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Winter 2008 - ntario Palliative Care Association

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					                                       ntario Palliative Care Association                  The Flame
                                                                                                                             AGM & Conference 2008 issue
                                                                PRESIDENT’S REPORT

                                   O
                                          ver the last number of years, hospice                embarking upon is a first step, a very important step, for both of our organizations
                                          palliative care in Ontario has made some             and for hospice palliative care in Ontario. It is symbolic of the coming together
                                          significant advances, many of those                  of ideas and the recognition that hospice palliative care is indeed one movement.
                                  the result of tremendous work on the part of                 This conference will be able to collectively represent that one movement, by
                                  the Hospice Association of Ontario, others the               taking the best of each of our respective conferences and putting them into one
                                  result of advocacy from the Ontario Palliative Care          that brings us together as a community. OPCA is acutely aware that with change
                                  Association. OPCA’s work has been mostly at                  can also come anxiety. After all, people who come to either of our conferences
                                  the policy level, both provincially and federally.           could easily be worried that our efforts will fall short. But, we commit to you this:
                                  In spite of the successes of each organization,              that we will do our very best to do justice to each of our respective conferences and
                                  perhaps it is worth pondering whether or not                 make something better than either of them could be on their own.
                                  we as a hospice palliative care community have               However, I would like to think that it is just a first step. What are our next steps?
                                  accomplished as much as we could or should                   In fact, perhaps it has already happened. The Hospice Association of Ontario
                                  have.                                                        graciously extended an invitation to OPCA for me to sit on their Board, which I
                                  I am not one to look back and critically examine             was very pleased to accept. Deborah Lavender, HAO Executive Director, several
  Chris Sherwood, President        what has transpired, just for the sake of doing so.         months ago was invited to the OPCA Board and has been a tremendous asset since
                                   But, where we are now is a function of where we             that time. These cross appointments create opportunities for each organization to
have been and therefore it is reasonable to conclude that any challenges we have               know more about the other and to provide input on how they can work together.
had with advancing a hospice palliative care agenda forward, will continue to be
                                                                                               But, even with these positive developments, what do we need to do next? We must
challenged unless we do something differently. Keep doing what we’re doing and
                                                                                               continue to give serious thought to what it is we want for hospice palliative care
we’ll keep getting what we’ve got.
                                                                                               in Ontario. What is our collective vision and what are we do willing to do to
Some might say, “We’ve actually been able to do a lot. Shouldn’t we be happy                   accomplish it? What sacrifices are we willing to make? For if we are to be taken
with that? After all, among other things, look at all the new residential hospices             seriously, we can no longer be a fractured community with differing ideas.
around the province, all of which receive funding, at least partially. We also have            Together, we can accomplish great things, but divided, we are ineffective and
End-Of-Life care or Hospice Palliative Care Networks that also receive partial                 conquered. Let’s be excited about the 2009 conference, but let’s not sit back on
funding. Isn’t that decent?” The answer to these questions is unequivocally, no…               our laurels and think that it is even close to being enough. Let us think hard
or at least, not decent enough. Many people who are living with progressive life-              about what to our next steps ought to be and let us not be confined by the way
limiting illness continue to not receive the care they deserve. Often no one talks             things have been. For a vision is not something we resign ourselves to thinking
to them about the fact that their illness will limit their life until they are close to,       we can have, but instead it is thinking about what it is we really really want and
if not imminently, dying, if at all. How do people plan their lives, if health-care            going for it.
providers are the encumbrance to patients and families receiving information
that they would want to have? We have a system that in all sectors seems to                    In closing, I would like to thank the following individuals and organizations for
perpetuate the labelling of patients as “palliative”, but often patients die before            their contributions, past and future, to hospice palliative care:
ever getting the label. For those people, what services and/or care could they have            • The Humber Institute of Technology and Advanced Learning, and
received that they were denied?                                                                  specifically Teresa Sottile, Pamela Richardson and Carolynne Fletcher.
These are just a couple of the big hospice palliative care issues that exist in                  Humber has been remarkably understanding of the need for us to take a new
Ontario, issues that need advocacy, if they are to be addressed. But, Ontario is                 direction with a provincial hospice palliative care conference and they are to
the only province with two provincial associations, neither of which is able to                  be commended for their grace and elegance in this process. They have gone far
advocate as effectively as they could if we were one cohesive community. This                    beyond any hopes or expectations we might have had.
begs the question, “Why do we have two? What are the implications of being two                 • The Hospice Association of Ontario, and specifically Deborah Lavender
and what could occur if we were one?” We are effectively like divorced parents,                  and Denise Larocque for their hard work in forging with us the
living off one income, in two residences. Our revenue comes from a relatively                    agreement for the 2009 conference. I cannot say enough good things about
poor constituency and we have been paying out this already divided amount to                     them both and the rest of the HAO staff. It has been tremendously rewarding
places that are not necessarily as invested in hospice palliative care as we are.                to mark this new milestone with HAO.
What are the ways in which we can become the cohesive community that the
                                                                                               • Members of the Conference Planning Committee for past Provincial
people of Ontario need us to be? How do we rally around a common vision, from
                                                                                                 Conferences on Palliative and End-Of-Life Care, and specifically Dr.
which collective advocacy can occur on behalf of a constituency that has no voice
                                                                                                 Brian Kerley, who was Chair of the committee this last year. This
– our health-care system’s most vulnerable population, people who are living with
                                                                                                 committee has given much over the years and on behalf of OPCA, I would like
progressive life-limiting illness? Hospice palliative care, as a movement, is, or
                                                                                                 to thank each person who has participated on this committee for their time
should be one movement.
                                                                                                 and dedication.
But, certain factions within hospice palliative care have been concerned about
being overtaken by others. However, these concerns, while not necessarily without              • And lastly, the Planning Committee for the Hospice Association of
merit, need not be present, if we all believe in and put into practice the Canadian              Ontario Conference. I thank you for your contribution to hospice
Hospice Palliative Care Association document, A Model to Guide Hospice                           palliative care through your past efforts on the HAO conference and for your
Palliative Care, Based on National Principles and Norms of Practice. After all,                  willingness to embark in a new direction.
this document makes it quite clear: Hospice palliative care is not physician-                  So, I look forward to seeing you all in Toronto from April 19th to 21st at what
based; it is not nursing-based; it is not volunteer-based; it is not just about                will hopefully be the first of many annual provincial hospice palliative care
residential hospices, or consult teams, or palliative care units. Hospice palliative           conferences.
care is “most effectively delivered by an interdisciplinary team” and there is room            Sincerely,
for everyone.
The relationship between the Hospice Association of Ontario and OPCA has
not always been pretty, but it is a beautiful thing right now and we are working
hard to ensure that it remains that way. The 2009 joint conference that we are                                                                                     Chris Sherwood


Ontario Palliative Care Newsletter
                                                                                           1                                                                  WINTER 2008
                                                   ANNUAL GENERAL MEETING
                                                                                       ensuring “Quality end-of-life care for all Ontarians”. Chris
                                                                                       also expressed his appreciation to the members of the Board
                                                                                       of Directors, especially those stepping down this year—
                                                                                       Vickie Lejambe, Sharon Preston, Diane Reid, and Gail Ure—
                                                                                       and to Barry Ashpole for his expertise and advice in the area
                                                                                       of communications.
                                                                                       Gail Ure, Treasurer, shared her love of numbers with us when
                                                                                       she reported the financial status for 2007 as reviewed by Allan
                                                                                       H. Koroll Chartered Accountant.
                                                                                       Karen Fisher, Membership Chair, reported on a very
                                                                                       successful year in terms of membership with a 25%
                                                                                       growth over the previous year. Karen also reported on our
                                                                                       efforts to improve communication with our members via a
                                                                                       survey to identify the most important end-of-life care issues in
   Chris Sherwood welcomes members and guests to the 2008 Annual General Meeting
                                                                                       Ontario. The results of the survey were published in our
                                                                                       Position Statement “Ontario is a good place to live…but, is it

T
      he Annual General Meeting of the Ontario Palliative                              a good place to die?” Karen expressed her appreciation for the
      Care Association was held at the Renaissance Toronto                             hard work, dedication, and commitment to OPCA received
      Airport Hotel and Conference Centre on April 14, 2008.                           from her fellow Membership Committee members, Marg
Chris Sherwood, OPCA President, welcomed members and                                   Poling and Barry Ashpole.
guests. Chris asked the attendees to issue a warm welcome to
our special guest, Deborah Lavender, Executive Director of                             Marg Poling, Nominating Committee Chair, submitted a slate
the Hospice Association of Ontario.                                                    of candidates and conducted the election of officers to the
                                                                                       Board of Directors.
Chris reported on the many changes impacting hospice
palliative care in Ontario over the past year and OPCA’s
success in helping to develop, implement, and encourage                                        The Annual Report is available online at
those changes. He stressed the importance of the partnerships
we have with the Humber College Institute of Technology                                             www.ontariopalliativecare.org
and Advanced Learning, the Hospice Association of                                                or you can contact the OPCA office
Ontario, and the Provincial End-of-Life Care Network in                                                  for a printed copy.


                                     DOROTHy LEy AwARD Of ExCELLENCE
2007 Recipient – S. Lawrence Librach, MD, CCfP, fCfP                                   Palliative Care; Professor in the University of Toronto’s
                                                                                       Department of Family and Community Medicine; W. Gifford-


                                          M
                                             arie        Palmer                        Jones Professor Pain Control & Palliative Care; and President
                                             announced the 2007                        of the Canadian Hospice Palliative Care Association.
                                             recipient of the
                                   Dorothy Ley Award of                                Larry expressed his honour and his pleasure at being selected
                                   Excellence and posed the                            by his peers to receive this award and thanked all those
                                   question, “how does one begin                       that had helped him develop his knowledge, expanded his
                                   to summarize Larry Librach’s                        understanding, and encouraged his commitment to the
                                   contributions to hospice                            support of the dying. He thanked his wife, Faye, and family
                                   palliative care in Ontario;                         for their support, stating “no one should consider the practice
     Larry Librach, Chris Sherwood                                                     of palliative medicine without the active support,
                                   in Canada; internationally;
                                   and, to many of us in this                          encouragement, and sympathetic understanding of their
room, personally?” Dr. Librach has dedicated himself to                                family—it would be impossible!”
improving end-of-life care in all its varied aspects—direct
service to patients and families, the development of hospice                                  Past Recipients of the Dorothy Ley Award of
palliative care programs, the development and implementa-                                        Excellence in Hospice Palliative Care
tion of education programs, research; and advocacy. He serves                                 Mary Vachon – 1996        John Flannery – 2002
as a role-model and an inspiration to his patients and their                                  Reena McDermott – 1997    Deborah Dudgeon – 2003
loved ones, his colleagues, and his students. As a co-founder                                 Shari Douglas – 1998      Jean Echlin – 2004
of OPCA, Larry is one of Ontario’s hospice palliative care                                    Frank Ferris – 1999       Maryse Bouvette – 2005
pioneers and innovators and his contributions continue to                                     Linda Bowring – 2000      Charmaine Jones – 2006
keep our ‘strong voice’ heard throughout the province. Larry is                               Ivan Stewart – 2001
currently the Director of The Temmy Latner Centre for


Ontario Palliative Care Newsletter
                                                                                   2                                                  WINTER 2008
                                          OPCA INTEREST GROUPS REPORT 2008
Once again, the interest group networking session and luncheon was well attended and received. We had a slightly different venue with breakout rooms for the
different groups and it was generally seen as a positive change. The time did seem to be a little shorter for discussion this year with the change in having to get
lunch and bring it into the room.
There were comments about having perhaps more focused questions/topics and perhaps emailing these out prior to the conference to those enrolled in each
particular group.
There were smaller numbers this year than last and this necessitated grouping some together. It was thought that knowing the grouping beforehand might
facilitate topic generation and choice of which group to attend. Next year there will be two new groups; Long-term Care and Education/Research.
A big thank you to my Consultant Colleagues for their help in facilitating groups and to the organizing committee, Sharon Allen, Elaine Klym, and the ever
efficient Ellen Power for their hard work as well. We’re already looking forward to next year!!
The following is a recap of the issues raised in the various groups:
Volunteers:
  1. Recognizing the value of a volunteer in palliative care – education for professionals
  2. More training and guidelines for palliative volunteers.
Rehab/Complementary Therapy due to small numbers joined in with the Psychosocial/Spiritual:
  1. Knowledge about expressions of grief and responses/coping with this and accommodating responses; how to deal with expressions of mourning at death;
     time limits in institutional settings or alternate place as it impacts on others.
  2. Sexuality and palliative care.
Pediatric:
  1. Enhancement of care of patients needing palliative care in other settings, i.e. medical units in hospitals, need strategies/standards for palliative consults.
  2. Education of other health care providers re: introducing Palliative Care.
Physicians:
  1. AFP’s; getting fewer FTE’s than requested; how to distribute? – it doesn’t make sense for all communities – relevance in context of new fee codes – call
     groups - billing caps outside of AFP.
  2. Establishment of residential hospices – government funding – transparency of the process. Establishment of outpatient palliative care clinics.
  3. Team Building: collaboration with Family Practitioners in consultative role – organization of on-call (clinic nurse vs APN vs MD as 1st call in community
     – after hours) – OCFP developing mentorship model based on the Ontario Collaborative Mental Health Network – mentorship and peer education,
     including on-call mentors. – central vs geographic registry of palliative patients (in model of no FP, DM)
End-of-Life Care Networks:
  1. Communications – standardized approach to information technology to help standardize info transfers, communication so that systems can talk to each
     other. [good examples are PPS (palliative performance scale), ESAS (Edmonton symptom assessment scale) but it still needs a standardized process.]
     [Problems: different eligibility criteria, different forms, different ways to give and receive info.] Help standardize communication to facilitate transfer of
     knowledge.
  2. Protected funding for Networks – knowing budget and being a priority – budget consistent each year – RFP process has negative impact on community
     nursing and keeping standards high.
                                                                                        3. Research needed; more research needed on systems of care so we can
                                                                                           identify areas of improvement – bridge gap between research and
   HOSPICE PALLIATIVE CARE                                                                 practice.
                                                                                    Aboriginal:
 OUTSTANDING PHILANTHROPIST                                                           1. Inability of First Nations people to palliate at home, generally due to lack
  A common thread throughout the stories of many supporters of hospice                   of home visiting nurses and physicians.
  palliative care is that their involvement starts with a death. In 1983, a           2. Need for increased training in area of cultural sensitivity in general, as
  man with a young family lost his wife to cancer. He wanted to find a way               most communities are staffed by outsiders.
  to thank the Palliative Care Services at St. Vincent de Paul Hospital for         Rural:
  providing compassionate support and care to his wife and his family at              1. Staffing and funding for home care services - need to increase respect and
  a very difficult time. Out of one family’s grief and gratitude was born a              pay for home care nurses.
  major, independent community fund-raiser—Brockville’s 30 Hour                       2. Need to be open about residential hospice being not just a 10 bed model
  Telethon for Palliative Care. With the support of family and friends,                  for the rural setting – different standards/funding models.
  local television, radio, print media, and the Brockville Musicians
                                                                                    Nursing:
  Association, the Telethon has raised over $1.8 million dollars for
                                                                                      1. Human resource issues: need to address retention /recruitment of nurses,
  palliative care over the past 25 years. OPCA was proud to honour
                                                                                         PSWs – lack of palliative care physicians, nurses – wage parity for
                                                    Brockville’s 30 Hour
                                                                                         nurses across work settings – credentialing of nurses, PSWs – for
                                                    Telethon for Palliative
                                                                                         PSWs: need some accountable body, standards; for nurses: need some
                                                    Care with the 2007
                                                                                         recognition of palliative care as speciality, what should be required?
                                                    Hospice Palliative Care
                                                                                         (CHPCN certification); inclusion of palliative care education in BScN
                                                    Outstanding       Philan-
                                                                                         program – concern PSWs working so much on own when nurses needed
                                                    thropist Award and we
                                                                                         to be more involved – RFPs for palliative care (right care/right time/
                                                    commend the many
                                                                                         right person)
                                                    volunteers that dedicate
                                                                                      2. Need to lobby/educate LHINs re: focus/contribution/importance of
                                                    themselves to improving
                                                                                         palliative are – advocate re: needed services to political funding bodies.
                                                    end-of-life care in their
                                                    community.                                                                                          Marg Poling

         Chris Sherwood, Bruce Wylie, Carol Davis




Ontario Palliative Care Newsletter                                              3                                                               WINTER 2008
                                     THE JOURNEy….IT’S AbOUT LIVING

T
       he palliative care team at Trillium Health Care in Mississauga, Ontario would like to share a patient success story. Teamwork enabled
       the transformation of this patient care experience at Trillium. This young woman’s goal was attained despite her life threatening illness,
       physical weakness and multiple challenges.
Gemma was a 32 year old woman whose patient experience inspired those who cared for her. She was born into a large family in a remote
town, Malakal in the Upper Nile province of Sudan. At the age of ten, she went to Cuba to pursue a better life and an education. She studied
accounting and eventually moved to the Toronto area. Employment opportunities brought her to Calgary where Gemma worked as a meat
cutter.
She was only 30 years old when she learned of her cancer diagnosis, underwent bowel resection and chemotherapy. The cancer recurred a
year later in both ovaries and pelvis. Gemma was faced with more surgery to remove the tumors. She developed a large bowel obstruction and
surgeons had placed a stent to unblock her bowel. This left her with an intermittent blockage and a world of pain.
She had little knowledge of health problems and was overwhelmed with treatments and seriousness of her illness. She wanted to move to
Mississauga to see her cousin and his family and then maybe, a big maybe, return to her family in Sudan who she had not seen since she left
almost two decades before. Gemma’s cousin encouraged the move. Her physician in Calgary recognized her distress and agreed to facilitate
her travel to Ontario. Remarkably, this physician from Alberta accompanied her on the flight and transfer to Trillium Health Centre. He
reviewed Gemma’s care needs with the palliative physician at Trillium Health Centre who agreed to accept her care.
Gemma was admitted to Trillium Health Centre during the night shift. She was experiencing abdominal distention, severe pain, vomiting,
weight loss and limited intake. Surgical and oncology consults were arranged. This young woman challenged our palliative paradigm. The
team called on every resource available.
 She was aware that her cancer was life threatening and her time would be measured in weeks or perhaps months. She was dying. Gemma
expressed her dream to see her parents again, in Sudan, more than half way around the world. Her goal was clear. But, was it realistic to think
that Gemma with her painful cancer could travel to Sudan? Could our team help to relieve Gemma’s suffering physically, emotionally and
spiritually and improve her quality of living?
Amazing general surgery ensued – not curative surgery, but sweet palliative surgery. Her tumor was inoperable. A loop of small bowel was
brought out through her abdomen and the bowel obstruction bypassed. Her pain medication which had escalated to 1800mg of morphine daily
by CADD infusion was gradually decreased over two weeks. Eventually the infusion pump was replaced with pain patches. This was crucial
to allow her travel to Sudan.
Gemma had infectious disease consults, travel medicine consults, malaria prophylaxis, yellow fever shots, hepatitis shots – not your standard
fare for a palliative patient. Her cousin travelled to Ottawa to obtain her travel visa. Her family and the local community rallied to raise money
for travel expenses and medications. Time was ticking. Although she was weakened by the surgery, she could eat small amounts again.
Nursing, pharmacy, social work, spiritual care – everyone was involved in Gemma’s care and in her dream. Internet emails to doctors in
Khartoum and the World Health Organization helped us to understand the system she would be encountering. A doctor at Khartoum
University in Sudan agreed to help Gemma.
The palliative care team was connecting with people from all over the world. In dialogue with international partners, we learned about
Sudan – a country and culture with limited resources, extreme heat, medical challenges, violence and war. Gemma would be at high risk for
dehydration and diseases such as cholera and malaria. Despite our concerns, she was energized with the hope of returning to her home
country. Her sense of belonging and well-being would only be achieved when she reunited with her family in the Sudanese village.
Her cousin and family in Mississauga employed new energies, supports and resources – meetings with the health care team and organizing
the trip to Sudan. While hospitalized, Gemma insisted on visiting her cousin’s home. Her feelings of illness and pain were diminished when
surrounded by the love of her relatives and friends.
Finally, this stoic young woman and cousin boarded a plane for a 20 hour flight to the other side of the world. The family confirmed that she
arrived safely in Sudan. They indicated, “She is very happy to be reunited with her family. Her parents will give her the best care. She’s in the
right place”. With determination the human spirit defies all odds and dreams do come true.
Every patient experience tells a story and teaches us something new. This young woman’s story was poignant and tragic. But, it helped us to
realize that when we work as a team – nationally, internationally and interdisciplinary - that great things can be accomplished. Lessons learned
will help us to help others.
Gemma’s journey with a life threatening illness – was all about living. She remained in control of her decision making, maintaining her
feelings of worth, dignity and hope. Family report, “Gemma passed away peacefully in the hands of her parents. She was comforted with the
parental love she had missed for two decades. Her parents are heartbroken, but, somehow they are happy that they were the ones burying their
daughter’s body. They had the opportunity to say their good-byes face to face. Now we hope she is at rest.”
Thank you, Gemma, for the lesson of your bravery and patience in the face of such adversity. Thanks to everyone at Trillium for doing their job
with such great compassion and passion. This story could not have been written without the dedication of everyone on 4B medicine.
Well done all.
                                                                                                                                  Kathy McKeen
                                                                                                                                 Nurse Clinician
                                                                                                                            Palliative Care Team
                                                                                                                         Trillium Health Centre

Ontario Palliative Care Newsletter
                                                                       4                                                        WINTER 2008
        SILENT AUCTION                                                        A TRIbUTE TO bRENDA SMITH
 A NEw fUND-RAISING INITIATIVE

                                                                          B
                                                                                 renda Smith was a highly respected member of the


I
    n order to raise funds for the OPCA the 2008 provincial                      health care community and her commitment to quality
    conference embarked on a new initiative this year, a silent                  palliative care was passionately reflected in everything
    auction. Donations to auction were received from local                she did. Brenda was a community leader, a visionary, a ‘mover
businesses as well as OPCA board members which included                   and a shaker’, and never missed an opportunity to advocate for
pictures, a gift voucher for a restaurant in Niagara region and           the patients and families she so genuinely cared for.
Yoga lessons to name a few. The momentum of the auction
was electric, especially towards the close of final bids as people        Approximately 30 years ago, Brenda completed her formal
were racing to “get” the item of their choice.                            nursing training and subsequently began what was to be
                                                                          a highly diverse and successful career. In the early years,
Overall this was a novel, interactive and exciting way of                 Brenda assumed a variety of front line nursing positions and
generating funds for the association and the organisers hope              quickly became known for her compassion and common sense
to repeat the activity again as over $1000 was raised in this first       approach. In addition to caring for patients, Brenda
modest attempt. The organisers would like to thank all those              understood the needs of families and worked hard to
who participated and assisted in making this such a success.              ensure that they too were well supported. In addition to front
                                                                          line work, Brenda went on to assume numerous supervisory
                                                                          positions, was a College Instructor, served as the Manager
                                                                          of the Palliative Care Program, and most recently, worked as
                                                                          the Director of the North Simcoe Muskoka Palliative Care
                                                                          Network. Regardless of the position, Brenda’s unbridled
                                                                          passion, enthusiasm, and expertise quickly won her the
                                                                          respect and confidence of employers, co-workers, community
                                                                          colleagues, and funders alike.
                                                                          Over the past many years, we at Hospice Simcoe had the great
                                                                          privilege of working closely with Brenda and what a pleasure
                                                                          it was. As a valued colleague, Brenda exemplified so many
                                                                          wonderful qualities—kindness and compassion, love of a
                                                                          hearty laugh, efficiency, vision, the ability to see opportunities
                                                                          in every challenge, a penchant for big dreams, a willingness
                                                                          to go above and beyond, and an underlying commitment to
                                                                          excellence—for these qualities and indeed many more,
                                                                          Brenda will always be remembers with tremendous fondness
                        Lesley Hirst, Karen Fisher                        and respect.
                                                                                                                              Jan Janssen
                                                                                                                       Executive Director
                                                                                                                         Hospice Simcoe


                                                     MARILyN LUNDy HOSPICE
                                                     PALLIATIVE CARE AwARD

F
       or the third year, the Temmy Latner Centre for Palliative Care sponsored the
       Marilyn Lundy Hospice Palliative Care Award in honour of Marilyn
       Lundy, a pioneer in palliative home care nursing in Canada. The
2007 recipient was Brenda Smith, Director, Palliative Care Network, North
Simcoe Muskoka East Parry Sound/North Simcoe Muskoka. We are sad to
report that Brenda succumbed to cancer in early June. Brenda’s nomination
for this award included these comments; “Brenda recognizes other people’s
strengths and is able to nurture those strengths, and find a place to use those
talents that brought people to want to work with her. It is a rare gift and not
easily defined. Like the wind…you just see the result of where she’s been.”
Brenda will be missed but many of us will benefit from the results she left
behind.




Ontario Palliative Care Newsletter
                                                                      5                                                    WINTER 2008
                             HUMbER/OPCA JOINT ANNOUNCEMENT



                                                     ANNOUNCEMENT

Re: New Plans for the 2009 Annual Provincial Conference in Palliative and End-of-Life Care



H
        umber College Institute of Technology & Advanced Learning (Humber) has been at the forefront of learning and
        development for hospice palliative care professionals through the Annual Provincial Conference in Palliative and
        End-of-Life Care.
Over the years, many organizations have partnered with Humber in planning this conference, and for the last several years the
Ontario Palliative Care Association (OPCA) has been Humber’s main partner. Both organizations have valued this partnership
and the impact this conference has made to the thousands of participants who have attended this event.
As the world around us changes, our organizations must also adapt. It is therefore, with mixed emotions that we have agreed to
end our collaboration on this conference. The 2009 Annual Provincial Conference will be presented jointly by OPCA and the
Hospice Association of Ontario (HAO) and further details will be forthcoming.
Each of our organizations have deeply appreciated and respected the other, making this announcement that much more
difficult. However, changes in the health care environment, competition and funding have led us to this decision in support
of the learning and development needs of hospice palliative care. Despite the end of this conference partnership, Humber and
OPCA intend to continue working together on other areas of shared interest.
On behalf of Humber and OPCA, we would like to express our deep appreciation to past planning committee members,
speakers who have shared their expertise, sponsors who have provided their support, volunteers who have given their time, and
the delegates who have demonstrated their commitment to education and the ongoing enhancement of hospice palliative care.
Thank you for your continued support and we look forward to the future endeavors that will come from this next phase of our
relationship.
Sincerely,




       Janis Miller                                                      Chris Sherwood
       Dean, Corporate and Continuing Education                          President, Ontario Palliative Care Association
       Humber College Institute of Technology
       & Advanced Learning


                                         SPECIAL ANNOUNCEMENT

O
        n Saturday, September 13th at the Hospice Association of Ontario Annual Conference, Mr. Chris Sherwood, President
        of the Ontario Palliative Care Association and Ms. Deborah Lavender, Executive Director of the Hospice Association of
        Ontario announced that the two associations will come together to host the 2009 Ontario Hospice Palliative Conference,
April 19th to 21st.

Ms. Lavender expressed “we are excited about the possibilities our partnership will offer. We think the possibilities are endless
if we are able to let go of what we are for what we could become”.
Mr. Sherwood, on behalf of OPCA, stated “This joint conference that we are embarking upon is a first step, a very important
step, for both of our organizations and for hospice palliative care in Ontario. It is symbolic of the coming together of ideas and
the recognition that hospice palliative care is indeed one movement. This conference will be able to collectively represent that
one movement, by taking the best of each of our respective conferences and putting them into one that brings us together as a
community. ”
Please stand by for further announcements and updates of Conference 2009.




Ontario Palliative Care Newsletter
                                                                6                                                 WINTER 2008
                                       bOARD Of DIRECTORS 2008/2009
 President – Chris Sherwood                                                   Vice President – Lesia Wynnychuk
 Past President – Patricia Van Den Elzen                                      Treasurer – Patricia Van Den Elzen
 Secretary – Barbara Linkewich                                                Membership – Karen Fisher
                                                   Regional Representatives
 1 – Erie St. Clair – Sharon Allen                                        8 – Central – Carol Ford
 2 – South west – Marie Palmer                                            9 – Central East – Theresa Morris
 3 – waterloo wellington – Karen Fisher                                   10 – South East – Joan Schwarze
 4 – Hamilton Niagara Haldimand brant – Lesley Hirst                      11 – Champlain – Debbie Gravelle
 5 – Central west – Amanda MacLennan                                      12 – North Simcoe Muskoka – Position Vacant
 6 – Mississauga Halton – Alison Powell                                   13 – North East – Elaine Klym
 7 – Toronto Central – Diane Williams                                     14 – North west – Marg Poling
                                                       Community Members
                                                        Deborah Lavender
            (Contact information for all Board members is available on our website www.ontariopalliativecare.org
                                     or can be obtained by contacting the OPCA office.)




                                                                                            OPCA Regions




                                    Ontario Palliative Care Association
                                A Strong Voice for Quality End-of-Life Care
                            VISION                                                    GOALS & ObJECTIVES
   Quality end-of-life care for all Ontarians.                        To support our members by:
                                                                        	 providing education development opportunities to
                                                                           facilitate communication
                          MISSION                                       	 being a central resource for information
                                                                        	 being a link between local, regional, provincial and
   How we treat those who are dying in our community reflects              national palliative care
   who we are as a society. All Ontarians have the right to die       To encourage the development and expansion of palliative
   with dignity, to have access to physical, psychosocial, and        care in Ontario by:
   spiritual care. As health care providers, volunteers, and            	 advocating the importance of palliative care through
   family representatives of Ontario’s hospice palliative care             influencing government policy and funding
   community we advocate for quality end-of-life care using             	 promoting standards in palliative care
   and integrated and collaborative approach.                           	 participating in the evolution and implementation of
                                                                           standards
                                                                        	 enhancing the work of OPCA
                                                                        	 maintaining financial stability


Ontario Palliative Care Newsletter
                                                                  7                                              WINTER 2008
        Effect Change &                                        OPCA                            	 Access to a network of colleagues at
        Advance Hospice                                      Membership                           the community, regional, provincial
                                                                                                  and national levels
         Palliative Care:                                     benefits                         	 Privileges to elect members of the
           Join OPCA                             	 Professional development through              OPCA Board of Directors and attend
                                                    education initiatives, bursaries,             the Association’s Annual General
 The Ontario Palliative Care Association            reduced rates at such major events            Meeting
 (OPCA) is a non-profit organization and            as the Annual Ontario Provincial           	 Joint membership with the Canadian
 its membership reflects the important              Conference on Palliative and End-of-          Hospice Palliative Care Association
 multidisciplinary approach to hospice              Life Care                                     (CHPCA)
 palliative care. OPCA offers a range of         	 Input into curriculum development          	 Subscriptions to both OPCA and
 benefits to its membership and, most               for health care professionals at              CHPCA newsletters
 importantly, it presents a strong, proactive       educational institutions
 voice on issues specific to the provision                                                     	 67% savings on the subscription rate
                                                 	 Partnerships with professional                for the Journal of Palliative Care
 and delivery of quality end-of-life care           associations and accreditation bodies
 – professional education, standards of             to advance standards and best practice        For more information contact opca@
 practice, government policy development                                                                  neptune.on.ca or
                                                 	 Direct participation in provincial
 and funding, and public awareness.                 and national initiatives to establish         Check out OPCA’s web site at www.
                                                    standards of practice                            ontariopalliativecare.org



                                                OPCA MEMbERSHIP fORM
    I would like to become a member of the Ontario Palliative Care Association and the Canadian Hospice Palliative Care Association.
                                                      Individual Membership ($75)
Individual Name: ___________________________________________________ Title: _______________________________________________
Address: ________________________________________________________________________________________________________________
City: __________________________________________________________ Province: _________________ Postal Code:____________________
Telephone/Business: ____________________________________________ Residence: ________________________________________________
Fax: ______________________________________ Email:________________________________________________________________________


                   Important: What is your preferred means of receiving OPCA news and information?  Mail 	E-mail
                    I include a charitable donation of $             [OPCA Charitable Donation No. 89078 993 RR 0001]
                               Clip or photocopy and mail membership form and fees (and/or charitable donations) to:
                         Ontario Palliative Care Association (OPCA), 194 Eagle Street, Newmarket, Ontario L3Y 1J6
                                      Tel: 905.954.0938 or (Toll Free) 1-888-379-6666 / Fax: 905.954.0939
                                    E-mail: opca@neptune.on.ca / Web Site: www.ontariopalliativecare.org

                                                 NURSE GROUP MEMbERSHIP
                  Nurses who wish to be a member of the CHPCA Nurses Group will pay an additional $10 membership fee.
           If you are a nurse and want to be a member of the Nurses Group please add $10 to the joint membership fee listed above.

                                         Yes I wish to become a member of the CHPCA Nurses Group.
                                    I have enclosed an extra $10 on top of my joint membership fee with the
                                              Ontario Palliative Care Association and the CHPCA.
                                             Provincial Nursing License # ___________________.

                                                  CHPCA INTEREST GROUPS
  The CHPCA has created Interest Groups for members with similar interests. If you would like to be a member of an Interest Group please
             indicate the group(s) below. You will be added to an electronic list serve for the Interest Groups indicated.

                  Aboriginal Issues                           Nurses ($10 Fee)                           Pharmacists
                 Spiritual Advisors                           Physiotherapists                         Volunteer Issues
                  Paediatric Issues                            Social Workers                            Rural Issues
             Long Term/Continuing Care                     Complimentary Therapies


Ontario Palliative Care Newsletter
                                                                     8                                                    WINTER 2008

				
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