whAt’s insidE: PAGE 2 PAGE 5-6 PAGE 9 • President’s Message • Support • Updates & Info • Misc. Programs PAGE 10-11 PAGE 3-4 PAGE 7-8 • FYI • Upcoming Events autism • AOA • Amigo Awards • Special Needs Trusts 2010 ACTION volume 1 The Voice and Resource of the San Diego Autism Community All Out For Autism, our annual fundraiser for Camp I CAN will be held on April 24, 2010 at the Birch Aquarium at Scripps, La Jolla. This year’s spectacu- lar event will be hosted by KUSI TV Channel 9-51 anchorwoman, Lena’ Lewis, featuring a special VIP chef demonstration and book sign- ing with Food Network’s Kevin Roberts, “The Food Dude,” celebrity cocktail hour (with a signature fundraiser drink) with former Char- gers football players Gary Plummer, Darren Carrington and John Carney; a live and silent auction hosted by Miss San Diego and Miss La Jolla; shark tank fundraiser with San Diego’s Finest Fireman; gourmet island-inspired cui- sine prepared by The French Gourmet; live Caribbean music and exciting entertainment Walk/Run at Poway High School Track performed by popular “Island Fever Band,” Saturday, April 17, 9:00am-12:00 pm with all proceeds going to Camp I CAN, the 15500 Espola Road, Poway, CA April 24, 2010 only camp in the county specifically de- more info page 3 signed for children and teens with autism. Birch Aquarium at more info page 4 Scripps-La Jolla Karyn Lewis Searcy selected as CHAD Health Hero 2010 Karyn has worked with children with autism since the 1970’s and in recent years has been a tireless advocate for effective speech and language-based treat- ments to be covered by health insurance. Her advocacy to ensure that young children with an autism diagnosis who receive ABA are April 22, 2010, 5:00-6:30 pm not excluded from speech language ther- Pump It Up in San Marcos apy services has benefited many families. Info on page 3 see Health Hero, page 8 Autism Action is published quarterly by the San Diego County Chapter of the Autism Society of America mailing address: PO Box 420908, San Diego, CA 92142-0908 (858) 715-0678 ïemail: firstname.lastname@example.org ïwww.sd-autism.org A Member of the Combined Health Agencies and the Combined Federal Campaign—Agency Code 95580 PresIdeNT’s MessAge Cherri Cary T his past February, Autism Society celeration Act (ATAA): S. 819 H.R. 2413. San Diego Board member Mara This, the only autism specific bill, creates Parker and I joined approximately a demonstration project to provide an ar- 70 other autism advocates in snow-cov- ray of services to adults with autism spec- ered Washington DC. We spent one day trum disorders, including: postsecondary learning about the most pressing issues education; vocational and self-advocacy and legislative priorities affecting our skills; employment; residential services, community and one day on Capitol Hill supports and housing; nutrition, health visiting congressional and senatorial of- and wellness; recreational and social ac- fices. The event was hosted by the Au- tivities; and transportation and personal tism Society’s Jeff Sell and Hannah Cary safety. The general focus of the bill is the who continuously monitor the activities provision of day-to-day services related of Congress and the federal government to the research authorized and funded in through meetings and briefings with the Combating Autism Act, passed in late Members of Congress, their staff and 2006. The fourth issue is a bill not yet in- leaders in the federal government, we troduced, but expected soon; Reforming were educated on several bills of great the Toxic Substances Control Act. Since importance to persons with autism and 1976 when the original Toxic Substances other developmental disabilities. Our Control Act became law, the EPA has been task was to bring this information to the able to require testing on just 200 of the President Cherri Cary in Washington DC offices of our local congressional repre- more than 80,000 chemicals produced and sentatives and ask for their support. used in the U.S., and five chemicals have been regulated under this law. Better test- One of those bills, Preventing Harm- ing, regulation and control, plus incentives ful Restraint and Seclusions in Schools for safer chemicals results in healthier Act: H.R. 4247/S. 2860, has since suc- families. People with disabilities have been cessfully passed in the House of Repre- shown to be especially vulnerable to toxic sentatives and will be coming up for a substances in their environments. vote in the senate soon. Another impor- tant bill, which we found the congres- It was exciting and empowering to be a sional offices quite receptive to was the part of a group of committed advocates Achieving a Better Life Experience Act who were able to address our legislators (ABLE): S. 493 H.R. 1205 which would with confidence and conviction, having enable families to establish a savings ac- been well prepped and knowing that we count for specified education, medical were there representing not only our own and community-based services, includ- families but many others from our commu- ing housing, transportation, employ- nity with similar needs and interests. ment training and supports for their Mara Parker and Cherri Cary on Capitol Hill child without disqualifying that child For detailed information about these bills from receipt of funds from entitlement and how to advocate for autism and dis- programs which are vital in ensuring ability related issues please visit the Vo- their quality of life. te4Autism page at http://www.autism- society.org by clicking the icon with the The third bill we discussed with our leg- flag motif. islators was The Autism Treatment Ac- Cherri Visit us on the web at www.sd-autism.org. Place an ad in the Autism Action For the latest chapter events, sign The Autism Society of San Diego Business card size: $100/ per issue up for the SDASA e-news! does not endorse individual programs Double business card size: $150 or products. References appearing in Autism Action editors: Quarter page: $200 the Autism Action regarding programs, Karyn Searcy Half page: $300 resources, treatment, etc. are provided & Kay Freeman for information only and should not Full page insert: $450 be interpreted as an indication of Phone: 858.715.0678 email: email@example.com All ads are subject to publication based endorsement. on the discretion of our editorial staff. . 2 Autism Society of San Diego Newsletterï Autism Action ï 2010 Vol.1 uPCOMINg events Autism Society of San Diego The Ultimate Pool Party, Family Parties The cost is FRee, but donations are Splash for Cash accepted and greatly appreciated Sunday, May 23,2010, 8 am until 2 pm San Diego: Proceeds pay for Surf Camp, adaptive swimmimng les- Held the 2nd Friday evening of each month at the Boys & Girls sons and the central and north county monthly family Club in Clairemont. 4635 Clairemont mesa Blvd. 6:00-8:00 pm. pool/gymnastics nights. Any and all swimmers are welcome to swim. The whole family can swim in an indoor, heated pool. lifeguards Pancake breakfast and chili provided. RSvP recommended: firstname.lastname@example.org dog lunch prepared and served by SD Firefighters! North County: events TBD: Family Gym or Pool Party • team swimming Palomar Family YmCA • pancake breakfast 1050 N. Broadway, escondido, CA 92026 • chili dog lunch Please check website or monthly e-news for latest updates • prizes • silent auction Monthly family films at • kids fun zone 2 AMC theaters Check our website for Location: Aqua Pros Swim School dates and titles: Clairemont Boys & Girls Club 4635 Clairemont Mesa Blvd.,San Diego, CA 92117 www.sd-autism.org Participation is fun and easy....go to the sd-autism.org site and click on the Splash for Cash. Teacher Appreciation Night Thursday, April 22 5-6:30 pm Come join us on this special night to recognize the PUMP IT UP teachers, aides, and professionals who have made a difference in our children’s lives. Awards will be 445 Ryan Dr. Suite 103 given to dedicated educators who have shown excel- San Marcos, CA 92078 lence in all that they do for students on the spec- trum. A light dinner will be served. Event Coordinator: Cherri Cary Tuesday, May 18, 6:30 PM at Central San Diego meeting. email@example.com Monday, June 7, at 7:00 PM in North County meeting. 858-658-9968 To RSVP or for more information about invitations www.sd-autism.org for honorees, please contact 858.715.0678 or firstname.lastname@example.org. Walk/Run at Poway High School Track Saturday, April 17, 9:00am- 12:00 pm 15500 Espola Road, Poway, CA For information or to volunteer, contact Poway High School se- Combined Health Agencies nior and event organizer, Night with the Padres Cara Terlep at Wednesday, May 26, 2010, 7:05 p.m. game email@example.com San Diego Padres vs St. Louis Cardinals Watch the SDASA monthly e-news www.sd-autism.org or website for information Autism Society of San Diego Newsletterï Autism Action ï 2010 Vol.1 3 T he Autism Society-San Diego is proud to announce that we are going “All Out for Autism! – Island Dreams” for our 10th Annual fundraiser. We in- vite you to enjoy a night of scrumptious food, exciting silent & live auc- tions, great raffle prizes, and the fantasic Birch Aquarium all while support- ing a great cause! This fundraiser benefits our work in recreational programs, including Camp I CAN (Camp Including Children with Autism Now) and Surf Camp for people with Autism, both programs in their 9th year! Our unique camps provide children and teens with autism the opportunity to experi- ence summer camp just as their siblings and friends do. Creating these spe- cial opportunities requires us to raise over $100,000 each year, but with your help, we can continue to offer these incredible camps for years to come! All Out For Autism 2010 Saturday, April 24, 2010 6:00 - 10:00 pm VENUE: Birch Aquarium at Scripps, La Jolla 2300 Expedition Way La Jolla, CA 92037 Island attire is requested HIGHLIGHTS: A fabulous night of entertainment in the world famous Birch Aquarium MC'ed by KUSI TV Channel 9-51 reporter Lena Lewis featuring: • all exhibits in Birch Aquarium • a cocktail hour with Magic Mike and bartended by the famous Flairaholics (think of the movie "Cocktail"!) • the chance to lockdown San Diego's Fire Department's finest • firefighters in the SHARK TANK! • gourmet island cuisine prepared by the French Gourmet • live Carribean music performed by the popular Island Fever Band • a silent auction with Miss San Diego, Miss La Jolla and Miss Teen San Diego • a live auction hosted by former Charger, Gary Plummer and Sport Things and More's Jay Johnstone, former baseball player with the Angels, Dodgers and Padres • cake designed by San Diego Culinary Art Institute to commemorate the 10th anniversary of All Out For Autism • opportunity drawing for either a HP laptop computer or Las Vegas weekend getaway • event photos available on-line after the event by Marcy Hermanson Photo VIP EVENTS: Two events especially for VIP ticket holders to be held in the Birch Aquarium's tide pool exhibit: • celebrity cocktail hour with former Charger players Gary Plummer and Darren Carrington and special guest appearance by John Carney • a cooking demonstration and book signing by Food Network's Kevin Roberts, "The Food Dude" TICKETS : Ticket and sponsorship information available at www.sd-autism.org 4 Autism Society of San Diego Newsletterï Autism Action ï 2010 Vol.1 Autism Society of San Diego Benefit Concert featuring Singer, Songwriter, and Recording Artist JOHN EDDIE With special guest Tornado Magnets Sunday, May 2, 2010 3:00 pm 9190 Lavell Street La Mesa, Ca 91941 Ticket Price=$30/person + requested donation at the door Bring your lawn chair, favorite bevs, and a picnic. Enjoy a great day of sunshine and rockin’ entertainment, all for a great cause. For info contact firstname.lastname@example.org or call 619-889-9448. Please mail a check to the above address by 4/22, to reserve your seat *FREE VALET PARKING* To listen or for more information about John Eddie, visit www.johneddie.com Don’t miss this rare SoCal appearance! flyer insert INfOrMATION & support Autism society of san diego Parent support & Information Meetings COFFEE TALK North County Sit . . .Relax . . . Chat Calling all parents who would like to sit and chat about The 1st Monday each month their children with ASD. Meet and join others over a relax- 7:00pm-8:30 pm ing cup of coffee. Hosted by Shelly Hirschberg, Coffee Palomar YMCA, Escondido, CA Talk takes place the 2nd Thursday of the Month at 9 a.m., unless otherwise noted. No need to RSVP. For more infor- mation call 858.715.0678 or visit www.sd-autism.org for Central San Diego locations and dates. The 3rd Tuesday of each month 6:30-8:30 PM 4699 Murphy Canyon Road, San Diego, CA 92123 grupo de Apoyo en español Segundo lunes de cada mes. 6:00-8:00 p.m. Saint Rose of Lima Parish NEW SUPPORT GROUP IN CARLSBAD 293 “H” Street, Chula Vista, CA 91910-4703 Meetings to be held in the Parish Hall North Coast Calvary Chapel in Carlsbad is offering a support group for parents raising children with autism Para familias de niños y adolescentes con autismo. Un foro spectrum disorders. Meetings are held the third Thursday abierto para información, liderazgo, recursos en la comuni- of every month from 6:00pm-7:30pm. dad, abogacía, y compañerismo. Los esperamos/lo senti- Children on the spectrum are welcome to attend, but mos, no contamos con cuidado de niños. Para información please call ahead of time so we can staff appropriately. llamar al 1.800.281.8252 While we do have information on resources, the focus of SOUTHBAY/CHULA VISTA the groups are emotional and spiritual support. ASPERGER’S & HFA PARENT GROUP (English) The church is at 1330 Poinsettia Lane (at Aviara Parkway). Support group for parents and caregivers of anyone affected by high functioning autism and Asperger’s Syndrome. There For more information, or if you are bringing children, will be speakers on related topics. Sorry, no child care pro- please call Pam Douty, MFT at (760) 929-0029 ext 314 vided. Third Monday of the Month 7:00-8:30pm First United Methodist Church “Discovery Center” 1200 East H Street Chula Vista, CA 91910 information at CVHFAParentGroup@cox.net Autism Through the Lifespan Free Monthly Informational Meetings 2010 Please join other parents, caregivers and profession- Community Speakers Present: als at this new information and support group meeting monthly near downtown San Diego. A joint collaboration Photographs for Special Needs Children & Their Families--TBA between the Autism Society of San Diego and the San Managing Challenging Behaviors--Sherry Casper, Ph.D. Diego Unified School District, this new information and Karate and Children with Special Needs--TBA support group will discuss autism through the lifespan. Specific Language Impairments (SLI)--Deanna Hughes,Ph.D. See below for specific dates and topics: Special Education Consulting and Advocacy--Allan Roth April 15: High School Integrating AAC into Daily Life--Bruce Fleming May 20: Transition to Adulthood Call 858 695 9415 for more information or suggest speakers Location: Ballard Parent Center in Old Town Call 858 695 9415 or email: email@example.com 2375 Congress Street, San Diego, CA 92111 9606TierraGrande #107, San Diego, CA 92126 Time: 9:30 - 11:00 am Each meeting will feature an expert speaker, an Autism Society Sorry—No Childcare is available at these events parent mentor and the opportunity to ask questions and net- work. The meetings are free and open to all. Autism Society of San Diego Newsletterï Autism Action ï 2010 Vol. 1 5 Summer Social Communication Clubs Using the Special Interests of Children to Engage, Create, Communicate and Connect XciteSteps Programs: Saturdays 6pm – 9pm; ages 18+ with Facilitate expressive language & social high functioning au- tism, Aspergers 20% discount to SDASA or other disabilities. Activities focus communication skills with peers in members on building friendships and life skills. the context of favorite activities and interests. XciteSteps was founded in 2005 to sup- Fitness Club port, enrich and empower the lives of Mondays 3:30 – 5:30; Teens and Adults. Lego Club children, teens and adults with a de- A fitness club rotation weekly between Science Club velopmental or cognitive disability and fun outdoor fitness activities and Articulation Club provide the personalized attention, en- indoor gym workouts with professional couragement, skills and emotional sup- Video Game Club licensed trainer, followed by healthy port to succeed.They offer in-home and nutrition discussions. Train Club community based 1:1 social, behavior, Cooking Club inclusion, coached playdates and recre- Tennis Club Drama Club ational coaching/mentoring, as well as a Mondays 4:15pm -6:15pm; kids & teens Art Club variety of small group social and sports Pride & fulfillment through athletic clubs for kids, teens and adults. Their movement and team play. main philosophy is to “provide friendship For more information please contact and social opportunities in a coached Xcite Steps Summer Camp Marilea Brock, M.S. CCC-SLP but natural and fun environment” says June 21st - August 27t. at 858-695-9415 cofounder Stefan Hochfilzer. Times: 12:30 to 3:30pm firstname.lastname@example.org These week long summercamps cater XciteSteps developed its own model for to kids, teens, and adults with de- supporting youth and adults who experience a disability called the velopmental or cognitive challenges. Fun sports, recreational activities and Special “Natural Opportunity Model”. Since all XciteSteps programs and services are games,coupled with exciting commu- Needs nity outings help inspire and develop activity and interaction based, natural friendships. Qualified counselors with Karate opportunities for teaching arise. Men- tors and social coaches are trained to many years of mentoring, teaching and counseling experience coaching indi- Classes recognize and take advantage of the viduals who experience disabilities. natural situation to coach, role model Location: Solana Beach. Home pick up La Jolla Yoga Center is pleased to offer or modify behaviors. available Special Needs Karate classes with Frank McCarroll on Tuesdays and Fridays Upcoming Social & Sports Clubs: TO FIND OUT MORE OR TO SIGN UP from 3:30-4:30pm. Special Needs CONTACT: Karate is a traditional martial arts class Little Adventure Club Pam Machala Program Director for people with a wide range of Sundays 10am – 1pm; ages 4 – 6 858 703 7305 physical and cognitive disabilities. with high functioning autism, Aspergers Email pmachala@@excitesteps.com and PDD. Focus on listening and com- Website: www.excitesteps.com La Jolla Yoga Center will be offering one munication skills, appropriate play, and month of free Special Needs classes. social confidence. Frank McCarroll is the only martial arts Kids Adventure Club teacher in the San Diego area that Saturdays 11am – 2pm; ages 8–12 is also a full time special education with high functioning autism, teacher. He is trained in Applied Aspergers and PDD. Kid friendly activi- Behavioral Analysis (ABA), Positive ties focuses on friendship and behavior Behavior Intervention in Schools (PBIS), skills, and positive community interac- Behavior Intervention Planning (BIP), tions. and firmly believes in using positive reinforcement to shape behaviors. Steps Up Club Saturdays 2:30-5:30pm; ages 13-18 Please visit our website: http://www. with high functioning autism, Aspergers lajollayogacenter.com and PDD; advanced activities focusing on teen issues and peer interaction Frank McCarroll’s website: http://www. practicalkarate.com Adult Social Club 6 Autism Society of San Diego Newsletterï Autism Action ï 2010, Vol. 1 SPECIAL NEEDS TRUSTS 101 HEALTH CARE FOR PERSONS WITH ASD A N special needs trust is an ex- 1. A standard family living trust ow offering primary health care tremely important tool for containing a special needs clause, or services for persons with Autism families with a disabled child. 2. A “stand-alone” special Spectrum disorders. It provides a vehicle to protect the needs trust. Shirley Fett, Certified Family Nurse child’s public benefits, such as Medi- Practitioner-Autism Services Director Cal, while leaving funds to enhance Special Needs Clause Medical Offices of Dr. Brian P. First and his quality of life. This is something Simon Ritchken a general family trust without special One of the easiest and least expen- 4282 Genesee Avenue, Suite 103 needs provisions cannot accomplish. sive ways to establish a special needs San Diego, CA 92117, 858-292-0108 trust is to have your estate planning We are an established (1981) internal medi- Parents should be aware that by nam- attorney add a special needs clause to cine, endocrinology and gastroenterology ing their disabled child as a benefi- your family trust when it is drafted, office in the heart of Clairemont. We will ciary in their general family trust their specifying that the disabled child’s in- strive to provide comprehensive, compas- child will be disqualified from receiving heritance will not go to the child di- sionate, quality care and make the neces- his public benefits. This can be cata- rectly but, instead, will go into a spe- sary accomodations for persons with au- strophic, particularly if the child has a cial needs trust for the child’s benefit. tism. severe medical condition, such as mul- tiple sclerosis or seizures, and is unable The drawback to this method is that Please identify yourself for the autism clin- to qualify for private health insurance. no one other than the Trustors of the ic when you make an appointment so we trust (the parents) can contribute to can best meet your needs. Accepting all forms of insurance including Medi-Cal and This unintended result is because cur- this special needs trust. Therefore, Medicare, HMO, PPO, Tri-Care. rently a person receiving needs-based other family members, such as grand- public benefits cannot have “resources” parents, who might like to leave an over $2,000. Therefore, if that person re- inheritance helping provide for the ceives an inheritance, he will be bumped child’s future, cannot use this vehicle. 7th ANNUAL off public benefits until the new funds AMIGO AWARDS have been exhausted -- at which time he Stand-Alone Trust will have to re-qualify for public benefits. The Autism Society of San Diego rec- The second type of third-party trust, ognizes the following individuals/busi- However, by establishing a special needs the “stand alone” trust, is set up nesses who have helped and supported families of individuals with ASD as 2010 trust, family members can make arrange- as an independent trust for the dis- Amigo Award Recipients: ments to enhance their loved one’s qual- abled child’s benefit and anyone can ity of life without affecting his “needs contribute to this trust. Therefore, * Judy and Kevin Kreitzer and the staff based” public benefits. A special needs grandparents, aunts, uncles, broth- of Chloe’s Carousel in Rancho Bernardo. trust can pay for items the individual ers, sisters and family friends can all Chloe’s is a styling salon that offers ex- would otherwise be unable to afford, contribute to this “stand alone” trust. ceptional service for children with spe- such as quality dental care, travel, en- cial needs and their families. tertainment, or a computer. Or, as some As stated above, neither of these third- parents choose to do, their residence can party trusts requires “payback” provi- * Lola Longo with Coyne & Associates be placed into the special needs trust sions or Court establishment and super- who is effective, patient, and persis- tant, knowledgeable, and skillful in her upon their death and maintained as a vision. Therefore, they are generally role as Program Supervisor. home for their child during his lifetime. less expensive to establish and maintain than other types of special needs trusts. * Lisa Guillen with Coyne & Associates This type of trust is set up by someone brings an extraordinary spirit, patience other than the disabled beneficiary, If you have a special needs child who and expertise in her activities to help which is why it is called a “third party” needs, or will need, public benefits, you her client in her role as Early Childhood trust. Most often, the trust is set up by should make this an important priority Interventionist. the parents of the disabled beneficiary in your estate planning to ensure your as a vehicle for the child’s inheritance. child’s quality of life after your death, * First Class Wax, an upscale salon in This trust does not require the “pay- while still preserving his public benefits. the Banker’s Hill section of San Diego graciously offered a “Day of Pampering” back” provision to the State for Medi- for parents of autistic children and teens Cal benefits that other types of special on January, 23, 2010. Approximately 40 needs trusts require, nor does it require Toni Taylor Buck is an estate-planning people enjoyed food and drink, the com- Court establishment or supervision. attorney with offices in Encinitas and pany of other parents, and free waxing, Since it does not contain a “payback” San Elijo Hills. If you have any ques- massage, and parafin wax treatments. provision, any funds left over after the tions about special needs trusts, please beneficiary’s death remain in the family. feel free to contact her at toni@tay- Deven McCarty and Amber Schmid, the lorbucklaw.com or (760) 942-2290. salon owners, were thrilled to offer There are two types of third-party spe- these services to a population that they cial needs trusts: believed really needed some pampering. Autism Society of San Diego Newsletterï Autism Action ï 2010 Vol. 1 7 FUNDS AVAILABLE FOR AUTISM-SPECIFIC TRAINING Eyewear for Children with Special Needs T he Stauffer Family Foundation has generously provided grant monies to the Autism Society of San Diego in order to offer scholarships for autism specific Children in San Diego with special needs conferences, training, or seminars. Per the Foundation, scholarships may be do not seem to have awarded to parents, teachers, aides, school administrators/personnel or caregivers many choices in eye- who have a role in the care and/or education of a child(ren) or adolescent(s) with wear providers within an autism spectrum disorder. our vast county. The few that do exist do To be eligible for a Stauffer Fund Scholarship you must be currently working with a not often cater to special needs and sel- child(ren) or adolescent(s) with an autism spectrum disorder and be an SDASA mem- dom accept insurance reimbursements. ber. Scholarships may cover up to $250 of the registration fee per calendar year Frames for children, especially those only and may not be used for class materials, hotel, transportation or incidentals. with special needs, seem to lack the va- riety frequently available through gen- You are encouraged to utilize this wonderful opportunity. Please submit scholar- eral optical departments. The mission ship applications at least four (4) weeks in advance in order to meet the regular of Rady Children’s Hospital’s optical de- registration deadlines (no late fees will be paid). Checks will NOT be paid directly partment is to provide families with a to individuals. The check will be made payable directly to conference/training pro- caring and understanding environment vider. Forms to apply for a Stauffer Fund Scholarship are available on the sd-autism. from which to select the latest in tech- org website. nologies for both frames and lenses. One of these new technologies in frame For further questions contact the SDASA at email@example.com. wear is the EasyTwist brand by Aspex Eyewear. This company has designed a patented, four-way hinge that al- Scholarships available for lows the temple to bend 180 degrees up, down, out and closed. The bridge Special Needs Life Quality Plans is built out of a memory metal that al- Free Webinar on Special Needs Life Coaching lows the frame to be folded lens to lens. With the combination of both memory The International Association for Life Quality (IALQ), a national leader dedicated metal technology and the intricate hinge to identifying and removing barriers to a quality life for those with developmental design, this frame is highly durable. It disabilities, announced that scholarships for Special Needs Life Quality Plans™ are comes in a variety of shapes, colors, and available to underserved families with a child with autism or other developmental sizes, which can be viewed at disability. IALQ is led by the Training, Education & Research Institute (TERI), and http://www.aspexeyewear.com/. An scholarships were made possible through a grant provided to them by the National informational video and plenty of pic- Foundation for Autism Research (NFAR). Special Needs Life Quality Plans™ provide tures are available on this site. families and caregivers a highly detailed profile and “happiness” roadmap, report- ing caregiver’s experiences, expertise, and knowledge, as well as subtle nuances Miraflex eyewear has also released a distinctive to the individual for whom the plan is designed. new frame that is literally indestruc- Also available to parents, or other interested individuals, is IALQ’s is a series of tible. It consists completely of rubber free webinars. For more information about how to apply for Special Needs Life frames and a built in strap. They are Quality Plans™, or to register for the Free Webinar, visit www.ialq.org or by calling available in various colors and sizes, 1-760-721-1706. with two basic shapes (round and rect- angle). This frame line is perfect for those patients who tend to easily break frames. To view this line, visit their Health Hero, continued from page 1 website at www.miraflexglasses.com In San Diego, Karyn has volunteered time in the autism community with sever- al organizations. Year after year, she has served on the Walk for NAAR and Au- Children’s Optical in Rady Children’s tism Speaks walk committees, Involved Exceptional Parent Day planning com- Hospital, offers a friendly and helpful mittee, and the Board of Directors of the SDASA. She is a principal investigator staff of trained Opticians and technolo- with Aubyn Stahmer on the SoCal Bridge Collaborative, which recently received gists, who provide a welcoming environ- an NIMH grant to provider early intervention to infants at risk for autism spec- ment for children with special needs. trum disorders. In addition, Karyn has actively helped military families with ASD They understand that unfamiliar facili- children find services and support, and has provided pre-school screenings for ties can cause anxiety for both children at-risk toddlers at no charge throughout the country for more than 30 years. and parents, and with a caring hand, they help select the appropriate eye- Karyn provides professional training at the state and national level to educators, wear specific to your child. therapists and others who work with children and adults with autism. She has been a speaker at the American Speech and Hearing Association National Conference for For further information, please call 858- the past three years, as well as the at California Speech and Hearing Association 309-7704 or email firstname.lastname@example.org. conferences for several years. Karyn has been teaching an early intervention course Their office is located at 3030 Chil- through Cross Country Education throughout the country since 2006, focusing on dren’s way, #109 in San Diego. parent involvement in the treatment process. Additionally, she provides super- vision to masters level Speech and Language Pathology students who work with children with autism at the Communications Clinic at San Diego State University. Based on her body of work benefiting persons with autism over many years, as well as her service to San Diego community, Karyn is a great choice for our Health Hero! 8 Autism Society of San Diego Newsletterï Autism Action ï 2010, Vol. 1 INNOVATIVE THERAPY FOR KIDS The Autism Society of San Diego, awarded Innovative Therapy 4-Kids, Inc. the Amigo Award in May of 2009. Earliest Intervention for Young Children with Risk for Autism: This award goes to What Community Providers and Families Value the person or clinic that shows outstanding achievement in Aubyn Stahmer, Karyn Searcy, Laura Cervantes & Ember Lee working with families of children with Child and Adolescent Services Research Center autism in our community. Rady Children’s Hospital 3020 Children's Way MC 5033 Founded in 2000 by Laura Driessen Walls, San Diego, CA 92123-4282 M.S. CCC-SLP and Amy Duffner Johnson, PT, IT4K’s, Inc. is located in Carlsbad, Increasing numbers of children with communication and relationship disorders, in- California and is exclusively dedicated cluding autism, are identified at early ages and represent a significant public health to providing exceptional therapeutic challenge. Few studies of intervention programs exist, however, that address so- services to all children and their fami- cial-communicative issues in infants and toddlers. Additionally, dissemination of lies. Their approach in treating each in- existing programs to community settings has been limited. dividual is based on symptoms and the whole child, rather than only a diagnosis In an effort to meet this need, more than 15 community members, including par- or label. This approach has taught nu- ents, providers, researchers and funding agency representative, have met monthly merous children how to reach skill levels since 2007. They reviewed many available programs designed for older toddlers to never thought possible. identify an approach that could be adapted for younger children and their families and formed the SoCal BRIDGE Collaborative. SDASA applauds IT4K for their phenom- enal work with our children and their In 2009, the BRIDGE Collaborative received funding from the National Institute for families. www.it4k.com Mental Health (NIMH) to select an evidence-based intervention to implement in the community, and examine the perspectives of parents and intervention providers regarding the use of evidence-based, parent-implemented interventions for 12-24 month old children at risk for disorders of relating and communicating, such as NFAR-Supported Research Project autism. After reviewing more than 20 programs, they chose three to present to the Seeking Recruits for Oral and community for feedback. Written Communication in the Workplace In October and December 2009, 10 early intervention providers and 10 parents of children diagnosed with autism in Southern California participated in four focus Crimson Speech Language Treatment group meetings to discuss the efficacy of early intervention services for children and Research Center is still recruiting between 12 and 24 months, issues they consider when choosing specific techniques, participants with autism and related obstacles to providing/obtaining early intervention, and philosophies of what an disorders for their research project, ideal early intervention program would look like. After attending presentations funded jointly with National Foundation from the three selected intervention developers, participants met to discuss the for Autism Research (NFAR). This pro- strengths and weaknesses of each and how they measured up to the factors identi- gram is designed to build oral & written fied as important for early intervention. communication skills in the workplace. Participants must be within the ages of Analysis of the focus groups shows a great deal of overlap between parent and pro- 15-23 and want to develop strong voca- vider perspectives. Both groups believe it is important for intervention to start as tional skills. early as possible, be individualized for the child/family, but also be comprehensive. Both stated that interventions must be evidence-based; however they were more It is not necessary to be currently em- influenced by the intervention presenters’ method of presenting evidence than the ployed, and there is no cost for partici- scientific strength of the evidence given. Parents and providers did have some areas pation in the project. Groups will meet where their focus differed. Parents wanted more flexibility in choosing their pro- once a week for two hours for approxi- vider, wanted opportunities to include siblings in the intervention, and wanted more mately 16 weeks. Recruitment is open support in understanding and navigating potential diagnoses and services. Provid- now through February 19, 2010. ers wanted comprehensive training, on-going supervision, and use of coaching and Please contact Marilea Brock, M.S. CCC- video feedback techniques as part of training. Additionally, there were many areas slp at 858 695 9415 or marilea.brock@ of congruence between providers, parents and research findings. Implications for gmail.com for further information. community collaborative research and implementation of evidence-based practice were discussed and integrated with the views of the BRIDGE Collaborative members, and a consensus based process was used to select an intervention for further study. Project Impact, an evidence-based, parent implemented intervention that combines both behavioral and developmental techniques, was selected as the intervention to pilot test as part of the NIMH study. Later this year, two therapists from five dif- ferent agencies will be trained in this treatment, and 10 children and their parents will participate in a 12 week pilot project. Results will be used to apply for further funding for a large community trial of the program. For further information, go to www.bridgecollaborative.com or call Karyn Searcy at 858 695 9415. 9 Autism Society of San Diego Newsletterï Autism Action ï 2010, Vol. 1 fOr yOur information FALL OPENINGS FOR HEAD START PROGRAMS Neighborhood House Association Head Start and Early AblePathways Head Start provide comprehensive, family focused child de- Ability-Focused Respite & Support velopment and social services to children from birth up to kindergarten age (5 years old). Children qualify for early Life Skills Development Program childhood education at no cost to the family based on age Serves North County San Diego T and income eligibility with family circumstances taken under his program serves the needs of children with ASD who can consideration. Children with disabilities are encouraged to benefit from one-on-one training in areas relating to activi- apply. For information on openings, phone San Diego Head- ties of daily and home living, social development, and socializa- Start Program hotline: 888-873-5145 tion. For more information call 760-230-5251. CHECK OUT THE KICK BACK CLUB SIBSHOP FACILITATOR TRAINING Saturday, May 15, & Sunday, May 16, 2010 A popular program for teens and young adults, the Kick Back Club (KBC) is designed to foster social skills, increase leisure opportunities, and create friendships in a social and 9am to 4pm This workshop is open to family members or profession- als who want to start a Sibshop for brothers and sisters of age-appropriate environment, while enhancing developmen- people with special needs. tal needs for teens ages 13-19 and young adults (ages 20-30). San Diego Unified School District Ballard Parent Center in Old Town The Kick Back Club participants get together to hang out, play Questions: 619-725-7327 games, have dinner, listen to music, and plan future events such as dinner & movies, dances, excursions and outings to a variety of fun places. Get all the info at 619-525-8247. CAMP ASPIRE 2010 A Summer Day Camp For Children With Developmental Disabilities, ages 6-17. Summer activities include trips to the San Diego Zoo, Boom- ers, Chuck E. Cheese, movie day and Carnival Day. For information, contact CARES (Center for Autism Research, Evaluation & Services) at 858-444-8823 ext. 1270 C amp I CAN, the only summer camp in the county specifi- cally designed for children and teens with autism is set to get underway this summer at these two locations - Toby Wells Contact Joey Yusunas YMCA in Kearny Mesa and Palomar Family YMCA in Escondido. 858-869-7895 email@example.com Children participating in camp will have the opportunity to go Summer Fun Days: Every Saturday, June 12-August 14, 2-3pm on daily field trips to Boomers, Knott’s Soak City, Legoland, at Cliffridge Fields: $50 Chuck E. Cheese, Belmont Park and more. Swimming at the YMCA pool will be available throughout the week. Summer Camp, M-F, July 26-30 1-2pm at Allen Field: $35 Most campers are assigned a 1:1 camp counselor as needed, TOPSoccer Day, Sunday, August 29, 2-4pm at Allen Field: FREE although camper to staff ratio during high functioning week is 3:2. advertisement Membership in the San Diego County Chapter of the ASA is not required for enrollment. Camp fees are TBD per week for C H I L D C U S TO DY & VI S I TAT I O N I S S U E S SDASA members and non-members, and financial assistance is available through the YMCA. Registration forms are available now for downloading at the MARK L. SCHLISSEL, M.S.W. Autism Society of San Diego website, www.sd-autism.org. LICENSED CLINICAL SOCIAL WORKER Camp registration will take place via mail, fax or in person. Camp I CAN is very popular and fills up quickly. You must reg- ister your child/teen at the location that they will attend 3914 THIRD AVENUE camp; either Toby Wells or Palomar. SAN DIEGO, CA 92103 BY APPOINTMENT FAX: (619) 291-4426 (619) 291-4808 We are looking forward to our 9th year of camp in 2010! 10 Autism Society of San Diego Newsletterï Autism Action ï 2010 Vol. 1 fOr yOur information Join or Renew Membership INCLUSION RECREATIONAL ACTIVITIES through Autism Society website FOR YOUTH, YOUNG ADULTS AND ADULTS! City of San DIego Park and Recreation Department THERAPEUTIC RECREATION SERVICES Now membership renewals are available on both the San Di- Don’t miss out on the fun! ego Chapter website, www.sd-autism.org or the National site, 619.525.8247 www.autism-society.org. This new alignment ensures that http://www.sandiego.gov/park-and-recreation/pdf/trscalendar.pdf when you renew, you will be an Autism Society member at the national level and locally with the Autism Society of San Diego. Joining or renewing is a way to support families living with autism in San Diego and across the country. You will receive the quarterly magazine, the Autism Ad- vocate, a discount at the Autism Society online store, the PARTICIPATE IN A LOCAL RESEARCH STUDY monthly ASA-Net national newsletter in addition to all the To view local studies: please go to: benefits you are used to as a member of San Diego Chapter http:// www.sd-autism.org/researchStudies.html such as our newsletter Autism Action, our monthly e-news of our local activities, and discounts on many events. Go to www.autism-society.org, then click on JOIN. AuTIsM CONfereNCe: MAy 21-23 in San Diego SPONSOR A POOL PARTY! The miller method Applied Behavior Analysis (ABA) Your company can sponsor a monthly pool and pizza party for $400 and have exclusive rights to the following recognition: Contrasting approaches for the youngest and/or most challenged children with autism spectrum disorder • Distribution of promotional material at the event and all more info, videos, and register at Autism Society events for the designated month. www.millerinsandiego.org • Recognition in our monthly e-news Nutrition and feeding Interventions • Sponsor appreciation in the Autism Action Newsletter for Autism, Asperger’s and AdHd A one day seminar. learn how to help treat nutrition and • Co-sponsorships are available at $250 per month feeding problems common in children diagnosed with autism, Asperger’s, ADHD and related disorders. Join the Autism Society SAN DIeGo - may 12, 2010 www.CrossCountryeducation.com Board of Directors Are you interested in getting involved and giving back? Do you have ideas & suggestions to improve the lives of people affected by autism in San Diego County AND the en- ergy and enthusiasm to follow up? T he National Conference of the Autism Society is the only conference that addresses the range of issues, including Do you want to be part of a dynamic group of like-minded early intervention, education, people working together to make things happen? employment, behavior, commu- nication, social skills, biomedi- IF YOU ANSWERED YES TO ONE OR MORE OF THESE cal interventions and others, QUESTIONS . . .Consider joining the SDASA Board of Direc- across the entire lifespan. tors. Nominations being accepted through May 2010: 858 715 0678 firstname.lastname@example.org La Jolla Learning Foundation presents PARENT RESOURCE SEMINAR DONATE YOUR CAR Saturday, May 15, 2010 from 2:30pm to 4:30pm 8880 Rio San Diego Drive Suite 250, San Diego, 92108 Charitable Auto Resources, Inc. (CARS™) accepts car dona- Topics: tions for Autism Society of San Diego. To donate your car, Diagnosis, intervention, ADD/ADHD, and auditory processing; truck, RV, boat, motorcycle, or other vehicle to our chapter, the IEP process: eligibility, reimbursements, and placement. please call 877-537-5277 or go to the link on our website. A Info: 619 607 0950 or 858 663 5778, http://www.LJLF.org representative will help you with your donation. Autism Society of San Diego Newsletterï Autism Action ï 2010, Vol. 1 11 BOARD OF DIRECTORS Directors-at-Large 2009-2010 SHERRY SOULE CHERRI CARY, PSY.D. SANDY SHAW, PH.D. President TAMMY ANDERSON LEE CATHY SCHIEFFER VICTORIA IKERD SCHREITER Treasurer DEEDEE SWOPES, MS. SILVIA TOWNSEND Secretary SHIRLEY FETT President-Elect Directors WHITNEY ARNOLD JOHN BAER APRIL IS ED BAISLEY AUTISM AWARENESS MONTH! IAN BALESKY Support the programs that enhance JANINE BOLEDA the lives of individuals with autism TONI BUCK RALPH CARRASQUILLO TILA COTA GREG FLETCHER MARK JONES MARA PARKER STACI STEVENSON Website: www.sd-autism.org Email: email@example.com (858) 715-0678 San Diego, CA 92142-0908 PO Box 420908 Autism Society of San Diego Permit No. 455 San Diego, CA PAID US Postage Non Profit Org.