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Monday Morning Memo August Week in Review Monday August

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Monday Morning Memo August Week in Review Monday August Powered By Docstoc
					                               Monday Morning Memo
                                 August 30, 2004
Week in Review
Monday August 23 through Tuesday August 24, 2004
Began working on supporting the administration’s proposal for bolstering
affordable housing in the bay area to aid in the closure of Agnews developmental
center. Assemblymember Darrell Steinberg and the administration partnered
with a proposal related to affordable housing and Family Home Agencies that
was initially opposed by a few groups. Support letters were sent to several
legislators and we completed a toolkit for advocating for support of the bill. The
bill passed out of the Senate 33 to 2 and moved to the Assembly.

Wednesday August 25 through Thursday August 26, 2004
We provided support testimony for AB 2100 (Steinberg) in the Assembly Human
Services Committee where it passed out of committee and later passed out of
the assembly floor 77-0 as the legislators worked overtime in hopes of
completing their work by Friday. The bill is now headed for the governor's desk
for approval. Since the bill is an administration proposal it is expected to receive
the governor's signature without amendments.

The Senate passed SB 1365 (Chesbro) “The Olmstead” bill on Wednesday and
we started developing information for constituents to urge the governor’s support.
Another Action Alert was posted on the website to alert our constituency about
the progress on this measure and encourage everyone to take action on
supporting this bill.

Friday August 27 and Saturday August 28, 2004
The website has undergone several updates during the week and we are
currently testing a new front page. In addition, The Arc of California e-mail list is
back and will be used more frequently for sending e-mails to constituents in a
more safe computing environment.

The Senate finished their work by 2:25 AM and the Assembly completed their
work by 3:30 AM early Saturday morning. Legendary legislator, John Burton, the
Senate president pro tem, slammed down the gavel at 2:25 AM and ended the
Senate session and his career without ceremony.

Constituent Calls
       Information: 6
       Conservatorship: 1

                                                                   Monday Morning Memo
                                                                      The Arc of California
                                                               August 30, 2004 page 1 of 13
                                                          Tony Anderson, Executive Director
        Special Needs Trust: 0
        Membership: 2
        Website Count: Start Count 2847 end count 2097, total hits 250.

The Week Ahead
Now that that legislature has completed its’ work, the governor will approve, veto,
or not act (essentially allowing a bill to become law) on about a thousand bills
upon his return from the Republican Convention in New York. This will provide
the governor an opportunity to further define his priorities for the state. The Arc
of California Governmental Affairs committee still has about 46 bills we are
tracking that have some impact on people with developmental disabilities (see
attached).

Tuesday August 31, 2004
Will be meeting with the ArcLink to work on further developments on our website.
Arclink has expended its service to include tech support for websites it hosts.

Wednesday September 1, 2004
Will be attending the opening of the latest Fred Finch program for youth with dual
diagnosis, mental health and developmental disabilities, in Solano County CA.
Fred Finch has developed successful programs in the state to support people in
our system who’s needs have been historically difficult to meet. This new
program is a collaborative effort between the county, the regional center, local
education, and received much of the start-up funding from the State Council on
Developmental Disabilities.

Friday September 3, 2004
No CPR hearing this week, the next hearing dates are Thursday September 9th
(Los Angeles) Education, Training and Volunteerism and Friday September 10th
(Long Beach) Corrections Reform (IRP) and Public Safety.

Action Alerts1
The Arc of California
Visit the website for details on the following action alerts (www.arccalifornia.org).
   1. Support letters to the Governor on SB1365 – the Olmstead Bill.
   2. Support letters to legislator (copy the governor) on AB 2100 – housing and
        family agency service for people who live at Agnews developmental
        center.

The Arc of the US
While Congress is away on August recess, it is still important to continue taking
action to keep issues related to the disability community at the forefront on the
Hill by sending ACTION ALERT messages. Below are the links to the current
action center alerts:

1
 To access the Action Alert system from The Arc of California website (www.arccalifornia.org) enter your
zip code in the ―Contact Congress‖ federal box.
                                                                               Monday Morning Memo
                                                                                   The Arc of California
                                                                           August 30, 2004 page 2 of 13
                                                                      Tony Anderson, Executive Director
Urge Congress to Pass the Hate Crimes Legislation, the Local Law Enforcement
Enhancement Act
Urge Your Representative to Co-Sponsor Legislation Protecting the Employment of
People with Disabilities
Urge House Members to Pass the Lifespan Respite Care Act and
Urge Congress to Make the Work Opportunity Tax Credit Permanent
Urge Congress to Complete Reauthorization of The Assistive Technology Act - AND -
Urge the House to Pass Genetic Information Non-Discrimination Legislation
Transportation Bill in Conference:

Upcoming Events
Legislative Calendar – Important Dates
September 30 – Last day for Governor to sign or veto bills passed by the
Legislature before September 1 and in his possession on or after September 1.
October 2 – Nonurgency bills enacted on or before this date take effect on
January 1, 2005.
November 30 – Adjournment Sine Die (without scheduled follow-up) at midnight.
December 6 – Convening of the 2005-06 Regular Session.

September 9, 2004
FASD day rally on the steps of the state capitol, details to follow.

October 29th through 30th
The Arc of California board meeting in Riverside California. More details to
follow…(CCE on Friday from 10 AM to 5 PM).

October 28th through 29th
On the FASTrack to Understanding. A National Conference on Fetal Alcohol
Spectrum and related Neurubehavioral Disorders. Riverside Convention Center,
3443 Orange Street, Riverside, CA. To register call (888) 818-6298, e-mail
DelCooperArc@aol.com, or visit the site at www.arcriverside.org/fasdconf.html.
This event is sponsored by the Arc Riverside, CalFAS, and The Arc of California.

November 18th – 20th 2004
The Arc U.S. will hold its 2004 National Convention in Boston which is
anticipated to be one of the most important national gatherings in memory. The
convention offers The Arc’s members, chapters, and supporters the chance to re-
connect with our mission and with one another. Registration materials are
available on The Arc’s web site at www.thearc.org in the What’s New section of
the home page (see attached for convention details including speakers and
workshops).

News Articles
                                                                  Monday Morning Memo
                                                                     The Arc of California
                                                              August 30, 2004 page 3 of 13
                                                         Tony Anderson, Executive Director
Family Welfare; Five groups sue DCF, Regier on funding issues Five nonprofit groups
filed suit against the DCF and its chief, Jerry Regier. The groups say they were
shortchanged on contracts.
Miami Herald August 25, 2004 by Brent Kallestad (Associated Press)
TALLAHASSEE - Department of Children & Families Secretary Jerry Regier reneged
on contracts with nonprofit service providers caring for people with mental retardation,
cerebral palsy and autism, a lawsuit filed Tuesday charges. Five nonprofit groups from
South Florida filed the suit in a Miami-Dade County trial court against Regier in his
individual and official capacity. Alan Levine, secretary of the Agency for Health Care
Administration, was also among the defendants named in their official capacities.

….In the past decade, Florida eliminated a waiting list for community-based services, but
a new backlog of more than 15,500 has developed, an embarrassment for Bush, who
campaigned in part on a promise to improve the lives of disabled people. The governor
continues to stand behind Regier, who was brought in from Oklahoma. Four of Regier's
top aides have resigned in the past two months, including two who the governor's
inspector general found had accepted favors from companies doing business with the
state.
http://www.miami.com/mld/miamiherald/news/state/9485733.htm?template=contentModules/printstory.jsp

Mentally disabled center ruined;
Charley tore through ARC; director seeks help to rebuild
Herald-Tribune Southwest Florida August 21, 2004 by Selina Roman
NOCATEE -- Glass crunched underfoot where the hardwood floors used to shine. Tunes
used to flow from the piano and dozens of sparkling trophies used to line the wall. Now
the auditorium at the Association for Retarded Citizens resembles a bombed-out ruin.
Hurricane Charley destroyed the Nocatee retreat for mentally challenged people Aug. 13.

Most of the 100-year-old building's eastern wall collapsed. Nancy Turner, ARC's
executive director, and another staff member checked on the building Thursday and
picked through some of the wet rubble. The building will probably be condemned, and
she's racking her brain for ways to continue serving her clients. After the storm, Turner
returned to the center Aug. 14. At first, everything looked fine, she said -- some broken
windows, water damage and some uprooted trees. Her feeling of being spared lasted as
long as the half-minute stair climb to the second-floor auditorium. She opened the white
double doors to find the room buried under bricks, plaster, twisted metal and shattered
glass. Ceilings had collapsed and metal rods dangled like an abstract art exhibit. The
sheet music stand from the piano stuck in the wall like a dagger….The damage doubly
devastated Turner because the auditorium had just been refurbished for $8,000. ARC
serves 48 clients who attend the center to learn skills such as landscaping, arts and crafts
and horticulture…."Send money," she said. "Send help, send anything."
http://www.heraldtribune.com/apps/pbcs.dll/article?AID=/20040821/NEWS/408210365/1006/SPORTS
Several chapters of The Arc from around the country have sent money to The Arc De
Sodo-Florida to help with rebuilding and recovery from this natural disaster. If you
would like to send support to help rebuild this sister chapter, the PO Box address is:
The Arc Desoto, P.O. Box 787, Nocatee, FL 34268, (863) 494-2328,
ArcDesoto@DeSoto.Net.


                                                                           Monday Morning Memo
                                                                              The Arc of California
                                                                       August 30, 2004 page 4 of 13
                                                                  Tony Anderson, Executive Director
Schools expand programs for special needs; Law requires students to show yearly
progress; districts doing more to meet those goals.
Indianapolis Star August 24, 2004 by Michael Dabney
….As public schools face growing demands from parents and higher standards under the
federal No Child Left Behind law, districts across the nation are revamping their special-
education programs. Many of the most academically competitive school districts have
failed to meet the law's standards because of the achievement of their special-education
students….Earlier this month, Indiana Superintendent of Public Instruction Suellen Reed
said 76 percent of Hoosier school districts met their progress goals. But of the ones that
failed, most did so because they did not show enough progress in special education.
…
For example, in 1998-99, 15 percent of Hoosier special-education sixth-graders passed
the language arts section of ISTEP. That improved to 24 percent last year. In 1998-99, 18
percent of high school sophomores passed the math portion of the graduation qualifying
exam; that increased to 28 percent last year. And in nearly all categories, there is a 40- to
60-point gap between the percentage of special-education students passing ISTEP and the
percentage of students in the general population passing ISTEP...."There are a lot of
consequences" to the federal law, said Scott Young, education policy adviser for the
National Conference of State Legislatures. "But the states feel that meeting (No Child
Left Behind) will cost them more than what they will receive (in federal funds) or that
meeting the standards will impede progress made before NCLB."…"No Child Left
Behind is a disastrous law from a special-education standpoint," Johnson said. "Instead of
penalizing schools for nonperformance, they should be giving them the resources to help
them."
http://www.indystar.com/articles/6/172755-3586-009.html

Group Probed for Denying Specialty Care to Children; State looks into allegations by
pediatricians that agency tried to illegally limit medical costs.
Los Angeles Times August 23, 2004 by Tony Perry
ENCINITAS, Calif. — A state health agency is investigating whether there is a "systemic
problem" with a doctor-owned group working for the insurance industry that has turned
down numerous requests by other doctors here for pediatric specialty care for children,
officials say. Investigators are looking to see if the rejections are based on legitimate
medical disagreements or on a desire by the group to boost its profits by illegally holding
down costs for health-maintenance organizations.…

Caught in the middle of the dispute are parents such as Rebecca Escobar, whose infant
daughter, Kathren Grace, was born with craniosynostosis, a birth defect in which the
skull prematurely closes and threatens to stifle the growth of the brain, potentially
causing mental retardation, seizures and blindness. If surgery is done in the first months
of life, chances are good that the condition can be corrected. If surgery is delayed, the
procedure is more complex and riskier. Kathren Grace's primary physicians had referred
her case to a pediatric neurosurgical team but Primary Care Associates denied the request
for coverage…"It was so frustrating," said Escobar. "It's hard enough to have a baby who
needs surgery, but then to have people fighting you on it is just terrible."
http://www.latimes.com/news/local/la-me-kids23aug23,1,4373578.story?coll=la-headlines-california



                                                                             Monday Morning Memo
                                                                                The Arc of California
                                                                         August 30, 2004 page 5 of 13
                                                                    Tony Anderson, Executive Director
Demand on special ed is growing; Schools grapple with degree to which they're
responsible for social, as well as academic, skills.
Christian Science Monitor August 24, 2004 by Sara B. Miller
She was a bright 9-year-old with a high IQ and a flair for creative writing.
When she grew anxious and refused to do homework, her parents and school were at a
loss. No one considered it a learning disability, until sixth grade when she tried to commit
suicide. She was diagnosed with Asperger's Syndrome, a neurological disorder that can
interfere with basic social skills. Still, looking at her academic record, officials in her
Maine school district said that while she needed extra support, they saw no reason to
place the girl - known as L.I. in court documents - in special education. After all, she'd
been able to learn despite her difficulties.…

One thing is clear: The number of children in the United States who qualify for special
education is up nearly 40 percent in the past decade: Some 6.5 million children between
ages 3 and 21 have been diagnosed with special needs - and cost at least twice as much as
other kids to educate. Of some $50 billion (and rising) spent on special ed annually, the
federal government contributes only about 18 percent….Legally, the federal law
mandating special ed - the Individuals with Disabilities Education Act, or IDEA, applies
to any student whose education is "adversely affected" by a disability to the point of
needing special education. But "adversely" is subjective across districts, say advocates.
Disabilities marked by high IQs but a broad range of social or emotional needs are
generally referred to as "hidden disabilities." And with or without help from the school
district, such challenges can burden families with a financial and emotional toll just as
other disabilities do.
http://www.csmonitor.com/2004/0824/p01s03-ussc.html

Funding Opportunities
HHS - National Institutes of Health
National Institutes of Health
SCHOOL-BASED INTERVENTIONS TO PREVENT OBESITY Grant
http://www.fedgrants.gov/Applicants/HHS/NIH/NIH/PA-04-145/listing.html
This Program Announcement (PA) encourages the formation of partnerships between academic institutions
and school systems in order to develop and implement controlled, school-based intervention strategies
designed to reduce the prevalence of obesity in childhood. This initiative also encourages
evaluative comparisons of different intervention strategies, as well as the use of methods to detect
synergistic interactions between different types of interventions.

HHS - Administration of Children and Families, Office of Administration
CSBG T/TA Program Earned Income Tax Credit (EITC) and Other Asset
Formation Opportunities, Modification1
http://www.fedgrants.gov/Applicants/HHS/ACF/OA/HHS-2004-ACF-OCS-ET-
0028/listing.html
The Office of Community Services (OCS) within the Administration for Children and Families (ACF)
announces that competing applications will be accepted for a new grant pursuant to the Secretary's
authority under section 674(b) of the Community Services Block Grant (CSBG) Act, as amended, by the
Community Opportunities, Accountability, and Training and Educational Services (COATES) Human
Services Reauthorization Act of 1998, (P.L. 105-285). The proposed grant will fund up to seven capacity-
building collaborations that create or expand asset formation and financial literacy services offered by
eligible entities funded under the Community Services Block Grant (CSBG) Program in support of national
community action Goal 1 ("Low Income People Become More Self-sufficient").

HHS - Administration of Children and Families, Office of Administration
                                                                               Monday Morning Memo
                                                                                  The Arc of California
                                                                           August 30, 2004 page 6 of 13
                                                                      Tony Anderson, Executive Director
Community Services Block Grant Community Economic Development Public
Markets, Modification1
http://www.fedgrants.gov/Applicants/HHS/ACF/OA/HHS-2004-ACF-OCS-IP-
0029/listing.html
Pursuant to this announcement, the Office of community Services (OCS) will award grants to Community
Development Corporations (CDCs) to expand or create public markets. CDCs should ideally have in place written
commitments for at least 50 percent of non-CED funding, a business plan, and site control for the market. Low
income beneficiaries of these projects include those who are determined to be living in poverty as determined by the
HHS Guidelines on Poverty (See Appendix A). They may be unemployed, on public assistance, including
Temporary Assistance for Needy Families (TANF), are at risk teenagers, custodial and non-custodial parents, public
housing residents, persons with disabilities and persons who are homeless. The public markets priority area is
designed to encourage rural and urban community development corporations to create projects intended to provide
employment and business development opportunities for low-income people through public markets.

Christopher Reeve Paralysis Foundation Accepting Applications for
Quality of Life Grants Program
The Christopher Reeve Paralysis Foundation Web site. www.christopherreeve.org
RFP Link: http://www.christopherreeve.org/qlgrants/qlgrantsmain.cfm
The Christopher Reeve Paralysis Foundation offers Quality of Life Grants to nonprofit organizations that
address the needs of persons living with paralysis (particularly spinal cord injury), their families, and
caregivers. Funding is awarded in thirteen categories, including: accessibility, advocacy, arts, assistive
technology, children, counseling, education, employment, health promotion, independent living, practical
service, sports and recreation, and therapeutic riding. Except for the health promotion category, the primary
focus of the Quality of Life grants is paralysis caused by spinal cord injury. To qualify for funding, a
nonprofit organization does not have to exclusively serve people with spinal cord injuries; however, at least
a portion of the population served must have spinal cord injuries. The health promotion category provides
funding to nonprofit organizations that address paralysis caused by spinal cord injuries and/or other
injuries, diseases and birth conditions, including (but not limited to): stroke, spina bifida, multiple sclerosis,
cerebral palsy, amyotrophic lateral sclerosis, traumatic brain injury, etc. Funding is awarded in amounts up
to $25,000 per grant. Grants will only be made to nonprofit organizations, not to individuals.

California Department of Education - Family Empowerment Centers
Evaluator http://www.cde.ca.gov/fg/fo/cf/profile.asp?id=513
State legislation established the Family Empowerment Centers on Disability to provide parents of students
with disabilities access to information, services, and support to ensure that disabled students receive a free,
appropriate education in the least restrictive environment. Currently, 12 centers operate in California. The
law requires the California Department of Education to contract with an outside entity to conduct an
evaluation of the effectiveness of the services that the centers provide by analyzing information gathered
during the study. Eligible Applicants: individuals, institutions of higher education, local educational
agencies, nonprofit organizations, other organizations or agencies




                                                                                     Monday Morning Memo
                                                                                        The Arc of California
                                                                                 August 30, 2004 page 7 of 13
                                                                            Tony Anderson, Executive Director
                                The Arc of California
                           LEGISLATIVE ACTION REPORT
                                     8/30/2004
1.    AB 20 (Lieber) Victims of crime. 08/25/2004 - ASM ENROLLMENT Senate amendments
      concurred in. To enrollment. Support Criminal Justice
2.    AB 42 (Daucher) Special education. 08/24/2004 - ASM ENROLLED Enrolled and to the
      Governor at 11 a.m. Special Education
3.    AB 152 (Levine) Special education. 07/16/2004 - ASM CHAPTERED Chaptered by Secretary of
      State - Chapter No. 161, Statutes of 2004 Special Education
4.    AB 379 (Mullin) Family child care home education networks. 08/28/2004 - ASM
      ENROLLMENT Senate amendments concurred in. To enrollment. Watch Children & Family
      Services
5.    AB 649 (Wiggins) Developmental services: funding: maintenance of effort. 08/24/2004 - ASM
      ENROLLMENT Senate amendments concurred in. To enrollment. Support General Systemic
6.    AB 750 (Matthews) Medi-Cal: durable medical equipment. 08/25/2004 - ASM ENROLLED
      Enrolled and to the Governor at 3 p.m. Health & Medical
7.    AB 824 (Matthews) In-home supportive services: wage and benefit increases. 08/26/2004 - ASM
      ENROLLMENT Senate amendments concurred in. To enrollment. IHSS
8.    AB 857 (Frommer) Developmental disabilities: autism. 08/27/2004 - ASM ENROLLMENT
      Assembly Rule 77 suspended. Motion to re-refer bill to Com. on APPR. made by assembly
      Member Mountjoy. Motion to re-refer bill to Com. on APPR. failed. Senate amendments
      concurred in. To enrollment. Watch General Systemic
9.    AB 1240 (Mullin) Care facilities: criminal record clearances. 08/27/2004 - ASM ENROLLMENT
      In Asm. Concurrence in Senate amendments pending. May be considered on or after August 29
      pursuant to Asm Rule 77. Asm Rule 77 suspended. Urgency clause adopted. Senate amendments
      concurred in. To enrollment. Watch Criminal Justice
10.   AB 1393 (Kehoe) Child care: before and after school programs. 08/19/2004 - ASM ENROLLED
      Enrolled and to the Governor at 4 p.m. General Systemic Children & Family Services
11.   AB 1707 (Committee on Judiciary) Civil rights: disabled persons: full and equal access.
      08/19/2004 - ASM ENROLLED Enrolled and to the Governor at 4 p.m. Support Criminal Justice
12.   AB 1760 (Jackson) Victims of crimes. 06/09/2004 - ASM ASSEMBLY In committee: Set first
      hearing. Failed passage. Reconsideration granted. Oppose Criminal Justice
13.   AB 1801 (Pavley) Guide dogs. 08/16/2004 - ASM ENROLLED Enrolled and to the Governor at 5
      p.m. Support Criminal Justice
14.   AB 1846 (Goldberg) No Child Left Behind Act of 2001. 08/24/2004 - ASM ENROLLMENT
      Senate amendments concurred in. To enrollment. Special Education
15.   AB 1858 (Steinberg) Foster children: education. 08/27/2004 - ASM ENROLLMENT Assembly
      Rule 77 suspended. Senate amendments concurred in. To enrollment.
16.   AB 1956 (Wolk) Diversion: developmentally disabled defendants. 08/25/2004 - ASM
      CHAPTERED Chaptered by Secretary of State - Chapter No. 290, Statutes of 2004 Support
      Criminal Justice
17.   AB 2015 (Chu) Special education: individualized education program team. 08/25/2004 - ASM
      ENROLLMENT Assembly Rule 77 suspended. Senate amendments concurred in. To enrollment.
      Special Education
18.   AB 2100 (Steinberg) Developmental services. 08/25/2004 - ASM ENROLLMENT From
      committee: With recommendation: That Senate amendments be concurred in. (Ayes 5. Noes 0.)
      (August 25). Senate amendments concurred in. To enrollment. Support General Systemic
19.   AB 2171 (Benoit) Teacher credentialing: special education. 07/06/2004 - ASM CHAPTERED
      Chaptered by Secretary of State - Chapter No. 106, Statutes of 2004 Special Education
20.   AB 2362 (Daucher) Special education: due process hearing. 07/01/2004 - ASM CHAPTERED
      Chaptered by Secretary of State - Chapter 81 Statutes of 2004. Special Education
21.   AB 2373 (Goldberg) School finance: weighted per pupil funding. 08/24/2004 - ASM
      ENROLLMENT Senate amendments concurred in. To enrollment. Special Education
22.   AB 2525 (Committee on Education) Education: planning. 08/28/2004 - ASM ENROLLMENT
      Urgency clause adopted. Senate amendments concurred in. To enrollment. Special Education
23.   AB 2611 (Simitian) Elder and dependent adult abuse. 08/25/2004 - ASM ENROLLMENT Senate
      amendments concurred in. To enrollment. Support Criminal Justice
                                                                                Monday Morning Memo
                                                                                   The Arc of California
                                                                           August 30, 2004 page 8 of 13
                                                                      Tony Anderson, Executive Director
24. AB 2744 (Goldberg) Content standards. 08/26/2004 - ASM ENROLLMENT Assembly Rule 77
    suspended. Senate amendments concurred in. To enrollment. Special Education
25. AB 2845 (La Suer) Behavioral interventions. 07/16/2004 - ASM CHAPTERED Chaptered by
    Secretary of State - Chapter No. 174, Statutes of 2004 Special Education
26. AB 2909 (Salinas) Early intervention services. 08/23/2004 - ASM ENROLLED Enrolled and to
    the Governor at 2 p.m. Children & Family Services Watch Special Education
27. AB 3056 (Vargas) IHSS: modes of benefits delivery. 08/25/2004 - ASM ENROLLMENT
    Assembly Rule 77 suspended. Senate amendments concurred in. To enrollment. IHSS
28. AB 3095 (Committee on Aging and Long-Term Care) Crime. 08/25/2004 - ASM ENROLLMENT
    Senate amendments concurred in. To enrollment. Support Criminal Justice
29. ACR 205 (Daucher) Autism Awareness Month. 05/26/2004 - ASM CHAPTERED Chaptered by
    Secretary of State - Chapter No. 70, Statutes of 2004 General Systemic
30. AJR 83 (Daucher) Special education: federal funding. 07/16/2004 - ASM CHAPTERED
    Chaptered by Secretary of State - Chapter No. 132, Statutes of 2004 Special Education
31. SB 142 (Alpert) Genetic testing. 08/26/2004 - SEN ENROLLMENT Senate concurs in Assembly
    amendments. (Ayes 32. Noes 2.) To enrollment. Support Health & Medical
32. SB 1234 (Kuehl) Crimes: civil rights. 08/25/2004 - SEN ENROLLMENT Senate concurs in
    Assembly amendments. (Ayes 24. Noes 14.) To enrollment. Watch Criminal Justice
33. SB 1314 (Ortiz) Criminal history information. 07/23/2004 - SEN CHAPTERED Chaptered by
    Secretary of State - Chapter No. 184, Statutes of 2004 Watch Criminal Justice
34. SB 1364 (Chesbro) Developmental disabilities. 06/24/2004 - SEN CHAPTERED Chaptered by
    Secretary of State - Chapter No. 68, Statutes of 2004 Support General Systemic
35. SB 1365 (Chesbro) Preventing unnecessary institutionalization. 08/25/2004 - SEN
    ENROLLMENT Senate concurs in Assembly amendments. (Ayes 28. Noes 8.) To enrollment.
    Support General Systemic
36. SB 1475 (Vasconcellos) Elder and Dependent Adult Abuse Prevention and Prosecution
    Coordinating Council. 08/25/2004 - SEN ENROLLMENT Senate concurs in Assembly
    amendments. (Ayes 31. Noes 5.) To enrollment. Watch Criminal Justice
37. SB 1621 (Machado) Teacher credentialing: district interns. 08/24/2004 - SEN CHAPTERED
    Chaptered by Secretary of State - Chapter No. 287, Statutes of 2004 Special Education
38. SB 1777 (Ducheny) California Statewide Housing Plan. 08/26/2004 - SEN ENROLLMENT
    Senate concurs in Assembly amendments. (Ayes 38. Noes 0.) To enrollment. Housing
39. SB 1794 (Perata) Criminal procedure: competency. 08/27/2004 - SEN ENROLLED Enrolled. To
    Governor at 5 p.m. Watch Criminal Justice
40. SB 1819 (Ashburn) Mental health and developmental services: confidential information.
    08/24/2004 - SEN ENROLLED Enrolled. To Governor at 11 a.m. Mental Health
41. SB 1845 (Perata) Adult day health care. 08/27/2004 - ASM ENROLLMENT In Senate. Senate
    concurs in Assembly amendments. (Ayes 23. Noes 2.) To enrollment.
42. SB 1895 (Burton) Special education: mental health services. 08/26/2004 - SEN ENROLLMENT
    Urgency clause adopted. Senate concurs in Assembly amendments. (Ayes 31. Noes 1.) To
    enrollment. Special Education.




                                                                     Monday Morning Memo
                                                                        The Arc of California
                                                                 August 30, 2004 page 9 of 13
                                                            Tony Anderson, Executive Director
                                          The Arc of the US
                                 National Convention Workshops in
                                        Boston, Massachusetts
                                        Draft August 27, 2004
Thursday, November 18, 10:30 – noon - early bird workshops
The Supports Intensity Scale - Valerie Bradley, Human Service Research Institute, Cambridge,
Massachusetts, and Michael Wehmeyer, University of Kansas, Lawrence, Kansas

Time In! Strategies and Activities for a Caring, Inclusive, After School Community – Barbara August,
The Greater Boston Arc, Boston, Massachusetts

Self-Determination: Taking Charge of my Life Buying the Services I Need - Bonnie Forsyth, Self-
Advocate; Eileen Briones, support associate; Tammi Beane, The Arc of Northern Bristol County; Ed
Bielecki, family member and advocate

Thursday 3:45 – 5:15 p.m.
Employment - Project Income, Working for a Brighter Future - Carol Beatty, The Arc of Howard
County; Morris Tranen, The Maryland RISE Program; and Rick Callahan, Lorraine and John Sheehan,
The Arc of Anne Arundel County (Another speaker invited) (Special session)

Self-Advocates in Public Affairs: Our Most Effective Communicators - Sam Bonavita, The Arc of
Gloucester (NJ); Frances Gargiulo, Melissa Thompson, and Irene Bollen of Liberty Arc (NY)

What’s Happening in Washington, DC – Paul Marchand, Marty Ford, Liz Savage, Janna Starr and Julie
Ward, The Arc and UCP Public Policy Collaboration

The Arc’s FAS Curriculum for Families – Module 1: FAS/ARND, Do You Know All You Need to
Know? – Shirley Roth, Madison, Wisconsin and Ann Wilson, The Arc of New Jersey

Supporting a Person with Difficult Behaviors/Supporting People Who Care - David Pitonyak, Imagine,
Blacksburg, Virginia

Recruiting and Training Direct Support Staff: Inclusive Recruitment Strategies – Marsha Egan, The
Noble Arc of Greater Indianapolis, Indiana, and The College of Direct Support: An American
Curriculum – Bill Tapp, College of Direct Support, Knoxville, Tennessee

Determination of Capacity: Sexuality and Health Care Decisions – Annie Wells, Tracy Marchese and
Michael Henderson, The Arc of Monroe County, Rochester, New York
Changing Lives – Success Stories of Technology Tools for Independence – Daniel K. Davies, AbleLink
Technologies, Colorado Springs, CO (may include self-advocate speakers)

Friday, November 19 – 9:00 - 10:15 a.m.
Jump Start Self-Advocacy! Adelaide Daskem, Sam Jenkins and Sid Katz, Jump Start Self-Advocacy,
Piscataway, New Jersey

The ABC’s of Special Needs Planning Made Easy – Bart Stevens, Bart Stevens Special Needs Planning,
LLC, Scottsville, Arizona

                                                                           Monday Morning Memo
                                                                              The Arc of California
                                                                      August 30, 2004 page 10 of 13
                                                                  Tony Anderson, Executive Director
FAIR Play: Inclusive Preschool Program Supported by Self-Advocate Volunteers – Sandra Nemar and
Susan Smith, The Arc of Union County, Inc., Monroe, North Carolina

Friday 10:45 a.m. - 12:15 p.m.
Housing –Ann O’Hara, Boston Technical Assistance Collaborative, and Creating a Permanent Stock of
Affordable Housing through the Development of a Statewide, Pooled Housing Trust – Lisa A. Mills,
Wisconsin Initiatives in Sustainable Housing, Inc. and Jim Hoegemeier, The Arc of Wisconsin,
Madison, Wisconsin. (Special session)

Medical/scientific presentation (To be arranged by Health Promotion and Disability Prevention
Committee)

Supporting Families from Diverse Cultures– Rebecca Shuman, The Arc of New Mexico

Ten Essential Skills That Everyone Needs to Know, Emily Doyle Iland, Santa Clarita, CA

The Arc’s FAS Curriculum - Module 2: Building Skills, Using Strategies & Finding Support – Melinda
Ohlemiller, St. Louis Arc, St. Louis, Missouri and Margaret O’Toole, Arc/Muskegon, Muskegon,
Michigan

Middle School Inclusion: From Law to Implementation – Kathleen M. Whitbread and Anne I. Eason,
Law Offices of Anne I. Eason, LLC, Norwalk, Connecticut and Getting Real with Special Education:
Making Sense Out of the System, - Elizabeth M. Shea, The Arc of New Jersey

Developing Youth Leaders: Kids as Self-Advocates – KASA

Insurance 101: What You Need to Know about Insuring Your Chapter – David Brennan and Joyce R.
James, Palmer & Cay, Inc., Savannah, Georgia

Self-Advocates Leading Self-Determination Change Efforts in Connecticut – Kelly Dorsey and Carol
Grabbe, Self-Advocate Coordinators, and Robin Wood, Self-Determination Coordinator, Connecticut
Department of Mental Retardation

Friday 4:00 - 5:30 p.m.
On Choice: Why It’s Important and How It’s Being Misused – Steven Taylor, Center on Human Policy,
Syracuse, New York (Special session)

Collaboration is Key: Creating the Right Supports for Offenders with Fetal Alcohol Syndrome while
Educating Across Systems – Joseph Amorosi, Denise Goobic and Ann M. Wilson, The Arc of New
Jersey

Empowering Individuals with Disabilities and Their Families to Make Significant Healthcare Decisions,
Including End of Life Care Decisions – Lawrence R. Faulkner, Westchester ARC, White Plains, New
York; Paul R. Kietzman, New York State Office of Mental Retardation and Developmental Disabilities,
Albany, New York; and Ben Golden, NYSARC, Inc., Delmar, New York

Brothers and Sisters of People with Special Needs: Unique Concerns, Unique Opportunities - Don
Meyer, The Arc’s Sibling Support Project
                                                                           Monday Morning Memo
                                                                              The Arc of California
                                                                      August 30, 2004 page 11 of 13
                                                                  Tony Anderson, Executive Director
Governmental Affairs Open Forum of The Arc's Legislative Goals for the Upcoming 109th Congress –
Governmental Affairs Committee and Public Policy Collaboration staff, The Arc of the United States
Interactive Workshop to Share Innovation in Chapter Fund Raising - Mike Coburn, Assistant Executive
Director – Development, The Arc of the United States.
The How and Why of Membership - Sue Swenson, Assistant Executive Director for Membership and
Program Services, Brenda Benson, Database Manager and Kate Minkiewicz, Membership Processing
Manager, The Arc of the United States.

The Rhythmic Arts Project – Eddie Tuduri, The Arc Ventura County, Ventura, California

A Chance to Parent – Parents with Cognitive Limitations – Judith Santa Maria, East Middlesex Arc,
Reading, Massachusetts and Susan Jones, The United Arc of Franklin and Hampshire Counties,
Greenfield, Massachusetts

Sat. 9 - 10:15 a.m.
When Therapy Isn’t Enough…Strategies for Children with Developmental Delays – Jerry and Jean
Felts, The Arc of Twin Country/Galax, Woodlawn, Virginia

Abuse in Our Lives: One Family’s Story of Resilience and Lessons for Others – Nora J. Baladerian,
The Arc of Riverside, California and Tammy Rattey, Cheryl Rattey and Mary Lynn, Boston

Retired and Inspired – Brenda High, Lemar Underwood (self-advocate) and Sandy Nemer, The Arc of
Union County, Inc., Monroe, North Carolina

Sat. 10:45 – noon
Special session on Self-Advocacy – Self-advocate groups from MA, CT, RI and perhaps NY (in
planning stages)

The Arc’s FAS Curriculum - Module 3: Advocating for Services and Supports – Lynne Frigaard, Arc
Northland, Duluth, Minnesota and Randy Costales, The Arc of New Mexico

Preventing Violence and Abuse Among People with Developmental Disabilities – Michelle Schwartz,
SafePlace, Austin, Texas; Leigh Ann Davis, The Arc of the United States; and Susan O’Connell, Arc
Southeastern Minnesota, Rochester, Minnesota

Walking the Talk: Converting and Nurturing Faith Communities to Inclusive Ministries with People
with Disabilities and Their Families – Bill Gaventa, UMDNJ-Robert Wood Johnson Medical School,
New Brunswick, New Jersey

Transition Strategies: From a Cruise Ship to a Dinghy: How to Make Sure You Stay Afloat During the
Transition from High School, Jo Ann Simons and Jon Derr, East Middlesex Arc, Reading,
Massachusetts and Getting a Life – Innovative and Effective Community-Based Transition Strategies for
Students with Disabilities, Laurel Peltier, The United Arc of Franklin & Hampshire Counties,
Greenfield, Massachusetts.

Getting Your Community to Step Up for The Arc - Celine Fortin, The Arc of New Jersey, Inc.

                                                                          Monday Morning Memo
                                                                             The Arc of California
                                                                     August 30, 2004 page 12 of 13
                                                                 Tony Anderson, Executive Director
Clearness Committee: A Process for Obtaining Clarity of Thought on An Issue a
Family Faces– Joan Nicoll-Senft, Central Connecticut State University

Medicare Drug Prescription Program and Impact on People with Developmental Disabilities – Beverly
Roberts, The Arc of New Jersey and Liz Savage, The Arc of the United States.

Fitness and Health – Shiela Swann-Guerrero, National Center on Physical Activity and Disability
(invited)

Sat. – 4:00-5:30 p.m.
Estate Planning for the Future of Your Child with Special Needs - Nadine Vogel, MetDESK




                                                                          Monday Morning Memo
                                                                             The Arc of California
                                                                     August 30, 2004 page 13 of 13
                                                                 Tony Anderson, Executive Director

				
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