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Chronic Disease
Self-Management
Does It work?
Sharon Johnson M.S.
Associate Professor Health and Human Sciences
Oregon State University Extension Service
1
Question Number 1.
Diabetes, arthritis,
Do osteoarthritis,
osteoporosis,
you osteopenia, cancer,
heart disease,
have…. hypertension,
fybromyalgia,
depression, stroke,
asthma, lung disease,
multiple sclerosis,
Parkinson‟s disease
2
Question Number 2.
Scared?
How Frustrated?
do Fatigued? Angry?
Depressed?
you Anxious? Sad?
Confused?
feel? Uncertain?
Isolated?
Fearful?
3
Question Number 3.
What
are
you
going
to
do
about
it?
4
Here‟s an idea.
Close your eyes….
5
Close your eyes…get comfortable….
Imagine you‟re holding a big, bright yellow lemon.
Picture it in your mind. You can feel the texture of
the lemon rind in your hand. Now lift the lemon to
your nose. You can smell its strong citrus
aroma…now bring the lemon to your mouth and
take a big bite out of that lemon. …it‟s juicy….that
juice squirts through your mouth…you can taste the
tart lemon juice filling your mouth…the juice
dribbles down your chin…suck the juice of that
lemon.
6
7
There‟s a demographic tidal wave
and it‟s headed our way…
Increased life
expectancy
More older
adults
More chronic
disease
Sources: Pew Internet and American Life
Project, Centers for Disease Control (CDC),
Merck Institute, Gerontological Society of
America (GSA)
8
“Chronic diseases are live wolves
they travel in packs…”
People with chronic
diseases report:
Significantly reduced
productivity
Living with less income
Accomplishing less
Spending more time in
bed—sick
Having poor mental health
Sources: Stanford University
(Lorig, K.); Center on an Aging
Society, National Institute on Aging
9
Chronic Disease Self-Management
Stanford University Model
Stanford University‟s Designed to enhance
patient education program medical treatment
(“Living Well”)
Outcome-driven: impacts
Highly structured six-week show potential for
series of workshops
reduced or avoided costs
Participative instruction
with certified leader peer Evidence-based: a tested
support model (intervention) that
has demonstrated results
10
What happens….
You accept responsibility to
manage or co-manage your
own disease conditions
You become an active
participant in a system of
coordinated health care,
intervention and
communication
You are encouraged to
solve your own problems
with information (but not
orders) from professionals
Sources: Stanford University Patient
Education Center; Center for Healthy
Aging (NCOA)
11
Why these techniques work…
Peer educators
Constant modeling
Brainstorming
Active problem-
solving
Action planning
Goal-setting
Source: National Council on Aging
http://www.ctb.1si.ukans.edu ;
www.healthyagingprograms.org
12
What‟s the content of these classes?
Distraction and cognitive
symptom management
Breathing techniques
Nutrition and fitness
Fatigue management
Relaxation approaches
Communication strategies;
working with your health care
professional
13
The Stanford Model: Impact
All studies look at behavior, health status and utilization.
Improved self-efficacy
Reduced use of
doctors, hospital
emergency rooms
Improvements in
health status—
identified by BOTH the
participant and the
health provider
Sources: Stanford University Patient
Education Center; Society of
Behavioral Medicine publication (2003) 14
Impact…with details
Improved quality of life Example: (initial findings)
Decreased hospital stays:
.49 days, per patient, over
Specific improvements a two year time period
in healthful behaviors
Decreased
physician/emergency room
Improvement in overall use: 2.5 fewer visits to the
emergency room and to
health status physicians, per patient,
over a two year time period
Source: Stanford University
Patient Education Center; Center
for Healthy Aging
15
Southern Oregon impacts…
Increased physical Improved attitude
activity Less health
Cognitive symptom distress
management
Less fatigue
Improved
communication Reduced disability
with physicians Fewer social/role
Better self-reported limitations
general health
Sources: Stanford University Patent
Education Center; published articles 16
1997-2003) (Lorig, K)
Impact…
…Southern Oregon stories
Steve: These distraction Sept 2008 Telephone Survey
techniques are remarkable. (random sample of eleven individuals who
had completed the series five months earlier)
Counting backward by 3‟s from
100….I‟m usually pain free by 79.”
All respondents indicated
they were still using
Timothy: Marveling at the specific approaches
changes in his wife…
Timothy’s wife: “I didn‟t want to
let my class down.” „Relaxation techniques‟,
„Action planning” and
Char: “I lost ten pounds; my blood „Communication skills‟ most
sugar is down. I even made new frequently referenced
friends in the class. I plan to be
trained as a program leader….”
“Attitude improvement”
cited in 40% of
respondents
17
Chronic Disease Assumptions
Patients with different chronic diseases have
similar self-management problems and
disease-related tasks
Patients can learn to take day-to-day
responsibilities for their diseases
Confident, knowledgeable patients,
practicing self-management, will experience
improved health status and use fewer health
resources
18
Source: Lorig and Holeman 2003
Reasons to support this
approach…
Disease and demographic
challenges will be
unrelenting (“We need to
start yesterday…”)
Limited availability of
reliable, evidence-based
(proven) approaches to
chronic disease
management
Better utilization of current
resources necessary; more
efficient use of physician
time desired
Sources: Society of Behavioral
Medicine publication (Lorig K., Holman,
H.)
19
Summary:
Chronic Disease Self-Management means:
Managing the work of dealing with a chronic
disease and/or multiple disease conditions
Staying involved in daily activities in light of
debilitation and disability
Managing emotional changes resulting from or
exacerbated by the disease conditions
Once a chronic disease is present, one cannot NOT manage,
the only question is „how.‟ (Bateson 1980, Lorig, 2003)
20
For more information
Sharon Johnson M.S.
Associate Professor
Oregon State University
Southern Oregon Research and Extension
569 Hanley Road
Central Point, OR 97502
541-776-7371 x210
s.johnson@oregonstate.edu
www.sohealthyoregon.org 541-864-9611
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