Educational Resources: Palliative Care in Cancer Mary V. Callaway, Director Kathleen M. Foley, M.D., Medical Director Palliative Care Program OSI Network Public Health Program Books World Health Organization http://www.who.int/bookorders/anglais/detart1.jsp?sesslan=1&codlan=1&codcol=15&codcch=459 Books Palliative Care Textbooks Books UNIPAC Book Series: Hospice/Palliative Care Training for Physicians, A Self Study Program The tools you need to enhance your knowledge, improve your skills. UNIPACs can be ordered individually or as a complete set. 1. The Hospice/Palliative Medicine Approach to End of Life Care 2. Alleviating Psychological and Spiritual Pain in the Terminally Ill 3. Assessment and Treatment of Pain in the Terminally Ill 4. Management of Selected Non-pain Symptoms in the Terminally Ill 5. Caring for the Terminally Ill - Communication and the Physician's Role on the Interdisciplinary Team 6. Ethical and Legal Decision Making When Caring for the Terminally Ill 7. The Hospice/Palliative Medicine Approach to Caring for Patients with HIV/AIDS 8. The Hospice/Palliative Medicine Approach to Caring for Pediatric Patients http://www.aahpm.org/bookstore/index.html#unipac Books Trainer Manuals Education for Physicians on End-of-Life Care (EPEC) Designed by experts to educate physicians on the essential clinical competencies in end of life care. Combines didactic sessions, videotape presentations, interactive discussions, and practical exercises. http://www.epec.net Trainer Manuals Trainer Manuals Palliative Care Journals American Journal of Hospice and Journal of Hospice and Palliative Nursing Palliative Medicine Journal of Neuropathic Pain and British Medical Journal: Palliative Symptom Palliation Medicine Journal of Pain & Palliative Care Cancer Pain Release Pharmacotherapy European Journal of Pain Journal of Palliative Care European Journal of Cancer Care Journal of Palliative Medicine European Journal of Palliative Care Journal of Psychosocial Oncology Innovations in End-of-Life Care Journal of Social Work in End of Life and International Journal of Palliative Palliative Care Nursing Journal of Social Work in Long-Term The Internet Journal of Pain, Care Symptom Control and Palliative Loss, Grief & Care Care Pain Journal of Cancer Pain and Pain Reviews Symptom Palliation Palliative and Supportive Care Journal of Clinical Oncology Palliative Medicine Journal of Pain and Symptom Progress in Palliative Care Management Supportive Care in Cancer Free Email Newsletters E-Newsletters Hospice Information Bulletin: email@example.com CEE FSU Palliative Care Monthly E-Newsletter firstname.lastname@example.org EAPC-EAST Sylvia.Sauter@stockholmssjukhem.se ECEPT--Eastern and Central Europe Palliative Care Task Force email@example.com IAHPCO--International Association Hospice Palliative Care http://www.hospicecare.com/Newsletters/june2003/index.html Distance Learning Programs Distance Learning Programs University of Alberta, Edmonton, Canada, http://www.palliative.org/pallcareednet/ CancerNursing.org, Introduction to Palliative Care Nursing Course, free on-line course, www.cancernursing.org Master of Science in Palliative Care, King’s College London, www.kcl.ac.uk/palliative Distance Learning Programs Certificates in Palliative Care Certificate in Palliative Care, University of Wales, www.palliumwales.co.uk Certificate in Palliative Care, American Board of Hospice and Palliative Medicine, www.abhpm.org Distance Learning Programs Diplomas in Palliative Care MSc in Palliative Medicine www.palliumwales.co.uk/asp/dpm.asp Univ of Gloucestershire, email: firstname.lastname@example.org Sheffield Hallam University, www2.shu.ac.uk Professional Membership Organization ESMO Working Groups dedicated to developing the role of supportive and palliative care both within medical oncology and in cooperation with other healthcare professionals. One of their important goals is to establish ‘Accredited Centers’ for Palliative Care throughout Europe and offer short-term Fellowships for medical oncologists to receive proper training in this field. Professional Membership Organizations Organization www.cancer.org Professional Membership Organizations Organizations Professional Membership Organizations Professional Membership Organizations Organization http://www.worldoncology.net/palliative__care.htm Professional Membership Organization http://www.hpna.org/ Professional Membership Organizations www.hospicecare.com Professional Membership Organizations Resource Training Centers CROATIA email@example.com HUNGARY firstname.lastname@example.org HUNGARY email@example.com MONGOLIA firstname.lastname@example.org POLAND email@example.com POLAND firstname.lastname@example.org ROMANIA email@example.com RUSSIA firstname.lastname@example.org SLOVENIA Barbara.Ravnik@mail.ljudmila.org Organizations http://hospice.ong.ro/e_index.htm Organizations http://free.med.pl/ecept/poztraining_eng.htm Organizations University University University http://www.whocancerpain.wisc.edu/eng/13_1/center.html University University http://depts.washington.edu/pallcare/ University University Pediatric Pain http://www.dal.ca/~pedpain/index.html University Pediatric Palliative Care www.nursing.uiowa.edu/sites/PedsPain/index1.htm Organization Organiza University Organization Organization Organization http://www.capc.org/Documents/document_142135856.html Organization http://188.8.131.52/educate/content.html Organization Organization http://stoppain.org/ Organization http://lastacts.org/ Organization http://palliativecarenursing.net/ Organization Organization http://www.chionline.org/ Website Resources Beth Israel Medical Center-Pain Medicine & Palliative Care This website provides information on the latest innovations in pain and palliative care, education, research, and clinical trials, as well as hospice and end of life care. Cancer-Pain.org This website, established by the Association of Cancer Online Resources (ACOR), helps patients and caregivers learn more about pain, how to deal with it, and possible treatments. Finding Our Way: Living with Dying in America — The Online Course A free, Web-based course, that is part of the Finding Our Way national public education initiative focused on bringing practical information on end-of-life issues to the U.S. public. National Hospice and Palliative Care Organization NHPCO is a membership organization that focuses on advocacy work, educational programming, providing technical informational resources, conducting research, and monitoring Congressional and regulatory activities pertaining to hospice and palliative care. Website Resources In the Mix: Dealing with Death An award-winning PBS series, In the Mix talks to teens about how young people grapple with death. Primer on Critical Care for Patients and Families A series of information sheets to provide information about critical care and end-of-life issues for the general public. This is the first project of a new initiative of the Critical Care Assembly of the American Thoracic Society. All Kids Grieve All Kids Grieve provides access to individuals, organizations, materials, and ideas that facilitate the possibility of growing through loss and grief for kids and the adults who care for them. Caring Connections A project of the University of Utah, "Caring Connections: Hope and Comfort in Grief Program" has developed a variety of community and hospital programs to meet the grief and bereavement needs of people experiencing loss and death. Website Resources Kidsaid A safe place for kids to share and to help each other deal with grief about any of their losses. It's a place to share and deal with feelings, to show artwork and stories, to talk about pets, and to meet with one's peers. Recover: Support for Survivors of Sudden and Traumatic Deaths Recover, a collaborative program of the William Wendt Center for Loss and Healing and the District of Columbia Office of the Chief Medical Examiner (OCME), places experienced, professional grief counselors in the OCME to guide survivors of sudden deaths through the process of grief. AACN End-of-Life Nursing Education Consortium Project The ELNEC project, a partnership of the American Association of Colleges of Nursing and the Los Angeles based City of Hope Cancer Center, is a comprehensive, national education program to improve end-of-life care by nurses. Partnership for the Caring A national, nonprofit organization devoted to raising consumer expectations and increasing the demand for excellent care at the end of life. Website Resources Supportive Care of Dying A coalition of like-minded Catholic health care providers and service organizations dedicated to promoting cultural change that embraces supportive care, compassionate relief of suffering and pain, and symptom management for helping people living with life-threatening illness. The American Hospice Foundation The AHF creates tools to help hospices reach out to their communities; supports a broad range of community bereavement programs; promotes hospice benefits in health insurance and managed care; and fosters research on consumer needs. The Cochrane Pain, Palliative Care and Supportive Care Collaborative Review Group The work of the PaPaS includes the preparation, maintenance, and dissemination of systemic reviews of randomized controlled trials of interventions concerned with pain and palliative care. The Warsaw Hospice for Children A non-governmental organization that was the first hospice for children in Poland Website Resources International Observatory on End of Life Care This site presents public health and policy data relating to hospice and palliative care services internationally. The site also includes information drawn from the social and cultural analysis of end of life issues, including ethnographic, historical and ethical perspectives. You will find information here country by country, in ways which facilitate cross-national and regional comparison and analysis. The Observatory works in partnership with key organisations and individuals, nationally and internationally, to foster a sense of inclusion and participation in the work of the Observatory. The goal is to provide evidence and ideas to support improvements in end of life care around the world. Website Resources American Academy of Hospice and Palliative Medicine AAHPM is an organization for physicians who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families. American Alliance of Cancer Pain Initiatives The alliance's initiatives are now in various stages of development in all 50 U.S. states. They all serve as a significant force for change in the way cancer pain is managed in the U.S. health care system. National Hospice and Palliative Care Organization A membership organization that does advocacy work and educational programming, provides technical informational resources, conducts research, and monitors congressional and regulatory activities pertaining to hospice and palliative care. Palliative Medicine Journal An international journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. Website Resources Approaching Death: Improving Care at the End of Life This report, from a committee of the Institute of Medicine, calls for changes to improve end-of-life care, better training of health care professionals, reform of outdated laws that inhibit the use of pain- relieving drugs, and testing of new payment options. Brave Kids Brave Kids is an online resource for children with chronic or life threatening illnesses and disabilities. Cancer-Pain.org This website, built and maintained by the Association of Cancer Online Resources (ACOR), aims to help patients and caregivers learn more about pain, how to deal with it, and possible treatments. The website includes a caregiver's guide and a professionals' corner in addition to up-to-date information on understanding cancer pain and cancer pain treatments. Website Resources Dying Well This website provides resources for people facing "life-limiting" illnesses, their families, and their professional caregivers. Eastern and Central Europe Palliative Task Force ECEPT is an international association that brings together palliative care professionals from Eastern and Central Europe. European Association for Palliative Care EAPC is a federation of national and regional societies of palliative care that represents more than 25,000 individuals across Europe and elsewhere. European Journal of Palliative Care EJPC is the official journal of the European Association for Palliative Care. It provides a medium for a multidisciplinary discourse between professionals in palliative care around the world. Website Resources International Association for Hospice and Palliative Care The association seeks to increase the availability and access to high quality hospice and palliative care for patients and families throughout the world. International Center for the Control of Pain in Children and Adults The center offers resources for pediatric and adult pain care. Last Acts Last Acts is a call-to-action campaign dedicated to improving end-of-life care through the sharing of ideas and solutions by professional care givers, institutions, and individuals. Website Resources American Academy of Hospice and Palliative Medicine AAHPM is an organization for physicians who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families. International Association for Hospice and Palliative Care The association focuses on increasing the availability and access to high quality hospice and palliative care for patients and families throughout the world. International Association for the Study of Pain IASP is open to scientists, physicians, dentists, psychologists, nurses, physical therapists, and other health professionals actively engaged in pain research and to those who have an interest in the treatment of pain. Association for Death Education and Counseling A multidisciplinary professional organization dedicated to promoting excellence in death education, bereavement counseling, and care of the dying Website Resources American Society of Clinical Oncology The society's website provides articles about end of life care, palliative medicine and pain control, as well as information for people living with cancer. Americans for Better Care of the Dying ABCD is a non-profit coalition of citizens and professionals united to ensure that public policy addresses the needs of individuals and families coping with a fatal illness. Association of Oncology Social Work The association focuses on increasing awareness about the social, emotional, educational, and spiritual needs of cancer patients. Education for Physicians on End-of-Life Care EPEC is designed to educate all physicians on the essential clinical competencies required to provide quality end-of-life care. Website Resources End of Life Physician Education Resource Center EPERC assists physician educators and others in locating high-quality, peer-reviewed training materials. Its website supports the identification and dissemination of information on end-of-life training materials, publications, conferences, and other opportunities. End-of-Life Nursing Education Consortium Project The project is a comprehensive, national education program to improve end-of-life care by nurses. The primary goals are to develop a core of expert nursing educators and to coordinate national nursing education efforts in end-of-life care. Innovations in End-of-Life Care Innovations is an international peer-reviewed journal and online forum highlighting promising practices that improve end-of-life care. The VA Faculty Leaders Project for Improved Care at the End of Life The project's website contains information on the four aims of the VA Faculty Leaders Project for Improved Care at the End of Life as well as links to related sites. Website Resources UW Pain and Policy Studies Group The group studies public policy in relation to pain management, identifying and addressing the barriers to medical use of opioid analgesics. Family Caregiver Alliance The alliance provides information and resources for families, caregivers, professionals, policy makers, and the media. It focuses on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and other disorders and long-term care concerns. National Family Caregivers Association NFCA is a grassroots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged, or disabled loved ones. Pediatric Pain Research Lab Professional and research resources for health care workers—including a sourcebook of protocols, policies, and pamphlets and self help resources for children in pain and their parents.
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