THE CORD PROFILE: WON SHIN On June 1, 1986, Won Shin broke his neck in a firm in Philadelphia in diving accident at Long Beach Island in New 1995. He earned a Master of Jersey. Won was airlifted to Thomas Jefferson Laws Degree from University Hospital where he underwent two Georgetown University in neck surgeries and experienced numerous 1998. Won joined an complications. In August of 1986, Won came international accounting firm to Magee where he would spend the next four in 1998 where he currently is months. a tax attorney. After Won was discharged from Magee in Won is also active in the community. He is on December 1986, he enrolled in one class at the Board of Directors of Arthur Ashe Youth Villanova University in the spring of Tennis and Education, Inc. Won is a member 1987. Won returned to college in Texas in of the Marple-Newtown School District Board August 1987. He graduated from college in of Directors. He is a member of the Presidents 1991 and then went to law school. Won Council of Magee Rehabilitation. Won is also returned to the Philadelphia area in 1994 after a Peer Mentor at Magee. graduating from law school. His first job was with then Mayor Ed Won lives in Newtown Square with his wife Rendell as an Assistant Dana. They have one daughter, Ainsley. Won Deputy Mayor in charge spends his leisure time with his family or of the Commission on watching the Flyers and Eagles. P e o p l e w i t h Won is motivated by three things: His desire Disabilities. After one to be better tomorrow than he was today, his year on the Mayor’s responsibility as a husband and father, and his staff, Won joined a law commitment to community. This project is supported, in part, by: Inside The Cord The National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education, Washington, D.C., grant #H133N-000023 SPINAL CORD INJURY 6 SUPPORT GROUPS The Friends of Jerry Segal RESEARCH & MEDICAL 7 INFORMATION The Geoffrey Lance Foundation WHEELCHAIR SPORTS 9 PAGE 6 THE CORD SPRING/SUMMER 2004 SPINAL CORD INJURY SUPPORT GROUPS SCI-PEERS, BEEN THERE, DONE THAT The SCI-Peer Consultant Program offers To call and request a peer consultation, contact individuals with newly acquired spinal cord the Peer Coordinators at 215-587-3174 or injuries the opportunity to benefit from the firstname.lastname@example.org. Peers knowledge and experience of those who have can be matched according to injury level, social “been there, done that.” situations, age, gender, marital status, recreational interests, and vocational MENTORS - For those who have weathered a experience. spinal cord injury, please consider volunteering as a peer consultant to help others through the difficult adjustment process. PROTEGES - For those who are adjusting to their spinal cord injury, mentors can answer questions and address concerns with the knowledge based on their personal experience. SCI FAMILY PEER SUPPORT GROUP Family Peer Support is a Inpatient and outpatient families are welcome. group in which specially Family Peer Counselors offer reassurance, trained families who have support and helpful practical tips. experience with a spinal cord injury help others who This group meets on the second Thursday of share their struggles. every month at 6 p.m. in Room 537 on the Family members and Spinal Cord Injury Unit at Magee significant others of individuals who have had Rehabilitation Hospital. For more information, a spinal cord injury are encouraged to attend. call Pat Thieringer at 215-587-3412. WOMEN’S DISABILITY SUPPORT GROUP This is a supportive psychotherapy disability. The discussions often address group that meets at Magee every topics such as relationships, career issues, Monday afternoon. A clinical intimacy, and sexuality. psychologist with expertise in disability rehabilitation leads this group focusing on women’s issues. If you are interested in finding out more about this group or other psychological services, contact Dr. Nancy Rosenberg at Women are encouraged to explore their 215-587-3210. thoughts and feelings about life with a SPRING/SUMMER 2004 THE CORD PAGE 7 SCI RESOURCE & SUPPORT You are invited to join this group which provides opportunities for education, TENTATIVE recreation, and support for individuals with TOPIC SCHEDULE spinal cord injuries. This group meets the second Thursday of every month at 6 p.m. in the 2nd floor Conference Room July 2004 Picnic (220/222) at Magee. August 2004 Phillies Game September 2004 Back to Work, School, etc. We are always looking for new topics. Please October 2004 Winter Activities contact the Peer Coordinators at email@example.com or November 2004 Driving 215-587-3174. Visit the Magee Peer Website at www.mageepeers.org to learn about upcoming events, disability information and resources, peer support, and the sale or donation of durable medical equipment. RESEARCH & EDUCATION RESEARCH PARTICIPANTS NEEDED 1. The SCI Center has 2. Persons who have been served as an developed a research tool to inpatient at Magee Rehabilitation Hospital are measure improvement in invited to participate in a research study to test walking in persons with spinal a web site designed for rehabilitation patients cord injury. We are seeking after they have been discharged home. volunteers to help us validate Participants with various types of disabilities the scale and make sure it is are needed for this project. An interviewer will reliable. Research participants must be motor come to your home within 2 months of incomplete and able to walk short distances discharge to show you the site and ask for your with or without assistive devices or assistance. feedback. You may participate in the study if Subjects will be required to come to Magee Re- you use the computer without any help or if habilitation Hospital on two different occa- you need help working the computer but are sions for about two hours each visit. Those able to answer basic questions about your who participate will be reimbursed $100 per functioning and what you think of the web site. visit for travel expenses and provided with free At the end of the session, which takes an hour, parking. patients receive $50 for their time and help. If you are interested in participating or would For more information, please call Dr. Mary like more information, please contact Mary Segal from the University of Pennsylvania at Patrick, R.N., RSCICDV Project Coordinator, 215-662-9123. at 215- 955-6579. PAGE 8 THE CORD SPRING/SUMMER 2004 RESEARCH FOCUS GROUP The Regional Spinal Cord Injury Center of If you are a person with SCI and would like to Delaware Valley (RSCICDV) at Thomas participate or would like more information Jefferson University Hospital and Magee about the project, please contact Mary Rehabilitation Hospital is conducting focus Patrick, R.N., RSCICDV Project Coordinator, groups to evaluate consumer’s priorities in at 215- 955-6579. dealing with recovery following a traumatic spinal cord injury. The focus group will be held at Magee. You will be reimbursed for your time and free parking will be provided. RESEARCH OF THE RSCICDV Current Open-label extension of double-blind, Completed Clinical Trials placebo-controlled, parallel group study to Study the effects of Body Weight Supported evaluate safety, tolerability and activity of Treadmill Training in acute incomplete spi- oral Famipridine-SR in subjects with nal cord injury. chronic incomplete spinal cord injury. Sponsor: National Institute of Health Sponsor: Acorda Therapeutics. A multi-site, open label study to evaluate Restoration of walking after spinal cord 250 mg oral NeotrofinTM BID in patients injury - validation of the Walking Index for with subacute complete spinal cord injury Spinal Cord Injury (WISCI) scale for over 12 weeks. hierarchical ranking. Sponsor: NeoTherapeutics, Inc. Sponsor: National Institute on Disabil- ity and Rehabilitation Research Double-blind, placebo-controlled, 12-week, (NIDRR). parallel group study to evaluate safety and efficacy of oral Fampridine-SR in subjects Restoration of walking after spinal cord with moderate to severe spasticity resulting injury - elements of a disability measure. from chronic, incomplete spinal cord Sponsor: National Institute on injury. D i s a bi l i t y a n d R e h a b i l i t a t i o n Sponsor: Acorda Therapeutics Research (NIDRR). Eye-voice enablement technology: Restoration of walking after spinal cord EVENtech, hands-free computer access for injury - a consumer preference for walking. the disabled. Sponsor: National Institute on Sponsor: National Institute of Health D i s a bi l i t y a n d R e h a b i l i t a t i o n Research (NIDRR). Spinal Cord Society The Spinal Cord Society meets at Magee Rehabilitation on the 6th floor at 1 p.m. on the first Saturday of every month. The Spinal Cord Society puts 100% of its funding into research for the cure of spinal cord dysfunction. If you want to support this research, consider attending one of these meetings. For more information, please contact Chris Cellucci at firstname.lastname@example.org or 610- 296-7429, or Dennis Ledger at email@example.com or 856-468-4401. PAGE 9 THE CORD SPRING/SUMMER 2004 RSCICDV WEBSITES During the past year, the SCI Center has a user survey asking consumer to concentrated its efforts on expanding our rate the information provided on website, www.spinalcordcenter.org, and our site. Additionally, the improving the information provided on our R S C I C D V w e b s i t e center and our research. Information provided www.spinalcordcenter.org now meets the 508 on the site includes the Spinal Cord Injury guidelines (except for the web-pages with the brochure which describes each phase of SCI educational manual) and is accessible to treatment at the RSCICDV; a facts and figure persons with a disability. sheet which describes the characteristics of spinal cord injury; a short bio-sketch on our In addition, the RSCICDV’s peer counseling SCI doctors and project staff, the current program has developed a peer website. The research being conducted at the RSCICDV peer website provides practical information including a feature “research participants and support that patients with SCI have come needed”, publications of the center, the to expect from our peers and is now available 20-chapter SCI educational manual including on-line at www.mageepeers.org. Features chapters on bowel and bladder management, on the site include the following: a message respiratory management, skin, cardiovascular, board – questions answered by our peers; nutrition, activities of daily living, equipment, frequently asked questions, especially those mobility, psychology, vocational services, common “coming home” questions; a recreational services and a resource guide, classified page which provides a place to buy, travel and transportation, sexuality and sell or donate used medical and adaptive follow-up care; information on how to refer a equipment; recreational opportunities; a patient; the latest news on the SCI Center; and calendar of events; and community resources. RSCICDV RESEARCHERS RECEIVE AWARDS Two researchers of the RSCICDV received Ralph Marino, M.D., Clinical awards at the 30th Annual Scientific Meeting of Director of the RSCICDV and the American Spinal Injury Association Associate Director of Research, (ASIA), which was held in Denver, Colorado, on received second place for best May 14-16, 2004. poster. His poster was entitled “Reliability of the ASIA Motor Anthony Burns, M.D., Assistant Director of the and Sensory exam.” An abstract RSCICDV and Assistant Professor of the of this was published in the Department of PM&R at Thomas Jefferson Journal of Spinal Cord Medicine in 2004. University, received the award for the best published journal article Important Web Pages which was entitled “Patient Selec- Find information on research, education, and tion for Clinical Trials: The Reli- ability of the Early Spinal Cord community programs on these webpages: Injury Examination.” The journal www.spinalcordcenter.org article was published in the Jour- nal of Neurotrauma in 2003. www.mageerehab.org www.mageepeers.org. PAGE 10 THE CORD SPRING/SUMMER 2004 SCI EDUCATIONAL MANUAL ON-LINE The Regional Spinal Cord Injury Center of This informative manual is Delaware Valley continually updates the SCI available on-line at Educational Manual for individuals with www.spinalcordcenter.org. The spinal cord injury and their family members. Center would like to extend The manual includes 20 chapters consisting of special thanks to all Spinal Cord various topics ranging from bowel/bladder Injury Center staff participating in this management and respiratory care to activities ongoing effort, special thanks to the Geoffrey of daily living and recreational resources. Lance Foundation for support of the latest revision. FOLLOW-UP REMINDER Don’t forget to schedule annual follow-up appointments with the outpatient department at Magee! Magee has outpatient programs in Rehabilitation Medicine, Pain Management, Stroke, Urology & Continence, Skin Program, Intrathecal Baclofen Therapy, Botox Injections, Electrodiagnosis, and Equipment Clinic. Consultative Services in Urology, Psychology, Podiatry, and Psychiatry are also available. To schedule a follow-up appointment, please call 215-587-3406. WHEELCHAIR SPORTS MAGEE PHILLIES SOFTBALL TEAM The Magee Phillies Wheelchair Softball team is Softball Tournament beginning an exciting third season. The team on August 21-22, 2004 appreciates the tremendous support provided at J. Hampton Moore by its incredible sponsors - Magee School. The team will Rehabilitation Hospital and the Philadelphia also travel to New York, Phillies! The team consists of men and women Boston, Baltimore, and of all ages with various disabilities and differ- Ohio to participate in ent skill levels who attend practices and games tournaments and during the summer months. J. Hampton games. They also plan to compete in the Moore School has graciously offered its school- National Wheelchair Softball League World yard blacktop as home Series this August in New York. field for practices, games and tournaments. We are always looking for new members to join the Magee Phillies Wheelchair Softball The Magee Phillies are Team. If you or anybody you know might be looking forward to interested in playing softball, please contact sponsoring their 2 nd Pat Thieringer at 215-587-3412. Annual Magee Phillies SPRING/SUMMER 2004 THE CORD PAGE 11 WHEELCHAIR TENNIS The 2003 season was quite successful for the will travel to tourna- Magee Freedoms wheelchair tennis team ments in New York, ending with the team traveling to the USTA Baltimore, Le h i g h, National Clay Court Championships in Philadelphia, Daytona Beach, Florida, to play in its first ever Lancaster, Delaware, National Championship. The trip was quite a and Daytona Beach. success with Brad Evans and Felix Suero teaming to win the B Doubles Championship. The team currently Also, Mark Chilutti won the C Singles title, and consists of five nationally ranked players: Mark then teamed with Walt Ramsay to win the Chilutti, Brad Evans, John Kistner, Walt Ram- C Doubles title. say, and Felix Suero, and is coached by Delynn Orton. Practices are held each week at Cherry During this busy year, the team won several Hill racquet club, usually from noon-2 p.m. titles, did several demonstrations on each Sunday, and consist of intense drills and wheelchair tennis, and made its third match play. appearance at halftime of a Philadelphia Freedoms professional tennis match. The Magee Rehabilitation Hospital is joining with Freedoms have been a great supporter of our Moss Rehabilitation and the Carousel House team, and presented all team members with to host the Philadelphia Wheelchair Tennis official Freedoms warm-ups, which they wear Tournament at Cherry Hill Racquet Club, proudly while traveling to tournaments. August 13-15, 2004. Please join us for some exciting tennis! The tennis team has just begun the 2004 season, with a great start at the Cajun Classic For more information on wheelchair tennis, in Baton Rouge, Louisiana. This year, the team please call Mark Chilutti at 215-587-3226. MARTIAL ARTS Each Monday evening, Magee Rehabilitation The martial arts can be a means of enhancing Hospital offers a martial arts program suited to physical abilities, building confidence, both wheelchair users and others with physical managing stress levels, and decreasing disabilities. For the past eight years, Michael vulnerability to physical attack. Students Saulino, MD, PhD, a Magee Physiatrist and report that as they continue to practice, they second degree black belt holder has offered notice a significant increase in strength, this martial arts training flexibility, endurance and respiratory control, at no cost to and a decrease in their pre-existing pain. participants. Dr. Saulino teaches an adapted Tae The advantages of this program can be enjoyed Kwon Do style of karate. by everyone. You are encouraged to find out In this program, more by observing a class and observing this students continue to innovative program personally. For more advance in belt levels on the way to the coveted information, contact Pat Thieringer at black belt. 215- 587-3412. PAGE 12 THE CORD SPRING/SUMMER 2004 MAGEE SIXERS SPOKESMEN BASKETBALL TEAM This is the seventh season that the Washington, Philadelphia 76ers, one of nineteen NBA teams Virginia Beach, sponsoring wheelchair basketball teams, have Hackensack, partnered with Magee Rehabilitation Hospital Charlottesville to support the Magee Sixers Spokesmen. The and Boston. The Magee Sixers Spokesmen have received season ended at warm-up suits and jerseys from the 76ers, and the National wear official 76ers jerseys for their games. Wheelchair Basketball Association (NWBA) Sectional This was an exciting year for 12 tremendously Championships in Boston., where the Magee talented young players who comprise our new Sixers placed third vying for a spot in the Division III developmental team. In its NWBA Final Four in Tempe, Arizona. inaugural year, the Division III team played a 16-game schedule that included the Temple Both teams played an exhibition during Owls, Scranton Allied Forces, and Long Island halftime of a Sixers Game at the Wachovia Renegades. In addition, the team played in a Center. They also demonstrated their skills at tournament in Richmond and its own Sullivan the Philly Fit Fest this spring. In addition, Classic Tournament. Shannon Burgess represented us at the NBA/ NWBA All-Star Game in Los Angeles. Visit our The established Magee Sixers Spokesmen website at www.nba.com/sixers/community/ Division II team competed in 30 games, sixers_spokesmen.html. finishing with a .500 record against a tough schedule of top 20 teams. The team was a New players are always welcome. For more strong contender in tournaments in information, contact Pat Thieringer at (215) 587-3412. MAGEE EAGLES RUGBY TEAM competition than ever before, earning a The Magee Eagles Wheelchair Rugby Team respectable sixth place in the Division II had its most successful season in history this tournament. They left Louisville with a lot of year. In existence since 1990, the team has sore muscles and a great pride earned by their struggled to make each year’s National accomplishments this hard-fought season. Championship Tournament, always getting to With a strong core of seasoned veterans, and a the doorstep but never crossing the threshold. young crop of new talent, the Eagles plan to be This past season, however, the Magee Eagles a permanent fixture on the National placed third at the Atlantic Sectional Championship scene in the years to come. Tournament in Sarasota, Florida, which earned them their first berth in the United The team encourages new players to come out States Wheelchair and enjoy the rugby experience. Whether you Rugby National want to just get a good workout, meet and Championships. socialize with a fun bunch of people, or become a serious rugby athlete with aspirations of At Nationals, in traveling and competing in tournaments Louisville, Kentuky, around the country, the Magee Eagles have the Eagles faced a something to offer. For more information, much stiffer level of contact Pat Thieringer at (215) 587-3412.
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