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							            NY Connects Technical Assistance Resource:
                  Independent Living Centers
Purpose: This technical assistance resource will provide you with background information on
instrumental partners that are necessary to the success of NY Connects and suggested benefits
that they may bring to your local efforts.

Background: Establishing and maintaining collaborative partnerships with agencies or programs
that serve adults and children with disabilities and the elderly assists NY Connects in providing
comprehensive information and assistance regarding long-term care options. Partnerships need to
be established and nurtured during the planning and implementation of NY Connects, including
relationships with community based and residential providers.

Local NY Connects staff will be expected to screen consumers in order to identify their long
term care needs and provide them with information regarding appropriate service options to meet
those needs. The list of resources should include programs that can be of further assistance to a
consumer in getting their needs met.

This technical assistance resource highlights one of the partners critical to supporting people
with disabilities of all ages, the Independent Living Centers (ILCs). Including representatives of
these not-for-profit organizations in the planning and development of strategies and activities of
NY Connects will lend an expertise that NY Connects programs they may not have. ILCs have
a valuable role to play, but availability may be constrained due to limited funding or staff
resources. Listed below are some suggested ways in which NYSOFA strongly urges you to
include the Independent Living Centers in your planning efforts, as well as some of the benefits
they can bring to NY Connects. We have included an overview of ILCs, their philosophy of
Independent Living, the populations they serve, the services they may provide and local contact
information.

1. Long Term Care Council Membership:
    ILCs are consumer driven. Services are provided on a peer model, often by staff
      members with disabilities. The independent living philosophy supports consumer choice
      and integrated community living.

      ILC staff are experts in locating resources that support people with disabilities, promote
       independence, and can assist in identifying resources for the resource listing.

      Through linkages with ILCs, the breadth of your linkage network will increase by tapping
       into an already established network of contacts.

      ILCs are members of local and statewide advisory committees and are playing a
       significant advocacy role in planning for long term care restructuring in NYS. ILCs are
       knowledgeable about the systems and services in your local community, as well as the
       needs and choices of people with disabilities who receive services and supports to live
       successfully in the community. Nationally, ILCs are working collaboratively


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       with the federally funded Aging and Disability Resource Centers (ADRCs). These
       national models of successful collaboration can be similarly fostered in NYS between
       ILCs and NY Connects.

2. Link for Information and Assistance and Advocacy:
    ILC staff can assist with advocacy efforts. At the consumer level, staff may assist in
      obtaining services, “navigating” systems, or supplementing the information and
      assistance that is provided through NY Connects. At the local or state policy level, ILCs
      can assist with advocating for systems change.

      ILCs have established working relationships with a host of community-based service
       providers. Through their established relationships, they can help you identify resources of
       which you may not be aware. Each ILC provides services that reflect the needs of the
       community it serves.

3. Maximize Communication and Coordination:
    ILCs have experience with working with people with disabilities of all ages. They have
     created linkages with schools, businesses, local government, human service
     organizations, and medical and health related organizations. In some parts of the state,
     New York State Department of Health contracts with Independent Living Centers to
     serve as Regional Resource Development Centers for the Traumatic Brain Injury waiver
     and the Nursing Facility Transition and Diversion waiver. Many ILCs also provide
     Medicaid-reimbursed services, including services under the Consumer Directed Personal
     Assistant program.

4. Other Services and Supports:
    ILCs can provide disability awareness training, Independent Living philosophy
      workshops, and other in-service training.

      NY Connects programs may consider partnering with ILCs to co-locate staff to assist
       with the provision of services to or on behalf of NY Connects.

      ILCs may serve in a consultant capacity to review accessibility or suggest alternative
       formats, etc.


What is Independent Living?
      Independent Living means being in control of one’s life, taking responsibility for one’s
       actions, taking risks, and either failing or succeeding on one’s own terms. It means
       participating in community life and pursuing activities based entirely upon self-
       determined interests and preferences. To support these goals, Independent Living Centers
       help individuals of all ages with all types of disability to obtain whatever services they
       need to preserve their right to choose and to fully and equally participate in society.




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What Are Independent Living Centers?
      Consumer Controlled: Centers are run by a board of directors, more than half of whom
       are people with disabilities.

      Community Based: Centers are located throughout New York State in local communities.

      Cross-generational and cross-disability: Staff, board members, volunteers, and people
       served represent a broad cross-section of ages and disabilities.

      Federally-authorized: under the Rehabilitation Act of 1973 as amended.

      Peer model: services are provided on a non-medical model.

      Non-Residential: Centers are not places to live, nor do they own or operate places for
       people with disabilities to live.

      Non-Profit: Centers are approved for non-profit status with the New York State Attorney
       General's office.

Who Does an Independent Living Center Serve?
      People with all types of disabilities.

      People with disabilities of all ages.

      Parents, spouses, siblings, and significant others of people with disabilities.

      People with disabilities living in their own homes, supported living arrangements,
       institutional settings, and elsewhere.

What Services do Independent Living Centers Provide?
All Independent Living Centers provide a set of core services geared toward promoting self-help,
equal access, peer role modeling, personal growth, and empowerment. The scope of services is
directed by individual and community needs. The core services are as follows:
      Information and Referral Services provide individuals with resources and options that
       may be necessary in making informed choices about living, learning, and working
       independently.

      Peer Counseling is provided between two or more individuals with disabilities, to share
       ideas and experiences about living with a disability, in order to gain greater awareness
       and control over one’s own life.

      Independent Living Skills Training teaches everyday life skills and is often provided by
       people with disabilities. Training may include budgeting, meal preparation, arranging
       transportation, or personal assistance services, job seeking, and self-advocacy.


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      Individual and Systems Advocacy addresses access to equal opportunities in exercising
       social, economic, educational, and legal rights. Independent Living Centers work with
       individuals, community organizations, state/national networks, to promote full inclusion
       of people with disabilities, and to improve the implementation of existing laws, including
       federal, State, and local.

Other services that are often provided include:
    Housing assistance;

      Acquiring and maintaining appropriate benefits and entitlements;

      Architectural and communication barrier consultation;

      Personal counseling that is non-clinical and short term in nature to address individual
       goals;

      Securing, learning how to use, repair, and maintain equipment;

      Assistance in registering to vote;

      In-service training, workshops/seminars on disability issues, disability laws and
       Independent Living philosophy;

      Disability awareness training;

      Developing Plans to Achieve Self Support (PASS) for recipients of public assistance -
       SSI/SSDI;

      Specialized training and services specific to certain communities.

What organizations do ILCs work with in the community?
   School personnel

      Business and industry

      Local government agencies

      Human Service organizations

      Volunteer sector organizations

      Hospitals, health organizations, and the medical community

      Civic organizations


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For your reference, local contact information is listed below. This information can also be
viewed at: www.vesid.nysed.gov/lsn/ilc/home.html


Albany                                              Binghamton
Laurel Lei-Kelley                                   Maria Dibble
Executive Director                                  Executive Director
Capital District Center for Independence            Southern Tier Independence Center (STIC)
(CDCI)                                              24 Prospect Avenue
West Mall Office                                    Binghamton, NY 13901
855 Central Avenue, Suite 110                       (607) 724-2111 V & TTY
Albany, NY 12206                                    (607) 772-3600 Fax
(518) 459-6422 V & TTY                              Website: www.stic-cil.org
(518) 459-7847 Fax                                  Email contact: stic@stic-cil.org
Website:                                            County(s) Served: Broome
www.nobleharbor.com/~cdci/welcome.htm
County(s) Served: Albany

Albany / Schenectady                                Bronx
Capital District Center for Independence            Susan Attzs-Mendoza
(CDCI) Schenectady Satellite                        Executive Director
Office of Disability Services                       Bronx Independent Living Services, Inc.
105 Jay Street, Room 2, City Hall                   (BILS)
Schenectady, NY 12302-1503                          3525 Decatur Avenue
(518) 382-5199 ext. 5346                            Bronx, NY 10467
(518) 000-0000 TTY                                  (718) 515-2800
County(s) Served: Schenectady                       (718) 515-2803 TTY
                                                    (718) 515-2844 Fax
                                                    Website: www.bils.org
                                                    County(s) Served: Bronx

Batavia                                             Brooklyn
Ann Bell                                            Helene Katz Lesser
Executive Director                                  Executive Director
Genesee Region Independent Living Center            Brooklyn Center for Independence of the
(GRILC)                                             Disabled (BCID)
61 Swan Street                                      2044 Ocean Avenue, Suite B-3
Batavia, NY 14020                                   Brooklyn, NY 11230
(585) 343-4524 V & TTY                              (718) 998-3000
(585) 343-6656 Fax                                  (718) 998-7406 TTY
Website: www.grilc.bfn.org                          (718) 998-3743 Fax
Email contact: grilc@bfn.org                        Website: www.bcid.org
County(s) Served: Genesee                           County(s) Served: Kings




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Buffalo                                           Corning / Elmira
Douglas Usiak                                     AIM Independent Living Center
Executive Director                                Elmira Office
Western New York Independent Living               2028 Lake Road
Project, Inc. (WNYILP)                            Elmira, NY 14903
3108 Main Street                                  (607) 733-3718 Voice
Buffalo, NY 14214                                 (607) 733-7764 TDD
(716) 836-0822 V & TTY                            (607) 733-0180 FAX
(716) 835-3967 Fax                                Website: www.aimcil.com
Website: www.wnyilp.org                           Email contact: eaimoffice@aimcil.com
Email contact: info@wnyilp.org                    County(s) Served: Chemung
County(s) Served: Erie

Buffalo / NAILS                                   Cortland
WNYILP Native American Satellite                  Mary Ewing
Cattaraugus                                       Executive Director
Dawn Phillips                                     Access to Independence of Cortland County
Program Director                                  (ATI)
Native American Independent Living Services       26 North Main Street
(NAILS)                                           Cortland, NY 13045
c/o Western New York Independent Living           (607) 753-7363 V & TTY
Project, Inc.                                     (607) 756-4884 Fax
3108 Main Street                                  Website: www.cilcortland.org
Buffalo, NY 14214                                 Email contact: maryew@odyssey.net
Website: www.wnyilp.org/NAILS                     County(s) Served: Cortland
Email contact: info@wnyilp.org
County(s) Served: Erie, Cattaraugus

Corning                                           Glens Falls
Diane DeMuth                                      Karen Thayer
Executive Director                                Executive Director
AIM Independent Living Center (AILC)              Southern Adirondack Independent Living
271 East First Street                             (SAIL)
Corning, NY 14830                                 71 Glenwood Avenue
(607) 962-8225 V & TTY                            Queensbury, NY 12804
(607) 937-5125 Fax                                (518) 792-3537
Website: www.aimcil.com                           (518) 792-0505 TTY
Email contact: corning@aimcil.com                 (518) 792-0979 Fax
County(s) Served: Steuben                         Website: www.gfilc.com
                                                  Email contact: gfilc@adelphia.net
                                                  County(s) Served: Warren



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Glens Falls / Saratoga Springs                    Jamestown
SAIL Saratoga Springs Satellite                   Marie Carrubba
Saratoga Co. Options for Independent Living       Executive Director
418 Geyser Road, Country Club Plaza               Southwestern Independent Living Center, Inc.
Balston Spa, NY 12020                             (SILC)
(518) 584-8202                                    843 N. Main Street
(518) 584-4752 TTY                                Jamestown, NY 14701
(518) 584-1195 Fax                                (716) 661-3010
Website: www.gfilc.com                            (716) 661-3012 TTY
Email contact: gfilc@adelphia.net                 (716) 661-3011 Fax
County(s) Served: Saratoga                        Website: www.ilc-jamestown-ny.org
                                                  Email contact: marie@ilc-jamestown-ny.org
                                                  County(s) Served: Chautauqua

Harlem                                            Kingston
Christina Curry                                   Sue Hoger
Executive Director                                Executive Director
Harlem Independent Living Center (HILC)           Resource Center for Accessible Living
289 St. Nicholas Avenue                           (RCAL)
Lower Level                                       592 Ulster Avenue
New York, NY 10027                                Kingston, NY 12401
(212) 222-7122                                    (845) 331-0541
1-800-673-2371 Toll Free                          (845) 331-8680 TTY
(212) 222-7198 TTY                                (845) 331-2076 Fax
(212) 222-7199 Fax                                Website: www.rcal.org
Website: www.hilc.org                             Email contact: rcal@hvc.rr.com
Email contact: HarlemILC@aol.com                  County(s) Served: Ulster
County(s) Served: New York

Ithaca                                            Long Island
Lenore Schwager                                   Patricia Moore
Executive Director                                Executive Director
Finger Lakes Independence Center (FLIC)           Long Island Center for Independent Living,
215 Fifth Street                                  Inc. (LICIL)
Ithaca, NY 14850                                  3601 Hempstead Turnpike, Suite 208
(607) 272-2433 V & TTY                            Levittown, NY 11756
(607) 272-0902                                    (516) 796-0144
Email contact: flic@clarityconnect.com            (516) 796-6176 En Espanol
County(s) Served: Tompkins                        (516) 796-0135 TTY
                                                  (516) 796-0529 Fax
                                                  Website: www.licil.net
                                                  Email contact: licil@aol.com
                                                  County(s) Served: Nassau


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Manhattan                                        Middletown
Susan Dooha                                      Rachel Bartlow-Pappas
Executive Director                               Executive Director
Center for Independence of the Disabled in       Action Toward Independence (ATI)
New York (CIDNY)                                 130 Dolson Avenue
841 Broadway, Suite 301                          Middletown, NY 10940
New York, NY 10003                               (845) 343-4284 (343-4ATI) V & TTY
(212) 674-2300 V & TTY                           (845) 342-5269 Fax
(212) 254-5953 Fax                               Website: www.actiontowardindependence.org
Website: www.cidny.org                           Email contact: ati@warwick.net
County(s) Served: New York                       County(s) Served: Orange

Manhattan / Queens                               Middletown / Monticello
CIDNY Queens                                     ATI Monticello Satellite
72-20 Astoria Boulevard                          33 Lakewood Road
Jackson Heights, NY 11370                        Monticello, NY 12701
(718) 512-0065                                   (845) 794-4228 V & TTY
(718) 512-0084                                   (845) 794-4475 Fax
(718) 803-0414 Fax                               Website: www.actiontowardindependence.org
Website: www.cidny.org                           Email contact: ati@in4web.com
County(s) Served: Queens                         County(s) Served: Sullivan

                                                 Newburgh
Massena
Jeff Reifensnyder                                Doug Hovey
Executive Director                               Executive Director
Massena Independent Living Center (MILC)         Independent Living, Inc. (ILI.)
156 Center Street                                5 Washington Terrace
Massena, NY 13662                                Newburgh, NY 12550
(315) 764-9442 V & TTY                           (845) 565-1162
(315) 764-9464 Fax                               (845) 565-0337 TTY
Email contact: mindepli@twcny.rr.com             (845) 565-0567 Fax
County(s) Served: St. Lawrence                   Website: www.myindependentliving.org
                                                 Email contact:
                                                 vflorio@myindependentliving.org
                                                 County(s) Served: Orange




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Niagara Falls                                 Plattsburgh
Ronald Clarke                                 Andrew Pulrang
Interim Director                              Executive Director
Niagara Frontier Center for Independent       North Country Center for Independence
Living, Inc. (NFCIL)                          (NCCI)
1522 Main Street                              102 Sharron Avenue
Niagara Falls, NY 14305-2522                  Plattsburgh, NY 12901
(716) 284-2452 V & TTY                        (518) 563-9058 V & TTY
(716) 284-0829 Fax                            (518) 563-0292 Fax
County(s) Served: Niagara                     Website: www.ncci-online.com
                                              Email contact: andrew@ncci-online.com
                                              County(s) Served: Clinton

Olean                                         Plattsburgh / Ray Brook
Leonard X. Liguori                            NCCI Ray Brook Satellite
Executive Director                            Tri Lakes Center for Independence
Directions in Independent Living (DIL)        Lauren Le Febvre
512 West State Street                         Program Director
Olean, NY 14760                               PO Box 280
(716) 373-4602 V & TTY                        Ray Brook, NY 12977
(716) 373-1382 Fax                            (518) 891-5295 V
Email contact: oleanilc@yahoo.com             (518) 891-5293 Fax & TTY
County(s) Served: Cattaraugus                 (866) 891-5295 Toll Free
                                              Website: www.tlcil.org
                                              Email contact: info@tlcil.org
                                              County(s) Served: Franklin

Oneonta                                       Poughkeepsie
Christine Zachmeyer                           Cynthia Fiore
Executive Director                            Executive Director
Catskill Center for Independence (CCFI)       Taconic Resources for Independence (TRI)
PO Box 1247 Rt. 23 Southside                  82 Washington Street, Suite 214
Oneonta, NY 13820                             Poughkeepsie, NY 12601
(607) 432-8000 V & TTY                        (845) 452-3913
(607) 432-6907 Fax                            (845) 485-8110 TTY
Website: www.ccfi.us                          (845) 485-3196 Fax
Email contact: ccfi@ccfi.us                   Website: www.taconicresources.net
County(s) Served: Delaware                    Email contact: trionline@taconicresources.net
                                              County(s) Served: Dutchess




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Rochester / CDR                              Staten Island
Bruce Darling                                Dorothy Doran
Executive Director                           Executive Director
Center For Disability Rights, Inc. (CDR)     Staten Island Center for Independent Living
497 State Street                             (SICIL)
Rochester, NY 14608                          470 Castleton Avenue
(585) 546-7510 V & TDD                       Staten Island, NY 10301
(585) 546-5643 FAX                           (718) 720-9016
Website: www.rochestercdr.org                (718) 720-9870 TTY
Email contact: bdarling@rochestercdr.org     (718) 720-9664 Fax
County(s) Served: Monroe                     Website: www.geocities.com/siciliving
                                             Email contact: dorothy.doran@verizon.net
                                             County(s) Served: Richmond

Rochester / RCIL                             Suffolk
Bruce Darling                                Edward Ahern
Interim Executive Director                   Executive Director
Regional Center for Independent Living       Self-Initiated Living Options, Inc. (SILO)
(RCIL)                                       140 Fell Court, Suite 116
497 State Street                             Hauppauge, NY 11788
Rochester, NY 14608                          (631) 348-0207
(585) 442-6470 V & TTY                       (631) 654-8076 TTY
(585) 271-8558 Fax                           (631) 654-8077 Fax
Website: www.rcil.org                        Email contact: eahern@suffolk.ilc.org
Email contact: mschwartz@rochestercdr.org    County(s) Served: Suffolk
County(s) Served: Monroe

Rockland                                     Syracuse
Miriam Cotto                                 Tom McKeown
Executive Director                           Executive Director
Rockland Independent Living Center (RILC)    ARISE
230 N. Main Street                           635 James Street
Spring Valley, NY 10977                      Syracuse, NY 13203
(845) 426-0707                               (315) 472-3171
(845) 426-1180 TTY                           (315) 479-6363 TTY
(845) 426-0989 Fax                           (315) 472-9252 Fax
Website: www.rilc.org                        Website: www.ariseinc.org
Email contact: mail@rilc.org                 Email contact: info@ariseinc.org
County(s) Served: Rockland                   County(s) Served: Onondaga




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Syracuse / Oswego                   Troy
ARISE Oswego                        Denise Figueroa
Sabine Ingerson                     Executive Director
Project Director                    Independent Living Center of the Hudson
253 East Tenth Street               Valley (ILCHV)
Oswego, NY 13126                    Troy Atrium
(315) 342-4088                      49 4th Street
(315) 342-8696 TTY                  Troy, NY 12180
(315) 342-4107 Fax                  (518) 274-0701 V & TTY
Website: www.ariseinc.org           (518) 274-7944 Fax
Email contact: info@ariseinc.org    Website: www.ilchv.org
County(s) Served: Oswego            Email contact: kgarofallou@ilchv.org
                                    County(s) Served: Rensselaer

Syracuse / Pulaski                  Troy / Hudson
ARISE Pulaski                       ILCHV Hudson Satellite
2 Broad Street                      Jacqueline Bachman
Pulaski, New York 13412             802 Columbia Street
Phone: (315) 298-5726               Hudson, NY 12534
Fax: (315) 298-5729                 (518) 828-4886
Website: www.ariseinc.org           (518) 828-2592 Fax
Email contact: info@ariseinc.org    (800) 421-1220 TTY
County(s) Served: Oswego            Website: www.ilchv.org
                                    Email contact: kgarofallou@ilchv.org
                                    County(s) Served: Columbia

Syracuse / Oneida                   Utica
ARISE Oneida                        Burt Danovitz
1006 Oneida Plaza Drive             Executive Director
Oneida, New York 13421              Resource Center for Independent Living
Phone: (315) 363-2400               (RCIL)
Fax: (315) 363-4545                 P.O. Box 210, 409 Columbia Street
Website: www.ariseinc.org           Utica, NY 13502
Email contact: info@ariseinc.org    (315) 797-4642
County(s) Served: Madison           (315) 797-5837 TTY
                                    (315) 797-4747 Fax
                                    Website: www.rcil.com
                                    Email contact: burtdanovitz@rcil.com
                                    County(s) Served: Madison




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Utica / Amsterdam                           Watertown / Lowville
RCIL Amsterdam Satellite                    Northern Regional Center for Independent
Ramon Rodriguez                             Living (NRCIL)
Program Director                            7396 Turin Road
Resource Center for Independent Living      Lowville, NY 13367
2540 Riverfront Center                      (315) 376-8696
Amsterdam, NY 12010                         (315) 376-3404
(518) 842-3561                              County(s) Served: Lewis
(518) 842-3593 TTY
(518) 842-0905 Fax
Website: www.rcil.com
Email contact: ramon.rodriquez@rcil.com
County(s) Served: Montgomery

Utica / Herkimer                            White Plains
RCIL Herkimer Satellite                     Joseph Bravo
Danny McLain                                Executive Director
Resource Center for Independent Living      Westchester Independent Living Center
401 East German Street                      (WILC)
Herkimer, NY 13350                          200 Hamilton Avenue, 2nd Floor
(315) 866-7245                              White Plains, NY 10601
(315) 866-7246 TTY                          (914) 682-3926
(315) 866-7280 Fax                          (914) 682-0926 TTY
Website: www.rcil.com                       (914) 682-8518 Fax
Email contact: sylvia.bunce@rcil.com        Website: www.wilc.org
County(s) Served: Herkimer                  Email contact: jbravo@wilc.org
                                            County(s) Served: Westchester

Watertown                                   White Plains / MOP
Brenda Campany                              WILC Minority Outreach Project (MOP)
Executive Director                          c/o Westchester ILC
Northern Regional Center for Independent    200 Hamilton Avenue, 2nd Floor
Living (NRCIL)                              White Plains, NY 10601
210 Court Street, Suite 107                 (914) 682-3926
Watertown, NY 13601                         (914) 682-0926 TTY
(315) 785-8703                              (914) 682-8518 Fax
(315) 785–8704 TTY                          Website: www.wilc.org
(315) 785-8612 Fax                          Email contact: jbravo@wilc.org
Website: www.rcil.com                       County(s) Served: Westchester
County(s) Served: Jefferson




                                           12
White Plains / Carmel
WILC Carmel Satellite
Putnam Independent Living Services
1961 Route 6
Carmel, New York 10512
(845) 228-7457
(845) 228-7460 Fax
(845) 228-7459 TTY
Website: www.putnamils.org
Email contact: jbravo@wilc.org
County(s) Served: Putnam

Yonkers
Mel Tanzman
Executive Director
Westchester Disabled on the Move, Inc.
(WDOM)
984 N. Broadway, Suite L - 01
Yonkers, NY 10701
(914) 968-4717 V & TTY
(914) 968-6137 Fax
Website: www.wdom.org
Email contact: info@wdom.org
County(s) Served: Westchester




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