I S S U E 2 ChILL 2 0 0 9 INSIDE THIS ISSUE: Editors 1 Editors Crunch Crunch Welcome to the second thinking and send us and understanding is Sub-Com 2 issue of ChILL for something to include in appreciated by us all. Updates 2009. It's been a very the 2009 Wrapper. Kristen’s 3 busy year for us all on Our other sad news is Korner RefComm as we've Unfortunately due to that Kristen will be Goodbyes 4 been beavering away some new guidelines leaving us for a year or with a lot of planning. that the RCH has in- two in order to spend Unfortunately ChIPS stilled, our annual Ball more time with her fam- Meagan’s 6 has hit a bit of a low has been cancelled. This ily. This news is devas- Musings point mid-year with the news is very heartbreak- tating and we will all Movie Night 7 cancellation of our an- ing to all ChIPERS, as miss our wonderful, car- nual fundraising ball well as members of ing, loving and devoted Photos and the end of Kristen’s ChIP In and the wider c o o r d i n a t o r 8 three year stint with us ChIPS community. In very much. Kristen has (although we await her previous years the ball done a lot for ChIPS Leadership 9 return in 2011). How- has been a huge success, and particularly for Ref- Training ever, just because its raising profits of well Comm and her work is Term 2 So- 9 mid-year doesn't mean over $20,000 each year. appreciated by us all. It cial we should all be glum Although the ball’s can- is wonderful to have and we've also been cellation is out of our staff who love this pro- Personal 10 Story busy going to socials, control, do not despair, gram as much as we do leadership training, Ref- as ChIP In and Ref- and we all wish Kristen Trials and 12 Comm and the second Comm will be raising the best for the coming Tribulations lot of ChIPS Intensive. funds to support our years. Coco Loco 13 camps and our fantastic Review The Pubs team and my- program through other Well that's all for now, self have been busy means. I'd like to send be safe and happy until I Wrapper 14 planning not only this out a huge thank you to run into you next. Submissions newsletter but also the the members of ChIP In Wrapper, which is set to for all the hard work BY Jordan Hammond be even better than last they put into the Ball years. We have a theme preparation, and espe- and have begun writing cially to Jess O'Dowd and collecting articles and Di and John Fincher and creative contribu- for their efforts in trying tions to be included to fight this decision. (turn to back page for Also thanks to the spon- more info on submitting sors we already had for your own article), so get the event, your support A publication of the ChIPS program, Royal Children’s Hospital. 2 Gatehouse St, Parkville, 3052. Ph. (03) 9345 6616 RefComm Sub-committee Updates P AGE 2 Camp Committee Hello ChIPS Community, Camp committee has been working extremely hard to book an amazing campsite for 2010. In saying this our hard work has finally payed off as we have confirmed a campsite and have begun planning activities and the drafting of the timetable. Each member will be assigned different roles to complete in regards to activities and the program during each Reference Committee. We are really quite excited about 2010's camp with bits and pieces coming together nicely. There will be much more to update you all in the next Chill. See you all then. Stacey Cumming ChIPS Connect Over the past term, the ChIPS Connect team has continued to work on raising aware- ness about the ChIPS program to young people and the wider community. We con- ducted a very successful Ward Visit, where we were able to speak to a number of young people with chronic conditions, who were staying at the Royal Children’s Hos- pital on Three East - Adolescent Ward. ChIPS Connect has been updating the Refer- ence Committee Application form. As well as reviewing the Expression of Interest form for advocacy presentations, which we may have a few presentations coming up. During term three we will not be running an Eight Week Group, yet we will have two Groups run in term four. However, we will be assisting with the next ChIPS Inten- sive. I hope the second half of this year will be just as successful as the first! Thanks to the members of ChIPS Connect and the support of Carly, Meagan and of course Kristen! Tamara Myors Socials Committee BY Abbie Kinniburgh The socials committee for 2009 kicked of with a big bang with our 1st social for the year in the term.1 holidays. The whole socials team put their enthusiasm and creativity into action and put on a fabulous day for ChIPPERS, we were very proud and excited with how the day turned out for our 1st social. Many excited and curious ChIPPERS showed up on the day wondering what was in store for them. They were entertained with a taste of African culture through a fun, educating and humorous African drumming workshop at Don Bosco Youth Center in Brunswick. The social then progressed on to Melbourne central where ChIPPERS and staff were able to kick back together and enjoy a choose your own lunch in the Mel- bourne Central food court. The day ended by winding down with the hilarious movie and Melbourne Central Hoyts, the Pink Panther.2. movie. The 1st social for the year proved to be a fun but challenging day for both ChIPPERS and organizers, with hopping on and off trams, venturing to new streets of Melbourne and fitting in around the busy hustle and bustle of the city, but it was also defiantly a big hit for those who were there. The Socials committee is now working on the next social for the term.2 holidays, which will again be held at Don Bosco Youth Center, but with a whole new set of activities, entertainment, food and a chance as always for ChIPPERS to get together and hang out. The next social will also involve mys- terious events and, which cannot be missed!! So come along and find out what the next ChIPS social will bring!! CHILL ISSUE 2 P AGE 3 Kristen’s Klosing Korner Hello Every- we find ourselves in (“give us Every person reading this body! your money”!!). Then there’s newsletter is important to the challenge of assisting ChIPS and the future of Welcome to young people with chronic the program. Whether you another great illness to believe in them- are a ChIPPER, family edition of selves and be who they want member or friend of a ChIP- Chill. to be, and the associated PER, health professional, or challenge of convincing other supporter of the program, In the last people to accept the poten- you play an important role. couple of weeks all ChIP- tial of these young people. PERS received a letter from And my own personal chal- I will keep in touch with the me confirming my upcoming de- lenges – learning, accepting, program whilst I am away, and parture from the ChIPS pro- organising, motivating, advo- will be looking at the website gram, with my last day being cating for, pushing, believing regularly so I know what is th 15 July. It’s a big time in my in, and listening to ChIP- going on! And hopefully life, leaving a job I am very pas- PERS and their families. you’ll see me around again in sionate about, packing up a Some days easy, some days 2011. house and family, and moving hard, but everyday, worth- interstate for a couple of while. Take care and keep smiling, years. So it is with a mixture of excitement and sadness that I What I leave behind as I move Kristen look ahead to the coming up North, is a program that I weeks. believe is strong and resilient. P.S. We have just had some ChIPS has funding for the very exciting news in the of- Looking back on the last few core program for the next 3 fice that we have been years, I can honestly say that years, there are committed, granted some money to run working with ChIPS has been motivated and passionate an Open Arts Space pro- one of the most challenging management, staff and men- ject at ChIPS, which will times of my life. Challenging in tors involved, lots of impor- give the opportunity to good ways and bad. Some of tant paperwork filed ChIPPERS to work on the challenges have been (policies, procedures, manu- some arts projects exploring about the systems and proc- als), and exciting plans afoot their illness, and displaying in esses that such programs need for evaluating and extending a public exhibition down the to work within, some have been the program. And most im- track! Very exciting – stay related to the financial climate portantly it has YOU! tuned for further updates. P AGE 4 Goodbye Kristen By now you would have all heard the sad news that our much beloved ChIPS coordinator, Kristen, has had to make a tough decision and leave us for a short while. The impact Kristen has had has been immense; both on the program and on the young people involved. As a result of this many people wrote in express- ing their gratitude and sadness to see such a huge part of what ChIPS is leaving. We all wish Kristen the best and look forward to her long awaited return... Kristen, You have been a true inspiration to those involved in the ChIPS Community. You expanded and improved the program to its po- tential . A potential we 'older' ChIPPERS all saw from the begin- ning. That truly is an achievement in itself let alone everything else you have done for us. You were there when ChIPS needed a co-coordinator the most. Without your support and guidance we may not be where we are today, a committee so strong and hard working. So Thank-you Kristen for everything you have done for the ChIPS Program, whether it be from getting funding grants to keeping a reference meeting professional, every bit counts and we have appreciated every second. On a personal note, Thank-you for being there just to talk to me when I have needed, I may not have done this often, however if I did you were always willing to listen, no matter the circumstance or time. That means a lot, just to know someone was there. So thanks. I wish you all the best in Darwin, You will love every minute, I'm quite jealous. Being a whole family again with Marty will be so ex- citing and rewarding. All the best for the future Kristen. ChIPS is sad to lose such an amazing and integral part of its program but wishes you a healthy an happy journey. I hope to see you in a few years time as a Mentor. :) Love Stacey Cumming Kristen Kappel has not just been the coordinator of the ChIPS program for over 3 years now. She has also been a 2nd mother to us all. A great supporter to each and every individual in the ChIPS program. She really will be missed while she is away, but we will look forward to having her back when she returns from Darwin. Abbie Kinniburgh CHILL ISSUE 2 P AGE 5 The first time I met Kristen she convinced me to go to a camp before doing anything else with ChIPS. Ever since then it was always evident how much she loved her job, how much ever ChIP- PER I met loved her here. It is sad to see her leave, but it will be exiting to see her come back from her adventures in Dar- win. So, thanks again Kristen for all the opportunities and help throughout the past year. See you again in a few years, hopefully. Eliza Masterson I find these two statements to pretty much sum up Kristen: "Every single person you encounter in your life has an impact on your life". I have been lucky enough to have been involved with ChIPS for a couple of years now and a what a pleasure it has been to work beside Kristen. There has never been a time that I have walked away after one of our many meetings, chats or camps where I have not been absolutely inspired by her enthusiasm, dedication and love for the work she does. I always walk away with a bounce in my step and an at- titude than we can achieve anything. Kristen certainly "Celebrates success, Overcomes challenges and Creates our future". The pleasure has been all mine. Thank you and I look forward to working together in the future. Enjoy your new adventure in Darwin. Jane—mentor Dear Kristen Thank you for giving me the opportunity to mentor such a tal- ented, C oordinator inspiring and beautiful group of young people. I've met peo- h elpful ple who I believe will stay in my life forever. I nspiring It's truly changed my life. ChIPS has given me confidence and the P sychologist belief that my own illness won't stop me from achieving my S upportive dreams. You are wonderful to work with, I've had so much fun. = Kristen Good luck with your move, and goodbye for now. Love Carly Tamara Myors Dear Kristen, It’s hard to put what you mean to me into writing purely because of the impact you’ve had on my life. You’ve been there for me when times are tough and when they’ve been fantastic and it the laughter and advice that you have shared with me that I will always re- member. Thank you for everything… mostly for giving me chances! I’ve had the time of my life and I’m going to miss you so much. Thank you for loving the program I love and for mak- ing it the best it can be! Love always, Jordan P AGE 6 Meagan’s Musings Ahhhhhh……so it is already July! We are half way though the year and what a year so far! On Friday July 10, Felipe, Tamara and I successfully finished running the second of the new 2 day ChIPS Intensives, and they were intense! However, they were also very fun and well received by the young people who attended. The most common thing I heard from those who at- tended was something like ‘I have finally found a place I be- long and can be myself’. Seven young people attended the April Intensive and nine young people came to the July Inten- sive. I hope that we see some of them at ChIPS events in the coming months. So now I just need to write up the evaluation and show how fabulous they were so we can get funding to continue them. Thanks to the peer leaders Felipe, Davina and Tamara. Term 1 and Term 2 8 week groups continued and thanks to the peer leaders who helped me run these, Vassie and Ivano. Now with the second half of the year looming we will see some changes. I will sadly say goodbye to my colleague, office buddy and friend Kristen but wish her well in her exciting journey ahead. BUT I look forward to the High Challenge camp, keeping the reference committee meetings going, talk- ing to you and working with you all a lot more, welcoming the new ChIPS coordinator and of course the January ChIPS camp. There is so much exciting stuff going on! I am still here Tuesdays and Thursday so give me a buzz or an email if you need to or even just to say hi! That’s all for now….. Meagan CHILL P AGE 7 ChIP In Movie Night A ChIPS movie fundraiser night was held at the Sun Theatre in Yarraville on Thursday 18 June. The movie was The Proposal, a romantic comedy starring Sandra Bullock and Ryan Reynolds. Sandra Bullock played an uptight book editor about to be deported from the country. She bullied her assistant, played by Ryan Reynolds, into marrying her so she could stay in the country and keep her job. There was a lot of laugh out loud moments, as well as some that touched hearts. The cinema was almost full - it was great to see so many people there supporting ChIPS. Thank you to everyone who attended the movie and bought chocolates, and thank you to ChIP In who organised and advertised the event. BY Carly Findlay The movie night was a highly successful night with everyone enjoying themselves. A total of $909.60 was raised thanks to tickets and chocolate sales. Thanks to everyone who made it (as well as those who bought tickets yet didn’t make the night) and special thanks to all the members of ChIP In on behalf of ChIPPERS, we really appreciate the ef- fort you guys put in to help us raise much needed funds. Cheers CHILL P AGE 8 ISSUE 2 P AGE 9 Leadership Training It started on a Mon- what it was all about, the group to get up day. Thinking I was and introducing what and do more active on holidays, I pro- we do to the group things. Taking on ac- ceeded to get up at a who came from New tivities which defined time my brother has South Wales. w h a t yet to have heard of. After lunch, we were ‘COMMUNICATE’ Why was I getting up met with a public meant, we were re- so early? For leader- speaker, Peter Dhu, quired to do many ship training of and he explained the things, from passing c o u rs e ! Hearing qualities of public down instructions to promises of the two speaking and how to build a Lego model, days being fun and improve on them. He to acting out random challenging, I did not showed us a personal scenes that built on hesitate in signing up. video of his troubles one another. At the Getting to the hospi- with public speaking, end of the day, we tal, I was greeted by which really touched were all exhausted, the group, both new us all, and showed us tired but content. I and familiar faces how anyone could im- think we all learned there. Settling in prove on public something from the quickly, I proceeded speaking. His presen- two days spent during to learn about leader- tation was the high- leadership training. ship. A short docu- light of the day. mentary about Chips Day two was much BY Kevin He really showed me different, requiring Term Two Social– Don Bosco Youth Centre The afternoon was a leave for 2 years. Many of us enjoyed relaxed chance for Once all the prepara- time with centre pets members to catch up, tions were ready we who were amazingly chill out and have presented the many tame and well be- some fun. goodies and yeah haved. Some of us tears were shed. Then bounced on the tram- We the reference the centre was open to poline, playing bil- group were up to a lot local kids while we liards, table tennis, of mischief planning a were there and the pet playing with the chil- surprise cake and rabbits and dog ap- dren or just catching pressies for Kristen as peared. up. this was her last social before she goes on BY Vassie Dandanis P AGE 10 Personal Story...by Eliza Running in the annual matter. When I started serious operation, I school sports was al- high school I guess got really scared, ways amazing, par- things started to be- but I got over that. ents and teachers come more real, I cheering every child started to care that At the start I was on, peers brushing up people saw my differ- determined to wear against me as more ences. Because I the back brace I and more energy never explained my was fitted with as flows through my illness one of my much as possible. veins as everything closet friends at the After a few months else slows down for a time told me that I had to drop P.E at second as I cross the some girls disliked me school due to need- finish line last, always but were too scared of ing to wear my “ starting first. Every being themselves back brace all the ignoring the year I told my teach- around me because time and basically questions ers I could run the they thought I could not being allowed from other whole course ignoring have a heart attack, to do any sporting kids about the questions from which is so beyond activities anymore, why I was ap- other kids about why I the truth. As I which I was really parently so was apparently so dif- shrugged off the com- unhappy about, as I different to ferent to everyone ments and the realiza- loved sport. The everyone else else. tion that my friend be- back brace got “ lieved what the other more and more Why is your lip girls thought made painful to wear and funny?, Why are you perfect sense I was because I only have so short?, Why can’t diagnosed with an- one working lung you run properly? I other thing that made and a heart defect, never really noticed my seemingly normal it constricted my my differences or existence crumble. breathing e ven cared about them in Scoliosis, just another more. primary school. Why thing, I thought. But anyone thought I was when the orthopaedic Half way through brave was beyond me, technician, who was year nine I thought I never thought that it fitting me with a back people might un- was a big deal, I never brace told me that if I derstand me more if felt different whether don’t wear it, my I started explaining I was in a pram for spine will bend caus- aspects of my ill- excursions and camp ing major problems ness, basically why or not, so it didn’t maybe even needing a I was short and CHILL ISSUE 2 P AGE 11 wore a back brace, but only option, it will get could be, although she after a few people worse” but I wasn’t said ‘it was very terri- started saying I was shocked. In the back fying, but it’s worth making a big deal of my mind, whether I it’. If they decide I o ve r not hin g I realised it or not, I al- can have a transplant I stopped. By year 10 I ways thought I would will be able to run, had lost my confi- need this one day. Be- dance or even walk dence as I was too fore 2007’s end I was for more than two sick to go to school given the opportunity minutes without being for a lot of that year to join a couple of puffed, but at the mo- and whenever I went peer groups, which I ment I can’t worry back to school I felt really didn’t see the about what has or has- like I couldn’t talk to need to do, but even- n’t happened yet be- anyone. I felt while I tually the more infor- cause I will just worry was away I got left mation I found the myself sick, literally. behind so I never more convinced I be- At the moment I am went to my year ten came that I should studying Psychology formal. This was a give one of the peer and Health at the Cen- real disappointment groups a go. The tre for Adult Educa- because I have always ChIPS 2008 camp tion and loving being “ wanted to do my for- was my first experi- involved with CHIPS but after a few mal or Deb but obvi- ence with ChIPS and as much as possible. people started ously have never been the first time I had saying I was able to. truly had any social I used to, and some- making a big outlet without my times still think no- deal over In October 2007, the twin to fall back on, one would want to be nothing I end of year 10, my but it was also one of around me, but Chips, stopped twin, mum and I made the best things I have and other things in “ the best decision of ever done, no matter Melbourne are help- our lives and moved how cheesy that ing me to see things in to Melbourne and sounds. a better perspective, around the same time and slowly regain I was told the only After the camp I was some of my confi- step forward for my told that it might be a dence that I lost dur- health would be a better option to have a ing high school. In the heart transplant. Over lung and heart trans- future I’d like to help the last few months of plant, this has truly other young people 2007 I saw a couple made my world spin, gain confidence be- of different cardiolo- but it will be ok. I met yond their expecta- gists, but no-matter someone a few tions of them selves. what they all said, one months ago that had a thing kept going heart transplant, and That’s my story. So through my head con- she was as happy and far… stantly “this is the healthy as someone P AGE 12 Trials and Tribulations of Year 12. All that drama that comes with it... I have recently that some of us travel for a while found some very were, well, to put it before settling useful and interest- simply, crappy stu- down to continue ing information dents and just your education. that really opened couldn’t focus on my eyes and I anything and ended Trust me when I thought to myself up with a lousy tell you that when this would come in score. There are the time is right very handy to pass always other ways you will know that onto all of you fu- in which to reach you’re ready. This ture VCE students the stars whether it isn’t meant for eve- reaching your final is nursing, the ryone just like go- years in high army, or even hor- ing straight into school and all the ticulture, all roads TAFE or UNI isn’t endless nights of and doors are yours for everyone, just study and bad to explore. know that like eve- sleeping habits in ryone is different order reach you Mid year entry is and their personali- goal of getting that an option if you ties and illness’ are enter score that you don’t get one of different so is have your heart set those 25 spots growth of the on. (remember your mind. Everything chances are much has a time and Well you no longer better) just don’t place, so make it a need to think that rely on mid year point to be the one your world is going have it as a back in charge of yours. to end if you don’t up. Cheers, Felipe get into your dream course because you You might even have to remember decide to work or CHILL ISSUE 2 P AGE 13 Coco Loco Review Coco loco is a gour- to Northcote to see too creamy but still tasted met and organic about this little bar I like real drinking choco- chocolate bar located was surprised to see late. The milk chocolate at 219 High St. how comfortable it tasted exactly like hot Everything on the was inside. It had chocolate, but did not make menu is wheat and wooden tables and me feel sick and the white gluten free, choles- leather seated bar drinking chocolate was terol free with no pre- stools and on the roof smooth, sweet and accord- servatives and vegan, it had a skylight, ing to my sister “the best except for the fondue which I personally thing that I have ever that is made with thought was the love- tasted”. cheese. liest thing ever. As soon as my sister and The dark chocolate mousse This chocolate bar has I took our seats the was strong and rich, al- a wide range of spe- waiter was taking our though it was made from cial treats such as, orders and answering cashew milk it was not truffles, drinking all my questions and nutty at all, very strong chocolate that can be with in a few minutes dark chocolate but worth a made with dairy, soy out chocolate delights try. There is only one Coco or cashew milk, were on the table be- loco in Australia and it is chocolate liqueur, sa- fore us. open in the early evening voury and desert until late, although they do crepes, fondue and As the truffles had all not have eftpos and some coffee. Almost every- sold out I tried two things may be a bit pricey thing you order from different kinds of it is worth the trip. this comfortable hide- drinking chocolate away the gifted and the mousse. The BY Eliza Masterson chocolatiers can cater drinking chocolates to meet your dietary where enclosed in needs. oval shaped cups that fit perfectly into your When I ventured out hand, and were not The Publications sub- committee are looking for creative pieces to be submitted for the 2009 wrapper. ChIPPERS are welcome to submit are array of pieces to be included in the Wrapper. These may include drawings, stories, poems, paintings, photos or any- thing you would like to submit. Everything will be included to the best of our abilities. Your piece will then be in the running to win the Liz Dixon Award for most creative submission to the Wrapper. The award is a treasured one in the hearts of ChIPPERS and your name will be announced in the Wrapper at the end of the year and of course you will have your piece published in all it’s glory. We also need a front cover photo. Photos must be taken by a ChIPPER and must be of natural things found in our environment… nothing man made must be seen. Photos must be of the highest resolution possible! Please submit any articles or photos you wish to be included with an informative subject heading to Jordan at: email@example.com Help make the Wrapper enjoyable to read!
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