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                             PAGE 2                               PAGE 5-6                              PAGE 9
                             • President’s Message                • Support                             • Updates & Info

                                                                  • Misc. Programs                      PAGE 10-11
                             PAGE 3-4
                                                                  PAGE 7-8                              • FYI
                             • Upcoming Events




               autism
                             • AOA                                • Amigo Awards
                                                                  • Special Needs Trusts




                                                                                                                                                    2010



                                                                   ACTION
                                                                                                                                                    volume 1




                                                                     The Voice and Resource of the San Diego Autism Community

                                                         All Out For Autism,                       our
                                                         annual fundraiser for Camp I CAN will be
                                                         held on April 24, 2010 at the Birch Aquarium
                                                         at Scripps, La Jolla. This year’s spectacu-
                                                         lar event will be hosted by KUSI TV Channel
                                                         9-51 anchorwoman, Lena’ Lewis, featuring a
                                                         special VIP chef demonstration and book sign-
                                                         ing with Food Network’s Kevin Roberts, “The
                                                         Food Dude,” celebrity cocktail hour (with a
                                                         signature fundraiser drink) with former Char-
                                                         gers football players Gary Plummer, Darren
                                                         Carrington and John Carney; a live and silent
                                                         auction hosted by Miss San Diego and Miss La
                                                         Jolla; shark tank fundraiser with San Diego’s
                                                         Finest Fireman; gourmet island-inspired cui-
                                                         sine prepared by The French Gourmet; live
                                                         Caribbean music and exciting entertainment                   Walk/Run at Poway High School Track
                                                         performed by popular “Island Fever Band,”                    Saturday, April 17, 9:00am-12:00 pm
                                                         with all proceeds going to Camp I CAN, the                   15500 Espola Road, Poway, CA
   April 24, 2010                                        only camp in the county specifically de-                     more info page 3
                                                         signed for children and teens with autism.
   Birch Aquarium at                                                                       more info page 4
   Scripps-La Jolla                                                                                                Karyn Lewis Searcy selected as
                                                                                                                   CHAD Health Hero 2010
                                                                                                                                     Karyn has worked with
                                                                                                                                     children   with   autism
                                                                                                                                     since the 1970’s and in
                                                                                                                                     recent years has been
                                                                                                                                     a tireless advocate for
                                                                                                                                     effective speech and
                                                                                                                                     language-based     treat-
                                                                                                                                     ments to be covered by
                                                                                                                                     health insurance. Her
                                                                                                                                     advocacy to ensure that
                                                                                                                                     young    children    with
                                                                                                                   an autism diagnosis who receive ABA are
                                                                April 22, 2010, 5:00-6:30 pm                       not excluded from speech language ther-
                                                                Pump It Up in San Marcos                           apy services has benefited many families.
                                                                Info on page 3
                                                                                                                                        see Health Hero, page 8
Autism Action is published quarterly by the San Diego County Chapter of the Autism Society of America
mailing address: PO Box 420908, San Diego, CA 92142-0908 (858) 715-0678 ïemail: info@sd-autism.org ïwww.sd-autism.org
A Member of the Combined Health Agencies and the Combined Federal Campaign—Agency Code 95580
                                              PresIdeNT’s MessAge
                                              Cherri Cary
                                              T
                                                     his past February, Autism Society         celeration Act (ATAA): S. 819 H.R. 2413.
                                                     San Diego Board member Mara               This, the only autism specific bill, creates
                                                     Parker and I joined approximately         a demonstration project to provide an ar-
                                              70 other autism advocates in snow-cov-           ray of services to adults with autism spec-
                                              ered Washington DC. We spent one day             trum disorders, including: postsecondary
                                              learning about the most pressing issues          education; vocational and self-advocacy
                                              and legislative priorities affecting our         skills; employment; residential services,
                                              community and one day on Capitol Hill            supports and housing; nutrition, health
                                              visiting congressional and senatorial of-        and wellness; recreational and social ac-
                                              fices. The event was hosted by the Au-           tivities; and transportation and personal
                                              tism Society’s Jeff Sell and Hannah Cary         safety. The general focus of the bill is the
                                              who continuously monitor the activities          provision of day-to-day services related
                                              of Congress and the federal government           to the research authorized and funded in
                                              through meetings and briefings with              the Combating Autism Act, passed in late
                                              Members of Congress, their staff and             2006. The fourth issue is a bill not yet in-
                                              leaders in the federal government, we            troduced, but expected soon; Reforming
                                              were educated on several bills of great          the Toxic Substances Control Act. Since
                                              importance to persons with autism and            1976 when the original Toxic Substances
                                              other developmental disabilities. Our            Control Act became law, the EPA has been
                                              task was to bring this information to the        able to require testing on just 200 of the
    President Cherri Cary in Washington DC    offices of our local congressional repre-        more than 80,000 chemicals produced and
                                              sentatives and ask for their support.            used in the U.S., and five chemicals have
                                                                                               been regulated under this law. Better test-
                                              One of those bills, Preventing Harm-             ing, regulation and control, plus incentives
                                              ful Restraint and Seclusions in Schools          for safer chemicals results in healthier
                                              Act: H.R. 4247/S. 2860, has since suc-           families. People with disabilities have been
                                              cessfully passed in the House of Repre-          shown to be especially vulnerable to toxic
                                              sentatives and will be coming up for a           substances in their environments.
                                              vote in the senate soon. Another impor-
                                              tant bill, which we found the congres-           It was exciting and empowering to be a
                                              sional offices quite receptive to was the        part of a group of committed advocates
                                              Achieving a Better Life Experience Act           who were able to address our legislators
                                              (ABLE): S. 493 H.R. 1205 which would             with confidence and conviction, having
                                              enable families to establish a savings ac-       been well prepped and knowing that we
                                              count for specified education, medical           were there representing not only our own
                                              and community-based services, includ-            families but many others from our commu-
                                              ing housing, transportation, employ-             nity with similar needs and interests.
                                              ment training and supports for their
Mara Parker and Cherri Cary on Capitol Hill   child without disqualifying that child           For detailed information about these bills
                                              from receipt of funds from entitlement           and how to advocate for autism and dis-
                                              programs which are vital in ensuring             ability related issues please visit the Vo-
                                              their quality of life.                           te4Autism page at http://www.autism-
                                                                                               society.org by clicking the icon with the
                                              The third bill we discussed with our leg-        flag motif.
                                              islators was The Autism Treatment Ac-
                                                                                               Cherri
          Visit us on the web at
           www.sd-autism.org.
                                               Place an ad in the
                                                     Autism Action
    For the latest chapter events, sign                                                        The Autism Society of San Diego
                                               Business card size: $100/ per issue
        up for the SDASA e-news!                                                                 does not endorse individual programs
                                               Double business card size: $150                   or products. References appearing in
          Autism Action editors:               Quarter page: $200                               the Autism Action regarding programs,
               Karyn Searcy                    Half page: $300                                 resources, treatment, etc. are provided
             & Kay Freeman                                                                        for information only and should not
                                               Full page insert: $450                              be interpreted as an indication of
           Phone: 858.715.0678
         email: info@sd-autism.org             All ads are subject to publication based                      endorsement.
                                               on the discretion of our editorial staff.                           .
2                                                                       Autism Society of San Diego Newsletterï Autism Action ï   2010 Vol.1
uPCOMINg
                events
Autism Society of San Diego                                                  The Ultimate Pool Party,
Family Parties
The cost is FRee, but donations are                                              Splash for Cash
accepted and greatly appreciated                                          Sunday, May 23,2010, 8 am until 2 pm
San Diego:                                                               Proceeds pay for Surf Camp, adaptive swimmimng les-
Held the 2nd Friday evening of each month at the Boys & Girls            sons and the central and north county monthly family
Club in Clairemont. 4635 Clairemont mesa Blvd. 6:00-8:00 pm.             pool/gymnastics nights.
                                                                         Any and all swimmers are welcome to swim.
The whole family can swim in an indoor, heated pool. lifeguards          Pancake breakfast and chili
provided. RSvP recommended: info@sd-autism.org                           dog lunch prepared and
                                                                         served by SD Firefighters!
North County:
events TBD: Family Gym or Pool Party                                     •   team swimming
Palomar Family YmCA                                                      •   pancake breakfast
1050 N. Broadway, escondido, CA 92026                                    •   chili dog lunch
Please check website or monthly e-news for latest updates                •   prizes
                                                                         •   silent auction
                                       Monthly family films at           •   kids fun zone
                                       2 AMC theaters
                                       Check our website for                          Location: Aqua Pros Swim School
                                       dates and titles:                                Clairemont Boys & Girls Club
                                                                              4635 Clairemont Mesa Blvd.,San Diego, CA 92117
                                       www.sd-autism.org
                                                                         Participation is fun and easy....go to the sd-autism.org
                                                                         site and click on the Splash for Cash.


   Teacher Appreciation Night                                                                          Thursday, April 22
                                                                                                       5-6:30 pm
   Come join us on this special night to recognize the                                                 PUMP IT UP
   teachers, aides, and professionals who have made
   a difference in our children’s lives. Awards will be                                                445 Ryan Dr. Suite 103
   given to dedicated educators who have shown excel-                                                  San Marcos, CA 92078
   lence in all that they do for students on the spec-
   trum. A light dinner will be served.                                                                    Event Coordinator:
                                                                                                               Cherri Cary
   Tuesday, May 18, 6:30 PM at Central San Diego meeting.                                                cherri.cary@gmail.com
   Monday, June 7, at 7:00 PM in North County meeting.                                                        858-658-9968
   To RSVP or for more information about invitations                                                       www.sd-autism.org
   for honorees, please contact 858.715.0678 or
   info@sd-autism.org.
                                                                              Walk/Run at Poway High School
                                                                              Track
                                                                              Saturday, April 17, 9:00am-
                                                                              12:00 pm
                                                                              15500 Espola Road, Poway, CA

                                                                              For information or to volunteer,
                                                                              contact Poway High School se-
              Combined Health Agencies                                        nior and event organizer,
                 Night with the Padres                                        Cara Terlep at
       Wednesday, May 26, 2010, 7:05 p.m. game                                solvethepuzzle@yahoo.com
        San Diego Padres vs St. Louis Cardinals
          Watch the SDASA monthly e-news                                      www.sd-autism.org
              or website for information
Autism Society of San Diego Newsletterï Autism Action ï     2010 Vol.1                                                           3
T
      he Autism Society-San Diego is proud to announce that we are going “All
      Out for Autism! – Island Dreams” for our 10th Annual fundraiser. We in-
      vite you to enjoy a night of scrumptious food, exciting silent & live auc-
tions, great raffle prizes, and the fantasic Birch Aquarium all while support-
ing a great cause! This fundraiser benefits our work in recreational programs,
including Camp I CAN (Camp Including Children with Autism Now) and Surf
Camp for people with Autism, both programs in their 9th year! Our unique
camps provide children and teens with autism the opportunity to experi-
ence summer camp just as their siblings and friends do. Creating these spe-
cial opportunities requires us to raise over $100,000 each year, but with your
help, we can continue to offer these incredible camps for years to come!
                         All Out For Autism 2010
                              Saturday, April 24, 2010
                                  6:00 - 10:00 pm

VENUE:          Birch Aquarium at Scripps, La Jolla
                2300 Expedition Way
                La Jolla, CA 92037

               Island attire is requested

HIGHLIGHTS:    A fabulous night of entertainment in the world famous Birch Aquarium
               MC'ed by KUSI TV Channel 9-51 reporter Lena Lewis featuring:

                • all exhibits in Birch Aquarium
                • a cocktail hour with Magic Mike and bartended by the famous
                  Flairaholics (think of the movie "Cocktail"!)
                • the chance to lockdown San Diego's Fire Department's finest
                • firefighters in the SHARK TANK!
                • gourmet island cuisine prepared by the French Gourmet
                • live Carribean music performed by the popular Island Fever Band
                • a silent auction with Miss San Diego, Miss La Jolla and Miss Teen San Diego
                • a live auction hosted by former Charger, Gary Plummer and Sport
                  Things and More's Jay Johnstone, former baseball player with the
                  Angels, Dodgers and Padres
                • cake designed by San Diego Culinary Art Institute to commemorate
                  the 10th anniversary of All Out For Autism
                • opportunity drawing for either a HP laptop computer or Las Vegas
                  weekend getaway
                • event photos available on-line after the event by Marcy Hermanson
                  Photo

VIP EVENTS: Two events especially for VIP ticket holders to be held in the Birch
               Aquarium's tide pool exhibit:

                • celebrity cocktail hour with former Charger players Gary Plummer
                  and Darren Carrington and special guest appearance by John Carney
                • a cooking demonstration and book signing by Food Network's Kevin
                  Roberts, "The Food Dude"

TICKETS :       Ticket and sponsorship information available at
                www.sd-autism.org




4                                                                       Autism Society of San Diego Newsletterï Autism Action ï   2010 Vol.1
       Autism Society of San Diego Benefit Concert
                                       featuring
               Singer, Songwriter, and Recording Artist
                                 JOHN EDDIE
                     With special guest Tornado Magnets
                             Sunday, May 2, 2010
                                         3:00 pm
                                   9190 Lavell Street
                                   La Mesa, Ca 91941
               Ticket Price=$30/person + requested donation at the door
         Bring your lawn chair, favorite bevs, and a picnic. Enjoy a great day of
               sunshine and rockin’ entertainment, all for a great cause.
          For info contact maraparker@maraparker.com or call 619-889-9448.
          Please mail a check to the above address by 4/22, to reserve your seat




                *FREE VALET PARKING*

         To listen or for more information about
          John Eddie, visit www.johneddie.com

         Don’t miss this rare SoCal appearance!


flyer insert
INfOrMATION &
                 support
              Autism society of san diego
Parent support & Information Meetings                                                  COFFEE TALK
                    North County                                                      Sit . . .Relax . . . Chat
                                                                        Calling all parents who would like to sit and chat about
          The 1st Monday each month                                     their children with ASD. Meet and join others over a relax-
                7:00pm-8:30 pm                                          ing cup of coffee. Hosted by Shelly Hirschberg, Coffee
          Palomar YMCA, Escondido, CA                                   Talk takes place the 2nd Thursday of the Month at 9 a.m.,
                                                                        unless otherwise noted. No need to RSVP. For more infor-
                                                                        mation call 858.715.0678 or visit www.sd-autism.org for
                Central San Diego                                       locations and dates.
        The 3rd Tuesday of each month
                 6:30-8:30 PM
 4699 Murphy Canyon Road, San Diego, CA 92123                                 grupo de Apoyo en español
                                                                                       Segundo lunes de cada mes.
                                                                                              6:00-8:00 p.m.
                                                                                         Saint Rose of Lima Parish
 NEW SUPPORT GROUP IN CARLSBAD                                                  293 “H” Street, Chula Vista, CA 91910-4703
                                                                                   Meetings to be held in the Parish Hall
 North Coast Calvary Chapel in Carlsbad is offering a
 support group for parents raising children with autism                 Para familias de niños y adolescentes con autismo. Un foro
 spectrum disorders. Meetings are held the third Thursday
                                                                        abierto para información, liderazgo, recursos en la comuni-
 of every month from 6:00pm-7:30pm.
                                                                        dad, abogacía, y compañerismo. Los esperamos/lo senti-
 Children on the spectrum are welcome to attend, but                    mos, no contamos con cuidado de niños. Para información
 please call ahead of time so we can staff appropriately.               llamar al 1.800.281.8252

 While we do have information on resources, the focus of                 SOUTHBAY/CHULA VISTA
 the groups are emotional and spiritual support.                         ASPERGER’S & HFA PARENT GROUP (English)
 The church is at 1330 Poinsettia Lane (at Aviara Parkway).              Support group for parents and caregivers of anyone affected
                                                                         by high functioning autism and Asperger’s Syndrome. There
 For more information, or if you are bringing children,                  will be speakers on related topics. Sorry, no child care pro-
 please call Pam Douty, MFT at (760) 929-0029 ext 314                    vided.
                                                                         Third Monday of the Month
                                                                         7:00-8:30pm
                                                                         First United Methodist Church “Discovery Center”
                                                                         1200 East H Street
                                                                         Chula Vista, CA 91910
                                                                         information at CVHFAParentGroup@cox.net

                                                                        Autism Through the Lifespan
           Free Monthly Informational Meetings 2010                     Please join other parents, caregivers and profession-
                 Community Speakers Present:                            als at this new information and support group meeting
                                                                        monthly near downtown San Diego. A joint collaboration
Photographs for Special Needs Children & Their Families--TBA            between the Autism Society of San Diego and the San
Managing Challenging Behaviors--Sherry Casper, Ph.D.                    Diego Unified School District, this new information and
Karate and Children with Special Needs--TBA                             support group will discuss autism through the lifespan.
Specific Language Impairments (SLI)--Deanna Hughes,Ph.D.                See below for specific dates and topics:
Special Education Consulting and Advocacy--Allan Roth
                                                                        April 15: High School
Integrating AAC into Daily Life--Bruce Fleming                          May 20: Transition to Adulthood
  Call 858 695 9415 for more information or suggest speakers            Location: Ballard Parent Center in Old Town
         Call 858 695 9415 or email: karynls2@aol.com                   2375 Congress Street, San Diego, CA 92111
            9606TierraGrande #107, San Diego, CA 92126                  Time: 9:30 - 11:00 am
                                                                        Each meeting will feature an expert speaker, an Autism Society
        Sorry—No Childcare is available at these events                 parent mentor and the opportunity to ask questions and net-
                                                                        work. The meetings are free and open to all.
Autism Society of San Diego Newsletterï Autism Action ï   2010 Vol. 1                                                                5
                                                                                          Summer Social
                                                                                          Communication Clubs
                                                                                          Using the Special Interests of Children
                                                                                          to Engage, Create, Communicate and
                                                                                          Connect
XciteSteps Programs:                        Saturdays 6pm – 9pm; ages 18+ with
                                                                                          Facilitate expressive language & social
                                            high functioning au- tism, Aspergers
20% discount to SDASA                       or other disabilities. Activities focus       communication skills with peers in
members                                     on building friendships and life skills.      the context of favorite activities and
                                                                                          interests.
XciteSteps was founded in 2005 to sup-      Fitness Club
port, enrich and empower the lives of       Mondays 3:30 – 5:30; Teens and Adults.                 Lego Club
children, teens and adults with a de-       A fitness club rotation weekly between                 Science Club
velopmental or cognitive disability and     fun outdoor fitness activities and                     Articulation Club
provide the personalized attention, en-     indoor gym workouts with professional
couragement, skills and emotional sup-                                                             Video Game Club
                                            licensed trainer, followed by healthy
port to succeed.They offer in-home and      nutrition discussions.                                 Train Club
community based 1:1 social, behavior,                                                              Cooking Club
inclusion, coached playdates and recre-     Tennis Club                                            Drama Club
ational coaching/mentoring, as well as a    Mondays 4:15pm -6:15pm; kids & teens                   Art Club
variety of small group social and sports    Pride & fulfillment through athletic
clubs for kids, teens and adults. Their     movement and team play.
main philosophy is to “provide friendship                                                For more information please contact
and social opportunities in a coached       Xcite Steps Summer Camp                      Marilea Brock, M.S. CCC-SLP
but natural and fun environment” says       June 21st - August 27t.                      at 858-695-9415
cofounder Stefan Hochfilzer.                Times: 12:30 to 3:30pm                       mbrock@crimsoncenter.com
                                            These week long summercamps cater
XciteSteps developed its own model for      to kids, teens, and adults with de-
supporting youth and adults who
experience a disability called the
                                            velopmental or cognitive challenges.
                                            Fun sports, recreational activities and
                                                                                         Special
“Natural Opportunity Model”. Since all
XciteSteps programs and services are
                                            games,coupled with exciting commu-           Needs
                                            nity outings help inspire and develop
activity and interaction based, natural     friendships. Qualified counselors with       Karate
opportunities for teaching arise. Men-
tors and social coaches are trained to
                                            many years of mentoring, teaching and
                                            counseling experience coaching indi-         Classes
recognize and take advantage of the         viduals who experience disabilities.
natural situation to coach, role model      Location: Solana Beach. Home pick up         La Jolla Yoga Center is pleased to offer
or modify behaviors.                        available                                    Special Needs Karate classes with
                                                                                         Frank McCarroll on Tuesdays and Fridays
Upcoming Social & Sports Clubs:             TO FIND OUT MORE OR TO SIGN UP               from 3:30-4:30pm. Special Needs
                                            CONTACT:                                     Karate is a traditional martial arts class
Little Adventure Club                       Pam Machala Program Director                 for people with a wide range of
Sundays 10am – 1pm; ages 4 – 6              858 703 7305                                 physical and cognitive disabilities.
with high functioning autism, Aspergers     Email pmachala@@excitesteps.com
and PDD. Focus on listening and com-        Website: www.excitesteps.com                 La Jolla Yoga Center will be offering one
munication skills, appropriate play, and                                                 month of free Special Needs classes.
social confidence.
                                                                                         Frank McCarroll is the only martial arts
Kids Adventure Club                                                                      teacher in the San Diego area that
Saturdays 11am – 2pm; ages 8–12                                                          is also a full time special education
with high functioning autism,                                                            teacher. He is trained in Applied
Aspergers and PDD. Kid friendly activi-                                                  Behavioral Analysis (ABA), Positive
ties focuses on friendship and behavior                                                  Behavior Intervention in Schools (PBIS),
skills, and positive community interac-                                                  Behavior Intervention Planning (BIP),
tions.                                                                                   and firmly believes in using positive
                                                                                         reinforcement to shape behaviors.
Steps Up Club
Saturdays 2:30-5:30pm; ages 13-18                                                        Please visit our website: http://www.
with high functioning autism, Aspergers                                                  lajollayogacenter.com
and PDD; advanced activities focusing
on teen issues and peer interaction                                                      Frank McCarroll’s website: http://www.
                                                                                         practicalkarate.com
Adult Social Club
6                                                                  Autism Society of San Diego Newsletterï Autism Action ï   2010, Vol. 1
SPECIAL NEEDS TRUSTS 101 HEALTH CARE FOR
                                                                                             PERSONS WITH ASD

A                                                                                            N
        special needs trust is an ex-                  1. A standard family living trust
                                                                                                    ow offering primary health care
        tremely important tool for             containing a special needs clause, or                services for persons with Autism
        families with a disabled child.                2. A “stand-alone” special                   Spectrum disorders.
It provides a vehicle to protect the           needs trust.                                  Shirley Fett, Certified Family Nurse
child’s public benefits, such as Medi-                                                       Practitioner-Autism Services Director
Cal, while leaving funds to enhance                       Special Needs Clause               Medical Offices of Dr. Brian P. First and
his quality of life. This is something                                                       Simon Ritchken
a general family trust without special         One of the easiest and least expen-           4282 Genesee Avenue, Suite 103
needs provisions cannot accomplish.            sive ways to establish a special needs        San Diego, CA 92117, 858-292-0108
                                               trust is to have your estate planning
                                                                                             We are an established (1981) internal medi-
Parents should be aware that by nam-           attorney add a special needs clause to
                                                                                             cine, endocrinology and gastroenterology
ing their disabled child as a benefi-          your family trust when it is drafted,         office in the heart of Clairemont. We will
ciary in their general family trust their      specifying that the disabled child’s in-      strive to provide comprehensive, compas-
child will be disqualified from receiving      heritance will not go to the child di-        sionate, quality care and make the neces-
his public benefits. This can be cata-         rectly but, instead, will go into a spe-      sary accomodations for persons with au-
strophic, particularly if the child has a      cial needs trust for the child’s benefit.     tism.
severe medical condition, such as mul-
tiple sclerosis or seizures, and is unable     The drawback to this method is that           Please identify yourself for the autism clin-
to qualify for private health insurance.       no one other than the Trustors of the         ic when you make an appointment so we
                                               trust (the parents) can contribute to         can best meet your needs. Accepting all
                                                                                             forms of insurance including Medi-Cal and
This unintended result is because cur-         this special needs trust. Therefore,
                                                                                             Medicare, HMO, PPO, Tri-Care.
rently a person receiving needs-based          other family members, such as grand-
public benefits cannot have “resources”        parents, who might like to leave an
over $2,000. Therefore, if that person re-     inheritance helping provide for the
ceives an inheritance, he will be bumped       child’s future, cannot use this vehicle.      7th ANNUAL
off public benefits until the new funds                                                           AMIGO AWARDS
have been exhausted -- at which time he                   Stand-Alone Trust
will have to re-qualify for public benefits.                                                 The Autism Society of San Diego rec-
                                               The second type of third-party trust,         ognizes the following individuals/busi-
However, by establishing a special needs       the “stand alone” trust, is set up            nesses who have helped and supported
                                                                                             families of individuals with ASD as 2010
trust, family members can make arrange-        as an independent trust for the dis-
                                                                                             Amigo Award Recipients:
ments to enhance their loved one’s qual-       abled child’s benefit and anyone can
ity of life without affecting his “needs       contribute to this trust.    Therefore,       * Judy and Kevin Kreitzer and the staff
based” public benefits. A special needs        grandparents, aunts, uncles, broth-           of Chloe’s Carousel in Rancho Bernardo.
trust can pay for items the individual         ers, sisters and family friends can all       Chloe’s is a styling salon that offers ex-
would otherwise be unable to afford,           contribute to this “stand alone” trust.       ceptional service for children with spe-
such as quality dental care, travel, en-                                                     cial needs and their families.
tertainment, or a computer. Or, as some        As stated above, neither of these third-
parents choose to do, their residence can      party trusts requires “payback” provi-        * Lola Longo with Coyne & Associates
be placed into the special needs trust         sions or Court establishment and super-       who is effective, patient, and persis-
                                                                                             tant, knowledgeable, and skillful in her
upon their death and maintained as a           vision. Therefore, they are generally
                                                                                             role as Program Supervisor.
home for their child during his lifetime.      less expensive to establish and maintain
                                               than other types of special needs trusts.     * Lisa Guillen with Coyne & Associates
This type of trust is set up by someone                                                      brings an extraordinary spirit, patience
other than the disabled beneficiary,           If you have a special needs child who         and expertise in her activities to help
which is why it is called a “third party”      needs, or will need, public benefits, you     her client in her role as Early Childhood
trust. Most often, the trust is set up by      should make this an important priority        Interventionist.
the parents of the disabled beneficiary        in your estate planning to ensure your
as a vehicle for the child’s inheritance.      child’s quality of life after your death,     * First Class Wax, an upscale salon in
This trust does not require the “pay-          while still preserving his public benefits.   the Banker’s Hill section of San Diego
                                                                                             graciously offered a “Day of Pampering”
back” provision to the State for Medi-
                                                                                             for parents of autistic children and teens
Cal benefits that other types of special                                                     on January, 23, 2010. Approximately 40
needs trusts require, nor does it require      Toni Taylor Buck is an estate-planning        people enjoyed food and drink, the com-
Court establishment or supervision.            attorney with offices in Encinitas and        pany of other parents, and free waxing,
Since it does not contain a “payback”          San Elijo Hills. If you have any ques-        massage, and parafin wax treatments.
provision, any funds left over after the       tions about special needs trusts, please
beneficiary’s death remain in the family.      feel free to contact her at toni@tay-         Deven McCarty and Amber Schmid, the
                                               lorbucklaw.com or (760) 942-2290.             salon owners, were thrilled to offer
There are two types of third-party spe-                                                      these services to a population that they
cial needs trusts:                                                                           believed really needed some pampering.

Autism Society of San Diego Newsletterï Autism Action ï   2010 Vol. 1                                                                  7
FUNDS AVAILABLE FOR AUTISM-SPECIFIC TRAINING                                               Eyewear for Children
                                                                                           with Special Needs

T
     he Stauffer Family Foundation has generously provided grant monies to the
     Autism Society of San Diego in order to offer scholarships for autism specific        Children in San Diego with special needs
     conferences, training, or seminars. Per the Foundation, scholarships may be           do not seem to have
awarded to parents, teachers, aides, school administrators/personnel or caregivers         many choices in eye-
who have a role in the care and/or education of a child(ren) or adolescent(s) with         wear providers within
an autism spectrum disorder.                                                               our vast county. The
                                                                                           few that do exist do
To be eligible for a Stauffer Fund Scholarship you must be currently working with a        not often cater to
                                                                                           special needs and sel-
child(ren) or adolescent(s) with an autism spectrum disorder and be an SDASA mem-
                                                                                           dom accept insurance reimbursements.
ber. Scholarships may cover up to $250 of the registration fee per calendar year           Frames for children, especially those
only and may not be used for class materials, hotel, transportation or incidentals.        with special needs, seem to lack the va-
                                                                                           riety frequently available through gen-
You are encouraged to utilize this wonderful opportunity. Please submit scholar-           eral optical departments. The mission
ship applications at least four (4) weeks in advance in order to meet the regular          of Rady Children’s Hospital’s optical de-
registration deadlines (no late fees will be paid). Checks will NOT be paid directly       partment is to provide families with a
to individuals. The check will be made payable directly to conference/training pro-        caring and understanding environment
vider. Forms to apply for a Stauffer Fund Scholarship are available on the sd-autism.      from which to select the latest in tech-
org website.                                                                               nologies for both frames and lenses.

                                                                                           One of these new technologies in frame
For further questions contact the SDASA at info@sd-autism.org.                             wear is the EasyTwist brand by Aspex
                                                                                           Eyewear. This company has designed
                                                                                           a patented, four-way hinge that al-
Scholarships available for                                                                 lows the temple to bend 180 degrees
                                                                                           up, down, out and closed. The bridge
     Special Needs Life Quality Plans                                                      is built out of a memory metal that al-
        Free Webinar on Special Needs Life Coaching                                        lows the frame to be folded lens to lens.
                                                                                           With the combination of both memory
The International Association for Life Quality (IALQ), a national leader dedicated         metal technology and the intricate hinge
to identifying and removing barriers to a quality life for those with developmental        design, this frame is highly durable. It
disabilities, announced that scholarships for Special Needs Life Quality Plans™ are        comes in a variety of shapes, colors, and
available to underserved families with a child with autism or other developmental          sizes, which can be viewed at
disability. IALQ is led by the Training, Education & Research Institute (TERI), and        http://www.aspexeyewear.com/.          An
scholarships were made possible through a grant provided to them by the National           informational video and plenty of pic-
Foundation for Autism Research (NFAR). Special Needs Life Quality Plans™ provide           tures are available on this site.
families and caregivers a highly detailed profile and “happiness” roadmap, report-
ing caregiver’s experiences, expertise, and knowledge, as well as subtle nuances           Miraflex eyewear has also released a
distinctive to the individual for whom the plan is designed.                               new frame that is literally indestruc-
Also available to parents, or other interested individuals, is IALQ’s is a series of       tible. It consists completely of rubber
free webinars. For more information about how to apply for Special Needs Life              frames and a built in strap. They are
Quality Plans™, or to register for the Free Webinar, visit www.ialq.org or by calling      available in various colors and sizes,
1-760-721-1706.                                                                            with two basic shapes (round and rect-
                                                                                           angle). This frame line is perfect for
                                                                                           those patients who tend to easily break
                                                                                           frames. To view this line, visit their
Health Hero, continued from page 1                                                         website at www.miraflexglasses.com
In San Diego, Karyn has volunteered time in the autism community with sever-
al organizations. Year after year, she has served on the Walk for NAAR and Au-             Children’s Optical in Rady Children’s
tism Speaks walk committees, Involved Exceptional Parent Day planning com-                 Hospital, offers a friendly and helpful
mittee, and the Board of Directors of the SDASA. She is a principal investigator           staff of trained Opticians and technolo-
with Aubyn Stahmer on the SoCal Bridge Collaborative, which recently received              gists, who provide a welcoming environ-
an NIMH grant to provider early intervention to infants at risk for autism spec-           ment for children with special needs.
trum disorders. In addition, Karyn has actively helped military families with ASD          They understand that unfamiliar facili-
children find services and support, and has provided pre-school screenings for             ties can cause anxiety for both children
at-risk toddlers at no charge throughout the country for more than 30 years.               and parents, and with a caring hand,
                                                                                           they help select the appropriate eye-
Karyn provides professional training at the state and national level to educators,         wear specific to your child.
therapists and others who work with children and adults with autism. She has been
a speaker at the American Speech and Hearing Association National Conference for           For further information, please call 858-
the past three years, as well as the at California Speech and Hearing Association          309-7704 or email joppido@rchsd.org.
conferences for several years. Karyn has been teaching an early intervention course        Their    office is located at 3030 Chil-
through Cross Country Education throughout the country since 2006, focusing on             dren’s way, #109 in San Diego.
parent involvement in the treatment process. Additionally, she provides super-
vision to masters level Speech and Language Pathology students who work with
children with autism at the Communications Clinic at San Diego State University.

Based on her body of work benefiting persons with autism over many years, as well
as her service to San Diego community, Karyn is a great choice for our Health Hero!
8
                                                                   Autism Society of San Diego Newsletterï Autism Action ï 2010, Vol. 1
                                                                                         INNOVATIVE
                                                                                         THERAPY
                                                                                         FOR KIDS
                                                                                         The Autism Society of
                                                                                         San Diego, awarded
                                                                                         Innovative     Therapy
                                                                                         4-Kids, Inc. the Amigo
                                                                                         Award in May of 2009.
 Earliest Intervention for Young Children with Risk for Autism:                          This award goes to
                  What Community Providers and Families Value                            the person or clinic
                                                                                         that shows outstanding achievement in
             Aubyn Stahmer, Karyn Searcy, Laura Cervantes & Ember Lee                    working with families of children with
                   Child and Adolescent Services Research Center                         autism in our community.
                              Rady Children’s Hospital
                            3020 Children's Way MC 5033                                  Founded in 2000 by Laura Driessen Walls,
                             San Diego, CA 92123-4282                                    M.S. CCC-SLP and Amy Duffner Johnson,
                                                                                         PT, IT4K’s, Inc. is located in Carlsbad,
Increasing numbers of children with communication and relationship disorders, in-        California and is exclusively dedicated
cluding autism, are identified at early ages and represent a significant public health   to providing exceptional therapeutic
challenge. Few studies of intervention programs exist, however, that address so-         services to all children and their fami-
cial-communicative issues in infants and toddlers. Additionally, dissemination of        lies. Their approach in treating each in-
existing programs to community settings has been limited.                                dividual is based on symptoms and the
                                                                                         whole child, rather than only a diagnosis
In an effort to meet this need, more than 15 community members, including par-           or label. This approach has taught nu-
ents, providers, researchers and funding agency representative, have met monthly         merous children how to reach skill levels
since 2007. They reviewed many available programs designed for older toddlers to         never thought possible.
identify an approach that could be adapted for younger children and their families
and formed the SoCal BRIDGE Collaborative.                                               SDASA applauds IT4K for their phenom-
                                                                                         enal work with our children and their
In 2009, the BRIDGE Collaborative received funding from the National Institute for       families. www.it4k.com
Mental Health (NIMH) to select an evidence-based intervention to implement in the
community, and examine the perspectives of parents and intervention providers
regarding the use of evidence-based, parent-implemented interventions for 12-24
month old children at risk for disorders of relating and communicating, such as          NFAR-Supported Research Project
autism. After reviewing more than 20 programs, they chose three to present to the        Seeking Recruits for Oral and
community for feedback.                                                                  Written Communication
                                                                                         in the Workplace
In October and December 2009, 10 early intervention providers and 10 parents of
children diagnosed with autism in Southern California participated in four focus         Crimson Speech Language Treatment
group meetings to discuss the efficacy of early intervention services for children       and Research Center is still recruiting
between 12 and 24 months, issues they consider when choosing specific techniques,        participants with autism and related
obstacles to providing/obtaining early intervention, and philosophies of what an         disorders for their research project,
ideal early intervention program would look like. After attending presentations          funded jointly with National Foundation
from the three selected intervention developers, participants met to discuss the         for Autism Research (NFAR). This pro-
strengths and weaknesses of each and how they measured up to the factors identi-         gram is designed to build oral & written
fied as important for early intervention.                                                communication skills in the workplace.
                                                                                         Participants must be within the ages of
Analysis of the focus groups shows a great deal of overlap between parent and pro-       15-23 and want to develop strong voca-
vider perspectives. Both groups believe it is important for intervention to start as     tional skills.
early as possible, be individualized for the child/family, but also be comprehensive.
Both stated that interventions must be evidence-based; however they were more            It is not necessary to be currently em-
influenced by the intervention presenters’ method of presenting evidence than the        ployed, and there is no cost for partici-
scientific strength of the evidence given. Parents and providers did have some areas     pation in the project. Groups will meet
where their focus differed. Parents wanted more flexibility in choosing their pro-       once a week for two hours for approxi-
vider, wanted opportunities to include siblings in the intervention, and wanted more     mately 16 weeks. Recruitment is open
support in understanding and navigating potential diagnoses and services. Provid-        now through February 19, 2010.
ers wanted comprehensive training, on-going supervision, and use of coaching and         Please contact Marilea Brock, M.S. CCC-
video feedback techniques as part of training. Additionally, there were many areas       slp at 858 695 9415 or marilea.brock@
of congruence between providers, parents and research findings. Implications for         gmail.com for further information.
community collaborative research and implementation of evidence-based practice
were discussed and integrated with the views of the BRIDGE Collaborative members,
and a consensus based process was used to select an intervention for further study.

Project Impact, an evidence-based, parent implemented intervention that combines
both behavioral and developmental techniques, was selected as the intervention to
pilot test as part of the NIMH study. Later this year, two therapists from five dif-
ferent agencies will be trained in this treatment, and 10 children and their parents
will participate in a 12 week pilot project. Results will be used to apply for further
funding for a large community trial of the program.
For further information, go to www.bridgecollaborative.com or call Karyn Searcy at
858 695 9415.
                                                                                                                               9
Autism Society of San Diego Newsletterï Autism Action ï   2010, Vol. 1
fOr yOur
                   information
FALL OPENINGS FOR HEAD START PROGRAMS
Neighborhood House Association Head Start and Early                                    AblePathways
Head Start provide comprehensive, family focused child de-
                                                                                Ability-Focused Respite & Support
velopment and social services to children from birth up to
kindergarten age (5 years old). Children qualify for early                    Life Skills Development Program
childhood education at no cost to the family based on age                           Serves North County San Diego

                                                                   T
and income eligibility with family circumstances taken under           his program serves the needs of children with ASD who can
consideration. Children with disabilities are encouraged to            benefit from one-on-one training in areas relating to activi-
apply. For information on openings, phone San Diego Head-          ties of daily and home living, social development, and socializa-
Start Program hotline: 888-873-5145                                tion. For more information call 760-230-5251.


CHECK OUT THE KICK BACK CLUB                                             SIBSHOP FACILITATOR TRAINING
                                                                            Saturday, May 15, & Sunday, May 16, 2010
A   popular program for teens and young adults, the Kick Back
    Club (KBC) is designed to foster social skills, increase
leisure opportunities, and create friendships in a social and
                                                                                           9am to 4pm
                                                                     This workshop is open to family members or profession-
                                                                    als who want to start a Sibshop for brothers and sisters of
age-appropriate environment, while enhancing developmen-                            people with special needs.
tal needs for teens ages 13-19 and young adults (ages 20-30).                   San Diego Unified School District
                                                                                Ballard Parent Center in Old Town
The Kick Back Club participants get together to hang out, play                       Questions: 619-725-7327
games, have dinner, listen to music, and plan future events
such as dinner & movies, dances, excursions and outings to a
variety of fun places. Get all the info at 619-525-8247.

CAMP ASPIRE 2010
A Summer Day Camp For Children With Developmental
Disabilities, ages 6-17.
Summer activities include trips to the San Diego Zoo, Boom-
ers, Chuck E. Cheese, movie day and Carnival Day.
For information, contact CARES (Center for Autism Research,
Evaluation & Services) at 858-444-8823 ext. 1270
                                                                   C  amp I CAN, the only summer camp in the county specifi-
                                                                      cally designed for children and teens with autism is set to
                                                                   get underway this summer at these two locations - Toby Wells
                                            Contact Joey Yusunas
                                                                   YMCA in Kearny Mesa and Palomar Family YMCA in Escondido.
                                            858-869-7895
                                            jyusunas@yahoo.com
                                                                   Children participating in camp will have the opportunity to go
Summer Fun Days: Every Saturday, June 12-August 14, 2-3pm          on daily field trips to Boomers, Knott’s Soak City, Legoland,
at Cliffridge Fields: $50                                          Chuck E. Cheese, Belmont Park and more. Swimming at the
                                                                   YMCA pool will be available throughout the week.
Summer Camp, M-F, July 26-30 1-2pm at Allen Field: $35
                                                                   Most campers are assigned a 1:1 camp counselor as needed,
TOPSoccer Day, Sunday, August 29, 2-4pm at Allen Field: FREE       although camper to staff ratio during high functioning week
                                                                   is 3:2.
                      advertisement
                                                                   Membership in the San Diego County Chapter of the ASA is not
                                                                   required for enrollment. Camp fees are TBD per week for
        C H I L D C U S TO DY & VI S I TAT I O N I S S U E S       SDASA members and non-members, and financial assistance is
                                                                   available through the YMCA.

                                                                   Registration forms are available now for downloading at the
       MARK L. SCHLISSEL, M.S.W.                                   Autism Society of San Diego website, www.sd-autism.org.
        LICENSED CLINICAL SOCIAL WORKER                            Camp registration will take place via mail, fax or in person.
                                                                   Camp I CAN is very popular and fills up quickly. You must reg-
                                                                   ister your child/teen at the location that they will attend
     3914 THIRD AVENUE                                             camp; either Toby Wells or Palomar.
     SAN DIEGO, CA 92103               BY APPOINTMENT
     FAX: (619) 291-4426              (619) 291-4808               We are looking forward to our 9th year of camp in 2010!

10                                                                 Autism Society of San Diego Newsletterï Autism Action ï   2010 Vol. 1
fOr yOur
                 information
Join or Renew Membership                                                  INCLUSION RECREATIONAL ACTIVITIES
through Autism Society website                                                      FOR YOUTH, YOUNG ADULTS AND ADULTS!
                                                                                City of San DIego Park and Recreation Department
                                                                                       THERAPEUTIC RECREATION SERVICES
Now membership renewals are available on both the San Di-
                                                                                            Don’t miss out on the fun!
ego Chapter website, www.sd-autism.org or the National site,                                       619.525.8247
www.autism-society.org. This new alignment ensures that                    http://www.sandiego.gov/park-and-recreation/pdf/trscalendar.pdf
when you renew, you will be an Autism Society member at
the national level and locally with the Autism Society of San
Diego. Joining or renewing is a way to support families living
with autism in San Diego and across the country.
You will receive the quarterly magazine, the Autism Ad-
vocate, a discount at the Autism Society online store, the               PARTICIPATE IN A LOCAL RESEARCH STUDY
monthly ASA-Net national newsletter in addition to all the               To view local studies: please go to:
benefits you are used to as a member of San Diego Chapter                http:// www.sd-autism.org/researchStudies.html
such as our newsletter Autism Action, our monthly e-news of
our local activities, and discounts on many events.
Go to www.autism-society.org, then click on JOIN.
                                                                         AuTIsM CONfereNCe: MAy 21-23
                                                                         in San Diego
SPONSOR A POOL PARTY!                                                    The miller method
                                                                         Applied Behavior Analysis (ABA)
Your company can sponsor a monthly pool and pizza party for
$400 and have exclusive rights to the following recognition:             Contrasting approaches for the youngest and/or most
                                                                         challenged children with autism spectrum disorder
• Distribution of promotional material at the event and all              more info, videos, and register at
  Autism Society events for the designated month.                        www.millerinsandiego.org
• Recognition in our monthly e-news
                                                                         Nutrition and feeding Interventions
• Sponsor appreciation in the Autism Action Newsletter                   for Autism, Asperger’s and AdHd
                                                                         A one day seminar. learn how to help treat nutrition and
• Co-sponsorships are available at $250 per month
                                                                         feeding problems common in children diagnosed with
                                                                         autism, Asperger’s, ADHD and related disorders.
            Join the Autism Society                                      SAN DIeGo - may 12, 2010
                                                                         www.CrossCountryeducation.com
              Board of Directors
Are you interested in getting involved and giving back?
Do you have ideas & suggestions to improve the lives of
people affected by autism in San Diego County AND the en-
ergy and enthusiasm to follow up?
                                                                                                       T   he National Conference
                                                                                                           of the Autism Society is the
                                                                                                       only conference that addresses
                                                                                                       the range of issues, including
Do you want to be part of a dynamic group of like-minded                                               early intervention, education,
people working together to make things happen?                                                         employment, behavior, commu-
                                                                                                       nication, social skills, biomedi-
IF YOU ANSWERED YES TO ONE OR MORE OF THESE                                                            cal interventions and others,
QUESTIONS . . .Consider joining the SDASA Board of Direc-
                                                                                                       across the entire lifespan.
tors. Nominations being accepted through May 2010:
858 715 0678                                                                                           conference@autism-society.org

La Jolla Learning Foundation presents
PARENT RESOURCE SEMINAR
                                                                         DONATE YOUR CAR
Saturday, May 15, 2010 from 2:30pm to 4:30pm
8880 Rio San Diego Drive Suite 250, San Diego, 92108                     Charitable Auto Resources, Inc. (CARS™) accepts car dona-
Topics:                                                                  tions for Autism Society of San Diego. To donate your car,
Diagnosis, intervention, ADD/ADHD, and auditory processing;              truck, RV, boat, motorcycle, or other vehicle to our chapter,
the IEP process: eligibility, reimbursements, and placement.             please call 877-537-5277 or go to the link on our website. A
Info: 619 607 0950 or 858 663 5778, http://www.LJLF.org                  representative will help you with your donation.

Autism Society of San Diego Newsletterï Autism Action ï   2010, Vol. 1                                                                       11
BOARD OF DIRECTORS
              Directors-at-Large
2009-2010
                      SHERRY SOULE
CHERRI CARY, PSY.D.
                      SANDY SHAW, PH.D.
President
                      TAMMY ANDERSON LEE
CATHY SCHIEFFER
                      VICTORIA IKERD SCHREITER
Treasurer
                      DEEDEE SWOPES, MS.
SILVIA TOWNSEND
Secretary
SHIRLEY FETT
President-Elect
Directors
WHITNEY ARNOLD
JOHN BAER                                        APRIL IS
ED BAISLEY                                       AUTISM AWARENESS MONTH!
IAN BALESKY
                                                 Support the programs that enhance
JANINE BOLEDA
                                                 the lives of individuals with autism
TONI BUCK
RALPH CARRASQUILLO
TILA COTA
GREG FLETCHER
MARK JONES
MARA PARKER
STACI STEVENSON




                                                                                        Website: www.sd-autism.org
                                                                                        Email: info@sd-autism.org
                                                                                        (858) 715-0678

                                                                                        San Diego, CA 92142-0908
                                                                                        PO Box 420908
                                                                                        Autism Society of San Diego
  Permit No. 455
  San Diego, CA
      PAID
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  Non Profit Org.

				
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