Jobs Opportunities in Aspen Colorado - PowerPoint by nop15556


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									The Arc of the United States
       October 15, 2001, Aspen CO
        The Coleman Institute for
           Cognitive Disabilities
A Half-Century of Change
   In 1950, medical professionals
    frequently advised families to put
    children with disabilities “away” in state
    run institutions
   There were few options for families.
   Shame was a big factor in everyday life.
   The Post WWII spirit of optimism
    allowed families to gather together.
A Half-Century of Change
    The first convention of the National
    Association of Parents and Friends of
    Mentally Retarded Children was held in
    1950 in Minneapolis
   Federal Program of Action for America’s
    Retarded Children and Adults was
    presented to Congress (1956).
A Half-Century of Change
    Significant legislation, calling for
    Federal-State partnerships was enacted
    between 1963-Present.
   Most of this legislation married rights
    protections with implementation of new
    knowledge and scientific advances.
   Rights, without the supports to exercise
    those rights, are not rights at all.
Protecting Rights
The Arc helps to craft
and implement key
pieces of legislation
including the
American’s with
Disabilities Act (ADA)
and Individuals with
Disabilities Education
Act (IDEA)
A Half-Century of Change
   Today, our constituents live, learn, work
    and play in the community.
   Our constituents are increasingly
    speaking for themselves. Like other
    groups in our society taking action to
    help each other.
   Parents are proud of their kids.
   There is still much work to be done.
Our Beliefs
 We believe that all people with mental
 retardation and related developmental
 disabilities have inherent value, strength, and
 ability. Each of these individuals has the
 fundamental right to live, learn, work and
 worship in the community of their choice. Yet
 physical, emotional and social barriers limit
 their potential and acceptance by society.
Our Mission
 The Arc of the United States improves the
 quality of life for all people affected by mental
 retardation and related developmental
 disabilities through education, research and
 advocacy and prevention. The Arc will strive
 to eliminate barriers and foster the
 acceptance and inclusion of people with
 mental retardation and related developmental
Our Values
   People First
   Democracy
   Visionary Leadership
   Community Participation
   Diversity
   Integrity and Excellence
The Arc of the United States
Has touched millions of lives across the
United States since 1950
     Protecting Rights
     Holding Hands
     Spreading the Word
     Finding the Answers
     Being Part of the Community
Holding Hands
          The Arc provides information
          and support to families
          throughout the span of life.
          The partnership opportunities
          with all of you is enormous.
          With a network of local
          chapters in all 50 states,
          families have support at the
          local, state and national
Spreading the Word
The Arc heightens awareness
of the preventable causes of
mental retardation.
The Arc also works diligently
to expand awareness of the
abilities of people.
Awareness creates more
welcoming communities.
    Being Part of the Community
Local chapters of The Arc offer a myriad of services
 Advocates and mentors provide information
    and support
   Early intervention services
   Supported and group living
   Job placement & supported employment
   Case management
   Recreation
   Respite Care
Our Members Matter
   Our membership
    includes self-
    advocates and
   We are governed by
    our membership.
    We are NOT a top-
    down organization.
Finding the Answers
            The Arc plays an
            important advocacy role
            in research regarding
            our constituents.
            Advocacy for research
            funding is vital for
            We need to know from
            you where advocacy is
Our Position Statements
   The Arc has developed position statements
    addressing various issues related to rights,
    treatment, services and programs for children
    and adults and their families.
   Positions describe what The Arc believes on
    critical issues.
   The Arc's local, state and national officers,
    staff, committees and members use them to
    plan, operate and evaluate programs and
Our Position Statements
   They also use them in making public
    statements to the media and others
    interested in The Arc's positions on current

   The consistent use of these positions
    enables The Arc to advocate effectively as
    one voice throughout the nation.
Challenges facing families in
the 21st Century
   Despite enormous
    progress, the gains are
   Many families have little
   The quality of supports
    and services is highly
   Most adults are not
    productively employed.
   There is no private
Challenges, cont.
   Being the parent of a child or adult with
    a cognitive disability is not a spectator
   Despite the explosion of information
    and technology, most people still do not
   Mainstream institutions still
   The greater your dependence
    on others, the fewer choices
    and opportunities you have.
   The labor force demographics
    work against us. The cohort
    of potential caregivers is the
    smallest % of our population
    in history.
   Technology is a vital part of
    the solution.
Parents of children with cognitive
disabilities and adults with cognitive

   Don’t have the same choices as
    everyone else.
   If you are a person with a cognitive
    disability, the quality and availability of
    services and supports you receive are
    are eligible to receive (you get to wait
    in most cases) is more dependent on….
He was never intended for this
   Need reliable and accurate information, and
    the research community has failed to
    disseminate what it knows.
   Need professionals that understand the
    complexity of various funding sources and
    how they inter-relate.
   Need honest answers to the questions that
    keep them awake at night.
   Need support to help them do their jobs.
Keys to Success
    Dissemination, Dissemination,
   Information, information, information.
   Understand the marriage of science and
    civil rights.
   Learn what is available in different
    states through
   Learn about our position statements.
Hypocrisy is running rampant
in Washington!
     This should surprise no one
     At the same time they are talking about
      the New Freedom Initiative, and CMS is
      spending hundreds of millions of $ to
      support and assist states…
     The Department of Justice is taking
      sides with states to try and take away
      the power of Olmstead.
Hypocrisy, cont.
     The New Freedom Initiative has IDEA as a
      cornerstone, and Congress and the
      Administration are working to weaken the
      law’s protections.
     The Family Caregiver Support Act excludes
      people over 18.
     The Health Insurance Flexibility and
      Accountability Act allows states to take away
      services to all people with disabilities.
Hypocrisy, cont.
     Managed Care Regulations that were years in
      the making and contained many compromises
      were withdrawn at the last minute,
      weakening protections for people with
Where we are in 2001.
   There are some problems in
    community-based services, though they
    pale in nearly all circumstances, when
    compared to those faced by people in
    large congregate settings, both in years
    past and today.
   Special Education has become
    controversial and no one is happy.
“Things are not as they were”
   A big difference is that the problems in
    the community are very visible, and that
    visibility will help to improve the service.
    The visibility, however, should not be
    confused with pervasive and systemic
    problems in the field.
   Neither can we sit back and think
    everything is OK.
What’s at Stake?
   Risk losing gains we’ve
    made over the past 20 years.
   Fuel arguments against community
    alternatives to institutionalization.
   Re-segregate people.
   Put people with disabilities at risk
   Lose the confidence of families
The Coleman Institute and The
University of Colorado can lead the
next revolution.

To be a revolutionary you have to
 be a human being. You have to
 care about people who have no
                      Jane Fonda
The Coleman Institute and The
University of Colorado can lead the
next revolution.
The current revolution was
 championed by a famous
 political family.
The next revolution will be
 championed by another family,
 from the center of the
 technology revolution, sitting in
 this room.
We have promised so much….

  And we cannot fail to deliver on
         those promises.
Families Need this Partnership
If not us, then who?
     Keeping our Promises
Transformation from what was to
         what could be.

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