 200 mcg daily Soy Milk 500 daily Soy Protein 2 tbs. Soy lecithin 2 tbs. daily Vitamin B-6 5 mg da
                                                               CoQ10 400 mg, lutimax, omega3
                                               Ambien, Zinc, Alpha Lipoic Acid, Silymarin, Vitamin C, Ambrotose

                                                                            1200mg CoQ10 daily
                                        Vitamin B12, E, Magnesium, Potassium, CoQ10, Chinese herbs and Quinine for cramps
tine 5-7 g /day, vitamine complex,B1 1,5g/day, polyoxidonium cure 10*6mg, vitamine C 7 g/day,Calciummagnezium, amino acids(Bcca express+amino36
 rilutek 1x 50mg/day creatine 8g/day vitamine E 1200 ui/day vitamine C 1mg/day multivitamin Bacoflen 10 mg 2x/day tamoxifen 20mg 1x/day lithium 450
                                                                           Vitamin E, C, bkomplex
                                         VALIUM 2MG FOR SLEEP, VALERIAN FOR ANXIETY, SAM-e FOR DEPRESSION
            rilutek twice a day, Lyrica 75mg 3 times(Pregabalin - against muscle cramps), Magnesium 600mg / day, Vitamin E, 800mg day and Beer ;-)
                                                               baclofen 10mg 1x/day; Co-Q10 600mg 4x/day
                                            I also visit a Nature scientist and I have sometimes help of an personal coache.
                                       Started worthlesstek about two weeks after lithium, multi vit,coq10,omega 3,glyconutrients

marin Milk Thistle (1200 mg), Green Tea Extract (630 mg), Vitamin B Complex (150 mg), Ginkgo Biloba (240 mg), Magnesium Oxide (250 mg), Vipocetine
                                                      celebrex, prozac, baclofen, coQ10, alpha lipoic acid


                                                    Co-enzyme Q-10, Grape seed extract, Vitamin B, NAC

                                                        1.5 cans isosource and 25 mg elanil at night
                                                                         baclofen
                                    1 Mg Estrodial, 0.88mg Levothyroxine, 10 Mg Paxil, 10 Mg Zyrtec, & various Vitamins

                                        celebrex 200mg 2xday; aciphex 30mg; zanaflex 6mg
                                                  baclofen,floxetine,protonix,claratin
MG TEGRETOL, 400MG NEURONTIN, 20MG LORIEN, 10MG FOLATE, 80MG DIOVAN (valsartan), 200MG N-ACETYL CYSTEINE, 20MG VITAMIN B C
                                                   get b12 shots, co10, multivatims


OFEN, FLOMAX, SERTRALINE, WARFARIN, VITAMIN C, VITAMIN E, VITAMIN B COMPLEX, CENTRUM SILVER, BETA CAROTENE, WALFINATE,
                                              provigil 100mg qd.,celebrex 200mg qd., co-q10 600mg qd
ne 20mg Omega 3 4000 Zinc 125 B Complex 1 Garlic 900 Vitamin C 2000 Flaxseed 4000 Burdock Root 1400 Silymarin/ St Marys Thistle 700 Grape See
                                                                 vitamins, omega 3, Vitamin D3
                                                                            cymbalta
                                                                         antidepressant

al Calcium X4 Burdock Root X3 Vit E 400 iu X6 Vit C 500 mgs X1 Vit B Complex 50mgs ½ X2 Cell Forte (Inositol) X3 Evening Primerose oil X3 Vit D X1 V
                                     Ambien 10mg, Ritalin 10mg......supplements: B complex, vitaman E, multil-vitaman
                                                                other vitamins and minerals
                                                             multivitamin, calcium supplement
                                                                   Multivitamin, B12, ALA
                                                                            none
                                                                     CoQ10, Acupuncture
                     coq10, effexor xr, lorezepam, mucinex, multi-vitamin, naltrexone, norvasc, qualaquin, senna, zetia, ursodiol, provigil
                  VITAMIN C (3000mg daily), VITAMIN E (400 IU daily), BETACAROTENE (25,000 IU daily), CoEnzyme Q10 (300mg daily)
37.5mg, COQ10- 100mg, Creatine - 5 grams, Selenium - 50mg, Vitamin E - 1200U, Vitamin C - 1000mg, Vitamin A - 12,500U, Cod Liver Oil - 10minims N

         Ca, Mg, Zn, grape seed extract, ginseng, Vits C and E, CoQ10, ginger, tumeric, rosemary, ccreatine, colustrum, alpha lipoic acid, reservatrol
 10mg daily baclofen 10mg daily zanaflex 16mg daily nexium 20mg daily marinol 7.5mg daily COQ10 200mg daily vitamin E not sure mg vitamin C 1200m

                                               low dose naltrexone. Amytripteline. Folic acid. Medical marijuana
                                                                  multi-vitamins, vitamin C

                                        cytoxan,minocin,azithromycin,ivermectin,alpha lipoic acid, acetyl=L-carnitine,omacor
                                                               Nexium, Sertraline HCL, Alprazolam ER
0mg 2x lisinapril 5 mg 1x glycopyrrol 1 mg 2x gemfibrozil 300mg 2x omeprazole 20 mg 2x furosemide 20 mg 1x docusate sodium 100mg 2x aspirin ..81m
                                                               Q-10 400 mg/day and Vit E - 400 IU/day
                                                           CoQ10 1200 mg/day Lorazapam 0.5 mg 2/day
                                 BACLOFEN, ELAVIL, CQ 10, VITAMIN E, ORGANIC DIET, CHOLOCAL, PAROTID, AND DHEA
                                                                  Rilutek since July 2007 2 x 50mg
                                                                     600 MG cOq10, Multivitamin
                                             Vitamin E, Beta Carotene, Creatine, Vitamin C, Apple cider vinegar tablets
                                                            multivitamen, C, E, CO10, asprin, glucasamin
                                             Increlex (IGF-1), Natural Cranberry with Vitamin C, Aloe Vera Drinking Gel
osartin, cozaar, thyroxine, baclofen, valium (occasionally for muscle spasm), oxybutynin, niaspan, HRT Supplements:- Q10, pycnogel (grapeseed extract)
       . I am on 5 grams of Androgel (1% testosterone gel) daily and my testosterone level and liver enzymes were last checked (and are ok) on 2/12/200

xtrac 100 mg L-Carnitine 1000 mg L-Lysine 500 mg Melatonin 3 mg Paba 100 mg Selenium 200 mcg Vitamin C 1/4 tblsp 1000 mg Vitamin E 1000 iu Bora
                                                                      vit E, B12, C


   . I began rilutek on March 5, 2008. I also take 12.5mg of hydrochlorothiazide daily. I take 25mg of benadryl or 2.5mg of diazapam each night as a slee
                                                      Cold FX and Low Dose Naltrexone and Tylenol Arthritus
                                                                            Tropine 0.4 MG
                                                             CQ10, Magnesium, Fish Oil, Mulit-vitamum
                                    Milk Thistle, Fish oil, Multivitamins, Grape seed, Antioxidant tabs, magnesium supplement
                                                            Synthroid, Citalapram, Muti-vitamin, Vitamin C

                                         Gingko biloba, Vitamin E, Selenium, Asparkam (Mg and K source)
           Baclofen 20mg/day,COQ10 -300 mg/day,L-taurine-200mg/day,Calcium supplements,Alpha Lapoic acid -100mg/day, Omega3 -1 teaspoon

                                                              Januvia, Cymbalta, Enablex
                           warfin 5mg daily x 6 days, 7.5mg daily x 1 day; zoloft 100mg daily; omega 3 daily; multi-vitamin daily
                                                                baclofen, klonopin, tylenol
                                        baclofen, ambien CR, zoloft, lipitor, vit D, C, fish oil, B complex, CoQ10
                  CoQ10 1600 mg, B12 1000 milligrams, vitamin C 1000 mg, vitamin D 1000 mg , selenium 500 mg,vitamin E 800 milligrams
                                                                        lexapro, reglan, saltropine
                                                        synthroid, 112 mg, zoloft, 100 mg, 1000 mg Vit C, multi vit
                                                               20 mg Amitriptyline per day to help me sleep
               Hyoscyamine Glycolax Prevacid Dextropromorphan 30mg Quinidine 30mg Lodrane 24 E Fluocinonide Amitiza Desonide lotion .05%
steride (benign enlarged prostate) Beta Carotene CoQ10 Fish Oil (Omega 3 Fatty Acid) Melatonin/Theanine Multiple Vitamin Vitamin B Complex Vitamin B
                    Aciphex, vytorin, liprinisol, diclofenac, suppliments - vitamine E, C, Magnesium, folic acid, Glucossmine, MSM, Cod liver oil

                                                                              effexor 75mg
0 1200 mg daily, multi vitamin, B50, vit e, vitamin c, alpha lipoic acid twice daily, vit d, vit k, mucinex twice daily, and long term prevacid for gerd and dexe
                                        Quinine ( qualaquine) 324mg daily,. Celexa, 20mgs daily., Rilutek 50mg twice daily.

                                                   baclofen, nortriptylin, lithium carbonate, multivitamin, Vit E
                                                                      Q10,B KOPMLEX,C,E
                     baclofen 20 mg 4x/day, paxil 20 mg, pantoprazole 40 mg, coQ10 600 mg, vit C 1000 mg, vitamin E 800 iu, multi-vitamin

                                         . Further I take vitamin E, Omega 3,6,and 9 and a supplement called Stemenhance.
                                                               Multivitamin, E, C, B12 CoQ10, Omega3.
 n 10mg 3x/day, Valium 2mg 3x/day, Zesttoretic 10/12.5 1x/day, Vitamin C 3000mg/day, Magnesium 410mg/day, Saw palmetto 1000mg/day, one-a-day m
10, Vit C, b, e, Cranberry, stool softeners, Paxil, Acidophilus, Omega 3 Serina laxative, multivitamin, furosemide, metformin, paroxetine, celebrex, omepra
                                                                         Plavix, protonix, ativan,
                                                                       CoQ10, B complex vitamins
                                              150 mg/day of amitripyline & 1000 mg 2x a day of Metformin for my diabetes.
                 CoQ-10 1800mg/day for ALS.. Other meds include citalopram 40mg/day, saw palmetto, levothyroxine0.15mg and aspirin 81mg daily
                                      paxil, ambien, baclofen, baby aspirin, tramadol/ vit c, a, e , d, coq10,creatine,nac,al lip acid
                                                                        multi vit, acai, coQ10, b12
                                                                  400mg of CoQ10 and a multivitamin

                                                       mTizanidine (Sirdalud), Noni juice, coQ10, multivitamin

(400 IYU), zinc (10 mg), magnesium citrate (10 mg), magneisum chloride (5 ml), COQ10 (300 mg) ALA-R(300 mg) Grapeseed, Gingko Bliboa, Liver deto
                                                            Physical Therapies
                                                               and others

                          Physio 3x/week, speech 1x/week, acupuncture 2x/month, nutritionist 1x/month
                                                                                             Had to go off for one week because of frequent/uncontrollab




tions, HGH, glutathione infusions

                                                  taking 120 mg lithium orotate pills

                                    Physio 1x/week, speech 1x/week, voice massage 1x/week
                            Stretching exercising @ home, massage therapy 2x/mo chiropractor 2/wk

                                                      Physical Therapy 1x/week

                                                     strength exercises at home


                                                         physio 2x/week
                                    Physio 2x / week, Home exersise, accupuncture, streaching

awaiting PEG 3 months)                                                                               1st month ALSFRS went down by 2 due to having a


0 mg) multivitamin, milk thistle




                                                  Phisio 3x/week , Home Exercise


 vements in first week)
omplex, greens (powdered)
plex, tylenol PM, ceftriaxone or placebo (clinical trial)




 oil 1000mg 3x/day glucosamine sulfate 1500 mg
in,Cinnamon,DHEA Plus,Fish Oil Concentrate...,


                                                            bicycling (on road)
nazepam 0.5mg, CoQ10 300mg 2x day, E 400, C 500, Omaga 3 1000, Folic acid 400




hin 2 tbs. daily Vitamin B-6 5 mg daily Vitamin E 1000 mg daily Wheatgrass 1 tps. daily Juice, fresh veg and fruit daily




mino acids(Bcca express+amino3600), tea-x, B vitamine komplex
                                          physio 5x/week plus home exercise


                                                  Physiotherapy twice a week




nesium Oxide (250 mg), Vipocetine (20 mg), Flaxseed Oil (4000 mg), Melatonin (5 mg), Grape Seed Extract (400 mg), Acetyl L-Carnitine (1000 mg), Alph




                                     blood pressure, diuretic, muscle relaxer, sleeping pill


YL CYSTEINE, 20MG VITAMIN B COMPLEX H



 BETA CAROTENE, WALFINATE, ALBUTEROL

                                                             Stopped 3/3/08 due to severe rash that started immediately. Started Baclofen same day a
n/ St Marys Thistle 700 Grape Seed 100 Ginger 1000 Water 3.5lt
Evening Primerose oil X3 Vit D X1 Vit B15 X1 Teavigo X4 150mg egcg Acetyl L-Carnitine HCl 500mg X1 N-Acetyl Cysteine 600mg X2 After meals under t




yme Q10 (300mg daily)
2,500U, Cod Liver Oil - 10minims Naproxen 2x 500mg

um, alpha lipoic acid, reservatrol
min E not sure mg vitamin C 1200mg daily grape seed extract 50mg daily vitamin B12 1000mg daily




ate sodium 100mg 2x aspirin ..81mg 1x vit e 400mg 1x vit c 1000mg 1x fish oil 1000mg 1x tylenol 1000mg 2x
                                                         Neck strength is better - easier lifting head and holding. Chewing and swallowing is nearly norm


                               I will be going tomorrow to a rehabilitation center for 3-4 weeks




 Q10, pycnogel (grapeseed extract), alpha-lipoic acid, vitamin C, vitamin E
t checked (and are ok) on 2/12/2008

                                                                         Nexium 40 Qua 550 mg Holy Cymbalta 30 mg Amitriptyline 25mg Baclofe
sp 1000 mg Vitamin E 1000 iu Boran 3 mg Chondroitin Glucosamine 1tbsp 1500 mg Dongmg Rilutek 100 mg Basil 900 mg L-Theanine 100 mg Magnesiu



g of diazapam each night as a sleep aid


                                                                                                      Discontinued after 300 mg/day for 14 days due to




00mg/day, Omega3 -1 teaspoon




                           range of motion once a week, acupuncture, massage on alternate weeks
vitamin E 800 milligrams
Amitiza Desonide lotion .05%
 tamin Vitamin B Complex Vitamin B12 Vitamin C Vitamin E Aspirin
mine, MSM, Cod liver oil


ng term prevacid for gerd and dexedrine for adhd




E 800 iu, multi-vitamin



palmetto 1000mg/day, one-a-day multiple vitamin
rmin, paroxetine, celebrex, omeprazole, altace



15mg and aspirin 81mg daily




apeseed, Gingko Bliboa, Liver detox, blueberry capsurles, cod liver oil (5 ml) fish oil (10 ml), melotonin (6 mg)
                                                                       Comments overall


rilutek for 12 months, baclofen 20mg/day, memantine 10mg/day since jan 1st (stopped 17/jan), anafranil 50mg/day, vaccine pneumo23 on jan-4-08, diaz
           Had to go off for one week because of frequent/uncontrollable urination. Brought under control with ditropan and Imipramine; back on lithium
                                                                       on rilutek for 6 months
                                                                      on rilutek for 11months
                                                                        On rilutek 2.5years
                                                      Diaphragm Pacer Nov12, 2007 - walking more difficult
                                                                                 none
                                                                                 none
                                                started on 300mg, increased to 450 at 12/12 and to 600 at 12/31
                                                                                 none
                                              I started slow on the Lithium at 240mg per day but increased it slowly
                                             After blood check for Lithium levels, may increase to more than 300 mg/day
                                After two blood check, increase the dose to 3x150mg/day at 17.1.2008 (orginal 2x150mg/day)
                                                          Starting 450mm today, 150 3x/day 1/11/08
                                             expected increase to 300mg dailyafter next week's M.D. appointment
                                                                            none
                                                   pseudo-bulbar ALS -- more upper neuron involvement




                                    adjusting dose right now ; in this country LiSulphate has replaced LiCarbonate
                 1st month ALSFRS went down by 2 due to having a PEG put in, was on a waiting list for 3 months for this, condition is static.
                                  We are sad to report that Leo G. passed away on unexpectedly on February 9, 2008




                                                Lithium discontinued on March 2, 2008 because of side effects

                                March 22, 2008: PALS in hospital with bad cough and cold and has DISCONTINUED LITHIUM




                                         Bulbar and limb symptoms were simultaneous, I am a very slow progressor




                                                                hope for stabilization (FRS=11)
                                                    atrophy in left hand, 2/05, atrophy in right hand fall '07
                                                                              Gulf War ALS

                                                                      on antibiotic for lyme disease



                                                               Added choline to help boost lithium levels
                                                                   lower motor neuron MND only




                                                              general MND diagnosis -- not clear ALS yet

                                  stopped Lithium Orotate on the 14th March 2008 and started the same day on Lithium Carbonate




daily Juice, fresh veg and fruit daily


                          Stopping lithium for two weeks starting 3/15 because of strong side effects and to recover from a bad flu infection




    sometimes burning eyes and more cramping of all muscles but especially in the legs (I don't now if its really a sideeffect or just progression of the dise

                          The progress of my desease is very slowly.The functions of my hand and fingers is not well (tighten buttons or so)
                                               still have more fasc and more weakness and occasional hand tremor

mg), Grape Seed Extract (400 mg), Acetyl L-Carnitine (1000 mg), Alpha Lipoic Acid (600 mg), Creatine (4500 mg)
                            Lithium discontinued on March 23, 2008. Severe constipation and headache and faster progression.




                                  Very bad side effects at 900 mg/day: upset stomach, feeling terrible. Dropped back to 600 mg/day

                                          Could not tolerate 900 mg/day dose -- felt like a zombie -- wobbly walk, felt out of it

                                   started rilutek on Feb. 15; stopped rilutek and celebrex on Feb. 29 due to elevated liver enzymes.




                                          We are sad to report that BKK passed away on unexpectedly on March 29, 2008
                                                   We are sad to report that Gene passed away on Sept 1, 2008

e to severe rash that started immediately. Started Baclofen same day as Lith and now think it is the Bac that is causing rash. Have stopped Bac and will r
rnitine HCl 500mg X1 N-Acetyl Cysteine 600mg X2 After meals under tongue B12 methylcobalamin 1000mcg sublingual x2




0mg 1x tylenol 1000mg 2x
easier lifting head and holding. Chewing and swallowing is nearly normal for 1st time in 6 months or more. Fingers are better - easier to type this week th
                              hand tremors lessened and not feeling as weak after lowering dose from 450 to 300 mg/day on May 10.




                                                           Stopped lithiujm in order to go back on Saroten
                                                              Diagnosis is PLS; very slow progression
                                                                 side effects subsided as of April 4

 ium 40 mg Rilutek 100 mg Cymbalta 30 mg Amitriptyline 25mg Baclofen 10 mg Lisinopril 10 mg Metoprolol (tartrate) 50 mg Lithium carbonate 300 mg Za




                     Discontinued after 300 mg/day for 14 days due to severe side effects. Problems began improving after stopping lithium.
                                                                                                                                         Jaw cramps on




a little stonger using joystick on power chair- seems to control it better than pre-lithium. Fingers haven't worked for a long time so he uses palm of hand to
                              Stopped lithium on May 10 due to side effects. Elevated liver enzymes found ~May 21.




l (10 ml), melotonin (6 mg)
                                                      Comments - after 1st month
                                                            on lithium

                                                                  Stable!
n and Imipramine; back on lithium




                                    bit of improvement in hands, can wiggle toes and move feet slightly.




or this, condition is static.
                                                        very sick with the flu all month



                                                                  no change


                                                         weaker but not by full point




g rash. Have stopped Bac and will restart Lith if rash subsides
                                                                                                                Went off of lithium for several weeks for




e better - easier to type this week than last week or the week before                                         Not feeling too good - weakness, tiredness




0 mg Lithium carbonate 300 mg Zantac 150mg
                      stopped lithium in middle of first month because felt weaker, and very weak breathing at night



                                                    more fatigue, desire to nap more often

g after stopping lithium.
                       Jaw cramps on yawning, which had become common, have completely stopped since taking Lithium


                                                     Stopped taking rilutek on March 21




                                              Stopped after one month due to side effects
ng time so he uses palm of hand to move joystick.


                      Quit after two weeks because of severe side effects, especially breathing. Now on trach & vent.
        restless leg syndrome at night




 Very noticeable weakness in legs and torso.




increased leg weakness with increased dosage




        ankles and feet swelling badly
                                       Comments - after 2nd month
                                             on lithium

                                                   Stable!
                                     fasciculations next to nothing now




                                                                   My speech has been little bit slurred but I think that its bec
                              Feels weaker but not by a full ALSFRS-R point



                             slower and stair climbing harder but not full FRS pt



                               feel overall good, minor side effects are gone

                                 Sad to report passed away Mar. 25, 2008




stopped lithium when hospitalized for panic attack on Feb. 21. Resumed lithium & out of hospital on March 4.


                           increased arm weakness but not enough for FRS drop
                        Stopped after two months on lithium due to extreme diarrhea




                                     Feeling lousy (as of April 19, 2008)
                                      increased progression rate?
                                     Slight increased fasciculations


                                        rilutek added on March 20
                                                                                                    I can't point to any improvem




                                                                                                       Stopping lithium after 3 m

                                                                                                              bipap set at 12.4, rea




                     Stopped lithium; CO2 levels up from 43 to 55 over two months.




        weaker but not by a full point. some days bad fascics, pain, and fatigue; other days not.

                                   Arms and hands still getting weaker
                                                                                    too many side effects, primarily increased

                                                                                                       stopped lithium on April 2




      Stopped lithium on April 20, 2008. PEG operation on April 22, went on ventilator on May 8.
sleeping better at night. Still not feeling as well as before going to 900 mg/day (currently at 600 mg/day)



                  stopped lithium because felt weaker, more fatigue, worse in general


                                     strong fasciculations on and off


 lithium was stopped because blood level was measured at 2.7 on May 2. Measured at 1.7 on May 3
                Went off of lithium for several weeks for liver check. Severe cramps in leg when went off; cramps went away when started again.




                                    lithium stopped because weakness increased rapidly, particularly in arms and breathing
                                             no side effects but increased clonus noticeable. Possible slowing of sx.

                                                                        feeling fatiqued



                              Increased fascics in first month settled down. Loose but regular stools. Increased emotional lability?

                                                               increase in salivation and yawning




                                              lithium stopped due to increased depression and trembling of hands
                                                                                                 Stopped lithium on May 15 after being admitted to the ho
              Not feeling too good - weakness, tiredness, difficulty chewing and swallowing food. Tremor in right hand at times -- fasics in both legs
                        extreme fatigue and constant urination less, but experiencing hand tremors and weakness in both hands and arms
                                                                          no side effects


                           Nausea on dosage increase for a couple of days. Sleep disorder on dosage increase for a couple of days



                                                                side effects subsided in early April
                                       Currently reducing lithium dosage in preparation for a stem cell transplant in India



                                                      speech is worse and walking is becoming difficult
                              No change in ALSFRS-R but rapid progression of weakness in right arm and back and neck muscles
                                             fatigue, more pronounced fasciculations, and weaker when walking


ped since taking Lithium


                                                     unstable mood, more spasticity, more talking difficulty
                         Although ALSFRS-R is the same as last month decline is continuing

                                                                                                        STopped lithium on July
                                      stopped on May 10 because of side effects

                         lithium stopped April 27 - May 31 because of interactions with effexor.




                                       stopped on May 16, 2008; "antibiotikum"


                                                 more tired than before

At 900 mg/day experienced severe fatigue and weakness in legs. Stopped lithium on June 7. Blood level on June 4=0.27.




                           ALSFRS-R same this month but several things close to changing.
                                                                 Comments - after 3rd month
                                                                       on lithium

                                                   walking becomes difficult and some drooling has appeared




ttle bit slurred but I think that its because there has been long delays in my voice massage therapy. Also my fingers has been more stiff but my FRS score

                                                    Stopped lithium due to breathing diffficulties and nausea




                                                                          feet swelling




                                         arms and hands painful in the morning (was happening before starting lithium)




                                  Even though my FVC has remained the same there is no doubt I have continued to progress



                                                         Feels weaker but not by a full ALSFRS-R point


                                                     Stopped lithium due to increased breathing difficulties.
                                                                Feels good, all side effects gone

                               side effects eased a bit, no diarrhea. In hospital with deep vein thrombosis; started blood thinner.



        FVC dropped to 67% (in May). Was 100% in November. I quickly run out of air when bicycling up hill. Pruitic (itchy) rash on feet for last week.
                        went down to 750 mg/day then back to 900. Experiencing slight appetite loss and occasional constipation.
                                                  Still at FRS 40 but legs are weaker. Using walker in the house.

                                                  Slurring of speech, whcih is either ALS related or due to lithium.

                                                 went on trach and ventilator on May 13, 2008. Still taking lithium.
                                                                           feeling fatigue

                                    In last month fewer fasciculations, "looks healthier", ALSFRS-R is still 33 but a "higher 33"

       I can't point to any improvement and the only progression may be in the lower FVC, but I started Lithium in between FVC tests so can't say for sure


                                        Diagnosed with papillary thyroid cancer on April 18. Dropped dose to 300 mg/day.


          Stopping lithium after 3 months (2 on orotate, 1 on carbonate) because of rapid weakening of shoulder. Feels progression faster than before.

               bipap set at 12.4, ready to increase to 12.8. Using more frequently; all night, plus 4 hours during the afternoon -- 2 hours previously.


                                           Fascics are the same, increased shaking of hands, dry mouth in the morning




                                                              hands and arms still getting weaker
ny side effects, primarily increased weakness everywhere, almost feels as though progression was sped up due to lithium......taking a break for now.....ma

          stopped lithium on April 21 because of a sudden change in leg strength and speech. No recovery of function as of one month after stopping.




                                                       Often has an upset stomach, thought process slower.


                                           Stopped lithium on May 10, 2008 because progression did not slow on lithium
                                                                                                                                        Stopped lithium on J
                                            decreased pseudo-bulbar effect -- less laughing and crying innapropriately

                                                                 side effects not noticeable anymor


                 lithium was stopped from May 2-10 bec. of a toxicity episode (Gene was not eating or drinking prior to a feeding tube operation)
                                                  I have noticed that my cramping has reduced significantly
                                             might be a bit weaker although FRS is unchanged. Slow progressor.


                             Stopped lithium on April 29 because not effective (after some improvements over the first two weeks).
                                                              left hand can type fast but it hurts

                                         legs noticeably weaker over last 45 days. Still walking but with a lot of effort.



                        went from 450 mg to 600 mg on March 10; felt fatigued; went back to 450 mg, then went back to 600 on April 10


                                        stopped lithium because hospitalized with high liver enzymes. May restart later.
                                          Increased cramps and clonus. Fasciculations reduced to pre-lithium levels.




ay 15 after being admitted to the hospital for pneumonia. Didn't go back on bec. didn't want to deal with headaches again. Also suffered severe headach
                                     tired, aching, out of focus. Difficulty standing from bed and chair. Severe constipation.
         Went down dosage, and then back up to 450 mg/day for two weeks. Side effects now much reduced, especially the weakness in hands & arms.
                                                                     experiencing burning eyes




                                                       Frequent urination and increased walking issues

          Still experiencing more fatigue during the day. No let up in decline. Legs are weakening, and more frequent and pronounced fasciculations.
                                                                somewhat fatigued, napping more




                                           stopped lithium; experiencing more slurring of speech and unstable mood.
                                                            increase in urination and some weakness




                                                                                                                                Stopped on July 14 bec
                                         June 30, 2008: "Rusty" is unresponsive, resting peacefully under hospice care.

               No positive or negative effects for the first 3 months. Decline appears to be continuing at the same pace as before starting lithium.

           STopped lithium on July 10 becasue of lithium study and ALSTDI findings and because of continued progression at the same or faster rate.




                                                     thyroid went from 2.7 on May 19 to 4.9 on June 6, 2008
                                                                        mild hand tremor
od level on June 4=0.27.
                                                                    Comments - after 4th month
                                                                          on lithium

                                                                             Same as 3rd mth
                        went off of lithium for two weeks after stressful travel; fascics came back; went back on and fascics went away again



                                                              hands and neck weaker, breathing stable




                                               stopped lithium while in hospital for 3 weeks for feeding tube and pneumonia

                                 worse clonus and hands. Excess saliva problem decreased after lowering dosage to 150 mg 3x.day


                                            am able to anke to move a bit now, toes are moving more and without effort.

                                                          same FRS but slower and muscle loss in calves

                                                          increased swallowing dif; temporarily stopping Li

              feet very swollen and purple. Decreased swelling after lowering dose from 600 to 300 mg/day. Breathing worsened over last 6 months.




                                                                            diarrhea is gone




                                                                           slight hand tremor

         At 600 mg/day lots of weakness; much more at 900 mg/day; stopped lithium on April 16. FVC declined at 71% of previous rate while on lithium.

                                                       sudden increase in weakness week of May 19, 2008.




                                                             experiencing excess saliva, extra drooling




c (itchy) rash on feet for last week.
                                                                      Some loss of hair
                                                   hands and arms weakened considerably over past two months




                                          Sometimes feels like brain fog; usually drinking more water solves the problem.


                                                        Operated on for thyroid cancer. Remains on lithium.


ls progression faster than before.

ernoon -- 2 hours previously.

                                Stopped taking lithium on June 6, 2008; progression seems to have been faster over past 4 months.




um......taking a break for now.....may start up again

n as of one month after stopping.




                                                    lowered lithium dose because of almost daily stomach upset



               Stopped lithium on Jully 6, 2008, just 2 wks after restarting; very stiff and weak, esp. hips and shoulders. Lithium not working for me.




                      Feeding tube inserted this month. Lithium stopped for surgery; now back on 450 mg/day, blood level of 0.4 on June 12.
                                                       ALSFRS-R score same but subtle deterioration




                                Lithium stopped on May 25 due to side effects and accelerated progression of ALS symptoms.
                                               We are sorry to report to that Patrick passed away on May 19.
                                                               increased clonus and cramps

                                  June 10: Reached 0.49 mmol/l and experienced increased fasciculations in legs and arms.
                                                                 dry, flaky skin on face




ain. Also suffered severe headaches when lithium was stopped.

                 still hand tremor, but much reduced; some weakness in arms, but mainly after exercise. Some feet swelling past two weeks.
                                                               swollen ankles, burning eyes


                                                        thirsty, salty taste in mouth, frequent urination


                                           Unlike many of the other PALS I find lithium completely without problems




                                                       some weakness and can't get to sleep quickly
                                                    frequent urinating and balance and walking issuse
                                   Stopped on July 3 because progression continues to speed along, no apparent benefit.
                                The more profound and frequent fasciculations have stopped. Hardly any fasciculations at all.




         Stopped taking lithium. Experiencing no improvements, and having side effects of increased urgency to urinate, fatigue, and swelling of feet.


                                         Stopped lithium on July 12. Speech worse, progression more rapid, weaker.

           Stopped on July 14 because dizzy, weak, nauseous, and faint after regular dose. Happened twice. Problems gone after stopping lithium.
ce as before starting lithium.
                                              Doctor stopped lithium on June 3, 2008 due to elevated liver function test.
ssion at the same or faster rate.



                                                                            burning eyes




                                    Went off lithium for a month; was rageful and crying all day at 450 mg/day. Now on 150 mg/day.
                                                                    Comments - after 5th month
                                                                          on lithium

                                                                         back to 300 mg/day
                                                               Having a good feeling in hands and arms
                                       stopped lithium on May 17. Was on dosage of 1250 mg/day, blood level 0.5, felt very tired.
                                        Stopped on June 17 because no improvement; feels like lithium is making things worse.

                         FRS same but walking & strength sig. impaired. Increased hypoglycemia, tremor, supplementing diet with ensure.




                                               changing between doses of 300 /450 mg/day, blood level around 0.2 - 0.3




                                                  Lithium stopped because not effective at slowing progression
                         Tapering lithium down by 150 mg/week starting June 4, 2008, after consultation with doctor -- lithium not working.


                                              Cut down to 300/day for two weeks, now back up to 600/day. Feet swollen.
                                                                                                                              We are sad to report that Albe



                                              some loss of fine motor control, but not enough for an ALSFRS-R point drop


                                                                                                                                              spent month in

                                                                                                                                           slight hand tremo

% of previous rate while on lithium.




                                                                                                                                       Charlotte is out of th
                                                                           excessive saliva


                                                                                                                               Reducing lithium since it doe



                            Currently reducing lithium dose by 100 mg/week bec. experiencing appetite loss, fatigue, and constipation.
                                                                                                                            discontinued lithium beca

                    Reduced dose from 900 to 600 mg/day to reduce slurred speech. ALS prog. continues, inc. weakness in hands & arms.


                                                             continued increase in fasciculations

                                                limb weakness has progressed, but fascics still undetectable

                                       Stopped lithium; breathing was down two consecutive times after starting lithium




                                                                                                                  Although ALSFRS-R score is unchan



                                    Went back to dose of 1000 mg/day on May 29, after blood reading of 0.33 on May 26.
                                                                                                                                      arms a little we




                                               no side effects but hands and arms and legs still getting weaker




                    Stopped on July 18: The lithium hasn't slowed progression and stomach aches are continuing. Also stopping Prevagen.



. Lithium not working for me.

                                                                                                                                  planning to experim
                                                                                                                                 stopped rilutek on 8


vel of 0.4 on June 12.
                                       slight visual effects. Some difficulty focusing after taking dose, usually gone in 45 minutes.
                                                                                                                         stopped lithium just short of the six mon



                                                         still have dry mouth but fasciculations have decreased.




                                       horrible tiredness, considering stopping lithium. Current 600 mg/day, 0.3 blood level on 6/1




                             increased fascics in arms and thighs. Dreams extend into consciousness for 10 to 15 minutes after waking,




                                stopping lithium for 2 weeks to see if arm weakness and tremors are due to lithium or ALS progression
                                                                      swollen feet and burning eyes


                                                                          still increased urination




                           Planned lith stop on August 17. I feel that I am progressing more rapidly than at any time before taking lithium.




nate, fatigue, and swelling of feet.




ems gone after stopping lithium.
                                            Stopped lithium on August 10 because of surgery. Appetite is much better now.
                 still burning eyes




  In hospital all month with pseudenomas infection



         experiencing excessive sweating



stopped lithium because of great stomach discomfort
                      Comments - after 6th month
                            on lithium

                       same as last mth and stable




     We are sad to report that Albert passed away on August 1, 2008




                     spent month in hospital; on trach

                  slight hand tremor + increased catarrh




               Charlotte is out of the hospital and on a vent
                          mild excessive drooling


       Reducing lithium since it doesn't seem to be doing any good.



pped lithium. After stopping regained appetite and fatigue is less prounounced
        discontinued lithium because of severe kidney infection

ness in hands & arms.




though ALSFRS-R score is unchanged, quite a bit worse than 6 months ago




                   arms a little weaker but not much




so stopping Prevagen.




               planning to experimentally stop on Aug. 15
              stopped rilutek on 8/16 because of diziness.
    suffered pericarditis; lithium dose temporarily down to 450 mg/day
ped lithium just short of the six month point. A little less clonus since stopping.




                        I am pretty sad! - Humberto




         Blood level 0.6; increased sleepiness according to wife.




                     still thirst and increased urination

				
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