Summer 2010 Teen camp 2010 Fun in the sun page 11 08 HeartKids take to the skies 07 Trivia nights, parties, catch ups and more 14 A special boy called Alex 2 Summer 2010 | Charter www.heartkidsnsw.org.au 3 cOntents Our team Newcastle Representatives HeartKids Leanda Blackmore NsW Board 2009/10 Chadlea_blackmore@bigpond.com Chairman 02 49472898 4 Ryan Payne Amanda Clarke Editor Vice Chairman email@example.com Jo-anne hui Our Allan Bruty Treasurer 02 49450522 Mid-west Sydney Design ian chong words from our chairman charter Stephanie King Lisa Chamberlin firstname.lastname@example.org Contributors Public Officer/HR Advisor 02 47733007 dawn everingham and ceo Erron Palmer neil mcwhannell Secretary Central West Representative VACANT Mardi Aplin kim mackie 6 news and events 11 ryan Payne WHo We are... Membership Secretary email@example.com 0416112885 karen sherlock VACANT mary bowie We are a children’s charity who are Belinda Strudwick donalda brown Merchandise Officer concerned with the care of children firstname.lastname@example.org lucy reggio VACANT 0407 238 214 born with or who acquire childhood General Committee kate guild heart disease (CHD). Des Hammond Tamworth Representative lisa white Ronnie Tullipan Rebecca Taggart teen camp 2010 Joanne Hansen email@example.com 0401 545 803 or 02 6760 3092 12 happy birthday oUr aims are... employees ACT Representatives TiNy TiCKERS BaLL 13 new members 14 Operations Manager VACANT When: 14th aug 2009 To provide various forms of support for Dawn Everingham Where: Sydney Hilton parents and families of newly diagnosed firstname.lastname@example.org Far North Coast Representative Cost: Members $160, heart children and ongoing support for 0420 364 125 Tracey Crutcher email@example.com Non-members $190 parents, children and teenagers with CHD. Family Support Coordinator 02 6551 4407 or 0410 469 961 (Westmead) Special for non-members, save 10% Kim Mackie Hills District Representative on tickets if you pay in full prior to firstname.lastname@example.org Maree Kennedy 30th of april. Sponsor packages We do tHis By... 0406 424 627 or 02 9294 0800 email@example.com 0419 607 863 or 02 9629 2552 available and will also receive 10% alex, my inspiration Senior Family Support Coordinator discount if paid in full by end of april. rovidingopportunitiesforfamiliesand •P (Randwick) Northern Beaches Representative To RSVP please contact Mary Bowie individuals to network with people in a Karen Sherlock Melissa Sare 0402 901 921 or 16 family support and heart angels 18 similar situation via our regional coffee firstname.lastname@example.org email@example.com firstname.lastname@example.org mornings, family events, teen camp, 0406 424 620 or 02 9294 0800 0410 233 455 Christmas parties, fundraiser events Fundraising Manager Far South Coast Representative and our all important in-hospital family Mary Bowie Kelly Ison support coordinators programme. email@example.com firstname.lastname@example.org 02 9427 1440 or 0402 901 921 0429 897 571 north syDney trivia night ncreasingcommunityawarenessofthe •I Bookeeper When: 20th Mar 2009 high incidence of CHD and its continuing Central coast Representative Liz Taylor Where: Our Lady of Good Counsel Hall, consequences. Alison Lawrence iaisingwithmedicalandhealth •L email@example.com firstname.lastname@example.org Currie Road, Forestville merry christmas 0411 541 127 4235 7242 professionals so that a greater appreciation To RSVP please contact Illawarra North Representative Donalda Brown 02 9453 2107 or 22 support heartkids may be gained from each perspective. regioNal 0419 402 399 ncouragingandsupportingresearch •E represeNtatives Craig Jackson and Tashan Clayton and acknowledgements email@example.com programmes aimed at the prevention, Bexley Trivia Night detection and management of CHD. Regional Coordinator 0423 489 430 When: 15th May 2010 23 heartkids merchandise Karen Sherlock Where: Bexley RSL Club firstname.lastname@example.org Illawarra South Representative 0406 424 620 or 02 9294 0800 Bernadette Bailey To RSVP please contact Karen email@example.com North Sydney Representative Sherlock 0406 424 620 or 0415 290 566 Disclaimer Donna Hammond firstname.lastname@example.org Please remember that the oPinions exPressed in any article herein rePresent email@example.com Coffs Harbour Representative Personal exPerience only. meDical Details 0412 924 582 or T: 02 9969 4951 are sPeciFic tO each inDiViDual case Jacci Chatterton anD maY nOt Be aPPlicaBle tO anOther South Sydney Representative firstname.lastname@example.org Mother’s Day Lunch anD PaMPer chilD. Parents who require more sPecific information should check with their child’s VACANT 0422 406 100 When: 6th May 2010 own cardiologist. also, Please note, that WHERE: Ground floor function room, Donation tins now available the oPinions exPressed in the articles herein, are those of the author and do Hunter Representative CoNtaCt Us Children’s Hospital Westmead Why not see if your local shops or business would not necessarily rePresent the beliefs Kylie Morley HeartKids NSW be willing to sit one on their counter? They are or oPinions of the committee, staff or email@example.com Heart Centre for Children To RSVP please contact a great way to raise awareness and funds for board members of heartkids nsw inc. all 02 4934 4444 Children’s Hospital Westmead, Kim Mackie 0406 424 627 or advertisements in this newsletter are Paid HeartKids. Please contact Dawn Everingham if you for and are not endorsed by heartkids. Locked Bag 4001, Westmead, NSW 2145 firstname.lastname@example.org would like a tin sent to you. Dawn.everingham@ www.heartkidsnsw.org.au bigpond.com or 0420 364 125 02 9294 0800 4 Summer 2010 | Words www.heartkidsnsw.org.au 5 WOrDs FrOm Our chairman Words from our ceO L ast month I had the pleasure of hospitalsandoffices.Thisisontopoftheir attending the inaugural meeting $60,000 donation to HeartKids Victoria, of worldwide charities focused derived through the national photographic on congenital heart disease. This meeting competition, won by Jo Larsen who took a exceeded my expectations in both its compelling photo of her son Zeke. content and outcomes. As a result of Canon Managing Director, Mr Kobayashi, this, HeartKids is now a member of the General Manager of Corporate Strategy, International Congenital Heart Coalition Shane McClelland and Manager of (ICHC). The group developed its vision and Corporate Communications, David mission, along with a range of goals for the Klineberg present HeartKids CEO with coming year. some of the new equipment. Key areas of interest to Australia were • Australian Surgical Design and the focus on life-long care, with particular Manufacture (ASDM) which will donate emphasis on transition services. In addition a percentage of all their sales of some of the group will try to obtain travel and their products to us. medical insurance, whilst ensuring people with congenital heart defects can enjoy full Heart Beads lives with the same employment and rights This concept was hello everyone, as the rest of the population. originally developed i hope that you have all had a healthy and happy summer The meeting provided delegates the by Lexi Dengler so far. christmas 2009 and the new year has flown by opportunity to highlight their country’s at Westmead and heartkids nsw is now settling into a busy 2010. organisation, structures, goals, major Children’s Hospital heartkids has 2010 planned with a variety of issues etc whilst also including sessions and has been so events such as chd awareness month in february, on fundraising (successes and lessons well received that a heartkids dragon boat team race at the chinese learned), awareness, helping families and HeartKids is now new year festival at darling harbour on february 28th, patientsmanagetheirhealthandfindcare, working to expand a trivia night planned in manly and the annual tiny influencinggovernmentanddeveloping and fully fund the tickers ball on the 14th august, just to name a few. health policies. program right across if anyone wishes to hold an event and/or fundraise In addition to these sessions, we also the country. The program on behalf of heartkids, please contact dawn developed strategies, working groups, provides children with everingham and mary bowie on email@example.com. desired outcomes for a range of key a variety of attractive beads au. activities such as these make a critical contribution activities and a governance team to take the that celebrate and track their heart to us being able to sustain and expand our services to organisation forward. journey. These are shown to be a great our members and we appreciate these events a great incentive for children and their parents and deal. New sponsors become treasured items. It is hoped we will the heartkids board currently has vacant positions In recent weeks we have been delighted have these in all major children’s hospitals and if anyone would like to join our board, please send to gain the support of two new corporate early in the New Year. any expressions of interest through to me on my email partners. These are: address firstname.lastname@example.org. • Canon Australia which has already Ronald McDonald House Charities everyone is back from a well-needed break over the donatedasignificantamountofcamera offering support to HeartKids new year and now we are planning and ramping it up and printing equipment for use in state I recently had the pleasure of meeting the in earnest. welcome back to the heartkids staff karen, CEO of Ronald McDonald House Charities. to enjoy some respite. Although bookings and whilst often taken up by cancer patients, kim, dawn, liz and mary. Malcolm Coutts informed me of a number of in holiday periods are always strong, there are available to HeartKids if space allows. i sincerely wish all of our members a healthy 2010 new programs and initiatives that they have are numerous places available during school To learn more about these programs or to and heartkids nsw looks forward to achieving great developed that are open to HeartKids and terms and weekends. apply, simply call 1800 307 642 or log onto things with you and for you, throughout the year. their parents to use. These include: • RMHC – Charlie Bell Scholarships their website:www.rmhc.com.au • Ronald McDonald Learning Program Thesescholarshipsprovidefinancial This program involves one-on-one tutoring assistance towards vocational studies for best regards provided at the child’s own school. With those who have experienced serious illness. ryan Payne CHD being shown to affect the learning of This will hopefully allow these children to children in up to 50% of cases, this could be fulfilltheircareerdreamsandareavailable a great program to assist our children with to help with university fees, apprenticeship anylearningdifficulties. tools, books etc. • Ronald McDonald Family Retreats • Ronald McDonald Houses These superb holiday homes are situated RMHC now has 13 of these houses right around the country and are available throughout the country. These are available Neil McWhannell to families who have had a seriously ill child to those over 100km away from their home CEO HeartKids Australia 6 Summer 2010 | News and Events www.heartkidsnsw.org.au 7 news &events Diary Dates COFFEE MORNiNGS aT CHiLDREN’S hosPitaL WestMeaD When: First Tuesday & third Thursday of the month Where: Playroom, Edgar Stephen Ward What a swing RSVP: Kim Mackie 0406 424 627 northern syDney trivia night Cake, coffee and tea will be provided. Feel free to bring your own drink and other nibblies. lady anne funerals proudly When: Saturday 20th March, 7.30pm sponsored a charity golf day Where: Our Lady of Good Counsel Hall Currie Rd, Forestville held at ryde/Parramatta golf club in december for Cost: Tickets are $25 heartkids. it was a perfect RSVP: Donalda Brown (02)9452 2107 or day for golf and the course 0419 402 399 was in great condition. a COFFS HaRBOuR COFFEE MORNiNG few of us from heartkids attended the lunch and had thank YOu Date: TBa Please contact Jacci Chatterton 0422 the pleasure of meeting canOn! 406 100 to register your interest karen laing, director of As Neil mentioned in his column, BExLEy TRiVia NiGHT lady anne funerals and Canon very kindly donated to our FSC **Volunteers Required*** a camera and printer for use while When: Saturday 15th May her wonderful team. over visiting our families in hospital. This is Where: Bexley RSL $5,000 was raised with all a great opportunity to capture special 24 Stoney Creek Rd, Bexley funds going to kids heart moments and present the family research at the children’s with a photo on the spot. Both the RSVP: Karen Sherlock 0406 424 620 printer and camera are very easy to or email@example.com hospital westmead. a huge thank you to all involved use. Here is Becky Howell, receiving TiNy TiCKERS BaLL a photo of her family from family When: 14th aug 2009 from the club and lady support co-ordinator Karen Sherlock. Where: Sydney Hilton anne funerals. Cost: Members $160, Non-members $190 Karen Laing (Lady Anne Funerals) Dawn Everingham, To RSVP please contact Mary Bowie Lisa & William Chamberlin, Donna Hammond 0402 901 921 Mothers Day iN memory of WelCome to oUr NeW Lunch anD PaMPer david smitH regioNal reps In October last year, a group of cyclists Mothers will be treated with mini pampers, coffs harbour central West from URS Corporation rode from Hornsby lucky door prizes, raffles and a delicious to Newcastle and back again in two days we welcome Jacci chatterton as we welcome mardi aplin and belinda the new coffs harbour regional strudwick as the new central west lunch and some lovely items for sale to raising funds for HeartKids in memory including handbags, jewellery, beauty of colleague and friend David Smith, who representative. Jacci is very keen regional representatives. mardi is to have some get togethers for from orange and belinda is from products and more. passed away recently. Over $11,000 has been raised so far, with more to come from heartkids families in and around the dubbo. both would love to host a When: Thursday 6th May, 11.00- 2:30pm region. Jacci will let members know few meet-ups and organise some afinalauctionofprizes.HeartKidswould Where: Ground floor function room (behind like to thank URS for their support. about the next event very soon. fundraising events in the region, with Please feel free to get in touch with a tiny tickers orange ball on 11th cafe) Children’s Hospital Westmead Jacci if you are keen to be involved september. if you’d like help out or COST: $15.00 per person. Heartmums or would just like to chat. here are wish to attend a get together please staying in the hospital can attend her contact details: 042240610; let them know. contact mardi on for free. firstname.lastname@example.org 041611288; email@example.com. RSVP: Kim Mackie 0406 424 627; kim. contact belinda on 0407 238 214; firstname.lastname@example.org Ryan Payne and the team from URS email@example.com 8 Summer 2010 | News and Events www.heartkidsnsw.org.au 9 news &events QaNtas JUmBo mystery fligHt a few heartkids were lucky enough to be invited to enjoy a mystery flight on a qantas jumbo. organised by the rotary club of turramurra and qantas staff, kids from various charities were taken on a one-hour flight over sydney, flying at only 2000 feet. at the completion of the flight, the children enjoyed a party with all sorts of food and goodies. blake, vinnie, Jake, caitlin and brittany all had a Saturday 20th March wonderful time on the day. Jennifer Perkins, whose son vinnie had a ball on the day, thanked heartkids for giving him 2010 the fabulous opportunity to go on the jumbo jet. similarly, susan sullivan, mother of heartkid blake, expressed her gratitude to heartkids. 7.30pm “what a great day we had for it, the sky Our Lady of Good was so clear! thanks again for giving blake the opportunity to have this wonderful experience and also meet more heartkids,” she said. Counsel Hall starlight escaPes Currie Road, Fun Flights Forestville by Donalda Brown Last year, Starlight Escapes invited some luckyHeartKidsfamiliesonafunflightat BYO drinks, nibblies and glasses Bankstown airport in November, along with families from other charities. It was a day where the children could let their hair down. Many activities were provided for the children, such as a jumping castle (which was kindly funded by HeartKids Kate, Damien, and Jared Guild waiting for take off Tea/coffee and cake provided and a huge hit), balloon making, a colouring competitionwithprizes,andafireengineand While the children were Joel, Scott & Riley Brown police car where the children could explore obviously disappointed, about to board and have photos taken. A very talented dancegroupalsogracedthefloorforthe kids’ entertainment and a yummy BBQ was they did get to taxi around the airport and Tickets $25pp provided with plenty of food to go around. a few lucky kids had the Unfortunately, due to poor weather and poor visibility, the planes did not get off the opportunity to co-pilot ground. While the children were obviously the plane while taxiing. disappointed, they did get to taxi around the airport and a few lucky kids had the opportunity to co-pilot the plane while taxiing. would like to take this opportunity on behalf of the families to say a huge thank you to RSVP to Donalda Brown Despitetheweatherandtheflightsbeing cancelled, the children still had a great day. I HeartKids and to Starlight for hosting such a fun day for the children. on 9452 2107 or 0419 402 399 Watershed Premium Wines Mail Order Form F Watershed Premium Wines hail from one of the most famous wine making Deli REE regions in Australia, Margaret River. Located in the South West of Western any very to wh Australia, it is an area renown for the production of world-class wines and Aus ere in has been at the forefront of the success of the Australian wine industry. tral ia This year, Watershed will donate $10 to HeartKids for every case of wine purchased from the Shades range and $20 to HeartKids for every case of wine purchased from the Senses range. Retail/bottle HeartKids/bottle Retail/case Heartkids/case Quantity Sub-total ($) T Teen camp he sixth annual HeartKids Teen For many teenagers, the 2010 Teen HeartKids Wines (Shades Range) 2004 cabernet merlot shiraz $16.95 $15.26 $203.40 $183.06 Camp was recently held in Brisbane Campwasthefirstcamptheyhadeverbeen 2010 with over 100 HeartKids, siblings allowed to attend, due to the complexity and 2007 unoaked chardonnay $16.95 $15.26 $203.40 $183.06 and supervisors from around the country seriousness of their condition. Many had 2007 grenache shiraz $16.95 $15.26 $203.40 $183.06 in attendance. also never been apart from their parents or 2007 merlot $16.95 $15.26 $203.40 $183.06 The camp was generously supported by flownonanplane,sothereweremanynew 2007 cabernet franc $16.95 $15.26 $203.40 $183.06 Variety Clubs from around Australia and by experiences for all. 2008 sauvignon blanc semillon $16.95 $15.26 $203.40 $183.06 Roche Diagnostics and held at the YMCA HeartKids was most appreciative of the 2008 chenin $16.95 $15.26 $203.40 $183.06 Warrawee, located in Jovner about half support of our national sponsors. Pasta an hour from Brisbane. Master provided a meal and a $30 CD 2008 rosé $16.95 $15.26 $203.40 $183.06 The annual event proved to be an voucher for all campers and Manchester sweet margaret $12.95 $11.66 $155.40 $139.86 outstanding success, with the overwhelming Unity provided carry bags and drink bottles Wines (Senses Range) sentiment being that it was by far the for everyone. 2004 cabernet merlot $24.95 $22.46 $299.40 $269.46 best held. Teens enjoyed a full program For more photos and an account 2005 shiraz $24.95 $22.46 $299.40 $269.46 of activities that included a giant swing, by two of our supervisors Donna hanging vines, low ropes, canoeing, raft Hammond and Donalda Brown, 2007 viognier $24.95 $22.46 $299.40 $269.46 building and water volleyball. please see our next edition. 2008 sauvignon blanc $24.95 $22.46 $299.40 $269.46 ToTAl Top Over 100 HeartKids, siblings and supervisors from around Personal details Australia took part in the Teen • leaseorderinmultiplesof12bottles P Camp this year. Name: Left Emily and Belle having some (12 bottles per case). Delivery address: fun in the sun. •Mixedcasescanbeordered. Below This year’s Teen Camp was •Ordersaremetsubjecttoavailability. State: Postcode: declared an outstanding success A • llpricesincludeGSTandmaybechanged by NSW attending teens. Phone: Mobile: without notice. P • leaseallowupto10workingdaysfrom Payment details date of despatch for delivery. To use your Credit Card (please tick 3 type of card) P • leasenotethatAustraliaPostisunable to phone before delivery. o Visa o Mastercard o Amex W • inecanbeleftwherespecified,however Credit Card No: Watershed is unable to accept responsibility for any losses incurred. ___ /___ /___ /___ / ___ /___ /___ /___ / ___ /___ /___ /___ / ___ /___ /___ /___ / Expiry Date: Signature: CVC (three numbers at the back of the card) ___ /___ /___ / Date of order: delivery instructions (please tick 3 one) o leave card if no-one home (for collection at post office) FAx yOuR o leave (please tell us where) ORDERS TO: would you like to be a member of watershed wine club and receive (via email) access to special promotions (08) 9757 3999 Email: 12 Summer 2010| Birthdays www.heartkidsnsw.org.au 13 Happy Birthday december 2009 to february 2010 a big WeLcOm Fatima El-Cheik Hussein 18-Dec-96 SIBLINGS Lauren Van Deyk 14-Feb-95 december Charly Mildenhall 20-Dec-04 Dean Ring 1-Jan-99 Thomas Randall 15-Feb-99 to all oure HEARTKIDS Navine El-Cheik Hussein 22-Dec-95 Rose Saunders 1-Jan-01 Levi McCormack 17-Feb-04 Hannah Martin 2-Dec-93 Aliza Khan 22-Dec-06 Nadia Azzopardi 3-Jan-90 Blake Sullivan 17-Feb-96 Angus Reay 2-Dec-02 Harry Reay 23-Dec-99 Patrick Achurch 3-Jan-01 James Ireland 18-Feb-03 Curtis Flemming 3-Dec-01 Andrew Papadatos 25-Dec-95 Olivia Pereira 4-Jan-00 Shianne Minogue 19-Feb-99 neW Zahide Gunes 4-Dec-03 Madisyn Moon 26-Dec-04 Jeremy Rooke 4-Jan-00 Amelia Donnelley 21-Feb-03 Cooper Hanrahan 4-Dec-07 •Donna and Charbel Abourad from Mickayla Raynes 26-Dec-04 Flynn Day 4-Jan-06 Sidney McDonnell 21-Feb-08 members Sarah Howlett 4-Dec-08 Wiley Park with their heartchild Rita who Alexandra Ansett 27-Dec-92 Neyfa Taleb 4- Jan-08 Shannon Stevens 21-Feb-00 Simon Jarman 4-Dec-07 ! Arrabella Beal-Attwood 27-Dec-01 Jake Fuller 5-Jan-05 Jake Clunas 23-Feb-09 has TGA, ASD and VSD Eva Cole 7-Dec-06 Connor Jones 27-Dec-98 Jaysen Everson 6-Jan-00 Ben Fitzgerald 23-Feb-09 •Mirna Haddara and Ishi Musseme Ela-Rose Allen 10-Dec-05 Grace Chamberlin 28-Dec-00 Matthew Brown 7-Jan-04 Isabella Sheehan 24-Feb-03 Jaiden Pouicha 11-Dec-03 from Bankstown with Damour, Imogen Frawley 29-Dec-93 Belinda Smith 7-Jan-07 Jake Elliott 26-Feb-93 Joel Bird 11-Dec-05 Zachariah, Leila and their heartchild Holly Keeble 29-Dec-03 Jasmine Matthews 8-Jan-94 Edmond Huang 26-Feb-06 Haydon Fitzgerald 12-Dec-08 Celina who has HLHS. Laura Campbell 31-Dec-00 Emily Holloway 8-Jan-02 Lauren Clifton 27-Feb-89 Alexandro Smitala 12-Dec-02 Leesha Predebon 9-Jan-96 Owtn Coetsee 27-Feb-08 •Fatma Nouredine from Bankstown Morgan Norris 15-Dec-99 Matthew Gerlach 9-Jan-05 Alexandra Waterworth 28-Feb-94 Eboney Moon 16-Dec-98 January Damian Buckley 10-Jan-96 with Mahmoud and her heartchild Isadoroa Totonjian 17-Dec-08 HEARTKIDS Ibrahim who has DextroCardia/Situs Liam Dawes 10-Jan-00 SIBLINGS Holly Jayne Pereira 20-Dec-06 Morgan Ashbourne 2-Jan-01 Inversus, Tetralogy of Fallot/ASD/VSD and Charlotte Meekings 10-Jan-03 Erin Holman 1-Feb-02 Mackenzie Berge-Smith 21-Dec-01 Kyle Hogan Whitehead 4-Jan-01 Paul Ansett 13-Jan-98 Harrison Panagopoulos 1-Feb-04 Pulmonary Atresia. •Sheryl and Joe Martin from Mullaley heartchild Casey who has Bicuspid Dean Kenny 21-Dec-06 Attis Sedain 4-Jan-06 Kyle Hogan Hogan 14-Jan-89 Emily Brown Brown 2-Feb-99 •Simon Tagg and Shantelle O’Leary with their heartchild Archie who has SVT. Valve and Coartation. Charlie Andrews 22-Dec-05 Amy-Kate Sales28-Jan-04 Ryan Mason 14-Jan-02 Mikayla Grosvenor 2-Feb-07 from Caringbah with their heartchild •Zlate and Kristine Tasevski from •Noel and Kanna Quizon from Michael Maccioni 22-Dec-05 Glen Dawson 5-Jan-79 Taelah Davies 14-Jan-04 Tristan Lamb 2-Feb-99 Harrison McWhirter 23-Dec-02 Coralie Thurlow 6-Jan-86 Marley who has an ASD. Rockdale with Thomas and their Rydalmere with Emily, Anthony and their Emma Langan 15-Jan-00 Christie Norris 2-Feb-99 Mitchell Grosvenor 27-Dec-04 Charlie King 6-Jan-07 •Belinda and Mark Peychers from heartchild Alysse, who has ASD. heartchild Andrew who has ASD and VSD. Mike Lawrie 17-Jan-91 Prudence Tierney 2-Feb-87 Jet Wan 27-Dec-07 Shaeli Roach 7-Jan-06 Carolyn Kelly 18-Jan-03 Elli Lou Turvey 2-Feb-93 Portland with their heartchild Ayden who •Cindy-Lee Carmody from Jesmond •Tania and Mark Batten from Bargo with Joseph Nolan 27-Dec-08 Josef Norris 9-Jan-06 Katie Zerafa 19-Jan-91 Charlie Manwaring 5-Feb-07 has sadly passed away. and Lucas Mason from Stockton with Christopher, Richard and their heartchild Tonya Kerr 27-Dec-04 Jessica 10-Jan-07 (surname Jack Murdoch 19-Jan-09 James Kenny 6-Feb-05 •Joanne Vidovic and Corey Seth-James and their heartchild Zeke, Joshua who has Tetralogy of Fallot. Savannah Hutchings 29-Dec-08 withheld) Hayden Van Deyk 20-Jan-00 Michael Rawlinson 8-Feb-94 Jarred Duarte 29-Dec-04 Sophia Lusk 17-Jan-06 Jeffrey from Boggabri with Byron who has sadly passed away. •Renae and Heath Downie from Alyssa Heilborn 21-Jan-00 Charlee Irvin 9-Feb-93 Olivia Searle 29-Dec-05 Daniel Madsen 18-Jan-92 and their heartchild Jordana who has •Jessica Pearce and Joshua Pettigrew Maryland with Liliane, Teghan and their Ben Clark 22-Jan-96 Louisa Jachim 11-Feb-97 Kiara Peachey 29-Dec-06 McKenzie Wright 19-Jan-06 Angus Crane 23-Jan-06 Hamish Stevens 11-Feb-97 VSD and Pulmonary Valve Stenosis. from Ultimo and their heartchild heartchild Jackson who has R Aortic Arch Krystal Marshall 30-Dec-93 Julia DiFrancesco 19-Jan-09 Alice Moore 25-Jan-01 Kyara Buddle 12-Feb-02 •Kathryn and Sean Minogue from Callum, who has ASD with distortion of and 2 Aortic Rings removed. Isabella Masciotra 30-Dec-04 Noah Masaga 19-Jan-09 Joel Williams 25-Jan-06 Taylor Dell 12-Feb-04 Blaxland with Khaila, Allana, Raurie the Aortic Valve. •Greg & Barbara Exton from Revesby Jade Burns 31-Dec-82 Bella Murdoch 19-Jan-09 Joshua Klein 31-Jan-89 Emily Frost 13-Feb-92 Megan Lawler Lawler 31-Dec-06 Cody-Lee Cotton 20-Jan-99 and their heartchild Shianne who has •urzula Lusk from Ashbury with her with Jack and heartchild Ben, who has Jordan Ramirez 31-Jan-97 Harrison Doran 16-Feb-00 Chris Dawson 21-Jan-80 Tetralogy of Fallot. heartchild Sophia who has dilated Ventricular Tachycardia. Patrick Pearson-Achurch 3 Jan 01 Raiyan El-Cheik Hussein 16-Feb-01 SIBLINGS Janice Ng 21-Jan-97 Samuel Moore 18-Feb-97 • Samantha Hughes Murphy and Shaun cardiomyopathy, complete heartblock, •Anthony and Christine from Oak Flats Sarah Lamb 1-Dec-87 Bryce Duell 21-Jan-98 William Attwood 19-Feb-06 Murphy of Marayong with Chelsea and Pacemaker, Tricuspid Valve Regurg and with heartchild Justice who has CHD. Ayannah Youlten 2-Dec-06 Lucas Bazzano 21-Jan-08 february Bianca Peck 19-Feb-03 Jayden Bird 3-Dec-08 Marc Spanos 22-Jan-08 HEARTKIDS their heartchild Georgia Lily, who has Ventricular Dilation. •Tanja Blunschi and Michael Gebauer Abbas El-Cheik Hussein 20-Feb-98 Blake Morrison 3-Dec-01 Sienna Matthews 23-Jan-08 Brooke Holman 1-Feb-02 Coartctation, VSD and recent Endocarditis. •Katie and Daniel Clunas from Coffs from Steeple Flat with Heartchild Connor Tara Stevens 20-Feb-95 Teghan Downie 6 Dec 06 William Chamberlin 25-Jan-07 Stephanie Re 1-Feb-02 •Skye Duncan and Nigel Duthie from Harbour, parents of Kyra and their who has DORV, VSD, ASD, TGA, and Violet McDonnell 21-Feb-08 Jordan Gibb 6-Dec-07 Madison Newman 25-Jan-05 Ruby Rolfe 1-Feb-08 Chanel Estephen 22-Feb-94 Walgett with their heartchild Angus who heartchild Jake, who has Tetralogy of Fallot. pulmonary valve stenosis. Aiden Howlett 8-Dec-00 Holly Saunders 26-Jan-03 Jamie Langan 4-Feb-02 Amelia Cameron 24-Feb-06 has Tetralogy of Fallot. •Lousie Ballard from Weston with •Montha Khompatlub and Oliver Harry Larkin 8-Dec-04 Amy-Kate Sales 28-Jan-04 Riley Brown 6-Feb-04 Cooper Mangan 24-Feb-05 •Karly and Glenn Rogers from Orange Glenn, Chris, Peter, Crystal and their Staats from Wollstonecraft with Heartchild Chloe Thurston 8-Dec-05 Noah Davis 30-Jan-05 Tara Payne 8-Feb-03 Jordan Uhr 24-Feb-98 Maya Hawkins 9-Dec-05 Jayla Lee 30-Jan-06 Toby Wardell 8-Feb-00 with Cameron and their heartchild Hayley heartchild Ryan who has Bicuspid Aortic Leonardo who has TGA. Ishaa Nasir 25-Feb-04 Michael Irvin11-Dec-03 Nicholas Reed 30-Jan-07 Jack Morris 10-Feb-04 who has Bicuspid Aortic Valve Syndrome. Valve and Aortic Stenosis. •Tevfik and Nejla Gunes from Lake Jayden Norris 25-Feb-98 Tully Millar/Strudwick 13-Dec-07 Joshua Daveys 31-Jan-09 Ibrahim Abdulkader 10 Feb 08 Charlie Howell 26-Feb-98 •Barry Watkins and Sandra D’Souza •Maria and Rick Vermunt from Heights with Zahide, Osman and John Tullipan 15-Dec-07 Ibrahim Nouredine 10-Feb-08 Zac Youhana 26-Feb-00 from Banksia with their heartchild Allegra Hurstville Grove with Andrew, Dylan, heartchild Jihad. Jett Stevens 16-Dec-05 Harryson Rits 11-Feb-07 Darci Eden 27-Feb-01 who has Truncus Arteriosus. Ethan and heartchild Ellis who has PDA, •Cheryl and Ian Flannery from Marayong Lily Gehrig-Pinchen 12-Feb-04 Grace Bull 13-Feb-03 •Jacqui and Chris Baker from VSD,ASD, Congenital Tricuspid Stenosis and with Joshua and heartchild Sonia who has Jacqueline Nguyen 14-Feb-07 Toongabbie who are expecting their Discordant Ventriculoarterial Connection. Transposition of the ventricles. Jacob Thurston 14-Feb-08 heartchild who has HLHS and VSD. •Alisor and Khaled Taleb from Guildford •John Fairgray and Kate Reader from •Kate and Alan Guild from Baulkham with Sumaiya , Neyfa and their heartchild Wollstonecraft with heartchild Rose who Hills with Damien and their heartchild Shahed who has Pulmonary Atresia, VSD has TGA. Jared, who has ASD, VSD, Pulmonary and PDA. Judith Anne and Michael Greaves of Valve Stenosis and SVT •Julia and Tony Re from Roseville with Rankin, grandparents to Benjamin who •Grant Smith and Rebecca Dunn from John, Nick and their heartchild James has TGA, complete heartblock, Pacemaker, MayfieldwhohaveAidon and their heart who has Epsteins Anomaly and ASD. Tricuspid Valve Regurg and Ventricular children Sara and James, who sadly •Jacci Chatterton from Coffs Harbour Dilation. passed away. with Amber, Billie and her 14 Summer 2010 | Alex Reggio www.heartkidsnsw.org.au 15 Alex, my inspiration Lucy Reggio shares the story of her very special HeartKid, Alex. Throughout the whole experience Alex was our absolute tower with special needs, and has proven to be an inspiration to many. He t of strength and inspiration, he gives those around him courage and is not shy about sharing his story, and is not embarrassed to show his is just a fraction of our story about our son Alex. Alex is our very special child with special needs. He throughout the whole valuable lessons about striving, winning, losing and trying again! A very caring representative from HeartKids approached me off his “zippered chest”. His idol is Jimmy Barnes now, as he also underwent a similar surgery. has a global developmental delay as well as a heart condition but with an inspirational personality. experience alex was our during our hospital stay and assisted with information on the availability of certain hospital services. HeartKids were very helpful I don’t know what the future will hold for Alex, but I cherish each day as a precious memory, and I know that HeartKids will be there to At the age of six weeks, Alex was diagnosed with absolute tower of strength by giving parents like me a network of support. support each step, as needed. a heart murmur but it was not a concern at the time. However,itturnedouttobenotsoinnocent.WhenAlexwasfiveyears and inspiration. Today, Alex plays in a soccer program for children with special needs, which I help coordinate in our local area. To this day I still congratulate HeartKids, on their continued support that they give to our special children and their families. old, after consultation with cardiologist Dr Deidre Holley, we were told Alex has since competed in a Special Olympics statewide soccer A great moment was shared recently, when I hosted a morning that he had narrowing of the aortic artery and would possibly need couldn’tfindthewordstorespond,aswefounditextremelydifficult tournament, where he proudly had the privilege of being involved tea, to give the community an awareness of Heart disease in children. open heart surgery. in remaining strong. with the Torch Run and the lighting of the cauldron. The support and interest was overwhelming! Words can never completely describe how you feel when you are Alexhadundergoneotherminorsurgeries,butthefiveandhalf Alex has also been part of various inaugural events for children Thank you for reading my son’s story. faced with this news, but so many families face these types of realities hours of major surgery was the hardest challenge as parents that we each day of their child’s lives! have had to undergo. I simply did not know what to say, nor could I retain any information. I called my husband from the doctors’ room and Dr Holley explained the diagnosis to my husband Bob and I. Fortunately Alex was Finally that pager that we’d been staring at for hours lit up, which meantthatwecouldfinallyseehim.OnourwaytoICUwesawDr Nunn. Bob was so relieved to see him that he didn’t know whether Lucy Reggio families have also benefited with the inclusiveness shown on a whole.” lucy has worked on the following a special needs organisation for social and recreational programs for people of all ages with special spared from surgery at this time and underwent yearly examinations. to shake his hand or give him a kiss on the lips. Bob turned into a programs needs / disabilities. lucy also ran the In 2006 when Alex was nine years old we were expecting our marshmallow and melted as he saw his son hooked up to life support. lucy Reggio Alex’s Mum was recently Football 4 all committee which was first group of special needs children annual check up to be routine. However it was then that I was dealt The next 48 hours in the ICU were critical, as we waited helplessly decorated with an Australia Day an inaugural soccer gala day with about through their religious sacraments; the news that he would need open heart surgery. The waiting time for Alex to respond. Seeing his eyes full of tears, we felt guilty and felt medallion. The award is an accolade for 200 special needs soccer players from reconciliation, holy communion and between receiving the news and undergoing surgery was extremely his pain. It was only as the last of many tubes was removed that Alex her volunteer work with the community around Sydney. lucy is the founder and confirmation at her local parish, and difficultandwehadsomanyfearsoftheunknown.Myhusbandand commented, “No more hurt mummy?” for people that are disabled. coordinator for some inaugural special will be running another group this year. I would just walk around in a silent daze. We both decided to keep the Alex spent 10 days in total at hospital. The support from the Dr lucy says “As I have a child with needs recreational, and a sacramental If you are interested in finding out news to ourselves, which was hard, due to Alex’s needs. Nunn, Dr Cooper, and the staff was very reassuring. Alex did suffer special needs, I have advocated program within the area. about any of the programs lucy is The day of surgery arrived on September 23rd 2006. Alex was with a fever and a wound lesion during his stay. Upon his recovery at to promote an awareness and Namely, outdoor soccer, indoor involved in please contact HeartKids so innocent and unaware of what is about to occur, he went into home,healsodevelopedfluidonthelungs,whichDrHolleyandDr inclusiveness for children with soccer, ten pin bowling, multi game/ on 02 9294 0800 or theatrewantingconfirmationthathewillonlyhaveonebandaid.We Nunn monitored and quickly took care of. special needs. It has shown that their skills. She recently incorporated firstname.lastname@example.org 16 Summer 2010 | Family Support FamilY suPPOrt neWs raNdWiCK member Updates Hello again, and welcome to all of our new On 4th November angus Duthie was in at CHW since been back to CHW for families. Once again, I spent some time over Becky howell for his surgery he is now back some investigations and we hope at Westmead Children’s in January while underwent a Fontan at home with Mum and Dad in she gets back home very soon. Kim was on leave. It was nice to visit the procedure and had Walgett, stay well. families there and catch up with the staff a lengthy recovery Jordan mildenhall was in for again. I’m now back at Randwick, where we period. “Justine Clarke Ben exton has had a long stay another surgery with mum and (Playschool presenter in SCH and then onto CHW. He dad by her bedside in PICU she have just been able to get back into the ward and actor) made a started his “big school” lessons is now home and doing well. C2 South. December and January saw the cardiac patients spread special trip to the at the hospital schools – it was a Good on you Jordan. all over the hospital while renovations took place in some wards. Becky Howell with Justine Clarke at Edgar Stephen Ward, different way to start big school Please don’t forget to let me know if you are going into Randwick the Children’s hospital Westmead Westmead Childrens but Ben is enjoying it. We wish terri-anna Papaiaoannou for surgery or monitoring so I can try and catch up with you. Please Hospital on 21st January after viewing a YouTube you well Ben and hope you get was in for her next surgery with video of Becky Howell singing her songs in the Starlight back home soon. mum and dad by her bedside keep those updates and photos coming in. We love to hear from you Room. The two sang duets from Justine’s album to the in PICU she has recovered well and know how all the HeartKids and their families are going. delight of the crowd and can be seen on www.youtube. krystal crutcher now 16yrs and back home with her family. If you are interested in a regional rep role please call me. If you com/use/Howeller68. went to Westmead Private this Great work Terri – Anna. have already a rep in your area, please get in contact and let them Becky’s parents, Angie and John, brother Charlie time for another surgery. She know what events and activities you’d like to be involved in or just to and sister Ashley are thrilled to have Becky home after did really well and both Krystal coralie thurlow one of our a long hospital stay.Congratulations Becky we wish you and her Mum Tracy were glad adult heartkids has had a very have a chat. long stay at Westmead Adults all the best. to get back to Chatham with the Don’t forget to keep us updated if you change your email address - family. Stay well Krystal. she is being very brave through FIRST DAy oF BIg SCHool it is the easiest way to let you know of any local events in your area. alicia Vukovic was only home for a short time and Coralie Thurlow one of our adult her ups and downs, we are lots of our heartkids started big school this year with came back and had her 2nd stage surgery earlier than heartkids has had a very long thinking of her and all her mum’s and dad’s waving them goodbye and fighting back If you don’t receive our monthly e-newsletter, please go to the expected. She delighted everyone by recovering well and stay at Westmead Adults she is family, stay strong and get well the tears of sadness (or of joy). they have conquered HeartKids NSW website (www.heartkidsnsw.org.au) to register and is now at home with her big brother. Stay well. being very brave through her soon Coralie. yet another major milestone in their lives – well done to keep up-to-date with the latest news and events. ups and downs, we are thinking all the new kindergarten heartkids we hope you have a I look forward to seeing some of you at our family camp. Let’s hope Kim bumped akiko and Yuna shima in the hospital of her and all the family,stay ibrahim abdulkader was in for coming in for a checkup. It’s lovely to see our babies great first year of school! it’s even more fun than last year – is that possible?! strong and get well soon Coralie. his surgery which went well and getting bigger and growing as they’re supposed to. is now home with his brother. (photos of new kindergarten heartkids daniel sherlock, Keep well, hayley rogers had her surgery Stay well casey chatteron and Joel cunningham) Karen Sherlock senior family support Coordinator levi mc cormack was in for a quick visit and is doing early January and went home 0406 424 620 well. He is now the big brother to a new baby sister to her family in orange. She has Keshia. Westmead Heart Angels ethan Johnson was in for his surgery which went well and is now back home. We wish him a continued Happy New Year to you all. I hope you recovery. survived the Christmas period in one piece and have enjoyed your holidays. I had a alexander murray made it home and then popped month off with my family down the south back for a quick visit, but is now at home where everyone wants him to stay. His big sister Ellen loves coast and thoroughly enjoyed the break. Life continued at CHW with Edgar having her brother to play with. All the best. We remember: We wish to pass on Stephens being quieter over Christmas and still not too busy at the moment. The carpet is being replaced all through Jade Windsor came in for his surgery and stayed a little longer than planned, but has since made it home and we Abigayle Smith 02/9/08 – 1/12/08 our deepest sympathies to: CHW with vinyl and it looks lovely, fresh and clean. A small amount wish him all the best for a continued recover. Our hearts and thoughts go out to Rebecca all the Smith family in their Kate and Will and all their family of progress has been made in the planning of the Parents’ Retreat georgia lily murphy has been in for treatment for an time of remembrance. in loving memory of their heart room on the ward with Gabbie (NUM) and I pouring over paint charts infection over the Christmas period, she has since gone angel Willow Shannon Spring-Lewis: and looking at carpets and furniture. We hope to have things started home and we wish her all the best. Andrew Bennett 20/10/00 – 15/01/04 29/03/2009 – 08/01/2010 very soon. Our hearts and thoughts go out to Terri, I was in the neonatal unit recently and was astounded at the size marley tagg came in for her surgery and is now home Greg and all the Bennett family in their Belinda and Mark and all their with mum and dad. Stay well. family in loving memory of their heart of a baby born at 26 weeks with CHD. His head was no bigger than time of remembrance. Ibrahim Abdulkader was in for his surgery which went myfist,butthenursessaidhe’safighterandisdoingreallywell.It’s well and is now home with his brother. Stay well angel Ayden Peychers: 6/08/09 - always amazing to realise the incredible work our doctors and nurses Amy Holloway 30/12/93 – 13/03/98 08/01/2010 do for our children and we shouldn’t forget all the other staff that help celina musseme was in ESW for an extended stay, but Our hearts and thoughts go out to has since made it home to be with her family. We wish Tracey, Tony and all the Holloway Amy, Nan Suzanne and Timothy and our children and keep the hospitals running. Thank you. her well. family in their time of remembrance. all their family in loving memory of Mycoffeemorningsareupandrunningagain.They’reonthefirst their heart angel Leo Keilor: 5/9/07 – Tuesday and third Thursday in the playroom on ESW. Everyone is rita abourad was in for her surgery and stayed for a Hamish Howard 22/12/04 – 18/01/05 4/1/2010 welcome. Hope to see you soon! little longer than was expected, but is now home and Our hearts and thoughts go out to Katie, Cheers,Kim Mackie family support Coordinator continuing to improve. Stay well Ben and all the Howard family in their 0406 424 627 time of remembrance savannah hutchings came in for surgery and is now home with mum Leanne. Stay well. 18 Summer 2010 | Merry Christmas www.heartkidsnsw.org.au 19 Both Sydney and Newcastle regions hosted a couple of fantastic days for some of our families to celebrate Christmas last year. Newcastle enjoyed a great day at Speers Point Park with the wonderful support of Kiwanis. Families enjoyed a BBQ lunch, a clown and had a visit from Santa who gave all the children a gift. Kiwanis also donated a banner for use by the region. We would like to thank Kiwanis and the regional reps Leanda, Amanda and Kylie who helped to organise the day. Sydney had a lovely sunny day at Bicentennial Park at Homebush. There was a sausage sizzle, a clown, face painting and jumping castle. Everyone really enjoyed the day with the highlight being a visit from Santa. We would like to thank Johnson Controls for sponsoring the day and providing volunteers to pack the bags and help out with merry the setting up and cooking on the day. More photos on next page chr istmas 20 Summer 2010 | Merry Christmas last year HeartKids NsW sent all members a survey. this survey was initiated so HeartKids merry management could have a clear understanding in which direction we should be heading for the future. Based on the 79 responses, here are christmas some of the key points that were highlighted. SUrvey SayS... 50/50 our members believe that we are doing exceptionally well with hospital visits, the newsletter and website, but 78 we could improve emergency funds, % 95 Sydney Metro and regional hospital parking and meal vouchers. % NSW membership split. 85 3 of heart disease is congenital of members believe that % supporting research programs concerned with CHD is highly important. Three most important types of members believe of support are – hospital HeartKids can be of support, the newsletter and assistance to them. fundraising events. over half our members Funding for medical equipment, travel more than 50kms improving hospital facilities to receive cardiac and seeking government or treatment with 32% financial assistance are key travelling over 150kms. areas where members would like us to advocate. 78 % In the months since the survey was finalized, HeartKids NSW is striving to ensure that our members’ needs and wishes are met. The following are some examples of how we are achieving this. P • roviding petrol cards to families who travel of members have cardiac greater distances for treatment. treatment at The Children’s A • ccommodation assistance for families who are Hospital in Westmead. from more remote areas of NSW. • Meal vouchers for use at hospital cafes. our most valuable function to our members is: 47 32% • Providing care bags for all cardiac families. % support P • articipating in fundraising events where funds have been requested to go to research. I • mproving awareness of CHD by promoting events such as CHD awareness month. E • nsuring our newsletter is informative as 20 % possible and includes relevant information for research our members. • Ensuring the website is updated regularly. awareness A • pply for funding to corporate business for 10 % advocacy hospital equipment. We would like to thank all of you who completed the survey. your feedback is appreciated. 22 Summer 2010 | Acknowledgements www.heartkidsnsw.org.au 23 THANK yOu... HeartKids NSW acKnOWLeDgemenTS a B would like to thank the following yes! I’d like to individuals and organisations for their generous contribution since our last newsletter. pho More t itemos of ne s w web on our become a supporter INDIVIDuALS N A Adams site !!! of HeartKids... S White Francesco Terenzini c D PR & LM Bootland e GO & JV Harvey Please send me more information RJ & CM Beaven about HeartKids and in particular: KJ & HL Meyn Susan Momdjian Simone Westcott o Becoming a volunteer Maria Vermunt Mandarin Stars o leaving a gift in my will Matthew King Malcolm Jakes o making a regular gift through my bank Danielle Burdack J Danny Alsope o participating in fundraising events Stephanie Andreas F Skye Duncan gifts can be sent to HeartKids NsW inc. Sheen Family please complete the credit card authority below and Joanne Vidovic post to us at address below or fax us on 02 9834 6841. Tanja Blunschi Maree Sisson HeartKids NSW Tania Batten g C/- Adolph Basser Cardiac Institute Greg & Barbara Exton Children’s Hospital Westmead, P.S Levette Mark and Belinda Peychers locked Bag 4001, Westmead NSW 2145 Wanda Yung if you would like to contact us please Kate Reader Call 02 9294 0800 or Renae & Heath Downie Email email@example.com Fax 02 9834 6841 COMPANIES Tafe NSW - Hunter Institute H K Matthew Trappel T/A Valleywide BACK BACK I Name: Protective Coat Dedes Restaurant Address: Tumbarumba Public School Ritchies merchandise Order Form Newcastle Vintage Motorcycle Identi Kid Item Price Qty Total Personal details Restaurant Balzac a. Paper stickers $1.00 Name: United Way car bumper stickers $2.00 Address: State: Postcode: b. teddy bears $10.00 c. travel mugs $10.00 State: Postcode: Phone: Fax: $8.00 Phone: Fax: d. coffee mugs Diary Dates Mobile: (4 for $25.00) Mobile: e. caps $10.00 To use your Credit Card (please tick 3 type of card) north syDney trivia night f. kid’s hat Please state colour and size Payment details When: 20th Mar 2009 (also available skyblue and pink in infants (50cm) and child $10.00 To use your Credit Card (please tick 3 type of card) o Visa o Bankcard o Mastercard o Amex Where: Our Lady of Good Counsel Hall, (54cm) sizes). o Visa o Bankcard o Mastercard o Amex Credit Card No: Currie Road, Forestville Please state size Credit Card No: g. t-shirt (s-xxl) $20.00 ___/___/___/___/ ___/___/___/___/ ___/___/___/___/ To RSVP please contact Please state size ___ /___ /___ /___ / ___ /___ /___ /___ / ___ /___ /___ /___ / ___ /___ /___ /___ / ___/___/___/___/ Donalda Brown h. singlet (s-xxl) $25.00 Expiry Date: CVC (three numbers at the back of the card) 02 9453 2107 or 0419 402 399 Signature: i. collection tins free ___/___/___/ Mother’s Day Lunch anD PaMPer J. Pens $5.00 CVC (three numbers at the back of the card) ___ /___ /___ / When: 6th May 2010 k. new badges $4.00 Date: Expiry Date: WHERE: Ground floor function room, Children’s Postage and handling $7.00 Hospital Westmead or send us a money cheque or order. Signature: ToTAl Money orders and cheques to be made To RSVP please contact out to HeartKids NSW Inc Kim Mackie 0406 424 627 or Date: firstname.lastname@example.org HeartKids Merchandise 41 Pine Creet Circuit, St Clair, NSW. 2759. Thank you All of us at HeartKids would like to thank our sponsors and supporters for their generous contributions and support. HeartKids would like to thank BP for the donation of fuel cards. This will assist some families in hospital with the cost of commuting to visit their sick child.